What Breast Cancer Survivors said about their Radiation Therapies.
Not doing radiation
When first I went for radiation it was as I was just bloating with fluid from chemo side effects so had to wait and when I went to re-do markers they said markers were now in place so I was able to continue so that was oct/02 or thereabouts... Actually I improved while taking rad as I was so sick to start and on oxygen 24/7 I had some burns at the site and was tired as I had been in advance.
I will not be receiving radiation therapy
Radiation to start within the next few weeks.
I don't start radiation until after I'm done with chemo.
33 rads very little burning only the last couple boost treatments is all.
3-10 to 4-25 i expected some burn under the breast. i did not expect burning and discoloration on the chest above the breast. i also did not expect the radiation would be misdirected enough to give me a sore throat and horseness.
breast cancer, Breast exam, breast check,breast screening,self breast exam,breast screening device, breast awareness, breast cancer, self breast examination, self breast check, breast cancer awareness, breast examination, breast cancer screening, breast cancer symptoms
full breast may 2009 daily 20 minutes got bad at end red sore itchy hurt put lavender natural cream avalon I took spirilina to get rid of radiation i got reiki it helped
from August to October, 2009. I have a fair complexion so I did burn from the radiation and did have fatigue, but overall I didn't have that many problems with radiation.
Started radiation Oct. 25, 2006 and finished up Dec. 14, 2006. Side Effect: breast pain, very tender. And Still very tender.
I will have to do 6 weeks of radiation, after chemo
did not have radiation
Starting radiation on Monday, February 23.
This may be in my future, but just chemo for now. When I go for chemo, I tell myself: "I am one day closer to remission and without this treatment, I don't have a chance."
Over 6 weeks--it was very sci-fi--but ok
No bad side effects, got a great tan in my right armpit, nipple got leathery, maybe I am a cowgirl at heart! LOL
dates to be announced ;-)
Mammosite 5 day 2 times a day, a little sun burn. Right Breast in 2006. Left this 2011. The Breast to be removed.
10 weeks of radiation...just exhausted.
gave in so family wouldnt dis-own me...november 07 ...sick for a couple months
2 months of Radiation after surgery
What Prostate Cancer Survivors said about their Radiation Therapies.
The 39 trip to Radiation treatments were pretty anticlimactic. Thank god my job worked with me and let me leave early each day. Can't imagine if they didn't worked with me. I was lucky there! Never had any pain from the treatment and very little if any side affects. They is nothing to be worried about in this treatment as far as I'm concerned.
Burning senceation when urinating May 2000 to July 2000
to my back, ten treatments, now i need to self catherize and have a blood clot in my entire right leg
40 treatments in 2005. Difficulty holding bladder.
IMRT, 36 treatments, Sep 20-Nov 8, 2011. Side effects: the usual suspects -- GI and bladder/urinary irritation. Please write for details.
February 2003. Side Effects - ED, Tiredness, fatigue, hot flushes, Radiation burns to anus and buttocks, rectal leaking and short term memory loss.
Hd 9 weeks of IGRT, five days per week except July 4. Took about five minutes per day. It took a couple of weeks to get used to drinking a lot of water on the way to the treatment facility. At first, I couldn't differentiate between the signal to urinate or to defecate. I learned to just sit down on the toilet like a baby and that fixed that. They had really good instant brew coffee at the facility, so I'd have that - my first coffee of the day, around 10:00 A.M. Once, this caused a bowel movement while I was driving home. After that, I remained at the center to move my bowels and then drove home. I went to the gym and tried to lift some light weights around my upper body and that went OK. Right up to the last day, it was a challenge to get out of bed and go to the treatment. I don't know where or how I found the strength to stick with it. It doesn't hurt. I acclimatized to the way my body adjusted to what was going on. But it just took some kind of undefined, inner push to keep going. I was never a big eater but PCA and IGRT left me very uninterested in food. I think I "caused" my cancer, maybe by something I ate, or did wrong, last year. Treatment ended about four months ago.
Due to have in May 2014
3 months of conformal radiation at Tufts New England The radiation caused the bladder cancer and much irritation
Will begin in three weeks as I di the implants on 11th Of Oct not sure what is next
Nuclear Oncology 41 treatments 11/08 no side effects
41 sessions to pelvis area and prostate, using Orbit Arc, some side effects; dizziness, burns, medications helped ease the process
None. Had surgery not worked I would have been put on radiotherapy but thankfully it was not needed.
What Lung Cancer Survivors said about their Radiation Therapies.
single fraction radiation therapy to the pelvic bone for pallative care, Dec 2013, Vomiting
Feb. 24, 2009 Gamma knife radiation perfexion treatment The procedure is nothing short of a miracle in technology, however it requires a metal `cage` to be attached to your skull. That process is brutal, as it the pressure release when it is removed. But they got em' so it was worth it :)
Starting radiation with my second chemo on the 24th of august 2010
Pelvis (aug '07) radiation to area possibly weakened femur in hip area - Fell Jan '10 and broke left hip - surgery to pin hip Jan '10 Left Adrinal Gland Area Sept '09 - Side effects - damaged about 1/2 of left kidney and about 1/3 of pancreas Lymph node in the lower middle back May '10 Left Lung and lymph node in left arm pit May '10 side Effects -fatigue
35 radiation treatments, some sore throat and trouble swalowing.
December 2004- Radiation to large tumor in lung. October 2005- Radiation to tumor in lung and spine. August 2008- Radiation to spine. May 2010- Full brain radiation.
Radiation to leg
10 brain treatments 9/16/09 to 9/29/09. 5 treatments targeted at mass in top of right femur 9/21/09 to 9/25/09.
15 days of 30 treatments. Extreme nausea-vomiting ribs and back hurt from A:cancer B:radiation C:surgery D: all above
4-12-10 targeted therapy radiation
Radiation 08/10 to 9/10. Side effects: soar throat, difficulty swallowing, and fatigue.
35 treatments daily for 7 weeks 1998
5 days of radiation Feb, 20-26 sore throat for 2 days tired
Mevatron radiation for brain on Nov 22, 2012
Weill have gamma Knife radiation to brain lesions
radiation starts on March 8th
9/12/08 gold seed marker placement-inferior right hepatic lobe 9/22-9/26/08 Cyberknife radiation for liver metastasis
starting the 3rd week of August 2013
Radiation started 10/10/07 and I go M-F once a day for 6 weeks
Will start this next week.
October 2008 Radiation. Max dose. She can never receive it again.
Ten whole-head treatments ending on 22 April 2010. Side Effects - loss of hair.
I started radiation treatments on October 25, 2010. I'm not sure what all of this means but my total dose is 6,120cgy. I have 34 treatments total; so I receive 180cgy a day, monday through friday. So I should finish around December 13, 2010 depending on if I miss any days or if my oncologist wants to change my plan. My side affects aren't too bad. I already have some shortness of breath so I don't think it is from the radiation. I have really sensitive skin so It is kind of red, so the therapists gave me some cream to rub on it. They mentioned that my skin will get worse before it gets better.
Radiation was declined at this time.
What Non-Hodgkin Lymphoma Cancer Survivors said about their Radiation Therapies.
Expected January 2013 x 30 days.
June 30th 2009, forgot how much the dose was, it was everyday for the whole two months. Side effects: burned skin, loss of appetite, hair loss, sore throat, gastric pain.
23 radiation sessions
Intensity modulated radiation therapy, June 7th- July 12th 2012.
May & June '10. Back burning.
Radiation therapy was (25) Involved Field Radiation over 5 weeks, March 29th through May 2nd 2012. The radiation treatment itself was painless, although the mask and tongue guard were uncomfortable. The side effects were progress skin burns, mouth sores, difficulty swallowing, and nausea. The side effects subsided a couple of weeks after treatment ended.
Bunch of long words
Brain Tumor 25 years later.
Zevlin. Horrible pain in my feet, very slow recovery, severe fatigue
December 2013 - this is my second diagnosis of lymphoma. The first was last year and I had successful radiation treatment from Sept-Dec 2012 in my neck. By March 2014 all was well but I had a red eye. After 4 months of seeing my GP service (pretty useless I'm afraid) my wife insisted I see an eye specialist; as soon as I did I was diagnosed with a "residual" lymphoma in my eyes on August 30th 2013. Residual is good - it means it has not metastised, it was apparently "left over" from the last lymphoma in my neck. In October I had a CT scan that showed I was clear in all my other lymph glands - so that was good. So I had to have radiotherapy in both eyes. I'm going to keep this next bit short otherwise I could spend ages on telling you what I was told by the technicians, nurses, doctors and consultants about the technical processes they were about to treat me with. But it has all been good. Today I am writing this because, after 6 weeks of discomfort and 1 week of "superficial" radiotherapy (which never feels superficial!) and 1.5 weeks to go, for the first time, my eye doesn't hurt; it's hot inside but not scratchy. I have a good store of saline solution which is bliss when you use it….but then you need more and more, like a drug. Today I have not had to use it at all, it's 9pm UK time and 10 hours since my radiotherapy session this morning. Usually I'm in bed after spending 6-7 hours in pain with an eye patch on. I do expect the effects to get worse but all I can say today is that IT WORKS!! The basis of my optimism is that the radiation kills the cancer…..and I can happily live with the side effects because I am alive to experience them. Take heart.
luckily for me , i don't have to undergo radiation
3 docs said yes, 3 docs said no, so I did not have radiation after chemo treatments proved decent
Radiation October 2004
I hear you're pretty pukey but thats about it. Oh and it melts your innards and body externally.
radiation to left chest - side effects: feeling of a lump in my throat, fatigue
not part of treatment
23 rounds of radiation on my neck and shoulder.
relapse cancer - radiation (June, 2011)
None yet, though I get some if chemo doesn't kick it.
20 sessions of radiotherapy on my mediastinal mass which caused damage to my left lung and heart in May - June 2012. The side effect I had was tiredness.
Radiation daily for 3 weeks ending 28/6/2012
What Kidney Cancer Survivors said about their Radiation Therapies.
Palliative Radiation for bone metastases (20 Gy/5 fractions) Dec 2012 Metastron Feb 2013
My husband had radiation at the site of his neck surgery.
no treatment yet?
10 days of radiation,difficult to say what side effects were from Radiation, Sutent (oral chemo) or Aredia (IV drip for bones)
What Pancreas Cancer Survivors said about their Radiation Therapies.
no radiation or anything else just chemo
Radiation Therapy June 2011 for 5 weeks
Radiation - Jan 2013-March 2013; Reported weight loss, nausea, some disorientation on dehydration.
N/A would not help his type of cancer
Radiation - 6/14/10 to 7/22/10 Monday through Friday: Had some bad mornings starting about halfway through, but always seemed to feel better after his treatment. At night, the upset stomach side effects would kick in.
Radiation followed first course of chemotherapy, and was given for 28 days in September 2010
will be starting after Christmas
Radiation to start on Oct.25th for new tumor on 1st surgical bed thats not responding to other treatments..
Every other day radiation
Radiation once a day Monday - Friday for 5 weeks along with the 5-FU pack.
Mom chose not to do radiation
Xeloda Jan 2008-May 2008
What Oral Cancer Survivors said about their Radiation Therapies.
Loss of taste, acute mucositis, loss of hair at back or neck, blistering of throat.
33 IMRT Start date 3/18/2011. Mouth sores ( treating with Manuka honey ) stiffness in operated areas, fatigue, some hairloss in zapped area - so far not too bad... No burns yet. No taste.. Ugh!
25 treatments, 9 days in every 2 weeks - partial hair loss, starting 1st week in February this year, finishing March 18th
35 Rads Mid - 5 days a week for 7 weeks. started July 2008 - OK at first - Got weaker- drove myself first couple of weeks- lost good judgment- totaled my car- wife drove me after that...got down to an old man's shuffle at the end.
37 radiation treatments from late Sept to the end of November of 2007. Side effects all my saliva gland were destroyed. I can't hardly eat anythin because I have no saliva. swallowing is hard. I also have a different voice now. People call me sir all the time. And I stay tired still. Nerves are shot and now taking anti- depressants
35 IMRT treatments Dates: starting late August and ending November 11, 2011. Side Effects include; Dry mouth especially at night weak weight loss and muscle atrophy loss of appetite (food just tastes bad period) Mucus in mouth during the day
72 gy of radiation (before the advent of IMRT)
June 2009. not many, all related to not being able to swallow without pain. Important to get help, magic mouth wash, pain meds. Liquid diet essential
What Ovarian Cancer Survivors said about their Radiation Therapies.
Jan - Feb.2011 pelvic rad. ( for bone mets - palliative )
Fatigue nausea diarrhea dental problems severe digestion issues
low dose whole abdominal radiation + pelvic boost
No radiation done
Currently deemed unnecessary (following pathology). Will reassess in February 2012 to see of radiation of supraclavicular lymph nodes is required.
None to date
Radiation is new for me so Ill let you know as we get there
Radiation therapy to the abdominal/pelvic area; diarrhea, abdominal cramping
august 09: radiation in my stomach, new tumor 6 cm
pelvic rad. for bone mets January 2011
What Thyroid Cancer Survivors said about their Radiation Therapies.
I completed RAI-131 in December 2009 and follow up scans until 2010. Follow up ultrasounds with lymph node mapping tests continue.
Radioactive Iodine-dry mouth everything tasted like cardboard for over two months. Salivary gland infection.
7/20/10: Radioactive Iodine Therapy
Radioactive Iodine treatment
Not yet started...
Dec 21, 2009
I had 98 millicuries of I-131 on 12-10-2008. Being hypo was bad! I worked up until a week before the treatment which if I ever have to do it again I will take off work much earlier!! My sweet mom had to cook all my LID meals. I had to save my energy for work. The actual treatment was fine. I was only in the hospital in isolation for 24 hours. I drank lots of fluids and took many showers in order to get out fast!! haha
Jan 13th 2012 first round of I-131 - Loss of taste buds, bad taste in my mouth, nausea, swollen glands, and sore throat.
RAI December 2012. Currently have some dull neck pain. Scan showed uptake in thyroid bed and "thymus"
Radioactive iodine therapy Dec. 17, 2013.
Soon to start high dose of Radioactive Iodine. Meet with doctor next week.
Radioactive Iodine treatment a week before Christmas....NO real immediate side effects
RAI-Radioactive Iodine Abalation on 9/8/2009-some activity noted in the thyroid area, but no where else.
RAI 131 May 2003, Feb 2005, June 2010 side effects: fatigue, brain fog, mouth dryness, dry skin achy joints especially hips.
RAI Dec. 18, 2009, 154 mCi. Permanent damage to both parotid glands.
Radioactive Iodine: July 2004
scheduled for RA on November 17
Radiation scheduled for June 30 in Dallas. Body Scan scheduled 2 weeks after radiation. Goal is the radiation will kill any cells remaining in my body.
July 27 - stayed at the hospital for 4 days then another 7 elsewhere (have a toddler) and didn't want him effected.
I will begin within a month
4 rounds of I-131, roughly 500 millicuries each time: 1. May 2005; 2. December 2005; 3. December 2007; 4. December 2009
35 RADIATION TREATMENTS IN 2011, DEVELOPED BLOOD CLOT IN THE LUNGS BEFORE MY 34TH TREATMENT.....
Not yet scheduled
I-131 treatment, Sept 2010. Had 4 days in isolation, felt quite nauseous initially with relatively mild neck pain, and then tiredness for 7-8 weeks following. Am now experiencing vaginal bleeding for past 8 weeks, starting about 2 weeks after treatment, although its difficult to know if this is related to the I-131, or whether it is related to thyroxine levels. Am concerned over long term side effects, particularly fertility as we have not yet had a family and would like one!!
Eight weeks after surgery I had to go in for a Radioactive iodine treatment. The hardest part of this was being away from my family for a week. In regards to side effects, I had some sores in my mouth and an upset stomach for a few weeks.
What Stomach Cancer Survivors said about their Radiation Therapies.
Radiation began 6.21.13 - Extreme Tiredness, nausea,
Left skull base October'09. Dehydration, hair loss, weight loss, ringing in ears with a pressure that felt as though ears were going to explode. Blisters on ears both inside and out and raw peeling facial skin. January '10 another round of 15 treatments on pelvic area and spine. Unable to walk, numbness of entire lower body and left leg. Effects still going on to left side of body. Feet freeze like they are always in a vat of ice. They are very heavy feeling as though they are being dragged. Hole through the center of back. I assume this is where the radiation burned thru the body.
Doctor saids he want help.
radiation 1989 - ignorance is bliss....I didn't find the treatment too bad, maybe 'cos I'm able to block out the "what if" questions (or as my wife prefers to put it, I am too stupid to get worried)
What Brain Cancer Survivors said about their Radiation Therapies.
1/12/12 - begin daily radiation for 6-7 weeks.
August and September 2007, Hair loss at site, nausea, redness and burning at site. August 2009, Minimal Side Effects
Radiation - 6 weeks ends August 24th
Started radiation November 9, 2011 -6 week course - to early to see much reactions as yet
non so far she hasn't healed from surgery
33 sessions targeted computerized radiation with mask began September, 2006 Side effects: extreme fatigue, partial loss of hair, dry itchy scalp, burned scalp
5 minutes of radiation on my brain. February 2,2010
radiation daily for 6 weeks. started with just burns on my head. get the blue light special during radiation. hair started falling out this weekend (9/26)
Mom had radiation - only hair loss. Dad had radiation - trouble swallowing.
February-April 2013 lost hair, sore throat, skin burns
6 weeks of radiation - hair loss - tired.
42 days of radiation. Lost my hair, fatique, nausea, headaches.
Picking neuro-oncology now
every 5 days then off for two days for a period of 3 weeks. Loss of hair and VERY tired afterwards
Radiation started in the end of Feb. went 8 weeks of treatment-fatigue, hair loss in area of tumor, memory loss
I started radiation therapy in late February 2010 and finished my six weeks of treatment in the beginning of April 2010. It made me incredibly weak and tired. I was also having a LOT of seizures during this time and they made the lethargy worse. My hair fell out where the radiation was focused. I could have sported an awesome mohawk but with my hair down or covered by a scarf people claimed they didn't notice. Two years later I'm still missing hair on the left side of my head. No ponytails for me but I'm getting laser hair growth treatments for free from my hairdresser. I also lost part of my left eyebrow but people say they don't notice it. (I think people lie to make me feel better about all of it.) Parts of my head felt hot and dry. The left side of my head still feels dry and itchy sometimes. I started losing hearing in my left ear in the summer of 2011. I can still hear from it. I'm not totally deaf, but when allergies are bad or I have a cold I hear like I have my finger stuck in my ear.
Radiation therapy from 04/06/2013 to 05/20/2013. I really did not have many side effects.
6 weeks of Radiation. finished last treatment 6-28-2011
started 9/13/2010-weekdays, mostly tiredness
Starts radiation 9/12/11
6-08 IMRT, It made me tired!
Alot of skin burning and pain associated with that.
2005- 30 days
Just started radiation on 1/3/2011 Completed Radiation on 2/17/2011
What Multiple Myeloma Cancer Survivors said about their Radiation Therapies.
November 2010. No side effects.
Was nauseated after almost every session. Due to the back pain it was extremely hard to get from the stretcher to the table. It always felt like i was getting stabbed in the back. Loss of appetite.
12 treatments to shrink the sacrum tumor 1/29 to 2/29 side effects none
one very strong round of total body lymphathic radiation
What Colon and Rectal Cancer Survivors said about their Radiation Therapies.
Radiation therapy for six weeks resulting in damage to bladder and intestines.
5 weeks of radiation for colorectal tumor,
4th week in radiation
28 days of RADS ,a small amount of weight loss.tired,raw butt
Just finished six weeks (28 treatments). Fatigue, diarhhea, extreme pain while going to the bathroom (probably due to a fissure that I got because of being constipated from the anti-nausea meds, burning of the skin,sensitivity to the sun, fatigue). Symptoms got progressively worse from week 4 to about 2 weeks after completing the treatments.
Bart has undergone whole brain radiation. Brain tumor surgery via Gamma Knife.
Radiation began in June 2008 for 25 sessions. Suffered anus hernias and a damaged tail bone. The hernias were treated with a sith bath and the tail bone recovered by March 2009. Minimal hair loss around the pelvic area.
Radiation for 28 days before surgery, totally demolished my skin at the bottom.
25 sessions, last one will be on March 10th--actually i have 3 more after March 10th. next wave of chemo will start after i have port surgery. (June 2010 sometime)
Dec. 29, 2009- Feb. 5, 2010 Fatigue, sores on bottom, bone thinning in my sacral area
After Chemo I will have four weeks of radiation with 5FU.
Started March 22nd, some pain in the rectum a lot of mucus, tired for 2-3 hours after treatment
not yet, but it is coming~
Radiation five days a week for five and a half weeks, with breaks due to low platelet counts and burns. Extremely painful bowel movements, severe skin irritation.
my mom is seing her radiation onncologist august 31. That's when we are going to find out the date of her first treatment.
SBRT-nausea, gastric pain Just about to have SIRT and am very excited because this will treat my whole liver and I am feeling positive that maybe this will slow down the recurrence.
from jan/08 to march/08 severe vaginal burning,fatague, loss of appetite,vomiting.
Fatigue, a hot tush
Started radiation 9-14-2009, radiation of pelvic area. Will be for six weeks, everyday five days a week. No side effects yet. 5fu is now constant infusion via pump and Oxaliplatin is halted until end of radiation.
10/12/09 -11/20/09, 5 days a week for 5 weeks, 6th week went 2x a day. Bottom became very sore as the treatments progressed & bouts with diarrhea.
25 radiation treatments in May/June 2009 Burning around stoma site, blisters and burning in my vagina. Still getting a random blister from the radiation. Made me extremely tired, and nauseated. I had chemo during radiation
Radiation therapy 5 1/2 weeks. Started 7/12/2011. Radiation in combination with xeloda. Tired and weak. Low energy with uncontrolled diarrhea.
I had radiation therapy in 2002, 2003, 2004 and 2005. The only side effects were fatigue and on one occasion, a bowel blockage (this was before the colostomy).
28 doses of radiation.
What Liver Cancer Survivors said about their Radiation Therapies.
i will tell you
Radioactive spheres injected into the liver. May and September 2009. Thought it had worked but didn't
What Cervical Cancer Survivors said about their Radiation Therapies.
Started external radiation on 2/4, to have 25 treatments; then 2 "internal" ones fatigue, but can't blame it all on radiation
45 minute a session, 5 days a week-December 2008-February 2009 with a boost in June 2009. rectal pain, pelvic pain, abdominal cramping, diarrhea, fatigue, dizziness, funky taste in my mouth.
I have one more week of radition and i am done with my 6 weeks of treatment. The external radition treatments were a piece of cake. It took about 10 min 5 days a week. They dont' hurt and i never really had any side effcts until this week. A little burning and itching in the private areas but tolerable. The bad part was th internal radiation. I don't want to scare anyone but they do hurt somewhat. We are not talking the worst pain of your life but def uncomfortable. The first day is the worst and it gets better from there. The first day for me meant a cathedar in place, then something in the rectum, then the vaginal cylinder in place. I stayed like that for about an hour while they did the treatment planning. Then they did the treatment which lasted only 6 minutes. I did cry through it because having every hole plugged up is just not a natural thing girls! The second one went better. They only put the vaginal cylinder in and take a few xrays and then the 6 min treatment. Still unconfotable but muc easier. I have 2 more to go. They do offer you sediatives and mild pain pills, but i handled it without that stuff. But it is there if you request it.
Targeted radiation five days a week for five weeks, beginning April 27, 2010. Fatigue; skin darkening; bowel irritation; queasiness; hair loss in radiated area (yay!).
Tired. Nauseau. Diarrheia
Full radiation daily 6 weeks , 3 internal radiation treatments
internal radiation is the worst thing in the world. i called it the lightning rod treatment
For me radiation was a breeze..I had no side affects outside of hairloss in the treated area. I also had 2 internal rads which seem to last forever but I made it!!
Done and it sucked
diarrohea and severe pain of the bowel and stomach cramps, off food for a few weeks
Just started Radiation, Monday Wed Fri for 10 wks Increased nausea!!!
28 external and 5 internal rad.
Rather not discuss
menopause (there had to be some bonus!).
alot of fatigue, upset stomach, darkening of skin, irratated skin in area involved, sores from radiation--started treatment in February 2006 (28 sessions of external pelvic radiation)
Radiation Oct 07-Dec 07 5 weeks of daily external radiation, then 3 days of Brachytherapy in hospital. Burning in pelvic area, frequent loose stools (5-6 times a day) frequency and urgency with urination. Really bad fatigue, lasted a long time after. Oct 09 External radiation to vag 10x (2 weeks). burning in vag/urethra, pain on urination, radiation burns on outside of thighs (entry points) fatigue.
Internal and External Radiaiton-2nd and 3rd degree burns on affected area-very painful
Internal and external radiation 5 days awesome for 20 minutes
Had external and internal (brachytherapy) radiation over a six week schedule. 28 external rounds and 5 internal rounds. Radiation was concurrent with chemotherapy (cisplatin) for 6 weeks once a week. Seriously fatigued for at least six months post treatment.
started 1/6/09: fatigue and upset stomach, loose bowels
one week of traditional radiation, then 4 weeks of tomography. possibly 3 brachy treatments (dont know yet). so far i have completed the first week of traditional radiation and coming up on completing the first week of the tomo. started with diarrhea after the first week of traditional. lots of cramping then whoooosh! i have lots of gas and lots of burping. afraid to burp as sometimes i think it just might make me barf! ew.
fatigue, constant nausea, uncontrollable bowels, diahrea from hell!, dehydration. A couple of blisters on my hiney. The good news: the bleeding stopped after the second radiation treatment. Brachytherapy, 4 sessions, was interrupted for a blood transfusion for critical low blood cell counts.
Weekly internal radiation Daily external radiation for six weeks
7 weeks of external radiation 59 hours of internal radiation (brachtherapy) 4 weeks of chemotherapy (Cisplatin)
What Larynx Cancer Survivors said about their Radiation Therapies.
35 radiation treatments starting May 2
36 total radiation sessions February 02 - March 25, 2011. After about 13 sessions my throat pain required ongoing codeine relief, and the skin on my neck began showing signs of intensifying sunburn. By the end of February my voice went missing and is just starting to return as June begins.
First treatment December 19,2011
Nov 30th-Jan 14, 2010 Neck and lower face was a serious sunburn, Lots of swelling on the inside, no appetite-lose your taste buds where everything tastes like card board. Fatigue that is hard to describe.
What Acute Myeloid Leukemia Cancer Survivors said about their Radiation Therapies.
Total Body Irradiation, June 2012. Side effects: vomiting, ovarian failure (now on hormone replacement therapy)
Recieved 4 days of fullbody radiation for the Bone Marrow Transplant. I actually didn't feel too bad but the fatigue was huge.
January 2010. Nausea. Later/cataracts. General weakness
Treatment for osteosarcoma, three years ago.
No radiation so far. Thank God!!
What Testicular Cancer Survivors said about their Radiation Therapies.
had no treatment
What Acute Lymphocytic Leukemia Cancer Survivors said about their Radiation Therapies.
Never had any
Full-body radiation 2 times daily for 4 days. Dry mouth and ulcers in the throat and intestines.
Total Body Irradiation, 8/10/10-8/13/10. Felt a little tired. Make sure you eat well prior to radiation treatments. I got a little "sun burn."
What Anal Cancer Survivors said about their Radiation Therapies.
Radiation for 6 weeks that stretched to almost 12 due to severe burning around Week 4 requiring several breaks until end. No menstration for several months but not until a few months after radiation. Severe internal scar tissue, recently discovered bladder issues that started a few months ago could be attributed to radiation.
28 treatments IMRT by end of 2nd week burning, itching, diarrhea last treatment 12/6/2010
Start Date 11-30-2009-6 weeks of radiation- IMRT
7 weeks, 7 sites. I suffered severe burns to the groin/perineum (hyper response) Hospitalized for 2 weeks blood tranfusion, pain control and burn care. 2013- 2 weeks intensified beam radiation right lung hilar node region
Pelvic radiation starting aug 27th
6 weeks of radiation was prescribed. This was interrupted by a 5 night stay in the hospital. Side effects included horrible burns to the bikini area, inner and outer labia. It was especially bad during the last 2 weeks of treatment and for the week following. Drained my energy. Lasting effects so far have been pain and stiffness in the pelvic area and stenosis.
Standard anal cancer radiation w/chemo. Burns and low blood counts.
I started radiation on December 29, 2009.
IMRT daily from June 11 to July 17, 2012; the last 4 were boosts. Although I had proctitis and cystitis and would wish neither on anyone, with good drugs I got through. Within a month of treatment end both were fully resolved. No significant skin toxicity. No signs of vaginal stenosis.
Extreme internal and external anal burning particularly during bowel movement. Additionally, IMRT included pelvic radiation so I'm now working therapy for vaginal stenosis. Vaginal dryness is extreme.
I had an amazing radiation oncology team. In February 2010 underwent 6 weeks of radiation combined with cisplatinum and 5FU. The side effects are harsh skin burns, diarrrea, dehydraition, but I made it through it without a break and recovered in about 3 weeks with the incredible support of the radiation oncology team.
29 radiation treatments. Second degree burns beginning 3 rd of 6 week treatment. Dirarrhea also began around that time.
32 radiation treatments starting June 6th
She has had 6 weeks (5 days a week) of radiation. She is done on 1/21.
started 8-4-09 ongoing
has not started yet
Severe burns. Total loss of skin to top of thighs & labia - ouch!
6 weeks intense pelvic radiation. Began 2/14/2011 final treatment 4/6/2011. I handled it very well for the most part, but then we had to take a two week break because my skin was so burnt and I was in so much pain that I needed some time to heal.
Radiation started July 7 Burns started the end of the following week. Burns worsened the 3 week, to the point that there were blisters all around my anus and vaginal area. Doctors were suprised at the intensity of the burns. Start of 5th week, 2nd round of chemo, but burns got so bad by the Wednesday, that on the Thursday, I had to take a 10 day break. Burns healed incredibly fast and began treatment 10 days later. One thing I noticed was that in the beginning I was being set up for the radiation differently with each different technician... when I told the doctors that in week 4, he had the previous sessions scrutinized and from that time on, there was a distinct difference AND consistency in the setup process. I don't know if in the long run it will affect the effectiveness of my treatment or not. Only time will tell.
2/8/10 - 3/23/10. Severe burns to genital area, explosive diarrhea, lower intestinal problems, UTI.
3rd degree burns on my butt and pubic area.
52-54 gray over 30 - 35 days starting on Dec 6, 2010... Had second week of chemo starting on my birthday, Jan 3rd, 2011. Cummulative effect of chemo and radiation made side effects of extremely painful bowel movements, constipation, diarrhea and fatigue unbearable. So radiation treatment was stopped for about 10 days. Resumed on an alternating day schedule until completion first week of February. I thought it would never end... then I thought I would never start to improve. In both cases I was wrong.
* Jul 13/09: met with Radiologist * Jul 17/09: got markings for radiation; no "Uranus with many moons" tatt as requested! * Aug 4/09: started radiation every day (it continues for 6 weeks until Sep 15/09); the treatment itself is painless
Pelvic radiation; July - September 2006 Side effects became so severe required hospitalization during final week of treatment.
What Bone Cancer Survivors said about their Radiation Therapies.
2002 45 mins a day, 5 days a week, for 6 weeks. Burns
I wanted another baby hopefully if chemo didnt kill my ability
What Eye and Orbit Cancer Survivors said about their Radiation Therapies.
Radioactive plaque 09/09 Extreme tiredness at times, still get that. Sore eye for a short time, nowhere near as bad as I had imagined:)
Plaque brachytherapy - July 2003. Plaque inserted on Friday morning and removed Monday night. Long, long weekend in isolation and having to carry a geiger counter around. Eye was puffy, bloodshot for a long time, painful and vision deteriorated quite rapidly. Now have retinal detachment, pretty lousy vision in that eye and grey areas on the sclera (white of the eye) that may be burns from the cauterisation tool or where the sclera has thinned due to the radiation. Last November (2007), it was noticed that the edge of the tumour is still growing in some areas and I have therefore had to have these treated with Transpupillary Thermotherapy (laser).
What Nose, Nasal Cavity and Middle Ear Cancer Survivors said about their Radiation Therapies.
Radiation therapy starts tomorrow. 33 treatments @ 200 for a total of 6600.
What Nasopharyngeal Cancer Survivors said about their Radiation Therapies.
Radiation given from January to April 20 Side effects: loss of saliva, vomiting, weakness, dehydration, esophagus shrinkage
Started radiation on 11/4/13 after 6 weeks on induction chemo
35 days of head radiation, dramatic weight loss, burned skin, mouth and throat, had peg tub placed.
1st" dec 2002 - Jan 2003 to neck - saliva affected, have little saliva have to clean mouth all the time. 2nd round: Dec 2008 to lump in throat as x-ray showed nodules in both lungs
Meeting with Radiation Therapist on May 3rd to determine how much treatment will be necessary.
radiation therapy ending 5/29/12
What Ureter Cancer Survivors said about their Radiation Therapies.
Linear radiation March to May 2007. Three brachy-radiation treatments in June 2007. Side effects some bowel problems, diarrhea.
What Esophagus Cancer Survivors said about their Radiation Therapies.
Too many radiation treatments to count.
5 weeks of radiation September - October, 2012. Very tired. No burns at all to skin. I did what the doctors/nurses told me to do! Very, very sore throat. Could barely swallow but forced soft foods the entire treatment.
radiation from 11/1/97 to 12/15/97
28 days of radiation
currently undergoing treatments
Two weeks of radiation was fine. Fatigue.
The Radiation burned my throat and cause my taste bud to malfunction I had to be tube fed for about 4 months I will suffer for dry mouth for life I'm told.
Radiation to esophagus and abdominal lymph node March/April 2008 Radiation to supraclavicular lymph node January/February 2009
What Tonsil Cancer Survivors said about their Radiation Therapies.
I will start radiation on Monday, October 19th, Monday through Friday for seven weeks.
Jan 21- trush, redness and swelling on tongue and mouth, fatigue
Started radiation on Nov. 16th
33 radiations finished Oct. 6, 2008
IMRT November 2011 - January 2012
8 weeks of radiation tx. until April 4, 2011. Bronzing (nice phrase for 2nd degree burns) of neck. N & V. wt loss. loss of job. loss of salivary glands and sense of taste (I miss chocolate)
I had 40 days of IMRT from below my cheek bones to above my shoulders starting in September 2006. Around day 25 i developed 2nd degree burns and was admitted to the hospital for about 10 days to recover. A mild case of Stevens-Johnson Syndrome they said. Long lasting side effects are dry mouth and difficulty swallowing.
Jaw tightens up when talking, need to stretch jaw muscles (stretch open mouth with sticks) 3 times daily (radiation). Need to fluoride teeth once a day. Lose saliva at night when I lay down and need to keep water around.
Nerve damage that was painful for several months.
yes, 5x/week for 7 weeks...started on 5/19/09
February 25 started 1 of 39 neck radiation. 28 full neck radiations and 11 right side (cancer side) radiation. Mucousitus at 3 weeks. Lost taste and salivary at week 2. Thrush at week 2. Feeding tube at week 3. Took 1 week off (week 5) due to throwing up for 7 days. Could not swallow very early and throat trashed way too early. Couldn't use Caphasol, "Magic Swizzle" numbing meds couldn't get down.
Radiation coming up
35 seventy minute TomoTherapy with Hyperthermia sessions starting Wednesday, November 9th 2011
Rad starts on Jan 20th, 2014 ends Feb 28th, 2014
Radiation therapy 35 sessions Aug-September 2010. Severe mucositis, external burns on neck, dry mouth, inability to swallow. 2011 Aspiration pneumonia January and February
I no longer have saliva, the taste of food is terrible. My thyroid is out of whack!
01/07/07 34 sessions side effects facial hair gone no bad thang!! and the one most of us suffer from dry mouth a real pain but hey in the uk water is everywhere isn't it?
35 days of radiation to left side of neck only, from jaw down to collar bone to mid-line in front of neck.
In process of getting everything set up.
Yes - 27 daily treatments beginning 2-16-11
Six weeks radiation estimated to begin week of 9/10/12
Scheduled 7 weeks IMRT start 3/19
Begin IMRT 9/10/13
2/3/14 - 3/19/14 : 30 Radiation treatments (Tomo) Too many. See post on 3/19/14 for top ten list.
Started Treatment on May 24, 2011... last treatment July 12, 2011 ...mostly tired thru treatment, loss of saliva glands on left side, loss of taste buds
What Endometrial-Uterine Cancer Survivors said about their Radiation Therapies.
Started pelvic Aug 2, 2009 for 28 days. Finished with no side effects!
Started Sep26 2011. Every weekday for 7 weeks. Last treatment (high dose) planned for 11/11/11.
initially told not need 7/6/09 told raDIATION WILL BE NEEDED WHEN I HEAL FROM MY SECOND SURGERY..MY SURGEON NEVER CHECKED THE NODES WHEN HE DID HYSTERECTOMY I HAD TO FIND A NEW SURGEON AND HAVE LYMPHN NODE REMOVAL 8/6/09 27 NODES REMOVED NO CANCER
Started radiation in mid-June 2009 - 25 treatments are planned
28 external and 3 internal rad.
August 14th 29 days and then 2 internal treatments. Side effects irritated skin, diarrhea, less energy.
25 cycles of daily external radiation. June-July 2011
5-6 weeks of radiation planned after chemo is completed
Feb-April 09 Internal (3x) and about 6 weeks of external, monday thru friday. I only had diarrhea once and no other side effects, people were so nice at LIJ.
Don't know yet...
Haven't started yet. Need advice.
Started 4 weeks after chemo. 25 external for 5 weeks. The only effects were bouts of dysentery and pain in the area treated, no skin problems. You feel worse toward the end of the week as it builds up. After #25 I had one internal treatment per week for three weeks. Radiation made me exhausted every day because it's such a grind. Talking to other patients you learn it's quite different for everyone.
annoyed bowels, extreme fatigue
recommended to start in July
About halfway through my 25 radiation treaments extreme exhaustion, and lack of control on bowels, which cleared up few weeks after radiation stopped.
Started 5 weeks of external beam radiation in June of 2008. I had alot of nausea and loss of appetite, painful radiation burns. Damage done to ureters which caused me to have additional surgery in July and August of 2008.
25 rounds external, 3 internal, starting in October, 2007, finished in November.
Radiation Tx for Vaginal Tumor - 4/20/09-5/5/09 (mom is fatigued, loss of appetite) Radiation Tx for Metastasis on Ribcage - 4/27/09-5/8/09 Mom developed a UTI that went unnoticed - doc said it was normal pain - this delayed her chemo tx.
I had several rounds of a newer internal radiation for 3 months following surgery. I felt great each time for the 1st day or two, then became very tired.
brachy UGH UGH UGH!!! Not the most pleasant experience for sure!! 4 treatments and side effects to look forward to vaginal stenosis... so far no side effects 2 down 2 to go
Not good with dates...radiation for 6 weeks, 5 times a week for about an hour each day. Still can't eat much fruit, sometimes no fruit for days and days. This still happens, even after 4 years. Probiotics seem to help
I just completed 5-weeks of radiation therapy on January 11. Side effects included an annoyed bladder, loose stool, light fatigue.
After chemotherapy ends, I will get internal and external radiation for the endometrial cancer
March 2010 - April 2010 29 external and 3 internal rads. horrible burning, fatigue, diarhea, UTI
What Sarcoma Cancer Survivors said about their Radiation Therapies.
Radiation treatments started February 4 and end on March 23, 2011. My prescription is 66Gy over (7weeks) 33 treatments. Locally, the area being treated hurt pretty bad from being burnt to a crisp, but otherwise I still had lots of energy and I felt great.
Radiation from November 2010 - January 2011. Radiation burns toward the end, low blood counts, and always tired.
1 treatment of Radiation ; in Oct 2008 . Side effects - Horrible burn and pain . Alot of fatigue .
Like having a severe sunburn on the back of my throat. I could not even swallow my own saliva. I lost 30 pounds and became extremely dehydrated.
5 weeks of radiation - feeling tired and extremely fatigued after the sessions were over, radiation burns on back on leg that developed into very painful blisters. Radiation oncology nurse was so caring -- she made up an ointment to use that took away the pain and helped with the healing.
Radiation (Stereotactic Body Radiation Therapy)
Her first doctor didnt do enough or the right kind of chemo....the INSURANCE COMPANY wouldn't pay for the correct treatment.
Radiotherapy for 5 weeks from last week of june 2010. My skin became very sore and a section of it peeled off. My skin has darkened there and has stayed hard in that area.
Still to be determined.
Radiation I had every day at Palmerston North Hospital for 7 weeks - that was the maximum I could have before it gave me cancer!! Started in early Feb 2009 through until April 2009. I got extremely tired, exhausted with no energy at all! I also got a small radiation burn, but was controlled with creams and ABs.
2005 - on L5; 2007 - on L3; 2011 - on left femur & L4
To control size of tumor to right pelvic area
Finished radiation therapy on around December 24, 2010. He had six weeks of radiation therapy, and had to receive treatments five days a week for those six weeks.
I start exact radiation on 6-19-2012 for 6 weeks
December 2012-February 2013 Proton Beam Radiation, Massachusetts General Hospital
What Parotid Cancer Survivors said about their Radiation Therapies.
1st treatment 9/12/12 left jaw in pain from being stretched open and pushed by the mask; by 10th treatment, almost impossible to swallow, even water, because throat is so tight and sore and mouth & tongue are so sore
What Skin Cancer Survivors said about their Radiation Therapies.
could have had radiation but chose Mohs surgery
What Throat Cancer Survivors said about their Radiation Therapies.
IMRT radiation started 11/17/09. Side effects were almost immediate - nausea and tiredness. Not too long before I lost all appetite. Thank goodness I have a PEG tube.
Radiation for 33 times
NONE - Refused radiation on six separate ocassions
April - June 2009 Loss of Taste - most regained Loss of Saliva Production - some regained 35 Exposures Amifostine Injections to the Abdomin each day
Due to having a bit of tumor left, I am waiting to find out if I will need radiotherapy.
Every day, Monday through Friday, starting May 4, 2010. Side effects are extreme sore throat, dry mouth, fatigue, loss of taste buds. Taking pain meds for throat pain. The worst part for Tim is wearing the radiation mask.
Months of radiation that covered both my head and chest area. I no longer have salivary glands and I suffer from dry mouth (xerostomia) -- which means that I drink about a gallon to a gallon and a half of liquid every day. Taste has dramatically diminished and has been altered.
33 rads treatments starting January 2009... in which it did not touch the cancer .I had a small burn on throat from rads.
Started December 14, 2010. Five days a week treatment. Severe oral mucositis and recently the first week of January, 2011 developed chronic skin abrasions on my chin and upper lip area, which made me look a monster! That being treated with bactroban.
TOMO Radiation started Feb 23, 35 treatments that are Mon-Fri until April 12th.
I'm at #17 out of 35. Burning and dry mouth.
What Tongue Cancer Survivors said about their Radiation Therapies.
Seven weeks Jan 4 thru Feb 19, Mon-Fri of TOMO radiation. At the end, severe burnt neck especially my right neck area. Severe sore throat.
Burned neck and throat and burn on neck got infected...my skin peeled, but little scaring
I started My radiation the first week in July and had alot of side effects. Many many sores in my mouth and thrush constantly. Also i was told i was very sensitive to the radiation and had so many sores and burns on my neck. I have a lot of scaring left.
Side affects were hideous.. She experienced a very deep painful burn on her neck.plus a percutaneous endoscopic (PEG)
July 6 Radiation and 1st Chemo begins
60 Grays (Gy) of radiation
Radiation to begin next week, 5 days a week. Began on 8/23/12.
I've already been through IMRT (radiation) for Tonsil Cancer in 2009. So, they can not do radiation to the same part of the body twice.
What Nose Cancer Survivors said about their Radiation Therapies.
Radiation side effects included loss of taste, trouble chewing, sore gums and teeth
What Ear Cancer Survivors said about their Radiation Therapies.
Proton Therapy test
What Jaw Cancer Survivors said about their Radiation Therapies.
Dry mouth, and due to the radiation I have osteonecrosis of the jaw and now in hyper baric chamber treatments so I can have all my teeth removed as they are all falling out on there own.
What Hodgkins Lymphoma Cancer Survivors said about their Radiation Therapies.
Cobalt Radiation on full chest and abdomen area's. I am proud of my 'Tatt's'! One thing that is just part of it all is the Pneumonia and other illnesses that comes from the low immunities can be some of the scariest and biggest battles we face. Too, with every new procedure and surgery, at least for me, my recovery times seem to be much longer. But despite the illness and weakness that chemo and radiation leaves you in ... if you are still breathing it is a gift.
86 treatments of what was referred to as Cobalt 80,full scan and mantle, 1975 & 1976.
I will start radiation after the chemo ends!
After chemo - 3 weeks of radiation was a walk in the park for me! I took up raquetball (not generally recommended by any doctor, other patients etc!)
Radiation therapy (RT), 2000 rads for 22 days, were given to areas of initial bulky disease. (middle of chest cavity)
Received 5 weeks of localized radiation to the chest
No never had radiation.
Haven't started yet
Start treatment on the 25th, chemo is the only treatment on the menu so far.
I didn't have an side effects from the radiation!
Radiation in July 2008. I was very fortunate and blessed not to have any side effects from radiation.
radiation was brutal and side effects were phnuemonia
Radiation therapy to field covering the mediastinum and bilateral hilar areas - 180 cGy per day to a total of 1980 cGy over 11 fractions. Radiation to the para-aortic and lumbar fields - 180 cGy per day to a total of 1980 cGy over 11 fractions. (1/30-2/13/92). I had persisting problems with nausea and vomiting throughout much of the radiation but it was reasonably controlled with Phenergan.
What Acute Lymphoblastic Leukemia Cancer Survivors said about their Radiation Therapies.
June 28, 2010-June 31, 2010 - IBR - twice a day for 15-20 minutes a session.
What Uncategorized Cancer Survivors said about their Radiation Therapies.
image guided IMRT starting 10/16/06
haven't started yet
See my website
Starting April I had 25 radiation treatments 5 days a week for 5 weeks. It burned the outer part of me to the point that my skin blackened. I could not walk or sit without hurting,even standing made me weak. Then I had a two week break before I went into the hospital for internal radiation treatments.I was to have 5 high dose treatments done all in one week where i would go in the morning for treatment and at night for another treatment. Monday I went in to have it surgically put in,had a treatment...had another treatment that next day. Then the doctor decided it could be better so he took it out and made some changes.He had me come back 2 weeks later and finished up the last 3 treatments by putting me back in the hospital and surgically implanting the radiation device again.My doctor was very particular about how he did everything and he took such good care of me.
Months of April and May. I had swelling of the feet. Not sure if it even worked.
25 External Rads 3 Days of brachytherapy, the worst experience, very painful, had to lay on my back for 3 days, when they removed the 27 needle implants it was most excruciating pain I have ever experienced. The pain meds in my pump made me very sick. I have had no lasting side effects from my rad treatments. I am very fortunate. Re-treated 2/16 thru 2/18 with Cyberknife for relapse.
yr 1990 yr 2010
I was radiated on a Belly Board, a little different from what I have read on most web sites for Anal Cancer. I was face down on the board, and the machine circled me, doing 8 "zaps" as it went. I seem to have fewer bowel issues, due to this method of treatment, than most I have read about. My radiologist said it was more bowel sparing.
Image Guided Radiation Therapy -- a form of high-dose radiation. While it promises low chance of incontinence and ED, I have not escaped mild ED and take Viagra and Cialis, which both work pretty well.
I had recently in my head. Feels burns in the local.
30 radiation treatments to left hand and forearm 25 radiation treatments to left axillary and chest 5 radiation treatments to both legs 5 radiation treatments to right sacrum
Gamma Knife Procedure performed at the University of Pittsburgh Medical Center by the esteemed doctor, L. Dade Lunsford. It was performed in 2005. I did not experience any significant side effects from having the procedure.
Thyroid ectomy and I am following up with radiation in June.
Radiation is to follow chemo, should begin in November.
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