What Breast Cancer Survivors said about their Radiation Therapies.
Radiation from end of January until March 17, 2011. I received three different radiation hits to my breast and one hit to the lymph nodes in my neck every day Monday through Friday. The radiation was fairly easy. The hardest part was having to go every single day. Once there, it took maybe 15 minutes to administer and a total time of being there about 30 minutes. Towards the end, my skin did start getting a big irritated and I started peeling a little bit. After radiation, I have discoloration still but the skin has healed. The only other side effects I did have during radiation is at some point, it became extremely difficult for me to swallow. It hurt so bad I had to spit out my own saliva as I could not swallow that. I had to take some white paste pill that dissolved in water for a few weeks in order to get food down.
I had 36 treatments of radiation. From July 8-06-August 16-06. I did get burnt and was applying aloe every day. I did get tennis elbow as a result of the radiation. I then had to have therapy for that.
Radiation to start within the next few weeks.
Completed 8 weeks of radiation therapy on 9-13-06. Minor fatigueness in the afternoons.
Five weeks of radiation 11/11 - 12/19- Unfortunately high doses caused severe burning. Finally healling after three weeks.
28 radiation treatments, then 8 boosts.
Had radiotherapy in hospital for my back last December and it was a strange sensation but so tiring as well. My scar still shows sign of burnt skin from the chemo although have been told this will fade in time.
haven't started that yet, possibly 7/26/2010 I was start rads.
10/07 to 11/27/07 33 days Fatigue
39 treatments... Half of Chemo was done first. "all" side effects possible...but not as bad as chemo.
Hated it so much. Had radition for 31 sessions. Side effects: subclincal hypothyroidism, and my left breast is hard.
Radiation therapy went well --- got red and a little "crusty", but nothing compared to the effects of chemo. Tried to tell myself I was going to a spa daily for heat therapy. Never had any pain from radiation, but it was weird to see the change of skin color on my BACK from having gone right through me!
Radiation therapy during July, August and September 2011.
I had my radiation for 38 days and I feel so tired most of the time.
Met with Radiation Doc on Aug 5th. Treatment plan is 25 radiation + 3 boosters--approximate start date in January 2011 but will meet him in November to decide. Finished radiation Feb 18/2011
To be determined
7 weeks of radiation - deep tissue burns - impossible to describe the pain
6 weeks of radiation from June till late July five days a week. No symptoms other than a little pink and one tiny blister.
30 treatments started 8.8.11 and finished 9.23.11. It looked like my left boob went to Tahiti without me .. only one small skin break. I was lucky. And tired. Couldn't have made it without a daily nap but I was also fighting the MRSA infection, so I'm not sure how much of my fatigue was the rad tmts.
Still to come
Haven't started radiation treatment yet...
Not many young women there. Duration 7 wks (after chemo started) Daily. Didn't burn at all. Doctor at conclusion surprised by that!
3/14/11 simulation scheduled. Went well and mold was formed. Advised radiation treatment would begin on Thursday, 3/17/11. Day prior Radiation Oncologist called and advised treatment cancelled due to problem with radiation beam hitting lung and heart. Stated new treatment plan will use Tomotherapy machine - awaiting approval from my insurance (BCBS). 2nd call advised treatment to begin on Tuesday, 4/12/11. First treatment went well - no side effects. 2nd treatment experienced redness, nausea, burning sensation inside breast. 4th treatment (Friday) nausea turned into vomitting; redness feels like sunburn and inside burning sensation has intensified. Will advise how 2nd week of treatment goes.
3-10 to 4-25 i expected some burn under the breast. i did not expect burning and discoloration on the chest above the breast. i also did not expect the radiation would be misdirected enough to give me a sore throat and horseness.
What Prostate Cancer Survivors said about their Radiation Therapies.
The 39 trip to Radiation treatments were pretty anticlimactic. Thank god my job worked with me and let me leave early each day. Can't imagine if they didn't worked with me. I was lucky there! Never had any pain from the treatment and very little if any side affects. They is nothing to be worried about in this treatment as far as I'm concerned.
Burning senceation when urinating May 2000 to July 2000
to my back, ten treatments, now i need to self catherize and have a blood clot in my entire right leg
40 treatments in 2005. Difficulty holding bladder.
IMRT, 36 treatments, Sep 20-Nov 8, 2011. Side effects: the usual suspects -- GI and bladder/urinary irritation. Please write for details.
February 2003. Side Effects - ED, Tiredness, fatigue, hot flushes, Radiation burns to anus and buttocks, rectal leaking and short term memory loss.
Hd 9 weeks of IGRT, five days per week except July 4. Took about five minutes per day. It took a couple of weeks to get used to drinking a lot of water on the way to the treatment facility. At first, I couldn't differentiate between the signal to urinate or to defecate. I learned to just sit down on the toilet like a baby and that fixed that. They had really good instant brew coffee at the facility, so I'd have that - my first coffee of the day, around 10:00 A.M. Once, this caused a bowel movement while I was driving home. After that, I remained at the center to move my bowels and then drove home. I went to the gym and tried to lift some light weights around my upper body and that went OK. Right up to the last day, it was a challenge to get out of bed and go to the treatment. I don't know where or how I found the strength to stick with it. It doesn't hurt. I acclimatized to the way my body adjusted to what was going on. But it just took some kind of undefined, inner push to keep going. I was never a big eater but PCA and IGRT left me very uninterested in food. I think I "caused" my cancer, maybe by something I ate, or did wrong, last year. Treatment ended about four months ago.
Due to have in May 2014
3 months of conformal radiation at Tufts New England The radiation caused the bladder cancer and much irritation
Will begin in three weeks as I di the implants on 11th Of Oct not sure what is next
Nuclear Oncology 41 treatments 11/08 no side effects
41 sessions to pelvis area and prostate, using Orbit Arc, some side effects; dizziness, burns, medications helped ease the process
None. Had surgery not worked I would have been put on radiotherapy but thankfully it was not needed.
What Lung Cancer Survivors said about their Radiation Therapies.
Feb. 24, 2009 Gamma knife radiation perfexion treatment The procedure is nothing short of a miracle in technology, however it requires a metal `cage` to be attached to your skull. That process is brutal, as it the pressure release when it is removed. But they got em' so it was worth it :)
5 days of radiation Feb, 20-26 sore throat for 2 days tired
35 treatments daily for 7 weeks 1998
Starting radiation with my second chemo on the 24th of august 2010
single fraction radiation therapy to the pelvic bone for pallative care, Dec 2013, Vomiting
None to date - The surgeon and oncologist felt that I should wait before starting chemo or radiation and be on the anti-fungal medication, indicating at least a year, to see if once the infection was gone, the remaining spots in my lungs would be gone. In January of 2010, I lost my job, medical insurance and the financial ability to continue the meds. I've recovered enough to find work and have been there long enough to receive medical insurance...now to find the courage to return to the doctor and take up where we left off, uhhh less the pre-existing conditions...to be continued...
Weill have gamma Knife radiation to brain lesions
Ten whole-head treatments ending on 22 April 2010. Side Effects - loss of hair.
December 2004- Radiation to large tumor in lung. October 2005- Radiation to tumor in lung and spine. August 2008- Radiation to spine. May 2010- Full brain radiation.
October 2008 Radiation. Max dose. She can never receive it again.
Will start this next week.
Radiation to leg
radiation starts on March 8th
10 brain treatments 9/16/09 to 9/29/09. 5 treatments targeted at mass in top of right femur 9/21/09 to 9/25/09.
15 days of 30 treatments. Extreme nausea-vomiting ribs and back hurt from A:cancer B:radiation C:surgery D: all above
Radiation 08/10 to 9/10. Side effects: soar throat, difficulty swallowing, and fatigue.
Radiation started 10/10/07 and I go M-F once a day for 6 weeks
4-12-10 targeted therapy radiation
Radiation was declined at this time.
9/12/08 gold seed marker placement-inferior right hepatic lobe 9/22-9/26/08 Cyberknife radiation for liver metastasis
I started radiation treatments on October 25, 2010. I'm not sure what all of this means but my total dose is 6,120cgy. I have 34 treatments total; so I receive 180cgy a day, monday through friday. So I should finish around December 13, 2010 depending on if I miss any days or if my oncologist wants to change my plan. My side affects aren't too bad. I already have some shortness of breath so I don't think it is from the radiation. I have really sensitive skin so It is kind of red, so the therapists gave me some cream to rub on it. They mentioned that my skin will get worse before it gets better.
Pelvis (aug '07) radiation to area possibly weakened femur in hip area - Fell Jan '10 and broke left hip - surgery to pin hip Jan '10 Left Adrinal Gland Area Sept '09 - Side effects - damaged about 1/2 of left kidney and about 1/3 of pancreas Lymph node in the lower middle back May '10 Left Lung and lymph node in left arm pit May '10 side Effects -fatigue
35 radiation treatments, some sore throat and trouble swalowing.
Mevatron radiation for brain on Nov 22, 2012
What Non-Hodgkin Lymphoma Cancer Survivors said about their Radiation Therapies.
Expected January 2013 x 30 days.
June 30th 2009, forgot how much the dose was, it was everyday for the whole two months. Side effects: burned skin, loss of appetite, hair loss, sore throat, gastric pain.
23 radiation sessions
Intensity modulated radiation therapy, June 7th- July 12th 2012.
May & June '10. Back burning.
Radiation therapy was (25) Involved Field Radiation over 5 weeks, March 29th through May 2nd 2012. The radiation treatment itself was painless, although the mask and tongue guard were uncomfortable. The side effects were progress skin burns, mouth sores, difficulty swallowing, and nausea. The side effects subsided a couple of weeks after treatment ended.
Bunch of long words
Brain Tumor 25 years later.
Zevlin. Horrible pain in my feet, very slow recovery, severe fatigue
December 2013 - this is my second diagnosis of lymphoma. The first was last year and I had successful radiation treatment from Sept-Dec 2012 in my neck. By March 2014 all was well but I had a red eye. After 4 months of seeing my GP service (pretty useless I'm afraid) my wife insisted I see an eye specialist; as soon as I did I was diagnosed with a "residual" lymphoma in my eyes on August 30th 2013. Residual is good - it means it has not metastised, it was apparently "left over" from the last lymphoma in my neck. In October I had a CT scan that showed I was clear in all my other lymph glands - so that was good. So I had to have radiotherapy in both eyes. I'm going to keep this next bit short otherwise I could spend ages on telling you what I was told by the technicians, nurses, doctors and consultants about the technical processes they were about to treat me with. But it has all been good. Today I am writing this because, after 6 weeks of discomfort and 1 week of "superficial" radiotherapy (which never feels superficial!) and 1.5 weeks to go, for the first time, my eye doesn't hurt; it's hot inside but not scratchy. I have a good store of saline solution which is bliss when you use it….but then you need more and more, like a drug. Today I have not had to use it at all, it's 9pm UK time and 10 hours since my radiotherapy session this morning. Usually I'm in bed after spending 6-7 hours in pain with an eye patch on. I do expect the effects to get worse but all I can say today is that IT WORKS!! The basis of my optimism is that the radiation kills the cancer…..and I can happily live with the side effects because I am alive to experience them. Take heart.
luckily for me , i don't have to undergo radiation
3 docs said yes, 3 docs said no, so I did not have radiation after chemo treatments proved decent
Radiation October 2004
I hear you're pretty pukey but thats about it. Oh and it melts your innards and body externally.
radiation to left chest - side effects: feeling of a lump in my throat, fatigue
not part of treatment
23 rounds of radiation on my neck and shoulder.
relapse cancer - radiation (June, 2011)
None yet, though I get some if chemo doesn't kick it.
20 sessions of radiotherapy on my mediastinal mass which caused damage to my left lung and heart in May - June 2012. The side effect I had was tiredness.
Radiation daily for 3 weeks ending 28/6/2012
What Kidney Cancer Survivors said about their Radiation Therapies.
Palliative Radiation for bone metastases (20 Gy/5 fractions) Dec 2012 Metastron Feb 2013
My husband had radiation at the site of his neck surgery.
no treatment yet?
10 days of radiation,difficult to say what side effects were from Radiation, Sutent (oral chemo) or Aredia (IV drip for bones)
What Pancreas Cancer Survivors said about their Radiation Therapies.
no radiation or anything else just chemo
Radiation Therapy June 2011 for 5 weeks
Radiation - Jan 2013-March 2013; Reported weight loss, nausea, some disorientation on dehydration.
N/A would not help his type of cancer
Radiation - 6/14/10 to 7/22/10 Monday through Friday: Had some bad mornings starting about halfway through, but always seemed to feel better after his treatment. At night, the upset stomach side effects would kick in.
Radiation followed first course of chemotherapy, and was given for 28 days in September 2010
will be starting after Christmas
Radiation to start on Oct.25th for new tumor on 1st surgical bed thats not responding to other treatments..
Every other day radiation
Radiation once a day Monday - Friday for 5 weeks along with the 5-FU pack.
Mom chose not to do radiation
Xeloda Jan 2008-May 2008
What Oral Cancer Survivors said about their Radiation Therapies.
Loss of taste, acute mucositis, loss of hair at back or neck, blistering of throat.
33 IMRT Start date 3/18/2011. Mouth sores ( treating with Manuka honey ) stiffness in operated areas, fatigue, some hairloss in zapped area - so far not too bad... No burns yet. No taste.. Ugh!
25 treatments, 9 days in every 2 weeks - partial hair loss, starting 1st week in February this year, finishing March 18th
35 Rads Mid - 5 days a week for 7 weeks. started July 2008 - OK at first - Got weaker- drove myself first couple of weeks- lost good judgment- totaled my car- wife drove me after that...got down to an old man's shuffle at the end.
37 radiation treatments from late Sept to the end of November of 2007. Side effects all my saliva gland were destroyed. I can't hardly eat anythin because I have no saliva. swallowing is hard. I also have a different voice now. People call me sir all the time. And I stay tired still. Nerves are shot and now taking anti- depressants
35 IMRT treatments Dates: starting late August and ending November 11, 2011. Side Effects include; Dry mouth especially at night weak weight loss and muscle atrophy loss of appetite (food just tastes bad period) Mucus in mouth during the day
72 gy of radiation (before the advent of IMRT)
June 2009. not many, all related to not being able to swallow without pain. Important to get help, magic mouth wash, pain meds. Liquid diet essential
What Ovarian Cancer Survivors said about their Radiation Therapies.
Jan - Feb.2011 pelvic rad. ( for bone mets - palliative )
Fatigue nausea diarrhea dental problems severe digestion issues
low dose whole abdominal radiation + pelvic boost
No radiation done
Currently deemed unnecessary (following pathology). Will reassess in February 2012 to see of radiation of supraclavicular lymph nodes is required.
None to date
Radiation is new for me so Ill let you know as we get there
Radiation therapy to the abdominal/pelvic area; diarrhea, abdominal cramping
august 09: radiation in my stomach, new tumor 6 cm
pelvic rad. for bone mets January 2011
What Thyroid Cancer Survivors said about their Radiation Therapies.
RAI-Radioactive Iodine Abalation on 9/8/2009-some activity noted in the thyroid area, but no where else.
Took internal i-131 radiation, was sequestered from all life (and my 9 month old baby) for 3 days - I still wonder about the long term effects of that radiation....
I had 98 millicuries of I-131 on 12-10-2008. Being hypo was bad! I worked up until a week before the treatment which if I ever have to do it again I will take off work much earlier!! My sweet mom had to cook all my LID meals. I had to save my energy for work. The actual treatment was fine. I was only in the hospital in isolation for 24 hours. I drank lots of fluids and took many showers in order to get out fast!! haha
7/20/10: Radioactive Iodine Therapy
Not yet scheduled, but on the horizon.
nov,2010 300 units of radioactive iodine treatment
Radiation treatment to begin February 20, 2012. Two days of intramuscular shots then a pill of 50 micrograms. Currently on synthroid every day.
I completed RAI-131 in December 2009 and follow up scans until 2010. Follow up ultrasounds with lymph node mapping tests continue.
11/06 - Radioactive Iodine 105 McI 7/08 - Radioactive Iodine 158 Mcl - temporary blockage of saliva glands (3 & 5 months later)
15-19 June 2009- First doses of RAI. Very dry mouth, metallic taste, overall weakness. 15-19 Dec 2009- First full body thyroid scan with thyrogen shots...not fun
I-131 treatment, Sept 2010. Had 4 days in isolation, felt quite nauseous initially with relatively mild neck pain, and then tiredness for 7-8 weeks following. Am now experiencing vaginal bleeding for past 8 weeks, starting about 2 weeks after treatment, although its difficult to know if this is related to the I-131, or whether it is related to thyroxine levels. Am concerned over long term side effects, particularly fertility as we have not yet had a family and would like one!!
I had the iodine radiation. No real side effects. worst thing was having to be away from my little one.
scheduled for RA on November 17
8/30/11: I recieved the I-123 scan. 9/2/11: I had I-131 treatment, which is a radioactive iodine pill that kills off the cancerous thyroid tissue. The only side effect that I expericenced was a temporary loss of taste.
Rad 131 2 times
Radio Active Iodine treatment scheduled for June 2012
07.24.2008 - 152 mci of I-131 02.11.2009 - 158 mci of I-131 10.15.2009 - 435 mci of I-131 02.15.2010 - 04.12.2010 - 31 treatments of External Beam Radiation via Linear Beam Accelerator
RAI- extreme jaw, throat, and salivary gland swelling.
Radioactive Iodine on October 2, 2013 of 125 mlCi
Radioactive Iodine 94mci, 2005
4 rounds of I-131, roughly 500 millicuries each time: 1. May 2005; 2. December 2005; 3. December 2007; 4. December 2009
RAI 150 mci in Jan/09 and a second round scheduled in 12/09
100 mCu I-131, Oct. 1, 2008. I-123 scans April 2009 and Oct. 2009.
RAI-131 Wednesday February 23, 2011 side effects...diarrhea metallic taste. Sweets taste good. Water tastes like a spoon...:(
What Stomach Cancer Survivors said about their Radiation Therapies.
Radiation began 6.21.13 - Extreme Tiredness, nausea,
Left skull base October'09. Dehydration, hair loss, weight loss, ringing in ears with a pressure that felt as though ears were going to explode. Blisters on ears both inside and out and raw peeling facial skin. January '10 another round of 15 treatments on pelvic area and spine. Unable to walk, numbness of entire lower body and left leg. Effects still going on to left side of body. Feet freeze like they are always in a vat of ice. They are very heavy feeling as though they are being dragged. Hole through the center of back. I assume this is where the radiation burned thru the body.
Doctor saids he want help.
radiation 1989 - ignorance is bliss....I didn't find the treatment too bad, maybe 'cos I'm able to block out the "what if" questions (or as my wife prefers to put it, I am too stupid to get worried)
What Brain Cancer Survivors said about their Radiation Therapies.
i had radiation of the brain and spine -> Damaged hair follicles, burnt skin, swelling. Chemotherapy and Chemo boosts -> foot drop, blood damaged
Radiation therapy from 04/06/2013 to 05/20/2013. I really did not have many side effects.
Started radiation November 9, 2011 -6 week course - to early to see much reactions as yet
1/12/12 - begin daily radiation for 6-7 weeks.
6-08 IMRT, It made me tired!
Picking neuro-oncology now
5940cg craniospinal radiation. Memorial Sloan Kettering Cancer Center. New York, NY. 33 treatments. Start date: 02/14/96. End date: 03/30/96.
2005- 30 days
IMRT began July 22, finished 30/30 treatments August 30, 2013. Hair loss, problems with eye focus, bad leg and feet cramps at night, face tics, tiredness.
August and September 2007, Hair loss at site, nausea, redness and burning at site. August 2009, Minimal Side Effects
Just started radiation on 1/3/2011 Completed Radiation on 2/17/2011
Radiation started in the end of Feb. went 8 weeks of treatment-fatigue, hair loss in area of tumor, memory loss
Microradiosurgery done in Singapore. Given 30 Gys in 10 fractions. Started on April 15, 2009. Hair loss in some places.
6 weeks completed 1-19-09
non so far she hasn't healed from surgery
Alot of skin burning and pain associated with that.
Starts radiation 9/12/11
February-April 2013 lost hair, sore throat, skin burns
every 5 days then off for two days for a period of 3 weeks. Loss of hair and VERY tired afterwards
11/06-12/06 tolerated radiation and low dose of temodar quite well until the 4th week, then he became extremely fatigued.
6 weeks of Radiation. finished last treatment 6-28-2011
radiation daily for 6 weeks. started with just burns on my head. get the blue light special during radiation. hair started falling out this weekend (9/26)
33 sessions targeted computerized radiation with mask began September, 2006 Side effects: extreme fatigue, partial loss of hair, dry itchy scalp, burned scalp
6 weeks of radiation - hair loss - tired.
5 minutes of radiation on my brain. February 2,2010
What Multiple Myeloma Cancer Survivors said about their Radiation Therapies.
November 2010. No side effects.
Was nauseated after almost every session. Due to the back pain it was extremely hard to get from the stretcher to the table. It always felt like i was getting stabbed in the back. Loss of appetite.
12 treatments to shrink the sacrum tumor 1/29 to 2/29 side effects none
one very strong round of total body lymphathic radiation
What Colon and Rectal Cancer Survivors said about their Radiation Therapies.
not yet, but it is coming~
2/1/2010-3/11/2010 not bad, but tiring!
I had 15 treatments of radiation which were a little hard on the system. It took me about 10 days before I started to feel better however it did shrink the tumour and alleviated the pain. I was finally able to sit without experiencing pain.
5 days a week, for six weeks in December 2006 and January 2007
This was the worse part...skin peeled away and very sore.
5 weeks of radiation and chemo. July 2007
radiation was the new pinpoint radiation in dec/jan 06/07. main effects are much smaller vaginal area (now the size of 11-12 year old girl).
external, 5 days a week. Completed 9 of 28 treatments. So far so good... only side effect todate is fatigue.
Bart has undergone whole brain radiation. Brain tumor surgery via Gamma Knife.
April 19-May 26 Monday through Friday -blessed with very little side effects
six weeks radiation; ending 7/12/10. This is my last week and i am having a very hard time eliminating. Feels like i am passing glass and i will see the doctor tomorrow to see if he can give me anything to make this any easier for my last five days.
WEEK 1 - AUG 16, 5 out of 25 done!!! no pain during treatment, no side effects. Noticing tender when wiping butt but not too bad.
November 1, 2006, 30 treatments M-F caused sever fatigue, cystisis and cramping
Radiotherapy on the spine, section C7; May-June 2010, 16 sessions over two weeks, 5minutes each session. The first few days there were not much side-effects. Towards the end of the first week, the throat began to hurt, and there was increased difficulty in swallowing. The voice soon became raspy and coarse. The soreness of the throat and lost voice persisted for around 6-8weeks. There were increased phlegm and saliva production, which mum said tasted "chemical" and would spit out quickly. On the skin, a red rash began to show, and the doctor advised to avoid sunlight, as the rash will darken. Treatment with CyberKnife also carried out on the spine. Results are yet to be assessed, and the doctor said it will take around 3months to see any visibly reduction in the tumour.
Started radiation 6 weeks after the surgery. 5 1/2 half weeks of radiation M-F, combined with 1500mg of Xeloda twice daily M-F. Minimal side effects. I slowed down on walking due to fatigue, but not enough to interupt my normal life functions. Some diarreah during the 3-4 hours right after the radiation. No side effects related to the Xeloda.
Radiation began in June 2008 for 25 sessions. Suffered anus hernias and a damaged tail bone. The hernias were treated with a sith bath and the tail bone recovered by March 2009. Minimal hair loss around the pelvic area.
June - August 2005: Side effects- 1st and 2nd degree burns on the skin; fatigue; unable to sit.
No radiation ever.
Radiation for 28 days before surgery, totally demolished my skin at the bottom.
5 weeks of radiation every day except weekends. Wasn't bad but did get some raw places between my legs in the groin area and my butt crack was raw and sore for about 2 weeks after the treatments were over.
SBRT-nausea, gastric pain Just about to have SIRT and am very excited because this will treat my whole liver and I am feeling positive that maybe this will slow down the recurrence.
12/06 to lower back, fatigue, 1/11 to brain and ribs, fatigue
What Liver Cancer Survivors said about their Radiation Therapies.
i will tell you
Radioactive spheres injected into the liver. May and September 2009. Thought it had worked but didn't
What Cervical Cancer Survivors said about their Radiation Therapies.
alot of fatigue, upset stomach, darkening of skin, irratated skin in area involved, sores from radiation--started treatment in February 2006 (28 sessions of external pelvic radiation)
Started external radiation on 2/4, to have 25 treatments; then 2 "internal" ones fatigue, but can't blame it all on radiation
Start- 10-2-10 End- 12-17-10. Horrible diarreha, severe burning during urination and pain in both areas.
Weekly internal radiation Daily external radiation for six weeks
bracheythreapy (internal radiation) very uncomfortable stayed in the hospital for 4 days . had to lay flat on my back for 4 days with minimal movement . they gave the radiation twice a day . there was 19 catheters inserted into the tumor where they ran the radiation in and out . my legs hurt for a couple weeks after. bleeding stopped after 2 days. some nausea for a week after.
radiation. Diareah my biggest hurt. IMMODIUM AD!! and vasaline
Radiation starts withen the next 3 weeks. I will have 25-28 external rads.. 5 times a week. 5 internal rads once a week starting the 15th treatment.
Started 6/03/09 finished 7/15/09 ... 28 days IMRT pelvic radiation. Side effect- too many to list, skin burns, constant extreme diahrrea, urinary burning, hair loss in radiation area, nausea and vomiting... TIRED (unlike anything I've ever known!!)
diarrohea and severe pain of the bowel and stomach cramps, off food for a few weeks
25 external radiation treatments over 5 weeks, three days of internal radiation with hospital stay.
02/2010 - 03/2010 28 external and 3 internal rad.
IMRT started 7/7/08
Full radiation daily 6 weeks , 3 internal radiation treatments
Rather not discuss
I had 30 tomotherapy radiations 5 days a week from June until August. The side effects were fatigue and nausea.
I'll be having radiation and Chemo after surgery (Happy, Happy, Joy, Joy! LOL)
one week of traditional radiation, then 4 weeks of tomography. possibly 3 brachy treatments (dont know yet). so far i have completed the first week of traditional radiation and coming up on completing the first week of the tomo. started with diarrhea after the first week of traditional. lots of cramping then whoooosh! i have lots of gas and lots of burping. afraid to burp as sometimes i think it just might make me barf! ew.
External for 3 weeks daily, Internal for 5 treatments and TOMO for 5 treatments. Internal was the hardest on Aimee because body parts had to be temporarily moved to get to the right spot. Darkening of skin and loss of skin in genital area.
Nausea and fatigue, Extreme Vomiting, Neuropathy
Internal and external radiation 5 days awesome for 20 minutes
Done and it sucked
menopause (there had to be some bonus!).
currently on external beam but will have two sessions of brachytherapy which I am dreading
What Larynx Cancer Survivors said about their Radiation Therapies.
35 radiation treatments starting May 2
36 total radiation sessions February 02 - March 25, 2011. After about 13 sessions my throat pain required ongoing codeine relief, and the skin on my neck began showing signs of intensifying sunburn. By the end of February my voice went missing and is just starting to return as June begins.
First treatment December 19,2011
Nov 30th-Jan 14, 2010 Neck and lower face was a serious sunburn, Lots of swelling on the inside, no appetite-lose your taste buds where everything tastes like card board. Fatigue that is hard to describe.
What Acute Myeloid Leukemia Cancer Survivors said about their Radiation Therapies.
Total Body Irradiation, June 2012. Side effects: vomiting, ovarian failure (now on hormone replacement therapy)
Recieved 4 days of fullbody radiation for the Bone Marrow Transplant. I actually didn't feel too bad but the fatigue was huge.
January 2010. Nausea. Later/cataracts. General weakness
Treatment for osteosarcoma, three years ago.
No radiation so far. Thank God!!
What Testicular Cancer Survivors said about their Radiation Therapies.
had no treatment
What Acute Lymphocytic Leukemia Cancer Survivors said about their Radiation Therapies.
Never had any
Full-body radiation 2 times daily for 4 days. Dry mouth and ulcers in the throat and intestines.
Total Body Irradiation, 8/10/10-8/13/10. Felt a little tired. Make sure you eat well prior to radiation treatments. I got a little "sun burn."
What Anal Cancer Survivors said about their Radiation Therapies.
Intensity modulated radiation X 30 treatments, 7/28/08 through 9/9/08. Side effects included burning of the pelvic & rectal area with blistering, extreme pain with urination and bowel movements, nausea & fatigue.
radiation April through May of 2010 Second degree burns, severe radiation proctitis
side effects; Burn at the radiation site, tiredness, pain.
Six weeks, June 28 - August 4 - side effects, which included burns, bladder inflammation, diarrhea, and fatigue, really kicked in at the last week of treatment. Over the two and a half years since, side effects have included vaginal stenosis, pelvic stiffness (despite daily exercise) and radiation-induced cystitis. I've consulted with a physical therapist for exercises to reduce the stiffness, and wow, do they hurt! Managing the bowels is sometimes a challenge - e.g., a month of multiple daily poops, making it somewhat awkward to know when it's safe to leave the house, followed by a sudden pause, and then constipation! I don't think I ever paid so much attention to my body (certainly not my rear end) before this.
Radiation, 33 treatments. Began 1/30/12.
Pelvic radiation; July - September 2006 Side effects became so severe required hospitalization during final week of treatment.
Radiation Only. It appears to have been successful to knock out two lymph nodes. Yet, the Tumor never showed up in PET SCANS. The Dr's could feel it, a 1/4 inside opening - now, my Rectal Dr. says that it is just scar tissue. They are to take a biopsy Friday of areas the pain has spread to. But, I'm not sure what I should be asking for or expecting.
Radiation - very hard on the skin. Doctor reduced node treatments to end of week 5 because burns were so bad. Vulva and labia badly burned but healed within 7-10 days. Did get a UTI infection but cleared up in a few days with antibiotics. Anal area still sore at 5 weeks post treatment. Lots of pain with bowel movements. On vicodin and ibuprofen for pain. Having a hard time managing painkillers (constipation), with stool softeners/ laxatives. Sought advice at UCSF Dysplasia clinic and they found 2 small ulcerations in the anal canal (opposite side of tumor) caused by the radiation. The radiation caused also caused nerve damage on the left side of my perineal area. I am on Neurontin and valium for pain and muscle spasm relief. Have been going to a pelvic pain physical therapist in order to desensitize the area.
6 weeks over summer 2009 burned skin, menopause
IMRT: May 18, 2009 to June 26, 2009 - 5 days a week
30 treatments - Started 8/30/2010
Thirty-six (3-D CRT) treatments beginning November 18, 2013 and ending January 29, 2014. Three weeks off during treatment because of severe (2nd degree) external burns on genital area and legs, severe swelling of genital area, and pain during urination and bowel movements. Constant fatigue. Two separate urinary track infections from radiation - the first caused high fever, mild hallucinations, pain and dehydration; with only pain and bloating the second time. Deep hip/upper leg pain developed a month after last radiation treatment.
IMRT using PET Scan and CT Scan results. Scheduled to being 11/9/09. IMRT went smoothly at first. As treatment progressed, I started to see signs of burning along my bikini line and painful itching on by anus. Delays in IMRT have been caused by low blood counts (low platelets).
Radiation burns to my skin, and severe effects internally, as described by my surgeons.
meant to be 30 sessions, but pain from burns to the total pelvic area including top of thighs, was too much to go back for the last session after break during the weekend. On the friday, doc checked my 'skin' while I lay crying on the exam table. he offered that treatment could finish then at 29 sessions so the healing process could begin. pain, pain and more pain. cystitus. diarrhea.
7/15/13 - 8/23/13 30 days of IMRT radiation. Skin changes, loss of hair in pelvic area, burning of skin which was most severe the last week and week after. Used Silvadene and Domeboro soaks.
2/8/10 - 3/23/10. Severe burns to genital area, explosive diarrhea, lower intestinal problems, UTI.
32 radiation treatments starting June 6th
30 treatments, from Dec. 16, 2013 to Jan 29, 2014 The usual side effects
just started treatment on 9/27/10 no side effects yet
Its been a year since I have completed my treatment and I am still suffering from side effects of the radiation.
What Bone Cancer Survivors said about their Radiation Therapies.
2002 45 mins a day, 5 days a week, for 6 weeks. Burns
I wanted another baby hopefully if chemo didnt kill my ability
What Eye and Orbit Cancer Survivors said about their Radiation Therapies.
Radioactive plaque 09/09 Extreme tiredness at times, still get that. Sore eye for a short time, nowhere near as bad as I had imagined:)
Plaque brachytherapy - July 2003. Plaque inserted on Friday morning and removed Monday night. Long, long weekend in isolation and having to carry a geiger counter around. Eye was puffy, bloodshot for a long time, painful and vision deteriorated quite rapidly. Now have retinal detachment, pretty lousy vision in that eye and grey areas on the sclera (white of the eye) that may be burns from the cauterisation tool or where the sclera has thinned due to the radiation. Last November (2007), it was noticed that the edge of the tumour is still growing in some areas and I have therefore had to have these treated with Transpupillary Thermotherapy (laser).
What Nose, Nasal Cavity and Middle Ear Cancer Survivors said about their Radiation Therapies.
Radiation therapy starts tomorrow. 33 treatments @ 200 for a total of 6600.
What Nasopharyngeal Cancer Survivors said about their Radiation Therapies.
Radiation given from January to April 20 Side effects: loss of saliva, vomiting, weakness, dehydration, esophagus shrinkage
Started radiation on 11/4/13 after 6 weeks on induction chemo
1st" dec 2002 - Jan 2003 to neck - saliva affected, have little saliva have to clean mouth all the time. 2nd round: Dec 2008 to lump in throat as x-ray showed nodules in both lungs
Meeting with Radiation Therapist on May 3rd to determine how much treatment will be necessary.
radiation therapy ending 5/29/12
What Ureter Cancer Survivors said about their Radiation Therapies.
Linear radiation March to May 2007. Three brachy-radiation treatments in June 2007. Side effects some bowel problems, diarrhea.
What Esophagus Cancer Survivors said about their Radiation Therapies.
Too many radiation treatments to count.
5 weeks of radiation September - October, 2012. Very tired. No burns at all to skin. I did what the doctors/nurses told me to do! Very, very sore throat. Could barely swallow but forced soft foods the entire treatment.
radiation from 11/1/97 to 12/15/97
28 days of radiation
currently undergoing treatments
Two weeks of radiation was fine. Fatigue.
The Radiation burned my throat and cause my taste bud to malfunction I had to be tube fed for about 4 months I will suffer for dry mouth for life I'm told.
Radiation to esophagus and abdominal lymph node March/April 2008 Radiation to supraclavicular lymph node January/February 2009
What Tonsil Cancer Survivors said about their Radiation Therapies.
Did excellant from Radiation (33) treatments.
yes, 5x/week for 7 weeks...started on 5/19/09
IMRT 33 sessions, ended 9/11/09
Radiation start date - 12/5/11 5x/wk. x 7 wks. Mouth sores, sore throat, hair loss on back of head - just a strip between the ears, cold all the time, more tired than normal
7 weeks IMRT starting march 5 2012
30 Day ended 10/24/2011
Dec-Feb 2013, 30 rad treatments. Brutal.
Radiation began on 8/31 with 35 treatments to follow.
Starting end of March
Radiation treatments 35, side effects severe like sunburn, sore throat, couldn't eat for months, swollowing very difficult. I'm going to loose my teeth decaying at a fast rate and nothing they can do for me. Dentures will be my next step and not sure if they will work with no saliva gland. Destroyed saliva glands, thyroid, and teeth.
38 treatments, Burns, Mucus, Hocking, Weight Loss, No Taste, No Saliva
Scheduled to begin 30 Radiation Treatments on March 19 In conjunction with weekly Eributix Infusion
I'm supposed to have radiation after completion of 3 R-Chop chemotherapy treatments.
I will start radiation on Monday, October 19th, Monday through Friday for seven weeks.
Started radiaton 7/20/09
Nerve damage that was painful for several months.
Start date 10/28/08
Rad starts on Jan 20th, 2014 ends Feb 28th, 2014
April 22nd 2008 through June 4th 2008. It's hell. But you're in a blur of misery. A few months later your a better person, grateful for the blessings you have in life. Still working on regaining my saliva.
4 of 35 treatments so far, burning in back of throat, some difficult swallowing.
2/3/14 - 3/19/14 : 30 Radiation treatments (Tomo) Too many. See post on 3/19/14 for top ten list.
Radiation around neck area 5 days per week began December 7, 2009 and ended January 28, 2010. Side effects included sore throat, difficulty swallowing, loss of taste, loss of salivary glands, constant dry mouth, and loss of hair all around neck and facial area.
35 days of radiation to left side of neck only, from jaw down to collar bone to mid-line in front of neck.
Started radiation on Nov. 16th
30 days radiation
What Endometrial-Uterine Cancer Survivors said about their Radiation Therapies.
5 sessions of High Dose Brachytherapy will be done between 3rd & 4th chemo sessions (mid-June).
No side effects
25 rounds external, 3 internal, starting in October, 2007, finished in November.
28 external and 3 internal rad.
annoyed bowels, extreme fatigue
November 2011-December 2011--25 days; long-term damage to bladder resulted in one week of hospitalization for blood clots, incontinence, extremely painful urination; serious bladder infection; low white blood cell count; burns on skin around hips and upper thighs; serious digestive problems; lost weight; 1 month after treatment had cytoscopy to confirm radiation cystitis; 6 months after treatment am taking Oxybutynin Chloride for ongoing bladder problems; felt pain in flanks during treatment, later problems with knees that come and go.
I had several rounds of a newer internal radiation for 3 months following surgery. I felt great each time for the 1st day or two, then became very tired.
30 radiation treatments, five days a week for six weeks
6 weeks external beam some localized skin issues,,,,,late onset diah, naus--- ***BRACHEYTHERAPY HURT LIKE A BITCH - MOST GOD AWFUL THING I EVER FELT IN MY LIFE - VERY SICK for a few weeks
25 external and 3 internal radiation March - April 2011 horrible burning and pain.
About halfway through my 25 radiation treaments extreme exhaustion, and lack of control on bowels, which cleared up few weeks after radiation stopped.
Started pelvic Aug 2, 2009 for 28 days. Finished with no side effects!
I just completed 5-weeks of radiation therapy on January 11. Side effects included an annoyed bladder, loose stool, light fatigue.
5-6 weeks of radiation planned after chemo is completed
Haven't started yet. Need advice.
brachy UGH UGH UGH!!! Not the most pleasant experience for sure!! 4 treatments and side effects to look forward to vaginal stenosis... so far no side effects 2 down 2 to go
Don't know yet...
Started Sep26 2011. Every weekday for 7 weeks. Last treatment (high dose) planned for 11/11/11.
Started 4 weeks after chemo. 25 external for 5 weeks. The only effects were bouts of dysentery and pain in the area treated, no skin problems. You feel worse toward the end of the week as it builds up. After #25 I had one internal treatment per week for three weeks. Radiation made me exhausted every day because it's such a grind. Talking to other patients you learn it's quite different for everyone.
recommended to start in July
Started radiation in mid-June 2009 - 25 treatments are planned
five weeks external beam radiation April, 2011-May, 2011 In-Patient HDR interstitial Brachytherapy 6/13-6/16/2011 Extreme diarrhea causing 2 days of in-patient hospital stay constant Dehydration requiring many infusions
Feb-April 09 Internal (3x) and about 6 weeks of external, monday thru friday. I only had diarrhea once and no other side effects, people were so nice at LIJ.
Not good with dates...radiation for 6 weeks, 5 times a week for about an hour each day. Still can't eat much fruit, sometimes no fruit for days and days. This still happens, even after 4 years. Probiotics seem to help
What Sarcoma Cancer Survivors said about their Radiation Therapies.
Radiation treatments started February 4 and end on March 23, 2011. My prescription is 66Gy over (7weeks) 33 treatments. Locally, the area being treated hurt pretty bad from being burnt to a crisp, but otherwise I still had lots of energy and I felt great.
Radiation from November 2010 - January 2011. Radiation burns toward the end, low blood counts, and always tired.
1 treatment of Radiation ; in Oct 2008 . Side effects - Horrible burn and pain . Alot of fatigue .
Like having a severe sunburn on the back of my throat. I could not even swallow my own saliva. I lost 30 pounds and became extremely dehydrated.
5 weeks of radiation - feeling tired and extremely fatigued after the sessions were over, radiation burns on back on leg that developed into very painful blisters. Radiation oncology nurse was so caring -- she made up an ointment to use that took away the pain and helped with the healing.
Radiation (Stereotactic Body Radiation Therapy)
Her first doctor didnt do enough or the right kind of chemo....the INSURANCE COMPANY wouldn't pay for the correct treatment.
Radiotherapy for 5 weeks from last week of june 2010. My skin became very sore and a section of it peeled off. My skin has darkened there and has stayed hard in that area.
Still to be determined.
Radiation I had every day at Palmerston North Hospital for 7 weeks - that was the maximum I could have before it gave me cancer!! Started in early Feb 2009 through until April 2009. I got extremely tired, exhausted with no energy at all! I also got a small radiation burn, but was controlled with creams and ABs.
2005 - on L5; 2007 - on L3; 2011 - on left femur & L4
To control size of tumor to right pelvic area
Finished radiation therapy on around December 24, 2010. He had six weeks of radiation therapy, and had to receive treatments five days a week for those six weeks.
I start exact radiation on 6-19-2012 for 6 weeks
December 2012-February 2013 Proton Beam Radiation, Massachusetts General Hospital
What Parotid Cancer Survivors said about their Radiation Therapies.
1st treatment 9/12/12 left jaw in pain from being stretched open and pushed by the mask; by 10th treatment, almost impossible to swallow, even water, because throat is so tight and sore and mouth & tongue are so sore
What Skin Cancer Survivors said about their Radiation Therapies.
could have had radiation but chose Mohs surgery
What Throat Cancer Survivors said about their Radiation Therapies.
IMRT radiation started 11/17/09. Side effects were almost immediate - nausea and tiredness. Not too long before I lost all appetite. Thank goodness I have a PEG tube.
Radiation for 33 times
NONE - Refused radiation on six separate ocassions
April - June 2009 Loss of Taste - most regained Loss of Saliva Production - some regained 35 Exposures Amifostine Injections to the Abdomin each day
Due to having a bit of tumor left, I am waiting to find out if I will need radiotherapy.
Every day, Monday through Friday, starting May 4, 2010. Side effects are extreme sore throat, dry mouth, fatigue, loss of taste buds. Taking pain meds for throat pain. The worst part for Tim is wearing the radiation mask.
Months of radiation that covered both my head and chest area. I no longer have salivary glands and I suffer from dry mouth (xerostomia) -- which means that I drink about a gallon to a gallon and a half of liquid every day. Taste has dramatically diminished and has been altered.
33 rads treatments starting January 2009... in which it did not touch the cancer .I had a small burn on throat from rads.
Started December 14, 2010. Five days a week treatment. Severe oral mucositis and recently the first week of January, 2011 developed chronic skin abrasions on my chin and upper lip area, which made me look a monster! That being treated with bactroban.
TOMO Radiation started Feb 23, 35 treatments that are Mon-Fri until April 12th.
I'm at #17 out of 35. Burning and dry mouth.
What Tongue Cancer Survivors said about their Radiation Therapies.
Seven weeks Jan 4 thru Feb 19, Mon-Fri of TOMO radiation. At the end, severe burnt neck especially my right neck area. Severe sore throat.
Burned neck and throat and burn on neck got infected...my skin peeled, but little scaring
I started My radiation the first week in July and had alot of side effects. Many many sores in my mouth and thrush constantly. Also i was told i was very sensitive to the radiation and had so many sores and burns on my neck. I have a lot of scaring left.
Side affects were hideous.. She experienced a very deep painful burn on her neck.plus a percutaneous endoscopic (PEG)
July 6 Radiation and 1st Chemo begins
60 Grays (Gy) of radiation
Radiation to begin next week, 5 days a week. Began on 8/23/12.
I've already been through IMRT (radiation) for Tonsil Cancer in 2009. So, they can not do radiation to the same part of the body twice.
What Nose Cancer Survivors said about their Radiation Therapies.
Radiation side effects included loss of taste, trouble chewing, sore gums and teeth
What Ear Cancer Survivors said about their Radiation Therapies.
Proton Therapy test
What Jaw Cancer Survivors said about their Radiation Therapies.
Dry mouth, and due to the radiation I have osteonecrosis of the jaw and now in hyper baric chamber treatments so I can have all my teeth removed as they are all falling out on there own.
What Hodgkins Lymphoma Cancer Survivors said about their Radiation Therapies.
Cobalt Radiation on full chest and abdomen area's. I am proud of my 'Tatt's'! One thing that is just part of it all is the Pneumonia and other illnesses that comes from the low immunities can be some of the scariest and biggest battles we face. Too, with every new procedure and surgery, at least for me, my recovery times seem to be much longer. But despite the illness and weakness that chemo and radiation leaves you in ... if you are still breathing it is a gift.
86 treatments of what was referred to as Cobalt 80,full scan and mantle, 1975 & 1976.
I will start radiation after the chemo ends!
After chemo - 3 weeks of radiation was a walk in the park for me! I took up raquetball (not generally recommended by any doctor, other patients etc!)
Radiation therapy (RT), 2000 rads for 22 days, were given to areas of initial bulky disease. (middle of chest cavity)
Received 5 weeks of localized radiation to the chest
No never had radiation.
Haven't started yet
Start treatment on the 25th, chemo is the only treatment on the menu so far.
I didn't have an side effects from the radiation!
Radiation in July 2008. I was very fortunate and blessed not to have any side effects from radiation.
radiation was brutal and side effects were phnuemonia
Radiation therapy to field covering the mediastinum and bilateral hilar areas - 180 cGy per day to a total of 1980 cGy over 11 fractions. Radiation to the para-aortic and lumbar fields - 180 cGy per day to a total of 1980 cGy over 11 fractions. (1/30-2/13/92). I had persisting problems with nausea and vomiting throughout much of the radiation but it was reasonably controlled with Phenergan.
What Acute Lymphoblastic Leukemia Cancer Survivors said about their Radiation Therapies.
June 28, 2010-June 31, 2010 - IBR - twice a day for 15-20 minutes a session.
What Uncategorized Cancer Survivors said about their Radiation Therapies.
image guided IMRT starting 10/16/06
haven't started yet
See my website
Starting April I had 25 radiation treatments 5 days a week for 5 weeks. It burned the outer part of me to the point that my skin blackened. I could not walk or sit without hurting,even standing made me weak. Then I had a two week break before I went into the hospital for internal radiation treatments.I was to have 5 high dose treatments done all in one week where i would go in the morning for treatment and at night for another treatment. Monday I went in to have it surgically put in,had a treatment...had another treatment that next day. Then the doctor decided it could be better so he took it out and made some changes.He had me come back 2 weeks later and finished up the last 3 treatments by putting me back in the hospital and surgically implanting the radiation device again.My doctor was very particular about how he did everything and he took such good care of me.
Months of April and May. I had swelling of the feet. Not sure if it even worked.
25 External Rads 3 Days of brachytherapy, the worst experience, very painful, had to lay on my back for 3 days, when they removed the 27 needle implants it was most excruciating pain I have ever experienced. The pain meds in my pump made me very sick. I have had no lasting side effects from my rad treatments. I am very fortunate. Re-treated 2/16 thru 2/18 with Cyberknife for relapse.
yr 1990 yr 2010
I was radiated on a Belly Board, a little different from what I have read on most web sites for Anal Cancer. I was face down on the board, and the machine circled me, doing 8 "zaps" as it went. I seem to have fewer bowel issues, due to this method of treatment, than most I have read about. My radiologist said it was more bowel sparing.
Image Guided Radiation Therapy -- a form of high-dose radiation. While it promises low chance of incontinence and ED, I have not escaped mild ED and take Viagra and Cialis, which both work pretty well.
I had recently in my head. Feels burns in the local.
30 radiation treatments to left hand and forearm 25 radiation treatments to left axillary and chest 5 radiation treatments to both legs 5 radiation treatments to right sacrum
Gamma Knife Procedure performed at the University of Pittsburgh Medical Center by the esteemed doctor, L. Dade Lunsford. It was performed in 2005. I did not experience any significant side effects from having the procedure.
Thyroid ectomy and I am following up with radiation in June.
Radiation is to follow chemo, should begin in November.
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