Ann - It's all changed  c. Diff, nah.... Sepsis.... Nah.... Infection YES.... Problem without a question of a doubt...... damn friggin fraggin barbaric radiation oncologist he fried my pelvic area. i have no control, if I move, breathe in, flood gates open solid back gosh awful, breathe out, same flood, I'm afraid to move or breath. When it leaks, they have to change me as my skin is breaking down almost 2 friggin fraggin years after brutal radiation. chemo is no longer in my regimen. Our mission now …More…
Type: Anal Cancer

Frank - Who am I kidding?  I could not wait twenty four hours and went to my doctor as I had to pick up a prescription and I asked the nurse to explain to me what was up with my bowls as I wasn't going to test my ability to sit with the unknown because what if the unknown was cancer???? I would be able to take some action on my behalf as we all do, which I did today and lucky for me it isn't …More…
Type: Anal Cancer

Linda - This one's for Helen - The Poop Whisperer   Happy birthday Helen Marshall!  And in true Helen-fashion, a favorite gift: a poop joke. …More…
Type: Anal Cancer

Ann - ER update   Update ER I was admitted, I’m one sick puppy. What we know right now is the I have sepsis, c.diff, 7.7 hemoglobin ( transfusion on the way). What has me concerned the most is that my platelets are at 39,000, that’s the lowest they have ever been. I’m very tired.   …More…
Type: Anal Cancer

Lauraanderson - Duh! Finally found all your wonderful blog posts!  Thanks so much for your encouraging words and helpful tips, many of which I hadn't thought of.  I am in Oregon, Eugene, to be precise, and we only have one "cancer center" here, so my oncologists were "chosen" for me by the surgeon who biopsied the "cyst" (ha - that's what they call a tumor when they don't want to freak you out).  I'll ask about the experience of my respective oncologists with anal cancer.  Kim, who is on this …More…
Type: Anal Cancer

Frank - Erthyematous Mucosa In The Signmoid Color . . .   I am very grateful that, at this time in my life, I am not in pain, I am not in fear and as far as I know am NED.  I feel strong empathy for everyone who is feeling pain and fear and the not knowing, those times in our joureney where we have to wait and sit and be patience while waiting for an outcome or for the pain medication to kick in.  For all of you who are reading this and …More…
Type: Anal Cancer

Nathan - 7-17-17 Surgery, not so fast.  Well yesterday was surgery day.  It was to be the highlight of the week.  We had finally selected a surgical team that we felt was the best for my wife's cancer.  We had hope and was even feeling confident about getting bowel hooked back up after the rectal resection.  Finally a chance to play offense and not defense in this game.  Last Weds. we received the results of a CT scan.  It showed some supicious spots on the liver, this caused …More…
Type: Colon and Rectal Cancer

Ann - At the ER.. Listened and heard every word Linda  At the ER.. Listened and heard every word Linda,will update as I know more. real reason not wanting to be here, is that fifteen years ago on this day 07/18/03, my dad took his last breath in my arms at 11/30 pm …More…
Type: Anal Cancer

Gail - uncommon symptoms  hi i am so sorry i have not been diagnosed but i am pretty certain i have non hodgkin lymphoma, was wondering if anyone else had any of the following sypmtoms, itchy lumpy scalp, feeling of something crawling out of my ears and nose,sollen ankles, very painful itchy back with blister like spots that bleed easily, similar blister like spots on chin which are very swollen, skin gone saggy and not elastic on right side of face and a few …More…

Stefanie - Two years later...the end of maintenance!  Today marked my last day of immune therapy!  Happy dance over here!  I got a new certificate and song from the oncology nurses, they are so awesome.  And got my PET scan results back, still coming back with a complete metabolic response.  Couldn't ask for a better outcome.  One of my favorite oncology nurses is now pregnant, a great reminder that life goes on and there are little ones to cuddle.  In a week, when I can have a drink, I …More…
Type: Non-Hodgkin Lymphoma