What are Pancreatic Cancer Chemotherapies? List from Cancer Survivors

The below is a list that has been posted by the bloggers in this cancer community. There are 6872 cancer fighters that are members here. This is what they said, not what the doctors or nurses will tell you.

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Pancreatic Cancer Chemotherapies

Gemcitabine (Gemzar), Xeloda, Fluorouracil (5-FU), Cisplatin (Platinol, Platinol-AQ), Methotrexate (Folex, Mexate, Amethopterin), Vincristine (Oncovin, Vincasar PFS), Irinotecan (Campto), Taxol (Paclitaxel), Abraxane, Onivyde (Irinotecan Liposome), Carboplatin (Paraplatin), Eloxatin (Oxaliplatin), Avastin (Bevacizumab)

What Pancreatic Cancer Survivors said about their Chemotherapies.

Chemo once a week from 4/2/10 to 6/01/10: Was tired the next day with small "blah" moments.
Chemo #1 on 4/02/10: I was more tired then usual and had a "blah" moment after going outside for a few minutes.
Pill form chemo winter 2009...threw up at end of each round
given up on dates the first time on chemo was 7 months and this time has been 9 months
Gemzar, Taxotere and Xeloda
Start date November 14 th chemo drug called Folfirinox 8 weeks every other week to try and shrink tumor away from artery
will be starting after Christmas
More harm than good; no chemo
Gemazar.... So far, nausea and weakness
I do not remember all of the names. The chemo was a combination of four different chemo drugs. It did not work. My father experienced nausea and could not taste anything so lost his appetite. He also was very sensitive to temperature. We are still waiting to start a trial chemotherapy drug! Pray, pray, pray!
1st session, September 20th. Once a week for 3 weeks then 1 week off. October 25th, white blood cell count was down for the 1st time, so they skipped chemo for that week. November 1, 2012, white blood cell count back up so they did chemo. December 2012 started 5 FU, Oxaliplatin and Leucovorin every 3 weeks to target the abdominal lining tumors that are continuing to grow. April 19, 2013, CT shows the chemo isn't working on the abdominal lining tumors, and they have given him the best chemo treatments they have, nothing more they can do. But will reduce the chemo he has been on to reduce painful sores in his mouth and side effects that were getting worse with each treatment, I think to keep the liver and pancreas tumors at bay and hopefully still give him pain relief.
June 2012-October 2012; Reported Lethargy, nausea, changes in taste, neuropathy in fingers, weight loss.
March 22(3 types of chemo) i feel it lessened his quality of life, but for my dad he needed to fight back!!!
Gemcitabine (Gemzar)
Folfox mix of chemotherapy -nausea, vomiting, diahhrea , nil taste I food, shaking, mouth ulcers, dry skin
Folfirinox Jan 2013 - Feb 2013, switched to Abraxane and Gemcitabine March 2013-current
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.
xeloda pills for two weeks then a week off.
6/2011 tiredness, nausea, dizziness
5-Fluorouracil (5-FU) My sister gets chemo every other week. Her main side effect is diarrhea. She has had 3 chemo fusions so far. She has diabetes and the chemo she receives has glucose in it so when she receives the chemo her blood sugar level goes sky high and she gets severe headaches. She then takes additional insulin following the chemo to help bring down the sugar levels. I am amazed at the medications that help her symptoms. When told she was going to have "bone pain" after a shot to boost her platelet count, she was told to take "Claritin".
Gemzar started Jan 2014. Once a week for three weeks then one week off for six rounds; liver function elevated and dehydration, fatigue , vision affected .
Gemzar June, 2014. Nausea, weakness, fever, headache
every other week, cold sensitivity
Mar 4 _ Sept 15 2015(Folfirinox)Nausea, weakness, vomiting, low potassium, low platelets (despair)
Abraxane and Genzar
Extreme fatigue, some dry heaving, hair loss, neutropenia
FOLFIRINOX and Gemcitabine/Abraxane
Initially 2 rounds of Folfirinox, that increased liver enzymes and CA-19-9
Carboplatin and Taxol started June 10, 2016 December 2015-April 2016 Cisplatin and Gemzar we only switched because he had 6 rounds of this. It did keep the cancer from growing.
Oxaliplatin,Calcium Leucovorin,Camptosar,Florouracil
mid july to November 2015 Gemzar eight treatments, xeloda for 28 days on radiation days. Started Folfox regimen 09/20/2017 for recurrence.
About to start chemotherapy
Extreme fatigue, delerium
Started 12.1t.16
Lanreotide injections 3 months/ diarrhea, excessive flatulence/ abdominal pain
Started Chemo - Gemzar & Xeloda - in November 2016. 6 cycles planned. Side effects pretty mild - some nausea and tiredness
Diarrhea, fatigue, numbness in finger tips and toes
5fu from 11/8/16 until 1/5/17. Five hour infusion then wore a pump home for 48 hours. Was supposed to do 8 cycles but only got to 4 when my white cell count dropped and we had to stop. The side effects of this treatment are horrendous. Pain, nausea/vomiting, fatigue, neuropathy in hands and feet, hair loss, cold sensitivity, shaky hands and lips, constipation, night sweats, mouth sores.
Tiredness and oain
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
One round of Flourouracil but side effects were severe and patient chose to discontinue. Side effects were nausea, uncontrollable diarrhea
aggressive weekly treatments of chemo for 2 months
Gemzar at first, 5FU for recurrence.
Started July 12. Two weeks on, 1 week off. Plan is 6 cycles. Side Effects - Can’t sleep (steroid pretreatment). Terrible constipation (Nausea meds), Very tired, mild fever, irritability on Day 2-3 post chemo.
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