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imageNeal - Pancreatic Cancer Journey  My wife of 16 years, Emilee, passed from pancreatic cancer (exocrine adenocarcinoma) on January 31, 2017.  She was first diagnosed on May 9, 2015.   Here is a summary of her almost twenty one month journey. She hadn’t been feeling right for several months, maybe about six months or so.  She had been losing weight, which is something she had wanted to do, so it did not initially sound any alarms in her head.  Well, it might have, but she did not …More…
Type: Pancreas Cancer

imageJoannec - First day of chemo fiasco!  My first day of chemo for mantle cell lymphoma was a complete disaster. For valentines day I got to go for a last minute pet test. I got home from that at 7pm and turned around and was back uo at dana farber for my first chemo treatment at 7:30 am. They did my bloodwork and it was explained to me it would be 8 hours long. So i took every electronic device I had with me. One regular tablet. …More…

imagePati - Simple Task Not So Simple  Am thinking no one truly realizes how limited some of us are as we undergo treatment and rely on family/spouses for "everything." I believe this time last year I was more mobile; surely I was driving myself though I really do not recall my exact circumstances. Regardless, I am not driving myself this year and my husband's birthday is next week. I am hoping to feel strong enough to cook a meal for him or we will do "take-away" at …More…
Type: Breast Cancer

imageJoannec - Last minute pet  

imageJoannec - mantle cell lymphoma  My life has come to a standstill. Only a few days ago there was me and my family getting my husband through stage 4 throat cancer to a clear pet test. Life actually felt semi normal again. I had not been feeling well since halloween but even though i was having bouts of daily explosive diarrhea I was still not concerned. After all i had a check up with my primary dec 2. By the time i saw her i …More…

imageDeborah - Stint replacement  The Dr's office called, they set up a scope to take a look at the stint keeping the bile duct open.  We traveled to Portland yesterday and sure enough, the stint had slid down and was sitting just under the blockage, causing a backup of bile again.  Thank goodness they found this before he got sick again.  The poor guy has had jauntice twice.  And, this is his third stint, the first two slid out of place as well.  This …More…
Type: Pancreas Cancer

imagePati - We Cannot Bury Our Heads in the Sand  I freely admit that I would not have gotten a screening mammogram if my daughter and then our internist had not insisted. My internist advised me that I owed it to my daughter and she was right. I got it done at an imaging center on my insurance plan and they were incompetent. They had me back for an ultrasound of one of my breasts, and then tortured me with an MRI of both breasts - yet were not able to …More…
Type: Breast Cancer

imageNicole - I Am So Sorry It's Been So Long  Hello everyone. So I had my surgery November 8th and it's been hell. When I woke up I was in pain like I never imagined. I had a abdonimopeerineal resection..and the nurses said they had maxed out my pain meds in recovery and they couldn't do anything else and it felt like they hadn't given me anything. I am still now in a lot of pain it hurts me to sit more than 5 minutes which is why I haven't …More…
Type: Anal Cancer

imageBillea - My new baby  And since I'm talking babies thought I would post a pic of my new baby Jasper. If you can't tell he's a miniature long haired wienie. And 100% pain in the butt! But he's got me wrapped around his paw for sure.  …More…
Type: Pancreas Cancer

imageBillea - Happiness in a hospital!!  Hello all! Hope everyone is doing good and hanging in! I've been doing really good. My best friend (aka my sister) had a beautiful baby girl a few days ago. Her husband is in Kuwait/Iraq right now and couldn't be here. He did get to Skype so that was a blessing. He will be home in May finally. I have to say it was a very happy feeling to be at a hospital for something so wonderful instead of something crappy. …More…
Type: Pancreas Cancer

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