What are Chemotherapies? List from Cancer Survivors

The below is a list that has been posted by the bloggers in this cancer community. There are 7316 cancer fighters that are members here. This is what they said, not what the doctors or nurses will tell you.

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Adriamycin (Doxorubicin) Chemotherapy Chemotherapies

What Adriamycin (Doxorubicin) Chemotherapy Cancer Survivors said about their Chemotherapies.

Began chemotherapy in 3'06. Side effects were mouth sores, nausea and vomiting. Bone pain, neuropathy in fingers and feet. Nail beds turned black.
First Chemo 9-8-2008. Side Effects - Pain, joint and bone pain, can't taste anything, headaches, bodyaches and my skin hurts and weight gain from the steroids.
R-CHOP began 8/21/12, then 9/14,10/2, 10/23, 11/13, 12/4. vomiting, nausea, taste & smell changes, nueropathy, hair loss, depresssion
8 rounds - 4 A/C - 4 Taxol Hair loss on 13th day, bone pain from Taxol, rhematoid arthritis outcome
AC, 3-2-11 lots of nausea, hurt to breathe through nose, blinding headaches (3-4 through 3-6), all-over weakness through the first week, leg and tailbone area pain.
ABVD- nausea, fatigue, wooziness, thinning hair ICE- nausea, fatigue, wooziness, total hair loss, bleeding gums and mouth sores GND- some fatigue, mouth sores
methotrexate injections every other day via injection
5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared. Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half.
Sysplatin that almost killed my it caused my kidneys to shut down. I cause me to become completely dependent on others. I didn't spell the Chemo right but it sounded like that. I don't know what the fed me after I was released from the hospital.
8 treatments of chemo. March 30 thru July 12
Since June 2012 - july induction, August consolidation, Sept. consolidation, december 2012 induction. Stem cell transplant now on hold.
I had 1 TAC had allergic reaction (tongue swelling) 3 weeks later started 3 AC biweekly, then had 7 abraxyn I had mouth sores, tongue swelling and bone pain after Neulasta, also had thrush for 5-7 days after the fisrt 4 sessions, I have muscle aches after Abraxyn, fatigue
R C h o p. 21, Six cycles stated feb 11 last one ( hopefully )June 1st 2011. Severe tummy gloating, gas, and pain. Heavy fatigue and nausea, constipation, sweats, hair loss, neuropathy, weight gain in trunk area. Sweats. Fevers. Period gone after first week. Dunno if gone 4 good.
AC 8 weeks staring 8/10/2017 followed by 12 weeks of Taxol. Nausea on AC. Terrible muscle and bone pain in Taxol.
Tremador - First set - daily dose for 3 weeks Not able to continue to the next set. Nausea, weakness, loss of appetite, Sleeping constantly
1991 April to June MAKOP B, 12 months treatment plan administered weekly over 12 weeks, ulcers, nausea, tiredness, loss of nerve sensations in extremities, severe constipation, hair loss (lol)
Chemotherapy is bi weekly on fridays! Side effects include Nausea, fatigue, and weakness, hair thinning
Biweekly 4 A/C - from June 11th 2018 until July 2018 - Fatigue, dry mouth, Hair loss, doing quite well thank god 21 weekly Rounds of Taxol scheduled from August until October....
4 cycles of chemotherapy ending in late August, radiation to follow depending on how the cancer responds.
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
Chemotherapy 4 X AC - side effects - extreme nausea, hair loss, fatigue. Neulasta - bone pain. Chemotherapy 4 X Taxol - Peripheral neuropathy, nausea, bone pain, loss of balance, extreme fatigue, hair loss, low blood platelet count.
Dose-Dense AC chemo x4 every 2 weeks, then Taxol x4 every 2 weeks Oct 2009- January 2010
6 rounds/12 treatments ABVD (Could only find Adriamycin and Vinblastin to list here) over the course of 6 months
NOW ON ABRAXANE AND AVASTIN CHEMO SIDE EFFECTS WEAKNESS, FATIGUE, PERIPHERAL NEUROPATHY , NAILS PEELING OFF FINGERS, NOSE BLEEDS - ALL SOUND BAD BUT ARE TOLERABLE
Fu5 fannypack4 months 5 months mainvein all side effects

Cyclophosphamide (Cytoxan) Chemotherapy Chemotherapies

What Cyclophosphamide (Cytoxan) Chemotherapy Cancer Survivors said about their Chemotherapies.

R-EPOCH, 1 week treatments every 3 weeks. Six total treatments
First chemo session on 8/26/09 almost killed me...second session on 9/16/09 virtually no side effects other than no taste.
AC, 3-2-11 lots of nausea, hurt to breathe through nose, blinding headaches (3-4 through 3-6), all-over weakness through the first week, leg and tailbone area pain.
2004.-I received quimo scheme CHOP (ciclosfamida -Vincristina -Adriamicina - Prednisona. 2006.- 2nd. line of quimo. with scheme ESHAP: Etoposido - Platino - Ara-C-Dexametasona
Rituximab cyclophosphamide vincristine Prednisolene every 3 weeks started 7th August 2012 x8 sessions then 2 years Rituximab control. So far, the only side affect is fatigue , normally towards the end of the day and the day after chemo. Hair still with me. Making sure I don't get an infection of any kind.
Jan 22, 2015 R Chop was the first. Mostly tired some nauseous spells
September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months.
AC 8 weeks staring 8/10/2017 followed by 12 weeks of Taxol. Nausea on AC. Terrible muscle and bone pain in Taxol.
RCHOP, 5/9/2019. back pain, lethargy, nausea
i was supposed to get 8 chemo's. but i only received 7 because my blood count wasn't up in time. i had "Vincristine" (iv)every week. Cyclophosphamide(iv)every 6-8 weeks. Cisplatin (iv), every other chemo, and Lomustine (pill) every chemo.
4 dose dense a/c for 8 weeks then paclitaxol for 12 weeks. which ended on 11 sept 08. Jan.09 12 weeks of radiation.
Dose-Dense AC chemo x4 every 2 weeks, then Taxol x4 every 2 weeks Oct 2009- January 2010
Chemotherapy 4 X AC - side effects - extreme nausea, hair loss, fatigue. Neulasta - bone pain. Chemotherapy 4 X Taxol - Peripheral neuropathy, nausea, bone pain, loss of balance, extreme fatigue, hair loss, low blood platelet count.
Started chemo just before Christmas of 2009. Was given cytoxin and taxotere. Extreme fatigue, nauseousness, no tomato foods first few days after chemo, and no burning food allowed in the house! Had my last chemo February 20. Took 2 months FMLA during chemo. Early chemo-induced menopause.
Started11/15/2012, every 21 days until 03/06/2013. Had neuropathy, vincristine stopped for 2 cycles,better, then resumed 5th cycle. Had some issues with breathing-felt like I had eaten a lot of mints, treatment postponed for a week, got chest x ray, nothing wrong. Was tired with each cycle, but trudged through. Prednisone helped. Lost taste for some foods, but never lost my appetite!
RCHOP chemo Feb 2015-May 2015 (6 rounds).. Plus Neulasta shot the next day each time...Side effects are different for everyone.. Although they all suck, I found this treatment to be bearable with all the drugs they give for side effects...
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
Port-a-cath installed in May. What a joy that was! First of 4 treatments of cytoxin & adriamycin started the last of May. Loved that "dangerously red cocktail" called adriamycin. Sinuses were & still are all messed up from cytoxin. Neuropathy in hands, feet & legs to this date (2-09). Thankful for neurontin and cold sheets feel so good. Will it ever leave me in peace? Scalp got sore & out came the hair on Father's Day Happy Father's Day, Troy! We went out to our deck after church & 14 year old daughter cut & hubby shaved. POOF! No nausea thank God for Zofran!! I felt better during & right after chemo (Aug '05)than I do now. What's up w/that?! So, I deal as best I can.
AC first 2 months tolerated well. Didn't miss any days at work. Had more problems tolerating taxol. Missed a lot of time at work.
Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse. Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo.
Biweekly 4 A/C - from June 11th 2018 until July 2018 - Fatigue, dry mouth, Hair loss, doing quite well thank god 21 weekly Rounds of Taxol scheduled from August until October....
Will have 4 rounds of chemo for preventative reasons. Taxotere & Cytoxan. Had my first dose 2 weeks ago. No nausea, just fatigue, some diarrhea. Thought I'd keep my hair until the next dose, but it just started falling out today.
Cocktail: Taxotere (wasn't mentioned above), lots of anti-nausea meds!, Neulasta/Pegfilgrastim/G-CSF (the Purgatory Shot)(not mentioned above), Cytoxan. Dude and Dudesses, I have lost 10 lbs!!! Yee haw! Crappy way to lose it but it is lost!
ABVD May 2008-October 2008 ICE January 2009-March 2009 BEAM April 2009
treatments spanning over 4 months. Felt poisoned and beat up the entire time.

Taxol (Paclitaxel) Chemotherapy Chemotherapies

What Taxol (Paclitaxel) Chemotherapy Cancer Survivors said about their Chemotherapies.

Oral Chemo (Xeloda) - 7/07 to current weight gain, tenderness in hands and feet, fatigue, irritability, feeling full; dehydration
6 cycles IV carboplatin and taxol. Nausea, severe fatigue, hair loss, muscle pain constipation. In the middle of chemo diagnosed with meniscus tears in both knees after significant knee pain. Ultimately had 2 surgeries for partial meniscus removal from which I'm still not healed. Neuropathy especially in feet became big issue leading to dose of chemo needing to be reduced after the 4th cycle. My gastroenterologist feels I have some degree of neuropathy in my colon as I do not eliminate as before. During chemo and persisting I often have a "full of stool" feeling even after eliminating. Very annoying and affects quality of life.
Six rounds in 2008 and 12 rounds in 2015 got through these not too bad in the big scheme of things.
Chemotherapy 4 X AC - side effects - extreme nausea, hair loss, fatigue. Neulasta - bone pain. Chemotherapy 4 X Taxol - Peripheral neuropathy, nausea, bone pain, loss of balance, extreme fatigue, hair loss, low blood platelet count.
Taxol, 5FU, Carboplatin, Avastin, Tarceva (withdrawn).
First Chemo 9-8-2008. Side Effects - Pain, joint and bone pain, can't taste anything, headaches, bodyaches and my skin hurts and weight gain from the steroids.
They removed all my teeth because they said the chemo and radiation would kill their roots. I went through 5 cycles of the red devil and 10 taxol. I am still on femara
None other than a little fatigue.
6 cycles chemotherapy begining 11/12/07 complete hair loss, mouth sores, black nail beds, weight gain, inflamation, fatique, everything tastes like lead. Joint pain from Neulestra shot.
Beginning in April I had three treatments with Taxol and carbo platinum as well as Avastin. Joint pain was rough but gone after a week or so. I've mostly been easily tired out. My CA125 went up so I had another PETCT that showed an increase in the cancer I am now getting Doxil every four weeks and Avastin every two weeks. Side effects have been relatively mild - just tired a lot.
I started chemo on Dec 3, 2012. I need to complete 6 treatments of Carbo and Taxol. My treatements or given over a period of 3 weeks. The first week I receive the full carbo dose and 1/3 of the taxol. The next two weeks I recieve the remaining taxol. I am having trouble keeping my WBC up with the weekly treatments. I had to have Neupogen shots to help give them a boost.
Carboplatin/Taxol, continuous 5FU drip March/April 2008 Taxotere July/August/September 2008 Cisplatin January/February 2009
Very sick. 12 years ago the drugs for side effects were not as effective as they are now and hopefully will continue to get better
Red Devil, cytoxan, taxol....May 2002....Bone pain, tired all the time!...Gained weight
Started chemo June 8 2006 and finished up Sept. 28. 2006. Side effects weren't to bad. Just did what I was suppose to so I wouldn't have many.. Biggest side effect.. Baldness but I got through that too.
I've had two rounds of chemo (carbo-taxol and FOLFOX, Avastin), neither of which were effective.
Chemo came after radiation the first time, chemo only the second time, radiation only the 3rd time. Allergic reactions to almost all the drugs tried, but that was the second time. The ones that I didn't react to made me very sick, so I'd go in to be hydrated the day after chemo since I was unable to do that at home. It's hard to eat and drink when you're asleep. Another side effect of the drugs and certainly the pain killers for me.
Adriamycin and cytoxin. 11/03 so sick with vomiting till meds were figured out. Lost 50 lbs. Taxol 1/04. Sick Rituxan 5/13 no effects used for platelet issues Taxol 5/16 with experimental drug
July 2011 started with carboplatin and taxol (7 rounds in all). Reaction to the decadron had some nausea at the beginning sol they tweaked it with emend, sore muscles and joints day 4,5,6,7 after chemo usually spent in bed. and spent the rest of the time getting semi normal before the next round Stopped in Sept until december 2011 during which i had surgery last treatment january 20 2012
10/05-08/06 adriamyacin, very weak
4 dose dense a/c for 8 weeks then paclitaxol for 12 weeks. which ended on 11 sept 08. Jan.09 12 weeks of radiation.
4/17/15 Allergic reaction to Emend and Taxol
Start Jan 6, 2012 Six rounds of carboplatin and paclitaxel once every 3 weeks.
First time: Taxol, Taxotere - Jan - June 2001 - had adverse reaction to taxotere & stopped breathing. Otherwise, the regular side effects like nausea, fatigue, mouth sorers, hair lost, & nerve damage to hands & feet. Second time: Abraxane, Avastin Oct '07 to May '09. Still on Zometa - indefinitely. Regular side effects: nausea, fatigue, hair lost. Worse one: medical port became infected & had open wound for 6 mons because it could not heal.
A/c( I am not good with names and the one would not uncheck above) started 4/10/2014 I lost my hair the day of the second treatment. Felt pretty bad but was able to work. Got pulmonary embolisms in June (I hope to find out soon that they are gone) by my 3rd A/c the lump was no longer able to be felt. By the 4th it was gone. started taxol in June (blurry) after 2 treatments the first infusion took 11 hours the second 8 hours and that was all I could stand. The side effects were extreme pain, nausea and sensitive to light and sound .I opted out the rest and went straight to surgery!

Methotrexate (Folex, Mexate, Amethopterin) Chemotherapy Chemotherapies

What Methotrexate (Folex, Mexate, Amethopterin) Chemotherapy Cancer Survivors said about their Chemotherapies.

ABVD for 6 cycles (12 treatments). Was quite well tolerated, tired for a few days after, hair loss, mild nausea but no vomiting, changes in bowel motions, mild rash on feet and arms, aching veins. MADEC (methotrexate, cytosine, dex, etoposide, cyclophosphamide) for 2 cycles, one week of chemo in hospital, 2 weeks to recover then repeat. Fatigue, mild nausea, hair loss. BEAM (carmustine, etoposide, cytosine, melphalan) prior to stem cell transplant. Have only just started this today, had carmustine and so far all good but I know this will change.
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.
Pre-Surgery April 19-May 26 Five FU for 6 weeks continuous with take home pump Post Surgery started Sept 22 Full Fox
R Chop 6 cycles
methotrexate injections every other day via injection
im doing an eight mounth treatment plan. every 21 days im back in the hospital for all the chemo they can give me.
started Feb. 26, 2010 I was admitted to hospital every 3 weeks for a total of 6 rounds of treatment - Cycles A and B.
through March 2008 CMF cocktail, 8 rounds. never lost my hair, nausea got pretty bad... three rounds in, I became a petulant child and announced I was NOT going back. A nurse family member asked my mom what kind of anti nausea meds I was given (don't remember) and told my mom to relay the following: "tell her to get pot, the pills suck" .... My resourceful husband came home with a surprise shortly after round 3. It PISSES me off that I had to break the law because the fact is, at least for me, IT WORKED and it was AMAZING.....
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
Every week on Day 1 & 2 and Day 8.
Started induction chemo within the first week of November. Integrating it with holistic therapies
6 treatments from March 3, 1994 to June 29, 1994. Started with Taxol Study. Received high-dose Cytoxan 3980 mg and Adriamycin 74.6 mg for 2 cycles. Except for the 1st and the last, blood transfusions were required after every treatment due to low hemoglobin. I developed a blood clot in my right arm shortly after the first blood transfusion in April and had to be hospitalized and put on coumadin for 3 months. Had to be taken off Taxol Study because I could not take high-dose Cytoxan/Adriamycin and Coumadin. I was given Cytoxan 995 mg, 5-FU 995 mg and Adriamycin 99.5 mg for the next 4 treatments. The Adriamycin damaged my heart muscle. Other side effects were nausea, some vomiting, sores in mouth, diarrhea, heartburn, fatigue and complete loss of all hair. 6 treatments from January 20, 2006, to June 2, 2006. I was given a CMF combination of 1200 mg of Cytoxan (Cyclophosphamide), 80 mg of Methotrexate and 1200 mg of Fluorouracil (5-FU). This bout with chemo was much easier than the first. I also had a blood clot in my lung in February, 2006, and was hospitalized for 7 days and put on coumadin for 18 months. Other side effects were minor nausea, fatigue, sore mouth, minor diarrhea and only thinning of my hair. I don't know which one but one of the chemo drugs damaged my right eye and I am still having problems with it. The worst thing to happen was the death of my husband and my boston terrier dog in May during this bout of chemo.
Round one: 7 days of continuous chemo. Round two: 5 days of 2 times a day chemo Round three: 2 days of 2 times a day chemo Followed by 3 days of 2 times a day total body radiation.
June 2012-October 2012; Reported Lethargy, nausea, changes in taste, neuropathy in fingers, weight loss.
I've taken chemo for 3 years now, many kinds of chemo, my "favorite" is Xeloda.
Nausea, fatigue/sleepiness, "Chemo brain" (inability to concentrate), dry skin, no nail growth, hair loss. January - May as of now
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
I had 5fu, Methotrexate and Cytoxan. I had the 5fu and Methotrexate in an IV push the first and second Tuesday of each month. The third week I took Cytoxan pills and rested the fouth week. This was for a total of six months.
I recieved Chemo in 2004-2006 with my first diagnosis of ALL. I relasped in June 2011 and started chemo on June 24-July 18. I will continue chemo until my Bone Marrow Transplant.
High dose chemotherapy, March-June 2012. Side effects: Nausea, vomiting, weight loss, fatigue.
i will tell you
6 Months starting Dec 2, 2011. 5 hours every other week. 5-FU, Oxaliplatin and leucovorin. Will bring home 5-Fu in a bag for the weekend will run through port and bag removed on Mondays
Doxorubicin Cisplation Methotrexate Ifosfomide Etoposide
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
lots of dates, spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints. mercaptiprine, is every day, that just gives her a weird rash. methotrexate makes her sleepy

Fluorouracil (5-FU) Chemotherapy Chemotherapies

What Fluorouracil (5-FU) Chemotherapy Cancer Survivors said about their Chemotherapies.

2weeks of Chemo. Starting the first week of radiation and the last week. Mouth sores low blood pressure. Second round of chemo mouth sores. Hospitalized due to UTI for a week. Spent a month in the hospital. It was hard to recover
Cisplatin and 5FU, nausea and dizziness
Nausea and fatigue. Hair thinning and loss due to mytomycin.
FOLFIRI w/ Avastin 4/2009 - 11/2009, FOLFOX 12/2009-2/2010 Nausea and fatique
mytomycin, 5FU April and May 2010. Loss of hair, nausea, mouth sores
Starting a 5 day pump next week.
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
At recurrence now in 2020 capecetabine (5F-Utablets) and metomicine (1x) . Toxic reaction on capecetabine. (After 2nd opinion in 2018 I declined on chemo because the doctors did not agree on wether it was nessecary.)
Nigro protocol. Other than being tired and losing about 1/4 of my hair, the only serious side effect was mouth sores. I did have optic neuropathy for about 6 hours one week after each 5 FU.
PICC line surgically inserted for take away 24/7 chemo, replaced weekly. skin rash on chest, drop in blood pressure, drop in red cell count requiring x3 blood tranfusions, nausea, dizziness, alternating constipation through pain meds and diarrhea from chemo/radiation combo, mouth sores, lack of appetite.
scheduled for Jan 4, 2010
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
5-FU and mitomycin on week one and week five. Side effects were diarrhea, loss of skin in mouth twice, taste changes, loss of 90% of hair, colon spasms, fecal incontinence. Had a PICC line and had it changed three times in five weeks due to placement problems and then it became blocked before my last chemo treatment. Have two blood clots from it that I am still treating.
01-04-10 began chemotheraphy treatment. Mytomycin infused through port at onocologist's office. Went home with an infusion pump of 5-FU (Fluorouracil) that lasted 4 1/2 days.
1st round 23-27 March 2015 - minimal physical side effects, more pyscologial with PICC line fear and awareness of carrying chemo bottle around for a week. 2nd round 20th -24th April - felt more at ease with the bottle and had no real side effects until the end of the week, then developed terrible mouth sores around back teeth - which I didn't first time round.
96-hr infusion, week 1 and week 5, hated the clicking of the pump! About 35% hair loss on head. Total hair loss under arms and legs. Mild nausea, tired all the time, achy muscles. Ended up with a blood clot in my neck from the chemo port. Was on twice-daily injections of blood thinner for 3 months.
Blood work and chest xray September 11, 2007 Bone scan September 17, 2007 Port installed in right chest area September 18, 2007. MUGA scan September 19, 2007 First Chemo treatment September 20, 2007 Neulasta shot September 21, 2007 Headaches and blurred vision Hospitalized September 25, 2007 Found blood clot in the jugular vein Started on lovenox and warfarin Hair fell out in huge clumps 2nd week after first chemo Second Chemo treatment October 11, 2007 Tiredness, constipation, nausea Changed nausea prescriptions twice Third Chemo treatment November 1, 2007 Potassium too low-put on prescription supplement Nose bleeds and bruising from warfarin, not chemo 2nd MUGA scan scheduled for November 26,2007 4th Chemo scheduled for November 29th
Started Chemo 3/19/12 - completed 4/26/12 with mininal side effects.
5-FU & Mito-3 for 4 days March 2010 and April 2010
2 rounds of 96 hours each
first session 1/5/09 - infusion of 2 hrs for "Xelox" (Oxaliplatin) once every 3 weeks for 8 sessions. "Zeloda" (5-fluorouracil) pills twice a day for two weeks then a week of rest for 8 sessions. SIDE EFFECTS: arm pain (like bad sunburn), cold sensitivity, razor blade throat, first bite pain, diarrehea
2- 5 day rounds of Mitomycin infusion followed by Flouracil pump- Severe mouth sores & tongue swelling 1st round. Had Neupogen shots x4. NeulAsta shot after 2nd round - no sores.
12/23/13-02/03/14- fatigue
June 2012-October 2012; Reported Lethargy, nausea, changes in taste, neuropathy in fingers, weight loss.
6-03--36 weeks of IV chemo therapy. Had problems with severe diarrah, nausa and fatigue 3 days out of 7. Slightly ill the rest of the days with same symtoms, but milder. 2007--doing much better on chemo therapy by adding alternitves. (read below) 12-07- oral Xeloda (chemo therapy). Take for 2 weeks straight 2 times a day, then one week off. Side effects are slight now that I take fermented wheat germ, green wheatgrass and mangoseed juice. The juice improved my energy level a lot! I think we are seeing some results from the fermented wheatgerm as we are now starting to see on my cat scans that things have kind of stopped. In the England Cancer Journal they have proved that fermented wheat germ can slow and sometime cure cancers. The mangoseed juice is made in Asia, this is the only place it grows. It is extremely high levels of antioxidants! Knock on wood I haven't been sick since I started it! I also only eat organic (as much as I can) I eat lot's of greens and fruits. I get protein from the grains and I also eat a lot of nuts. I have felt so much better since doing this it is unbelievable.. I have hand and foot syndrome that this chemo can cause..this can/is be very painful. Febuary 08-New treatments of folfox6, Avastin and 5FU--extreme fatigue-nausa-diarreha-controled by medications for the most part. Need to rest a lot.

Epirubicin Chemotherapy Chemotherapies

What Epirubicin Chemotherapy Cancer Survivors said about their Chemotherapies.

It was called cef (which is cefuroxime, epirubicin, and cyclophosphomide). It is used only in a couple of Canadian provinces as it is very expensive.
Protocol: FEC-T (4 months/every 3 weeks) FEC-T :Epirubicin/Fluorouracil/Cyclophosphamide cycles 1-3, then add Docetaxel for cycles 4-6 Finished chemo November 24/2010
3/15/14 Began 10 session clinical trial at Memorial Sloan Kettering. Chemo iv (cisplatin and epirubicin + trial drug/placebo) every 3 weeks. 2000mg Xeloda pills daily. IV chemo is followed by two days of dextametazone (steroid pills) which give me a boost. Hair loss, dry hands - currently trying to prevent them from cracking, some fatigue. Trying to avoid pain meds because that seems to be the cause of constipation/discomfort.
lots of dates, spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints. mercaptiprine, is every day, that just gives her a weird rash. methotrexate makes her sleepy
sickness, weakness, no appetite, lived off cereal, and jello for a week, no taste,increase in smelling sense was intense 12/24/2005 was the first treatment.
Oral Chemo (Xeloda) - 7/07 to current weight gain, tenderness in hands and feet, fatigue, irritability, feeling full; dehydration
February to May 2014
Sep-feb--The oncologist said it would be " hard going"--that would be one word for it.
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.
preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU.
1st and 4th week of Radiotherapy treatment, chemotherapy was also performed. 24 x 5 delivery of 5FU with a Cisplatin infusion on second day of each of these weeks. Side effects included a 'Chemo crash' both weeks I had the treatment - second week worse than the first (required blood transfusions).
FEC and taxotere. Three treatments of each starting 2/11
Cisplatin, Epirubicin, Capecitabine (Xeloda) #1 June 12, 2017, #2 July 4, 2017 Nausea, Dry mouth, Tingly fingers, blood clot in spleen, hair loss
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months.
3-8-2013 To 11-5-13 chemo. I be off balance, I throw up, lost hair, bones ache, hot flashes all side effects.
Blood work and chest xray September 11, 2007 Bone scan September 17, 2007 Port installed in right chest area September 18, 2007. MUGA scan September 19, 2007 First Chemo treatment September 20, 2007 Neulasta shot September 21, 2007 Headaches and blurred vision Hospitalized September 25, 2007 Found blood clot in the jugular vein Started on lovenox and warfarin Hair fell out in huge clumps 2nd week after first chemo Second Chemo treatment October 11, 2007 Tiredness, constipation, nausea Changed nausea prescriptions twice Third Chemo treatment November 1, 2007 Potassium too low-put on prescription supplement Nose bleeds and bruising from warfarin, not chemo 2nd MUGA scan scheduled for November 26,2007 4th Chemo scheduled for November 29th
Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse. Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo.
took Docetaxol (Taxotere) after FEC - finished chemo July 22
Chop therapy for 7 months
R-Chop, eight sessions one every 3 weeks. Side effects: nausea, loss of appetite, some muscle aches, hair loss, effected my eye sight - had to wear eyeglasses since the 4th chemo.
Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes. I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite. I started Tykerb in Feb 2009. I will continue with Herceptin for at least 7 more months after surgery.
May 23rd 2007 started 6 sessions 3 x F.E.C 3 X Taxotere Ulcers in my mouth, sickness, diarrhoea, thrush, joint pain, loss of finger and toe nails, peeling skin on hands and feet,
6 Treatments - 3 week cycle 3 - FEC 3 - Taxoteer Sept. 7, 2006 through Dec. 21, 2006
Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol

Gemcitabine (Gemzar) Chemotherapy Chemotherapies

What Gemcitabine (Gemzar) Chemotherapy Cancer Survivors said about their Chemotherapies.

Carboplatin started 2007, however I became allergic in 2008, so had to have it changed to Gemzar and Advastin then. Been on and off of chemo since for chronic cancer outbreaks.
I do not remember all of the names. The chemo was a combination of four different chemo drugs. It did not work. My father experienced nausea and could not taste anything so lost his appetite. He also was very sensitive to temperature. We are still waiting to start a trial chemotherapy drug! Pray, pray, pray!
Abraxane and Genzar
Extreme fatigue, delerium
Extreme fatigue, some dry heaving, hair loss, neutropenia
Started July 12. Two weeks on, 1 week off. Plan is 6 cycles. Side Effects - Can’t sleep (steroid pretreatment). Terrible constipation (Nausea meds), Very tired, mild fever, irritability on Day 2-3 post chemo.
Gemcitabine (Gemzar)
6/2011 tiredness, nausea, dizziness
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
5fu from 11/8/16 until 1/5/17. Five hour infusion then wore a pump home for 48 hours. Was supposed to do 8 cycles but only got to 4 when my white cell count dropped and we had to stop. The side effects of this treatment are horrendous. Pain, nausea/vomiting, fatigue, neuropathy in hands and feet, hair loss, cold sensitivity, shaky hands and lips, constipation, night sweats, mouth sores.
Started Chemo - Gemzar & Xeloda - in November 2016. 6 cycles planned. Side effects pretty mild - some nausea and tiredness
On my second round of 2 sessions each which are a week apart
5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared. Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half.
Diarrhea, fatigue, numbness in finger tips and toes
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.
Taxol/Carbo 12/02-5/03 (with 2 Gemzar treatments) Avastin 8/06- 5/07 Etoposide / Avastin 8/08- Present
Gemzar started Jan 2014. Once a week for three weeks then one week off for six rounds; liver function elevated and dehydration, fatigue , vision affected .
Initially 2 rounds of Folfirinox, that increased liver enzymes and CA-19-9
given up on dates the first time on chemo was 7 months and this time has been 9 months
About to start chemotherapy
<b>February 2009:</b> CA125 level was around 3500. She began treatment with Taxol/Carbo with Avastin. Within two weeks, she lost all of her gorgeous red hair. Energy level dropped significantly. She continued having "maintenance" chemo. <b>June 2009:</b> CA125 dropped to 32, and then to 16 later that month. Oncologist decided to stop chemo- as there was no sign of cancer! <b>March 2010:</b> Having chest pain/shortness of breath. CT scan showed fluid in her lungs. Testing after thoracentesis revealed cancerous cells in the fluid. CA125 was back up to 300. It is now referred to as "RECURRENT CANCER" She began chemo again: Cisplatin and Gemzar. Cisplatin was causing tinnitus. Oncologist decided to discontinue to avoid permanent hearing damage. The Gemzar would usually burn during infusion. Side effects: headaches, intense nausea and often uncontrollable vomiting. Drastic decrease in appetite (and weight: about 70lbs) Last time it was checked, her CA12 was hovering around 86. I'm guessing it's currently off the charts.
June 2015 until Jan 2016 Second course started Feb 26, 2018 ending May 7 2018
Nausea, fatigue/sleepiness, "Chemo brain" (inability to concentrate), dry skin, no nail growth, hair loss. January - May as of now
Folfox mix of chemotherapy -nausea, vomiting, diahhrea , nil taste I food, shaking, mouth ulcers, dry skin
Started with nine drops of Taxol and had an allergic reaction that caused me to stop breathing. Then switched to Gemzar and Carboplatin. Had some nausea but started taking Emend....VERY tired.

Irinotecan (Campto) Chemotherapy Chemotherapies

What Irinotecan (Campto) Chemotherapy Cancer Survivors said about their Chemotherapies.

March 22(3 types of chemo) i feel it lessened his quality of life, but for my dad he needed to fight back!!!
11/06-oxaliplain,xeloda....tingling and cold sensitivity in hands and feet, fatigue 11/07-irinotecan, avastin, 5FU, diahrrea, fatigue, burning and cramping in abdomen started erbitux january 2010, adding irinotecan this week, sept 20, 2010...post-note that irinotecan caused so much diahrrhea I became too hydrated and wound up in hospital. i had a blockage too, but just sayin'! ;)
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
Mar 4 _ Sept 15 2015(Folfirinox)Nausea, weakness, vomiting, low potassium, low platelets (despair)
Chop therapy for 7 months
9/07 for 5 months every 2-3 weeks.Fulfox, Five FU, evastin, oxalyplatin -Side affects were mild and temporary such has hair loss (complete on first round) mild neuropathy, Hand and food syndrome. Slight diarrhea but NO nasuea. Loss of appetite, loss of taste. 06/08 Second round of chemo (Irinotecan) more nausea but virtually no diarrhea. neuropathy has returned slightly. I can still taste things after 2 rounds of chemo this time.
2 cycles of 5-FU, FOLFOX for tumor, R-CHOP for B-Cell and now 6 cycles of FOL-FIRI
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
Sept. 2010 to Nov. 2010 - Oxcaliplatin, 5FU, Avastin. Oxc. not working changed to Irinotecan/Avastin. till April 2011. Tumor growth in liver and lymphnodes. Itinotean/Erbitux from June 2011 till present.
3 sessions on Folferinox in September and October 2019. Scan on 17 October showed spread to liver (spots) and tumour growth. Folferinox side effects were fatigue, pain and breathlessness.
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007 Nueropathy, memory loss, balance issues, joint and muscle pain
Folfirinox Jan 2013 - Feb 2013, switched to Abraxane and Gemcitabine March 2013-current
started chemo on 12/11/07 clinical trial with avastin,erbitux,oxaliplatin,lecovorin,5FU..now irenotican
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
Nine rounds of Folfirinox treatment before surgery and more after.
Began chemo in July of '09 with camptosar, leucovrin, and 5-fu. this is over a 46 hour period. In January '10, they added avastin and zometa to the regimin and is ongoing.
Flu like symptoms and fatigue.
Bi-weekly chemo. Energy levels vary. Diarrhea, one day only usually. Keep hydrated.
6 weeks Flourcil (pills) and radiation Oct - Nov 2015 10 sessions IV chemo (avastin, oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016 Hands and feet numness Little nausea Fingernails thinned Balding
Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.) after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash
Too many to mention-16 months in total(6,6,4) Every drug they have for colon cancer.
Alt Folfiri/Folfox 2010/Feb through 2010/June Folfiri/Erbitux started 2011/March Changed to Folfox/Avastin 2011/Oct Clinical trials 2012/Sept
5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared. Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half.
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.

Vinorelbine (Navelbine) Chemotherapy Chemotherapies

What Vinorelbine (Navelbine) Chemotherapy Cancer Survivors said about their Chemotherapies.

I begin chemotherapy on the April 8th. 4 rounds of 3 weeks each of Vinorelbine and Carboplatin. (Originally Cistoplatin but the doctor changed it cuz my ears were ringing)Worst side effects are feeling like lead and/or rubber, forgetfulness, weight gain, insomnia and aching bones, muscle and skin.
2000 - Chemotherapy
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
Chop therapy for 7 months
I've taken chemo for 3 years now, many kinds of chemo, my "favorite" is Xeloda.
Taxotere Aug 2008 - Dec 2008 (3-weekly) Herceptin Aug 2008 - Aug 2009 and Dec 2009 - March 2011 (3-weekly) Vinorelbine Dec 2009- May 2010 (for regional recurrence to Internal Mammary nodes - not involved the first time round) Capecitabine (Xeloda)April 2011 - October 2011(for Liver metastasis) Adriamycin - December 2011 - February 2012 Taxol March 2012
1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
Multiple regimens
Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
ABVD- nausea, fatigue, wooziness, thinning hair ICE- nausea, fatigue, wooziness, total hair loss, bleeding gums and mouth sores GND- some fatigue, mouth sores
Six rounds in 2008 and 12 rounds in 2015 got through these not too bad in the big scheme of things.

Cisplatin (Platinol, Platinol-AQ) Chemotherapy Chemotherapies

What Cisplatin (Platinol, Platinol-AQ) Chemotherapy Cancer Survivors said about their Chemotherapies.

Undergoing chemotherapy in Chennai, India. Started on July 12, 2009. Total 12 doses. Hair loss, vomiting, fatigue, loss of appetite, etc
3 cisplatin treatments, concurrent with radiation treatments
February 25, 2011 - Cysplatin (Cisplatyn) I don't know 4 of 8 weeks only as it ruined my throat way early and did it's job - according to the dr.
Jan 21- vomit, headaches, fatigue, lack of sleep, sore throat, cold sores, dry mouth, weak, pain, dry skin, headaches
Nausea, Constipation
10/11/2016, 10/18/2016, 10/25/2016, 11/01/2016. I was supposed to have 6 rounds could not continue because the WBC were to low. Had to get neupogen shots to increase the cell counts, before the 2 rounds of brachytherapy. Again, no adverse effects from the chemo either.
03/05/14 Chemo 1-Chills & sweat & nausea the next 4 days.. 03/26/14 Chemo 2-Chills & sweat & un able to eat the next 4 days.
3 x cycles of Cisplatin 80mg/m^2 over 9 weeks prior to Radiotherapy 3 x cycles of Xeloda (14 tablets) over 9 weeks prior to Radiotherapy Once weekly 40mg2 Cisplatin during Radiotherapy
Oct 07 to Dec 07 - Cisplatin chemo 1x a week with radiation;. Constant terrible nausea, very sensitive to tastes and smells. Ate only carbs, couldn't even stand the smell of my dog! Everything nauseated me. Aug 08 to Dec 08 - Carboplatin and Paclitaxel every 3 weeks x 6 doses. Hair gone by 2nd treatment, fluid overload on chemo days due to drugs being hard on kidneys - had to flush. About 2-3 days post chemo, horrible bone pain, numbness and tingling in hands and feet (peripheral neuropathy) and constipation that almost hospitalized me. Would last for a week or so and then settle down. Horrible fatigue, felt like lead. My hair started coming back really quickly after treatment stopped,but the neuropathy lasted almost a year, fatigue continues to be a problem. UPDATE Feb/10: Going back for another 6 rounds of the not so pretty poison. Carbo/Taxol once again. Gonna miss my hair...oh yeah, and the ability to feel human!
Began 5FU and cisplatin chemo on 1/4/10 and 2/1/10 for 1 wk cycles. Side effects: nausea, vomiting, diarrhea, mouth sores, and fatigue. Hospitalized after last day of 5fu infusions for 3wks for chemo toxicity, diarrhea, severe abdominal cramping, dehydration uncontrollable fever, etc. At least I had completed menopause at age 42 and did not have to deal with the emotional side of this. Stopped HRT during treatments only.
Chemo Began 12/02/2013... Bleomycin-Cisplatin and Etoposide
nauseousness....
A 2 chemical soup every 3rd Monday and then a 24/5 fanny pack pump the same week as above. I have 1 week on and 2 weeks off treatment
Cisplatin. 2 infusions 3 weeks apart.
R-COP, mabthera and then R-CHOP
May 2015, 6 weeks. Hair loss, weight loss, nausea
Have had 5 chemo treatments. Took 5 hour "naps" afterwards. Some foods tasted nasty! Normally a huge water drinker but water nauseated me. Required at home IV infusions of Potassium and Magnesium for 8 hours/day for total of 15 days, also received a few infusions at the clinic for dehydration and low electrolytes. Anti-nausea meds didn't work on me.
chemotherapy given from January to September Side effects: dehydration, vomiting, blood transfusions
2 cisplatin 3/22/2011: nausea! and fatigue!
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
January 6 2015, February 18, 2015 nauseous fatigue
IP and IV chemo started March 1,2016
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
5/21/12 first week via port 7/2/12 2nd week via port Every third week 11/26/12 to 3/11/13, 5 hr drip 4/7/15 every 2 weeks
July 24,2009 first treatment taxol and carboplatin. The only problem I had was my own fault. I got sick that night because I came home and ate stewed tomatoes and chased it down with a Pepsi! Big mistake because I quickly learned that Chemo and acid DON'T mix. Treatments 2,3, bought feet itching, loss of smell and taste. Treatment 4 was not to bad slight big toe bleeds but manageable, slight problem with vision seeing bright white spaces from within my eyes. Treatment 5 I had a mouth bleed, neuropthy more consistant. Treatment 6 manageable but eyes still have the spots. Neuropthy worsens, still itching.

Carboplatin (Paraplatin) Chemotherapy Chemotherapies

What Carboplatin (Paraplatin) Chemotherapy Cancer Survivors said about their Chemotherapies.

Chemo 6/21/10, 7/12/10, 8/2/10, 8/24/10, 9/14/10 - nausea, fatigue, bone & joint pain, diarrhea, neuropathy; scheduled for 1 more round
Carboplatin - 6 Weekly infusions completed February 27
7/15/13 1st round of chemo with Mitomycin and 96 hr (5 day) pump of 5-FU. Nausea, mouth sores, lack of appetite, weight loss. 8/12/13 2nd round of chemo ... same medication and side effects as 1st. Starting 7/18/14 Cisplatin, 5-FU. Every 3 weeks. Nausea, mouth sores 9/22 Carboplatin, 5-FU Every 3 weeks. Nausea, mouth changes 6/25/15 Carboplatin, Taxol every 3 weeks. Fatigue 7/15/15 Carboplatin, Taxol, Vectibix every 3 wks. Fatigue, Nausea, Dry Skin, Acne-like blemishes
Started weekly induction chemo on 9/5/13 with carboplatin and paclitaxel- soreness in mouth, slight nausea, dry skin (severe itching), acid reflux. Started chemo-radiation on 11/4/13 using cisplatin. Received 5 weekly cisplatin treatments until wbc count was too low.
Begin weekly Erbitux 9/10/13, Cisplatin/5FU 5/14, CarboTaxol 7/15
Cyclophosphamid Carpoplatin Taxol
R-CHOP R-ICE ESHAP
8 total cycles...6 while undergoing radiation (reduced rate) followed by 2 of triple dose after radiation.
Lost hair not much else
Taxotere & Carboplatin 6/30/11- 10/13/11 All classic symptoms
carboplation and alimpta 4 treatment rounds, a lot of pain and nausea and increasing weakness
Four treatments, most recent on 4 August, #5 scheduled for 25 August. Side Effects - minor nausea, extreme fatigue, loss of appetite and sense of taste and smell. carboplatin and Alimta (pemetrexed)for #'s 1-4. Provider stopped shipments of carboplatin so #5 and any remaining will be only the Alimta.
currently doing carbo/taxol every three weeks. Extreme fatigue, muscle aches, taste changes
june 13 2011. no side effects yet
Dizziness and low blood pressure
CarboPlatin & taxol w/ neuplasta at 3 wk intervals from Aug to Oct Severe constant leg pains, neuropathy in feet and hands, high heart rate. Unable to stand for more than 10 minutes, stumbling, dropping things regularly Treatment changing to CarboPlatin & doxil w/ neuplasta.
Taxol and Carboplatin May 2003-November 2004
3/19-5/19: carboplatin, taxol for 3 rounds, with avastin for 2 of those (fatigue, assorted irritable stomach issues; with avastin: raspy voice/throat, sniffy) 6/19-8/18: carboplatin, taxol for 3 rounds, with avastin for 2 (see above but a little more so, since it was after THE BIG SURGERY 7/20-? carboplatin, doxil for 6 rounds (SO FAR: intense headache for a few days, some lightheadedness and nausea)
4 months of chemo. Made me achy like having the flu but much worse especially in my legs, naseous, food tasted bad, water tasted bad, low energy.
4 rounds of Adriamycin and Cyclophosphamide together every 2 weeks. I am done with those 4 rounds. 4 rounds of Taxol every 2 weeks I have 3 rounds left. Xeloda for a year, Gemzar and carbo still doing it once a month until I guess it stops working.
6 rounds of chemo, fatigue, weight loss neuropathy. Chemo brain
There were eight cycles of chemotherapy: 4 before surgery and after surgery 4. My body responded well to chemotherapy and tumor marker (CA 125) decreased from 690 for 4.
<b>February 2009:</b> CA125 level was around 3500. She began treatment with Taxol/Carbo with Avastin. Within two weeks, she lost all of her gorgeous red hair. Energy level dropped significantly. She continued having "maintenance" chemo. <b>June 2009:</b> CA125 dropped to 32, and then to 16 later that month. Oncologist decided to stop chemo- as there was no sign of cancer! <b>March 2010:</b> Having chest pain/shortness of breath. CT scan showed fluid in her lungs. Testing after thoracentesis revealed cancerous cells in the fluid. CA125 was back up to 300. It is now referred to as "RECURRENT CANCER" She began chemo again: Cisplatin and Gemzar. Cisplatin was causing tinnitus. Oncologist decided to discontinue to avoid permanent hearing damage. The Gemzar would usually burn during infusion. Side effects: headaches, intense nausea and often uncontrollable vomiting. Drastic decrease in appetite (and weight: about 70lbs) Last time it was checked, her CA12 was hovering around 86. I'm guessing it's currently off the charts.
July 2011 started with carboplatin and taxol (7 rounds in all). Reaction to the decadron had some nausea at the beginning sol they tweaked it with emend, sore muscles and joints day 4,5,6,7 after chemo usually spent in bed. and spent the rest of the time getting semi normal before the next round Stopped in Sept until december 2011 during which i had surgery last treatment january 20 2012
Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.

Doxorubicin, Leomycin. Inblastine, Acarbazine (ABVD) Chemotherapy Chemotherapies

What Doxorubicin, Leomycin. Inblastine, Acarbazine (ABVD) Chemotherapy Cancer Survivors said about their Chemotherapies.

August 10th 2010 -Present 6 Cycles -12 Treatments
started Feb. 26, 2010 I was admitted to hospital every 3 weeks for a total of 6 rounds of treatment - Cycles A and B.
R-CHOP to start 5/24/18 - 6 treatments
First R-CHOP on 12/28/2015 which was from 7:00am to 6:00pm. Had a reaction to the Rituxan of red hives on face, so they had to stop treatment for a half hour and treat reaction before continuing with the Chemo. Feel tired and cold. After the first chemo treatment, the next 3 had almost no side effects.
3/20/19 first cycle R-Chop
Getting chemo doesn't hurt. I don't feel the chemo being injected, and I feel fine for 3 days after, minus the fatigue. Nausea, headaches, body aches, upset stomach are my most common side effects when my medications are done.
ABVD chemotherapy, treatment every two weeks for six months (6 cycles). Extreme nausea and vomiting (eventually brought under control by drugs), fatigue and breathlessness, stomach pain and bloating, complete loss of hair, tooth pain, mouth sores, extreme salivary gland pain, loss of some finger and toe nails, mild nose bleeds, mild constipation.
Got temporary remission during some 16 months of various drugs, but no lasting remission
1/7/2014 and every 14 days thereafter - Nausea, jaw pain, loss of taste, hair loss, fatigue 6/10/2014 - chemo complete (6 cycles ABVD)
first round 09/08/11-ABVD-headache, swollen tongue, blisters on tongue, vomitting, nausea, bone aches.
R-CHOP BEGINNING ON 12.21.2015
ABVD Six months
3/2012 Adriamycin and dacarbazine 6 cycles 12/2012- 10/2013 votrient 600mg every day. 10/2013 - present gem/tax
AVD (Dr. says I don't need the B) constipation, nausia, jaw tingle, red hot face, tired, dizziness
ABVD started in December 2011-May 2012. Hair loss, nauscia, weakness. ICE July 2012-August 2012 Hair loss, nausea, weakness
Several months of CHOP+Bleo. Got very bloated from Prednazone. Total body baldness, of course. My skin actually got quite beautiful and baby smooth. Toenails fell off. Heart and lung damage from Bleo. My mouth and throat were scarred by sores and from vomiting. Kidneys have been very vulnerable ever since. (Just want to add, I HAVE NO COMPLAINTS ABOUT ANY OF THIS. I lived! It was worth it.)
6cycles of Chemotherapy was planned that is a six montha duration.ABVD doses was induced in every fifteen days through veinflow during the first 3 cycles and later through picc line which was less painful. Side effects of chemo were many starting with gastritis, acidity, nausea, body pain,hair loss,fatigue...but this would be fine within a week after wbc count increases to normal level.
ABVD- October 22, 2010-
Induction round 12/22/14-1/19-15: nausea, vomiting, diarrhea, fatigue Consolidation February '15, Consolidation March '15, Consolidation April '15
Initial treatmeent: ABVD/MOPP (8/92-12/92). I received 6 cycles with complete response. The chemo was relatively well-tolerated. Salvage treatment: DECAL (Dexamethasone, Etoposide, Cisplatin, Ara-C, L-Asparaginase) 9/92-12/92. One brutal regimen! Cisplatin was the worst. Three cycles with complete response followed by stem cell transplant.
ABVD 12 rounds, 6 months
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)
started ABVD March 2011
Protocol #1: First of 3-21 day cycles of 5-FU, Cisplatin and Docetaxel started 10/7/13 - around the 2 or 3 week started losing hair and experiencing nausea, fatigue, weight loss, etc; Protocol #2: Eribtux and concurrent radiation for 6 weeks started ~12/10/13 - neuropathy in feetbegan a few months after treatment stopped and is still ongoing.
Yes, My chemotherapy treatment was ABVD.

Tarceva (Erlotinib) Chemotherapy Chemotherapies

What Tarceva (Erlotinib) Chemotherapy Cancer Survivors said about their Chemotherapies.

January-April 2009
3-8-2013 To 11-5-13 chemo. I be off balance, I throw up, lost hair, bones ache, hot flashes all side effects.
Fatigue, acne, diarrhea, numbness and pain in fingers and feet, no appetite, foggy-brained, rheumatism, sensitive to sunlight, no taste, fungus in mouth and lung, partial loss of hair
Avastin-2008 and 2011, Cisplastin-2009 and 2011, and Tarceva-2011.
I've been in chemo since june 2011. I was taking 3 different kinds every three weeks but now have gone to just one kind. the initial treatments caused heartburn, hair loss, vision loss, hearing loss, skin discoloration, skin burns, nausea and vomiting, dizzyness, hot flashes, chemo induced asthma, chemo induced menopause, bone pain, I was not able to taste foods that were not sweet, there are many more but I feel like I"m whining...lol
One a day pill forever (took 150 mg for 2 years). Down to 100 mg due to vertigo, fatigue. Other side effects, slow/non hair growth, rash, dry skin, dry mouth
daily intake of a chemo tablet
December 2004 - Present off and on. On Avastin and Tarceva currently, but stopping to start a new chemo.

Xeloda Chemotherapy Chemotherapies

What Xeloda Chemotherapy Cancer Survivors said about their Chemotherapies.

Cisplatin, Epirubicin, Capecitabine (Xeloda) #1 June 12, 2017, #2 July 4, 2017 Nausea, Dry mouth, Tingly fingers, blood clot in spleen, hair loss
Oxalyplatin, 5FU, Xeloda, Leuvecorin - Started 10/31/11, on 4th infusion 1/4/12
Xeloda (oral chemo) for two and a half weeks.
Capecitabine, Tablet form chemotherapy, two tablets a day, three week on, one week off. Side Effects, Sickness, Fatigue, Blotchy skin.
2 IV chemo treatments, on day one, then 2nd delayed due to dehydration, also 6 pills/day for 30 days, same timing as radiation, very tired, no appetite, lost 15 pounds
Fatigue, acne, diarrhea, numbness and pain in fingers and feet, no appetite, foggy-brained, rheumatism, sensitive to sunlight, no taste, fungus in mouth and lung, partial loss of hair
Week 1: Mitomycin 15mg IVP Generic Xeloda 500mg 2 tablets started every 12 hours. Just felt queasy and very fatigue. Week 4: Mitomycin 9mg IVP, continue Xeloda. Developed skin blister to back. Overall, no hair loss, no vomiting, no mouth sores
Taking pills(xeloda) 2 x day only on radiation days. Mitomycin IV 1st day and 28th day of radiation treatment Some nausea/Anti nausea pills help
Some nausea, kept most of my hair.
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
Fatigue, feeling very cold, emotional side effects
10/13/14 - 11/26/14 (1st Round) 12/23/14 for 5 weeks (2nd Round)
Mitomicyn push on day 1 and day 29. Xeloda 5 days a week for 7 weeks. 3 pills in AM and 3 pills in the PM.
Too many chemo regimens and drugs to count. At present, I am on Xeloda, Herceptin and Avastin. One drug was damaging my liver, but okay now. Herceptin was damaging my heart, but it is okay now.
Xeloda- oral chemo, twice a day for 7 weeks, June 22-August 7, headaches, tightness in chest after physical activity, leukopenia Intravenous- 4 months of chemo after surgery, details have yet to be determined
I had 2 chemotherapy drugs. Eloxatin (oxaliplatin) which was given through my port at my Oncologist's office. I also took Xeloda which is a chemotherapy drug (pills) taken at home. I also had a wonderful Oncologist who worked well with my surgeon.
My mum went through a number of drugs to treat the cancer which kept on returning almost every single year from 2008-2011: Avasatin, Xeloda, Folfox, Folfiri, Erbitux. The side-effects are almost always similar: nausea, tiredness, vomiting, loss of appetite, mouth and throat sores. The first day after chemo she never manages to sleep well.
started with leucovorin, oxaliplatin, avastin, folfox pump, then camptosar, erbitux, folfuri pump, currently undergoing clinical trial with Xeloda and maybe or maybe not perifosine few side effects, I guess I've been lucky
One month off after the radiation concluded. I go in every third week to receive and IV of Oxilyplatin. I take 1650 mg of Xeloda twice daily starting with the date of iv, and lasting for 14 days. Thus far I've received 2 of six iv treatments. Side effects have been marginal and temporary. Sensitivity to cold lasts around 3 days. Some tingling in the hands and arm where the iv went in. Goes away after a few days.
No problems with chemo. Lots of itching from radiation
Started today 2020
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss 6 rounds Hepatic artery infusion (oxaliplatin)avastin 3 month Jakafi (oral) unknown trial drug nano cisplatin and gemcitabine
Bendamustine Rituximab
Started Xeloda in 11/2019, took 3 pills morning and evening 2 weeks on 1 week off, for 5 months. Only side effect was hand and foot syndrome. It started slowly but peeling and sensitivity on my feet got so bad I had to take a break for a month to let things heal. They did heal and was restarted on dose of 2 pills morning 3 at night, still 2 weeks on 1 week off. I found that the Urea cream they recommended left a chalky residue and messed with my skin. I started using a combination of essential oils mixed with fractionated coconut oil along with Gold Bond overnight cream several times a day worked really well. I use Tumeric, Tea Tree, Lavender, and Frankincense oils. Using this, along with watching what shoes I wear, seems to work really well for my feet and hands.
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018

Etoposide (VePesid) Chemotherapy Chemotherapies

What Etoposide (VePesid) Chemotherapy Cancer Survivors said about their Chemotherapies.

Doxorubicin Cisplation Methotrexate Ifosfomide Etoposide
I had three rounds of chemo in three week cycles. Week 1: 5 days of treatment (admitted in hospital) Week 2: Recovery in hospital Week 3: Recovery at home I experienced low blood pressure, dehydration, nausea, fatigue and anaemia. I still have fatigue after treatment, muscle atrophy and peripheral neuropathy.
cistplatin, bleomyocin, etopiside, numbness in hands and feet nausea and weakness major chemo brain
3 days chemo every 21 days. Hydration as needed. Tiredness and nausea/vomiting at times.
Chemo Began 12/02/2013... Bleomycin-Cisplatin and Etoposide
ABVD Six months
Induction Theraphy Cytarabine and Doxorubicin for 8 days. I just start my Consolidation theraphy last March 30. Which is Doxorubicin for 1hour and vincristine(push) and cytarabine IT(so painful)
ABVD started in December 2011-May 2012. Hair loss, nauscia, weakness. ICE July 2012-August 2012 Hair loss, nausea, weakness
BEP chemo
started 10/19/2015 R- EPOCH 6 treatments fatigue
Cisplatin & Etoposide May/18-August/18. Four rounds of treatment 3-4 weeks apart. Side effects- Hair loss, nausea, weakness & fatigue, weight loss
starting the 2nd week of August 2013
VP-16 and Carboplatin with first cycle began in April 2011 and finished in Sept. 2011 after 8 cycles - usual side effects Hair-Loss Fatigue Metal Taste Mouth Sores Ongoing White Blood Count Issues Ongoing Red Blood Count Issue Multiple Blood Transfusions
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
IE and VAC treatment every 3 weeks. Lost weight and all my hair/ body hair
Rituxan/Bendamustine (Summer 2010) - very little except fatigue. R-CHOP (summer 2011) - nausea, fatigue, hair loss
Rituximab, Cyclophosphamide, Vincristine, Prednisone on 3 week cycles. Started 1st September 2010. Side effects - constipation, mild nausea, night sweats, tiredness, mood swings.
AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
Chemotherapy lasted from July 2010 - August 2011 His chemotherapy consisted of Vincristine, Doxorubicin, Cyclophosphamide, Ifosfamide, and Etoposide. Some vomiting and lots of nausea.
3 cycles of: Cisplatin, Bleomycin, and Etopiside which caused nausea, fatigue, by second cycle I could no longer naturally fall asleep, escalated pulse, anxiety, depression, dry mouth and skin which now I have scratch marks on my back, vomiting, got a finger infection so wear rubber gloves when counts are low and a mask, slight ringing in ears, raw esophogus, heartburn and diarrhea.
Cisplatin once a week In conjunction with the radiation. Then Five series with Etoposide.
Chemotherapy started in September 2011 and continued every three weeks either daily for a week, or a single day dose of VAC - crappy crappy side effects, where do I start......numb finger tips, constipation, hair loss, loss of taste buds, thrush in mouth, lack of concentration, sooooo exhausted after each dose and weeks later. It is very true that the chemo is so much harder than the cancer to deal with.
Initial diagnosis required 1 round chemo -Carboplatin - minimal side effects Return of cancer - 4 rounds of chemo ( EP) 21 day cycles includes five continuous days of infusion then rest. No nausea but gastric reflux with vomiting, scalp pain, metallic taste in mouth, tiredness, neutropenia
Dose adjusted R-EPOCH. Six rounds. 21 day cycles. Chemo administered as an inpatient. Started chemo December 19, 2011. Finished April 26, 2012.
nausea, fatigue, anxiety, depression, dizziness, vomitting

Imatinib Mesylate (Gleevec) Chemotherapy Chemotherapies

What Imatinib Mesylate (Gleevec) Chemotherapy Cancer Survivors said about their Chemotherapies.

Gleevec 400 mg. daily, nausea, taking anti nausea medication
Daily 400mg Gleevec. Daily fatigue. Slow morning wake up. Memory problems they call Gleevec brain. Polyneuropathy: pain and weakness in body. I use a cane when walking outside. Diarrhea. I did just find out that I am now in remission but must stay on the Gleevec for 2 years. I am totally grateful that Gleevec exists for me and for all CML patients. Good luck to all of us!

Sorafinib (Nexavar) Chemotherapy Chemotherapies

What Sorafinib (Nexavar) Chemotherapy Cancer Survivors said about their Chemotherapies.

11-19 chemo pellets not sure of the name, nausea,
Nexavar 8/22/12 - forever, side effects all listed
Nexavar for 6 months. Infusion therapy started 2 weeks ago and ongoing bi-weekly.

Topotecan (Hycamtin) Chemotherapy Chemotherapies

What Topotecan (Hycamtin) Chemotherapy Cancer Survivors said about their Chemotherapies.

Have had chemo continuously for 2 years
Carboplatin and Taxol, 8/11/2011. Sun-sensitive day after infusion (doesn't that sound like something you'd pay extra for at a spa?), then joint pain, peripheral neuropathy, fatigue on days three and four following chemo. Get better pain meds for next round!
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
Loss of hair and nausea
7-2010 IP/IV chemo x 6 cycles ( cisplatin/taxol/carboplatin) Hair loss, extreme fatigue, abdominal pain... 11-2011 ca125 on the rise. 4/6 cycles complete of topotecan. Ca125 back in its place. BRCA 1 Minimal side effects: reasonable fatigue and well controlled nausea.
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)

Vincristine (Oncovin, Vincasar PFS) Chemotherapy Chemotherapies

What Vincristine (Oncovin, Vincasar PFS) Chemotherapy Cancer Survivors said about their Chemotherapies.

R-CHOP side effects are nausea, fatigue, hair loss, and chronic diarrhea. I lost 15 pounds - no complaints about that! Ativan was very effective in treating the nausea, but made me very sleepy.
Stopping R-Chop Chemo on December 5th 2012. Cancer growing. Started a new Chemo Regimen on Dec 10th 2012.B-R( Rituximab and Bendamustine)Stopped Rituximab and Bendamustine regimen on February 18th,2013 due to developing PML in the brain. Started back on ( Rituximab and Bendamustine) PML cleared. Started in Nov 2013 on Tremsirolimus
November 16 Started cycle of RCHOP followed by methotrexate for CNS 10 days later and RCHOP 11 days after that. finished this in April 17 no major side effects nutropenia, numbness in fingers which stopped with medication, constipation. Returned to wrk in May 2017
RCHOPx6 started on 2/21/14 Some nausa and loss of appetite shortly after infusion, Some numbness in fingers after 4th infusion. Taste buds don't work for a few days after infusion
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
At first it was the same as radiation, but when they got aggressive in August, I was stuck to the couch for 2 weeks. Weakness, major nausea, muscle and bone pain, throat swelling, mouth sores, major shivers and shakiness, tremors, spinal and head pain, throbbing from head to lower spine...theres more but can't remember them all.
4 monthly rounds of VAD prior to allogenous bone marrow transplant.
Rituxan/Bendamustine (Summer 2010) - very little except fatigue. R-CHOP (summer 2011) - nausea, fatigue, hair loss
RCHOP, 5/9/2019. back pain, lethargy, nausea
An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010: Vincristine PEG-aspariginase Doxorubicin Methotrexate Cytoxan Cytarabine 6-MP 6-TG Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain.
R-CHOP14 to start on September 13 for six cycles.
12/8/14 R+Chop thrush, severe upper and lower abdominal pain, pain in muscles and joints, extreme fatigue, constipation, constant coughing, aspirating fluids into lungs. Gastric Reflux activated to point of juices flying up in throat even while on Omeprazole. Neuropathy-numbness and tingling hands and feet. Tongue is numb and can't taste anything. Hair loss 14 days post chemo. 12/29/14 - Severe Upper and lower abdominal pain, constant coughing, still aspirating fluids into lungs, lost my voice, vocal chords are fire engine red, the gastric reflux is so bad they had to add two more medications to my Omeprazole, Zantac, and Carafate. I have Flu symptoms, congestion, post nasal drip, pain in muscles and bones, numbness and tingling in hands and feet. Can't taste anything. Taste buds come back after 3 weeks. 1/19/15 -R+Chop- continue to have numbness and tingling in hands and feet. I drop things and can't feel things in my fingers. 1/20/14 Neulasta injection - exactly 24 hours after injection. Really sore muscles and joint pain all over. lower abdominal pain, constipation, extreme fatigue, coughing.
ill for a couple of days after treatments 1/15 - don't know if what is going on with me now is latent effects or new cancer
First R-CHOP on 12/28/2015 which was from 7:00am to 6:00pm. Had a reaction to the Rituxan of red hives on face, so they had to stop treatment for a half hour and treat reaction before continuing with the Chemo. Feel tired and cold. After the first chemo treatment, the next 3 had almost no side effects.
R-CHOP: 4 Rounds: 2/3/15, 2/24/15, 3/17/15, 4/20/15 - Fatigue, Nausea, Vomitting, Dry Skin, Blisters, Mouth Sores, Headaches, Alopecia
R-CHOP Four cycles, three weeks apart. March 26 thru July 7 2015. Minimal thru first stage thus far.
I don't remember all of them, but cytotoxin was one of them
6 cycles of R-EPOCH
R-CHOP BEGINNING ON 12.21.2015
4 rounds of chemotherapy "R-CHOP", every 3 weeks for 12 weeks. 1 round of radiation therapy. Nauseated, feeling like am in a fog. I chew on ice chips prior to and during the administer of Adriamycin (red devil) to prevent mouth sores. So far it works!!!
1st treatment, August 23rd, 2011...which is tomorrow, so I don't know what side effects I'm going to have.
R C h o p. 21, Six cycles stated feb 11 last one ( hopefully )June 1st 2011. Severe tummy gloating, gas, and pain. Heavy fatigue and nausea, constipation, sweats, hair loss, neuropathy, weight gain in trunk area. Sweats. Fevers. Period gone after first week. Dunno if gone 4 good.
R-CHOP every 3 weeks for 6 cycles
R-CHOP R-ICE ESHAP

Vinblastine (Velban) Chemotherapy Chemotherapies

What Vinblastine (Velban) Chemotherapy Cancer Survivors said about their Chemotherapies.

6cycles of Chemotherapy was planned that is a six montha duration.ABVD doses was induced in every fifteen days through veinflow during the first 3 cycles and later through picc line which was less painful. Side effects of chemo were many starting with gastritis, acidity, nausea, body pain,hair loss,fatigue...but this would be fine within a week after wbc count increases to normal level.
AVD (Dr. says I don't need the B) constipation, nausia, jaw tingle, red hot face, tired, dizziness
1991 April to June MAKOP B, 12 months treatment plan administered weekly over 12 weeks, ulcers, nausea, tiredness, loss of nerve sensations in extremities, severe constipation, hair loss (lol)
ABVD Chemo every other Tuesday 12 times.
R-CHOP 6
AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
ABVD Six months
6 rounds/12 treatments ABVD (Could only find Adriamycin and Vinblastin to list here) over the course of 6 months
(ABVD) Loss of hair, nausea, fatigue, loss of appetite, Random flushness, metallic taste in mouth, sores inside mouth

Erbitux (Cituximab) Chemotherapy Chemotherapies

What Erbitux (Cituximab) Chemotherapy Cancer Survivors said about their Chemotherapies.

Erbitux (Cetuximab) taken, due to success with HPV-16 related cancers. 7 infusion sessions, starting one week before radiation commencement. First session gave me the worst headache of my life, terrible chills, fever, nausea (but only brief vomiting) and profound weakness. Started about 7 hours after treatment. Subsequent sessions have had less impact; primary complaint being weakness and fatigue. Blistering rash encompassing head, neck, shoulders, chest and back. Very itchy and painful. Appeared by second week of treatment. Now in 4th week, the pustules have subsided somewhat, but lotions are essential to keep the skin peeling controlled.
Erbitux, once a week for 7 weeks, starting in August. Initially, severe tongue sensitivity (at one point even water was like battery acid). For most of the treatment time, daily nausea and and severe acid reflux with occasional vomiting. As of today: chemotherapy induced neuropathy of the right leg causing the inability to lift my toes or my ankle (currently wearing a brace), but expect this to improve; whatever contribution Erbitux has towards complete dry mouth and lact of taste.
Erbitux (cetuximab), loading dose 25 Jan, caused mild temp and nausea, then no similar effects during the 8-week course of treatment. Significant skin effects (acne, painful splitting of skin on fingertips, toes, and heels). No real nausea, vomiting, or diarrhea caused by the Erbitux.
Jan 21- vomit, headaches, fatigue, lack of sleep, sore throat, cold sores, dry mouth, weak, pain, dry skin, headaches
Start with erbitux on Nov 12th and follow with weekly doses every Monday for a total of 8 weeks
Alt Folfiri/Folfox 2010/Feb through 2010/June Folfiri/Erbitux started 2011/March Changed to Folfox/Avastin 2011/Oct Clinical trials 2012/Sept
Cetuximab - Brand name: Erbitux - April 1, 2010 - so far just really really tired. I was told later a rash and other stuff could happen. ( 5/1/10 - rash did appear including itching. Scalp was the worst. Lying down felt like pins sticking my head. I was told if not rash, med is not working. After they know it was working, I got med to help the rash and itch.)
April 9, 2012 (Only made it through 4 treatments as it made me incredibly sick.)
My mum went through a number of drugs to treat the cancer which kept on returning almost every single year from 2008-2011: Avasatin, Xeloda, Folfox, Folfiri, Erbitux. The side-effects are almost always similar: nausea, tiredness, vomiting, loss of appetite, mouth and throat sores. The first day after chemo she never manages to sleep well.
Erbitux. Loss of hair, lesions on my hands, scab around my neck, vomiting, etc.
Protocol #1: First of 3-21 day cycles of 5-FU, Cisplatin and Docetaxel started 10/7/13 - around the 2 or 3 week started losing hair and experiencing nausea, fatigue, weight loss, etc; Protocol #2: Eribtux and concurrent radiation for 6 weeks started ~12/10/13 - neuropathy in feetbegan a few months after treatment stopped and is still ongoing.
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007 Nueropathy, memory loss, balance issues, joint and muscle pain
Begin Erbitux treatments February 13 2012 and finished on May 2nd.
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
First treatment on 8-16-12 of FOLFOX Avastin begins 8-30 with second treatment Side effects: mouth soreness, sensitivity to cold
Started weekly induction chemo on 9/5/13 with carboplatin and paclitaxel- soreness in mouth, slight nausea, dry skin (severe itching), acid reflux. Started chemo-radiation on 11/4/13 using cisplatin. Received 5 weekly cisplatin treatments until wbc count was too low.
11 treatments ended about 11/07/2011
12 total Erbitux sessions, once weekly, January 13 - March 31, 2011. Increasing fatigue and, ironically, insomnia following each session. From mid February through the end of treatments, somehow the Radiation/Erbitux mix seemed to spawn clusters of migraines.
Began Erbitux November, once a week. Skipped December, resumed chemo January, I go weekly.
second form of chemo 3 more weeks, no side effects
Completed May 15, 2012
ABVD Six months
Cituximab Loading dose March 13th, High fever and severe headache. Second of 8 treatments March 21st. Only side effect was severe heartburn.
Begin weekly Erbitux 9/10/13, Cisplatin/5FU 5/14, CarboTaxol 7/15
Cisplatin ....nausea and fatigue

Cytarabine (Ara-C) Chemotherapy Chemotherapies

What Cytarabine (Ara-C) Chemotherapy Cancer Survivors said about their Chemotherapies.

Induction Theraphy Cytarabine and Doxorubicin for 8 days. I just start my Consolidation theraphy last March 30. Which is Doxorubicin for 1hour and vincristine(push) and cytarabine IT(so painful)
nausea, fatigue, anxiety, depression, dizziness, vomitting
AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
R-CHOP starts 8/26/10 Major Side Effects Day 1-3 Headache and Diarrhea Mouth Sores Days 3-6 TCH starts 4/23/18
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
Started induction chemotherapy for AML on 25th September with "7+3 for 24 hours. I got Daunorubicin for 15 minutes the first 3 days while getting cytarabine the rest of the 24 hours. After the 3 days, the cytarabine continued 24 hours for the balance of the rest of the 7 days. I was medicated with multiple medications to prevent some of the known side effects such as eye damage, nausea, vomiting, and acid reflux. After the chemotherapy stopped, the Nader effects kicked in about a week later which is when the white and red blood cell counts and platelets drop. I ended up with ecoli infection in the blood and pneumonia which nessitated the administration of IV antibiotics. I also required Neupogen shots daily to help increase the production of white blood cells. Multiple platelet and blood transfusions were needed to sustain my existence. During this time I also had petechiae due the low platelet count. Stem cell or bone marrow transplant was recommended however, in my case, no full donor match could be found. Therefore my option was to have additional consolidation which consisted of hi-dac chemo (high dose chemo days 1,3,5 for 4 hours twice on those days. Typically if transplant is not an option, 4 doses of hi-dac is recommended. Due to my difficulty with the chemo, we opted for only 2 consolidation treatments. Right now I'm in remission although my white blood cell count and platelet counts are only 1/2 of the normal range. Last bone marrow biopsy (6th one) showed no Leukemia. Currently I have monthly blood work to monitor blood levels.
April 9 - 15th 2017 & April 27th - May 1st 2017.Finished 2nd round of Chemo May 1st. Experiencing hair loss, fatigue & weakness, SOB, Colitis, Diverticulitis, diarrhea, loss of appetite, confusion, hallucination, Acute Renal failure, low BP, and neutripinic sepsis.
On April 19th 2018, I also received my first dose of chemotherapy. I don't remember much of what happened during this time except I broke out in a red rash from head to toe and ran a fever for 5 days straight. The red drug, daunorubicin, makes me extremely sick. I'm a wreck when they give it to me.
Hyper CVAD Protocol 6/1/2015-2/7/2016 including spinal chemo X 4
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
ABVD Six months
Induction round 12/22/14-1/19-15: nausea, vomiting, diarrhea, fatigue Consolidation February '15, Consolidation March '15, Consolidation April '15
Achieved remission October 2017 with 2 IV drugs — few side effects aside of minor peripheral neuropathy in feet. Out of remission in January 2018. On cytsribinevsubce Feb 2018; Also on oral chemo since March 2018: Venetoclax. Peripheral neuropathy (feet); anal fissures w/bleeds; mucocitis of throat (hard to eat or drink ANYthing); dyspepsia (nausea); fatigue; 15% wt loss (BMI=18.4)
I've had 2 rounds of induction therapy and just finished my 4th round of consolidation therapy. Side effects have been different with each round. My hair only fell out my first round. Have experienced nausea, dizziness, weight loss, appetite loss, headaches, brain bleeds, metal-like taste in my mouth and food, lethargy, loss of endurance and stamina, chemo brain, grogginess and foggy brain, memory loss.
Started daunorubicin and cytarabine 7+3 therapy on January 10, 2015. I stayed in the hospital approximately thirty days. A bone marrow biopsy at the end of this stay confirmed remission. My nausea was not too bad, except for a time that they served some green beans from the cafeteria. I dry heaved several times, and then ate only food from home. I suffered diarrhea, hair loss, a neutropenia fever, an acute kidney injury, fatigue, and weight loss. I started my first round of consolidation chemotherapy in February, second round in March, and third round in April. I have been very fortunate to this point to avoid a bone marrow transplant.
January 6 2014 and February 15 2014
R-Chop--6 cycles total..completed 5/18,6/8 and 6/24/2011,7/15/11 8/8/11 and 8/25/11. side effects: nausea, bone pain, headaches, ear pain(probably from neulasta/neupogen),some fatigue, severe heartburn/epigastic discomfort, mood changes, r ice , beam, imbruvica
Induction, September 2014, two rounds. I didn't go into remission after the round (7+3 and) had IDA-FLAG (idarubicin, fludarabine, cytarabine and G-CSF. I lost my hair and appetite. Mouth sores are horrible as was the fatigue. I had four rounds of consolidation (November, December 2014, January, February 2015) after this, high dose cytarabine and the side effects are marginal for me, I was really tired and that was a result of low Hgb.
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
still waiting for start date
I don't remember all of them, but cytotoxin was one of them
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.

Daunorubicin Chemotherapy Chemotherapies

What Daunorubicin Chemotherapy Cancer Survivors said about their Chemotherapies.

Started induction chemotherapy for AML on 25th September with "7+3 for 24 hours. I got Daunorubicin for 15 minutes the first 3 days while getting cytarabine the rest of the 24 hours. After the 3 days, the cytarabine continued 24 hours for the balance of the rest of the 7 days. I was medicated with multiple medications to prevent some of the known side effects such as eye damage, nausea, vomiting, and acid reflux. After the chemotherapy stopped, the Nader effects kicked in about a week later which is when the white and red blood cell counts and platelets drop. I ended up with ecoli infection in the blood and pneumonia which nessitated the administration of IV antibiotics. I also required Neupogen shots daily to help increase the production of white blood cells. Multiple platelet and blood transfusions were needed to sustain my existence. During this time I also had petechiae due the low platelet count. Stem cell or bone marrow transplant was recommended however, in my case, no full donor match could be found. Therefore my option was to have additional consolidation which consisted of hi-dac chemo (high dose chemo days 1,3,5 for 4 hours twice on those days. Typically if transplant is not an option, 4 doses of hi-dac is recommended. Due to my difficulty with the chemo, we opted for only 2 consolidation treatments. Right now I'm in remission although my white blood cell count and platelet counts are only 1/2 of the normal range. Last bone marrow biopsy (6th one) showed no Leukemia. Currently I have monthly blood work to monitor blood levels.
On April 19th 2018, I also received my first dose of chemotherapy. I don't remember much of what happened during this time except I broke out in a red rash from head to toe and ran a fever for 5 days straight. The red drug, daunorubicin, makes me extremely sick. I'm a wreck when they give it to me.
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
Started chemo on July 7, 2016 - May 5, 2017 Side effects - nausea, vomiting, mouth sores
Started daunorubicin and cytarabine 7+3 therapy on January 10, 2015. I stayed in the hospital approximately thirty days. A bone marrow biopsy at the end of this stay confirmed remission. My nausea was not too bad, except for a time that they served some green beans from the cafeteria. I dry heaved several times, and then ate only food from home. I suffered diarrhea, hair loss, a neutropenia fever, an acute kidney injury, fatigue, and weight loss. I started my first round of consolidation chemotherapy in February, second round in March, and third round in April. I have been very fortunate to this point to avoid a bone marrow transplant.
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.

Mitomycin Chemotherapy Chemotherapies

What Mitomycin Chemotherapy Cancer Survivors said about their Chemotherapies.

Overall unwell feeling. I had chest tightness and pain, might have been from anxiety. I was lucky with minimal hair loss and had only light nausea. I took my nausea and pain medication as prescribed, not when I needed it. Once nausea sets in, it's very hard to get rid of it. While I did not like taking opioid pain medication, pain is like the nausea, once it sets in, it's hard to overcome. About two weeks after radiation concluded, the Dr. and I ''weaned'' me off the pain medication with over the counter pain meds. The last week of Chemo was the worst, in hospital for a week as I spiked a fever, got some heavy duty antibiotics.
Mitomycin given in one dose on June 28, followed by a week of infusion of 5FU. Four weeks later a second cycle of 5FU. Following the first treatment, severe mouth sores for 8 days - at the end could not swallow more than a teaspoon at a time. The second cycle had reduced mouth sores, but I did not have the Mitomycin as my blood count was too low. After the chemo ended, I developed a problem that my doctor and I identified as milk protein immune reaction (a general problem known as FPIES, and usually seen in young chidren - so at least my innards were in their second childhood!). I was hospitalized twice for rehydration, following hours of vomiting and diarrhea, after eating ice cream (it's made mostly with milk, who knew?) and a soup with light cream base (about the same as milk - who knew?). This turned me into a "food detective" when I ate away from home (what is in that sauce?). Finally, after a year, the oncologist suggested "challenges"with a fourth-teaspoon of the ice cream, followed by half-a teaspoon, etc., until I consumed the same size serving as the one that sent me to the hospital, without any reaction. At last I could stop grilling my friends about what's in the food! At this point my only issue is the chile pepper question - if something is being cooked with any kind of chile peppers I start coughing. And eating them! Out of the question.
5fu and Mitomycin Feb-Mar 2014
Nausea, loss of appetite, chemo brain.
two 96-hour stretches of chemo with mytomycin and 5 FU (guess what my nickname for "FU" is...) Horrible side effects, bleeding and cracking at corners of lips, raw inside mouth, chronic nausea (nausea meds helped), weakness, depression, sleep problems, etc.
7/15/13 1st round of chemo with Mitomycin and 96 hr (5 day) pump of 5-FU. Nausea, mouth sores, lack of appetite, weight loss. 8/12/13 2nd round of chemo ... same medication and side effects as 1st. Starting 7/18/14 Cisplatin, 5-FU. Every 3 weeks. Nausea, mouth sores 9/22 Carboplatin, 5-FU Every 3 weeks. Nausea, mouth changes 6/25/15 Carboplatin, Taxol every 3 weeks. Fatigue 7/15/15 Carboplatin, Taxol, Vectibix every 3 wks. Fatigue, Nausea, Dry Skin, Acne-like blemishes
2009 - Mitfomycin, 5FU; 2011 Xeloda & Oxaliplatin; 2013 Paclitaxel & Carboplatin; 2014 Lapatinib; 2015 Xeloda (twice with radiation)
First Round: 9/3/2013 Received an injection (infusion?) of mitomycin, then was suited up with a mechanical pump, a bag of 5-FU, and an ugly, poorly designed fanny pack. I had to wear it for 5 days. Lots of nausea, no vomiting, very tired - which could have been caused by the anti-nausea meds that I took regularly. I basically slept my way through the first two days. I had a overall sensation of just not feeling well. After that, although I couldn't eat much, the nausea went away. On day 4, I felt really good - very slow, but good. Day 5, woke up feeling extremely weak and dreamlike. Noticed sore throat and bleeding gums (while brushing). Have developed a sore "spot" on the right side of my throat. More energy on day 6. NOTHING tasted good. :( Cramping, but no diarrhea.
Mitomycin and f5u-begin 4/12/11. . . . I was EXTREMELY tired and became EXTREMELY short-of-breath (ended up with bronchitis, but I have asthma.) One of the meds, Mytomycin, I think, can adversely affect the lungs. My thyroid got messed up so I now take meds. Nodules on lungs, on CT . . . monitoring those.
Day 1: March 24, 2014
Chemo first and fifth week. Mouth sores, nausea, and no appetite.
Mouth sores terrible lost taste for red meat. Hair thinned out
01-04-10 began chemotheraphy treatment. Mytomycin infused through port at onocologist's office. Went home with an infusion pump of 5-FU (Fluorouracil) that lasted 4 1/2 days.
Standard protocol of 2 rounds of mitomycin & 5FU (8/13 & 9/13)
2 rounds mitomyacin (push) and 5 FU (infusion pump at home X 4 days). 12/23/19 & 01/20/20. Severe fatigue. Nausea. Gastroesophageal imbalance requiring prescription Pepcid. Intolerance to pain meds. Severe Diarrhea.
5FU: 5/18/09 to 5/21/09 and 6/15/09 to 6/18/09 Mitomycin once on 5/18 and once again on 6/15/09
Cisplatin and Xeloda front 20/08/14 through to 11/11/14 Sickness at the start of cycles 1 and 2. Swelling in my legs on the start of cycle 2. Dose was reduced for cycles 3 and 4 . I did not get along with the anti sickness tablets, I tried several different ones. EMEND was usefully but I stopped taking others and found ginger to be most helpful. I seemed to experience a little of all side effects. Ulcers, hand and foot syndrome, diarrhoea sickness and constipation but they didn't last long. Oh and my head hair thinned but I did keep enough.
First chemo started same day as radiation on 3-17-14 with a single dose of mitomycin and an infusion pump of 5-FU for 4 days. Beginning of the 5th week we repeated this process with 20% less mitomycin due to the low blood count. The first round I had few if any side effects. Felt tired and slow but when I got the pump off, I started to feel better. The second round was more difficult and my blood count fell too low, I got a low grade fever and ended up getting 2 blood transfusions and 5 shots to help build up the blood cells.
Did well with the first round of chemo. Only side effects were loss of appetite and mild nausea. Did well again with my second round of chemo. Did not lose my hair!
Intravenous at day 1 and 30, during radiation in pill form - Mitomycin
First round June 24, 2013. Vague feeling of unwell, horrible burping, relieved by Omeprazole, one and 1/2 days of sole pain, then resolved. Mouth sores began 6/29/13, peaked on 07/04/13. Second round July 22, Mitomycin reduced by half because of my WBC response the first time. Same feeling of unwell, anorexia, chemo created constipation for me, not diarrhea.
April 2011 nausea and vomiting, weight loss,neutropenia,mouth sores, hair thinning April 2012 nausea, mouth sores, hair thinning
Mitomycic 1 IV push along with 5FU 96 hours on the first day then again on day 21
Had surgery for Port placement in 01/2011. I began my first bout of chemo on 2/14/2011 along with radiation. I was in the chair for about an hour receiving the Mitomycin, and the 5-FU was portable, so it was hooked up and it was constantly dripping beginning Monday, and I would return Friday to get it taken off. I fortunately did not have too many side effects; no hair loss, not much nausea. I had a lot of fatigue, but I blame some of that on the radiation as well. Once I had my second (and final) round of chemo (which went the same way as the first), about halfway through my radiation, that's when I started to have a very difficult time and I was in a lot of pain and the effects of the radiation on my skin was much more apparent and was a lot more uncomfortable.
The standard cocktail via portable bag and IV. Fatigue, hair loss, minor nausea, minor mouth sores.

Eloxatin (Oxaliplatin) Chemotherapy Chemotherapies

What Eloxatin (Oxaliplatin) Chemotherapy Cancer Survivors said about their Chemotherapies.

Oxaliplatin infusion; Leucovorin infusion; Fluorouracil continuous infusion pump.
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
R CHOP every 3 weeks from 12/30/2013 through 4/28/2014. Began R GEMOX on 6/19/2014 every 3 weeks through 10/21/2014. Started Rituximab and Treanda on 12/3/2014 as a 2 day course. Severe neuropathy in feet and less but still suffered neuropathy in fingers during R CHOP. R GEMOX caused great discomfort with cold even before therapy was complete. One does of Rituximab and Treanda and my father has terrible oral sores. However, he has been fortunate to never have suffered any severe intestinal discomfort.
Rituxan and treanda. Had mixed results. Then R-CHOP, which seemed to increase the cancer. Then R-ICE which then sent me to get an auto transplant. Had a severe reaction to rituxan the first time, then minor reactions every other time. They had to infuse really slow. Added an extra day to my chemos. No other big side effects from the actual chemo except fatigue. Hair loss after the final ICE but was high dose. Also, threw up after the ICE except after the high dose.
Oxaliplatin,Calcium Leucovorin,Camptosar,Florouracil
I had 2 chemotherapy drugs. Eloxatin (oxaliplatin) which was given through my port at my Oncologist's office. I also took Xeloda which is a chemotherapy drug (pills) taken at home. I also had a wonderful Oncologist who worked well with my surgeon.
Started chemo 1/4/2016
Nexavar for 6 months. Infusion therapy started 2 weeks ago and ongoing bi-weekly.
Began with Xeloda in pill form that was simultaneous with my Radiation. 6 weeks Mon-Fri. Didn't have any problems with this drug whatsoever. March 2014 began Oxaliplatin and 5FU for the next 6 months. I where a pump for 48 hours of continuous infusion every other week. I was told to be cautious of cold weather and cold drinks or any other type of cold items. So drinking everything at room temp is pretty boring but I did find out what happens if you do try to tempt fate and drink a cold substance----it felt like I was swallowing shards of glass down the back of my throat. YIKES. So far, I have only noticed a bit of nausea during the week of treatment and fatigue, but I know it is early and these symptoms will undoubtedly worsen as time goes on. Not looking forward to this. Really have dreaded the whole chemo thing.
June 2013 - December 2013
I was completely fine up until chemo #5. All of them are 52 hours, I go home with the pump. Chemo# 5 put me down. Fatigue, mouth sores, numbness in toes, extreme sensitivity to cold, loss of appetite.
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss 6 rounds Hepatic artery infusion (oxaliplatin)avastin 3 month Jakafi (oral) unknown trial drug nano cisplatin and gemcitabine
folofox: 3/14-9/14, starting again 1/15
Jan 22, 2015 R Chop was the first. Mostly tired some nauseous spells
Nine rounds of Folfirinox treatment before surgery and more after.
Exhaustion nausea Going on my 86th treatment
5-fu orally before surgery 11/12 - 12/12. The oral chemo did a number on my stomach lining. After surgery did 8 FOLFOX treatments 3/13 - 7/13, side effects were sensitivity to cold, some nausea but not bad, and tired.
6 weeks Flourcil (pills) and radiation Oct - Nov 2015 10 sessions IV chemo (avastin, oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016 Hands and feet numness Little nausea Fingernails thinned Balding
june 19 through end of nov 19 had chemo every two weeks, mouth sores, metal taste in mouth, hands feet peeled, nausea, severe intolerance to anything cold or hot eating or touching....everything had to be room temp.
2009 - Mitfomycin, 5FU; 2011 Xeloda & Oxaliplatin; 2013 Paclitaxel & Carboplatin; 2014 Lapatinib; 2015 Xeloda (twice with radiation)

Abraxane Chemotherapy Chemotherapies

What Abraxane Chemotherapy Cancer Survivors said about their Chemotherapies.

Tiredness and oain
Abraxane and Genzar
Started July 12. Two weeks on, 1 week off. Plan is 6 cycles. Side Effects - Can’t sleep (steroid pretreatment). Terrible constipation (Nausea meds), Very tired, mild fever, irritability on Day 2-3 post chemo.
Extreme fatigue, delerium
Extreme fatigue, some dry heaving, hair loss, neutropenia
A/c( I am not good with names and the one would not uncheck above) started 4/10/2014 I lost my hair the day of the second treatment. Felt pretty bad but was able to work. Got pulmonary embolisms in June (I hope to find out soon that they are gone) by my 3rd A/c the lump was no longer able to be felt. By the 4th it was gone. started taxol in June (blurry) after 2 treatments the first infusion took 11 hours the second 8 hours and that was all I could stand. The side effects were extreme pain, nausea and sensitive to light and sound .I opted out the rest and went straight to surgery!
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)
Initially 2 rounds of Folfirinox, that increased liver enzymes and CA-19-9
Methotrexate, Doxyrubicin, Vincristine, Vinblastine, Cytarabine, Etopomide
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.
Started 12.1t.16
Luckily just 2 rounds of Chemo in 2000. Only lost hair from the waist down. Which would be awesome if I was pursing a career as a Drag Queen

Avastin (Bevacizumab) Chemotherapy Chemotherapies

What Avastin (Bevacizumab) Chemotherapy Cancer Survivors said about their Chemotherapies.

folofox: 3/14-9/14, starting again 1/15
I was completely fine up until chemo #5. All of them are 52 hours, I go home with the pump. Chemo# 5 put me down. Fatigue, mouth sores, numbness in toes, extreme sensitivity to cold, loss of appetite.
ABVD Six months
She has had 5 rounds of platinum based triad, one round of Alimpta (sp?), now on Opdivo, has had 3 rounds, for the fourth the week of 4/10/16.
Carboplatin, taxol, avastin, and a PARP inhibitor for 6 rounds, then remission for about 7 months. Then more carboplatin and taxol for 3 more treatments until I became resistant, then onto the MEK/Milo trial. Failed that after 2 months, now looking into immunotherapy
Cisplatin: Took 2 treatments, 1 week apart. Tolerated well. No nausea, though stomach very "acidy" feeling. Eating bland foods often throughout the day helped. Did have some tiredness. No loss of hair. Had to stop Cisplatin for a while due to frequent ringing in ears. Cisplatin can lead to permanent hearing loss. Was able to complete last 4 Cisplatin after a break. Have some hearing loss, but not much. Will be using an experimental drug-Avastin, as well. Avastin: no loss of hair. Felt a coldness in the core of the body and extremities. Combined with Cisplatin, usually left me feeling poor and unable to work for about 5 days. Starting Taxol, Carboplatin, and Avastin again next week.
Six rounds in 2008 and 12 rounds in 2015 got through these not too bad in the big scheme of things.
3/19-5/19: carboplatin, taxol for 3 rounds, with avastin for 2 of those (fatigue, assorted irritable stomach issues; with avastin: raspy voice/throat, sniffy) 6/19-8/18: carboplatin, taxol for 3 rounds, with avastin for 2 (see above but a little more so, since it was after THE BIG SURGERY 7/20-? carboplatin, doxil for 6 rounds (SO FAR: intense headache for a few days, some lightheadedness and nausea)
Started chemo on July 7, 2016 - May 5, 2017 Side effects - nausea, vomiting, mouth sores
Had a really bad reaction on Oct 14 2014
First chemo was on Friday 9/15/17. 3 chemo infusions over 8 hours. To be done every 3 weeks. Next scheduled 10/6/17. Have had no nausea or vomiting. Saturday night, severe pressure in rectum, vaginal area and lower pelvic region. Contacted physician due to pain and that no amount of medicine was subsiding pain. Was advised that it seems as if the chemo is working. The pressure could be due to the necrotic tissue from the cancer itself is moving, liquid retention, or inflammation from the chemo. He reassured me that pain and pressure should go away within a few days. Was instructed to take higher dose of percocet. The higher dose of pain meds has done its due diligence, but knocks me out too. It is now three days later and pain and pressure has become more bearable, and treatable with 800mg motrin. Feeling extremely tired, which is very odd being that I am very active. Powering through, I will win this battle.
6 treatments chemotherapy (carbo/placing/Avastin
6 weeks Flourcil (pills) and radiation Oct - Nov 2015 10 sessions IV chemo (avastin, oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016 Hands and feet numness Little nausea Fingernails thinned Balding
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007 Nueropathy, memory loss, balance issues, joint and muscle pain
mid july to November 2015 Gemzar eight treatments, xeloda for 28 days on radiation days. Started Folfox regimen 09/20/2017 for recurrence.
CHEMO 1/2/2012, CHEMO 8/1/2012, CHEMO 7/1/2013 HAIR LOSS
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss 6 rounds Hepatic artery infusion (oxaliplatin)avastin 3 month Jakafi (oral) unknown trial drug nano cisplatin and gemcitabine
Fu5 fannypack4 months 5 months mainvein all side effects
Avastin drip. 12/2009 - 2/2010. Nausea. Sidenote - everyday I'd go to a juice cafe where they had wheat grass juice. When I went for my last treatment, nurse told me my blood counts throughout treatment were spot on... It's worth researching as has many benefits. Please check with your doc as told it may not be appropriate for some during their treatment.
Jan 2 through Jan 5 2015 Staff infection , Bacteria in blood, Fever and Nausea
six infusions of carbo/taxol every 3 weeks from 3/13 to 6/13 six more infusions carbo/taxol every 3 weeks from 1/15 to 4/15 three infusions doxy every 3 weeks from 8/15 - severe rash - discontinued several infusions every week gemzar from 10/15 to 2/16 tanked white count and increased acities - discontinued avastin/taxol every 3 weeks from 3/16 to present
6 carbo/taxol and 4 cisplatnin in 2013/4. 4 carbo/taxol in 2016/17.
Beginning in April I had three treatments with Taxol and carbo platinum as well as Avastin. Joint pain was rough but gone after a week or so. I've mostly been easily tired out. My CA125 went up so I had another PETCT that showed an increase in the cancer I am now getting Doxil every four weeks and Avastin every two weeks. Side effects have been relatively mild - just tired a lot.
Ongoing every two weeks
Once every 3 weeks from Feb - April 2020. Extreme

Dasatinib (Sprycel) Chemotherapy Chemotherapies

What Dasatinib (Sprycel) Chemotherapy Cancer Survivors said about their Chemotherapies.

An unpleasant mix of fatigue, diarrhea, headaches, water retention, muscle and bone pain.

Onivyde (Irinotecan Liposome) Chemotherapy Chemotherapies

What Onivyde (Irinotecan Liposome) Chemotherapy Cancer Survivors said about their Chemotherapies.

Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.

Docetaxel (Taxotere) Chemotherapy Chemotherapies

What Docetaxel (Taxotere) Chemotherapy Cancer Survivors said about their Chemotherapies.

Hair loss, nails, hand and feet discoloration, constipation that resulted in an anal fissure that won't heal, bone pain, depression and anxiety

Uncategorized Chemotherapy Chemotherapies

What Uncategorized Chemotherapy Cancer Survivors said about their Chemotherapies.

1/7/2014 and every 14 days thereafter - Nausea, jaw pain, loss of taste, hair loss, fatigue 6/10/2014 - chemo complete (6 cycles ABVD)
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