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imageJoannec - Mantel Cell setback  Hello everyone. its been probably a week or so since posting. Let me remind you I was diagnosed with mantle cell lymphoma. I hada severe reaction when they tried to give me the rexatun cocktail. My blood pressure reading could not be raised over 60. After virtually putting my head down and my feet up for quite a long time while applying oxygen to me they eventually got my reading up to 100. I can remember feeling flushed and not …More…

imageRoderick - Oncology review  Hi friends, I had been for my oncology review yesterday, all my blood tests and CT scan were normal. The oncologist has told me instead of coming every month now I can come for review after every three months. I thank you all for your prayers and blessings. …More…
Type: Colon and Rectal Cancer

imageNeal - from Hair to There  Losing her hair was traumatic.  When her hair first starting falling out, it was as if she was mourning.  There was a psychic or psychological pain that occurred.  I think she felt like she was losing a piece of her self, a part of her identity.  Her image, one she been looking at in the mirror for decades, was changing, drastically changing.   She had long hair since her teens.  The transition was scary.  As her hair started to look sparse …More…
Type: Pancreas Cancer

imageProuddaughter - Would like to share a moment  Hello to all of the wonderful people who are here! My hat is off, for I know this is not easy. I do want to share a story, especially for those who are new, just finishing treatment or who are supporting their loved ones through this journey. I will make this short (for I can go on for hours). To make a long and inspirational  story short. Mom diagnosed at 78 years young (mid 2013) with stage 3A anal cancer 5-6cm. Had gone through standard …More…
Type: Anal Cancer

imageStefanie - Two years  February 24, 2015 I was officially told I had cancer.  They had told me they suspected cancer before hand, but I had to wait for the biopsy results for the official diagnosis.  I am surprised that two years has already passed and at the same time it almost feels like it happened to someone else sometimes.  I had my bi-yearly scan last month, still all clear, and I am very thankful every time I hear those results.    Life has changed …More…
Type: Non-Hodgkin Lymphoma

imageLaren - Hanging in there  We managed to get an 8-week break over Christmas and used it to travel to see some old friends and a few fun destinations. The kids and grandkids were here, which was great. Emsnana managed to recover from her fatigue, and we had a marvelous time with our friends and grandchildren. Of course, we watched her CA19-9 climb gradually, and when it reached 129 the team decided it was time to go back on Gemzar. We hope we will continue to …More…
Type: Pancreas Cancer

imageNeal - bits and pieces as they come to me  the writing seems to help and I know that when you read this…..It helps keep Emilee alive in our hearts…..and she is smiling…..that's all i need for the moment some stuff I left out when I wrote about Emilee's journey..... the ongoing battle with dehydration..... numerous times at the emergency department for one symptom or another that was rooted in being dehydrated.......needing fluids …when in doubt about why one is having the symptoms they are having especially after chemo, suspect dehydration.  …More…
Type: Pancreas Cancer

imageNeal - favorite sunglassesfavorite sunglasses
Type: Pancreas Cancer

imageAnn - Stop it... I can't take anymore.  My address per popular request: Ann Folk     1404 Waccamaw Dr.    North Augusta, SC 29841 Life keeps banging on our door, what are we going to do??? What's next?? What else can come our way?? We just confirmed  Rick is having major resection colon surgery March 7th, he will be hospitalized for 4-7 days and unable to work for 4-8 weeks. No work does not pay the bills. I am trying not to think about it, I can't sleep and have no appetite. This was not …More…
Type: Anal Cancer

image1 Very Palpable Hit - Long Overdue Update!  Still here! So, my blood marker was WAAAY up in October - like, more than double what it had been at its height - will no mass effect showing on any of my CTs or brain MRI.  Huh.  So, Dr. W, my life-saver, got me to start a maintenance therapy designed for people with recurrent, platinum-sensitive BRCA-mutated serous epithelial ovarian cancer. Yes. For people exactly like me. Only, in my case, it would not be preceded by chemotherapy. Three months later, my …More…
Type: Ovarian Cancer

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