What are Chemotherapies? List from Cancer Survivors
The below is a list that has been posted by the bloggers in this cancer community. There are 7616 cancer fighters that are members here. This is what they said, not what the doctors or nurses will tell you.
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Adriamycin (Doxorubicin) Chemotherapy Chemotherapies
What Adriamycin (Doxorubicin) Chemotherapy Cancer Survivors said about their Chemotherapies.
Adriamycin and cytoxin. 11/03 so sick with vomiting till meds were figured out. Lost 50 lbs.
Taxol 1/04. Sick
Rituxan 5/13 no effects used for platelet issues
Taxol 5/16 with experimental drug
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
ABVD, started Feb. 13, 2009.
RCHOPx6 started on 2/21/14
Some nausa and loss of appetite shortly after infusion,
Some numbness in fingers after 4th infusion.
Taste buds don't work for a few days after infusion
Chemotherapy 4 X AC - side effects - extreme nausea, hair loss, fatigue.
Neulasta - bone pain.
Chemotherapy 4 X Taxol - Peripheral neuropathy, nausea, bone pain, loss of balance, extreme fatigue, hair loss, low blood platelet count.
NOW ON ABRAXANE AND AVASTIN CHEMO
SIDE EFFECTS WEAKNESS, FATIGUE, PERIPHERAL NEUROPATHY , NAILS PEELING OFF FINGERS, NOSE BLEEDS - ALL SOUND BAD BUT ARE TOLERABLE
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September
2nd Irinotecan and Taxane
Current Fol Fox 4 + Avastin
R-Chop--6 cycles total..completed 5/18,6/8 and 6/24/2011,7/15/11 8/8/11 and 8/25/11. side effects: nausea, bone pain, headaches, ear pain(probably from neulasta/neupogen),some fatigue, severe heartburn/epigastic discomfort, mood changes, r ice , beam, imbruvica
4 dose dense a/c for 8 weeks then paclitaxol for 12 weeks. which ended on 11 sept 08. Jan.09 12 weeks of radiation.
Started AC CHEMO on 30/11/2018. Was petrified of chemo! Main issue for me with AC is awful reflux, fatigue and just feeling like I have the worst hangover ever ( this only lasts about 3 days, from day 5-8).
Adriamycin/Cytoxan/Taxotere P.O.
1st Treatment 10/16/06
on 2nd round of AC, bald and trying to hold onto willpower. I get pretty sickly the 3rd day after cheno, 1/6/12 3rd treatment
RCHOP Feb. 3 2018 Hair loss, numbness, fatigue, body pain 7-10days after chemo, lost appetite, insomnia.
i cannot sleep..i cannot eat..i do vomiting
1st Chemo -Rituxan 6/12/13, CHO 6/13/13 with prednisone daily x 5 days, 6/14/13 Neulasta. Foods tasted sweet and had a slight headache but I did good until 5th day and I decreased my antiemetics and had nausea/vomiting and had to get IV fluids. I had some swelling in feet & hands. I worked several days but on the 7th day after neulasta I had back pain and had to take pain pills and a muscle relaxer, then I took Claritin and it did help. I still think I did good for my first chemo. 2nd Chemo- July 3 R-CHOP, July 4- Neulasta. I had swelling the first night in hands & feet. I feel weaker with this one and I'm having breathlessness. I called doctor and had labs but results were okay for chemo. I haven't worked after this one, yet.
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
I had my 4 cycles of chemotherapy a month after my surgery and had the neupogen injection.
Four months of dose-dense chemotherapy along with a shot of Neulasta after each session.
R-Chop - started on 11/19/12, day one was just tired, days 2-4 was aches, awful taste in my mouth, fatigue, constipation. day 5 was pain everywhere, especially in jaws and stomach. Slowly getting better on days 6-14.
Chemo ABVD for 6 months. Treatment every other week.
4-11-16 first chemo. Tired, constipation, weak knees-falling on steps
4-28-16 second chemo. Tired, extreme fatigue, hair loss started, bad headaches, back of neck pain, blurred vision in one eye, hot feeling inside.
26 weeks of chemo. 1X every other week for 8 weeks. Then weekly for 12 weeks. Continued with Herceptin drug Trail for 13 months, 1x every three weeks. Nausea to most foods and smells like coffee or strong perfumes. Wanted hot or cold things to eat....flu like symptoms showed up day 3-5 after chemo. No nuropothy! Did not throw up at all. Slept more days 2-3...weight loss but only a few lbs first 9 weeks then started to gain. Have gained 15 lbs since chemo ended due to hormone blockers I am on.
Perjeta, Herceptin & Taxol (4 rounds over 12 weeks)to start off with then after mastectomy & reconstruction Adriamycin & Cytoxan (4 rounds over 8 weeks)
1991 April to June MAKOP B, 12 months treatment plan administered weekly over 12 weeks, ulcers, nausea, tiredness, loss of nerve sensations in extremities, severe constipation, hair loss (lol)
Started chemo in May 2009, got a port so my viens are still good. Adriamycin: fatigue, hair losse, nausea, constipation. Taxol: PAIN, fatigue, chemo brain, PAIN.
Cyclophosphamide (Cytoxan) Chemotherapy Chemotherapies
What Cyclophosphamide (Cytoxan) Chemotherapy Cancer Survivors said about their Chemotherapies.
NOW ON ABRAXANE AND AVASTIN CHEMO
SIDE EFFECTS WEAKNESS, FATIGUE, PERIPHERAL NEUROPATHY , NAILS PEELING OFF FINGERS, NOSE BLEEDS - ALL SOUND BAD BUT ARE TOLERABLE
started chemo end of may and finished it july 15th,had 4 altogether,side effects were severe bone and muscle pain ans sickness
Taxotere and Cytoxan - Four Treatments - 2 down 2 to go 10/24/11
Herceptin - 1 Year
Chemotherapy 4 X AC - side effects - extreme nausea, hair loss, fatigue.
Neulasta - bone pain.
Chemotherapy 4 X Taxol - Peripheral neuropathy, nausea, bone pain, loss of balance, extreme fatigue, hair loss, low blood platelet count.
Chop 2002
Cop with Rituxan 2008.
Hair loss, numbness (not bad this time), fatigue, insomnia from Prednosone.
Hair loss
Fatigue
mouth thrush
low blood counts
infection/ fever
Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss
I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes.
I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite.
I started Tykerb in Feb 2009.
I will continue with Herceptin for at least 7 more months after surgery.
Currenly going through Ewings Sarcoma protocol for Chemotherapy. 14 total cycles.
R-Chop--6 cycles total..completed 5/18,6/8 and 6/24/2011,7/15/11 8/8/11 and 8/25/11. side effects: nausea, bone pain, headaches, ear pain(probably from neulasta/neupogen),some fatigue, severe heartburn/epigastic discomfort, mood changes, r ice , beam, imbruvica
A/c( I am not good with names and the one would not uncheck above) started 4/10/2014 I lost my hair the day of the second treatment. Felt pretty bad but was able to work. Got pulmonary embolisms in June (I hope to find out soon that they are gone) by my 3rd A/c the lump was no longer able to be felt. By the 4th it was gone. started taxol in June (blurry) after 2 treatments the first infusion took 11 hours the second 8 hours and that was all I could stand. The side effects were extreme pain, nausea and sensitive to light and sound .I opted out the rest and went straight to surgery!
RCHOP, 5/9/2019. back pain, lethargy, nausea
1st treatment, August 23rd, 2011...which is tomorrow, so I don't know what side effects I'm going to have.
ABVD for 6 cycles (12 treatments). Was quite well tolerated, tired for a few days after, hair loss, mild nausea but no vomiting, changes in bowel motions, mild rash on feet and arms, aching veins.
MADEC (methotrexate, cytosine, dex, etoposide, cyclophosphamide) for 2 cycles, one week of chemo in hospital, 2 weeks to recover then repeat. Fatigue, mild nausea, hair loss.
BEAM (carmustine, etoposide, cytosine, melphalan) prior to stem cell transplant. Have only just started this today, had carmustine and so far all good but I know this will change.
Perjeta, Herceptin & Taxol (4 rounds over 12 weeks)to start off with then after mastectomy & reconstruction Adriamycin & Cytoxan (4 rounds over 8 weeks)
RCHOP
Chemotherapy started in September 2011 and continued every three weeks either daily for a week, or a single day dose of VAC - crappy crappy side effects, where do I start......numb finger tips, constipation, hair loss, loss of taste buds, thrush in mouth, lack of concentration, sooooo exhausted after each dose and weeks later. It is very true that the chemo is so much harder than the cancer to deal with.
Many different times beginning approx 1 year after spleen removal
Initial treatmeent: ABVD/MOPP (8/92-12/92). I received 6 cycles with complete response. The chemo was relatively well-tolerated.
Salvage treatment: DECAL (Dexamethasone, Etoposide, Cisplatin, Ara-C, L-Asparaginase) 9/92-12/92. One brutal regimen! Cisplatin was the worst. Three cycles with complete response followed by stem cell transplant.
Rituximab cyclophosphamide vincristine Prednisolene every 3 weeks started 7th August 2012 x8 sessions then 2 years Rituximab control. So far, the only side affect is fatigue , normally towards the end of the day and the day after chemo. Hair still with me. Making sure I don't get an infection of any kind.
First Chemo 9-8-2008. Side Effects - Pain, joint and bone pain, can't taste anything, headaches, bodyaches and my skin hurts and weight gain from the steroids.
Biweekly 4 A/C - from June 11th 2018 until July 2018 - Fatigue, dry mouth, Hair loss, doing quite well thank god
21 weekly Rounds of Taxol scheduled from August until October....
first session of chemo on the 2nd feb 2017
i was supposed to get 8 chemo's. but i only received 7 because my blood count wasn't up in time. i had "Vincristine" (iv)every week. Cyclophosphamide(iv)every 6-8 weeks. Cisplatin (iv), every other chemo, and Lomustine (pill) every chemo.
R-CHOP every 3 weeks for 6 cycles
29 Jul 15, 19 Aug 15. Tumor Lysis Syndrome, hair loss
Taxol (Paclitaxel) Chemotherapy Chemotherapies
What Taxol (Paclitaxel) Chemotherapy Cancer Survivors said about their Chemotherapies.
Loss of hair and nausea
They removed all my teeth because they said the chemo and radiation would kill their roots. I went through 5 cycles of the red devil and 10 taxol. I am still on femara
1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss)
2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment.
2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course
2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course.
I have had chemo in 2004, 2009, and 2012. each chemo has been different than the one before. With my most recent round I was very nauseous and sick. Lost my hair with all of them and had muscle and bone pain. I also developed an orbital pseudotumer as a reaction to the carboplatin and had to be put on prednisone steroids. This will now be required anytime I am on carbo. It started as a twitching and watery eye almost like with allergies. The eye then swelled shut and was very painful.
Infusion #1 - 09-22-09. Severe joint pain in lower back, knees, and ankles. Intense nausea.
Infusion #2 - Intense nausea. Severe joint pain. Darkening of my fingernails. Severe headaches.
Infusion #3 and #4 - Intense nausea lasting my entire two week cycle. Headaches. Continued darkening of my nails.
Taxol infusions #1-12 - Slow physical changes to my finger and toe nails, intense nail bed pain which has been cumulative. Big drop in counts at infusion #10, nausea, fatigue.
2009 - Mitfomycin, 5FU; 2011 Xeloda & Oxaliplatin; 2013 Paclitaxel & Carboplatin; 2014 Lapatinib; 2015 Xeloda (twice with radiation)
Chemo 6/21/10, 7/12/10, 8/2/10, 8/24/10, 9/14/10 - nausea, fatigue, bone & joint pain, diarrhea, neuropathy; scheduled for 1 more round
Lost hair not much else
Chemo started 1/2. Four treatments with the last one being 3/10. Severe allergic reaction to the Taxol landed me in the hospital in February after the second treatment. Had to stop Taxol and go on adriamycin instead with fewer side effects.
Began chemotherapy in 3'06. Side effects were mouth sores, nausea and vomiting. Bone pain, neuropathy in fingers and feet. Nail beds turned black.
Perjeta, Herceptin & Taxol (4 rounds over 12 weeks)to start off with then after mastectomy & reconstruction Adriamycin & Cytoxan (4 rounds over 8 weeks)
AC and Taxol
Dose-Dense AC chemo x4 every 2 weeks, then Taxol x4 every 2 weeks Oct 2009- January 2010
Started AC on 12/12/07. That was fine.
Had a reaction to Leukine (sp) now I'm
Neupagen daily. No problems there.
I just finished 4 rounds of A/C chemo treatments. Fatigue and infection was my worst enemy. First chemo treatment, I was in the hospital with pneumonia and neutrepedic. Very sick. I can only say I am glad its over. Now I am getting a port and will start Taxol next week.
6 rounds of chemo, first one 3/9/11, last one 6/21/11. Side effects: constipation; sharp pains in legs and feet; metal taste in mouth; heavy limbs; pain in joints; jittery; loss of all body hair; eventual numbness and tingling on bottoms of feet; and a slew of other things.
Taxotere..Dec 2006-Apr2007. All the usual, numbness in fingers and toes, no taste, no appetite, constipation. The bone pain was the pits.
July 2011 started with carboplatin and taxol (7 rounds in all). Reaction to the decadron had some nausea at the beginning sol they tweaked it with emend, sore muscles and joints day 4,5,6,7 after chemo usually spent in bed. and spent
the rest of the time getting semi normal before the next round Stopped in Sept until december 2011 during which i had surgery last treatment january 20 2012
Paclitaxel (Taxol)/Carboplatin (Paraplatin)combination. 6 treatments. 21 days apart.
currently doing carbo/taxol every three weeks. Extreme fatigue, muscle aches, taste changes
4 cycles of chemotherapy ending in late August, radiation to follow depending on how the cancer responds.
One treatment so far on 3/23. Side effects for two days included exhaustion beyond sleepiness, nausea and depression. I'm so glad it only lasted 2 days! Constipation and painful bowel movements.
in process
some fatigue, chemo mouth, diarrhea, headache, vertigo, not too bad.
Chem mouth (mucositis) was the worst effect so far but Magic mouthwash helped clear it in a few days.
Cytoxan + Taxotere, 4 times every 3 weeks. Due the fact I had just come off from going through IVF, right after my surgery, my hormones were all over the place. Metallic conduit-like mouth, tired, emotional, chemo brain.
may 4 2008,nausea,and alot of hand pain
Methotrexate (Folex, Mexate, Amethopterin) Chemotherapy Chemotherapies
What Methotrexate (Folex, Mexate, Amethopterin) Chemotherapy Cancer Survivors said about their Chemotherapies.
November 16 Started cycle of RCHOP followed by methotrexate for CNS 10 days later and RCHOP 11 days after that. finished this in April 17 no major side effects nutropenia, numbness in fingers which stopped with medication, constipation. Returned to wrk in May 2017
I'm not going to tell you anything you would be shocked by here. I'm bald - and have been for two years. 98% of anything I eat upsets my stomach in some way. I wish I could sleep all the time, but I have a 5 year old little girl, a full time job and a husband so that is possible. Other than that, Cancer sucks, Chemo sucks worse, but we will all get through it, right?
6 Months starting Dec 2, 2011. 5 hours every other week. 5-FU, Oxaliplatin and leucovorin. Will bring home 5-Fu in a bag for the weekend will run through port and bag removed on Mondays
finished with induction therapy, now gonna begin with consolidation.
methotrexate injections every other day via injection
Round one: 7 days of continuous chemo.
Round two: 5 days of 2 times a day chemo
Round three: 2 days of 2 times a day chemo
Followed by 3 days of 2 times a day total body radiation.
RCHOP - 6 sessions May - October 2011
Metaxtrate - 3 sessions on my brain May - October 2011
R- ICE - 3 sessions Feb 2012
Mini Beam -2 sessions December 2012 and January 2013
R- GDP -3 sessions March - April 2012
Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet.
Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
High dose chemotherapy, March-June 2012. Side effects: Nausea, vomiting, weight loss, fatigue.
ABVD for 6 cycles (12 treatments). Was quite well tolerated, tired for a few days after, hair loss, mild nausea but no vomiting, changes in bowel motions, mild rash on feet and arms, aching veins.
MADEC (methotrexate, cytosine, dex, etoposide, cyclophosphamide) for 2 cycles, one week of chemo in hospital, 2 weeks to recover then repeat. Fatigue, mild nausea, hair loss.
BEAM (carmustine, etoposide, cytosine, melphalan) prior to stem cell transplant. Have only just started this today, had carmustine and so far all good but I know this will change.
Nausea, fatigue/sleepiness, "Chemo brain" (inability to concentrate), dry skin, no nail growth, hair loss.
January - May as of now
Vomiting, hair loss, fatigue, mouth sores, reduced immune function.
Every week on Day 1 & 2 and Day 8.
6 treatments from March 3, 1994 to June 29, 1994. Started with Taxol Study. Received high-dose Cytoxan 3980 mg and Adriamycin 74.6 mg for 2 cycles. Except for the 1st and the last, blood transfusions were required after every treatment due to low hemoglobin. I developed a blood clot in my right arm shortly after the first blood transfusion in April and had to be hospitalized and put on coumadin for 3 months. Had to be taken off Taxol Study because I could not take high-dose Cytoxan/Adriamycin and Coumadin. I was given Cytoxan 995 mg, 5-FU 995 mg and Adriamycin 99.5 mg for the next 4 treatments. The Adriamycin damaged my heart muscle. Other side effects were nausea, some vomiting, sores in mouth, diarrhea, heartburn, fatigue and complete loss of all hair.
6 treatments from January 20, 2006, to June 2, 2006. I was given a CMF combination of 1200 mg of Cytoxan (Cyclophosphamide), 80 mg of Methotrexate and 1200 mg of Fluorouracil (5-FU). This bout with chemo was much easier than the first. I also had a blood clot in my lung in February, 2006, and was hospitalized for 7 days and put on coumadin for 18 months. Other side effects were minor nausea, fatigue, sore mouth, minor diarrhea and only thinning of my hair. I don't know which one but one of the chemo drugs damaged my right eye and I am still having problems with it.
The worst thing to happen was the death of my husband and my boston terrier dog in May during this bout of chemo.
I've taken chemo for 3 years now, many kinds of chemo, my "favorite" is Xeloda.
I had 5fu, Methotrexate and Cytoxan. I had the 5fu and Methotrexate in an IV push the first and second Tuesday of each month. The third week I took Cytoxan pills and rested the fouth week. This was for a total of six months.
Started induction chemo within the first week of November. Integrating it with holistic therapies
Doxorubicin
Cisplation
Methotrexate
Ifosfomide
Etoposide
I recieved Chemo in 2004-2006 with my first diagnosis of ALL. I relasped in June 2011 and started chemo on June 24-July 18. I will continue chemo until my Bone Marrow Transplant.
I don't remember all of them, but cytotoxin was one of them
started Feb. 26, 2010 I was admitted to hospital every 3 weeks for a total of 6 rounds of treatment - Cycles A and B.
Hyper CVAD Protocol 6/1/2015-2/7/2016 including spinal chemo X 4
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.
lots of dates,
spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea
vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints.
mercaptiprine, is every day, that just gives her a weird rash.
methotrexate makes her sleepy
Fluorouracil (5-FU) Chemotherapy Chemotherapies
What Fluorouracil (5-FU) Chemotherapy Cancer Survivors said about their Chemotherapies.
started chemo on 12/11/07
clinical trial with avastin,erbitux,oxaliplatin,lecovorin,5FU..now irenotican
Very fortunate to have had fairly mild chemo effects--mostly fatigue, some mouth sores etc. but not much nausea.
Only needed for Esophageal Cancer. POST operative only. 6 weeks of once a week chemotherapy (Mondays only) - Cisplatin and 5FU.
Side effects were minimal. Did NOT lose hair or get nauseated. Metallic taste in the mouth.
Dates: March and April of 2013
12/7-10. Not too sick alot of mouth sores and counts were drastically low hospitalized 12/15 with new oncologist
side effects; weakness, fatigue, occasional nausea.
Blood work and chest xray September 11, 2007
Bone scan September 17, 2007
Port installed in right chest area September 18, 2007.
MUGA scan September 19, 2007
First Chemo treatment September 20, 2007
Neulasta shot September 21, 2007
Headaches and blurred vision
Hospitalized September 25, 2007
Found blood clot in the jugular vein
Started on lovenox and warfarin
Hair fell out in huge clumps 2nd week after first chemo
Second Chemo treatment October 11, 2007
Tiredness, constipation, nausea
Changed nausea prescriptions twice
Third Chemo treatment November 1, 2007
Potassium too low-put on prescription supplement
Nose bleeds and bruising from warfarin, not chemo
2nd MUGA scan scheduled for November 26,2007
4th Chemo scheduled for November 29th
Grade 4 mucousitis. Hospitalized for 8 days
june 19 through end of nov 19 had chemo every two weeks, mouth sores, metal taste in mouth, hands feet peeled, nausea, severe intolerance to anything cold or hot eating or touching....everything had to be room temp.
Started June 23, 2008. Oxaluplapin, Leucovorin and Flourouracil. Side effects are extreme weakness, lack of appetite, many foods don't taste good, can't touch, eat or drink anything cold--needles & pins in fingertips & toes, and throat closes up. Needles & pins, needles & pins,
if I drink or eat anything cold, MY breathing troubles begin!! smile
Started Chemo 3/19/12 - completed 4/26/12 with mininal side effects.
First week of treatment was dual with radiation. Received IV mitomycin drip for 1 hour with 5 day 24 hour power port 5fu
5th week same treatment. First treatment: nausea and severe mucositis limiting food intake. Second treatment wiped out wbc to .29 hospitalized with swollen abdomen and blocked bowel with severe abdominal pain, loss 22 lbs went down to 87lbs.
Started July 18th to continue until August 29th, 2016
1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
PICC line put in 10/25/2010 intital large dose of Mitomycin, weekly infusion of FU5, disconnected every Friday, then started back on Monday 5 1/2 weeks. By 3rd week, severe stomach pains(lasted 1 week) diarrhea, no appetite, weakness , because of blood count did not take scheduled last dose of Mitomycin
3 sessions on Folferinox in September and October 2019. Scan on 17 October showed spread to liver (spots) and tumour growth. Folferinox side effects were fatigue, pain and breathlessness.
1st Mitomycin on Nov 18, 2013. 1st 5FU Nov 18 - Nov 22, 2013.
2nd Mitomycin on Dec 16, 2013. 2nd 5FU Dec 16 - Dec 20, 2013.
Similar side effects both times: fatigue, mouth sores, gum bleeding, cramps, body pain, nausea, some vomiting, decrease white and red blood cells, some hair shedding after treatments; but much hair shedding suddenly began again two months later (not thyroid).
Nausea, loss of appetite, chemo brain.
start chemo on Jan 12 and then again on Feb 9th
FOLFOX 8 treatments split into two rounds - one round before radiation and the other round post radiation Feb 3 - July 18, 2011
Neuropathy, hair thinning, blisters on fingers and feet, diarrhea, constipation, nausea,
began Nov17 for 96 hours and again on Dec 15 for 96 hours absolute neutrophil got down to .05 on Nov 27 and spent 4 days in isolation in hospital some hair loss and fatigue
Oxalipilatin/5FU/Leucovorin/Avastin Feb 2011- Aug 2011 with use of pump at home. Now on 5FU/Leucovorin/Avastin weekly. Side effects peripheral neuropathy, vomiting, behavioral changes
Two rounds of chemotherapy in December '09 and January '10. Received Mytomycin at the onc office and received 5-FU using a pump on a picc line for 96 hours each round.
Side effects: nausea, fatigue, loss of appetite/weight loss, some hair loss, and some vomitting during and following the second round of chemo.
5fu from 11/8/16 until 1/5/17. Five hour infusion then wore a pump home for 48 hours. Was supposed to do 8 cycles but only got to 4 when my white cell count dropped and we had to stop. The side effects of this treatment are horrendous. Pain, nausea/vomiting, fatigue, neuropathy in hands and feet, hair loss, cold sensitivity, shaky hands and lips, constipation, night sweats, mouth sores.
Commencing Chemo 28th April
Pill form. Xeloda, 1800mil daily.
Epirubicin Chemotherapy Chemotherapies
What Epirubicin Chemotherapy Cancer Survivors said about their Chemotherapies.
3-8-2013 To 11-5-13 chemo. I be off balance, I throw up, lost hair, bones ache, hot flashes all side effects.
FEC and taxotere. Three treatments of each starting 2/11
Starting on 18th April, 2011
1st and 4th week of Radiotherapy treatment, chemotherapy was also performed. 24 x 5 delivery of 5FU with a Cisplatin infusion on second day of each of these weeks.
Side effects included a 'Chemo crash' both weeks I had the treatment - second week worse than the first (required blood transfusions).
Blood work and chest xray September 11, 2007
Bone scan September 17, 2007
Port installed in right chest area September 18, 2007.
MUGA scan September 19, 2007
First Chemo treatment September 20, 2007
Neulasta shot September 21, 2007
Headaches and blurred vision
Hospitalized September 25, 2007
Found blood clot in the jugular vein
Started on lovenox and warfarin
Hair fell out in huge clumps 2nd week after first chemo
Second Chemo treatment October 11, 2007
Tiredness, constipation, nausea
Changed nausea prescriptions twice
Third Chemo treatment November 1, 2007
Potassium too low-put on prescription supplement
Nose bleeds and bruising from warfarin, not chemo
2nd MUGA scan scheduled for November 26,2007
4th Chemo scheduled for November 29th
Chop therapy for 7 months
Protocol: FEC-T (4 months/every 3 weeks)
FEC-T :Epirubicin/Fluorouracil/Cyclophosphamide cycles 1-3, then add Docetaxel for cycles 4-6
Finished chemo November 24/2010
It was called cef (which is cefuroxime, epirubicin, and cyclophosphomide). It is used only in a couple of Canadian provinces as it is very expensive.
Oral Chemo (Xeloda) - 7/07 to current weight gain, tenderness in hands and feet, fatigue, irritability, feeling full; dehydration
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.
lots of dates,
spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea
vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints.
mercaptiprine, is every day, that just gives her a weird rash.
methotrexate makes her sleepy
September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months.
May 23rd 2007 started 6 sessions 3 x F.E.C
3 X Taxotere
Ulcers in my mouth, sickness, diarrhoea,
thrush, joint pain, loss of finger and toe nails, peeling skin on hands and feet,
preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU.
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September
2nd Irinotecan and Taxane
Current Fol Fox 4 + Avastin
Cisplatin, Epirubicin, Capecitabine (Xeloda)
#1 June 12, 2017, #2 July 4, 2017
Nausea, Dry mouth, Tingly fingers, blood clot in spleen, hair loss
sickness, weakness, no appetite, lived off cereal, and jello for a week, no taste,increase in smelling sense was intense 12/24/2005 was the first treatment.
R-Chop, eight sessions
one every 3 weeks.
Side effects: nausea, loss of appetite, some muscle aches, hair loss, effected my eye sight - had to wear eyeglasses since the 4th chemo.
6 Treatments - 3 week cycle
3 - FEC
3 - Taxoteer
Sept. 7, 2006 through Dec. 21, 2006
Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse.
Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo.
Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.)
after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash
Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss
I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes.
I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite.
I started Tykerb in Feb 2009.
I will continue with Herceptin for at least 7 more months after surgery.
3/15/14 Began 10 session clinical trial at Memorial Sloan Kettering. Chemo iv (cisplatin and epirubicin + trial drug/placebo) every 3 weeks. 2000mg Xeloda pills daily. IV chemo is followed by two days of dextametazone (steroid pills) which give me a boost. Hair loss, dry hands - currently trying to prevent them from cracking, some fatigue. Trying to avoid pain meds because that seems to be the cause of constipation/discomfort.
Sep-feb--The oncologist said it would be " hard going"--that would be one word for it.
took Docetaxol (Taxotere) after FEC - finished chemo July 22
Gemcitabine (Gemzar) Chemotherapy Chemotherapies
What Gemcitabine (Gemzar) Chemotherapy Cancer Survivors said about their Chemotherapies.
Started Chemo - Gemzar & Xeloda - in November 2016. 6 cycles planned. Side effects pretty mild - some nausea and tiredness
I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
4 rounds (8 sessions) as of 7/13/19; serious weight loss and fatigue
On my third treatment and then will have a week off
Gemzar, Taxotere and Xeloda
1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
6/2011 tiredness, nausea, dizziness
Gemazar.... So far, nausea and weakness
Initially 2 rounds of Folfirinox, that increased liver enzymes and CA-19-9
First treatment was June 8th 7 hours between the other meds olus the chemo..Cisplatin and Gemzar.. Felt ok the day after but then started feeling very sick, achy, headache, ringing in ears, coulnt eat, weak, dizzy,tired,shaky all over I only felt well enough to go to the doctor on the 7th to have my blood drawn..saw dr and he said he would up my steroids next time and that should help
second treatment was on the 8th, Just the gemzar.. Really tired and achy. Dizzy and weak. Had my shot of Lewnasta on Monday.
Still fell tired and bone pain
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.
I do not remember all of the names. The chemo was a combination of four different chemo drugs. It did not work. My father experienced nausea and could not taste anything so lost his appetite. He also was very sensitive to temperature.
We are still waiting to start a trial chemotherapy drug! Pray, pray, pray!
On my second round of 2 sessions each which are a week apart
Started 12.1t.16
Abraxane and Genzar
given up on dates the first time on chemo was 7 months and this time has been 9 months
Chemo #1 on 4/02/10: I was more tired then usual and had a "blah" moment after going outside for a few minutes.
Started with nine drops of Taxol and had an allergic reaction that caused me to stop breathing. Then switched to Gemzar and Carboplatin. Had some nausea but started taking Emend....VERY tired.
intraperitoneal taxol and cisplatin, 6 - 10/06 (heinous, too long to describe); HIPeC something-or-other intraoperatively 10/07 (really ghastly); IV carboplatin and gemcytabine, 2 - 5/08 (some hair loss, fatigue); sunitinib clinical trial 2/09 (painful hands and feet, fatigue); doxil, 3/09 (fatigue); taxol and carboplatin 5 - 9/09 (hair loss, fatigue, neuropathy, tinnitus); Avastin 10/09 to present (runny nose)
<b>February 2009:</b> CA125 level was around 3500. She began treatment with Taxol/Carbo with Avastin. Within two weeks, she lost all of her gorgeous red hair. Energy level dropped significantly.
She continued having "maintenance" chemo.
<b>June 2009:</b> CA125 dropped to 32, and then to 16 later that month. Oncologist decided to stop chemo- as there was no sign of cancer!
<b>March 2010:</b> Having chest pain/shortness of breath. CT scan showed fluid in her lungs. Testing after thoracentesis revealed cancerous cells in the fluid.
CA125 was back up to 300.
It is now referred to as "RECURRENT CANCER"
She began chemo again: Cisplatin and Gemzar.
Cisplatin was causing tinnitus. Oncologist decided to discontinue to avoid permanent hearing damage.
The Gemzar would usually burn during infusion. Side effects: headaches, intense nausea and often uncontrollable vomiting. Drastic decrease in appetite (and weight: about 70lbs)
Last time it was checked, her CA12 was hovering around 86.
I'm guessing it's currently off the charts.
Many different times beginning approx 1 year after spleen removal
Gemzar started Jan 2014. Once a week for three weeks then one week off for six rounds; liver function elevated and dehydration, fatigue , vision affected .
ABVD- nausea, fatigue, wooziness, thinning
hair
ICE- nausea, fatigue, wooziness, total hair
loss, bleeding gums and mouth sores
GND- some fatigue, mouth sores
Extreme fatigue, delerium
5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared.
Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half.
Irinotecan (Campto) Chemotherapy Chemotherapies
What Irinotecan (Campto) Chemotherapy Cancer Survivors said about their Chemotherapies.
March 22(3 types of chemo) i feel it lessened his quality of life, but for my dad he needed to fight back!!!
11/06-oxaliplain,xeloda....tingling and cold sensitivity in hands and feet, fatigue
11/07-irinotecan, avastin, 5FU, diahrrea, fatigue, burning and cramping in abdomen started erbitux january 2010, adding irinotecan this week, sept 20, 2010...post-note that irinotecan caused so much diahrrhea I became too hydrated and wound up in hospital. i had a blockage too, but just sayin'! ;)
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
Mar 4 _ Sept 15 2015(Folfirinox)Nausea, weakness, vomiting, low potassium, low platelets (despair)
Chop therapy for 7 months
9/07 for 5 months every 2-3 weeks.Fulfox, Five FU, evastin, oxalyplatin -Side affects were mild and temporary such has hair loss (complete on first round) mild neuropathy, Hand and food syndrome. Slight diarrhea but NO nasuea. Loss of appetite, loss of taste.
06/08 Second round of chemo (Irinotecan) more nausea but virtually no diarrhea. neuropathy has returned slightly. I can still taste things after 2 rounds of chemo this time.
2 cycles of 5-FU, FOLFOX for tumor, R-CHOP for B-Cell and now 6 cycles of FOL-FIRI
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September
2nd Irinotecan and Taxane
Current Fol Fox 4 + Avastin
Sept. 2010 to Nov. 2010 - Oxcaliplatin, 5FU, Avastin. Oxc. not working changed to Irinotecan/Avastin. till April 2011. Tumor growth in liver and lymphnodes. Itinotean/Erbitux from June 2011 till present.
3 sessions on Folferinox in September and October 2019. Scan on 17 October showed spread to liver (spots) and tumour growth. Folferinox side effects were fatigue, pain and breathlessness.
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007
Nueropathy, memory loss, balance issues, joint and muscle pain
Folfirinox Jan 2013 - Feb 2013, switched to Abraxane and Gemcitabine March 2013-current
started chemo on 12/11/07
clinical trial with avastin,erbitux,oxaliplatin,lecovorin,5FU..now irenotican
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
Nine rounds of Folfirinox treatment before surgery and more after.
Began chemo in July of '09 with camptosar, leucovrin, and 5-fu. this is over a 46 hour period. In January '10, they added avastin and zometa to the regimin and is ongoing.
Flu like symptoms and fatigue.
Bi-weekly chemo. Energy levels vary. Diarrhea, one day only usually. Keep hydrated.
6 weeks Flourcil (pills) and radiation Oct - Nov 2015
10 sessions IV chemo (avastin,
oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016
Hands and feet numness
Little nausea
Fingernails thinned
Balding
Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.)
after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash
Too many to mention-16 months in total(6,6,4) Every drug they have for colon cancer.
Alt Folfiri/Folfox 2010/Feb through 2010/June
Folfiri/Erbitux started 2011/March
Changed to Folfox/Avastin 2011/Oct
Clinical trials 2012/Sept
5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared.
Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half.
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.
Vinorelbine (Navelbine) Chemotherapy Chemotherapies
What Vinorelbine (Navelbine) Chemotherapy Cancer Survivors said about their Chemotherapies.
I begin chemotherapy on the April 8th. 4 rounds of 3 weeks each of Vinorelbine and Carboplatin. (Originally Cistoplatin but the doctor changed it cuz my ears were ringing)Worst side effects are feeling like lead and/or rubber, forgetfulness, weight gain, insomnia and aching bones, muscle and skin.
2000 - Chemotherapy
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
Chop therapy for 7 months
I've taken chemo for 3 years now, many kinds of chemo, my "favorite" is Xeloda.
Taxotere Aug 2008 - Dec 2008 (3-weekly)
Herceptin Aug 2008 - Aug 2009 and Dec 2009 - March 2011 (3-weekly)
Vinorelbine Dec 2009- May 2010 (for regional recurrence to Internal Mammary nodes - not involved the first time round)
Capecitabine (Xeloda)April 2011 - October 2011(for Liver metastasis)
Adriamycin - December 2011 - February 2012
Taxol March 2012
1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
Multiple regimens
Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
ABVD- nausea, fatigue, wooziness, thinning
hair
ICE- nausea, fatigue, wooziness, total hair
loss, bleeding gums and mouth sores
GND- some fatigue, mouth sores
Six rounds in 2008 and 12 rounds in 2015 got through these not too bad in the big scheme of things.
Cisplatin (Platinol, Platinol-AQ) Chemotherapy Chemotherapies
What Cisplatin (Platinol, Platinol-AQ) Chemotherapy Cancer Survivors said about their Chemotherapies.
Start on March 29th 2011.
Avastin-2008 and 2011, Cisplastin-2009 and 2011, and Tarceva-2011.
2013-2014: 1st chemo; Taxol, no help. 2nd chemo:Doxil, no help. 3rd and current chemo: Gemzar & Cisplatin. I also get Zometa injection every 4 weeks.
I started Chemo on June 19, 2008 and as of today 7/7/08 I have only had 1 treatment. My second treatment is this week on Wednesday, July 9, 2008. I will have 6 chemo treatments, 3 weeks apart.
The worst side effect I had was from the Nulasta shot I had the day after chemo. The bone and body aches really kicked my butt. I was fortunate and did not experience any nausea.
On day 14 I started loosing my hair. It was coming out by the handfuls!! By day 16 I couldn't stand it anymore so I buzzed it all off.
May 7, May 14, May 24. (Now scheduled for June 1, 8 and 15). Side effects are fatigue and nausea. Taking anti-nausea meds. Worst part is we can't keep enough fluids in him to flush out the toxins due to chemo. We're told this is more common in throat cancer where food and fluids are taken through a feeding tube. Starting to lose patches of hair.
nauseousness....
N&V, Fatigue, Dulled mentation 12-15-09 to 1-30-10
SECOND ROUND OF CHEMO, CISPLATIN 01-01-11 to 02-17-11
LOTS OF VOMITING
3 total - week one - week three and week five
easy to do - no issues during treatment
lost my beard and hair - so I shaved it short to look like I did it on purpose - wore a crocheted cap - head was always cold.
IP Therapy as well as Systemic Chemotherapy
Chemo was my biggest fear. Hearing so bad horror stories I was besid myself with fear. I actually have 1 more left to go and no problems except for a mild nausea about day 3 and thats it. Never really got too tired and never lost my hair. It really was like being pregnant as far physical problems with tired and nausea. It was a low dose cisplatin for 5 weeks.
Weekly infusion of Cisplatin and 5 days a week of 5FU
2 treatments of Mitomyicin and 2 4-day (24 hour pump) of 5-FU
Started 8/31/2010
Chemotherapy due to start 6 weeks after surgery, September 2016
3 cisplatin treatments, concurrent with radiation treatments
begin chemo 11/30/16
I had three rounds of chemo in three week cycles.
Week 1: 5 days of treatment (admitted in hospital)
Week 2: Recovery in hospital
Week 3: Recovery at home
I experienced low blood pressure, dehydration, nausea, fatigue and anaemia.
I still have fatigue after treatment, muscle atrophy and peripheral neuropathy.
drained tired sick feeling, loss of facial hair and back of head.
none the dr did a slice and dice SIDE AFFECTS WERE WEALINING OF HEART MUSCLES HAD A STROKE 2 YEARS LATER AND NEEDED A PACE MAKER PUT IN YES I AM THE BIONIC WOMAN HEAR ME ROAR ALSO HAVE NEROPATHY IN FEET AND LEGS
Cisplatin gave my husband ringing in ears but much better now. Had complications each time after a chemo. Was hospitalized twice for them.
11/9, 11/30, 12/21 - loss of appetite, cold, "chemo head" (loss of concentration and short term memory)
6 treatments chemotherapy (carbo/placing/Avastin
July 24,2009 first treatment taxol and carboplatin. The only problem I had was my own fault. I got sick that night because I came home and ate stewed tomatoes and chased it down with a Pepsi! Big mistake because I quickly learned that Chemo and acid DON'T mix. Treatments 2,3, bought feet itching, loss of smell and taste. Treatment 4 was not to bad slight big toe bleeds but manageable, slight problem with vision seeing bright white spaces from within my eyes. Treatment 5 I had a mouth bleed, neuropthy more consistant. Treatment 6 manageable but eyes still have the spots. Neuropthy worsens, still itching.
6 low-dose cisplatin treatments, one every Monday for 6 weeks. Felt great; actually took away the joint pain I experience from Lupus!
Carboplatin, taxol, avastin, and a PARP inhibitor for 6 rounds, then remission for about 7 months. Then more carboplatin and taxol for 3 more treatments until I became resistant, then onto the MEK/Milo trial. Failed that after 2 months, now looking into immunotherapy
Six chemotherapy treatments concurrent with radiation.
April 2011 nausea and vomiting, weight loss,neutropenia,mouth sores, hair thinning
April 2012 nausea, mouth sores, hair thinning
Carboplatin (Paraplatin) Chemotherapy Chemotherapies
What Carboplatin (Paraplatin) Chemotherapy Cancer Survivors said about their Chemotherapies.
ABVD started in December 2011-May 2012. Hair loss, nauscia, weakness. ICE July 2012-August 2012 Hair loss, nausea, weakness
Carboplatin
Paclitaxel
Bevacizumab (Avastin) headaches and cricket sounds in head
Carboplatin started 2007, however I became allergic in 2008, so had to have it changed to Gemzar and Advastin then. Been on and off of chemo since for chronic cancer outbreaks.
6 rounds of chemo, fatigue, weight loss neuropathy. Chemo brain
First chemo carbo/taxol on May 7th. so far, a bit of joint and bone pain, nothing else
6 treatments chemotherapy (carbo/placing/Avastin
currently doing carbo/taxol every three weeks. Extreme fatigue, muscle aches, taste changes
Initial diagnosis required 1 round chemo -Carboplatin - minimal side effects
Return of cancer - 4 rounds of chemo ( EP) 21 day cycles includes five continuous days of infusion then rest. No nausea but gastric reflux with vomiting, scalp pain, metallic taste in mouth, tiredness, neutropenia
starting chemotherapy about 12/19/11. Ended chemotherapy 2/12/12
May 2015, 6 weeks. Hair loss, weight loss, nausea
Dizziness and low blood pressure
Sep-feb--The oncologist said it would be " hard going"--that would be one word for it.
Carboplatin & Taxol combination- just started 09/13/2017.
Standard protocol of 2 rounds of mitomycin & 5FU (8/13 & 9/13)
Started chemo on July 7, 2016 - May 5, 2017
Side effects - nausea, vomiting, mouth sores
Chemo consisted of 6 total treatments - 1 treatment every 21 days of a variety of steroids, anti-nausia meds and anti allergy meds along with 300mg of Taxal & 580mg of Carboplatin.
Treatments started on Oct 2, 2014 and then every 21 days from there with the exception of late Dec. which was 25 days because the 21st day fell on Christmas day. Last Treatment was Jan. 20, 2015.
None other than a little fatigue.
Carbo/Taxol every 3 weeks, 6 cycles
Carboplatin, taxol, avastin, and a PARP inhibitor for 6 rounds, then remission for about 7 months. Then more carboplatin and taxol for 3 more treatments until I became resistant, then onto the MEK/Milo trial. Failed that after 2 months, now looking into immunotherapy
I started chemo on Dec 3, 2012. I need to complete 6 treatments of Carbo and Taxol. My treatements or given over a period of 3 weeks. The first week I receive the full carbo dose and 1/3 of the taxol. The next two weeks I recieve the remaining taxol. I am having trouble keeping my WBC up with the weekly treatments. I had to have Neupogen shots to help give them a boost.
6 carbo/taxol and 4 cisplatnin in 2013/4. 4 carbo/taxol in 2016/17.
I started the chemo the frist week in July 2010. I had a reaction to the first chemo which was Carboplatin and taxol so they changed it to Cisplatin and taxotere. They loaded me up on steroids and during the next treatment i had yet another reaction this one only worse than the first. So as a last ditch effort they changed again to cetuximab and honestly i cant remember what the second one they gave me with this was. I was ok with this drug but the side effects were aweful! I broke out all over my face with horrible acne and it made the radiation stronger which made the raidation burns worse.
June 4th 2016, every 3 weeks for 6 sessions. Maybe more after surgery. Chemo combo tch
3-8-2013 To 11-5-13 chemo. I be off balance, I throw up, lost hair, bones ache, hot flashes all side effects.
CarboPlatin & taxol w/ neuplasta at 3 wk intervals from Aug to Oct
Severe constant leg pains, neuropathy in feet and hands, high heart rate. Unable to stand for more than 10 minutes, stumbling, dropping things regularly
Treatment changing to CarboPlatin & doxil w/ neuplasta.
Doxorubicin, Leomycin. Inblastine, Acarbazine (ABVD) Chemotherapy Chemotherapies
What Doxorubicin, Leomycin. Inblastine, Acarbazine (ABVD) Chemotherapy Cancer Survivors said about their Chemotherapies.
started ABVD March 2011
1st treatment, August 23rd, 2011...which is tomorrow, so I don't know what side effects I'm going to have.
1/7/2014 and every 14 days thereafter - Nausea, jaw pain, loss of taste, hair loss, fatigue
6/10/2014 - chemo complete (6 cycles ABVD)
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)
ABVD regimen. First session was one day after diagnosis. #1:05/20/2010, #2:06/07/2010 (delayed by neutropenia), #3:07/01/2010 (delayed by neutropenia). Side effects: Hair loss, negligible neuropathy.
CarboPlatin & taxol w/ neuplasta at 3 wk intervals from Aug to Oct
Severe constant leg pains, neuropathy in feet and hands, high heart rate. Unable to stand for more than 10 minutes, stumbling, dropping things regularly
Treatment changing to CarboPlatin & doxil w/ neuplasta.
R-CHOP 25/11/11
R C h o p. 21, Six cycles stated feb 11 last one ( hopefully )June 1st 2011.
Severe tummy gloating, gas, and pain. Heavy fatigue and nausea, constipation, sweats, hair loss, neuropathy, weight gain in trunk area. Sweats. Fevers. Period gone after first week. Dunno if gone 4 good.
Yes, My chemotherapy treatment was ABVD.
R+Chop, 1/4/2012-4/23/2012
R-CHOP; chemo as listed above plus Rituximab and Prednisone. June x1; July x2; August x1; September x2. 6 total rounds of R-CHOP. Also, had an injection of Neulasta the day after each chemo round that helped me build-up white blood cell counts and it worked well. Fortunately, they gave me a 'cocktail' of Benadryl etc, so I never got sick - thank God. Took nausea pills. Loss of appetite for days as everything tasted like you ate old pennies or nickels. The first two times that I had the Neulasta white blood cell shots I had bone pain within a week that lasted only a day or two and went away. Chemo also gave me an irriegular heartbeat, so a beta-blocker fixed that. Chemo 1-4 weren't all that bad, just long. Chemo 5 & 6 felt like I was in a fight in the middle of the night - but I was able to recover quickly. The Prednisone pills made me nasty, which I usually am not.
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
August 10th 2010 -Present
6 Cycles -12 Treatments
Beginning in April I had three treatments with Taxol and carbo platinum as well as Avastin. Joint pain was rough but gone after a week or so. I've mostly been easily tired out. My CA125 went up so I had another PETCT that showed an increase in the cancer I am now getting Doxil every four weeks and Avastin every two weeks. Side effects have been relatively mild - just tired a lot.
3/2012 Adriamycin and dacarbazine 6 cycles
12/2012- 10/2013 votrient 600mg every day.
10/2013 - present gem/tax
6 months of bs and stem cell transplant was life changing made me feel completley helpless
ABVD started in December 2011-May 2012. Hair loss, nauscia, weakness. ICE July 2012-August 2012 Hair loss, nausea, weakness
Started11/15/2012, every 21 days until 03/06/2013. Had neuropathy, vincristine stopped for 2 cycles,better, then resumed 5th cycle. Had some issues with breathing-felt like I had eaten a lot of mints, treatment postponed for a week, got chest x ray, nothing wrong. Was tired with each cycle, but trudged through. Prednisone helped. Lost taste for some foods, but never lost my appetite!
Taxotere..Dec 2006-Apr2007. All the usual, numbness in fingers and toes, no taste, no appetite, constipation. The bone pain was the pits.
ABVD chemotherapy, treatment every two weeks for six months (6 cycles). Extreme nausea and vomiting (eventually brought under control by drugs), fatigue and breathlessness, stomach pain and bloating, complete loss of hair, tooth pain, mouth sores, extreme salivary gland pain, loss of some finger and toe nails, mild nose bleeds, mild constipation.
28 day cycle. Chemo on days 1 and 15. 6 cycles or 12 treatments
Stopping R-Chop Chemo on December 5th 2012. Cancer growing.
Started a new Chemo Regimen on Dec 10th 2012.B-R( Rituximab and Bendamustine)Stopped Rituximab and Bendamustine regimen on February 18th,2013 due to developing PML in the brain.
Started back on ( Rituximab and Bendamustine) PML cleared.
Started in Nov 2013 on Tremsirolimus
11-19 chemo pellets not sure of the name, nausea,
ABVD Six months
8/23/12 - Hot-flash (minor) and a little fatigue
8/26/12 - Mouth sores.
Tarceva (Erlotinib) Chemotherapy Chemotherapies
What Tarceva (Erlotinib) Chemotherapy Cancer Survivors said about their Chemotherapies.
January-April 2009
3-8-2013 To 11-5-13 chemo. I be off balance, I throw up, lost hair, bones ache, hot flashes all side effects.
Fatigue, acne, diarrhea, numbness and pain in fingers and feet, no appetite, foggy-brained, rheumatism, sensitive to sunlight, no taste, fungus in mouth and lung, partial loss of hair
Avastin-2008 and 2011, Cisplastin-2009 and 2011, and Tarceva-2011.
I've been in chemo since june 2011. I was taking 3 different kinds every three weeks but now have gone to just one kind. the initial treatments caused heartburn, hair loss, vision loss, hearing loss, skin discoloration, skin burns, nausea and vomiting, dizzyness, hot flashes, chemo induced asthma, chemo induced menopause, bone pain, I was not able to taste foods that were not sweet, there are many more but I feel like I"m whining...lol
One a day pill forever (took 150 mg for 2 years). Down to 100 mg due to vertigo, fatigue. Other side effects, slow/non hair growth, rash, dry skin, dry mouth
daily intake of a chemo tablet
December 2004 - Present off and on. On Avastin and Tarceva currently, but stopping to start a new chemo.
Xeloda Chemotherapy Chemotherapies
What Xeloda Chemotherapy Cancer Survivors said about their Chemotherapies.
Started today 2020
11/06-oxaliplain,xeloda....tingling and cold sensitivity in hands and feet, fatigue
11/07-irinotecan, avastin, 5FU, diahrrea, fatigue, burning and cramping in abdomen started erbitux january 2010, adding irinotecan this week, sept 20, 2010...post-note that irinotecan caused so much diahrrhea I became too hydrated and wound up in hospital. i had a blockage too, but just sayin'! ;)
2 cycles of 5-FU, FOLFOX for tumor, R-CHOP for B-Cell and now 6 cycles of FOL-FIRI
Chemo once a week from 4/2/10 to 6/01/10: Was tired the next day with small "blah" moments.
folofox: 3/14-9/14, starting again 1/15
Taxotere Aug 2008 - Dec 2008 (3-weekly)
Herceptin Aug 2008 - Aug 2009 and Dec 2009 - March 2011 (3-weekly)
Vinorelbine Dec 2009- May 2010 (for regional recurrence to Internal Mammary nodes - not involved the first time round)
Capecitabine (Xeloda)April 2011 - October 2011(for Liver metastasis)
Adriamycin - December 2011 - February 2012
Taxol March 2012
Capecitabine, Tablet form chemotherapy, two tablets a day, three week on, one week off. Side Effects, Sickness, Fatigue, Blotchy skin.
4/4/2011 - FOLFOX6 with Avastin. Some fatigue, peripheral neuropathy, cold sensitivity. Discontinued after 3 rounds
7/1/2011 - Switched to Xeloda. Stopped first round after 9 days due to much bowel discomfort.
Mitomicyn push on day 1 and day 29. Xeloda 5 days a week for 7 weeks. 3 pills in AM and 3 pills in the PM.
I had 2 chemotherapy drugs. Eloxatin (oxaliplatin) which was given through my port at my Oncologist's office. I also took Xeloda which is a chemotherapy drug (pills) taken at home. I also had a wonderful Oncologist who worked well with my surgeon.
6 weeks 3000mg xeoda pre surgery. 4 month 5000mg xelota post surgery. Oxi recommended. Tried but side effects too extreme. No hair loss. Tired and weak. Low energy with uncontrolled diarrhea.
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss
6 rounds Hepatic artery infusion (oxaliplatin)avastin
3 month Jakafi (oral)
unknown trial drug
nano cisplatin and gemcitabine
started with leucovorin, oxaliplatin, avastin, folfox pump, then camptosar, erbitux, folfuri pump, currently undergoing clinical trial with Xeloda and maybe or maybe not perifosine
few side effects, I guess I've been lucky
I felt like my body was vibrating during the oral chemotherapy. I was very fortunate in that my side effects were minimal.
Mitomycin and xeloda
2009 - Mitfomycin, 5FU; 2011 Xeloda & Oxaliplatin; 2013 Paclitaxel & Carboplatin; 2014 Lapatinib; 2015 Xeloda (twice with radiation)
Cisplatin and Xeloda front 20/08/14 through to 11/11/14
Sickness at the start of cycles 1 and 2. Swelling in my legs on the start of cycle 2. Dose was reduced for cycles 3 and 4 . I did not get along with the anti sickness tablets, I tried several different ones. EMEND was usefully but I stopped taking others and found ginger to be most helpful. I seemed to experience a little of all side effects. Ulcers, hand and foot syndrome, diarrhoea sickness and constipation but they didn't last long. Oh and my head hair thinned but I did keep enough.
10/13/14 - 11/26/14 (1st Round) 12/23/14 for 5 weeks (2nd Round)
Xeloda- oral chemo, twice a day for 7 weeks, June 22-August 7, headaches, tightness in chest after physical activity, leukopenia
Intravenous- 4 months of chemo after surgery, details have yet to be determined
6 weeks Flourcil (pills) and radiation Oct - Nov 2015
10 sessions IV chemo (avastin,
oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016
Hands and feet numness
Little nausea
Fingernails thinned
Balding
xeloda pills for two weeks then a week off.
Started Chemotherapy on July 18,2016
Each round of chemo consists of 3 weeks. Week 1 I get an Oxaliplatin infusion, weeks 2 & 3 I take oral chemo, Xeloda. Side effects are nerve pain (thanks I already had that), hand pain, fatigue, weakness, memory loss, confusion at times. Bla Bla Bla
Mar 4 _ Sept 15 2015(Folfirinox)Nausea, weakness, vomiting, low potassium, low platelets (despair)
Gemzar, Taxotere and Xeloda
Etoposide (VePesid) Chemotherapy Chemotherapies
What Etoposide (VePesid) Chemotherapy Cancer Survivors said about their Chemotherapies.
cistplatin, bleomyocin, etopiside,
numbness in hands and feet nausea and weakness major chemo brain
Rituximab, Cyclophosphamide, Vincristine, Prednisone on 3 week cycles.
Started 1st September 2010.
Side effects - constipation, mild nausea, night sweats, tiredness, mood swings.
Chemotherapy lasted from July 2010 - August 2011 His chemotherapy consisted of Vincristine, Doxorubicin, Cyclophosphamide, Ifosfamide, and Etoposide. Some vomiting and lots of nausea.
AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
6 cycles of R-EPOCH
Dose adjusted R-EPOCH. Six rounds. 21 day cycles. Chemo administered as an inpatient. Started chemo December 19, 2011. Finished April 26, 2012.
starting the 2nd week of August 2013
IE and VAC treatment every 3 weeks. Lost weight and all my hair/ body hair
Chemotherapy started on 20th Dec 2008 and I chose to stop in June 2009 (I was meant to finish in Nov 2009, but when I found out my tumor was no longer shrinking, I physically could not deal with the side effects anymore). I lost my hair, which was by far not the worst side effect! Mouth sores, lost my sense of
taste and smell. Horrendous constipation. Nauseous most of the time. Not able to eat. So completely exhausted, not even energy to stand up some days. Felt extreme cold, then major hot flushes, wake up
drenched in sweat. Eyes always sore and watery. My chemotherapy was every 3 weeks, which took 5 days in hospital to administer IV - then every month when home I would spike a massive temp & have to be rushed into hospital for blood transfusions and isolated for neutronpenia! Chemo turned me into a shell of my former self, it destroyed my spirit and had me in tears most of the time. It was a hard, hard fight.
Cisplatin & Etoposide May/18-August/18. Four rounds of treatment 3-4 weeks apart. Side effects- Hair loss, nausea, weakness & fatigue, weight loss
Rituxan/Bendamustine (Summer 2010) - very little except fatigue. R-CHOP (summer 2011) - nausea, fatigue, hair loss
Cisplatin once a week In conjunction with the radiation. Then Five series with Etoposide.
Doxorubicin
Cisplation
Methotrexate
Ifosfomide
Etoposide
Currenly going through Ewings Sarcoma protocol for Chemotherapy. 14 total cycles.
Initial diagnosis required 1 round chemo -Carboplatin - minimal side effects
Return of cancer - 4 rounds of chemo ( EP) 21 day cycles includes five continuous days of infusion then rest. No nausea but gastric reflux with vomiting, scalp pain, metallic taste in mouth, tiredness, neutropenia
ABVD started in December 2011-May 2012. Hair loss, nauscia, weakness. ICE July 2012-August 2012 Hair loss, nausea, weakness
I had three rounds of chemo in three week cycles.
Week 1: 5 days of treatment (admitted in hospital)
Week 2: Recovery in hospital
Week 3: Recovery at home
I experienced low blood pressure, dehydration, nausea, fatigue and anaemia.
I still have fatigue after treatment, muscle atrophy and peripheral neuropathy.
Induction Theraphy
Cytarabine and Doxorubicin for 8 days.
I just start my Consolidation theraphy last March 30.
Which is Doxorubicin for 1hour and vincristine(push) and cytarabine IT(so painful)
3 days chemo every 21 days. Hydration as needed. Tiredness and nausea/vomiting at times.
On April 19th 2018, I also received my first dose of chemotherapy. I don't remember much of what happened during this time except I broke out in a red rash from head to toe and ran a fever for 5 days straight. The red drug, daunorubicin, makes me extremely sick. I'm a wreck when they give it to me.
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet.
Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
Chemo Began 12/02/2013... Bleomycin-Cisplatin and Etoposide
ABVD Six months
nausea, fatigue, anxiety, depression, dizziness, vomitting
BEP chemo
Imatinib Mesylate (Gleevec) Chemotherapy Chemotherapies
What Imatinib Mesylate (Gleevec) Chemotherapy Cancer Survivors said about their Chemotherapies.
Gleevec 400 mg. daily, nausea, taking anti nausea medication
Daily 400mg Gleevec. Daily fatigue. Slow morning wake up. Memory problems they call Gleevec brain. Polyneuropathy: pain and weakness in body. I use a cane when walking outside. Diarrhea. I did just find out that I am now in remission but must stay on the Gleevec for 2 years. I am totally grateful that Gleevec exists for me and for all CML patients. Good luck to all of us!
Sorafinib (Nexavar) Chemotherapy Chemotherapies
What Sorafinib (Nexavar) Chemotherapy Cancer Survivors said about their Chemotherapies.
11-19 chemo pellets not sure of the name, nausea,
Nexavar 8/22/12 - forever, side effects all listed
Nexavar for 6 months.
Infusion therapy started 2 weeks ago and ongoing bi-weekly.
Topotecan (Hycamtin) Chemotherapy Chemotherapies
What Topotecan (Hycamtin) Chemotherapy Cancer Survivors said about their Chemotherapies.
Have had chemo continuously for 2 years
Carboplatin and Taxol, 8/11/2011. Sun-sensitive day after infusion (doesn't that sound like something you'd pay extra for at a spa?), then joint pain, peripheral neuropathy, fatigue on days three and four following chemo. Get better pain meds for next round!
RCHOP - 6 sessions May - October 2011
Metaxtrate - 3 sessions on my brain May - October 2011
R- ICE - 3 sessions Feb 2012
Mini Beam -2 sessions December 2012 and January 2013
R- GDP -3 sessions March - April 2012
Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
Loss of hair and nausea
7-2010 IP/IV chemo x 6 cycles ( cisplatin/taxol/carboplatin)
Hair loss, extreme fatigue, abdominal pain...
11-2011 ca125 on the rise. 4/6 cycles complete of topotecan. Ca125 back in its place.
BRCA 1
Minimal side effects: reasonable fatigue and well controlled nausea.
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)
Vincristine (Oncovin, Vincasar PFS) Chemotherapy Chemotherapies
What Vincristine (Oncovin, Vincasar PFS) Chemotherapy Cancer Survivors said about their Chemotherapies.
R CHOP every 3 weeks from 12/30/2013 through 4/28/2014. Began R GEMOX on 6/19/2014 every 3 weeks through 10/21/2014. Started Rituximab and Treanda on 12/3/2014 as a 2 day course. Severe neuropathy in feet and less but still suffered neuropathy in fingers during R CHOP. R GEMOX caused great discomfort with cold even before therapy was complete. One does of Rituximab and Treanda and my father has terrible oral sores. However, he has been fortunate to never have suffered any severe intestinal discomfort.
11/2012-V-RCHOP....V-Velcade (Clinical trial drug)
Side Effects: Headaches, hair loss, nausea, dehydration, neuropathy, & Fatigue
R-CHOP began 8/21/12, then 9/14,10/2, 10/23, 11/13, 12/4.
vomiting, nausea, taste & smell changes, nueropathy, hair loss, depresssion
RCHOPx6 started on 2/21/14
Some nausa and loss of appetite shortly after infusion,
Some numbness in fingers after 4th infusion.
Taste buds don't work for a few days after infusion
12/8/14 R+Chop thrush, severe upper and lower abdominal pain, pain in muscles and joints, extreme fatigue, constipation, constant coughing, aspirating fluids into lungs. Gastric Reflux activated to point of juices flying up in throat even while on Omeprazole. Neuropathy-numbness and tingling hands and feet. Tongue is numb and can't taste anything. Hair loss 14 days post chemo. 12/29/14 - Severe Upper and lower abdominal pain, constant coughing, still aspirating fluids into lungs, lost my voice, vocal chords are fire engine red, the gastric reflux is so bad they had to add two more medications to my Omeprazole, Zantac, and Carafate. I have Flu symptoms, congestion, post nasal drip, pain in muscles and bones, numbness and tingling in hands and feet. Can't taste anything. Taste buds come back after 3 weeks. 1/19/15 -R+Chop- continue to have numbness and tingling in hands and feet. I drop things and can't feel things in my fingers. 1/20/14 Neulasta injection - exactly 24 hours after injection. Really sore muscles and joint pain all over. lower abdominal pain, constipation, extreme fatigue, coughing.
R-EPOCH
1st treatment, August 23rd, 2011...which is tomorrow, so I don't know what side effects I'm going to have.
1st Chemo -Rituxan 6/12/13, CHO 6/13/13 with prednisone daily x 5 days, 6/14/13 Neulasta. Foods tasted sweet and had a slight headache but I did good until 5th day and I decreased my antiemetics and had nausea/vomiting and had to get IV fluids. I had some swelling in feet & hands. I worked several days but on the 7th day after neulasta I had back pain and had to take pain pills and a muscle relaxer, then I took Claritin and it did help. I still think I did good for my first chemo. 2nd Chemo- July 3 R-CHOP, July 4- Neulasta. I had swelling the first night in hands & feet. I feel weaker with this one and I'm having breathlessness. I called doctor and had labs but results were okay for chemo. I haven't worked after this one, yet.
First R-CHOP on 12/28/2015 which was from 7:00am to 6:00pm. Had a reaction to the Rituxan of red hives on face, so they had to stop treatment for a half hour and treat reaction before continuing with the Chemo. Feel tired and cold. After the first chemo treatment, the next 3 had almost no side effects.
ill for a couple of days after treatments 1/15 - don't know if what is going on with me now is latent effects or new cancer
R-CHOP Four cycles, three weeks apart. March 26 thru July 7 2015. Minimal thru first stage thus far.
CVP-R
So far I have fatigue and prednisone make me anxios and nervious
3/20/19 first cycle R-Chop
1991 April to June MAKOP B, 12 months treatment plan administered weekly over 12 weeks, ulcers, nausea, tiredness, loss of nerve sensations in extremities, severe constipation, hair loss (lol)
R-CHOP
R-ICE
ESHAP
Chemotherapy started in September 2011 and continued every three weeks either daily for a week, or a single day dose of VAC - crappy crappy side effects, where do I start......numb finger tips, constipation, hair loss, loss of taste buds, thrush in mouth, lack of concentration, sooooo exhausted after each dose and weeks later. It is very true that the chemo is so much harder than the cancer to deal with.
R-Chop--6 cycles total..completed 5/18,6/8 and 6/24/2011,7/15/11 8/8/11 and 8/25/11. side effects: nausea, bone pain, headaches, ear pain(probably from neulasta/neupogen),some fatigue, severe heartburn/epigastic discomfort, mood changes, r ice , beam, imbruvica
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
6 cycles of R-EPOCH
R-CHOP to start 5/24/18 - 6 treatments
4 rounds of chemotherapy "R-CHOP", every 3 weeks for 12 weeks. 1 round of radiation therapy.
Nauseated, feeling like am in a fog. I chew on ice chips prior to and during the administer of Adriamycin (red devil) to prevent mouth sores. So far it works!!!
Currenly going through Ewings Sarcoma protocol for Chemotherapy. 14 total cycles.
IE and VAC treatment every 3 weeks. Lost weight and all my hair/ body hair
R- chop
November 16 Started cycle of RCHOP followed by methotrexate for CNS 10 days later and RCHOP 11 days after that. finished this in April 17 no major side effects nutropenia, numbness in fingers which stopped with medication, constipation. Returned to wrk in May 2017
Vinblastine (Velban) Chemotherapy Chemotherapies
What Vinblastine (Velban) Chemotherapy Cancer Survivors said about their Chemotherapies.
6cycles of Chemotherapy was planned that is a six montha duration.ABVD doses was induced in every fifteen days through veinflow during the first 3 cycles and later through picc line which was less painful. Side effects of chemo were many starting with gastritis, acidity, nausea, body pain,hair loss,fatigue...but this would be fine within a week after wbc count increases to normal level.
AVD (Dr. says I don't need the B)
constipation, nausia, jaw tingle, red hot face, tired, dizziness
1991 April to June MAKOP B, 12 months treatment plan administered weekly over 12 weeks, ulcers, nausea, tiredness, loss of nerve sensations in extremities, severe constipation, hair loss (lol)
ABVD Chemo every other Tuesday 12 times.
R-CHOP 6
AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
ABVD Six months
6 rounds/12 treatments ABVD (Could only find Adriamycin and Vinblastin to list here) over the course of 6 months
(ABVD) Loss of hair, nausea, fatigue, loss of appetite, Random flushness, metallic taste in mouth, sores inside mouth
Erbitux (Cituximab) Chemotherapy Chemotherapies
What Erbitux (Cituximab) Chemotherapy Cancer Survivors said about their Chemotherapies.
Started weekly induction chemo on 9/5/13 with carboplatin and paclitaxel- soreness in mouth, slight nausea, dry skin (severe itching), acid reflux.
Started chemo-radiation on 11/4/13 using cisplatin. Received 5 weekly cisplatin treatments until wbc count was too low.
Erbitux (cetuximab), loading dose 25 Jan, caused mild temp and nausea, then no similar effects during the 8-week course of treatment. Significant skin effects (acne, painful splitting of skin on fingertips, toes, and heels). No real nausea, vomiting, or diarrhea caused by the Erbitux.
11 treatments ended about 11/07/2011
Began Erbitux November, once a week. Skipped December, resumed chemo January, I go weekly.
Start with erbitux on Nov 12th and follow with weekly doses every Monday for a total of 8 weeks
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007
Nueropathy, memory loss, balance issues, joint and muscle pain
April 9, 2012 (Only made it through 4 treatments as it made me incredibly sick.)
Begin Erbitux treatments February 13 2012 and finished on May 2nd.
Cetuximab - Brand name: Erbitux - April 1, 2010 - so far just really really tired. I was told later a rash and other stuff could happen. ( 5/1/10 - rash did appear including itching. Scalp was the worst. Lying down felt like pins sticking my head. I was told if not rash, med is not working. After they know it was working, I got med to help the rash and itch.)
3 treatments. Cisplatin at first but had terrible digestive side effects so used erbitux for last 2 treatments
Protocol #1: First of 3-21 day cycles of 5-FU, Cisplatin and Docetaxel started 10/7/13 - around the 2 or 3 week started losing hair and experiencing nausea, fatigue, weight loss, etc; Protocol #2: Eribtux and concurrent radiation for 6 weeks started ~12/10/13 - neuropathy in feetbegan a few months after treatment stopped and is still ongoing.
second form of chemo 3 more weeks, no side effects
Jan 21- vomit, headaches, fatigue, lack of sleep, sore throat, cold sores, dry mouth, weak, pain, dry skin, headaches
Erbitux, once a week for 7 weeks, starting in August. Initially, severe tongue sensitivity (at one point even water was like battery acid). For most of the treatment time, daily nausea and and severe acid reflux with occasional vomiting. As of today: chemotherapy induced neuropathy of the right leg causing the inability to lift my toes or my ankle (currently wearing a brace), but expect this to improve; whatever contribution Erbitux has towards complete dry mouth and lact of taste.
Alt Folfiri/Folfox 2010/Feb through 2010/June
Folfiri/Erbitux started 2011/March
Changed to Folfox/Avastin 2011/Oct
Clinical trials 2012/Sept
RCHOP - 6 sessions May - October 2011
Metaxtrate - 3 sessions on my brain May - October 2011
R- ICE - 3 sessions Feb 2012
Mini Beam -2 sessions December 2012 and January 2013
R- GDP -3 sessions March - April 2012
Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
Cisplatin ....nausea and fatigue
My mum went through a number of drugs to treat the cancer which kept on returning almost every single year from 2008-2011: Avasatin, Xeloda, Folfox, Folfiri, Erbitux. The side-effects are almost always similar: nausea, tiredness, vomiting, loss of appetite, mouth and throat sores. The first day after chemo she never manages to sleep well.
First treatment on 8-16-12 of FOLFOX
Avastin begins 8-30 with second treatment
Side effects: mouth soreness, sensitivity to cold
Completed May 15, 2012
12 total Erbitux sessions, once weekly, January 13 - March 31, 2011. Increasing fatigue and, ironically, insomnia following each session. From mid February through the end of treatments, somehow the Radiation/Erbitux mix seemed to spawn clusters of migraines.
Begin weekly Erbitux 9/10/13, Cisplatin/5FU 5/14, CarboTaxol 7/15
Erbitux. Loss of hair, lesions on my hands, scab around my neck, vomiting, etc.
ABVD Six months
Cytarabine (Ara-C) Chemotherapy Chemotherapies
What Cytarabine (Ara-C) Chemotherapy Cancer Survivors said about their Chemotherapies.
Induction Theraphy
Cytarabine and Doxorubicin for 8 days.
I just start my Consolidation theraphy last March 30.
Which is Doxorubicin for 1hour and vincristine(push) and cytarabine IT(so painful)
nausea, fatigue, anxiety, depression, dizziness, vomitting
AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
R-CHOP starts 8/26/10 Major Side Effects Day 1-3 Headache and Diarrhea Mouth Sores Days 3-6
TCH starts 4/23/18
Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
Started induction chemotherapy for AML on 25th September with "7+3 for 24 hours. I got Daunorubicin for 15 minutes the first 3 days while getting cytarabine the rest of the 24 hours. After the 3 days, the cytarabine continued 24 hours for the balance of the rest of the 7 days. I was medicated with multiple medications to prevent some of the known side effects such as eye damage, nausea, vomiting, and acid reflux. After the chemotherapy stopped, the Nader effects kicked in about a week later which is when the white and red blood cell counts and platelets drop. I ended up with ecoli infection in the blood and pneumonia which nessitated the administration of IV antibiotics. I also required Neupogen shots daily to help increase the production of white blood cells. Multiple platelet and blood transfusions were needed to sustain my existence. During this time I also had petechiae due the low platelet count. Stem cell or bone marrow transplant was recommended however, in my case, no full donor match could be found. Therefore my option was to have additional consolidation which consisted of hi-dac chemo (high dose chemo days 1,3,5 for 4 hours twice on those days. Typically if transplant is not an option, 4 doses of hi-dac is recommended. Due to my difficulty with the chemo, we opted for only 2 consolidation treatments. Right now I'm in remission although my white blood cell count and platelet counts are only 1/2 of the normal range. Last bone marrow biopsy (6th one) showed no Leukemia. Currently I have monthly blood work to monitor blood levels.
April 9 - 15th 2017 & April 27th - May 1st 2017.Finished 2nd round of Chemo May 1st. Experiencing hair loss, fatigue & weakness, SOB, Colitis, Diverticulitis, diarrhea, loss of appetite, confusion, hallucination, Acute Renal failure, low BP, and neutripinic sepsis.
On April 19th 2018, I also received my first dose of chemotherapy. I don't remember much of what happened during this time except I broke out in a red rash from head to toe and ran a fever for 5 days straight. The red drug, daunorubicin, makes me extremely sick. I'm a wreck when they give it to me.
Hyper CVAD Protocol 6/1/2015-2/7/2016 including spinal chemo X 4
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet.
Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
ABVD Six months
Induction round 12/22/14-1/19-15: nausea, vomiting, diarrhea, fatigue Consolidation February '15, Consolidation March '15, Consolidation April '15
Achieved remission October 2017 with 2 IV drugs — few side effects aside of minor peripheral neuropathy in feet. Out of remission in January 2018.
On cytsribinevsubce Feb 2018; Also on oral chemo since March 2018: Venetoclax.
Peripheral neuropathy (feet); anal fissures w/bleeds; mucocitis of throat (hard to eat or drink ANYthing); dyspepsia (nausea); fatigue; 15% wt loss (BMI=18.4)
I've had 2 rounds of induction therapy and just finished my 4th round of consolidation therapy. Side effects have been different with each round. My hair only fell out my first round. Have experienced nausea, dizziness, weight loss, appetite loss, headaches, brain bleeds, metal-like taste in my mouth and food, lethargy, loss of endurance and stamina, chemo brain, grogginess and foggy brain, memory loss.
Started daunorubicin and cytarabine 7+3 therapy on January 10, 2015. I stayed in the hospital approximately thirty days. A bone marrow biopsy at the end of this stay confirmed remission. My nausea was not too bad, except for a time that they served some green beans from the cafeteria. I dry heaved several times, and then ate only food from home. I suffered diarrhea, hair loss, a neutropenia fever, an acute kidney injury, fatigue, and weight loss.
I started my first round of consolidation chemotherapy in February, second round in March, and third round in April.
I have been very fortunate to this point to avoid a bone marrow transplant.
January 6 2014 and February 15 2014
R-Chop--6 cycles total..completed 5/18,6/8 and 6/24/2011,7/15/11 8/8/11 and 8/25/11. side effects: nausea, bone pain, headaches, ear pain(probably from neulasta/neupogen),some fatigue, severe heartburn/epigastic discomfort, mood changes, r ice , beam, imbruvica
Induction, September 2014, two rounds. I didn't go into remission after the round (7+3 and) had IDA-FLAG (idarubicin, fludarabine, cytarabine and G-CSF. I lost my hair and appetite. Mouth sores are horrible as was the fatigue. I had four rounds of consolidation (November, December 2014, January, February 2015) after this, high dose cytarabine and the side effects are marginal for me, I was really tired and that was a result of low Hgb.
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
still waiting for start date
I don't remember all of them, but cytotoxin was one of them
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.
Daunorubicin Chemotherapy Chemotherapies
What Daunorubicin Chemotherapy Cancer Survivors said about their Chemotherapies.
Started induction chemotherapy for AML on 25th September with "7+3 for 24 hours. I got Daunorubicin for 15 minutes the first 3 days while getting cytarabine the rest of the 24 hours. After the 3 days, the cytarabine continued 24 hours for the balance of the rest of the 7 days. I was medicated with multiple medications to prevent some of the known side effects such as eye damage, nausea, vomiting, and acid reflux. After the chemotherapy stopped, the Nader effects kicked in about a week later which is when the white and red blood cell counts and platelets drop. I ended up with ecoli infection in the blood and pneumonia which nessitated the administration of IV antibiotics. I also required Neupogen shots daily to help increase the production of white blood cells. Multiple platelet and blood transfusions were needed to sustain my existence. During this time I also had petechiae due the low platelet count. Stem cell or bone marrow transplant was recommended however, in my case, no full donor match could be found. Therefore my option was to have additional consolidation which consisted of hi-dac chemo (high dose chemo days 1,3,5 for 4 hours twice on those days. Typically if transplant is not an option, 4 doses of hi-dac is recommended. Due to my difficulty with the chemo, we opted for only 2 consolidation treatments. Right now I'm in remission although my white blood cell count and platelet counts are only 1/2 of the normal range. Last bone marrow biopsy (6th one) showed no Leukemia. Currently I have monthly blood work to monitor blood levels.
On April 19th 2018, I also received my first dose of chemotherapy. I don't remember much of what happened during this time except I broke out in a red rash from head to toe and ran a fever for 5 days straight. The red drug, daunorubicin, makes me extremely sick. I'm a wreck when they give it to me.
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet.
Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
Started chemo on July 7, 2016 - May 5, 2017
Side effects - nausea, vomiting, mouth sores
Started daunorubicin and cytarabine 7+3 therapy on January 10, 2015. I stayed in the hospital approximately thirty days. A bone marrow biopsy at the end of this stay confirmed remission. My nausea was not too bad, except for a time that they served some green beans from the cafeteria. I dry heaved several times, and then ate only food from home. I suffered diarrhea, hair loss, a neutropenia fever, an acute kidney injury, fatigue, and weight loss.
I started my first round of consolidation chemotherapy in February, second round in March, and third round in April.
I have been very fortunate to this point to avoid a bone marrow transplant.
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.
Mitomycin Chemotherapy Chemotherapies
What Mitomycin Chemotherapy Cancer Survivors said about their Chemotherapies.
Nausea, loss of appetite, chemo brain.
Commencing Chemo 28th April
NIGRO protocol with capecitabine + mitomycin began concurrently with radiation therapy (January 22, 2019 through March 4, 2019). I chose an oral medication instead of an infusion pump, which was somewhat risky because the oral medication was so new. At the time, there was very little history or research gathered on its effectiveness, but early data suggested it was at least as effective, and possibly even more effective, than infusions. I took a handful of pills twice a day on days when I received radiation, Monday through Friday for six weeks. Shortly into the therapy, I noticed food tasted different to me and became less enjoyable. I also experienced intense chest pain - enough to send me to the emergency room. I was followed by a cardiologist for the duration of my treatments, and fortunately the chest pain went away shortly after my cancer treatments ended. I am grateful that there was no permanent damage to my heart.
nausea (finally controlled).
I had two hospital drips of mitomycin and a capecitabine pills M-F six tablets a day.
First round...mouth sores, nausea, weight loss, chemo rash on face and on upper torso, hair loss (about 80%).
dehydration, some mouth sores, not bad, lost some hair. intestinal pain, tiredness, low white blood cell count and platelets, hospitalized for 11 days because I didn't want to eat and felt like I would get too weak to take care of myself. They diagnosed me with dehydration and said the treatments had caused it. Started Aug. 26 with one injection of mitomycin, and carried drip bag for four days of Flourouracil(5-FU), repeated Sept. 24th, 2013.
Mouth sores. Fatigue. Nausea. Diarrhea. Hair thinning.
Therapy in June and July 2021. Caused extreme fatigue, nausea, lack of appetite
5fu and Mitomycin Feb-Mar 2014
week 1 and week 5. Felt unwell 1st time but felt better pretty quickly. 2nd treatment really took me down. Fatigue, loss of appetite, fever- lost about 50% of my hair.
First round 11-29-21 thru 2-4-21
Second round 2-27-21 thru 2-30-21
Both with the fanny pack pump through my port
mitomycin on 6/29/2015, 5day infusion of 5-FU 6/29 - 7-4
Side effects "metal mouth" loss of appetite, fatigue
First chemo started same day as radiation on 3-17-14 with a single dose of mitomycin and an infusion pump of 5-FU for 4 days. Beginning of the 5th week we repeated this process with 20% less mitomycin due to the low blood count. The first round I had few if any side effects. Felt tired and slow but when I got the pump off, I started to feel better. The second round was more difficult and my blood count fell too low, I got a low grade fever and ended up getting 2 blood transfusions and 5 shots to help build up the blood cells.
2 rounds of mitomycin and F5 pump. Fatigue and brain fog. Loss of appetite and loss of normal taste bud function.
Day 1: March 24, 2014
2 rounds via port, less than 96 hrs round 1 due to New Year's Eve infusion clinic closing, 96 hrs round 2, Low WBC, fatigue, port infection,
Overall unwell feeling. I had chest tightness and pain, might have been from anxiety. I was lucky with minimal hair loss and had only light nausea. I took my nausea and pain medication as prescribed, not when I needed it. Once nausea sets in, it's very hard to get rid of it. While I did not like taking opioid pain medication, pain is like the nausea, once it sets in, it's hard to overcome. About two weeks after radiation concluded, the Dr. and I ''weaned'' me off the pain medication with over the counter pain meds. The last week of Chemo was the worst, in hospital for a week as I spiked a fever, got some heavy duty antibiotics.
2 Continuous drip 4-5 day, rounds 5-fu and Only one of mitomycin were given due to how sick I was towards 2nd treatment. One given oct. 2018 the other december 2018.
Started March 3rd, mitomicin infusion first week, next week started Xeloda 5 days a week, last week mitomicin and zeloda. Some feet neuropathy, 1 week off of Zeloda due to very low wbc and platelets, very tired. Hard to tell what symptoms go with which treatment
Nausea
2- 5 day rounds of Mitomycin infusion followed by Flouracil pump- Severe mouth sores & tongue swelling 1st round. Had Neupogen shots x4. NeulAsta shot after 2nd round - no sores.
Due to start on 4/18/2023 with Mitomycin, Xeloda and radiation
6/26/2014 began 2 rounds of 96 hour pump in a pac, thru power port , severe nausea, dehydration, malnutrition, hair loss, very low blood counts, 3 hospital stays, serious condition
5FU: 5/18/09 to 5/21/09 and 6/15/09 to 6/18/09
Mitomycin once on 5/18 and once again on 6/15/09
Eloxatin (Oxaliplatin) Chemotherapy Chemotherapies
What Eloxatin (Oxaliplatin) Chemotherapy Cancer Survivors said about their Chemotherapies.
Oxaliplatin infusion; Leucovorin infusion; Fluorouracil continuous infusion pump.
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
R CHOP every 3 weeks from 12/30/2013 through 4/28/2014. Began R GEMOX on 6/19/2014 every 3 weeks through 10/21/2014. Started Rituximab and Treanda on 12/3/2014 as a 2 day course. Severe neuropathy in feet and less but still suffered neuropathy in fingers during R CHOP. R GEMOX caused great discomfort with cold even before therapy was complete. One does of Rituximab and Treanda and my father has terrible oral sores. However, he has been fortunate to never have suffered any severe intestinal discomfort.
Rituxan and treanda. Had mixed results. Then R-CHOP, which seemed to increase the cancer. Then R-ICE which then sent me to get an auto transplant. Had a severe reaction to rituxan the first time, then minor reactions every other time. They had to infuse really slow. Added an extra day to my chemos. No other big side effects from the actual chemo except fatigue. Hair loss after the final ICE but was high dose. Also, threw up after the ICE except after the high dose.
Oxaliplatin,Calcium Leucovorin,Camptosar,Florouracil
I had 2 chemotherapy drugs. Eloxatin (oxaliplatin) which was given through my port at my Oncologist's office. I also took Xeloda which is a chemotherapy drug (pills) taken at home. I also had a wonderful Oncologist who worked well with my surgeon.
Started chemo 1/4/2016
Nexavar for 6 months.
Infusion therapy started 2 weeks ago and ongoing bi-weekly.
Began with Xeloda in pill form that was simultaneous with my Radiation. 6 weeks Mon-Fri. Didn't have any problems with this drug whatsoever. March 2014 began Oxaliplatin and 5FU for the next 6 months. I where a pump for 48 hours of continuous infusion every other week. I was told to be cautious of cold weather and cold drinks or any other type of cold items. So drinking everything at room temp is pretty boring but I did find out what happens if you do try to tempt fate and drink a cold substance----it felt like I was swallowing shards of glass down the back of my throat. YIKES.
So far, I have only noticed a bit of nausea during the week of treatment and fatigue, but I know it is early and these symptoms will undoubtedly worsen as time goes on. Not looking forward to this. Really have dreaded the whole chemo thing.
June 2013 - December 2013
I was completely fine up until chemo #5. All of them are 52 hours, I go home with the pump. Chemo# 5 put me down. Fatigue, mouth sores, numbness in toes, extreme sensitivity to cold, loss of appetite.
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss
6 rounds Hepatic artery infusion (oxaliplatin)avastin
3 month Jakafi (oral)
unknown trial drug
nano cisplatin and gemcitabine
folofox: 3/14-9/14, starting again 1/15
Jan 22, 2015 R Chop was the first. Mostly tired some nauseous spells
Nine rounds of Folfirinox treatment before surgery and more after.
Exhaustion nausea
Going on my 86th treatment
5-fu orally before surgery 11/12 - 12/12. The oral chemo did a number on my stomach lining. After surgery did 8 FOLFOX treatments 3/13 - 7/13, side effects were sensitivity to cold, some nausea but not bad, and tired.
6 weeks Flourcil (pills) and radiation Oct - Nov 2015
10 sessions IV chemo (avastin,
oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016
Hands and feet numness
Little nausea
Fingernails thinned
Balding
june 19 through end of nov 19 had chemo every two weeks, mouth sores, metal taste in mouth, hands feet peeled, nausea, severe intolerance to anything cold or hot eating or touching....everything had to be room temp.
2009 - Mitfomycin, 5FU; 2011 Xeloda & Oxaliplatin; 2013 Paclitaxel & Carboplatin; 2014 Lapatinib; 2015 Xeloda (twice with radiation)
Abraxane Chemotherapy Chemotherapies
What Abraxane Chemotherapy Cancer Survivors said about their Chemotherapies.
Tiredness and oain
Abraxane and Genzar
Started July 12. Two weeks on, 1 week off. Plan is 6 cycles. Side Effects - Can’t sleep (steroid pretreatment). Terrible constipation (Nausea meds), Very tired, mild fever, irritability on Day 2-3 post chemo.
Extreme fatigue, delerium
Extreme fatigue, some dry heaving, hair loss, neutropenia
A/c( I am not good with names and the one would not uncheck above) started 4/10/2014 I lost my hair the day of the second treatment. Felt pretty bad but was able to work. Got pulmonary embolisms in June (I hope to find out soon that they are gone) by my 3rd A/c the lump was no longer able to be felt. By the 4th it was gone. started taxol in June (blurry) after 2 treatments the first infusion took 11 hours the second 8 hours and that was all I could stand. The side effects were extreme pain, nausea and sensitive to light and sound .I opted out the rest and went straight to surgery!
2/2015-abraxene and carbo, 8/2015-cistplatinum, 1/2016- cist and topitican, then clinical trial, then doxcil with carbo, just stopped parp after 85 days, starting avastin abd chlorophamide (sp?)
Initially 2 rounds of Folfirinox, that increased liver enzymes and CA-19-9
Methotrexate, Doxyrubicin, Vincristine, Vinblastine, Cytarabine, Etopomide
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.
Started 12.1t.16
Luckily just 2 rounds of Chemo in 2000. Only lost hair from the waist down. Which would be awesome if I was pursing a career as a Drag Queen
Avastin (Bevacizumab) Chemotherapy Chemotherapies
What Avastin (Bevacizumab) Chemotherapy Cancer Survivors said about their Chemotherapies.
Avastin drip. 12/2009 - 2/2010. Nausea.
Sidenote - everyday I'd go to a juice cafe where they had wheat grass juice. When I went for my last treatment, nurse told me my blood counts throughout treatment were spot on... It's worth researching as has many benefits. Please check with your doc as told it may not be appropriate for some during their treatment.
She has had 5 rounds of platinum based triad, one round of Alimpta (sp?), now on Opdivo, has had 3 rounds, for the fourth the week of 4/10/16.
Cisplatin: Took 2 treatments, 1 week apart. Tolerated well. No nausea, though stomach very "acidy" feeling. Eating bland foods often throughout the day helped. Did have some tiredness. No loss of hair.
Had to stop Cisplatin for a while due to frequent ringing in ears. Cisplatin can lead to permanent hearing loss. Was able to complete last 4 Cisplatin after a break. Have some hearing loss, but not much.
Will be using an experimental drug-Avastin, as well.
Avastin: no loss of hair. Felt a coldness in the core of the body and extremities. Combined with Cisplatin, usually left me feeling poor and unable to work for about 5 days.
Starting Taxol, Carboplatin, and Avastin again next week.
ABVD Six months
Six rounds in 2008 and 12 rounds in 2015 got through these not too bad in the big scheme of things.
I was completely fine up until chemo #5. All of them are 52 hours, I go home with the pump. Chemo# 5 put me down. Fatigue, mouth sores, numbness in toes, extreme sensitivity to cold, loss of appetite.
mid july to November 2015 Gemzar eight treatments, xeloda for 28 days on radiation days. Started Folfox regimen 09/20/2017 for recurrence.
Carboplatin, taxol, avastin, and a PARP inhibitor for 6 rounds, then remission for about 7 months. Then more carboplatin and taxol for 3 more treatments until I became resistant, then onto the MEK/Milo trial. Failed that after 2 months, now looking into immunotherapy
Jan 2 through Jan 5 2015 Staff infection , Bacteria in blood, Fever and Nausea
3/19-5/19: carboplatin, taxol for 3 rounds, with avastin for 2 of those (fatigue, assorted irritable stomach issues; with avastin: raspy voice/throat, sniffy)
6/19-8/18: carboplatin, taxol for 3 rounds, with avastin for 2 (see above but a little more so, since it was after THE BIG SURGERY
7/20-? carboplatin, doxil for 6 rounds (SO FAR: intense headache for a few days, some lightheadedness and nausea)
Once every 3 weeks from Feb - April 2020. Extreme
Started chemo on July 7, 2016 - May 5, 2017
Side effects - nausea, vomiting, mouth sores
Beginning in April I had three treatments with Taxol and carbo platinum as well as Avastin. Joint pain was rough but gone after a week or so. I've mostly been easily tired out. My CA125 went up so I had another PETCT that showed an increase in the cancer I am now getting Doxil every four weeks and Avastin every two weeks. Side effects have been relatively mild - just tired a lot.
six infusions of carbo/taxol every 3 weeks from 3/13 to 6/13
six more infusions carbo/taxol every 3 weeks from 1/15 to 4/15
three infusions doxy every 3 weeks from 8/15 - severe rash - discontinued
several infusions every week gemzar from 10/15 to 2/16 tanked white count and increased acities - discontinued
avastin/taxol every 3 weeks from 3/16 to present
6 carbo/taxol and 4 cisplatnin in 2013/4. 4 carbo/taxol in 2016/17.
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007
Nueropathy, memory loss, balance issues, joint and muscle pain
CHEMO 1/2/2012, CHEMO 8/1/2012, CHEMO 7/1/2013 HAIR LOSS
6 weeks Flourcil (pills) and radiation Oct - Nov 2015
10 sessions IV chemo (avastin,
oxilaplatin,irenitecan, 5-Fu) Apr - Sep 2016
Hands and feet numness
Little nausea
Fingernails thinned
Balding
Fu5 fannypack4 months 5 months mainvein all side effects
Had a really bad reaction on Oct 14 2014
Every other week
6 treatments chemotherapy (carbo/placing/Avastin
folofox: 3/14-9/14, starting again 1/15
First chemo was on Friday 9/15/17. 3 chemo infusions over 8 hours. To be done every 3 weeks. Next scheduled 10/6/17.
Have had no nausea or vomiting. Saturday night, severe pressure in rectum, vaginal area and lower pelvic region. Contacted physician due to pain and that no amount of medicine was subsiding pain. Was advised that it seems as if the chemo is working. The pressure could be due to the necrotic tissue from the cancer itself is moving, liquid retention, or inflammation from the chemo. He reassured me that pain and pressure should go away within a few days. Was instructed to take higher dose of percocet. The higher dose of pain meds has done its due diligence, but knocks me out too.
It is now three days later and pain and pressure has become more bearable, and treatable with 800mg motrin.
Feeling extremely tired, which is very odd being that I am very active. Powering through, I will win this battle.
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss
6 rounds Hepatic artery infusion (oxaliplatin)avastin
3 month Jakafi (oral)
unknown trial drug
nano cisplatin and gemcitabine
Dasatinib (Sprycel) Chemotherapy Chemotherapies
What Dasatinib (Sprycel) Chemotherapy Cancer Survivors said about their Chemotherapies.
An unpleasant mix of fatigue, diarrhea, headaches, water retention, muscle and bone pain.
Onivyde (Irinotecan Liposome) Chemotherapy Chemotherapies
What Onivyde (Irinotecan Liposome) Chemotherapy Cancer Survivors said about their Chemotherapies.
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.
Docetaxel (Taxotere) Chemotherapy Chemotherapies
What Docetaxel (Taxotere) Chemotherapy Cancer Survivors said about their Chemotherapies.
Hair loss, nails, hand and feet discoloration, constipation that resulted in an anal fissure that won't heal, bone pain, depression and anxiety
Uncategorized Chemotherapy Chemotherapies
What Uncategorized Chemotherapy Cancer Survivors said about their Chemotherapies.
1/7/2014 and every 14 days thereafter - Nausea, jaw pain, loss of taste, hair loss, fatigue
6/10/2014 - chemo complete (6 cycles ABVD)
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