What are Tonsil Cancer Chemotherapies? List from Cancer Survivors

The below is a list that has been posted by the bloggers in this cancer community. There are 7616 cancer fighters that are members here. This is what they said, not what the doctors or nurses will tell you.

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Tonsil Cancer Chemotherapies

Cisplatin (Platinol, Platinol-AQ), Fluorouracil (5-FU), Erbitux (Cituximab), Carboplatin (Paraplatin), Taxol (Paclitaxel), Adriamycin (Doxorubicin), Cyclophosphamide (Cytoxan), Vincristine (Oncovin, Vincasar PFS)

What Tonsil Cancer Survivors said about their Chemotherapies.

5 treatments of cisplatin one a week commencing 14th July. Mocositis, fatigue WBC count dropped dramatically after last treatment
fatigue, nauseous, loss of hair, very very weak.
cisplatin start 10/28/08
Cisplatin & Erbitux 1x/week, amifostine injections 5x/week 20min prior to radiation.
My cocktail included Fluorouracil and Cisplatin.
Starting march 12 2009
April 9, 2012 (Only made it through 4 treatments as it made me incredibly sick.)
yes, cisplatin treatment was needed as the lymph node in right neck lump broke through the cell wall; attempted 3 chemo treatments {large doses} every 21 days followed by 2 days of 2 hour treatments of iv saline soutions to wash out the chemo and lessen its effects on my kidney, though my body had too intense side effects..the chemo treatments changed to weekly for remaining 7 weeks with smaller doses of cisplantin
Cisplatin, 5-FU, Docetaxel
Chemo (Cisplatin) is anticipated to begin the second week in July. Treatment plan will include 6 chemo sessions (2 sessions every 21 days). Will complete chemo concurrently with radiation.
cysplatin
The first chemo treatment of Cisplatin was on 8/31 with another scheduled for 9/21 and 10/12.
Low-dose chemotherapy (Cisplatin) coincided with radiation, 1 day per week, beginning December 7, 2009 and ending January 25, 2010. Side effects included nausea, fatigue, weakness, depression, low blood counts, increased age in appearance, loss of some hearing in the higher frequency range and tinnitus (ringing in both ears).
Chemo start date 10/5/09, three sessions, one every three weeks (cisplatin)
I will also start chemo on Monday, October 19th. That will be done after radiation every Monday for seven weeks. It's a combination of three drugs: Taxol, Carboplatine and Erbitux. Will be asking why once a week when it seems everyone else that I've read about get three treatments throughout those seven weeks.
Cisplatin, 3 treatments , hair thinned, loss of hearing, nausia, Tinitus
3 cisplatin treatments, concurrent with radiation treatments
After leaving the hospital following my first round of chemotherapy, I was rushed to the local hospital. I had an extremely high fever, my porta cath was infected and oozing puss and my white blood cell count was .444.
3 heavy does of cisplatin thankfully no hair loss or sickness just some constipation which was a pain oh and some weight loss
2 Full Week Doses (M-F)
Cetuximab - Brand name: Erbitux - April 1, 2010 - so far just really really tired. I was told later a rash and other stuff could happen. ( 5/1/10 - rash did appear including itching. Scalp was the worst. Lying down felt like pins sticking my head. I was told if not rash, med is not working. After they know it was working, I got med to help the rash and itch.)
Cisplatin gave my husband ringing in ears but much better now. Had complications each time after a chemo. Was hospitalized twice for them.
Carboplatin 08/06/2010. Mild Fatigue. Carboplatin 08/26/2010. Radiation recall. Carboplatin 09/16/2010. Neck is tightening due to radiation recall. Alimta erbitux Low Platelet 10/07/2010 Carboplatin, Taxotere,5FU 01/2011 n 02/2011.
1st one today 26-April-2010 Slight nausea, headache and heart burn so far so good 2 more to go 3 weeks apart. 2nd was uneventful opted for the 3rd one while throwing up in the sink in the corner of my Rad-Oncs offce. Mucus was triggering my gag reflex something fierce by then, was going to hospital getting hydrated 1 or 2 full bags to lessen mucus knew how important that third dose was and made it to the end was glad I did. Didn't have many side effects from the chemo had tinnitus going in so when they asked I said i didn't care I have it already go for it. Was no cake walk and have talked to many others who have had tons of side effects so I guess I was lucky
after 1 chemo treatment I don't feel any reaction as of yet. Next treatment July 14.
No side effects thankfully!
Carboplatin and taxotere,first treatment went well without much side effects. Look forward to the others.
Hearing loss and ringing in my ears. 3 chemo treatments, first, fourth and 7 th week. Saliva got thicker then syrup,honey after treatments ended. Couldn't swallow and had to sleep sitting up in a recliner for weeks afterwards.
hearing loss and ringing in ear from chemo (cisplatin)
April 4,2011, minor nausea April 12,2011, rash on upper lip
Start on March 29th 2011.
Started Treatment on May 24,2011... last Chemo July 5, 2011... hair thinning, but no sickness
February 25, 2011 - Cysplatin (Cisplatyn) I don't know 4 of 8 weeks only as it ruined my throat way early and did it's job - according to the dr.
Started treatment April 29: cisplatin two double doses - didn't do third dose due to ear ringing, had to take a booster shot after second treatment due to WHC crash. Side effects: ringing ears, nausea (but controlled by Zofran so not a problem) Other things: acid reflux developed quickly (not something I have had in over a decade - controlled by prilosec on advice of oncologist) and constipation from zofran (controlled with miralax and glycerin capsules and lots of water)
Cisplatin - I was sick every day. Had to take anti-nausea medicine every 2 hours.
2 six hour Cisplatin courses. Some hearing loss. Some nausea. Actually felt better after Chemo treatments
For details see my posting.
Cisplatin ....nausea and fatigue
11 treatments ended about 11/07/2011
Chemotherapy Cisplatin. Vomiting started the first day of chemo and stopped two weeks after treatment complete (9 weeks of vomiting & vomiting).
Hyporexia, nausea, tinntitus
3 five hour Cisplatin sessions, every three weeks, starting Monday, November 7th 2011
11/9, 11/30, 12/21 - loss of appetite, cold, "chemo head" (loss of concentration and short term memory)
Cisplatin= 1 day a week for 8 weeks
starting chemotherapy about 12/19/11. Ended chemotherapy 2/12/12
Chemo - Cisplatin - Day 1 of week 1 / week 4 / week 7
Begin Erbitux treatments February 13 2012 and finished on May 2nd.
Chemo is Erbitux which I get once a week for 7 weeks.
Carboplatin - 6 Weekly infusions completed February 27
Erbitux (cetuximab), loading dose 25 Jan, caused mild temp and nausea, then no similar effects during the 8-week course of treatment. Significant skin effects (acne, painful splitting of skin on fingertips, toes, and heels). No real nausea, vomiting, or diarrhea caused by the Erbitux.
Completed May 15, 2012
3 Cisplatin mega doses, 100 units per time, 6 hour chemos
Chem with Cisplatin, taxotere and 5-FU in pump.
Cisplatin. 2 infusions 3 weeks apart.
Taxol and carboplatin. 6 weekly infusions.
Chemo coming up
Ciplatin 3 megadoses 3 weeks apart concurrent with radiation
Cisplatin. Lots of nausea. Some hair loss.
concurrent w/rad 3/19 3 weeks apart megadose cisplatin 100Mg/M² side effects have included peripheral neuropathy, hearing loss, ear ringing, fatigue, nausea, vomiting, slight hair loss, blurred vision, unexplained bruising, blood blisters on mucuos membranes, dizziness, destroyed vein and tendon damage near 2nd injection site(both probably permanent)
3 treatments. Cisplatin at first but had terrible digestive side effects so used erbitux for last 2 treatments
Cituximab Loading dose March 13th, High fever and severe headache. Second of 8 treatments March 21st. Only side effect was severe heartburn.
3 doses of Cisplatin.
3 heavy dose (8 hours each) chemo. sessions.
Start with erbitux on Nov 12th and follow with weekly doses every Monday for a total of 8 weeks
Chemotherapy (Cisplatin) Treatments January 14th through March 4th 2013
Jan 21- vomit, headaches, fatigue, lack of sleep, sore throat, cold sores, dry mouth, weak, pain, dry skin, headaches
7sessions, once weekly Metal tasting food, general lousy feeling 2 days after treatment.
3 Cisplatin treatments
1st Chemo -Rituxan 6/12/13, CHO 6/13/13 with prednisone daily x 5 days, 6/14/13 Neulasta. Foods tasted sweet and had a slight headache but I did good until 5th day and I decreased my antiemetics and had nausea/vomiting and had to get IV fluids. I had some swelling in feet & hands. I worked several days but on the 7th day after neulasta I had back pain and had to take pain pills and a muscle relaxer, then I took Claritin and it did help. I still think I did good for my first chemo. 2nd Chemo- July 3 R-CHOP, July 4- Neulasta. I had swelling the first night in hands & feet. I feel weaker with this one and I'm having breathlessness. I called doctor and had labs but results were okay for chemo. I haven't worked after this one, yet.
Still waiting on Chemotherapy decision
Begin weekly Erbitux 9/10/13, Cisplatin/5FU 5/14, CarboTaxol 7/15
GREAT NEWS!!! No Cisplatin treatment!! Only going to use Cetuximab! which means I will not be getting all the side effects of Chemo type treatments!!!
03/05/14 Chemo 1-Chills & sweat & nausea the next 4 days.. 03/26/14 Chemo 2-Chills & sweat & un able to eat the next 4 days.
2/3/14 - 3/10/14 : 6 weekly Cisplatin doses @ 30mg/m^2 Side Effects - Ringing in ears (went from minor to moderate). Constipation. General "bad" feeling...like having a cold without the symptoms. Overall I think I did ok with the chemo though.
6 low-dose cisplatin treatments, one every Monday for 6 weeks. Felt great; actually took away the joint pain I experience from Lupus!
3 Cisplatin Chemo's, starting July 17, 2014
September 5 - 3 rounds
January 6 2015, February 18, 2015 nauseous fatigue
3 Chemo treatments 2 weeks apart
6 treatments of Cisplatin, every Monday for 6 weeks, ending on November 13, 2012. Improved symptoms of systemic lupus, but caused further hearing loss.
1 chemo treatment so far have to have 7
10 weeks of 2 chemo drugs per week
Began Erbitux November, once a week. Skipped December, resumed chemo January, I go weekly.
drained tired sick feeling, loss of facial hair and back of head.
soon to start either Cisplatin or Erbatux
3 treatments for 3.5 hours hearing loss constant sound of cicadas/crickets in ears hissing in ears severe weight loss
Six chemotherapy treatments concurrent with radiation.
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