What are Chemotherapies? List from Cancer Survivors

The below is a list that has been posted by the bloggers in this cancer community. There are 7434 cancer fighters that are members here. This is what they said, not what the doctors or nurses will tell you.

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Breast Cancer Chemotherapies

What Breast Cancer Survivors said about their Chemotherapies.

6 months.... 3 at first.... then 3 more after radiation..most side effects there are!!!couldn't eat,sick,cried,tired, you name it....lost my hair, then lost it the 2nd time too,3 months later
Starting on 18th April, 2011
Perjeta, Herceptin & Taxol (4 rounds over 12 weeks)to start off with then after mastectomy & reconstruction Adriamycin & Cytoxan (4 rounds over 8 weeks)
suffer to heal. stay mindful of what it means to be aware.
This was the worst for me, seems like I stayed so sick & in the bed from being week & not being able to eat. It seemed that every time I tried to eat, I tried to throw up. I only had 6 wks. of chemo & only had to drive 55 miles for it. Again, the ride seemed to be the worst being sick on your stomach. When I was sick & could't eat, I drank Ensure, it's the only thing that I could hold down & Seemed to feel good on my stomach. Also gator aide helped with the strength. My white count got low several times & I had to give myself shots in my stomach to help bring it back up, but it wasen't to bad, cause I use to work for Dr.'s myself.
12 rounds of chemo
Chemo once every other Friday, eight prescribed. First four: Doxorubicin (a.k.a. Adriomicine) AND Cytoxin; last four Taxol. Nuelasta with every infusion prescribed. See post "I'm just sayin'" for side effects from first 4 infusions.
Cytoxan + Taxotere, 4 times every 3 weeks. Due the fact I had just come off from going through IVF, right after my surgery, my hormones were all over the place. Metallic conduit-like mouth, tired, emotional, chemo brain.
3 (months not sure of all the drug names. A/C and taxol i think. Round two,Cisplatin.
Port-a-cath installed in May. What a joy that was! First of 4 treatments of cytoxin & adriamycin started the last of May. Loved that "dangerously red cocktail" called adriamycin. Sinuses were & still are all messed up from cytoxin. Neuropathy in hands, feet & legs to this date (2-09). Thankful for neurontin and cold sheets feel so good. Will it ever leave me in peace? Scalp got sore & out came the hair on Father's Day Happy Father's Day, Troy! We went out to our deck after church & 14 year old daughter cut & hubby shaved. POOF! No nausea thank God for Zofran!! I felt better during & right after chemo (Aug '05)than I do now. What's up w/that?! So, I deal as best I can.
through March 2008 CMF cocktail, 8 rounds. never lost my hair, nausea got pretty bad... three rounds in, I became a petulant child and announced I was NOT going back. A nurse family member asked my mom what kind of anti nausea meds I was given (don't remember) and told my mom to relay the following: "tell her to get pot, the pills suck" .... My resourceful husband came home with a surprise shortly after round 3. It PISSES me off that I had to break the law because the fact is, at least for me, IT WORKED and it was AMAZING.....
8 sessions, sweats, nausea, constipation, de hydration, low white cell counts. joint, bone, muscle, numbness, tingling, pain from Taxol during and post-chemo. Peripheral neuropathy has been diagnosed.
FEC and taxotere. Three treatments of each starting 2/11
Dec 10- Feb ? 4 sessions 3 wks apart; lost hair after 1st treatment; threw up once, nauseous but controlled by anti nausea meds. Weak, tired, got horrible staff infection. I now have alot of bone and muscle pain
2013-2014: 1st chemo; Taxol, no help. 2nd chemo:Doxil, no help. 3rd and current chemo: Gemzar & Cisplatin. I also get Zometa injection every 4 weeks. I started Chemo on June 19, 2008 and as of today 7/7/08 I have only had 1 treatment. My second treatment is this week on Wednesday, July 9, 2008. I will have 6 chemo treatments, 3 weeks apart. The worst side effect I had was from the Nulasta shot I had the day after chemo. The bone and body aches really kicked my butt. I was fortunate and did not experience any nausea. On day 14 I started loosing my hair. It was coming out by the handfuls!! By day 16 I couldn't stand it anymore so I buzzed it all off.
AC 8 weeks staring 8/10/2017 followed by 12 weeks of Taxol. Nausea on AC. Terrible muscle and bone pain in Taxol.
Taxotere Aug 2008 - Dec 2008 (3-weekly) Herceptin Aug 2008 - Aug 2009 and Dec 2009 - March 2011 (3-weekly) Vinorelbine Dec 2009- May 2010 (for regional recurrence to Internal Mammary nodes - not involved the first time round) Capecitabine (Xeloda)April 2011 - October 2011(for Liver metastasis) Adriamycin - December 2011 - February 2012 Taxol March 2012
I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
Hair loss Fatigue mouth thrush low blood counts infection/ fever
3 chemos, neo-adjuvant, before surgery, effectively reduced tumor size. 1 chemo after surgery. Side effects: nausea and dizziness.
10/05-08/06 adriamyacin, very weak
I've been in chemo since june 2011. I was taking 3 different kinds every three weeks but now have gone to just one kind. the initial treatments caused heartburn, hair loss, vision loss, hearing loss, skin discoloration, skin burns, nausea and vomiting, dizzyness, hot flashes, chemo induced asthma, chemo induced menopause, bone pain, I was not able to taste foods that were not sweet, there are many more but I feel like I"m whining...lol
Nausea, Diarrhea, Constipation, Fatigue, "Chemo-brain"
Herceptin, carboplatin, perjeta, taxotere 6 total treatments, 1x/3weeks...Herceptin 1 full year
Starting A/C on December 6, 2011. Will have chemo every 2 weeks for 4 months.

Prostate Cancer Chemotherapies

What Prostate Cancer Survivors said about their Chemotherapies.

none yet
taxater, didnt do anything,6 treatments, mitotaxatrine, still on it, barely any side effects due to the vit c drips
Docetaxel, 8 sessions in 2014; extreme fatigue, neuropathy, loss of hair
N/A Chemo poisons; cannabis brings about programmed cell death.
NONE!!
Declined
Taxotere, Jevtana

Lung Cancer Chemotherapies

What Lung Cancer Survivors said about their Chemotherapies.

Taxol, Carbo, Avastin (pain, nausea and vomiting, fatigue, confusion). Zofran was the BEST anti-nausea drug and I tried them all. Broken pelvic bone, NEUROPATHY (very bad so I am on an anti-seizure drug to control it). Tarceva, Alimptor...
one treatment . switching to Afatinib
Iressa (gefintib)
3/2012 Adriamycin and dacarbazine 6 cycles 12/2012- 10/2013 votrient 600mg every day. 10/2013 - present gem/tax
9/19/2016 Constipation, nausea, loss of appetite
750ml & 500ml cisplatin & taxotere respectively on 12/10/09,12/31/09,1/20/10,2/11/10.i thought they were trying to kill me!
Navelbine and cesplatin (4 months) July 20017- Octber
One a day pill forever (took 150 mg for 2 years). Down to 100 mg due to vertigo, fatigue. Other side effects, slow/non hair growth, rash, dry skin, dry mouth
Feb 08-Cisplatin/Etoposide- hideous vomiting diarreah Switched chemo drugs AND Hospital -April08-carbo/taxol/avastin. Tolerated well. Neulasta. Bone pain
chemo fog.
3 days chemo every 21 days. Hydration as needed. Tiredness and nausea/vomiting at times.
starting the 2nd week of August 2013
daily intake of a chemo tablet
Cisplatin & Etoposide May/18-August/18. Four rounds of treatment 3-4 weeks apart. Side effects- Hair loss, nausea, weakness & fatigue, weight loss
Carboplatin to begin end of Nov 2020
Had 4 exhaustive chemo therapies. Found that they are not effective on NSCL as it came back in other lung. Targeted therapy of Tarceva put it in remission.
I begin chemotherapy on the April 8th. 4 rounds of 3 weeks each of Vinorelbine and Carboplatin. (Originally Cistoplatin but the doctor changed it cuz my ears were ringing)Worst side effects are feeling like lead and/or rubber, forgetfulness, weight gain, insomnia and aching bones, muscle and skin.
None to date - The surgeon and oncologist felt that I should wait before starting chemo or radiation and be on the anti-fungal medication, indicating at least a year, to see if once the infection was gone, the remaining spots in my lungs would be gone. In January of 2010, I lost my job, medical insurance and the financial ability to continue the meds. I've recovered enough to find work and have been there long enough to receive medical insurance...now to find the courage to return to the doctor and take up where we left off, uhhh less the pre-existing conditions...to be continued...
Started chemo on July 7, 2016 - May 5, 2017 Side effects - nausea, vomiting, mouth sores
8 total cycles...6 while undergoing radiation (reduced rate) followed by 2 of triple dose after radiation.
carboplation and alimpta 4 treatment rounds, a lot of pain and nausea and increasing weakness
October 18 th and every 3 weeks for 4 treatments. Nausea and joint cramping, some neuropathy.
Chemo also started on 10/10/07 and its once a month for 3 days in a row.
carbo/taxol only effect has been being tired!! Verty low white cell counts, had to receive one transfusion, other wise has handled it well.
2007 April til present so far 5 rounds Taxotere Carboplatin Avastin Emend for nausea Aranesp for red blood Neulasta for white blood etc.....

Bladder Cancer Chemotherapies

What Bladder Cancer Survivors said about their Chemotherapies.

Had Chemo biweekly starting Oct. 13, 2016 ending 1/20/17. Main side effects were fatigue, amnesia, hair loss, constipation. I do not know the drugs they used. It was a cocktail.

Non-Hodgkin Lymphoma Cancer Chemotherapies

What Non-Hodgkin Lymphoma Cancer Survivors said about their Chemotherapies.

ill for a couple of days after treatments 1/15 - don't know if what is going on with me now is latent effects or new cancer
6 Rounds R-Epoch
Bendamustien and Rituxen
General feeling of being unwell for 3 to 5 days...nausea / heartburn...not too bad...better with meds, light meals, tums
DHAP chemotherapy; 4 cycles spaced 21 days apart beginning May 15, 2018; warned of nausea, fatigue and hair loss with nausea being mild as well as fatigue - no hair loss yet.
R-CHOP 14 See blog for side-effects which were many and awful.
R- chop
Round 1 1/22/13 Round 2 2/13/13
Rituximab cyclophosphamide vincristine Prednisolene every 3 weeks started 7th August 2012 x8 sessions then 2 years Rituximab control. So far, the only side affect is fatigue , normally towards the end of the day and the day after chemo. Hair still with me. Making sure I don't get an infection of any kind.
GoSH, so many. Six cycles of RCHOP. side effects... 1) affected my eyesight since the 3rd cycle, never got better. It was the first time i feel how its like to be a blind person. Luckily was blind for only a day, and got better but never totally cured. 2) Shingles! yes i repeat shingles! its seriosly the worst thing to get when ur immunocompromised!!!the itch is so intense! 3) FATIGUE--> never seem to end, but sometimes i think its because im lazy
R-chop,
EPOCH+R
RCHOP every two weeks. 6 times in total. Side effects were fatigue, nausea, complete loss of hair, dry mouth, weight gain, joint pain, weakening of bone density, etc....
Started R-CHOP 9-6-16
R-Hyper CVAD (6 cycles) followed by High-dose Methotrexate (2 cycles)
R-Chop commencing Friday 18th February 2011. 6 rounds every 3 weeks. Side effects (in order of severity): Changes in taste and smell, constipation, fatigue, acid reflux, mouth ulcers, nausea, headaches, painful veins.
Start R-Chop on July 23,2013.
8/6/2010 RCHOP - no major side effects with first treatment.
R-CHOP every 3 weeks for 6 cycles
R-CHOP, started may 2015; fatigue, metallic taste, depression, headaches, nausea, loss of appetite
Started R-Chop chemo on May 3, tired, bone pain neropathy in fingers, night sweats and horrible mouth and throat sores.
Many different times beginning approx 1 year after spleen removal
R-CHOP
6 treatments of R-CHOP, 3 weeks apart.
Rituximab X 6 Treanda X 12 Aching, fatigue, nausea, weakness

Melanomas of the Skin Cancer Chemotherapies

What Melanomas of the Skin Cancer Survivors said about their Chemotherapies.

Fluorouracil treatment started Sept 2010 Fluorouracil treatment started Aug. 2011
Taxol, a pain in arm and in the Ass.

Kidney Cancer Chemotherapies

What Kidney Cancer Survivors said about their Chemotherapies.

no treatment yet?
Afinitor (everolimus) tablets daily, started on March 17, 2011
Votrient
4 months, Oct. 2010-Feb. 2011 Avastin and Interferon
My husband was on a trial for a new chamo for renal cancer called "Sutent". He made no progess and instead suffered significant side effects that we believe plunged him into a spiral of ever increasing side effects of his cancer.
On my third treatment and then will have a week off
50mg sunitinib/sutent on a 28/14 cycle. I've had minimal side effects, but I just finished my first four weeks "on".
Methotrexate, Doxyrubicin, Vincristine, Vinblastine, Cytarabine, Etopomide
As of 8/3/11 on second cycle of Sutent, 28 on 14 off

Pancreatic Cancer Chemotherapies

What Pancreatic Cancer Survivors said about their Chemotherapies.

Chemo once a week from 4/2/10 to 6/01/10: Was tired the next day with small "blah" moments.
Diarrhea, fatigue, numbness in finger tips and toes
About to start chemotherapy
Oxaliplatin,Calcium Leucovorin,Camptosar,Florouracil
Hospitalized twice for sepsis after 1st and 3rd Chemotherapy Therapy Treatments. The pancreatic mass pressed on spleen and cause an infraction. The infracted portion of the spleen died and abscessed. Bruce currently has a JP drain in the spleen.
Started 12.1t.16
Gemzar June, 2014. Nausea, weakness, fever, headache
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again. Metastases to peritoneum diagnosed in September 2015. Progression of metastases in May 2016 led to a determination that gemcitibine-based chemotherapy had ceased to be effective, and a new regimen of Onivyde plus 5-FU with leucovorin commenced. BRCA-1 mutation discovered and so the PARP inhibitor Olaparib was started in early 2017.
Gemazar.... So far, nausea and weakness
Folfox mix of chemotherapy -nausea, vomiting, diahhrea , nil taste I food, shaking, mouth ulcers, dry skin
Gemzar started Jan 2014. Once a week for three weeks then one week off for six rounds; liver function elevated and dehydration, fatigue , vision affected .
5-Fluorouracil (5-FU) My sister gets chemo every other week. Her main side effect is diarrhea. She has had 3 chemo fusions so far. She has diabetes and the chemo she receives has glucose in it so when she receives the chemo her blood sugar level goes sky high and she gets severe headaches. She then takes additional insulin following the chemo to help bring down the sugar levels. I am amazed at the medications that help her symptoms. When told she was going to have "bone pain" after a shot to boost her platelet count, she was told to take "Claritin".
Gemzar at first, 5FU for recurrence.
Tiredness and oain
More harm than good; no chemo
Started July 12. Two weeks on, 1 week off. Plan is 6 cycles. Side Effects - Can’t sleep (steroid pretreatment). Terrible constipation (Nausea meds), Very tired, mild fever, irritability on Day 2-3 post chemo.
Started Chemo - Gemzar & Xeloda - in November 2016. 6 cycles planned. Side effects pretty mild - some nausea and tiredness
Chemo #1 on 4/02/10: I was more tired then usual and had a "blah" moment after going outside for a few minutes.
Folfirinox 10/17-3/2018; Gemzar 4/18-7/2018; Xeloda 8/18-9/2018
6/2011 tiredness, nausea, dizziness
aggressive weekly treatments of chemo for 2 months
5fu from 11/8/16 until 1/5/17. Five hour infusion then wore a pump home for 48 hours. Was supposed to do 8 cycles but only got to 4 when my white cell count dropped and we had to stop. The side effects of this treatment are horrendous. Pain, nausea/vomiting, fatigue, neuropathy in hands and feet, hair loss, cold sensitivity, shaky hands and lips, constipation, night sweats, mouth sores.
Gemcitabine (Gemzar)
Initially 2 rounds of Folfirinox, that increased liver enzymes and CA-19-9
Mar 4 _ Sept 15 2015(Folfirinox)Nausea, weakness, vomiting, low potassium, low platelets (despair)

Oral Cancer Chemotherapies

What Oral Cancer Survivors said about their Chemotherapies.

2 cisplatin 3/22/2011: nausea! and fatigue!
1st and 4th week of Radiotherapy treatment, chemotherapy was also performed. 24 x 5 delivery of 5FU with a Cisplatin infusion on second day of each of these weeks. Side effects included a 'Chemo crash' both weeks I had the treatment - second week worse than the first (required blood transfusions).
Cisplatoin 1x week for 7 weeks Dates: Aug 2011 through Nove 2011 Side Effects include; Nausea Hair loss from both radiation and chemotherapy Eyesight has deteriorated a little weak
Waiting for petscan results to see if lymph nodes involved
Erbitux, once a week for 7 weeks, starting in August. Initially, severe tongue sensitivity (at one point even water was like battery acid). For most of the treatment time, daily nausea and and severe acid reflux with occasional vomiting. As of today: chemotherapy induced neuropathy of the right leg causing the inability to lift my toes or my ankle (currently wearing a brace), but expect this to improve; whatever contribution Erbitux has towards complete dry mouth and lact of taste.
3 total - week one - week three and week five easy to do - no issues during treatment lost my beard and hair - so I shaved it short to look like I did it on purpose - wore a crocheted cap - head was always cold.
We can cure this without Chemo. . . I'm going to do it!

Ovarian Cancer Chemotherapies

What Ovarian Cancer Survivors said about their Chemotherapies.

6 rounds of chemo, first one 3/9/11, last one 6/21/11. Side effects: constipation; sharp pains in legs and feet; metal taste in mouth; heavy limbs; pain in joints; jittery; loss of all body hair; eventual numbness and tingling on bottoms of feet; and a slew of other things.
Begin Chemo on Aug. 8th of 2017
Paclitaxel with carboplatin every three weeks for eight treatments as tolerated. I did get a Neulasta shot the day after chemo.
I had three rounds of chemo in three week cycles. Week 1: 5 days of treatment (admitted in hospital) Week 2: Recovery in hospital Week 3: Recovery at home I experienced low blood pressure, dehydration, nausea, fatigue and anaemia. I still have fatigue after treatment, muscle atrophy and peripheral neuropathy.
Have had chemo continuously for 2 years
4 months of chemo. Made me achy like having the flu but much worse especially in my legs, naseous, food tasted bad, water tasted bad, low energy.
July 24,2009 first treatment taxol and carboplatin. The only problem I had was my own fault. I got sick that night because I came home and ate stewed tomatoes and chased it down with a Pepsi! Big mistake because I quickly learned that Chemo and acid DON'T mix. Treatments 2,3, bought feet itching, loss of smell and taste. Treatment 4 was not to bad slight big toe bleeds but manageable, slight problem with vision seeing bright white spaces from within my eyes. Treatment 5 I had a mouth bleed, neuropthy more consistant. Treatment 6 manageable but eyes still have the spots. Neuropthy worsens, still itching.
3- one month cycles of cisplatin, bleomycin, and etoposide. Side effects: Nausea, hair loss (roughly 1 month after chemo began), fever
Had 2 courses of CarboPlatin and Taxol via vascualr Port; followed by 4 courses of IP chemo with Cisplatin and Taxol, one course every 3 weeks, requiring 3 days in hospital each time. Could only tolerate 4 courses because side effects were too severe: nausea, vomiting, constipation and diarrhea, ototoxicity resulting in some permanent hearing loss in left ear and also tinitus, tingling, numbness and pain in hands and feet (apparently permanent), and "chemo brain" - no short term memory, fogginess, confusion, and exhaustion. Serious loss of weight as well. Last 2 courses of chemo were via vascular port and the same as the first 2, and were tolerated fairly well.
07/20/2017 - Extremely tired, some nausea, fidgety legs, no energy for a week.
I'm on my 4th round of chemo treatment in 3 years time. This round is 2 days a week. Side effects are joint pain, nasea, vomiting, diarrhea, night sweats, loss of appetite, hair loss, irritability, exhaustion, and thankfulness for each day
Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol
First time,6sessions of paclitaxel and carboplatin followed by 12 monthly sessions of paclitaxel. Second time 12 sessions of paclitaxel and uniplatin. Periperal nueropathy and weight loss which i'm unable to regain despite healthy intake.There was complete hair loss after 1st chemo sessions,however they reappeared as curls within four months of end session. After 2nd line chemo sessions hair reappeared straightened! neuropathy of hands has increased. Still unable to drive car, or run, or walk fast.
cistplatin, bleomyocin, etopiside, numbness in hands and feet nausea and weakness major chemo brain
Carbo and Taxil, 6 cyles. Deep bone pain, dizziness, blood clot in lung, breathless
4 round of cisplatin, bleomycin and etoposide
Taxol/Carbo every 3 weeks. At 2nd round, Avastin was added to the mix & will receive for round 3 & 4 as well.
June 19th 2016 no serious side effects.
I just started the chemo on Monday January 12th. I am on a 5 day a week regimen which occuers every 3 weeks. On my "off" weeks I need to come in 1 day a week to get an injection. Towards the end of this first week I am feeling very tired and very nauseous.
Carboplatin, taxol, avastin, and a PARP inhibitor for 6 rounds, then remission for about 7 months. Then more carboplatin and taxol for 3 more treatments until I became resistant, then onto the MEK/Milo trial. Failed that after 2 months, now looking into immunotherapy
My doctor said there wont be malignancy as the tumor was encapsulated, but it would be safe if i undergo 3sessions of chemotherapy. So i opted for chemo and had vomiting and hair loss while on therapy
Start Jan 6, 2012 Six rounds of carboplatin and paclitaxel once every 3 weeks.
I have a three prong chemo, which takes place every three weeks. I suffer from extreme nausea, vomiting, fatigue, hair loss, chemo acne and pain at the IV site.
Fatigue, neuropathy, loss of hair,
weakness, dehydration, diarrhea, constipation

Thyroid Cancer Chemotherapies

What Thyroid Cancer Survivors said about their Chemotherapies.

HAD 7 TREATMENTS ONE A WEEK FOR 7 WEEKS SIDE EFFECTS WAS MINIMUM DID NOT LOOSE HAIR JUST WEAKNESS OR LARTHARGIC MOOD ...
Radioactive Iodine treatment, 8/09 - nausea
Thyrogen injection #1: 4/14/10 - stings #2 - didn't feel a thing RAI-131: 4/16/10 - 203.9 units - so far, so good.
RCHOP 21. Three rounds total. 11/2/0, 11/23/10, and 12/14/10. Worst effects so far: heartburn to point of esophageal spasms, constipation, headache, mouth tenderness and dryness, fatigue and hair loss. This was for the Lymphoma. No chemo (so far) for thyroid cancer.
Sutent currently

Stomach Cancer Chemotherapies

What Stomach Cancer Survivors said about their Chemotherapies.

Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
4 months...not helping
Folfox, nausea/vomiting
Chemo every 2 weeks, nausea, vomitting.
Exhaustion nausea Going on my 86th treatment
Began chemo in July of '09 with camptosar, leucovrin, and 5-fu. this is over a 46 hour period. In January '10, they added avastin and zometa to the regimin and is ongoing.
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.
3/15/14 Began 10 session clinical trial at Memorial Sloan Kettering. Chemo iv (cisplatin and epirubicin + trial drug/placebo) every 3 weeks. 2000mg Xeloda pills daily. IV chemo is followed by two days of dextametazone (steroid pills) which give me a boost. Hair loss, dry hands - currently trying to prevent them from cracking, some fatigue. Trying to avoid pain meds because that seems to be the cause of constipation/discomfort.
Cisplatin, Epirubicin, Capecitabine (Xeloda) #1 June 12, 2017, #2 July 4, 2017 Nausea, Dry mouth, Tingly fingers, blood clot in spleen, hair loss
No help says' the doctor.

Brain Cancer Chemotherapies

What Brain Cancer Survivors said about their Chemotherapies.

No chemo
Temodar 28 Days on 5 Off. 14 Rounds. Nausea, vomiting, weakness, mouth sores, fatigue.
Taking a Temodar pill for 2 months.more fatigue, and sickness.
Tremador - First set - daily dose for 3 weeks Not able to continue to the next set. Nausea, weakness, loss of appetite, Sleeping constantly
Started temodar on November 9, 2011 140mg a day for 6 weeks - there has not been much happen in terms of side affects yet, some nausea
Undergoing chemotherapy in Chennai, India. Started on July 12, 2009. Total 12 doses. Hair loss, vomiting, fatigue, loss of appetite, etc
Temodar 160 mg nightly began July 21, and continued during radiation treatments. Chris had to take Zofran with the Temodar, so he didn't get nauseous. He will finish the chemo up the chemo September 2, 2013. He will get 4 weeks off, and begin taking a double dose of the Temodar for the first five days of every month for the next six months.
Timodar Started in March 2006 and still ongoing. Side Effects: NAUSEA!
Mom had Temodar - just fatigue. Dad tried chemo (IV) - and wound up nearly dying from it. Placed in hospital twice and determined his body just could not handle it.
I tooke Temodar pills from 08/2013 to 12/2013. The main side effects that I had were fatigue and nausea. I found that by taking my Zofran a half hour before bed and then taking the Temodar right before I went to sleep, I was able to sleep through most of the side effects.
Temodar throughout radiation and now higher dosages (5 days on 23 days off). Fever, low platelets, fatigue
February-continued weakness, tiredness, fatigue, sores in mouth
temador nightly before bed. also on a target therapy trial of avastin which was researched at duke hosptiol
Avastin drip. 12/2009 - 2/2010. Nausea. Sidenote - everyday I'd go to a juice cafe where they had wheat grass juice. When I went for my last treatment, nurse told me my blood counts throughout treatment were spot on... It's worth researching as has many benefits. Please check with your doc as told it may not be appropriate for some during their treatment.
1/12/12 - begin taking daily chemo pill Temador (not sure how to spell that) for up to 12 months.
Temodar - no side effects yet, Praise God!
Temodal - started Aug 15, 2011
Temodar, 150 mg during radiation increased to 350 5 days/month for 3 months, then increased to 450/month at present Side effects: fatigue
At first it was the same as radiation, but when they got aggressive in August, I was stuck to the couch for 2 weeks. Weakness, major nausea, muscle and bone pain, throat swelling, mouth sores, major shivers and shakiness, tremors, spinal and head pain, throbbing from head to lower spine...theres more but can't remember them all.
temodar 42 straight days
low dose temodar- little to no side effects b/c of my use of supplements
Started Temodar on 11-23-09 380mg to much dosage, went to Hospital for low platelets 12-18-09 My platelets were at 6K !!!
Radiation & Temodar daily for 42 days then cycles of 5 days on 23 days off
3 Cycles of Chemo - Cyclophosphamide, Vincristine, Cisplatin - Dec to Feb. (3 weeks apart) - Foot Drops and trips and falls 3 Cycles of Intensive Chemo with Autologous Stem Cell Transplant - Carboplatin & Thiotepa - Feb to May (4 weeks apart) - Hearing Damage
I had oral chemotherapy. I started taking it when I started my radiation therapy. I finished my chemo in October 2011. I took it every night 21 out of 28 days. I had to wait 2-3 hrs after eating to take it and another hour after taking it to eat or take my other medications. (I took Zofran, a nausea medicine, half an hour before my chemo.) One positive is it broke my late night snacking. My chemo has random side effects and the possible side effects ranged from one thing to the opposite. For example, it could cause constipation or diarrhea. I didn't read all the possiblities until I was almost finished taking it. That explained why I cried so easily. It was a side effect not just stress from dealing with cancer.

Multiple Myeloma Cancer Chemotherapies

What Multiple Myeloma Cancer Survivors said about their Chemotherapies.

began 12/1/14 - 4/30/15 (Velcade, dexamethasone and cytoxin), Cytoxin priming 6/5/15, Stem cell transplant6/16/15 and Malthalon 6/25/15 , also neuropathy (mild) in parts of hand and feet.
8/13/15 Cyclo,dexamethasone, velcaide, huge stomach, very nauseous,no life. After5 1/2 months fired oncologist and went to natural treating dr.
January 2006 and May 2006 stem cell transplants with hi dose malthalon chemo resulting in malthalon misery - tired and more tired.
Velcade, Decadron, Revlemid. Mostly fatigue and a slight loss of appetite.
1st cycle December 2010. Loss of hair.
March to October 2010.Four treatments every 3 weeks. Velcade, Dex and Zometa. October 2010 went to 1 treatment every two weeks, same medication.Still on this schedule as of this date Mar 8, 2010
Revlamid - daily - ongoing
4 monthly rounds of VAD prior to allogenous bone marrow transplant.
Velcade, dexamethazone, since transplant just added revlamid
18 series VRDD and VRD so far
Thalomid: Fatigue. Red spots that eventually covered my entire body. Neuropathy in feet and hands. Revlimid: rash, upper body.

Colon and Rectal Cancer Chemotherapies

What Colon and Rectal Cancer Survivors said about their Chemotherapies.

Alt Folfiri/Folfox 2010/Feb through 2010/June Folfiri/Erbitux started 2011/March Changed to Folfox/Avastin 2011/Oct Clinical trials 2012/Sept
FOLFOX every two weeks for 12 treatments total through a port installed in my chest. Started 3/17/14. Main side effects are fatigue and bouts of nausea. Catheter from my port ruptured 2 months into treatment. Port replaced 7/3/14.
Chemo was 1 day a week for 5 weeks and I went after I had my radiation treatment. They made me very tired and weak feeling. Some days I just had to go home and go to bed. Was only sick a couple of times but kept diarrhea the whole time I was having the chemo treatments, going to the bathroom some days as many as 11-12 times.
9/07 for 5 months every 2-3 weeks.Fulfox, Five FU, evastin, oxalyplatin -Side affects were mild and temporary such has hair loss (complete on first round) mild neuropathy, Hand and food syndrome. Slight diarrhea but NO nasuea. Loss of appetite, loss of taste. 06/08 Second round of chemo (Irinotecan) more nausea but virtually no diarrhea. neuropathy has returned slightly. I can still taste things after 2 rounds of chemo this time.
I started Chemo on December 19,2008. I had a port put in to administer the treatment. For my lifestyle the port makes most sence. Have the pump hooked up was a bit invastive, but I have great nurses who have a trementious amount to compassion and skill
Will be starting chemo on April 27th. Getting 12 treatments over six months of 5Fu with leucovorin and oxaliplatin via a medi port. Had the port put in this week.
Started chemo 1/4/2016
4 treatments done... 8 more to go. Mom had her port put in and about a week later went for her first treatment. She spends about 6 hours at the cancer treatment center and has her "chemical purse" with her for 48 hours. Side effects: pain in feet occasionally and colder than usual.
6-03--36 weeks of IV chemo therapy. Had problems with severe diarrah, nausa and fatigue 3 days out of 7. Slightly ill the rest of the days with same symtoms, but milder. 2007--doing much better on chemo therapy by adding alternitves. (read below) 12-07- oral Xeloda (chemo therapy). Take for 2 weeks straight 2 times a day, then one week off. Side effects are slight now that I take fermented wheat germ, green wheatgrass and mangoseed juice. The juice improved my energy level a lot! I think we are seeing some results from the fermented wheatgerm as we are now starting to see on my cat scans that things have kind of stopped. In the England Cancer Journal they have proved that fermented wheat germ can slow and sometime cure cancers. The mangoseed juice is made in Asia, this is the only place it grows. It is extremely high levels of antioxidants! Knock on wood I haven't been sick since I started it! I also only eat organic (as much as I can) I eat lot's of greens and fruits. I get protein from the grains and I also eat a lot of nuts. I have felt so much better since doing this it is unbelievable.. I have hand and foot syndrome that this chemo can cause..this can/is be very painful. Febuary 08-New treatments of folfox6, Avastin and 5FU--extreme fatigue-nausa-diarreha-controled by medications for the most part. Need to rest a lot.
6 Months starting Dec 2, 2011. 5 hours every other week. 5-FU, Oxaliplatin and leucovorin. Will bring home 5-Fu in a bag for the weekend will run through port and bag removed on Mondays
24/7 pump 5fu.
10/13/14 - 11/26/14 (1st Round) 12/23/14 for 5 weeks (2nd Round)
First circle two times for one week during radiation, second circle stopped after the first week because of acute leucopenia.
Pending
Bi-weekly Chemo 6 months Oaxliplatin/ fluorouracil 5-fu
First visit to oncologist 29th March.
I had 2 chemotherapy drugs. Eloxatin (oxaliplatin) which was given through my port at my Oncologist's office. I also took Xeloda which is a chemotherapy drug (pills) taken at home. I also had a wonderful Oncologist who worked well with my surgeon.
FOLFOX plus Erbitux &
6 weeks 3000mg xeoda pre surgery. 4 month 5000mg xelota post surgery. Oxi recommended. Tried but side effects too extreme. No hair loss. Tired and weak. Low energy with uncontrolled diarrhea.
5FU no side effects Avastin no side effects Oxi could not touch or drink anything cold.
5f-u and Oxaliplatin start 10-19-2010~On June 13, 2011 I had an allergic reaction to Oxaliplatin and my Doctor made the decision to take me off of that for good. Nothing will take it's place as of now. I will remain on 5f-u and Leucovorin.
FOLFOX first cycle June 11 (infusion) and then the pump 46 hrs; some odd effects on swallowing, a little constipation, a little diarrhea, no food problems :)
November 1, 2006, Started with 5-FU, missing DPD enzyme causing life threatening toxicity issues and discontinuing the 5-FU. No additional chemo available to me for any treatment of this condition. Now in wait and see mode.
24/7 5FU with another drug u can't remember through port. Six weeks, 4 days, 12 hours.
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007 Nueropathy, memory loss, balance issues, joint and muscle pain

Liver Cancer Chemotherapies

What Liver Cancer Survivors said about their Chemotherapies.

11-19 chemo pellets not sure of the name, nausea,
On going chemo regiment and had one chemoembolization.
TACEdeb procedure begining of June....side effects... all haha vomitting, nausea, fever, pain, pancreatitis.
Nexavar 8/22/12 - forever, side effects all listed
Nexavar - Current (8 months)
First treatment was June 8th 7 hours between the other meds olus the chemo..Cisplatin and Gemzar.. Felt ok the day after but then started feeling very sick, achy, headache, ringing in ears, coulnt eat, weak, dizzy,tired,shaky all over I only felt well enough to go to the doctor on the 7th to have my blood drawn..saw dr and he said he would up my steroids next time and that should help second treatment was on the 8th, Just the gemzar.. Really tired and achy. Dizzy and weak. Had my shot of Lewnasta on Monday. Still fell tired and bone pain
Nexavar for 6 months. Infusion therapy started 2 weeks ago and ongoing bi-weekly.
every kind, all the time for the last 5 years
No chemo as no primary cancer found and chemo will only add a few months to life, yet these extra few months will be with the side-effects of chemo
7-2008 to present. Lethargic, no appetite, not able to focus for too long on anything, weight loss, strange thoughts, sleep seems to be all REM, dreams and or nightmares about Nam seem to pop up while I'm awake,anger, especially at the VA for not stepping up and admitting and approving my claims.
Tried Nexavar for one day, but decided against it; bad side effects--felt cloudy, nauseated like when I was on Interferon/Ribaviron and had rectal bleeding from the Nexavar; not worth it to buy a few more months of life; discontinued
i will tell you

Cervical Cancer Chemotherapies

What Cervical Cancer Survivors said about their Chemotherapies.

Had cisplatin for 6 weeks during radiation, now am on my 5th of 6 treatments every three weeks (taxol and cisplatin)
Metallic taste heart burn mild nausea ringing in ears
I have completed 6 rounds of chemo. Currently I am not getting treatment due to the neuropathy in my feet. First round of chemo was March 7, 2018 and continued every 3 weeks until May 30, 2018. Side effects of chemo: tiredness, loss of hair, nausea, a few occasions of vomiting, bone pain, muscle aches, neuropathy of hands and feet and I could not think clearly.
That also starts withen the next 3 weeks.
Cisplatin for 6 weeks Cisplatin & Topotecan for 4 21 day interval treatments. 3 day duration of treatment. CHEMOTHERAPY TREATMENTS are the treatments that made Aimee sicker: nausea, vomiting, diarrhea, and weight loss of 35#. She also had 10 blood transfusions during the 2 treatment plans because the cancer and chemo were killing her simultaneously. During her final treatment in January 2009 she had an allergic reaction and coded in the clinic. Treatment was discontinued and Palliative care began.
Chemo was my biggest fear. Hearing so bad horror stories I was besid myself with fear. I actually have 1 more left to go and no problems except for a mild nausea about day 3 and thats it. Never really got too tired and never lost my hair. It really was like being pregnant as far physical problems with tired and nausea. It was a low dose cisplatin for 5 weeks.
5 weeks of chemo started December 4 ended on January 2. Ended up in ER twice, once for vomiting blood and once for persistent vomiting.
Weekly chemo for six weeks
Loss of hair and nausea
Have had 5 chemo treatments. Took 5 hour "naps" afterwards. Some foods tasted nasty! Normally a huge water drinker but water nauseated me. Required at home IV infusions of Potassium and Magnesium for 8 hours/day for total of 15 days, also received a few infusions at the clinic for dehydration and low electrolytes. Anti-nausea meds didn't work on me.
I couldnt eat as much as I thought I would be hungry. Most food tasted terrible. I was able to watch much tv. I never watched tv since I was a kid. I am an active outdoor person, I felt it made me become lazy. lol I got the flu, lowered my immune system, however my red blood cell count always stayed very good!
5 chemotherapy sessions with cisplatin over 5 weeks
10/11/2016, 10/18/2016, 10/25/2016, 11/01/2016. I was supposed to have 6 rounds could not continue because the WBC were to low. Had to get neupogen shots to increase the cell counts, before the 2 rounds of brachytherapy. Again, no adverse effects from the chemo either.
2 rounds of Taxol/carbo 11/2011 & 12/2011...Is being changed for 1/2012...not sure of new drugs yet
methotrexate injections every other day via injection
Cisplatin weekly 10 weeks delayed nausea that was almost impossible to control. Change in texture of hair minimal loss of hair. Mostly just thinning.
Extreme nausea, vomiting, some tingling in my toes.
4 cycles (1 wk on 3 wks off) Cisplatin for 6 hours on day one, sent home with 5FU med pump for 96 hours. Side effects- nausea, diahrrea, agitation, black nail beds, hair thinning/loss, dehydration, irratation, moodiness, list goes on and on.........
Tirapazimine and cisplatin for 6 weeks...Metal taste in my mouth towards the end and thrush in my mouth for a couple of weeks which subsided with medication.
Cisplatin low dose for 5 cycles once a week. Tolerated it well just very tired. Considering I had concurrent radiation and chemo it was hard to tell what was causing all my nausea and vomiting but we think it was the radiation. Also I had preventive chemo cisplatin and taxol ( lost hair with this ) , three rounds , to help potentially stop a recurrence.
5 treatments of Cisplatin
combination of xeloda and cisplatin- some loss of appetite, some naseau ( not too terrible), and some fatigue--started treatment in February 2006 cisplatin was administered once a week for four weeks and xeloda was taken orally Mon.-Fri. for 3 weeks, treatment was stopped early due to low blood counts
Cisplatin: Took 2 treatments, 1 week apart. Tolerated well. No nausea, though stomach very "acidy" feeling. Eating bland foods often throughout the day helped. Did have some tiredness. No loss of hair. Had to stop Cisplatin for a while due to frequent ringing in ears. Cisplatin can lead to permanent hearing loss. Was able to complete last 4 Cisplatin after a break. Have some hearing loss, but not much. Will be using an experimental drug-Avastin, as well. Avastin: no loss of hair. Felt a coldness in the core of the body and extremities. Combined with Cisplatin, usually left me feeling poor and unable to work for about 5 days. Starting Taxol, Carboplatin, and Avastin again next week.
Cisplatin once a week In conjunction with the radiation. Then Five series with Etoposide.
nauseousness....

Larynx Cancer Chemotherapies

What Larynx Cancer Survivors said about their Chemotherapies.

Induction chemo for 2 months prior to radiation treatment - once a week during radiation; mouth sores for four days after first round, hair loss, fatigue, and some taste changes, but all in all, he did really well. Very little nausea.
12 total Erbitux sessions, once weekly, January 13 - March 31, 2011. Increasing fatigue and, ironically, insomnia following each session. From mid February through the end of treatments, somehow the Radiation/Erbitux mix seemed to spawn clusters of migraines.
Oct 8th- January 13th, 2010 Lost Hair after 21 days. Fatigue, dry mouth, muscle cramps that were very painful after 1st treatment. terrible rash on my head and neck the whole time I was taking chemo.

Acute Myeloid Leukemia Cancer Chemotherapies

What Acute Myeloid Leukemia Cancer Survivors said about their Chemotherapies.

i had three induction therapies spaced about 6 months apart. and just completed two consolidation therapies. i am preparing for a bone marrow transplant.
oct induction chemo, Nov another bout of induction chemo as first did not work. Jan: consolidation chemo Apr: additional chemo to prepare for bone marrow transplant.
Oct 14th- 7 days Vidaza Nov 23rd- 7 plus 3 Dec 25th- fludarabine and busulfan
chronic vommiting ,hair loss tiredness
Achieved remission October 2017 with 2 IV drugs — few side effects aside of minor peripheral neuropathy in feet. Out of remission in January 2018. On cytsribinevsubce Feb 2018; Also on oral chemo since March 2018: Venetoclax. Peripheral neuropathy (feet); anal fissures w/bleeds; mucocitis of throat (hard to eat or drink ANYthing); dyspepsia (nausea); fatigue; 15% wt loss (BMI=18.4)
Seven days straight starting on Monday August 15th.
1/28/16 induction
11/2009. 1/2010. Neuro side effects. Vision compromised. Weakness. Nausea.
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
7 + 3 , tired, weight loss, neuropathy
1st round-12/09/2011Atromycin for 3 days nd Cytosar. for 7 days.
Induction, September 2014, two rounds. I didn't go into remission after the round (7+3 and) had IDA-FLAG (idarubicin, fludarabine, cytarabine and G-CSF. I lost my hair and appetite. Mouth sores are horrible as was the fatigue. I had four rounds of consolidation (November, December 2014, January, February 2015) after this, high dose cytarabine and the side effects are marginal for me, I was really tired and that was a result of low Hgb.
Jan 2 through Jan 5 2015 Staff infection , Bacteria in blood, Fever and Nausea
High dose chemotherapy, March-June 2012. Side effects: Nausea, vomiting, weight loss, fatigue.
Started induction chemotherapy for AML on 25th September with "7+3 for 24 hours. I got Daunorubicin for 15 minutes the first 3 days while getting cytarabine the rest of the 24 hours. After the 3 days, the cytarabine continued 24 hours for the balance of the rest of the 7 days. I was medicated with multiple medications to prevent some of the known side effects such as eye damage, nausea, vomiting, and acid reflux. After the chemotherapy stopped, the Nader effects kicked in about a week later which is when the white and red blood cell counts and platelets drop. I ended up with ecoli infection in the blood and pneumonia which nessitated the administration of IV antibiotics. I also required Neupogen shots daily to help increase the production of white blood cells. Multiple platelet and blood transfusions were needed to sustain my existence. During this time I also had petechiae due the low platelet count. Stem cell or bone marrow transplant was recommended however, in my case, no full donor match could be found. Therefore my option was to have additional consolidation which consisted of hi-dac chemo (high dose chemo days 1,3,5 for 4 hours twice on those days. Typically if transplant is not an option, 4 doses of hi-dac is recommended. Due to my difficulty with the chemo, we opted for only 2 consolidation treatments. Right now I'm in remission although my white blood cell count and platelet counts are only 1/2 of the normal range. Last bone marrow biopsy (6th one) showed no Leukemia. Currently I have monthly blood work to monitor blood levels.
April 9 - 15th 2017 & April 27th - May 1st 2017.Finished 2nd round of Chemo May 1st. Experiencing hair loss, fatigue & weakness, SOB, Colitis, Diverticulitis, diarrhea, loss of appetite, confusion, hallucination, Acute Renal failure, low BP, and neutripinic sepsis.
idarubicin and atra began in april 2008 vomiting,diarhea,blood and platelet transfusions many transfusions
Had two induction rounds and two consolidation rounds.
Induction round 12/22/14-1/19-15: nausea, vomiting, diarrhea, fatigue Consolidation February '15, Consolidation March '15, Consolidation April '15
On April 19th 2018, I also received my first dose of chemotherapy. I don't remember much of what happened during this time except I broke out in a red rash from head to toe and ran a fever for 5 days straight. The red drug, daunorubicin, makes me extremely sick. I'm a wreck when they give it to me.
Round one: 7 days of continuous chemo. Round two: 5 days of 2 times a day chemo Round three: 2 days of 2 times a day chemo Followed by 3 days of 2 times a day total body radiation.
All through out until transplant
I have been through my first month of Chemotherapy. I am now going to the Mayo Clinic daily as an outpatient taking doses of arsenic. No Fun!!!
photosensitivity, some nauesea
Started daunorubicin and cytarabine 7+3 therapy on January 10, 2015. I stayed in the hospital approximately thirty days. A bone marrow biopsy at the end of this stay confirmed remission. My nausea was not too bad, except for a time that they served some green beans from the cafeteria. I dry heaved several times, and then ate only food from home. I suffered diarrhea, hair loss, a neutropenia fever, an acute kidney injury, fatigue, and weight loss. I started my first round of consolidation chemotherapy in February, second round in March, and third round in April. I have been very fortunate to this point to avoid a bone marrow transplant.

Chronic Lymphocytic Leukemia Cancer Chemotherapies

What Chronic Lymphocytic Leukemia Cancer Survivors said about their Chemotherapies.

Fludarabine - 8/7/06 - 8/11/06 -- tired and nausea Rituxan - 8/11/06 - "shake and bake"...you name it I felt it...dizzy, chills, threw up, nurses very good in giving me appropriate meds to counteract side effects

Testicular Cancer Chemotherapies

What Testicular Cancer Survivors said about their Chemotherapies.

VIPx4. Etoposide, ifosfomide, cisplatin- four cycles, five days in a row each, every three weeks.
My husband had 4 cycles of chemo. Aug 2005-Dec 2005. Son is having 3 cycles. Started 8th June 2010... next cycle 28th June 2010. Both lost hair.
Bleomycin, Etoposide, Cisplatn (March 07 - May 07) Cisplatin, Taxol, Ifosfamide (September 07 - November 07)
Loss of hair, loss of weight, loss of wife. LOL
had no treatment
Initial diagnosis required 1 round chemo -Carboplatin - minimal side effects Return of cancer - 4 rounds of chemo ( EP) 21 day cycles includes five continuous days of infusion then rest. No nausea but gastric reflux with vomiting, scalp pain, metallic taste in mouth, tiredness, neutropenia
I was on three types Cisplatin,Bleomycin,& Etoposide.I started treatment in 9/08 and finished 12/08,four cycles.Effects were real BAD..it sucked hair started coming out about two weeks after first treatment,rashes just sick most of the time.
Chemo Began 12/02/2013... Bleomycin-Cisplatin and Etoposide
Bleomycin, Etoposide, Cisplatin (BEP) 4 cycles Side Effects: Blood clots, low blood pressure, fever, neuropathy, vomiting, nausea, hair loss, weight loss

GIST (Gastro-Intestinal Stromal Tumors) Cancer Chemotherapies

What GIST (Gastro-Intestinal Stromal Tumors) Cancer Survivors said about their Chemotherapies.

Gleevec 400 mg. daily, nausea, taking anti nausea medication
taking Gleevec for life

Chronic Myeloid Leukemia Cancer Chemotherapies

What Chronic Myeloid Leukemia Cancer Survivors said about their Chemotherapies.

An unpleasant mix of fatigue, diarrhea, headaches, water retention, muscle and bone pain.
Daily 400mg Gleevec. Daily fatigue. Slow morning wake up. Memory problems they call Gleevec brain. Polyneuropathy: pain and weakness in body. I use a cane when walking outside. Diarrhea. I did just find out that I am now in remission but must stay on the Gleevec for 2 years. I am totally grateful that Gleevec exists for me and for all CML patients. Good luck to all of us!
Gleevec
I've been on Gleevec for 3 weeks. the first week was no different than the previous ones, lots of fatigue, but that is from the leukemia. In the second week, I started having more pain and some diahrrea. The diahrrea cleared up in a few days but the pains got worse. By week three, I have a lot of bone pain. I can get around and i can work, but it hurts quite a bit to move and my legs (thighs) are the worst. I often wake up with pain and my fatigue is not improving.

Acute Lymphocytic Leukemia Cancer Chemotherapies

What Acute Lymphocytic Leukemia Cancer Survivors said about their Chemotherapies.

I have 6 months of chemo: 1. Daunorubicin, Vincristine, Asparaginase, Prednisone 2. Cytarabine, Etoposide 3. Methotrexate months 4, 5, and 6 are a repeat of months 1, 2, and 3. I also had 6 doses of intrathecal methotrexate (chemo injected into my spine). I am getting cytarabine, methotrexate, and a steroid intrathecally. I think I'll also get one round of high-dose cytarabine intravenously prior to transplant.
I recieved Chemo in 2004-2006 with my first diagnosis of ALL. I relasped in June 2011 and started chemo on June 24-July 18. I will continue chemo until my Bone Marrow Transplant.
An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010: Vincristine PEG-aspariginase Doxorubicin Methotrexate Cytoxan Cytarabine 6-MP 6-TG Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain.
I didn't really focus on what chemo I've gotten/getting, but my main side effects were nausea and fatigue.
Vomiting, hair loss, fatigue, mouth sores, reduced immune function.
I'm not going to tell you anything you would be shocked by here. I'm bald - and have been for two years. 98% of anything I eat upsets my stomach in some way. I wish I could sleep all the time, but I have a 5 year old little girl, a full time job and a husband so that is possible. Other than that, Cancer sucks, Chemo sucks worse, but we will all get through it, right?
lots of dates, spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints. mercaptiprine, is every day, that just gives her a weird rash. methotrexate makes her sleepy
I don't remember all of them, but cytotoxin was one of them

Anal Cancer Chemotherapies

What Anal Cancer Survivors said about their Chemotherapies.

10/2011-12/2011 2 rounds of 5FU through picline., 6/2012-2/2013 Several rounds of Cisplatin
Vomiting, hair thinning but no complete loss
2weeks of Chemo. Starting the first week of radiation and the last week. Mouth sores low blood pressure. Second round of chemo mouth sores. Hospitalized due to UTI for a week. Spent a month in the hospital. It was hard to recover
Mitromycin and 5FU via pump, 1st week and 4th week of treatment. Nausea - 4 week had to be hospitalized
5-FU Two rounds done in the hospital W-M 24 hour IV drip into my lovely port I named Randy. Blistering Lips - Acupuncture helped that tremendously - I had almost no blistering the second round of chemo. I did it once a week during my entire of treatment and for about a month and half after. I still go now for tuneups. Blackmouth/teeth/tongue - baking soda on my toothbrush got rid of that Diarrhea - a towel to scream into when it was bad; childs pose when I was finished; I will finish this I have lots of things I did.......
Started Chemo 3/19/12 - completed 4/26/12 with mininal side effects.
2 rounds of mitomycin and F5 pump. Fatigue and brain fog. Loss of appetite and loss of normal taste bud function.
First round 11-29-21 thru 2-4-21 Second round 2-27-21 thru 2-30-21 Both with the fanny pack pump through my port
Chemo Round 1: 9/23/19 Day 1: good morning and afternoon, then felt like a heavy blanket over my head and shoulders. The aches started later that evening, lasting about two days. Day 4:. Morning began with the metallic taste in my mouth, by lunchtime I couldn't taste my food. This lasted about two days. The metallic taste lasted a little longer but only happened once in a while. Had some nuer
January 2010- January 2011- Cisplatinin and 5 FU February 2011-May 2011- Oxaliplatinin and 5 FU June 2011-present - pclitaxol
consult 8-25
2 rounds via port, less than 96 hrs round 1 due to New Year's Eve infusion clinic closing, 96 hrs round 2, Low WBC, fatigue, port infection,
1/23/2012 had IV mitomyacin then 96 hrs of 5 FU via pump. Extremely fatigued all week, not sure if it was the 5 FU or mito. Started Neupogen injections following Monday for 7 days. No nausea at all. Appetite great. Mouth sores began with a vengeance following sat and lasted 7 days. Could only swallow liquids so I mostly lived on instant breakfasts. Two weeks later my finger tips began peeling and hair loss began.
lost my ability to program...don't think like i used to..
The standard for anal cancer: two rounds of 5FU & Mitomycin. Lost about half my hair. Very bad mouth sores and oral thrush, especially in the 10 days after infusions. Became neutropenic (big drop in the type of white blood cells that are the major infection fighters) with second round of Mitomycin.
Starts 9/3/13
5/21/12 first week via port 7/2/12 2nd week via port Every third week 11/26/12 to 3/11/13, 5 hr drip 4/7/15 every 2 weeks
Cisplatin and 5FU, nausea and dizziness
First round...mouth sores, nausea, weight loss, chemo rash on face and on upper torso, hair loss (about 80%).
peripheral neuropathy
Currently on taxol/carboplatin Prior treatment of Folfox 6 showed no sign of lung met shrinkage.
PICC line surgically inserted for take away 24/7 chemo, replaced weekly. skin rash on chest, drop in blood pressure, drop in red cell count requiring x3 blood tranfusions, nausea, dizziness, alternating constipation through pain meds and diarrhea from chemo/radiation combo, mouth sores, lack of appetite.
Scheduled to begin 10/18/10, Fluorouracil and Mitomycin, 1st and 5th week
Started March 3rd, mitomicin infusion first week, next week started Xeloda 5 days a week, last week mitomicin and zeloda. Some feet neuropathy, 1 week off of Zeloda due to very low wbc and platelets, very tired. Hard to tell what symptoms go with which treatment
Did well with the first round of chemo. Only side effects were loss of appetite and mild nausea. Did well again with my second round of chemo. Did not lose my hair!

Vulva Cancer Chemotherapies

What Vulva Cancer Survivors said about their Chemotherapies.

1/4/17-2/15/18
I didn’t lose my hair.

Gallbladder Cancer Chemotherapies

What Gallbladder Cancer Survivors said about their Chemotherapies.

4 rounds (8 sessions) as of 7/13/19; serious weight loss and fatigue

Pleura, Malignant Mesothelioma Cancer Chemotherapies

What Pleura, Malignant Mesothelioma Cancer Survivors said about their Chemotherapies.

On Chemo from April to Sept 2010. Main side effects were fatigue, weight gain, mouth sores occasionally.

Bone Cancer Chemotherapies

What Bone Cancer Survivors said about their Chemotherapies.

Resistant
Carboplatin, Doxorubicin, Cyclophosphamide, Tamoxifen, Toceranib, Piroxicam. No significant side effects to start with but after so many months of home chemo/meds I get diarrhoea and occasional nausea (am on meds to combat). My fur is very slow growing now - months later, surgery sites are still sparsely covered in fur, and I now have bald patches (my paws, muzzle, bottom).
i cannot sleep..i cannot eat..i do vomiting

Hypopharynx Cancer Chemotherapies

What Hypopharynx Cancer Survivors said about their Chemotherapies.

First session attended. No side effects

Nose, Nasal Cavity and Middle Ear Cancer Chemotherapies

What Nose, Nasal Cavity and Middle Ear Cancer Survivors said about their Chemotherapies.

See the Chemo Dr tomorrow, too. Don't know if I'm going to do it.

Nasopharyngeal Cancer Chemotherapies

What Nasopharyngeal Cancer Survivors said about their Chemotherapies.

Protocol #1: First of 3-21 day cycles of 5-FU, Cisplatin and Docetaxel started 10/7/13 - around the 2 or 3 week started losing hair and experiencing nausea, fatigue, weight loss, etc; Protocol #2: Eribtux and concurrent radiation for 6 weeks started ~12/10/13 - neuropathy in feetbegan a few months after treatment stopped and is still ongoing.
chemotherapy given from January to September Side effects: dehydration, vomiting, blood transfusions
Tinnitus weakness nausea
3 x cycles of Cisplatin 80mg/m^2 over 9 weeks prior to Radiotherapy 3 x cycles of Xeloda (14 tablets) over 9 weeks prior to Radiotherapy Once weekly 40mg2 Cisplatin during Radiotherapy
Every 3 weeks during radiation then once a month x 3 for cisplatin. 5FU home infusion will start in Sept for five days then again in October and November. Nausea, vomiting, fatigue for cisplatin have not had 5FU yet
3- 8 hr chemos mostly nausea.
Jan 2009-june 2009: lung nodules shrunk a bit and last CT scan end of june showed no growth: little nausea, tired all that stuff
Started weekly induction chemo on 9/5/13 with carboplatin and paclitaxel- soreness in mouth, slight nausea, dry skin (severe itching), acid reflux. Started chemo-radiation on 11/4/13 using cisplatin. Received 5 weekly cisplatin treatments until wbc count was too low.

Peritoneum, Omentum and Mesentery Cancer Chemotherapies

What Peritoneum, Omentum and Mesentery Cancer Survivors said about their Chemotherapies.

Carboplatin and Taxol once every three weeks, 6 times. Fatigue, faux sence of energy at first, couldn't sleep for two day after, then crashing with neuropathy pain and fatigue

Gastrointestinal Carcinoid Tumors Cancer Chemotherapies

What Gastrointestinal Carcinoid Tumors Cancer Survivors said about their Chemotherapies.

chemo side effects hair loss some weight loss vomitting sweats shakes hot cold pain emotional skin tone looked unhealthy

Esophagus Cancer Chemotherapies

What Esophagus Cancer Survivors said about their Chemotherapies.

Chemo is rough.
every 3 weeks, side effects: tinnitus and stomatitis after the last one
Only needed for Esophageal Cancer. POST operative only. 6 weeks of once a week chemotherapy (Mondays only) - Cisplatin and 5FU. Side effects were minimal. Did NOT lose hair or get nauseated. Metallic taste in the mouth. Dates: March and April of 2013
Oxaliplatin infusion; Leucovorin infusion; Fluorouracil continuous infusion pump.
2 low dose chemo sessions. Became immuno suppressed
5FU and cisplatin 12/2016 for 4 days. Hospitalized due to toxic overdose of 5FU. Oncologist did no give me the DFD test because he didnt believe in th test, hi negligence nearly killed me.
preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU.
Too many chemo regimens and drugs to count. At present, I am on Xeloda, Herceptin and Avastin. One drug was damaging my liver, but okay now. Herceptin was damaging my heart, but it is okay now.
Carboplatin/Taxol, continuous 5FU drip March/April 2008 Taxotere July/August/September 2008 Cisplatin January/February 2009
Ended in Nov 2013. Chemo: Memory loss Radiation Side effects: Loss of bone density resulting in back pain.
Carboplatin and Taxol for 5 rounds. No side effects at all except tired on day 2 & 3 post treatment day. Tolerate chemo well.
june 13 2011. no side effects yet
Sysplatin that almost killed my it caused my kidneys to shut down. I cause me to become completely dependent on others. I didn't spell the Chemo right but it sounded like that. I don't know what the fed me after I was released from the hospital.
chemo from 2/98 through 9/98
Carbo-taxol once a week for 5 weeks

Tonsil Cancer Chemotherapies

What Tonsil Cancer Survivors said about their Chemotherapies.

Chemo coming up
Chemotherapy (Cisplatin) Treatments January 14th through March 4th 2013
For details see my posting.
Cisplatin. Lots of nausea. Some hair loss.
Chem with Cisplatin, taxotere and 5-FU in pump.
Carboplatin and taxotere,first treatment went well without much side effects. Look forward to the others.
Cituximab Loading dose March 13th, High fever and severe headache. Second of 8 treatments March 21st. Only side effect was severe heartburn.
Six chemotherapy treatments concurrent with radiation.
soon to start either Cisplatin or Erbatux
Erbitux (cetuximab), loading dose 25 Jan, caused mild temp and nausea, then no similar effects during the 8-week course of treatment. Significant skin effects (acne, painful splitting of skin on fingertips, toes, and heels). No real nausea, vomiting, or diarrhea caused by the Erbitux.
3 Chemo treatments 2 weeks apart
6 low-dose cisplatin treatments, one every Monday for 6 weeks. Felt great; actually took away the joint pain I experience from Lupus!
10 weeks of 2 chemo drugs per week
Begin Erbitux treatments February 13 2012 and finished on May 2nd.
Starting march 12 2009
February 25, 2011 - Cysplatin (Cisplatyn) I don't know 4 of 8 weeks only as it ruined my throat way early and did it's job - according to the dr.
Ciplatin 3 megadoses 3 weeks apart concurrent with radiation
GREAT NEWS!!! No Cisplatin treatment!! Only going to use Cetuximab! which means I will not be getting all the side effects of Chemo type treatments!!!
3 heavy dose (8 hours each) chemo. sessions.
Started Treatment on May 24,2011... last Chemo July 5, 2011... hair thinning, but no sickness
Started treatment April 29: cisplatin two double doses - didn't do third dose due to ear ringing, had to take a booster shot after second treatment due to WHC crash. Side effects: ringing ears, nausea (but controlled by Zofran so not a problem) Other things: acid reflux developed quickly (not something I have had in over a decade - controlled by prilosec on advice of oncologist) and constipation from zofran (controlled with miralax and glycerin capsules and lots of water)
Cisplatin - I was sick every day. Had to take anti-nausea medicine every 2 hours.
Cisplatin & Erbitux 1x/week, amifostine injections 5x/week 20min prior to radiation.
Begin weekly Erbitux 9/10/13, Cisplatin/5FU 5/14, CarboTaxol 7/15
3 doses of Cisplatin.

Mesothelioma Cancer Chemotherapies

What Mesothelioma Cancer Survivors said about their Chemotherapies.

carboplatin, alimta 8-27-09
Once every 3 weeks from Feb - April 2020. Extreme

Endometrial-Uterine Cancer Chemotherapies

What Endometrial-Uterine Cancer Survivors said about their Chemotherapies.

INITIALLY TOLD NONE NEEDED 7/6/09 MY DOCTORS REISDENT CALLED AND SAID NONE NEEDED BUT AT THIS POINT I DO NOT TRUST MY DOCTORS AND WILL SEEK NEW HELP SURGERY 8/6/09 REMOVAL 27 NODES NO CANCER...SO NO CHEMO WILL BE NEEDED
Chemo start date 7/15/09 - Doxil infusion with Ativan and Compazine every 21 days...that was "potponed". Chemo, once started, was be Doxorubicin and Ifosfamide - 4 days of 24-hour infusions. Mom was having delirious thoughts from the chemicals, they took her off of food - the doc said she "had enough fat on her" to get by without food. She was in and out of sleep from the sedatives in between chemo.
First round of chemo on 7 May 09 Second round of chemo on 1 Jun 09 Third round of chemo scheduled for 21 Aug 09 My doctor is using a new "sandwich" approach to treatment. 2 rounds of chemo > then 25 days of radiation > then 2 more rounds of chemo. This is new and apparently works better than all chemo then radiation. I am in control and working to erradicate the cancer via chemo and radiation.
CarboPlatin & taxol w/ neuplasta at 3 wk intervals from Aug to Oct Severe constant leg pains, neuropathy in feet and hands, high heart rate. Unable to stand for more than 10 minutes, stumbling, dropping things regularly Treatment changing to CarboPlatin & doxil w/ neuplasta.
felt sick all the time, metal icky taste, neuropathy, ruined joints >:( bone pain
in process some fatigue, chemo mouth, diarrhea, headache, vertigo, not too bad. Chem mouth (mucositis) was the worst effect so far but Magic mouthwash helped clear it in a few days.
5/2010-tired, nausea 10/2014-tired, nausea,low blood countsand turned into mds 12/9/2015 start cgeno with doxil after mds in remission
Nausea, Constipation
Every week on Day 1 & 2 and Day 8.
Lost hair not much else
Carboplaxin and taxol 6 x's Jan to May 2016. Side effects: loss of hair, anemia, low WBC, low platelets.
Chemotherapy November 2014-April 2015. Hair loss, neuropathy in feet, achy joints.
4/17/15 Allergic reaction to Emend and Taxol
Start in mid October.
Chemo 6/21/10, 7/12/10, 8/2/10, 8/24/10, 9/14/10 - nausea, fatigue, bone & joint pain, diarrhea, neuropathy; scheduled for 1 more round
6 rounds of chemo; every three weeks March - June 2014; few side effects; some joint and bone pain for a couple of days after each treatment; some neuropathy in my feet
None required
6 chemotherpay treatments. Cisplatin for 2 and Taxol/Carbo for 4. Stomach nausea,bone pain after Neulasta shot, constant dehydration, tired all the time & neuropathy in feet.
My symptoms became SO much worse after chemo: Pain, nausea, vomiting, mouth sores, chemical taste in mouth, fatigue, weight loss
currently doing carbo/taxol every three weeks. Extreme fatigue, muscle aches, taste changes
little queasy tired bald last one nov 5th 2010 yesssssss!!
Cyclophosphamid Carpoplatin Taxol
Chemo came after radiation the first time, chemo only the second time, radiation only the 3rd time. Allergic reactions to almost all the drugs tried, but that was the second time. The ones that I didn't react to made me very sick, so I'd go in to be hydrated the day after chemo since I was unable to do that at home. It's hard to eat and drink when you're asleep. Another side effect of the drugs and certainly the pain killers for me.
intravenous chemo from Septemeber 2018 to January 2019
I have had two rounds of chemo, and the next will take place on Jan 31, 2012. After that, three more rounds!

Sarcoma Cancer Chemotherapies

What Sarcoma Cancer Survivors said about their Chemotherapies.

Temodar and potentially IV Chemotherapy
Doxorubicin Cisplation Methotrexate Ifosfomide Etoposide
AIM Chemotherapy, 3 cycles, inpatient in hospital for 5 days each cycle, started on 16th May finished on 1st July. Side effects, hair loss, chronic diarrhea, piles, sore mouth, tiredness.
IE and VAC treatment every 3 weeks. Lost weight and all my hair/ body hair
Currenly going through Ewings Sarcoma protocol for Chemotherapy. 14 total cycles.
Had AIM protocol (Adriamyacin, Ifosfamide and Mensa) for all of 2007, then in 2010 I had Yondelis, a clinical trial, also for a year. The AIM made me lose all my hair, had frequent need for transfusions of blood and platelets and I had many infections. The Yondelis did not make me lose hair, but the other side effects were the same.
Chemo not a proven treatment for my type of cancer
Chemotherapy lasted from July 2010 - August 2011 His chemotherapy consisted of Vincristine, Doxorubicin, Cyclophosphamide, Ifosfamide, and Etoposide. Some vomiting and lots of nausea.
Adriamycin Dec 14/15 on going
Multiple regimens
Currently going through chemo... some of the side effects that I am experiencing are mouth sores, and sore GI tract. Definite tiredness, lunula turning black, of course hair falling out, complete loss of taste buds and smell during chemo but fine after.
Gleevec, vomiting, diarra, swollen eyes and ankles, cramping in hands feet arms legs, fatique, from 10/19/07 till 5/2013. Didn't work for me after awhile.
Cisplatin usual side effect after two months still have mouth spares, hard to swallow, tennitis, loss of hearing.
Chemotherapy started on 20th Dec 2008 and I chose to stop in June 2009 (I was meant to finish in Nov 2009, but when I found out my tumor was no longer shrinking, I physically could not deal with the side effects anymore). I lost my hair, which was by far not the worst side effect! Mouth sores, lost my sense of taste and smell. Horrendous constipation. Nauseous most of the time. Not able to eat. So completely exhausted, not even energy to stand up some days. Felt extreme cold, then major hot flushes, wake up drenched in sweat. Eyes always sore and watery. My chemotherapy was every 3 weeks, which took 5 days in hospital to administer IV - then every month when home I would spike a massive temp & have to be rushed into hospital for blood transfusions and isolated for neutronpenia! Chemo turned me into a shell of my former self, it destroyed my spirit and had me in tears most of the time. It was a hard, hard fight.
Had only 4 appointments for chemo. Hair falling out. Nausa.
I have Chemo once a month. The Chemo caused the whites of my eyes to turn Fire Engine Red. It was a reaction that none of the nurses had ever seen. I was given IV Benedryl. The dose of the medicine knocked my butt out. That was my first treatment on May 21, 2012. I was set for 3 treatments. My Oncologist was not sure if the Chemo would work to begin with. Within the first treatment I could tell a difference. I was amazed. I could actually feel the mass and it was smaller. So, Dr. M ordered another 3 treatments for a total of six. I lost all my hair, eyebrows and eyelashes. Hey, they will grow back one day. I don't mind. I love all the scarves and hats I have bought and been given.
Chemotherapy to start in 2016
Chemotherapy started in September 2011 and continued every three weeks either daily for a week, or a single day dose of VAC - crappy crappy side effects, where do I start......numb finger tips, constipation, hair loss, loss of taste buds, thrush in mouth, lack of concentration, sooooo exhausted after each dose and weeks later. It is very true that the chemo is so much harder than the cancer to deal with.
On year of chemo. Chemo brain. Short term memory issues

Parotid Cancer Chemotherapies

What Parotid Cancer Survivors said about their Chemotherapies.

Adriamycin and cytoxin. 11/03 so sick with vomiting till meds were figured out. Lost 50 lbs. Taxol 1/04. Sick Rituxan 5/13 no effects used for platelet issues Taxol 5/16 with experimental drug

Skin Cancer Chemotherapies

What Skin Cancer Survivors said about their Chemotherapies.

Photo Dynamic Therapy for any AKs... skin checks every three months

Throat Cancer Chemotherapies

What Throat Cancer Survivors said about their Chemotherapies.

Dry Mouth. Lost body hair, Sick at stomach, weight loss.
1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss) 2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment. 2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course 2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course.
May 7, May 14, May 24. (Now scheduled for June 1, 8 and 15). Side effects are fatigue and nausea. Taking anti-nausea meds. Worst part is we can't keep enough fluids in him to flush out the toxins due to chemo. We're told this is more common in throat cancer where food and fluids are taken through a feeding tube. Starting to lose patches of hair.
Ringing in ears
It seems that my side effects (nausea, tiredness) start a couple days after treatment. Emend and Zofran seem to be helping.
Chemotherapy due to start 6 weeks after surgery, September 2016
Start November 29, 2010. The drug was erbitux. No side effects with the weekly treatments except for after weeks four and five. After treatment I immediately had chronic chills and shakes in which I was given an injection of demorol and had to lie down for an additional hour until the effects subsided.
3 during 6 week radiation treatment (beginning middle & end.
Feb 14, 2011, Cisplatin, slightly tired immediately following treatment. March 7, 2011, same as treatement number 1. March 28th, 2011 - TBD
Erbitux. Loss of hair, lesions on my hands, scab around my neck, vomiting, etc.
Months of daily treatment with both Cisplatin and Herbitux -- major side effects included a rash that covered me from head to toe, skin that was so dry that my scalped split open and bled when I vomited (which I did several times each day). Further side effects included hallucinations, tremors, chills, hot flashes, disturbed sleep patterns, fever, loss of hair, etc.
Erbitux (Cetuximab) taken, due to success with HPV-16 related cancers. 7 infusion sessions, starting one week before radiation commencement. First session gave me the worst headache of my life, terrible chills, fever, nausea (but only brief vomiting) and profound weakness. Started about 7 hours after treatment. Subsequent sessions have had less impact; primary complaint being weakness and fatigue. Blistering rash encompassing head, neck, shoulders, chest and back. Very itchy and painful. Appeared by second week of treatment. Now in 4th week, the pustules have subsided somewhat, but lotions are essential to keep the skin peeling controlled.
February - June 2009 Taxotere Cisplaten 5FU
Three rounds of Cisplatin - nausea, metallic taste and tired

Tongue Cancer Chemotherapies

What Tongue Cancer Survivors said about their Chemotherapies.

Three Cisplatin chemo doses, Jan 4, Jan 26, Feb 16. Never got the Feb 16 dose as I was too sick from throwing up.
second form of chemo 3 more weeks, no side effects
A 2 chemical soup every 3rd Monday and then a 24/5 fanny pack pump the same week as above. I have 1 week on and 2 weeks off treatment
For me Chemo was much easier than Radiation. Cisplatin and 5-FU 24/7 for which I was hospitalized. I refused my last chemo treatment because I was too sick, and honestly I thought it would take a lot more than chemo to save me from this beast called cancer. Yet I survived and have for the last 20 years.
Set for July 6 and July 21
No chemotherapy.
Cisplatin - will start in Oct. 2021.
I started the chemo the frist week in July 2010. I had a reaction to the first chemo which was Carboplatin and taxol so they changed it to Cisplatin and taxotere. They loaded me up on steroids and during the next treatment i had yet another reaction this one only worse than the first. So as a last ditch effort they changed again to cetuximab and honestly i cant remember what the second one they gave me with this was. I was ok with this drug but the side effects were aweful! I broke out all over my face with horrible acne and it made the radiation stronger which made the raidation burns worse.
Chemotherapy to be given concurrently, once a week. Began on 8/23/12.
Only 5 of 6 Cisplain treatments given because of so much nausea. Hospitalized for nausea and given extra intravenous fluids bags 2-3 weeks separate days from the chemo infusions.
3 bags of cisplatin
Do not know yet if I will have to go through Chemotherapy.
Cisplatin 2007. I was one that had the carotid do it's number, so have permanent heartbeat in my ear. Sometimes loud and intrusive, very loud and intrusive when I am lying down trying to sleep. This too conversation, Chemo and Radiation were simultaneous. It was a dark night of the soul. Burnt skin, inside the mouth and outside. I lost over 60 lbs in less than 9 weeks. Dehydrated, diarrhea, high irregular heartbeats, constipation, impacted, and the list there too goes on.

Hodgkins Lymphoma Cancer Chemotherapies

What Hodgkins Lymphoma Cancer Survivors said about their Chemotherapies.

ABVD Six months
ABVD Chemo every other Tuesday 12 times.
ABVD for 6 cycles (12 treatments). Was quite well tolerated, tired for a few days after, hair loss, mild nausea but no vomiting, changes in bowel motions, mild rash on feet and arms, aching veins. MADEC (methotrexate, cytosine, dex, etoposide, cyclophosphamide) for 2 cycles, one week of chemo in hospital, 2 weeks to recover then repeat. Fatigue, mild nausea, hair loss. BEAM (carmustine, etoposide, cytosine, melphalan) prior to stem cell transplant. Have only just started this today, had carmustine and so far all good but I know this will change.
started chemo in 2010 6 months on an off, finally had stem cell transplant at Mass General Boston n March of 2012 remission lasted one year :(
Started Chemotherapy (ABVD) on 30th March 2010. Found that the side effects of consist of bad heartburn & indigestion for a few days after chemo. My hair started to fall out about two weeks later and has slowly been falling out ever since, but not bald yet! Have had to give up fizzy drinks and spicy food, two thinks I enjoy. Unfortunately they cause uncomfortable consequences, like bloating, passing a lot of gas, nausea, heartburn, the list goes on.
AVBD March - October 13 the usual; ESHAP December 14 - January 15 the usual; BEAM 200 March 15 the usual
Stanford V regimen - Weight gain, constipation, fatigue, hair loss.
ABVD chemotherapy, treatment every two weeks for six months (6 cycles). Extreme nausea and vomiting (eventually brought under control by drugs), fatigue and breathlessness, stomach pain and bloating, complete loss of hair, tooth pain, mouth sores, extreme salivary gland pain, loss of some finger and toe nails, mild nose bleeds, mild constipation.
ABVD regimen. First session was one day after diagnosis. #1:05/20/2010, #2:06/07/2010 (delayed by neutropenia), #3:07/01/2010 (delayed by neutropenia). Side effects: Hair loss, negligible neuropathy.
6cycles of Chemotherapy was planned that is a six montha duration.ABVD doses was induced in every fifteen days through veinflow during the first 3 cycles and later through picc line which was less painful. Side effects of chemo were many starting with gastritis, acidity, nausea, body pain,hair loss,fatigue...but this would be fine within a week after wbc count increases to normal level.
Abvd every other week.
ABVD 08/22/2014: Fatigue, jaw pain, swollen tongue/mouth, loss of taste, hiccups, sneezes, mood swings/anxiety attacks, bone pain, constipation, some nausea, loss of appetite, decreased white blood cells & fevers (resulting in ER visit & week-long hospitalization). ABVD 09/18/2014: Fatigue, hiccups, intense bone pain (pelvis & back), jaw pain, swollen tongue/mouth, loss of taste, emotional, loss of hair. ABVD 10/01/2014: Fatigue, painful bowels, jaw pain, hiccups, mild night sweats, bone pain, difficulty sleeping, mood swings, nausea, joint stiffness, mild skin rash, constipation & severe abdominal pain, decreased white blood cells & fevers (resulting in second ER visit & week-long hospitalization). ABVD (w/20% strength reduction) 10/15/2014: Fatigue, jaw pain, swollen tongue, loss of taste, bone pain, irregular bowels, some constipation, gassy, hiccups, mild night sweats, heart burns, sneezes, difficulty sleeping, mood swings
Chemotherapy from August 2006 - September 2007. Some of the chemotherapies were ABVD, ARA-C and carboplat. Side effects experienced were hair fell out, constipation, low white blood and platelet counts, nausea, vomiting, pain in joints.
Chemo ABVD for 6 months. Treatment every other week. 4-11-16 first chemo. Tired, constipation, weak knees-falling on steps 4-28-16 second chemo. Tired, extreme fatigue, hair loss started, bad headaches, back of neck pain, blurred vision in one eye, hot feeling inside.
Started 6 cycle ABVD treatment on 8/16/11
ABVD, hair loss, night sweats, depression, low white blood count, prone to bacterial infections.
Clinical Trial-see below
Started ABVD November 20th~ a little nauseous, headaches, and a little tired..
28 day cycle. Chemo on days 1 and 15. 6 cycles or 12 treatments
ABVD May 2008-October 2008 ICE January 2009-March 2009 BEAM April 2009
Delayed until I deliver my baby.
I am having ABVD. Side effects: nausea, fatigue, hair loss, constipation, bone pain, fever, infection...
ABVD - six 4-week cycles (June-November) Prednisone Procarbizine
I had chemotherapy for the first part of 2014 and now I am back on ice and chemotherapy with a test drug for 2015
ABVD chemiotherapy, hair loss

Acute Lymphoblastic Leukemia Cancer Chemotherapies

What Acute Lymphoblastic Leukemia Cancer Survivors said about their Chemotherapies.

Although I am 23, I am receiving the pediatric regimen for ALL. This involves 2 and a half years of chemotherapy. The first 8 months are pretty intensive and then I enter the maintenance phase. Side effects of the chemo have widely ranged throughout different cycles. Extreme fatigue, nausea, headache, joint pain, intestinal issues, mouth sores, and the infamous hair loss.
I'm getting three chemo a dont know what they're called but they all make me feel like crap. But whatever makes me better I guess. Fatigue, sick, swollen ankles, sensitive skin, pins and needles in finger tips. Bowel movements slow down. But speed up after a while
Started induction chemo within the first week of November. Integrating it with holistic therapies
started Feb. 26, 2010 I was admitted to hospital every 3 weeks for a total of 6 rounds of treatment - Cycles A and B.
Hyper CVAD Protocol 6/1/2015-2/7/2016 including spinal chemo X 4
currently undergoing HYPER C-VAD
Started chemo once my pneumonia was under control which took 3 days after I was at the hospital(4/4/10 was start date). While in the hospital for a month getting very strong drugs I didn't have any sick-feeling side effects and ate like a horse. I did however lose a lot of muscle mass and after a bit I was barely able to walk and there were occasions where I passed out for various reasons and wasn't able to get myself back up. But I was on 150mg of prednisone at 7am and 7pm each and every day and the side effects from it were awful and probably the worst part about my hospital experience as it made me feel very strung out, nervous, antsy, you name it. Towards the end I started to feel as if I was starting to lose my mind which was more than likely just a chemo brain effect. However after my primary induction was over at the hospital, side effects became more prevalent doing chemo 5 days a week from May-July of 2010 where I passed out, god very sick, could barely eat, had no energy, was extremely depressed but that put me out of my second phase and into the long part, maintenance. I got to come home for maintenance which wasn't possible for the other treatments due to not having any blood cancer specialists where I live, but my doctor personally knew many of my doctors out of state and was who sent me to the group of doctors that he did. I was almost constantly vomiting, Intense chronic pain in my lower back, legs, shoulders, hands, feet, and various other parts of my body. Now I'm chemo free for two years from 2/26/13 but I still have very bad physical issues as well as PTSD, Depression, General Anxiety and other mental health related issues.
finished with induction therapy, now gonna begin with consolidation.
October 2010 - current; Unfortunately, I've had nearly every side effect from chemotherapy.

Bile Duct Cancer Chemotherapies

What Bile Duct Cancer Survivors said about their Chemotherapies.

HAIC 24/7 for two consecutive weeks of constant flow chemo delivered directly to the liver. Every two week chem, alt two weeks pump is filled with Saline. NO Side Effects
begin chemo 11/30/16
iam a nice girl loking for man
On my second round of 2 sessions each which are a week apart
Weak, loss of appetite

Leukemia Cancer Chemotherapies

What Leukemia Cancer Survivors said about their Chemotherapies.

January 6 2014 and February 15 2014

Myelodysplastic Syndrome Cancer Chemotherapies

What Myelodysplastic Syndrome Cancer Survivors said about their Chemotherapies.

too many to remember
Vidaza 5 day cycle once a month, side effects weight loss, erythema nodula,hair loss(slow), nail discoloration
rituxan, vidaza, and revlimid

Appendiceal Cancer Chemotherapies

What Appendiceal Cancer Survivors said about their Chemotherapies.

Fluorouracil (5-fu), Oxaliplatin, Avastin, leucovorin. 1/15-3/2? Side effects - Extreme fatigue, nausea, cold sensitivity, neuropathy
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