What are Chemotherapies? List from Cancer Survivors
The below is a list that has been posted by the bloggers in this cancer community. There are 7577 cancer fighters that are members here. This is what they said, not what the doctors or nurses will tell you.
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Adriamycin (Doxorubicin) Chemotherapy Chemotherapies
What Adriamycin (Doxorubicin) Chemotherapy Cancer Survivors said about their Chemotherapies.
IE and VAC treatment every 3 weeks. Lost weight and all my hair/ body hair
Dec. 19 2003 - Feb. 27 2004. First-line, dose-dense chemo. Taxotere, Cytoxan and Adriamycin. Horrible horrible horrible. Felt godawful (aching fatigue unrelieved by sleep, and absolutely no energy) for years afterwards. I don't think I'd do it again.
AC x4 Tax x4 recieved every two wks first chemo 29th April '10 last 5th august '10 side effects varied from the usual hair loss, vomiting to swelling of my chest wall, 19 of my 20 nails fell off (this happened a couple of weeks after the chemo finished) nose bleeds the list is endless but I got through it
12 rounds of chemo
1st round-12/09/2011Atromycin for 3 days nd Cytosar. for 7 days.
10/05-08/06 adriamyacin, very weak
AC dose dense,then taxotere all for 5.5 months.Lots of lousy side effects you name it I had it!
Things I wish someone had told me- You feel the worst on days 3-5.
Even though you're nauseous you can still eat with enough drugs (I never threw up!)
Get your hair buzzed as soon as it starts to come out, and your scalp hurts, you will feel much better. Don't shave it until your scalp stops hurting.
Your nose runs because you have no nose hair to catch it
A little infection will knock you on your ass.
Claritin can fight some of the neulasta side effects
Glutamine and vitamin B can help with the Taxol tingle
Ugg makes flip flops- AHHH big help with the Taxol tingle
Some people lose their fingernails with Taxol (but mine are intact- I have chemo rings, though)
Fu5 fannypack4 months 5 months mainvein all side effects
An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010:
Vincristine
PEG-aspariginase
Doxorubicin
Methotrexate
Cytoxan
Cytarabine
6-MP
6-TG
Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain.
4 rounds of Adriamycin and Cyclophosphamide together every 2 weeks. I am done with those 4 rounds. 4 rounds of Taxol every 2 weeks I have 3 rounds left. Xeloda for a year, Gemzar and carbo still doing it once a month until I guess it stops working.
First infusion is Dec 2nd 2019
Round 1 1/22/13
Round 2 2/13/13
Started AC CHEMO on 30/11/2018. Was petrified of chemo! Main issue for me with AC is awful reflux, fatigue and just feeling like I have the worst hangover ever ( this only lasts about 3 days, from day 5-8).
26 weeks of chemo. 1X every other week for 8 weeks. Then weekly for 12 weeks. Continued with Herceptin drug Trail for 13 months, 1x every three weeks. Nausea to most foods and smells like coffee or strong perfumes. Wanted hot or cold things to eat....flu like symptoms showed up day 3-5 after chemo. No nuropothy! Did not throw up at all. Slept more days 2-3...weight loss but only a few lbs first 9 weeks then started to gain. Have gained 15 lbs since chemo ended due to hormone blockers I am on.
I am having ABVD. Side effects: nausea, fatigue, hair loss, constipation, bone pain, fever, infection...
R-CHOP14 to start on September 13 for six cycles.
treatments spanning over 4 months. Felt poisoned and beat up the entire time.
3/2012 Adriamycin and dacarbazine 6 cycles
12/2012- 10/2013 votrient 600mg every day.
10/2013 - present gem/tax
ABVD for 6 cycles (12 treatments). Was quite well tolerated, tired for a few days after, hair loss, mild nausea but no vomiting, changes in bowel motions, mild rash on feet and arms, aching veins.
MADEC (methotrexate, cytosine, dex, etoposide, cyclophosphamide) for 2 cycles, one week of chemo in hospital, 2 weeks to recover then repeat. Fatigue, mild nausea, hair loss.
BEAM (carmustine, etoposide, cytosine, melphalan) prior to stem cell transplant. Have only just started this today, had carmustine and so far all good but I know this will change.
R-CHOP: 4 Rounds: 2/3/15, 2/24/15, 3/17/15, 4/20/15 - Fatigue, Nausea, Vomitting, Dry Skin, Blisters, Mouth Sores, Headaches, Alopecia
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
RCHOP 21. Three rounds total. 11/2/0, 11/23/10, and 12/14/10. Worst effects so far: heartburn to point of esophageal spasms, constipation, headache, mouth tenderness and dryness, fatigue and hair loss. This was for the Lymphoma. No chemo (so far) for thyroid cancer.
Sysplatin that almost killed my it caused my kidneys to shut down. I cause me to become completely dependent on others. I didn't spell the Chemo right but it sounded like that. I don't know what the fed me after I was released from the hospital.
Began chemotherapy in 3'06. Side effects were mouth sores, nausea and vomiting. Bone pain, neuropathy in fingers and feet. Nail beds turned black.
Cyclophosphamide (Cytoxan) Chemotherapy Chemotherapies
What Cyclophosphamide (Cytoxan) Chemotherapy Cancer Survivors said about their Chemotherapies.
RCHOPx6 started on 2/21/14
Some nausa and loss of appetite shortly after infusion,
Some numbness in fingers after 4th infusion.
Taste buds don't work for a few days after infusion
chemotherapy given from January to September
Side effects: dehydration, vomiting, blood transfusions
Rituxan 2001, Rituxan CHOP 2002, Rituxan 2003, TRM-1 (clinical trial) 2004-2005, Rituxan/Doxil 2006-2007. I have never reached a remission "yet" still hopeful!
1991 April to June MAKOP B, 12 months treatment plan administered weekly over 12 weeks, ulcers, nausea, tiredness, loss of nerve sensations in extremities, severe constipation, hair loss (lol)
AC dose dense,then taxotere all for 5.5 months.Lots of lousy side effects you name it I had it!
Started Adriamycin/Cytoxan on 6-4-09 dose dense. (1 dose every 2 weeks for total of 4 doses.) Felt fatigue, stomach upset,hair loss. Started Taxol 7-30-09 dose dense (1 dose every 2 weeks for total of 4 doses.) Felt achey, tired and depressed, hair loss.
She has had 5 rounds of platinum based triad, one round of Alimpta (sp?), now on Opdivo, has had 3 rounds, for the fourth the week of 4/10/16.
on 2nd round of AC, bald and trying to hold onto willpower. I get pretty sickly the 3rd day after cheno, 1/6/12 3rd treatment
4 cycles dose dense Doxorubicin and Cyclophosphamide, then 4 cycles dose dense Paclitaxel to start 12/09/08
R-CHOP: 4 Rounds: 2/3/15, 2/24/15, 3/17/15, 4/20/15 - Fatigue, Nausea, Vomitting, Dry Skin, Blisters, Mouth Sores, Headaches, Alopecia
1st Chemo -Rituxan 6/12/13, CHO 6/13/13 with prednisone daily x 5 days, 6/14/13 Neulasta. Foods tasted sweet and had a slight headache but I did good until 5th day and I decreased my antiemetics and had nausea/vomiting and had to get IV fluids. I had some swelling in feet & hands. I worked several days but on the 7th day after neulasta I had back pain and had to take pain pills and a muscle relaxer, then I took Claritin and it did help. I still think I did good for my first chemo. 2nd Chemo- July 3 R-CHOP, July 4- Neulasta. I had swelling the first night in hands & feet. I feel weaker with this one and I'm having breathlessness. I called doctor and had labs but results were okay for chemo. I haven't worked after this one, yet.
First round of chemo on 7 May 09
Second round of chemo on 1 Jun 09
Third round of chemo scheduled for 21 Aug 09
My doctor is using a new "sandwich" approach to treatment. 2 rounds of chemo > then 25 days of radiation > then 2 more rounds of chemo. This is new and apparently works better than all chemo then radiation.
I am in control and working to erradicate the cancer via chemo and radiation.
CVP + R - 6 cycles and then two years of the "R" (Rituxan). stomach pain, diarrhea, fatigue for a week. Also, I receive an injection of Neulasta after each chemo which gives me bone pain but I am learning ways to stop that too and now go in for hydration the day after. I medicate myself for a few nights after the injection with Benadryl and Tylenol.
First chemo starts July 7 2011
AC followed by Taxol total 24 weeks beginning Oct 2009
Became very neutropenic (low white blood cells) A couple of mouth sores
I have completed 3 of my 6 cycles of chemo. I am on Taxotere, Cytoxin and Herceptin. I will finish up in September, with the completion of the Herceptin in May of 2012. I am also receiving a shot of Neulasta which makes my bones ache. The chemo this time has not been so bad except for the flu like symptoms and achiness in my bones. I am tired but this is due to the anemia.
Starting September 2nd - pretty clueless outside of that.
Very sick. 12 years ago the drugs for side effects were not as effective as they are now and hopefully will continue to get better
RCHOP, 5/9/2019. back pain, lethargy, nausea
Port-a-cath installed in May. What a joy that was! First of 4 treatments of cytoxin & adriamycin started the last of May. Loved that "dangerously red cocktail" called adriamycin. Sinuses were & still are all messed up from cytoxin. Neuropathy in hands, feet & legs to this date (2-09). Thankful for neurontin and cold sheets feel so good. Will it ever leave me in peace? Scalp got sore & out came the hair on Father's Day Happy Father's Day, Troy! We went out to our deck after church & 14 year old daughter cut & hubby shaved. POOF!
No nausea thank God for Zofran!! I felt better during & right after chemo (Aug '05)than I do now. What's up w/that?! So, I deal as best I can.
4 rounds of CT
R+Chop, 1/4/2012-4/23/2012
AC first 2 months tolerated well. Didn't miss any days at work. Had more problems tolerating taxol. Missed a lot of time at work.
R-CHOP BEGINNING ON 12.21.2015
4/2009 Abraxane and Carboplatin
9/2009 Taxol and Avastin
had an allergic reaction at the end of the run of Carboplatin
Avastin caused my blood pressure to increase sharply, so it was discontinued
Taxol (Paclitaxel) Chemotherapy Chemotherapies
What Taxol (Paclitaxel) Chemotherapy Cancer Survivors said about their Chemotherapies.
Chemotherapy November 2014-April 2015. Hair loss, neuropathy in feet, achy joints.
6 rounds of chemo; every three weeks March - June 2014; few side effects; some joint and bone pain for a couple of days after each treatment; some neuropathy in my feet
Carboplatin and Taxol once every three weeks, 6 times. Fatigue, faux sence of energy at first, couldn't sleep for two day after, then crashing with neuropathy pain and fatigue
8 sessions, sweats, nausea, constipation, de hydration, low white cell counts. joint, bone, muscle, numbness, tingling, pain from Taxol during and post-chemo. Peripheral neuropathy has been diagnosed.
One treatment so far on 3/23. Side effects for two days included exhaustion beyond sleepiness, nausea and depression. I'm so glad it only lasted 2 days! Constipation and painful bowel movements.
3/19-5/19: carboplatin, taxol for 3 rounds, with avastin for 2 of those (fatigue, assorted irritable stomach issues; with avastin: raspy voice/throat, sniffy)
6/19-8/18: carboplatin, taxol for 3 rounds, with avastin for 2 (see above but a little more so, since it was after THE BIG SURGERY
7/20-? carboplatin, doxil for 6 rounds (SO FAR: intense headache for a few days, some lightheadedness and nausea)
2/26/08to 5/28/08 - 6 cycles
Taxol, carboplatin and Avastin for lung ca.
Hair loss and peripheral neuropathy - some fatigue.
AC x4 Tax x4 recieved every two wks first chemo 29th April '10 last 5th august '10 side effects varied from the usual hair loss, vomiting to swelling of my chest wall, 19 of my 20 nails fell off (this happened a couple of weeks after the chemo finished) nose bleeds the list is endless but I got through it
I'm on my 4th round of chemo treatment in 3 years time. This round is 2 days a week. Side effects are joint pain, nasea, vomiting, diarrhea, night sweats, loss of appetite, hair loss, irritability, exhaustion, and thankfulness for each day
IP Therapy as well as Systemic Chemotherapy
Double chemo infusions, including "red devil", during the first round of chemo over eight weeks every two weeks. This was from late Oct 2014 thru mid Dec 2014.
Side effects included hair loss, sensitive finger tips and toe nails, painful mouth and tongue with half my throat swollen by end of treatment, constipation and over all brain fog. The hardest to get used to is the stuffy nose and nose bleed when it clears.
Single chemo included Taxol, Herceptin, steroids, benadryl, and anti-nausea medication.
Side effects were a continuation of tender nails till they have started to detatch from their nail beds. Sore mouth with base of tongue muscle having difficulty moving food around in my mouth, which has gotten worse as therapy has progressed. Constipation is still an issue unless I forget to eat my bowl of raw veggies every day. Brain fog or mushiness has been an issue throughout this entire experience, hopefully this will discontinue with the ending of chemo. Tiredness has been my constant companion throughout this entire experience also. Also, my constant stuffy nose that clears off and on and bleeds every time. I'm often awakened by my nose bleeding.
I have had chemo in 2004, 2009, and 2012. each chemo has been different than the one before. With my most recent round I was very nauseous and sick. Lost my hair with all of them and had muscle and bone pain. I also developed an orbital pseudotumer as a reaction to the carboplatin and had to be put on prednisone steroids. This will now be required anytime I am on carbo. It started as a twitching and watery eye almost like with allergies. The eye then swelled shut and was very painful.
2009 - Mitfomycin, 5FU; 2011 Xeloda & Oxaliplatin; 2013 Paclitaxel & Carboplatin; 2014 Lapatinib; 2015 Xeloda (twice with radiation)
Carboplatin 08/06/2010. Mild Fatigue.
Carboplatin 08/26/2010. Radiation recall.
Carboplatin 09/16/2010. Neck is tightening due to radiation recall.
Alimta
erbitux
Low Platelet 10/07/2010 Carboplatin, Taxotere,5FU 01/2011 n 02/2011.
July 24,2009 first treatment taxol and carboplatin. The only problem I had was my own fault. I got sick that night because I came home and ate stewed tomatoes and chased it down with a Pepsi! Big mistake because I quickly learned that Chemo and acid DON'T mix. Treatments 2,3, bought feet itching, loss of smell and taste. Treatment 4 was not to bad slight big toe bleeds but manageable, slight problem with vision seeing bright white spaces from within my eyes. Treatment 5 I had a mouth bleed, neuropthy more consistant. Treatment 6 manageable but eyes still have the spots. Neuropthy worsens, still itching.
Six rounds in 2008 and 12 rounds in 2015 got through these not too bad in the big scheme of things.
Things I wish someone had told me- You feel the worst on days 3-5.
Even though you're nauseous you can still eat with enough drugs (I never threw up!)
Get your hair buzzed as soon as it starts to come out, and your scalp hurts, you will feel much better. Don't shave it until your scalp stops hurting.
Your nose runs because you have no nose hair to catch it
A little infection will knock you on your ass.
Claritin can fight some of the neulasta side effects
Glutamine and vitamin B can help with the Taxol tingle
Ugg makes flip flops- AHHH big help with the Taxol tingle
Some people lose their fingernails with Taxol (but mine are intact- I have chemo rings, though)
First round of chemo on 7 May 09
Second round of chemo on 1 Jun 09
Third round of chemo scheduled for 21 Aug 09
My doctor is using a new "sandwich" approach to treatment. 2 rounds of chemo > then 25 days of radiation > then 2 more rounds of chemo. This is new and apparently works better than all chemo then radiation.
I am in control and working to erradicate the cancer via chemo and radiation.
CarboPlatin & taxol w/ neuplasta at 3 wk intervals from Aug to Oct
Severe constant leg pains, neuropathy in feet and hands, high heart rate. Unable to stand for more than 10 minutes, stumbling, dropping things regularly
Treatment changing to CarboPlatin & doxil w/ neuplasta.
Pending. I have only been told of what the drugs of choice will be and I can plan on being bald.
There were eight cycles of chemotherapy: 4 before surgery and after surgery 4. My body responded well to chemotherapy and tumor marker (CA 125) decreased from 690 for 4.
Taxotere..Dec 2006-Apr2007. All the usual, numbness in fingers and toes, no taste, no appetite, constipation. The bone pain was the pits.
Biweekly 4 A/C - from June 11th 2018 until July 2018 - Fatigue, dry mouth, Hair loss, doing quite well thank god
21 weekly Rounds of Taxol scheduled from August until October....
9/10-1/11 hair loss,fatigue,mouth sores,neuropathy of feet and toes, brittle finger nails
starting chemotherapy about 12/19/11. Ended chemotherapy 2/12/12
Methotrexate (Folex, Mexate, Amethopterin) Chemotherapy Chemotherapies
What Methotrexate (Folex, Mexate, Amethopterin) Chemotherapy Cancer Survivors said about their Chemotherapies.
6 Months starting Dec 2, 2011. 5 hours every other week. 5-FU, Oxaliplatin and leucovorin. Will bring home 5-Fu in a bag for the weekend will run through port and bag removed on Mondays
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
im doing an eight mounth treatment plan. every 21 days im back in the hospital for all the chemo they can give me.
August 3, 2015 - September 23, 2015 - High dose Methoreaxate and Rituximab
September 30 - February 2016 - R+EPOC
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.
Nausea, fatigue/sleepiness, "Chemo brain" (inability to concentrate), dry skin, no nail growth, hair loss.
January - May as of now
1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
started Feb. 26, 2010 I was admitted to hospital every 3 weeks for a total of 6 rounds of treatment - Cycles A and B.
Vomiting, hair loss, fatigue, mouth sores, reduced immune function.
I don't remember all of them, but cytotoxin was one of them
Doxorubicin
Cisplation
Methotrexate
Ifosfomide
Etoposide
Every week on Day 1 & 2 and Day 8.
I'm not going to tell you anything you would be shocked by here. I'm bald - and have been for two years. 98% of anything I eat upsets my stomach in some way. I wish I could sleep all the time, but I have a 5 year old little girl, a full time job and a husband so that is possible. Other than that, Cancer sucks, Chemo sucks worse, but we will all get through it, right?
Hyper CVAD Protocol 6/1/2015-2/7/2016 including spinal chemo X 4
6 treatments from March 3, 1994 to June 29, 1994. Started with Taxol Study. Received high-dose Cytoxan 3980 mg and Adriamycin 74.6 mg for 2 cycles. Except for the 1st and the last, blood transfusions were required after every treatment due to low hemoglobin. I developed a blood clot in my right arm shortly after the first blood transfusion in April and had to be hospitalized and put on coumadin for 3 months. Had to be taken off Taxol Study because I could not take high-dose Cytoxan/Adriamycin and Coumadin. I was given Cytoxan 995 mg, 5-FU 995 mg and Adriamycin 99.5 mg for the next 4 treatments. The Adriamycin damaged my heart muscle. Other side effects were nausea, some vomiting, sores in mouth, diarrhea, heartburn, fatigue and complete loss of all hair.
6 treatments from January 20, 2006, to June 2, 2006. I was given a CMF combination of 1200 mg of Cytoxan (Cyclophosphamide), 80 mg of Methotrexate and 1200 mg of Fluorouracil (5-FU). This bout with chemo was much easier than the first. I also had a blood clot in my lung in February, 2006, and was hospitalized for 7 days and put on coumadin for 18 months. Other side effects were minor nausea, fatigue, sore mouth, minor diarrhea and only thinning of my hair. I don't know which one but one of the chemo drugs damaged my right eye and I am still having problems with it.
The worst thing to happen was the death of my husband and my boston terrier dog in May during this bout of chemo.
Pre-Surgery April 19-May 26 Five FU for 6 weeks continuous with take home pump
Post Surgery started Sept 22 Full Fox
November 16 Started cycle of RCHOP followed by methotrexate for CNS 10 days later and RCHOP 11 days after that. finished this in April 17 no major side effects nutropenia, numbness in fingers which stopped with medication, constipation. Returned to wrk in May 2017
through March 2008 CMF cocktail, 8 rounds. never lost my hair, nausea got pretty bad... three rounds in, I became a petulant child and announced I was NOT going back. A nurse family member asked my mom what kind of anti nausea meds I was given (don't remember) and told my mom to relay the following: "tell her to get pot, the pills suck" .... My resourceful husband came home with a surprise shortly after round 3. It PISSES me off that I had to break the law because the fact is, at least for me, IT WORKED and it was AMAZING.....
R Chop 6 cycles
1991 April to June MAKOP B, 12 months treatment plan administered weekly over 12 weeks, ulcers, nausea, tiredness, loss of nerve sensations in extremities, severe constipation, hair loss (lol)
I've taken chemo for 3 years now, many kinds of chemo, my "favorite" is Xeloda.
ABVD for 6 cycles (12 treatments). Was quite well tolerated, tired for a few days after, hair loss, mild nausea but no vomiting, changes in bowel motions, mild rash on feet and arms, aching veins.
MADEC (methotrexate, cytosine, dex, etoposide, cyclophosphamide) for 2 cycles, one week of chemo in hospital, 2 weeks to recover then repeat. Fatigue, mild nausea, hair loss.
BEAM (carmustine, etoposide, cytosine, melphalan) prior to stem cell transplant. Have only just started this today, had carmustine and so far all good but I know this will change.
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010:
Vincristine
PEG-aspariginase
Doxorubicin
Methotrexate
Cytoxan
Cytarabine
6-MP
6-TG
Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain.
Started induction chemo within the first week of November. Integrating it with holistic therapies
Fluorouracil (5-FU) Chemotherapy Chemotherapies
What Fluorouracil (5-FU) Chemotherapy Cancer Survivors said about their Chemotherapies.
portable no side effects
Neuropathy in toes arms diarreha constitpation pain when going. I have fissures now because of not being able to go which is causing bleeding and immense pain even hours after. Pain in jaw when I first eat. heart palpitations. No more mouth sores or fevers since I have been taking vitamins b and magnesium with zinc. Numbness in both hands and feet and cramping
5FU 8/23/10 through 9/27/10 24/7 once a week flush and bloodworkups.
some nausea
Mitomycin on Day 1 and Day 29
5-FU Days 1-4 and 29-32
Dry mouth, constipation, thinning hair at week 4. <<<<<<After reading this I have to say "chemo brain" because I don't recall writing that!!
Fluorouracil (5-FU) and Mitomycin.
5f-u and Oxaliplatin start 10-19-2010~On June 13, 2011 I had an allergic reaction to Oxaliplatin and my Doctor made the decision to take me off of that for good. Nothing will take it's place as of now. I will remain on 5f-u and Leucovorin.
1/23/2012 had IV mitomyacin then 96 hrs of 5 FU via pump. Extremely fatigued all week, not sure if it was the 5 FU or mito. Started Neupogen injections following Monday for 7 days. No nausea at all. Appetite great. Mouth sores began with a vengeance following sat and lasted 7 days. Could only swallow liquids so I mostly lived on instant breakfasts. Two weeks later my finger tips began peeling and hair loss began.
Every 3 weeks during radiation then once a month x 3 for cisplatin. 5FU home infusion will start in Sept for five days then again in October and November. Nausea, vomiting, fatigue for cisplatin have not had 5FU yet
5 FU and Mitimycin == two rounds each. nausea, diarrhea, pain. Was in hospital for a week for low blood counts. Either blood or platelets (or both) given every day in hospital.
Cisplatin/5FU 4 courses may/June/ July/August 2017
Chemo Wed, leave with bag, come back on Fri. Side effects neuropathy, fatigue, nausea, occasional constipation and/or diarhea
Vomiting, hair thinning but no complete loss
Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse.
Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo.
The standard for anal cancer: two rounds of 5FU & Mitomycin. Lost about half my hair. Very bad mouth sores and oral thrush, especially in the 10 days after infusions. Became neutropenic (big drop in the type of white blood cells that are the major infection fighters) with second round of Mitomycin.
First treatment was June 8th 7 hours between the other meds olus the chemo..Cisplatin and Gemzar.. Felt ok the day after but then started feeling very sick, achy, headache, ringing in ears, coulnt eat, weak, dizzy,tired,shaky all over I only felt well enough to go to the doctor on the 7th to have my blood drawn..saw dr and he said he would up my steroids next time and that should help
second treatment was on the 8th, Just the gemzar.. Really tired and achy. Dizzy and weak. Had my shot of Lewnasta on Monday.
Still fell tired and bone pain
First round 11-29-21 thru 2-4-21
Second round 2-27-21 thru 2-30-21
Both with the fanny pack pump through my port
Have had ten of twelve treatments. Nausea, loss of appetite, food not tasting good, neuropathy in fingertips and very susceptible to hot and cold beverages/food.
Started in July 2009 was suppose to have every 2 weeks, but blood count went down so had to push out either 3 or 4 weeks. I hurt from my head to my toes the week of chemo, and then after that started gradually getting better. Neuropothy in hands and feet. Should go away eventually.
Finished chemo Feb. 11, 2010.
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007
Nueropathy, memory loss, balance issues, joint and muscle pain
6-03--36 weeks of IV chemo therapy. Had problems with severe diarrah, nausa and fatigue 3 days out of 7. Slightly ill the rest of the days with same symtoms, but milder.
2007--doing much better on chemo therapy by adding alternitves. (read below)
12-07- oral Xeloda (chemo therapy). Take for 2 weeks straight 2 times a day, then one week off. Side effects are slight now that I take fermented wheat germ, green wheatgrass and mangoseed juice. The juice improved my energy level a lot! I think we are seeing some results from the fermented wheatgerm as we are now starting to see on my cat scans that things have kind of stopped. In the England Cancer Journal they have proved that fermented wheat germ can slow and sometime cure cancers. The mangoseed juice is made in Asia, this is the only place it grows. It is extremely high levels of antioxidants! Knock on wood I haven't been sick since I started it! I also only eat organic (as much as I can) I eat lot's of greens and fruits. I get protein from the grains and I also eat a lot of nuts. I have felt so much better since doing this it is unbelievable.. I have hand and foot syndrome that this chemo can cause..this can/is be very painful.
Febuary 08-New treatments of folfox6, Avastin and 5FU--extreme fatigue-nausa-diarreha-controled by medications for the most part. Need to rest a lot.
2 rounds of 96 hours each
Two rounds of chemotherapy in December '09 and January '10. Received Mytomycin at the onc office and received 5-FU using a pump on a picc line for 96 hours each round.
Side effects: nausea, fatigue, loss of appetite/weight loss, some hair loss, and some vomitting during and following the second round of chemo.
Cisplatin and 5fu 9/23/15 pump 96 hours/week 1, repeated 4th week 10/21/15 mouth sores, partial hair loss, oral thrush, dehydration, loss of potassium.
Taxol, 5FU, Carboplatin, Avastin, Tarceva (withdrawn).
Mitomicyn, flurosil-fu-5, weeks1 and 5, minimal side effects, some hair loss and fatigue.
Epirubicin Chemotherapy Chemotherapies
What Epirubicin Chemotherapy Cancer Survivors said about their Chemotherapies.
lots of dates,
spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea
vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints.
mercaptiprine, is every day, that just gives her a weird rash.
methotrexate makes her sleepy
Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.)
after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash
Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol
6 Treatments - 3 week cycle
3 - FEC
3 - Taxoteer
Sept. 7, 2006 through Dec. 21, 2006
sickness, weakness, no appetite, lived off cereal, and jello for a week, no taste,increase in smelling sense was intense 12/24/2005 was the first treatment.
3-8-2013 To 11-5-13 chemo. I be off balance, I throw up, lost hair, bones ache, hot flashes all side effects.
Blood work and chest xray September 11, 2007
Bone scan September 17, 2007
Port installed in right chest area September 18, 2007.
MUGA scan September 19, 2007
First Chemo treatment September 20, 2007
Neulasta shot September 21, 2007
Headaches and blurred vision
Hospitalized September 25, 2007
Found blood clot in the jugular vein
Started on lovenox and warfarin
Hair fell out in huge clumps 2nd week after first chemo
Second Chemo treatment October 11, 2007
Tiredness, constipation, nausea
Changed nausea prescriptions twice
Third Chemo treatment November 1, 2007
Potassium too low-put on prescription supplement
Nose bleeds and bruising from warfarin, not chemo
2nd MUGA scan scheduled for November 26,2007
4th Chemo scheduled for November 29th
February to May 2014
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September
2nd Irinotecan and Taxane
Current Fol Fox 4 + Avastin
1st and 4th week of Radiotherapy treatment, chemotherapy was also performed. 24 x 5 delivery of 5FU with a Cisplatin infusion on second day of each of these weeks.
Side effects included a 'Chemo crash' both weeks I had the treatment - second week worse than the first (required blood transfusions).
preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU.
Sep-feb--The oncologist said it would be " hard going"--that would be one word for it.
September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months.
Protocol: FEC-T (4 months/every 3 weeks)
FEC-T :Epirubicin/Fluorouracil/Cyclophosphamide cycles 1-3, then add Docetaxel for cycles 4-6
Finished chemo November 24/2010
FEC and taxotere. Three treatments of each starting 2/11
3/15/14 Began 10 session clinical trial at Memorial Sloan Kettering. Chemo iv (cisplatin and epirubicin + trial drug/placebo) every 3 weeks. 2000mg Xeloda pills daily. IV chemo is followed by two days of dextametazone (steroid pills) which give me a boost. Hair loss, dry hands - currently trying to prevent them from cracking, some fatigue. Trying to avoid pain meds because that seems to be the cause of constipation/discomfort.
It was called cef (which is cefuroxime, epirubicin, and cyclophosphomide). It is used only in a couple of Canadian provinces as it is very expensive.
Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse.
Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo.
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.
Starting on 18th April, 2011
Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss
I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes.
I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite.
I started Tykerb in Feb 2009.
I will continue with Herceptin for at least 7 more months after surgery.
May 23rd 2007 started 6 sessions 3 x F.E.C
3 X Taxotere
Ulcers in my mouth, sickness, diarrhoea,
thrush, joint pain, loss of finger and toe nails, peeling skin on hands and feet,
R-Chop, eight sessions
one every 3 weeks.
Side effects: nausea, loss of appetite, some muscle aches, hair loss, effected my eye sight - had to wear eyeglasses since the 4th chemo.
Oral Chemo (Xeloda) - 7/07 to current weight gain, tenderness in hands and feet, fatigue, irritability, feeling full; dehydration
Cisplatin, Epirubicin, Capecitabine (Xeloda)
#1 June 12, 2017, #2 July 4, 2017
Nausea, Dry mouth, Tingly fingers, blood clot in spleen, hair loss
Gemcitabine (Gemzar) Chemotherapy Chemotherapies
What Gemcitabine (Gemzar) Chemotherapy Cancer Survivors said about their Chemotherapies.
Gemzar, Taxotere and Xeloda
Folfirinox Jan 2013 - Feb 2013, switched to Abraxane and Gemcitabine March 2013-current
Diarrhea, fatigue, numbness in finger tips and toes
4 rounds of Adriamycin and Cyclophosphamide together every 2 weeks. I am done with those 4 rounds. 4 rounds of Taxol every 2 weeks I have 3 rounds left. Xeloda for a year, Gemzar and carbo still doing it once a month until I guess it stops working.
Multiple regimens
4 rounds (8 sessions) as of 7/13/19; serious weight loss and fatigue
Gemcitabine (Gemzar)
June 2015 until Jan 2016
Second course started Feb 26, 2018 ending May 7 2018
<b>February 2009:</b> CA125 level was around 3500. She began treatment with Taxol/Carbo with Avastin. Within two weeks, she lost all of her gorgeous red hair. Energy level dropped significantly.
She continued having "maintenance" chemo.
<b>June 2009:</b> CA125 dropped to 32, and then to 16 later that month. Oncologist decided to stop chemo- as there was no sign of cancer!
<b>March 2010:</b> Having chest pain/shortness of breath. CT scan showed fluid in her lungs. Testing after thoracentesis revealed cancerous cells in the fluid.
CA125 was back up to 300.
It is now referred to as "RECURRENT CANCER"
She began chemo again: Cisplatin and Gemzar.
Cisplatin was causing tinnitus. Oncologist decided to discontinue to avoid permanent hearing damage.
The Gemzar would usually burn during infusion. Side effects: headaches, intense nausea and often uncontrollable vomiting. Drastic decrease in appetite (and weight: about 70lbs)
Last time it was checked, her CA12 was hovering around 86.
I'm guessing it's currently off the charts.
On my second round of 2 sessions each which are a week apart
intraperitoneal taxol and cisplatin, 6 - 10/06 (heinous, too long to describe); HIPeC something-or-other intraoperatively 10/07 (really ghastly); IV carboplatin and gemcytabine, 2 - 5/08 (some hair loss, fatigue); sunitinib clinical trial 2/09 (painful hands and feet, fatigue); doxil, 3/09 (fatigue); taxol and carboplatin 5 - 9/09 (hair loss, fatigue, neuropathy, tinnitus); Avastin 10/09 to present (runny nose)
About to start chemotherapy
I do not remember all of the names. The chemo was a combination of four different chemo drugs. It did not work. My father experienced nausea and could not taste anything so lost his appetite. He also was very sensitive to temperature.
We are still waiting to start a trial chemotherapy drug! Pray, pray, pray!
Chemo #1 on 4/02/10: I was more tired then usual and had a "blah" moment after going outside for a few minutes.
2013-2014: 1st chemo; Taxol, no help. 2nd chemo:Doxil, no help. 3rd and current chemo: Gemzar & Cisplatin. I also get Zometa injection every 4 weeks.
I started Chemo on June 19, 2008 and as of today 7/7/08 I have only had 1 treatment. My second treatment is this week on Wednesday, July 9, 2008. I will have 6 chemo treatments, 3 weeks apart.
The worst side effect I had was from the Nulasta shot I had the day after chemo. The bone and body aches really kicked my butt. I was fortunate and did not experience any nausea.
On day 14 I started loosing my hair. It was coming out by the handfuls!! By day 16 I couldn't stand it anymore so I buzzed it all off.
Extreme fatigue, some dry heaving, hair loss, neutropenia
3 sessions on Folferinox in September and October 2019. Scan on 17 October showed spread to liver (spots) and tumour growth. Folferinox side effects were fatigue, pain and breathlessness.
Started with nine drops of Taxol and had an allergic reaction that caused me to stop breathing. Then switched to Gemzar and Carboplatin. Had some nausea but started taking Emend....VERY tired.
Folfox mix of chemotherapy -nausea, vomiting, diahhrea , nil taste I food, shaking, mouth ulcers, dry skin
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
Gemzar June, 2014. Nausea, weakness, fever, headache
Gemzar started Jan 2014. Once a week for three weeks then one week off for six rounds; liver function elevated and dehydration, fatigue , vision affected .
Infusion on days 1 and 25. Every other day for 7 weeks oral chemo pills morning and night
Gemazar.... So far, nausea and weakness
Irinotecan (Campto) Chemotherapy Chemotherapies
What Irinotecan (Campto) Chemotherapy Cancer Survivors said about their Chemotherapies.
March 22(3 types of chemo) i feel it lessened his quality of life, but for my dad he needed to fight back!!!
11/06-oxaliplain,xeloda....tingling and cold sensitivity in hands and feet, fatigue
11/07-irinotecan, avastin, 5FU, diahrrea, fatigue, burning and cramping in abdomen started erbitux january 2010, adding irinotecan this week, sept 20, 2010...post-note that irinotecan caused so much diahrrhea I became too hydrated and wound up in hospital. i had a blockage too, but just sayin'! ;)
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
Mar 4 _ Sept 15 2015(Folfirinox)Nausea, weakness, vomiting, low potassium, low platelets (despair)
Chop therapy for 7 months
9/07 for 5 months every 2-3 weeks.Fulfox, Five FU, evastin, oxalyplatin -Side affects were mild and temporary such has hair loss (complete on first round) mild neuropathy, Hand and food syndrome. Slight diarrhea but NO nasuea. Loss of appetite, loss of taste.
06/08 Second round of chemo (Irinotecan) more nausea but virtually no diarrhea. neuropathy has returned slightly. I can still taste things after 2 rounds of chemo this time.
2 cycles of 5-FU, FOLFOX for tumor, R-CHOP for B-Cell and now 6 cycles of FOL-FIRI
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September
2nd Irinotecan and Taxane
Current Fol Fox 4 + Avastin
Sept. 2010 to Nov. 2010 - Oxcaliplatin, 5FU, Avastin. Oxc. not working changed to Irinotecan/Avastin. till April 2011. Tumor growth in liver and lymphnodes. Itinotean/Erbitux from June 2011 till present.
3 sessions on Folferinox in September and October 2019. Scan on 17 October showed spread to liver (spots) and tumour growth. Folferinox side effects were fatigue, pain and breathlessness.
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007
Nueropathy, memory loss, balance issues, joint and muscle pain
Folfirinox Jan 2013 - Feb 2013, switched to Abraxane and Gemcitabine March 2013-current
started chemo on 12/11/07
clinical trial with avastin,erbitux,oxaliplatin,lecovorin,5FU..now irenotican
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
Nine rounds of Folfirinox treatment before surgery and more after.
Began chemo in July of '09 with camptosar, leucovrin, and 5-fu. this is over a 46 hour period. In January '10, they added avastin and zometa to the regimin and is ongoing.
Flu like symptoms and fatigue.
Bi-weekly chemo. Energy levels vary. Diarrhea, one day only usually. Keep hydrated.
6 weeks Flourcil (pills) and radiation Oct - Nov 2015
10 sessions IV chemo (avastin,
oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016
Hands and feet numness
Little nausea
Fingernails thinned
Balding
Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.)
after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash
Too many to mention-16 months in total(6,6,4) Every drug they have for colon cancer.
Alt Folfiri/Folfox 2010/Feb through 2010/June
Folfiri/Erbitux started 2011/March
Changed to Folfox/Avastin 2011/Oct
Clinical trials 2012/Sept
5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared.
Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half.
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.
Vinorelbine (Navelbine) Chemotherapy Chemotherapies
What Vinorelbine (Navelbine) Chemotherapy Cancer Survivors said about their Chemotherapies.
I begin chemotherapy on the April 8th. 4 rounds of 3 weeks each of Vinorelbine and Carboplatin. (Originally Cistoplatin but the doctor changed it cuz my ears were ringing)Worst side effects are feeling like lead and/or rubber, forgetfulness, weight gain, insomnia and aching bones, muscle and skin.
2000 - Chemotherapy
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
Chop therapy for 7 months
I've taken chemo for 3 years now, many kinds of chemo, my "favorite" is Xeloda.
Taxotere Aug 2008 - Dec 2008 (3-weekly)
Herceptin Aug 2008 - Aug 2009 and Dec 2009 - March 2011 (3-weekly)
Vinorelbine Dec 2009- May 2010 (for regional recurrence to Internal Mammary nodes - not involved the first time round)
Capecitabine (Xeloda)April 2011 - October 2011(for Liver metastasis)
Adriamycin - December 2011 - February 2012
Taxol March 2012
1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
Multiple regimens
Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
ABVD- nausea, fatigue, wooziness, thinning
hair
ICE- nausea, fatigue, wooziness, total hair
loss, bleeding gums and mouth sores
GND- some fatigue, mouth sores
Six rounds in 2008 and 12 rounds in 2015 got through these not too bad in the big scheme of things.
Cisplatin (Platinol, Platinol-AQ) Chemotherapy Chemotherapies
What Cisplatin (Platinol, Platinol-AQ) Chemotherapy Cancer Survivors said about their Chemotherapies.
Standard protocol of 2 rounds of mitomycin & 5FU (8/13 & 9/13)
Carboplaxin and taxol 6 x's Jan to May 2016. Side effects: loss of hair, anemia, low WBC, low platelets.
750ml & 500ml cisplatin & taxotere respectively on 12/10/09,12/31/09,1/20/10,2/11/10.i thought they were trying to kill me!
My cocktail included Fluorouracil and Cisplatin.
IP Cisplatin and IV Taxol for six cycles. Five of those cycles included Avastin and Avastin continued for 18 more cycles.
Chemotherapy Cisplatin. Vomiting started the first day of chemo and stopped two weeks after treatment complete (9 weeks of vomiting & vomiting).
Dizziness and low blood pressure
April 9, 2012 (Only made it through 4 treatments as it made me incredibly sick.)
Cisplatin and 5fu 9/23/15 pump 96 hours/week 1, repeated 4th week 10/21/15 mouth sores, partial hair loss, oral thrush, dehydration, loss of potassium.
10 weeks of 2 chemo drugs per week
Six chemotherapy treatments concurrent with radiation.
Chemo (Cisplatin) is anticipated to begin the second week in July. Treatment plan will include 6 chemo sessions (2 sessions every 21 days). Will complete chemo concurrently with radiation.
January 6 2015, February 18, 2015 nauseous fatigue
felt sick all the time, metal icky taste, neuropathy, ruined joints >:( bone pain
Jan 21- vomit, headaches, fatigue, lack of sleep, sore throat, cold sores, dry mouth, weak, pain, dry skin, headaches
Three Cisplatin chemo doses, Jan 4, Jan 26, Feb 16. Never got the Feb 16 dose as I was too sick from throwing up.
Cisplatin. Lots of nausea. Some hair loss.
Extreme nausea, vomiting, some tingling in my toes.
October 18 th and every 3 weeks for 4 treatments. Nausea and joint cramping, some neuropathy.
3/15/14 Began 10 session clinical trial at Memorial Sloan Kettering. Chemo iv (cisplatin and epirubicin + trial drug/placebo) every 3 weeks. 2000mg Xeloda pills daily. IV chemo is followed by two days of dextametazone (steroid pills) which give me a boost. Hair loss, dry hands - currently trying to prevent them from cracking, some fatigue. Trying to avoid pain meds because that seems to be the cause of constipation/discomfort.
Chemotherapy is bi weekly on fridays!
Side effects include Nausea, fatigue, and weakness, hair thinning
Induction chemo for 2 months prior to radiation treatment - once a week during radiation; mouth sores for four days after first round, hair loss, fatigue, and some taste changes, but all in all, he did really well. Very little nausea.
A 2 chemical soup every 3rd Monday and then a 24/5 fanny pack pump the same week as above. I have 1 week on and 2 weeks off treatment
12/7-10. Not too sick alot of mouth sores and counts were drastically low hospitalized 12/15 with new oncologist
3 heavy does of cisplatin thankfully no hair loss or sickness just some constipation which was a pain oh and some weight loss
Carboplatin (Paraplatin) Chemotherapy Chemotherapies
What Carboplatin (Paraplatin) Chemotherapy Cancer Survivors said about their Chemotherapies.
little queasy tired bald last one nov 5th 2010 yesssssss!!
Chemo every 2 weeks, nausea, vomitting.
I have had two rounds of chemo, and the next will take place on Jan 31, 2012. After that, three more rounds!
Carbo and Taxil, 6 cyles. Deep bone pain, dizziness, blood clot in lung, breathless
June 4th 2016, every 3 weeks for 6 sessions. Maybe more after surgery. Chemo combo tch
4 months of chemo. Made me achy like having the flu but much worse especially in my legs, naseous, food tasted bad, water tasted bad, low energy.
one treatment . switching to Afatinib
CarboPlatin & taxol w/ neuplasta at 3 wk intervals from Aug to Oct
Severe constant leg pains, neuropathy in feet and hands, high heart rate. Unable to stand for more than 10 minutes, stumbling, dropping things regularly
Treatment changing to CarboPlatin & doxil w/ neuplasta.
currently doing carbo/taxol every three weeks. Extreme fatigue, muscle aches, taste changes
I'm on my 4th round of chemo treatment in 3 years time. This round is 2 days a week. Side effects are joint pain, nasea, vomiting, diarrhea, night sweats, loss of appetite, hair loss, irritability, exhaustion, and thankfulness for each day
Had first treatment Sept 3rd. headaches really bad stomach, rash on my chest and face they just keep coming and changing really
6 carbo/taxol and 4 cisplatnin in 2013/4. 4 carbo/taxol in 2016/17.
carboplation and alimpta 4 treatment rounds, a lot of pain and nausea and increasing weakness
Chemo Round 1: 9/23/19
Day 1: good morning and afternoon, then felt like a heavy blanket over my head and shoulders. The aches started later that evening, lasting about two days.
Day 4:. Morning began with the metallic taste in my mouth, by lunchtime I couldn't taste my food. This lasted about two days. The metallic taste lasted a little longer but only happened once in a while. Had some nuer
Starting chemo (carboplatin and taxol) on 4/27/11. Will have 6 sessions, one every 3 weeks.
4 rounds of Adriamycin and Cyclophosphamide together every 2 weeks. I am done with those 4 rounds. 4 rounds of Taxol every 2 weeks I have 3 rounds left. Xeloda for a year, Gemzar and carbo still doing it once a month until I guess it stops working.
Initial diagnosis required 1 round chemo -Carboplatin - minimal side effects
Return of cancer - 4 rounds of chemo ( EP) 21 day cycles includes five continuous days of infusion then rest. No nausea but gastric reflux with vomiting, scalp pain, metallic taste in mouth, tiredness, neutropenia
Beginning in April I had three treatments with Taxol and carbo platinum as well as Avastin. Joint pain was rough but gone after a week or so. I've mostly been easily tired out. My CA125 went up so I had another PETCT that showed an increase in the cancer I am now getting Doxil every four weeks and Avastin every two weeks. Side effects have been relatively mild - just tired a lot.
Lost hair not much else
January 6 2014 and February 15 2014
3 rounds, carbo/taxol
6 weeks may June 2016
Standard protocol of 2 rounds of mitomycin & 5FU (8/13 & 9/13)
Carboplatin started 2007, however I became allergic in 2008, so had to have it changed to Gemzar and Advastin then. Been on and off of chemo since for chronic cancer outbreaks.
2009 - Mitfomycin, 5FU; 2011 Xeloda & Oxaliplatin; 2013 Paclitaxel & Carboplatin; 2014 Lapatinib; 2015 Xeloda (twice with radiation)
Doxorubicin, Leomycin. Inblastine, Acarbazine (ABVD) Chemotherapy Chemotherapies
What Doxorubicin, Leomycin. Inblastine, Acarbazine (ABVD) Chemotherapy Cancer Survivors said about their Chemotherapies.
oct induction chemo, Nov another bout of induction chemo as first did not work.
Jan: consolidation chemo
Apr: additional chemo to prepare for bone marrow transplant.
11-19 chemo pellets not sure of the name, nausea,
R-CHOP BEGINNING ON 12.21.2015
Jan 22, 2015 R Chop was the first. Mostly tired some nauseous spells
R C h o p. 21, Six cycles stated feb 11 last one ( hopefully )June 1st 2011.
Severe tummy gloating, gas, and pain. Heavy fatigue and nausea, constipation, sweats, hair loss, neuropathy, weight gain in trunk area. Sweats. Fevers. Period gone after first week. Dunno if gone 4 good.
29 Jul 15, 19 Aug 15. Tumor Lysis Syndrome, hair loss
8/23/12 - Hot-flash (minor) and a little fatigue
8/26/12 - Mouth sores.
nausea, fatigue, anxiety, depression, dizziness, vomitting
finished with induction therapy, now gonna begin with consolidation.
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
August 10th 2010 -Present
6 Cycles -12 Treatments
ABVDX2 4 cycles
13th Feb-2017 ABVD 1st session
27th feb-2017 ABVD 2nd session
R-CHOP 6
28 day cycle. Chemo on days 1 and 15. 6 cycles or 12 treatments
Got temporary remission during some 16 months of various drugs, but no lasting remission
6cycles of Chemotherapy was planned that is a six montha duration.ABVD doses was induced in every fifteen days through veinflow during the first 3 cycles and later through picc line which was less painful. Side effects of chemo were many starting with gastritis, acidity, nausea, body pain,hair loss,fatigue...but this would be fine within a week after wbc count increases to normal level.
Induction round 12/22/14-1/19-15: nausea, vomiting, diarrhea, fatigue Consolidation February '15, Consolidation March '15, Consolidation April '15
Many different times beginning approx 1 year after spleen removal
I have Chemo once a month. The Chemo caused the whites of my eyes to turn Fire Engine Red. It was a reaction that none of the nurses had ever seen. I was given IV Benedryl. The dose of the medicine knocked my butt out. That was my first treatment on May 21, 2012. I was set for 3 treatments. My Oncologist was not sure if the Chemo would work to begin with. Within the first treatment I could tell a difference. I was amazed. I could actually feel the mass and it was smaller. So, Dr. M ordered another 3 treatments for a total of six. I lost all my hair, eyebrows and eyelashes. Hey, they will grow back one day. I don't mind. I love all the scarves and hats I have bought and been given.
CarboPlatin & taxol w/ neuplasta at 3 wk intervals from Aug to Oct
Severe constant leg pains, neuropathy in feet and hands, high heart rate. Unable to stand for more than 10 minutes, stumbling, dropping things regularly
Treatment changing to CarboPlatin & doxil w/ neuplasta.
R-CHOP 21
Round 1, July 19, 2010 (extreme drop in blood pressure, shortness of breath, chest pressure, swelling of hands, feet and face)
First R-CHOP on 12/28/2015 which was from 7:00am to 6:00pm. Had a reaction to the Rituxan of red hives on face, so they had to stop treatment for a half hour and treat reaction before continuing with the Chemo. Feel tired and cold. After the first chemo treatment, the next 3 had almost no side effects.
Round 1 1/22/13
Round 2 2/13/13
started ABVD March 2011
6 months of bs and stem cell transplant was life changing made me feel completley helpless
Tarceva (Erlotinib) Chemotherapy Chemotherapies
What Tarceva (Erlotinib) Chemotherapy Cancer Survivors said about their Chemotherapies.
January-April 2009
3-8-2013 To 11-5-13 chemo. I be off balance, I throw up, lost hair, bones ache, hot flashes all side effects.
Fatigue, acne, diarrhea, numbness and pain in fingers and feet, no appetite, foggy-brained, rheumatism, sensitive to sunlight, no taste, fungus in mouth and lung, partial loss of hair
Avastin-2008 and 2011, Cisplastin-2009 and 2011, and Tarceva-2011.
I've been in chemo since june 2011. I was taking 3 different kinds every three weeks but now have gone to just one kind. the initial treatments caused heartburn, hair loss, vision loss, hearing loss, skin discoloration, skin burns, nausea and vomiting, dizzyness, hot flashes, chemo induced asthma, chemo induced menopause, bone pain, I was not able to taste foods that were not sweet, there are many more but I feel like I"m whining...lol
One a day pill forever (took 150 mg for 2 years). Down to 100 mg due to vertigo, fatigue. Other side effects, slow/non hair growth, rash, dry skin, dry mouth
daily intake of a chemo tablet
December 2004 - Present off and on. On Avastin and Tarceva currently, but stopping to start a new chemo.
Xeloda Chemotherapy Chemotherapies
What Xeloda Chemotherapy Cancer Survivors said about their Chemotherapies.
Fatigue, feeling very cold, emotional side effects
Started 9 Nov on Poxy Oxy and capecitabine. Finding it tough, especially the first week. Been neutropenic on first 2 sessions so far which is causing delays.
Too many chemo regimens and drugs to count. At present, I am on Xeloda, Herceptin and Avastin. One drug was damaging my liver, but okay now. Herceptin was damaging my heart, but it is okay now.
Taxotere Aug 2008 - Dec 2008 (3-weekly)
Herceptin Aug 2008 - Aug 2009 and Dec 2009 - March 2011 (3-weekly)
Vinorelbine Dec 2009- May 2010 (for regional recurrence to Internal Mammary nodes - not involved the first time round)
Capecitabine (Xeloda)April 2011 - October 2011(for Liver metastasis)
Adriamycin - December 2011 - February 2012
Taxol March 2012
Still in treatment with no end in sight. My port is my best friend even if it sticks out of my sub-clavicle like an alien.
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.
Xeloda Monday thru Friday. Weekends off. Also had mytomycin Iv in the beginning and end of treatment.
Xeloda - nausea and reflux
Gemzar, Taxotere and Xeloda
Mitomicyn push on day 1 and day 29. Xeloda 5 days a week for 7 weeks. 3 pills in AM and 3 pills in the PM.
May 2009 - Sept 2009 FolFox, peripheral nerve damage to hands and feet (used to unload dishwasher with ski gloves on cause touching plates etc felt like pickiing up glass!) All good now with help of Vit E and Alpha-lipoic acid suppliments.
Xeloda - long term chemo. March 2010 til now and according to onologist, forever!! damages skin on my fingers and feet.
2 cycles of 5-FU, FOLFOX for tumor, R-CHOP for B-Cell and now 6 cycles of FOL-FIRI
xeloda pills for two weeks then a week off.
No problems with chemo. Lots of itching from radiation
2009 - Mitfomycin, 5FU; 2011 Xeloda & Oxaliplatin; 2013 Paclitaxel & Carboplatin; 2014 Lapatinib; 2015 Xeloda (twice with radiation)
folofox: 3/14-9/14, starting again 1/15
Oral chemotherapy taken on radiation days 08/10/2011 - 09/19/2011
No side effects.
Folfox - Begin 01/10/2012 - End date due to non-cancer complications: 4/18/2012. To date: lip numbness when I go in the cold for a couple of days after treatment. Cold sensitivity to foods and drinks for the first few days after treatment. No issue with fatique or nauseu to date. Xelox to replace Folfox: 05/02/2012 No side effects. End date due to non-cancer complications: 06/05/2012.
Started Chemo - Gemzar & Xeloda - in November 2016. 6 cycles planned. Side effects pretty mild - some nausea and tiredness
I felt like my body was vibrating during the oral chemotherapy. I was very fortunate in that my side effects were minimal.
Mitomycin and xeloda
Chemo once a week from 4/2/10 to 6/01/10: Was tired the next day with small "blah" moments.
Mar 4 _ Sept 15 2015(Folfirinox)Nausea, weakness, vomiting, low potassium, low platelets (despair)
2 chemo infusions and 6 chemo pills a day for 6 weeks
Started today 2020
4/4/2011 - FOLFOX6 with Avastin. Some fatigue, peripheral neuropathy, cold sensitivity. Discontinued after 3 rounds
7/1/2011 - Switched to Xeloda. Stopped first round after 9 days due to much bowel discomfort.
Etoposide (VePesid) Chemotherapy Chemotherapies
What Etoposide (VePesid) Chemotherapy Cancer Survivors said about their Chemotherapies.
ABVD started in December 2011-May 2012. Hair loss, nauscia, weakness. ICE July 2012-August 2012 Hair loss, nausea, weakness
starting the 2nd week of August 2013
Rituxan/Bendamustine (Summer 2010) - very little except fatigue. R-CHOP (summer 2011) - nausea, fatigue, hair loss
ABVD Six months
3 cycles of: Cisplatin, Bleomycin, and Etopiside which caused nausea, fatigue, by second cycle I could no longer naturally fall asleep, escalated pulse, anxiety, depression, dry mouth and skin which now I have scratch marks on my back, vomiting, got a finger infection so wear rubber gloves when counts are low and a mask, slight ringing in ears, raw esophogus, heartburn and diarrhea.
Chemotherapy started on 20th Dec 2008 and I chose to stop in June 2009 (I was meant to finish in Nov 2009, but when I found out my tumor was no longer shrinking, I physically could not deal with the side effects anymore). I lost my hair, which was by far not the worst side effect! Mouth sores, lost my sense of
taste and smell. Horrendous constipation. Nauseous most of the time. Not able to eat. So completely exhausted, not even energy to stand up some days. Felt extreme cold, then major hot flushes, wake up
drenched in sweat. Eyes always sore and watery. My chemotherapy was every 3 weeks, which took 5 days in hospital to administer IV - then every month when home I would spike a massive temp & have to be rushed into hospital for blood transfusions and isolated for neutronpenia! Chemo turned me into a shell of my former self, it destroyed my spirit and had me in tears most of the time. It was a hard, hard fight.
Cisplatin once a week In conjunction with the radiation. Then Five series with Etoposide.
I had three rounds of chemo in three week cycles.
Week 1: 5 days of treatment (admitted in hospital)
Week 2: Recovery in hospital
Week 3: Recovery at home
I experienced low blood pressure, dehydration, nausea, fatigue and anaemia.
I still have fatigue after treatment, muscle atrophy and peripheral neuropathy.
nausea, fatigue, anxiety, depression, dizziness, vomitting
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet.
Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
Doxorubicin
Cisplation
Methotrexate
Ifosfomide
Etoposide
Chemo Began 12/02/2013... Bleomycin-Cisplatin and Etoposide
VP-16 and Carboplatin with first cycle began in April 2011 and finished in Sept. 2011 after 8 cycles - usual side effects
Hair-Loss
Fatigue
Metal Taste
Mouth Sores
Ongoing White Blood Count Issues
Ongoing Red Blood Count Issue
Multiple Blood Transfusions
6 cycles of R-EPOCH
started 10/19/2015 R- EPOCH 6 treatments
fatigue
Dose adjusted R-EPOCH. Six rounds. 21 day cycles. Chemo administered as an inpatient. Started chemo December 19, 2011. Finished April 26, 2012.
cistplatin, bleomyocin, etopiside,
numbness in hands and feet nausea and weakness major chemo brain
Chemotherapy lasted from July 2010 - August 2011 His chemotherapy consisted of Vincristine, Doxorubicin, Cyclophosphamide, Ifosfamide, and Etoposide. Some vomiting and lots of nausea.
Induction Theraphy
Cytarabine and Doxorubicin for 8 days.
I just start my Consolidation theraphy last March 30.
Which is Doxorubicin for 1hour and vincristine(push) and cytarabine IT(so painful)
IE and VAC treatment every 3 weeks. Lost weight and all my hair/ body hair
Initial diagnosis required 1 round chemo -Carboplatin - minimal side effects
Return of cancer - 4 rounds of chemo ( EP) 21 day cycles includes five continuous days of infusion then rest. No nausea but gastric reflux with vomiting, scalp pain, metallic taste in mouth, tiredness, neutropenia
Currenly going through Ewings Sarcoma protocol for Chemotherapy. 14 total cycles.
BEP chemo
Rituximab, Cyclophosphamide, Vincristine, Prednisone on 3 week cycles.
Started 1st September 2010.
Side effects - constipation, mild nausea, night sweats, tiredness, mood swings.
3 days chemo every 21 days. Hydration as needed. Tiredness and nausea/vomiting at times.
Imatinib Mesylate (Gleevec) Chemotherapy Chemotherapies
What Imatinib Mesylate (Gleevec) Chemotherapy Cancer Survivors said about their Chemotherapies.
Gleevec 400 mg. daily, nausea, taking anti nausea medication
Daily 400mg Gleevec. Daily fatigue. Slow morning wake up. Memory problems they call Gleevec brain. Polyneuropathy: pain and weakness in body. I use a cane when walking outside. Diarrhea. I did just find out that I am now in remission but must stay on the Gleevec for 2 years. I am totally grateful that Gleevec exists for me and for all CML patients. Good luck to all of us!
Sorafinib (Nexavar) Chemotherapy Chemotherapies
What Sorafinib (Nexavar) Chemotherapy Cancer Survivors said about their Chemotherapies.
11-19 chemo pellets not sure of the name, nausea,
Nexavar 8/22/12 - forever, side effects all listed
Nexavar for 6 months.
Infusion therapy started 2 weeks ago and ongoing bi-weekly.
Topotecan (Hycamtin) Chemotherapy Chemotherapies
What Topotecan (Hycamtin) Chemotherapy Cancer Survivors said about their Chemotherapies.
Have had chemo continuously for 2 years
Carboplatin and Taxol, 8/11/2011. Sun-sensitive day after infusion (doesn't that sound like something you'd pay extra for at a spa?), then joint pain, peripheral neuropathy, fatigue on days three and four following chemo. Get better pain meds for next round!
RCHOP - 6 sessions May - October 2011
Metaxtrate - 3 sessions on my brain May - October 2011
R- ICE - 3 sessions Feb 2012
Mini Beam -2 sessions December 2012 and January 2013
R- GDP -3 sessions March - April 2012
Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
Loss of hair and nausea
7-2010 IP/IV chemo x 6 cycles ( cisplatin/taxol/carboplatin)
Hair loss, extreme fatigue, abdominal pain...
11-2011 ca125 on the rise. 4/6 cycles complete of topotecan. Ca125 back in its place.
BRCA 1
Minimal side effects: reasonable fatigue and well controlled nausea.
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)
Vincristine (Oncovin, Vincasar PFS) Chemotherapy Chemotherapies
What Vincristine (Oncovin, Vincasar PFS) Chemotherapy Cancer Survivors said about their Chemotherapies.
4 rounds of chemotherapy "R-CHOP", every 3 weeks for 12 weeks. 1 round of radiation therapy.
Nauseated, feeling like am in a fog. I chew on ice chips prior to and during the administer of Adriamycin (red devil) to prevent mouth sores. So far it works!!!
June 2012-October 2012; Reported Lethargy, nausea, changes in taste, neuropathy in fingers, weight loss.
R-CHOP 25/11/11
November 16 Started cycle of RCHOP followed by methotrexate for CNS 10 days later and RCHOP 11 days after that. finished this in April 17 no major side effects nutropenia, numbness in fingers which stopped with medication, constipation. Returned to wrk in May 2017
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
Chemotherapy started in September 2011 and continued every three weeks either daily for a week, or a single day dose of VAC - crappy crappy side effects, where do I start......numb finger tips, constipation, hair loss, loss of taste buds, thrush in mouth, lack of concentration, sooooo exhausted after each dose and weeks later. It is very true that the chemo is so much harder than the cancer to deal with.
Induction Theraphy
Cytarabine and Doxorubicin for 8 days.
I just start my Consolidation theraphy last March 30.
Which is Doxorubicin for 1hour and vincristine(push) and cytarabine IT(so painful)
RCHOP
At first it was the same as radiation, but when they got aggressive in August, I was stuck to the couch for 2 weeks. Weakness, major nausea, muscle and bone pain, throat swelling, mouth sores, major shivers and shakiness, tremors, spinal and head pain, throbbing from head to lower spine...theres more but can't remember them all.
Stopping R-Chop Chemo on December 5th 2012. Cancer growing.
Started a new Chemo Regimen on Dec 10th 2012.B-R( Rituximab and Bendamustine)Stopped Rituximab and Bendamustine regimen on February 18th,2013 due to developing PML in the brain.
Started back on ( Rituximab and Bendamustine) PML cleared.
Started in Nov 2013 on Tremsirolimus
I don't remember all of them, but cytotoxin was one of them
R-CHOP14 to start on September 13 for six cycles.
3 Cycles of Chemo - Cyclophosphamide, Vincristine, Cisplatin - Dec to Feb. (3 weeks apart) - Foot Drops and trips and falls
3 Cycles of Intensive Chemo with Autologous Stem Cell Transplant - Carboplatin & Thiotepa - Feb to May (4 weeks apart) - Hearing Damage
R-Chop - started on 11/19/12, day one was just tired, days 2-4 was aches, awful taste in my mouth, fatigue, constipation. day 5 was pain everywhere, especially in jaws and stomach. Slowly getting better on days 6-14.
Round 1 1/22/13
Round 2 2/13/13
R-CHOP; chemo as listed above plus Rituximab and Prednisone. June x1; July x2; August x1; September x2. 6 total rounds of R-CHOP. Also, had an injection of Neulasta the day after each chemo round that helped me build-up white blood cell counts and it worked well. Fortunately, they gave me a 'cocktail' of Benadryl etc, so I never got sick - thank God. Took nausea pills. Loss of appetite for days as everything tasted like you ate old pennies or nickels. The first two times that I had the Neulasta white blood cell shots I had bone pain within a week that lasted only a day or two and went away. Chemo also gave me an irriegular heartbeat, so a beta-blocker fixed that. Chemo 1-4 weren't all that bad, just long. Chemo 5 & 6 felt like I was in a fight in the middle of the night - but I was able to recover quickly. The Prednisone pills made me nasty, which I usually am not.
Chemotherapy lasted from July 2010 - August 2011 His chemotherapy consisted of Vincristine, Doxorubicin, Cyclophosphamide, Ifosfamide, and Etoposide. Some vomiting and lots of nausea.
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
R-CHOP every 3 weeks for 6 cycles
About to go for chemo number 3 on Friday, feb 22... bone pain, anxiousness, depression, numbness, random rashes, hair losss, constipation. RCHOP , nuelasta, etc
RCHOP - 3 sessions. Start Aug 10 2012
PCV 8/21/16 - still fighting
3/20/19 first cycle R-Chop
RCHOP, 5/9/2019. back pain, lethargy, nausea
R-EPOCH
Vinblastine (Velban) Chemotherapy Chemotherapies
What Vinblastine (Velban) Chemotherapy Cancer Survivors said about their Chemotherapies.
6cycles of Chemotherapy was planned that is a six montha duration.ABVD doses was induced in every fifteen days through veinflow during the first 3 cycles and later through picc line which was less painful. Side effects of chemo were many starting with gastritis, acidity, nausea, body pain,hair loss,fatigue...but this would be fine within a week after wbc count increases to normal level.
AVD (Dr. says I don't need the B)
constipation, nausia, jaw tingle, red hot face, tired, dizziness
1991 April to June MAKOP B, 12 months treatment plan administered weekly over 12 weeks, ulcers, nausea, tiredness, loss of nerve sensations in extremities, severe constipation, hair loss (lol)
ABVD Chemo every other Tuesday 12 times.
R-CHOP 6
AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
ABVD Six months
6 rounds/12 treatments ABVD (Could only find Adriamycin and Vinblastin to list here) over the course of 6 months
(ABVD) Loss of hair, nausea, fatigue, loss of appetite, Random flushness, metallic taste in mouth, sores inside mouth
Erbitux (Cituximab) Chemotherapy Chemotherapies
What Erbitux (Cituximab) Chemotherapy Cancer Survivors said about their Chemotherapies.
ABVD Six months
second form of chemo 3 more weeks, no side effects
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007
Nueropathy, memory loss, balance issues, joint and muscle pain
12 total Erbitux sessions, once weekly, January 13 - March 31, 2011. Increasing fatigue and, ironically, insomnia following each session. From mid February through the end of treatments, somehow the Radiation/Erbitux mix seemed to spawn clusters of migraines.
Start with erbitux on Nov 12th and follow with weekly doses every Monday for a total of 8 weeks
Jan 21- vomit, headaches, fatigue, lack of sleep, sore throat, cold sores, dry mouth, weak, pain, dry skin, headaches
Cetuximab - Brand name: Erbitux - April 1, 2010 - so far just really really tired. I was told later a rash and other stuff could happen. ( 5/1/10 - rash did appear including itching. Scalp was the worst. Lying down felt like pins sticking my head. I was told if not rash, med is not working. After they know it was working, I got med to help the rash and itch.)
Started weekly induction chemo on 9/5/13 with carboplatin and paclitaxel- soreness in mouth, slight nausea, dry skin (severe itching), acid reflux.
Started chemo-radiation on 11/4/13 using cisplatin. Received 5 weekly cisplatin treatments until wbc count was too low.
11 treatments ended about 11/07/2011
Began Erbitux November, once a week. Skipped December, resumed chemo January, I go weekly.
Erbitux. Loss of hair, lesions on my hands, scab around my neck, vomiting, etc.
Begin Erbitux treatments February 13 2012 and finished on May 2nd.
3 treatments. Cisplatin at first but had terrible digestive side effects so used erbitux for last 2 treatments
Completed May 15, 2012
Erbitux (Cetuximab) taken, due to success with HPV-16 related cancers. 7 infusion sessions, starting one week before radiation commencement. First session gave me the worst headache of my life, terrible chills, fever, nausea (but only brief vomiting) and profound weakness. Started about 7 hours after treatment. Subsequent sessions have had less impact; primary complaint being weakness and fatigue. Blistering rash encompassing head, neck, shoulders, chest and back. Very itchy and painful. Appeared by second week of treatment. Now in 4th week, the pustules have subsided somewhat, but lotions are essential to keep the skin peeling controlled.
First treatment on 8-16-12 of FOLFOX
Avastin begins 8-30 with second treatment
Side effects: mouth soreness, sensitivity to cold
April 9, 2012 (Only made it through 4 treatments as it made me incredibly sick.)
Protocol #1: First of 3-21 day cycles of 5-FU, Cisplatin and Docetaxel started 10/7/13 - around the 2 or 3 week started losing hair and experiencing nausea, fatigue, weight loss, etc; Protocol #2: Eribtux and concurrent radiation for 6 weeks started ~12/10/13 - neuropathy in feetbegan a few months after treatment stopped and is still ongoing.
Cituximab Loading dose March 13th, High fever and severe headache. Second of 8 treatments March 21st. Only side effect was severe heartburn.
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
Alt Folfiri/Folfox 2010/Feb through 2010/June
Folfiri/Erbitux started 2011/March
Changed to Folfox/Avastin 2011/Oct
Clinical trials 2012/Sept
Begin weekly Erbitux 9/10/13, Cisplatin/5FU 5/14, CarboTaxol 7/15
RCHOP - 6 sessions May - October 2011
Metaxtrate - 3 sessions on my brain May - October 2011
R- ICE - 3 sessions Feb 2012
Mini Beam -2 sessions December 2012 and January 2013
R- GDP -3 sessions March - April 2012
Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
Cisplatin ....nausea and fatigue
Erbitux, once a week for 7 weeks, starting in August. Initially, severe tongue sensitivity (at one point even water was like battery acid). For most of the treatment time, daily nausea and and severe acid reflux with occasional vomiting. As of today: chemotherapy induced neuropathy of the right leg causing the inability to lift my toes or my ankle (currently wearing a brace), but expect this to improve; whatever contribution Erbitux has towards complete dry mouth and lact of taste.
Cytarabine (Ara-C) Chemotherapy Chemotherapies
What Cytarabine (Ara-C) Chemotherapy Cancer Survivors said about their Chemotherapies.
Induction Theraphy
Cytarabine and Doxorubicin for 8 days.
I just start my Consolidation theraphy last March 30.
Which is Doxorubicin for 1hour and vincristine(push) and cytarabine IT(so painful)
nausea, fatigue, anxiety, depression, dizziness, vomitting
AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
R-CHOP starts 8/26/10 Major Side Effects Day 1-3 Headache and Diarrhea Mouth Sores Days 3-6
TCH starts 4/23/18
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
Started induction chemotherapy for AML on 25th September with "7+3 for 24 hours. I got Daunorubicin for 15 minutes the first 3 days while getting cytarabine the rest of the 24 hours. After the 3 days, the cytarabine continued 24 hours for the balance of the rest of the 7 days. I was medicated with multiple medications to prevent some of the known side effects such as eye damage, nausea, vomiting, and acid reflux. After the chemotherapy stopped, the Nader effects kicked in about a week later which is when the white and red blood cell counts and platelets drop. I ended up with ecoli infection in the blood and pneumonia which nessitated the administration of IV antibiotics. I also required Neupogen shots daily to help increase the production of white blood cells. Multiple platelet and blood transfusions were needed to sustain my existence. During this time I also had petechiae due the low platelet count. Stem cell or bone marrow transplant was recommended however, in my case, no full donor match could be found. Therefore my option was to have additional consolidation which consisted of hi-dac chemo (high dose chemo days 1,3,5 for 4 hours twice on those days. Typically if transplant is not an option, 4 doses of hi-dac is recommended. Due to my difficulty with the chemo, we opted for only 2 consolidation treatments. Right now I'm in remission although my white blood cell count and platelet counts are only 1/2 of the normal range. Last bone marrow biopsy (6th one) showed no Leukemia. Currently I have monthly blood work to monitor blood levels.
April 9 - 15th 2017 & April 27th - May 1st 2017.Finished 2nd round of Chemo May 1st. Experiencing hair loss, fatigue & weakness, SOB, Colitis, Diverticulitis, diarrhea, loss of appetite, confusion, hallucination, Acute Renal failure, low BP, and neutripinic sepsis.
On April 19th 2018, I also received my first dose of chemotherapy. I don't remember much of what happened during this time except I broke out in a red rash from head to toe and ran a fever for 5 days straight. The red drug, daunorubicin, makes me extremely sick. I'm a wreck when they give it to me.
Hyper CVAD Protocol 6/1/2015-2/7/2016 including spinal chemo X 4
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet.
Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
ABVD Six months
Induction round 12/22/14-1/19-15: nausea, vomiting, diarrhea, fatigue Consolidation February '15, Consolidation March '15, Consolidation April '15
Achieved remission October 2017 with 2 IV drugs — few side effects aside of minor peripheral neuropathy in feet. Out of remission in January 2018.
On cytsribinevsubce Feb 2018; Also on oral chemo since March 2018: Venetoclax.
Peripheral neuropathy (feet); anal fissures w/bleeds; mucocitis of throat (hard to eat or drink ANYthing); dyspepsia (nausea); fatigue; 15% wt loss (BMI=18.4)
I've had 2 rounds of induction therapy and just finished my 4th round of consolidation therapy. Side effects have been different with each round. My hair only fell out my first round. Have experienced nausea, dizziness, weight loss, appetite loss, headaches, brain bleeds, metal-like taste in my mouth and food, lethargy, loss of endurance and stamina, chemo brain, grogginess and foggy brain, memory loss.
Started daunorubicin and cytarabine 7+3 therapy on January 10, 2015. I stayed in the hospital approximately thirty days. A bone marrow biopsy at the end of this stay confirmed remission. My nausea was not too bad, except for a time that they served some green beans from the cafeteria. I dry heaved several times, and then ate only food from home. I suffered diarrhea, hair loss, a neutropenia fever, an acute kidney injury, fatigue, and weight loss.
I started my first round of consolidation chemotherapy in February, second round in March, and third round in April.
I have been very fortunate to this point to avoid a bone marrow transplant.
January 6 2014 and February 15 2014
R-Chop--6 cycles total..completed 5/18,6/8 and 6/24/2011,7/15/11 8/8/11 and 8/25/11. side effects: nausea, bone pain, headaches, ear pain(probably from neulasta/neupogen),some fatigue, severe heartburn/epigastic discomfort, mood changes, r ice , beam, imbruvica
Induction, September 2014, two rounds. I didn't go into remission after the round (7+3 and) had IDA-FLAG (idarubicin, fludarabine, cytarabine and G-CSF. I lost my hair and appetite. Mouth sores are horrible as was the fatigue. I had four rounds of consolidation (November, December 2014, January, February 2015) after this, high dose cytarabine and the side effects are marginal for me, I was really tired and that was a result of low Hgb.
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
still waiting for start date
I don't remember all of them, but cytotoxin was one of them
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.
Daunorubicin Chemotherapy Chemotherapies
What Daunorubicin Chemotherapy Cancer Survivors said about their Chemotherapies.
Started induction chemotherapy for AML on 25th September with "7+3 for 24 hours. I got Daunorubicin for 15 minutes the first 3 days while getting cytarabine the rest of the 24 hours. After the 3 days, the cytarabine continued 24 hours for the balance of the rest of the 7 days. I was medicated with multiple medications to prevent some of the known side effects such as eye damage, nausea, vomiting, and acid reflux. After the chemotherapy stopped, the Nader effects kicked in about a week later which is when the white and red blood cell counts and platelets drop. I ended up with ecoli infection in the blood and pneumonia which nessitated the administration of IV antibiotics. I also required Neupogen shots daily to help increase the production of white blood cells. Multiple platelet and blood transfusions were needed to sustain my existence. During this time I also had petechiae due the low platelet count. Stem cell or bone marrow transplant was recommended however, in my case, no full donor match could be found. Therefore my option was to have additional consolidation which consisted of hi-dac chemo (high dose chemo days 1,3,5 for 4 hours twice on those days. Typically if transplant is not an option, 4 doses of hi-dac is recommended. Due to my difficulty with the chemo, we opted for only 2 consolidation treatments. Right now I'm in remission although my white blood cell count and platelet counts are only 1/2 of the normal range. Last bone marrow biopsy (6th one) showed no Leukemia. Currently I have monthly blood work to monitor blood levels.
On April 19th 2018, I also received my first dose of chemotherapy. I don't remember much of what happened during this time except I broke out in a red rash from head to toe and ran a fever for 5 days straight. The red drug, daunorubicin, makes me extremely sick. I'm a wreck when they give it to me.
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet.
Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
Started chemo on July 7, 2016 - May 5, 2017
Side effects - nausea, vomiting, mouth sores
Started daunorubicin and cytarabine 7+3 therapy on January 10, 2015. I stayed in the hospital approximately thirty days. A bone marrow biopsy at the end of this stay confirmed remission. My nausea was not too bad, except for a time that they served some green beans from the cafeteria. I dry heaved several times, and then ate only food from home. I suffered diarrhea, hair loss, a neutropenia fever, an acute kidney injury, fatigue, and weight loss.
I started my first round of consolidation chemotherapy in February, second round in March, and third round in April.
I have been very fortunate to this point to avoid a bone marrow transplant.
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.
Mitomycin Chemotherapy Chemotherapies
What Mitomycin Chemotherapy Cancer Survivors said about their Chemotherapies.
Nigro protocol, Flourouracil infusion (x2) with four-day at-home mitomycin pump, 09MAY22 and 06JUN22(?)
I will begin receiving 5-FU continuous infusion Mon.-Fri. for 6wks with Mitomycin added days 1&29.
Intravenous at day 1 and 30, during radiation in pill form - Mitomycin
Started today 2020
I had two hospital drips of mitomycin and a capecitabine pills M-F six tablets a day.
Mitomicyn push on day 1 and day 29. Xeloda 5 days a week for 7 weeks. 3 pills in AM and 3 pills in the PM.
5/7/19 through 5/11/19 and 6/10/19 through 6/14/19. Mouth sores fatigue skin irritation from PICC line.
Chemo started 3/14 - 3/19. Nausea lingered under surface the whole time. If I missed the anti nausea pill by 1/2 hour it’d take all day to catch back up. Mouth sores started on day 4. I caught a cold that stared on day 2 with a sore throat, full sinuses, lungs etc. the mouth sores progressed quickly and caused the sore throat to become excruciating. I’m still struggling to eat and get enough fluids. I was given iv fluids 2 days after the pump was taken off. And I’m currently trying to not have to go there again. Mouth sores finally abated after 2+ weeks. Unfortunately food still sounds awful, nothing tastes good and I start feeling bad after every time I eat. The blister in my bum apparently is from the chemo not the radiation. Great news is my doc is cutting the dose for 2nd round by 25% because I’m a slow metabolizer. Great. I hope it helps!with round 2 (which starts in 10 days -ugh) I’ve also started experiencing hypersensitivity on my upper left leg, and occasionally on my feet and hands. Started taking B6 to help. Hair started falling out 2 weeks after chemo- getting it cut short end of week 3.
Week 1: Mitomycin 15mg IVP
Generic Xeloda 500mg 2 tablets started every 12 hours. Just felt queasy and very fatigue.
Week 4: Mitomycin 9mg IVP, continue Xeloda. Developed skin blister to back. Overall, no hair loss, no vomiting, no mouth sores
2- 5 day rounds of Mitomycin infusion followed by Flouracil pump- Severe mouth sores & tongue swelling 1st round. Had Neupogen shots x4. NeulAsta shot after 2nd round - no sores.
Capacitabine (Xeloda) 5 x week, 2 x day in tablet form
Nausea
WBC low, needed to stop chemo treatment for 10 days
2021 Chemotherapy with Carboplatine and Paclitaxel
Hb low, needed 2 x blood transfusions
Nausea, loss of appetite, chemo brain.
Nauseas, burning on butt, diarrhie , tired,
Day 1: March 24, 2014
Haven't started yet
Very fortunate to have had fairly mild chemo effects--mostly fatigue, some mouth sores etc. but not much nausea.
Mitomycic 1 IV push along with 5FU 96 hours on the first day then again on day 21
6/20/11 5 days; 7/18/11 5 days
fatigue, nausea, parageusia, mouth sores, vomiting, hair loss, dry skin, brittle dark nails, low blood pressure, urine & stool incontinence, 2 blood transfusions, vitamin deficiencies
Cisplatin and Xeloda front 20/08/14 through to 11/11/14
Sickness at the start of cycles 1 and 2. Swelling in my legs on the start of cycle 2. Dose was reduced for cycles 3 and 4 . I did not get along with the anti sickness tablets, I tried several different ones. EMEND was usefully but I stopped taking others and found ginger to be most helpful. I seemed to experience a little of all side effects. Ulcers, hand and foot syndrome, diarrhoea sickness and constipation but they didn't last long. Oh and my head hair thinned but I did keep enough.
First chemo started same day as radiation on 3-17-14 with a single dose of mitomycin and an infusion pump of 5-FU for 4 days. Beginning of the 5th week we repeated this process with 20% less mitomycin due to the low blood count. The first round I had few if any side effects. Felt tired and slow but when I got the pump off, I started to feel better. The second round was more difficult and my blood count fell too low, I got a low grade fever and ended up getting 2 blood transfusions and 5 shots to help build up the blood cells.
Mouth sores. Fatigue. Nausea. Diarrhea. Hair thinning.
Grade 4 mucousitis. Hospitalized for 8 days
5-FU plus mitomycin; mostly weakness, nausea
dehydration, some mouth sores, not bad, lost some hair. intestinal pain, tiredness, low white blood cell count and platelets, hospitalized for 11 days because I didn't want to eat and felt like I would get too weak to take care of myself. They diagnosed me with dehydration and said the treatments had caused it. Started Aug. 26 with one injection of mitomycin, and carried drip bag for four days of Flourouracil(5-FU), repeated Sept. 24th, 2013.
Will start 1/27/17
Eloxatin (Oxaliplatin) Chemotherapy Chemotherapies
What Eloxatin (Oxaliplatin) Chemotherapy Cancer Survivors said about their Chemotherapies.
Oxaliplatin infusion; Leucovorin infusion; Fluorouracil continuous infusion pump.
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
R CHOP every 3 weeks from 12/30/2013 through 4/28/2014. Began R GEMOX on 6/19/2014 every 3 weeks through 10/21/2014. Started Rituximab and Treanda on 12/3/2014 as a 2 day course. Severe neuropathy in feet and less but still suffered neuropathy in fingers during R CHOP. R GEMOX caused great discomfort with cold even before therapy was complete. One does of Rituximab and Treanda and my father has terrible oral sores. However, he has been fortunate to never have suffered any severe intestinal discomfort.
Rituxan and treanda. Had mixed results. Then R-CHOP, which seemed to increase the cancer. Then R-ICE which then sent me to get an auto transplant. Had a severe reaction to rituxan the first time, then minor reactions every other time. They had to infuse really slow. Added an extra day to my chemos. No other big side effects from the actual chemo except fatigue. Hair loss after the final ICE but was high dose. Also, threw up after the ICE except after the high dose.
Oxaliplatin,Calcium Leucovorin,Camptosar,Florouracil
I had 2 chemotherapy drugs. Eloxatin (oxaliplatin) which was given through my port at my Oncologist's office. I also took Xeloda which is a chemotherapy drug (pills) taken at home. I also had a wonderful Oncologist who worked well with my surgeon.
Started chemo 1/4/2016
Nexavar for 6 months.
Infusion therapy started 2 weeks ago and ongoing bi-weekly.
Began with Xeloda in pill form that was simultaneous with my Radiation. 6 weeks Mon-Fri. Didn't have any problems with this drug whatsoever. March 2014 began Oxaliplatin and 5FU for the next 6 months. I where a pump for 48 hours of continuous infusion every other week. I was told to be cautious of cold weather and cold drinks or any other type of cold items. So drinking everything at room temp is pretty boring but I did find out what happens if you do try to tempt fate and drink a cold substance----it felt like I was swallowing shards of glass down the back of my throat. YIKES.
So far, I have only noticed a bit of nausea during the week of treatment and fatigue, but I know it is early and these symptoms will undoubtedly worsen as time goes on. Not looking forward to this. Really have dreaded the whole chemo thing.
June 2013 - December 2013
I was completely fine up until chemo #5. All of them are 52 hours, I go home with the pump. Chemo# 5 put me down. Fatigue, mouth sores, numbness in toes, extreme sensitivity to cold, loss of appetite.
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss
6 rounds Hepatic artery infusion (oxaliplatin)avastin
3 month Jakafi (oral)
unknown trial drug
nano cisplatin and gemcitabine
folofox: 3/14-9/14, starting again 1/15
Jan 22, 2015 R Chop was the first. Mostly tired some nauseous spells
Nine rounds of Folfirinox treatment before surgery and more after.
Exhaustion nausea
Going on my 86th treatment
5-fu orally before surgery 11/12 - 12/12. The oral chemo did a number on my stomach lining. After surgery did 8 FOLFOX treatments 3/13 - 7/13, side effects were sensitivity to cold, some nausea but not bad, and tired.
6 weeks Flourcil (pills) and radiation Oct - Nov 2015
10 sessions IV chemo (avastin,
oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016
Hands and feet numness
Little nausea
Fingernails thinned
Balding
june 19 through end of nov 19 had chemo every two weeks, mouth sores, metal taste in mouth, hands feet peeled, nausea, severe intolerance to anything cold or hot eating or touching....everything had to be room temp.
2009 - Mitfomycin, 5FU; 2011 Xeloda & Oxaliplatin; 2013 Paclitaxel & Carboplatin; 2014 Lapatinib; 2015 Xeloda (twice with radiation)
Abraxane Chemotherapy Chemotherapies
What Abraxane Chemotherapy Cancer Survivors said about their Chemotherapies.
Tiredness and oain
Abraxane and Genzar
Started July 12. Two weeks on, 1 week off. Plan is 6 cycles. Side Effects - Can’t sleep (steroid pretreatment). Terrible constipation (Nausea meds), Very tired, mild fever, irritability on Day 2-3 post chemo.
Extreme fatigue, delerium
Extreme fatigue, some dry heaving, hair loss, neutropenia
A/c( I am not good with names and the one would not uncheck above) started 4/10/2014 I lost my hair the day of the second treatment. Felt pretty bad but was able to work. Got pulmonary embolisms in June (I hope to find out soon that they are gone) by my 3rd A/c the lump was no longer able to be felt. By the 4th it was gone. started taxol in June (blurry) after 2 treatments the first infusion took 11 hours the second 8 hours and that was all I could stand. The side effects were extreme pain, nausea and sensitive to light and sound .I opted out the rest and went straight to surgery!
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)
Initially 2 rounds of Folfirinox, that increased liver enzymes and CA-19-9
Methotrexate, Doxyrubicin, Vincristine, Vinblastine, Cytarabine, Etopomide
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.
Started 12.1t.16
Luckily just 2 rounds of Chemo in 2000. Only lost hair from the waist down. Which would be awesome if I was pursing a career as a Drag Queen
Avastin (Bevacizumab) Chemotherapy Chemotherapies
What Avastin (Bevacizumab) Chemotherapy Cancer Survivors said about their Chemotherapies.
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss
6 rounds Hepatic artery infusion (oxaliplatin)avastin
3 month Jakafi (oral)
unknown trial drug
nano cisplatin and gemcitabine
Jan 2 through Jan 5 2015 Staff infection , Bacteria in blood, Fever and Nausea
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007
Nueropathy, memory loss, balance issues, joint and muscle pain
Every other week
First chemo was on Friday 9/15/17. 3 chemo infusions over 8 hours. To be done every 3 weeks. Next scheduled 10/6/17.
Have had no nausea or vomiting. Saturday night, severe pressure in rectum, vaginal area and lower pelvic region. Contacted physician due to pain and that no amount of medicine was subsiding pain. Was advised that it seems as if the chemo is working. The pressure could be due to the necrotic tissue from the cancer itself is moving, liquid retention, or inflammation from the chemo. He reassured me that pain and pressure should go away within a few days. Was instructed to take higher dose of percocet. The higher dose of pain meds has done its due diligence, but knocks me out too.
It is now three days later and pain and pressure has become more bearable, and treatable with 800mg motrin.
Feeling extremely tired, which is very odd being that I am very active. Powering through, I will win this battle.
Carboplatin, taxol, avastin, and a PARP inhibitor for 6 rounds, then remission for about 7 months. Then more carboplatin and taxol for 3 more treatments until I became resistant, then onto the MEK/Milo trial. Failed that after 2 months, now looking into immunotherapy
Cisplatin: Took 2 treatments, 1 week apart. Tolerated well. No nausea, though stomach very "acidy" feeling. Eating bland foods often throughout the day helped. Did have some tiredness. No loss of hair.
Had to stop Cisplatin for a while due to frequent ringing in ears. Cisplatin can lead to permanent hearing loss. Was able to complete last 4 Cisplatin after a break. Have some hearing loss, but not much.
Will be using an experimental drug-Avastin, as well.
Avastin: no loss of hair. Felt a coldness in the core of the body and extremities. Combined with Cisplatin, usually left me feeling poor and unable to work for about 5 days.
Starting Taxol, Carboplatin, and Avastin again next week.
Started chemo on July 7, 2016 - May 5, 2017
Side effects - nausea, vomiting, mouth sores
6 treatments chemotherapy (carbo/placing/Avastin
Six rounds in 2008 and 12 rounds in 2015 got through these not too bad in the big scheme of things.
6 weeks Flourcil (pills) and radiation Oct - Nov 2015
10 sessions IV chemo (avastin,
oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016
Hands and feet numness
Little nausea
Fingernails thinned
Balding
Had a really bad reaction on Oct 14 2014
Avastin drip. 12/2009 - 2/2010. Nausea.
Sidenote - everyday I'd go to a juice cafe where they had wheat grass juice. When I went for my last treatment, nurse told me my blood counts throughout treatment were spot on... It's worth researching as has many benefits. Please check with your doc as told it may not be appropriate for some during their treatment.
ABVD Six months
I was completely fine up until chemo #5. All of them are 52 hours, I go home with the pump. Chemo# 5 put me down. Fatigue, mouth sores, numbness in toes, extreme sensitivity to cold, loss of appetite.
Fu5 fannypack4 months 5 months mainvein all side effects
Once every 3 weeks from Feb - April 2020. Extreme
mid july to November 2015 Gemzar eight treatments, xeloda for 28 days on radiation days. Started Folfox regimen 09/20/2017 for recurrence.
3/19-5/19: carboplatin, taxol for 3 rounds, with avastin for 2 of those (fatigue, assorted irritable stomach issues; with avastin: raspy voice/throat, sniffy)
6/19-8/18: carboplatin, taxol for 3 rounds, with avastin for 2 (see above but a little more so, since it was after THE BIG SURGERY
7/20-? carboplatin, doxil for 6 rounds (SO FAR: intense headache for a few days, some lightheadedness and nausea)
6 carbo/taxol and 4 cisplatnin in 2013/4. 4 carbo/taxol in 2016/17.
six infusions of carbo/taxol every 3 weeks from 3/13 to 6/13
six more infusions carbo/taxol every 3 weeks from 1/15 to 4/15
three infusions doxy every 3 weeks from 8/15 - severe rash - discontinued
several infusions every week gemzar from 10/15 to 2/16 tanked white count and increased acities - discontinued
avastin/taxol every 3 weeks from 3/16 to present
folofox: 3/14-9/14, starting again 1/15
Ongoing every two weeks
She has had 5 rounds of platinum based triad, one round of Alimpta (sp?), now on Opdivo, has had 3 rounds, for the fourth the week of 4/10/16.
Beginning in April I had three treatments with Taxol and carbo platinum as well as Avastin. Joint pain was rough but gone after a week or so. I've mostly been easily tired out. My CA125 went up so I had another PETCT that showed an increase in the cancer I am now getting Doxil every four weeks and Avastin every two weeks. Side effects have been relatively mild - just tired a lot.
Dasatinib (Sprycel) Chemotherapy Chemotherapies
What Dasatinib (Sprycel) Chemotherapy Cancer Survivors said about their Chemotherapies.
An unpleasant mix of fatigue, diarrhea, headaches, water retention, muscle and bone pain.
Onivyde (Irinotecan Liposome) Chemotherapy Chemotherapies
What Onivyde (Irinotecan Liposome) Chemotherapy Cancer Survivors said about their Chemotherapies.
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.
Docetaxel (Taxotere) Chemotherapy Chemotherapies
What Docetaxel (Taxotere) Chemotherapy Cancer Survivors said about their Chemotherapies.
Hair loss, nails, hand and feet discoloration, constipation that resulted in an anal fissure that won't heal, bone pain, depression and anxiety
Uncategorized Chemotherapy Chemotherapies
What Uncategorized Chemotherapy Cancer Survivors said about their Chemotherapies.
1/7/2014 and every 14 days thereafter - Nausea, jaw pain, loss of taste, hair loss, fatigue
6/10/2014 - chemo complete (6 cycles ABVD)
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