What are Fluorouracil (5-FU) Chemotherapies? List from Cancer Survivors

The below is a list that has been posted by the bloggers in this cancer community. There are 7029 cancer fighters that are members here. This is what they said, not what the doctors or nurses will tell you.

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Fluorouracil (5-FU) Chemotherapy Chemotherapies

What Fluorouracil (5-FU) Chemotherapy Cancer Survivors said about their Chemotherapies.

First Round: 9/3/2013 Received an injection (infusion?) of mitomycin, then was suited up with a mechanical pump, a bag of 5-FU, and an ugly, poorly designed fanny pack. I had to wear it for 5 days. Lots of nausea, no vomiting, very tired - which could have been caused by the anti-nausea meds that I took regularly. I basically slept my way through the first two days. I had a overall sensation of just not feeling well. After that, although I couldn't eat much, the nausea went away. On day 4, I felt really good - very slow, but good. Day 5, woke up feeling extremely weak and dreamlike. Noticed sore throat and bleeding gums (while brushing). Have developed a sore "spot" on the right side of my throat. More energy on day 6. NOTHING tasted good. :( Cramping, but no diarrhea.
Chemo was 1 day a week for 5 weeks and I went after I had my radiation treatment. They made me very tired and weak feeling. Some days I just had to go home and go to bed. Was only sick a couple of times but kept diarrhea the whole time I was having the chemo treatments, going to the bathroom some days as many as 11-12 times.
Folfox mix of chemotherapy -nausea, vomiting, diahhrea , nil taste I food, shaking, mouth ulcers, dry skin
1st and 4th weeks delivered by fanny pack, continuous infusion while undergoing radiation
May 2010-July 2010: 24 hour, continuous 5FU infusion, Mondays-Fridays November 2010-January 2011 :Folfox December 2011-April 2012
I will begin receiving 5-FU continuous infusion Mon.-Fri. for 6wks with Mitomycin added days 1&29.
Folfirinox Jan 2013 - Feb 2013, switched to Abraxane and Gemcitabine March 2013-current
FOLFOX started 2/11/2012 and ended on 7/18/12. The oxaliplatin in the FOLFOX caused peripheral neuropathy.
Vomiting, hair thinning but no complete loss
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.
1st round was delayed because they could not find a vein, so I had to have a pick line surgically put in for the full time and treatment was delayed a full week as a result. I developed a very bad rash from my chest up a few days later. Overall feeling of unwell. Felt sick when I ate. I ended up in the hospital following second round of chemo. It effected my blood badly and I had to have blood and platelet transfusions and 5 days of intravenous full spectrum antibiotics. I lost about 80% of my hair, but very late compared to most people. It got especially bad for about 4 months after my last chemo.
2 rounds.. mouth sores
1st Mitomycin on Nov 18, 2013. 1st 5FU Nov 18 - Nov 22, 2013. 2nd Mitomycin on Dec 16, 2013. 2nd 5FU Dec 16 - Dec 20, 2013. Similar side effects both times: fatigue, mouth sores, gum bleeding, cramps, body pain, nausea, some vomiting, decrease white and red blood cells, some hair shedding after treatments; but much hair shedding suddenly began again two months later (not thyroid).
12/23/13-02/03/14- fatigue
Began with Xeloda in pill form that was simultaneous with my Radiation. 6 weeks Mon-Fri. Didn't have any problems with this drug whatsoever. March 2014 began Oxaliplatin and 5FU for the next 6 months. I where a pump for 48 hours of continuous infusion every other week. I was told to be cautious of cold weather and cold drinks or any other type of cold items. So drinking everything at room temp is pretty boring but I did find out what happens if you do try to tempt fate and drink a cold substance----it felt like I was swallowing shards of glass down the back of my throat. YIKES. So far, I have only noticed a bit of nausea during the week of treatment and fatigue, but I know it is early and these symptoms will undoubtedly worsen as time goes on. Not looking forward to this. Really have dreaded the whole chemo thing.
Day 1: March 24, 2014
7/15/13 1st round of chemo with Mitomycin and 96 hr (5 day) pump of 5-FU. Nausea, mouth sores, lack of appetite, weight loss. 8/12/13 2nd round of chemo ... same medication and side effects as 1st. Starting 7/18/14 Cisplatin, 5-FU. Every 3 weeks. Nausea, mouth sores 9/22 Carboplatin, 5-FU Every 3 weeks. Nausea, mouth changes 6/25/15 Carboplatin, Taxol every 3 weeks. Fatigue 7/15/15 Carboplatin, Taxol, Vectibix every 3 wks. Fatigue, Nausea, Dry Skin, Acne-like blemishes
Commencing Chemo 28th April
3- 8 hr chemos mostly nausea.
Flu type feeling... Fatigue Nausea ( took the meds every 8 hours to control) Hair thinning
2 weeks of chemo, the first week and last week of the 6 weeks. I had bad mouth sores both times. My hair got very thin.
First chemo started same day as radiation on 3-17-14 with a single dose of mitomycin and an infusion pump of 5-FU for 4 days. Beginning of the 5th week we repeated this process with 20% less mitomycin due to the low blood count. The first round I had few if any side effects. Felt tired and slow but when I got the pump off, I started to feel better. The second round was more difficult and my blood count fell too low, I got a low grade fever and ended up getting 2 blood transfusions and 5 shots to help build up the blood cells.
5-fu orally before surgery 11/12 - 12/12. The oral chemo did a number on my stomach lining. After surgery did 8 FOLFOX treatments 3/13 - 7/13, side effects were sensitivity to cold, some nausea but not bad, and tired.
FOLFOX every two weeks for 12 treatments total through a port installed in my chest. Started 3/17/14. Main side effects are fatigue and bouts of nausea. Catheter from my port ruptured 2 months into treatment. Port replaced 7/3/14.
6/7/14
June 2013 - December 2013
5-Fluorouracil (5-FU) My sister gets chemo every other week. Her main side effect is diarrhea. She has had 3 chemo fusions so far. She has diabetes and the chemo she receives has glucose in it so when she receives the chemo her blood sugar level goes sky high and she gets severe headaches. She then takes additional insulin following the chemo to help bring down the sugar levels. I am amazed at the medications that help her symptoms. When told she was going to have "bone pain" after a shot to boost her platelet count, she was told to take "Claritin".
First round 3/17-20/14, 5-FU and Mytomycin. Nausea, fatigue, severe mouth sores (lips, mouth, tongue, throat) and white blood cell count down as low as .7. Second round postponed to 8th week due to C. Diff. infection. 1/2 dose with no severe side effects.
week 1 and week 5. Felt unwell 1st time but felt better pretty quickly. 2nd treatment really took me down. Fatigue, loss of appetite, fever- lost about 50% of my hair.
Nausea. Started chemo on August 26, 2014. Two rounds of chemo meds: one at the beginning or radiation and one at end of radiation.
April 2011 nausea and vomiting, weight loss,neutropenia,mouth sores, hair thinning April 2012 nausea, mouth sores, hair thinning
Standard protocol of 2 rounds of mitomycin & 5FU (8/13 & 9/13)
2 rounds of 96 hours each
I was completely fine up until chemo #5. All of them are 52 hours, I go home with the pump. Chemo# 5 put me down. Fatigue, mouth sores, numbness in toes, extreme sensitivity to cold, loss of appetite.
CHEMO 1/2/2012, CHEMO 8/1/2012, CHEMO 7/1/2013 HAIR LOSS
2- 5 day rounds of Mitomycin infusion followed by Flouracil pump- Severe mouth sores & tongue swelling 1st round. Had Neupogen shots x4. NeulAsta shot after 2nd round - no sores.
began Nov17 for 96 hours and again on Dec 15 for 96 hours absolute neutrophil got down to .05 on Nov 27 and spent 4 days in isolation in hospital some hair loss and fatigue
6/26/2014 began 2 rounds of 96 hour pump in a pac, thru power port , severe nausea, dehydration, malnutrition, hair loss, very low blood counts, 3 hospital stays, serious condition
folofox: 3/14-9/14, starting again 1/15
First week of treatment was dual with radiation. Received IV mitomycin drip for 1 hour with 5 day 24 hour power port 5fu 5th week same treatment. First treatment: nausea and severe mucositis limiting food intake. Second treatment wiped out wbc to .29 hospitalized with swollen abdomen and blocked bowel with severe abdominal pain, loss 22 lbs went down to 87lbs.
1st round week 1 December 15, 2014 nausea throughout, some hair thinning 2nd round week 5 January 12, 2015 nausea, terrible pelvic burns, hard time walking, raw, stinging while urinating and given phenazopyridine which seemed to help a bit and had to stop radiation for a week. Started back with 7 more treatments. Now 4 left to go.....
Mitomicyn, flurosil-fu-5, weeks1 and 5, minimal side effects, some hair loss and fatigue.
Mouth Sores, fatigue, nausea
1st round 23-27 March 2015 - minimal physical side effects, more pyscologial with PICC line fear and awareness of carrying chemo bottle around for a week. 2nd round 20th -24th April - felt more at ease with the bottle and had no real side effects until the end of the week, then developed terrible mouth sores around back teeth - which I didn't first time round.
96-hr infusion, week 1 and week 5, hated the clicking of the pump! About 35% hair loss on head. Total hair loss under arms and legs. Mild nausea, tired all the time, achy muscles. Ended up with a blood clot in my neck from the chemo port. Was on twice-daily injections of blood thinner for 3 months.
Mar 4 _ Sept 15 2015(Folfirinox)Nausea, weakness, vomiting, low potassium, low platelets (despair)
5 FU and Mitimycin == two rounds each. nausea, diarrhea, pain. Was in hospital for a week for low blood counts. Either blood or platelets (or both) given every day in hospital.
Mouth sores terrible lost taste for red meat. Hair thinned out
Protocol #1: First of 3-21 day cycles of 5-FU, Cisplatin and Docetaxel started 10/7/13 - around the 2 or 3 week started losing hair and experiencing nausea, fatigue, weight loss, etc; Protocol #2: Eribtux and concurrent radiation for 6 weeks started ~12/10/13 - neuropathy in feetbegan a few months after treatment stopped and is still ongoing.
2009 - Mitfomycin, 5FU; 2011 Xeloda & Oxaliplatin; 2013 Paclitaxel & Carboplatin; 2014 Lapatinib; 2015 Xeloda (twice with radiation)
mitomycin on 6/29/2015, 5day infusion of 5-FU 6/29 - 7-4 Side effects "metal mouth" loss of appetite, fatigue
every 3 weeks, side effects: tinnitus and stomatitis after the last one
Mitomycin on Day 1 and Day 29 5-FU Days 1-4 and 29-32 Dry mouth, constipation, thinning hair at week 4. <<<<<<After reading this I have to say "chemo brain" because I don't recall writing that!!
Fatigue, nausea, mouth sores, hair loss. Developed an abdominal infection after the first round and was hospitalized for 10 days.
1st round 9/28/15: Mitomycin infusion; 5FU drip for 4 days. Stupidly stopped taking anti-nausea med Zofran for a day because it was making me constipated and proceeded to get sick throughout the night. Started taking Compazine instead. Developed thrush/mouth sores once finished with chemo - they lasted a week. Next round of chemo coming up 10/19/15.
Overall unwell feeling. I had chest tightness and pain, might have been from anxiety. I was lucky with minimal hair loss and had only light nausea. I took my nausea and pain medication as prescribed, not when I needed it. Once nausea sets in, it's very hard to get rid of it. While I did not like taking opioid pain medication, pain is like the nausea, once it sets in, it's hard to overcome. About two weeks after radiation concluded, the Dr. and I ''weaned'' me off the pain medication with over the counter pain meds. The last week of Chemo was the worst, in hospital for a week as I spiked a fever, got some heavy duty antibiotics.
Cisplatin and 5fu 9/23/15 pump 96 hours/week 1, repeated 4th week 10/21/15 mouth sores, partial hair loss, oral thrush, dehydration, loss of potassium.
Started chemo 1/4/2016
2weeks of Chemo. Starting the first week of radiation and the last week. Mouth sores low blood pressure. Second round of chemo mouth sores. Hospitalized due to UTI for a week. Spent a month in the hospital. It was hard to recover
Mitomycin & 5FU started on 1/18 ended on 1/22. Next chemo to start on 2/15. Side effects were constipation, fatigue and low appetite and aversion to smells.
inpatient 5 days 23 hrs a day twice
2 rounds via port, less than 96 hrs round 1 due to New Year's Eve infusion clinic closing, 96 hrs round 2, Low WBC, fatigue, port infection,
Mytomycin and 5-FU weeks 1 and 5. Facial outbreak from 5-FU, sensitivity to spicy anything. By end of 1st week my mint toothpaste was too much.
Nausea, loss of appetite, chemo brain.
2/14/13 12 rounds of 5FU. Dropped the Oxaliplatin after 5 rounds because of moderate neuropathy. After metastasis to liver, 12 rounds of Zeloda. From 9/14-1/15
For me Chemo was much easier than Radiation. Cisplatin and 5-FU 24/7 for which I was hospitalized. I refused my last chemo treatment because I was too sick, and honestly I thought it would take a lot more than chemo to save me from this beast called cancer. Yet I survived and have for the last 20 years.
Started July 18th to continue until August 29th, 2016
2 weeks started 21 July 2016- 25 July 2016
Every 3 weeks during radiation then once a month x 3 for cisplatin. 5FU home infusion will start in Sept for five days then again in October and November. Nausea, vomiting, fatigue for cisplatin have not had 5FU yet
Did well with the first round of chemo. Only side effects were loss of appetite and mild nausea. Did well again with my second round of chemo. Did not lose my hair!
6/20/11 5 days; 7/18/11 5 days fatigue, nausea, parageusia, mouth sores, vomiting, hair loss, dry skin, brittle dark nails, low blood pressure, urine & stool incontinence, 2 blood transfusions, vitamin deficiencies
Folfox, Avastan, neulasta Side effects: constipation, diarrhea, weight loss, hair loss, neuropathy, loss of appetite, weakness
6 weeks Flourcil (pills) and radiation Oct - Nov 2015 10 sessions IV chemo (avastin, oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016 Hands and feet numness Little nausea Fingernails thinned Balding
Chemotherapy 10 months - 2012/2013 - severe neuropathy in feet remains, usual side effects: hair loss, skin problems, sores in throat and esophagus, finger nails fell off, sick and tired.
mid july to November 2015 Gemzar eight treatments, xeloda for 28 days on radiation days. Started Folfox regimen 09/20/2017 for recurrence.
2 rounds of chemo, lost a lot of hair but not all, delayed healing of burns, caused yeast infection.
First round...mouth sores, nausea, weight loss, chemo rash on face and on upper torso, hair loss (about 80%).
Will start 1/27/17
Started chemotherapy on 2/21/17 and ended on 3/29/17
03/27/17- Mitomycin IV push; 5-FU began 96 hour infusion
peripheral neuropathy
Started Chemo April 10th for six weeks. She has a pump and she will wear it 24-7 the entire six weeks. With in 24 hours she had nausea and said she felt like Blah.
07/01/2016 1st chemo w/Cisplatin + FU5 (4 day tube) 07/29/2016 2nd chemo 80% w/Cisplatin w/FU5 (4 day tube) 08/03/2016 got infusion of fluids and magnesium
Nexavar for 6 months. Infusion therapy started 2 weeks ago and ongoing bi-weekly.
5fu from 11/8/16 until 1/5/17. Five hour infusion then wore a pump home for 48 hours. Was supposed to do 8 cycles but only got to 4 when my white cell count dropped and we had to stop. The side effects of this treatment are horrendous. Pain, nausea/vomiting, fatigue, neuropathy in hands and feet, hair loss, cold sensitivity, shaky hands and lips, constipation, night sweats, mouth sores.
Nausea
Taste buds, no desire to eat and big weight loss.
February to May 2014
Chemo first and fifth week. Mouth sores, nausea, and no appetite.
1.Carnoplatin/Taxol...March 30 2016 & continued for 18 straight weeks plus 4.5 blood transfusions 2.Folfox...May 2017 4 infusions then stopped because it wasn't working...
5 FU and mitomycin
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
One round of Flourouracil but side effects were severe and patient chose to discontinue. Side effects were nausea, uncontrollable diarrhea
5FU and mitomycin. Lost all my hair, severe mouth sores, fever from extremely low blood counts, tired, nausea, two hospital stays for a week each time.
5FU and cisplatin 12/2016 for 4 days. Hospitalized due to toxic overdose of 5FU. Oncologist did no give me the DFD test because he didnt believe in th test, hi negligence nearly killed me.
Week 1 Nov 6 thru Nov 10. Second round cones Nov 27 thru Dec 1.So far mouth sores.
Fatigue, hair thinning,
Chemo started 3/14 - 3/19. Nausea lingered under surface the whole time. If I missed the anti nausea pill by 1/2 hour it’d take all day to catch back up. Mouth sores started on day 4. I caught a cold that stared on day 2 with a sore throat, full sinuses, lungs etc. the mouth sores progressed quickly and caused the sore throat to become excruciating. I’m still struggling to eat and get enough fluids. I was given iv fluids 2 days after the pump was taken off. And I’m currently trying to not have to go there again. Mouth sores finally abated after 2+ weeks. Unfortunately food still sounds awful, nothing tastes good and I start feeling bad after every time I eat. The blister in my bum apparently is from the chemo not the radiation. Great news is my doc is cutting the dose for 2nd round by 25% because I’m a slow metabolizer. Great. I hope it helps!with round 2 (which starts in 10 days -ugh) I’ve also started experiencing hypersensitivity on my upper left leg, and occasionally on my feet and hands. Started taking B6 to help. Hair started falling out 2 weeks after chemo- getting it cut short end of week 3.
1/4/17-2/15/18
5-FU Two rounds done in the hospital W-M 24 IV drip into my lovely port I named Randy. Blistering Lips - Acupuncture helped that tremendously. I did it once a week everyday of treatment and for about a month and half after. I still go now for tuneups. Blackmouth/teeth/tongue - baking soda on my toothbrush got rid of that Diarrhea - a towel to scream into when it was bad; childs pose when I was finished; I will finish this I have lots of things I did.......
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