Jennifer - A day and a half off Xeloda, one day on Lomotil I was told to take a break from the oral chemo after my dose Thursday morning until after radiation on Monday due to the number of times I've had diarrhea, and immodium didn't work. I was prescribed Lomotil to help in place of Immodium.
I'm still having stomach and intestinal pains and cramping, even with the break from the chemo and taking the Rx. Has anyone else experienced this? I don't know what to expect from the Lomotil, in terms of … more…
Type: Anal Cancer
Jennifer - The going is getting rough and I’m not tough. I am very sensitive, emotionally and physically... and I don't like feeling out of control. I feel every single thing.
Before this, for 10+ years, I rarely took anything for pain, and I relied on homeopathy and nutrition plus some supplements, but not often and not regularly.
I have had 10 radiation treatments, and yesterday I was told to stop the Xeloda for a few days to help my intestines heal since I had been having terrible cramping. I also had a … more…
Type: Anal Cancer
Alexa - Caregiver for mother Hello,
My name is Alexa and I am 30 years old. I just moved back home after living abroad in Scotland for the past few years to care for my mom who was diagnosed with anal cancer in July 2023. She just turned 60 (not a fun way to reign in a new decade). She had struggled with diverticulitis in the past and thought she was having another episode early this summer. After a couple failed rounds of antibiotics her PCP referred … more…
Type: Anal Cancer
Toni - Hi Hi. I have not been diagnosed with AC but I am having a routine colonoscopy this Thursday. For the past few weeks I’ve been having slight uncomfortableness or tenderness when have a BM. Actually, it starts right before I go to the bathroom. Almost like a heaviness. As it passes through, it gets less uncomfortable; however, somewhat tender for a little while after. There’s no blood. No mucus. No thinness. No constipation or diarrhea. I have had fissures in the … more…
Type: Anal Cancer
Jennifer - Well, 👋 I am a 48 year old mom of three, ages, 14, 16, and 20… Back in March 2023, I started feeling significant discomfort and all signs pointed to hemorrhoids, but they weren't going away. I went to urgent care, and they said hemorrhoids, but to see a primary care doctor so I could be referred to a surgeon, the appointment with the primary care doctor was four months away, and in the meantime, I went to my gynecologist, who didn't even … more…
Type: Anal Cancer
Khevin - Been too long! I've taken a long break, but just recently made it to my 9 year mark with Male Breast Cancer. I've continued advocating for the cause of course, still adding a few pieces to CURE magazine. Turned 73 awhile back and officially 'retired ' from my long career as a stage magician. It was a bittersweet occasion, but 9 years ago i didn't know if I would be lucky enough to "retire". Picked up the 5-string banjo again--my great joy for … more…
Type: Breast Cancer
Misst - I made it 30 radiation treatments and 2 chemo pumps I made it.
This group is what made me advocate to NOT have a 2 week radiation break that my dr was pressuring me to have! He was astonished I made it though without. Well I had great support!
I now wait to see my surgeon in 6 weeks for an update.
Currently I'm happy and paralyzed with fear, of course the anxiety kicks in.
prognosis was and still is very good
Im resting as my skin has … more…
Type: Anal Cancer
Misst - A quick update on my journey Hi everyone
I have been a bit silent as of late, I'm focusing on getting this treatment finished.
I have 8 radiation treatments left! I put myself on bed rest as my Dr says I'm doing amazing and I don't want to jeopardize that at all.
My chemo is finished, thank god, it has made me very stomach sick but that's slowly going away.
I posted before about a malignant fistula, the radiation has closed that wound up (!?!) I'm not sure if that's a … more…
Type: Anal Cancer
Sterling - Snthroid Delivers - "Part Deux" Well, got my first order from Synthroid Delivers.
Everything seems to have went well and been as advertised.
I guess Abbvie supports the program through Eagle Pharmacies in Lakeland Florida.
Got my order. Shipped FedEx. Order was correct.
Price was literally 1/2 the price I was paying through CVS Caremark. $75 instead of $150 copay.
The only thing that could be improved is that their website is a bit wonky.
One issue was that it showed that I had a prescription, but no orders until I … more…
Type: Thyroid Cancer
Sterling - Synthroid Delivers Has anybody heard of a program called "Synthroid Delivers"?
https://www.synthroiddeliversprogram.com/
It is supposed to provide name-brand Synthroid at a reduced cost. My drug plan penalizes me for name-brand.
This program says it will be half what I spend on a 90 day prescription for the name brand.
Got blood drawn today for just about everything plus a urine sample.
My PSA has been running high among other things...so "we shall see".
Best wishes and blessings to all !
Sterling
… more…
Type: Thyroid Cancer
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