What are Chemotherapies? List from Cancer Survivors

The below is a list that has been posted by the bloggers in this cancer community. There are 7413 cancer fighters that are members here. This is what they said, not what the doctors or nurses will tell you.

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Breast Cancer Chemotherapies

What Breast Cancer Survivors said about their Chemotherapies.

To date, I have not had chemotherapy.
I've been in chemo since june 2011. I was taking 3 different kinds every three weeks but now have gone to just one kind. the initial treatments caused heartburn, hair loss, vision loss, hearing loss, skin discoloration, skin burns, nausea and vomiting, dizzyness, hot flashes, chemo induced asthma, chemo induced menopause, bone pain, I was not able to taste foods that were not sweet, there are many more but I feel like I"m whining...lol
AC, 3-2-11 lots of nausea, hurt to breathe through nose, blinding headaches (3-4 through 3-6), all-over weakness through the first week, leg and tailbone area pain.
June 4th 2016, every 3 weeks for 6 sessions. Maybe more after surgery. Chemo combo tch
Taxotere..Dec 2006-Apr2007. All the usual, numbness in fingers and toes, no taste, no appetite, constipation. The bone pain was the pits.
4 rounds of taxotere & cytoxan every 3 weeks. Started 3/3/11. Second round completed 3/24/11; had allergic reactions to both drugs. Third round done without reactions (super slow drip) on 4/14/11. Fourth & FINAL round completed 5/5/11, and grateful for being finished!!
took Docetaxol (Taxotere) after FEC - finished chemo July 22
December 1, 2010 will be my fourth round and then I will change to weekly Taxol. I have been fortunate in that I only feel badly for 4-5 days then I am back to doing what I need to, bald head and all. (Anyone with Taxol therapy could help me with details on this.)
Taxotere and Cyclophosphamide 2/8/18, 3/1/18, 3/22/18, 4/12/18. Extreme fatigue, light nausea, constipation, loss of taste, numb mouth and texture changes, hair loss.
Started chemo in May 2009, got a port so my viens are still good. Adriamycin: fatigue, hair losse, nausea, constipation. Taxol: PAIN, fatigue, chemo brain, PAIN.
2000 - Chemotherapy
26 weeks of chemo. 1X every other week for 8 weeks. Then weekly for 12 weeks. Continued with Herceptin drug Trail for 13 months, 1x every three weeks. Nausea to most foods and smells like coffee or strong perfumes. Wanted hot or cold things to eat....flu like symptoms showed up day 3-5 after chemo. No nuropothy! Did not throw up at all. Slept more days 2-3...weight loss but only a few lbs first 9 weeks then started to gain. Have gained 15 lbs since chemo ended due to hormone blockers I am on.
Four months of dose-dense chemotherapy along with a shot of Neulasta after each session.
breast cancer, Breast exam, breast check,breast screening,self breast exam,breast screening device, breast awareness, breast cancer, self breast examination, self breast check, breast cancer awareness, breast examination, breast cancer screening, breast cancer symptoms
6 cycles chemotherapy begining 11/12/07 complete hair loss, mouth sores, black nail beds, weight gain, inflamation, fatique, everything tastes like lead. Joint pain from Neulestra shot.
treatments spanning over 4 months. Felt poisoned and beat up the entire time.
Chemo sucked! It's a crazy way to slowly poison yourself and destroy every muscle that you have spent the last ten years working on. Chemo is barbaric and I will cheer the day when this is gone. Obviously, I don't work or support any drug companies.
Herceptin, carboplatin, perjeta, taxotere 6 total treatments, 1x/3weeks...Herceptin 1 full year
10/05-08/06 adriamyacin, very weak
Double chemo infusions, including "red devil", during the first round of chemo over eight weeks every two weeks. This was from late Oct 2014 thru mid Dec 2014. Side effects included hair loss, sensitive finger tips and toe nails, painful mouth and tongue with half my throat swollen by end of treatment, constipation and over all brain fog. The hardest to get used to is the stuffy nose and nose bleed when it clears. Single chemo included Taxol, Herceptin, steroids, benadryl, and anti-nausea medication. Side effects were a continuation of tender nails till they have started to detatch from their nail beds. Sore mouth with base of tongue muscle having difficulty moving food around in my mouth, which has gotten worse as therapy has progressed. Constipation is still an issue unless I forget to eat my bowl of raw veggies every day. Brain fog or mushiness has been an issue throughout this entire experience, hopefully this will discontinue with the ending of chemo. Tiredness has been my constant companion throughout this entire experience also. Also, my constant stuffy nose that clears off and on and bleeds every time. I'm often awakened by my nose bleeding.
Started Adriamycin/ Cytoxan infusions every 3 weeks, June 28, 2011. Would keep me pretty much bedridden for 2 of the 3 weeks.
to come
Pending. I have only been told of what the drugs of choice will be and I can plan on being bald.
6 treatments from March 3, 1994 to June 29, 1994. Started with Taxol Study. Received high-dose Cytoxan 3980 mg and Adriamycin 74.6 mg for 2 cycles. Except for the 1st and the last, blood transfusions were required after every treatment due to low hemoglobin. I developed a blood clot in my right arm shortly after the first blood transfusion in April and had to be hospitalized and put on coumadin for 3 months. Had to be taken off Taxol Study because I could not take high-dose Cytoxan/Adriamycin and Coumadin. I was given Cytoxan 995 mg, 5-FU 995 mg and Adriamycin 99.5 mg for the next 4 treatments. The Adriamycin damaged my heart muscle. Other side effects were nausea, some vomiting, sores in mouth, diarrhea, heartburn, fatigue and complete loss of all hair. 6 treatments from January 20, 2006, to June 2, 2006. I was given a CMF combination of 1200 mg of Cytoxan (Cyclophosphamide), 80 mg of Methotrexate and 1200 mg of Fluorouracil (5-FU). This bout with chemo was much easier than the first. I also had a blood clot in my lung in February, 2006, and was hospitalized for 7 days and put on coumadin for 18 months. Other side effects were minor nausea, fatigue, sore mouth, minor diarrhea and only thinning of my hair. I don't know which one but one of the chemo drugs damaged my right eye and I am still having problems with it. The worst thing to happen was the death of my husband and my boston terrier dog in May during this bout of chemo.
started chemo end of may and finished it july 15th,had 4 altogether,side effects were severe bone and muscle pain ans sickness

Prostate Cancer Chemotherapies

What Prostate Cancer Survivors said about their Chemotherapies.

none yet
taxater, didnt do anything,6 treatments, mitotaxatrine, still on it, barely any side effects due to the vit c drips
Docetaxel, 8 sessions in 2014; extreme fatigue, neuropathy, loss of hair
N/A Chemo poisons; cannabis brings about programmed cell death.
NONE!!
Declined
Taxotere, Jevtana

Lung Cancer Chemotherapies

What Lung Cancer Survivors said about their Chemotherapies.

3 days chemo every 21 days. Hydration as needed. Tiredness and nausea/vomiting at times.
Chemo also started on 10/10/07 and its once a month for 3 days in a row.
Tarceva (EGFR+)12/12-6/14 fatigue, mouth sores, toenail issues, rash Afatanib 6/14-12/14 fatigue, diarrhea, toenail problems Didn't work. Carbo/Taxol 12/14-4/15 lost hair, neuropathy, nausea, fatigue, dizziness, neutropenia. Alimta 4/15-7/15 No SE Didn't work, though. Gemzar/cisplatin 11/15-12/15 Neutropenia, counts bottomed out Iressa 12/15 only worked for a couple of weeks before progression resumed hard and fast Tagrisso (T790M+) 1/16- current
starting the 2nd week of August 2013
Chemotherapy started on March 1st
carboplation and alimpta 4 treatment rounds, a lot of pain and nausea and increasing weakness
None to date - The surgeon and oncologist felt that I should wait before starting chemo or radiation and be on the anti-fungal medication, indicating at least a year, to see if once the infection was gone, the remaining spots in my lungs would be gone. In January of 2010, I lost my job, medical insurance and the financial ability to continue the meds. I've recovered enough to find work and have been there long enough to receive medical insurance...now to find the courage to return to the doctor and take up where we left off, uhhh less the pre-existing conditions...to be continued...
2007 April til present so far 5 rounds Taxotere Carboplatin Avastin Emend for nausea Aranesp for red blood Neulasta for white blood etc.....
Iressa (gefintib)
one treatment . switching to Afatinib
Fatigue, acne, diarrhea, numbness and pain in fingers and feet, no appetite, foggy-brained, rheumatism, sensitive to sunlight, no taste, fungus in mouth and lung, partial loss of hair
6 weeks may June 2016
One a day pill forever (took 150 mg for 2 years). Down to 100 mg due to vertigo, fatigue. Other side effects, slow/non hair growth, rash, dry skin, dry mouth
Navelbine and cesplatin (4 months) July 20017- Octber
Started with nine drops of Taxol and had an allergic reaction that caused me to stop breathing. Then switched to Gemzar and Carboplatin. Had some nausea but started taking Emend....VERY tired.
Start Chemo May 18th 2007 Cisplaton and Etoposide
Taxol, Carbo, Avastin (pain, nausea and vomiting, fatigue, confusion). Zofran was the BEST anti-nausea drug and I tried them all. Broken pelvic bone, NEUROPATHY (very bad so I am on an anti-seizure drug to control it). Tarceva, Alimptor...
Four treatments, most recent on 4 August, #5 scheduled for 25 August. Side Effects - minor nausea, extreme fatigue, loss of appetite and sense of taste and smell. carboplatin and Alimta (pemetrexed)for #'s 1-4. Provider stopped shipments of carboplatin so #5 and any remaining will be only the Alimta.
October 18 th and every 3 weeks for 4 treatments. Nausea and joint cramping, some neuropathy.
Started chemo on July 7, 2016 - May 5, 2017 Side effects - nausea, vomiting, mouth sores
6 weeks, 3 weeks apart
chemo fog.
I begin chemotherapy on the April 8th. 4 rounds of 3 weeks each of Vinorelbine and Carboplatin. (Originally Cistoplatin but the doctor changed it cuz my ears were ringing)Worst side effects are feeling like lead and/or rubber, forgetfulness, weight gain, insomnia and aching bones, muscle and skin.
8 total cycles...6 while undergoing radiation (reduced rate) followed by 2 of triple dose after radiation.
Carbo/Alimta 07.2008 Carbo/Taxol - Got taken off Avastin after pulmonary embolism. (nausea, vomiting, fatigue) 02.2009 Carbo/Alimta - Developed allergy to Taxol. (anemia, fatigue) Radiation therapy.

Bladder Cancer Chemotherapies

What Bladder Cancer Survivors said about their Chemotherapies.

Had Chemo biweekly starting Oct. 13, 2016 ending 1/20/17. Main side effects were fatigue, amnesia, hair loss, constipation. I do not know the drugs they used. It was a cocktail.

Non-Hodgkin Lymphoma Cancer Chemotherapies

What Non-Hodgkin Lymphoma Cancer Survivors said about their Chemotherapies.

R-CHOP side effects are nausea, fatigue, hair loss, and chronic diarrhea. I lost 15 pounds - no complaints about that! Ativan was very effective in treating the nausea, but made me very sleepy.
CVP-R So far I have fatigue and prednisone make me anxios and nervious
R-CHOP R-ICE ESHAP
R-Hyper CVAD (6 cycles) followed by High-dose Methotrexate (2 cycles)
R-CHOP 21 Mouth Sores Steroid Withdrawl
Since Aug07 : 6 R-CHOP plus 2 Ritux every 21 days. I feel my stomach going up and down for at least a week after the cure. Then I feel "well" for 2 weeks.
6 rounds RCHOP-June-September 2019-Fatigue & hair loss.
RCHOP, 5/9/2019. back pain, lethargy, nausea
R-Chop, eight sessions one every 3 weeks. Side effects: nausea, loss of appetite, some muscle aches, hair loss, effected my eye sight - had to wear eyeglasses since the 4th chemo.
sickness, weakness, no appetite, lived off cereal, and jello for a week, no taste,increase in smelling sense was intense 12/24/2005 was the first treatment.
Chop therapy for 7 months
non yet
R-CHOP (August 2017-December 2017), Interstitial pneumonia Relapse in March 2018 in one (axillar) region Dexa-Beam (May 2018-July 2018), no effect from the treatment, relapse (lymph nodes in cervix, mediastinum, abdomen, ingvinal region)
r-chop 21 6 rounds every 21 days from 16th march 2010,feeling sick,tiredness,i bit high on the steriods for 5 days after each chemo,urinating more frequently,dry mouth,food tasting bland,loosing hair,compleatly,eyelids swelling and watering,fingernails going dark,shall I go on.
1st treatment, August 23rd, 2011...which is tomorrow, so I don't know what side effects I'm going to have.
Began a course of Hyper C-Vad July 4th weekend. Rixutin was the first drug administered and it caused me to stop breathing very frightening. Other side effects extreme tiredness, mouth ulcers, nausea, and hair loss.
R-CHOP
R- chop
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
Rituxan, Treanda and Neulasta with minimal side effects.
RCHOP
RITUXIN 10-2010 - present Fludaraben 10-2010 R-chop 1-2011
R-CHOP starts 8/26/10 Major Side Effects Day 1-3 Headache and Diarrhea Mouth Sores Days 3-6 TCH starts 4/23/18
Started11/15/2012, every 21 days until 03/06/2013. Had neuropathy, vincristine stopped for 2 cycles,better, then resumed 5th cycle. Had some issues with breathing-felt like I had eaten a lot of mints, treatment postponed for a week, got chest x ray, nothing wrong. Was tired with each cycle, but trudged through. Prednisone helped. Lost taste for some foods, but never lost my appetite!
RCHOP every two weeks. 6 times in total. Side effects were fatigue, nausea, complete loss of hair, dry mouth, weight gain, joint pain, weakening of bone density, etc....

Melanomas of the Skin Cancer Chemotherapies

What Melanomas of the Skin Cancer Survivors said about their Chemotherapies.

Fluorouracil treatment started Sept 2010 Fluorouracil treatment started Aug. 2011
Taxol, a pain in arm and in the Ass.

Kidney Cancer Chemotherapies

What Kidney Cancer Survivors said about their Chemotherapies.

no treatment yet?
Afinitor (everolimus) tablets daily, started on March 17, 2011
Votrient
4 months, Oct. 2010-Feb. 2011 Avastin and Interferon
My husband was on a trial for a new chamo for renal cancer called "Sutent". He made no progess and instead suffered significant side effects that we believe plunged him into a spiral of ever increasing side effects of his cancer.
On my third treatment and then will have a week off
50mg sunitinib/sutent on a 28/14 cycle. I've had minimal side effects, but I just finished my first four weeks "on".
Methotrexate, Doxyrubicin, Vincristine, Vinblastine, Cytarabine, Etopomide
As of 8/3/11 on second cycle of Sutent, 28 on 14 off

Pancreatic Cancer Chemotherapies

What Pancreatic Cancer Survivors said about their Chemotherapies.

About to start chemotherapy
Gemazar.... So far, nausea and weakness
Oxaliplatin,Calcium Leucovorin,Camptosar,Florouracil
Initially 2 rounds of Folfirinox, that increased liver enzymes and CA-19-9
Pill form chemo winter 2009...threw up at end of each round
One round of Flourouracil but side effects were severe and patient chose to discontinue. Side effects were nausea, uncontrollable diarrhea
Mar 4 _ Sept 15 2015(Folfirinox)Nausea, weakness, vomiting, low potassium, low platelets (despair)
aggressive weekly treatments of chemo for 2 months
Extreme fatigue, delerium
xeloda pills for two weeks then a week off.
Tiredness and oain
June 2012-October 2012; Reported Lethargy, nausea, changes in taste, neuropathy in fingers, weight loss.
5-Fluorouracil (5-FU) My sister gets chemo every other week. Her main side effect is diarrhea. She has had 3 chemo fusions so far. She has diabetes and the chemo she receives has glucose in it so when she receives the chemo her blood sugar level goes sky high and she gets severe headaches. She then takes additional insulin following the chemo to help bring down the sugar levels. I am amazed at the medications that help her symptoms. When told she was going to have "bone pain" after a shot to boost her platelet count, she was told to take "Claritin".
Started 12.1t.16
Nine rounds of Folfirinox treatment before surgery and more after.
given up on dates the first time on chemo was 7 months and this time has been 9 months
mid july to November 2015 Gemzar eight treatments, xeloda for 28 days on radiation days. Started Folfox regimen 09/20/2017 for recurrence.
3 sessions on Folferinox in September and October 2019. Scan on 17 October showed spread to liver (spots) and tumour growth. Folferinox side effects were fatigue, pain and breathlessness.
Gemcitabine (Gemzar)
Gemzar, Taxotere and Xeloda
Chemo #1 on 4/02/10: I was more tired then usual and had a "blah" moment after going outside for a few minutes.
will be starting after Christmas
I do not remember all of the names. The chemo was a combination of four different chemo drugs. It did not work. My father experienced nausea and could not taste anything so lost his appetite. He also was very sensitive to temperature. We are still waiting to start a trial chemotherapy drug! Pray, pray, pray!
Chemo once a week from 4/2/10 to 6/01/10: Was tired the next day with small "blah" moments.
Carboplatin and Taxol started June 10, 2016 December 2015-April 2016 Cisplatin and Gemzar we only switched because he had 6 rounds of this. It did keep the cancer from growing.

Oral Cancer Chemotherapies

What Oral Cancer Survivors said about their Chemotherapies.

2 cisplatin 3/22/2011: nausea! and fatigue!
1st and 4th week of Radiotherapy treatment, chemotherapy was also performed. 24 x 5 delivery of 5FU with a Cisplatin infusion on second day of each of these weeks. Side effects included a 'Chemo crash' both weeks I had the treatment - second week worse than the first (required blood transfusions).
Cisplatoin 1x week for 7 weeks Dates: Aug 2011 through Nove 2011 Side Effects include; Nausea Hair loss from both radiation and chemotherapy Eyesight has deteriorated a little weak
Waiting for petscan results to see if lymph nodes involved
Erbitux, once a week for 7 weeks, starting in August. Initially, severe tongue sensitivity (at one point even water was like battery acid). For most of the treatment time, daily nausea and and severe acid reflux with occasional vomiting. As of today: chemotherapy induced neuropathy of the right leg causing the inability to lift my toes or my ankle (currently wearing a brace), but expect this to improve; whatever contribution Erbitux has towards complete dry mouth and lact of taste.
3 total - week one - week three and week five easy to do - no issues during treatment lost my beard and hair - so I shaved it short to look like I did it on purpose - wore a crocheted cap - head was always cold.
We can cure this without Chemo. . . I'm going to do it!

Ovarian Cancer Chemotherapies

What Ovarian Cancer Survivors said about their Chemotherapies.

I started chemo on Dec 3, 2012. I need to complete 6 treatments of Carbo and Taxol. My treatements or given over a period of 3 weeks. The first week I receive the full carbo dose and 1/3 of the taxol. The next two weeks I recieve the remaining taxol. I am having trouble keeping my WBC up with the weekly treatments. I had to have Neupogen shots to help give them a boost.
I'm on my 4th round of chemo treatment in 3 years time. This round is 2 days a week. Side effects are joint pain, nasea, vomiting, diarrhea, night sweats, loss of appetite, hair loss, irritability, exhaustion, and thankfulness for each day
Started chemo July 7,2011--6 sessions of Taxotere and Carboplatin--first 2 treatments were horrible, nausea,got dehydrated, had to go to hospital for fluids and unable to eat or drink--started losing hair after 2nd treatment--hard to take--got nausea straight but still had metal taste in mouth and unable to drink or eat for about 2 weeks after chemo--couldn't really eat till the week before treatment time again--hardest thing I have ever gone thru in my life--and it still is chemo or not--finished chemo 10/18/11 & happy to say cancer free--still have side effects--the numbness and hair is taking it's time growing back--but I am happy to be here and alive.
1.Carnoplatin/Taxol...March 30 2016 & continued for 18 straight weeks plus 4.5 blood transfusions 2.Folfox...May 2017 4 infusions then stopped because it wasn't working...
7-2010 IP/IV chemo x 6 cycles ( cisplatin/taxol/carboplatin) Hair loss, extreme fatigue, abdominal pain... 11-2011 ca125 on the rise. 4/6 cycles complete of topotecan. Ca125 back in its place. BRCA 1 Minimal side effects: reasonable fatigue and well controlled nausea.
Taxol/Carbo every 3 weeks. At 2nd round, Avastin was added to the mix & will receive for round 3 & 4 as well.
18 consecutive weeks of chemo with Taxol and carboplaten then 2 treatments of Doxil
<b>February 2009:</b> CA125 level was around 3500. She began treatment with Taxol/Carbo with Avastin. Within two weeks, she lost all of her gorgeous red hair. Energy level dropped significantly. She continued having "maintenance" chemo. <b>June 2009:</b> CA125 dropped to 32, and then to 16 later that month. Oncologist decided to stop chemo- as there was no sign of cancer! <b>March 2010:</b> Having chest pain/shortness of breath. CT scan showed fluid in her lungs. Testing after thoracentesis revealed cancerous cells in the fluid. CA125 was back up to 300. It is now referred to as "RECURRENT CANCER" She began chemo again: Cisplatin and Gemzar. Cisplatin was causing tinnitus. Oncologist decided to discontinue to avoid permanent hearing damage. The Gemzar would usually burn during infusion. Side effects: headaches, intense nausea and often uncontrollable vomiting. Drastic decrease in appetite (and weight: about 70lbs) Last time it was checked, her CA12 was hovering around 86. I'm guessing it's currently off the charts.
3 rounds, carbo/taxol
Carboplatin, taxol, avastin, and a PARP inhibitor for 6 rounds, then remission for about 7 months. Then more carboplatin and taxol for 3 more treatments until I became resistant, then onto the MEK/Milo trial. Failed that after 2 months, now looking into immunotherapy
My doctor said there wont be malignancy as the tumor was encapsulated, but it would be safe if i undergo 3sessions of chemotherapy. So i opted for chemo and had vomiting and hair loss while on therapy
IP chemo. Taxol and Cisplatin. She has suffered from the following effects: fatigue, nausea, heart burn, pain in her lower abdomen, numbness/tingling in her hands, legs, feet and "chemo brain"
I have had chemo in 2004, 2009, and 2012. each chemo has been different than the one before. With my most recent round I was very nauseous and sick. Lost my hair with all of them and had muscle and bone pain. I also developed an orbital pseudotumer as a reaction to the carboplatin and had to be put on prednisone steroids. This will now be required anytime I am on carbo. It started as a twitching and watery eye almost like with allergies. The eye then swelled shut and was very painful.
6 rounds of Carbo Platinum and Taxol from 3/18/05-7/8/05 major side effect after the chemo was stopped: fatigue, memory loss Started chemo again in October of 2008. Taxol, Carbo Platinum and Avastin. Switched the taxol to taxotere after four rounds because of neuropathy. Major symptoms, nausea, fatigue, nose bleeds, low white blood cells, memory loss, did I mention fatigue?
Declined chemotherapy
Carbo and Taxil, 6 cyles. Deep bone pain, dizziness, blood clot in lung, breathless
6 treatments chemotherapy (carbo/placing/Avastin
Dizziness and low blood pressure
cistplatin, bleomyocin, etopiside, numbness in hands and feet nausea and weakness major chemo brain
six infusions of carbo/taxol every 3 weeks from 3/13 to 6/13 six more infusions carbo/taxol every 3 weeks from 1/15 to 4/15 three infusions doxy every 3 weeks from 8/15 - severe rash - discontinued several infusions every week gemzar from 10/15 to 2/16 tanked white count and increased acities - discontinued avastin/taxol every 3 weeks from 3/16 to present
intraperitoneal taxol and cisplatin, 6 - 10/06 (heinous, too long to describe); HIPeC something-or-other intraoperatively 10/07 (really ghastly); IV carboplatin and gemcytabine, 2 - 5/08 (some hair loss, fatigue); sunitinib clinical trial 2/09 (painful hands and feet, fatigue); doxil, 3/09 (fatigue); taxol and carboplatin 5 - 9/09 (hair loss, fatigue, neuropathy, tinnitus); Avastin 10/09 to present (runny nose)
Combined carboplatin and taxol, both administered systemically by IV started August 10, 2011, with last cycle administered November 23, 2011. Side effects included: nausea that was only gotten under control after the second administration using about 5 drugs; intense fatigue; muscle and joint pains that were reduced with tylenol and later greatly reduced with gabopentin; intense neuropathy in hands and feet, but even lips and chin until the gabopentin took the edge off that, too. Neuropathy still intense in first week of every cycle. Other side effects included intense fatigue, weakness, vision problems on two occasions (blindness in one eye when reading lying on side), severe constipation, and cognitive effects (short term memory dysfunction, inability to solve puzzles, inability to multitask or withstand multiple stimuli at once). There's talk of giving me a PARP-inhibitor for maintenance therapy in 2012. Constipation for 9 months! No, wait. Make that FOREVER! Seriously. Til my dying day.
weakness, dehydration, diarrhea, constipation
June 19th 2016 no serious side effects.
march-june 08: 6 taxotere/carboplatin november-april 09: 6 taxol/carboplatin oktober-? 09: started caelyx/carboplatin every side affect you can imagine

Thyroid Cancer Chemotherapies

What Thyroid Cancer Survivors said about their Chemotherapies.

HAD 7 TREATMENTS ONE A WEEK FOR 7 WEEKS SIDE EFFECTS WAS MINIMUM DID NOT LOOSE HAIR JUST WEAKNESS OR LARTHARGIC MOOD ...
Radioactive Iodine treatment, 8/09 - nausea
Thyrogen injection #1: 4/14/10 - stings #2 - didn't feel a thing RAI-131: 4/16/10 - 203.9 units - so far, so good.
RCHOP 21. Three rounds total. 11/2/0, 11/23/10, and 12/14/10. Worst effects so far: heartburn to point of esophageal spasms, constipation, headache, mouth tenderness and dryness, fatigue and hair loss. This was for the Lymphoma. No chemo (so far) for thyroid cancer.
Sutent currently

Stomach Cancer Chemotherapies

What Stomach Cancer Survivors said about their Chemotherapies.

Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
4 months...not helping
Folfox, nausea/vomiting
Chemo every 2 weeks, nausea, vomitting.
Exhaustion nausea Going on my 86th treatment
Began chemo in July of '09 with camptosar, leucovrin, and 5-fu. this is over a 46 hour period. In January '10, they added avastin and zometa to the regimin and is ongoing.
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.
3/15/14 Began 10 session clinical trial at Memorial Sloan Kettering. Chemo iv (cisplatin and epirubicin + trial drug/placebo) every 3 weeks. 2000mg Xeloda pills daily. IV chemo is followed by two days of dextametazone (steroid pills) which give me a boost. Hair loss, dry hands - currently trying to prevent them from cracking, some fatigue. Trying to avoid pain meds because that seems to be the cause of constipation/discomfort.
Cisplatin, Epirubicin, Capecitabine (Xeloda) #1 June 12, 2017, #2 July 4, 2017 Nausea, Dry mouth, Tingly fingers, blood clot in spleen, hair loss
No help says' the doctor.

Brain Cancer Chemotherapies

What Brain Cancer Survivors said about their Chemotherapies.

CLV- Cisplatin, Lomustine, and Vincristine Started in June of 2012 and stopped early at the end of December 2012, was supposed to have it till March 2013. Side effects were very bad and the tumour was not responding. Also used Steroids, anti-nausea meds and a daily antibiotic
Temodal - started Aug 15, 2011
temodar 42 straight days
I tooke Temodar pills from 08/2013 to 12/2013. The main side effects that I had were fatigue and nausea. I found that by taking my Zofran a half hour before bed and then taking the Temodar right before I went to sleep, I was able to sleep through most of the side effects.
started 9/13/2010-7 days a week, temedar. nausea and vomiting forst two nights. was ok last night so we'll see.
Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
Started temodar on November 9, 2011 140mg a day for 6 weeks - there has not been much happen in terms of side affects yet, some nausea
Began 150mg Temodar on 1/3/2011 2nd Dose of Chemo to begin 3/17/2011
3 Cycles of Chemo - Cyclophosphamide, Vincristine, Cisplatin - Dec to Feb. (3 weeks apart) - Foot Drops and trips and falls 3 Cycles of Intensive Chemo with Autologous Stem Cell Transplant - Carboplatin & Thiotepa - Feb to May (4 weeks apart) - Hearing Damage
7/08-1/09: I took pills for 5 days each month. The first month was fine. I thought, "this is going to be e-z." Boy, I wrong! After that month, it was horrible!
Tremador - First set - daily dose for 3 weeks Not able to continue to the next set. Nausea, weakness, loss of appetite, Sleeping constantly
February-continued weakness, tiredness, fatigue, sores in mouth
No chemo
Scheduled for first time chemo (Temodar) in July 2011
Started Temodar on 11-23-09 380mg to much dosage, went to Hospital for low platelets 12-18-09 My platelets were at 6K !!!
I had oral chemotherapy. I started taking it when I started my radiation therapy. I finished my chemo in October 2011. I took it every night 21 out of 28 days. I had to wait 2-3 hrs after eating to take it and another hour after taking it to eat or take my other medications. (I took Zofran, a nausea medicine, half an hour before my chemo.) One positive is it broke my late night snacking. My chemo has random side effects and the possible side effects ranged from one thing to the opposite. For example, it could cause constipation or diarrhea. I didn't read all the possiblities until I was almost finished taking it. That explained why I cried so easily. It was a side effect not just stress from dealing with cancer.
1/12/12 - begin taking daily chemo pill Temador (not sure how to spell that) for up to 12 months.
i was supposed to get 8 chemo's. but i only received 7 because my blood count wasn't up in time. i had "Vincristine" (iv)every week. Cyclophosphamide(iv)every 6-8 weeks. Cisplatin (iv), every other chemo, and Lomustine (pill) every chemo.
Mom had Temodar - just fatigue. Dad tried chemo (IV) - and wound up nearly dying from it. Placed in hospital twice and determined his body just could not handle it.
Timodar Started in March 2006 and still ongoing. Side Effects: NAUSEA!
Undergoing chemotherapy in Chennai, India. Started on July 12, 2009. Total 12 doses. Hair loss, vomiting, fatigue, loss of appetite, etc
What more can I say other than YUCK! It has been very difficult thus far. Upon my first treatment I left the hospital, only to return a few hours later vomiting non-stop. Zofran hasn't helped. The only thing that does anything at all to combat the nausea is to drink plain green tea. I know it sounds weird, but it sometimes works.
Temodar 160 mg nightly began July 21, and continued during radiation treatments. Chris had to take Zofran with the Temodar, so he didn't get nauseous. He will finish the chemo up the chemo September 2, 2013. He will get 4 weeks off, and begin taking a double dose of the Temodar for the first five days of every month for the next six months.
Nothing early on with the low dose, extreme fatigue with the high dose/ On his 4th round, sleeps 15 hours or more a day. Little appetite. Has been nauseated on and off.
At first it was the same as radiation, but when they got aggressive in August, I was stuck to the couch for 2 weeks. Weakness, major nausea, muscle and bone pain, throat swelling, mouth sores, major shivers and shakiness, tremors, spinal and head pain, throbbing from head to lower spine...theres more but can't remember them all.

Multiple Myeloma Cancer Chemotherapies

What Multiple Myeloma Cancer Survivors said about their Chemotherapies.

began 12/1/14 - 4/30/15 (Velcade, dexamethasone and cytoxin), Cytoxin priming 6/5/15, Stem cell transplant6/16/15 and Malthalon 6/25/15 , also neuropathy (mild) in parts of hand and feet.
8/13/15 Cyclo,dexamethasone, velcaide, huge stomach, very nauseous,no life. After5 1/2 months fired oncologist and went to natural treating dr.
January 2006 and May 2006 stem cell transplants with hi dose malthalon chemo resulting in malthalon misery - tired and more tired.
Velcade, Decadron, Revlemid. Mostly fatigue and a slight loss of appetite.
1st cycle December 2010. Loss of hair.
March to October 2010.Four treatments every 3 weeks. Velcade, Dex and Zometa. October 2010 went to 1 treatment every two weeks, same medication.Still on this schedule as of this date Mar 8, 2010
Revlamid - daily - ongoing
4 monthly rounds of VAD prior to allogenous bone marrow transplant.
Velcade, dexamethazone, since transplant just added revlamid
18 series VRDD and VRD so far
Thalomid: Fatigue. Red spots that eventually covered my entire body. Neuropathy in feet and hands. Revlimid: rash, upper body.

Colon and Rectal Cancer Chemotherapies

What Colon and Rectal Cancer Survivors said about their Chemotherapies.

Every other week
As soon as we get the radiotion date my mom is going to start with her chemo.
Chemo-therapy of 5FU and Oxaliplatin started 3/12/2012 and finished 8/13/2012 administered every two weeks, and taking home an infusion pump of 5FU for two days.
not yet scheduled
f5u-dec/07 to june/08 side effects the works!! mouth sores,nausea,fatigue,on and on!
Started Chemo April 10th for six weeks. She has a pump and she will wear it 24-7 the entire six weeks. With in 24 hours she had nausea and said she felt like Blah.
Started October 28, 2009 5FU 24/7
folfox 4 for 6 months...Oxaliplatin caused permanent, extreme peripheral neuropathy. Imagine your feet telling your brain that they are in severe pain 24x7 and that they are cold no matter how hot they are. The brain cannot handle that constant messaging and the results are not pretty...mentally and physically
11/06-oxaliplain,xeloda....tingling and cold sensitivity in hands and feet, fatigue 11/07-irinotecan, avastin, 5FU, diahrrea, fatigue, burning and cramping in abdomen started erbitux january 2010, adding irinotecan this week, sept 20, 2010...post-note that irinotecan caused so much diahrrhea I became too hydrated and wound up in hospital. i had a blockage too, but just sayin'! ;)
Bi-weekly chemo. Energy levels vary. Diarrhea, one day only usually. Keep hydrated.
FOLFIRI w/ Avastin 4/2009 - 11/2009, FOLFOX 12/2009-2/2010 Nausea and fatique
I started folfox with Avastin in April 2010, did 12 treatments & had my last one on Sept 7th, continued with Avastin til beginning of January 2011. I was already sensitive to the cold before I started oxali, it was horrible, my fingertips & feet still have that slight weird tingle to them, it's Feb. My oncologist & I agreed to start irinotecan after my surgery to knock things out for good.
6-500 mg per day that I have radiation. Xeloda. Some nausea, light headedness, jitters, diarrhea,
No chemo ever.
March - August 2005 Luecovorin, 5fu, and Oxaliplatin. Had issues with joint and muscle pain, skin peeling, Neuroathy (with cold things/and taste) Minimum hair thinning and minimum nausea, fatigue was an issue. This was 3 days a week every other week both at office and home. 2008-Fulfury- was very very sick, constant nausea and vomiting, fatigue, only did two treatments and quit, because I was so sick it felt like the chemo was killing me. This was also a take home bag 3 days a week every other week. 2010- Urbetux (Erbitux) not sure of spelling with a benedryl cocktail pre-treatment to stave off allergic reactions,This is once a week for a few hours every week, has mainly caused skin issues, Acne like rash that has turned into cellulitis (skin infection) in some spots, I am now on antibiotics strong enough to fight MRSA just in case and pain meds as it is very painful, but it's getting better and in 2 weeks I will go back and we will see where it stands as far as do we have to cut my dosage back?
Oxilioplatin for 5 weekly sessions along with Xeloda twice a day during radiation days. Felt alright for the first two days after the IV of oxilioplatin (probably because of the steroid and anti-nausea meds) but then hit a wall the rest of the week and was pretty run down. Felt almost back to normal by Monday, but then had to do the whole thing over again.
24/7 5FU with another drug u can't remember through port. Six weeks, 4 days, 12 hours.
Bart has and still is undergoing Chemo. Bart has stage 4 Cancer. Bart's treatment of the tumor on his liver caused sloughing of the skin of his feet and hands. He is now on Erbotax. All tumors continue to shrink, and he feels great. Works most everyday he wants, as usual.
Chemotherapy 10 months - 2012/2013 - severe neuropathy in feet remains, usual side effects: hair loss, skin problems, sores in throat and esophagus, finger nails fell off, sick and tired.
Started FOLFOX Sept '11
One month off after the radiation concluded. I go in every third week to receive and IV of Oxilyplatin. I take 1650 mg of Xeloda twice daily starting with the date of iv, and lasting for 14 days. Thus far I've received 2 of six iv treatments. Side effects have been marginal and temporary. Sensitivity to cold lasts around 3 days. Some tingling in the hands and arm where the iv went in. Goes away after a few days.
Alt Folfiri/Folfox 2010/Feb through 2010/June Folfiri/Erbitux started 2011/March Changed to Folfox/Avastin 2011/Oct Clinical trials 2012/Sept
severe dehydration, potassium def. diarrhea
2 cycles of 5-FU, FOLFOX for tumor, R-CHOP for B-Cell and now 6 cycles of FOL-FIRI
I had my 1st chemo treatment on 12/10/07. If cancer cells remain, they are microscopic and floating around in my body and being ZAPPED by chemo! I qualified for a trial and receive Erbitux (usually for metastatic cancer) every week (which causes acne). The nausea is gone for now, mouth sores are fading, and acne is blossoming. The Oxilaplatin will be decreased next time due to the mouth sores. It also causes Neuropathy.

Liver Cancer Chemotherapies

What Liver Cancer Survivors said about their Chemotherapies.

11-19 chemo pellets not sure of the name, nausea,
On going chemo regiment and had one chemoembolization.
TACEdeb procedure begining of June....side effects... all haha vomitting, nausea, fever, pain, pancreatitis.
Nexavar 8/22/12 - forever, side effects all listed
Nexavar - Current (8 months)
First treatment was June 8th 7 hours between the other meds olus the chemo..Cisplatin and Gemzar.. Felt ok the day after but then started feeling very sick, achy, headache, ringing in ears, coulnt eat, weak, dizzy,tired,shaky all over I only felt well enough to go to the doctor on the 7th to have my blood drawn..saw dr and he said he would up my steroids next time and that should help second treatment was on the 8th, Just the gemzar.. Really tired and achy. Dizzy and weak. Had my shot of Lewnasta on Monday. Still fell tired and bone pain
Nexavar for 6 months. Infusion therapy started 2 weeks ago and ongoing bi-weekly.
every kind, all the time for the last 5 years
No chemo as no primary cancer found and chemo will only add a few months to life, yet these extra few months will be with the side-effects of chemo
7-2008 to present. Lethargic, no appetite, not able to focus for too long on anything, weight loss, strange thoughts, sleep seems to be all REM, dreams and or nightmares about Nam seem to pop up while I'm awake,anger, especially at the VA for not stepping up and admitting and approving my claims.
Tried Nexavar for one day, but decided against it; bad side effects--felt cloudy, nauseated like when I was on Interferon/Ribaviron and had rectal bleeding from the Nexavar; not worth it to buy a few more months of life; discontinued
i will tell you

Cervical Cancer Chemotherapies

What Cervical Cancer Survivors said about their Chemotherapies.

Sept 6-Nov 6 2008: every three weeks for 6 hours. Side effects: hair loss, tired, and sore from the Nuesta shot, but overall not as bad as it could have been.
Oct 07 to Dec 07 - Cisplatin chemo 1x a week with radiation;. Constant terrible nausea, very sensitive to tastes and smells. Ate only carbs, couldn't even stand the smell of my dog! Everything nauseated me. Aug 08 to Dec 08 - Carboplatin and Paclitaxel every 3 weeks x 6 doses. Hair gone by 2nd treatment, fluid overload on chemo days due to drugs being hard on kidneys - had to flush. About 2-3 days post chemo, horrible bone pain, numbness and tingling in hands and feet (peripheral neuropathy) and constipation that almost hospitalized me. Would last for a week or so and then settle down. Horrible fatigue, felt like lead. My hair started coming back really quickly after treatment stopped,but the neuropathy lasted almost a year, fatigue continues to be a problem. UPDATE Feb/10: Going back for another 6 rounds of the not so pretty poison. Carbo/Taxol once again. Gonna miss my hair...oh yeah, and the ability to feel human!
Intravenous Ferritin + Cisplatin: 04/16/2019 and 04/25/2019 Cisplatin every Thursday: 05/02, 05/09, 05/16 (Low WBC count, rescheduled), 05/23, 05/30, 06/06/2019 Side effects: Skin staining from ferritin on left forearm, anemia, loss of appetite, weight loss, nausea, vomiting, IV infiltration, fatigue, headache
Extreme nausea, vomiting, some tingling in my toes.
That also starts withen the next 3 weeks.
Metallic taste heart burn mild nausea ringing in ears
Cisplatin for 6 weeks Cisplatin & Topotecan for 4 21 day interval treatments. 3 day duration of treatment. CHEMOTHERAPY TREATMENTS are the treatments that made Aimee sicker: nausea, vomiting, diarrhea, and weight loss of 35#. She also had 10 blood transfusions during the 2 treatment plans because the cancer and chemo were killing her simultaneously. During her final treatment in January 2009 she had an allergic reaction and coded in the clinic. Treatment was discontinued and Palliative care began.
nauseousness....
Loss of hair and nausea
Done and it sucked
5 weeks of chemo started December 4 ended on January 2. Ended up in ER twice, once for vomiting blood and once for persistent vomiting.
Had a really bad reaction on Oct 14 2014
I couldnt eat as much as I thought I would be hungry. Most food tasted terrible. I was able to watch much tv. I never watched tv since I was a kid. I am an active outdoor person, I felt it made me become lazy. lol I got the flu, lowered my immune system, however my red blood cell count always stayed very good!
I started Chemo in July. I went in with a positive attitude. My sister and I had done a lot of research about things to do to minimize side effects. I cannot stress the importance of drinking a lot of water (and I mean a lot!) before during and after the chemo. Rinse your mouth with a mouth wash specifically for dry mouth - thankfully I avoided sores and I think this was the reason. Rest as often as you can and don't ever feel guilty about it.
Chemo was my biggest fear. Hearing so bad horror stories I was besid myself with fear. I actually have 1 more left to go and no problems except for a mild nausea about day 3 and thats it. Never really got too tired and never lost my hair. It really was like being pregnant as far physical problems with tired and nausea. It was a low dose cisplatin for 5 weeks.
Pain, itchiness , Burning , insomnia
Have had 5 chemo treatments. Took 5 hour "naps" afterwards. Some foods tasted nasty! Normally a huge water drinker but water nauseated me. Required at home IV infusions of Potassium and Magnesium for 8 hours/day for total of 15 days, also received a few infusions at the clinic for dehydration and low electrolytes. Anti-nausea meds didn't work on me.
2 rounds of Taxol/carbo 11/2011 & 12/2011...Is being changed for 1/2012...not sure of new drugs yet
cisplatin, felt and tasted every drug they put in my body. It was very yucky. I am incredibly sensitive to the medications and was eventually given Ativan to help me sleep through it all. Lasix was fun though at the end of treatment peeing every 5 minutes!!
Cisplatin (40 units) every Monday for five weeks, beginning April 26, 2010. Hair thinned; veins hardened; steroid acne; acid reflux; turned yellow after treatments (that was odd).
Had cisplatin for 6 weeks during radiation, now am on my 5th of 6 treatments every three weeks (taxol and cisplatin)
Cisplatin low dose for 5 cycles once a week. Tolerated it well just very tired. Considering I had concurrent radiation and chemo it was hard to tell what was causing all my nausea and vomiting but we think it was the radiation. Also I had preventive chemo cisplatin and taxol ( lost hair with this ) , three rounds , to help potentially stop a recurrence.
N&V, Fatigue, Dulled mentation 12-15-09 to 1-30-10 SECOND ROUND OF CHEMO, CISPLATIN 01-01-11 to 02-17-11 LOTS OF VOMITING
Weekly chemo for six weeks
Had external and internal (brachytherapy) radiation over a six week schedule. 28 external rounds and 5 internal rounds. Radiation was concurrent with chemotherapy (cisplatin) for 6 weeks once a week. Seriously fatigued for at least six months post treatment.

Larynx Cancer Chemotherapies

What Larynx Cancer Survivors said about their Chemotherapies.

Induction chemo for 2 months prior to radiation treatment - once a week during radiation; mouth sores for four days after first round, hair loss, fatigue, and some taste changes, but all in all, he did really well. Very little nausea.
12 total Erbitux sessions, once weekly, January 13 - March 31, 2011. Increasing fatigue and, ironically, insomnia following each session. From mid February through the end of treatments, somehow the Radiation/Erbitux mix seemed to spawn clusters of migraines.
Oct 8th- January 13th, 2010 Lost Hair after 21 days. Fatigue, dry mouth, muscle cramps that were very painful after 1st treatment. terrible rash on my head and neck the whole time I was taking chemo.

Acute Myeloid Leukemia Cancer Chemotherapies

What Acute Myeloid Leukemia Cancer Survivors said about their Chemotherapies.

idarubicin and atra began in april 2008 vomiting,diarhea,blood and platelet transfusions many transfusions
Oct 14th- 7 days Vidaza Nov 23rd- 7 plus 3 Dec 25th- fludarabine and busulfan
All through out until transplant
Started induction chemotherapy for AML on 25th September with "7+3 for 24 hours. I got Daunorubicin for 15 minutes the first 3 days while getting cytarabine the rest of the 24 hours. After the 3 days, the cytarabine continued 24 hours for the balance of the rest of the 7 days. I was medicated with multiple medications to prevent some of the known side effects such as eye damage, nausea, vomiting, and acid reflux. After the chemotherapy stopped, the Nader effects kicked in about a week later which is when the white and red blood cell counts and platelets drop. I ended up with ecoli infection in the blood and pneumonia which nessitated the administration of IV antibiotics. I also required Neupogen shots daily to help increase the production of white blood cells. Multiple platelet and blood transfusions were needed to sustain my existence. During this time I also had petechiae due the low platelet count. Stem cell or bone marrow transplant was recommended however, in my case, no full donor match could be found. Therefore my option was to have additional consolidation which consisted of hi-dac chemo (high dose chemo days 1,3,5 for 4 hours twice on those days. Typically if transplant is not an option, 4 doses of hi-dac is recommended. Due to my difficulty with the chemo, we opted for only 2 consolidation treatments. Right now I'm in remission although my white blood cell count and platelet counts are only 1/2 of the normal range. Last bone marrow biopsy (6th one) showed no Leukemia. Currently I have monthly blood work to monitor blood levels.
Seven days straight starting on Monday August 15th.
1 cycle of 7+3 regimen of Cytarabine, Idarubicin, but still had more than 10% of blasts in system. Went on to have 10 intermediate doses of cytarabine, and was in remission. Doctor had me on low dose decitabine and sorafenib (but I did not continue with sorafenib due to strong side effects of face bloating/swelling and rashes)
Induction Theraphy Cytarabine and Doxorubicin for 8 days. I just start my Consolidation theraphy last March 30. Which is Doxorubicin for 1hour and vincristine(push) and cytarabine IT(so painful)
1/28/16 induction
chronic vommiting ,hair loss tiredness
Multiple protocols for ALL & AML.
I have been taking low dose chemotherapy via and infusion pump. I may need a bone marrow transplant at some point.
hydrea - 02/2009 little/to no side effects
April 9 - 15th 2017 & April 27th - May 1st 2017.Finished 2nd round of Chemo May 1st. Experiencing hair loss, fatigue & weakness, SOB, Colitis, Diverticulitis, diarrhea, loss of appetite, confusion, hallucination, Acute Renal failure, low BP, and neutripinic sepsis.
oct induction chemo, Nov another bout of induction chemo as first did not work. Jan: consolidation chemo Apr: additional chemo to prepare for bone marrow transplant.
Achieved remission October 2017 with 2 IV drugs — few side effects aside of minor peripheral neuropathy in feet. Out of remission in January 2018. On cytsribinevsubce Feb 2018; Also on oral chemo since March 2018: Venetoclax. Peripheral neuropathy (feet); anal fissures w/bleeds; mucocitis of throat (hard to eat or drink ANYthing); dyspepsia (nausea); fatigue; 15% wt loss (BMI=18.4)
1st round-12/09/2011Atromycin for 3 days nd Cytosar. for 7 days.
photosensitivity, some nauesea
High dose chemotherapy, March-June 2012. Side effects: Nausea, vomiting, weight loss, fatigue.
11/2009. 1/2010. Neuro side effects. Vision compromised. Weakness. Nausea.
Since June 2012 - july induction, August consolidation, Sept. consolidation, december 2012 induction. Stem cell transplant now on hold.
Jan 2 through Jan 5 2015 Staff infection , Bacteria in blood, Fever and Nausea
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
Had two induction rounds and two consolidation rounds.
Started daunorubicin and cytarabine 7+3 therapy on January 10, 2015. I stayed in the hospital approximately thirty days. A bone marrow biopsy at the end of this stay confirmed remission. My nausea was not too bad, except for a time that they served some green beans from the cafeteria. I dry heaved several times, and then ate only food from home. I suffered diarrhea, hair loss, a neutropenia fever, an acute kidney injury, fatigue, and weight loss. I started my first round of consolidation chemotherapy in February, second round in March, and third round in April. I have been very fortunate to this point to avoid a bone marrow transplant.
Ive been on too many chemos to describe. Generally though I handle them well. You will feel the nausea and the fatigue for sure. Mouthsores and hairloss come later. I usually go feverish at some point too.

Chronic Lymphocytic Leukemia Cancer Chemotherapies

What Chronic Lymphocytic Leukemia Cancer Survivors said about their Chemotherapies.

Fludarabine - 8/7/06 - 8/11/06 -- tired and nausea Rituxan - 8/11/06 - "shake and bake"...you name it I felt it...dizzy, chills, threw up, nurses very good in giving me appropriate meds to counteract side effects

Testicular Cancer Chemotherapies

What Testicular Cancer Survivors said about their Chemotherapies.

VIPx4. Etoposide, ifosfomide, cisplatin- four cycles, five days in a row each, every three weeks.
My husband had 4 cycles of chemo. Aug 2005-Dec 2005. Son is having 3 cycles. Started 8th June 2010... next cycle 28th June 2010. Both lost hair.
Bleomycin, Etoposide, Cisplatn (March 07 - May 07) Cisplatin, Taxol, Ifosfamide (September 07 - November 07)
Loss of hair, loss of weight, loss of wife. LOL
had no treatment
Initial diagnosis required 1 round chemo -Carboplatin - minimal side effects Return of cancer - 4 rounds of chemo ( EP) 21 day cycles includes five continuous days of infusion then rest. No nausea but gastric reflux with vomiting, scalp pain, metallic taste in mouth, tiredness, neutropenia
I was on three types Cisplatin,Bleomycin,& Etoposide.I started treatment in 9/08 and finished 12/08,four cycles.Effects were real BAD..it sucked hair started coming out about two weeks after first treatment,rashes just sick most of the time.
Chemo Began 12/02/2013... Bleomycin-Cisplatin and Etoposide
Bleomycin, Etoposide, Cisplatin (BEP) 4 cycles Side Effects: Blood clots, low blood pressure, fever, neuropathy, vomiting, nausea, hair loss, weight loss

GIST (Gastro-Intestinal Stromal Tumors) Cancer Chemotherapies

What GIST (Gastro-Intestinal Stromal Tumors) Cancer Survivors said about their Chemotherapies.

Gleevec 400 mg. daily, nausea, taking anti nausea medication
taking Gleevec for life

Chronic Myeloid Leukemia Cancer Chemotherapies

What Chronic Myeloid Leukemia Cancer Survivors said about their Chemotherapies.

An unpleasant mix of fatigue, diarrhea, headaches, water retention, muscle and bone pain.
Daily 400mg Gleevec. Daily fatigue. Slow morning wake up. Memory problems they call Gleevec brain. Polyneuropathy: pain and weakness in body. I use a cane when walking outside. Diarrhea. I did just find out that I am now in remission but must stay on the Gleevec for 2 years. I am totally grateful that Gleevec exists for me and for all CML patients. Good luck to all of us!
Gleevec
I've been on Gleevec for 3 weeks. the first week was no different than the previous ones, lots of fatigue, but that is from the leukemia. In the second week, I started having more pain and some diahrrea. The diahrrea cleared up in a few days but the pains got worse. By week three, I have a lot of bone pain. I can get around and i can work, but it hurts quite a bit to move and my legs (thighs) are the worst. I often wake up with pain and my fatigue is not improving.

Acute Lymphocytic Leukemia Cancer Chemotherapies

What Acute Lymphocytic Leukemia Cancer Survivors said about their Chemotherapies.

I have 6 months of chemo: 1. Daunorubicin, Vincristine, Asparaginase, Prednisone 2. Cytarabine, Etoposide 3. Methotrexate months 4, 5, and 6 are a repeat of months 1, 2, and 3. I also had 6 doses of intrathecal methotrexate (chemo injected into my spine). I am getting cytarabine, methotrexate, and a steroid intrathecally. I think I'll also get one round of high-dose cytarabine intravenously prior to transplant.
I recieved Chemo in 2004-2006 with my first diagnosis of ALL. I relasped in June 2011 and started chemo on June 24-July 18. I will continue chemo until my Bone Marrow Transplant.
An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010: Vincristine PEG-aspariginase Doxorubicin Methotrexate Cytoxan Cytarabine 6-MP 6-TG Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain.
I didn't really focus on what chemo I've gotten/getting, but my main side effects were nausea and fatigue.
Vomiting, hair loss, fatigue, mouth sores, reduced immune function.
I'm not going to tell you anything you would be shocked by here. I'm bald - and have been for two years. 98% of anything I eat upsets my stomach in some way. I wish I could sleep all the time, but I have a 5 year old little girl, a full time job and a husband so that is possible. Other than that, Cancer sucks, Chemo sucks worse, but we will all get through it, right?
lots of dates, spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints. mercaptiprine, is every day, that just gives her a weird rash. methotrexate makes her sleepy
I don't remember all of them, but cytotoxin was one of them

Anal Cancer Chemotherapies

What Anal Cancer Survivors said about their Chemotherapies.

NIGRO protocol with capecitabine + mitomycin began concurrently with radiation therapy (January 22, 2019 through March 4, 2019). I chose an oral medication instead of an infusion pump, which was somewhat risky because the oral medication was so new. At the time, there was very little history or research gathered on its effectiveness, but early data suggested it was at least as effective, and possibly even more effective, than infusions. I took a handful of pills twice a day on days when I received radiation, Monday through Friday for six weeks. Shortly into the therapy, I noticed food tasted different to me and became less enjoyable. I also experienced intense chest pain - enough to send me to the emergency room. I was followed by a cardiologist for the duration of my treatments, and fortunately the chest pain went away shortly after my cancer treatments ended. I am grateful that there was no permanent damage to my heart.
5 FU- Mitomycin...via port - 96 hour drip lots of side effects....transfusion at end still low white count from radiation and chemo
5-FU & Mito-3 for 4 days March 2010 and April 2010
Two weeks of chemotherapy at week 1 and week 6 of radiation treatments.
Did well with the first round of chemo. Only side effects were loss of appetite and mild nausea. Did well again with my second round of chemo. Did not lose my hair!
Taking pills(xeloda) 2 x day only on radiation days. Mitomycin IV 1st day and 28th day of radiation treatment Some nausea/Anti nausea pills help
The standard for anal cancer: two rounds of 5FU & Mitomycin. Lost about half my hair. Very bad mouth sores and oral thrush, especially in the 10 days after infusions. Became neutropenic (big drop in the type of white blood cells that are the major infection fighters) with second round of Mitomycin.
6/20/11 5 days; 7/18/11 5 days fatigue, nausea, parageusia, mouth sores, vomiting, hair loss, dry skin, brittle dark nails, low blood pressure, urine & stool incontinence, 2 blood transfusions, vitamin deficiencies
Therapy in June and July 2021. Caused extreme fatigue, nausea, lack of appetite
Overall unwell feeling. I had chest tightness and pain, might have been from anxiety. I was lucky with minimal hair loss and had only light nausea. I took my nausea and pain medication as prescribed, not when I needed it. Once nausea sets in, it's very hard to get rid of it. While I did not like taking opioid pain medication, pain is like the nausea, once it sets in, it's hard to overcome. About two weeks after radiation concluded, the Dr. and I ''weaned'' me off the pain medication with over the counter pain meds. The last week of Chemo was the worst, in hospital for a week as I spiked a fever, got some heavy duty antibiotics.
At recurrence now in 2020 capecetabine (5F-Utablets) and metomicine (1x) . Toxic reaction on capecetabine. (After 2nd opinion in 2018 I declined on chemo because the doctors did not agree on wether it was nessecary.)
5FY and cisplatin
Dates 1/31/15, 2/19/15 Type, F5
Fatigue, nausea, mouth sores, hair loss. Developed an abdominal infection after the first round and was hospitalized for 10 days.
Mitomycin - no side effects Feb-June 2019 Cisplatin/Fluorouracil 5 - side effects - weight loss, mouth sores, weakness, hair thinning, loss of hearing, thinning of the eye brows, eyelashes fell out, nausea -Mar 2021-June2021
Chemo pump was used only 5 days then stopped. It made my chest and upper body feel like I was going to burst.
5 FU - through port for 5 days June 6th and again July 5th - survived first dose with severe sore throat, mouth sores and rash. Dreading July 5th
07/01/2016 1st chemo w/Cisplatin + FU5 (4 day tube) 07/29/2016 2nd chemo 80% w/Cisplatin w/FU5 (4 day tube) 08/03/2016 got infusion of fluids and magnesium
Began 5FU and cisplatin chemo on 1/4/10 and 2/1/10 for 1 wk cycles. Side effects: nausea, vomiting, diarrhea, mouth sores, and fatigue. Hospitalized after last day of 5fu infusions for 3wks for chemo toxicity, diarrhea, severe abdominal cramping, dehydration uncontrollable fever, etc. At least I had completed menopause at age 42 and did not have to deal with the emotional side of this. Stopped HRT during treatments only.
has not started yet
PICC line put in 10/25/2010 intital large dose of Mitomycin, weekly infusion of FU5, disconnected every Friday, then started back on Monday 5 1/2 weeks. By 3rd week, severe stomach pains(lasted 1 week) diarrhea, no appetite, weakness , because of blood count did not take scheduled last dose of Mitomycin
2 weeks of chemo, the first week and last week of the 6 weeks. I had bad mouth sores both times. My hair got very thin.
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss 6 rounds Hepatic artery infusion (oxaliplatin)avastin 3 month Jakafi (oral) unknown trial drug nano cisplatin and gemcitabine
Start date 11-30-2009- Mitomycin and chemo pump of 5 Fluorouracil for 4 days- week 1 & 5
Unknown - not yet there

Vulva Cancer Chemotherapies

What Vulva Cancer Survivors said about their Chemotherapies.

1/4/17-2/15/18
I didn’t lose my hair.

Gallbladder Cancer Chemotherapies

What Gallbladder Cancer Survivors said about their Chemotherapies.

4 rounds (8 sessions) as of 7/13/19; serious weight loss and fatigue

Pleura, Malignant Mesothelioma Cancer Chemotherapies

What Pleura, Malignant Mesothelioma Cancer Survivors said about their Chemotherapies.

On Chemo from April to Sept 2010. Main side effects were fatigue, weight gain, mouth sores occasionally.

Bone Cancer Chemotherapies

What Bone Cancer Survivors said about their Chemotherapies.

Resistant
Carboplatin, Doxorubicin, Cyclophosphamide, Tamoxifen, Toceranib, Piroxicam. No significant side effects to start with but after so many months of home chemo/meds I get diarrhoea and occasional nausea (am on meds to combat). My fur is very slow growing now - months later, surgery sites are still sparsely covered in fur, and I now have bald patches (my paws, muzzle, bottom).
i cannot sleep..i cannot eat..i do vomiting

Hypopharynx Cancer Chemotherapies

What Hypopharynx Cancer Survivors said about their Chemotherapies.

First session attended. No side effects

Nose, Nasal Cavity and Middle Ear Cancer Chemotherapies

What Nose, Nasal Cavity and Middle Ear Cancer Survivors said about their Chemotherapies.

See the Chemo Dr tomorrow, too. Don't know if I'm going to do it.

Nasopharyngeal Cancer Chemotherapies

What Nasopharyngeal Cancer Survivors said about their Chemotherapies.

Protocol #1: First of 3-21 day cycles of 5-FU, Cisplatin and Docetaxel started 10/7/13 - around the 2 or 3 week started losing hair and experiencing nausea, fatigue, weight loss, etc; Protocol #2: Eribtux and concurrent radiation for 6 weeks started ~12/10/13 - neuropathy in feetbegan a few months after treatment stopped and is still ongoing.
chemotherapy given from January to September Side effects: dehydration, vomiting, blood transfusions
Tinnitus weakness nausea
3 x cycles of Cisplatin 80mg/m^2 over 9 weeks prior to Radiotherapy 3 x cycles of Xeloda (14 tablets) over 9 weeks prior to Radiotherapy Once weekly 40mg2 Cisplatin during Radiotherapy
Every 3 weeks during radiation then once a month x 3 for cisplatin. 5FU home infusion will start in Sept for five days then again in October and November. Nausea, vomiting, fatigue for cisplatin have not had 5FU yet
3- 8 hr chemos mostly nausea.
Jan 2009-june 2009: lung nodules shrunk a bit and last CT scan end of june showed no growth: little nausea, tired all that stuff
Started weekly induction chemo on 9/5/13 with carboplatin and paclitaxel- soreness in mouth, slight nausea, dry skin (severe itching), acid reflux. Started chemo-radiation on 11/4/13 using cisplatin. Received 5 weekly cisplatin treatments until wbc count was too low.

Peritoneum, Omentum and Mesentery Cancer Chemotherapies

What Peritoneum, Omentum and Mesentery Cancer Survivors said about their Chemotherapies.

Carboplatin and Taxol once every three weeks, 6 times. Fatigue, faux sence of energy at first, couldn't sleep for two day after, then crashing with neuropathy pain and fatigue

Gastrointestinal Carcinoid Tumors Cancer Chemotherapies

What Gastrointestinal Carcinoid Tumors Cancer Survivors said about their Chemotherapies.

chemo side effects hair loss some weight loss vomitting sweats shakes hot cold pain emotional skin tone looked unhealthy

Esophagus Cancer Chemotherapies

What Esophagus Cancer Survivors said about their Chemotherapies.

Chemo is rough.
every 3 weeks, side effects: tinnitus and stomatitis after the last one
Only needed for Esophageal Cancer. POST operative only. 6 weeks of once a week chemotherapy (Mondays only) - Cisplatin and 5FU. Side effects were minimal. Did NOT lose hair or get nauseated. Metallic taste in the mouth. Dates: March and April of 2013
Oxaliplatin infusion; Leucovorin infusion; Fluorouracil continuous infusion pump.
2 low dose chemo sessions. Became immuno suppressed
5FU and cisplatin 12/2016 for 4 days. Hospitalized due to toxic overdose of 5FU. Oncologist did no give me the DFD test because he didnt believe in th test, hi negligence nearly killed me.
preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU.
Too many chemo regimens and drugs to count. At present, I am on Xeloda, Herceptin and Avastin. One drug was damaging my liver, but okay now. Herceptin was damaging my heart, but it is okay now.
Carboplatin/Taxol, continuous 5FU drip March/April 2008 Taxotere July/August/September 2008 Cisplatin January/February 2009
Ended in Nov 2013. Chemo: Memory loss Radiation Side effects: Loss of bone density resulting in back pain.
Carboplatin and Taxol for 5 rounds. No side effects at all except tired on day 2 & 3 post treatment day. Tolerate chemo well.
june 13 2011. no side effects yet
Sysplatin that almost killed my it caused my kidneys to shut down. I cause me to become completely dependent on others. I didn't spell the Chemo right but it sounded like that. I don't know what the fed me after I was released from the hospital.
chemo from 2/98 through 9/98
Carbo-taxol once a week for 5 weeks

Tonsil Cancer Chemotherapies

What Tonsil Cancer Survivors said about their Chemotherapies.

Start on March 29th 2011.
Started Treatment on May 24,2011... last Chemo July 5, 2011... hair thinning, but no sickness
Cisplatin ....nausea and fatigue
Jan 21- vomit, headaches, fatigue, lack of sleep, sore throat, cold sores, dry mouth, weak, pain, dry skin, headaches
Cisplatin= 1 day a week for 8 weeks
fatigue, nauseous, loss of hair, very very weak.
Started treatment April 29: cisplatin two double doses - didn't do third dose due to ear ringing, had to take a booster shot after second treatment due to WHC crash. Side effects: ringing ears, nausea (but controlled by Zofran so not a problem) Other things: acid reflux developed quickly (not something I have had in over a decade - controlled by prilosec on advice of oncologist) and constipation from zofran (controlled with miralax and glycerin capsules and lots of water)
3 doses of Cisplatin.
Chemo - Cisplatin - Day 1 of week 1 / week 4 / week 7
2 Full Week Doses (M-F)
6 treatments of Cisplatin, every Monday for 6 weeks, ending on November 13, 2012. Improved symptoms of systemic lupus, but caused further hearing loss.
11/9, 11/30, 12/21 - loss of appetite, cold, "chemo head" (loss of concentration and short term memory)
Start with erbitux on Nov 12th and follow with weekly doses every Monday for a total of 8 weeks
Cituximab Loading dose March 13th, High fever and severe headache. Second of 8 treatments March 21st. Only side effect was severe heartburn.
Cetuximab - Brand name: Erbitux - April 1, 2010 - so far just really really tired. I was told later a rash and other stuff could happen. ( 5/1/10 - rash did appear including itching. Scalp was the worst. Lying down felt like pins sticking my head. I was told if not rash, med is not working. After they know it was working, I got med to help the rash and itch.)
Chemo is Erbitux which I get once a week for 7 weeks.
5 treatments of cisplatin one a week commencing 14th July. Mocositis, fatigue WBC count dropped dramatically after last treatment
drained tired sick feeling, loss of facial hair and back of head.
January 6 2015, February 18, 2015 nauseous fatigue
Carboplatin 08/06/2010. Mild Fatigue. Carboplatin 08/26/2010. Radiation recall. Carboplatin 09/16/2010. Neck is tightening due to radiation recall. Alimta erbitux Low Platelet 10/07/2010 Carboplatin, Taxotere,5FU 01/2011 n 02/2011.
7sessions, once weekly Metal tasting food, general lousy feeling 2 days after treatment.
September 5 - 3 rounds
Chem with Cisplatin, taxotere and 5-FU in pump.
Began Erbitux November, once a week. Skipped December, resumed chemo January, I go weekly.
after 1 chemo treatment I don't feel any reaction as of yet. Next treatment July 14.

Mesothelioma Cancer Chemotherapies

What Mesothelioma Cancer Survivors said about their Chemotherapies.

carboplatin, alimta 8-27-09
Once every 3 weeks from Feb - April 2020. Extreme

Endometrial-Uterine Cancer Chemotherapies

What Endometrial-Uterine Cancer Survivors said about their Chemotherapies.

recommended to start after radiation
in process some fatigue, chemo mouth, diarrhea, headache, vertigo, not too bad. Chem mouth (mucositis) was the worst effect so far but Magic mouthwash helped clear it in a few days.
Every week on Day 1 & 2 and Day 8.
Carboplaxin and taxol 6 x's Jan to May 2016. Side effects: loss of hair, anemia, low WBC, low platelets.
Starting chemo (carboplatin and taxol) on 4/27/11. Will have 6 sessions, one every 3 weeks.
intravenous chemo from Septemeber 2018 to January 2019
Chemo start date 7/15/09 - Doxil infusion with Ativan and Compazine every 21 days...that was "potponed". Chemo, once started, was be Doxorubicin and Ifosfamide - 4 days of 24-hour infusions. Mom was having delirious thoughts from the chemicals, they took her off of food - the doc said she "had enough fat on her" to get by without food. She was in and out of sleep from the sedatives in between chemo.
6 chemotherpay treatments. Cisplatin for 2 and Taxol/Carbo for 4. Stomach nausea,bone pain after Neulasta shot, constant dehydration, tired all the time & neuropathy in feet.
CarboPlatin & taxol w/ neuplasta at 3 wk intervals from Aug to Oct Severe constant leg pains, neuropathy in feet and hands, high heart rate. Unable to stand for more than 10 minutes, stumbling, dropping things regularly Treatment changing to CarboPlatin & doxil w/ neuplasta.
Carbo/Taxol every 3 weeks, 6 cycles
Lost hair not much else
4/17/15 Allergic reaction to Emend and Taxol
little queasy tired bald last one nov 5th 2010 yesssssss!!
November 2011-December 2011--6 administrations of Taxol and Carboplatin; strong allergic reaction to Taxol (could not breathe and it felt like my back had been struck by a car) handled with heavy doses of Benadryl and slow infusion; lost hair all over my body slowly during treatment and over several months after treatment; painful tingling in feet and hands; fatigue; bloody nose daily; ridges across nails on hands; skin toughened on backs of hands and tops of feet; hair on my head hurts sometimes months after treatment.
Chemo came after radiation the first time, chemo only the second time, radiation only the 3rd time. Allergic reactions to almost all the drugs tried, but that was the second time. The ones that I didn't react to made me very sick, so I'd go in to be hydrated the day after chemo since I was unable to do that at home. It's hard to eat and drink when you're asleep. Another side effect of the drugs and certainly the pain killers for me.
INITIALLY TOLD NONE NEEDED 7/6/09 MY DOCTORS REISDENT CALLED AND SAID NONE NEEDED BUT AT THIS POINT I DO NOT TRUST MY DOCTORS AND WILL SEEK NEW HELP SURGERY 8/6/09 REMOVAL 27 NODES NO CANCER...SO NO CHEMO WILL BE NEEDED
Haven't started yet. Need advice.
Start in mid October.
First round of chemo on 7 May 09 Second round of chemo on 1 Jun 09 Third round of chemo scheduled for 21 Aug 09 My doctor is using a new "sandwich" approach to treatment. 2 rounds of chemo > then 25 days of radiation > then 2 more rounds of chemo. This is new and apparently works better than all chemo then radiation. I am in control and working to erradicate the cancer via chemo and radiation.
I have had two rounds of chemo, and the next will take place on Jan 31, 2012. After that, three more rounds!
currently doing carbo/taxol every three weeks. Extreme fatigue, muscle aches, taste changes
See Surgery Description> apparently I cannot follow directions
Cyclophosphamid Carpoplatin Taxol
Chemotherapy November 2014-April 2015. Hair loss, neuropathy in feet, achy joints.
felt sick all the time, metal icky taste, neuropathy, ruined joints >:( bone pain

Sarcoma Cancer Chemotherapies

What Sarcoma Cancer Survivors said about their Chemotherapies.

Temodar and potentially IV Chemotherapy
Doxorubicin Cisplation Methotrexate Ifosfomide Etoposide
AIM Chemotherapy, 3 cycles, inpatient in hospital for 5 days each cycle, started on 16th May finished on 1st July. Side effects, hair loss, chronic diarrhea, piles, sore mouth, tiredness.
IE and VAC treatment every 3 weeks. Lost weight and all my hair/ body hair
Currenly going through Ewings Sarcoma protocol for Chemotherapy. 14 total cycles.
Had AIM protocol (Adriamyacin, Ifosfamide and Mensa) for all of 2007, then in 2010 I had Yondelis, a clinical trial, also for a year. The AIM made me lose all my hair, had frequent need for transfusions of blood and platelets and I had many infections. The Yondelis did not make me lose hair, but the other side effects were the same.
Chemo not a proven treatment for my type of cancer
Chemotherapy lasted from July 2010 - August 2011 His chemotherapy consisted of Vincristine, Doxorubicin, Cyclophosphamide, Ifosfamide, and Etoposide. Some vomiting and lots of nausea.
Adriamycin Dec 14/15 on going
Multiple regimens
Currently going through chemo... some of the side effects that I am experiencing are mouth sores, and sore GI tract. Definite tiredness, lunula turning black, of course hair falling out, complete loss of taste buds and smell during chemo but fine after.
Gleevec, vomiting, diarra, swollen eyes and ankles, cramping in hands feet arms legs, fatique, from 10/19/07 till 5/2013. Didn't work for me after awhile.
Cisplatin usual side effect after two months still have mouth spares, hard to swallow, tennitis, loss of hearing.
Chemotherapy started on 20th Dec 2008 and I chose to stop in June 2009 (I was meant to finish in Nov 2009, but when I found out my tumor was no longer shrinking, I physically could not deal with the side effects anymore). I lost my hair, which was by far not the worst side effect! Mouth sores, lost my sense of taste and smell. Horrendous constipation. Nauseous most of the time. Not able to eat. So completely exhausted, not even energy to stand up some days. Felt extreme cold, then major hot flushes, wake up drenched in sweat. Eyes always sore and watery. My chemotherapy was every 3 weeks, which took 5 days in hospital to administer IV - then every month when home I would spike a massive temp & have to be rushed into hospital for blood transfusions and isolated for neutronpenia! Chemo turned me into a shell of my former self, it destroyed my spirit and had me in tears most of the time. It was a hard, hard fight.
Had only 4 appointments for chemo. Hair falling out. Nausa.
I have Chemo once a month. The Chemo caused the whites of my eyes to turn Fire Engine Red. It was a reaction that none of the nurses had ever seen. I was given IV Benedryl. The dose of the medicine knocked my butt out. That was my first treatment on May 21, 2012. I was set for 3 treatments. My Oncologist was not sure if the Chemo would work to begin with. Within the first treatment I could tell a difference. I was amazed. I could actually feel the mass and it was smaller. So, Dr. M ordered another 3 treatments for a total of six. I lost all my hair, eyebrows and eyelashes. Hey, they will grow back one day. I don't mind. I love all the scarves and hats I have bought and been given.
Chemotherapy to start in 2016
Chemotherapy started in September 2011 and continued every three weeks either daily for a week, or a single day dose of VAC - crappy crappy side effects, where do I start......numb finger tips, constipation, hair loss, loss of taste buds, thrush in mouth, lack of concentration, sooooo exhausted after each dose and weeks later. It is very true that the chemo is so much harder than the cancer to deal with.
On year of chemo. Chemo brain. Short term memory issues

Parotid Cancer Chemotherapies

What Parotid Cancer Survivors said about their Chemotherapies.

Adriamycin and cytoxin. 11/03 so sick with vomiting till meds were figured out. Lost 50 lbs. Taxol 1/04. Sick Rituxan 5/13 no effects used for platelet issues Taxol 5/16 with experimental drug

Skin Cancer Chemotherapies

What Skin Cancer Survivors said about their Chemotherapies.

Photo Dynamic Therapy for any AKs... skin checks every three months

Throat Cancer Chemotherapies

What Throat Cancer Survivors said about their Chemotherapies.

Dry Mouth. Lost body hair, Sick at stomach, weight loss.
1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss) 2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment. 2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course 2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course.
May 7, May 14, May 24. (Now scheduled for June 1, 8 and 15). Side effects are fatigue and nausea. Taking anti-nausea meds. Worst part is we can't keep enough fluids in him to flush out the toxins due to chemo. We're told this is more common in throat cancer where food and fluids are taken through a feeding tube. Starting to lose patches of hair.
Ringing in ears
It seems that my side effects (nausea, tiredness) start a couple days after treatment. Emend and Zofran seem to be helping.
Chemotherapy due to start 6 weeks after surgery, September 2016
Start November 29, 2010. The drug was erbitux. No side effects with the weekly treatments except for after weeks four and five. After treatment I immediately had chronic chills and shakes in which I was given an injection of demorol and had to lie down for an additional hour until the effects subsided.
3 during 6 week radiation treatment (beginning middle & end.
Feb 14, 2011, Cisplatin, slightly tired immediately following treatment. March 7, 2011, same as treatement number 1. March 28th, 2011 - TBD
Erbitux. Loss of hair, lesions on my hands, scab around my neck, vomiting, etc.
Months of daily treatment with both Cisplatin and Herbitux -- major side effects included a rash that covered me from head to toe, skin that was so dry that my scalped split open and bled when I vomited (which I did several times each day). Further side effects included hallucinations, tremors, chills, hot flashes, disturbed sleep patterns, fever, loss of hair, etc.
Erbitux (Cetuximab) taken, due to success with HPV-16 related cancers. 7 infusion sessions, starting one week before radiation commencement. First session gave me the worst headache of my life, terrible chills, fever, nausea (but only brief vomiting) and profound weakness. Started about 7 hours after treatment. Subsequent sessions have had less impact; primary complaint being weakness and fatigue. Blistering rash encompassing head, neck, shoulders, chest and back. Very itchy and painful. Appeared by second week of treatment. Now in 4th week, the pustules have subsided somewhat, but lotions are essential to keep the skin peeling controlled.
February - June 2009 Taxotere Cisplaten 5FU
Three rounds of Cisplatin - nausea, metallic taste and tired

Tongue Cancer Chemotherapies

What Tongue Cancer Survivors said about their Chemotherapies.

Three Cisplatin chemo doses, Jan 4, Jan 26, Feb 16. Never got the Feb 16 dose as I was too sick from throwing up.
second form of chemo 3 more weeks, no side effects
A 2 chemical soup every 3rd Monday and then a 24/5 fanny pack pump the same week as above. I have 1 week on and 2 weeks off treatment
For me Chemo was much easier than Radiation. Cisplatin and 5-FU 24/7 for which I was hospitalized. I refused my last chemo treatment because I was too sick, and honestly I thought it would take a lot more than chemo to save me from this beast called cancer. Yet I survived and have for the last 20 years.
Set for July 6 and July 21
No chemotherapy.
Cisplatin - will start in Oct. 2021.
I started the chemo the frist week in July 2010. I had a reaction to the first chemo which was Carboplatin and taxol so they changed it to Cisplatin and taxotere. They loaded me up on steroids and during the next treatment i had yet another reaction this one only worse than the first. So as a last ditch effort they changed again to cetuximab and honestly i cant remember what the second one they gave me with this was. I was ok with this drug but the side effects were aweful! I broke out all over my face with horrible acne and it made the radiation stronger which made the raidation burns worse.
Chemotherapy to be given concurrently, once a week. Began on 8/23/12.
Only 5 of 6 Cisplain treatments given because of so much nausea. Hospitalized for nausea and given extra intravenous fluids bags 2-3 weeks separate days from the chemo infusions.
3 bags of cisplatin
Do not know yet if I will have to go through Chemotherapy.
Cisplatin 2007. I was one that had the carotid do it's number, so have permanent heartbeat in my ear. Sometimes loud and intrusive, very loud and intrusive when I am lying down trying to sleep. This too conversation, Chemo and Radiation were simultaneous. It was a dark night of the soul. Burnt skin, inside the mouth and outside. I lost over 60 lbs in less than 9 weeks. Dehydrated, diarrhea, high irregular heartbeats, constipation, impacted, and the list there too goes on.

Hodgkins Lymphoma Cancer Chemotherapies

What Hodgkins Lymphoma Cancer Survivors said about their Chemotherapies.

AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
nausea, fatigue, anxiety, depression, dizziness, vomitting
ABVD Chemo every other Tuesday 12 times.
Chemo ABVD for 6 months. Treatment every other week. 4-11-16 first chemo. Tired, constipation, weak knees-falling on steps 4-28-16 second chemo. Tired, extreme fatigue, hair loss started, bad headaches, back of neck pain, blurred vision in one eye, hot feeling inside.
ABVD Six months
26th December, 2014. ABVD. 6 cycles, 12 treatments completed every fortnight. 22nd July, 2015. Salvage Chemotherapy. ICE. 3 cycles, completed every 21 days.
Started ABVD chemo on September 22, 2015 Ended on April 7, 2016 8 cycles/months (every two weeks) Side effects: - skin discolorations that either looks like scratch marks or skin pigmentation and nail discoloration throughout the treatment - fatigue, nausea and vomitting on the first cycle - constipation - very dry skin - itchiness - tender gums and pain in a specific tooth tjat started to feel loose - hair loss - either unable to sleep at night or sleep very late on the night of chemo session - tingling or feeling of probably shrinkage on the tumor site - "chemo fog"
Yes, My chemotherapy treatment was ABVD.
4 Cylces (8 treatments) beginnning March 12. Second Session March 26, April 9th, April 23rd, May 7th, May 21st, June 4th and lastly June 18th!
Clinical Trial-see below
Started Chemotherapy (ABVD) on 30th March 2010. Found that the side effects of consist of bad heartburn & indigestion for a few days after chemo. My hair started to fall out about two weeks later and has slowly been falling out ever since, but not bald yet! Have had to give up fizzy drinks and spicy food, two thinks I enjoy. Unfortunately they cause uncomfortable consequences, like bloating, passing a lot of gas, nausea, heartburn, the list goes on.
Chemotherapy from August 2006 - September 2007. Some of the chemotherapies were ABVD, ARA-C and carboplat. Side effects experienced were hair fell out, constipation, low white blood and platelet counts, nausea, vomiting, pain in joints.
I had chemotherapy for the first part of 2014 and now I am back on ice and chemotherapy with a test drug for 2015
AVD (Dr. says I don't need the B) constipation, nausia, jaw tingle, red hot face, tired, dizziness
started chemo in 2010 6 months on an off, finally had stem cell transplant at Mass General Boston n March of 2012 remission lasted one year :(
ABVD 08/22/2014: Fatigue, jaw pain, swollen tongue/mouth, loss of taste, hiccups, sneezes, mood swings/anxiety attacks, bone pain, constipation, some nausea, loss of appetite, decreased white blood cells & fevers (resulting in ER visit & week-long hospitalization). ABVD 09/18/2014: Fatigue, hiccups, intense bone pain (pelvis & back), jaw pain, swollen tongue/mouth, loss of taste, emotional, loss of hair. ABVD 10/01/2014: Fatigue, painful bowels, jaw pain, hiccups, mild night sweats, bone pain, difficulty sleeping, mood swings, nausea, joint stiffness, mild skin rash, constipation & severe abdominal pain, decreased white blood cells & fevers (resulting in second ER visit & week-long hospitalization). ABVD (w/20% strength reduction) 10/15/2014: Fatigue, jaw pain, swollen tongue, loss of taste, bone pain, irregular bowels, some constipation, gassy, hiccups, mild night sweats, heart burns, sneezes, difficulty sleeping, mood swings
I am having ABVD. Side effects: nausea, fatigue, hair loss, constipation, bone pain, fever, infection...
ABVD chemiotherapy, hair loss
6cycles of Chemotherapy was planned that is a six montha duration.ABVD doses was induced in every fifteen days through veinflow during the first 3 cycles and later through picc line which was less painful. Side effects of chemo were many starting with gastritis, acidity, nausea, body pain,hair loss,fatigue...but this would be fine within a week after wbc count increases to normal level.
6 rounds/12 treatments ABVD (Could only find Adriamycin and Vinblastin to list here) over the course of 6 months
4 cycles of chemotherapy ending in late August, radiation to follow depending on how the cancer responds.
ABVD- October 22, 2010-
7/13/2012~ABVD
ABVD 12 rounds, 6 months
ABVDX2 4 cycles 13th Feb-2017 ABVD 1st session 27th feb-2017 ABVD 2nd session

Acute Lymphoblastic Leukemia Cancer Chemotherapies

What Acute Lymphoblastic Leukemia Cancer Survivors said about their Chemotherapies.

Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
I'm getting three chemo a dont know what they're called but they all make me feel like crap. But whatever makes me better I guess. Fatigue, sick, swollen ankles, sensitive skin, pins and needles in finger tips. Bowel movements slow down. But speed up after a while
Started induction chemo within the first week of November. Integrating it with holistic therapies
started Feb. 26, 2010 I was admitted to hospital every 3 weeks for a total of 6 rounds of treatment - Cycles A and B.
Hyper CVAD Protocol 6/1/2015-2/7/2016 including spinal chemo X 4
currently undergoing HYPER C-VAD
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
finished with induction therapy, now gonna begin with consolidation.
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.

Bile Duct Cancer Chemotherapies

What Bile Duct Cancer Survivors said about their Chemotherapies.

HAIC 24/7 for two consecutive weeks of constant flow chemo delivered directly to the liver. Every two week chem, alt two weeks pump is filled with Saline. NO Side Effects
begin chemo 11/30/16
iam a nice girl loking for man
On my second round of 2 sessions each which are a week apart
Weak, loss of appetite

Leukemia Cancer Chemotherapies

What Leukemia Cancer Survivors said about their Chemotherapies.

January 6 2014 and February 15 2014

Myelodysplastic Syndrome Cancer Chemotherapies

What Myelodysplastic Syndrome Cancer Survivors said about their Chemotherapies.

too many to remember
Vidaza 5 day cycle once a month, side effects weight loss, erythema nodula,hair loss(slow), nail discoloration
rituxan, vidaza, and revlimid

Appendiceal Cancer Chemotherapies

What Appendiceal Cancer Survivors said about their Chemotherapies.

Fluorouracil (5-fu), Oxaliplatin, Avastin, leucovorin. 1/15-3/2? Side effects - Extreme fatigue, nausea, cold sensitivity, neuropathy
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