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What are Colon and Rectal Cancer Chemotherapies? List from Cancer Survivors.

Colon and Rectal Cancer Chemotherapies

Fluorouracil (5-FU), Irinotecan (Campto), Cisplatin (Platinol, Platinol-AQ), Xeloda, Avastin (Bevacizumab), Erbitux (Cituximab), Epirubicin, Methotrexate (Folex, Mexate, Amethopterin), Taxol (Paclitaxel), Eloxatin (Oxaliplatin)

What Colon and Rectal Cancer Survivors said about their Chemotherapies.

November 1, 2006, Started with 5-FU, missing DPD enzyme causing life threatening toxicity issues and discontinuing the 5-FU. No additional chemo available to me for any treatment of this condition. Now in wait and see mode.
Too many to mention-16 months in total(6,6,4) Every drug they have for colon cancer.
6-03--36 weeks of IV chemo therapy. Had problems with severe diarrah, nausa and fatigue 3 days out of 7. Slightly ill the rest of the days with same symtoms, but milder. 2007--doing much better on chemo therapy by adding alternitves. (read below) 12-07- oral Xeloda (chemo therapy). Take for 2 weeks straight 2 times a day, then one week off. Side effects are slight now that I take fermented wheat germ, green wheatgrass and mangoseed juice. The juice improved my energy level a lot! I think we are seeing some results from the fermented wheatgerm as we are now starting to see on my cat scans that things have kind of stopped. In the England Cancer Journal they have proved that fermented wheat germ can slow and sometime cure cancers. The mangoseed juice is made in Asia, this is the only place it grows. It is extremely high levels of antioxidants! Knock on wood I haven't been sick since I started it! I also only eat organic (as much as I can) I eat lot's of greens and fruits. I get protein from the grains and I also eat a lot of nuts. I have felt so much better since doing this it is unbelievable.. I have hand and foot syndrome that this chemo can cause..this can/is be very painful. Febuary 08-New treatments of folfox6, Avastin and 5FU--extreme fatigue-nausa-diarreha-controled by medications for the most part. Need to rest a lot.
I started chemo Sept 19,2006 minimal side effects I have had 20 treatments, and most people don`t realize I`m on chemo
I had my 1st chemo treatment on 12/10/07. If cancer cells remain, they are microscopic and floating around in my body and being ZAPPED by chemo! I qualified for a trial and receive Erbitux (usually for metastatic cancer) every week (which causes acne). The nausea is gone for now, mouth sores are fading, and acne is blossoming. The Oxilaplatin will be decreased next time due to the mouth sores. It also causes Neuropathy.
Bart has and still is undergoing Chemo. Bart has stage 4 Cancer. Bart's treatment of the tumor on his liver caused sloughing of the skin of his feet and hands. He is now on Erbotax. All tumors continue to shrink, and he feels great. Works most everyday he wants, as usual.
FOLFOX plus Erbitux &
not yet scheduled
folfox + 5fu (dec 07-jan 08) folfiri + 5fu, avastin, cetuximab (jan 08-current)
started chemo on 12/11/07 clinical trial with avastin,erbitux,oxaliplatin,lecovorin,5FU..now irenotican
9/07 for 5 months every 2-3 weeks.Fulfox, Five FU, evastin, oxalyplatin -Side affects were mild and temporary such has hair loss (complete on first round) mild neuropathy, Hand and food syndrome. Slight diarrhea but NO nasuea. Loss of appetite, loss of taste. 06/08 Second round of chemo (Irinotecan) more nausea but virtually no diarrhea. neuropathy has returned slightly. I can still taste things after 2 rounds of chemo this time.
Inj Dacotine 150mg * Biovorine 600mg & 5FU 4600mg in 1000ml NS continuous infusion in two days. Inj Perinorm 10mg IV thrice a day Inj.
11/06-oxaliplain,xeloda....tingling and cold sensitivity in hands and feet, fatigue 11/07-irinotecan, avastin, 5FU, diahrrea, fatigue, burning and cramping in abdomen started erbitux january 2010, adding irinotecan this week, sept 20, 2010...post-note that irinotecan caused so much diahrrhea I became too hydrated and wound up in hospital. i had a blockage too, but just sayin'! ;)
Started June 23, 2008. Oxaluplapin, Leucovorin and Flourouracil. Side effects are extreme weakness, lack of appetite, many foods don't taste good, can't touch, eat or drink anything cold--needles & pins in fingertips & toes, and throat closes up. Needles & pins, needles & pins, if I drink or eat anything cold, MY breathing troubles begin!! smile
Chemotherapy started 7/31/08. I feel as though I have had every nasty side effect. I have heard it is not that bad but I feel rotten throughout the entire cycle.
Erbitux Xeloda Oxalyplatin Avastin
Folfox and Avastin. Very debilitating, very fatigued and nauseated. Thinning hair.
I had a port put in (after 4 tries which left me with considerable chest bruising, pain, and extra scars) and it it was accessed 4 days after insertion to begin my first chemo treatment. Pure 5FU. I did not lose my hair or get any mouth sores. I did feel like shit every day, I did lose my appetite completely, I did have stomachaches all the time, hot flashes, headaches, & extreme diarrhea or extreme constipation. Sept 8 - Oct 10 2008 Chemo #2 - Folfox (5FU/Oxalipatin) Feb 2 - March 3 Chemo #3 - unknown...beginning march 16
I started Chemo on December 19,2008. I had a port put in to administer the treatment. For my lifestyle the port makes most sence. Have the pump hooked up was a bit invastive, but I have great nurses who have a trementious amount to compassion and skill
start chemo tomorrow jan 12, 2009 folfox
f5u-dec/07 to june/08 side effects the works!! mouth sores,nausea,fatigue,on and on!
Lecovorin, Oxiaplatin causes extreme neuoropathy in the hands and feet, He does not have finger prints now. 5-FU causes nausea, makes the hands and fet worse and soooo tired, like having the flu everyday with intense stomach cramping. Can not concentrate, chemobrain I guess they call it. Three days of intense chemo, then sick pass out for hrs. can't do anything but lay down or sit, there is nothing to help ease this...
it was a bitch but everyone in the hospital oncology was very nice that helped alot.
Chemotherapy was administered through a PICC for 5 weeks during radiation. No major side effects other then extreme exhaustion. I took the chemo nurse advise and began taking anti-nausea pills before I felt any nausea so I was able to continue to work part time. I still believe I am still suffering from some lingering effects of the chemo as I have not been able to build up my stamina.
I just had first treatment on 5/20/09, The symptoms of the first treatment for me were severe cold sensitivity for about 3 days, tiredness, sore hands and feet, achy legs, and stomach pains.
5FU and Oxaliplatin. Started July 15 2009, every other week. Lots of fatigue neuropathy from the Oxaliplatin getting worse with each treatment, tingling, numbness, burning, shooting pains.
FOLFOX first cycle June 11 (infusion) and then the pump 46 hrs; some odd effects on swallowing, a little constipation, a little diarrhea, no food problems :)
5FU no side effects Avastin no side effects Oxi could not touch or drink anything cold.
24/7 pump 5fu.
Very little after affects from the chemo other than slight nausea and some fatique. They had to cut the chemo treatments short in order to focus on the radiation treatments. Had a port-a-cath installed for future chemo treatments.
As soon as we get the radiotion date my mom is going to start with her chemo.
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007 Nueropathy, memory loss, balance issues, joint and muscle pain
No chemo ever.
severe dehydration, potassium def. diarrhea
Sept. and Oct. 2005 - seven days a week 24 hours a day for 5 weeks, plus every Mon. for 4 hours
2 cycles of 5-FU, FOLFOX for tumor, R-CHOP for B-Cell and now 6 cycles of FOL-FIRI
folfox 4 for 6 months...Oxaliplatin caused permanent, extreme peripheral neuropathy. Imagine your feet telling your brain that they are in severe pain 24x7 and that they are cold no matter how hot they are. The brain cannot handle that constant messaging and the results are not pretty...mentally and physically
Started October 28, 2009 5FU 24/7
4 treatments done... 8 more to go. Mom had her port put in and about a week later went for her first treatment. She spends about 6 hours at the cancer treatment center and has her "chemical purse" with her for 48 hours. Side effects: pain in feet occasionally and colder than usual.
Pill form. Xeloda, 1800mil daily.
Completed FOLFOX 6 and 5-FU on March 8, 2010!!! Nausea Vomiting Diarrhea Constipation Late February through end of March 2009. Chemo and radiation May/June 2009. Chemo only started final set of treatment in September 2009 and currently in chemo treatments until March 2010. Nausea, diarrhea, fatigue, crashing of white and red blood counts during each set of chemos. yeast infections, and healing problems with surgical site from September 22, 2008.
Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.) after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash
Oxaliplatin and 5-FU. Horrible tingling in hands and feet when I touch something cold. Horrible jaw pain when I first start eating something. Lingering metallic taste in mouth. Dizziness and headaches. Blurred vision. Fatigure.
5FU Portable Pump
pump for 5 days aweek for 6 weeks then 2 days every 2week for 6 sessions
Started in July 2009 was suppose to have every 2 weeks, but blood count went down so had to push out either 3 or 4 weeks. I hurt from my head to my toes the week of chemo, and then after that started gradually getting better. Neuropothy in hands and feet. Should go away eventually. Finished chemo Feb. 11, 2010.
Xeloda, taken during my radiation treatment (adjunct therapy) Started Folfox the last week of June 2010
March - August 2005 Luecovorin, 5fu, and Oxaliplatin. Had issues with joint and muscle pain, skin peeling, Neuroathy (with cold things/and taste) Minimum hair thinning and minimum nausea, fatigue was an issue. This was 3 days a week every other week both at office and home. 2008-Fulfury- was very very sick, constant nausea and vomiting, fatigue, only did two treatments and quit, because I was so sick it felt like the chemo was killing me. This was also a take home bag 3 days a week every other week. 2010- Urbetux (Erbitux) not sure of spelling with a benedryl cocktail pre-treatment to stave off allergic reactions,This is once a week for a few hours every week, has mainly caused skin issues, Acne like rash that has turned into cellulitis (skin infection) in some spots, I am now on antibiotics strong enough to fight MRSA just in case and pain meds as it is very painful, but it's getting better and in 2 weeks I will go back and we will see where it stands as far as do we have to cut my dosage back?
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
FOLFIRI w/ Avastin 4/2009 - 11/2009, FOLFOX 12/2009-2/2010 Nausea and fatique
No chemotherapy
6-500 mg per day that I have radiation. Xeloda. Some nausea, light headedness, jitters, diarrhea,
FOLFOX beginning on May 19th, for six months, twice per month. I hope to report no side effects....and then I woke up....
Chemo was not that bad, just a little tired with some nausea
Xeloda (oral chemo) for two and a half weeks.
12 so far, 5Fu, Avastin, Oxiplatin, Leucovorin
My hair is normally very curly. Now it is straight. Hands and feet a little sensitive. Other than that, none, yet.
Xeloda 3000mg by mouth twice a day for 5 1/2 weeks. Some skin issues with ears peeling, body aches & pain, very tired.
During my 6 month treatment fatigue and nausea were the most consistent chemo side effects. Exercise helped with the fatigue and taking compazine helped with the nausea.
Each round of chemo consists of 3 weeks. Week 1 I get an Oxaliplatin infusion, weeks 2 & 3 I take oral chemo, Xeloda. Side effects are nerve pain (thanks I already had that), hand pain, fatigue, weakness, memory loss, confusion at times. Bla Bla Bla
July 2, 2010 - Heated Intra-peritoneal Chemotherapy (HIPEC). Side Effects: Complete Loss of appetite, everything tasted awful. No nausea or vomiting. Lots of swelling due to amount of fluid they pump you with prior to procedure.
Oxilioplatin for 5 weekly sessions along with Xeloda twice a day during radiation days. Felt alright for the first two days after the IV of oxilioplatin (probably because of the steroid and anti-nausea meds) but then hit a wall the rest of the week and was pretty run down. Felt almost back to normal by Monday, but then had to do the whole thing over again.
5f-u and Oxaliplatin start 10-19-2010~On June 13, 2011 I had an allergic reaction to Oxaliplatin and my Doctor made the decision to take me off of that for good. Nothing will take it's place as of now. I will remain on 5f-u and Leucovorin.
Pre-Surgery April 19-May 26 Five FU for 6 weeks continuous with take home pump Post Surgery started Sept 22 Full Fox
leucovorin, floxuridine. Was on Oxaliplatin and 5-FU. Worked well, but killed my platelets. Then on captosar? Crap. could feel the lesions growing. Still have peripheral neuropathy in hands and feet from Oxaliplatin. Side effects: Gas! Holy cow! Now on Xeloda. who knows what's next
started with leucovorin, oxaliplatin, avastin, folfox pump, then camptosar, erbitux, folfuri pump, currently undergoing clinical trial with Xeloda and maybe or maybe not perifosine few side effects, I guess I've been lucky
May 2009 - Sept 2009 FolFox, peripheral nerve damage to hands and feet (used to unload dishwasher with ski gloves on cause touching plates etc felt like pickiing up glass!) All good now with help of Vit E and Alpha-lipoic acid suppliments. Xeloda - long term chemo. March 2010 til now and according to onologist, forever!! damages skin on my fingers and feet.
One month off after the radiation concluded. I go in every third week to receive and IV of Oxilyplatin. I take 1650 mg of Xeloda twice daily starting with the date of iv, and lasting for 14 days. Thus far I've received 2 of six iv treatments. Side effects have been marginal and temporary. Sensitivity to cold lasts around 3 days. Some tingling in the hands and arm where the iv went in. Goes away after a few days.
5FU 8/23/10 through 9/27/10 24/7 once a week flush and bloodworkups. some nausea
5FU Begining 1-18-11, 5 days on, weekends off...
Bi-weekly chemo. Energy levels vary. Diarrhea, one day only usually. Keep hydrated.
Xeloda during radiation and again mid-June to July along with Oxaliplatin- only able to receive two treatments after surgery due to severe dehydration, malnutrition, immuno-suppression. Since July have had severe pain in joints- especially shoulders- now diagnosed with frozen shoulders. Beginning PT this week.
Chemo during radiation and after surgery. October 2007 - February 2008. Normal side effects. Worst was the weight loss due to the temporary bag I had.
Bi-weekly Chemo 6 months Oaxliplatin/ fluorouracil 5-fu
I started folfox with Avastin in April 2010, did 12 treatments & had my last one on Sept 7th, continued with Avastin til beginning of January 2011. I was already sensitive to the cold before I started oxali, it was horrible, my fingertips & feet still have that slight weird tingle to them, it's Feb. My oncologist & I agreed to start irinotecan after my surgery to knock things out for good.
Xeloda oral 2000, started March 22nd - OK up to date Folfox - starting August 29th, port inserted on July 29th. Side effects from folfox - berable - cold sensitivity in hands and eyelids. Tingling in hands, shin cramps, tiredness, eye dryness.
4/4/2011 - FOLFOX6 with Avastin. Some fatigue, peripheral neuropathy, cold sensitivity. Discontinued after 3 rounds 7/1/2011 - Switched to Xeloda. Stopped first round after 9 days due to much bowel discomfort.
Will be starting chemo on April 27th. Getting 12 treatments over six months of 5Fu with leucovorin and oxaliplatin via a medi port. Had the port put in this week.
One day a week every other week. Oxaliplatin with two hours of Leucovorin and 5 Fluorouracil. I will also have the 5FU in a pump for 46 hours. Total 16 weeks of treatment. Then Radiation
Body would only take 1 day session.
Have had ten of twelve treatments. Nausea, loss of appetite, food not tasting good, neuropathy in fingertips and very susceptible to hot and cold beverages/food.
I've had two rounds of chemo (carbo-taxol and FOLFOX, Avastin), neither of which were effective.
FOLFOX 8 treatments split into two rounds - one round before radiation and the other round post radiation Feb 3 - July 18, 2011 Neuropathy, hair thinning, blisters on fingers and feet, diarrhea, constipation, nausea,
I had a great wife with me every one so they could never be all that bad. I had 2350mg of 5FU and Oxaliplatin over 48 hours every other week for first 3 months for last 3 months have had 1105mg of 5FU Leucovorin every week.
5FU, Leucovorin and Oxiplatin. Typcial symtoms could not tolorate cold after treatment, slept alot. I worked full time through chemo. Felt exhausted and don't remember too much in this time period. Work and slept.
Sept. 2010 to Nov. 2010 - Oxcaliplatin, 5FU, Avastin. Oxc. not working changed to Irinotecan/Avastin. till April 2011. Tumor growth in liver and lymphnodes. Itinotean/Erbitux from June 2011 till present.
He is going to start his first chemo treatment on August 12th. (Avastin, 5FU, Qxaliplatin, Neulasta, Leukine, and Neupogen).
Oral chemotherapy taken on radiation days 08/10/2011 - 09/19/2011 No side effects. Folfox - Begin 01/10/2012 - End date due to non-cancer complications: 4/18/2012. To date: lip numbness when I go in the cold for a couple of days after treatment. Cold sensitivity to foods and drinks for the first few days after treatment. No issue with fatique or nauseu to date. Xelox to replace Folfox: 05/02/2012 No side effects. End date due to non-cancer complications: 06/05/2012.
Just began 5FU 5 days ago. First round.
5-FU started 6/27/11 hooked up to the pump 7 days a week for 6 weeks....ugh!!! Grueling. Side effects consist of nausea and vomiting, finished the first round 8/2/11. Now I have to continue 9/21/11 for 4 months... 5-FU, Oxaliplatin, Avastin & Leuc
Started FOLFOX Sept '11
Oxalipilatin/5FU/Leucovorin/Avastin Feb 2011- Aug 2011 with use of pump at home. Now on 5FU/Leucovorin/Avastin weekly. Side effects peripheral neuropathy, vomiting, behavioral changes
24/7 5FU with another drug u can't remember through port. Six weeks, 4 days, 12 hours.
Flu like symptoms and fatigue.
12 sessions
6 Months starting Dec 2, 2011. 5 hours every other week. 5-FU, Oxaliplatin and leucovorin. Will bring home 5-Fu in a bag for the weekend will run through port and bag removed on Mondays
Chemo-therapy of 5FU and Oxaliplatin started 3/12/2012 and finished 8/13/2012 administered every two weeks, and taking home an infusion pump of 5FU for two days.
Started 9 Nov on Poxy Oxy and capecitabine. Finding it tough, especially the first week. Been neutropenic on first 2 sessions so far which is causing delays.
Oxalyplatin, 5FU, Xeloda, Leuvecorin - Started 10/31/11, on 4th infusion 1/4/12
Chemo Wed, leave with bag, come back on Fri. Side effects neuropathy, fatigue, nausea, occasional constipation and/or diarhea
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