What Breast Cancer Survivors said about their Radiation Therapies.
Radiation to left side 2002 and right hip in 2006, surgery and radiation to left femur in Jan.2012
Over 6 weeks--it was very sci-fi--but ok
dates to be announced ;-)
full breast may 2009 daily 20 minutes got bad at end red sore itchy hurt put lavender natural cream avalon I took spirilina to get rid of radiation i got reiki it helped
April-May 2009. Severe burns.
Radiation. Linear accelerator every day for 10 days. I had a UTI & had to be admitted for 5 days Then went back for 3 days.
from August to October, 2009. I have a fair complexion so I did burn from the radiation and did have fatigue, but overall I didn't have that many problems with radiation.
March and April 2008 - part of my skin peeled just like a regular sunburn; tenderness months afterwards
october 2008,, no side effects yet
Well, radiation, wasn't to bad & yes if made me sick to my stomach sometimes. But I think the worst for me was the burn it left on my breast, that hurt the most. I was given cream to help the burn & it pretty much took care of it. I was lucky in that area, I only had to take 7 wks. of radiation & my mom & I had to drive 75 miles every day for it. I think that was the worst, casue with a sick stomach, the ride was not so good.
Still to come
36 days straight on the last few I had to be remarked because my skin was liquid. August 2004
No bad side effects, got a great tan in my right armpit, nipple got leathery, maybe I am a cowgirl at heart! LOL
12/20/10 - Radiation treatments begin. 31 treatments total; 5 boosts towards the end. No side effects. Used fresh aloe vera gel and the bottled one. Will complete rads first week of 2/11.
Not doing radiation
I did six weeks of radiation starting on October 26, 2005. What a whirlwind those months were!
Mammosite Radiation scheduled for 9/10/2008
See Profile cardiomyopathy
Radiation October 2010, brachytherapy October 2012, radiation again February 2013 real bad burnt skin from last radiation
35 sessions of radiotherapy. Side effects - Local skin irritation. Fatigue.
30 treatments started 8.8.11 and finished 9.23.11. It looked like my left boob went to Tahiti without me .. only one small skin break. I was lucky. And tired. Couldn't have made it without a daily nap but I was also fighting the MRSA infection, so I'm not sure how much of my fatigue was the rad tmts.
33 rads very little burning only the last couple boost treatments is all.
33 laser targeted treatments. The staff is very nice. Hard to explain the treatments are quick! I used a mix of 100% jojoba oil & 100% vitamin E oil slathered on at least 4 times per day. I had only a minor sunburn effect except the last week I got a blister on the area of the lumpectomy I think because they were targeting only that area.
What Prostate Cancer Survivors said about their Radiation Therapies.
The 39 trip to Radiation treatments were pretty anticlimactic. Thank god my job worked with me and let me leave early each day. Can't imagine if they didn't worked with me. I was lucky there! Never had any pain from the treatment and very little if any side affects. They is nothing to be worried about in this treatment as far as I'm concerned.
Burning senceation when urinating May 2000 to July 2000
to my back, ten treatments, now i need to self catherize and have a blood clot in my entire right leg
40 treatments in 2005. Difficulty holding bladder.
IMRT, 36 treatments, Sep 20-Nov 8, 2011. Side effects: the usual suspects -- GI and bladder/urinary irritation
February 2003. Side Effects - ED, Tiredness, fatigue, hot flushes, Radiation burns to anus and buttocks, rectal leaking and short term memory loss.
Hd 9 weeks of IGRT, five days per week except July 4. Took about five minutes per day. It took a couple of weeks to get used to drinking a lot of water on the way to the treatment facility. At first, I couldn't differentiate between the signal to urinate or to defecate. I learned to just sit down on the toilet like a baby and that fixed that. They had really good instant brew coffee at the facility, so I'd have that - my first coffee of the day, around 10:00 A.M. Once, this caused a bowel movement while I was driving home. After that, I remained at the center to move my bowels and then drove home. I went to the gym and tried to lift some light weights around my upper body and that went OK. Right up to the last day, it was a challenge to get out of bed and go to the treatment. I don't know where or how I found the strength to stick with it. It doesn't hurt. I acclimatized to the way my body adjusted to what was going on. But it just took some kind of undefined, inner push to keep going. I was never a big eater but PCA and IGRT left me very uninterested in food. I think I "caused" my cancer, maybe by something I ate, or did wrong, last year. Treatment ended about four months ago.
Due to have in May 2014
3 months of conformal radiation at Tufts New England The radiation caused the bladder cancer and much irritation
Brachytherapy 10 yrs ago. Recurrence 2 years ago
Will begin in three weeks as I di the implants on 11th Of Oct not sure what is next
Nuclear Oncology 41 treatments 11/08 no side effects
41 sessions to pelvis area and prostate, using Orbit Arc, some side effects; dizziness, burns, medications helped ease the process
None. Had surgery not worked I would have been put on radiotherapy but thankfully it was not needed.
What Lung Cancer Survivors said about their Radiation Therapies.
Radiation to leg
Will start this next week.
5 days of radiation Feb, 20-26 sore throat for 2 days tired
Weill have gamma Knife radiation to brain lesions
Just started 4/22
9/12/08 gold seed marker placement-inferior right hepatic lobe 9/22-9/26/08 Cyberknife radiation for liver metastasis
Starting radiation with my second chemo on the 24th of august 2010
Feb. 24, 2009 Gamma knife radiation perfexion treatment The procedure is nothing short of a miracle in technology, however it requires a metal `cage` to be attached to your skull. That process is brutal, as it the pressure release when it is removed. But they got em' so it was worth it :)
None to date - The surgeon and oncologist felt that I should wait before starting chemo or radiation and be on the anti-fungal medication, indicating at least a year, to see if once the infection was gone, the remaining spots in my lungs would be gone. In January of 2010, I lost my job, medical insurance and the financial ability to continue the meds. I've recovered enough to find work and have been there long enough to receive medical insurance...now to find the courage to return to the doctor and take up where we left off, uhhh less the pre-existing conditions...to be continued...
10 brain treatments 9/16/09 to 9/29/09. 5 treatments targeted at mass in top of right femur 9/21/09 to 9/25/09.
Pelvis (aug '07) radiation to area possibly weakened femur in hip area - Fell Jan '10 and broke left hip - surgery to pin hip Jan '10 Left Adrinal Gland Area Sept '09 - Side effects - damaged about 1/2 of left kidney and about 1/3 of pancreas Lymph node in the lower middle back May '10 Left Lung and lymph node in left arm pit May '10 side Effects -fatigue
October 2013-pnemonitis, fatigue
Radiation was declined at this time.
Mevatron radiation for brain on Nov 22, 2012
October 2008 Radiation. Max dose. She can never receive it again.
radiation starts on March 8th
15 days of 30 treatments. Extreme nausea-vomiting ribs and back hurt from A:cancer B:radiation C:surgery D: all above
Ten whole-head treatments ending on 22 April 2010. Side Effects - loss of hair.
4-12-10 targeted therapy radiation
starting the 3rd week of August 2013
Radiation started 10/10/07 and I go M-F once a day for 6 weeks
single fraction radiation therapy to the pelvic bone for pallative care, Dec 2013, Vomiting
December 2004- Radiation to large tumor in lung. October 2005- Radiation to tumor in lung and spine. August 2008- Radiation to spine. May 2010- Full brain radiation.
What Non-Hodgkin Lymphoma Cancer Survivors said about their Radiation Therapies.
Intensity modulated radiation therapy, June 7th- July 12th 2012.
I hear you're pretty pukey but thats about it. Oh and it melts your innards and body externally.
May & June '10. Back burning.
not part of treatment
Zevlin. Horrible pain in my feet, very slow recovery, severe fatigue
December 2013 - this is my second diagnosis of lymphoma. The first was last year and I had successful radiation treatment from Sept-Dec 2012 in my neck. By March 2014 all was well but I had a red eye. After 4 months of seeing my GP service (pretty useless I'm afraid) my wife insisted I see an eye specialist; as soon as I did I was diagnosed with a "residual" lymphoma in my eyes on August 30th 2013. Residual is good - it means it has not metastised, it was apparently "left over" from the last lymphoma in my neck. In October I had a CT scan that showed I was clear in all my other lymph glands - so that was good. So I had to have radiotherapy in both eyes. I'm going to keep this next bit short otherwise I could spend ages on telling you what I was told by the technicians, nurses, doctors and consultants about the technical processes they were about to treat me with. But it has all been good. Today I am writing this because, after 6 weeks of discomfort and 1 week of "superficial" radiotherapy (which never feels superficial!) and 1.5 weeks to go, for the first time, my eye doesn't hurt; it's hot inside but not scratchy. I have a good store of saline solution which is bliss when you use it….but then you need more and more, like a drug. Today I have not had to use it at all, it's 9pm UK time and 10 hours since my radiotherapy session this morning. Usually I'm in bed after spending 6-7 hours in pain with an eye patch on. I do expect the effects to get worse but all I can say today is that IT WORKS!! The basis of my optimism is that the radiation kills the cancer…..and I can happily live with the side effects because I am alive to experience them. Take heart.
Radiation October 2004
Yes, radiation on both sides, and I have had breast cancer on both sides.
No radiation on the table yet.
None yet, though I get some if chemo doesn't kick it.
All of feb thirty days. Nausea and tired.
Brain Tumor 25 years later.
Expected January 2013 x 30 days.
luckily for me , i don't have to undergo radiation
Bunch of long words
relapse cancer - radiation (June, 2011)
Radiation therapy was (25) Involved Field Radiation over 5 weeks, March 29th through May 2nd 2012. The radiation treatment itself was painless, although the mask and tongue guard were uncomfortable. The side effects were progress skin burns, mouth sores, difficulty swallowing, and nausea. The side effects subsided a couple of weeks after treatment ended.
Will Complete 20 rounds in July 2015
radiation to left chest - side effects: feeling of a lump in my throat, fatigue
Radiation daily for 3 weeks ending 28/6/2012
23 radiation sessions
June 30th 2009, forgot how much the dose was, it was everyday for the whole two months. Side effects: burned skin, loss of appetite, hair loss, sore throat, gastric pain.
What Kidney Cancer Survivors said about their Radiation Therapies.
My husband had radiation at the site of his neck surgery.
no treatment yet?
10 days of radiation,difficult to say what side effects were from Radiation, Sutent (oral chemo) or Aredia (IV drip for bones)
Radiation on femur
What Pancreas Cancer Survivors said about their Radiation Therapies.
Radiation Therapy June 2011 for 5 weeks
Radiation - Jan 2013-March 2013; Reported weight loss, nausea, some disorientation on dehydration.
N/A would not help his type of cancer
Radiation - 6/14/10 to 7/22/10 Monday through Friday: Had some bad mornings starting about halfway through, but always seemed to feel better after his treatment. At night, the upset stomach side effects would kick in.
Radiation followed first course of chemotherapy, and was given for 28 days in September 2010
will be starting after Christmas
Radiation to start on Oct.25th for new tumor on 1st surgical bed thats not responding to other treatments..
Every other day radiation
Radiation once a day Monday - Friday for 5 weeks along with the 5-FU pack.
Mom chose not to do radiation
Xeloda Jan 2008-May 2008
no radiation or anything else just chemo
What Oral Cancer Survivors said about their Radiation Therapies.
Loss of taste, acute mucositis, loss of hair at back or neck, blistering of throat.
33 IMRT Start date 3/18/2011. Mouth sores ( treating with Manuka honey ) stiffness in operated areas, fatigue, some hairloss in zapped area - so far not too bad... No burns yet. No taste.. Ugh!
25 treatments, 9 days in every 2 weeks - partial hair loss, starting 1st week in February this year, finishing March 18th
35 Rads Mid - 5 days a week for 7 weeks. started July 2008 - OK at first - Got weaker- drove myself first couple of weeks- lost good judgment- totaled my car- wife drove me after that...got down to an old man's shuffle at the end.
37 radiation treatments from late Sept to the end of November of 2007. Side effects all my saliva gland were destroyed. I can't hardly eat anythin because I have no saliva. swallowing is hard. I also have a different voice now. People call me sir all the time. And I stay tired still. Nerves are shot and now taking anti- depressants
21days, 2 per day starting in August. Side Effects: Currently, have no saliva glands working, have only 50% of my taste buds working, have no beard below my lower lip and in a circle to include the back of the neck.
35 IMRT treatments Dates: starting late August and ending November 11, 2011. Side Effects include; Dry mouth especially at night weak weight loss and muscle atrophy loss of appetite (food just tastes bad period) Mucus in mouth during the day
72 gy of radiation (before the advent of IMRT)
Lymphedema & Fibrosis in left neck
June 2009. not many, all related to not being able to swallow without pain. Important to get help, magic mouth wash, pain meds. Liquid diet essential
What Ovarian Cancer Survivors said about their Radiation Therapies.
Jan - Feb.2011 pelvic rad. ( for bone mets - palliative )
Fatigue nausea diarrhea dental problems severe digestion issues
low dose whole abdominal radiation + pelvic boost
No radiation done
Currently deemed unnecessary (following pathology). Will reassess in February 2012 to see of radiation of supraclavicular lymph nodes is required.
None to date
Radiation is new for me so Ill let you know as we get there
Radiation therapy to the abdominal/pelvic area; diarrhea, abdominal cramping
august 09: radiation in my stomach, new tumor 6 cm
pelvic rad. for bone mets January 2011
What Thyroid Cancer Survivors said about their Radiation Therapies.
RAI- extreme jaw, throat, and salivary gland swelling.
RAI, 9/24/14, nausea (lots of it), slight headache, very loose bowels (too much info?)
I had the iodine radiation. No real side effects. worst thing was having to be away from my little one.
Radioactive Iodine: July 2004
150 meq. radio-active iodine
35 RADIATION TREATMENTS IN 2011, DEVELOPED BLOOD CLOT IN THE LUNGS BEFORE MY 34TH TREATMENT.....
4 rounds of I-131, roughly 500 millicuries each time: 1. May 2005; 2. December 2005; 3. December 2007; 4. December 2009
Will begin Radioactive Iodine Treatment after the second surgery.
July 27 - stayed at the hospital for 4 days then another 7 elsewhere (have a toddler) and didn't want him effected.
Radioactive iodine (103 mCi of I-131) on May 17th, 2012.
Radiation treatment to begin February 20, 2012. Two days of intramuscular shots then a pill of 50 micrograms. Currently on synthroid every day.
RAI 150 mci in Jan/09 and a second round scheduled in 12/09
Not yet scheduled
I will begin within a month
RAI in June. Ultasound last week (Feb. 2012) no side effects
15-19 June 2009- First doses of RAI. Very dry mouth, metallic taste, overall weakness. 15-19 Dec 2009- First full body thyroid scan with thyrogen shots...not fun
scheduled for RA on November 17
Had Thyrogen injections on August 16th & 17th and then the RAI on August 18th. My face, neck and throat didn't start to hurt until a few weeks after the RAI. Now it seems with the cold weather my face hurts. Swollen salivary glands. Very tired all the time. Just completed my 6 month whole body scan and bloodwork for thyroglobulin...waiting on results.
RAI treatment- Still waiting on date.
Radioactive Iodine-131: 4/16/10 - 7 days total quarantine. Irritated lung tissue, scalp sores, dry mouth, nausea.
Took internal i-131 radiation, was sequestered from all life (and my 9 month old baby) for 3 days - I still wonder about the long term effects of that radiation....
Radioactive Iodine (RAI), 02/05/2009
RAI Dec. 18, 2009, 154 mCi. Permanent damage to both parotid glands.
Radioactive Iodine 94mci, 2005
What Stomach Cancer Survivors said about their Radiation Therapies.
Radiation began 6.21.13 - Extreme Tiredness, nausea, that is when he essentially stopped eating.
Left skull base October'09. Dehydration, hair loss, weight loss, ringing in ears with a pressure that felt as though ears were going to explode. Blisters on ears both inside and out and raw peeling facial skin. January '10 another round of 15 treatments on pelvic area and spine. Unable to walk, numbness of entire lower body and left leg. Effects still going on to left side of body. Feet freeze like they are always in a vat of ice. They are very heavy feeling as though they are being dragged. Hole through the center of back. I assume this is where the radiation burned thru the body.
Will begin after chemo
Doctor saids he want help.
radiation 1989 - ignorance is bliss....I didn't find the treatment too bad, maybe 'cos I'm able to block out the "what if" questions (or as my wife prefers to put it, I am too stupid to get worried)
What Brain Cancer Survivors said about their Radiation Therapies.
Microradiosurgery done in Singapore. Given 30 Gys in 10 fractions. Started on April 15, 2009. Hair loss in some places.
30 treatments in March/April 09 with headaches, loss of appetite, increased thirst, feeling of being hot
February-April 2013 lost hair, sore throat, skin burns
i had radiation of the brain and spine -> Damaged hair follicles, burnt skin, swelling. Chemotherapy and Chemo boosts -> foot drop, blood damaged
1/12/12 - begin daily radiation for 6-7 weeks.
every 5 days then off for two days for a period of 3 weeks. Loss of hair and VERY tired afterwards
Picking neuro-oncology now
33 sessions targeted computerized radiation with mask began September, 2006 Side effects: extreme fatigue, partial loss of hair, dry itchy scalp, burned scalp
IMRT began July 22, finished 30/30 treatments August 30, 2013. Hair loss, problems with eye focus, bad leg and feet cramps at night, face tics, tiredness.
Just started radiation on 1/3/2011 Completed Radiation on 2/17/2011
Alot of skin burning and pain associated with that.
August and September 2007, Hair loss at site, nausea, redness and burning at site. August 2009, Minimal Side Effects
Started radiation November 9, 2011 -6 week course - to early to see much reactions as yet
5 minutes of radiation on my brain. February 2,2010
I started radiation therapy in late February 2010 and finished my six weeks of treatment in the beginning of April 2010. It made me incredibly weak and tired. I was also having a LOT of seizures during this time and they made the lethargy worse. My hair fell out where the radiation was focused. I could have sported an awesome mohawk but with my hair down or covered by a scarf people claimed they didn't notice. Two years later I'm still missing hair on the left side of my head. No ponytails for me but I'm getting laser hair growth treatments for free from my hairdresser. I also lost part of my left eyebrow but people say they don't notice it. (I think people lie to make me feel better about all of it.) Parts of my head felt hot and dry. The left side of my head still feels dry and itchy sometimes. I started losing hearing in my left ear in the summer of 2011. I can still hear from it. I'm not totally deaf, but when allergies are bad or I have a cold I hear like I have my finger stuck in my ear.
right now 10 rounds on the one left in my brain, and the spots that the other 2 was removed from
started 9/13/2010-weekdays, mostly tiredness
met the nicest people at the radiation dept.
6 weeks of radiation - hair loss - tired.
Mom had radiation - only hair loss. Dad had radiation - trouble swallowing.
Radiation therapy from 04/06/2013 to 05/20/2013. I really did not have many side effects.
DATES: Jan06 - Mar06 Side Effects: Hair loss, metalic taste when receiving radition, nausea, sensitivity to sun
2005- 30 days
What Multiple Myeloma Cancer Survivors said about their Radiation Therapies.
November 2010. No side effects.
Was nauseated after almost every session. Due to the back pain it was extremely hard to get from the stretcher to the table. It always felt like i was getting stabbed in the back. Loss of appetite.
12 treatments to shrink the sacrum tumor 1/29 to 2/29 side effects none
one very strong round of total body lymphathic radiation
What Colon and Rectal Cancer Survivors said about their Radiation Therapies.
i started with 28 treatments and have just over 10 left. i go mon thru fri 8am and have to drink enough liquids or else i feel sick. it hurts like hell i have radiation burns now and when i have to use restroom my insides are raw and i feel everything burn and stretch and a lot of times i sit there cursing and sometimes get tears.
Feb 15th - March 19.
Just finished six weeks (28 treatments). Fatigue, diarhhea, extreme pain while going to the bathroom (probably due to a fissure that I got because of being constipated from the anti-nausea meds, burning of the skin,sensitivity to the sun, fatigue). Symptoms got progressively worse from week 4 to about 2 weeks after completing the treatments.
25 radiation treatments in May/June 2009 Burning around stoma site, blisters and burning in my vagina. Still getting a random blister from the radiation. Made me extremely tired, and nauseated. I had chemo during radiation
SBRT-nausea, gastric pain Just about to have SIRT and am very excited because this will treat my whole liver and I am feeling positive that maybe this will slow down the recurrence.
10/12/09 -11/20/09, 5 days a week for 5 weeks, 6th week went 2x a day. Bottom became very sore as the treatments progressed & bouts with diarrhea.
June - August 2005: Side effects- 1st and 2nd degree burns on the skin; fatigue; unable to sit.
5 days a week for 25 sessions; then 3 intense bouts. Started March 8th. Recently pain at site, diarrhea, cramping
external, 5 days a week. Completed 9 of 28 treatments. So far so good... only side effect todate is fatigue.
Severe radiation burns at the end of treatment.
Started October 28,2009 28 treatments M-F
Started radiation 6 weeks after the surgery. 5 1/2 half weeks of radiation M-F, combined with 1500mg of Xeloda twice daily M-F. Minimal side effects. I slowed down on walking due to fatigue, but not enough to interupt my normal life functions. Some diarreah during the 3-4 hours right after the radiation. No side effects related to the Xeloda.
Sept. & Oct. 2005- every day for 5 weeks (except for Sat. and Sun.)
2/1/2010-3/11/2010 not bad, but tiring!
10/15/09 - 1/6/10. Intense pain from December 09 through April 10.
Radiation therapy 5 1/2 weeks. Started 7/12/2011. Radiation in combination with xeloda. Tired and weak. Low energy with uncontrolled diarrhea.
my mom is seing her radiation onncologist august 31. That's when we are going to find out the date of her first treatment.
25 days of radiation. had to stop midway due to extreme diarrhea Finished treatment Wed 18,2009
Radiation therapy for six weeks resulting in damage to bladder and intestines.
I had 15 treatments of radiation which were a little hard on the system. It took me about 10 days before I started to feel better however it did shrink the tumour and alleviated the pain. I was finally able to sit without experiencing pain.
What Liver Cancer Survivors said about their Radiation Therapies.
i will tell you
Radioactive spheres injected into the liver. May and September 2009. Thought it had worked but didn't
What Cervical Cancer Survivors said about their Radiation Therapies.
Start- 10-2-10 End- 12-17-10. Horrible diarreha, severe burning during urination and pain in both areas.
45 minute a session, 5 days a week-December 2008-February 2009 with a boost in June 2009. rectal pain, pelvic pain, abdominal cramping, diarrhea, fatigue, dizziness, funky taste in my mouth.
Radiation Oct 07-Dec 07 5 weeks of daily external radiation, then 3 days of Brachytherapy in hospital. Burning in pelvic area, frequent loose stools (5-6 times a day) frequency and urgency with urination. Really bad fatigue, lasted a long time after. Oct 09 External radiation to vag 10x (2 weeks). burning in vag/urethra, pain on urination, radiation burns on outside of thighs (entry points) fatigue.
28 external and 3 internal radiation
diarrohea and severe pain of the bowel and stomach cramps, off food for a few weeks
For me radiation was a breeze..I had no side affects outside of hairloss in the treated area. I also had 2 internal rads which seem to last forever but I made it!!
Internal and External Radiaiton-2nd and 3rd degree burns on affected area-very painful
28 external radiation treatments 5 days a week, then 2 external radiation treatments with low dose cisplatiin. Side effects: pain, nausea, heartburn, fatigue.
28 external and 5 internal rad.
Rather not discuss
Sept 2008 - Dec 2008, Low Dose External, 3rd and 4th Degree burns of the genital and perinea areas.
internal radiation is the worst thing in the world. i called it the lightning rod treatment
25 external radiation treatments 2 internal radiation treatments
alot of fatigue, upset stomach, darkening of skin, irratated skin in area involved, sores from radiation--started treatment in February 2006 (28 sessions of external pelvic radiation)
02/2010 - 03/2010 28 external and 3 internal rad.
Radiation began along with chemo therapy May 21 2014. Side Effects: Extreme fatigue, nausea, vomiting, dehydration, luckily very minimal radiation burn to rectum and groin area, and diarrhea. Hospitalized once for the vomiting. Very unpleasant. Keep in mind although I have cervical cancer they also radiated my stomach area due to lymphnode involvement.
Started external radiation on 2/4, to have 25 treatments; then 2 "internal" ones fatigue, but can't blame it all on radiation
I had 30 tomotherapy radiations 5 days a week from June until August. The side effects were fatigue and nausea.
Started 6/03/09 finished 7/15/09 ... 28 days IMRT pelvic radiation. Side effect- too many to list, skin burns, constant extreme diahrrea, urinary burning, hair loss in radiation area, nausea and vomiting... TIRED (unlike anything I've ever known!!)
Full radiation daily 6 weeks , 3 internal radiation treatments
External for 3 weeks daily, Internal for 5 treatments and TOMO for 5 treatments. Internal was the hardest on Aimee because body parts had to be temporarily moved to get to the right spot. Darkening of skin and loss of skin in genital area.
Nausea and fatigue, Extreme Vomiting, Neuropathy
started 1/6/09: fatigue and upset stomach, loose bowels
constipated then diarrhea symptoms like a bladder infection but 1000000 times worse tired
Doing Radiation concurrently with Chemo so I'm not exactly sure which side affects to attribute to which treatment. Very nauseated, shaky, dizzy, tender in the groin and abdomen area.
What Larynx Cancer Survivors said about their Radiation Therapies.
35 radiation treatments starting May 2
36 total radiation sessions February 02 - March 25, 2011. After about 13 sessions my throat pain required ongoing codeine relief, and the skin on my neck began showing signs of intensifying sunburn. By the end of February my voice went missing and is just starting to return as June begins.
First treatment December 19,2011
Nov 30th-Jan 14, 2010 Neck and lower face was a serious sunburn, Lots of swelling on the inside, no appetite-lose your taste buds where everything tastes like card board. Fatigue that is hard to describe.
What Acute Myeloid Leukemia Cancer Survivors said about their Radiation Therapies.
Total Body Irradiation, June 2012. Side effects: vomiting, ovarian failure (now on hormone replacement therapy)
Recieved 4 days of fullbody radiation for the Bone Marrow Transplant. I actually didn't feel too bad but the fatigue was huge.
January 2010. Nausea. Later/cataracts. General weakness
Treatment for osteosarcoma, three years ago.
No radiation so far. Thank God!!
What Testicular Cancer Survivors said about their Radiation Therapies.
had no treatment
What Acute Lymphocytic Leukemia Cancer Survivors said about their Radiation Therapies.
Never had any
Full-body radiation 2 times daily for 4 days. Dry mouth and ulcers in the throat and intestines.
Total Body Irradiation, 8/10/10-8/13/10. Felt a little tired. Make sure you eat well prior to radiation treatments. I got a little "sun burn."
What Anal Cancer Survivors said about their Radiation Therapies.
IMRT 6 wks. 8/2013 through 9/26/2013
NO Radiation!! THANK GOD!
Radiation Only. It appears to have been successful to knock out two lymph nodes. Yet, the Tumor never showed up in PET SCANS. The Dr's could feel it, a 1/4 inside opening - now, my Rectal Dr. says that it is just scar tissue. They are to take a biopsy Friday of areas the pain has spread to. But, I'm not sure what I should be asking for or expecting.
01-05-10 began radiation threatments which will be for 6 weeks.
31 treatments horrible burning and pain no appetite bad diarrea
IMRT for 3.5 weeks Cone down IMRT for 2.5 weeks Itchiness and sore tumor site Bloating, gassy, cramping Fatigue April 7 to May 16
Its been a year since I have completed my treatment and I am still suffering from side effects of the radiation.
Radiation, 5 weeks worth, Had to take one week break due to burns. Side effects included burns and swelling
I am awaiting chemo/radiation. I had a stroke a week before I was supposed to start and just had gamma knife surgery to correct an avm in my brain. They found an anuerysm ,,, so sheesh, now I have to have that fixed and the ball will get rolling on the chemo/radiation
IMRT for 28 treatments starting Jan 4th finished on Feb. 23rd 2010. With one 10 day stop after 24th treatment due to burns.
Some of the terms are slightly different. I have had Mitomycin in the first week plus 5FU, then just 5FU in the fifth week. I'm not sure what ER and a few others terms refer to, but will find out. The size of my tumour is 2cm by 2cm by 5cm, so I've selected something close to this. There appears to be a difference in opinion as to whether or not it has spread to my nodes in my groin and around my bowel area, as this did not show up in the PET. But the MRI did show swollen glands. The treatment is the same regardless, so I'm not too bothered by this lack of clarity at this stage. Medicine is an inexact science after all! I was going to take a break, but discussed it with my doctor. I'm in my last week of treatment now. He described three separate analysis of patients that had taken a week or two week break mid-cycle (same cancer, same cycle as mine). Two showed a marked difference in outcome between those who took a break and those that did not take a break. Overall (allowing for individual variation), those that took a break had a worse outcome than those who continued without a break. The third study that he conducted over a ten year period showed no difference between the two groups. However, I prefer the cautionary approach and am continuing to the end, with new painkillers and anti-nausea drugs and am doped to the gills to get me through!
Day 1: March 24, 2014
Radiation, 33 treatments. Began 1/30/12.
28 days radiotherapy.
9/3/2013 Began 6 week routine of daily radiation 5 days a week After week 1 - weak feeling at times, intermediate bowel cramping, some diarrhea, no anal pain during BMs, no skin changes.
Daily radiation: Side effects: burns, burns, burns, vomiting, fatigue, hair loss and loss of appetite
meant to be 30 sessions, but pain from burns to the total pelvic area including top of thighs, was too much to go back for the last session after break during the weekend. On the friday, doc checked my 'skin' while I lay crying on the exam table. he offered that treatment could finish then at 29 sessions so the healing process could begin. pain, pain and more pain. cystitus. diarrhea.
Just started radiation. No side effects yet but I have heard they are hideous
28 treatments total. swelling/pain/bleeding
Radiation has been ongoing since 2/12/07. The first layer of skin around the anal site and vulva is gone and there is a great deal of irritation and pain,
30 sessions starting 23 March 2015 3D Intensity-modulated radiation therapy Week 1 & 2 - no real side effects Week 3 - some tiredness and slight soreness Week 4 - start of burn pains, increased need to irritate and frequent painful BMs Week 5 - burns becoming very uncomfortable, agony going to the loo Week 6 - ouch and ouch some more
Radiation therapy started 3-17-14 and ended 5-2-14. My skin burned but not too bad. I did Jin Shin Jyutsu massages a few times and used the self-help exercises which seemed to help. Also, I did get a massage once a week when I could not get a Jin Shin Jyutsu massage. Now I am having trouble with diarrhea and I notice a stiffness in my hips. The diarrhea is most troubling because I'd like to start eating heathier and gaining weight. I lost 9 lbs during treatment but before that I'd been losing weight for a while.
6/25/2014 began radiation of anal mass and lymph nodes, 7 weeks 5 days a week ending 8/23/2014, severe genital burns and infection, diarrea, e-coli , abdominal pain due to radiation of intestines, enturitis. late effects, painful intercourse, unable to participate in intimacy with spouse due to pain, 12/6/2014 development of lymphodema of r foot , ankle and leg. ongoing treatment as of 12/31
30 treatments - Started 8/30/2010
IMRT using PET Scan and CT Scan results. Scheduled to being 11/9/09. IMRT went smoothly at first. As treatment progressed, I started to see signs of burning along my bikini line and painful itching on by anus. Delays in IMRT have been caused by low blood counts (low platelets).
What Bone Cancer Survivors said about their Radiation Therapies.
2002 45 mins a day, 5 days a week, for 6 weeks. Burns
I wanted another baby hopefully if chemo didnt kill my ability
What Eye and Orbit Cancer Survivors said about their Radiation Therapies.
Radioactive plaque 09/09 Extreme tiredness at times, still get that. Sore eye for a short time, nowhere near as bad as I had imagined:)
Plaque brachytherapy - July 2003. Plaque inserted on Friday morning and removed Monday night. Long, long weekend in isolation and having to carry a geiger counter around. Eye was puffy, bloodshot for a long time, painful and vision deteriorated quite rapidly. Now have retinal detachment, pretty lousy vision in that eye and grey areas on the sclera (white of the eye) that may be burns from the cauterisation tool or where the sclera has thinned due to the radiation. Last November (2007), it was noticed that the edge of the tumour is still growing in some areas and I have therefore had to have these treated with Transpupillary Thermotherapy (laser).
What Nose, Nasal Cavity and Middle Ear Cancer Survivors said about their Radiation Therapies.
Radiation therapy starts tomorrow. 33 treatments @ 200 for a total of 6600.
What Nasopharyngeal Cancer Survivors said about their Radiation Therapies.
Radiation given from January to April 20 Side effects: loss of saliva, vomiting, weakness, dehydration, esophagus shrinkage
Started radiation on 11/4/13 after 6 weeks on induction chemo
35 days of head radiation, dramatic weight loss, burned skin, mouth and throat, had peg tub placed.
1st" dec 2002 - Jan 2003 to neck - saliva affected, have little saliva have to clean mouth all the time. 2nd round: Dec 2008 to lump in throat as x-ray showed nodules in both lungs
IRMT concurrent with Eributx for 6 weeks - this is when the real effects started kicking in. Massive burns inside mouth made eating impossible, burns on outside of neck, had feeding tube in stomach. All in all, lost 75 pounds. Still have constant dry mouth which makes sleeping impossible.
Meeting with Radiation Therapist on May 3rd to determine how much treatment will be necessary.
radiation therapy ending 5/29/12
What Ureter Cancer Survivors said about their Radiation Therapies.
Linear radiation March to May 2007. Three brachy-radiation treatments in June 2007. Side effects some bowel problems, diarrhea.
What Esophagus Cancer Survivors said about their Radiation Therapies.
Too many radiation treatments to count.
5 weeks of radiation September - October, 2012. Very tired. No burns at all to skin. I did what the doctors/nurses told me to do! Very, very sore throat. Could barely swallow but forced soft foods the entire treatment.
radiation from 11/1/97 to 12/15/97
28 days of radiation
currently undergoing treatments
Two weeks of radiation was fine. Fatigue.
The Radiation burned my throat and cause my taste bud to malfunction I had to be tube fed for about 4 months I will suffer for dry mouth for life I'm told.
Radiation to esophagus and abdominal lymph node March/April 2008 Radiation to supraclavicular lymph node January/February 2009
What Tonsil Cancer Survivors said about their Radiation Therapies.
Jan 21- trush, redness and swelling on tongue and mouth, fatigue
Radiation coming up
Radiation in April, May, 2008...In general, I have been blessed! I have been very lucky to the extent that I dont have much saliva loss or other symptons. In 2010 I am currently having issues with radiation damage that include cramping in my neck muscles, difficultly maintaining my mouth opening and some slurring of my tongue. I am interested to know how others have dealt with these symptoms. In retrospect, I would have done more stretching exercises all along!!
IMRT - loss of saliva, sore throat, thrush, sunburned neck, loss of taste, difficulty eating.
Completed May 18, 2012
after 10 treatments I developed a sore throat and sores in my mouth. My tongue feels as if it was on fire.
30 Day ended 10/24/2011
I will start radiation on Monday, October 19th, Monday through Friday for seven weeks.
Scheduled to begin 30 Radiation Treatments on March 19 In conjunction with weekly Eributix Infusion
Oct 6 thru Nov 18 -5 times a week
Radiation is anticipated to begin the second week in July. Treatment plan will include 35 radiation sessions over a period of 7 weeks.
Radiation began on 8/31 with 35 treatments to follow.
Rad starts on Jan 20th, 2014 ends Feb 28th, 2014
33 daily treatments along with Chemo treatment weekly
Mucositis, discolouration of skin on neck and face, hair loss, weight loss, vomiting, nausea, extreme tiredness, pain in throat, unable to eat or drink properly, bad taste in mouth.
IMRT 2009 for Tonsil Cancer (Right side) Second round IMRT 2012 (Left side)
35 IMRT, 3 Cisplatin mega doses, 100 units per time, 6 hour chemos...daily radiation for 7 weeks- weight loss, nausea, hair loss on face and neck, lethargy, lost energy, difficulty swallowing and choking anything thicker than water
4 of 35 treatments so far, burning in back of throat, some difficult swallowing.
Start on March 29th 2011.
1st one today 26-April-2010 so far so good but I know whats coming. A tad of anxiety at fist bolt down of goalie mask to table to treatment ....not sure why but got a scrip for a happy pill seeing as how I will have this 5 days a week for 6-7 weeks. Radiation was tough lost ability to swallow. had to learn to swallow from scratch not fun was on the tube for feeding for about two months post treatment, pain pills a little tough to kick weird dreams and stuff remember to take your stool softeners when you take your pain meds..........just one thing you don't need to add to your list of things to worry about if you know what I mean. 18 Months out now can eat alot of things now mouth still doesnt open like it did no big burgers or sandwhiches stilll keeping off the 60 pounds I wanted to lose of the 80 i took off 20 put back on for kicks lost too much. Taste is still screwed sweet still gone chocolate well forget that, acidy stuff, tomatoes, spicy stuff, just gone so Ive learned to eat a new way swallowing is still an adventure throat is much narrower for food and even pills, so have to be careful about everything still. But hey Im still here so the rest is worth it. Its not easy its not fun but its life after cancer every day is better than the day before and not as good as the next day so keep going after all your still around and thats why we fight to begin with. Any questions at all drop me a line
Nerve damage that was painful for several months.
I'm supposed to have radiation after completion of 3 R-Chop chemotherapy treatments.
Jaw tightens up when talking, need to stretch jaw muscles (stretch open mouth with sticks) 3 times daily (radiation). Need to fluoride teeth once a day. Lose saliva at night when I lay down and need to keep water around.
30 radiotherapy treatments starting 7th July finishing 6 weeks later. Grade 3 ulcers in mouth and throat unable to swallow
What Endometrial-Uterine Cancer Survivors said about their Radiation Therapies.
No side effects
initially told not need 7/6/09 told raDIATION WILL BE NEEDED WHEN I HEAL FROM MY SECOND SURGERY..MY SURGEON NEVER CHECKED THE NODES WHEN HE DID HYSTERECTOMY I HAD TO FIND A NEW SURGEON AND HAVE LYMPHN NODE REMOVAL 8/6/09 27 NODES REMOVED NO CANCER
Started 5 weeks of external beam radiation in June of 2008. I had alot of nausea and loss of appetite, painful radiation burns. Damage done to ureters which caused me to have additional surgery in July and August of 2008.
Radiation Tx for Vaginal Tumor - 4/20/09-5/5/09 (mom is fatigued, loss of appetite) Radiation Tx for Metastasis on Ribcage - 4/27/09-5/8/09 Mom developed a UTI that went unnoticed - doc said it was normal pain - this delayed her chemo tx.
25 rounds external, 3 internal, starting in October, 2007, finished in November.
5 sessions of High Dose Brachytherapy will be done between 3rd & 4th chemo sessions (mid-June).
brachy UGH UGH UGH!!! Not the most pleasant experience for sure!! 4 treatments and side effects to look forward to vaginal stenosis... so far no side effects 2 down 2 to go
28 external and 3 internal rad.
Nov-Dec 2014 - 25 days pelvic radiation + 4 x brachytherapy
5-6 weeks of radiation planned after chemo is completed
I had several rounds of a newer internal radiation for 3 months following surgery. I felt great each time for the 1st day or two, then became very tired.
I just completed 5-weeks of radiation therapy on January 11. Side effects included an annoyed bladder, loose stool, light fatigue.
Not good with dates...radiation for 6 weeks, 5 times a week for about an hour each day. Still can't eat much fruit, sometimes no fruit for days and days. This still happens, even after 4 years. Probiotics seem to help
November 2011-December 2011--25 days; long-term damage to bladder resulted in one week of hospitalization for blood clots, incontinence, extremely painful urination; serious bladder infection; low white blood cell count; burns on skin around hips and upper thighs; serious digestive problems; lost weight; 1 month after treatment had cytoscopy to confirm radiation cystitis; 6 months after treatment am taking Oxybutynin Chloride for ongoing bladder problems; felt pain in flanks during treatment, later problems with knees that come and go.
30 radiation treatments, five days a week for six weeks
Haven't started yet. Need advice.
Started pelvic Aug 2, 2009 for 28 days. Finished with no side effects!
Started radiation in mid-June 2009 - 25 treatments are planned
annoyed bowels, extreme fatigue
August 14th 29 days and then 2 internal treatments. Side effects irritated skin, diarrhea, less energy.
Started Sep26 2011. Every weekday for 7 weeks. Last treatment (high dose) planned for 11/11/11.
recommended to start in July
25 external and 3 internal radiation March - April 2011 horrible burning and pain.
Don't know yet...
What Sarcoma Cancer Survivors said about their Radiation Therapies.
Radiation from November 2010 - January 2011. Radiation burns toward the end, low blood counts, and always tired.
Radiation treatments started February 4 and end on March 23, 2011. My prescription is 66Gy over (7weeks) 33 treatments. Locally, the area being treated hurt pretty bad from being burnt to a crisp, but otherwise I still had lots of energy and I felt great.
1 treatment of Radiation ; in Oct 2008 . Side effects - Horrible burn and pain . Alot of fatigue .
Like having a severe sunburn on the back of my throat. I could not even swallow my own saliva. I lost 30 pounds and became extremely dehydrated.
5 weeks of radiation - feeling tired and extremely fatigued after the sessions were over, radiation burns on back on leg that developed into very painful blisters. Radiation oncology nurse was so caring -- she made up an ointment to use that took away the pain and helped with the healing.
Radiation (Stereotactic Body Radiation Therapy)
Her first doctor didnt do enough or the right kind of chemo....the INSURANCE COMPANY wouldn't pay for the correct treatment.
25 treatments; minor hyperpigmentation towards the end, but very minimal side effects
Radiotherapy for 5 weeks from last week of june 2010. My skin became very sore and a section of it peeled off. My skin has darkened there and has stayed hard in that area.
Radiation everyday for 30 days in March 2012 - a little nauseous, but was monitored for this, so scaring - a breeze compared to Chemotherapy
Radiation I had every day at Palmerston North Hospital for 7 weeks - that was the maximum I could have before it gave me cancer!! Started in early Feb 2009 through until April 2009. I got extremely tired, exhausted with no energy at all! I also got a small radiation burn, but was controlled with creams and ABs.
Still to be determined.
2005 - on L5; 2007 - on L3; 2011 - on left femur & L4
To control size of tumor to right pelvic area
Finished radiation therapy on around December 24, 2010. He had six weeks of radiation therapy, and had to receive treatments five days a week for those six weeks.
I start exact radiation on 6-19-2012 for 6 weeks
December 2012-February 2013 Proton Beam Radiation, Massachusetts General Hospital
What Parotid Cancer Survivors said about their Radiation Therapies.
1st treatment 9/12/12 left jaw in pain from being stretched open and pushed by the mask; by 10th treatment, almost impossible to swallow, even water, because throat is so tight and sore and mouth & tongue are so sore
What Skin Cancer Survivors said about their Radiation Therapies.
could have had radiation but chose Mohs surgery
What Throat Cancer Survivors said about their Radiation Therapies.
IMRT radiation started 11/17/09. Side effects were almost immediate - nausea and tiredness. Not too long before I lost all appetite. Thank goodness I have a PEG tube.
Radiation for 33 times
NONE - Refused radiation on six separate ocassions
April - June 2009 Loss of Taste - most regained Loss of Saliva Production - some regained 35 Exposures Amifostine Injections to the Abdomin each day
Due to having a bit of tumor left, I am waiting to find out if I will need radiotherapy.
April 22nd 2008 through June 4th 2008. It's hell. But you're in a blur of misery. A few months later your a better person, grateful for the blessings you have in life. Still working on regaining my saliva.
Every day, Monday through Friday, starting May 4, 2010. Side effects are extreme sore throat, dry mouth, fatigue, loss of taste buds. Taking pain meds for throat pain. The worst part for Tim is wearing the radiation mask.
Months of radiation that covered both my head and chest area. I no longer have salivary glands and I suffer from dry mouth (xerostomia) -- which means that I drink about a gallon to a gallon and a half of liquid every day. Taste has dramatically diminished and has been altered.
1997 - later side effects - 1999 Thyroid - placed on meds...2005 narrowed carotid artery plus first aspiration pneumonia. 2009, 2011, 2012 three more aspiration pneumonia. Placed on Feed Tube 2012.
33 rads treatments starting January 2009... in which it did not touch the cancer .I had a small burn on throat from rads.
Start date 12-29-14
Started December 14, 2010. Five days a week treatment. Severe oral mucositis and recently the first week of January, 2011 developed chronic skin abrasions on my chin and upper lip area, which made me look a monster! That being treated with bactroban.
TOMO Radiation started Feb 23, 35 treatments that are Mon-Fri until April 12th.
I'm at #17 out of 35. Burning and dry mouth.
What Tongue Cancer Survivors said about their Radiation Therapies.
Seven weeks Jan 4 thru Feb 19, Mon-Fri of TOMO radiation. At the end, severe burnt neck especially my right neck area. Severe sore throat.
Burned neck and throat and burn on neck got infected...my skin peeled, but little scaring
I started My radiation the first week in July and had alot of side effects. Many many sores in my mouth and thrush constantly. Also i was told i was very sensitive to the radiation and had so many sores and burns on my neck. I have a lot of scaring left.
Radiation on neck 5 days a week for five more weekws
Radiation Treatment May of 2012 to June 2012. Mouth was burned from radiation. Lost of taste buds. Fast forward two years. I have taste buds again.
Side affects were hideous.. She experienced a very deep painful burn on her neck.plus a percutaneous endoscopic (PEG)
July 6 Radiation and 1st Chemo begins
60 Grays (Gy) of radiation
Dry ,mouth, loss of taste , mental and physical fatigue.
Radiation to begin next week, 5 days a week. Began on 8/23/12.
I've already been through IMRT (radiation) for Tonsil Cancer in 2009. So, they can not do radiation to the same part of the body twice.
What Nose Cancer Survivors said about their Radiation Therapies.
Radiation side effects included loss of taste, trouble chewing, sore gums and teeth
What Ear Cancer Survivors said about their Radiation Therapies.
Proton Therapy test
What Jaw Cancer Survivors said about their Radiation Therapies.
Dry mouth, and due to the radiation I have osteonecrosis of the jaw and now in hyper baric chamber treatments so I can have all my teeth removed as they are all falling out on there own.
What Hodgkins Lymphoma Cancer Survivors said about their Radiation Therapies.
Cobalt Radiation on full chest and abdomen area's. I am proud of my 'Tatt's'! One thing that is just part of it all is the Pneumonia and other illnesses that comes from the low immunities can be some of the scariest and biggest battles we face. Too, with every new procedure and surgery, at least for me, my recovery times seem to be much longer. But despite the illness and weakness that chemo and radiation leaves you in ... if you are still breathing it is a gift.
86 treatments of what was referred to as Cobalt 80,full scan and mantle, 1975 & 1976.
I will start radiation after the chemo ends!
After chemo - 3 weeks of radiation was a walk in the park for me! I took up raquetball (not generally recommended by any doctor, other patients etc!)
Radiation therapy (RT), 2000 rads for 22 days, were given to areas of initial bulky disease. (middle of chest cavity)
Declined IFRT radiation therapy
Received 5 weeks of localized radiation to the chest
No never had radiation.
Start treatment on the 25th, chemo is the only treatment on the menu so far.
Haven't started yet
I didn't have an side effects from the radiation!
Radiation in July 2008. I was very fortunate and blessed not to have any side effects from radiation.
radiation was brutal and side effects were phnuemonia
Radiation therapy to field covering the mediastinum and bilateral hilar areas - 180 cGy per day to a total of 1980 cGy over 11 fractions. Radiation to the para-aortic and lumbar fields - 180 cGy per day to a total of 1980 cGy over 11 fractions. (1/30-2/13/92). I had persisting problems with nausea and vomiting throughout much of the radiation but it was reasonably controlled with Phenergan.
What Acute Lymphoblastic Leukemia Cancer Survivors said about their Radiation Therapies.
June 28, 2010-June 31, 2010 - IBR - twice a day for 15-20 minutes a session.
What Bile Duct Cancer Survivors said about their Radiation Therapies.
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