What are Chemotherapies? List from Cancer Survivors

The below is a list that has been posted by the bloggers in this cancer community. There are 6952 cancer fighters that are members here. This is what they said, not what the doctors or nurses will tell you.

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Adriamycin (Doxorubicin) Chemotherapy Chemotherapies

What Adriamycin (Doxorubicin) Chemotherapy Cancer Survivors said about their Chemotherapies.

2004.-I received quimo scheme CHOP (ciclosfamida -Vincristina -Adriamicina - Prednisona. 2006.- 2nd. line of quimo. with scheme ESHAP: Etoposido - Platino - Ara-C-Dexametasona
They removed all my teeth because they said the chemo and radiation would kill their roots. I went through 5 cycles of the red devil and 10 taxol. I am still on femara
4 rounds of chemotherapy "R-CHOP", every 3 weeks for 12 weeks. 1 round of radiation therapy. Nauseated, feeling like am in a fog. I chew on ice chips prior to and during the administer of Adriamycin (red devil) to prevent mouth sores. So far it works!!!
I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
Things I wish someone had told me- You feel the worst on days 3-5. Even though you're nauseous you can still eat with enough drugs (I never threw up!) Get your hair buzzed as soon as it starts to come out, and your scalp hurts, you will feel much better. Don't shave it until your scalp stops hurting. Your nose runs because you have no nose hair to catch it A little infection will knock you on your ass. Claritin can fight some of the neulasta side effects Glutamine and vitamin B can help with the Taxol tingle Ugg makes flip flops- AHHH big help with the Taxol tingle Some people lose their fingernails with Taxol (but mine are intact- I have chemo rings, though)
Since June 2012 - july induction, August consolidation, Sept. consolidation, december 2012 induction. Stem cell transplant now on hold.
R-CHOP every 3 weeks for 6 cycles
Chemotherapy lasted from July 2010 - August 2011 His chemotherapy consisted of Vincristine, Doxorubicin, Cyclophosphamide, Ifosfamide, and Etoposide. Some vomiting and lots of nausea.
R-CHOP began 8/21/12, then 9/14,10/2, 10/23, 11/13, 12/4. vomiting, nausea, taste & smell changes, nueropathy, hair loss, depresssion
3 chemos, neo-adjuvant, before surgery, effectively reduced tumor size. 1 chemo after surgery. Side effects: nausea and dizziness.
Induction Theraphy Cytarabine and Doxorubicin for 8 days. I just start my Consolidation theraphy last March 30. Which is Doxorubicin for 1hour and vincristine(push) and cytarabine IT(so painful)
Perjeta, Herceptin & Taxol (4 rounds over 12 weeks)to start off with then after mastectomy & reconstruction Adriamycin & Cytoxan (4 rounds over 8 weeks)
Starting A/C on December 6, 2011. Will have chemo every 2 weeks for 4 months.
treatments spanning over 4 months. Felt poisoned and beat up the entire time.
Cisplatin and 5Fu daily for 5 days then 2 week break for 6 months low blood counts, nausea, fatigue etc. Hospitalized several times for low blood counts and infections. 12 weekly infusions of taxol, low blood counts, nausea, fatigue, neuropathy. Completed 3 of 4 A/C infusions hospitalized every time for low cell counts.
Started11/15/2012, every 21 days until 03/06/2013. Had neuropathy, vincristine stopped for 2 cycles,better, then resumed 5th cycle. Had some issues with breathing-felt like I had eaten a lot of mints, treatment postponed for a week, got chest x ray, nothing wrong. Was tired with each cycle, but trudged through. Prednisone helped. Lost taste for some foods, but never lost my appetite!
TAC protocol. 6 rounds every 3 weeks. I refuse most of the pre medications (unless I need them) and ended up not needing any side effect meds my last 2 rounds. I'm having a great reaction to the chemo and my doctor is impressed with how I am weathering each round of chemo. He is shocked that my White and Red Blood cells are doing so well and I ended up being able to navigate the nausea without medications - which means no constipation!!! The side effects range from liberating (no hair, chemo brain, slowing down, other people cooking for me) to pain-in-the-ass (constipation from the zofran, hungry from the steroids, no nose hairs, sensative gums, run over with a truck feeling from the neulasta) to the hysterical (I'm really good at the 'Old Man from Flordia Suffle' while I wait for my WBC and RBC to come back on line!)
Vomiting, hair loss, fatigue, mouth sores, reduced immune function.
Very few side effects, a little nauseau and sleeping more than normal, lost my hair
Started AC on 12/12/07. That was fine. Had a reaction to Leukine (sp) now I'm Neupagen daily. No problems there.
Induction, September 2014, two rounds. I didn't go into remission after the round (7+3 and) had IDA-FLAG (idarubicin, fludarabine, cytarabine and G-CSF. I lost my hair and appetite. Mouth sores are horrible as was the fatigue. I had four rounds of consolidation (November, December 2014, January, February 2015) after this, high dose cytarabine and the side effects are marginal for me, I was really tired and that was a result of low Hgb.
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finished with induction therapy, now gonna begin with consolidation.
1991 April to June MAKOP B, 12 months treatment plan administered weekly over 12 weeks, ulcers, nausea, tiredness, loss of nerve sensations in extremities, severe constipation, hair loss (lol)
Started chemo June 8 2006 and finished up Sept. 28. 2006. Side effects weren't to bad. Just did what I was suppose to so I wouldn't have many.. Biggest side effect.. Baldness but I got through that too.

Cyclophosphamide (Cytoxan) Chemotherapy Chemotherapies

What Cyclophosphamide (Cytoxan) Chemotherapy Cancer Survivors said about their Chemotherapies.

Started 06-20-Nausea, constipation, severe headahces, body aches, fatigue, dizziness, hot flashes, grumpiness. 07-05-some Nausea, headaches, fatigue, dizziness, port became infected.
1991 April to June MAKOP B, 12 months treatment plan administered weekly over 12 weeks, ulcers, nausea, tiredness, loss of nerve sensations in extremities, severe constipation, hair loss (lol)
February to May 2014
It was called cef (which is cefuroxime, epirubicin, and cyclophosphomide). It is used only in a couple of Canadian provinces as it is very expensive.
Jan 22, 2015 R Chop was the first. Mostly tired some nauseous spells
Taxotere and Cytoxan - Four Treatments - 2 down 2 to go 10/24/11 Herceptin - 1 Year
Currenly going through Ewings Sarcoma protocol for Chemotherapy. 14 total cycles.
Start Chemo May 18th 2007 Cisplaton and Etoposide
RCHOP chemo Feb 2015-May 2015 (6 rounds).. Plus Neulasta shot the next day each time...Side effects are different for everyone.. Although they all suck, I found this treatment to be bearable with all the drugs they give for side effects...
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
Pending. I have only been told of what the drugs of choice will be and I can plan on being bald.
Rituxan 2001, Rituxan CHOP 2002, Rituxan 2003, TRM-1 (clinical trial) 2004-2005, Rituxan/Doxil 2006-2007. I have never reached a remission "yet" still hopeful!
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
AC followed by Taxol total 24 weeks beginning Oct 2009 Became very neutropenic (low white blood cells) A couple of mouth sores
R+Chop, 1/4/2012-4/23/2012
At first it was the same as radiation, but when they got aggressive in August, I was stuck to the couch for 2 weeks. Weakness, major nausea, muscle and bone pain, throat swelling, mouth sores, major shivers and shakiness, tremors, spinal and head pain, throbbing from head to lower spine...theres more but can't remember them all.
Dose-Dense AC chemo x4 every 2 weeks, then Taxol x4 every 2 weeks Oct 2009- January 2010
Rituxan-CVP
Round one: 7 days of continuous chemo. Round two: 5 days of 2 times a day chemo Round three: 2 days of 2 times a day chemo Followed by 3 days of 2 times a day total body radiation.
Very few side effects, a little nauseau and sleeping more than normal, lost my hair
I was on a novel agent in a clinical trial. With Taxol for 12 weeks. Its was horrible diarreha, but it shrunk the tumors. Hooraay
Taxotere and Cyclophosphamide 2/8/18, 3/1/18, 3/22/18, 4/12/18. Extreme fatigue, light nausea, constipation, loss of taste, numb mouth and texture changes, hair loss.
R-EPOCH, 1 week treatments every 3 weeks. Six total treatments
Started first round of AC on June 12th....will continue 3 more rounds and then on to Taxol.
R-CHOP began 8/21/12, then 9/14,10/2, 10/23, 11/13, 12/4. vomiting, nausea, taste & smell changes, nueropathy, hair loss, depresssion

Taxol (Paclitaxel) Chemotherapy Chemotherapies

What Taxol (Paclitaxel) Chemotherapy Cancer Survivors said about their Chemotherapies.

intravenous chemo from Septemeber 2018 to January 2019
I have completed 6 rounds of chemo. Currently I am not getting treatment due to the neuropathy in my feet. First round of chemo was March 7, 2018 and continued every 3 weeks until May 30, 2018. Side effects of chemo: tiredness, loss of hair, nausea, a few occasions of vomiting, bone pain, muscle aches, neuropathy of hands and feet and I could not think clearly.
Chemo sucked! It's a crazy way to slowly poison yourself and destroy every muscle that you have spent the last ten years working on. Chemo is barbaric and I will cheer the day when this is gone. Obviously, I don't work or support any drug companies.
First chemo starts July 7 2011
6 cycles IV carboplatin and taxol. Nausea, severe fatigue, hair loss, muscle pain constipation. In the middle of chemo diagnosed with meniscus tears in both knees after significant knee pain. Ultimately had 2 surgeries for partial meniscus removal from which I'm still not healed. Neuropathy especially in feet became big issue leading to dose of chemo needing to be reduced after the 4th cycle. My gastroenterologist feels I have some degree of neuropathy in my colon as I do not eliminate as before. During chemo and persisting I often have a "full of stool" feeling even after eliminating. Very annoying and affects quality of life.
6 rounds of Carbo Platinum and Taxol from 3/18/05-7/8/05 major side effect after the chemo was stopped: fatigue, memory loss Started chemo again in October of 2008. Taxol, Carbo Platinum and Avastin. Switched the taxol to taxotere after four rounds because of neuropathy. Major symptoms, nausea, fatigue, nose bleeds, low white blood cells, memory loss, did I mention fatigue?
Lost hair not much else
on 2nd round of AC, bald and trying to hold onto willpower. I get pretty sickly the 3rd day after cheno, 1/6/12 3rd treatment
4 rounds of Adriamycin and Cyclophosphamide together every 2 weeks. I am done with those 4 rounds. 4 rounds of Taxol every 2 weeks I have 3 rounds left. Xeloda for a year, Gemzar and carbo still doing it once a month until I guess it stops working.
July 2011 started with carboplatin and taxol (7 rounds in all). Reaction to the decadron had some nausea at the beginning sol they tweaked it with emend, sore muscles and joints day 4,5,6,7 after chemo usually spent in bed. and spent the rest of the time getting semi normal before the next round Stopped in Sept until december 2011 during which i had surgery last treatment january 20 2012
8 rounds - 4 A/C - 4 Taxol Hair loss on 13th day, bone pain from Taxol, rhematoid arthritis outcome
taxol/carbo dec 2008-april2009 topotecan sept 2009/present
I was on a novel agent in a clinical trial. With Taxol for 12 weeks. Its was horrible diarreha, but it shrunk the tumors. Hooraay
A/c( I am not good with names and the one would not uncheck above) started 4/10/2014 I lost my hair the day of the second treatment. Felt pretty bad but was able to work. Got pulmonary embolisms in June (I hope to find out soon that they are gone) by my 3rd A/c the lump was no longer able to be felt. By the 4th it was gone. started taxol in June (blurry) after 2 treatments the first infusion took 11 hours the second 8 hours and that was all I could stand. The side effects were extreme pain, nausea and sensitive to light and sound .I opted out the rest and went straight to surgery!
Beginning in April I had three treatments with Taxol and carbo platinum as well as Avastin. Joint pain was rough but gone after a week or so. I've mostly been easily tired out. My CA125 went up so I had another PETCT that showed an increase in the cancer I am now getting Doxil every four weeks and Avastin every two weeks. Side effects have been relatively mild - just tired a lot.
Started AC CHEMO on 30/11/2018. Was petrified of chemo! Main issue for me with AC is awful reflux, fatigue and just feeling like I have the worst hangover ever ( this only lasts about 3 days, from day 5-8).
I'm on my 4th round of chemo treatment in 3 years time. This round is 2 days a week. Side effects are joint pain, nasea, vomiting, diarrhea, night sweats, loss of appetite, hair loss, irritability, exhaustion, and thankfulness for each day
26 weeks of chemo. 1X every other week for 8 weeks. Then weekly for 12 weeks. Continued with Herceptin drug Trail for 13 months, 1x every three weeks. Nausea to most foods and smells like coffee or strong perfumes. Wanted hot or cold things to eat....flu like symptoms showed up day 3-5 after chemo. No nuropothy! Did not throw up at all. Slept more days 2-3...weight loss but only a few lbs first 9 weeks then started to gain. Have gained 15 lbs since chemo ended due to hormone blockers I am on.
1st cycle 5th March 2014.
Carboplatin and Taxol once every three weeks, 6 times. Fatigue, faux sence of energy at first, couldn't sleep for two day after, then crashing with neuropathy pain and fatigue
Had 2 courses of CarboPlatin and Taxol via vascualr Port; followed by 4 courses of IP chemo with Cisplatin and Taxol, one course every 3 weeks, requiring 3 days in hospital each time. Could only tolerate 4 courses because side effects were too severe: nausea, vomiting, constipation and diarrhea, ototoxicity resulting in some permanent hearing loss in left ear and also tinitus, tingling, numbness and pain in hands and feet (apparently permanent), and "chemo brain" - no short term memory, fogginess, confusion, and exhaustion. Serious loss of weight as well. Last 2 courses of chemo were via vascular port and the same as the first 2, and were tolerated fairly well.
Taxol and Carbo, every 3 weeks for 6 times, next (3rd) will be April 29. First three hours of administering drugs, agnonizing dizziness due to high dose of Benadrly to combat first few hours of chemo drugs. Next two days seem ok, with a false sense of energy, then day four through 8 no desire to drink, get dehydrated, can't stand or something strenuous for long periods of time, physically weak and tired always. Tiredness especially never is gone.
First Taxol 1.5.11, once a week for 12 weeks, FAC once every 3 weeks from 3.30 - 6.1.11. Taxol made me feel like I was wearing a lead raincoat and concrete shoes. FAC was far more discouraging. Lots of digestive issues, couldn't eat, everything taste nasty. It was horrible.
6 months.... 3 at first.... then 3 more after radiation..most side effects there are!!!couldn't eat,sick,cried,tired, you name it....lost my hair, then lost it the 2nd time too,3 months later
Chemotherapy is bi weekly on fridays! Side effects include Nausea, fatigue, and weakness, hair thinning

Methotrexate (Folex, Mexate, Amethopterin) Chemotherapy Chemotherapies

What Methotrexate (Folex, Mexate, Amethopterin) Chemotherapy Cancer Survivors said about their Chemotherapies.

1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010: Vincristine PEG-aspariginase Doxorubicin Methotrexate Cytoxan Cytarabine 6-MP 6-TG Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain.
through March 2008 CMF cocktail, 8 rounds. never lost my hair, nausea got pretty bad... three rounds in, I became a petulant child and announced I was NOT going back. A nurse family member asked my mom what kind of anti nausea meds I was given (don't remember) and told my mom to relay the following: "tell her to get pot, the pills suck" .... My resourceful husband came home with a surprise shortly after round 3. It PISSES me off that I had to break the law because the fact is, at least for me, IT WORKED and it was AMAZING.....
I'm not going to tell you anything you would be shocked by here. I'm bald - and have been for two years. 98% of anything I eat upsets my stomach in some way. I wish I could sleep all the time, but I have a 5 year old little girl, a full time job and a husband so that is possible. Other than that, Cancer sucks, Chemo sucks worse, but we will all get through it, right?
lots of dates, spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints. mercaptiprine, is every day, that just gives her a weird rash. methotrexate makes her sleepy
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.
Round one: 7 days of continuous chemo. Round two: 5 days of 2 times a day chemo Round three: 2 days of 2 times a day chemo Followed by 3 days of 2 times a day total body radiation.
Hyper CVAD Protocol 6/1/2015-2/7/2016 including spinal chemo X 4
August 3, 2015 - September 23, 2015 - High dose Methoreaxate and Rituximab September 30 - February 2016 - R+EPOC
November 16 Started cycle of RCHOP followed by methotrexate for CNS 10 days later and RCHOP 11 days after that. finished this in April 17 no major side effects nutropenia, numbness in fingers which stopped with medication, constipation. Returned to wrk in May 2017
I recieved Chemo in 2004-2006 with my first diagnosis of ALL. I relasped in June 2011 and started chemo on June 24-July 18. I will continue chemo until my Bone Marrow Transplant.
started Feb. 26, 2010 I was admitted to hospital every 3 weeks for a total of 6 rounds of treatment - Cycles A and B.
Nausea, fatigue/sleepiness, "Chemo brain" (inability to concentrate), dry skin, no nail growth, hair loss. January - May as of now
June 2012-October 2012; Reported Lethargy, nausea, changes in taste, neuropathy in fingers, weight loss.
High dose chemotherapy, March-June 2012. Side effects: Nausea, vomiting, weight loss, fatigue.
6 Months starting Dec 2, 2011. 5 hours every other week. 5-FU, Oxaliplatin and leucovorin. Will bring home 5-Fu in a bag for the weekend will run through port and bag removed on Mondays
I've taken chemo for 3 years now, many kinds of chemo, my "favorite" is Xeloda.
R Chop 6 cycles
finished with induction therapy, now gonna begin with consolidation.
Every week on Day 1 & 2 and Day 8.
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
Started induction chemo within the first week of November. Integrating it with holistic therapies
im doing an eight mounth treatment plan. every 21 days im back in the hospital for all the chemo they can give me.

Fluorouracil (5-FU) Chemotherapy Chemotherapies

What Fluorouracil (5-FU) Chemotherapy Cancer Survivors said about their Chemotherapies.

5-FU Two rounds done in the hospital W-M 24 IV drip into my lovely port I named Randy. Blistering Lips - Acupuncture helped that tremendously. I did it once a week everyday of treatment and for about a month and half after. I still go now for tuneups. Blackmouth/teeth/tongue - baking soda on my toothbrush got rid of that Diarrhea - a towel to scream into when it was bad; childs pose when I was finished; I will finish this I have lots of things I did.......
Mitromycin and 5FU via pump, 1st week and 4th week of treatment. Nausea - 4 week had to be hospitalized
Protocol #1: First of 3-21 day cycles of 5-FU, Cisplatin and Docetaxel started 10/7/13 - around the 2 or 3 week started losing hair and experiencing nausea, fatigue, weight loss, etc; Protocol #2: Eribtux and concurrent radiation for 6 weeks started ~12/10/13 - neuropathy in feetbegan a few months after treatment stopped and is still ongoing.
Mitomycin on Day 1 and Day 29 5-FU Days 1-4 and 29-32 Dry mouth, constipation, thinning hair at week 4. <<<<<<After reading this I have to say "chemo brain" because I don't recall writing that!!
To start on 4th April 2011
12/7-10. Not too sick alot of mouth sores and counts were drastically low hospitalized 12/15 with new oncologist
1st round 23-27 March 2015 - minimal physical side effects, more pyscologial with PICC line fear and awareness of carrying chemo bottle around for a week. 2nd round 20th -24th April - felt more at ease with the bottle and had no real side effects until the end of the week, then developed terrible mouth sores around back teeth - which I didn't first time round.
Commencing Chemo 28th April
PICC line surgically inserted for take away 24/7 chemo, replaced weekly. skin rash on chest, drop in blood pressure, drop in red cell count requiring x3 blood tranfusions, nausea, dizziness, alternating constipation through pain meds and diarrhea from chemo/radiation combo, mouth sores, lack of appetite.
Gi toxicity, fatigue, bone marrow suppression lasting many months hair loss, went in the hospital for a fever of 104 with low white count
Vomiting, hair thinning but no complete loss
2/09/10 mitomycin & 5fu
Fatigue, hair thinning,
Folfox, Avastan, neulasta Side effects: constipation, diarrhea, weight loss, hair loss, neuropathy, loss of appetite, weakness
Nausea. Started chemo on August 26, 2014. Two rounds of chemo meds: one at the beginning or radiation and one at end of radiation.
Chemo to start with radiation on Sept 26. Need a PICC. Mitomycin C and 5FU. Two weeks for five days. One week on, then three weeks off, then one week on again.
2 rounds. constipation and not too much else
Nausea
Oxalipilatin/5FU/Leucovorin/Avastin Feb 2011- Aug 2011 with use of pump at home. Now on 5FU/Leucovorin/Avastin weekly. Side effects peripheral neuropathy, vomiting, behavioral changes
Mitomycin & 5FU started on 1/18 ended on 1/22. Next chemo to start on 2/15. Side effects were constipation, fatigue and low appetite and aversion to smells.
2 rounds of 96 hours each
5FU & Oxaliplatin
5FU and Mitomycin during 1st and 5th weeks of treatment
Mitomycin & Fluorouracil. Began on 7/28/08 with Mitomycin infusion done in office, 5FU infused over 96 hours by pump. Second cycle of the same began on 8/25/08. Side effects included nausea, fatigue, severe diarrhea, mouth sores, body aches, hair loss.
Mitomycin C and 5FU infused for 96 hours (4 days) during week one and week 5 of radiation

Epirubicin Chemotherapy Chemotherapies

What Epirubicin Chemotherapy Cancer Survivors said about their Chemotherapies.

R-Chop, eight sessions one every 3 weeks. Side effects: nausea, loss of appetite, some muscle aches, hair loss, effected my eye sight - had to wear eyeglasses since the 4th chemo.
preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU.
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.
Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol
lots of dates, spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints. mercaptiprine, is every day, that just gives her a weird rash. methotrexate makes her sleepy
Blood work and chest xray September 11, 2007 Bone scan September 17, 2007 Port installed in right chest area September 18, 2007. MUGA scan September 19, 2007 First Chemo treatment September 20, 2007 Neulasta shot September 21, 2007 Headaches and blurred vision Hospitalized September 25, 2007 Found blood clot in the jugular vein Started on lovenox and warfarin Hair fell out in huge clumps 2nd week after first chemo Second Chemo treatment October 11, 2007 Tiredness, constipation, nausea Changed nausea prescriptions twice Third Chemo treatment November 1, 2007 Potassium too low-put on prescription supplement Nose bleeds and bruising from warfarin, not chemo 2nd MUGA scan scheduled for November 26,2007 4th Chemo scheduled for November 29th
Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes. I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite. I started Tykerb in Feb 2009. I will continue with Herceptin for at least 7 more months after surgery.
May 23rd 2007 started 6 sessions 3 x F.E.C 3 X Taxotere Ulcers in my mouth, sickness, diarrhoea, thrush, joint pain, loss of finger and toe nails, peeling skin on hands and feet,
FEC and taxotere. Three treatments of each starting 2/11
It was called cef (which is cefuroxime, epirubicin, and cyclophosphomide). It is used only in a couple of Canadian provinces as it is very expensive.
3/15/14 Began 10 session clinical trial at Memorial Sloan Kettering. Chemo iv (cisplatin and epirubicin + trial drug/placebo) every 3 weeks. 2000mg Xeloda pills daily. IV chemo is followed by two days of dextametazone (steroid pills) which give me a boost. Hair loss, dry hands - currently trying to prevent them from cracking, some fatigue. Trying to avoid pain meds because that seems to be the cause of constipation/discomfort.
Sep-feb--The oncologist said it would be " hard going"--that would be one word for it.
1st and 4th week of Radiotherapy treatment, chemotherapy was also performed. 24 x 5 delivery of 5FU with a Cisplatin infusion on second day of each of these weeks. Side effects included a 'Chemo crash' both weeks I had the treatment - second week worse than the first (required blood transfusions).
took Docetaxol (Taxotere) after FEC - finished chemo July 22
Cisplatin, Epirubicin, Capecitabine (Xeloda) #1 June 12, 2017, #2 July 4, 2017 Nausea, Dry mouth, Tingly fingers, blood clot in spleen, hair loss
6 Treatments - 3 week cycle 3 - FEC 3 - Taxoteer Sept. 7, 2006 through Dec. 21, 2006
September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months.
sickness, weakness, no appetite, lived off cereal, and jello for a week, no taste,increase in smelling sense was intense 12/24/2005 was the first treatment.
3-8-2013 To 11-5-13 chemo. I be off balance, I throw up, lost hair, bones ache, hot flashes all side effects.
Starting on 18th April, 2011
Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.) after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash
Chop therapy for 7 months
Protocol: FEC-T (4 months/every 3 weeks) FEC-T :Epirubicin/Fluorouracil/Cyclophosphamide cycles 1-3, then add Docetaxel for cycles 4-6 Finished chemo November 24/2010
Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse. Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo.
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin

Gemcitabine (Gemzar) Chemotherapy Chemotherapies

What Gemcitabine (Gemzar) Chemotherapy Cancer Survivors said about their Chemotherapies.

June 2012-October 2012; Reported Lethargy, nausea, changes in taste, neuropathy in fingers, weight loss.
Nausea, fatigue/sleepiness, "Chemo brain" (inability to concentrate), dry skin, no nail growth, hair loss. January - May as of now
ABVD- nausea, fatigue, wooziness, thinning hair ICE- nausea, fatigue, wooziness, total hair loss, bleeding gums and mouth sores GND- some fatigue, mouth sores
Abraxane and Genzar
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
intraperitoneal taxol and cisplatin, 6 - 10/06 (heinous, too long to describe); HIPeC something-or-other intraoperatively 10/07 (really ghastly); IV carboplatin and gemcytabine, 2 - 5/08 (some hair loss, fatigue); sunitinib clinical trial 2/09 (painful hands and feet, fatigue); doxil, 3/09 (fatigue); taxol and carboplatin 5 - 9/09 (hair loss, fatigue, neuropathy, tinnitus); Avastin 10/09 to present (runny nose)
I do not remember all of the names. The chemo was a combination of four different chemo drugs. It did not work. My father experienced nausea and could not taste anything so lost his appetite. He also was very sensitive to temperature. We are still waiting to start a trial chemotherapy drug! Pray, pray, pray!
On my third treatment and then will have a week off
Multiple regimens
Diarrhea, fatigue, numbness in finger tips and toes
Gemzar, Taxotere and Xeloda
Started July 12. Two weeks on, 1 week off. Plan is 6 cycles. Side Effects - Can’t sleep (steroid pretreatment). Terrible constipation (Nausea meds), Very tired, mild fever, irritability on Day 2-3 post chemo.
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss 6 rounds Hepatic artery infusion (oxaliplatin)avastin 3 month Jakafi (oral) unknown trial drug nano cisplatin and gemcitabine
Initially 2 rounds of Folfirinox, that increased liver enzymes and CA-19-9
2013-2014: 1st chemo; Taxol, no help. 2nd chemo:Doxil, no help. 3rd and current chemo: Gemzar & Cisplatin. I also get Zometa injection every 4 weeks. I started Chemo on June 19, 2008 and as of today 7/7/08 I have only had 1 treatment. My second treatment is this week on Wednesday, July 9, 2008. I will have 6 chemo treatments, 3 weeks apart. The worst side effect I had was from the Nulasta shot I had the day after chemo. The bone and body aches really kicked my butt. I was fortunate and did not experience any nausea. On day 14 I started loosing my hair. It was coming out by the handfuls!! By day 16 I couldn't stand it anymore so I buzzed it all off.
Chemo #1 on 4/02/10: I was more tired then usual and had a "blah" moment after going outside for a few minutes.
Gemazar.... So far, nausea and weakness
Chop therapy for 7 months
mid july to November 2015 Gemzar eight treatments, xeloda for 28 days on radiation days. Started Folfox regimen 09/20/2017 for recurrence.
R CHOP every 3 weeks from 12/30/2013 through 4/28/2014. Began R GEMOX on 6/19/2014 every 3 weeks through 10/21/2014. Started Rituximab and Treanda on 12/3/2014 as a 2 day course. Severe neuropathy in feet and less but still suffered neuropathy in fingers during R CHOP. R GEMOX caused great discomfort with cold even before therapy was complete. One does of Rituximab and Treanda and my father has terrible oral sores. However, he has been fortunate to never have suffered any severe intestinal discomfort.
Started with nine drops of Taxol and had an allergic reaction that caused me to stop breathing. Then switched to Gemzar and Carboplatin. Had some nausea but started taking Emend....VERY tired.
About to start chemotherapy
First treatment was June 8th 7 hours between the other meds olus the chemo..Cisplatin and Gemzar.. Felt ok the day after but then started feeling very sick, achy, headache, ringing in ears, coulnt eat, weak, dizzy,tired,shaky all over I only felt well enough to go to the doctor on the 7th to have my blood drawn..saw dr and he said he would up my steroids next time and that should help second treatment was on the 8th, Just the gemzar.. Really tired and achy. Dizzy and weak. Had my shot of Lewnasta on Monday. Still fell tired and bone pain
6/2011 tiredness, nausea, dizziness

Irinotecan (Campto) Chemotherapy Chemotherapies

What Irinotecan (Campto) Chemotherapy Cancer Survivors said about their Chemotherapies.

March 22(3 types of chemo) i feel it lessened his quality of life, but for my dad he needed to fight back!!!
11/06-oxaliplain,xeloda....tingling and cold sensitivity in hands and feet, fatigue 11/07-irinotecan, avastin, 5FU, diahrrea, fatigue, burning and cramping in abdomen started erbitux january 2010, adding irinotecan this week, sept 20, 2010...post-note that irinotecan caused so much diahrrhea I became too hydrated and wound up in hospital. i had a blockage too, but just sayin'! ;)
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
Mar 4 _ Sept 15 2015(Folfirinox)Nausea, weakness, vomiting, low potassium, low platelets (despair)
Chop therapy for 7 months
9/07 for 5 months every 2-3 weeks.Fulfox, Five FU, evastin, oxalyplatin -Side affects were mild and temporary such has hair loss (complete on first round) mild neuropathy, Hand and food syndrome. Slight diarrhea but NO nasuea. Loss of appetite, loss of taste. 06/08 Second round of chemo (Irinotecan) more nausea but virtually no diarrhea. neuropathy has returned slightly. I can still taste things after 2 rounds of chemo this time.
2 cycles of 5-FU, FOLFOX for tumor, R-CHOP for B-Cell and now 6 cycles of FOL-FIRI
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
Sept. 2010 to Nov. 2010 - Oxcaliplatin, 5FU, Avastin. Oxc. not working changed to Irinotecan/Avastin. till April 2011. Tumor growth in liver and lymphnodes. Itinotean/Erbitux from June 2011 till present.
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007 Nueropathy, memory loss, balance issues, joint and muscle pain
Folfirinox Jan 2013 - Feb 2013, switched to Abraxane and Gemcitabine March 2013-current
started chemo on 12/11/07 clinical trial with avastin,erbitux,oxaliplatin,lecovorin,5FU..now irenotican
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
Nine rounds of Folfirinox treatment before surgery and more after.
Began chemo in July of '09 with camptosar, leucovrin, and 5-fu. this is over a 46 hour period. In January '10, they added avastin and zometa to the regimin and is ongoing.
Flu like symptoms and fatigue.
Bi-weekly chemo. Energy levels vary. Diarrhea, one day only usually. Keep hydrated.
6 weeks Flourcil (pills) and radiation Oct - Nov 2015 10 sessions IV chemo (avastin, oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016 Hands and feet numness Little nausea Fingernails thinned Balding
Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.) after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash
Too many to mention-16 months in total(6,6,4) Every drug they have for colon cancer.
Alt Folfiri/Folfox 2010/Feb through 2010/June Folfiri/Erbitux started 2011/March Changed to Folfox/Avastin 2011/Oct Clinical trials 2012/Sept
5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared. Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half.
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.

Vinorelbine (Navelbine) Chemotherapy Chemotherapies

What Vinorelbine (Navelbine) Chemotherapy Cancer Survivors said about their Chemotherapies.

I begin chemotherapy on the April 8th. 4 rounds of 3 weeks each of Vinorelbine and Carboplatin. (Originally Cistoplatin but the doctor changed it cuz my ears were ringing)Worst side effects are feeling like lead and/or rubber, forgetfulness, weight gain, insomnia and aching bones, muscle and skin.
2000 - Chemotherapy
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
Chop therapy for 7 months
I've taken chemo for 3 years now, many kinds of chemo, my "favorite" is Xeloda.
Taxotere Aug 2008 - Dec 2008 (3-weekly) Herceptin Aug 2008 - Aug 2009 and Dec 2009 - March 2011 (3-weekly) Vinorelbine Dec 2009- May 2010 (for regional recurrence to Internal Mammary nodes - not involved the first time round) Capecitabine (Xeloda)April 2011 - October 2011(for Liver metastasis) Adriamycin - December 2011 - February 2012 Taxol March 2012
1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
Multiple regimens
Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
ABVD- nausea, fatigue, wooziness, thinning hair ICE- nausea, fatigue, wooziness, total hair loss, bleeding gums and mouth sores GND- some fatigue, mouth sores
Six rounds in 2008 and 12 rounds in 2015 got through these not too bad in the big scheme of things.

Cisplatin (Platinol, Platinol-AQ) Chemotherapy Chemotherapies

What Cisplatin (Platinol, Platinol-AQ) Chemotherapy Cancer Survivors said about their Chemotherapies.

3/15/14 Began 10 session clinical trial at Memorial Sloan Kettering. Chemo iv (cisplatin and epirubicin + trial drug/placebo) every 3 weeks. 2000mg Xeloda pills daily. IV chemo is followed by two days of dextametazone (steroid pills) which give me a boost. Hair loss, dry hands - currently trying to prevent them from cracking, some fatigue. Trying to avoid pain meds because that seems to be the cause of constipation/discomfort.
1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss) 2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment. 2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course 2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course.
Chemotherapy to be given concurrently, once a week. Began on 8/23/12.
Hyporexia, nausea, tinntitus
Taxol/Carbo IV 2 rounds 21 days apart Taxol/Cispatin IP 8 rounds done day 1 day 8
Started in July 2009 was suppose to have every 2 weeks, but blood count went down so had to push out either 3 or 4 weeks. I hurt from my head to my toes the week of chemo, and then after that started gradually getting better. Neuropothy in hands and feet. Should go away eventually. Finished chemo Feb. 11, 2010.
Weekly chemo for six weeks
12/7-10. Not too sick alot of mouth sores and counts were drastically low hospitalized 12/15 with new oncologist
Cisplatin once a week In conjunction with the radiation. Then Five series with Etoposide.
February 25, 2011 - Cysplatin (Cisplatyn) I don't know 4 of 8 weeks only as it ruined my throat way early and did it's job - according to the dr.
Had a really bad reaction on Oct 14 2014
Standard protocol of 2 rounds of mitomycin & 5FU (8/13 & 9/13)
Cisplatin 2007. I was one that had the carotid do it's number, so have permanent heartbeat in my ear. Sometimes loud and intrusive, very loud and intrusive when I am lying down trying to sleep. This too conversation, Chemo and Radiation were simultaneous. It was a dark night of the soul. Burnt skin, inside the mouth and outside. I lost over 60 lbs in less than 9 weeks. Dehydrated, diarrhea, high irregular heartbeats, constipation, impacted, and the list there too goes on.
Oct 07 to Dec 07 - Cisplatin chemo 1x a week with radiation;. Constant terrible nausea, very sensitive to tastes and smells. Ate only carbs, couldn't even stand the smell of my dog! Everything nauseated me. Aug 08 to Dec 08 - Carboplatin and Paclitaxel every 3 weeks x 6 doses. Hair gone by 2nd treatment, fluid overload on chemo days due to drugs being hard on kidneys - had to flush. About 2-3 days post chemo, horrible bone pain, numbness and tingling in hands and feet (peripheral neuropathy) and constipation that almost hospitalized me. Would last for a week or so and then settle down. Horrible fatigue, felt like lead. My hair started coming back really quickly after treatment stopped,but the neuropathy lasted almost a year, fatigue continues to be a problem. UPDATE Feb/10: Going back for another 6 rounds of the not so pretty poison. Carbo/Taxol once again. Gonna miss my hair...oh yeah, and the ability to feel human!
Cisplatin: Took 2 treatments, 1 week apart. Tolerated well. No nausea, though stomach very "acidy" feeling. Eating bland foods often throughout the day helped. Did have some tiredness. No loss of hair. Had to stop Cisplatin for a while due to frequent ringing in ears. Cisplatin can lead to permanent hearing loss. Was able to complete last 4 Cisplatin after a break. Have some hearing loss, but not much. Will be using an experimental drug-Avastin, as well. Avastin: no loss of hair. Felt a coldness in the core of the body and extremities. Combined with Cisplatin, usually left me feeling poor and unable to work for about 5 days. Starting Taxol, Carboplatin, and Avastin again next week.
2013-2014: 1st chemo; Taxol, no help. 2nd chemo:Doxil, no help. 3rd and current chemo: Gemzar & Cisplatin. I also get Zometa injection every 4 weeks. I started Chemo on June 19, 2008 and as of today 7/7/08 I have only had 1 treatment. My second treatment is this week on Wednesday, July 9, 2008. I will have 6 chemo treatments, 3 weeks apart. The worst side effect I had was from the Nulasta shot I had the day after chemo. The bone and body aches really kicked my butt. I was fortunate and did not experience any nausea. On day 14 I started loosing my hair. It was coming out by the handfuls!! By day 16 I couldn't stand it anymore so I buzzed it all off.
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss 6 rounds Hepatic artery infusion (oxaliplatin)avastin 3 month Jakafi (oral) unknown trial drug nano cisplatin and gemcitabine
Hearing loss and ringing in my ears. 3 chemo treatments, first, fourth and 7 th week. Saliva got thicker then syrup,honey after treatments ended. Couldn't swallow and had to sleep sitting up in a recliner for weeks afterwards.
First chemo was on Friday 9/15/17. 3 chemo infusions over 8 hours. To be done every 3 weeks. Next scheduled 10/6/17. Have had no nausea or vomiting. Saturday night, severe pressure in rectum, vaginal area and lower pelvic region. Contacted physician due to pain and that no amount of medicine was subsiding pain. Was advised that it seems as if the chemo is working. The pressure could be due to the necrotic tissue from the cancer itself is moving, liquid retention, or inflammation from the chemo. He reassured me that pain and pressure should go away within a few days. Was instructed to take higher dose of percocet. The higher dose of pain meds has done its due diligence, but knocks me out too. It is now three days later and pain and pressure has become more bearable, and treatable with 800mg motrin. Feeling extremely tired, which is very odd being that I am very active. Powering through, I will win this battle.
every 3 weeks, side effects: tinnitus and stomatitis after the last one
5 treatments of Cisplatin
Cisplatoin 1x week for 7 weeks Dates: Aug 2011 through Nove 2011 Side Effects include; Nausea Hair loss from both radiation and chemotherapy Eyesight has deteriorated a little weak
Cisplatin gave my husband ringing in ears but much better now. Had complications each time after a chemo. Was hospitalized twice for them.
Chemo - Cisplatin - Day 1 of week 1 / week 4 / week 7
I do not remember all of the names. The chemo was a combination of four different chemo drugs. It did not work. My father experienced nausea and could not taste anything so lost his appetite. He also was very sensitive to temperature. We are still waiting to start a trial chemotherapy drug! Pray, pray, pray!

Carboplatin (Paraplatin) Chemotherapy Chemotherapies

What Carboplatin (Paraplatin) Chemotherapy Cancer Survivors said about their Chemotherapies.

May 2015, 6 weeks. Hair loss, weight loss, nausea
Sep-feb--The oncologist said it would be " hard going"--that would be one word for it.
November 2011-December 2011--6 administrations of Taxol and Carboplatin; strong allergic reaction to Taxol (could not breathe and it felt like my back had been struck by a car) handled with heavy doses of Benadryl and slow infusion; lost hair all over my body slowly during treatment and over several months after treatment; painful tingling in feet and hands; fatigue; bloody nose daily; ridges across nails on hands; skin toughened on backs of hands and tops of feet; hair on my head hurts sometimes months after treatment.
I had my port-A-cath placement on November 9, 2010 for six cycles of Carbo/Alimta. The port-A-cath hurts just on its own, but chemo sucks, sucks, sucks! I cant say anything nice about chemo, other than hopefully it is killing those cancer cells! After each treatment I have extreme fatigue and appetite loss for 4-5 days following. My hair started falling out after the second cycle, which doesn't bother me compared to the fatigue. I hate not helping out around the house, or missing out on family time because all I want to do is sleep. My blood counts are also very low so the doctors and nurses check them every week, and they also check my kidney function. I'm on medicine for my anemia which helps a little with my fatigue. My kidneys should hang in there- I guess it paid off living a healthy life.
Carboplatin, taxol, avastin, and a PARP inhibitor for 6 rounds, then remission for about 7 months. Then more carboplatin and taxol for 3 more treatments until I became resistant, then onto the MEK/Milo trial. Failed that after 2 months, now looking into immunotherapy
I have had chemo in 2004, 2009, and 2012. each chemo has been different than the one before. With my most recent round I was very nauseous and sick. Lost my hair with all of them and had muscle and bone pain. I also developed an orbital pseudotumer as a reaction to the carboplatin and had to be put on prednisone steroids. This will now be required anytime I am on carbo. It started as a twitching and watery eye almost like with allergies. The eye then swelled shut and was very painful.
Initial diagnosis required 1 round chemo -Carboplatin - minimal side effects Return of cancer - 4 rounds of chemo ( EP) 21 day cycles includes five continuous days of infusion then rest. No nausea but gastric reflux with vomiting, scalp pain, metallic taste in mouth, tiredness, neutropenia
Beginning in April I had three treatments with Taxol and carbo platinum as well as Avastin. Joint pain was rough but gone after a week or so. I've mostly been easily tired out. My CA125 went up so I had another PETCT that showed an increase in the cancer I am now getting Doxil every four weeks and Avastin every two weeks. Side effects have been relatively mild - just tired a lot.
CarboPlatin & taxol w/ neuplasta at 3 wk intervals from Aug to Oct Severe constant leg pains, neuropathy in feet and hands, high heart rate. Unable to stand for more than 10 minutes, stumbling, dropping things regularly Treatment changing to CarboPlatin & doxil w/ neuplasta.
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)
Start in mid October.
Taxol and carboplatin. 6 weekly infusions.
Carboplatin and Taxol once every three weeks, 6 times. Fatigue, faux sence of energy at first, couldn't sleep for two day after, then crashing with neuropathy pain and fatigue
8 total cycles...6 while undergoing radiation (reduced rate) followed by 2 of triple dose after radiation.
3-8-2013 To 11-5-13 chemo. I be off balance, I throw up, lost hair, bones ache, hot flashes all side effects.
3 rounds, carbo/taxol
VP-16 and Carboplatin with first cycle began in April 2011 and finished in Sept. 2011 after 8 cycles - usual side effects Hair-Loss Fatigue Metal Taste Mouth Sores Ongoing White Blood Count Issues Ongoing Red Blood Count Issue Multiple Blood Transfusions
Lost hair not much else
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
Taxotere, Carboplatin, Herceptin Dec 08 through Dec. 09 Nausea Migraines Loose fingernails/toenails, MRSA infections x 8, auto immune allergic reactions Hair loss allergies developed Loss of menses (early menopause)
Nausea, Constipation
Carboplatin, Doxorubicin, Cyclophosphamide, Tamoxifen, Toceranib, Piroxicam. No significant side effects to start with but after so many months of home chemo/meds I get diarrhoea and occasional nausea (am on meds to combat). My fur is very slow growing now - months later, surgery sites are still sparsely covered in fur, and I now have bald patches (my paws, muzzle, bottom).
Cyclophosphamid Carpoplatin Taxol
Carbo/Taxol every 3 weeks, 6 cycles

Doxorubicin, Leomycin. Inblastine, Acarbazine (ABVD) Chemotherapy Chemotherapies

What Doxorubicin, Leomycin. Inblastine, Acarbazine (ABVD) Chemotherapy Cancer Survivors said about their Chemotherapies.

Nausea, lightheaded, tired. First treatment was 8-13-15.
ill for a couple of days after treatments 1/15 - don't know if what is going on with me now is latent effects or new cancer
ABVD 11/30/2010-present Fatigue, weakness, dizziness, nausea, neuropathy, constipation, headaches, hair loss and chemo brain.
Started11/15/2012, every 21 days until 03/06/2013. Had neuropathy, vincristine stopped for 2 cycles,better, then resumed 5th cycle. Had some issues with breathing-felt like I had eaten a lot of mints, treatment postponed for a week, got chest x ray, nothing wrong. Was tired with each cycle, but trudged through. Prednisone helped. Lost taste for some foods, but never lost my appetite!
Getting chemo doesn't hurt. I don't feel the chemo being injected, and I feel fine for 3 days after, minus the fatigue. Nausea, headaches, body aches, upset stomach are my most common side effects when my medications are done.
CarboPlatin & taxol w/ neuplasta at 3 wk intervals from Aug to Oct Severe constant leg pains, neuropathy in feet and hands, high heart rate. Unable to stand for more than 10 minutes, stumbling, dropping things regularly Treatment changing to CarboPlatin & doxil w/ neuplasta.
Stopping R-Chop Chemo on December 5th 2012. Cancer growing. Started a new Chemo Regimen on Dec 10th 2012.B-R( Rituximab and Bendamustine)Stopped Rituximab and Bendamustine regimen on February 18th,2013 due to developing PML in the brain. Started back on ( Rituximab and Bendamustine) PML cleared. Started in Nov 2013 on Tremsirolimus
R+Chop, 1/4/2012-4/23/2012
March until August 2011 before surgery. Hair loss, insomnia
26th December, 2014. ABVD. 6 cycles, 12 treatments completed every fortnight. 22nd July, 2015. Salvage Chemotherapy. ICE. 3 cycles, completed every 21 days.
First R-CHOP on 12/28/2015 which was from 7:00am to 6:00pm. Had a reaction to the Rituxan of red hives on face, so they had to stop treatment for a half hour and treat reaction before continuing with the Chemo. Feel tired and cold. After the first chemo treatment, the next 3 had almost no side effects.
Several months of CHOP+Bleo. Got very bloated from Prednazone. Total body baldness, of course. My skin actually got quite beautiful and baby smooth. Toenails fell off. Heart and lung damage from Bleo. My mouth and throat were scarred by sores and from vomiting. Kidneys have been very vulnerable ever since. (Just want to add, I HAVE NO COMPLAINTS ABOUT ANY OF THIS. I lived! It was worth it.)
29 Jul 15, 19 Aug 15. Tumor Lysis Syndrome, hair loss
I have Chemo once a month. The Chemo caused the whites of my eyes to turn Fire Engine Red. It was a reaction that none of the nurses had ever seen. I was given IV Benedryl. The dose of the medicine knocked my butt out. That was my first treatment on May 21, 2012. I was set for 3 treatments. My Oncologist was not sure if the Chemo would work to begin with. Within the first treatment I could tell a difference. I was amazed. I could actually feel the mass and it was smaller. So, Dr. M ordered another 3 treatments for a total of six. I lost all my hair, eyebrows and eyelashes. Hey, they will grow back one day. I don't mind. I love all the scarves and hats I have bought and been given.
oct induction chemo, Nov another bout of induction chemo as first did not work. Jan: consolidation chemo Apr: additional chemo to prepare for bone marrow transplant.
started Feb. 26, 2010 I was admitted to hospital every 3 weeks for a total of 6 rounds of treatment - Cycles A and B.
R-CHOP 6
Taxotere..Dec 2006-Apr2007. All the usual, numbness in fingers and toes, no taste, no appetite, constipation. The bone pain was the pits.
ABVD- October 22, 2010-
Jan 22, 2015 R Chop was the first. Mostly tired some nauseous spells
Beginning in April I had three treatments with Taxol and carbo platinum as well as Avastin. Joint pain was rough but gone after a week or so. I've mostly been easily tired out. My CA125 went up so I had another PETCT that showed an increase in the cancer I am now getting Doxil every four weeks and Avastin every two weeks. Side effects have been relatively mild - just tired a lot.
28 day cycle. Chemo on days 1 and 15. 6 cycles or 12 treatments
11-19 chemo pellets not sure of the name, nausea,
nausea, fatigue, anxiety, depression, dizziness, vomitting
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.

Tarceva (Erlotinib) Chemotherapy Chemotherapies

What Tarceva (Erlotinib) Chemotherapy Cancer Survivors said about their Chemotherapies.

January-April 2009
3-8-2013 To 11-5-13 chemo. I be off balance, I throw up, lost hair, bones ache, hot flashes all side effects.
Fatigue, acne, diarrhea, numbness and pain in fingers and feet, no appetite, foggy-brained, rheumatism, sensitive to sunlight, no taste, fungus in mouth and lung, partial loss of hair
Avastin-2008 and 2011, Cisplastin-2009 and 2011, and Tarceva-2011.
I've been in chemo since june 2011. I was taking 3 different kinds every three weeks but now have gone to just one kind. the initial treatments caused heartburn, hair loss, vision loss, hearing loss, skin discoloration, skin burns, nausea and vomiting, dizzyness, hot flashes, chemo induced asthma, chemo induced menopause, bone pain, I was not able to taste foods that were not sweet, there are many more but I feel like I"m whining...lol
One a day pill forever (took 150 mg for 2 years). Down to 100 mg due to vertigo, fatigue. Other side effects, slow/non hair growth, rash, dry skin, dry mouth
daily intake of a chemo tablet
December 2004 - Present off and on. On Avastin and Tarceva currently, but stopping to start a new chemo.

Xeloda Chemotherapy Chemotherapies

What Xeloda Chemotherapy Cancer Survivors said about their Chemotherapies.

Started Chemo - Gemzar & Xeloda - in November 2016. 6 cycles planned. Side effects pretty mild - some nausea and tiredness
Xeloda oral 2000, started March 22nd - OK up to date Folfox - starting August 29th, port inserted on July 29th. Side effects from folfox - berable - cold sensitivity in hands and eyelids. Tingling in hands, shin cramps, tiredness, eye dryness.
2 cycles of 5-FU, FOLFOX for tumor, R-CHOP for B-Cell and now 6 cycles of FOL-FIRI
11/06-oxaliplain,xeloda....tingling and cold sensitivity in hands and feet, fatigue 11/07-irinotecan, avastin, 5FU, diahrrea, fatigue, burning and cramping in abdomen started erbitux january 2010, adding irinotecan this week, sept 20, 2010...post-note that irinotecan caused so much diahrrhea I became too hydrated and wound up in hospital. i had a blockage too, but just sayin'! ;)
Week 1: Mitomycin 15mg IVP Generic Xeloda 500mg 2 tablets started every 12 hours. Just felt queasy and very fatigue. Week 4: Mitomycin 9mg IVP, continue Xeloda. Developed skin blister to back. Overall, no hair loss, no vomiting, no mouth sores
2 IV chemo treatments, on day one, then 2nd delayed due to dehydration, also 6 pills/day for 30 days, same timing as radiation, very tired, no appetite, lost 15 pounds
3/15/14 Began 10 session clinical trial at Memorial Sloan Kettering. Chemo iv (cisplatin and epirubicin + trial drug/placebo) every 3 weeks. 2000mg Xeloda pills daily. IV chemo is followed by two days of dextametazone (steroid pills) which give me a boost. Hair loss, dry hands - currently trying to prevent them from cracking, some fatigue. Trying to avoid pain meds because that seems to be the cause of constipation/discomfort.
Oral chemotherapy taken on radiation days 08/10/2011 - 09/19/2011 No side effects. Folfox - Begin 01/10/2012 - End date due to non-cancer complications: 4/18/2012. To date: lip numbness when I go in the cold for a couple of days after treatment. Cold sensitivity to foods and drinks for the first few days after treatment. No issue with fatique or nauseu to date. Xelox to replace Folfox: 05/02/2012 No side effects. End date due to non-cancer complications: 06/05/2012.
Each round of chemo consists of 3 weeks. Week 1 I get an Oxaliplatin infusion, weeks 2 & 3 I take oral chemo, Xeloda. Side effects are nerve pain (thanks I already had that), hand pain, fatigue, weakness, memory loss, confusion at times. Bla Bla Bla
Xeloda Monday thru Friday. Weekends off. Also had mytomycin Iv in the beginning and end of treatment.
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
Xeloda- oral chemo, twice a day for 7 weeks, June 22-August 7, headaches, tightness in chest after physical activity, leukopenia Intravenous- 4 months of chemo after surgery, details have yet to be determined
xeloda pills for two weeks then a week off.
folofox: 3/14-9/14, starting again 1/15
Some nausea, kept most of my hair.
5fu from 11/8/16 until 1/5/17. Five hour infusion then wore a pump home for 48 hours. Was supposed to do 8 cycles but only got to 4 when my white cell count dropped and we had to stop. The side effects of this treatment are horrendous. Pain, nausea/vomiting, fatigue, neuropathy in hands and feet, hair loss, cold sensitivity, shaky hands and lips, constipation, night sweats, mouth sores.
Started Chemotherapy on July 18,2016
Capecitabine, Tablet form chemotherapy, two tablets a day, three week on, one week off. Side Effects, Sickness, Fatigue, Blotchy skin.
6 weeks 3000mg xeoda pre surgery. 4 month 5000mg xelota post surgery. Oxi recommended. Tried but side effects too extreme. No hair loss. Tired and weak. Low energy with uncontrolled diarrhea.
Chemo once a week from 4/2/10 to 6/01/10: Was tired the next day with small "blah" moments.
Taxotere Aug 2008 - Dec 2008 (3-weekly) Herceptin Aug 2008 - Aug 2009 and Dec 2009 - March 2011 (3-weekly) Vinorelbine Dec 2009- May 2010 (for regional recurrence to Internal Mammary nodes - not involved the first time round) Capecitabine (Xeloda)April 2011 - October 2011(for Liver metastasis) Adriamycin - December 2011 - February 2012 Taxol March 2012
Mar 4 _ Sept 15 2015(Folfirinox)Nausea, weakness, vomiting, low potassium, low platelets (despair)
Started March 3rd, mitomicin infusion first week, next week started Xeloda 5 days a week, last week mitomicin and zeloda. Some feet neuropathy, 1 week off of Zeloda due to very low wbc and platelets, very tired. Hard to tell what symptoms go with which treatment
Gemzar, Taxotere and Xeloda
Cisplatin, Epirubicin, Capecitabine (Xeloda) #1 June 12, 2017, #2 July 4, 2017 Nausea, Dry mouth, Tingly fingers, blood clot in spleen, hair loss

Etoposide (VePesid) Chemotherapy Chemotherapies

What Etoposide (VePesid) Chemotherapy Cancer Survivors said about their Chemotherapies.

VP-16 and Carboplatin with first cycle began in April 2011 and finished in Sept. 2011 after 8 cycles - usual side effects Hair-Loss Fatigue Metal Taste Mouth Sores Ongoing White Blood Count Issues Ongoing Red Blood Count Issue Multiple Blood Transfusions
Cisplatin once a week In conjunction with the radiation. Then Five series with Etoposide.
6 cycles of R-EPOCH
Rituxan/Bendamustine (Summer 2010) - very little except fatigue. R-CHOP (summer 2011) - nausea, fatigue, hair loss
Rituximab, Cyclophosphamide, Vincristine, Prednisone on 3 week cycles. Started 1st September 2010. Side effects - constipation, mild nausea, night sweats, tiredness, mood swings.
AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
cistplatin, bleomyocin, etopiside, numbness in hands and feet nausea and weakness major chemo brain
Initial diagnosis required 1 round chemo -Carboplatin - minimal side effects Return of cancer - 4 rounds of chemo ( EP) 21 day cycles includes five continuous days of infusion then rest. No nausea but gastric reflux with vomiting, scalp pain, metallic taste in mouth, tiredness, neutropenia
BEP chemo
Doxorubicin Cisplation Methotrexate Ifosfomide Etoposide
started 10/19/2015 R- EPOCH 6 treatments fatigue
IE and VAC treatment every 3 weeks. Lost weight and all my hair/ body hair
starting the 2nd week of August 2013
Chemotherapy started in September 2011 and continued every three weeks either daily for a week, or a single day dose of VAC - crappy crappy side effects, where do I start......numb finger tips, constipation, hair loss, loss of taste buds, thrush in mouth, lack of concentration, sooooo exhausted after each dose and weeks later. It is very true that the chemo is so much harder than the cancer to deal with.
ABVD Six months
3 days chemo every 21 days. Hydration as needed. Tiredness and nausea/vomiting at times.
Currenly going through Ewings Sarcoma protocol for Chemotherapy. 14 total cycles.
nausea, fatigue, anxiety, depression, dizziness, vomitting
Chemotherapy lasted from July 2010 - August 2011 His chemotherapy consisted of Vincristine, Doxorubicin, Cyclophosphamide, Ifosfamide, and Etoposide. Some vomiting and lots of nausea.
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
Dose adjusted R-EPOCH. Six rounds. 21 day cycles. Chemo administered as an inpatient. Started chemo December 19, 2011. Finished April 26, 2012.
ABVD started in December 2011-May 2012. Hair loss, nauscia, weakness. ICE July 2012-August 2012 Hair loss, nausea, weakness
On April 19th 2018, I also received my first dose of chemotherapy. I don't remember much of what happened during this time except I broke out in a red rash from head to toe and ran a fever for 5 days straight. The red drug, daunorubicin, makes me extremely sick. I'm a wreck when they give it to me.
Chemotherapy started on 20th Dec 2008 and I chose to stop in June 2009 (I was meant to finish in Nov 2009, but when I found out my tumor was no longer shrinking, I physically could not deal with the side effects anymore). I lost my hair, which was by far not the worst side effect! Mouth sores, lost my sense of taste and smell. Horrendous constipation. Nauseous most of the time. Not able to eat. So completely exhausted, not even energy to stand up some days. Felt extreme cold, then major hot flushes, wake up drenched in sweat. Eyes always sore and watery. My chemotherapy was every 3 weeks, which took 5 days in hospital to administer IV - then every month when home I would spike a massive temp & have to be rushed into hospital for blood transfusions and isolated for neutronpenia! Chemo turned me into a shell of my former self, it destroyed my spirit and had me in tears most of the time. It was a hard, hard fight.
Induction Theraphy Cytarabine and Doxorubicin for 8 days. I just start my Consolidation theraphy last March 30. Which is Doxorubicin for 1hour and vincristine(push) and cytarabine IT(so painful)

Imatinib Mesylate (Gleevec) Chemotherapy Chemotherapies

What Imatinib Mesylate (Gleevec) Chemotherapy Cancer Survivors said about their Chemotherapies.

Gleevec 400 mg. daily, nausea, taking anti nausea medication
Daily 400mg Gleevec. Daily fatigue. Slow morning wake up. Memory problems they call Gleevec brain. Polyneuropathy: pain and weakness in body. I use a cane when walking outside. Diarrhea. I did just find out that I am now in remission but must stay on the Gleevec for 2 years. I am totally grateful that Gleevec exists for me and for all CML patients. Good luck to all of us!

Sorafinib (Nexavar) Chemotherapy Chemotherapies

What Sorafinib (Nexavar) Chemotherapy Cancer Survivors said about their Chemotherapies.

11-19 chemo pellets not sure of the name, nausea,
Nexavar 8/22/12 - forever, side effects all listed
Nexavar for 6 months. Infusion therapy started 2 weeks ago and ongoing bi-weekly.

Topotecan (Hycamtin) Chemotherapy Chemotherapies

What Topotecan (Hycamtin) Chemotherapy Cancer Survivors said about their Chemotherapies.

Have had chemo continuously for 2 years
Carboplatin and Taxol, 8/11/2011. Sun-sensitive day after infusion (doesn't that sound like something you'd pay extra for at a spa?), then joint pain, peripheral neuropathy, fatigue on days three and four following chemo. Get better pain meds for next round!
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
Loss of hair and nausea
7-2010 IP/IV chemo x 6 cycles ( cisplatin/taxol/carboplatin) Hair loss, extreme fatigue, abdominal pain... 11-2011 ca125 on the rise. 4/6 cycles complete of topotecan. Ca125 back in its place. BRCA 1 Minimal side effects: reasonable fatigue and well controlled nausea.
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)

Vincristine (Oncovin, Vincasar PFS) Chemotherapy Chemotherapies

What Vincristine (Oncovin, Vincasar PFS) Chemotherapy Cancer Survivors said about their Chemotherapies.

Rituximab cyclophosphamide vincristine Prednisolene every 3 weeks started 7th August 2012 x8 sessions then 2 years Rituximab control. So far, the only side affect is fatigue , normally towards the end of the day and the day after chemo. Hair still with me. Making sure I don't get an infection of any kind.
ill for a couple of days after treatments 1/15 - don't know if what is going on with me now is latent effects or new cancer
12/8/14 R+Chop thrush, severe upper and lower abdominal pain, pain in muscles and joints, extreme fatigue, constipation, constant coughing, aspirating fluids into lungs. Gastric Reflux activated to point of juices flying up in throat even while on Omeprazole. Neuropathy-numbness and tingling hands and feet. Tongue is numb and can't taste anything. Hair loss 14 days post chemo. 12/29/14 - Severe Upper and lower abdominal pain, constant coughing, still aspirating fluids into lungs, lost my voice, vocal chords are fire engine red, the gastric reflux is so bad they had to add two more medications to my Omeprazole, Zantac, and Carafate. I have Flu symptoms, congestion, post nasal drip, pain in muscles and bones, numbness and tingling in hands and feet. Can't taste anything. Taste buds come back after 3 weeks. 1/19/15 -R+Chop- continue to have numbness and tingling in hands and feet. I drop things and can't feel things in my fingers. 1/20/14 Neulasta injection - exactly 24 hours after injection. Really sore muscles and joint pain all over. lower abdominal pain, constipation, extreme fatigue, coughing.
R C h o p. 21, Six cycles stated feb 11 last one ( hopefully )June 1st 2011. Severe tummy gloating, gas, and pain. Heavy fatigue and nausea, constipation, sweats, hair loss, neuropathy, weight gain in trunk area. Sweats. Fevers. Period gone after first week. Dunno if gone 4 good.
R-CHOP R-ICE ESHAP
started 10/19/2015 R- EPOCH 6 treatments fatigue
An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010: Vincristine PEG-aspariginase Doxorubicin Methotrexate Cytoxan Cytarabine 6-MP 6-TG Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain.
R-Chop - started on 11/19/12, day one was just tired, days 2-4 was aches, awful taste in my mouth, fatigue, constipation. day 5 was pain everywhere, especially in jaws and stomach. Slowly getting better on days 6-14.
Started induction chemo within the first week of November. Integrating it with holistic therapies
Dose adjusted R-EPOCH. Six rounds. 21 day cycles. Chemo administered as an inpatient. Started chemo December 19, 2011. Finished April 26, 2012.
1st Chemo -Rituxan 6/12/13, CHO 6/13/13 with prednisone daily x 5 days, 6/14/13 Neulasta. Foods tasted sweet and had a slight headache but I did good until 5th day and I decreased my antiemetics and had nausea/vomiting and had to get IV fluids. I had some swelling in feet & hands. I worked several days but on the 7th day after neulasta I had back pain and had to take pain pills and a muscle relaxer, then I took Claritin and it did help. I still think I did good for my first chemo. 2nd Chemo- July 3 R-CHOP, July 4- Neulasta. I had swelling the first night in hands & feet. I feel weaker with this one and I'm having breathlessness. I called doctor and had labs but results were okay for chemo. I haven't worked after this one, yet.
finished with induction therapy, now gonna begin with consolidation.
RCHOPx6 started on 2/21/14 Some nausa and loss of appetite shortly after infusion, Some numbness in fingers after 4th infusion. Taste buds don't work for a few days after infusion
Round 1 1/22/13 Round 2 2/13/13
R-COP, mabthera and then R-CHOP
I don't remember all of them, but cytotoxin was one of them
4 rounds of chemotherapy "R-CHOP", every 3 weeks for 12 weeks. 1 round of radiation therapy. Nauseated, feeling like am in a fog. I chew on ice chips prior to and during the administer of Adriamycin (red devil) to prevent mouth sores. So far it works!!!
R-CHOP14 to start on September 13 for six cycles.
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.
Jan 22, 2015 R Chop was the first. Mostly tired some nauseous spells
About to go for chemo number 3 on Friday, feb 22... bone pain, anxiousness, depression, numbness, random rashes, hair losss, constipation. RCHOP , nuelasta, etc
RCHOP - 3 sessions. Start Aug 10 2012
IE and VAC treatment every 3 weeks. Lost weight and all my hair/ body hair
PCV 8/21/16 - still fighting

Vinblastine (Velban) Chemotherapy Chemotherapies

What Vinblastine (Velban) Chemotherapy Cancer Survivors said about their Chemotherapies.

6cycles of Chemotherapy was planned that is a six montha duration.ABVD doses was induced in every fifteen days through veinflow during the first 3 cycles and later through picc line which was less painful. Side effects of chemo were many starting with gastritis, acidity, nausea, body pain,hair loss,fatigue...but this would be fine within a week after wbc count increases to normal level.
AVD (Dr. says I don't need the B) constipation, nausia, jaw tingle, red hot face, tired, dizziness
1991 April to June MAKOP B, 12 months treatment plan administered weekly over 12 weeks, ulcers, nausea, tiredness, loss of nerve sensations in extremities, severe constipation, hair loss (lol)
ABVD Chemo every other Tuesday 12 times.
R-CHOP 6
AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
ABVD Six months
6 rounds/12 treatments ABVD (Could only find Adriamycin and Vinblastin to list here) over the course of 6 months
(ABVD) Loss of hair, nausea, fatigue, loss of appetite, Random flushness, metallic taste in mouth, sores inside mouth

Erbitux (Cituximab) Chemotherapy Chemotherapies

What Erbitux (Cituximab) Chemotherapy Cancer Survivors said about their Chemotherapies.

Begin weekly Erbitux 9/10/13, Cisplatin/5FU 5/14, CarboTaxol 7/15
Protocol #1: First of 3-21 day cycles of 5-FU, Cisplatin and Docetaxel started 10/7/13 - around the 2 or 3 week started losing hair and experiencing nausea, fatigue, weight loss, etc; Protocol #2: Eribtux and concurrent radiation for 6 weeks started ~12/10/13 - neuropathy in feetbegan a few months after treatment stopped and is still ongoing.
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007 Nueropathy, memory loss, balance issues, joint and muscle pain
Erbitux (cetuximab), loading dose 25 Jan, caused mild temp and nausea, then no similar effects during the 8-week course of treatment. Significant skin effects (acne, painful splitting of skin on fingertips, toes, and heels). No real nausea, vomiting, or diarrhea caused by the Erbitux.
12 total Erbitux sessions, once weekly, January 13 - March 31, 2011. Increasing fatigue and, ironically, insomnia following each session. From mid February through the end of treatments, somehow the Radiation/Erbitux mix seemed to spawn clusters of migraines.
3 treatments. Cisplatin at first but had terrible digestive side effects so used erbitux for last 2 treatments
Erbitux (Cetuximab) taken, due to success with HPV-16 related cancers. 7 infusion sessions, starting one week before radiation commencement. First session gave me the worst headache of my life, terrible chills, fever, nausea (but only brief vomiting) and profound weakness. Started about 7 hours after treatment. Subsequent sessions have had less impact; primary complaint being weakness and fatigue. Blistering rash encompassing head, neck, shoulders, chest and back. Very itchy and painful. Appeared by second week of treatment. Now in 4th week, the pustules have subsided somewhat, but lotions are essential to keep the skin peeling controlled.
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
Completed May 15, 2012
Cisplatin ....nausea and fatigue
Cituximab Loading dose March 13th, High fever and severe headache. Second of 8 treatments March 21st. Only side effect was severe heartburn.
Begin Erbitux treatments February 13 2012 and finished on May 2nd.
Began Erbitux November, once a week. Skipped December, resumed chemo January, I go weekly.
Erbitux. Loss of hair, lesions on my hands, scab around my neck, vomiting, etc.
Alt Folfiri/Folfox 2010/Feb through 2010/June Folfiri/Erbitux started 2011/March Changed to Folfox/Avastin 2011/Oct Clinical trials 2012/Sept
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
Start with erbitux on Nov 12th and follow with weekly doses every Monday for a total of 8 weeks
My mum went through a number of drugs to treat the cancer which kept on returning almost every single year from 2008-2011: Avasatin, Xeloda, Folfox, Folfiri, Erbitux. The side-effects are almost always similar: nausea, tiredness, vomiting, loss of appetite, mouth and throat sores. The first day after chemo she never manages to sleep well.
ABVD Six months
First treatment on 8-16-12 of FOLFOX Avastin begins 8-30 with second treatment Side effects: mouth soreness, sensitivity to cold
Erbitux, once a week for 7 weeks, starting in August. Initially, severe tongue sensitivity (at one point even water was like battery acid). For most of the treatment time, daily nausea and and severe acid reflux with occasional vomiting. As of today: chemotherapy induced neuropathy of the right leg causing the inability to lift my toes or my ankle (currently wearing a brace), but expect this to improve; whatever contribution Erbitux has towards complete dry mouth and lact of taste.
Cetuximab - Brand name: Erbitux - April 1, 2010 - so far just really really tired. I was told later a rash and other stuff could happen. ( 5/1/10 - rash did appear including itching. Scalp was the worst. Lying down felt like pins sticking my head. I was told if not rash, med is not working. After they know it was working, I got med to help the rash and itch.)
second form of chemo 3 more weeks, no side effects
Jan 21- vomit, headaches, fatigue, lack of sleep, sore throat, cold sores, dry mouth, weak, pain, dry skin, headaches
April 9, 2012 (Only made it through 4 treatments as it made me incredibly sick.)

Cytarabine (Ara-C) Chemotherapy Chemotherapies

What Cytarabine (Ara-C) Chemotherapy Cancer Survivors said about their Chemotherapies.

Induction Theraphy Cytarabine and Doxorubicin for 8 days. I just start my Consolidation theraphy last March 30. Which is Doxorubicin for 1hour and vincristine(push) and cytarabine IT(so painful)
nausea, fatigue, anxiety, depression, dizziness, vomitting
AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
R-CHOP starts 8/26/10 Major Side Effects Day 1-3 Headache and Diarrhea Mouth Sores Days 3-6 TCH starts 4/23/18
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
Started induction chemotherapy for AML on 25th September with "7+3 for 24 hours. I got Daunorubicin for 15 minutes the first 3 days while getting cytarabine the rest of the 24 hours. After the 3 days, the cytarabine continued 24 hours for the balance of the rest of the 7 days. I was medicated with multiple medications to prevent some of the known side effects such as eye damage, nausea, vomiting, and acid reflux. After the chemotherapy stopped, the Nader effects kicked in about a week later which is when the white and red blood cell counts and platelets drop. I ended up with ecoli infection in the blood and pneumonia which nessitated the administration of IV antibiotics. I also required Neupogen shots daily to help increase the production of white blood cells. Multiple platelet and blood transfusions were needed to sustain my existence. During this time I also had petechiae due the low platelet count. Stem cell or bone marrow transplant was recommended however, in my case, no full donor match could be found. Therefore my option was to have additional consolidation which consisted of hi-dac chemo (high dose chemo days 1,3,5 for 4 hours twice on those days. Typically if transplant is not an option, 4 doses of hi-dac is recommended. Due to my difficulty with the chemo, we opted for only 2 consolidation treatments. Right now I'm in remission although my white blood cell count and platelet counts are only 1/2 of the normal range. Last bone marrow biopsy (6th one) showed no Leukemia. Currently I have monthly blood work to monitor blood levels.
April 9 - 15th 2017 & April 27th - May 1st 2017.Finished 2nd round of Chemo May 1st. Experiencing hair loss, fatigue & weakness, SOB, Colitis, Diverticulitis, diarrhea, loss of appetite, confusion, hallucination, Acute Renal failure, low BP, and neutripinic sepsis.
On April 19th 2018, I also received my first dose of chemotherapy. I don't remember much of what happened during this time except I broke out in a red rash from head to toe and ran a fever for 5 days straight. The red drug, daunorubicin, makes me extremely sick. I'm a wreck when they give it to me.
Hyper CVAD Protocol 6/1/2015-2/7/2016 including spinal chemo X 4
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
ABVD Six months
Induction round 12/22/14-1/19-15: nausea, vomiting, diarrhea, fatigue Consolidation February '15, Consolidation March '15, Consolidation April '15
Achieved remission October 2017 with 2 IV drugs — few side effects aside of minor peripheral neuropathy in feet. Out of remission in January 2018. On cytsribinevsubce Feb 2018; Also on oral chemo since March 2018: Venetoclax. Peripheral neuropathy (feet); anal fissures w/bleeds; mucocitis of throat (hard to eat or drink ANYthing); dyspepsia (nausea); fatigue; 15% wt loss (BMI=18.4)
I've had 2 rounds of induction therapy and just finished my 4th round of consolidation therapy. Side effects have been different with each round. My hair only fell out my first round. Have experienced nausea, dizziness, weight loss, appetite loss, headaches, brain bleeds, metal-like taste in my mouth and food, lethargy, loss of endurance and stamina, chemo brain, grogginess and foggy brain, memory loss.
Started daunorubicin and cytarabine 7+3 therapy on January 10, 2015. I stayed in the hospital approximately thirty days. A bone marrow biopsy at the end of this stay confirmed remission. My nausea was not too bad, except for a time that they served some green beans from the cafeteria. I dry heaved several times, and then ate only food from home. I suffered diarrhea, hair loss, a neutropenia fever, an acute kidney injury, fatigue, and weight loss. I started my first round of consolidation chemotherapy in February, second round in March, and third round in April. I have been very fortunate to this point to avoid a bone marrow transplant.
January 6 2014 and February 15 2014
R-Chop--6 cycles total..completed 5/18,6/8 and 6/24/2011,7/15/11 8/8/11 and 8/25/11. side effects: nausea, bone pain, headaches, ear pain(probably from neulasta/neupogen),some fatigue, severe heartburn/epigastic discomfort, mood changes, r ice , beam, imbruvica
Induction, September 2014, two rounds. I didn't go into remission after the round (7+3 and) had IDA-FLAG (idarubicin, fludarabine, cytarabine and G-CSF. I lost my hair and appetite. Mouth sores are horrible as was the fatigue. I had four rounds of consolidation (November, December 2014, January, February 2015) after this, high dose cytarabine and the side effects are marginal for me, I was really tired and that was a result of low Hgb.
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
I don't remember all of them, but cytotoxin was one of them
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.

Daunorubicin Chemotherapy Chemotherapies

What Daunorubicin Chemotherapy Cancer Survivors said about their Chemotherapies.

Started induction chemotherapy for AML on 25th September with "7+3 for 24 hours. I got Daunorubicin for 15 minutes the first 3 days while getting cytarabine the rest of the 24 hours. After the 3 days, the cytarabine continued 24 hours for the balance of the rest of the 7 days. I was medicated with multiple medications to prevent some of the known side effects such as eye damage, nausea, vomiting, and acid reflux. After the chemotherapy stopped, the Nader effects kicked in about a week later which is when the white and red blood cell counts and platelets drop. I ended up with ecoli infection in the blood and pneumonia which nessitated the administration of IV antibiotics. I also required Neupogen shots daily to help increase the production of white blood cells. Multiple platelet and blood transfusions were needed to sustain my existence. During this time I also had petechiae due the low platelet count. Stem cell or bone marrow transplant was recommended however, in my case, no full donor match could be found. Therefore my option was to have additional consolidation which consisted of hi-dac chemo (high dose chemo days 1,3,5 for 4 hours twice on those days. Typically if transplant is not an option, 4 doses of hi-dac is recommended. Due to my difficulty with the chemo, we opted for only 2 consolidation treatments. Right now I'm in remission although my white blood cell count and platelet counts are only 1/2 of the normal range. Last bone marrow biopsy (6th one) showed no Leukemia. Currently I have monthly blood work to monitor blood levels.
On April 19th 2018, I also received my first dose of chemotherapy. I don't remember much of what happened during this time except I broke out in a red rash from head to toe and ran a fever for 5 days straight. The red drug, daunorubicin, makes me extremely sick. I'm a wreck when they give it to me.
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
Started chemo on July 7, 2016 - May 5, 2017 Side effects - nausea, vomiting, mouth sores
Started daunorubicin and cytarabine 7+3 therapy on January 10, 2015. I stayed in the hospital approximately thirty days. A bone marrow biopsy at the end of this stay confirmed remission. My nausea was not too bad, except for a time that they served some green beans from the cafeteria. I dry heaved several times, and then ate only food from home. I suffered diarrhea, hair loss, a neutropenia fever, an acute kidney injury, fatigue, and weight loss. I started my first round of consolidation chemotherapy in February, second round in March, and third round in April. I have been very fortunate to this point to avoid a bone marrow transplant.
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.

Mitomycin Chemotherapy Chemotherapies

What Mitomycin Chemotherapy Cancer Survivors said about their Chemotherapies.

Very fortunate to have had fairly mild chemo effects--mostly fatigue, some mouth sores etc. but not much nausea.
weeks 1 & 5 Day 1 Mitomycin-C 10mg + 5FU 1000mg pump x 48hrs wk 1: bleeding gums, low wbc, anaemia, tiredness wk 5: nausea, low wbc, anaemia, onset of abdominal cramping, extreme fatigue hair-thinning, fatigue
Fatigue, hair thinning,
May-June, 2015; 5-FU and Mitomycin
April 2011 nausea and vomiting, weight loss,neutropenia,mouth sores, hair thinning April 2012 nausea, mouth sores, hair thinning
Chemo first and fifth week. Mouth sores, nausea, and no appetite.
2 rounds of 96 hours each
Mitomycin & 5FU started on 1/18 ended on 1/22. Next chemo to start on 2/15. Side effects were constipation, fatigue and low appetite and aversion to smells.
7/15/13 1st round of chemo with Mitomycin and 96 hr (5 day) pump of 5-FU. Nausea, mouth sores, lack of appetite, weight loss. 8/12/13 2nd round of chemo ... same medication and side effects as 1st. Starting 7/18/14 Cisplatin, 5-FU. Every 3 weeks. Nausea, mouth sores 9/22 Carboplatin, 5-FU Every 3 weeks. Nausea, mouth changes 6/25/15 Carboplatin, Taxol every 3 weeks. Fatigue 7/15/15 Carboplatin, Taxol, Vectibix every 3 wks. Fatigue, Nausea, Dry Skin, Acne-like blemishes
Mitomycin on Day 1 and Day 29 5-FU Days 1-4 and 29-32 Dry mouth, constipation, thinning hair at week 4. <<<<<<After reading this I have to say "chemo brain" because I don't recall writing that!!
Mouth sores terrible lost taste for red meat. Hair thinned out
Commencing Chemo 28th April
2009 - Mitfomycin, 5FU; 2011 Xeloda & Oxaliplatin; 2013 Paclitaxel & Carboplatin; 2014 Lapatinib; 2015 Xeloda (twice with radiation)
1st round 23-27 March 2015 - minimal physical side effects, more pyscologial with PICC line fear and awareness of carrying chemo bottle around for a week. 2nd round 20th -24th April - felt more at ease with the bottle and had no real side effects until the end of the week, then developed terrible mouth sores around back teeth - which I didn't first time round.
Did well with the first round of chemo. Only side effects were loss of appetite and mild nausea. Did well again with my second round of chemo. Did not lose my hair!
Mitomycin given in one dose on June 28, followed by a week of infusion of 5FU. Four weeks later a second cycle of 5FU. Following the first treatment, severe mouth sores for 8 days - at the end could not swallow more than a teaspoon at a time. The second cycle had reduced mouth sores, but I did not have the Mitomycin as my blood count was too low. After the chemo ended, I developed a problem that my doctor and I identified as milk protein immune reaction (a general problem known as FPIES, and usually seen in young chidren - so at least my innards were in their second childhood!). I was hospitalized twice for rehydration, following hours of vomiting and diarrhea, after eating ice cream (it's made mostly with milk, who knew?) and a soup with light cream base (about the same as milk - who knew?). This turned me into a "food detective" when I ate away from home (what is in that sauce?). Finally, after a year, the oncologist suggested "challenges"with a fourth-teaspoon of the ice cream, followed by half-a teaspoon, etc., until I consumed the same size serving as the one that sent me to the hospital, without any reaction. At last I could stop grilling my friends about what's in the food! At this point my only issue is the chile pepper question - if something is being cooked with any kind of chile peppers I start coughing. And eating them! Out of the question.
peripheral neuropathy
mitomycin on 6/29/2015, 5day infusion of 5-FU 6/29 - 7-4 Side effects "metal mouth" loss of appetite, fatigue
Overall unwell feeling. I had chest tightness and pain, might have been from anxiety. I was lucky with minimal hair loss and had only light nausea. I took my nausea and pain medication as prescribed, not when I needed it. Once nausea sets in, it's very hard to get rid of it. While I did not like taking opioid pain medication, pain is like the nausea, once it sets in, it's hard to overcome. About two weeks after radiation concluded, the Dr. and I ''weaned'' me off the pain medication with over the counter pain meds. The last week of Chemo was the worst, in hospital for a week as I spiked a fever, got some heavy duty antibiotics.
Cisplatin/5FU 4 courses may/June/ July/August 2017
1st round was delayed because they could not find a vein, so I had to have a pick line surgically put in for the full time and treatment was delayed a full week as a result. I developed a very bad rash from my chest up a few days later. Overall feeling of unwell. Felt sick when I ate. I ended up in the hospital following second round of chemo. It effected my blood badly and I had to have blood and platelet transfusions and 5 days of intravenous full spectrum antibiotics. I lost about 80% of my hair, but very late compared to most people. It got especially bad for about 4 months after my last chemo.
nausea (finally controlled).
I felt like my body was vibrating during the oral chemotherapy. I was very fortunate in that my side effects were minimal.
Jan 7th week -1st round of chemo - severe nausea, dehydration, and mouth sores. For 2nd round 5 weeks later, started Lysine powder 1 week prior with mouthwash so no sores.
6/20/11 5 days; 7/18/11 5 days fatigue, nausea, parageusia, mouth sores, vomiting, hair loss, dry skin, brittle dark nails, low blood pressure, urine & stool incontinence, 2 blood transfusions, vitamin deficiencies

Eloxatin (Oxaliplatin) Chemotherapy Chemotherapies

What Eloxatin (Oxaliplatin) Chemotherapy Cancer Survivors said about their Chemotherapies.

Oxaliplatin infusion; Leucovorin infusion; Fluorouracil continuous infusion pump.
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
R CHOP every 3 weeks from 12/30/2013 through 4/28/2014. Began R GEMOX on 6/19/2014 every 3 weeks through 10/21/2014. Started Rituximab and Treanda on 12/3/2014 as a 2 day course. Severe neuropathy in feet and less but still suffered neuropathy in fingers during R CHOP. R GEMOX caused great discomfort with cold even before therapy was complete. One does of Rituximab and Treanda and my father has terrible oral sores. However, he has been fortunate to never have suffered any severe intestinal discomfort.
Rituxan and treanda. Had mixed results. Then R-CHOP, which seemed to increase the cancer. Then R-ICE which then sent me to get an auto transplant. Had a severe reaction to rituxan the first time, then minor reactions every other time. They had to infuse really slow. Added an extra day to my chemos. No other big side effects from the actual chemo except fatigue. Hair loss after the final ICE but was high dose. Also, threw up after the ICE except after the high dose.
Oxaliplatin,Calcium Leucovorin,Camptosar,Florouracil
I had 2 chemotherapy drugs. Eloxatin (oxaliplatin) which was given through my port at my Oncologist's office. I also took Xeloda which is a chemotherapy drug (pills) taken at home. I also had a wonderful Oncologist who worked well with my surgeon.
Started chemo 1/4/2016
Nexavar for 6 months. Infusion therapy started 2 weeks ago and ongoing bi-weekly.
Began with Xeloda in pill form that was simultaneous with my Radiation. 6 weeks Mon-Fri. Didn't have any problems with this drug whatsoever. March 2014 began Oxaliplatin and 5FU for the next 6 months. I where a pump for 48 hours of continuous infusion every other week. I was told to be cautious of cold weather and cold drinks or any other type of cold items. So drinking everything at room temp is pretty boring but I did find out what happens if you do try to tempt fate and drink a cold substance----it felt like I was swallowing shards of glass down the back of my throat. YIKES. So far, I have only noticed a bit of nausea during the week of treatment and fatigue, but I know it is early and these symptoms will undoubtedly worsen as time goes on. Not looking forward to this. Really have dreaded the whole chemo thing.
June 2013 - December 2013
I was completely fine up until chemo #5. All of them are 52 hours, I go home with the pump. Chemo# 5 put me down. Fatigue, mouth sores, numbness in toes, extreme sensitivity to cold, loss of appetite.
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss 6 rounds Hepatic artery infusion (oxaliplatin)avastin 3 month Jakafi (oral) unknown trial drug nano cisplatin and gemcitabine
folofox: 3/14-9/14, starting again 1/15
Jan 22, 2015 R Chop was the first. Mostly tired some nauseous spells
Nine rounds of Folfirinox treatment before surgery and more after.
5-fu orally before surgery 11/12 - 12/12. The oral chemo did a number on my stomach lining. After surgery did 8 FOLFOX treatments 3/13 - 7/13, side effects were sensitivity to cold, some nausea but not bad, and tired.
6 weeks Flourcil (pills) and radiation Oct - Nov 2015 10 sessions IV chemo (avastin, oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016 Hands and feet numness Little nausea Fingernails thinned Balding
2009 - Mitfomycin, 5FU; 2011 Xeloda & Oxaliplatin; 2013 Paclitaxel & Carboplatin; 2014 Lapatinib; 2015 Xeloda (twice with radiation)

Abraxane Chemotherapy Chemotherapies

What Abraxane Chemotherapy Cancer Survivors said about their Chemotherapies.

Tiredness and oain
Abraxane and Genzar
Started July 12. Two weeks on, 1 week off. Plan is 6 cycles. Side Effects - Can’t sleep (steroid pretreatment). Terrible constipation (Nausea meds), Very tired, mild fever, irritability on Day 2-3 post chemo.
Extreme fatigue, delerium
Extreme fatigue, some dry heaving, hair loss, neutropenia
A/c( I am not good with names and the one would not uncheck above) started 4/10/2014 I lost my hair the day of the second treatment. Felt pretty bad but was able to work. Got pulmonary embolisms in June (I hope to find out soon that they are gone) by my 3rd A/c the lump was no longer able to be felt. By the 4th it was gone. started taxol in June (blurry) after 2 treatments the first infusion took 11 hours the second 8 hours and that was all I could stand. The side effects were extreme pain, nausea and sensitive to light and sound .I opted out the rest and went straight to surgery!
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)
Initially 2 rounds of Folfirinox, that increased liver enzymes and CA-19-9
Methotrexate, Doxyrubicin, Vincristine, Vinblastine, Cytarabine, Etopomide
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.
Started 12.1t.16
Luckily just 2 rounds of Chemo in 2000. Only lost hair from the waist down. Which would be awesome if I was pursing a career as a Drag Queen

Avastin (Bevacizumab) Chemotherapy Chemotherapies

What Avastin (Bevacizumab) Chemotherapy Cancer Survivors said about their Chemotherapies.

six infusions of carbo/taxol every 3 weeks from 3/13 to 6/13 six more infusions carbo/taxol every 3 weeks from 1/15 to 4/15 three infusions doxy every 3 weeks from 8/15 - severe rash - discontinued several infusions every week gemzar from 10/15 to 2/16 tanked white count and increased acities - discontinued avastin/taxol every 3 weeks from 3/16 to present
mid july to November 2015 Gemzar eight treatments, xeloda for 28 days on radiation days. Started Folfox regimen 09/20/2017 for recurrence.
Had a really bad reaction on Oct 14 2014
Beginning in April I had three treatments with Taxol and carbo platinum as well as Avastin. Joint pain was rough but gone after a week or so. I've mostly been easily tired out. My CA125 went up so I had another PETCT that showed an increase in the cancer I am now getting Doxil every four weeks and Avastin every two weeks. Side effects have been relatively mild - just tired a lot.
Avastin drip. 12/2009 - 2/2010. Nausea. Sidenote - everyday I'd go to a juice cafe where they had wheat grass juice. When I went for my last treatment, nurse told me my blood counts throughout treatment were spot on... It's worth researching as has many benefits. Please check with your doc as told it may not be appropriate for some during their treatment.
ABVD Six months
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007 Nueropathy, memory loss, balance issues, joint and muscle pain
I was completely fine up until chemo #5. All of them are 52 hours, I go home with the pump. Chemo# 5 put me down. Fatigue, mouth sores, numbness in toes, extreme sensitivity to cold, loss of appetite.
6 treatments chemotherapy (carbo/placing/Avastin
She has had 5 rounds of platinum based triad, one round of Alimpta (sp?), now on Opdivo, has had 3 rounds, for the fourth the week of 4/10/16.
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss 6 rounds Hepatic artery infusion (oxaliplatin)avastin 3 month Jakafi (oral) unknown trial drug nano cisplatin and gemcitabine
folofox: 3/14-9/14, starting again 1/15
Cisplatin: Took 2 treatments, 1 week apart. Tolerated well. No nausea, though stomach very "acidy" feeling. Eating bland foods often throughout the day helped. Did have some tiredness. No loss of hair. Had to stop Cisplatin for a while due to frequent ringing in ears. Cisplatin can lead to permanent hearing loss. Was able to complete last 4 Cisplatin after a break. Have some hearing loss, but not much. Will be using an experimental drug-Avastin, as well. Avastin: no loss of hair. Felt a coldness in the core of the body and extremities. Combined with Cisplatin, usually left me feeling poor and unable to work for about 5 days. Starting Taxol, Carboplatin, and Avastin again next week.
Started chemo on July 7, 2016 - May 5, 2017 Side effects - nausea, vomiting, mouth sores
Every other week
First chemo was on Friday 9/15/17. 3 chemo infusions over 8 hours. To be done every 3 weeks. Next scheduled 10/6/17. Have had no nausea or vomiting. Saturday night, severe pressure in rectum, vaginal area and lower pelvic region. Contacted physician due to pain and that no amount of medicine was subsiding pain. Was advised that it seems as if the chemo is working. The pressure could be due to the necrotic tissue from the cancer itself is moving, liquid retention, or inflammation from the chemo. He reassured me that pain and pressure should go away within a few days. Was instructed to take higher dose of percocet. The higher dose of pain meds has done its due diligence, but knocks me out too. It is now three days later and pain and pressure has become more bearable, and treatable with 800mg motrin. Feeling extremely tired, which is very odd being that I am very active. Powering through, I will win this battle.
Carboplatin, taxol, avastin, and a PARP inhibitor for 6 rounds, then remission for about 7 months. Then more carboplatin and taxol for 3 more treatments until I became resistant, then onto the MEK/Milo trial. Failed that after 2 months, now looking into immunotherapy
6 carbo/taxol and 4 cisplatnin in 2013/4. 4 carbo/taxol in 2016/17.
Ongoing every two weeks
6 weeks Flourcil (pills) and radiation Oct - Nov 2015 10 sessions IV chemo (avastin, oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016 Hands and feet numness Little nausea Fingernails thinned Balding
Six rounds in 2008 and 12 rounds in 2015 got through these not too bad in the big scheme of things.
CHEMO 1/2/2012, CHEMO 8/1/2012, CHEMO 7/1/2013 HAIR LOSS
Jan 2 through Jan 5 2015 Staff infection , Bacteria in blood, Fever and Nausea

Dasatinib (Sprycel) Chemotherapy Chemotherapies

What Dasatinib (Sprycel) Chemotherapy Cancer Survivors said about their Chemotherapies.

An unpleasant mix of fatigue, diarrhea, headaches, water retention, muscle and bone pain.

Onivyde (Irinotecan Liposome) Chemotherapy Chemotherapies

What Onivyde (Irinotecan Liposome) Chemotherapy Cancer Survivors said about their Chemotherapies.

Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.

Uncategorized Chemotherapy Chemotherapies

What Uncategorized Chemotherapy Cancer Survivors said about their Chemotherapies.

1/7/2014 and every 14 days thereafter - Nausea, jaw pain, loss of taste, hair loss, fatigue 6/10/2014 - chemo complete (6 cycles ABVD)
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