April - It's been awhile  So.... I've been avoiding posting.  I don't know why.  I've been reading other's posts and sending punches but for some reason just can't update my own life.  I think it's because my own life has returned to almost normal and I just don't want to be in my cancer world.  My fitness is fantastic, I'm feeling great, I have a tonne of energy and I have a cool purple streak in my cute, curly short hair.   I find it hard to …More…
Type: Non-Hodgkin Lymphoma

Neal - anyone having problems editing within your post?  the orange cursor that comes up when trying to edit ...maybe it is just on my phone.... okay so nevermind.... it is just my phone...great ......lol....... well....okay...wait a second......then is anyone else having that problem with their phone? is it just my phone, or is it the program when using any phone? ahah.... i knew I had a question in here somewhere.......anyone else having an issue with this program when using their phone????????? LOL and no, I am not drunk or …More…
Type: Pancreas Cancer

Neal - POEM - As I Sit In Heaven  Much of this is author unknown, an online friend who lost his brother a few years ago posted it, and I added and rearranged just a little to make this into a song, but much of it is intact, so I can't take much credit for it, other than the putting it to a tune. AS I SIT IN HEAVEN   As I sit in heaven And watch and see I know with every breath you take You take one for me   Do you feel me, I …More…
Type: Pancreas Cancer

Sharon - My Port in the Storm  I am sitting in my recliner.  It is 2 a.m. And I can't find a comfortable position for sleeping because I had my port put in on Friday and I am a side sleeper.   The adhesive on my bandage is itchy and no matter which side I sleep on, it aggravates the surgical site.  Ugh!  So what do I do?  I come to this blog for reassurance and to know that I am not alone in this.  This blog …More…
Type: Non-Hodgkin Lymphoma

Mary - My big boy
Type: Breast Cancer

Joelhughes - Writing a Book - Need Your Help  Hello Friends,  I am working on a book titled "How To Really Help Your Friend Who Has Cancer".  I need your help. After my wife, Rebekah, was diagnosed with stage four breast cancer two years ago, we had some very helpful friends and some not so helpful friends, some even harmful.  Can you share with me some of the things that friends and family did for you that were very helpful and that ministered to you?  They can be very simple things, which …More…

Donnie - 6 1/2 Years  I was going to write some line to write into a long one but I won't. I have turned 30. I miss my father every day but I don't think about him everyday anymore. My mother has become very indepedent which is amazing to me. I am dealing with my own issues. Relationships and alcohol related issues. I'm a blunt person. Dealt with drugs but nothing anyone would call hard. My father dealt with probably with probably the worst, "speed" for …More…
Type: Lung Cancer

Cindy - Five years  It's five years. Very happy. Dec will be 28 years for my Hodgkin's lymphoma   Yay!  Celebrating but I'm doing a soft anniversary cause the nasty thing wants to come back.   Hope the cauthering worked. We will see in Jan where it's at with another HRA.  Ct scan is Nov 1.  So hoping this was a good Anniversary. Right now I'm celebrating it is!   I toast to all of you today! You all got me to this point!   Salute ! Love …More…
Type: Anal Cancer

Sharon - I love my family  I love my family and I am so grateful for their love and support.  One issue has come up which Is causing me additional stress.  I have made the decision to move from Watchful Waiting to Retuxin and Bendamustine on the advice of the Oncologist who gave me my second opinion.  This decision was made because  I have Follicular Lymphoma but I also have a  contradiction because twhile the molecular structure is typical of Follicular, there are other cells which are not …More…
Type: Non-Hodgkin Lymphoma

Admin - Lymphoma and Leukemia Patients Needed  Hey guys please see below if you are a Lymphoma or Leukemia patients and want to paticipate in an interview. - Thanks, Jill Hi, everyone!    We’re Shapiro+Raj, a medical market research firm. We’re putting together some paid, web-assisted interviews for individuals with follicular lymphoma nationally, as well as paid study sessions for individuals with acute myeloid leukemia in the Chicago area.   Our Lymphoma study will investigate the patient journey of individuals who are currently facing the choices of treating medical conditions, so that …More…