Katherine - What is my future?  This is the first time I've participated in this format. I have found limited detailed information on what living with stage four ovarian cancer is like. I am the kind of person who likes to be prepared, to know what the possibilities are so I can make plans to deal with what comes up. I'm struggling with the fact that there are so many variables and so few definite answers. How does this disease progress? What kind of future am I …More…
Type: Ovarian Cancer

Nik - How much is too much?  I finished chemo and radiation about a month ago. Phew! Soon after that I was given a CT scan. That was clean. Now my oncologist wants to give me a scan every 3 months for 2 years. From reading the posts here, what she's suggesting seems to be far more often than what other doctors are doing.  Not only do I fear the radiation exposure (especially since I've received plenty already) and secondary cancer, but the scan anxiety is overwhelming. I …More…
Type: Endometrial-Uterine Cancer

Ann - Long time.....  Hello All, Yes, it that it's been far too long since I posted on this blog.  Last I wrote I was just before I started treatment in Mexico.   The reason I haven't written is that it was quite the 'rollercoaster' ride over the past several weeks.  Unfortunately, as some of you know, I became very ill around mid April....a confounding factor due to some heart medications that were wrong for me.  Long story short, it took me a few weeks to …More…
Type: Breast Cancer

Billea - PET Scan Time  Time has flown by! Think of y'all often and hope everyone is good. I was waiting to post until after my pet scan. Had it on the 21st and got the all clear! 🎉Year and half out from my surgery and doing better than ever. Busy working, kiddos, and counting my blessings. So good to check in and see how everyone is doing! God bless everyone and hope you all have a very happy 4th of July! 🇺🇸 …More…
Type: Pancreas Cancer

Neal - NCI Article, Read, Learn, Keep Reading/Learning  So, call me ignorant okay? I know so little, and there is always soooo much more. After going to this conference in Washington, and wanting to list out all the possible cancer types...I went to NCI's site and found this article. I thought it very interesting and indicative of how things are going, and also, how ahead of the curve PCAN is and how influential their work has been for all cancers. This article highlights how type of cancer cell, not necessarily …More…
Type: Pancreas Cancer

Ann - Nice to be home.  it was so nice to come home and sleep in my own bed. I was pretty exhausted, I had such a busy week.  I slept like I had not slept in a month. Thursday, I stayed in bed, Rick kept calling and got really concerned, I was talking nonsense, like did the plumber pay him $20 to fix our faucet or was that him who just drove around the block in a united ship container? I ate very little and did not drink much, …More…
Type: Anal Cancer

Neal - Trametinib (brand name Mekinist)  Trametinib | Chemotherapy Drug Information | Chemocare.com  nmitchk to youshow details Sharing this link with you from Chemocare.com: http://chemocare.com/chemotherapy/drug-info/trametinib.aspx I will tell you that all I know about this drug is that it is a targeted therapy. It works by getting inside the cancer cell and disrupting its replication. You can read the details with the link, also national cancer institute comes up with info when you google the drug    TRAMETINIB ....which is generic name..........       and brand name ....MEKINIST......... I met a man who tried …More…
Type: Pancreas Cancer

Brandon - Wow. I haven't updated in a long time. Sorry folks  A lot has happened since my last update. Last year in September I grew myself a nice sized brain tumor. I had to go to the emergency department since I couldn't communicate, had horrible headaches, vomiting, losing vision in my right eye. Got to sit in the neuro ICU for a weekend waiting for my surgery. I feel I've recovered fairly well, I don't seem to have too many permanent effects. Just some trouble remembering words and my memory is …More…
Type: Melanomas of the Skin

Neal - I Love Cyrano De Bergerac, Analysis (Love &Beauty)  Some of this is borrowed from thought.com. The end is all mine. It is all about love. Romantic love. Love of wit. Love of words, and tempo, and a soul that is good and pure and well meaning. It is all about love. Outward appearance, and inner beauty. You must look it up on you tube, because to truly feel the magnificence of this scene, to feel the full impact, you need to hear Hose Ferrer brilliantly speak the lines. Edmond …More…
Type: Pancreas Cancer

Neal - PCAN Advocacy Day, Washington D.C.  June 20, 2017 Approximately 650 to 700 family members, current patients, and survivors of various lengths of time attended Pancreatic Cancer Advocacy Day in Washington, D.C. on Tuesday, June 20. I was with them. (Most arrived on Sunday June 18, and Monday was a training day, learning what to say, and not to say, to our representatives). And, let me tell you, it was overwhelmingly moving to be among such a group of passionate and compassionate people. Survivors that attended were post-diagnosis ranging …More…
Type: Pancreas Cancer