What Breast Cancer Survivors said about their Radiation Therapies.
Radiation to start within the next few weeks.
I will not be receiving radiation therapy
Will know about radiation after I have surgery/
March and April 2008 - part of my skin peeled just like a regular sunburn; tenderness months afterwards
Radiation starting 1/19/2012
December 2000 burning sensation on left side of chest wall.
6 weeks during the holidays...not aware of side effects some minor sun burning
Radiation to Breast, axillary nodes (underarm) and supraclavicular nodes (above the collarbone)
Radiation from end of January until March 17, 2011. I received three different radiation hits to my breast and one hit to the lymph nodes in my neck every day Monday through Friday. The radiation was fairly easy. The hardest part was having to go every single day. Once there, it took maybe 15 minutes to administer and a total time of being there about 30 minutes. Towards the end, my skin did start getting a big irritated and I started peeling a little bit. After radiation, I have discoloration still but the skin has healed. The only other side effects I did have during radiation is at some point, it became extremely difficult for me to swallow. It hurt so bad I had to spit out my own saliva as I could not swallow that. I had to take some white paste pill that dissolved in water for a few weeks in order to get food down.
from August to October, 2009. I have a fair complexion so I did burn from the radiation and did have fatigue, but overall I didn't have that many problems with radiation.
Yes 6.5 weeks worth. I had a bad burn.The fatigue was difficult.
Started 11-07-11 --skin is burned, dimpled and itchy. Tumor site is hardened and sometimes gives pain. Fatigue is severe beginning in 3rd week. In 7th week skin begins to open and fatigue forces me to stop work for awhile and rest, rest, rest.
I opted for no radiation.
Haven't started yet.
36 treatments - September 08 until November 3, 2008. Skin redness, very mild peeling in some spots, tightness under arm.
10 weeks of radiation...just exhausted.
Radiation for 32 weeks
33 treatments June through July 2009
May of 2004; six weeks; breast raw for 1 week; I have alot of stiffness under my arm; I exercise it by swimming
Not many young women there. Duration 7 wks (after chemo started) Daily. Didn't burn at all. Doctor at conclusion surprised by that!
May 2-June 10th, 2007 Really scary, very tired,headaches & teary
Not doing radiation
Radiation therapy went well --- got red and a little "crusty", but nothing compared to the effects of chemo. Tried to tell myself I was going to a spa daily for heat therapy. Never had any pain from radiation, but it was weird to see the change of skin color on my BACK from having gone right through me!
did not have radiation
What Prostate Cancer Survivors said about their Radiation Therapies.
The 39 trip to Radiation treatments were pretty anticlimactic. Thank god my job worked with me and let me leave early each day. Can't imagine if they didn't worked with me. I was lucky there! Never had any pain from the treatment and very little if any side affects. They is nothing to be worried about in this treatment as far as I'm concerned.
Burning senceation when urinating May 2000 to July 2000
to my back, ten treatments, now i need to self catherize and have a blood clot in my entire right leg
40 treatments in 2005. Difficulty holding bladder.
IMRT, 36 treatments, Sep 20-Nov 8, 2011. Side effects: the usual suspects -- GI and bladder/urinary irritation. Please write for details.
February 2003. Side Effects - ED, Tiredness, fatigue, hot flushes, Radiation burns to anus and buttocks, rectal leaking and short term memory loss.
Hd 9 weeks of IGRT, five days per week except July 4. Took about five minutes per day. It took a couple of weeks to get used to drinking a lot of water on the way to the treatment facility. At first, I couldn't differentiate between the signal to urinate or to defecate. I learned to just sit down on the toilet like a baby and that fixed that. They had really good instant brew coffee at the facility, so I'd have that - my first coffee of the day, around 10:00 A.M. Once, this caused a bowel movement while I was driving home. After that, I remained at the center to move my bowels and then drove home. I went to the gym and tried to lift some light weights around my upper body and that went OK. Right up to the last day, it was a challenge to get out of bed and go to the treatment. I don't know where or how I found the strength to stick with it. It doesn't hurt. I acclimatized to the way my body adjusted to what was going on. But it just took some kind of undefined, inner push to keep going. I was never a big eater but PCA and IGRT left me very uninterested in food. I think I "caused" my cancer, maybe by something I ate, or did wrong, last year. Treatment ended about four months ago.
Due to have in May 2014
3 months of conformal radiation at Tufts New England The radiation caused the bladder cancer and much irritation
Brachytherapy 10 yrs ago. Recurrence 2 years ago
Will begin in three weeks as I di the implants on 11th Of Oct not sure what is next
Nuclear Oncology 41 treatments 11/08 no side effects
41 sessions to pelvis area and prostate, using Orbit Arc, some side effects; dizziness, burns, medications helped ease the process
None. Had surgery not worked I would have been put on radiotherapy but thankfully it was not needed.
What Lung Cancer Survivors said about their Radiation Therapies.
5 days of radiation Feb, 20-26 sore throat for 2 days tired
radiation starts on March 8th
15 days of 30 treatments. Extreme nausea-vomiting ribs and back hurt from A:cancer B:radiation C:surgery D: all above
Just started 4/22
I started radiation treatments on October 25, 2010. I'm not sure what all of this means but my total dose is 6,120cgy. I have 34 treatments total; so I receive 180cgy a day, monday through friday. So I should finish around December 13, 2010 depending on if I miss any days or if my oncologist wants to change my plan. My side affects aren't too bad. I already have some shortness of breath so I don't think it is from the radiation. I have really sensitive skin so It is kind of red, so the therapists gave me some cream to rub on it. They mentioned that my skin will get worse before it gets better.
Ten whole-head treatments ending on 22 April 2010. Side Effects - loss of hair.
Feb. 24, 2009 Gamma knife radiation perfexion treatment The procedure is nothing short of a miracle in technology, however it requires a metal `cage` to be attached to your skull. That process is brutal, as it the pressure release when it is removed. But they got em' so it was worth it :)
December 2004- Radiation to large tumor in lung. October 2005- Radiation to tumor in lung and spine. August 2008- Radiation to spine. May 2010- Full brain radiation.
Radiation was declined at this time.
starting the 3rd week of August 2013
Weill have gamma Knife radiation to brain lesions
10 brain treatments 9/16/09 to 9/29/09. 5 treatments targeted at mass in top of right femur 9/21/09 to 9/25/09.
Starting radiation with my second chemo on the 24th of august 2010
9/12/08 gold seed marker placement-inferior right hepatic lobe 9/22-9/26/08 Cyberknife radiation for liver metastasis
Radiation to leg
Pelvis (aug '07) radiation to area possibly weakened femur in hip area - Fell Jan '10 and broke left hip - surgery to pin hip Jan '10 Left Adrinal Gland Area Sept '09 - Side effects - damaged about 1/2 of left kidney and about 1/3 of pancreas Lymph node in the lower middle back May '10 Left Lung and lymph node in left arm pit May '10 side Effects -fatigue
None to date - The surgeon and oncologist felt that I should wait before starting chemo or radiation and be on the anti-fungal medication, indicating at least a year, to see if once the infection was gone, the remaining spots in my lungs would be gone. In January of 2010, I lost my job, medical insurance and the financial ability to continue the meds. I've recovered enough to find work and have been there long enough to receive medical insurance...now to find the courage to return to the doctor and take up where we left off, uhhh less the pre-existing conditions...to be continued...
October 2008 Radiation. Max dose. She can never receive it again.
35 radiation treatments, some sore throat and trouble swalowing.
35 treatments daily for 7 weeks 1998
Radiation 08/10 to 9/10. Side effects: soar throat, difficulty swallowing, and fatigue.
4-12-10 targeted therapy radiation
Mevatron radiation for brain on Nov 22, 2012
What Non-Hodgkin Lymphoma Cancer Survivors said about their Radiation Therapies.
23 rounds of radiation on my neck and shoulder.
I hear you're pretty pukey but thats about it. Oh and it melts your innards and body externally.
Brain Tumor 25 years later.
radiation to left chest - side effects: feeling of a lump in my throat, fatigue
Radiation therapy was (25) Involved Field Radiation over 5 weeks, March 29th through May 2nd 2012. The radiation treatment itself was painless, although the mask and tongue guard were uncomfortable. The side effects were progress skin burns, mouth sores, difficulty swallowing, and nausea. The side effects subsided a couple of weeks after treatment ended.
December 2013 - this is my second diagnosis of lymphoma. The first was last year and I had successful radiation treatment from Sept-Dec 2012 in my neck. By March 2014 all was well but I had a red eye. After 4 months of seeing my GP service (pretty useless I'm afraid) my wife insisted I see an eye specialist; as soon as I did I was diagnosed with a "residual" lymphoma in my eyes on August 30th 2013. Residual is good - it means it has not metastised, it was apparently "left over" from the last lymphoma in my neck. In October I had a CT scan that showed I was clear in all my other lymph glands - so that was good. So I had to have radiotherapy in both eyes. I'm going to keep this next bit short otherwise I could spend ages on telling you what I was told by the technicians, nurses, doctors and consultants about the technical processes they were about to treat me with. But it has all been good. Today I am writing this because, after 6 weeks of discomfort and 1 week of "superficial" radiotherapy (which never feels superficial!) and 1.5 weeks to go, for the first time, my eye doesn't hurt; it's hot inside but not scratchy. I have a good store of saline solution which is bliss when you use it….but then you need more and more, like a drug. Today I have not had to use it at all, it's 9pm UK time and 10 hours since my radiotherapy session this morning. Usually I'm in bed after spending 6-7 hours in pain with an eye patch on. I do expect the effects to get worse but all I can say today is that IT WORKS!! The basis of my optimism is that the radiation kills the cancer…..and I can happily live with the side effects because I am alive to experience them. Take heart.
20 sessions of radiotherapy on my mediastinal mass which caused damage to my left lung and heart in May - June 2012. The side effect I had was tiredness.
All of feb thirty days. Nausea and tired.
luckily for me , i don't have to undergo radiation
3 docs said yes, 3 docs said no, so I did not have radiation after chemo treatments proved decent
Bunch of long words
Radiation daily for 3 weeks ending 28/6/2012
23 radiation sessions
Expected January 2013 x 30 days.
not part of treatment
relapse cancer - radiation (June, 2011)
May & June '10. Back burning.
June 30th 2009, forgot how much the dose was, it was everyday for the whole two months. Side effects: burned skin, loss of appetite, hair loss, sore throat, gastric pain.
No radiation on the table yet.
Intensity modulated radiation therapy, June 7th- July 12th 2012.
Radiation October 2004
Yes, radiation on both sides, and I have had breast cancer on both sides.
What Kidney Cancer Survivors said about their Radiation Therapies.
My husband had radiation at the site of his neck surgery.
no treatment yet?
10 days of radiation,difficult to say what side effects were from Radiation, Sutent (oral chemo) or Aredia (IV drip for bones)
Palliative Radiation for bone metastases (20 Gy/5 fractions) Dec 2012 Metastron Feb 2013
What Pancreas Cancer Survivors said about their Radiation Therapies.
Radiation Therapy June 2011 for 5 weeks
Radiation - Jan 2013-March 2013; Reported weight loss, nausea, some disorientation on dehydration.
N/A would not help his type of cancer
Radiation - 6/14/10 to 7/22/10 Monday through Friday: Had some bad mornings starting about halfway through, but always seemed to feel better after his treatment. At night, the upset stomach side effects would kick in.
Radiation followed first course of chemotherapy, and was given for 28 days in September 2010
will be starting after Christmas
Radiation to start on Oct.25th for new tumor on 1st surgical bed thats not responding to other treatments..
Every other day radiation
Radiation once a day Monday - Friday for 5 weeks along with the 5-FU pack.
Mom chose not to do radiation
Xeloda Jan 2008-May 2008
no radiation or anything else just chemo
What Oral Cancer Survivors said about their Radiation Therapies.
Loss of taste, acute mucositis, loss of hair at back or neck, blistering of throat.
33 IMRT Start date 3/18/2011. Mouth sores ( treating with Manuka honey ) stiffness in operated areas, fatigue, some hairloss in zapped area - so far not too bad... No burns yet. No taste.. Ugh!
25 treatments, 9 days in every 2 weeks - partial hair loss, starting 1st week in February this year, finishing March 18th
35 Rads Mid - 5 days a week for 7 weeks. started July 2008 - OK at first - Got weaker- drove myself first couple of weeks- lost good judgment- totaled my car- wife drove me after that...got down to an old man's shuffle at the end.
37 radiation treatments from late Sept to the end of November of 2007. Side effects all my saliva gland were destroyed. I can't hardly eat anythin because I have no saliva. swallowing is hard. I also have a different voice now. People call me sir all the time. And I stay tired still. Nerves are shot and now taking anti- depressants
Radiation Treatment May of 2012 to June 2012. Mouth was burned from radiation. Lost of taste buds. Fast forward two years. I have taste buds again.
35 IMRT treatments Dates: starting late August and ending November 11, 2011. Side Effects include; Dry mouth especially at night weak weight loss and muscle atrophy loss of appetite (food just tastes bad period) Mucus in mouth during the day
72 gy of radiation (before the advent of IMRT)
June 2009. not many, all related to not being able to swallow without pain. Important to get help, magic mouth wash, pain meds. Liquid diet essential
What Ovarian Cancer Survivors said about their Radiation Therapies.
Jan - Feb.2011 pelvic rad. ( for bone mets - palliative )
Fatigue nausea diarrhea dental problems severe digestion issues
low dose whole abdominal radiation + pelvic boost
No radiation done
Currently deemed unnecessary (following pathology). Will reassess in February 2012 to see of radiation of supraclavicular lymph nodes is required.
None to date
Radiation is new for me so Ill let you know as we get there
Radiation therapy to the abdominal/pelvic area; diarrhea, abdominal cramping
august 09: radiation in my stomach, new tumor 6 cm
pelvic rad. for bone mets January 2011
What Thyroid Cancer Survivors said about their Radiation Therapies.
35 RADIATION TREATMENTS IN 2011, DEVELOPED BLOOD CLOT IN THE LUNGS BEFORE MY 34TH TREATMENT.....
RAI treatment - July 2011. No side effects.
Will begin Radioactive Iodine Treatment after the second surgery.
Radioactive Iodine treatment
I took the Pill in November of 2013. I was on the low-iodine diet for ten days. I had an extremely hard time with the diet, and my neck was sore for a week after i took the pill.
Radioactive Iodine treatment a week before Christmas....NO real immediate side effects
May 1, 2014
Radiation March 2010. Didn't work
Not yet scheduled
I completed RAI-131 in December 2009 and follow up scans until 2010. Follow up ultrasounds with lymph node mapping tests continue.
scheduled for RA on November 17
Radiation treatment to begin February 20, 2012. Two days of intramuscular shots then a pill of 50 micrograms. Currently on synthroid every day.
December 12, 2012, no side effects
11/06 - Radioactive Iodine 105 McI 7/08 - Radioactive Iodine 158 Mcl - temporary blockage of saliva glands (3 & 5 months later)
July 27 - stayed at the hospital for 4 days then another 7 elsewhere (have a toddler) and didn't want him effected.
RAI- extreme jaw, throat, and salivary gland swelling.
Radioactive iodine (103 mCi of I-131) on May 17th, 2012.
Radioactive Iodine-dry mouth everything tasted like cardboard for over two months. Salivary gland infection.
RA-131 74.4 Mci on June 5th. Side effects included swelling of my throat and neck, headache, nausea and eventually really nasty taste in my mouth. June 12th - full body scan, results were good, and follow up on July 24th with blood work. August 2010 follow up blood work and neck ultrasound which still shows NED. Lasting side effect from RAI - Blocked saliva glands, jaw pain and constant headache. Saliva started improving in July 2010 - but still have the pain and headache.
I will begin within a month
7/20/10: Radioactive Iodine Therapy
4/28/09 - 150 mCi RAI
RAI December 2012. Currently have some dull neck pain. Scan showed uptake in thyroid bed and "thymus"
RAI 131 May 2003, Feb 2005, June 2010 side effects: fatigue, brain fog, mouth dryness, dry skin achy joints especially hips.
October 30, 2008 radiation, confined to my room in quaratine for 3 days.
What Stomach Cancer Survivors said about their Radiation Therapies.
Radiation began 6.21.13 - Extreme Tiredness, nausea, that is when he essentially stopped eating.
Left skull base October'09. Dehydration, hair loss, weight loss, ringing in ears with a pressure that felt as though ears were going to explode. Blisters on ears both inside and out and raw peeling facial skin. January '10 another round of 15 treatments on pelvic area and spine. Unable to walk, numbness of entire lower body and left leg. Effects still going on to left side of body. Feet freeze like they are always in a vat of ice. They are very heavy feeling as though they are being dragged. Hole through the center of back. I assume this is where the radiation burned thru the body.
Will begin after chemo
Doctor saids he want help.
radiation 1989 - ignorance is bliss....I didn't find the treatment too bad, maybe 'cos I'm able to block out the "what if" questions (or as my wife prefers to put it, I am too stupid to get worried)
What Brain Cancer Survivors said about their Radiation Therapies.
brain damage, vision change and partial hearling loss
DATES: Jan06 - Mar06 Side Effects: Hair loss, metalic taste when receiving radition, nausea, sensitivity to sun
Alot of skin burning and pain associated with that.
Picking neuro-oncology now
11/06-12/06 tolerated radiation and low dose of temodar quite well until the 4th week, then he became extremely fatigued.
Radiation therapy from 04/06/2013 to 05/20/2013. I really did not have many side effects.
every 5 days then off for two days for a period of 3 weeks. Loss of hair and VERY tired afterwards
Just started radiation on 1/3/2011 Completed Radiation on 2/17/2011
August and September 2007, Hair loss at site, nausea, redness and burning at site. August 2009, Minimal Side Effects
6 weeks of Radiation. finished last treatment 6-28-2011
Mom had radiation - only hair loss. Dad had radiation - trouble swallowing.
Started radiation November 9, 2011 -6 week course - to early to see much reactions as yet
February-April 2013 lost hair, sore throat, skin burns
6 weeks of radiation - hair loss - tired.
5 minutes of radiation on my brain. February 2,2010
6000 rads over 6 weeks (200 rads/day M-F)
33 sessions targeted computerized radiation with mask began September, 2006 Side effects: extreme fatigue, partial loss of hair, dry itchy scalp, burned scalp
I started radiation therapy in late February 2010 and finished my six weeks of treatment in the beginning of April 2010. It made me incredibly weak and tired. I was also having a LOT of seizures during this time and they made the lethargy worse. My hair fell out where the radiation was focused. I could have sported an awesome mohawk but with my hair down or covered by a scarf people claimed they didn't notice. Two years later I'm still missing hair on the left side of my head. No ponytails for me but I'm getting laser hair growth treatments for free from my hairdresser. I also lost part of my left eyebrow but people say they don't notice it. (I think people lie to make me feel better about all of it.) Parts of my head felt hot and dry. The left side of my head still feels dry and itchy sometimes. I started losing hearing in my left ear in the summer of 2011. I can still hear from it. I'm not totally deaf, but when allergies are bad or I have a cold I hear like I have my finger stuck in my ear.
i had radiation of the brain and spine -> Damaged hair follicles, burnt skin, swelling. Chemotherapy and Chemo boosts -> foot drop, blood damaged
IMRT began July 22, finished 30/30 treatments August 30, 2013. Hair loss, problems with eye focus, bad leg and feet cramps at night, face tics, tiredness.
met the nicest people at the radiation dept.
Starts radiation 9/12/11
right now 10 rounds on the one left in my brain, and the spots that the other 2 was removed from
What Multiple Myeloma Cancer Survivors said about their Radiation Therapies.
November 2010. No side effects.
Was nauseated after almost every session. Due to the back pain it was extremely hard to get from the stretcher to the table. It always felt like i was getting stabbed in the back. Loss of appetite.
12 treatments to shrink the sacrum tumor 1/29 to 2/29 side effects none
one very strong round of total body lymphathic radiation
What Colon and Rectal Cancer Survivors said about their Radiation Therapies.
None and none
No radiation, not worth the risks of making damage from surgery worse.
Radiation therapy 5 1/2 weeks. Started 7/12/2011. Radiation in combination with xeloda. Tired and weak. Low energy with uncontrolled diarrhea.
Radiation began in June 2008 for 25 sessions. Suffered anus hernias and a damaged tail bone. The hernias were treated with a sith bath and the tail bone recovered by March 2009. Minimal hair loss around the pelvic area.
5 weeks of radiation and chemo. July 2007
radiation was the new pinpoint radiation in dec/jan 06/07. main effects are much smaller vaginal area (now the size of 11-12 year old girl).
28 days of Radiation b4 surgery 11/12 - 12/12. I had some diarrhea and rectal burning but not to bad.
external, 5 days a week. Completed 9 of 28 treatments. So far so good... only side effect todate is fatigue.
November 1, 2006, 30 treatments M-F caused sever fatigue, cystisis and cramping
Sept. & Oct. 2005- every day for 5 weeks (except for Sat. and Sun.)
This was the worse part...skin peeled away and very sore.
I started readiation on christmas eve 2008. I felt a itching feeling in the area that had been treated but that was about it. As I have more treatments I will blog more info.
Radiotherapy on the spine, section C7; May-June 2010, 16 sessions over two weeks, 5minutes each session. The first few days there were not much side-effects. Towards the end of the first week, the throat began to hurt, and there was increased difficulty in swallowing. The voice soon became raspy and coarse. The soreness of the throat and lost voice persisted for around 6-8weeks. There were increased phlegm and saliva production, which mum said tasted "chemical" and would spit out quickly. On the skin, a red rash began to show, and the doctor advised to avoid sunlight, as the rash will darken. Treatment with CyberKnife also carried out on the spine. Results are yet to be assessed, and the doctor said it will take around 3months to see any visibly reduction in the tumour.
Dec. 29, 2009- Feb. 5, 2010 Fatigue, sores on bottom, bone thinning in my sacral area
25 sessions, last one will be on March 10th--actually i have 3 more after March 10th. next wave of chemo will start after i have port surgery. (June 2010 sometime)
25 days of radiation before surgery. I had alot pain going to restroom in final days of radiation.
28 doses of radiation.
Begining 1-18-11, 5 days a week, weekends off...
Daily Radiation treatements (34)
25 days of radiation. had to stop midway due to extreme diarrhea Finished treatment Wed 18,2009
5 days a week, for six weeks in December 2006 and January 2007
What Liver Cancer Survivors said about their Radiation Therapies.
i will tell you
Radioactive spheres injected into the liver. May and September 2009. Thought it had worked but didn't
What Cervical Cancer Survivors said about their Radiation Therapies.
fatigue, constant nausea, uncontrollable bowels, diahrea from hell!, dehydration. A couple of blisters on my hiney. The good news: the bleeding stopped after the second radiation treatment. Brachytherapy, 4 sessions, was interrupted for a blood transfusion for critical low blood cell counts.
Internal and external radiation 5 days awesome for 20 minutes
bracheythreapy (internal radiation) very uncomfortable stayed in the hospital for 4 days . had to lay flat on my back for 4 days with minimal movement . they gave the radiation twice a day . there was 19 catheters inserted into the tumor where they ran the radiation in and out . my legs hurt for a couple weeks after. bleeding stopped after 2 days. some nausea for a week after.
Radiation began along with chemo therapy May 21 2014. Side Effects: Extreme fatigue, nausea, vomiting, dehydration, luckily very minimal radiation burn to rectum and groin area, and diarrhea. Hospitalized once for the vomiting. Very unpleasant. Keep in mind although I have cervical cancer they also radiated my stomach area due to lymphnode involvement.
I have one more week of radition and i am done with my 6 weeks of treatment. The external radition treatments were a piece of cake. It took about 10 min 5 days a week. They dont' hurt and i never really had any side effcts until this week. A little burning and itching in the private areas but tolerable. The bad part was th internal radiation. I don't want to scare anyone but they do hurt somewhat. We are not talking the worst pain of your life but def uncomfortable. The first day is the worst and it gets better from there. The first day for me meant a cathedar in place, then something in the rectum, then the vaginal cylinder in place. I stayed like that for about an hour while they did the treatment planning. Then they did the treatment which lasted only 6 minutes. I did cry through it because having every hole plugged up is just not a natural thing girls! The second one went better. They only put the vaginal cylinder in and take a few xrays and then the 6 min treatment. Still unconfotable but muc easier. I have 2 more to go. They do offer you sediatives and mild pain pills, but i handled it without that stuff. But it is there if you request it.
28 external and 3 internal radiation
diarrohea and severe pain of the bowel and stomach cramps, off food for a few weeks
Started 6/03/09 finished 7/15/09 ... 28 days IMRT pelvic radiation. Side effect- too many to list, skin burns, constant extreme diahrrea, urinary burning, hair loss in radiation area, nausea and vomiting... TIRED (unlike anything I've ever known!!)
25 external radiation treatments 2 internal radiation treatments
currently on external beam but will have two sessions of brachytherapy which I am dreading
menopause (there had to be some bonus!).
Radiation Oct 07-Dec 07 5 weeks of daily external radiation, then 3 days of Brachytherapy in hospital. Burning in pelvic area, frequent loose stools (5-6 times a day) frequency and urgency with urination. Really bad fatigue, lasted a long time after. Oct 09 External radiation to vag 10x (2 weeks). burning in vag/urethra, pain on urination, radiation burns on outside of thighs (entry points) fatigue.
Radiation starts withen the next 3 weeks. I will have 25-28 external rads.. 5 times a week. 5 internal rads once a week starting the 15th treatment.
alot of fatigue, upset stomach, darkening of skin, irratated skin in area involved, sores from radiation--started treatment in February 2006 (28 sessions of external pelvic radiation)
IMRT started 7/7/08
I'll be having radiation and Chemo after surgery (Happy, Happy, Joy, Joy! LOL)
I had 30 tomotherapy radiations 5 days a week from June until August. The side effects were fatigue and nausea.
Started external radiation on 2/4, to have 25 treatments; then 2 "internal" ones fatigue, but can't blame it all on radiation
radiation. Diareah my biggest hurt. IMMODIUM AD!! and vasaline
started 1/6/09: fatigue and upset stomach, loose bowels
i felt like my insides were cooking, but i had great radiation doctors
For me radiation was a breeze..I had no side affects outside of hairloss in the treated area. I also had 2 internal rads which seem to last forever but I made it!!
internal radiation is the worst thing in the world. i called it the lightning rod treatment
External for 3 weeks daily, Internal for 5 treatments and TOMO for 5 treatments. Internal was the hardest on Aimee because body parts had to be temporarily moved to get to the right spot. Darkening of skin and loss of skin in genital area.
What Larynx Cancer Survivors said about their Radiation Therapies.
35 radiation treatments starting May 2
36 total radiation sessions February 02 - March 25, 2011. After about 13 sessions my throat pain required ongoing codeine relief, and the skin on my neck began showing signs of intensifying sunburn. By the end of February my voice went missing and is just starting to return as June begins.
First treatment December 19,2011
Nov 30th-Jan 14, 2010 Neck and lower face was a serious sunburn, Lots of swelling on the inside, no appetite-lose your taste buds where everything tastes like card board. Fatigue that is hard to describe.
What Acute Myeloid Leukemia Cancer Survivors said about their Radiation Therapies.
Total Body Irradiation, June 2012. Side effects: vomiting, ovarian failure (now on hormone replacement therapy)
Recieved 4 days of fullbody radiation for the Bone Marrow Transplant. I actually didn't feel too bad but the fatigue was huge.
January 2010. Nausea. Later/cataracts. General weakness
Treatment for osteosarcoma, three years ago.
No radiation so far. Thank God!!
What Testicular Cancer Survivors said about their Radiation Therapies.
had no treatment
What Acute Lymphocytic Leukemia Cancer Survivors said about their Radiation Therapies.
Never had any
Full-body radiation 2 times daily for 4 days. Dry mouth and ulcers in the throat and intestines.
Total Body Irradiation, 8/10/10-8/13/10. Felt a little tired. Make sure you eat well prior to radiation treatments. I got a little "sun burn."
What Anal Cancer Survivors said about their Radiation Therapies.
7-28-08 began Erbitux infusion every Monday. Every three weeks: Cisplatin and 5FU for 4 days starting Monday, unhook Friday. Continue Erbitux every Monday. 6 weeks plus 4 days daily (5-days per week) radiation to pelvis and anal area. Last 5 days anus only.
IMRT 6 wks. 8/2013 through 9/26/2013
01-05-10 began radiation threatments which will be for 6 weeks.
skin fell off. All my private skin fell off...(OUCH). Peeing without skin is no fun.. HUH! still cant wear clothes that bind...
31 treatments horrible burning and pain no appetite bad diarrea
Some of the terms are slightly different. I have had Mitomycin in the first week plus 5FU, then just 5FU in the fifth week. I'm not sure what ER and a few others terms refer to, but will find out. The size of my tumour is 2cm by 2cm by 5cm, so I've selected something close to this. There appears to be a difference in opinion as to whether or not it has spread to my nodes in my groin and around my bowel area, as this did not show up in the PET. But the MRI did show swollen glands. The treatment is the same regardless, so I'm not too bothered by this lack of clarity at this stage. Medicine is an inexact science after all! I was going to take a break, but discussed it with my doctor. I'm in my last week of treatment now. He described three separate analysis of patients that had taken a week or two week break mid-cycle (same cancer, same cycle as mine). Two showed a marked difference in outcome between those who took a break and those that did not take a break. Overall (allowing for individual variation), those that took a break had a worse outcome than those who continued without a break. The third study that he conducted over a ten year period showed no difference between the two groups. However, I prefer the cautionary approach and am continuing to the end, with new painkillers and anti-nausea drugs and am doped to the gills to get me through!
IMRT, 25 sessions, burning and swelling
Began IMRT x 30 days plus 3 boost treatments on 1/4/10 through 2/18/10 Side effects: Blistering and pain. Post complications: Diarrhea, hemorrhoids proctitis, rectal strictures and ulcers, vaginal stenosis, pelvic lymphedema, and dental problems.
IMRT daily from June 11 to July 17, 2012; the last 4 were boosts. Although I had proctitis and cystitis and would wish neither on anyone, with good drugs I got through. Within a month of treatment end both were fully resolved. No significant skin toxicity. No signs of vaginal stenosis.
Burning, diarrhea and other minor things right now. Started radiation on August 26, 2014. Total 33 treatments
Radiation burns to my skin, and severe effects internally, as described by my surgeons.
Will be begin first week of November. Tentative treatment plan is 1 week of chemo & radiation, followed by 4-5 weeks of radiation, then a final week of chemo and radiation.
30 treatments from 6-23-2008 through August 4, 2008. IMRT... Burning, blistering..think Iwo Jima . Even with IMRT the burns were quite severe. Aftermath of this was stiffness in the hips..even five years later.
Six weeks of radiation, loss of bowel control, skin redness, irritation and peeling, fatigue, increased urinary frequency and burning
started 8-4-09 ongoing
radiation started Oct 26 09, no side effetcts yet.
Pelvic radiation x28 tx. Mine was "pin-pointed" can't think of what that is called right now. It decreases damage to surrounding tissues/organs. . . Update: Side Effects-"heaviness and weakness in my hips, pelvis, legs still, three years out (from end of treatment.) There are "good days" and "bad moments/days". More good than bad. Still some painful BMs. I use a stool softener (docusate sodium) 3x/wk so I won't pass out from pain if stool is too formed.
6 weeks everyday except weekends Aug.29-Oct.12
Commencing Radiation 28th April
just started treatment on 9/27/10 no side effects yet
Scheduled to begin 10/18/10 for 5 weeks
skin down there fell off. over & over. friable skin that bleeds. No control over bowels..limited over bladder. skin that is tender...can't wear clothes. (no more underwear...except in public) Wear Oversize bottoms & boxers).
IMRT: May 18, 2009 to June 26, 2009 - 5 days a week
35 days of radiation
What Bone Cancer Survivors said about their Radiation Therapies.
2002 45 mins a day, 5 days a week, for 6 weeks. Burns
I wanted another baby hopefully if chemo didnt kill my ability
What Eye and Orbit Cancer Survivors said about their Radiation Therapies.
Radioactive plaque 09/09 Extreme tiredness at times, still get that. Sore eye for a short time, nowhere near as bad as I had imagined:)
Plaque brachytherapy - July 2003. Plaque inserted on Friday morning and removed Monday night. Long, long weekend in isolation and having to carry a geiger counter around. Eye was puffy, bloodshot for a long time, painful and vision deteriorated quite rapidly. Now have retinal detachment, pretty lousy vision in that eye and grey areas on the sclera (white of the eye) that may be burns from the cauterisation tool or where the sclera has thinned due to the radiation. Last November (2007), it was noticed that the edge of the tumour is still growing in some areas and I have therefore had to have these treated with Transpupillary Thermotherapy (laser).
What Nose, Nasal Cavity and Middle Ear Cancer Survivors said about their Radiation Therapies.
Radiation therapy starts tomorrow. 33 treatments @ 200 for a total of 6600.
What Nasopharyngeal Cancer Survivors said about their Radiation Therapies.
Radiation given from January to April 20 Side effects: loss of saliva, vomiting, weakness, dehydration, esophagus shrinkage
Started radiation on 11/4/13 after 6 weeks on induction chemo
35 days of head radiation, dramatic weight loss, burned skin, mouth and throat, had peg tub placed.
1st" dec 2002 - Jan 2003 to neck - saliva affected, have little saliva have to clean mouth all the time. 2nd round: Dec 2008 to lump in throat as x-ray showed nodules in both lungs
Meeting with Radiation Therapist on May 3rd to determine how much treatment will be necessary.
radiation therapy ending 5/29/12
What Ureter Cancer Survivors said about their Radiation Therapies.
Linear radiation March to May 2007. Three brachy-radiation treatments in June 2007. Side effects some bowel problems, diarrhea.
What Esophagus Cancer Survivors said about their Radiation Therapies.
Too many radiation treatments to count.
5 weeks of radiation September - October, 2012. Very tired. No burns at all to skin. I did what the doctors/nurses told me to do! Very, very sore throat. Could barely swallow but forced soft foods the entire treatment.
radiation from 11/1/97 to 12/15/97
28 days of radiation
currently undergoing treatments
Two weeks of radiation was fine. Fatigue.
The Radiation burned my throat and cause my taste bud to malfunction I had to be tube fed for about 4 months I will suffer for dry mouth for life I'm told.
Radiation to esophagus and abdominal lymph node March/April 2008 Radiation to supraclavicular lymph node January/February 2009
What Tonsil Cancer Survivors said about their Radiation Therapies.
IMRT 37 treatments which began Jan 17, 2010. Still not sure how I got through it.
Seven weeks, 5 days a week radiation, 35 treatments. Dry mouth, loss of saliva, only lost hair on my neck which was a positive. Hated the mask
Started radiaton 7/20/09
30 planned radiotherapy sessions. Started 13/11/12 end date 20/12/12 Side effects so far (8/30 therapies)- skin burn, dry sore mouth, bleeding gums, lack of appetite, nausea.
April 5th, 2010 to May 18th, 2010 Worse thing I ever have been through just awful
Yes - 27 daily treatments beginning 2-16-11
IMRT 33 sessions, ended 9/11/09
35 Radiations, starting July 15, 2014
Starting end of March
I had 40 days of IMRT from below my cheek bones to above my shoulders starting in September 2006. Around day 25 i developed 2nd degree burns and was admitted to the hospital for about 10 days to recover. A mild case of Stevens-Johnson Syndrome they said. Long lasting side effects are dry mouth and difficulty swallowing.
2/3/14 - 3/19/14 : 30 Radiation treatments (Tomo) Too many side effects to list. See post on 3/19/14 for top ten list.
Did excellant from Radiation (33) treatments.
Jan 21- trush, redness and swelling on tongue and mouth, fatigue
I had my 1st encounter with radiation right before surgery. Then my next was with chemo, and then finally by itself. I had 38 bouts with radiation. Could not eat, loss of teeth, could not swallow, no taste at all, lost 80 lbs before being put on peg tube.
Jaw tightens up when talking, need to stretch jaw muscles (stretch open mouth with sticks) 3 times daily (radiation). Need to fluoride teeth once a day. Lose saliva at night when I lay down and need to keep water around.
Start on March 29th 2011.
after 10 treatments I developed a sore throat and sores in my mouth. My tongue feels as if it was on fire.
5 Days a week for 7 weeks
Radiation treatments 35, side effects severe like sunburn, sore throat, couldn't eat for months, swollowing very difficult. I'm going to loose my teeth decaying at a fast rate and nothing they can do for me. Dentures will be my next step and not sure if they will work with no saliva gland. Destroyed saliva glands, thyroid, and teeth.
IMRT 11/28/2011 - 01/10/2012 Supplemental radiation given 1/25/2012-1/27/2012 Side effects: Xerostomia, lost of taste, pain, difficulty swallowing.
7 weeks IMRT starting march 5 2012
IMRT (proton) to neck region. Total 70 Grey in worst area, 62 Grey in least radiated area. Got severe radiation burns to my neck which manifested in the last few days of treatment, and took 2 months to completely heal. No oral lesions (I applied aloe vera directly to my gums immediately upon getting off the table following each IMRT). The biggest side effect was damage to my taste and salivary glands, and to my soft plalate. Taste was completely gone from 4th week to one month following completion of treatment, then slowly returned (to some extent). Thick ropy mucus seems to be forever.
35 tx every day M-F for 7 weeks
Starting radiation about 12/19/11. Ended radiation 2/15/12
Started on August 1o 2011 and end at September 5th 2011, starting my third week, so far some hair loss, partial loss of taste and dry mouth, no bad, fatigue,
What Endometrial-Uterine Cancer Survivors said about their Radiation Therapies.
Haven't started yet. Need advice.
Feb-April 09 Internal (3x) and about 6 weeks of external, monday thru friday. I only had diarrhea once and no other side effects, people were so nice at LIJ.
Don't know yet...
About halfway through my 25 radiation treaments extreme exhaustion, and lack of control on bowels, which cleared up few weeks after radiation stopped.
November 2011-December 2011--25 days; long-term damage to bladder resulted in one week of hospitalization for blood clots, incontinence, extremely painful urination; serious bladder infection; low white blood cell count; burns on skin around hips and upper thighs; serious digestive problems; lost weight; 1 month after treatment had cytoscopy to confirm radiation cystitis; 6 months after treatment am taking Oxybutynin Chloride for ongoing bladder problems; felt pain in flanks during treatment, later problems with knees that come and go.
25 rounds external, 3 internal, starting in October, 2007, finished in November.
five weeks external beam radiation April, 2011-May, 2011 In-Patient HDR interstitial Brachytherapy 6/13-6/16/2011 Extreme diarrhea causing 2 days of in-patient hospital stay constant Dehydration requiring many infusions
initially told not need 7/6/09 told raDIATION WILL BE NEEDED WHEN I HEAL FROM MY SECOND SURGERY..MY SURGEON NEVER CHECKED THE NODES WHEN HE DID HYSTERECTOMY I HAD TO FIND A NEW SURGEON AND HAVE LYMPHN NODE REMOVAL 8/6/09 27 NODES REMOVED NO CANCER
28 external and 3 internal rad.
Started 5 weeks of external beam radiation in June of 2008. I had alot of nausea and loss of appetite, painful radiation burns. Damage done to ureters which caused me to have additional surgery in July and August of 2008.
August 14th 29 days and then 2 internal treatments. Side effects irritated skin, diarrhea, less energy.
5-6 weeks of radiation planned after chemo is completed
annoyed bowels, extreme fatigue
July-Aug 2014; few side effects
25 cycles of daily external radiation. June-July 2011
No side effects
Not good with dates...radiation for 6 weeks, 5 times a week for about an hour each day. Still can't eat much fruit, sometimes no fruit for days and days. This still happens, even after 4 years. Probiotics seem to help
I just completed 5-weeks of radiation therapy on January 11. Side effects included an annoyed bladder, loose stool, light fatigue.
brachy UGH UGH UGH!!! Not the most pleasant experience for sure!! 4 treatments and side effects to look forward to vaginal stenosis... so far no side effects 2 down 2 to go
Started 4 weeks after chemo. 25 external for 5 weeks. The only effects were bouts of dysentery and pain in the area treated, no skin problems. You feel worse toward the end of the week as it builds up. After #25 I had one internal treatment per week for three weeks. Radiation made me exhausted every day because it's such a grind. Talking to other patients you learn it's quite different for everyone.
Started Sep26 2011. Every weekday for 7 weeks. Last treatment (high dose) planned for 11/11/11.
I had several rounds of a newer internal radiation for 3 months following surgery. I felt great each time for the 1st day or two, then became very tired.
Radiation Tx for Vaginal Tumor - 4/20/09-5/5/09 (mom is fatigued, loss of appetite) Radiation Tx for Metastasis on Ribcage - 4/27/09-5/8/09 Mom developed a UTI that went unnoticed - doc said it was normal pain - this delayed her chemo tx.
5 sessions of High Dose Brachytherapy will be done between 3rd & 4th chemo sessions (mid-June).
What Sarcoma Cancer Survivors said about their Radiation Therapies.
Radiation treatments started February 4 and end on March 23, 2011. My prescription is 66Gy over (7weeks) 33 treatments. Locally, the area being treated hurt pretty bad from being burnt to a crisp, but otherwise I still had lots of energy and I felt great.
Radiation from November 2010 - January 2011. Radiation burns toward the end, low blood counts, and always tired.
1 treatment of Radiation ; in Oct 2008 . Side effects - Horrible burn and pain . Alot of fatigue .
Like having a severe sunburn on the back of my throat. I could not even swallow my own saliva. I lost 30 pounds and became extremely dehydrated.
5 weeks of radiation - feeling tired and extremely fatigued after the sessions were over, radiation burns on back on leg that developed into very painful blisters. Radiation oncology nurse was so caring -- she made up an ointment to use that took away the pain and helped with the healing.
Radiation (Stereotactic Body Radiation Therapy)
Her first doctor didnt do enough or the right kind of chemo....the INSURANCE COMPANY wouldn't pay for the correct treatment.
Radiotherapy for 5 weeks from last week of june 2010. My skin became very sore and a section of it peeled off. My skin has darkened there and has stayed hard in that area.
Still to be determined.
Radiation I had every day at Palmerston North Hospital for 7 weeks - that was the maximum I could have before it gave me cancer!! Started in early Feb 2009 through until April 2009. I got extremely tired, exhausted with no energy at all! I also got a small radiation burn, but was controlled with creams and ABs.
2005 - on L5; 2007 - on L3; 2011 - on left femur & L4
To control size of tumor to right pelvic area
Finished radiation therapy on around December 24, 2010. He had six weeks of radiation therapy, and had to receive treatments five days a week for those six weeks.
I start exact radiation on 6-19-2012 for 6 weeks
December 2012-February 2013 Proton Beam Radiation, Massachusetts General Hospital
What Parotid Cancer Survivors said about their Radiation Therapies.
1st treatment 9/12/12 left jaw in pain from being stretched open and pushed by the mask; by 10th treatment, almost impossible to swallow, even water, because throat is so tight and sore and mouth & tongue are so sore
What Skin Cancer Survivors said about their Radiation Therapies.
could have had radiation but chose Mohs surgery
What Throat Cancer Survivors said about their Radiation Therapies.
IMRT radiation started 11/17/09. Side effects were almost immediate - nausea and tiredness. Not too long before I lost all appetite. Thank goodness I have a PEG tube.
Radiation for 33 times
NONE - Refused radiation on six separate ocassions
April - June 2009 Loss of Taste - most regained Loss of Saliva Production - some regained 35 Exposures Amifostine Injections to the Abdomin each day
Due to having a bit of tumor left, I am waiting to find out if I will need radiotherapy.
Every day, Monday through Friday, starting May 4, 2010. Side effects are extreme sore throat, dry mouth, fatigue, loss of taste buds. Taking pain meds for throat pain. The worst part for Tim is wearing the radiation mask.
Months of radiation that covered both my head and chest area. I no longer have salivary glands and I suffer from dry mouth (xerostomia) -- which means that I drink about a gallon to a gallon and a half of liquid every day. Taste has dramatically diminished and has been altered.
1997 - later side effects - 1999 Thyroid - placed on meds...2005 narrowed carotid artery plus first aspiration pneumonia. 2009, 2011, 2012 three more aspiration pneumonia. Placed on Feed Tube 2012.
33 rads treatments starting January 2009... in which it did not touch the cancer .I had a small burn on throat from rads.
Started December 14, 2010. Five days a week treatment. Severe oral mucositis and recently the first week of January, 2011 developed chronic skin abrasions on my chin and upper lip area, which made me look a monster! That being treated with bactroban.
TOMO Radiation started Feb 23, 35 treatments that are Mon-Fri until April 12th.
I'm at #17 out of 35. Burning and dry mouth.
What Tongue Cancer Survivors said about their Radiation Therapies.
Seven weeks Jan 4 thru Feb 19, Mon-Fri of TOMO radiation. At the end, severe burnt neck especially my right neck area. Severe sore throat.
Burned neck and throat and burn on neck got infected...my skin peeled, but little scaring
I started My radiation the first week in July and had alot of side effects. Many many sores in my mouth and thrush constantly. Also i was told i was very sensitive to the radiation and had so many sores and burns on my neck. I have a lot of scaring left.
Side affects were hideous.. She experienced a very deep painful burn on her neck.plus a percutaneous endoscopic (PEG)
Radiation on neck 5 days a week for five more weekws
July 6 Radiation and 1st Chemo begins
60 Grays (Gy) of radiation
Radiation to begin next week, 5 days a week. Began on 8/23/12.
I've already been through IMRT (radiation) for Tonsil Cancer in 2009. So, they can not do radiation to the same part of the body twice.
What Nose Cancer Survivors said about their Radiation Therapies.
Radiation side effects included loss of taste, trouble chewing, sore gums and teeth
What Ear Cancer Survivors said about their Radiation Therapies.
Proton Therapy test
What Jaw Cancer Survivors said about their Radiation Therapies.
Dry mouth, and due to the radiation I have osteonecrosis of the jaw and now in hyper baric chamber treatments so I can have all my teeth removed as they are all falling out on there own.
What Hodgkins Lymphoma Cancer Survivors said about their Radiation Therapies.
Cobalt Radiation on full chest and abdomen area's. I am proud of my 'Tatt's'! One thing that is just part of it all is the Pneumonia and other illnesses that comes from the low immunities can be some of the scariest and biggest battles we face. Too, with every new procedure and surgery, at least for me, my recovery times seem to be much longer. But despite the illness and weakness that chemo and radiation leaves you in ... if you are still breathing it is a gift.
86 treatments of what was referred to as Cobalt 80,full scan and mantle, 1975 & 1976.
I will start radiation after the chemo ends!
After chemo - 3 weeks of radiation was a walk in the park for me! I took up raquetball (not generally recommended by any doctor, other patients etc!)
Radiation therapy (RT), 2000 rads for 22 days, were given to areas of initial bulky disease. (middle of chest cavity)
Declined IFRT radiation therapy
Received 5 weeks of localized radiation to the chest
No never had radiation.
Start treatment on the 25th, chemo is the only treatment on the menu so far.
Haven't started yet
I didn't have an side effects from the radiation!
Radiation in July 2008. I was very fortunate and blessed not to have any side effects from radiation.
radiation was brutal and side effects were phnuemonia
Radiation therapy to field covering the mediastinum and bilateral hilar areas - 180 cGy per day to a total of 1980 cGy over 11 fractions. Radiation to the para-aortic and lumbar fields - 180 cGy per day to a total of 1980 cGy over 11 fractions. (1/30-2/13/92). I had persisting problems with nausea and vomiting throughout much of the radiation but it was reasonably controlled with Phenergan.
What Acute Lymphoblastic Leukemia Cancer Survivors said about their Radiation Therapies.
June 28, 2010-June 31, 2010 - IBR - twice a day for 15-20 minutes a session.
What Bile Duct Cancer Survivors said about their Radiation Therapies.
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