What Tonsil Cancer Survivors said about their Radiation Therapies.
30 radiotherapy treatments starting 7th July finishing 6 weeks later. Grade 3 ulcers in mouth and throat unable to swallow
April 22nd 2008 through June 4th 2008. It's hell. But you're in a blur of misery. A few months later your a better person, grateful for the blessings you have in life. Still working on regaining my saliva.
first three weeks we're a breeze until we hit 4th week. she felt nauseous, blisters in her throat,mouth,and then when we hit the 5th week her skin broke open on the outside. from the bottom of her ears, to her chest. this is from june til july 9th 08
33 radiations finished Oct. 6, 2008
Start date 10/28/08
External radiation 5 days/week.
7 weeks (m-f) of radiation with one week off in the middle of treatment along with one day of chemo every week. Began treatment in Nov. 08
I had 40 days of IMRT from below my cheek bones to above my shoulders starting in September 2006. Around day 25 i developed 2nd degree burns and was admitted to the hospital for about 10 days to recover. A mild case of Stevens-Johnson Syndrome they said. Long lasting side effects are dry mouth and difficulty swallowing.
Starting March 12 2009
IMRT 2009 for Tonsil Cancer (Right side) Second round IMRT 2012 (Left side)
In process of getting everything set up.
yes, 5x/week for 7 weeks...started on 5/19/09
Starting end of March
Had it Twice: Once after the radical neck and again after the radical tonsilectomy
30 days radiation
Started 7 weeks of radiation and 7 weeks of Erbitux on May 11,2009.
Radiation is anticipated to begin the second week in July. Treatment plan will include 35 radiation sessions over a period of 7 weeks.
Started radiaton 7/20/09
Radiation began on 8/31 with 35 treatments to follow.
Radiation around neck area 5 days per week began December 7, 2009 and ended January 28, 2010. Side effects included sore throat, difficulty swallowing, loss of taste, loss of salivary glands, constant dry mouth, and loss of hair all around neck and facial area.
Radiation start date 10/5/09, 35 days total, five days a week
I will start radiation on Monday, October 19th, Monday through Friday for seven weeks.
April 5th, 2010 to May 18th, 2010 Worse thing I ever have been through just awful
IMRT 33 sessions, ended 9/11/09
35 tx every day M-F for 7 weeks
I had my 1st encounter with radiation right before surgery. Then my next was with chemo, and then finally by itself. I had 38 bouts with radiation. Could not eat, loss of teeth, could not swallow, no taste at all, lost 80 lbs before being put on peg tube.
Nerve damage that was painful for several months.
01/07/07 34 sessions side effects facial hair gone no bad thang!! and the one most of us suffer from dry mouth a real pain but hey in the uk water is everywhere isn't it?
8 weeks of IMRT, to the neck and throat area, which caused some burning of the skin and temporary loss of facial hair. Dental issues from the radiation on the gums and teeth. Throat closed during treatment, needed a PEG tube installed for feeding for 5 months.
38 treatments, Burns, Mucus, Hocking, Weight Loss, No Taste, No Saliva
Did excellant from Radiation (33) treatments.
Unable to have any additional radiation with this new diagnosis.
1st one today 26-April-2010 so far so good but I know whats coming. A tad of anxiety at fist bolt down of goalie mask to table to treatment ....not sure why but got a scrip for a happy pill seeing as how I will have this 5 days a week for 6-7 weeks. Radiation was tough lost ability to swallow. had to learn to swallow from scratch not fun was on the tube for feeding for about two months post treatment, pain pills a little tough to kick weird dreams and stuff remember to take your stool softeners when you take your pain meds..........just one thing you don't need to add to your list of things to worry about if you know what I mean. 18 Months out now can eat alot of things now mouth still doesnt open like it did no big burgers or sandwhiches stilll keeping off the 60 pounds I wanted to lose of the 80 i took off 20 put back on for kicks lost too much. Taste is still screwed sweet still gone chocolate well forget that, acidy stuff, tomatoes, spicy stuff, just gone so Ive learned to eat a new way swallowing is still an adventure throat is much narrower for food and even pills, so have to be careful about everything still. But hey Im still here so the rest is worth it. Its not easy its not fun but its life after cancer every day is better than the day before and not as good as the next day so keep going after all your still around and thats why we fight to begin with. Any questions at all drop me a line
after 10 treatments I developed a sore throat and sores in my mouth. My tongue feels as if it was on fire.
Radiation in April, May, 2008...In general, I have been blessed! I have been very lucky to the extent that I dont have much saliva loss or other symptons. In 2010 I am currently having issues with radiation damage that include cramping in my neck muscles, difficultly maintaining my mouth opening and some slurring of my tongue. I am interested to know how others have dealt with these symptoms. In retrospect, I would have done more stretching exercises all along!!
Yes - 27 daily treatments beginning 2-16-11
Seven weeks, 5 days a week radiation, 35 treatments. Dry mouth, loss of saliva, only lost hair on my neck which was a positive. Hated the mask
Jaw tightens up when talking, need to stretch jaw muscles (stretch open mouth with sticks) 3 times daily (radiation). Need to fluoride teeth once a day. Lose saliva at night when I lay down and need to keep water around.
Radiation treatments 35, side effects severe like sunburn, sore throat, couldn't eat for months, swollowing very difficult. I'm going to loose my teeth decaying at a fast rate and nothing they can do for me. Dentures will be my next step and not sure if they will work with no saliva gland. Destroyed saliva glands, thyroid, and teeth.
Treatments began on April 4, 2011
Start on March 29th 2011.
Started Treatment on May 24, 2011... last treatment July 12, 2011 ...mostly tired thru treatment, loss of saliva glands on left side, loss of taste buds
A course of 33 treatments from Jan thru March. Loss of taste buds; dry mouth; fatigue; sore throat; sticky saliva during radiation then gone now back again.
February 25 started 1 of 39 neck radiation. 28 full neck radiations and 11 right side (cancer side) radiation. Mucousitus at 3 weeks. Lost taste and salivary at week 2. Thrush at week 2. Feeding tube at week 3. Took 1 week off (week 5) due to throwing up for 7 days. Could not swallow very early and throat trashed way too early. Couldn't use Caphasol, "Magic Swizzle" numbing meds couldn't get down.
started treatment May 2nd: IMRT mouth sores and mucositis Finished June 20th.
I no longer have saliva, the taste of food is terrible. My thyroid is out of whack!
35 daily Radiation Treatments, extreme sore throat at the 3rd week. My biggest challenge was phlem that collected in my throat, causing coughing, sleep deprivation, and breathing difficulties. Lost 32lbs and was put on a G tube and Narcotics as needed, which has been every 4 hours. Lost hair on the back of my head, but that is supposed to come back.
Radiation therapy 35 sessions Aug-September 2010. Severe mucositis, external burns on neck, dry mouth, inability to swallow. 2011 Aspiration pneumonia January and February
Mucositis, discolouration of skin on neck and face, hair loss, weight loss, vomiting, nausea, extreme tiredness, pain in throat, unable to eat or drink properly, bad taste in mouth.
For details see my posting.
IMRT 37 treatments which began Jan 17, 2010. Still not sure how I got through it.
30 Day ended 10/24/2011
Radiation therapy started August 8th. IMRT 7 weeks 5 days a week.
Started on August 1o 2011 and end at September 5th 2011, starting my third week, so far some hair loss, partial loss of taste and dry mouth, no bad, fatigue,
8 weeks of radiation tx. until April 4, 2011. Bronzing (nice phrase for 2nd degree burns) of neck. N & V. wt loss. loss of job. loss of salivary glands and sense of taste (I miss chocolate)
35 days of radiation to left side of neck only, from jaw down to collar bone to mid-line in front of neck.
35 seventy minute TomoTherapy with Hyperthermia sessions starting Wednesday, November 9th 2011
IMRT - loss of saliva, sore throat, thrush, sunburned neck, loss of taste, difficulty eating.
5 Days a week for 7 weeks
IMRT Radiation to both sides of my neck to encompass the lymph nodes and base of tongue. My Oncologist was careful and did not want to risk that unseen cancer may have reached the base of the tongue so he treated as if it had to reduce risk of recurrence. Started Treatments on September 19th, 2011 twice a day for 6-weeks or total of 60-treatments. My last Treatment was November 2nd, 2011. The first 2-weeks were uneventful but week 3 to the end was painful and swallowing was a chore. No Peg Tube was used and I am glad I elected not to have one. My Oncologist and ENT also felt I should try not to use one to prevent swallowing issues in recovery. I am now 14-days out of my last treatment and my throat is improving finally.
Starting radiation about 12/19/11. Ended radiation 2/15/12
Radiation start date - 12/5/11 5x/wk. x 7 wks. Mouth sores, sore throat, hair loss on back of head - just a strip between the ears, cold all the time, more tired than normal
I begin radiation February 20, 2012 for 6 weeks.
Started radiation on Nov. 16th
Scheduled to begin 30 Radiation Treatments on March 19 In conjunction with weekly Eributix Infusion
IMRT (proton) to neck region. Total 70 Grey in worst area, 62 Grey in least radiated area. Got severe radiation burns to my neck which manifested in the last few days of treatment, and took 2 months to completely heal. No oral lesions (I applied aloe vera directly to my gums immediately upon getting off the table following each IMRT). The biggest side effect was damage to my taste and salivary glands, and to my soft plalate. Taste was completely gone from 4th week to one month following completion of treatment, then slowly returned (to some extent). Thick ropy mucus seems to be forever.
Completed May 18, 2012
35 IMRT, 3 Cisplatin mega doses, 100 units per time, 6 hour chemos...daily radiation for 7 weeks- weight loss, nausea, hair loss on face and neck, lethargy, lost energy, difficulty swallowing and choking anything thicker than water
6 weeks of radiation. Dry mouth, fatigue.
Radiation coming up
33 daily treatments along with Chemo treatment weekly
7 weeks IMRT starting march 5 2012
IMRT 11/28/2011 - 01/10/2012 Supplemental radiation given 1/25/2012-1/27/2012 Side effects: Xerostomia, lost of taste, pain, difficulty swallowing.
Scheduled 7 weeks IMRT start 3/19
33 treatments starting on November 21, 2011
4 of 35 treatments so far, burning in back of throat, some difficult swallowing.
Should start 7/16/2012
IMRT November 2011 - January 2012
Six weeks radiation estimated to begin week of 9/10/12
7 weeks of radiation daily.
35 Radiation treatments January 14th through March 8th 2013
30 planned radiotherapy sessions. Started 13/11/12 end date 20/12/12 Side effects so far (8/30 therapies)- skin burn, dry sore mouth, bleeding gums, lack of appetite, nausea.
Jan 21- trush, redness and swelling on tongue and mouth, fatigue
35 sessions Sore mouth,painful eating drinking, neck rash Weight loss
start radiation on the 18th
Oct 6 thru Nov 18 -5 times a week
1/8/13 to 2/18/13. IMRT/rapid arc with simultaneous integrated boost. Did ok up till 4th week. lost 20lbs. severe odynophagia and mucositis. had dobhoff feeding tube inserted on last day of treatment due to severe symtoms listed.
I'm supposed to have radiation after completion of 3 R-Chop chemotherapy treatments.
Radiation started 7/11 - 35 days of treatment
Begin IMRT 9/10/13
Rad starts on Jan 20th, 2014 ends Feb 28th, 2014
2/3/14 - 3/19/14 : 30 Radiation treatments (Tomo) Too many side effects to list. See post on 3/19/14 for top ten list.
6 cisplatin tx, one every Monday, running simultaneously with radiation tx of 27 sessions, all of which ended on 11/14/12. Tolerated chemo well, it was a mild dose. Had Cytoxan in 1991 at age of 32 for systemic lupus nephritis and felt much worse then which was amazing because I'm a lot older now. Radiation did not bother me until 3rd week, at which time I lost my sense of taste. By the end of tx's, I was 103 lbs., but never weighed more than 120 lbs. anyway (i'm 5'6" but very small boned). All in all tolerated ok; it was after tx that I ran into a problem with mucousitis. Yuck.
27 rad tx, ended on 11/14/12. Tolerated well initially, started to lose taste after tx number13, very tired; by the final tx, went from normal weight of 120 lbs to 103 lbs. I'm 5'6" but very small frame. During final week of tx, developed mucousitis, which continued for 7 weeks and recurrent thrush. Thrush and I are old friends. I had cytoxan, 6 tx's in 1991 for Lupus Nephritis. The rheumatologists "borrow" this ca drug to treat severe cases of lupus when the kidneys or brain are being attacked.
35 Radiations, starting July 15, 2014
September 5 - 7 weeks
starts Oct. 27, 2014
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