What are Chemotherapies? List from Cancer Survivors

The below is a list that has been posted by the bloggers in this cancer community. There are 7041 cancer fighters that are members here. This is what they said, not what the doctors or nurses will tell you.

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Breast Cancer Chemotherapies

What Breast Cancer Survivors said about their Chemotherapies.

neo-adjuvant chemo. Doxorubicin/ Cyclophosphamide /Taxol. February-July 2012. anemia, nose bleed, upset stomach, nausea, weakness, hair loss, chills, hot flashes, weight loss, neuropathy, muscle and joint pain, low white count, fatigue, pneumonia.
3 chemos, neo-adjuvant, before surgery, effectively reduced tumor size. 1 chemo after surgery. Side effects: nausea and dizziness.
Cocktail: Taxotere (wasn't mentioned above), lots of anti-nausea meds!, Neulasta/Pegfilgrastim/G-CSF (the Purgatory Shot)(not mentioned above), Cytoxan. Dude and Dudesses, I have lost 10 lbs!!! Yee haw! Crappy way to lose it but it is lost!
5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared. Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half.
They are not doing anything as of yet it has been a month and I am told it will take another month for this to heal . Who really knows. I am so afraid of that surgeon I don't want to see him . I think I should be on hormonal therapy or something besides sitting around with my skin falling off.
First chemo session on 8/26/09 almost killed me...second session on 9/16/09 virtually no side effects other than no taste.
suffer to heal. stay mindful of what it means to be aware.
Adriamycin/Cytoxan/Taxotere P.O. 1st Treatment 10/16/06
Six rounds. Finished in April 2010.
First time: Taxol, Taxotere - Jan - June 2001 - had adverse reaction to taxotere & stopped breathing. Otherwise, the regular side effects like nausea, fatigue, mouth sorers, hair lost, & nerve damage to hands & feet. Second time: Abraxane, Avastin Oct '07 to May '09. Still on Zometa - indefinitely. Regular side effects: nausea, fatigue, hair lost. Worse one: medical port became infected & had open wound for 6 mons because it could not heal.
First Chemo 9-8-2008. Side Effects - Pain, joint and bone pain, can't taste anything, headaches, bodyaches and my skin hurts and weight gain from the steroids.
Adriamycin/Cytoxan each 2 weeks for two months, then abaxane weekly for 12 weeks. Radiation follows with 35 treatments.
2 types of chemo started November 21st 2011. Nausea, migraines, fatigue, mouth sores, dizziness, bad taste in mouth.
1st cycle 5th March 2014.
Started first round of AC on June 12th....will continue 3 more rounds and then on to Taxol.
Jan. 21st 2010 last 2 coming up. 1st 4 treatments made me very nausaus and tired. The 1st 2 of this cycle just sick for 2 days then just tired.
February to May 2014
AC first 2 months tolerated well. Didn't miss any days at work. Had more problems tolerating taxol. Missed a lot of time at work.
started chemo end of may and finished it july 15th,had 4 altogether,side effects were severe bone and muscle pain ans sickness
through March 2008 CMF cocktail, 8 rounds. never lost my hair, nausea got pretty bad... three rounds in, I became a petulant child and announced I was NOT going back. A nurse family member asked my mom what kind of anti nausea meds I was given (don't remember) and told my mom to relay the following: "tell her to get pot, the pills suck" .... My resourceful husband came home with a surprise shortly after round 3. It PISSES me off that I had to break the law because the fact is, at least for me, IT WORKED and it was AMAZING.....
AC and Taxol
Starting on 18th April, 2011
Started AC CHEMO on 30/11/2018. Was petrified of chemo! Main issue for me with AC is awful reflux, fatigue and just feeling like I have the worst hangover ever ( this only lasts about 3 days, from day 5-8).
2013-2014: 1st chemo; Taxol, no help. 2nd chemo:Doxil, no help. 3rd and current chemo: Gemzar & Cisplatin. I also get Zometa injection every 4 weeks. I started Chemo on June 19, 2008 and as of today 7/7/08 I have only had 1 treatment. My second treatment is this week on Wednesday, July 9, 2008. I will have 6 chemo treatments, 3 weeks apart. The worst side effect I had was from the Nulasta shot I had the day after chemo. The bone and body aches really kicked my butt. I was fortunate and did not experience any nausea. On day 14 I started loosing my hair. It was coming out by the handfuls!! By day 16 I couldn't stand it anymore so I buzzed it all off.
FEC and taxotere. Three treatments of each starting 2/11

Prostate Cancer Chemotherapies

What Prostate Cancer Survivors said about their Chemotherapies.

none yet
taxater, didnt do anything,6 treatments, mitotaxatrine, still on it, barely any side effects due to the vit c drips
Docetaxel, 8 sessions in 2014; extreme fatigue, neuropathy, loss of hair
N/A Chemo poisons; cannabis brings about programmed cell death.
NONE!!
Taxotere, Jevtana

Lung Cancer Chemotherapies

What Lung Cancer Survivors said about their Chemotherapies.

Chemotherapy started on March 1st
Feb 08-Cisplatin/Etoposide- hideous vomiting diarreah Switched chemo drugs AND Hospital -April08-carbo/taxol/avastin. Tolerated well. Neulasta. Bone pain
9/19/2016 Constipation, nausea, loss of appetite
Start Chemo May 18th 2007 Cisplaton and Etoposide
3/2012 Adriamycin and dacarbazine 6 cycles 12/2012- 10/2013 votrient 600mg every day. 10/2013 - present gem/tax
starting the 2nd week of August 2013
7/24/07 Taxol and Carboplatin 2 and a half days full of energy, 3rd day she is complaining of pain and flu like symptoms... She HAS NOT taken Claritin which her oncologist recommended for these symptoms.
Four treatments, most recent on 4 August, #5 scheduled for 25 August. Side Effects - minor nausea, extreme fatigue, loss of appetite and sense of taste and smell. carboplatin and Alimta (pemetrexed)for #'s 1-4. Provider stopped shipments of carboplatin so #5 and any remaining will be only the Alimta.
None to date - The surgeon and oncologist felt that I should wait before starting chemo or radiation and be on the anti-fungal medication, indicating at least a year, to see if once the infection was gone, the remaining spots in my lungs would be gone. In January of 2010, I lost my job, medical insurance and the financial ability to continue the meds. I've recovered enough to find work and have been there long enough to receive medical insurance...now to find the courage to return to the doctor and take up where we left off, uhhh less the pre-existing conditions...to be continued...
Navelbine and cesplatin (4 months) July 20017- Octber
Tarceva (EGFR+)12/12-6/14 fatigue, mouth sores, toenail issues, rash Afatanib 6/14-12/14 fatigue, diarrhea, toenail problems Didn't work. Carbo/Taxol 12/14-4/15 lost hair, neuropathy, nausea, fatigue, dizziness, neutropenia. Alimta 4/15-7/15 No SE Didn't work, though. Gemzar/cisplatin 11/15-12/15 Neutropenia, counts bottomed out Iressa 12/15 only worked for a couple of weeks before progression resumed hard and fast Tagrisso (T790M+) 1/16- current
Taxol, Carbo, Avastin (pain, nausea and vomiting, fatigue, confusion). Zofran was the BEST anti-nausea drug and I tried them all. Broken pelvic bone, NEUROPATHY (very bad so I am on an anti-seizure drug to control it). Tarceva, Alimptor...
One a day pill forever (took 150 mg for 2 years). Down to 100 mg due to vertigo, fatigue. Other side effects, slow/non hair growth, rash, dry skin, dry mouth
Avastin-2008 and 2011, Cisplastin-2009 and 2011, and Tarceva-2011.
carboplation and alimpta 4 treatment rounds, a lot of pain and nausea and increasing weakness
Started with nine drops of Taxol and had an allergic reaction that caused me to stop breathing. Then switched to Gemzar and Carboplatin. Had some nausea but started taking Emend....VERY tired.
I begin chemotherapy on the April 8th. 4 rounds of 3 weeks each of Vinorelbine and Carboplatin. (Originally Cistoplatin but the doctor changed it cuz my ears were ringing)Worst side effects are feeling like lead and/or rubber, forgetfulness, weight gain, insomnia and aching bones, muscle and skin.
carbo/taxol only effect has been being tired!! Verty low white cell counts, had to receive one transfusion, other wise has handled it well.
Cisplatin & Etoposide May/18-August/18. Four rounds of treatment 3-4 weeks apart. Side effects- Hair loss, nausea, weakness & fatigue, weight loss
I had my port-A-cath placement on November 9, 2010 for six cycles of Carbo/Alimta. The port-A-cath hurts just on its own, but chemo sucks, sucks, sucks! I cant say anything nice about chemo, other than hopefully it is killing those cancer cells! After each treatment I have extreme fatigue and appetite loss for 4-5 days following. My hair started falling out after the second cycle, which doesn't bother me compared to the fatigue. I hate not helping out around the house, or missing out on family time because all I want to do is sleep. My blood counts are also very low so the doctors and nurses check them every week, and they also check my kidney function. I'm on medicine for my anemia which helps a little with my fatigue. My kidneys should hang in there- I guess it paid off living a healthy life.
750ml & 500ml cisplatin & taxotere respectively on 12/10/09,12/31/09,1/20/10,2/11/10.i thought they were trying to kill me!
daily intake of a chemo tablet
October 18 th and every 3 weeks for 4 treatments. Nausea and joint cramping, some neuropathy.
one treatment . switching to Afatinib
Iressa (gefintib)

Bladder Cancer Chemotherapies

What Bladder Cancer Survivors said about their Chemotherapies.

Had Chemo biweekly starting Oct. 13, 2016 ending 1/20/17. Main side effects were fatigue, amnesia, hair loss, constipation. I do not know the drugs they used. It was a cocktail.

Non-Hodgkin Lymphoma Cancer Chemotherapies

What Non-Hodgkin Lymphoma Cancer Survivors said about their Chemotherapies.

R-Dhop 6 weeks. Every 21 days. Followed by Neulasta shot in stomach day after chemo. For those of you who have to have it. It hurts. It's not the needle it's the white blood cells going into your body. Burns badly. So, put ice pack on stomach before getting the shot. You'll thank me a million times. :) Had a picc line in upper right arm, leading a tube to my heart. Strong chemo. But, with all the other meds they put in it. I NEVER got sick. Everyone around me couldn't believe I had cancer. This is the last week before final treatment. Now body has said..."time to be fatigued." :)
RCHOP, 5/9/2019. back pain, lethargy, nausea
Started11/15/2012, every 21 days until 03/06/2013. Had neuropathy, vincristine stopped for 2 cycles,better, then resumed 5th cycle. Had some issues with breathing-felt like I had eaten a lot of mints, treatment postponed for a week, got chest x ray, nothing wrong. Was tired with each cycle, but trudged through. Prednisone helped. Lost taste for some foods, but never lost my appetite!
R-CHOP; chemo as listed above plus Rituximab and Prednisone. June x1; July x2; August x1; September x2. 6 total rounds of R-CHOP. Also, had an injection of Neulasta the day after each chemo round that helped me build-up white blood cell counts and it worked well. Fortunately, they gave me a 'cocktail' of Benadryl etc, so I never got sick - thank God. Took nausea pills. Loss of appetite for days as everything tasted like you ate old pennies or nickels. The first two times that I had the Neulasta white blood cell shots I had bone pain within a week that lasted only a day or two and went away. Chemo also gave me an irriegular heartbeat, so a beta-blocker fixed that. Chemo 1-4 weren't all that bad, just long. Chemo 5 & 6 felt like I was in a fight in the middle of the night - but I was able to recover quickly. The Prednisone pills made me nasty, which I usually am not.
6 cycles of R-EPOCH
I'm on my fourth treatment of chemo so when I get doen with the six, they'll start me on radiation
R+Chop, 1/4/2012-4/23/2012
Rituximab X 6 Treanda X 12 Aching, fatigue, nausea, weakness
ill for a couple of days after treatments 1/15 - don't know if what is going on with me now is latent effects or new cancer
R-CHOP - 10/21/2010, 11/11/2010, 12/2/2010, 12/22/2010, 1/13/2011, and 2/16/2011 - was scheduled for 8 sessions but reduced to 6 sessions due to being determined NED, or in remission, per PET scan results dated 1/11/2011
2004.-I received quimo scheme CHOP (ciclosfamida -Vincristina -Adriamicina - Prednisona. 2006.- 2nd. line of quimo. with scheme ESHAP: Etoposido - Platino - Ara-C-Dexametasona
I have had 6 months of chemo, consisting of Rutuxin and Bendamustin or Treanda. Found that I was deathly allergic to the Rutuxin, and fought that drug all the way through the chemo infusions.
R-Chop
12/8/14 R+Chop thrush, severe upper and lower abdominal pain, pain in muscles and joints, extreme fatigue, constipation, constant coughing, aspirating fluids into lungs. Gastric Reflux activated to point of juices flying up in throat even while on Omeprazole. Neuropathy-numbness and tingling hands and feet. Tongue is numb and can't taste anything. Hair loss 14 days post chemo. 12/29/14 - Severe Upper and lower abdominal pain, constant coughing, still aspirating fluids into lungs, lost my voice, vocal chords are fire engine red, the gastric reflux is so bad they had to add two more medications to my Omeprazole, Zantac, and Carafate. I have Flu symptoms, congestion, post nasal drip, pain in muscles and bones, numbness and tingling in hands and feet. Can't taste anything. Taste buds come back after 3 weeks. 1/19/15 -R+Chop- continue to have numbness and tingling in hands and feet. I drop things and can't feel things in my fingers. 1/20/14 Neulasta injection - exactly 24 hours after injection. Really sore muscles and joint pain all over. lower abdominal pain, constipation, extreme fatigue, coughing.
R-EPOCH
R CHOP, effectiveness stalled after 5 treatments GDP, 2 treatments ineffective ICE, to begin asap
R-CHOP, six session, three weeks apart, starting on June 29, 2012 and ending on October 16, 2012. Had some minor nausea on the night of the chemo sessions, but nothing too major. About 80% of hair fell out by the third chemo session.
Dose adjusted R-EPOCH. Six rounds. 21 day cycles. Chemo administered as an inpatient. Started chemo December 19, 2011. Finished April 26, 2012.
Rituxan-CVP
She does her 2nd round tomorrow. Although they called today and said its more aggresive than they thought. So we are now going to a new hospital in a different state.
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
R-CHOP, (I know it as "rituxin" "the red stuff," "the clear stuff," and "the god damn prednisone pills" -- lazy, I know) started Oct 15, 2009. So far just a bit of fatigue, crankiness, and I think my body fluids may be like dinosaur acid right now. Also I hate taking my pills but have to do it because of, um, you know, long term survival and all that.
4 rounds of chemotherapy "R-CHOP", every 3 weeks for 12 weeks. 1 round of radiation therapy. Nauseated, feeling like am in a fog. I chew on ice chips prior to and during the administer of Adriamycin (red devil) to prevent mouth sores. So far it works!!!
FCR Ofatumumab
RCHOP CHEMO

Melanomas of the Skin Cancer Chemotherapies

What Melanomas of the Skin Cancer Survivors said about their Chemotherapies.

Fluorouracil treatment started Sept 2010 Fluorouracil treatment started Aug. 2011
Taxol, a pain in arm and in the Ass.

Kidney Cancer Chemotherapies

What Kidney Cancer Survivors said about their Chemotherapies.

no treatment yet?
Afinitor (everolimus) tablets daily, started on March 17, 2011
Votrient
4 months, Oct. 2010-Feb. 2011 Avastin and Interferon
My husband was on a trial for a new chamo for renal cancer called "Sutent". He made no progess and instead suffered significant side effects that we believe plunged him into a spiral of ever increasing side effects of his cancer.
On my third treatment and then will have a week off
50mg sunitinib/sutent on a 28/14 cycle. I've had minimal side effects, but I just finished my first four weeks "on".
Methotrexate, Doxyrubicin, Vincristine, Vinblastine, Cytarabine, Etopomide
As of 8/3/11 on second cycle of Sutent, 28 on 14 off

Pancreatic Cancer Chemotherapies

What Pancreatic Cancer Survivors said about their Chemotherapies.

5fu from 11/8/16 until 1/5/17. Five hour infusion then wore a pump home for 48 hours. Was supposed to do 8 cycles but only got to 4 when my white cell count dropped and we had to stop. The side effects of this treatment are horrendous. Pain, nausea/vomiting, fatigue, neuropathy in hands and feet, hair loss, cold sensitivity, shaky hands and lips, constipation, night sweats, mouth sores.
Start date November 14 th chemo drug called Folfirinox 8 weeks every other week to try and shrink tumor away from artery
I do not remember all of the names. The chemo was a combination of four different chemo drugs. It did not work. My father experienced nausea and could not taste anything so lost his appetite. He also was very sensitive to temperature. We are still waiting to start a trial chemotherapy drug! Pray, pray, pray!
Folfirinox Jan 2013 - Feb 2013, switched to Abraxane and Gemcitabine March 2013-current
Extreme fatigue, delerium
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
Gemzar started Jan 2014. Once a week for three weeks then one week off for six rounds; liver function elevated and dehydration, fatigue , vision affected .
Diarrhea, fatigue, numbness in finger tips and toes
Gemazar.... So far, nausea and weakness
Gemzar at first, 5FU for recurrence.
Chemo #1 on 4/02/10: I was more tired then usual and had a "blah" moment after going outside for a few minutes.
Abraxane and Genzar
Mar 4 _ Sept 15 2015(Folfirinox)Nausea, weakness, vomiting, low potassium, low platelets (despair)
About to start chemotherapy
Oxaliplatin,Calcium Leucovorin,Camptosar,Florouracil
5-Fluorouracil (5-FU) My sister gets chemo every other week. Her main side effect is diarrhea. She has had 3 chemo fusions so far. She has diabetes and the chemo she receives has glucose in it so when she receives the chemo her blood sugar level goes sky high and she gets severe headaches. She then takes additional insulin following the chemo to help bring down the sugar levels. I am amazed at the medications that help her symptoms. When told she was going to have "bone pain" after a shot to boost her platelet count, she was told to take "Claritin".
1st session, September 20th. Once a week for 3 weeks then 1 week off. October 25th, white blood cell count was down for the 1st time, so they skipped chemo for that week. November 1, 2012, white blood cell count back up so they did chemo. December 2012 started 5 FU, Oxaliplatin and Leucovorin every 3 weeks to target the abdominal lining tumors that are continuing to grow. April 19, 2013, CT shows the chemo isn't working on the abdominal lining tumors, and they have given him the best chemo treatments they have, nothing more they can do. But will reduce the chemo he has been on to reduce painful sores in his mouth and side effects that were getting worse with each treatment, I think to keep the liver and pancreas tumors at bay and hopefully still give him pain relief.
given up on dates the first time on chemo was 7 months and this time has been 9 months
Gemzar, Taxotere and Xeloda
every other week, cold sensitivity
FOLFIRINOX and Gemcitabine/Abraxane
Hospitalized twice for sepsis after 1st and 3rd Chemotherapy Therapy Treatments. The pancreatic mass pressed on spleen and cause an infraction. The infracted portion of the spleen died and abscessed. Bruce currently has a JP drain in the spleen.
Chemo once a week from 4/2/10 to 6/01/10: Was tired the next day with small "blah" moments.
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.
Gemcitabine (Gemzar)

Oral Cancer Chemotherapies

What Oral Cancer Survivors said about their Chemotherapies.

2 cisplatin 3/22/2011: nausea! and fatigue!
1st and 4th week of Radiotherapy treatment, chemotherapy was also performed. 24 x 5 delivery of 5FU with a Cisplatin infusion on second day of each of these weeks. Side effects included a 'Chemo crash' both weeks I had the treatment - second week worse than the first (required blood transfusions).
Cisplatoin 1x week for 7 weeks Dates: Aug 2011 through Nove 2011 Side Effects include; Nausea Hair loss from both radiation and chemotherapy Eyesight has deteriorated a little weak
Waiting for petscan results to see if lymph nodes involved
Erbitux, once a week for 7 weeks, starting in August. Initially, severe tongue sensitivity (at one point even water was like battery acid). For most of the treatment time, daily nausea and and severe acid reflux with occasional vomiting. As of today: chemotherapy induced neuropathy of the right leg causing the inability to lift my toes or my ankle (currently wearing a brace), but expect this to improve; whatever contribution Erbitux has towards complete dry mouth and lact of taste.
3 total - week one - week three and week five easy to do - no issues during treatment lost my beard and hair - so I shaved it short to look like I did it on purpose - wore a crocheted cap - head was always cold.
We can cure this without Chemo. . . I'm going to do it!

Ovarian Cancer Chemotherapies

What Ovarian Cancer Survivors said about their Chemotherapies.

There were eight cycles of chemotherapy: 4 before surgery and after surgery 4. My body responded well to chemotherapy and tumor marker (CA 125) decreased from 690 for 4.
Carboplatin started 2007, however I became allergic in 2008, so had to have it changed to Gemzar and Advastin then. Been on and off of chemo since for chronic cancer outbreaks.
Carbo and Taxol 6 rounds. Loss all my hair, even my nose hair, eyebrows, everything. Weak, muscle and nerve pains, anemia
I started chemo on Dec 3, 2012. I need to complete 6 treatments of Carbo and Taxol. My treatements or given over a period of 3 weeks. The first week I receive the full carbo dose and 1/3 of the taxol. The next two weeks I recieve the remaining taxol. I am having trouble keeping my WBC up with the weekly treatments. I had to have Neupogen shots to help give them a boost.
IP chemo. Taxol and Cisplatin. She has suffered from the following effects: fatigue, nausea, heart burn, pain in her lower abdomen, numbness/tingling in her hands, legs, feet and "chemo brain"
6 rounds of chemo, first one 3/9/11, last one 6/21/11. Side effects: constipation; sharp pains in legs and feet; metal taste in mouth; heavy limbs; pain in joints; jittery; loss of all body hair; eventual numbness and tingling on bottoms of feet; and a slew of other things.
6 cycles IV carboplatin and taxol. Nausea, severe fatigue, hair loss, muscle pain constipation. In the middle of chemo diagnosed with meniscus tears in both knees after significant knee pain. Ultimately had 2 surgeries for partial meniscus removal from which I'm still not healed. Neuropathy especially in feet became big issue leading to dose of chemo needing to be reduced after the 4th cycle. My gastroenterologist feels I have some degree of neuropathy in my colon as I do not eliminate as before. During chemo and persisting I often have a "full of stool" feeling even after eliminating. Very annoying and affects quality of life.
Fatigue, neuropathy, loss of hair,
Taxol/Carbo every 3 weeks. At 2nd round, Avastin was added to the mix & will receive for round 3 & 4 as well.
chemo May 2008 to August 2008, did 5 rounds out of 6 - nausea, peripheral neuropathy, anemia,hair loss,dehydration, fatigue, weight loss
Mar.2007-taxol & carboplantinum (8 treatments) July 2008-taxol & carboplantinum (7 treatments) The first 2 rounds left me weak, loss of hair, nausea and vomiting Oct 2009-Doxil for six months. Side effects not so bad
7-2010 IP/IV chemo x 6 cycles ( cisplatin/taxol/carboplatin) Hair loss, extreme fatigue, abdominal pain... 11-2011 ca125 on the rise. 4/6 cycles complete of topotecan. Ca125 back in its place. BRCA 1 Minimal side effects: reasonable fatigue and well controlled nausea.
<b>February 2009:</b> CA125 level was around 3500. She began treatment with Taxol/Carbo with Avastin. Within two weeks, she lost all of her gorgeous red hair. Energy level dropped significantly. She continued having "maintenance" chemo. <b>June 2009:</b> CA125 dropped to 32, and then to 16 later that month. Oncologist decided to stop chemo- as there was no sign of cancer! <b>March 2010:</b> Having chest pain/shortness of breath. CT scan showed fluid in her lungs. Testing after thoracentesis revealed cancerous cells in the fluid. CA125 was back up to 300. It is now referred to as "RECURRENT CANCER" She began chemo again: Cisplatin and Gemzar. Cisplatin was causing tinnitus. Oncologist decided to discontinue to avoid permanent hearing damage. The Gemzar would usually burn during infusion. Side effects: headaches, intense nausea and often uncontrollable vomiting. Drastic decrease in appetite (and weight: about 70lbs) Last time it was checked, her CA12 was hovering around 86. I'm guessing it's currently off the charts.
First chemo carbo/taxol on May 7th. so far, a bit of joint and bone pain, nothing else
I had three rounds of chemo in three week cycles. Week 1: 5 days of treatment (admitted in hospital) Week 2: Recovery in hospital Week 3: Recovery at home I experienced low blood pressure, dehydration, nausea, fatigue and anaemia. I still have fatigue after treatment, muscle atrophy and peripheral neuropathy.
taxol/carbo dec 2008-april2009 topotecan sept 2009/present
4 months of chemo. Made me achy like having the flu but much worse especially in my legs, naseous, food tasted bad, water tasted bad, low energy.
1.Carnoplatin/Taxol...March 30 2016 & continued for 18 straight weeks plus 4.5 blood transfusions 2.Folfox...May 2017 4 infusions then stopped because it wasn't working...
07/20/2017 - Extremely tired, some nausea, fidgety legs, no energy for a week.
Combined carboplatin and taxol, both administered systemically by IV started August 10, 2011, with last cycle administered November 23, 2011. Side effects included: nausea that was only gotten under control after the second administration using about 5 drugs; intense fatigue; muscle and joint pains that were reduced with tylenol and later greatly reduced with gabopentin; intense neuropathy in hands and feet, but even lips and chin until the gabopentin took the edge off that, too. Neuropathy still intense in first week of every cycle. Other side effects included intense fatigue, weakness, vision problems on two occasions (blindness in one eye when reading lying on side), severe constipation, and cognitive effects (short term memory dysfunction, inability to solve puzzles, inability to multitask or withstand multiple stimuli at once). There's talk of giving me a PARP-inhibitor for maintenance therapy in 2012. Constipation for 9 months! No, wait. Make that FOREVER! Seriously. Til my dying day.
none the dr did a slice and dice SIDE AFFECTS WERE WEALINING OF HEART MUSCLES HAD A STROKE 2 YEARS LATER AND NEEDED A PACE MAKER PUT IN YES I AM THE BIONIC WOMAN HEAR ME ROAR ALSO HAVE NEROPATHY IN FEET AND LEGS
Taxol and Carbo, every 3 weeks for 6 times, next (3rd) will be April 29. First three hours of administering drugs, agnonizing dizziness due to high dose of Benadrly to combat first few hours of chemo drugs. Next two days seem ok, with a false sense of energy, then day four through 8 no desire to drink, get dehydrated, can't stand or something strenuous for long periods of time, physically weak and tired always. Tiredness especially never is gone.
Carboplatin, taxol, avastin, and a PARP inhibitor for 6 rounds, then remission for about 7 months. Then more carboplatin and taxol for 3 more treatments until I became resistant, then onto the MEK/Milo trial. Failed that after 2 months, now looking into immunotherapy
Declined chemotherapy
Had 2 courses of CarboPlatin and Taxol via vascualr Port; followed by 4 courses of IP chemo with Cisplatin and Taxol, one course every 3 weeks, requiring 3 days in hospital each time. Could only tolerate 4 courses because side effects were too severe: nausea, vomiting, constipation and diarrhea, ototoxicity resulting in some permanent hearing loss in left ear and also tinitus, tingling, numbness and pain in hands and feet (apparently permanent), and "chemo brain" - no short term memory, fogginess, confusion, and exhaustion. Serious loss of weight as well. Last 2 courses of chemo were via vascular port and the same as the first 2, and were tolerated fairly well.

Thyroid Cancer Chemotherapies

What Thyroid Cancer Survivors said about their Chemotherapies.

HAD 7 TREATMENTS ONE A WEEK FOR 7 WEEKS SIDE EFFECTS WAS MINIMUM DID NOT LOOSE HAIR JUST WEAKNESS OR LARTHARGIC MOOD ...
Radioactive Iodine treatment, 8/09 - nausea
Thyrogen injection #1: 4/14/10 - stings #2 - didn't feel a thing RAI-131: 4/16/10 - 203.9 units - so far, so good.
RCHOP 21. Three rounds total. 11/2/0, 11/23/10, and 12/14/10. Worst effects so far: heartburn to point of esophageal spasms, constipation, headache, mouth tenderness and dryness, fatigue and hair loss. This was for the Lymphoma. No chemo (so far) for thyroid cancer.
Sutent currently

Stomach Cancer Chemotherapies

What Stomach Cancer Survivors said about their Chemotherapies.

Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
4 months...not helping
Folfox, nausea/vomiting
Chemo every 2 weeks, nausea, vomitting.
Began chemo in July of '09 with camptosar, leucovrin, and 5-fu. this is over a 46 hour period. In January '10, they added avastin and zometa to the regimin and is ongoing.
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.
3/15/14 Began 10 session clinical trial at Memorial Sloan Kettering. Chemo iv (cisplatin and epirubicin + trial drug/placebo) every 3 weeks. 2000mg Xeloda pills daily. IV chemo is followed by two days of dextametazone (steroid pills) which give me a boost. Hair loss, dry hands - currently trying to prevent them from cracking, some fatigue. Trying to avoid pain meds because that seems to be the cause of constipation/discomfort.
Cisplatin, Epirubicin, Capecitabine (Xeloda) #1 June 12, 2017, #2 July 4, 2017 Nausea, Dry mouth, Tingly fingers, blood clot in spleen, hair loss
No help says' the doctor.

Brain Cancer Chemotherapies

What Brain Cancer Survivors said about their Chemotherapies.

1/12/12 - begin taking daily chemo pill Temador (not sure how to spell that) for up to 12 months.
What more can I say other than YUCK! It has been very difficult thus far. Upon my first treatment I left the hospital, only to return a few hours later vomiting non-stop. Zofran hasn't helped. The only thing that does anything at all to combat the nausea is to drink plain green tea. I know it sounds weird, but it sometimes works.
February-continued weakness, tiredness, fatigue, sores in mouth
Mom had Temodar - just fatigue. Dad tried chemo (IV) - and wound up nearly dying from it. Placed in hospital twice and determined his body just could not handle it.
temodar 42 straight days
PCV 8/21/16 - still fighting
Timodar Started in March 2006 and still ongoing. Side Effects: NAUSEA!
temador nightly before bed. also on a target therapy trial of avastin which was researched at duke hosptiol
Radiation & Temodar daily for 42 days then cycles of 5 days on 23 days off
Temodal - started Aug 15, 2011
Temodar, 150 mg during radiation increased to 350 5 days/month for 3 months, then increased to 450/month at present Side effects: fatigue
Nothing early on with the low dose, extreme fatigue with the high dose/ On his 4th round, sleeps 15 hours or more a day. Little appetite. Has been nauseated on and off.
No chemo
i was supposed to get 8 chemo's. but i only received 7 because my blood count wasn't up in time. i had "Vincristine" (iv)every week. Cyclophosphamide(iv)every 6-8 weeks. Cisplatin (iv), every other chemo, and Lomustine (pill) every chemo.
Tremador - First set - daily dose for 3 weeks Not able to continue to the next set. Nausea, weakness, loss of appetite, Sleeping constantly
Undergoing chemotherapy in Chennai, India. Started on July 12, 2009. Total 12 doses. Hair loss, vomiting, fatigue, loss of appetite, etc
At first it was the same as radiation, but when they got aggressive in August, I was stuck to the couch for 2 weeks. Weakness, major nausea, muscle and bone pain, throat swelling, mouth sores, major shivers and shakiness, tremors, spinal and head pain, throbbing from head to lower spine...theres more but can't remember them all.
7/08-1/09: I took pills for 5 days each month. The first month was fine. I thought, "this is going to be e-z." Boy, I wrong! After that month, it was horrible!
Taking a Temodar pill for 2 months.more fatigue, and sickness.
Temodar 160 mg nightly began July 21, and continued during radiation treatments. Chris had to take Zofran with the Temodar, so he didn't get nauseous. He will finish the chemo up the chemo September 2, 2013. He will get 4 weeks off, and begin taking a double dose of the Temodar for the first five days of every month for the next six months.
Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
Temodar - no side effects yet, Praise God!
Started temodar on November 9, 2011 140mg a day for 6 weeks - there has not been much happen in terms of side affects yet, some nausea
started 9/13/2010-7 days a week, temedar. nausea and vomiting forst two nights. was ok last night so we'll see.
Began 150mg Temodar on 1/3/2011 2nd Dose of Chemo to begin 3/17/2011

Multiple Myeloma Cancer Chemotherapies

What Multiple Myeloma Cancer Survivors said about their Chemotherapies.

began 12/1/14 - 4/30/15 (Velcade, dexamethasone and cytoxin), Cytoxin priming 6/5/15, Stem cell transplant6/16/15 and Malthalon 6/25/15 , also neuropathy (mild) in parts of hand and feet.
8/13/15 Cyclo,dexamethasone, velcaide, huge stomach, very nauseous,no life. After5 1/2 months fired oncologist and went to natural treating dr.
January 2006 and May 2006 stem cell transplants with hi dose malthalon chemo resulting in malthalon misery - tired and more tired.
Velcade, Decadron, Revlemid. Mostly fatigue and a slight loss of appetite.
1st cycle December 2010. Loss of hair.
March to October 2010.Four treatments every 3 weeks. Velcade, Dex and Zometa. October 2010 went to 1 treatment every two weeks, same medication.Still on this schedule as of this date Mar 8, 2010
Revlamid - daily - ongoing
4 monthly rounds of VAD prior to allogenous bone marrow transplant.
Velcade, dexamethazone, since transplant just added revlamid
18 series VRDD and VRD so far
Thalomid: Fatigue. Red spots that eventually covered my entire body. Neuropathy in feet and hands. Revlimid: rash, upper body.

Colon and Rectal Cancer Chemotherapies

What Colon and Rectal Cancer Survivors said about their Chemotherapies.

5-FU started 6/27/11 hooked up to the pump 7 days a week for 6 weeks....ugh!!! Grueling. Side effects consist of nausea and vomiting, finished the first round 8/2/11. Now I have to continue 9/21/11 for 4 months... 5-FU, Oxaliplatin, Avastin & Leuc
November 1, 2006, Started with 5-FU, missing DPD enzyme causing life threatening toxicity issues and discontinuing the 5-FU. No additional chemo available to me for any treatment of this condition. Now in wait and see mode.
First treatment on 8-16-12 of FOLFOX Avastin begins 8-30 with second treatment Side effects: mouth soreness, sensitivity to cold
5FU 8/23/10 through 9/27/10 24/7 once a week flush and bloodworkups. some nausea
March - August 2005 Luecovorin, 5fu, and Oxaliplatin. Had issues with joint and muscle pain, skin peeling, Neuroathy (with cold things/and taste) Minimum hair thinning and minimum nausea, fatigue was an issue. This was 3 days a week every other week both at office and home. 2008-Fulfury- was very very sick, constant nausea and vomiting, fatigue, only did two treatments and quit, because I was so sick it felt like the chemo was killing me. This was also a take home bag 3 days a week every other week. 2010- Urbetux (Erbitux) not sure of spelling with a benedryl cocktail pre-treatment to stave off allergic reactions,This is once a week for a few hours every week, has mainly caused skin issues, Acne like rash that has turned into cellulitis (skin infection) in some spots, I am now on antibiotics strong enough to fight MRSA just in case and pain meds as it is very painful, but it's getting better and in 2 weeks I will go back and we will see where it stands as far as do we have to cut my dosage back?
severe dehydration, potassium def. diarrhea
Xeloda during radiation and again mid-June to July along with Oxaliplatin- only able to receive two treatments after surgery due to severe dehydration, malnutrition, immuno-suppression. Since July have had severe pain in joints- especially shoulders- now diagnosed with frozen shoulders. Beginning PT this week.
Chemotherapy 10 months - 2012/2013 - severe neuropathy in feet remains, usual side effects: hair loss, skin problems, sores in throat and esophagus, finger nails fell off, sick and tired.
Oxaliplatin and 5-FU. Horrible tingling in hands and feet when I touch something cold. Horrible jaw pain when I first start eating something. Lingering metallic taste in mouth. Dizziness and headaches. Blurred vision. Fatigure.
Just began 5FU 5 days ago. First round.
2/14/13 12 rounds of 5FU. Dropped the Oxaliplatin after 5 rounds because of moderate neuropathy. After metastasis to liver, 12 rounds of Zeloda. From 9/14-1/15
started chemo on 12/11/07 clinical trial with avastin,erbitux,oxaliplatin,lecovorin,5FU..now irenotican
pump for 5 days aweek for 6 weeks then 2 days every 2week for 6 sessions
12 sessions
CHEMO 1/2/2012, CHEMO 8/1/2012, CHEMO 7/1/2013 HAIR LOSS
Started Chemotherapy on July 18,2016
I started folfox with Avastin in April 2010, did 12 treatments & had my last one on Sept 7th, continued with Avastin til beginning of January 2011. I was already sensitive to the cold before I started oxali, it was horrible, my fingertips & feet still have that slight weird tingle to them, it's Feb. My oncologist & I agreed to start irinotecan after my surgery to knock things out for good.
July 2, 2010 - Heated Intra-peritoneal Chemotherapy (HIPEC). Side Effects: Complete Loss of appetite, everything tasted awful. No nausea or vomiting. Lots of swelling due to amount of fluid they pump you with prior to procedure.
I've had two rounds of chemo (carbo-taxol and FOLFOX, Avastin), neither of which were effective.
5f-u and Oxaliplatin start 10-19-2010~On June 13, 2011 I had an allergic reaction to Oxaliplatin and my Doctor made the decision to take me off of that for good. Nothing will take it's place as of now. I will remain on 5f-u and Leucovorin.
Started July 18th to continue until August 29th, 2016
Alt Folfiri/Folfox 2010/Feb through 2010/June Folfiri/Erbitux started 2011/March Changed to Folfox/Avastin 2011/Oct Clinical trials 2012/Sept
He is going to start his first chemo treatment on August 12th. (Avastin, 5FU, Qxaliplatin, Neulasta, Leukine, and Neupogen).
leucovorin, floxuridine. Was on Oxaliplatin and 5-FU. Worked well, but killed my platelets. Then on captosar? Crap. could feel the lesions growing. Still have peripheral neuropathy in hands and feet from Oxaliplatin. Side effects: Gas! Holy cow! Now on Xeloda. who knows what's next
Started October 28, 2009 5FU 24/7

Liver Cancer Chemotherapies

What Liver Cancer Survivors said about their Chemotherapies.

11-19 chemo pellets not sure of the name, nausea,
On going chemo regiment and had one chemoembolization.
TACEdeb procedure begining of June....side effects... all haha vomitting, nausea, fever, pain, pancreatitis.
Nexavar 8/22/12 - forever, side effects all listed
Nexavar - Current (8 months)
First treatment was June 8th 7 hours between the other meds olus the chemo..Cisplatin and Gemzar.. Felt ok the day after but then started feeling very sick, achy, headache, ringing in ears, coulnt eat, weak, dizzy,tired,shaky all over I only felt well enough to go to the doctor on the 7th to have my blood drawn..saw dr and he said he would up my steroids next time and that should help second treatment was on the 8th, Just the gemzar.. Really tired and achy. Dizzy and weak. Had my shot of Lewnasta on Monday. Still fell tired and bone pain
Nexavar for 6 months. Infusion therapy started 2 weeks ago and ongoing bi-weekly.
every kind, all the time for the last 5 years
No chemo as no primary cancer found and chemo will only add a few months to life, yet these extra few months will be with the side-effects of chemo
7-2008 to present. Lethargic, no appetite, not able to focus for too long on anything, weight loss, strange thoughts, sleep seems to be all REM, dreams and or nightmares about Nam seem to pop up while I'm awake,anger, especially at the VA for not stepping up and admitting and approving my claims.
Tried Nexavar for one day, but decided against it; bad side effects--felt cloudy, nauseated like when I was on Interferon/Ribaviron and had rectal bleeding from the Nexavar; not worth it to buy a few more months of life; discontinued
i will tell you

Cervical Cancer Chemotherapies

What Cervical Cancer Survivors said about their Chemotherapies.

Have had 5 chemo treatments. Took 5 hour "naps" afterwards. Some foods tasted nasty! Normally a huge water drinker but water nauseated me. Required at home IV infusions of Potassium and Magnesium for 8 hours/day for total of 15 days, also received a few infusions at the clinic for dehydration and low electrolytes. Anti-nausea meds didn't work on me.
Cisplatin (40 units) every Monday for five weeks, beginning April 26, 2010. Hair thinned; veins hardened; steroid acne; acid reflux; turned yellow after treatments (that was odd).
Chemo was my biggest fear. Hearing so bad horror stories I was besid myself with fear. I actually have 1 more left to go and no problems except for a mild nausea about day 3 and thats it. Never really got too tired and never lost my hair. It really was like being pregnant as far physical problems with tired and nausea. It was a low dose cisplatin for 5 weeks.
Extreme nausea, vomiting, some tingling in my toes.
5 treatments of Cisplatin
N&V, Fatigue, Dulled mentation 12-15-09 to 1-30-10 SECOND ROUND OF CHEMO, CISPLATIN 01-01-11 to 02-17-11 LOTS OF VOMITING
I have completed 6 rounds of chemo. Currently I am not getting treatment due to the neuropathy in my feet. First round of chemo was March 7, 2018 and continued every 3 weeks until May 30, 2018. Side effects of chemo: tiredness, loss of hair, nausea, a few occasions of vomiting, bone pain, muscle aches, neuropathy of hands and feet and I could not think clearly.
nauseousness....
Cisplatin started 7/8/08
Had a really bad reaction on Oct 14 2014
Chemist Monday's only decadron steroids potassium
I couldnt eat as much as I thought I would be hungry. Most food tasted terrible. I was able to watch much tv. I never watched tv since I was a kid. I am an active outdoor person, I felt it made me become lazy. lol I got the flu, lowered my immune system, however my red blood cell count always stayed very good!
Cisplatin: Took 2 treatments, 1 week apart. Tolerated well. No nausea, though stomach very "acidy" feeling. Eating bland foods often throughout the day helped. Did have some tiredness. No loss of hair. Had to stop Cisplatin for a while due to frequent ringing in ears. Cisplatin can lead to permanent hearing loss. Was able to complete last 4 Cisplatin after a break. Have some hearing loss, but not much. Will be using an experimental drug-Avastin, as well. Avastin: no loss of hair. Felt a coldness in the core of the body and extremities. Combined with Cisplatin, usually left me feeling poor and unable to work for about 5 days. Starting Taxol, Carboplatin, and Avastin again next week.
Metallic taste heart burn mild nausea ringing in ears
1st chemo on 2/16 Cistplatin. had Headache for 2 days ??decadron given for nausea. mostly fatigue---but can't blame it all on the chemo. to have 6total treatments
First chemo was on Friday 9/15/17. 3 chemo infusions over 8 hours. To be done every 3 weeks. Next scheduled 10/6/17. Have had no nausea or vomiting. Saturday night, severe pressure in rectum, vaginal area and lower pelvic region. Contacted physician due to pain and that no amount of medicine was subsiding pain. Was advised that it seems as if the chemo is working. The pressure could be due to the necrotic tissue from the cancer itself is moving, liquid retention, or inflammation from the chemo. He reassured me that pain and pressure should go away within a few days. Was instructed to take higher dose of percocet. The higher dose of pain meds has done its due diligence, but knocks me out too. It is now three days later and pain and pressure has become more bearable, and treatable with 800mg motrin. Feeling extremely tired, which is very odd being that I am very active. Powering through, I will win this battle.
combination of xeloda and cisplatin- some loss of appetite, some naseau ( not too terrible), and some fatigue--started treatment in February 2006 cisplatin was administered once a week for four weeks and xeloda was taken orally Mon.-Fri. for 3 weeks, treatment was stopped early due to low blood counts
2 rounds of Taxol/carbo 11/2011 & 12/2011...Is being changed for 1/2012...not sure of new drugs yet
Cisplatin for 6 weeks Cisplatin & Topotecan for 4 21 day interval treatments. 3 day duration of treatment. CHEMOTHERAPY TREATMENTS are the treatments that made Aimee sicker: nausea, vomiting, diarrhea, and weight loss of 35#. She also had 10 blood transfusions during the 2 treatment plans because the cancer and chemo were killing her simultaneously. During her final treatment in January 2009 she had an allergic reaction and coded in the clinic. Treatment was discontinued and Palliative care began.
Tirapazimine and cisplatin for 6 weeks...Metal taste in my mouth towards the end and thrush in my mouth for a couple of weeks which subsided with medication.
6 carbo/taxol and 4 cisplatnin in 2013/4. 4 carbo/taxol in 2016/17.
Sept 6-Nov 6 2008: every three weeks for 6 hours. Side effects: hair loss, tired, and sore from the Nuesta shot, but overall not as bad as it could have been.
Weekly chemo for six weeks
I started Chemo in July. I went in with a positive attitude. My sister and I had done a lot of research about things to do to minimize side effects. I cannot stress the importance of drinking a lot of water (and I mean a lot!) before during and after the chemo. Rinse your mouth with a mouth wash specifically for dry mouth - thankfully I avoided sores and I think this was the reason. Rest as often as you can and don't ever feel guilty about it.
Cisplatin weekly 10 weeks delayed nausea that was almost impossible to control. Change in texture of hair minimal loss of hair. Mostly just thinning.

Larynx Cancer Chemotherapies

What Larynx Cancer Survivors said about their Chemotherapies.

Induction chemo for 2 months prior to radiation treatment - once a week during radiation; mouth sores for four days after first round, hair loss, fatigue, and some taste changes, but all in all, he did really well. Very little nausea.
12 total Erbitux sessions, once weekly, January 13 - March 31, 2011. Increasing fatigue and, ironically, insomnia following each session. From mid February through the end of treatments, somehow the Radiation/Erbitux mix seemed to spawn clusters of migraines.
Oct 8th- January 13th, 2010 Lost Hair after 21 days. Fatigue, dry mouth, muscle cramps that were very painful after 1st treatment. terrible rash on my head and neck the whole time I was taking chemo.

Acute Myeloid Leukemia Cancer Chemotherapies

What Acute Myeloid Leukemia Cancer Survivors said about their Chemotherapies.

Achieved remission October 2017 with 2 IV drugs — few side effects aside of minor peripheral neuropathy in feet. Out of remission in January 2018. On cytsribinevsubce Feb 2018; Also on oral chemo since March 2018: Venetoclax. Peripheral neuropathy (feet); anal fissures w/bleeds; mucocitis of throat (hard to eat or drink ANYthing); dyspepsia (nausea); fatigue; 15% wt loss (BMI=18.4)
1 cycle of 7+3 regimen of Cytarabine, Idarubicin, but still had more than 10% of blasts in system. Went on to have 10 intermediate doses of cytarabine, and was in remission. Doctor had me on low dose decitabine and sorafenib (but I did not continue with sorafenib due to strong side effects of face bloating/swelling and rashes)
Had two induction rounds and two consolidation rounds.
Multiple protocols for ALL & AML.
Started induction chemotherapy for AML on 25th September with "7+3 for 24 hours. I got Daunorubicin for 15 minutes the first 3 days while getting cytarabine the rest of the 24 hours. After the 3 days, the cytarabine continued 24 hours for the balance of the rest of the 7 days. I was medicated with multiple medications to prevent some of the known side effects such as eye damage, nausea, vomiting, and acid reflux. After the chemotherapy stopped, the Nader effects kicked in about a week later which is when the white and red blood cell counts and platelets drop. I ended up with ecoli infection in the blood and pneumonia which nessitated the administration of IV antibiotics. I also required Neupogen shots daily to help increase the production of white blood cells. Multiple platelet and blood transfusions were needed to sustain my existence. During this time I also had petechiae due the low platelet count. Stem cell or bone marrow transplant was recommended however, in my case, no full donor match could be found. Therefore my option was to have additional consolidation which consisted of hi-dac chemo (high dose chemo days 1,3,5 for 4 hours twice on those days. Typically if transplant is not an option, 4 doses of hi-dac is recommended. Due to my difficulty with the chemo, we opted for only 2 consolidation treatments. Right now I'm in remission although my white blood cell count and platelet counts are only 1/2 of the normal range. Last bone marrow biopsy (6th one) showed no Leukemia. Currently I have monthly blood work to monitor blood levels.
Ive been on too many chemos to describe. Generally though I handle them well. You will feel the nausea and the fatigue for sure. Mouthsores and hairloss come later. I usually go feverish at some point too.
hydrea - 02/2009 little/to no side effects
Round one: 7 days of continuous chemo. Round two: 5 days of 2 times a day chemo Round three: 2 days of 2 times a day chemo Followed by 3 days of 2 times a day total body radiation.
11/2009. 1/2010. Neuro side effects. Vision compromised. Weakness. Nausea.
High dose chemotherapy, March-June 2012. Side effects: Nausea, vomiting, weight loss, fatigue.
Jan 2 through Jan 5 2015 Staff infection , Bacteria in blood, Fever and Nausea
1st round-12/09/2011Atromycin for 3 days nd Cytosar. for 7 days.
All through out until transplant
oct induction chemo, Nov another bout of induction chemo as first did not work. Jan: consolidation chemo Apr: additional chemo to prepare for bone marrow transplant.
the only side affect she has had is toxemia, and neuropothy.
Induction, September 2014, two rounds. I didn't go into remission after the round (7+3 and) had IDA-FLAG (idarubicin, fludarabine, cytarabine and G-CSF. I lost my hair and appetite. Mouth sores are horrible as was the fatigue. I had four rounds of consolidation (November, December 2014, January, February 2015) after this, high dose cytarabine and the side effects are marginal for me, I was really tired and that was a result of low Hgb.
photosensitivity, some nauesea
I have been taking low dose chemotherapy via and infusion pump. I may need a bone marrow transplant at some point.
I've had 2 rounds of induction therapy and just finished my 4th round of consolidation therapy. Side effects have been different with each round. My hair only fell out my first round. Have experienced nausea, dizziness, weight loss, appetite loss, headaches, brain bleeds, metal-like taste in my mouth and food, lethargy, loss of endurance and stamina, chemo brain, grogginess and foggy brain, memory loss.
idarubicin and atra began in april 2008 vomiting,diarhea,blood and platelet transfusions many transfusions
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
Oct 14th- 7 days Vidaza Nov 23rd- 7 plus 3 Dec 25th- fludarabine and busulfan
Since June 2012 - july induction, August consolidation, Sept. consolidation, december 2012 induction. Stem cell transplant now on hold.
i had three induction therapies spaced about 6 months apart. and just completed two consolidation therapies. i am preparing for a bone marrow transplant.
1/28/16 induction

Chronic Lymphocytic Leukemia Cancer Chemotherapies

What Chronic Lymphocytic Leukemia Cancer Survivors said about their Chemotherapies.

Fludarabine - 8/7/06 - 8/11/06 -- tired and nausea Rituxan - 8/11/06 - "shake and bake"...you name it I felt it...dizzy, chills, threw up, nurses very good in giving me appropriate meds to counteract side effects

Testicular Cancer Chemotherapies

What Testicular Cancer Survivors said about their Chemotherapies.

VIPx4. Etoposide, ifosfomide, cisplatin- four cycles, five days in a row each, every three weeks.
My husband had 4 cycles of chemo. Aug 2005-Dec 2005. Son is having 3 cycles. Started 8th June 2010... next cycle 28th June 2010. Both lost hair.
Bleomycin, Etoposide, Cisplatn (March 07 - May 07) Cisplatin, Taxol, Ifosfamide (September 07 - November 07)
Loss of hair, loss of weight, loss of wife. LOL
had no treatment
Initial diagnosis required 1 round chemo -Carboplatin - minimal side effects Return of cancer - 4 rounds of chemo ( EP) 21 day cycles includes five continuous days of infusion then rest. No nausea but gastric reflux with vomiting, scalp pain, metallic taste in mouth, tiredness, neutropenia
I was on three types Cisplatin,Bleomycin,& Etoposide.I started treatment in 9/08 and finished 12/08,four cycles.Effects were real BAD..it sucked hair started coming out about two weeks after first treatment,rashes just sick most of the time.
Chemo Began 12/02/2013... Bleomycin-Cisplatin and Etoposide
Bleomycin, Etoposide, Cisplatin (BEP) 4 cycles Side Effects: Blood clots, low blood pressure, fever, neuropathy, vomiting, nausea, hair loss, weight loss

GIST (Gastro-Intestinal Stromal Tumors) Cancer Chemotherapies

What GIST (Gastro-Intestinal Stromal Tumors) Cancer Survivors said about their Chemotherapies.

Gleevec 400 mg. daily, nausea, taking anti nausea medication
taking Gleevec for life

Chronic Myeloid Leukemia Cancer Chemotherapies

What Chronic Myeloid Leukemia Cancer Survivors said about their Chemotherapies.

An unpleasant mix of fatigue, diarrhea, headaches, water retention, muscle and bone pain.
Daily 400mg Gleevec. Daily fatigue. Slow morning wake up. Memory problems they call Gleevec brain. Polyneuropathy: pain and weakness in body. I use a cane when walking outside. Diarrhea. I did just find out that I am now in remission but must stay on the Gleevec for 2 years. I am totally grateful that Gleevec exists for me and for all CML patients. Good luck to all of us!
Gleevec
I've been on Gleevec for 3 weeks. the first week was no different than the previous ones, lots of fatigue, but that is from the leukemia. In the second week, I started having more pain and some diahrrea. The diahrrea cleared up in a few days but the pains got worse. By week three, I have a lot of bone pain. I can get around and i can work, but it hurts quite a bit to move and my legs (thighs) are the worst. I often wake up with pain and my fatigue is not improving.

Acute Lymphocytic Leukemia Cancer Chemotherapies

What Acute Lymphocytic Leukemia Cancer Survivors said about their Chemotherapies.

I have 6 months of chemo: 1. Daunorubicin, Vincristine, Asparaginase, Prednisone 2. Cytarabine, Etoposide 3. Methotrexate months 4, 5, and 6 are a repeat of months 1, 2, and 3. I also had 6 doses of intrathecal methotrexate (chemo injected into my spine). I am getting cytarabine, methotrexate, and a steroid intrathecally. I think I'll also get one round of high-dose cytarabine intravenously prior to transplant.
I recieved Chemo in 2004-2006 with my first diagnosis of ALL. I relasped in June 2011 and started chemo on June 24-July 18. I will continue chemo until my Bone Marrow Transplant.
An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010: Vincristine PEG-aspariginase Doxorubicin Methotrexate Cytoxan Cytarabine 6-MP 6-TG Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain.
I didn't really focus on what chemo I've gotten/getting, but my main side effects were nausea and fatigue.
Vomiting, hair loss, fatigue, mouth sores, reduced immune function.
I'm not going to tell you anything you would be shocked by here. I'm bald - and have been for two years. 98% of anything I eat upsets my stomach in some way. I wish I could sleep all the time, but I have a 5 year old little girl, a full time job and a husband so that is possible. Other than that, Cancer sucks, Chemo sucks worse, but we will all get through it, right?
lots of dates, spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints. mercaptiprine, is every day, that just gives her a weird rash. methotrexate makes her sleepy
I don't remember all of them, but cytotoxin was one of them

Anal Cancer Chemotherapies

What Anal Cancer Survivors said about their Chemotherapies.

Week 1 Nov 6 thru Nov 10. Second round cones Nov 27 thru Dec 1.So far mouth sores.
Intravenous at day 1 and 30, during radiation in pill form - Mitomycin
2 weeks of chemo, the first week and last week of the 6 weeks. I had bad mouth sores both times. My hair got very thin.
5 FU + mitomycin ...4 days/24hrs Nausea, vomit, diarrhea, fatigue
Chemo first and fifth week. Mouth sores, nausea, and no appetite.
Chemo to start with radiation on Sept 26. Need a PICC. Mitomycin C and 5FU. Two weeks for five days. One week on, then three weeks off, then one week on again.
Began 5FU and cisplatin chemo on 1/4/10 and 2/1/10 for 1 wk cycles. Side effects: nausea, vomiting, diarrhea, mouth sores, and fatigue. Hospitalized after last day of 5fu infusions for 3wks for chemo toxicity, diarrhea, severe abdominal cramping, dehydration uncontrollable fever, etc. At least I had completed menopause at age 42 and did not have to deal with the emotional side of this. Stopped HRT during treatments only.
Flu type feeling... Fatigue Nausea ( took the meds every 8 hours to control) Hair thinning
2 treatments of Mitomyicin and 2 4-day (24 hour pump) of 5-FU Started 8/31/2010
completed the first of chemo, mouth sores are terrible, otherwise feel ok
Starting a 5 day pump next week.
First chemo started same day as radiation on 3-17-14 with a single dose of mitomycin and an infusion pump of 5-FU for 4 days. Beginning of the 5th week we repeated this process with 20% less mitomycin due to the low blood count. The first round I had few if any side effects. Felt tired and slow but when I got the pump off, I started to feel better. The second round was more difficult and my blood count fell too low, I got a low grade fever and ended up getting 2 blood transfusions and 5 shots to help build up the blood cells.
Vomiting, hair thinning but no complete loss
1st and 5th week for 4 days
First round August 3-7, second round August 31-Sept 4. Chemo effects snuck up on me. At first I felt like a brat because I felt fine and no one else at Kamp Kemo felt fine at all, and then it took me down. Nausea, constipation as a result of an anti-nausea med, diarrhea, exhaustion, loss of taste--food had texture and no flavor at all, and the texture was mostly slimy. I used salad dressing in an attempt to taste something, and ended up with slime, chicken salad--slime. And such a sore mouth, I felt like I had to fight to get a prescription for Dr. Casey's Mouth Solution, a lidocaine swish & spit, and it helped tremendously. Also low blood counts, needed a couple blood & platelet transfusions.
week 1 and week 5. Felt unwell 1st time but felt better pretty quickly. 2nd treatment really took me down. Fatigue, loss of appetite, fever- lost about 50% of my hair.
I will begin receiving 5-FU continuous infusion Mon.-Fri. for 6wks with Mitomycin added days 1&29.
Nausea, loss of appetite, chemo brain.
Fatigue, hair thinning,
Two 96-hour rounds of Mitomycin and 5FU on Mar 15, 2011 and Apr 11, 2011. Side effects were mouth sores, fatigue, diarrhea, loss of appetite, hair thinning.
Mytomycin and 5-FU first weeks then 5th week
Unknown - not yet there
Mitomycin on Day 1 and Day 29 5-FU Days 1-4 and 29-32 Dry mouth, constipation, thinning hair at week 4. <<<<<<After reading this I have to say "chemo brain" because I don't recall writing that!!
Taking Xeloda- doing awesome on it!
5FU and Mitomycin during 1st and 5th weeks of treatment

Vulva Cancer Chemotherapies

What Vulva Cancer Survivors said about their Chemotherapies.

1/4/17-2/15/18
I didn’t lose my hair.

Pleura, Malignant Mesothelioma Cancer Chemotherapies

What Pleura, Malignant Mesothelioma Cancer Survivors said about their Chemotherapies.

On Chemo from April to Sept 2010. Main side effects were fatigue, weight gain, mouth sores occasionally.

Bone Cancer Chemotherapies

What Bone Cancer Survivors said about their Chemotherapies.

Carboplatin, Doxorubicin, Cyclophosphamide, Tamoxifen, Toceranib, Piroxicam. No significant side effects to start with but after so many months of home chemo/meds I get diarrhoea and occasional nausea (am on meds to combat). My fur is very slow growing now - months later, surgery sites are still sparsely covered in fur, and I now have bald patches (my paws, muzzle, bottom).
i cannot sleep..i cannot eat..i do vomiting

Nose, Nasal Cavity and Middle Ear Cancer Chemotherapies

What Nose, Nasal Cavity and Middle Ear Cancer Survivors said about their Chemotherapies.

See the Chemo Dr tomorrow, too. Don't know if I'm going to do it.

Nasopharyngeal Cancer Chemotherapies

What Nasopharyngeal Cancer Survivors said about their Chemotherapies.

Protocol #1: First of 3-21 day cycles of 5-FU, Cisplatin and Docetaxel started 10/7/13 - around the 2 or 3 week started losing hair and experiencing nausea, fatigue, weight loss, etc; Protocol #2: Eribtux and concurrent radiation for 6 weeks started ~12/10/13 - neuropathy in feetbegan a few months after treatment stopped and is still ongoing.
chemotherapy given from January to September Side effects: dehydration, vomiting, blood transfusions
Tinnitus weakness nausea
3 x cycles of Cisplatin 80mg/m^2 over 9 weeks prior to Radiotherapy 3 x cycles of Xeloda (14 tablets) over 9 weeks prior to Radiotherapy Once weekly 40mg2 Cisplatin during Radiotherapy
Every 3 weeks during radiation then once a month x 3 for cisplatin. 5FU home infusion will start in Sept for five days then again in October and November. Nausea, vomiting, fatigue for cisplatin have not had 5FU yet
3- 8 hr chemos mostly nausea.
Jan 2009-june 2009: lung nodules shrunk a bit and last CT scan end of june showed no growth: little nausea, tired all that stuff
Started weekly induction chemo on 9/5/13 with carboplatin and paclitaxel- soreness in mouth, slight nausea, dry skin (severe itching), acid reflux. Started chemo-radiation on 11/4/13 using cisplatin. Received 5 weekly cisplatin treatments until wbc count was too low.

Peritoneum, Omentum and Mesentery Cancer Chemotherapies

What Peritoneum, Omentum and Mesentery Cancer Survivors said about their Chemotherapies.

Carboplatin and Taxol once every three weeks, 6 times. Fatigue, faux sence of energy at first, couldn't sleep for two day after, then crashing with neuropathy pain and fatigue

Gastrointestinal Carcinoid Tumors Cancer Chemotherapies

What Gastrointestinal Carcinoid Tumors Cancer Survivors said about their Chemotherapies.

chemo side effects hair loss some weight loss vomitting sweats shakes hot cold pain emotional skin tone looked unhealthy

Esophagus Cancer Chemotherapies

What Esophagus Cancer Survivors said about their Chemotherapies.

Chemo is rough.
every 3 weeks, side effects: tinnitus and stomatitis after the last one
Oxaliplatin infusion; Leucovorin infusion; Fluorouracil continuous infusion pump.
2 low dose chemo sessions. Became immuno suppressed
5FU and cisplatin 12/2016 for 4 days. Hospitalized due to toxic overdose of 5FU. Oncologist did no give me the DFD test because he didnt believe in th test, hi negligence nearly killed me.
preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU.
Too many chemo regimens and drugs to count. At present, I am on Xeloda, Herceptin and Avastin. One drug was damaging my liver, but okay now. Herceptin was damaging my heart, but it is okay now.
Carboplatin/Taxol, continuous 5FU drip March/April 2008 Taxotere July/August/September 2008 Cisplatin January/February 2009
Ended in Nov 2013. Chemo: Memory loss Radiation Side effects: Loss of bone density resulting in back pain.
Carboplatin and Taxol for 5 rounds. No side effects at all except tired on day 2 & 3 post treatment day. Tolerate chemo well.
june 13 2011. no side effects yet
Sysplatin that almost killed my it caused my kidneys to shut down. I cause me to become completely dependent on others. I didn't spell the Chemo right but it sounded like that. I don't know what the fed me after I was released from the hospital.
chemo from 2/98 through 9/98
Carbo-taxol once a week for 5 weeks

Tonsil Cancer Chemotherapies

What Tonsil Cancer Survivors said about their Chemotherapies.

6 low-dose cisplatin treatments, one every Monday for 6 weeks. Felt great; actually took away the joint pain I experience from Lupus!
11/9, 11/30, 12/21 - loss of appetite, cold, "chemo head" (loss of concentration and short term memory)
Carboplatin and taxotere,first treatment went well without much side effects. Look forward to the others.
Hearing loss and ringing in my ears. 3 chemo treatments, first, fourth and 7 th week. Saliva got thicker then syrup,honey after treatments ended. Couldn't swallow and had to sleep sitting up in a recliner for weeks afterwards.
Chem with Cisplatin, taxotere and 5-FU in pump.
11 treatments ended about 11/07/2011
Low-dose chemotherapy (Cisplatin) coincided with radiation, 1 day per week, beginning December 7, 2009 and ending January 25, 2010. Side effects included nausea, fatigue, weakness, depression, low blood counts, increased age in appearance, loss of some hearing in the higher frequency range and tinnitus (ringing in both ears).
cysplatin
Starting march 12 2009
concurrent w/rad 3/19 3 weeks apart megadose cisplatin 100Mg/M² side effects have included peripheral neuropathy, hearing loss, ear ringing, fatigue, nausea, vomiting, slight hair loss, blurred vision, unexplained bruising, blood blisters on mucuos membranes, dizziness, destroyed vein and tendon damage near 2nd injection site(both probably permanent)
3 Cisplatin mega doses, 100 units per time, 6 hour chemos
3 treatments. Cisplatin at first but had terrible digestive side effects so used erbitux for last 2 treatments
Cisplatin - I was sick every day. Had to take anti-nausea medicine every 2 hours.
3 Cisplatin Chemo's, starting July 17, 2014
Erbitux (cetuximab), loading dose 25 Jan, caused mild temp and nausea, then no similar effects during the 8-week course of treatment. Significant skin effects (acne, painful splitting of skin on fingertips, toes, and heels). No real nausea, vomiting, or diarrhea caused by the Erbitux.
Carboplatin 08/06/2010. Mild Fatigue. Carboplatin 08/26/2010. Radiation recall. Carboplatin 09/16/2010. Neck is tightening due to radiation recall. Alimta erbitux Low Platelet 10/07/2010 Carboplatin, Taxotere,5FU 01/2011 n 02/2011.
2 six hour Cisplatin courses. Some hearing loss. Some nausea. Actually felt better after Chemo treatments
February 25, 2011 - Cysplatin (Cisplatyn) I don't know 4 of 8 weeks only as it ruined my throat way early and did it's job - according to the dr.
For details see my posting.
yes, cisplatin treatment was needed as the lymph node in right neck lump broke through the cell wall; attempted 3 chemo treatments {large doses} every 21 days followed by 2 days of 2 hour treatments of iv saline soutions to wash out the chemo and lessen its effects on my kidney, though my body had too intense side effects..the chemo treatments changed to weekly for remaining 7 weeks with smaller doses of cisplantin
Begin Erbitux treatments February 13 2012 and finished on May 2nd.
3 treatments for 3.5 hours hearing loss constant sound of cicadas/crickets in ears hissing in ears severe weight loss
7sessions, once weekly Metal tasting food, general lousy feeling 2 days after treatment.
Chemotherapy Cisplatin. Vomiting started the first day of chemo and stopped two weeks after treatment complete (9 weeks of vomiting & vomiting).
April 4,2011, minor nausea April 12,2011, rash on upper lip

Mesothelioma Cancer Chemotherapies

What Mesothelioma Cancer Survivors said about their Chemotherapies.

carboplatin, alimta 8-27-09

Endometrial-Uterine Cancer Chemotherapies

What Endometrial-Uterine Cancer Survivors said about their Chemotherapies.

INITIALLY TOLD NONE NEEDED 7/6/09 MY DOCTORS REISDENT CALLED AND SAID NONE NEEDED BUT AT THIS POINT I DO NOT TRUST MY DOCTORS AND WILL SEEK NEW HELP SURGERY 8/6/09 REMOVAL 27 NODES NO CANCER...SO NO CHEMO WILL BE NEEDED
Chemo 6/21/10, 7/12/10, 8/2/10, 8/24/10, 9/14/10 - nausea, fatigue, bone & joint pain, diarrhea, neuropathy; scheduled for 1 more round
Carboplaxin and taxol 6 x's Jan to May 2016. Side effects: loss of hair, anemia, low WBC, low platelets.
little queasy tired bald last one nov 5th 2010 yesssssss!!
Start in mid October.
intravenous chemo from Septemeber 2018 to January 2019
Chemo came after radiation the first time, chemo only the second time, radiation only the 3rd time. Allergic reactions to almost all the drugs tried, but that was the second time. The ones that I didn't react to made me very sick, so I'd go in to be hydrated the day after chemo since I was unable to do that at home. It's hard to eat and drink when you're asleep. Another side effect of the drugs and certainly the pain killers for me.
Lost hair not much else
felt sick all the time, metal icky taste, neuropathy, ruined joints >:( bone pain
6 chemotherpay treatments. Cisplatin for 2 and Taxol/Carbo for 4. Stomach nausea,bone pain after Neulasta shot, constant dehydration, tired all the time & neuropathy in feet.
See Surgery Description> apparently I cannot follow directions
Chemo start date 7/15/09 - Doxil infusion with Ativan and Compazine every 21 days...that was "potponed". Chemo, once started, was be Doxorubicin and Ifosfamide - 4 days of 24-hour infusions. Mom was having delirious thoughts from the chemicals, they took her off of food - the doc said she "had enough fat on her" to get by without food. She was in and out of sleep from the sedatives in between chemo.
currently doing carbo/taxol every three weeks. Extreme fatigue, muscle aches, taste changes
Every week on Day 1 & 2 and Day 8.
My symptoms became SO much worse after chemo: Pain, nausea, vomiting, mouth sores, chemical taste in mouth, fatigue, weight loss
I have had two rounds of chemo, and the next will take place on Jan 31, 2012. After that, three more rounds!
Chemotherapy November 2014-April 2015. Hair loss, neuropathy in feet, achy joints.
Haven't started yet. Need advice.
4/17/15 Allergic reaction to Emend and Taxol
CarboPlatin & taxol w/ neuplasta at 3 wk intervals from Aug to Oct Severe constant leg pains, neuropathy in feet and hands, high heart rate. Unable to stand for more than 10 minutes, stumbling, dropping things regularly Treatment changing to CarboPlatin & doxil w/ neuplasta.
First round of chemo on 7 May 09 Second round of chemo on 1 Jun 09 Third round of chemo scheduled for 21 Aug 09 My doctor is using a new "sandwich" approach to treatment. 2 rounds of chemo > then 25 days of radiation > then 2 more rounds of chemo. This is new and apparently works better than all chemo then radiation. I am in control and working to erradicate the cancer via chemo and radiation.
November 2011-December 2011--6 administrations of Taxol and Carboplatin; strong allergic reaction to Taxol (could not breathe and it felt like my back had been struck by a car) handled with heavy doses of Benadryl and slow infusion; lost hair all over my body slowly during treatment and over several months after treatment; painful tingling in feet and hands; fatigue; bloody nose daily; ridges across nails on hands; skin toughened on backs of hands and tops of feet; hair on my head hurts sometimes months after treatment.
Starting chemo (carboplatin and taxol) on 4/27/11. Will have 6 sessions, one every 3 weeks.
Carbo/Taxol every 3 weeks, 6 cycles
Nausea, Constipation

Sarcoma Cancer Chemotherapies

What Sarcoma Cancer Survivors said about their Chemotherapies.

Temodar and potentially IV Chemotherapy
Doxorubicin Cisplation Methotrexate Ifosfomide Etoposide
AIM Chemotherapy, 3 cycles, inpatient in hospital for 5 days each cycle, started on 16th May finished on 1st July. Side effects, hair loss, chronic diarrhea, piles, sore mouth, tiredness.
IE and VAC treatment every 3 weeks. Lost weight and all my hair/ body hair
Currenly going through Ewings Sarcoma protocol for Chemotherapy. 14 total cycles.
Had AIM protocol (Adriamyacin, Ifosfamide and Mensa) for all of 2007, then in 2010 I had Yondelis, a clinical trial, also for a year. The AIM made me lose all my hair, had frequent need for transfusions of blood and platelets and I had many infections. The Yondelis did not make me lose hair, but the other side effects were the same.
Chemo not a proven treatment for my type of cancer
Chemotherapy lasted from July 2010 - August 2011 His chemotherapy consisted of Vincristine, Doxorubicin, Cyclophosphamide, Ifosfamide, and Etoposide. Some vomiting and lots of nausea.
Adriamycin Dec 14/15 on going
Multiple regimens
Currently going through chemo... some of the side effects that I am experiencing are mouth sores, and sore GI tract. Definite tiredness, lunula turning black, of course hair falling out, complete loss of taste buds and smell during chemo but fine after.
Gleevec, vomiting, diarra, swollen eyes and ankles, cramping in hands feet arms legs, fatique, from 10/19/07 till 5/2013. Didn't work for me after awhile.
Chemotherapy started on 20th Dec 2008 and I chose to stop in June 2009 (I was meant to finish in Nov 2009, but when I found out my tumor was no longer shrinking, I physically could not deal with the side effects anymore). I lost my hair, which was by far not the worst side effect! Mouth sores, lost my sense of taste and smell. Horrendous constipation. Nauseous most of the time. Not able to eat. So completely exhausted, not even energy to stand up some days. Felt extreme cold, then major hot flushes, wake up drenched in sweat. Eyes always sore and watery. My chemotherapy was every 3 weeks, which took 5 days in hospital to administer IV - then every month when home I would spike a massive temp & have to be rushed into hospital for blood transfusions and isolated for neutronpenia! Chemo turned me into a shell of my former self, it destroyed my spirit and had me in tears most of the time. It was a hard, hard fight.
Had only 4 appointments for chemo. Hair falling out. Nausa.
I have Chemo once a month. The Chemo caused the whites of my eyes to turn Fire Engine Red. It was a reaction that none of the nurses had ever seen. I was given IV Benedryl. The dose of the medicine knocked my butt out. That was my first treatment on May 21, 2012. I was set for 3 treatments. My Oncologist was not sure if the Chemo would work to begin with. Within the first treatment I could tell a difference. I was amazed. I could actually feel the mass and it was smaller. So, Dr. M ordered another 3 treatments for a total of six. I lost all my hair, eyebrows and eyelashes. Hey, they will grow back one day. I don't mind. I love all the scarves and hats I have bought and been given.
Chemotherapy to start in 2016
Chemotherapy started in September 2011 and continued every three weeks either daily for a week, or a single day dose of VAC - crappy crappy side effects, where do I start......numb finger tips, constipation, hair loss, loss of taste buds, thrush in mouth, lack of concentration, sooooo exhausted after each dose and weeks later. It is very true that the chemo is so much harder than the cancer to deal with.

Parotid Cancer Chemotherapies

What Parotid Cancer Survivors said about their Chemotherapies.

Adriamycin and cytoxin. 11/03 so sick with vomiting till meds were figured out. Lost 50 lbs. Taxol 1/04. Sick Rituxan 5/13 no effects used for platelet issues Taxol 5/16 with experimental drug

Skin Cancer Chemotherapies

What Skin Cancer Survivors said about their Chemotherapies.

Photo Dynamic Therapy for any AKs... skin checks every three months

Throat Cancer Chemotherapies

What Throat Cancer Survivors said about their Chemotherapies.

Dry Mouth. Lost body hair, Sick at stomach, weight loss.
1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss) 2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment. 2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course 2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course.
May 7, May 14, May 24. (Now scheduled for June 1, 8 and 15). Side effects are fatigue and nausea. Taking anti-nausea meds. Worst part is we can't keep enough fluids in him to flush out the toxins due to chemo. We're told this is more common in throat cancer where food and fluids are taken through a feeding tube. Starting to lose patches of hair.
Ringing in ears
It seems that my side effects (nausea, tiredness) start a couple days after treatment. Emend and Zofran seem to be helping.
Chemotherapy due to start 6 weeks after surgery, September 2016
Start November 29, 2010. The drug was erbitux. No side effects with the weekly treatments except for after weeks four and five. After treatment I immediately had chronic chills and shakes in which I was given an injection of demorol and had to lie down for an additional hour until the effects subsided.
3 during 6 week radiation treatment (beginning middle & end.
Feb 14, 2011, Cisplatin, slightly tired immediately following treatment. March 7, 2011, same as treatement number 1. March 28th, 2011 - TBD
Erbitux. Loss of hair, lesions on my hands, scab around my neck, vomiting, etc.
Months of daily treatment with both Cisplatin and Herbitux -- major side effects included a rash that covered me from head to toe, skin that was so dry that my scalped split open and bled when I vomited (which I did several times each day). Further side effects included hallucinations, tremors, chills, hot flashes, disturbed sleep patterns, fever, loss of hair, etc.
Erbitux (Cetuximab) taken, due to success with HPV-16 related cancers. 7 infusion sessions, starting one week before radiation commencement. First session gave me the worst headache of my life, terrible chills, fever, nausea (but only brief vomiting) and profound weakness. Started about 7 hours after treatment. Subsequent sessions have had less impact; primary complaint being weakness and fatigue. Blistering rash encompassing head, neck, shoulders, chest and back. Very itchy and painful. Appeared by second week of treatment. Now in 4th week, the pustules have subsided somewhat, but lotions are essential to keep the skin peeling controlled.
February - June 2009 Taxotere Cisplaten 5FU
Three rounds of Cisplatin - nausea, metallic taste and tired

Tongue Cancer Chemotherapies

What Tongue Cancer Survivors said about their Chemotherapies.

Three Cisplatin chemo doses, Jan 4, Jan 26, Feb 16. Never got the Feb 16 dose as I was too sick from throwing up.
second form of chemo 3 more weeks, no side effects
A 2 chemical soup every 3rd Monday and then a 24/5 fanny pack pump the same week as above. I have 1 week on and 2 weeks off treatment
For me Chemo was much easier than Radiation. Cisplatin and 5-FU 24/7 for which I was hospitalized. I refused my last chemo treatment because I was too sick, and honestly I thought it would take a lot more than chemo to save me from this beast called cancer. Yet I survived and have for the last 20 years.
Set for July 6 and July 21
No chemotherapy.
I started the chemo the frist week in July 2010. I had a reaction to the first chemo which was Carboplatin and taxol so they changed it to Cisplatin and taxotere. They loaded me up on steroids and during the next treatment i had yet another reaction this one only worse than the first. So as a last ditch effort they changed again to cetuximab and honestly i cant remember what the second one they gave me with this was. I was ok with this drug but the side effects were aweful! I broke out all over my face with horrible acne and it made the radiation stronger which made the raidation burns worse.
Chemotherapy to be given concurrently, once a week. Began on 8/23/12.
Only 5 of 6 Cisplain treatments given because of so much nausea. Hospitalized for nausea and given extra intravenous fluids bags 2-3 weeks separate days from the chemo infusions.
3 bags of cisplatin
Do not know yet if I will have to go through Chemotherapy.
Cisplatin 2007. I was one that had the carotid do it's number, so have permanent heartbeat in my ear. Sometimes loud and intrusive, very loud and intrusive when I am lying down trying to sleep. This too conversation, Chemo and Radiation were simultaneous. It was a dark night of the soul. Burnt skin, inside the mouth and outside. I lost over 60 lbs in less than 9 weeks. Dehydrated, diarrhea, high irregular heartbeats, constipation, impacted, and the list there too goes on.

Hodgkins Lymphoma Cancer Chemotherapies

What Hodgkins Lymphoma Cancer Survivors said about their Chemotherapies.

Started Chemotherapy (ABVD) on 30th March 2010. Found that the side effects of consist of bad heartburn & indigestion for a few days after chemo. My hair started to fall out about two weeks later and has slowly been falling out ever since, but not bald yet! Have had to give up fizzy drinks and spicy food, two thinks I enjoy. Unfortunately they cause uncomfortable consequences, like bloating, passing a lot of gas, nausea, heartburn, the list goes on.
ABVD- October 22, 2010-
ABVDX2 4 cycles 13th Feb-2017 ABVD 1st session 27th feb-2017 ABVD 2nd session
ABVD 11/30/2010-present Fatigue, weakness, dizziness, nausea, neuropathy, constipation, headaches, hair loss and chemo brain.
ABVD, started Feb. 13, 2009.
August 10th 2010 -Present 6 Cycles -12 Treatments
ABVD May 2008-October 2008 ICE January 2009-March 2009 BEAM April 2009
Stanford V regimen - Weight gain, constipation, fatigue, hair loss.
I had chemotherapy for the first part of 2014 and now I am back on ice and chemotherapy with a test drug for 2015
Delayed until I deliver my baby.
Chemotherapy from August 2006 - September 2007. Some of the chemotherapies were ABVD, ARA-C and carboplat. Side effects experienced were hair fell out, constipation, low white blood and platelet counts, nausea, vomiting, pain in joints.
26th December, 2014. ABVD. 6 cycles, 12 treatments completed every fortnight. 22nd July, 2015. Salvage Chemotherapy. ICE. 3 cycles, completed every 21 days.
started ABVD March 2011
Yes, My chemotherapy treatment was ABVD.
Currently going through chemo. I had 3 chemotherapy done and had 1 every 2 weeks until November
ABVD- nausea, fatigue, wooziness, thinning hair ICE- nausea, fatigue, wooziness, total hair loss, bleeding gums and mouth sores GND- some fatigue, mouth sores
Started ABVD November 20th~ a little nauseous, headaches, and a little tired..
Initial treatmeent: ABVD/MOPP (8/92-12/92). I received 6 cycles with complete response. The chemo was relatively well-tolerated. Salvage treatment: DECAL (Dexamethasone, Etoposide, Cisplatin, Ara-C, L-Asparaginase) 9/92-12/92. One brutal regimen! Cisplatin was the worst. Three cycles with complete response followed by stem cell transplant.
Clinical Trial-see below
(A)driamycin, (B)leomycin, (V)inblastine, (D)acarbazine
Started 6 cycle ABVD treatment on 8/16/11
ABVD - six 4-week cycles (June-November) Prednisone Procarbizine
started chemo in 2010 6 months on an off, finally had stem cell transplant at Mass General Boston n March of 2012 remission lasted one year :(
Getting chemo doesn't hurt. I don't feel the chemo being injected, and I feel fine for 3 days after, minus the fatigue. Nausea, headaches, body aches, upset stomach are my most common side effects when my medications are done.
4 cycles of chemotherapy ending in late August, radiation to follow depending on how the cancer responds.

Acute Lymphoblastic Leukemia Cancer Chemotherapies

What Acute Lymphoblastic Leukemia Cancer Survivors said about their Chemotherapies.

Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
I'm getting three chemo a dont know what they're called but they all make me feel like crap. But whatever makes me better I guess. Fatigue, sick, swollen ankles, sensitive skin, pins and needles in finger tips. Bowel movements slow down. But speed up after a while
Started induction chemo within the first week of November. Integrating it with holistic therapies
started Feb. 26, 2010 I was admitted to hospital every 3 weeks for a total of 6 rounds of treatment - Cycles A and B.
Hyper CVAD Protocol 6/1/2015-2/7/2016 including spinal chemo X 4
currently undergoing HYPER C-VAD
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
finished with induction therapy, now gonna begin with consolidation.
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.

Bile Duct Cancer Chemotherapies

What Bile Duct Cancer Survivors said about their Chemotherapies.

HAIC 24/7 for two consecutive weeks of constant flow chemo delivered directly to the liver. Every two week chem, alt two weeks pump is filled with Saline. NO Side Effects
begin chemo 11/30/16
iam a nice girl loking for man
On my second round of 2 sessions each which are a week apart

Leukemia Cancer Chemotherapies

What Leukemia Cancer Survivors said about their Chemotherapies.

January 6 2014 and February 15 2014

Myelodysplastic Syndrome Cancer Chemotherapies

What Myelodysplastic Syndrome Cancer Survivors said about their Chemotherapies.

too many to remember
Vidaza 5 day cycle once a month, side effects weight loss, erythema nodula,hair loss(slow), nail discoloration
rituxan, vidaza, and revlimid

Appendiceal Cancer Chemotherapies

What Appendiceal Cancer Survivors said about their Chemotherapies.

Fluorouracil (5-fu), Oxaliplatin, Avastin, leucovorin. 1/15-3/2? Side effects - Extreme fatigue, nausea, cold sensitivity, neuropathy
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