What are Chemotherapies? List from Cancer Survivors

The below is a list that has been posted by the bloggers in this cancer community. There are 7085 cancer fighters that are members here. This is what they said, not what the doctors or nurses will tell you.

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Adriamycin (Doxorubicin) Chemotherapy Chemotherapies

What Adriamycin (Doxorubicin) Chemotherapy Cancer Survivors said about their Chemotherapies.

R-CHOP 08/2008-12/2008 R-ICE 01/2009 ESHAP 02/2009-03/2009 BEAM 05/2009
R-CHOP Four cycles, three weeks apart. March 26 thru July 7 2015. Minimal thru first stage thus far.
(ABVD) Loss of hair, nausea, fatigue, loss of appetite, Random flushness, metallic taste in mouth, sores inside mouth
Cisplatin and 5Fu daily for 5 days then 2 week break for 6 months low blood counts, nausea, fatigue etc. Hospitalized several times for low blood counts and infections. 12 weekly infusions of taxol, low blood counts, nausea, fatigue, neuropathy. Completed 3 of 4 A/C infusions hospitalized every time for low cell counts.
5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared. Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half.
Chemotherapy is bi weekly on fridays! Side effects include Nausea, fatigue, and weakness, hair thinning
Started first round of AC on June 12th....will continue 3 more rounds and then on to Taxol.
RCHOP 21. Three rounds total. 11/2/0, 11/23/10, and 12/14/10. Worst effects so far: heartburn to point of esophageal spasms, constipation, headache, mouth tenderness and dryness, fatigue and hair loss. This was for the Lymphoma. No chemo (so far) for thyroid cancer.
Chemo sucked! It's a crazy way to slowly poison yourself and destroy every muscle that you have spent the last ten years working on. Chemo is barbaric and I will cheer the day when this is gone. Obviously, I don't work or support any drug companies.
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4 rounds of Adriamycin and Cyclophosphamide together every 2 weeks. I am done with those 4 rounds. 4 rounds of Taxol every 2 weeks I have 3 rounds left. Xeloda for a year, Gemzar and carbo still doing it once a month until I guess it stops working.
AIM Chemotherapy, 3 cycles, inpatient in hospital for 5 days each cycle, started on 16th May finished on 1st July. Side effects, hair loss, chronic diarrhea, piles, sore mouth, tiredness.
R-CHOP: 4 Rounds: 2/3/15, 2/24/15, 3/17/15, 4/20/15 - Fatigue, Nausea, Vomitting, Dry Skin, Blisters, Mouth Sores, Headaches, Alopecia
First chemo starts July 7 2011
6 treatments of R-CHOP, 3 weeks apart.
I recieved Chemo in 2004-2006 with my first diagnosis of ALL. I relasped in June 2011 and started chemo on June 24-July 18. I will continue chemo until my Bone Marrow Transplant.
8 sessions, sweats, nausea, constipation, de hydration, low white cell counts. joint, bone, muscle, numbness, tingling, pain from Taxol during and post-chemo. Peripheral neuropathy has been diagnosed.
Very few side effects, a little nauseau and sleeping more than normal, lost my hair
lots of dates, spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints. mercaptiprine, is every day, that just gives her a weird rash. methotrexate makes her sleepy
ABVD Six months
6cycles of Chemotherapy was planned that is a six montha duration.ABVD doses was induced in every fifteen days through veinflow during the first 3 cycles and later through picc line which was less painful. Side effects of chemo were many starting with gastritis, acidity, nausea, body pain,hair loss,fatigue...but this would be fine within a week after wbc count increases to normal level.
R-CHOP side effects are nausea, fatigue, hair loss, and chronic diarrhea. I lost 15 pounds - no complaints about that! Ativan was very effective in treating the nausea, but made me very sleepy.
Perjeta, Herceptin & Taxol (4 rounds over 12 weeks)to start off with then after mastectomy & reconstruction Adriamycin & Cytoxan (4 rounds over 8 weeks)
ABVD for 6 cycles (12 treatments). Was quite well tolerated, tired for a few days after, hair loss, mild nausea but no vomiting, changes in bowel motions, mild rash on feet and arms, aching veins. MADEC (methotrexate, cytosine, dex, etoposide, cyclophosphamide) for 2 cycles, one week of chemo in hospital, 2 weeks to recover then repeat. Fatigue, mild nausea, hair loss. BEAM (carmustine, etoposide, cytosine, melphalan) prior to stem cell transplant. Have only just started this today, had carmustine and so far all good but I know this will change.
Round one: 7 days of continuous chemo. Round two: 5 days of 2 times a day chemo Round three: 2 days of 2 times a day chemo Followed by 3 days of 2 times a day total body radiation.

Cyclophosphamide (Cytoxan) Chemotherapy Chemotherapies

What Cyclophosphamide (Cytoxan) Chemotherapy Cancer Survivors said about their Chemotherapies.

Jan 22, 2015 R Chop was the first. Mostly tired some nauseous spells
Currenly going through Ewings Sarcoma protocol for Chemotherapy. 14 total cycles.
Started chemo just before Christmas of 2009. Was given cytoxin and taxotere. Extreme fatigue, nauseousness, no tomato foods first few days after chemo, and no burning food allowed in the house! Had my last chemo February 20. Took 2 months FMLA during chemo. Early chemo-induced menopause.
9/9/10 - Adriamyicen & Cytoxan. Headache, dizzyness, restless leg syndrome, nausia-light in mornings. 9/10 -9/14/10 - EXTREME Headaches, major fatigue, constipation, dizzyness and car sickness.
started chemo end of may and finished it july 15th,had 4 altogether,side effects were severe bone and muscle pain ans sickness
First Chemo 9-8-2008. Side Effects - Pain, joint and bone pain, can't taste anything, headaches, bodyaches and my skin hurts and weight gain from the steroids.
Every week on Day 1 & 2 and Day 8.
Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes. I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite. I started Tykerb in Feb 2009. I will continue with Herceptin for at least 7 more months after surgery.
Many different times beginning approx 1 year after spleen removal
Chemotherapy 4 X AC - side effects - extreme nausea, hair loss, fatigue. Neulasta - bone pain. Chemotherapy 4 X Taxol - Peripheral neuropathy, nausea, bone pain, loss of balance, extreme fatigue, hair loss, low blood platelet count.
6 Taxol + Cytoxan Nausea, ache, neuropathy, squiggles in eyes
1991 April to June MAKOP B, 12 months treatment plan administered weekly over 12 weeks, ulcers, nausea, tiredness, loss of nerve sensations in extremities, severe constipation, hair loss (lol)
Chemotherapy started in September 2011 and continued every three weeks either daily for a week, or a single day dose of VAC - crappy crappy side effects, where do I start......numb finger tips, constipation, hair loss, loss of taste buds, thrush in mouth, lack of concentration, sooooo exhausted after each dose and weeks later. It is very true that the chemo is so much harder than the cancer to deal with.
RCHOP - 3 sessions. Start Aug 10 2012
R-CHOP: 4 Rounds: 2/3/15, 2/24/15, 3/17/15, 4/20/15 - Fatigue, Nausea, Vomitting, Dry Skin, Blisters, Mouth Sores, Headaches, Alopecia
Chemo sucked! It's a crazy way to slowly poison yourself and destroy every muscle that you have spent the last ten years working on. Chemo is barbaric and I will cheer the day when this is gone. Obviously, I don't work or support any drug companies.
Will have 4 rounds of chemo for preventative reasons. Taxotere & Cytoxan. Had my first dose 2 weeks ago. No nausea, just fatigue, some diarrhea. Thought I'd keep my hair until the next dose, but it just started falling out today.
29 Jul 15, 19 Aug 15. Tumor Lysis Syndrome, hair loss
12 rounds of chemo
1st cycle 5th March 2014.
suffer to heal. stay mindful of what it means to be aware.
R-CHOP14 to start on September 13 for six cycles.
R-CHOP; chemo as listed above plus Rituximab and Prednisone. June x1; July x2; August x1; September x2. 6 total rounds of R-CHOP. Also, had an injection of Neulasta the day after each chemo round that helped me build-up white blood cell counts and it worked well. Fortunately, they gave me a 'cocktail' of Benadryl etc, so I never got sick - thank God. Took nausea pills. Loss of appetite for days as everything tasted like you ate old pennies or nickels. The first two times that I had the Neulasta white blood cell shots I had bone pain within a week that lasted only a day or two and went away. Chemo also gave me an irriegular heartbeat, so a beta-blocker fixed that. Chemo 1-4 weren't all that bad, just long. Chemo 5 & 6 felt like I was in a fight in the middle of the night - but I was able to recover quickly. The Prednisone pills made me nasty, which I usually am not.
I just finished 4 rounds of A/C chemo treatments. Fatigue and infection was my worst enemy. First chemo treatment, I was in the hospital with pneumonia and neutrepedic. Very sick. I can only say I am glad its over. Now I am getting a port and will start Taxol next week.
6 treatments of R-CHOP, 3 weeks apart.

Taxol (Paclitaxel) Chemotherapy Chemotherapies

What Taxol (Paclitaxel) Chemotherapy Cancer Survivors said about their Chemotherapies.

Body would only take 1 day session.
Chemotherapy started on March 1st
Started first round of AC on June 12th....will continue 3 more rounds and then on to Taxol.
Loss of hair and nausea
march-june 08: 6 taxotere/carboplatin november-april 09: 6 taxol/carboplatin oktober-? 09: started caelyx/carboplatin every side affect you can imagine
7/15/13 1st round of chemo with Mitomycin and 96 hr (5 day) pump of 5-FU. Nausea, mouth sores, lack of appetite, weight loss. 8/12/13 2nd round of chemo ... same medication and side effects as 1st. Starting 7/18/14 Cisplatin, 5-FU. Every 3 weeks. Nausea, mouth sores 9/22 Carboplatin, 5-FU Every 3 weeks. Nausea, mouth changes 6/25/15 Carboplatin, Taxol every 3 weeks. Fatigue 7/15/15 Carboplatin, Taxol, Vectibix every 3 wks. Fatigue, Nausea, Dry Skin, Acne-like blemishes
Beginning in April I had three treatments with Taxol and carbo platinum as well as Avastin. Joint pain was rough but gone after a week or so. I've mostly been easily tired out. My CA125 went up so I had another PETCT that showed an increase in the cancer I am now getting Doxil every four weeks and Avastin every two weeks. Side effects have been relatively mild - just tired a lot.
Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol
carbo/taxol only effect has been being tired!! Verty low white cell counts, had to receive one transfusion, other wise has handled it well.
Begin weekly Erbitux 9/10/13, Cisplatin/5FU 5/14, CarboTaxol 7/15
6 rounds of Carbo Platinum and Taxol from 3/18/05-7/8/05 major side effect after the chemo was stopped: fatigue, memory loss Started chemo again in October of 2008. Taxol, Carbo Platinum and Avastin. Switched the taxol to taxotere after four rounds because of neuropathy. Major symptoms, nausea, fatigue, nose bleeds, low white blood cells, memory loss, did I mention fatigue?
8 rounds - 4 A/C - 4 Taxol Hair loss on 13th day, bone pain from Taxol, rhematoid arthritis outcome
The 4 "red devil" treatments were the worst & those neulasta shots! I had an allergic reaction to Taxol. Really bad! So they switched me to Tacrete. Easier to handle physically but took longer in between chemos.
Sept 6-Nov 6 2008: every three weeks for 6 hours. Side effects: hair loss, tired, and sore from the Nuesta shot, but overall not as bad as it could have been.
Induction chemo for 2 months prior to radiation treatment - once a week during radiation; mouth sores for four days after first round, hair loss, fatigue, and some taste changes, but all in all, he did really well. Very little nausea.
I started chemo on Dec 3, 2012. I need to complete 6 treatments of Carbo and Taxol. My treatements or given over a period of 3 weeks. The first week I receive the full carbo dose and 1/3 of the taxol. The next two weeks I recieve the remaining taxol. I am having trouble keeping my WBC up with the weekly treatments. I had to have Neupogen shots to help give them a boost.
currently doing carbo/taxol every three weeks. Extreme fatigue, muscle aches, taste changes
Chemotherapy November 2014-April 2015. Hair loss, neuropathy in feet, achy joints.
Starting on 18th April, 2011
Started AC on 12/12/07. That was fine. Had a reaction to Leukine (sp) now I'm Neupagen daily. No problems there.
First Chemotherapy was Monday, March 29, 2010 - The only medical side effect was a very red face in reaction to the steroid in one of the preparatory drugs. Main side effect was pronounced "blues". Mom stayed on the couch for three days and ate very little.
Double chemo infusions, including "red devil", during the first round of chemo over eight weeks every two weeks. This was from late Oct 2014 thru mid Dec 2014. Side effects included hair loss, sensitive finger tips and toe nails, painful mouth and tongue with half my throat swollen by end of treatment, constipation and over all brain fog. The hardest to get used to is the stuffy nose and nose bleed when it clears. Single chemo included Taxol, Herceptin, steroids, benadryl, and anti-nausea medication. Side effects were a continuation of tender nails till they have started to detatch from their nail beds. Sore mouth with base of tongue muscle having difficulty moving food around in my mouth, which has gotten worse as therapy has progressed. Constipation is still an issue unless I forget to eat my bowl of raw veggies every day. Brain fog or mushiness has been an issue throughout this entire experience, hopefully this will discontinue with the ending of chemo. Tiredness has been my constant companion throughout this entire experience also. Also, my constant stuffy nose that clears off and on and bleeds every time. I'm often awakened by my nose bleeding.
AC first 2 months tolerated well. Didn't miss any days at work. Had more problems tolerating taxol. Missed a lot of time at work.
Start Jan 6, 2012 Six rounds of carboplatin and paclitaxel once every 3 weeks.
Dose-Dense AC chemo x4 every 2 weeks, then Taxol x4 every 2 weeks Oct 2009- January 2010

Methotrexate (Folex, Mexate, Amethopterin) Chemotherapy Chemotherapies

What Methotrexate (Folex, Mexate, Amethopterin) Chemotherapy Cancer Survivors said about their Chemotherapies.

RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
Doxorubicin Cisplation Methotrexate Ifosfomide Etoposide
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.
I'm not going to tell you anything you would be shocked by here. I'm bald - and have been for two years. 98% of anything I eat upsets my stomach in some way. I wish I could sleep all the time, but I have a 5 year old little girl, a full time job and a husband so that is possible. Other than that, Cancer sucks, Chemo sucks worse, but we will all get through it, right?
I've taken chemo for 3 years now, many kinds of chemo, my "favorite" is Xeloda.
I don't remember all of them, but cytotoxin was one of them
I had 5fu, Methotrexate and Cytoxan. I had the 5fu and Methotrexate in an IV push the first and second Tuesday of each month. The third week I took Cytoxan pills and rested the fouth week. This was for a total of six months.
finished with induction therapy, now gonna begin with consolidation.
i will tell you
im doing an eight mounth treatment plan. every 21 days im back in the hospital for all the chemo they can give me.
Hyper CVAD Protocol 6/1/2015-2/7/2016 including spinal chemo X 4
November 16 Started cycle of RCHOP followed by methotrexate for CNS 10 days later and RCHOP 11 days after that. finished this in April 17 no major side effects nutropenia, numbness in fingers which stopped with medication, constipation. Returned to wrk in May 2017
6 Months starting Dec 2, 2011. 5 hours every other week. 5-FU, Oxaliplatin and leucovorin. Will bring home 5-Fu in a bag for the weekend will run through port and bag removed on Mondays
An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010: Vincristine PEG-aspariginase Doxorubicin Methotrexate Cytoxan Cytarabine 6-MP 6-TG Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain.
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
through March 2008 CMF cocktail, 8 rounds. never lost my hair, nausea got pretty bad... three rounds in, I became a petulant child and announced I was NOT going back. A nurse family member asked my mom what kind of anti nausea meds I was given (don't remember) and told my mom to relay the following: "tell her to get pot, the pills suck" .... My resourceful husband came home with a surprise shortly after round 3. It PISSES me off that I had to break the law because the fact is, at least for me, IT WORKED and it was AMAZING.....
lots of dates, spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints. mercaptiprine, is every day, that just gives her a weird rash. methotrexate makes her sleepy
I recieved Chemo in 2004-2006 with my first diagnosis of ALL. I relasped in June 2011 and started chemo on June 24-July 18. I will continue chemo until my Bone Marrow Transplant.
R Chop 6 cycles
August 3, 2015 - September 23, 2015 - High dose Methoreaxate and Rituximab September 30 - February 2016 - R+EPOC
methotrexate injections every other day via injection
6 treatments from March 3, 1994 to June 29, 1994. Started with Taxol Study. Received high-dose Cytoxan 3980 mg and Adriamycin 74.6 mg for 2 cycles. Except for the 1st and the last, blood transfusions were required after every treatment due to low hemoglobin. I developed a blood clot in my right arm shortly after the first blood transfusion in April and had to be hospitalized and put on coumadin for 3 months. Had to be taken off Taxol Study because I could not take high-dose Cytoxan/Adriamycin and Coumadin. I was given Cytoxan 995 mg, 5-FU 995 mg and Adriamycin 99.5 mg for the next 4 treatments. The Adriamycin damaged my heart muscle. Other side effects were nausea, some vomiting, sores in mouth, diarrhea, heartburn, fatigue and complete loss of all hair. 6 treatments from January 20, 2006, to June 2, 2006. I was given a CMF combination of 1200 mg of Cytoxan (Cyclophosphamide), 80 mg of Methotrexate and 1200 mg of Fluorouracil (5-FU). This bout with chemo was much easier than the first. I also had a blood clot in my lung in February, 2006, and was hospitalized for 7 days and put on coumadin for 18 months. Other side effects were minor nausea, fatigue, sore mouth, minor diarrhea and only thinning of my hair. I don't know which one but one of the chemo drugs damaged my right eye and I am still having problems with it. The worst thing to happen was the death of my husband and my boston terrier dog in May during this bout of chemo.
Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
Round one: 7 days of continuous chemo. Round two: 5 days of 2 times a day chemo Round three: 2 days of 2 times a day chemo Followed by 3 days of 2 times a day total body radiation.
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.

Fluorouracil (5-FU) Chemotherapy Chemotherapies

What Fluorouracil (5-FU) Chemotherapy Cancer Survivors said about their Chemotherapies.

Neuropathy in toes arms diarreha constitpation pain when going. I have fissures now because of not being able to go which is causing bleeding and immense pain even hours after. Pain in jaw when I first eat. heart palpitations. No more mouth sores or fevers since I have been taking vitamins b and magnesium with zinc. Numbness in both hands and feet and cramping
Folfox mix of chemotherapy -nausea, vomiting, diahhrea , nil taste I food, shaking, mouth ulcers, dry skin
1st round was delayed because they could not find a vein, so I had to have a pick line surgically put in for the full time and treatment was delayed a full week as a result. I developed a very bad rash from my chest up a few days later. Overall feeling of unwell. Felt sick when I ate. I ended up in the hospital following second round of chemo. It effected my blood badly and I had to have blood and platelet transfusions and 5 days of intravenous full spectrum antibiotics. I lost about 80% of my hair, but very late compared to most people. It got especially bad for about 4 months after my last chemo.
1.Carnoplatin/Taxol...March 30 2016 & continued for 18 straight weeks plus 4.5 blood transfusions 2.Folfox...May 2017 4 infusions then stopped because it wasn't working...
Taste buds, no desire to eat and big weight loss.
11-16-09
Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes. I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite. I started Tykerb in Feb 2009. I will continue with Herceptin for at least 7 more months after surgery.
1/4/17-2/15/18
Mytomycin and 5-FU first weeks then 5th week
1st round 23-27 March 2015 - minimal physical side effects, more pyscologial with PICC line fear and awareness of carrying chemo bottle around for a week. 2nd round 20th -24th April - felt more at ease with the bottle and had no real side effects until the end of the week, then developed terrible mouth sores around back teeth - which I didn't first time round.
5fu and Mitomycin two rounds Oct-Nov 2018. Did not tolerate 5fu. Caused a Type 2 heart attack. Each round of chemo required heart unit stays/
PICC line put in 10/25/2010 intital large dose of Mitomycin, weekly infusion of FU5, disconnected every Friday, then started back on Monday 5 1/2 weeks. By 3rd week, severe stomach pains(lasted 1 week) diarrhea, no appetite, weakness , because of blood count did not take scheduled last dose of Mitomycin
Mitomycin and 5-FU. 75% of standard Mito dose on 1/4 due to elevated creatinine levels. Standard 5-FU dose over 5 days through chest portacath.
Chemo started 3/14 - 3/19. Nausea lingered under surface the whole time. If I missed the anti nausea pill by 1/2 hour it’d take all day to catch back up. Mouth sores started on day 4. I caught a cold that stared on day 2 with a sore throat, full sinuses, lungs etc. the mouth sores progressed quickly and caused the sore throat to become excruciating. I’m still struggling to eat and get enough fluids. I was given iv fluids 2 days after the pump was taken off. And I’m currently trying to not have to go there again. Mouth sores finally abated after 2+ weeks. Unfortunately food still sounds awful, nothing tastes good and I start feeling bad after every time I eat. The blister in my bum apparently is from the chemo not the radiation. Great news is my doc is cutting the dose for 2nd round by 25% because I’m a slow metabolizer. Great. I hope it helps!with round 2 (which starts in 10 days -ugh) I’ve also started experiencing hypersensitivity on my upper left leg, and occasionally on my feet and hands. Started taking B6 to help. Hair started falling out 2 weeks after chemo- getting it cut short end of week 3.
Chemotherapy was administered through a PICC for 5 weeks during radiation. No major side effects other then extreme exhaustion. I took the chemo nurse advise and began taking anti-nausea pills before I felt any nausea so I was able to continue to work part time. I still believe I am still suffering from some lingering effects of the chemo as I have not been able to build up my stamina.
I started Chemo on December 19,2008. I had a port put in to administer the treatment. For my lifestyle the port makes most sence. Have the pump hooked up was a bit invastive, but I have great nurses who have a trementious amount to compassion and skill
Started chemo 1/4/2016
5FY and cisplatin
dehydration, some mouth sores, not bad, lost some hair. intestinal pain, tiredness, low white blood cell count and platelets, hospitalized for 11 days because I didn't want to eat and felt like I would get too weak to take care of myself. They diagnosed me with dehydration and said the treatments had caused it. Started Aug. 26 with one injection of mitomycin, and carried drip bag for four days of Flourouracil(5-FU), repeated Sept. 24th, 2013.
Nexavar for 6 months. Infusion therapy started 2 weeks ago and ongoing bi-weekly.
First treatment was June 8th 7 hours between the other meds olus the chemo..Cisplatin and Gemzar.. Felt ok the day after but then started feeling very sick, achy, headache, ringing in ears, coulnt eat, weak, dizzy,tired,shaky all over I only felt well enough to go to the doctor on the 7th to have my blood drawn..saw dr and he said he would up my steroids next time and that should help second treatment was on the 8th, Just the gemzar.. Really tired and achy. Dizzy and weak. Had my shot of Lewnasta on Monday. Still fell tired and bone pain
Chemotherapy is bi weekly on fridays! Side effects include Nausea, fatigue, and weakness, hair thinning
2 weeks of chemo, the first week and last week of the 6 weeks. I had bad mouth sores both times. My hair got very thin.
inpatient 5 days 23 hrs a day twice
Thrush, shingles, edema, loss of hair in clumps, loss of appetite, loss of taste, tired, vaginitis, vomiting controlled w/meds, pale and dry skin, lack of concentration.

Epirubicin Chemotherapy Chemotherapies

What Epirubicin Chemotherapy Cancer Survivors said about their Chemotherapies.

February to May 2014
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.
Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol
Cisplatin, Epirubicin, Capecitabine (Xeloda) #1 June 12, 2017, #2 July 4, 2017 Nausea, Dry mouth, Tingly fingers, blood clot in spleen, hair loss
September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months.
Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.) after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
Chop therapy for 7 months
3/15/14 Began 10 session clinical trial at Memorial Sloan Kettering. Chemo iv (cisplatin and epirubicin + trial drug/placebo) every 3 weeks. 2000mg Xeloda pills daily. IV chemo is followed by two days of dextametazone (steroid pills) which give me a boost. Hair loss, dry hands - currently trying to prevent them from cracking, some fatigue. Trying to avoid pain meds because that seems to be the cause of constipation/discomfort.
Protocol: FEC-T (4 months/every 3 weeks) FEC-T :Epirubicin/Fluorouracil/Cyclophosphamide cycles 1-3, then add Docetaxel for cycles 4-6 Finished chemo November 24/2010
R-Chop, eight sessions one every 3 weeks. Side effects: nausea, loss of appetite, some muscle aches, hair loss, effected my eye sight - had to wear eyeglasses since the 4th chemo.
May 23rd 2007 started 6 sessions 3 x F.E.C 3 X Taxotere Ulcers in my mouth, sickness, diarrhoea, thrush, joint pain, loss of finger and toe nails, peeling skin on hands and feet,
FEC and taxotere. Three treatments of each starting 2/11
Starting on 18th April, 2011
lots of dates, spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints. mercaptiprine, is every day, that just gives her a weird rash. methotrexate makes her sleepy
Oral Chemo (Xeloda) - 7/07 to current weight gain, tenderness in hands and feet, fatigue, irritability, feeling full; dehydration
Blood work and chest xray September 11, 2007 Bone scan September 17, 2007 Port installed in right chest area September 18, 2007. MUGA scan September 19, 2007 First Chemo treatment September 20, 2007 Neulasta shot September 21, 2007 Headaches and blurred vision Hospitalized September 25, 2007 Found blood clot in the jugular vein Started on lovenox and warfarin Hair fell out in huge clumps 2nd week after first chemo Second Chemo treatment October 11, 2007 Tiredness, constipation, nausea Changed nausea prescriptions twice Third Chemo treatment November 1, 2007 Potassium too low-put on prescription supplement Nose bleeds and bruising from warfarin, not chemo 2nd MUGA scan scheduled for November 26,2007 4th Chemo scheduled for November 29th
Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes. I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite. I started Tykerb in Feb 2009. I will continue with Herceptin for at least 7 more months after surgery.
preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU.
Sep-feb--The oncologist said it would be " hard going"--that would be one word for it.
1st and 4th week of Radiotherapy treatment, chemotherapy was also performed. 24 x 5 delivery of 5FU with a Cisplatin infusion on second day of each of these weeks. Side effects included a 'Chemo crash' both weeks I had the treatment - second week worse than the first (required blood transfusions).
Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse. Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo.
sickness, weakness, no appetite, lived off cereal, and jello for a week, no taste,increase in smelling sense was intense 12/24/2005 was the first treatment.
3-8-2013 To 11-5-13 chemo. I be off balance, I throw up, lost hair, bones ache, hot flashes all side effects.
took Docetaxol (Taxotere) after FEC - finished chemo July 22

Gemcitabine (Gemzar) Chemotherapy Chemotherapies

What Gemcitabine (Gemzar) Chemotherapy Cancer Survivors said about their Chemotherapies.

Started July 12. Two weeks on, 1 week off. Plan is 6 cycles. Side Effects - Can’t sleep (steroid pretreatment). Terrible constipation (Nausea meds), Very tired, mild fever, irritability on Day 2-3 post chemo.
About to start chemotherapy
4 rounds (8 sessions) as of 7/13/19; serious weight loss and fatigue
given up on dates the first time on chemo was 7 months and this time has been 9 months
June 2015 until Jan 2016 Second course started Feb 26, 2018 ending May 7 2018
Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol
Gemzar, Taxotere and Xeloda
Many different times beginning approx 1 year after spleen removal
Initially 2 rounds of Folfirinox, that increased liver enzymes and CA-19-9
5fu from 11/8/16 until 1/5/17. Five hour infusion then wore a pump home for 48 hours. Was supposed to do 8 cycles but only got to 4 when my white cell count dropped and we had to stop. The side effects of this treatment are horrendous. Pain, nausea/vomiting, fatigue, neuropathy in hands and feet, hair loss, cold sensitivity, shaky hands and lips, constipation, night sweats, mouth sores.
6/2011 tiredness, nausea, dizziness
<b>February 2009:</b> CA125 level was around 3500. She began treatment with Taxol/Carbo with Avastin. Within two weeks, she lost all of her gorgeous red hair. Energy level dropped significantly. She continued having "maintenance" chemo. <b>June 2009:</b> CA125 dropped to 32, and then to 16 later that month. Oncologist decided to stop chemo- as there was no sign of cancer! <b>March 2010:</b> Having chest pain/shortness of breath. CT scan showed fluid in her lungs. Testing after thoracentesis revealed cancerous cells in the fluid. CA125 was back up to 300. It is now referred to as "RECURRENT CANCER" She began chemo again: Cisplatin and Gemzar. Cisplatin was causing tinnitus. Oncologist decided to discontinue to avoid permanent hearing damage. The Gemzar would usually burn during infusion. Side effects: headaches, intense nausea and often uncontrollable vomiting. Drastic decrease in appetite (and weight: about 70lbs) Last time it was checked, her CA12 was hovering around 86. I'm guessing it's currently off the charts.
2013-2014: 1st chemo; Taxol, no help. 2nd chemo:Doxil, no help. 3rd and current chemo: Gemzar & Cisplatin. I also get Zometa injection every 4 weeks. I started Chemo on June 19, 2008 and as of today 7/7/08 I have only had 1 treatment. My second treatment is this week on Wednesday, July 9, 2008. I will have 6 chemo treatments, 3 weeks apart. The worst side effect I had was from the Nulasta shot I had the day after chemo. The bone and body aches really kicked my butt. I was fortunate and did not experience any nausea. On day 14 I started loosing my hair. It was coming out by the handfuls!! By day 16 I couldn't stand it anymore so I buzzed it all off.
Gemzar June, 2014. Nausea, weakness, fever, headache
Started Chemo - Gemzar & Xeloda - in November 2016. 6 cycles planned. Side effects pretty mild - some nausea and tiredness
On my third treatment and then will have a week off
1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
Abraxane and Genzar
Extreme fatigue, delerium
mid july to November 2015 Gemzar eight treatments, xeloda for 28 days on radiation days. Started Folfox regimen 09/20/2017 for recurrence.
Folfox mix of chemotherapy -nausea, vomiting, diahhrea , nil taste I food, shaking, mouth ulcers, dry skin
Chop therapy for 7 months
I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018

Irinotecan (Campto) Chemotherapy Chemotherapies

What Irinotecan (Campto) Chemotherapy Cancer Survivors said about their Chemotherapies.

March 22(3 types of chemo) i feel it lessened his quality of life, but for my dad he needed to fight back!!!
11/06-oxaliplain,xeloda....tingling and cold sensitivity in hands and feet, fatigue 11/07-irinotecan, avastin, 5FU, diahrrea, fatigue, burning and cramping in abdomen started erbitux january 2010, adding irinotecan this week, sept 20, 2010...post-note that irinotecan caused so much diahrrhea I became too hydrated and wound up in hospital. i had a blockage too, but just sayin'! ;)
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
Mar 4 _ Sept 15 2015(Folfirinox)Nausea, weakness, vomiting, low potassium, low platelets (despair)
Chop therapy for 7 months
9/07 for 5 months every 2-3 weeks.Fulfox, Five FU, evastin, oxalyplatin -Side affects were mild and temporary such has hair loss (complete on first round) mild neuropathy, Hand and food syndrome. Slight diarrhea but NO nasuea. Loss of appetite, loss of taste. 06/08 Second round of chemo (Irinotecan) more nausea but virtually no diarrhea. neuropathy has returned slightly. I can still taste things after 2 rounds of chemo this time.
2 cycles of 5-FU, FOLFOX for tumor, R-CHOP for B-Cell and now 6 cycles of FOL-FIRI
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
Sept. 2010 to Nov. 2010 - Oxcaliplatin, 5FU, Avastin. Oxc. not working changed to Irinotecan/Avastin. till April 2011. Tumor growth in liver and lymphnodes. Itinotean/Erbitux from June 2011 till present.
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007 Nueropathy, memory loss, balance issues, joint and muscle pain
Folfirinox Jan 2013 - Feb 2013, switched to Abraxane and Gemcitabine March 2013-current
started chemo on 12/11/07 clinical trial with avastin,erbitux,oxaliplatin,lecovorin,5FU..now irenotican
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
Nine rounds of Folfirinox treatment before surgery and more after.
Began chemo in July of '09 with camptosar, leucovrin, and 5-fu. this is over a 46 hour period. In January '10, they added avastin and zometa to the regimin and is ongoing.
Flu like symptoms and fatigue.
Bi-weekly chemo. Energy levels vary. Diarrhea, one day only usually. Keep hydrated.
6 weeks Flourcil (pills) and radiation Oct - Nov 2015 10 sessions IV chemo (avastin, oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016 Hands and feet numness Little nausea Fingernails thinned Balding
Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.) after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash
Too many to mention-16 months in total(6,6,4) Every drug they have for colon cancer.
Alt Folfiri/Folfox 2010/Feb through 2010/June Folfiri/Erbitux started 2011/March Changed to Folfox/Avastin 2011/Oct Clinical trials 2012/Sept
5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared. Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half.
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.

Vinorelbine (Navelbine) Chemotherapy Chemotherapies

What Vinorelbine (Navelbine) Chemotherapy Cancer Survivors said about their Chemotherapies.

I begin chemotherapy on the April 8th. 4 rounds of 3 weeks each of Vinorelbine and Carboplatin. (Originally Cistoplatin but the doctor changed it cuz my ears were ringing)Worst side effects are feeling like lead and/or rubber, forgetfulness, weight gain, insomnia and aching bones, muscle and skin.
2000 - Chemotherapy
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
Chop therapy for 7 months
I've taken chemo for 3 years now, many kinds of chemo, my "favorite" is Xeloda.
Taxotere Aug 2008 - Dec 2008 (3-weekly) Herceptin Aug 2008 - Aug 2009 and Dec 2009 - March 2011 (3-weekly) Vinorelbine Dec 2009- May 2010 (for regional recurrence to Internal Mammary nodes - not involved the first time round) Capecitabine (Xeloda)April 2011 - October 2011(for Liver metastasis) Adriamycin - December 2011 - February 2012 Taxol March 2012
1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
Multiple regimens
Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
ABVD- nausea, fatigue, wooziness, thinning hair ICE- nausea, fatigue, wooziness, total hair loss, bleeding gums and mouth sores GND- some fatigue, mouth sores
Six rounds in 2008 and 12 rounds in 2015 got through these not too bad in the big scheme of things.

Cisplatin (Platinol, Platinol-AQ) Chemotherapy Chemotherapies

What Cisplatin (Platinol, Platinol-AQ) Chemotherapy Cancer Survivors said about their Chemotherapies.

Cisplatin, 5 treatments. (6 chemo treatments were ordered but a low WBC kept me form having the 6th one) Starting December 2015, ending January 2016. Side effects: Sleeplessness, weakness, nausea, hair loss and exhaustion.
Oct 07 to Dec 07 - Cisplatin chemo 1x a week with radiation;. Constant terrible nausea, very sensitive to tastes and smells. Ate only carbs, couldn't even stand the smell of my dog! Everything nauseated me. Aug 08 to Dec 08 - Carboplatin and Paclitaxel every 3 weeks x 6 doses. Hair gone by 2nd treatment, fluid overload on chemo days due to drugs being hard on kidneys - had to flush. About 2-3 days post chemo, horrible bone pain, numbness and tingling in hands and feet (peripheral neuropathy) and constipation that almost hospitalized me. Would last for a week or so and then settle down. Horrible fatigue, felt like lead. My hair started coming back really quickly after treatment stopped,but the neuropathy lasted almost a year, fatigue continues to be a problem. UPDATE Feb/10: Going back for another 6 rounds of the not so pretty poison. Carbo/Taxol once again. Gonna miss my hair...oh yeah, and the ability to feel human!
See the Chemo Dr tomorrow, too. Don't know if I'm going to do it.
First treatment was June 8th 7 hours between the other meds olus the chemo..Cisplatin and Gemzar.. Felt ok the day after but then started feeling very sick, achy, headache, ringing in ears, coulnt eat, weak, dizzy,tired,shaky all over I only felt well enough to go to the doctor on the 7th to have my blood drawn..saw dr and he said he would up my steroids next time and that should help second treatment was on the 8th, Just the gemzar.. Really tired and achy. Dizzy and weak. Had my shot of Lewnasta on Monday. Still fell tired and bone pain
1st one today 26-April-2010 Slight nausea, headache and heart burn so far so good 2 more to go 3 weeks apart. 2nd was uneventful opted for the 3rd one while throwing up in the sink in the corner of my Rad-Oncs offce. Mucus was triggering my gag reflex something fierce by then, was going to hospital getting hydrated 1 or 2 full bags to lessen mucus knew how important that third dose was and made it to the end was glad I did. Didn't have many side effects from the chemo had tinnitus going in so when they asked I said i didn't care I have it already go for it. Was no cake walk and have talked to many others who have had tons of side effects so I guess I was lucky
I have had two rounds of chemo, and the next will take place on Jan 31, 2012. After that, three more rounds!
Tarceva (EGFR+)12/12-6/14 fatigue, mouth sores, toenail issues, rash Afatanib 6/14-12/14 fatigue, diarrhea, toenail problems Didn't work. Carbo/Taxol 12/14-4/15 lost hair, neuropathy, nausea, fatigue, dizziness, neutropenia. Alimta 4/15-7/15 No SE Didn't work, though. Gemzar/cisplatin 11/15-12/15 Neutropenia, counts bottomed out Iressa 12/15 only worked for a couple of weeks before progression resumed hard and fast Tagrisso (T790M+) 1/16- current
My cocktail included Fluorouracil and Cisplatin.
It seems that my side effects (nausea, tiredness) start a couple days after treatment. Emend and Zofran seem to be helping.
Chemist Monday's only decadron steroids potassium
2013-2014: 1st chemo; Taxol, no help. 2nd chemo:Doxil, no help. 3rd and current chemo: Gemzar & Cisplatin. I also get Zometa injection every 4 weeks. I started Chemo on June 19, 2008 and as of today 7/7/08 I have only had 1 treatment. My second treatment is this week on Wednesday, July 9, 2008. I will have 6 chemo treatments, 3 weeks apart. The worst side effect I had was from the Nulasta shot I had the day after chemo. The bone and body aches really kicked my butt. I was fortunate and did not experience any nausea. On day 14 I started loosing my hair. It was coming out by the handfuls!! By day 16 I couldn't stand it anymore so I buzzed it all off.
Oct 8th- January 13th, 2010 Lost Hair after 21 days. Fatigue, dry mouth, muscle cramps that were very painful after 1st treatment. terrible rash on my head and neck the whole time I was taking chemo.
On my second round of 2 sessions each which are a week apart
January 6 2015, February 18, 2015 nauseous fatigue
Set for July 6 and July 21
2 treatments of Mitomyicin and 2 4-day (24 hour pump) of 5-FU Started 8/31/2010
Chemotherapy Cisplatin. Vomiting started the first day of chemo and stopped two weeks after treatment complete (9 weeks of vomiting & vomiting).
5/21/12 first week via port 7/2/12 2nd week via port Every third week 11/26/12 to 3/11/13, 5 hr drip 4/7/15 every 2 weeks
October 18 th and every 3 weeks for 4 treatments. Nausea and joint cramping, some neuropathy.
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)
3 treatments. Cisplatin at first but had terrible digestive side effects so used erbitux for last 2 treatments
3 cycles of: Cisplatin, Bleomycin, and Etopiside which caused nausea, fatigue, by second cycle I could no longer naturally fall asleep, escalated pulse, anxiety, depression, dry mouth and skin which now I have scratch marks on my back, vomiting, got a finger infection so wear rubber gloves when counts are low and a mask, slight ringing in ears, raw esophogus, heartburn and diarrhea.
Cisplatin, 3 treatments , hair thinned, loss of hearing, nausia, Tinitus
Chemo was my biggest fear. Hearing so bad horror stories I was besid myself with fear. I actually have 1 more left to go and no problems except for a mild nausea about day 3 and thats it. Never really got too tired and never lost my hair. It really was like being pregnant as far physical problems with tired and nausea. It was a low dose cisplatin for 5 weeks.
She has had 5 rounds of platinum based triad, one round of Alimpta (sp?), now on Opdivo, has had 3 rounds, for the fourth the week of 4/10/16.

Carboplatin (Paraplatin) Chemotherapy Chemotherapies

What Carboplatin (Paraplatin) Chemotherapy Cancer Survivors said about their Chemotherapies.

ABVD started in December 2011-May 2012. Hair loss, nauscia, weakness. ICE July 2012-August 2012 Hair loss, nausea, weakness
I started chemo on Dec 3, 2012. I need to complete 6 treatments of Carbo and Taxol. My treatements or given over a period of 3 weeks. The first week I receive the full carbo dose and 1/3 of the taxol. The next two weeks I recieve the remaining taxol. I am having trouble keeping my WBC up with the weekly treatments. I had to have Neupogen shots to help give them a boost.
May 2015, 6 weeks. Hair loss, weight loss, nausea
January, 2014 - May, 2014
Carboplatin and Taxol started June 10, 2016 December 2015-April 2016 Cisplatin and Gemzar we only switched because he had 6 rounds of this. It did keep the cancer from growing.
3-8-2013 To 11-5-13 chemo. I be off balance, I throw up, lost hair, bones ache, hot flashes all side effects.
4/2009 Abraxane and Carboplatin 9/2009 Taxol and Avastin had an allergic reaction at the end of the run of Carboplatin Avastin caused my blood pressure to increase sharply, so it was discontinued
CarboPlatin & taxol w/ neuplasta at 3 wk intervals from Aug to Oct Severe constant leg pains, neuropathy in feet and hands, high heart rate. Unable to stand for more than 10 minutes, stumbling, dropping things regularly Treatment changing to CarboPlatin & doxil w/ neuplasta.
Taxol and carboplatin. 6 weekly infusions.
3 Cycles of Chemo - Cyclophosphamide, Vincristine, Cisplatin - Dec to Feb. (3 weeks apart) - Foot Drops and trips and falls 3 Cycles of Intensive Chemo with Autologous Stem Cell Transplant - Carboplatin & Thiotepa - Feb to May (4 weeks apart) - Hearing Damage
6 rounds of chemo; every three weeks March - June 2014; few side effects; some joint and bone pain for a couple of days after each treatment; some neuropathy in my feet
There were eight cycles of chemotherapy: 4 before surgery and after surgery 4. My body responded well to chemotherapy and tumor marker (CA 125) decreased from 690 for 4.
Beginning in April I had three treatments with Taxol and carbo platinum as well as Avastin. Joint pain was rough but gone after a week or so. I've mostly been easily tired out. My CA125 went up so I had another PETCT that showed an increase in the cancer I am now getting Doxil every four weeks and Avastin every two weeks. Side effects have been relatively mild - just tired a lot.
VP-16 and Carboplatin with first cycle began in April 2011 and finished in Sept. 2011 after 8 cycles - usual side effects Hair-Loss Fatigue Metal Taste Mouth Sores Ongoing White Blood Count Issues Ongoing Red Blood Count Issue Multiple Blood Transfusions
Chemo consisted of 6 total treatments - 1 treatment every 21 days of a variety of steroids, anti-nausia meds and anti allergy meds along with 300mg of Taxal & 580mg of Carboplatin. Treatments started on Oct 2, 2014 and then every 21 days from there with the exception of late Dec. which was 25 days because the 21st day fell on Christmas day. Last Treatment was Jan. 20, 2015.
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)
1.Carnoplatin/Taxol...March 30 2016 & continued for 18 straight weeks plus 4.5 blood transfusions 2.Folfox...May 2017 4 infusions then stopped because it wasn't working...
Carboplatin and Taxol, 8/11/2011. Sun-sensitive day after infusion (doesn't that sound like something you'd pay extra for at a spa?), then joint pain, peripheral neuropathy, fatigue on days three and four following chemo. Get better pain meds for next round!
Combined carboplatin and taxol, both administered systemically by IV started August 10, 2011, with last cycle administered November 23, 2011. Side effects included: nausea that was only gotten under control after the second administration using about 5 drugs; intense fatigue; muscle and joint pains that were reduced with tylenol and later greatly reduced with gabopentin; intense neuropathy in hands and feet, but even lips and chin until the gabopentin took the edge off that, too. Neuropathy still intense in first week of every cycle. Other side effects included intense fatigue, weakness, vision problems on two occasions (blindness in one eye when reading lying on side), severe constipation, and cognitive effects (short term memory dysfunction, inability to solve puzzles, inability to multitask or withstand multiple stimuli at once). There's talk of giving me a PARP-inhibitor for maintenance therapy in 2012. Constipation for 9 months! No, wait. Make that FOREVER! Seriously. Til my dying day.
6 treatments chemotherapy (carbo/placing/Avastin
chemo fog.
7/15/13 1st round of chemo with Mitomycin and 96 hr (5 day) pump of 5-FU. Nausea, mouth sores, lack of appetite, weight loss. 8/12/13 2nd round of chemo ... same medication and side effects as 1st. Starting 7/18/14 Cisplatin, 5-FU. Every 3 weeks. Nausea, mouth sores 9/22 Carboplatin, 5-FU Every 3 weeks. Nausea, mouth changes 6/25/15 Carboplatin, Taxol every 3 weeks. Fatigue 7/15/15 Carboplatin, Taxol, Vectibix every 3 wks. Fatigue, Nausea, Dry Skin, Acne-like blemishes
December 6th, 2010 was first Chemo treatment... my mother is doing good..not neauseous, joint and leg pain, Hair started to hurt two weeks after first chemo treatment. Still playing golf...not eating much... get tired easily...gets cold easy
Carboplatin, taxol, avastin, and a PARP inhibitor for 6 rounds, then remission for about 7 months. Then more carboplatin and taxol for 3 more treatments until I became resistant, then onto the MEK/Milo trial. Failed that after 2 months, now looking into immunotherapy
one treatment . switching to Afatinib

Doxorubicin, Leomycin. Inblastine, Acarbazine (ABVD) Chemotherapy Chemotherapies

What Doxorubicin, Leomycin. Inblastine, Acarbazine (ABVD) Chemotherapy Cancer Survivors said about their Chemotherapies.

ABVD Six months
3/2012 Adriamycin and dacarbazine 6 cycles 12/2012- 10/2013 votrient 600mg every day. 10/2013 - present gem/tax
Several months of CHOP+Bleo. Got very bloated from Prednazone. Total body baldness, of course. My skin actually got quite beautiful and baby smooth. Toenails fell off. Heart and lung damage from Bleo. My mouth and throat were scarred by sores and from vomiting. Kidneys have been very vulnerable ever since. (Just want to add, I HAVE NO COMPLAINTS ABOUT ANY OF THIS. I lived! It was worth it.)
Got temporary remission during some 16 months of various drugs, but no lasting remission
started ABVD March 2011
R-CHOP 6
Protocol #1: First of 3-21 day cycles of 5-FU, Cisplatin and Docetaxel started 10/7/13 - around the 2 or 3 week started losing hair and experiencing nausea, fatigue, weight loss, etc; Protocol #2: Eribtux and concurrent radiation for 6 weeks started ~12/10/13 - neuropathy in feetbegan a few months after treatment stopped and is still ongoing.
Getting chemo doesn't hurt. I don't feel the chemo being injected, and I feel fine for 3 days after, minus the fatigue. Nausea, headaches, body aches, upset stomach are my most common side effects when my medications are done.
R-CHOP; chemo as listed above plus Rituximab and Prednisone. June x1; July x2; August x1; September x2. 6 total rounds of R-CHOP. Also, had an injection of Neulasta the day after each chemo round that helped me build-up white blood cell counts and it worked well. Fortunately, they gave me a 'cocktail' of Benadryl etc, so I never got sick - thank God. Took nausea pills. Loss of appetite for days as everything tasted like you ate old pennies or nickels. The first two times that I had the Neulasta white blood cell shots I had bone pain within a week that lasted only a day or two and went away. Chemo also gave me an irriegular heartbeat, so a beta-blocker fixed that. Chemo 1-4 weren't all that bad, just long. Chemo 5 & 6 felt like I was in a fight in the middle of the night - but I was able to recover quickly. The Prednisone pills made me nasty, which I usually am not.
hair loss... weight gain... nerve tingling... bad taste... feet pain... but no vomiting... so not all bad...
Induction round 12/22/14-1/19-15: nausea, vomiting, diarrhea, fatigue Consolidation February '15, Consolidation March '15, Consolidation April '15
ABVD chemotherapy, treatment every two weeks for six months (6 cycles). Extreme nausea and vomiting (eventually brought under control by drugs), fatigue and breathlessness, stomach pain and bloating, complete loss of hair, tooth pain, mouth sores, extreme salivary gland pain, loss of some finger and toe nails, mild nose bleeds, mild constipation.
CarboPlatin & taxol w/ neuplasta at 3 wk intervals from Aug to Oct Severe constant leg pains, neuropathy in feet and hands, high heart rate. Unable to stand for more than 10 minutes, stumbling, dropping things regularly Treatment changing to CarboPlatin & doxil w/ neuplasta.
11-19 chemo pellets not sure of the name, nausea,
first round 09/08/11-ABVD-headache, swollen tongue, blisters on tongue, vomitting, nausea, bone aches.
Jan 22, 2015 R Chop was the first. Mostly tired some nauseous spells
Nausea, lightheaded, tired. First treatment was 8-13-15.
Started ABVD November 20th~ a little nauseous, headaches, and a little tired..
6 months of bs and stem cell transplant was life changing made me feel completley helpless
1st treatment, August 23rd, 2011...which is tomorrow, so I don't know what side effects I'm going to have.
3/20/19 first cycle R-Chop
Abvd every other week.
finished with induction therapy, now gonna begin with consolidation.
First R-CHOP on 12/28/2015 which was from 7:00am to 6:00pm. Had a reaction to the Rituxan of red hives on face, so they had to stop treatment for a half hour and treat reaction before continuing with the Chemo. Feel tired and cold. After the first chemo treatment, the next 3 had almost no side effects.
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.

Tarceva (Erlotinib) Chemotherapy Chemotherapies

What Tarceva (Erlotinib) Chemotherapy Cancer Survivors said about their Chemotherapies.

January-April 2009
3-8-2013 To 11-5-13 chemo. I be off balance, I throw up, lost hair, bones ache, hot flashes all side effects.
Fatigue, acne, diarrhea, numbness and pain in fingers and feet, no appetite, foggy-brained, rheumatism, sensitive to sunlight, no taste, fungus in mouth and lung, partial loss of hair
Avastin-2008 and 2011, Cisplastin-2009 and 2011, and Tarceva-2011.
I've been in chemo since june 2011. I was taking 3 different kinds every three weeks but now have gone to just one kind. the initial treatments caused heartburn, hair loss, vision loss, hearing loss, skin discoloration, skin burns, nausea and vomiting, dizzyness, hot flashes, chemo induced asthma, chemo induced menopause, bone pain, I was not able to taste foods that were not sweet, there are many more but I feel like I"m whining...lol
One a day pill forever (took 150 mg for 2 years). Down to 100 mg due to vertigo, fatigue. Other side effects, slow/non hair growth, rash, dry skin, dry mouth
daily intake of a chemo tablet
December 2004 - Present off and on. On Avastin and Tarceva currently, but stopping to start a new chemo.

Xeloda Chemotherapy Chemotherapies

What Xeloda Chemotherapy Cancer Survivors said about their Chemotherapies.

Capecitabine, Tablet form chemotherapy, two tablets a day, three week on, one week off. Side Effects, Sickness, Fatigue, Blotchy skin.
4/4/2011 - FOLFOX6 with Avastin. Some fatigue, peripheral neuropathy, cold sensitivity. Discontinued after 3 rounds 7/1/2011 - Switched to Xeloda. Stopped first round after 9 days due to much bowel discomfort.
Mar 4 _ Sept 15 2015(Folfirinox)Nausea, weakness, vomiting, low potassium, low platelets (despair)
Pill Chemo - Xeloda 500 mg. 4 pills AM 3 in PM. Zofran for Nausea. 2 IV push of Mitomycin during the 1st & last radiation treatments. MItomycin IV side effects - Metallic taste in everything lasted 24 hours Xelolda - Annoying tingling in hands, legs & feet which went away week 1. Nausea waves Stomach pains in lower abdomen Constipation
6 weeks Flourcil (pills) and radiation Oct - Nov 2015 10 sessions IV chemo (avastin, oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016 Hands and feet numness Little nausea Fingernails thinned Balding
I felt like my body was vibrating during the oral chemotherapy. I was very fortunate in that my side effects were minimal.
Taking pills(xeloda) 2 x day only on radiation days. Mitomycin IV 1st day and 28th day of radiation treatment Some nausea/Anti nausea pills help
6 weeks 3000mg xeoda pre surgery. 4 month 5000mg xelota post surgery. Oxi recommended. Tried but side effects too extreme. No hair loss. Tired and weak. Low energy with uncontrolled diarrhea.
I had 2 chemotherapy drugs. Eloxatin (oxaliplatin) which was given through my port at my Oncologist's office. I also took Xeloda which is a chemotherapy drug (pills) taken at home. I also had a wonderful Oncologist who worked well with my surgeon.
May 2010-July 2010: 24 hour, continuous 5FU infusion, Mondays-Fridays November 2010-January 2011 :Folfox December 2011-April 2012
Mitomicyn push on day 1 and day 29. Xeloda 5 days a week for 7 weeks. 3 pills in AM and 3 pills in the PM.
Cisplatin, Epirubicin, Capecitabine (Xeloda) #1 June 12, 2017, #2 July 4, 2017 Nausea, Dry mouth, Tingly fingers, blood clot in spleen, hair loss
Gemzar, Taxotere and Xeloda
Some nausea, kept most of my hair.
Xeloda, taken during my radiation treatment (adjunct therapy) Started Folfox the last week of June 2010
Oral chemotherapy taken on radiation days 08/10/2011 - 09/19/2011 No side effects. Folfox - Begin 01/10/2012 - End date due to non-cancer complications: 4/18/2012. To date: lip numbness when I go in the cold for a couple of days after treatment. Cold sensitivity to foods and drinks for the first few days after treatment. No issue with fatique or nauseu to date. Xelox to replace Folfox: 05/02/2012 No side effects. End date due to non-cancer complications: 06/05/2012.
Week 1: Mitomycin 15mg IVP Generic Xeloda 500mg 2 tablets started every 12 hours. Just felt queasy and very fatigue. Week 4: Mitomycin 9mg IVP, continue Xeloda. Developed skin blister to back. Overall, no hair loss, no vomiting, no mouth sores
Bendamustine Rituximab
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss 6 rounds Hepatic artery infusion (oxaliplatin)avastin 3 month Jakafi (oral) unknown trial drug nano cisplatin and gemcitabine
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.
Started Chemo - Gemzar & Xeloda - in November 2016. 6 cycles planned. Side effects pretty mild - some nausea and tiredness
Each round of chemo consists of 3 weeks. Week 1 I get an Oxaliplatin infusion, weeks 2 & 3 I take oral chemo, Xeloda. Side effects are nerve pain (thanks I already had that), hand pain, fatigue, weakness, memory loss, confusion at times. Bla Bla Bla
2000 - Chemotherapy
10/13/14 - 11/26/14 (1st Round) 12/23/14 for 5 weeks (2nd Round)
Xeloda - nausea and reflux

Etoposide (VePesid) Chemotherapy Chemotherapies

What Etoposide (VePesid) Chemotherapy Cancer Survivors said about their Chemotherapies.

Dose adjusted R-EPOCH. Six rounds. 21 day cycles. Chemo administered as an inpatient. Started chemo December 19, 2011. Finished April 26, 2012.
AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
Induction Theraphy Cytarabine and Doxorubicin for 8 days. I just start my Consolidation theraphy last March 30. Which is Doxorubicin for 1hour and vincristine(push) and cytarabine IT(so painful)
I had three rounds of chemo in three week cycles. Week 1: 5 days of treatment (admitted in hospital) Week 2: Recovery in hospital Week 3: Recovery at home I experienced low blood pressure, dehydration, nausea, fatigue and anaemia. I still have fatigue after treatment, muscle atrophy and peripheral neuropathy.
cistplatin, bleomyocin, etopiside, numbness in hands and feet nausea and weakness major chemo brain
IE and VAC treatment every 3 weeks. Lost weight and all my hair/ body hair
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
Cisplatin & Etoposide May/18-August/18. Four rounds of treatment 3-4 weeks apart. Side effects- Hair loss, nausea, weakness & fatigue, weight loss
Chemotherapy started in September 2011 and continued every three weeks either daily for a week, or a single day dose of VAC - crappy crappy side effects, where do I start......numb finger tips, constipation, hair loss, loss of taste buds, thrush in mouth, lack of concentration, sooooo exhausted after each dose and weeks later. It is very true that the chemo is so much harder than the cancer to deal with.
starting the 2nd week of August 2013
started 10/19/2015 R- EPOCH 6 treatments fatigue
Cisplatin once a week In conjunction with the radiation. Then Five series with Etoposide.
6 cycles of R-EPOCH
Chemotherapy lasted from July 2010 - August 2011 His chemotherapy consisted of Vincristine, Doxorubicin, Cyclophosphamide, Ifosfamide, and Etoposide. Some vomiting and lots of nausea.
Doxorubicin Cisplation Methotrexate Ifosfomide Etoposide
Rituxan/Bendamustine (Summer 2010) - very little except fatigue. R-CHOP (summer 2011) - nausea, fatigue, hair loss
VP-16 and Carboplatin with first cycle began in April 2011 and finished in Sept. 2011 after 8 cycles - usual side effects Hair-Loss Fatigue Metal Taste Mouth Sores Ongoing White Blood Count Issues Ongoing Red Blood Count Issue Multiple Blood Transfusions
Initial diagnosis required 1 round chemo -Carboplatin - minimal side effects Return of cancer - 4 rounds of chemo ( EP) 21 day cycles includes five continuous days of infusion then rest. No nausea but gastric reflux with vomiting, scalp pain, metallic taste in mouth, tiredness, neutropenia
3 cycles of: Cisplatin, Bleomycin, and Etopiside which caused nausea, fatigue, by second cycle I could no longer naturally fall asleep, escalated pulse, anxiety, depression, dry mouth and skin which now I have scratch marks on my back, vomiting, got a finger infection so wear rubber gloves when counts are low and a mask, slight ringing in ears, raw esophogus, heartburn and diarrhea.
ABVD Six months
ABVD started in December 2011-May 2012. Hair loss, nauscia, weakness. ICE July 2012-August 2012 Hair loss, nausea, weakness
BEP chemo
3 days chemo every 21 days. Hydration as needed. Tiredness and nausea/vomiting at times.
Rituximab, Cyclophosphamide, Vincristine, Prednisone on 3 week cycles. Started 1st September 2010. Side effects - constipation, mild nausea, night sweats, tiredness, mood swings.
Chemotherapy started on 20th Dec 2008 and I chose to stop in June 2009 (I was meant to finish in Nov 2009, but when I found out my tumor was no longer shrinking, I physically could not deal with the side effects anymore). I lost my hair, which was by far not the worst side effect! Mouth sores, lost my sense of taste and smell. Horrendous constipation. Nauseous most of the time. Not able to eat. So completely exhausted, not even energy to stand up some days. Felt extreme cold, then major hot flushes, wake up drenched in sweat. Eyes always sore and watery. My chemotherapy was every 3 weeks, which took 5 days in hospital to administer IV - then every month when home I would spike a massive temp & have to be rushed into hospital for blood transfusions and isolated for neutronpenia! Chemo turned me into a shell of my former self, it destroyed my spirit and had me in tears most of the time. It was a hard, hard fight.

Imatinib Mesylate (Gleevec) Chemotherapy Chemotherapies

What Imatinib Mesylate (Gleevec) Chemotherapy Cancer Survivors said about their Chemotherapies.

Gleevec 400 mg. daily, nausea, taking anti nausea medication
Daily 400mg Gleevec. Daily fatigue. Slow morning wake up. Memory problems they call Gleevec brain. Polyneuropathy: pain and weakness in body. I use a cane when walking outside. Diarrhea. I did just find out that I am now in remission but must stay on the Gleevec for 2 years. I am totally grateful that Gleevec exists for me and for all CML patients. Good luck to all of us!

Sorafinib (Nexavar) Chemotherapy Chemotherapies

What Sorafinib (Nexavar) Chemotherapy Cancer Survivors said about their Chemotherapies.

11-19 chemo pellets not sure of the name, nausea,
Nexavar 8/22/12 - forever, side effects all listed
Nexavar for 6 months. Infusion therapy started 2 weeks ago and ongoing bi-weekly.

Topotecan (Hycamtin) Chemotherapy Chemotherapies

What Topotecan (Hycamtin) Chemotherapy Cancer Survivors said about their Chemotherapies.

Have had chemo continuously for 2 years
Carboplatin and Taxol, 8/11/2011. Sun-sensitive day after infusion (doesn't that sound like something you'd pay extra for at a spa?), then joint pain, peripheral neuropathy, fatigue on days three and four following chemo. Get better pain meds for next round!
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
Loss of hair and nausea
7-2010 IP/IV chemo x 6 cycles ( cisplatin/taxol/carboplatin) Hair loss, extreme fatigue, abdominal pain... 11-2011 ca125 on the rise. 4/6 cycles complete of topotecan. Ca125 back in its place. BRCA 1 Minimal side effects: reasonable fatigue and well controlled nausea.
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)

Vincristine (Oncovin, Vincasar PFS) Chemotherapy Chemotherapies

What Vincristine (Oncovin, Vincasar PFS) Chemotherapy Cancer Survivors said about their Chemotherapies.

October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.
R-EPOCH
About to go for chemo number 3 on Friday, feb 22... bone pain, anxiousness, depression, numbness, random rashes, hair losss, constipation. RCHOP , nuelasta, etc
Currenly going through Ewings Sarcoma protocol for Chemotherapy. 14 total cycles.
November 16 Started cycle of RCHOP followed by methotrexate for CNS 10 days later and RCHOP 11 days after that. finished this in April 17 no major side effects nutropenia, numbness in fingers which stopped with medication, constipation. Returned to wrk in May 2017
R-CHOP every 3 weeks for 6 cycles
CVP-R So far I have fatigue and prednisone make me anxios and nervious
R+Chop, 1/4/2012-4/23/2012
R- chop
1st treatment, August 23rd, 2011...which is tomorrow, so I don't know what side effects I'm going to have.
started 10/19/2015 R- EPOCH 6 treatments fatigue
PCV 8/21/16 - still fighting
Jan 22, 2015 R Chop was the first. Mostly tired some nauseous spells
RCHOP CHEMO
6 cycles of R-EPOCH
June 2012-October 2012; Reported Lethargy, nausea, changes in taste, neuropathy in fingers, weight loss.
R-CHOP R-ICE ESHAP
Hyper CVAD Protocol 6/1/2015-2/7/2016 including spinal chemo X 4
R-CHOP side effects are nausea, fatigue, hair loss, and chronic diarrhea. I lost 15 pounds - no complaints about that! Ativan was very effective in treating the nausea, but made me very sleepy.
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
Chemotherapy started in September 2011 and continued every three weeks either daily for a week, or a single day dose of VAC - crappy crappy side effects, where do I start......numb finger tips, constipation, hair loss, loss of taste buds, thrush in mouth, lack of concentration, sooooo exhausted after each dose and weeks later. It is very true that the chemo is so much harder than the cancer to deal with.
Stopping R-Chop Chemo on December 5th 2012. Cancer growing. Started a new Chemo Regimen on Dec 10th 2012.B-R( Rituximab and Bendamustine)Stopped Rituximab and Bendamustine regimen on February 18th,2013 due to developing PML in the brain. Started back on ( Rituximab and Bendamustine) PML cleared. Started in Nov 2013 on Tremsirolimus
First R-CHOP on 12/28/2015 which was from 7:00am to 6:00pm. Had a reaction to the Rituxan of red hives on face, so they had to stop treatment for a half hour and treat reaction before continuing with the Chemo. Feel tired and cold. After the first chemo treatment, the next 3 had almost no side effects.
Rituxan/Bendamustine (Summer 2010) - very little except fatigue. R-CHOP (summer 2011) - nausea, fatigue, hair loss
Dose adjusted R-EPOCH. Six rounds. 21 day cycles. Chemo administered as an inpatient. Started chemo December 19, 2011. Finished April 26, 2012.

Vinblastine (Velban) Chemotherapy Chemotherapies

What Vinblastine (Velban) Chemotherapy Cancer Survivors said about their Chemotherapies.

6cycles of Chemotherapy was planned that is a six montha duration.ABVD doses was induced in every fifteen days through veinflow during the first 3 cycles and later through picc line which was less painful. Side effects of chemo were many starting with gastritis, acidity, nausea, body pain,hair loss,fatigue...but this would be fine within a week after wbc count increases to normal level.
AVD (Dr. says I don't need the B) constipation, nausia, jaw tingle, red hot face, tired, dizziness
1991 April to June MAKOP B, 12 months treatment plan administered weekly over 12 weeks, ulcers, nausea, tiredness, loss of nerve sensations in extremities, severe constipation, hair loss (lol)
ABVD Chemo every other Tuesday 12 times.
R-CHOP 6
AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
ABVD Six months
6 rounds/12 treatments ABVD (Could only find Adriamycin and Vinblastin to list here) over the course of 6 months
(ABVD) Loss of hair, nausea, fatigue, loss of appetite, Random flushness, metallic taste in mouth, sores inside mouth

Erbitux (Cituximab) Chemotherapy Chemotherapies

What Erbitux (Cituximab) Chemotherapy Cancer Survivors said about their Chemotherapies.

Cetuximab - Brand name: Erbitux - April 1, 2010 - so far just really really tired. I was told later a rash and other stuff could happen. ( 5/1/10 - rash did appear including itching. Scalp was the worst. Lying down felt like pins sticking my head. I was told if not rash, med is not working. After they know it was working, I got med to help the rash and itch.)
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007 Nueropathy, memory loss, balance issues, joint and muscle pain
Alt Folfiri/Folfox 2010/Feb through 2010/June Folfiri/Erbitux started 2011/March Changed to Folfox/Avastin 2011/Oct Clinical trials 2012/Sept
second form of chemo 3 more weeks, no side effects
3 treatments. Cisplatin at first but had terrible digestive side effects so used erbitux for last 2 treatments
My mum went through a number of drugs to treat the cancer which kept on returning almost every single year from 2008-2011: Avasatin, Xeloda, Folfox, Folfiri, Erbitux. The side-effects are almost always similar: nausea, tiredness, vomiting, loss of appetite, mouth and throat sores. The first day after chemo she never manages to sleep well.
April 9, 2012 (Only made it through 4 treatments as it made me incredibly sick.)
ABVD Six months
Begin Erbitux treatments February 13 2012 and finished on May 2nd.
First treatment on 8-16-12 of FOLFOX Avastin begins 8-30 with second treatment Side effects: mouth soreness, sensitivity to cold
Erbitux. Loss of hair, lesions on my hands, scab around my neck, vomiting, etc.
Erbitux (cetuximab), loading dose 25 Jan, caused mild temp and nausea, then no similar effects during the 8-week course of treatment. Significant skin effects (acne, painful splitting of skin on fingertips, toes, and heels). No real nausea, vomiting, or diarrhea caused by the Erbitux.
Began Erbitux November, once a week. Skipped December, resumed chemo January, I go weekly.
Begin weekly Erbitux 9/10/13, Cisplatin/5FU 5/14, CarboTaxol 7/15
Started weekly induction chemo on 9/5/13 with carboplatin and paclitaxel- soreness in mouth, slight nausea, dry skin (severe itching), acid reflux. Started chemo-radiation on 11/4/13 using cisplatin. Received 5 weekly cisplatin treatments until wbc count was too low.
Erbitux (Cetuximab) taken, due to success with HPV-16 related cancers. 7 infusion sessions, starting one week before radiation commencement. First session gave me the worst headache of my life, terrible chills, fever, nausea (but only brief vomiting) and profound weakness. Started about 7 hours after treatment. Subsequent sessions have had less impact; primary complaint being weakness and fatigue. Blistering rash encompassing head, neck, shoulders, chest and back. Very itchy and painful. Appeared by second week of treatment. Now in 4th week, the pustules have subsided somewhat, but lotions are essential to keep the skin peeling controlled.
Protocol #1: First of 3-21 day cycles of 5-FU, Cisplatin and Docetaxel started 10/7/13 - around the 2 or 3 week started losing hair and experiencing nausea, fatigue, weight loss, etc; Protocol #2: Eribtux and concurrent radiation for 6 weeks started ~12/10/13 - neuropathy in feetbegan a few months after treatment stopped and is still ongoing.
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
12 total Erbitux sessions, once weekly, January 13 - March 31, 2011. Increasing fatigue and, ironically, insomnia following each session. From mid February through the end of treatments, somehow the Radiation/Erbitux mix seemed to spawn clusters of migraines.
Cituximab Loading dose March 13th, High fever and severe headache. Second of 8 treatments March 21st. Only side effect was severe heartburn.
Start with erbitux on Nov 12th and follow with weekly doses every Monday for a total of 8 weeks
Completed May 15, 2012
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
Erbitux, once a week for 7 weeks, starting in August. Initially, severe tongue sensitivity (at one point even water was like battery acid). For most of the treatment time, daily nausea and and severe acid reflux with occasional vomiting. As of today: chemotherapy induced neuropathy of the right leg causing the inability to lift my toes or my ankle (currently wearing a brace), but expect this to improve; whatever contribution Erbitux has towards complete dry mouth and lact of taste.
Jan 21- vomit, headaches, fatigue, lack of sleep, sore throat, cold sores, dry mouth, weak, pain, dry skin, headaches

Cytarabine (Ara-C) Chemotherapy Chemotherapies

What Cytarabine (Ara-C) Chemotherapy Cancer Survivors said about their Chemotherapies.

Induction Theraphy Cytarabine and Doxorubicin for 8 days. I just start my Consolidation theraphy last March 30. Which is Doxorubicin for 1hour and vincristine(push) and cytarabine IT(so painful)
nausea, fatigue, anxiety, depression, dizziness, vomitting
AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
R-CHOP starts 8/26/10 Major Side Effects Day 1-3 Headache and Diarrhea Mouth Sores Days 3-6 TCH starts 4/23/18
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
Started induction chemotherapy for AML on 25th September with "7+3 for 24 hours. I got Daunorubicin for 15 minutes the first 3 days while getting cytarabine the rest of the 24 hours. After the 3 days, the cytarabine continued 24 hours for the balance of the rest of the 7 days. I was medicated with multiple medications to prevent some of the known side effects such as eye damage, nausea, vomiting, and acid reflux. After the chemotherapy stopped, the Nader effects kicked in about a week later which is when the white and red blood cell counts and platelets drop. I ended up with ecoli infection in the blood and pneumonia which nessitated the administration of IV antibiotics. I also required Neupogen shots daily to help increase the production of white blood cells. Multiple platelet and blood transfusions were needed to sustain my existence. During this time I also had petechiae due the low platelet count. Stem cell or bone marrow transplant was recommended however, in my case, no full donor match could be found. Therefore my option was to have additional consolidation which consisted of hi-dac chemo (high dose chemo days 1,3,5 for 4 hours twice on those days. Typically if transplant is not an option, 4 doses of hi-dac is recommended. Due to my difficulty with the chemo, we opted for only 2 consolidation treatments. Right now I'm in remission although my white blood cell count and platelet counts are only 1/2 of the normal range. Last bone marrow biopsy (6th one) showed no Leukemia. Currently I have monthly blood work to monitor blood levels.
April 9 - 15th 2017 & April 27th - May 1st 2017.Finished 2nd round of Chemo May 1st. Experiencing hair loss, fatigue & weakness, SOB, Colitis, Diverticulitis, diarrhea, loss of appetite, confusion, hallucination, Acute Renal failure, low BP, and neutripinic sepsis.
On April 19th 2018, I also received my first dose of chemotherapy. I don't remember much of what happened during this time except I broke out in a red rash from head to toe and ran a fever for 5 days straight. The red drug, daunorubicin, makes me extremely sick. I'm a wreck when they give it to me.
Hyper CVAD Protocol 6/1/2015-2/7/2016 including spinal chemo X 4
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
ABVD Six months
Induction round 12/22/14-1/19-15: nausea, vomiting, diarrhea, fatigue Consolidation February '15, Consolidation March '15, Consolidation April '15
Achieved remission October 2017 with 2 IV drugs — few side effects aside of minor peripheral neuropathy in feet. Out of remission in January 2018. On cytsribinevsubce Feb 2018; Also on oral chemo since March 2018: Venetoclax. Peripheral neuropathy (feet); anal fissures w/bleeds; mucocitis of throat (hard to eat or drink ANYthing); dyspepsia (nausea); fatigue; 15% wt loss (BMI=18.4)
I've had 2 rounds of induction therapy and just finished my 4th round of consolidation therapy. Side effects have been different with each round. My hair only fell out my first round. Have experienced nausea, dizziness, weight loss, appetite loss, headaches, brain bleeds, metal-like taste in my mouth and food, lethargy, loss of endurance and stamina, chemo brain, grogginess and foggy brain, memory loss.
Started daunorubicin and cytarabine 7+3 therapy on January 10, 2015. I stayed in the hospital approximately thirty days. A bone marrow biopsy at the end of this stay confirmed remission. My nausea was not too bad, except for a time that they served some green beans from the cafeteria. I dry heaved several times, and then ate only food from home. I suffered diarrhea, hair loss, a neutropenia fever, an acute kidney injury, fatigue, and weight loss. I started my first round of consolidation chemotherapy in February, second round in March, and third round in April. I have been very fortunate to this point to avoid a bone marrow transplant.
January 6 2014 and February 15 2014
R-Chop--6 cycles total..completed 5/18,6/8 and 6/24/2011,7/15/11 8/8/11 and 8/25/11. side effects: nausea, bone pain, headaches, ear pain(probably from neulasta/neupogen),some fatigue, severe heartburn/epigastic discomfort, mood changes, r ice , beam, imbruvica
Induction, September 2014, two rounds. I didn't go into remission after the round (7+3 and) had IDA-FLAG (idarubicin, fludarabine, cytarabine and G-CSF. I lost my hair and appetite. Mouth sores are horrible as was the fatigue. I had four rounds of consolidation (November, December 2014, January, February 2015) after this, high dose cytarabine and the side effects are marginal for me, I was really tired and that was a result of low Hgb.
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
still waiting for start date
I don't remember all of them, but cytotoxin was one of them
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.

Daunorubicin Chemotherapy Chemotherapies

What Daunorubicin Chemotherapy Cancer Survivors said about their Chemotherapies.

Started induction chemotherapy for AML on 25th September with "7+3 for 24 hours. I got Daunorubicin for 15 minutes the first 3 days while getting cytarabine the rest of the 24 hours. After the 3 days, the cytarabine continued 24 hours for the balance of the rest of the 7 days. I was medicated with multiple medications to prevent some of the known side effects such as eye damage, nausea, vomiting, and acid reflux. After the chemotherapy stopped, the Nader effects kicked in about a week later which is when the white and red blood cell counts and platelets drop. I ended up with ecoli infection in the blood and pneumonia which nessitated the administration of IV antibiotics. I also required Neupogen shots daily to help increase the production of white blood cells. Multiple platelet and blood transfusions were needed to sustain my existence. During this time I also had petechiae due the low platelet count. Stem cell or bone marrow transplant was recommended however, in my case, no full donor match could be found. Therefore my option was to have additional consolidation which consisted of hi-dac chemo (high dose chemo days 1,3,5 for 4 hours twice on those days. Typically if transplant is not an option, 4 doses of hi-dac is recommended. Due to my difficulty with the chemo, we opted for only 2 consolidation treatments. Right now I'm in remission although my white blood cell count and platelet counts are only 1/2 of the normal range. Last bone marrow biopsy (6th one) showed no Leukemia. Currently I have monthly blood work to monitor blood levels.
On April 19th 2018, I also received my first dose of chemotherapy. I don't remember much of what happened during this time except I broke out in a red rash from head to toe and ran a fever for 5 days straight. The red drug, daunorubicin, makes me extremely sick. I'm a wreck when they give it to me.
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
Started chemo on July 7, 2016 - May 5, 2017 Side effects - nausea, vomiting, mouth sores
Started daunorubicin and cytarabine 7+3 therapy on January 10, 2015. I stayed in the hospital approximately thirty days. A bone marrow biopsy at the end of this stay confirmed remission. My nausea was not too bad, except for a time that they served some green beans from the cafeteria. I dry heaved several times, and then ate only food from home. I suffered diarrhea, hair loss, a neutropenia fever, an acute kidney injury, fatigue, and weight loss. I started my first round of consolidation chemotherapy in February, second round in March, and third round in April. I have been very fortunate to this point to avoid a bone marrow transplant.
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.

Mitomycin Chemotherapy Chemotherapies

What Mitomycin Chemotherapy Cancer Survivors said about their Chemotherapies.

1st round 23-27 March 2015 - minimal physical side effects, more pyscologial with PICC line fear and awareness of carrying chemo bottle around for a week. 2nd round 20th -24th April - felt more at ease with the bottle and had no real side effects until the end of the week, then developed terrible mouth sores around back teeth - which I didn't first time round.
1st round was delayed because they could not find a vein, so I had to have a pick line surgically put in for the full time and treatment was delayed a full week as a result. I developed a very bad rash from my chest up a few days later. Overall feeling of unwell. Felt sick when I ate. I ended up in the hospital following second round of chemo. It effected my blood badly and I had to have blood and platelet transfusions and 5 days of intravenous full spectrum antibiotics. I lost about 80% of my hair, but very late compared to most people. It got especially bad for about 4 months after my last chemo.
First Round: 9/3/2013 Received an injection (infusion?) of mitomycin, then was suited up with a mechanical pump, a bag of 5-FU, and an ugly, poorly designed fanny pack. I had to wear it for 5 days. Lots of nausea, no vomiting, very tired - which could have been caused by the anti-nausea meds that I took regularly. I basically slept my way through the first two days. I had a overall sensation of just not feeling well. After that, although I couldn't eat much, the nausea went away. On day 4, I felt really good - very slow, but good. Day 5, woke up feeling extremely weak and dreamlike. Noticed sore throat and bleeding gums (while brushing). Have developed a sore "spot" on the right side of my throat. More energy on day 6. NOTHING tasted good. :( Cramping, but no diarrhea.
Nausea
week 1 and week 5. Felt unwell 1st time but felt better pretty quickly. 2nd treatment really took me down. Fatigue, loss of appetite, fever- lost about 50% of my hair.
Mouth sores terrible lost taste for red meat. Hair thinned out
1 round of IV Mitomycin and 28 days of oral chemo Capecitabine 18th March 2019 for 5.5 weeks run concurrently with Chemo.
Mitomycin given in one dose on June 28, followed by a week of infusion of 5FU. Four weeks later a second cycle of 5FU. Following the first treatment, severe mouth sores for 8 days - at the end could not swallow more than a teaspoon at a time. The second cycle had reduced mouth sores, but I did not have the Mitomycin as my blood count was too low. After the chemo ended, I developed a problem that my doctor and I identified as milk protein immune reaction (a general problem known as FPIES, and usually seen in young chidren - so at least my innards were in their second childhood!). I was hospitalized twice for rehydration, following hours of vomiting and diarrhea, after eating ice cream (it's made mostly with milk, who knew?) and a soup with light cream base (about the same as milk - who knew?). This turned me into a "food detective" when I ate away from home (what is in that sauce?). Finally, after a year, the oncologist suggested "challenges"with a fourth-teaspoon of the ice cream, followed by half-a teaspoon, etc., until I consumed the same size serving as the one that sent me to the hospital, without any reaction. At last I could stop grilling my friends about what's in the food! At this point my only issue is the chile pepper question - if something is being cooked with any kind of chile peppers I start coughing. And eating them! Out of the question.
mitomycin on 6/29/2015, 5day infusion of 5-FU 6/29 - 7-4 Side effects "metal mouth" loss of appetite, fatigue
2- 5 day rounds of Mitomycin infusion followed by Flouracil pump- Severe mouth sores & tongue swelling 1st round. Had Neupogen shots x4. NeulAsta shot after 2nd round - no sores.
Mitomycin & 5FU started on 1/18 ended on 1/22. Next chemo to start on 2/15. Side effects were constipation, fatigue and low appetite and aversion to smells.
nausea (finally controlled).
1st round week 1 December 15, 2014 nausea throughout, some hair thinning 2nd round week 5 January 12, 2015 nausea, terrible pelvic burns, hard time walking, raw, stinging while urinating and given phenazopyridine which seemed to help a bit and had to stop radiation for a week. Started back with 7 more treatments. Now 4 left to go.....
Had surgery for Port placement in 01/2011. I began my first bout of chemo on 2/14/2011 along with radiation. I was in the chair for about an hour receiving the Mitomycin, and the 5-FU was portable, so it was hooked up and it was constantly dripping beginning Monday, and I would return Friday to get it taken off. I fortunately did not have too many side effects; no hair loss, not much nausea. I had a lot of fatigue, but I blame some of that on the radiation as well. Once I had my second (and final) round of chemo (which went the same way as the first), about halfway through my radiation, that's when I started to have a very difficult time and I was in a lot of pain and the effects of the radiation on my skin was much more apparent and was a lot more uncomfortable.
01-04-10 began chemotheraphy treatment. Mytomycin infused through port at onocologist's office. Went home with an infusion pump of 5-FU (Fluorouracil) that lasted 4 1/2 days.
Nausea, loss of appetite, chemo brain.
two 96-hour stretches of chemo with mytomycin and 5 FU (guess what my nickname for "FU" is...) Horrible side effects, bleeding and cracking at corners of lips, raw inside mouth, chronic nausea (nausea meds helped), weakness, depression, sleep problems, etc.
April 2011 nausea and vomiting, weight loss,neutropenia,mouth sores, hair thinning April 2012 nausea, mouth sores, hair thinning
Standard protocol of 2 rounds of mitomycin & 5FU (8/13 & 9/13)
First chemo started same day as radiation on 3-17-14 with a single dose of mitomycin and an infusion pump of 5-FU for 4 days. Beginning of the 5th week we repeated this process with 20% less mitomycin due to the low blood count. The first round I had few if any side effects. Felt tired and slow but when I got the pump off, I started to feel better. The second round was more difficult and my blood count fell too low, I got a low grade fever and ended up getting 2 blood transfusions and 5 shots to help build up the blood cells.
1st round 9/28/15: Mitomycin infusion; 5FU drip for 4 days. Stupidly stopped taking anti-nausea med Zofran for a day because it was making me constipated and proceeded to get sick throughout the night. Started taking Compazine instead. Developed thrush/mouth sores once finished with chemo - they lasted a week. Next round of chemo coming up 10/19/15.
Jan 7th week -1st round of chemo - severe nausea, dehydration, and mouth sores. For 2nd round 5 weeks later, started Lysine powder 1 week prior with mouthwash so no sores.
Day 1: March 24, 2014
Week 1: Mitomycin 15mg IVP Generic Xeloda 500mg 2 tablets started every 12 hours. Just felt queasy and very fatigue. Week 4: Mitomycin 9mg IVP, continue Xeloda. Developed skin blister to back. Overall, no hair loss, no vomiting, no mouth sores
5fu and Mitomycin Feb-Mar 2014

Eloxatin (Oxaliplatin) Chemotherapy Chemotherapies

What Eloxatin (Oxaliplatin) Chemotherapy Cancer Survivors said about their Chemotherapies.

Oxaliplatin infusion; Leucovorin infusion; Fluorouracil continuous infusion pump.
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
R CHOP every 3 weeks from 12/30/2013 through 4/28/2014. Began R GEMOX on 6/19/2014 every 3 weeks through 10/21/2014. Started Rituximab and Treanda on 12/3/2014 as a 2 day course. Severe neuropathy in feet and less but still suffered neuropathy in fingers during R CHOP. R GEMOX caused great discomfort with cold even before therapy was complete. One does of Rituximab and Treanda and my father has terrible oral sores. However, he has been fortunate to never have suffered any severe intestinal discomfort.
Rituxan and treanda. Had mixed results. Then R-CHOP, which seemed to increase the cancer. Then R-ICE which then sent me to get an auto transplant. Had a severe reaction to rituxan the first time, then minor reactions every other time. They had to infuse really slow. Added an extra day to my chemos. No other big side effects from the actual chemo except fatigue. Hair loss after the final ICE but was high dose. Also, threw up after the ICE except after the high dose.
Oxaliplatin,Calcium Leucovorin,Camptosar,Florouracil
I had 2 chemotherapy drugs. Eloxatin (oxaliplatin) which was given through my port at my Oncologist's office. I also took Xeloda which is a chemotherapy drug (pills) taken at home. I also had a wonderful Oncologist who worked well with my surgeon.
Started chemo 1/4/2016
Nexavar for 6 months. Infusion therapy started 2 weeks ago and ongoing bi-weekly.
Began with Xeloda in pill form that was simultaneous with my Radiation. 6 weeks Mon-Fri. Didn't have any problems with this drug whatsoever. March 2014 began Oxaliplatin and 5FU for the next 6 months. I where a pump for 48 hours of continuous infusion every other week. I was told to be cautious of cold weather and cold drinks or any other type of cold items. So drinking everything at room temp is pretty boring but I did find out what happens if you do try to tempt fate and drink a cold substance----it felt like I was swallowing shards of glass down the back of my throat. YIKES. So far, I have only noticed a bit of nausea during the week of treatment and fatigue, but I know it is early and these symptoms will undoubtedly worsen as time goes on. Not looking forward to this. Really have dreaded the whole chemo thing.
June 2013 - December 2013
I was completely fine up until chemo #5. All of them are 52 hours, I go home with the pump. Chemo# 5 put me down. Fatigue, mouth sores, numbness in toes, extreme sensitivity to cold, loss of appetite.
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss 6 rounds Hepatic artery infusion (oxaliplatin)avastin 3 month Jakafi (oral) unknown trial drug nano cisplatin and gemcitabine
folofox: 3/14-9/14, starting again 1/15
Jan 22, 2015 R Chop was the first. Mostly tired some nauseous spells
Nine rounds of Folfirinox treatment before surgery and more after.
5-fu orally before surgery 11/12 - 12/12. The oral chemo did a number on my stomach lining. After surgery did 8 FOLFOX treatments 3/13 - 7/13, side effects were sensitivity to cold, some nausea but not bad, and tired.
6 weeks Flourcil (pills) and radiation Oct - Nov 2015 10 sessions IV chemo (avastin, oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016 Hands and feet numness Little nausea Fingernails thinned Balding
2009 - Mitfomycin, 5FU; 2011 Xeloda & Oxaliplatin; 2013 Paclitaxel & Carboplatin; 2014 Lapatinib; 2015 Xeloda (twice with radiation)

Abraxane Chemotherapy Chemotherapies

What Abraxane Chemotherapy Cancer Survivors said about their Chemotherapies.

Tiredness and oain
Abraxane and Genzar
Started July 12. Two weeks on, 1 week off. Plan is 6 cycles. Side Effects - Can’t sleep (steroid pretreatment). Terrible constipation (Nausea meds), Very tired, mild fever, irritability on Day 2-3 post chemo.
Extreme fatigue, delerium
Extreme fatigue, some dry heaving, hair loss, neutropenia
A/c( I am not good with names and the one would not uncheck above) started 4/10/2014 I lost my hair the day of the second treatment. Felt pretty bad but was able to work. Got pulmonary embolisms in June (I hope to find out soon that they are gone) by my 3rd A/c the lump was no longer able to be felt. By the 4th it was gone. started taxol in June (blurry) after 2 treatments the first infusion took 11 hours the second 8 hours and that was all I could stand. The side effects were extreme pain, nausea and sensitive to light and sound .I opted out the rest and went straight to surgery!
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)
Initially 2 rounds of Folfirinox, that increased liver enzymes and CA-19-9
Methotrexate, Doxyrubicin, Vincristine, Vinblastine, Cytarabine, Etopomide
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.
Started 12.1t.16
Luckily just 2 rounds of Chemo in 2000. Only lost hair from the waist down. Which would be awesome if I was pursing a career as a Drag Queen

Avastin (Bevacizumab) Chemotherapy Chemotherapies

What Avastin (Bevacizumab) Chemotherapy Cancer Survivors said about their Chemotherapies.

six infusions of carbo/taxol every 3 weeks from 3/13 to 6/13 six more infusions carbo/taxol every 3 weeks from 1/15 to 4/15 three infusions doxy every 3 weeks from 8/15 - severe rash - discontinued several infusions every week gemzar from 10/15 to 2/16 tanked white count and increased acities - discontinued avastin/taxol every 3 weeks from 3/16 to present
mid july to November 2015 Gemzar eight treatments, xeloda for 28 days on radiation days. Started Folfox regimen 09/20/2017 for recurrence.
Had a really bad reaction on Oct 14 2014
Beginning in April I had three treatments with Taxol and carbo platinum as well as Avastin. Joint pain was rough but gone after a week or so. I've mostly been easily tired out. My CA125 went up so I had another PETCT that showed an increase in the cancer I am now getting Doxil every four weeks and Avastin every two weeks. Side effects have been relatively mild - just tired a lot.
Avastin drip. 12/2009 - 2/2010. Nausea. Sidenote - everyday I'd go to a juice cafe where they had wheat grass juice. When I went for my last treatment, nurse told me my blood counts throughout treatment were spot on... It's worth researching as has many benefits. Please check with your doc as told it may not be appropriate for some during their treatment.
ABVD Six months
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007 Nueropathy, memory loss, balance issues, joint and muscle pain
I was completely fine up until chemo #5. All of them are 52 hours, I go home with the pump. Chemo# 5 put me down. Fatigue, mouth sores, numbness in toes, extreme sensitivity to cold, loss of appetite.
6 treatments chemotherapy (carbo/placing/Avastin
She has had 5 rounds of platinum based triad, one round of Alimpta (sp?), now on Opdivo, has had 3 rounds, for the fourth the week of 4/10/16.
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss 6 rounds Hepatic artery infusion (oxaliplatin)avastin 3 month Jakafi (oral) unknown trial drug nano cisplatin and gemcitabine
folofox: 3/14-9/14, starting again 1/15
Cisplatin: Took 2 treatments, 1 week apart. Tolerated well. No nausea, though stomach very "acidy" feeling. Eating bland foods often throughout the day helped. Did have some tiredness. No loss of hair. Had to stop Cisplatin for a while due to frequent ringing in ears. Cisplatin can lead to permanent hearing loss. Was able to complete last 4 Cisplatin after a break. Have some hearing loss, but not much. Will be using an experimental drug-Avastin, as well. Avastin: no loss of hair. Felt a coldness in the core of the body and extremities. Combined with Cisplatin, usually left me feeling poor and unable to work for about 5 days. Starting Taxol, Carboplatin, and Avastin again next week.
Started chemo on July 7, 2016 - May 5, 2017 Side effects - nausea, vomiting, mouth sores
Every other week
First chemo was on Friday 9/15/17. 3 chemo infusions over 8 hours. To be done every 3 weeks. Next scheduled 10/6/17. Have had no nausea or vomiting. Saturday night, severe pressure in rectum, vaginal area and lower pelvic region. Contacted physician due to pain and that no amount of medicine was subsiding pain. Was advised that it seems as if the chemo is working. The pressure could be due to the necrotic tissue from the cancer itself is moving, liquid retention, or inflammation from the chemo. He reassured me that pain and pressure should go away within a few days. Was instructed to take higher dose of percocet. The higher dose of pain meds has done its due diligence, but knocks me out too. It is now three days later and pain and pressure has become more bearable, and treatable with 800mg motrin. Feeling extremely tired, which is very odd being that I am very active. Powering through, I will win this battle.
Carboplatin, taxol, avastin, and a PARP inhibitor for 6 rounds, then remission for about 7 months. Then more carboplatin and taxol for 3 more treatments until I became resistant, then onto the MEK/Milo trial. Failed that after 2 months, now looking into immunotherapy
6 carbo/taxol and 4 cisplatnin in 2013/4. 4 carbo/taxol in 2016/17.
Ongoing every two weeks
6 weeks Flourcil (pills) and radiation Oct - Nov 2015 10 sessions IV chemo (avastin, oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016 Hands and feet numness Little nausea Fingernails thinned Balding
Six rounds in 2008 and 12 rounds in 2015 got through these not too bad in the big scheme of things.
CHEMO 1/2/2012, CHEMO 8/1/2012, CHEMO 7/1/2013 HAIR LOSS
Jan 2 through Jan 5 2015 Staff infection , Bacteria in blood, Fever and Nausea

Dasatinib (Sprycel) Chemotherapy Chemotherapies

What Dasatinib (Sprycel) Chemotherapy Cancer Survivors said about their Chemotherapies.

An unpleasant mix of fatigue, diarrhea, headaches, water retention, muscle and bone pain.

Onivyde (Irinotecan Liposome) Chemotherapy Chemotherapies

What Onivyde (Irinotecan Liposome) Chemotherapy Cancer Survivors said about their Chemotherapies.

Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.

Docetaxel (Taxotere) Chemotherapy Chemotherapies

What Docetaxel (Taxotere) Chemotherapy Cancer Survivors said about their Chemotherapies.

Hair loss, nails, hand and feet discoloration, constipation that resulted in an anal fissure that won't heal, bone pain, depression and anxiety

Uncategorized Chemotherapy Chemotherapies

What Uncategorized Chemotherapy Cancer Survivors said about their Chemotherapies.

1/7/2014 and every 14 days thereafter - Nausea, jaw pain, loss of taste, hair loss, fatigue 6/10/2014 - chemo complete (6 cycles ABVD)
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