What are Mitomycin Chemotherapies? List from Cancer Survivors

The below is a list that has been posted by the bloggers in this cancer community. There are 7616 cancer fighters that are members here. This is what they said, not what the doctors or nurses will tell you.

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Mitomycin Chemotherapy Chemotherapies

What Mitomycin Chemotherapy Cancer Survivors said about their Chemotherapies.

5FU: 5/18/09 to 5/21/09 and 6/15/09 to 6/18/09 Mitomycin once on 5/18 and once again on 6/15/09
weeks 1 & 5 Day 1 Mitomycin-C 10mg + 5FU 1000mg pump x 48hrs wk 1: bleeding gums, low wbc, anaemia, tiredness wk 5: nausea, low wbc, anaemia, onset of abdominal cramping, extreme fatigue hair-thinning, fatigue
01-04-10 began chemotheraphy treatment. Mytomycin infused through port at onocologist's office. Went home with an infusion pump of 5-FU (Fluorouracil) that lasted 4 1/2 days.
Cisplatin and 5Fu daily for 5 days then 2 week break for 6 months low blood counts, nausea, fatigue etc. Hospitalized several times for low blood counts and infections. 12 weekly infusions of taxol, low blood counts, nausea, fatigue, neuropathy. Completed 3 of 4 A/C infusions hospitalized every time for low cell counts.
Mitomycin given in one dose on June 28, followed by a week of infusion of 5FU. Four weeks later a second cycle of 5FU. Following the first treatment, severe mouth sores for 8 days - at the end could not swallow more than a teaspoon at a time. The second cycle had reduced mouth sores, but I did not have the Mitomycin as my blood count was too low. After the chemo ended, I developed a problem that my doctor and I identified as milk protein immune reaction (a general problem known as FPIES, and usually seen in young chidren - so at least my innards were in their second childhood!). I was hospitalized twice for rehydration, following hours of vomiting and diarrhea, after eating ice cream (it's made mostly with milk, who knew?) and a soup with light cream base (about the same as milk - who knew?). This turned me into a "food detective" when I ate away from home (what is in that sauce?). Finally, after a year, the oncologist suggested "challenges"with a fourth-teaspoon of the ice cream, followed by half-a teaspoon, etc., until I consumed the same size serving as the one that sent me to the hospital, without any reaction. At last I could stop grilling my friends about what's in the food! At this point my only issue is the chile pepper question - if something is being cooked with any kind of chile peppers I start coughing. And eating them! Out of the question.
Cisplatin/5FU 4 courses may/June/ July/August 2017
Mitomycin and f5u-begin 4/12/11. . . . I was EXTREMELY tired and became EXTREMELY short-of-breath (ended up with bronchitis, but I have asthma.) One of the meds, Mytomycin, I think, can adversely affect the lungs. My thyroid got messed up so I now take meds. Nodules on lungs, on CT . . . monitoring those.
To start on 4th April 2011
Two cycles Week one Mitomycin C & 5FU(Flouracil) Week Five 5FU
2 rounds, 96 hours each week 1 and week 5 during radiation of 5-FU. Mytomycin-C first round only. Hairloss, nausea, vomiting, 30 pounds of weight loss. Recurrence 2013- 4 rounds of Cisplatin with 46 hours of 5-FU with each round.
Jan 7th week -1st round of chemo - severe nausea, dehydration, and mouth sores. For 2nd round 5 weeks later, started Lysine powder 1 week prior with mouthwash so no sores.
First round June 24, 2013. Vague feeling of unwell, horrible burping, relieved by Omeprazole, one and 1/2 days of sole pain, then resolved. Mouth sores began 6/29/13, peaked on 07/04/13. Second round July 22, Mitomycin reduced by half because of my WBC response the first time. Same feeling of unwell, anorexia, chemo created constipation for me, not diarrhea.
I haa a week of chemotherapy on week one (April 15-19th) and week five (May 13-May 17)) of my treatment plan. I had a pic-line put in each time for the chemo. I had both Mytomicyn and 5F-U. My first round of chemo, I had mouth sores, sore throat, and fever blisters on the mouth. My white blood count got so low that I had to have shots to boost my white blood count, and take a round of antibiotics. I also took pills to reduce getting fever blisters. My second round of chemotherapy, I was given a lower dose of the mytomicym due to the compromise of my white blood count the first time around .
Had surgery for Port placement in 01/2011. I began my first bout of chemo on 2/14/2011 along with radiation. I was in the chair for about an hour receiving the Mitomycin, and the 5-FU was portable, so it was hooked up and it was constantly dripping beginning Monday, and I would return Friday to get it taken off. I fortunately did not have too many side effects; no hair loss, not much nausea. I had a lot of fatigue, but I blame some of that on the radiation as well. Once I had my second (and final) round of chemo (which went the same way as the first), about halfway through my radiation, that's when I started to have a very difficult time and I was in a lot of pain and the effects of the radiation on my skin was much more apparent and was a lot more uncomfortable.
Very fortunate to have had fairly mild chemo effects--mostly fatigue, some mouth sores etc. but not much nausea.
dehydration, some mouth sores, not bad, lost some hair. intestinal pain, tiredness, low white blood cell count and platelets, hospitalized for 11 days because I didn't want to eat and felt like I would get too weak to take care of myself. They diagnosed me with dehydration and said the treatments had caused it. Started Aug. 26 with one injection of mitomycin, and carried drip bag for four days of Flourouracil(5-FU), repeated Sept. 24th, 2013.
First Round: 9/3/2013 Received an injection (infusion?) of mitomycin, then was suited up with a mechanical pump, a bag of 5-FU, and an ugly, poorly designed fanny pack. I had to wear it for 5 days. Lots of nausea, no vomiting, very tired - which could have been caused by the anti-nausea meds that I took regularly. I basically slept my way through the first two days. I had a overall sensation of just not feeling well. After that, although I couldn't eat much, the nausea went away. On day 4, I felt really good - very slow, but good. Day 5, woke up feeling extremely weak and dreamlike. Noticed sore throat and bleeding gums (while brushing). Have developed a sore "spot" on the right side of my throat. More energy on day 6. NOTHING tasted good. :( Cramping, but no diarrhea.
1st and 4th weeks delivered by fanny pack, continuous infusion while undergoing radiation
I will begin receiving 5-FU continuous infusion Mon.-Fri. for 6wks with Mitomycin added days 1&29.
Vomiting, hair thinning but no complete loss
1st round was delayed because they could not find a vein, so I had to have a pick line surgically put in for the full time and treatment was delayed a full week as a result. I developed a very bad rash from my chest up a few days later. Overall feeling of unwell. Felt sick when I ate. I ended up in the hospital following second round of chemo. It effected my blood badly and I had to have blood and platelet transfusions and 5 days of intravenous full spectrum antibiotics. I lost about 80% of my hair, but very late compared to most people. It got especially bad for about 4 months after my last chemo.
1st Mitomycin on Nov 18, 2013. 1st 5FU Nov 18 - Nov 22, 2013. 2nd Mitomycin on Dec 16, 2013. 2nd 5FU Dec 16 - Dec 20, 2013. Similar side effects both times: fatigue, mouth sores, gum bleeding, cramps, body pain, nausea, some vomiting, decrease white and red blood cells, some hair shedding after treatments; but much hair shedding suddenly began again two months later (not thyroid).
Day 1: March 24, 2014
7/15/13 1st round of chemo with Mitomycin and 96 hr (5 day) pump of 5-FU. Nausea, mouth sores, lack of appetite, weight loss. 8/12/13 2nd round of chemo ... same medication and side effects as 1st. Starting 7/18/14 Cisplatin, 5-FU. Every 3 weeks. Nausea, mouth sores 9/22 Carboplatin, 5-FU Every 3 weeks. Nausea, mouth changes 6/25/15 Carboplatin, Taxol every 3 weeks. Fatigue 7/15/15 Carboplatin, Taxol, Vectibix every 3 wks. Fatigue, Nausea, Dry Skin, Acne-like blemishes
Commencing Chemo 28th April
Flu type feeling... Fatigue Nausea ( took the meds every 8 hours to control) Hair thinning
Intravenous at day 1 and 30, during radiation in pill form - Mitomycin
2 weeks of chemo, the first week and last week of the 6 weeks. I had bad mouth sores both times. My hair got very thin.
First chemo started same day as radiation on 3-17-14 with a single dose of mitomycin and an infusion pump of 5-FU for 4 days. Beginning of the 5th week we repeated this process with 20% less mitomycin due to the low blood count. The first round I had few if any side effects. Felt tired and slow but when I got the pump off, I started to feel better. The second round was more difficult and my blood count fell too low, I got a low grade fever and ended up getting 2 blood transfusions and 5 shots to help build up the blood cells.
First round 3/17-20/14, 5-FU and Mytomycin. Nausea, fatigue, severe mouth sores (lips, mouth, tongue, throat) and white blood cell count down as low as .7. Second round postponed to 8th week due to C. Diff. infection. 1/2 dose with no severe side effects.
week 1 and week 5. Felt unwell 1st time but felt better pretty quickly. 2nd treatment really took me down. Fatigue, loss of appetite, fever- lost about 50% of my hair.
Nausea. Started chemo on August 26, 2014. Two rounds of chemo meds: one at the beginning or radiation and one at end of radiation.
April 2011 nausea and vomiting, weight loss,neutropenia,mouth sores, hair thinning April 2012 nausea, mouth sores, hair thinning
Standard protocol of 2 rounds of mitomycin & 5FU (8/13 & 9/13)
2 rounds of 96 hours each
2- 5 day rounds of Mitomycin infusion followed by Flouracil pump- Severe mouth sores & tongue swelling 1st round. Had Neupogen shots x4. NeulAsta shot after 2nd round - no sores.
began Nov17 for 96 hours and again on Dec 15 for 96 hours absolute neutrophil got down to .05 on Nov 27 and spent 4 days in isolation in hospital some hair loss and fatigue
6/26/2014 began 2 rounds of 96 hour pump in a pac, thru power port , severe nausea, dehydration, malnutrition, hair loss, very low blood counts, 3 hospital stays, serious condition
1st round week 1 December 15, 2014 nausea throughout, some hair thinning 2nd round week 5 January 12, 2015 nausea, terrible pelvic burns, hard time walking, raw, stinging while urinating and given phenazopyridine which seemed to help a bit and had to stop radiation for a week. Started back with 7 more treatments. Now 4 left to go.....
I felt like my body was vibrating during the oral chemotherapy. I was very fortunate in that my side effects were minimal.
Mitomicyn, flurosil-fu-5, weeks1 and 5, minimal side effects, some hair loss and fatigue.
Mouth Sores, fatigue, nausea
1st round 23-27 March 2015 - minimal physical side effects, more pyscologial with PICC line fear and awareness of carrying chemo bottle around for a week. 2nd round 20th -24th April - felt more at ease with the bottle and had no real side effects until the end of the week, then developed terrible mouth sores around back teeth - which I didn't first time round.
Started March 3rd, mitomicin infusion first week, next week started Xeloda 5 days a week, last week mitomicin and zeloda. Some feet neuropathy, 1 week off of Zeloda due to very low wbc and platelets, very tired. Hard to tell what symptoms go with which treatment
5 FU and Mitimycin == two rounds each. nausea, diarrhea, pain. Was in hospital for a week for low blood counts. Either blood or platelets (or both) given every day in hospital.
Mouth sores terrible lost taste for red meat. Hair thinned out
2009 - Mitfomycin, 5FU; 2011 Xeloda & Oxaliplatin; 2013 Paclitaxel & Carboplatin; 2014 Lapatinib; 2015 Xeloda (twice with radiation)
mitomycin on 6/29/2015, 5day infusion of 5-FU 6/29 - 7-4 Side effects "metal mouth" loss of appetite, fatigue
Mitomycin on Day 1 and Day 29 5-FU Days 1-4 and 29-32 Dry mouth, constipation, thinning hair at week 4. <<<<<<After reading this I have to say "chemo brain" because I don't recall writing that!!
Fatigue, nausea, mouth sores, hair loss. Developed an abdominal infection after the first round and was hospitalized for 10 days.
1st round 9/28/15: Mitomycin infusion; 5FU drip for 4 days. Stupidly stopped taking anti-nausea med Zofran for a day because it was making me constipated and proceeded to get sick throughout the night. Started taking Compazine instead. Developed thrush/mouth sores once finished with chemo - they lasted a week. Next round of chemo coming up 10/19/15.
Overall unwell feeling. I had chest tightness and pain, might have been from anxiety. I was lucky with minimal hair loss and had only light nausea. I took my nausea and pain medication as prescribed, not when I needed it. Once nausea sets in, it's very hard to get rid of it. While I did not like taking opioid pain medication, pain is like the nausea, once it sets in, it's hard to overcome. About two weeks after radiation concluded, the Dr. and I ''weaned'' me off the pain medication with over the counter pain meds. The last week of Chemo was the worst, in hospital for a week as I spiked a fever, got some heavy duty antibiotics.
Cisplatin and Xeloda front 20/08/14 through to 11/11/14 Sickness at the start of cycles 1 and 2. Swelling in my legs on the start of cycle 2. Dose was reduced for cycles 3 and 4 . I did not get along with the anti sickness tablets, I tried several different ones. EMEND was usefully but I stopped taking others and found ginger to be most helpful. I seemed to experience a little of all side effects. Ulcers, hand and foot syndrome, diarrhoea sickness and constipation but they didn't last long. Oh and my head hair thinned but I did keep enough.
2weeks of Chemo. Starting the first week of radiation and the last week. Mouth sores low blood pressure. Second round of chemo mouth sores. Hospitalized due to UTI for a week. Spent a month in the hospital. It was hard to recover
Mitomycin & 5FU started on 1/18 ended on 1/22. Next chemo to start on 2/15. Side effects were constipation, fatigue and low appetite and aversion to smells.
2 rounds via port, less than 96 hrs round 1 due to New Year's Eve infusion clinic closing, 96 hrs round 2, Low WBC, fatigue, port infection,
Nausea, loss of appetite, chemo brain.
FU and mitomycin. Extreme exaustion, WBC dropped to 0.9. Hospitalized.
Did well with the first round of chemo. Only side effects were loss of appetite and mild nausea. Did well again with my second round of chemo. Did not lose my hair!
5fu and Mitomycin Feb-Mar 2014
6/20/11 5 days; 7/18/11 5 days fatigue, nausea, parageusia, mouth sores, vomiting, hair loss, dry skin, brittle dark nails, low blood pressure, urine & stool incontinence, 2 blood transfusions, vitamin deficiencies
Capacitabine (Xeloda) 5 x week, 2 x day in tablet form Nausea WBC low, needed to stop chemo treatment for 10 days 2021 Chemotherapy with Carboplatine and Paclitaxel Hb low, needed 2 x blood transfusions
First round...mouth sores, nausea, weight loss, chemo rash on face and on upper torso, hair loss (about 80%).
Will start 1/27/17
May-June, 2015; 5-FU and Mitomycin
peripheral neuropathy
Nausea
Haven't started yet
Chemo first and fifth week. Mouth sores, nausea, and no appetite.
5FU and mitomycin. Lost all my hair, severe mouth sores, fever from extremely low blood counts, tired, nausea, two hospital stays for a week each time.
Fatigue, hair thinning, weight loss
Chemo started 3/14 - 3/19. Nausea lingered under surface the whole time. If I missed the anti nausea pill by 1/2 hour it’d take all day to catch back up. Mouth sores started on day 4. I caught a cold that stared on day 2 with a sore throat, full sinuses, lungs etc. the mouth sores progressed quickly and caused the sore throat to become excruciating. I’m still struggling to eat and get enough fluids. I was given iv fluids 2 days after the pump was taken off. And I’m currently trying to not have to go there again. Mouth sores finally abated after 2+ weeks. Unfortunately food still sounds awful, nothing tastes good and I start feeling bad after every time I eat. The blister in my bum apparently is from the chemo not the radiation. Great news is my doc is cutting the dose for 2nd round by 25% because I’m a slow metabolizer. Great. I hope it helps!with round 2 (which starts in 10 days -ugh) I’ve also started experiencing hypersensitivity on my upper left leg, and occasionally on my feet and hands. Started taking B6 to help. Hair started falling out 2 weeks after chemo- getting it cut short end of week 3.
nausea (finally controlled).
Pill Chemo - Xeloda 500 mg. 4 pills AM 3 in PM. Zofran for Nausea. 2 IV push of Mitomycin during the 1st & last radiation treatments. MItomycin IV side effects - Metallic taste in everything lasted 24 hours Xelolda - Annoying tingling in hands, legs & feet which went away week 1. Nausea waves Stomach pains in lower abdomen Constipation
Week 1: Mitomycin 15mg IVP Generic Xeloda 500mg 2 tablets started every 12 hours. Just felt queasy and very fatigue. Week 4: Mitomycin 9mg IVP, continue Xeloda. Developed skin blister to back. Overall, no hair loss, no vomiting, no mouth sores
Mitomicyn push on day 1 and day 29. Xeloda 5 days a week for 7 weeks. 3 pills in AM and 3 pills in the PM.
two 96-hour stretches of chemo with mytomycin and 5 FU (guess what my nickname for "FU" is...) Horrible side effects, bleeding and cracking at corners of lips, raw inside mouth, chronic nausea (nausea meds helped), weakness, depression, sleep problems, etc.
Chemo didn't affect me too much. Got some weird tastes in my mouth. My hair thinned a lot. Used to love beer, now I don't have a taste for it. I have a constant smell in my nose like some kind of burnt food.
1 round of IV Mitomycin and 28 days of oral chemo Capecitabine 18th March 2019 for 5.5 weeks run concurrently with Chemo.
2 rounds of mitomycin and F5 pump. Fatigue and brain fog. Loss of appetite and loss of normal taste bud function.
5/7/19 through 5/11/19 and 6/10/19 through 6/14/19. Mouth sores fatigue skin irritation from PICC line.
Started today 2020
2 rounds mitomyacin (push) and 5 FU (infusion pump at home X 4 days). 12/23/19 & 01/20/20. Severe fatigue. Nausea. Gastroesophageal imbalance requiring prescription Pepcid. Intolerance to pain meds. Severe Diarrhea.
Had injection of fluorouracil on day one. Wore chemo bag with mitomycin first and fourth weeks, Became dehydrated and had to have IV hydration. Accidentally removed my chemo bag. Had poor pain management at times. Was hospitalized at the very end of treatment for six days due to dehydration and pain management. Extreme pain with bowel movements. Feces was green. Horrible thrush. The first few weeks I could barely eat or speak. I lost 15 pounds and my hair fell out. Became extremely weak. Could not take a shower for about 3 month or drive. Could tolerate very few foods. Stayed on the toilet almost all morning and was afraid to not be near a toilet.
Mitomycic 1 IV push along with 5FU 96 hours on the first day then again on day 21
2 Continuous drip 4-5 day, rounds 5-fu and Only one of mitomycin were given due to how sick I was towards 2nd treatment. One given oct. 2018 the other december 2018.
NIGRO protocol with capecitabine + mitomycin began concurrently with radiation therapy (January 22, 2019 through March 4, 2019). I chose an oral medication instead of an infusion pump, which was somewhat risky because the oral medication was so new. At the time, there was very little history or research gathered on its effectiveness, but early data suggested it was at least as effective, and possibly even more effective, than infusions. I took a handful of pills twice a day on days when I received radiation, Monday through Friday for six weeks. Shortly into the therapy, I noticed food tasted different to me and became less enjoyable. I also experienced intense chest pain - enough to send me to the emergency room. I was followed by a cardiologist for the duration of my treatments, and fortunately the chest pain went away shortly after my cancer treatments ended. I am grateful that there was no permanent damage to my heart.
5-FU and mitomycin on week one and week five. Side effects were diarrhea, loss of skin in mouth twice, taste changes, loss of 90% of hair, colon spasms, fecal incontinence. Had a PICC line and had it changed three times in five weeks due to placement problems and then it became blocked before my last chemo treatment. Have two blood clots from it that I am still treating.
Mitomycin 3/29. 5 FU in pump 3/29 for 96 hours
Overall tolerated chemotherapy fairly well with minor side affects (loss of appetite, mild nausea, hair loss/thinning, low blood counts resulting in neulasta & a blood transfusion). Typing it all now, though, it seems worse!
Therapy in June and July 2021. Caused extreme fatigue, nausea, lack of appetite
Two weeks of chemotherapy at week 1 and week 6 of radiation treatments.
First round 11-29-21 thru 2-4-21 Second round 2-27-21 thru 2-30-21 Both with the fanny pack pump through my port
Nigro protocol, Flourouracil infusion (x2) with four-day at-home mitomycin pump, 09MAY22 and 06JUN22(?)
Mitomycin 5 FU June 13-17. constipation, flushed red skin on the face, neck, chest for two days, loss of appetite, nausea. 2nd Week June 20th more constipation and mouth sores/gum sensitivity
5-FU plus mitomycin; mostly weakness, nausea
I had two hospital drips of mitomycin and a capecitabine pills M-F six tablets a day.
Mouth sores. Fatigue. Nausea. Diarrhea. Hair thinning.
Grade 4 mucousitis. Hospitalized for 8 days
Nauseas, burning on butt, diarrhie , tired,
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