What are Chemotherapies? List from Cancer Survivors

The below is a list that has been posted by the bloggers in this cancer community. There are 7506 cancer fighters that are members here. This is what they said, not what the doctors or nurses will tell you.

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Adriamycin (Doxorubicin) Chemotherapy Chemotherapies

What Adriamycin (Doxorubicin) Chemotherapy Cancer Survivors said about their Chemotherapies.

Feb 2015 - July -2015
Started AC on 12/12/07. That was fine. Had a reaction to Leukine (sp) now I'm Neupagen daily. No problems there.
R-CHOP every 3 weeks for 6 cycles
RCHOP Feb. 3 2018 Hair loss, numbness, fatigue, body pain 7-10days after chemo, lost appetite, insomnia.
Chemo to start Dec. 29, 2008 Radiation begins at week 4
Still in treatment with no end in sight. My port is my best friend even if it sticks out of my sub-clavicle like an alien.
2004.-I received quimo scheme CHOP (ciclosfamida -Vincristina -Adriamicina - Prednisona. 2006.- 2nd. line of quimo. with scheme ESHAP: Etoposido - Platino - Ara-C-Dexametasona
AC 8 weeks staring 8/10/2017 followed by 12 weeks of Taxol. Nausea on AC. Terrible muscle and bone pain in Taxol.
First chemo starts July 7 2011
R-CHOP - 10/21/2010, 11/11/2010, 12/2/2010, 12/22/2010, 1/13/2011, and 2/16/2011 - was scheduled for 8 sessions but reduced to 6 sessions due to being determined NED, or in remission, per PET scan results dated 1/11/2011
4 dose dense a/c for 8 weeks then paclitaxol for 12 weeks. which ended on 11 sept 08. Jan.09 12 weeks of radiation.
Starting A/C on December 6, 2011. Will have chemo every 2 weeks for 4 months.
Undergoing chemotherapy in Chennai, India. Started on July 12, 2009. Total 12 doses. Hair loss, vomiting, fatigue, loss of appetite, etc
Had AIM protocol (Adriamyacin, Ifosfamide and Mensa) for all of 2007, then in 2010 I had Yondelis, a clinical trial, also for a year. The AIM made me lose all my hair, had frequent need for transfusions of blood and platelets and I had many infections. The Yondelis did not make me lose hair, but the other side effects were the same.
TAC protocol. 6 rounds every 3 weeks. I refuse most of the pre medications (unless I need them) and ended up not needing any side effect meds my last 2 rounds. I'm having a great reaction to the chemo and my doctor is impressed with how I am weathering each round of chemo. He is shocked that my White and Red Blood cells are doing so well and I ended up being able to navigate the nausea without medications - which means no constipation!!! The side effects range from liberating (no hair, chemo brain, slowing down, other people cooking for me) to pain-in-the-ass (constipation from the zofran, hungry from the steroids, no nose hairs, sensative gums, run over with a truck feeling from the neulasta) to the hysterical (I'm really good at the 'Old Man from Flordia Suffle' while I wait for my WBC and RBC to come back on line!)
They removed all my teeth because they said the chemo and radiation would kill their roots. I went through 5 cycles of the red devil and 10 taxol. I am still on femara
1st Chemo -Rituxan 6/12/13, CHO 6/13/13 with prednisone daily x 5 days, 6/14/13 Neulasta. Foods tasted sweet and had a slight headache but I did good until 5th day and I decreased my antiemetics and had nausea/vomiting and had to get IV fluids. I had some swelling in feet & hands. I worked several days but on the 7th day after neulasta I had back pain and had to take pain pills and a muscle relaxer, then I took Claritin and it did help. I still think I did good for my first chemo. 2nd Chemo- July 3 R-CHOP, July 4- Neulasta. I had swelling the first night in hands & feet. I feel weaker with this one and I'm having breathlessness. I called doctor and had labs but results were okay for chemo. I haven't worked after this one, yet.
Several months of CHOP+Bleo. Got very bloated from Prednazone. Total body baldness, of course. My skin actually got quite beautiful and baby smooth. Toenails fell off. Heart and lung damage from Bleo. My mouth and throat were scarred by sores and from vomiting. Kidneys have been very vulnerable ever since. (Just want to add, I HAVE NO COMPLAINTS ABOUT ANY OF THIS. I lived! It was worth it.)
R-CHOP side effects are nausea, fatigue, hair loss, and chronic diarrhea. I lost 15 pounds - no complaints about that! Ativan was very effective in treating the nausea, but made me very sleepy.
First Chemo 9-8-2008. Side Effects - Pain, joint and bone pain, can't taste anything, headaches, bodyaches and my skin hurts and weight gain from the steroids.
Vomiting, hair loss, fatigue, mouth sores, reduced immune function.
8 treatments of chemo. March 30 thru July 12
6 cycles of R-EPOCH
9/9/10 - Adriamyicen & Cytoxan. Headache, dizzyness, restless leg syndrome, nausia-light in mornings. 9/10 -9/14/10 - EXTREME Headaches, major fatigue, constipation, dizzyness and car sickness.
may 4 2008,nausea,and alot of hand pain

Cyclophosphamide (Cytoxan) Chemotherapy Chemotherapies

What Cyclophosphamide (Cytoxan) Chemotherapy Cancer Survivors said about their Chemotherapies.

Chemotherapy started in September 2011 and continued every three weeks either daily for a week, or a single day dose of VAC - crappy crappy side effects, where do I start......numb finger tips, constipation, hair loss, loss of taste buds, thrush in mouth, lack of concentration, sooooo exhausted after each dose and weeks later. It is very true that the chemo is so much harder than the cancer to deal with.
It was called cef (which is cefuroxime, epirubicin, and cyclophosphomide). It is used only in a couple of Canadian provinces as it is very expensive.
methotrexate injections every other day via injection
First chemo session on 8/26/09 almost killed me...second session on 9/16/09 virtually no side effects other than no taste.
Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse. Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo.
Several months of CHOP+Bleo. Got very bloated from Prednazone. Total body baldness, of course. My skin actually got quite beautiful and baby smooth. Toenails fell off. Heart and lung damage from Bleo. My mouth and throat were scarred by sores and from vomiting. Kidneys have been very vulnerable ever since. (Just want to add, I HAVE NO COMPLAINTS ABOUT ANY OF THIS. I lived! It was worth it.)
R-CHOP 6
ABVD started in December 2011-May 2012. Hair loss, nauscia, weakness. ICE July 2012-August 2012 Hair loss, nausea, weakness
Nausea, fatigue/sleepiness, "Chemo brain" (inability to concentrate), dry skin, no nail growth, hair loss. January - May as of now
Biweekly 4 A/C - from June 11th 2018 until July 2018 - Fatigue, dry mouth, Hair loss, doing quite well thank god 21 weekly Rounds of Taxol scheduled from August until October....
Starting September 2nd - pretty clueless outside of that.
R-CHOP 21 Round 1, July 19, 2010 (extreme drop in blood pressure, shortness of breath, chest pressure, swelling of hands, feet and face)
RCHOP, 5/9/2019. back pain, lethargy, nausea
ABVD May 2008-October 2008 ICE January 2009-March 2009 BEAM April 2009
ill for a couple of days after treatments 1/15 - don't know if what is going on with me now is latent effects or new cancer
4 rounds of chemotherapy "R-CHOP", every 3 weeks for 12 weeks. 1 round of radiation therapy. Nauseated, feeling like am in a fog. I chew on ice chips prior to and during the administer of Adriamycin (red devil) to prevent mouth sores. So far it works!!!
Round one: 7 days of continuous chemo. Round two: 5 days of 2 times a day chemo Round three: 2 days of 2 times a day chemo Followed by 3 days of 2 times a day total body radiation.
Started induction chemo within the first week of November. Integrating it with holistic therapies
R-CHOP Four cycles, three weeks apart. March 26 thru July 7 2015. Minimal thru first stage thus far.
Cyclophosphamid Carpoplatin Taxol
i was supposed to get 8 chemo's. but i only received 7 because my blood count wasn't up in time. i had "Vincristine" (iv)every week. Cyclophosphamide(iv)every 6-8 weeks. Cisplatin (iv), every other chemo, and Lomustine (pill) every chemo.
Started first round of AC on June 12th....will continue 3 more rounds and then on to Taxol.
1991 April to June MAKOP B, 12 months treatment plan administered weekly over 12 weeks, ulcers, nausea, tiredness, loss of nerve sensations in extremities, severe constipation, hair loss (lol)
Rituximab, Cyclophosphamide, Vincristine, Prednisone on 3 week cycles. Started 1st September 2010. Side effects - constipation, mild nausea, night sweats, tiredness, mood swings.
i had three induction therapies spaced about 6 months apart. and just completed two consolidation therapies. i am preparing for a bone marrow transplant.

Taxol (Paclitaxel) Chemotherapy Chemotherapies

What Taxol (Paclitaxel) Chemotherapy Cancer Survivors said about their Chemotherapies.

I have had two rounds of chemo, and the next will take place on Jan 31, 2012. After that, three more rounds!
Paclitaxel with carboplatin every three weeks for eight treatments as tolerated. I did get a Neulasta shot the day after chemo.
4 rounds of Adriamycin and Cyclophosphamide together every 2 weeks. I am done with those 4 rounds. 4 rounds of Taxol every 2 weeks I have 3 rounds left. Xeloda for a year, Gemzar and carbo still doing it once a month until I guess it stops working.
1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss) 2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment. 2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course 2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course.
Oct 07 to Dec 07 - Cisplatin chemo 1x a week with radiation;. Constant terrible nausea, very sensitive to tastes and smells. Ate only carbs, couldn't even stand the smell of my dog! Everything nauseated me. Aug 08 to Dec 08 - Carboplatin and Paclitaxel every 3 weeks x 6 doses. Hair gone by 2nd treatment, fluid overload on chemo days due to drugs being hard on kidneys - had to flush. About 2-3 days post chemo, horrible bone pain, numbness and tingling in hands and feet (peripheral neuropathy) and constipation that almost hospitalized me. Would last for a week or so and then settle down. Horrible fatigue, felt like lead. My hair started coming back really quickly after treatment stopped,but the neuropathy lasted almost a year, fatigue continues to be a problem. UPDATE Feb/10: Going back for another 6 rounds of the not so pretty poison. Carbo/Taxol once again. Gonna miss my hair...oh yeah, and the ability to feel human!
methotrexate injections every other day via injection
4 cycles dose dense Doxorubicin and Cyclophosphamide, then 4 cycles dose dense Paclitaxel to start 12/09/08
First Taxol 1.5.11, once a week for 12 weeks, FAC once every 3 weeks from 3.30 - 6.1.11. Taxol made me feel like I was wearing a lead raincoat and concrete shoes. FAC was far more discouraging. Lots of digestive issues, couldn't eat, everything taste nasty. It was horrible.
neo-adjuvant chemo. Doxorubicin/ Cyclophosphamide /Taxol. February-July 2012. anemia, nose bleed, upset stomach, nausea, weakness, hair loss, chills, hot flashes, weight loss, neuropathy, muscle and joint pain, low white count, fatigue, pneumonia.
February to May 2014
intravenous chemo from Septemeber 2018 to January 2019
First chemo was on Friday 9/15/17. 3 chemo infusions over 8 hours. To be done every 3 weeks. Next scheduled 10/6/17. Have had no nausea or vomiting. Saturday night, severe pressure in rectum, vaginal area and lower pelvic region. Contacted physician due to pain and that no amount of medicine was subsiding pain. Was advised that it seems as if the chemo is working. The pressure could be due to the necrotic tissue from the cancer itself is moving, liquid retention, or inflammation from the chemo. He reassured me that pain and pressure should go away within a few days. Was instructed to take higher dose of percocet. The higher dose of pain meds has done its due diligence, but knocks me out too. It is now three days later and pain and pressure has become more bearable, and treatable with 800mg motrin. Feeling extremely tired, which is very odd being that I am very active. Powering through, I will win this battle.
Feb 2011 - April 2011 every 3 weeks Side effects - tried slept about 5 days straight Neulasta Side Effects - Painful legs and joints
Biweekly 4 A/C - from June 11th 2018 until July 2018 - Fatigue, dry mouth, Hair loss, doing quite well thank god 21 weekly Rounds of Taxol scheduled from August until October....
<b>February 2009:</b> CA125 level was around 3500. She began treatment with Taxol/Carbo with Avastin. Within two weeks, she lost all of her gorgeous red hair. Energy level dropped significantly. She continued having "maintenance" chemo. <b>June 2009:</b> CA125 dropped to 32, and then to 16 later that month. Oncologist decided to stop chemo- as there was no sign of cancer! <b>March 2010:</b> Having chest pain/shortness of breath. CT scan showed fluid in her lungs. Testing after thoracentesis revealed cancerous cells in the fluid. CA125 was back up to 300. It is now referred to as "RECURRENT CANCER" She began chemo again: Cisplatin and Gemzar. Cisplatin was causing tinnitus. Oncologist decided to discontinue to avoid permanent hearing damage. The Gemzar would usually burn during infusion. Side effects: headaches, intense nausea and often uncontrollable vomiting. Drastic decrease in appetite (and weight: about 70lbs) Last time it was checked, her CA12 was hovering around 86. I'm guessing it's currently off the charts.
Taxotere Aug 2008 - Dec 2008 (3-weekly) Herceptin Aug 2008 - Aug 2009 and Dec 2009 - March 2011 (3-weekly) Vinorelbine Dec 2009- May 2010 (for regional recurrence to Internal Mammary nodes - not involved the first time round) Capecitabine (Xeloda)April 2011 - October 2011(for Liver metastasis) Adriamycin - December 2011 - February 2012 Taxol March 2012
Carboplatin 08/06/2010. Mild Fatigue. Carboplatin 08/26/2010. Radiation recall. Carboplatin 09/16/2010. Neck is tightening due to radiation recall. Alimta erbitux Low Platelet 10/07/2010 Carboplatin, Taxotere,5FU 01/2011 n 02/2011.
Four months of dose-dense chemotherapy along with a shot of Neulasta after each session.
First infusion is Dec 2nd 2019
Very sick. 12 years ago the drugs for side effects were not as effective as they are now and hopefully will continue to get better
Had a really bad reaction on Oct 14 2014
I started chemo on Dec 3, 2012. I need to complete 6 treatments of Carbo and Taxol. My treatements or given over a period of 3 weeks. The first week I receive the full carbo dose and 1/3 of the taxol. The next two weeks I recieve the remaining taxol. I am having trouble keeping my WBC up with the weekly treatments. I had to have Neupogen shots to help give them a boost.
weakness, dehydration, diarrhea, constipation
Paclitaxel (Taxol)/Carboplatin (Paraplatin)combination. 6 treatments. 21 days apart.
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.

Methotrexate (Folex, Mexate, Amethopterin) Chemotherapy Chemotherapies

What Methotrexate (Folex, Mexate, Amethopterin) Chemotherapy Cancer Survivors said about their Chemotherapies.

Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
Pre-Surgery April 19-May 26 Five FU for 6 weeks continuous with take home pump Post Surgery started Sept 22 Full Fox
Doxorubicin Cisplation Methotrexate Ifosfomide Etoposide
An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010: Vincristine PEG-aspariginase Doxorubicin Methotrexate Cytoxan Cytarabine 6-MP 6-TG Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain.
High dose chemotherapy, March-June 2012. Side effects: Nausea, vomiting, weight loss, fatigue.
I don't remember all of them, but cytotoxin was one of them
finished with induction therapy, now gonna begin with consolidation.
through March 2008 CMF cocktail, 8 rounds. never lost my hair, nausea got pretty bad... three rounds in, I became a petulant child and announced I was NOT going back. A nurse family member asked my mom what kind of anti nausea meds I was given (don't remember) and told my mom to relay the following: "tell her to get pot, the pills suck" .... My resourceful husband came home with a surprise shortly after round 3. It PISSES me off that I had to break the law because the fact is, at least for me, IT WORKED and it was AMAZING.....
im doing an eight mounth treatment plan. every 21 days im back in the hospital for all the chemo they can give me.
Nausea, fatigue/sleepiness, "Chemo brain" (inability to concentrate), dry skin, no nail growth, hair loss. January - May as of now
methotrexate injections every other day via injection
ABVD for 6 cycles (12 treatments). Was quite well tolerated, tired for a few days after, hair loss, mild nausea but no vomiting, changes in bowel motions, mild rash on feet and arms, aching veins. MADEC (methotrexate, cytosine, dex, etoposide, cyclophosphamide) for 2 cycles, one week of chemo in hospital, 2 weeks to recover then repeat. Fatigue, mild nausea, hair loss. BEAM (carmustine, etoposide, cytosine, melphalan) prior to stem cell transplant. Have only just started this today, had carmustine and so far all good but I know this will change.
November 16 Started cycle of RCHOP followed by methotrexate for CNS 10 days later and RCHOP 11 days after that. finished this in April 17 no major side effects nutropenia, numbness in fingers which stopped with medication, constipation. Returned to wrk in May 2017
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
started Feb. 26, 2010 I was admitted to hospital every 3 weeks for a total of 6 rounds of treatment - Cycles A and B.
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.
6 treatments from March 3, 1994 to June 29, 1994. Started with Taxol Study. Received high-dose Cytoxan 3980 mg and Adriamycin 74.6 mg for 2 cycles. Except for the 1st and the last, blood transfusions were required after every treatment due to low hemoglobin. I developed a blood clot in my right arm shortly after the first blood transfusion in April and had to be hospitalized and put on coumadin for 3 months. Had to be taken off Taxol Study because I could not take high-dose Cytoxan/Adriamycin and Coumadin. I was given Cytoxan 995 mg, 5-FU 995 mg and Adriamycin 99.5 mg for the next 4 treatments. The Adriamycin damaged my heart muscle. Other side effects were nausea, some vomiting, sores in mouth, diarrhea, heartburn, fatigue and complete loss of all hair. 6 treatments from January 20, 2006, to June 2, 2006. I was given a CMF combination of 1200 mg of Cytoxan (Cyclophosphamide), 80 mg of Methotrexate and 1200 mg of Fluorouracil (5-FU). This bout with chemo was much easier than the first. I also had a blood clot in my lung in February, 2006, and was hospitalized for 7 days and put on coumadin for 18 months. Other side effects were minor nausea, fatigue, sore mouth, minor diarrhea and only thinning of my hair. I don't know which one but one of the chemo drugs damaged my right eye and I am still having problems with it. The worst thing to happen was the death of my husband and my boston terrier dog in May during this bout of chemo.
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
I've taken chemo for 3 years now, many kinds of chemo, my "favorite" is Xeloda.
R Chop 6 cycles
Started induction chemo within the first week of November. Integrating it with holistic therapies
i will tell you
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
I recieved Chemo in 2004-2006 with my first diagnosis of ALL. I relasped in June 2011 and started chemo on June 24-July 18. I will continue chemo until my Bone Marrow Transplant.

Fluorouracil (5-FU) Chemotherapy Chemotherapies

What Fluorouracil (5-FU) Chemotherapy Cancer Survivors said about their Chemotherapies.

5-FU and Mytomycin along with Radiation for 6 weeks. Hospitalized weeks one and five.
12 so far, 5Fu, Avastin, Oxiplatin, Leucovorin
February to May 2014
2 rounds. constipation and not too much else
2 rounds.. mouth sores
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
5-Fluorouracil (5-FU) My sister gets chemo every other week. Her main side effect is diarrhea. She has had 3 chemo fusions so far. She has diabetes and the chemo she receives has glucose in it so when she receives the chemo her blood sugar level goes sky high and she gets severe headaches. She then takes additional insulin following the chemo to help bring down the sugar levels. I am amazed at the medications that help her symptoms. When told she was going to have "bone pain" after a shot to boost her platelet count, she was told to take "Claritin".
f5u-dec/07 to june/08 side effects the works!! mouth sores,nausea,fatigue,on and on!
Started in July 2009 was suppose to have every 2 weeks, but blood count went down so had to push out either 3 or 4 weeks. I hurt from my head to my toes the week of chemo, and then after that started gradually getting better. Neuropothy in hands and feet. Should go away eventually. Finished chemo Feb. 11, 2010.
Pre-Surgery April 19-May 26 Five FU for 6 weeks continuous with take home pump Post Surgery started Sept 22 Full Fox
portable no side effects
First Taxol 1.5.11, once a week for 12 weeks, FAC once every 3 weeks from 3.30 - 6.1.11. Taxol made me feel like I was wearing a lead raincoat and concrete shoes. FAC was far more discouraging. Lots of digestive issues, couldn't eat, everything taste nasty. It was horrible.
5fu and Mitomycin two rounds Oct-Nov 2018. Did not tolerate 5fu. Caused a Type 2 heart attack. Each round of chemo required heart unit stays/
Mitomycin and 5-FU on continuous drip using a PICC line. 4 day drip week 1, and second 4 day drip week 5. Scheduled to begin 11/9/09. First chemo round gave me terrible mouth sores and I was extremely dehydrated, to the point of needing hospitalization. 2nd chemo round went better due to daily scheduled "hydration" sessions at oncology. No dehydration or mouth sores, but I am extremely fatigued and all my blood counts are VERY low.
5FU, Leucovorin and Oxiplatin. Typcial symtoms could not tolorate cold after treatment, slept alot. I worked full time through chemo. Felt exhausted and don't remember too much in this time period. Work and slept.
5 FU + mitomycin ...4 days/24hrs Nausea, vomit, diarrhea, fatigue
Started chemo Mitomycin and 5-FU on December 28, 2009 after having a Power Port placed in my chest.
Mitomycin & Fluorouracil. Began on 7/28/08 with Mitomycin infusion done in office, 5FU infused over 96 hours by pump. Second cycle of the same began on 8/25/08. Side effects included nausea, fatigue, severe diarrhea, mouth sores, body aches, hair loss.
Cisplatin and 5fu 9/23/15 pump 96 hours/week 1, repeated 4th week 10/21/15 mouth sores, partial hair loss, oral thrush, dehydration, loss of potassium.
FOLFOX every two weeks for 12 treatments total through a port installed in my chest. Started 3/17/14. Main side effects are fatigue and bouts of nausea. Catheter from my port ruptured 2 months into treatment. Port replaced 7/3/14.
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.
2 rounds via port, less than 96 hrs round 1 due to New Year's Eve infusion clinic closing, 96 hrs round 2, Low WBC, fatigue, port infection,
6-500 mg per day that I have radiation. Xeloda. Some nausea, light headedness, jitters, diarrhea,
One round of Flourouracil but side effects were severe and patient chose to discontinue. Side effects were nausea, uncontrollable diarrhea
june 19 through end of nov 19 had chemo every two weeks, mouth sores, metal taste in mouth, hands feet peeled, nausea, severe intolerance to anything cold or hot eating or touching....everything had to be room temp.

Epirubicin Chemotherapy Chemotherapies

What Epirubicin Chemotherapy Cancer Survivors said about their Chemotherapies.

Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes. I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite. I started Tykerb in Feb 2009. I will continue with Herceptin for at least 7 more months after surgery.
Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol
Blood work and chest xray September 11, 2007 Bone scan September 17, 2007 Port installed in right chest area September 18, 2007. MUGA scan September 19, 2007 First Chemo treatment September 20, 2007 Neulasta shot September 21, 2007 Headaches and blurred vision Hospitalized September 25, 2007 Found blood clot in the jugular vein Started on lovenox and warfarin Hair fell out in huge clumps 2nd week after first chemo Second Chemo treatment October 11, 2007 Tiredness, constipation, nausea Changed nausea prescriptions twice Third Chemo treatment November 1, 2007 Potassium too low-put on prescription supplement Nose bleeds and bruising from warfarin, not chemo 2nd MUGA scan scheduled for November 26,2007 4th Chemo scheduled for November 29th
It was called cef (which is cefuroxime, epirubicin, and cyclophosphomide). It is used only in a couple of Canadian provinces as it is very expensive.
1st and 4th week of Radiotherapy treatment, chemotherapy was also performed. 24 x 5 delivery of 5FU with a Cisplatin infusion on second day of each of these weeks. Side effects included a 'Chemo crash' both weeks I had the treatment - second week worse than the first (required blood transfusions).
lots of dates, spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints. mercaptiprine, is every day, that just gives her a weird rash. methotrexate makes her sleepy
preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU.
Cisplatin, Epirubicin, Capecitabine (Xeloda) #1 June 12, 2017, #2 July 4, 2017 Nausea, Dry mouth, Tingly fingers, blood clot in spleen, hair loss
Protocol: FEC-T (4 months/every 3 weeks) FEC-T :Epirubicin/Fluorouracil/Cyclophosphamide cycles 1-3, then add Docetaxel for cycles 4-6 Finished chemo November 24/2010
Sep-feb--The oncologist said it would be " hard going"--that would be one word for it.
September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months.
3/15/14 Began 10 session clinical trial at Memorial Sloan Kettering. Chemo iv (cisplatin and epirubicin + trial drug/placebo) every 3 weeks. 2000mg Xeloda pills daily. IV chemo is followed by two days of dextametazone (steroid pills) which give me a boost. Hair loss, dry hands - currently trying to prevent them from cracking, some fatigue. Trying to avoid pain meds because that seems to be the cause of constipation/discomfort.
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
FEC and taxotere. Three treatments of each starting 2/11
February to May 2014
3-8-2013 To 11-5-13 chemo. I be off balance, I throw up, lost hair, bones ache, hot flashes all side effects.
6 Treatments - 3 week cycle 3 - FEC 3 - Taxoteer Sept. 7, 2006 through Dec. 21, 2006
sickness, weakness, no appetite, lived off cereal, and jello for a week, no taste,increase in smelling sense was intense 12/24/2005 was the first treatment.
Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse. Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo.
Oral Chemo (Xeloda) - 7/07 to current weight gain, tenderness in hands and feet, fatigue, irritability, feeling full; dehydration
R-Chop, eight sessions one every 3 weeks. Side effects: nausea, loss of appetite, some muscle aches, hair loss, effected my eye sight - had to wear eyeglasses since the 4th chemo.
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.
May 23rd 2007 started 6 sessions 3 x F.E.C 3 X Taxotere Ulcers in my mouth, sickness, diarrhoea, thrush, joint pain, loss of finger and toe nails, peeling skin on hands and feet,
Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.) after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash
Chop therapy for 7 months

Gemcitabine (Gemzar) Chemotherapy Chemotherapies

What Gemcitabine (Gemzar) Chemotherapy Cancer Survivors said about their Chemotherapies.

intraperitoneal taxol and cisplatin, 6 - 10/06 (heinous, too long to describe); HIPeC something-or-other intraoperatively 10/07 (really ghastly); IV carboplatin and gemcytabine, 2 - 5/08 (some hair loss, fatigue); sunitinib clinical trial 2/09 (painful hands and feet, fatigue); doxil, 3/09 (fatigue); taxol and carboplatin 5 - 9/09 (hair loss, fatigue, neuropathy, tinnitus); Avastin 10/09 to present (runny nose)
Folfirinox Jan 2013 - Feb 2013, switched to Abraxane and Gemcitabine March 2013-current
Initially 2 rounds of Folfirinox, that increased liver enzymes and CA-19-9
Gemcitabine (Gemzar)
Gemzar started Jan 2014. Once a week for three weeks then one week off for six rounds; liver function elevated and dehydration, fatigue , vision affected .
Chop therapy for 7 months
<b>February 2009:</b> CA125 level was around 3500. She began treatment with Taxol/Carbo with Avastin. Within two weeks, she lost all of her gorgeous red hair. Energy level dropped significantly. She continued having "maintenance" chemo. <b>June 2009:</b> CA125 dropped to 32, and then to 16 later that month. Oncologist decided to stop chemo- as there was no sign of cancer! <b>March 2010:</b> Having chest pain/shortness of breath. CT scan showed fluid in her lungs. Testing after thoracentesis revealed cancerous cells in the fluid. CA125 was back up to 300. It is now referred to as "RECURRENT CANCER" She began chemo again: Cisplatin and Gemzar. Cisplatin was causing tinnitus. Oncologist decided to discontinue to avoid permanent hearing damage. The Gemzar would usually burn during infusion. Side effects: headaches, intense nausea and often uncontrollable vomiting. Drastic decrease in appetite (and weight: about 70lbs) Last time it was checked, her CA12 was hovering around 86. I'm guessing it's currently off the charts.
Extreme fatigue, some dry heaving, hair loss, neutropenia
June 2012-October 2012; Reported Lethargy, nausea, changes in taste, neuropathy in fingers, weight loss.
1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
3 sessions on Folferinox in September and October 2019. Scan on 17 October showed spread to liver (spots) and tumour growth. Folferinox side effects were fatigue, pain and breathlessness.
Started with nine drops of Taxol and had an allergic reaction that caused me to stop breathing. Then switched to Gemzar and Carboplatin. Had some nausea but started taking Emend....VERY tired.
Diarrhea, fatigue, numbness in finger tips and toes
2013-2014: 1st chemo; Taxol, no help. 2nd chemo:Doxil, no help. 3rd and current chemo: Gemzar & Cisplatin. I also get Zometa injection every 4 weeks. I started Chemo on June 19, 2008 and as of today 7/7/08 I have only had 1 treatment. My second treatment is this week on Wednesday, July 9, 2008. I will have 6 chemo treatments, 3 weeks apart. The worst side effect I had was from the Nulasta shot I had the day after chemo. The bone and body aches really kicked my butt. I was fortunate and did not experience any nausea. On day 14 I started loosing my hair. It was coming out by the handfuls!! By day 16 I couldn't stand it anymore so I buzzed it all off.
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol
Abraxane and Genzar
Nausea, fatigue/sleepiness, "Chemo brain" (inability to concentrate), dry skin, no nail growth, hair loss. January - May as of now
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
Taxol/Carbo 12/02-5/03 (with 2 Gemzar treatments) Avastin 8/06- 5/07 Etoposide / Avastin 8/08- Present
given up on dates the first time on chemo was 7 months and this time has been 9 months
6/2011 tiredness, nausea, dizziness
Gemzar June, 2014. Nausea, weakness, fever, headache
R CHOP every 3 weeks from 12/30/2013 through 4/28/2014. Began R GEMOX on 6/19/2014 every 3 weeks through 10/21/2014. Started Rituximab and Treanda on 12/3/2014 as a 2 day course. Severe neuropathy in feet and less but still suffered neuropathy in fingers during R CHOP. R GEMOX caused great discomfort with cold even before therapy was complete. One does of Rituximab and Treanda and my father has terrible oral sores. However, he has been fortunate to never have suffered any severe intestinal discomfort.

Irinotecan (Campto) Chemotherapy Chemotherapies

What Irinotecan (Campto) Chemotherapy Cancer Survivors said about their Chemotherapies.

March 22(3 types of chemo) i feel it lessened his quality of life, but for my dad he needed to fight back!!!
11/06-oxaliplain,xeloda....tingling and cold sensitivity in hands and feet, fatigue 11/07-irinotecan, avastin, 5FU, diahrrea, fatigue, burning and cramping in abdomen started erbitux january 2010, adding irinotecan this week, sept 20, 2010...post-note that irinotecan caused so much diahrrhea I became too hydrated and wound up in hospital. i had a blockage too, but just sayin'! ;)
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
Mar 4 _ Sept 15 2015(Folfirinox)Nausea, weakness, vomiting, low potassium, low platelets (despair)
Chop therapy for 7 months
9/07 for 5 months every 2-3 weeks.Fulfox, Five FU, evastin, oxalyplatin -Side affects were mild and temporary such has hair loss (complete on first round) mild neuropathy, Hand and food syndrome. Slight diarrhea but NO nasuea. Loss of appetite, loss of taste. 06/08 Second round of chemo (Irinotecan) more nausea but virtually no diarrhea. neuropathy has returned slightly. I can still taste things after 2 rounds of chemo this time.
2 cycles of 5-FU, FOLFOX for tumor, R-CHOP for B-Cell and now 6 cycles of FOL-FIRI
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
Sept. 2010 to Nov. 2010 - Oxcaliplatin, 5FU, Avastin. Oxc. not working changed to Irinotecan/Avastin. till April 2011. Tumor growth in liver and lymphnodes. Itinotean/Erbitux from June 2011 till present.
3 sessions on Folferinox in September and October 2019. Scan on 17 October showed spread to liver (spots) and tumour growth. Folferinox side effects were fatigue, pain and breathlessness.
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007 Nueropathy, memory loss, balance issues, joint and muscle pain
Folfirinox Jan 2013 - Feb 2013, switched to Abraxane and Gemcitabine March 2013-current
started chemo on 12/11/07 clinical trial with avastin,erbitux,oxaliplatin,lecovorin,5FU..now irenotican
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
Nine rounds of Folfirinox treatment before surgery and more after.
Began chemo in July of '09 with camptosar, leucovrin, and 5-fu. this is over a 46 hour period. In January '10, they added avastin and zometa to the regimin and is ongoing.
Flu like symptoms and fatigue.
Bi-weekly chemo. Energy levels vary. Diarrhea, one day only usually. Keep hydrated.
6 weeks Flourcil (pills) and radiation Oct - Nov 2015 10 sessions IV chemo (avastin, oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016 Hands and feet numness Little nausea Fingernails thinned Balding
Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.) after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash
Too many to mention-16 months in total(6,6,4) Every drug they have for colon cancer.
Alt Folfiri/Folfox 2010/Feb through 2010/June Folfiri/Erbitux started 2011/March Changed to Folfox/Avastin 2011/Oct Clinical trials 2012/Sept
5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared. Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half.
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.

Vinorelbine (Navelbine) Chemotherapy Chemotherapies

What Vinorelbine (Navelbine) Chemotherapy Cancer Survivors said about their Chemotherapies.

I begin chemotherapy on the April 8th. 4 rounds of 3 weeks each of Vinorelbine and Carboplatin. (Originally Cistoplatin but the doctor changed it cuz my ears were ringing)Worst side effects are feeling like lead and/or rubber, forgetfulness, weight gain, insomnia and aching bones, muscle and skin.
2000 - Chemotherapy
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
Chop therapy for 7 months
I've taken chemo for 3 years now, many kinds of chemo, my "favorite" is Xeloda.
Taxotere Aug 2008 - Dec 2008 (3-weekly) Herceptin Aug 2008 - Aug 2009 and Dec 2009 - March 2011 (3-weekly) Vinorelbine Dec 2009- May 2010 (for regional recurrence to Internal Mammary nodes - not involved the first time round) Capecitabine (Xeloda)April 2011 - October 2011(for Liver metastasis) Adriamycin - December 2011 - February 2012 Taxol March 2012
1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
Multiple regimens
Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
ABVD- nausea, fatigue, wooziness, thinning hair ICE- nausea, fatigue, wooziness, total hair loss, bleeding gums and mouth sores GND- some fatigue, mouth sores
Six rounds in 2008 and 12 rounds in 2015 got through these not too bad in the big scheme of things.

Cisplatin (Platinol, Platinol-AQ) Chemotherapy Chemotherapies

What Cisplatin (Platinol, Platinol-AQ) Chemotherapy Cancer Survivors said about their Chemotherapies.

preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU.
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss 6 rounds Hepatic artery infusion (oxaliplatin)avastin 3 month Jakafi (oral) unknown trial drug nano cisplatin and gemcitabine
Chemist Monday's only decadron steroids potassium
Months of daily treatment with both Cisplatin and Herbitux -- major side effects included a rash that covered me from head to toe, skin that was so dry that my scalped split open and bled when I vomited (which I did several times each day). Further side effects included hallucinations, tremors, chills, hot flashes, disturbed sleep patterns, fever, loss of hair, etc.
2 six hour Cisplatin courses. Some hearing loss. Some nausea. Actually felt better after Chemo treatments
Weekly chemo for six weeks
Chem with Cisplatin, taxotere and 5-FU in pump.
Dry Mouth. Lost body hair, Sick at stomach, weight loss.
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)
Metallic taste heart burn mild nausea ringing in ears
3- 8 hr chemos mostly nausea.
I do not remember all of the names. The chemo was a combination of four different chemo drugs. It did not work. My father experienced nausea and could not taste anything so lost his appetite. He also was very sensitive to temperature. We are still waiting to start a trial chemotherapy drug! Pray, pray, pray!
She has had 5 rounds of platinum based triad, one round of Alimpta (sp?), now on Opdivo, has had 3 rounds, for the fourth the week of 4/10/16.
Three rounds of Cisplatin - nausea, metallic taste and tired
Dizziness and low blood pressure
1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss) 2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment. 2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course 2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course.
January 6 2015, February 18, 2015 nauseous fatigue
April 9, 2012 (Only made it through 4 treatments as it made me incredibly sick.)
nauseousness....
On my third treatment and then will have a week off
Started chemotherapy on 2/21/17 and ended on 3/29/17
Cisplatin gave my husband ringing in ears but much better now. Had complications each time after a chemo. Was hospitalized twice for them.
February 25, 2011 - Cysplatin (Cisplatyn) I don't know 4 of 8 weeks only as it ruined my throat way early and did it's job - according to the dr.
Chemotherapy is bi weekly on fridays! Side effects include Nausea, fatigue, and weakness, hair thinning
2013-2014: 1st chemo; Taxol, no help. 2nd chemo:Doxil, no help. 3rd and current chemo: Gemzar & Cisplatin. I also get Zometa injection every 4 weeks. I started Chemo on June 19, 2008 and as of today 7/7/08 I have only had 1 treatment. My second treatment is this week on Wednesday, July 9, 2008. I will have 6 chemo treatments, 3 weeks apart. The worst side effect I had was from the Nulasta shot I had the day after chemo. The bone and body aches really kicked my butt. I was fortunate and did not experience any nausea. On day 14 I started loosing my hair. It was coming out by the handfuls!! By day 16 I couldn't stand it anymore so I buzzed it all off.

Carboplatin (Paraplatin) Chemotherapy Chemotherapies

What Carboplatin (Paraplatin) Chemotherapy Cancer Survivors said about their Chemotherapies.

November 2011-December 2011--6 administrations of Taxol and Carboplatin; strong allergic reaction to Taxol (could not breathe and it felt like my back had been struck by a car) handled with heavy doses of Benadryl and slow infusion; lost hair all over my body slowly during treatment and over several months after treatment; painful tingling in feet and hands; fatigue; bloody nose daily; ridges across nails on hands; skin toughened on backs of hands and tops of feet; hair on my head hurts sometimes months after treatment.
December 6th, 2010 was first Chemo treatment... my mother is doing good..not neauseous, joint and leg pain, Hair started to hurt two weeks after first chemo treatment. Still playing golf...not eating much... get tired easily...gets cold easy
Cisplatin: Took 2 treatments, 1 week apart. Tolerated well. No nausea, though stomach very "acidy" feeling. Eating bland foods often throughout the day helped. Did have some tiredness. No loss of hair. Had to stop Cisplatin for a while due to frequent ringing in ears. Cisplatin can lead to permanent hearing loss. Was able to complete last 4 Cisplatin after a break. Have some hearing loss, but not much. Will be using an experimental drug-Avastin, as well. Avastin: no loss of hair. Felt a coldness in the core of the body and extremities. Combined with Cisplatin, usually left me feeling poor and unable to work for about 5 days. Starting Taxol, Carboplatin, and Avastin again next week.
Four treatments, most recent on 4 August, #5 scheduled for 25 August. Side Effects - minor nausea, extreme fatigue, loss of appetite and sense of taste and smell. carboplatin and Alimta (pemetrexed)for #'s 1-4. Provider stopped shipments of carboplatin so #5 and any remaining will be only the Alimta.
chemo fog.
6 treatments chemotherapy (carbo/placing/Avastin
Carboplatin and Taxol started June 10, 2016 December 2015-April 2016 Cisplatin and Gemzar we only switched because he had 6 rounds of this. It did keep the cancer from growing.
Lost hair not much else
Combined carboplatin and taxol, both administered systemically by IV started August 10, 2011, with last cycle administered November 23, 2011. Side effects included: nausea that was only gotten under control after the second administration using about 5 drugs; intense fatigue; muscle and joint pains that were reduced with tylenol and later greatly reduced with gabopentin; intense neuropathy in hands and feet, but even lips and chin until the gabopentin took the edge off that, too. Neuropathy still intense in first week of every cycle. Other side effects included intense fatigue, weakness, vision problems on two occasions (blindness in one eye when reading lying on side), severe constipation, and cognitive effects (short term memory dysfunction, inability to solve puzzles, inability to multitask or withstand multiple stimuli at once). There's talk of giving me a PARP-inhibitor for maintenance therapy in 2012. Constipation for 9 months! No, wait. Make that FOREVER! Seriously. Til my dying day.
Started chemo on July 7, 2016 - May 5, 2017 Side effects - nausea, vomiting, mouth sores
I have had two rounds of chemo, and the next will take place on Jan 31, 2012. After that, three more rounds!
Carboplatin - 6 Weekly infusions completed February 27
Sep-feb--The oncologist said it would be " hard going"--that would be one word for it.
6 carbo/taxol and 4 cisplatnin in 2013/4. 4 carbo/taxol in 2016/17.
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
one treatment . switching to Afatinib
Carbo and Taxil, 6 cyles. Deep bone pain, dizziness, blood clot in lung, breathless
4/17/15 Allergic reaction to Emend and Taxol
June 4th 2016, every 3 weeks for 6 sessions. Maybe more after surgery. Chemo combo tch
3 rounds, carbo/taxol
Carboplatin started 2007, however I became allergic in 2008, so had to have it changed to Gemzar and Advastin then. Been on and off of chemo since for chronic cancer outbreaks.
Chemo consisted of 6 total treatments - 1 treatment every 21 days of a variety of steroids, anti-nausia meds and anti allergy meds along with 300mg of Taxal & 580mg of Carboplatin. Treatments started on Oct 2, 2014 and then every 21 days from there with the exception of late Dec. which was 25 days because the 21st day fell on Christmas day. Last Treatment was Jan. 20, 2015.
Carboplatin and taxotere,first treatment went well without much side effects. Look forward to the others.
Begin weekly Erbitux 9/10/13, Cisplatin/5FU 5/14, CarboTaxol 7/15
I had my port-A-cath placement on November 9, 2010 for six cycles of Carbo/Alimta. The port-A-cath hurts just on its own, but chemo sucks, sucks, sucks! I cant say anything nice about chemo, other than hopefully it is killing those cancer cells! After each treatment I have extreme fatigue and appetite loss for 4-5 days following. My hair started falling out after the second cycle, which doesn't bother me compared to the fatigue. I hate not helping out around the house, or missing out on family time because all I want to do is sleep. My blood counts are also very low so the doctors and nurses check them every week, and they also check my kidney function. I'm on medicine for my anemia which helps a little with my fatigue. My kidneys should hang in there- I guess it paid off living a healthy life.

Doxorubicin, Leomycin. Inblastine, Acarbazine (ABVD) Chemotherapy Chemotherapies

What Doxorubicin, Leomycin. Inblastine, Acarbazine (ABVD) Chemotherapy Cancer Survivors said about their Chemotherapies.

R-CHOP - 10/21/2010, 11/11/2010, 12/2/2010, 12/22/2010, 1/13/2011, and 2/16/2011 - was scheduled for 8 sessions but reduced to 6 sessions due to being determined NED, or in remission, per PET scan results dated 1/11/2011
First R-CHOP on 12/28/2015 which was from 7:00am to 6:00pm. Had a reaction to the Rituxan of red hives on face, so they had to stop treatment for a half hour and treat reaction before continuing with the Chemo. Feel tired and cold. After the first chemo treatment, the next 3 had almost no side effects.
Tired, Had KFC after every session
3/2012 Adriamycin and dacarbazine 6 cycles 12/2012- 10/2013 votrient 600mg every day. 10/2013 - present gem/tax
R-CHOP 25/11/11
Round 1 1/22/13 Round 2 2/13/13
ABVDX2 4 cycles 13th Feb-2017 ABVD 1st session 27th feb-2017 ABVD 2nd session
Getting chemo doesn't hurt. I don't feel the chemo being injected, and I feel fine for 3 days after, minus the fatigue. Nausea, headaches, body aches, upset stomach are my most common side effects when my medications are done.
Started ABVD November 20th~ a little nauseous, headaches, and a little tired..
ABVD 11/30/2010-present Fatigue, weakness, dizziness, nausea, neuropathy, constipation, headaches, hair loss and chemo brain.
nausea, fatigue, anxiety, depression, dizziness, vomitting
ABVD started in December 2011-May 2012. Hair loss, nauscia, weakness. ICE July 2012-August 2012 Hair loss, nausea, weakness
Nausea, lightheaded, tired. First treatment was 8-13-15.
Several months of CHOP+Bleo. Got very bloated from Prednazone. Total body baldness, of course. My skin actually got quite beautiful and baby smooth. Toenails fell off. Heart and lung damage from Bleo. My mouth and throat were scarred by sores and from vomiting. Kidneys have been very vulnerable ever since. (Just want to add, I HAVE NO COMPLAINTS ABOUT ANY OF THIS. I lived! It was worth it.)
1st treatment, August 23rd, 2011...which is tomorrow, so I don't know what side effects I'm going to have.
ABVD Chemo every other Tuesday 12 times.
started ABVD March 2011
3/20/19 first cycle R-Chop
ABVD- October 22, 2010-
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
12 rounds of ABVD. Side effects: hair loss, weight gain, nausea and fatigue
oct induction chemo, Nov another bout of induction chemo as first did not work. Jan: consolidation chemo Apr: additional chemo to prepare for bone marrow transplant.
6 months of bs and stem cell transplant was life changing made me feel completley helpless
Initial treatmeent: ABVD/MOPP (8/92-12/92). I received 6 cycles with complete response. The chemo was relatively well-tolerated. Salvage treatment: DECAL (Dexamethasone, Etoposide, Cisplatin, Ara-C, L-Asparaginase) 9/92-12/92. One brutal regimen! Cisplatin was the worst. Three cycles with complete response followed by stem cell transplant.
R-CHOP to start 5/24/18 - 6 treatments

Tarceva (Erlotinib) Chemotherapy Chemotherapies

What Tarceva (Erlotinib) Chemotherapy Cancer Survivors said about their Chemotherapies.

January-April 2009
3-8-2013 To 11-5-13 chemo. I be off balance, I throw up, lost hair, bones ache, hot flashes all side effects.
Fatigue, acne, diarrhea, numbness and pain in fingers and feet, no appetite, foggy-brained, rheumatism, sensitive to sunlight, no taste, fungus in mouth and lung, partial loss of hair
Avastin-2008 and 2011, Cisplastin-2009 and 2011, and Tarceva-2011.
I've been in chemo since june 2011. I was taking 3 different kinds every three weeks but now have gone to just one kind. the initial treatments caused heartburn, hair loss, vision loss, hearing loss, skin discoloration, skin burns, nausea and vomiting, dizzyness, hot flashes, chemo induced asthma, chemo induced menopause, bone pain, I was not able to taste foods that were not sweet, there are many more but I feel like I"m whining...lol
One a day pill forever (took 150 mg for 2 years). Down to 100 mg due to vertigo, fatigue. Other side effects, slow/non hair growth, rash, dry skin, dry mouth
daily intake of a chemo tablet
December 2004 - Present off and on. On Avastin and Tarceva currently, but stopping to start a new chemo.

Xeloda Chemotherapy Chemotherapies

What Xeloda Chemotherapy Cancer Survivors said about their Chemotherapies.

3 x cycles of Cisplatin 80mg/m^2 over 9 weeks prior to Radiotherapy 3 x cycles of Xeloda (14 tablets) over 9 weeks prior to Radiotherapy Once weekly 40mg2 Cisplatin during Radiotherapy
Started Chemo - Gemzar & Xeloda - in November 2016. 6 cycles planned. Side effects pretty mild - some nausea and tiredness
2 IV chemo treatments, on day one, then 2nd delayed due to dehydration, also 6 pills/day for 30 days, same timing as radiation, very tired, no appetite, lost 15 pounds
Chemo #1 on 4/02/10: I was more tired then usual and had a "blah" moment after going outside for a few minutes.
6 weeks 3000mg xeoda pre surgery. 4 month 5000mg xelota post surgery. Oxi recommended. Tried but side effects too extreme. No hair loss. Tired and weak. Low energy with uncontrolled diarrhea.
Began with Xeloda in pill form that was simultaneous with my Radiation. 6 weeks Mon-Fri. Didn't have any problems with this drug whatsoever. March 2014 began Oxaliplatin and 5FU for the next 6 months. I where a pump for 48 hours of continuous infusion every other week. I was told to be cautious of cold weather and cold drinks or any other type of cold items. So drinking everything at room temp is pretty boring but I did find out what happens if you do try to tempt fate and drink a cold substance----it felt like I was swallowing shards of glass down the back of my throat. YIKES. So far, I have only noticed a bit of nausea during the week of treatment and fatigue, but I know it is early and these symptoms will undoubtedly worsen as time goes on. Not looking forward to this. Really have dreaded the whole chemo thing.
2 cycles of 5-FU, FOLFOX for tumor, R-CHOP for B-Cell and now 6 cycles of FOL-FIRI
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.
2009 - Mitfomycin, 5FU; 2011 Xeloda & Oxaliplatin; 2013 Paclitaxel & Carboplatin; 2014 Lapatinib; 2015 Xeloda (twice with radiation)
Xeloda Monday thru Friday. Weekends off. Also had mytomycin Iv in the beginning and end of treatment.
4 rounds of Adriamycin and Cyclophosphamide together every 2 weeks. I am done with those 4 rounds. 4 rounds of Taxol every 2 weeks I have 3 rounds left. Xeloda for a year, Gemzar and carbo still doing it once a month until I guess it stops working.
May 2010-July 2010: 24 hour, continuous 5FU infusion, Mondays-Fridays November 2010-January 2011 :Folfox December 2011-April 2012
Fatigue, acne, diarrhea, numbness and pain in fingers and feet, no appetite, foggy-brained, rheumatism, sensitive to sunlight, no taste, fungus in mouth and lung, partial loss of hair
Cisplatin and Xeloda front 20/08/14 through to 11/11/14 Sickness at the start of cycles 1 and 2. Swelling in my legs on the start of cycle 2. Dose was reduced for cycles 3 and 4 . I did not get along with the anti sickness tablets, I tried several different ones. EMEND was usefully but I stopped taking others and found ginger to be most helpful. I seemed to experience a little of all side effects. Ulcers, hand and foot syndrome, diarrhoea sickness and constipation but they didn't last long. Oh and my head hair thinned but I did keep enough.
Xeloda during radiation and again mid-June to July along with Oxaliplatin- only able to receive two treatments after surgery due to severe dehydration, malnutrition, immuno-suppression. Since July have had severe pain in joints- especially shoulders- now diagnosed with frozen shoulders. Beginning PT this week.
2 chemo infusions and 6 chemo pills a day for 6 weeks
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
Xeloda (oral chemo) for two and a half weeks.
folofox: 3/14-9/14, starting again 1/15
My mum went through a number of drugs to treat the cancer which kept on returning almost every single year from 2008-2011: Avasatin, Xeloda, Folfox, Folfiri, Erbitux. The side-effects are almost always similar: nausea, tiredness, vomiting, loss of appetite, mouth and throat sores. The first day after chemo she never manages to sleep well.
Xeloda- oral chemo, twice a day for 7 weeks, June 22-August 7, headaches, tightness in chest after physical activity, leukopenia Intravenous- 4 months of chemo after surgery, details have yet to be determined
Xeloda - nausea and reflux
I felt like my body was vibrating during the oral chemotherapy. I was very fortunate in that my side effects were minimal.
Week 1: Mitomycin 15mg IVP Generic Xeloda 500mg 2 tablets started every 12 hours. Just felt queasy and very fatigue. Week 4: Mitomycin 9mg IVP, continue Xeloda. Developed skin blister to back. Overall, no hair loss, no vomiting, no mouth sores
Oxalyplatin, 5FU, Xeloda, Leuvecorin - Started 10/31/11, on 4th infusion 1/4/12

Etoposide (VePesid) Chemotherapy Chemotherapies

What Etoposide (VePesid) Chemotherapy Cancer Survivors said about their Chemotherapies.

BEP chemo
Rituximab, Cyclophosphamide, Vincristine, Prednisone on 3 week cycles. Started 1st September 2010. Side effects - constipation, mild nausea, night sweats, tiredness, mood swings.
ABVD started in December 2011-May 2012. Hair loss, nauscia, weakness. ICE July 2012-August 2012 Hair loss, nausea, weakness
Chemotherapy started on 20th Dec 2008 and I chose to stop in June 2009 (I was meant to finish in Nov 2009, but when I found out my tumor was no longer shrinking, I physically could not deal with the side effects anymore). I lost my hair, which was by far not the worst side effect! Mouth sores, lost my sense of taste and smell. Horrendous constipation. Nauseous most of the time. Not able to eat. So completely exhausted, not even energy to stand up some days. Felt extreme cold, then major hot flushes, wake up drenched in sweat. Eyes always sore and watery. My chemotherapy was every 3 weeks, which took 5 days in hospital to administer IV - then every month when home I would spike a massive temp & have to be rushed into hospital for blood transfusions and isolated for neutronpenia! Chemo turned me into a shell of my former self, it destroyed my spirit and had me in tears most of the time. It was a hard, hard fight.
nausea, fatigue, anxiety, depression, dizziness, vomitting
Cisplatin & Etoposide May/18-August/18. Four rounds of treatment 3-4 weeks apart. Side effects- Hair loss, nausea, weakness & fatigue, weight loss
IE and VAC treatment every 3 weeks. Lost weight and all my hair/ body hair
starting the 2nd week of August 2013
Chemotherapy started in September 2011 and continued every three weeks either daily for a week, or a single day dose of VAC - crappy crappy side effects, where do I start......numb finger tips, constipation, hair loss, loss of taste buds, thrush in mouth, lack of concentration, sooooo exhausted after each dose and weeks later. It is very true that the chemo is so much harder than the cancer to deal with.
Currenly going through Ewings Sarcoma protocol for Chemotherapy. 14 total cycles.
On April 19th 2018, I also received my first dose of chemotherapy. I don't remember much of what happened during this time except I broke out in a red rash from head to toe and ran a fever for 5 days straight. The red drug, daunorubicin, makes me extremely sick. I'm a wreck when they give it to me.
Chemotherapy lasted from July 2010 - August 2011 His chemotherapy consisted of Vincristine, Doxorubicin, Cyclophosphamide, Ifosfamide, and Etoposide. Some vomiting and lots of nausea.
Initial diagnosis required 1 round chemo -Carboplatin - minimal side effects Return of cancer - 4 rounds of chemo ( EP) 21 day cycles includes five continuous days of infusion then rest. No nausea but gastric reflux with vomiting, scalp pain, metallic taste in mouth, tiredness, neutropenia
Induction Theraphy Cytarabine and Doxorubicin for 8 days. I just start my Consolidation theraphy last March 30. Which is Doxorubicin for 1hour and vincristine(push) and cytarabine IT(so painful)
3 days chemo every 21 days. Hydration as needed. Tiredness and nausea/vomiting at times.
ABVD Six months
started 10/19/2015 R- EPOCH 6 treatments fatigue
Doxorubicin Cisplation Methotrexate Ifosfomide Etoposide
cistplatin, bleomyocin, etopiside, numbness in hands and feet nausea and weakness major chemo brain
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
Chemo Began 12/02/2013... Bleomycin-Cisplatin and Etoposide
3 cycles of: Cisplatin, Bleomycin, and Etopiside which caused nausea, fatigue, by second cycle I could no longer naturally fall asleep, escalated pulse, anxiety, depression, dry mouth and skin which now I have scratch marks on my back, vomiting, got a finger infection so wear rubber gloves when counts are low and a mask, slight ringing in ears, raw esophogus, heartburn and diarrhea.
6 cycles of R-EPOCH
Rituxan/Bendamustine (Summer 2010) - very little except fatigue. R-CHOP (summer 2011) - nausea, fatigue, hair loss
Dose adjusted R-EPOCH. Six rounds. 21 day cycles. Chemo administered as an inpatient. Started chemo December 19, 2011. Finished April 26, 2012.

Imatinib Mesylate (Gleevec) Chemotherapy Chemotherapies

What Imatinib Mesylate (Gleevec) Chemotherapy Cancer Survivors said about their Chemotherapies.

Gleevec 400 mg. daily, nausea, taking anti nausea medication
Daily 400mg Gleevec. Daily fatigue. Slow morning wake up. Memory problems they call Gleevec brain. Polyneuropathy: pain and weakness in body. I use a cane when walking outside. Diarrhea. I did just find out that I am now in remission but must stay on the Gleevec for 2 years. I am totally grateful that Gleevec exists for me and for all CML patients. Good luck to all of us!

Sorafinib (Nexavar) Chemotherapy Chemotherapies

What Sorafinib (Nexavar) Chemotherapy Cancer Survivors said about their Chemotherapies.

11-19 chemo pellets not sure of the name, nausea,
Nexavar 8/22/12 - forever, side effects all listed
Nexavar for 6 months. Infusion therapy started 2 weeks ago and ongoing bi-weekly.

Topotecan (Hycamtin) Chemotherapy Chemotherapies

What Topotecan (Hycamtin) Chemotherapy Cancer Survivors said about their Chemotherapies.

Have had chemo continuously for 2 years
Carboplatin and Taxol, 8/11/2011. Sun-sensitive day after infusion (doesn't that sound like something you'd pay extra for at a spa?), then joint pain, peripheral neuropathy, fatigue on days three and four following chemo. Get better pain meds for next round!
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
Loss of hair and nausea
7-2010 IP/IV chemo x 6 cycles ( cisplatin/taxol/carboplatin) Hair loss, extreme fatigue, abdominal pain... 11-2011 ca125 on the rise. 4/6 cycles complete of topotecan. Ca125 back in its place. BRCA 1 Minimal side effects: reasonable fatigue and well controlled nausea.
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)

Vincristine (Oncovin, Vincasar PFS) Chemotherapy Chemotherapies

What Vincristine (Oncovin, Vincasar PFS) Chemotherapy Cancer Survivors said about their Chemotherapies.

4 monthly rounds of VAD prior to allogenous bone marrow transplant.
RCHOP chemo Feb 2015-May 2015 (6 rounds).. Plus Neulasta shot the next day each time...Side effects are different for everyone.. Although they all suck, I found this treatment to be bearable with all the drugs they give for side effects...
finished with induction therapy, now gonna begin with consolidation.
Rituxan/Bendamustine (Summer 2010) - very little except fatigue. R-CHOP (summer 2011) - nausea, fatigue, hair loss
First R-CHOP on 12/28/2015 which was from 7:00am to 6:00pm. Had a reaction to the Rituxan of red hives on face, so they had to stop treatment for a half hour and treat reaction before continuing with the Chemo. Feel tired and cold. After the first chemo treatment, the next 3 had almost no side effects.
CVP-R So far I have fatigue and prednisone make me anxios and nervious
Chemotherapy lasted from July 2010 - August 2011 His chemotherapy consisted of Vincristine, Doxorubicin, Cyclophosphamide, Ifosfamide, and Etoposide. Some vomiting and lots of nausea.
11/2012-V-RCHOP....V-Velcade (Clinical trial drug) Side Effects: Headaches, hair loss, nausea, dehydration, neuropathy, & Fatigue
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
PCV 8/21/16 - still fighting
At first it was the same as radiation, but when they got aggressive in August, I was stuck to the couch for 2 weeks. Weakness, major nausea, muscle and bone pain, throat swelling, mouth sores, major shivers and shakiness, tremors, spinal and head pain, throbbing from head to lower spine...theres more but can't remember them all.
About to go for chemo number 3 on Friday, feb 22... bone pain, anxiousness, depression, numbness, random rashes, hair losss, constipation. RCHOP , nuelasta, etc
R-CHOP every 3 weeks for 6 cycles
Chemotherapy started in September 2011 and continued every three weeks either daily for a week, or a single day dose of VAC - crappy crappy side effects, where do I start......numb finger tips, constipation, hair loss, loss of taste buds, thrush in mouth, lack of concentration, sooooo exhausted after each dose and weeks later. It is very true that the chemo is so much harder than the cancer to deal with.
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.
R CHOP every 3 weeks from 12/30/2013 through 4/28/2014. Began R GEMOX on 6/19/2014 every 3 weeks through 10/21/2014. Started Rituximab and Treanda on 12/3/2014 as a 2 day course. Severe neuropathy in feet and less but still suffered neuropathy in fingers during R CHOP. R GEMOX caused great discomfort with cold even before therapy was complete. One does of Rituximab and Treanda and my father has terrible oral sores. However, he has been fortunate to never have suffered any severe intestinal discomfort.
R- chop
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
R-COP, mabthera and then R-CHOP
Several months of CHOP+Bleo. Got very bloated from Prednazone. Total body baldness, of course. My skin actually got quite beautiful and baby smooth. Toenails fell off. Heart and lung damage from Bleo. My mouth and throat were scarred by sores and from vomiting. Kidneys have been very vulnerable ever since. (Just want to add, I HAVE NO COMPLAINTS ABOUT ANY OF THIS. I lived! It was worth it.)
R-CHOP; chemo as listed above plus Rituximab and Prednisone. June x1; July x2; August x1; September x2. 6 total rounds of R-CHOP. Also, had an injection of Neulasta the day after each chemo round that helped me build-up white blood cell counts and it worked well. Fortunately, they gave me a 'cocktail' of Benadryl etc, so I never got sick - thank God. Took nausea pills. Loss of appetite for days as everything tasted like you ate old pennies or nickels. The first two times that I had the Neulasta white blood cell shots I had bone pain within a week that lasted only a day or two and went away. Chemo also gave me an irriegular heartbeat, so a beta-blocker fixed that. Chemo 1-4 weren't all that bad, just long. Chemo 5 & 6 felt like I was in a fight in the middle of the night - but I was able to recover quickly. The Prednisone pills made me nasty, which I usually am not.
Many different times beginning approx 1 year after spleen removal
started 10/19/2015 R- EPOCH 6 treatments fatigue
R-CHOP began 8/21/12, then 9/14,10/2, 10/23, 11/13, 12/4. vomiting, nausea, taste & smell changes, nueropathy, hair loss, depresssion
Hyper CVAD Protocol 6/1/2015-2/7/2016 including spinal chemo X 4

Vinblastine (Velban) Chemotherapy Chemotherapies

What Vinblastine (Velban) Chemotherapy Cancer Survivors said about their Chemotherapies.

6cycles of Chemotherapy was planned that is a six montha duration.ABVD doses was induced in every fifteen days through veinflow during the first 3 cycles and later through picc line which was less painful. Side effects of chemo were many starting with gastritis, acidity, nausea, body pain,hair loss,fatigue...but this would be fine within a week after wbc count increases to normal level.
AVD (Dr. says I don't need the B) constipation, nausia, jaw tingle, red hot face, tired, dizziness
1991 April to June MAKOP B, 12 months treatment plan administered weekly over 12 weeks, ulcers, nausea, tiredness, loss of nerve sensations in extremities, severe constipation, hair loss (lol)
ABVD Chemo every other Tuesday 12 times.
R-CHOP 6
AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
ABVD Six months
6 rounds/12 treatments ABVD (Could only find Adriamycin and Vinblastin to list here) over the course of 6 months
(ABVD) Loss of hair, nausea, fatigue, loss of appetite, Random flushness, metallic taste in mouth, sores inside mouth

Erbitux (Cituximab) Chemotherapy Chemotherapies

What Erbitux (Cituximab) Chemotherapy Cancer Survivors said about their Chemotherapies.

11 treatments ended about 11/07/2011
Cituximab Loading dose March 13th, High fever and severe headache. Second of 8 treatments March 21st. Only side effect was severe heartburn.
Cisplatin ....nausea and fatigue
First treatment on 8-16-12 of FOLFOX Avastin begins 8-30 with second treatment Side effects: mouth soreness, sensitivity to cold
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
Erbitux, once a week for 7 weeks, starting in August. Initially, severe tongue sensitivity (at one point even water was like battery acid). For most of the treatment time, daily nausea and and severe acid reflux with occasional vomiting. As of today: chemotherapy induced neuropathy of the right leg causing the inability to lift my toes or my ankle (currently wearing a brace), but expect this to improve; whatever contribution Erbitux has towards complete dry mouth and lact of taste.
Began Erbitux November, once a week. Skipped December, resumed chemo January, I go weekly.
Protocol #1: First of 3-21 day cycles of 5-FU, Cisplatin and Docetaxel started 10/7/13 - around the 2 or 3 week started losing hair and experiencing nausea, fatigue, weight loss, etc; Protocol #2: Eribtux and concurrent radiation for 6 weeks started ~12/10/13 - neuropathy in feetbegan a few months after treatment stopped and is still ongoing.
Jan 21- vomit, headaches, fatigue, lack of sleep, sore throat, cold sores, dry mouth, weak, pain, dry skin, headaches
Erbitux. Loss of hair, lesions on my hands, scab around my neck, vomiting, etc.
Completed May 15, 2012
My mum went through a number of drugs to treat the cancer which kept on returning almost every single year from 2008-2011: Avasatin, Xeloda, Folfox, Folfiri, Erbitux. The side-effects are almost always similar: nausea, tiredness, vomiting, loss of appetite, mouth and throat sores. The first day after chemo she never manages to sleep well.
Started weekly induction chemo on 9/5/13 with carboplatin and paclitaxel- soreness in mouth, slight nausea, dry skin (severe itching), acid reflux. Started chemo-radiation on 11/4/13 using cisplatin. Received 5 weekly cisplatin treatments until wbc count was too low.
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007 Nueropathy, memory loss, balance issues, joint and muscle pain
ABVD Six months
3 treatments. Cisplatin at first but had terrible digestive side effects so used erbitux for last 2 treatments
April 9, 2012 (Only made it through 4 treatments as it made me incredibly sick.)
Begin weekly Erbitux 9/10/13, Cisplatin/5FU 5/14, CarboTaxol 7/15
Start with erbitux on Nov 12th and follow with weekly doses every Monday for a total of 8 weeks
Cetuximab - Brand name: Erbitux - April 1, 2010 - so far just really really tired. I was told later a rash and other stuff could happen. ( 5/1/10 - rash did appear including itching. Scalp was the worst. Lying down felt like pins sticking my head. I was told if not rash, med is not working. After they know it was working, I got med to help the rash and itch.)
Erbitux (cetuximab), loading dose 25 Jan, caused mild temp and nausea, then no similar effects during the 8-week course of treatment. Significant skin effects (acne, painful splitting of skin on fingertips, toes, and heels). No real nausea, vomiting, or diarrhea caused by the Erbitux.
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
second form of chemo 3 more weeks, no side effects
Begin Erbitux treatments February 13 2012 and finished on May 2nd.
12 total Erbitux sessions, once weekly, January 13 - March 31, 2011. Increasing fatigue and, ironically, insomnia following each session. From mid February through the end of treatments, somehow the Radiation/Erbitux mix seemed to spawn clusters of migraines.

Cytarabine (Ara-C) Chemotherapy Chemotherapies

What Cytarabine (Ara-C) Chemotherapy Cancer Survivors said about their Chemotherapies.

Induction Theraphy Cytarabine and Doxorubicin for 8 days. I just start my Consolidation theraphy last March 30. Which is Doxorubicin for 1hour and vincristine(push) and cytarabine IT(so painful)
nausea, fatigue, anxiety, depression, dizziness, vomitting
AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
R-CHOP starts 8/26/10 Major Side Effects Day 1-3 Headache and Diarrhea Mouth Sores Days 3-6 TCH starts 4/23/18
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
Started induction chemotherapy for AML on 25th September with "7+3 for 24 hours. I got Daunorubicin for 15 minutes the first 3 days while getting cytarabine the rest of the 24 hours. After the 3 days, the cytarabine continued 24 hours for the balance of the rest of the 7 days. I was medicated with multiple medications to prevent some of the known side effects such as eye damage, nausea, vomiting, and acid reflux. After the chemotherapy stopped, the Nader effects kicked in about a week later which is when the white and red blood cell counts and platelets drop. I ended up with ecoli infection in the blood and pneumonia which nessitated the administration of IV antibiotics. I also required Neupogen shots daily to help increase the production of white blood cells. Multiple platelet and blood transfusions were needed to sustain my existence. During this time I also had petechiae due the low platelet count. Stem cell or bone marrow transplant was recommended however, in my case, no full donor match could be found. Therefore my option was to have additional consolidation which consisted of hi-dac chemo (high dose chemo days 1,3,5 for 4 hours twice on those days. Typically if transplant is not an option, 4 doses of hi-dac is recommended. Due to my difficulty with the chemo, we opted for only 2 consolidation treatments. Right now I'm in remission although my white blood cell count and platelet counts are only 1/2 of the normal range. Last bone marrow biopsy (6th one) showed no Leukemia. Currently I have monthly blood work to monitor blood levels.
April 9 - 15th 2017 & April 27th - May 1st 2017.Finished 2nd round of Chemo May 1st. Experiencing hair loss, fatigue & weakness, SOB, Colitis, Diverticulitis, diarrhea, loss of appetite, confusion, hallucination, Acute Renal failure, low BP, and neutripinic sepsis.
On April 19th 2018, I also received my first dose of chemotherapy. I don't remember much of what happened during this time except I broke out in a red rash from head to toe and ran a fever for 5 days straight. The red drug, daunorubicin, makes me extremely sick. I'm a wreck when they give it to me.
Hyper CVAD Protocol 6/1/2015-2/7/2016 including spinal chemo X 4
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
ABVD Six months
Induction round 12/22/14-1/19-15: nausea, vomiting, diarrhea, fatigue Consolidation February '15, Consolidation March '15, Consolidation April '15
Achieved remission October 2017 with 2 IV drugs — few side effects aside of minor peripheral neuropathy in feet. Out of remission in January 2018. On cytsribinevsubce Feb 2018; Also on oral chemo since March 2018: Venetoclax. Peripheral neuropathy (feet); anal fissures w/bleeds; mucocitis of throat (hard to eat or drink ANYthing); dyspepsia (nausea); fatigue; 15% wt loss (BMI=18.4)
I've had 2 rounds of induction therapy and just finished my 4th round of consolidation therapy. Side effects have been different with each round. My hair only fell out my first round. Have experienced nausea, dizziness, weight loss, appetite loss, headaches, brain bleeds, metal-like taste in my mouth and food, lethargy, loss of endurance and stamina, chemo brain, grogginess and foggy brain, memory loss.
Started daunorubicin and cytarabine 7+3 therapy on January 10, 2015. I stayed in the hospital approximately thirty days. A bone marrow biopsy at the end of this stay confirmed remission. My nausea was not too bad, except for a time that they served some green beans from the cafeteria. I dry heaved several times, and then ate only food from home. I suffered diarrhea, hair loss, a neutropenia fever, an acute kidney injury, fatigue, and weight loss. I started my first round of consolidation chemotherapy in February, second round in March, and third round in April. I have been very fortunate to this point to avoid a bone marrow transplant.
January 6 2014 and February 15 2014
R-Chop--6 cycles total..completed 5/18,6/8 and 6/24/2011,7/15/11 8/8/11 and 8/25/11. side effects: nausea, bone pain, headaches, ear pain(probably from neulasta/neupogen),some fatigue, severe heartburn/epigastic discomfort, mood changes, r ice , beam, imbruvica
Induction, September 2014, two rounds. I didn't go into remission after the round (7+3 and) had IDA-FLAG (idarubicin, fludarabine, cytarabine and G-CSF. I lost my hair and appetite. Mouth sores are horrible as was the fatigue. I had four rounds of consolidation (November, December 2014, January, February 2015) after this, high dose cytarabine and the side effects are marginal for me, I was really tired and that was a result of low Hgb.
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
still waiting for start date
I don't remember all of them, but cytotoxin was one of them
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.

Daunorubicin Chemotherapy Chemotherapies

What Daunorubicin Chemotherapy Cancer Survivors said about their Chemotherapies.

Started induction chemotherapy for AML on 25th September with "7+3 for 24 hours. I got Daunorubicin for 15 minutes the first 3 days while getting cytarabine the rest of the 24 hours. After the 3 days, the cytarabine continued 24 hours for the balance of the rest of the 7 days. I was medicated with multiple medications to prevent some of the known side effects such as eye damage, nausea, vomiting, and acid reflux. After the chemotherapy stopped, the Nader effects kicked in about a week later which is when the white and red blood cell counts and platelets drop. I ended up with ecoli infection in the blood and pneumonia which nessitated the administration of IV antibiotics. I also required Neupogen shots daily to help increase the production of white blood cells. Multiple platelet and blood transfusions were needed to sustain my existence. During this time I also had petechiae due the low platelet count. Stem cell or bone marrow transplant was recommended however, in my case, no full donor match could be found. Therefore my option was to have additional consolidation which consisted of hi-dac chemo (high dose chemo days 1,3,5 for 4 hours twice on those days. Typically if transplant is not an option, 4 doses of hi-dac is recommended. Due to my difficulty with the chemo, we opted for only 2 consolidation treatments. Right now I'm in remission although my white blood cell count and platelet counts are only 1/2 of the normal range. Last bone marrow biopsy (6th one) showed no Leukemia. Currently I have monthly blood work to monitor blood levels.
On April 19th 2018, I also received my first dose of chemotherapy. I don't remember much of what happened during this time except I broke out in a red rash from head to toe and ran a fever for 5 days straight. The red drug, daunorubicin, makes me extremely sick. I'm a wreck when they give it to me.
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
Started chemo on July 7, 2016 - May 5, 2017 Side effects - nausea, vomiting, mouth sores
Started daunorubicin and cytarabine 7+3 therapy on January 10, 2015. I stayed in the hospital approximately thirty days. A bone marrow biopsy at the end of this stay confirmed remission. My nausea was not too bad, except for a time that they served some green beans from the cafeteria. I dry heaved several times, and then ate only food from home. I suffered diarrhea, hair loss, a neutropenia fever, an acute kidney injury, fatigue, and weight loss. I started my first round of consolidation chemotherapy in February, second round in March, and third round in April. I have been very fortunate to this point to avoid a bone marrow transplant.
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.

Mitomycin Chemotherapy Chemotherapies

What Mitomycin Chemotherapy Cancer Survivors said about their Chemotherapies.

Capacitabine (Xeloda) 5 x week, 2 x day in tablet form Nausea WBC low, needed to stop chemo treatment for 10 days 2021 Chemotherapy with Carboplatine and Paclitaxel Hb low, needed 2 x blood transfusions
May-June, 2015; 5-FU and Mitomycin
5/7/19 through 5/11/19 and 6/10/19 through 6/14/19. Mouth sores fatigue skin irritation from PICC line.
5fu and Mitomycin Feb-Mar 2014
2 rounds via port, less than 96 hrs round 1 due to New Year's Eve infusion clinic closing, 96 hrs round 2, Low WBC, fatigue, port infection,
First Round: 9/3/2013 Received an injection (infusion?) of mitomycin, then was suited up with a mechanical pump, a bag of 5-FU, and an ugly, poorly designed fanny pack. I had to wear it for 5 days. Lots of nausea, no vomiting, very tired - which could have been caused by the anti-nausea meds that I took regularly. I basically slept my way through the first two days. I had a overall sensation of just not feeling well. After that, although I couldn't eat much, the nausea went away. On day 4, I felt really good - very slow, but good. Day 5, woke up feeling extremely weak and dreamlike. Noticed sore throat and bleeding gums (while brushing). Have developed a sore "spot" on the right side of my throat. More energy on day 6. NOTHING tasted good. :( Cramping, but no diarrhea.
Fatigue, nausea, mouth sores, hair loss. Developed an abdominal infection after the first round and was hospitalized for 10 days.
1st round 9/28/15: Mitomycin infusion; 5FU drip for 4 days. Stupidly stopped taking anti-nausea med Zofran for a day because it was making me constipated and proceeded to get sick throughout the night. Started taking Compazine instead. Developed thrush/mouth sores once finished with chemo - they lasted a week. Next round of chemo coming up 10/19/15.
First round June 24, 2013. Vague feeling of unwell, horrible burping, relieved by Omeprazole, one and 1/2 days of sole pain, then resolved. Mouth sores began 6/29/13, peaked on 07/04/13. Second round July 22, Mitomycin reduced by half because of my WBC response the first time. Same feeling of unwell, anorexia, chemo created constipation for me, not diarrhea.
Chemo first and fifth week. Mouth sores, nausea, and no appetite.
5 FU and Mitimycin == two rounds each. nausea, diarrhea, pain. Was in hospital for a week for low blood counts. Either blood or platelets (or both) given every day in hospital.
NIGRO protocol with capecitabine + mitomycin began concurrently with radiation therapy (January 22, 2019 through March 4, 2019). I chose an oral medication instead of an infusion pump, which was somewhat risky because the oral medication was so new. At the time, there was very little history or research gathered on its effectiveness, but early data suggested it was at least as effective, and possibly even more effective, than infusions. I took a handful of pills twice a day on days when I received radiation, Monday through Friday for six weeks. Shortly into the therapy, I noticed food tasted different to me and became less enjoyable. I also experienced intense chest pain - enough to send me to the emergency room. I was followed by a cardiologist for the duration of my treatments, and fortunately the chest pain went away shortly after my cancer treatments ended. I am grateful that there was no permanent damage to my heart.
Fatigue, hair thinning, weight loss
Mitomycin & 5FU started on 1/18 ended on 1/22. Next chemo to start on 2/15. Side effects were constipation, fatigue and low appetite and aversion to smells.
2 Continuous drip 4-5 day, rounds 5-fu and Only one of mitomycin were given due to how sick I was towards 2nd treatment. One given oct. 2018 the other december 2018.
First round 3/17-20/14, 5-FU and Mytomycin. Nausea, fatigue, severe mouth sores (lips, mouth, tongue, throat) and white blood cell count down as low as .7. Second round postponed to 8th week due to C. Diff. infection. 1/2 dose with no severe side effects.
Had surgery for Port placement in 01/2011. I began my first bout of chemo on 2/14/2011 along with radiation. I was in the chair for about an hour receiving the Mitomycin, and the 5-FU was portable, so it was hooked up and it was constantly dripping beginning Monday, and I would return Friday to get it taken off. I fortunately did not have too many side effects; no hair loss, not much nausea. I had a lot of fatigue, but I blame some of that on the radiation as well. Once I had my second (and final) round of chemo (which went the same way as the first), about halfway through my radiation, that's when I started to have a very difficult time and I was in a lot of pain and the effects of the radiation on my skin was much more apparent and was a lot more uncomfortable.
Mitomycin 5 FU June 13-17. constipation, flushed red skin on the face, neck, chest for two days, loss of appetite, nausea. 2nd Week June 20th more constipation and mouth sores/gum sensitivity
Mouth sores terrible lost taste for red meat. Hair thinned out
5FU and mitomycin. Lost all my hair, severe mouth sores, fever from extremely low blood counts, tired, nausea, two hospital stays for a week each time.
two 96-hour stretches of chemo with mytomycin and 5 FU (guess what my nickname for "FU" is...) Horrible side effects, bleeding and cracking at corners of lips, raw inside mouth, chronic nausea (nausea meds helped), weakness, depression, sleep problems, etc.
Two cycles Week one Mitomycin C & 5FU(Flouracil) Week Five 5FU
Nausea
dehydration, some mouth sores, not bad, lost some hair. intestinal pain, tiredness, low white blood cell count and platelets, hospitalized for 11 days because I didn't want to eat and felt like I would get too weak to take care of myself. They diagnosed me with dehydration and said the treatments had caused it. Started Aug. 26 with one injection of mitomycin, and carried drip bag for four days of Flourouracil(5-FU), repeated Sept. 24th, 2013.
Chemo didn't affect me too much. Got some weird tastes in my mouth. My hair thinned a lot. Used to love beer, now I don't have a taste for it. I have a constant smell in my nose like some kind of burnt food.

Eloxatin (Oxaliplatin) Chemotherapy Chemotherapies

What Eloxatin (Oxaliplatin) Chemotherapy Cancer Survivors said about their Chemotherapies.

Oxaliplatin infusion; Leucovorin infusion; Fluorouracil continuous infusion pump.
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
R CHOP every 3 weeks from 12/30/2013 through 4/28/2014. Began R GEMOX on 6/19/2014 every 3 weeks through 10/21/2014. Started Rituximab and Treanda on 12/3/2014 as a 2 day course. Severe neuropathy in feet and less but still suffered neuropathy in fingers during R CHOP. R GEMOX caused great discomfort with cold even before therapy was complete. One does of Rituximab and Treanda and my father has terrible oral sores. However, he has been fortunate to never have suffered any severe intestinal discomfort.
Rituxan and treanda. Had mixed results. Then R-CHOP, which seemed to increase the cancer. Then R-ICE which then sent me to get an auto transplant. Had a severe reaction to rituxan the first time, then minor reactions every other time. They had to infuse really slow. Added an extra day to my chemos. No other big side effects from the actual chemo except fatigue. Hair loss after the final ICE but was high dose. Also, threw up after the ICE except after the high dose.
Oxaliplatin,Calcium Leucovorin,Camptosar,Florouracil
I had 2 chemotherapy drugs. Eloxatin (oxaliplatin) which was given through my port at my Oncologist's office. I also took Xeloda which is a chemotherapy drug (pills) taken at home. I also had a wonderful Oncologist who worked well with my surgeon.
Started chemo 1/4/2016
Nexavar for 6 months. Infusion therapy started 2 weeks ago and ongoing bi-weekly.
Began with Xeloda in pill form that was simultaneous with my Radiation. 6 weeks Mon-Fri. Didn't have any problems with this drug whatsoever. March 2014 began Oxaliplatin and 5FU for the next 6 months. I where a pump for 48 hours of continuous infusion every other week. I was told to be cautious of cold weather and cold drinks or any other type of cold items. So drinking everything at room temp is pretty boring but I did find out what happens if you do try to tempt fate and drink a cold substance----it felt like I was swallowing shards of glass down the back of my throat. YIKES. So far, I have only noticed a bit of nausea during the week of treatment and fatigue, but I know it is early and these symptoms will undoubtedly worsen as time goes on. Not looking forward to this. Really have dreaded the whole chemo thing.
June 2013 - December 2013
I was completely fine up until chemo #5. All of them are 52 hours, I go home with the pump. Chemo# 5 put me down. Fatigue, mouth sores, numbness in toes, extreme sensitivity to cold, loss of appetite.
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss 6 rounds Hepatic artery infusion (oxaliplatin)avastin 3 month Jakafi (oral) unknown trial drug nano cisplatin and gemcitabine
folofox: 3/14-9/14, starting again 1/15
Jan 22, 2015 R Chop was the first. Mostly tired some nauseous spells
Nine rounds of Folfirinox treatment before surgery and more after.
Exhaustion nausea Going on my 86th treatment
5-fu orally before surgery 11/12 - 12/12. The oral chemo did a number on my stomach lining. After surgery did 8 FOLFOX treatments 3/13 - 7/13, side effects were sensitivity to cold, some nausea but not bad, and tired.
6 weeks Flourcil (pills) and radiation Oct - Nov 2015 10 sessions IV chemo (avastin, oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016 Hands and feet numness Little nausea Fingernails thinned Balding
june 19 through end of nov 19 had chemo every two weeks, mouth sores, metal taste in mouth, hands feet peeled, nausea, severe intolerance to anything cold or hot eating or touching....everything had to be room temp.
2009 - Mitfomycin, 5FU; 2011 Xeloda & Oxaliplatin; 2013 Paclitaxel & Carboplatin; 2014 Lapatinib; 2015 Xeloda (twice with radiation)

Abraxane Chemotherapy Chemotherapies

What Abraxane Chemotherapy Cancer Survivors said about their Chemotherapies.

Tiredness and oain
Abraxane and Genzar
Started July 12. Two weeks on, 1 week off. Plan is 6 cycles. Side Effects - Can’t sleep (steroid pretreatment). Terrible constipation (Nausea meds), Very tired, mild fever, irritability on Day 2-3 post chemo.
Extreme fatigue, delerium
Extreme fatigue, some dry heaving, hair loss, neutropenia
A/c( I am not good with names and the one would not uncheck above) started 4/10/2014 I lost my hair the day of the second treatment. Felt pretty bad but was able to work. Got pulmonary embolisms in June (I hope to find out soon that they are gone) by my 3rd A/c the lump was no longer able to be felt. By the 4th it was gone. started taxol in June (blurry) after 2 treatments the first infusion took 11 hours the second 8 hours and that was all I could stand. The side effects were extreme pain, nausea and sensitive to light and sound .I opted out the rest and went straight to surgery!
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)
Initially 2 rounds of Folfirinox, that increased liver enzymes and CA-19-9
Methotrexate, Doxyrubicin, Vincristine, Vinblastine, Cytarabine, Etopomide
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.
Started 12.1t.16
Luckily just 2 rounds of Chemo in 2000. Only lost hair from the waist down. Which would be awesome if I was pursing a career as a Drag Queen

Avastin (Bevacizumab) Chemotherapy Chemotherapies

What Avastin (Bevacizumab) Chemotherapy Cancer Survivors said about their Chemotherapies.

ABVD Six months
Ongoing every two weeks
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss 6 rounds Hepatic artery infusion (oxaliplatin)avastin 3 month Jakafi (oral) unknown trial drug nano cisplatin and gemcitabine
Had a really bad reaction on Oct 14 2014
Every other week
CHEMO 1/2/2012, CHEMO 8/1/2012, CHEMO 7/1/2013 HAIR LOSS
Carboplatin, taxol, avastin, and a PARP inhibitor for 6 rounds, then remission for about 7 months. Then more carboplatin and taxol for 3 more treatments until I became resistant, then onto the MEK/Milo trial. Failed that after 2 months, now looking into immunotherapy
3/19-5/19: carboplatin, taxol for 3 rounds, with avastin for 2 of those (fatigue, assorted irritable stomach issues; with avastin: raspy voice/throat, sniffy) 6/19-8/18: carboplatin, taxol for 3 rounds, with avastin for 2 (see above but a little more so, since it was after THE BIG SURGERY 7/20-? carboplatin, doxil for 6 rounds (SO FAR: intense headache for a few days, some lightheadedness and nausea)
folofox: 3/14-9/14, starting again 1/15
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007 Nueropathy, memory loss, balance issues, joint and muscle pain
Cisplatin: Took 2 treatments, 1 week apart. Tolerated well. No nausea, though stomach very "acidy" feeling. Eating bland foods often throughout the day helped. Did have some tiredness. No loss of hair. Had to stop Cisplatin for a while due to frequent ringing in ears. Cisplatin can lead to permanent hearing loss. Was able to complete last 4 Cisplatin after a break. Have some hearing loss, but not much. Will be using an experimental drug-Avastin, as well. Avastin: no loss of hair. Felt a coldness in the core of the body and extremities. Combined with Cisplatin, usually left me feeling poor and unable to work for about 5 days. Starting Taxol, Carboplatin, and Avastin again next week.
Started chemo on July 7, 2016 - May 5, 2017 Side effects - nausea, vomiting, mouth sores
Once every 3 weeks from Feb - April 2020. Extreme
6 carbo/taxol and 4 cisplatnin in 2013/4. 4 carbo/taxol in 2016/17.
mid july to November 2015 Gemzar eight treatments, xeloda for 28 days on radiation days. Started Folfox regimen 09/20/2017 for recurrence.
She has had 5 rounds of platinum based triad, one round of Alimpta (sp?), now on Opdivo, has had 3 rounds, for the fourth the week of 4/10/16.
6 weeks Flourcil (pills) and radiation Oct - Nov 2015 10 sessions IV chemo (avastin, oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016 Hands and feet numness Little nausea Fingernails thinned Balding
six infusions of carbo/taxol every 3 weeks from 3/13 to 6/13 six more infusions carbo/taxol every 3 weeks from 1/15 to 4/15 three infusions doxy every 3 weeks from 8/15 - severe rash - discontinued several infusions every week gemzar from 10/15 to 2/16 tanked white count and increased acities - discontinued avastin/taxol every 3 weeks from 3/16 to present
Six rounds in 2008 and 12 rounds in 2015 got through these not too bad in the big scheme of things.
6 treatments chemotherapy (carbo/placing/Avastin
Fu5 fannypack4 months 5 months mainvein all side effects
Avastin drip. 12/2009 - 2/2010. Nausea. Sidenote - everyday I'd go to a juice cafe where they had wheat grass juice. When I went for my last treatment, nurse told me my blood counts throughout treatment were spot on... It's worth researching as has many benefits. Please check with your doc as told it may not be appropriate for some during their treatment.
First chemo was on Friday 9/15/17. 3 chemo infusions over 8 hours. To be done every 3 weeks. Next scheduled 10/6/17. Have had no nausea or vomiting. Saturday night, severe pressure in rectum, vaginal area and lower pelvic region. Contacted physician due to pain and that no amount of medicine was subsiding pain. Was advised that it seems as if the chemo is working. The pressure could be due to the necrotic tissue from the cancer itself is moving, liquid retention, or inflammation from the chemo. He reassured me that pain and pressure should go away within a few days. Was instructed to take higher dose of percocet. The higher dose of pain meds has done its due diligence, but knocks me out too. It is now three days later and pain and pressure has become more bearable, and treatable with 800mg motrin. Feeling extremely tired, which is very odd being that I am very active. Powering through, I will win this battle.
Beginning in April I had three treatments with Taxol and carbo platinum as well as Avastin. Joint pain was rough but gone after a week or so. I've mostly been easily tired out. My CA125 went up so I had another PETCT that showed an increase in the cancer I am now getting Doxil every four weeks and Avastin every two weeks. Side effects have been relatively mild - just tired a lot.
I was completely fine up until chemo #5. All of them are 52 hours, I go home with the pump. Chemo# 5 put me down. Fatigue, mouth sores, numbness in toes, extreme sensitivity to cold, loss of appetite.

Dasatinib (Sprycel) Chemotherapy Chemotherapies

What Dasatinib (Sprycel) Chemotherapy Cancer Survivors said about their Chemotherapies.

An unpleasant mix of fatigue, diarrhea, headaches, water retention, muscle and bone pain.

Onivyde (Irinotecan Liposome) Chemotherapy Chemotherapies

What Onivyde (Irinotecan Liposome) Chemotherapy Cancer Survivors said about their Chemotherapies.

Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.

Docetaxel (Taxotere) Chemotherapy Chemotherapies

What Docetaxel (Taxotere) Chemotherapy Cancer Survivors said about their Chemotherapies.

Hair loss, nails, hand and feet discoloration, constipation that resulted in an anal fissure that won't heal, bone pain, depression and anxiety

Uncategorized Chemotherapy Chemotherapies

What Uncategorized Chemotherapy Cancer Survivors said about their Chemotherapies.

1/7/2014 and every 14 days thereafter - Nausea, jaw pain, loss of taste, hair loss, fatigue 6/10/2014 - chemo complete (6 cycles ABVD)
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