What are Fluorouracil (5-FU) Chemotherapies? List from Cancer Survivors

The below is a list that has been posted by the bloggers in this cancer community. There are 7062 cancer fighters that are members here. This is what they said, not what the doctors or nurses will tell you.

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Fluorouracil (5-FU) Chemotherapy Chemotherapies

What Fluorouracil (5-FU) Chemotherapy Cancer Survivors said about their Chemotherapies.

5-FU infusion mitomycin.. lss of appitite for a week, mouth sores.. feeling better when we took pump off.
Picc line inserted Nov 17, 2010... 5fu/mitomycin started Monday Dec 6, 2010. Took a week off from radiation after second round of chemo due to unmanageable pain. Finished chemo Jan 7th, 2011 and finished radiation Feb 4, 2011.
FEC and taxotere. Three treatments of each starting 2/11
5FU 8/23/10 through 9/27/10 24/7 once a week flush and bloodworkups. some nausea
PICC line put in 10/25/2010 intital large dose of Mitomycin, weekly infusion of FU5, disconnected every Friday, then started back on Monday 5 1/2 weeks. By 3rd week, severe stomach pains(lasted 1 week) diarrhea, no appetite, weakness , because of blood count did not take scheduled last dose of Mitomycin
Bi-weekly chemo. Energy levels vary. Diarrhea, one day only usually. Keep hydrated.
Cisplatin/5FU 4 courses may/June/ July/August 2017
Bi-weekly Chemo 6 months Oaxliplatin/ fluorouracil 5-fu
I started folfox with Avastin in April 2010, did 12 treatments & had my last one on Sept 7th, continued with Avastin til beginning of January 2011. I was already sensitive to the cold before I started oxali, it was horrible, my fingertips & feet still have that slight weird tingle to them, it's Feb. My oncologist & I agreed to start irinotecan after my surgery to knock things out for good.
Began 5FU and cisplatin chemo on 1/4/10 and 2/1/10 for 1 wk cycles. Side effects: nausea, vomiting, diarrhea, mouth sores, and fatigue. Hospitalized after last day of 5fu infusions for 3wks for chemo toxicity, diarrhea, severe abdominal cramping, dehydration uncontrollable fever, etc. At least I had completed menopause at age 42 and did not have to deal with the emotional side of this. Stopped HRT during treatments only.
Gi toxicity, fatigue, bone marrow suppression lasting many months hair loss, went in the hospital for a fever of 104 with low white count
Mitomycin and f5u-begin 4/12/11. . . . I was EXTREMELY tired and became EXTREMELY short-of-breath (ended up with bronchitis, but I have asthma.) One of the meds, Mytomycin, I think, can adversely affect the lungs. My thyroid got messed up so I now take meds. Nodules on lungs, on CT . . . monitoring those.
Xeloda oral 2000, started March 22nd - OK up to date Folfox - starting August 29th, port inserted on July 29th. Side effects from folfox - berable - cold sensitivity in hands and eyelids. Tingling in hands, shin cramps, tiredness, eye dryness.
Gemzar, Taxotere and Xeloda
Starting on 18th April, 2011
Mitromycin and 5FU via pump, 1st week and 4th week of treatment. Nausea - 4 week had to be hospitalized
To start on 4th April 2011
4/4/2011 - FOLFOX6 with Avastin. Some fatigue, peripheral neuropathy, cold sensitivity. Discontinued after 3 rounds 7/1/2011 - Switched to Xeloda. Stopped first round after 9 days due to much bowel discomfort.
Chemotherapy is bi weekly on fridays! Side effects include Nausea, fatigue, and weakness, hair thinning
Induction chemo for 2 months prior to radiation treatment - once a week during radiation; mouth sores for four days after first round, hair loss, fatigue, and some taste changes, but all in all, he did really well. Very little nausea.
Body would only take 1 day session.
2/09/10 mitomycin & 5fu
Have had ten of twelve treatments. Nausea, loss of appetite, food not tasting good, neuropathy in fingertips and very susceptible to hot and cold beverages/food.
8 sessions, sweats, nausea, constipation, de hydration, low white cell counts. joint, bone, muscle, numbness, tingling, pain from Taxol during and post-chemo. Peripheral neuropathy has been diagnosed.
Two 96-hour rounds of Mitomycin and 5FU on Mar 15, 2011 and Apr 11, 2011. Side effects were mouth sores, fatigue, diarrhea, loss of appetite, hair thinning.
January 2010- January 2011- Cisplatinin and 5 FU February 2011-May 2011- Oxaliplatinin and 5 FU June 2011-present - pclitaxol
FOLFOX 8 treatments split into two rounds - one round before radiation and the other round post radiation Feb 3 - July 18, 2011 Neuropathy, hair thinning, blisters on fingers and feet, diarrhea, constipation, nausea,
4 days twice Fluorouracil (5-FU)and Mitomycin.
I had a great wife with me every one so they could never be all that bad. I had 2350mg of 5FU and Oxaliplatin over 48 hours every other week for first 3 months for last 3 months have had 1105mg of 5FU Leucovorin every week.
First treatment was June 8th 7 hours between the other meds olus the chemo..Cisplatin and Gemzar.. Felt ok the day after but then started feeling very sick, achy, headache, ringing in ears, coulnt eat, weak, dizzy,tired,shaky all over I only felt well enough to go to the doctor on the 7th to have my blood drawn..saw dr and he said he would up my steroids next time and that should help second treatment was on the 8th, Just the gemzar.. Really tired and achy. Dizzy and weak. Had my shot of Lewnasta on Monday. Still fell tired and bone pain
through March 2008 CMF cocktail, 8 rounds. never lost my hair, nausea got pretty bad... three rounds in, I became a petulant child and announced I was NOT going back. A nurse family member asked my mom what kind of anti nausea meds I was given (don't remember) and told my mom to relay the following: "tell her to get pot, the pills suck" .... My resourceful husband came home with a surprise shortly after round 3. It PISSES me off that I had to break the law because the fact is, at least for me, IT WORKED and it was AMAZING.....
A 2 chemical soup every 3rd Monday and then a 24/5 fanny pack pump the same week as above. I have 1 week on and 2 weeks off treatment
5FU, Leucovorin and Oxiplatin. Typcial symtoms could not tolorate cold after treatment, slept alot. I worked full time through chemo. Felt exhausted and don't remember too much in this time period. Work and slept.
Sept. 2010 to Nov. 2010 - Oxcaliplatin, 5FU, Avastin. Oxc. not working changed to Irinotecan/Avastin. till April 2011. Tumor growth in liver and lymphnodes. Itinotean/Erbitux from June 2011 till present.
took Docetaxol (Taxotere) after FEC - finished chemo July 22
side effects; weakness, fatigue, occasional nausea.
Oral chemotherapy taken on radiation days 08/10/2011 - 09/19/2011 No side effects. Folfox - Begin 01/10/2012 - End date due to non-cancer complications: 4/18/2012. To date: lip numbness when I go in the cold for a couple of days after treatment. Cold sensitivity to foods and drinks for the first few days after treatment. No issue with fatique or nauseu to date. Xelox to replace Folfox: 05/02/2012 No side effects. End date due to non-cancer complications: 06/05/2012.
Just began 5FU 5 days ago. First round.
5-FU & Mito-3 for 4 days March 2010 and April 2010
Chemo to start with radiation on Sept 26. Need a PICC. Mitomycin C and 5FU. Two weeks for five days. One week on, then three weeks off, then one week on again.
5-FU started 6/27/11 hooked up to the pump 7 days a week for 6 weeks....ugh!!! Grueling. Side effects consist of nausea and vomiting, finished the first round 8/2/11. Now I have to continue 9/21/11 for 4 months... 5-FU, Oxaliplatin, Avastin & Leuc
Started FOLFOX Sept '11
F5U 2 runs of 96 hours, Side effects included some nausea and tiredness.
Oxalipilatin/5FU/Leucovorin/Avastin Feb 2011- Aug 2011 with use of pump at home. Now on 5FU/Leucovorin/Avastin weekly. Side effects peripheral neuropathy, vomiting, behavioral changes
5FU and Mitomycin during 1st and 5th weeks of treatment
24/7 5FU with another drug u can't remember through port. Six weeks, 4 days, 12 hours.
Flu like symptoms and fatigue.
1st and 5th week for 4 days
Mitomycin + 5FU - twice. 1st and 5th week of radiation
Chemo-therapy of 5FU and Oxaliplatin started 3/12/2012 and finished 8/13/2012 administered every two weeks, and taking home an infusion pump of 5FU for two days.
1/23/2012 had IV mitomyacin then 96 hrs of 5 FU via pump. Extremely fatigued all week, not sure if it was the 5 FU or mito. Started Neupogen injections following Monday for 7 days. No nausea at all. Appetite great. Mouth sores began with a vengeance following sat and lasted 7 days. Could only swallow liquids so I mostly lived on instant breakfasts. Two weeks later my finger tips began peeling and hair loss began.
mytomycin, 5FU April and May 2010. Loss of hair, nausea, mouth sores
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss 6 rounds Hepatic artery infusion (oxaliplatin)avastin 3 month Jakafi (oral) unknown trial drug nano cisplatin and gemcitabine
Chemo Wed, leave with bag, come back on Fri. Side effects neuropathy, fatigue, nausea, occasional constipation and/or diarhea
None, but for me I am receiving my medicine through a port in my chest, I have a small pump with a bag that they change once a week. my medicine is 5fu. The only side effect that I have is that I am alway hungry, I can not seem to get enough to eat. No nausea or cramping, no mouth sores or peeling skin. Just extremely hungry all the time.
Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse. Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo.
First round 1/23/2012-1/27/2012: Some mouth tenderness, fatigue, slight nausea. Second round 2/21/2012: side effects mainly similar to the first time but not as bad. The second round had serious heartburn though.
5 FU via port 2 x 5 days. Started Jan. 24 2012. No major side effects. Constipation.
Fluorouracil (5-FU) and Mitomycin.
2 rounds. constipation and not too much else
It seems to be the standard Mitomycin-C and 5FU in the first and fifth week of treatment. Mitomycin C dose lowered by 25% due to low WBC & platelets first time around.
Started Chemo 3/19/12 - completed 4/26/12 with mininal side effects.
First circle two times for one week during radiation, second circle stopped after the first week because of acute leucopenia.
First Taxol 1.5.11, once a week for 12 weeks, FAC once every 3 weeks from 3.30 - 6.1.11. Taxol made me feel like I was wearing a lead raincoat and concrete shoes. FAC was far more discouraging. Lots of digestive issues, couldn't eat, everything taste nasty. It was horrible.
March 19-23, 2012 and April 16-20, 2012: 4 days chemo (Fluorouracil and Mitomycin C)through chest port.
mytomicin at beginning and end of 6 weeks 96 hours of 5FU at beginning and end doses halved for second cycle because of bad reaction to 5FU
3 treatments every two weeks with neupogen shots after every treatment. White blood cross ave been a problem but my platelets are what concern me. They have continued to decline and are not rebounding back between treatments. other concerns which are minor but irritating is the coldness everywhere especially the throat, hands and feet. Fatigue is manageable now after 3 months. Metal tasting mouth and bad breath right after treatment ....yuk! Lack of appetite seems to occur during the treatment week but subsides the following week.
Nausea and fatigue. Hair thinning and loss due to mytomycin.
I do not remember all of the names. The chemo was a combination of four different chemo drugs. It did not work. My father experienced nausea and could not taste anything so lost his appetite. He also was very sensitive to temperature. We are still waiting to start a trial chemotherapy drug! Pray, pray, pray!
2 rounds, 96 hours each week 1 and week 5 during radiation of 5-FU. Mytomycin-C first round only. Hairloss, nausea, vomiting, 30 pounds of weight loss. Recurrence 2013- 4 rounds of Cisplatin with 46 hours of 5-FU with each round.
Nigro protocol. Other than being tired and losing about 1/4 of my hair, the only serious side effect was mouth sores. I did have optic neuropathy for about 6 hours one week after each 5 FU.
Fluorouracil (5-fu), Oxaliplatin, Avastin, leucovorin. 1/15-3/2? Side effects - Extreme fatigue, nausea, cold sensitivity, neuropathy
Alt Folfiri/Folfox 2010/Feb through 2010/June Folfiri/Erbitux started 2011/March Changed to Folfox/Avastin 2011/Oct Clinical trials 2012/Sept
The standard for anal cancer: two rounds of 5FU & Mitomycin. Lost about half my hair. Very bad mouth sores and oral thrush, especially in the 10 days after infusions. Became neutropenic (big drop in the type of white blood cells that are the major infection fighters) with second round of Mitomycin.
Neuropathy in toes arms diarreha constitpation pain when going. I have fissures now because of not being able to go which is causing bleeding and immense pain even hours after. Pain in jaw when I first eat. heart palpitations. No more mouth sores or fevers since I have been taking vitamins b and magnesium with zinc. Numbness in both hands and feet and cramping
10/2011-12/2011 2 rounds of 5FU through picline., 6/2012-2/2013 Several rounds of Cisplatin
3 doses of Cisplatin.
Starting Aug 27th 5FU and Mito C
Mitomycin and 5FU - 2 rounds
First treatment on 8-16-12 of FOLFOX Avastin begins 8-30 with second treatment Side effects: mouth soreness, sensitivity to cold
Folfox6 November 13, 2012. 12 treatment cycles over 6 months, end date April 18, 2013. Oxaliplatin-allergic reaction, tongue numbness, profuse sweating, numbness in hands. Benadryl for two days. Immediate neuropathy in hands and feet, sensitivity to cold, very weak, chest pressure, numbness and tingling in limbs. 5FU- nausea' headache, diarrhea, itchy skin, no appetite, vision problems, dizziness
1st session, September 20th. Once a week for 3 weeks then 1 week off. October 25th, white blood cell count was down for the 1st time, so they skipped chemo for that week. November 1, 2012, white blood cell count back up so they did chemo. December 2012 started 5 FU, Oxaliplatin and Leucovorin every 3 weeks to target the abdominal lining tumors that are continuing to grow. April 19, 2013, CT shows the chemo isn't working on the abdominal lining tumors, and they have given him the best chemo treatments they have, nothing more they can do. But will reduce the chemo he has been on to reduce painful sores in his mouth and side effects that were getting worse with each treatment, I think to keep the liver and pancreas tumors at bay and hopefully still give him pain relief.
Mitomycin/5fu on Nov.26 for 5 days, next dose is scheduled for Dec. 24th for 5 days (Merry Christmas to me!)
Jan 7th week -1st round of chemo - severe nausea, dehydration, and mouth sores. For 2nd round 5 weeks later, started Lysine powder 1 week prior with mouthwash so no sores.
Jan 21- vomit, headaches, fatigue, lack of sleep, sore throat, cold sores, dry mouth, weak, pain, dry skin, headaches
June 2012-October 2012; Reported Lethargy, nausea, changes in taste, neuropathy in fingers, weight loss.
Chemo week 1 & 5 of the 6 week treatment. Mytomycin only 60% of normal dose because of high creatinine levels and 5 FU 96 hours All chemo done in patient at hospital for 5 days. Not really nausea...Zofran works wonders, BAD diareaha and painful stomach cramps...Lomotil helped with that, terrible bone pain in my arms sternun and lower back and legs from the Nuprogen to raise my white counts, headaches,one huge mouth sore on the roof of my mouth and gums were out of wack and bleeding...was given Valtrex and that did the trick
March 22(3 types of chemo) i feel it lessened his quality of life, but for my dad he needed to fight back!!!
chemo from 2/98 through 9/98
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.
Port unplanted chemo came in a pump that I worn for 2 or 3 days. I had 2 treatments. Lost a little hair on the 1st round. The 2nd round I ended in the hospital for 8 days, just about took me out.
5FU & Oxaliplatin
2 rounds, 5 days each: tiredness, metal taste in mouth, constipation
First round June 24, 2013. Vague feeling of unwell, horrible burping, relieved by Omeprazole, one and 1/2 days of sole pain, then resolved. Mouth sores began 6/29/13, peaked on 07/04/13. Second round July 22, Mitomycin reduced by half because of my WBC response the first time. Same feeling of unwell, anorexia, chemo created constipation for me, not diarrhea.
I haa a week of chemotherapy on week one (April 15-19th) and week five (May 13-May 17)) of my treatment plan. I had a pic-line put in each time for the chemo. I had both Mytomicyn and 5F-U. My first round of chemo, I had mouth sores, sore throat, and fever blisters on the mouth. My white blood count got so low that I had to have shots to boost my white blood count, and take a round of antibiotics. I also took pills to reduce getting fever blisters. My second round of chemotherapy, I was given a lower dose of the mytomicym due to the compromise of my white blood count the first time around .
Had surgery for Port placement in 01/2011. I began my first bout of chemo on 2/14/2011 along with radiation. I was in the chair for about an hour receiving the Mitomycin, and the 5-FU was portable, so it was hooked up and it was constantly dripping beginning Monday, and I would return Friday to get it taken off. I fortunately did not have too many side effects; no hair loss, not much nausea. I had a lot of fatigue, but I blame some of that on the radiation as well. Once I had my second (and final) round of chemo (which went the same way as the first), about halfway through my radiation, that's when I started to have a very difficult time and I was in a lot of pain and the effects of the radiation on my skin was much more apparent and was a lot more uncomfortable.
Very fortunate to have had fairly mild chemo effects--mostly fatigue, some mouth sores etc. but not much nausea.
dehydration, some mouth sores, not bad, lost some hair. intestinal pain, tiredness, low white blood cell count and platelets, hospitalized for 11 days because I didn't want to eat and felt like I would get too weak to take care of myself. They diagnosed me with dehydration and said the treatments had caused it. Started Aug. 26 with one injection of mitomycin, and carried drip bag for four days of Flourouracil(5-FU), repeated Sept. 24th, 2013.
PICC line surgically inserted for take away 24/7 chemo, replaced weekly. skin rash on chest, drop in blood pressure, drop in red cell count requiring x3 blood tranfusions, nausea, dizziness, alternating constipation through pain meds and diarrhea from chemo/radiation combo, mouth sores, lack of appetite.
Begin weekly Erbitux 9/10/13, Cisplatin/5FU 5/14, CarboTaxol 7/15
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