What are Brain Cancer Chemotherapies? List from Cancer Survivors

The below is a list that has been posted by the bloggers in this cancer community. There are 6807 cancer fighters that are members here. This is what they said, not what the doctors or nurses will tell you.

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Brain Cancer Chemotherapies

Adriamycin (Doxorubicin), Cyclophosphamide (Cytoxan), Cisplatin (Platinol, Platinol-AQ), Taxol (Paclitaxel), Methotrexate (Folex, Mexate, Amethopterin), Vinorelbine (Navelbine), Carboplatin (Paraplatin), Vincristine (Oncovin, Vincasar PFS), Avastin (Bevacizumab)

What Brain Cancer Survivors said about their Chemotherapies.

No chemo
Nothing early on with the low dose, extreme fatigue with the high dose/ On his 4th round, sleeps 15 hours or more a day. Little appetite. Has been nauseated on and off.
Timodar Started in March 2006 and still ongoing. Side Effects: NAUSEA!
Temodar, 150 mg during radiation increased to 350 5 days/month for 3 months, then increased to 450/month at present Side effects: fatigue
7/08-1/09: I took pills for 5 days each month. The first month was fine. I thought, "this is going to be e-z." Boy, I wrong! After that month, it was horrible!
Tremador - First set - daily dose for 3 weeks Not able to continue to the next set. Nausea, weakness, loss of appetite, Sleeping constantly
i was supposed to get 8 chemo's. but i only received 7 because my blood count wasn't up in time. i had "Vincristine" (iv)every week. Cyclophosphamide(iv)every 6-8 weeks. Cisplatin (iv), every other chemo, and Lomustine (pill) every chemo.
Temodar throughout radiation and now higher dosages (5 days on 23 days off). Fever, low platelets, fatigue
temodar 42 straight days
low dose temodar- little to no side effects b/c of my use of supplements
Mom had Temodar - just fatigue. Dad tried chemo (IV) - and wound up nearly dying from it. Placed in hospital twice and determined his body just could not handle it.
temador nightly before bed. also on a target therapy trial of avastin which was researched at duke hosptiol
Temodar 28 Days on 5 Off. 14 Rounds. Nausea, vomiting, weakness, mouth sores, fatigue.
Undergoing chemotherapy in Chennai, India. Started on July 12, 2009. Total 12 doses. Hair loss, vomiting, fatigue, loss of appetite, etc
Started Temodar on 11-23-09 380mg to much dosage, went to Hospital for low platelets 12-18-09 My platelets were at 6K !!!
Taking a Temodar pill for 2 months.more fatigue, and sickness.
Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
started 9/13/2010-7 days a week, temedar. nausea and vomiting forst two nights. was ok last night so we'll see.
Began 150mg Temodar on 1/3/2011 2nd Dose of Chemo to begin 3/17/2011
Scheduled for first time chemo (Temodar) in July 2011
Temodal - started Aug 15, 2011
Radiation & Temodar daily for 42 days then cycles of 5 days on 23 days off
At first it was the same as radiation, but when they got aggressive in August, I was stuck to the couch for 2 weeks. Weakness, major nausea, muscle and bone pain, throat swelling, mouth sores, major shivers and shakiness, tremors, spinal and head pain, throbbing from head to lower spine...theres more but can't remember them all.
Started temodar on November 9, 2011 140mg a day for 6 weeks - there has not been much happen in terms of side affects yet, some nausea
1/12/12 - begin taking daily chemo pill Temador (not sure how to spell that) for up to 12 months.
I had oral chemotherapy. I started taking it when I started my radiation therapy. I finished my chemo in October 2011. I took it every night 21 out of 28 days. I had to wait 2-3 hrs after eating to take it and another hour after taking it to eat or take my other medications. (I took Zofran, a nausea medicine, half an hour before my chemo.) One positive is it broke my late night snacking. My chemo has random side effects and the possible side effects ranged from one thing to the opposite. For example, it could cause constipation or diarrhea. I didn't read all the possiblities until I was almost finished taking it. That explained why I cried so easily. It was a side effect not just stress from dealing with cancer.
3 Cycles of Chemo - Cyclophosphamide, Vincristine, Cisplatin - Dec to Feb. (3 weeks apart) - Foot Drops and trips and falls 3 Cycles of Intensive Chemo with Autologous Stem Cell Transplant - Carboplatin & Thiotepa - Feb to May (4 weeks apart) - Hearing Damage
What more can I say other than YUCK! It has been very difficult thus far. Upon my first treatment I left the hospital, only to return a few hours later vomiting non-stop. Zofran hasn't helped. The only thing that does anything at all to combat the nausea is to drink plain green tea. I know it sounds weird, but it sometimes works.
Temodar 160 mg nightly began July 21, and continued during radiation treatments. Chris had to take Zofran with the Temodar, so he didn't get nauseous. He will finish the chemo up the chemo September 2, 2013. He will get 4 weeks off, and begin taking a double dose of the Temodar for the first five days of every month for the next six months.
February-continued weakness, tiredness, fatigue, sores in mouth
I tooke Temodar pills from 08/2013 to 12/2013. The main side effects that I had were fatigue and nausea. I found that by taking my Zofran a half hour before bed and then taking the Temodar right before I went to sleep, I was able to sleep through most of the side effects.
Temodar - no side effects yet, Praise God!
PCV 8/21/16 - still fighting
CLV- Cisplatin, Lomustine, and Vincristine Started in June of 2012 and stopped early at the end of December 2012, was supposed to have it till March 2013. Side effects were very bad and the tumour was not responding. Also used Steroids, anti-nausea meds and a daily antibiotic
02/06/2017 - 02/10/2017 (1st Round) 03/21/2017 - 03/25/2017 (2nd Round)
Avastin drip. 12/2009 - 2/2010. Nausea. Sidenote - everyday I'd go to a juice cafe where they had wheat grass juice. When I went for my last treatment, nurse told me my blood counts throughout treatment were spot on... It's worth researching as has many benefits. Please check with your doc as told it may not be appropriate for some during their treatment.
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