What Breast Cancer Survivors said about their Radiation Therapies.
fatigue started when my radiation ended. sleep tight. you will wake when your bodys says so.
Brachy radiation treatment (multi-catheter).
3-10 to 4-25 i expected some burn under the breast. i did not expect burning and discoloration on the chest above the breast. i also did not expect the radiation would be misdirected enough to give me a sore throat and horseness.
Radiation to left side 2002 and right hip in 2006, surgery and radiation to left femur in Jan.2012
haven't started that yet, possibly 7/26/2010 I was start rads.
I opted for no radiation.
63 treatments, finished in June 2010.
Had radiotherapy in hospital for my back last December and it was a strange sensation but so tiring as well. My scar still shows sign of burnt skin from the chemo although have been told this will fade in time.
Over 6 weeks--it was very sci-fi--but ok
September 2007 Burned skin on chest and under arm
33 rounds of radiation with boost, Feb-March 2010
39 treatments... Half of Chemo was done first. "all" side effects possible...but not as bad as chemo.
Well, radiation, wasn't to bad & yes if made me sick to my stomach sometimes. But I think the worst for me was the burn it left on my breast, that hurt the most. I was given cream to help the burn & it pretty much took care of it. I was lucky in that area, I only had to take 7 wks. of radiation & my mom & I had to drive 75 miles every day for it. I think that was the worst, casue with a sick stomach, the ride was not so good.
I officially start radiation tomorrow. I do like my Radiation Oncologist. He is pretty cool.
34 sessions of radiation. September-October 2012. fatigue, loss of energy, tanned skin, itchy.
Nov/07 PBR(partial Breast Radiation) 1 week = two times a day.
five weeks radiation after chemo is done
Started late July 2008-September 6,2008
6 weeks, everyday started in March. No side effects.
6 and a half weeks of daily localized treatments. 33 total, with 5 boosts at the end. Began 6/2/11 FINISHED 7/19/11!!!
I will not be receiving radiation therapy
Starting June 29th 2010
End of March to mid May 2010. First 14 treatments were okay. From treatment 15 onwards, burning, and around day 20ish, had to use burn victim cream. Fatigue after chemo plus radiation treatments.
To be determined
full breast may 2009 daily 20 minutes got bad at end red sore itchy hurt put lavender natural cream avalon I took spirilina to get rid of radiation i got reiki it helped
What Prostate Cancer Survivors said about their Radiation Therapies.
The 39 trip to Radiation treatments were pretty anticlimactic. Thank god my job worked with me and let me leave early each day. Can't imagine if they didn't worked with me. I was lucky there! Never had any pain from the treatment and very little if any side affects. They is nothing to be worried about in this treatment as far as I'm concerned.
Burning senceation when urinating May 2000 to July 2000
to my back, ten treatments, now i need to self catherize and have a blood clot in my entire right leg
40 treatments in 2005. Difficulty holding bladder.
IMRT, 36 treatments, Sep 20-Nov 8, 2011. Side effects: the usual suspects -- GI and bladder/urinary irritation. Please write for details.
February 2003. Side Effects - ED, Tiredness, fatigue, hot flushes, Radiation burns to anus and buttocks, rectal leaking and short term memory loss.
Hd 9 weeks of IGRT, five days per week except July 4. Took about five minutes per day. It took a couple of weeks to get used to drinking a lot of water on the way to the treatment facility. At first, I couldn't differentiate between the signal to urinate or to defecate. I learned to just sit down on the toilet like a baby and that fixed that. They had really good instant brew coffee at the facility, so I'd have that - my first coffee of the day, around 10:00 A.M. Once, this caused a bowel movement while I was driving home. After that, I remained at the center to move my bowels and then drove home. I went to the gym and tried to lift some light weights around my upper body and that went OK. Right up to the last day, it was a challenge to get out of bed and go to the treatment. I don't know where or how I found the strength to stick with it. It doesn't hurt. I acclimatized to the way my body adjusted to what was going on. But it just took some kind of undefined, inner push to keep going. I was never a big eater but PCA and IGRT left me very uninterested in food. I think I "caused" my cancer, maybe by something I ate, or did wrong, last year. Treatment ended about four months ago.
Due to have in May 2014
3 months of conformal radiation at Tufts New England The radiation caused the bladder cancer and much irritation
Brachytherapy 10 yrs ago. Recurrence 2 years ago
Will begin in three weeks as I di the implants on 11th Of Oct not sure what is next
Nuclear Oncology 41 treatments 11/08 no side effects
41 sessions to pelvis area and prostate, using Orbit Arc, some side effects; dizziness, burns, medications helped ease the process
None. Had surgery not worked I would have been put on radiotherapy but thankfully it was not needed.
What Lung Cancer Survivors said about their Radiation Therapies.
Radiation was declined at this time.
5 days of radiation Feb, 20-26 sore throat for 2 days tired
Radiation started 10/10/07 and I go M-F once a day for 6 weeks
December 2004- Radiation to large tumor in lung. October 2005- Radiation to tumor in lung and spine. August 2008- Radiation to spine. May 2010- Full brain radiation.
single fraction radiation therapy to the pelvic bone for pallative care, Dec 2013, Vomiting
Weill have gamma Knife radiation to brain lesions
4-12-10 targeted therapy radiation
Pelvis (aug '07) radiation to area possibly weakened femur in hip area - Fell Jan '10 and broke left hip - surgery to pin hip Jan '10 Left Adrinal Gland Area Sept '09 - Side effects - damaged about 1/2 of left kidney and about 1/3 of pancreas Lymph node in the lower middle back May '10 Left Lung and lymph node in left arm pit May '10 side Effects -fatigue
None to date - The surgeon and oncologist felt that I should wait before starting chemo or radiation and be on the anti-fungal medication, indicating at least a year, to see if once the infection was gone, the remaining spots in my lungs would be gone. In January of 2010, I lost my job, medical insurance and the financial ability to continue the meds. I've recovered enough to find work and have been there long enough to receive medical insurance...now to find the courage to return to the doctor and take up where we left off, uhhh less the pre-existing conditions...to be continued...
15 days of 30 treatments. Extreme nausea-vomiting ribs and back hurt from A:cancer B:radiation C:surgery D: all above
Radiation 08/10 to 9/10. Side effects: soar throat, difficulty swallowing, and fatigue.
Radiation to leg
Starting radiation with my second chemo on the 24th of august 2010
10 brain treatments 9/16/09 to 9/29/09. 5 treatments targeted at mass in top of right femur 9/21/09 to 9/25/09.
35 radiation treatments, some sore throat and trouble swalowing.
Ten whole-head treatments ending on 22 April 2010. Side Effects - loss of hair.
Feb. 24, 2009 Gamma knife radiation perfexion treatment The procedure is nothing short of a miracle in technology, however it requires a metal `cage` to be attached to your skull. That process is brutal, as it the pressure release when it is removed. But they got em' so it was worth it :)
October 2008 Radiation. Max dose. She can never receive it again.
Mevatron radiation for brain on Nov 22, 2012
I started radiation treatments on October 25, 2010. I'm not sure what all of this means but my total dose is 6,120cgy. I have 34 treatments total; so I receive 180cgy a day, monday through friday. So I should finish around December 13, 2010 depending on if I miss any days or if my oncologist wants to change my plan. My side affects aren't too bad. I already have some shortness of breath so I don't think it is from the radiation. I have really sensitive skin so It is kind of red, so the therapists gave me some cream to rub on it. They mentioned that my skin will get worse before it gets better.
35 treatments daily for 7 weeks 1998
Will start this next week.
9/12/08 gold seed marker placement-inferior right hepatic lobe 9/22-9/26/08 Cyberknife radiation for liver metastasis
Just started 4/22
radiation starts on March 8th
What Non-Hodgkin Lymphoma Cancer Survivors said about their Radiation Therapies.
No radiation on the table yet.
Radiation therapy was (25) Involved Field Radiation over 5 weeks, March 29th through May 2nd 2012. The radiation treatment itself was painless, although the mask and tongue guard were uncomfortable. The side effects were progress skin burns, mouth sores, difficulty swallowing, and nausea. The side effects subsided a couple of weeks after treatment ended.
Bunch of long words
Radiation daily for 3 weeks ending 28/6/2012
relapse cancer - radiation (June, 2011)
23 rounds of radiation on my neck and shoulder.
luckily for me , i don't have to undergo radiation
Brain Tumor 25 years later.
Yes, radiation on both sides, and I have had breast cancer on both sides.
Expected January 2013 x 30 days.
May & June '10. Back burning.
Radiation October 2004
20 sessions of radiotherapy on my mediastinal mass which caused damage to my left lung and heart in May - June 2012. The side effect I had was tiredness.
December 2013 - this is my second diagnosis of lymphoma. The first was last year and I had successful radiation treatment from Sept-Dec 2012 in my neck. By March 2014 all was well but I had a red eye. After 4 months of seeing my GP service (pretty useless I'm afraid) my wife insisted I see an eye specialist; as soon as I did I was diagnosed with a "residual" lymphoma in my eyes on August 30th 2013. Residual is good - it means it has not metastised, it was apparently "left over" from the last lymphoma in my neck. In October I had a CT scan that showed I was clear in all my other lymph glands - so that was good. So I had to have radiotherapy in both eyes. I'm going to keep this next bit short otherwise I could spend ages on telling you what I was told by the technicians, nurses, doctors and consultants about the technical processes they were about to treat me with. But it has all been good. Today I am writing this because, after 6 weeks of discomfort and 1 week of "superficial" radiotherapy (which never feels superficial!) and 1.5 weeks to go, for the first time, my eye doesn't hurt; it's hot inside but not scratchy. I have a good store of saline solution which is bliss when you use it….but then you need more and more, like a drug. Today I have not had to use it at all, it's 9pm UK time and 10 hours since my radiotherapy session this morning. Usually I'm in bed after spending 6-7 hours in pain with an eye patch on. I do expect the effects to get worse but all I can say today is that IT WORKS!! The basis of my optimism is that the radiation kills the cancer…..and I can happily live with the side effects because I am alive to experience them. Take heart.
23 radiation sessions
All of feb thirty days. Nausea and tired.
not part of treatment
Intensity modulated radiation therapy, June 7th- July 12th 2012.
None yet, though I get some if chemo doesn't kick it.
June 30th 2009, forgot how much the dose was, it was everyday for the whole two months. Side effects: burned skin, loss of appetite, hair loss, sore throat, gastric pain.
Zevlin. Horrible pain in my feet, very slow recovery, severe fatigue
radiation to left chest - side effects: feeling of a lump in my throat, fatigue
What Kidney Cancer Survivors said about their Radiation Therapies.
My husband had radiation at the site of his neck surgery.
no treatment yet?
10 days of radiation,difficult to say what side effects were from Radiation, Sutent (oral chemo) or Aredia (IV drip for bones)
Palliative Radiation for bone metastases (20 Gy/5 fractions) Dec 2012 Metastron Feb 2013
What Pancreas Cancer Survivors said about their Radiation Therapies.
Radiation Therapy June 2011 for 5 weeks
Radiation - Jan 2013-March 2013; Reported weight loss, nausea, some disorientation on dehydration.
N/A would not help his type of cancer
Radiation - 6/14/10 to 7/22/10 Monday through Friday: Had some bad mornings starting about halfway through, but always seemed to feel better after his treatment. At night, the upset stomach side effects would kick in.
Radiation followed first course of chemotherapy, and was given for 28 days in September 2010
will be starting after Christmas
Radiation to start on Oct.25th for new tumor on 1st surgical bed thats not responding to other treatments..
Every other day radiation
Radiation once a day Monday - Friday for 5 weeks along with the 5-FU pack.
Mom chose not to do radiation
Xeloda Jan 2008-May 2008
no radiation or anything else just chemo
What Oral Cancer Survivors said about their Radiation Therapies.
Loss of taste, acute mucositis, loss of hair at back or neck, blistering of throat.
33 IMRT Start date 3/18/2011. Mouth sores ( treating with Manuka honey ) stiffness in operated areas, fatigue, some hairloss in zapped area - so far not too bad... No burns yet. No taste.. Ugh!
25 treatments, 9 days in every 2 weeks - partial hair loss, starting 1st week in February this year, finishing March 18th
35 Rads Mid - 5 days a week for 7 weeks. started July 2008 - OK at first - Got weaker- drove myself first couple of weeks- lost good judgment- totaled my car- wife drove me after that...got down to an old man's shuffle at the end.
37 radiation treatments from late Sept to the end of November of 2007. Side effects all my saliva gland were destroyed. I can't hardly eat anythin because I have no saliva. swallowing is hard. I also have a different voice now. People call me sir all the time. And I stay tired still. Nerves are shot and now taking anti- depressants
Radiation Treatment May of 2012 to June 2012. Mouth was burned from radiation. Lost of taste buds. Fast forward two years. I have taste buds again.
35 IMRT treatments Dates: starting late August and ending November 11, 2011. Side Effects include; Dry mouth especially at night weak weight loss and muscle atrophy loss of appetite (food just tastes bad period) Mucus in mouth during the day
72 gy of radiation (before the advent of IMRT)
June 2009. not many, all related to not being able to swallow without pain. Important to get help, magic mouth wash, pain meds. Liquid diet essential
What Ovarian Cancer Survivors said about their Radiation Therapies.
Jan - Feb.2011 pelvic rad. ( for bone mets - palliative )
Fatigue nausea diarrhea dental problems severe digestion issues
low dose whole abdominal radiation + pelvic boost
No radiation done
Currently deemed unnecessary (following pathology). Will reassess in February 2012 to see of radiation of supraclavicular lymph nodes is required.
None to date
Radiation is new for me so Ill let you know as we get there
Radiation therapy to the abdominal/pelvic area; diarrhea, abdominal cramping
august 09: radiation in my stomach, new tumor 6 cm
pelvic rad. for bone mets January 2011
What Thyroid Cancer Survivors said about their Radiation Therapies.
RAI, 9/24/14, nausea (lots of it), slight headache, very loose bowels (too much info?)
Radioactive Iodine: July 2004
Radioactive Iodine (RAI), 02/05/2009
Radioactive Iodine treatment a week before Christmas....NO real immediate side effects
October 30, 2008 radiation, confined to my room in quaratine for 3 days.
RAI Dec. 18, 2009, 154 mCi. Permanent damage to both parotid glands.
Radioactive Iodine on October 2, 2013 of 125 mlCi
4 rounds of I-131, roughly 500 millicuries each time: 1. May 2005; 2. December 2005; 3. December 2007; 4. December 2009
Radiactive Iodine - February 2007.
May 1, 2014
Radiation treatment to begin February 20, 2012. Two days of intramuscular shots then a pill of 50 micrograms. Currently on synthroid every day.
RAI 131 May 2003, Feb 2005, June 2010 side effects: fatigue, brain fog, mouth dryness, dry skin achy joints especially hips.
July 27 - stayed at the hospital for 4 days then another 7 elsewhere (have a toddler) and didn't want him effected.
4/28/09 - 150 mCi RAI
6/25/14: Radioactive iodine (i-131), 146mCi. Side effects: nausea, swelling/pain in salivary glands, loss of appetite, loss of taste, metallic taste, dry mouth, burning mouth, fatigue. I also began developing tonsil stones and now have cold sensitivity in some teeth.
7/20/10: Radioactive Iodine Therapy
I completed RAI-131 in December 2009 and follow up scans until 2010. Follow up ultrasounds with lymph node mapping tests continue.
Soon to start high dose of Radioactive Iodine. Meet with doctor next week.
I will begin within a month
I took the Pill in November of 2013. I was on the low-iodine diet for ten days. I had an extremely hard time with the diet, and my neck was sore for a week after i took the pill.
35 RADIATION TREATMENTS IN 2011, DEVELOPED BLOOD CLOT IN THE LUNGS BEFORE MY 34TH TREATMENT.....
RAI treatment- Still waiting on date.
Radioactive Iodine on August 2, 2010. I was very sick to my stomach for about 5 days.
I-131 given on 8/30/2010
15-19 June 2009- First doses of RAI. Very dry mouth, metallic taste, overall weakness. 15-19 Dec 2009- First full body thyroid scan with thyrogen shots...not fun
What Stomach Cancer Survivors said about their Radiation Therapies.
Radiation began 6.21.13 - Extreme Tiredness, nausea, that is when he essentially stopped eating.
Left skull base October'09. Dehydration, hair loss, weight loss, ringing in ears with a pressure that felt as though ears were going to explode. Blisters on ears both inside and out and raw peeling facial skin. January '10 another round of 15 treatments on pelvic area and spine. Unable to walk, numbness of entire lower body and left leg. Effects still going on to left side of body. Feet freeze like they are always in a vat of ice. They are very heavy feeling as though they are being dragged. Hole through the center of back. I assume this is where the radiation burned thru the body.
Will begin after chemo
Doctor saids he want help.
radiation 1989 - ignorance is bliss....I didn't find the treatment too bad, maybe 'cos I'm able to block out the "what if" questions (or as my wife prefers to put it, I am too stupid to get worried)
What Brain Cancer Survivors said about their Radiation Therapies.
DATES: Jan06 - Mar06 Side Effects: Hair loss, metalic taste when receiving radition, nausea, sensitivity to sun
right now 10 rounds on the one left in my brain, and the spots that the other 2 was removed from
Radiation - 6 weeks ends August 24th
Alot of skin burning and pain associated with that.
Started radiation November 9, 2011 -6 week course - to early to see much reactions as yet
August and September 2007, Hair loss at site, nausea, redness and burning at site. August 2009, Minimal Side Effects
2005- 30 days
every 5 days then off for two days for a period of 3 weeks. Loss of hair and VERY tired afterwards
Picking neuro-oncology now
6-08 IMRT, It made me tired!
6 weeks of radiation - hair loss - tired.
Starts radiation 9/12/11
30 treatments in March/April 09 with headaches, loss of appetite, increased thirst, feeling of being hot
33 sessions targeted computerized radiation with mask began September, 2006 Side effects: extreme fatigue, partial loss of hair, dry itchy scalp, burned scalp
Microradiosurgery done in Singapore. Given 30 Gys in 10 fractions. Started on April 15, 2009. Hair loss in some places.
Radiation started in the end of Feb. went 8 weeks of treatment-fatigue, hair loss in area of tumor, memory loss
i had radiation of the brain and spine -> Damaged hair follicles, burnt skin, swelling. Chemotherapy and Chemo boosts -> foot drop, blood damaged
6 weeks of Radiation. finished last treatment 6-28-2011
IMRT began July 22, finished 30/30 treatments August 30, 2013. Hair loss, problems with eye focus, bad leg and feet cramps at night, face tics, tiredness.
started 9/13/2010-weekdays, mostly tiredness
42 days of radiation. Lost my hair, fatique, nausea, headaches.
radiation daily for 6 weeks. started with just burns on my head. get the blue light special during radiation. hair started falling out this weekend (9/26)
met the nicest people at the radiation dept.
What Multiple Myeloma Cancer Survivors said about their Radiation Therapies.
November 2010. No side effects.
Was nauseated after almost every session. Due to the back pain it was extremely hard to get from the stretcher to the table. It always felt like i was getting stabbed in the back. Loss of appetite.
12 treatments to shrink the sacrum tumor 1/29 to 2/29 side effects none
one very strong round of total body lymphathic radiation
What Colon and Rectal Cancer Survivors said about their Radiation Therapies.
Radiation five days a week for five and a half weeks, with breaks due to low platelet counts and burns. Extremely painful bowel movements, severe skin irritation.
5 days a week for 25 sessions; then 3 intense bouts. Started March 8th. Recently pain at site, diarrhea, cramping
No radiation, not worth the risks of making damage from surgery worse.
After Chemo I will have four weeks of radiation with 5FU.
10 rounds of Radiation soreness in back but that may still have been from cancer lesions in bone, tired feeling after each radiation treatment.
I had radiation therapy in 2002, 2003, 2004 and 2005. The only side effects were fatigue and on one occasion, a bowel blockage (this was before the colostomy).
Dec. 29, 2009- Feb. 5, 2010 Fatigue, sores on bottom, bone thinning in my sacral area
25 treatments finished 12/28/10
2/1/2010-3/11/2010 not bad, but tiring!
28 days of RADS ,a small amount of weight loss.tired,raw butt
Pre OP external beam radiotherapy to a dose of 50.4Gy for 28days to Pelvis from 04/03/2008 to 10/04/2008on 6MV Linear Accelerator. No any side effect of radiation
Started radiation 9-14-2009, radiation of pelvic area. Will be for six weeks, everyday five days a week. No side effects yet. 5fu is now constant infusion via pump and Oxaliplatin is halted until end of radiation.
WEEK 1 - AUG 16, 5 out of 25 done!!! no pain during treatment, no side effects. Noticing tender when wiping butt but not too bad.
Sept. & Oct. 2005- every day for 5 weeks (except for Sat. and Sun.)
5 weeks of radiation and chemo. July 2007
Daily treatments 08/10/2011 - 09/22/2011 Finished the treatment with little side effects. A few days of burning on urination but that was resolved. Tired the first few days after treatment ended but I increased my exercise routine and now I don't have any more fatigue.
Chemo-Radiation Sept 2009 through Nov 2009.
Radiation therapy 5 1/2 weeks. Started 7/12/2011. Radiation in combination with xeloda. Tired and weak. Low energy with uncontrolled diarrhea.
Radiation for 28 days before surgery, totally demolished my skin at the bottom.
Just finished six weeks (28 treatments). Fatigue, diarhhea, extreme pain while going to the bathroom (probably due to a fissure that I got because of being constipated from the anti-nausea meds, burning of the skin,sensitivity to the sun, fatigue). Symptoms got progressively worse from week 4 to about 2 weeks after completing the treatments.
Radiation for me became a time of meditation and a time to just lay back and picture my cancer cells being burned to a crisp (along with my bladder, vagina, uterus, ovaries, and anything else in there)...sometimes I cried during treatment and sometimes I just pretended it wasn't really me...I had the best team and although I hope to never have to deal with this treatment again I know where I will go without a doubt - Wellspring Oncology in St.Petersburg Florida. I had six weeks of daily (mon-fri) treatments starting Sept 8, 2008 and ending Oct.20, 2008. I had pretty bad "burns" all over my vaginal and rectal areas, pain in my butt (haha), and my bladder was affected (frequency, burning)...I still have no confirmation of the extent of damage to my womanly organs but will in a few weeks...
Up to this point none, but within the last 24 hours have had bowl movements every two hours. Have developed irritation of the anal area, very imflammed and severe buring sensation, bowel movements have become very painful due to the irritation.
I had 15 treatments of radiation which were a little hard on the system. It took me about 10 days before I started to feel better however it did shrink the tumour and alleviated the pain. I was finally able to sit without experiencing pain.
What Liver Cancer Survivors said about their Radiation Therapies.
i will tell you
Radioactive spheres injected into the liver. May and September 2009. Thought it had worked but didn't
What Cervical Cancer Survivors said about their Radiation Therapies.
For me radiation was a breeze..I had no side affects outside of hairloss in the treated area. I also had 2 internal rads which seem to last forever but I made it!!
menopause (there had to be some bonus!).
28 external and 3 internal radiation
Doing Radiation concurrently with Chemo so I'm not exactly sure which side affects to attribute to which treatment. Very nauseated, shaky, dizzy, tender in the groin and abdomen area.
02/2010 - 03/2010 28 external and 3 internal rad.
Weekly internal radiation Daily external radiation for six weeks
I have one more week of radition and i am done with my 6 weeks of treatment. The external radition treatments were a piece of cake. It took about 10 min 5 days a week. They dont' hurt and i never really had any side effcts until this week. A little burning and itching in the private areas but tolerable. The bad part was th internal radiation. I don't want to scare anyone but they do hurt somewhat. We are not talking the worst pain of your life but def uncomfortable. The first day is the worst and it gets better from there. The first day for me meant a cathedar in place, then something in the rectum, then the vaginal cylinder in place. I stayed like that for about an hour while they did the treatment planning. Then they did the treatment which lasted only 6 minutes. I did cry through it because having every hole plugged up is just not a natural thing girls! The second one went better. They only put the vaginal cylinder in and take a few xrays and then the 6 min treatment. Still unconfotable but muc easier. I have 2 more to go. They do offer you sediatives and mild pain pills, but i handled it without that stuff. But it is there if you request it.
28 external and 5 internal rad.
Sept 2008 - Dec 2008, Low Dose External, 3rd and 4th Degree burns of the genital and perinea areas.
currently on external beam but will have two sessions of brachytherapy which I am dreading
Full radiation daily 6 weeks , 3 internal radiation treatments
Started external radiation on 2/4, to have 25 treatments; then 2 "internal" ones fatigue, but can't blame it all on radiation
diarrohea and severe pain of the bowel and stomach cramps, off food for a few weeks
Radiation Oct 07-Dec 07 5 weeks of daily external radiation, then 3 days of Brachytherapy in hospital. Burning in pelvic area, frequent loose stools (5-6 times a day) frequency and urgency with urination. Really bad fatigue, lasted a long time after. Oct 09 External radiation to vag 10x (2 weeks). burning in vag/urethra, pain on urination, radiation burns on outside of thighs (entry points) fatigue.
Started 6/03/09 finished 7/15/09 ... 28 days IMRT pelvic radiation. Side effect- too many to list, skin burns, constant extreme diahrrea, urinary burning, hair loss in radiation area, nausea and vomiting... TIRED (unlike anything I've ever known!!)
Rather not discuss
7 weeks of external radiation 59 hours of internal radiation (brachtherapy) 4 weeks of chemotherapy (Cisplatin)
Had external and internal (brachytherapy) radiation over a six week schedule. 28 external rounds and 5 internal rounds. Radiation was concurrent with chemotherapy (cisplatin) for 6 weeks once a week. Seriously fatigued for at least six months post treatment.
Just started Radiation, Monday Wed Fri for 10 wks Increased nausea!!!
August, Sept, and Oct radiation. Side effect is lymphedema in my left leg.
External for 3 weeks daily, Internal for 5 treatments and TOMO for 5 treatments. Internal was the hardest on Aimee because body parts had to be temporarily moved to get to the right spot. Darkening of skin and loss of skin in genital area.
26 external radiations; 5 internal radiations (brachytherapy); No burning; diarrhea and intestinal cramping-relieved with levsin medication; longer term effects--pain and swelling in abdomen and lower back pain
internal radiation is the worst thing in the world. i called it the lightning rod treatment
Start- 10-2-10 End- 12-17-10. Horrible diarreha, severe burning during urination and pain in both areas.
What Larynx Cancer Survivors said about their Radiation Therapies.
35 radiation treatments starting May 2
36 total radiation sessions February 02 - March 25, 2011. After about 13 sessions my throat pain required ongoing codeine relief, and the skin on my neck began showing signs of intensifying sunburn. By the end of February my voice went missing and is just starting to return as June begins.
First treatment December 19,2011
Nov 30th-Jan 14, 2010 Neck and lower face was a serious sunburn, Lots of swelling on the inside, no appetite-lose your taste buds where everything tastes like card board. Fatigue that is hard to describe.
What Acute Myeloid Leukemia Cancer Survivors said about their Radiation Therapies.
Total Body Irradiation, June 2012. Side effects: vomiting, ovarian failure (now on hormone replacement therapy)
Recieved 4 days of fullbody radiation for the Bone Marrow Transplant. I actually didn't feel too bad but the fatigue was huge.
January 2010. Nausea. Later/cataracts. General weakness
Treatment for osteosarcoma, three years ago.
No radiation so far. Thank God!!
What Testicular Cancer Survivors said about their Radiation Therapies.
had no treatment
What Acute Lymphocytic Leukemia Cancer Survivors said about their Radiation Therapies.
Never had any
Full-body radiation 2 times daily for 4 days. Dry mouth and ulcers in the throat and intestines.
Total Body Irradiation, 8/10/10-8/13/10. Felt a little tired. Make sure you eat well prior to radiation treatments. I got a little "sun burn."
What Anal Cancer Survivors said about their Radiation Therapies.
Burning, diarrhea and other minor things right now. Started radiation on August 26, 2014. Total 33 treatments
December 14th, 2009 - January 21st, 2010. Mon - Fri for 6 weeks. Side effects: Abdominal pain, loose bowel movements, extreme skin irritation (skin peeling, burning, raw)of the anus, vagina and upper-inner thighs. This was especially severe during the last couple of weeks of treatment and for a week or so post-treatment.
35 days of radiation
Severe burns. Total loss of skin to top of thighs & labia - ouch!
start radiation on Jan 12th Finished March 1st
Starting 8 weeks of Monday - Friday radiation therapy 11/1/11
2/09/10 daily except for weekends. 3rd degree burns/skin discoloration
I had an amazing radiation oncology team. In February 2010 underwent 6 weeks of radiation combined with cisplatinum and 5FU. The side effects are harsh skin burns, diarrrea, dehydraition, but I made it through it without a break and recovered in about 3 weeks with the incredible support of the radiation oncology team.
Its been a year since I have completed my treatment and I am still suffering from side effects of the radiation.
Highest possible beam, 27 consecutive treatments
IMRT 30 rounds. Burns, peeling skin and extreme diarrhea.
ok burns butt doing okay 12/7-12-15/ 12/30 12/31
Radiation has been ongoing since 2/12/07. The first layer of skin around the anal site and vulva is gone and there is a great deal of irritation and pain,
Started Radiation Therapy 3/14/12 ended 4/30/12. Burned bottom and mouth sores during treatment, healed well after treatment. It is now 2 years since treatment started and I believe I am suffering from Pelvic Radiation Disease: Anal Bleeding, occasional (but getting more frequent) bowel incontinence, flemmy discharge with flatulence, frequent BMs. All of this started about 3 months ago.
28 treatments IMRT by end of 2nd week burning, itching, diarrhea last treatment 12/6/2010
Radiation, 33 treatments. Began 1/30/12.
6 weeks the last 3 weeks were the most painful.
33 treatments radiation treatments. Had to have a 2 week break after my 2nd week of chemo and 25 radiation treatments because urinating became so painful. Nausea, diarrhea, low red & white blood cells, low potassium.
Unknown - just starting out
52-54 gray over 30 - 35 days starting on Dec 6, 2010... Had second week of chemo starting on my birthday, Jan 3rd, 2011. Cummulative effect of chemo and radiation made side effects of extremely painful bowel movements, constipation, diarrhea and fatigue unbearable. So radiation treatment was stopped for about 10 days. Resumed on an alternating day schedule until completion first week of February. I thought it would never end... then I thought I would never start to improve. In both cases I was wrong.
Radiation began 11/26/12 should end Jan.11/2013. Side effects so far are extreme itching, fatigue, nausea, diarrhea.
25 doses over 5 weeks 3.8.09-4.9.09 36 Gy/18fx: primary tumour, inguinal, iliac lymph nodes 14 Gy/7fx: primary tumour & iliac lymph nodes Fatigue, discomfort and then pain passing urine and later, pain on opening bowels. Skin reddening, thickening and some "charring" but no blistering. Fatigue significantly improved 6 mths post treatment but ongoing. menopause - last period during second week of radiotherapy . . .
radiation April through May of 2010 Second degree burns, severe radiation proctitis
What Bone Cancer Survivors said about their Radiation Therapies.
2002 45 mins a day, 5 days a week, for 6 weeks. Burns
I wanted another baby hopefully if chemo didnt kill my ability
What Eye and Orbit Cancer Survivors said about their Radiation Therapies.
Radioactive plaque 09/09 Extreme tiredness at times, still get that. Sore eye for a short time, nowhere near as bad as I had imagined:)
Plaque brachytherapy - July 2003. Plaque inserted on Friday morning and removed Monday night. Long, long weekend in isolation and having to carry a geiger counter around. Eye was puffy, bloodshot for a long time, painful and vision deteriorated quite rapidly. Now have retinal detachment, pretty lousy vision in that eye and grey areas on the sclera (white of the eye) that may be burns from the cauterisation tool or where the sclera has thinned due to the radiation. Last November (2007), it was noticed that the edge of the tumour is still growing in some areas and I have therefore had to have these treated with Transpupillary Thermotherapy (laser).
What Nose, Nasal Cavity and Middle Ear Cancer Survivors said about their Radiation Therapies.
Radiation therapy starts tomorrow. 33 treatments @ 200 for a total of 6600.
What Nasopharyngeal Cancer Survivors said about their Radiation Therapies.
Radiation given from January to April 20 Side effects: loss of saliva, vomiting, weakness, dehydration, esophagus shrinkage
Started radiation on 11/4/13 after 6 weeks on induction chemo
35 days of head radiation, dramatic weight loss, burned skin, mouth and throat, had peg tub placed.
1st" dec 2002 - Jan 2003 to neck - saliva affected, have little saliva have to clean mouth all the time. 2nd round: Dec 2008 to lump in throat as x-ray showed nodules in both lungs
Meeting with Radiation Therapist on May 3rd to determine how much treatment will be necessary.
radiation therapy ending 5/29/12
What Ureter Cancer Survivors said about their Radiation Therapies.
Linear radiation March to May 2007. Three brachy-radiation treatments in June 2007. Side effects some bowel problems, diarrhea.
What Esophagus Cancer Survivors said about their Radiation Therapies.
Too many radiation treatments to count.
5 weeks of radiation September - October, 2012. Very tired. No burns at all to skin. I did what the doctors/nurses told me to do! Very, very sore throat. Could barely swallow but forced soft foods the entire treatment.
radiation from 11/1/97 to 12/15/97
28 days of radiation
currently undergoing treatments
Two weeks of radiation was fine. Fatigue.
The Radiation burned my throat and cause my taste bud to malfunction I had to be tube fed for about 4 months I will suffer for dry mouth for life I'm told.
Radiation to esophagus and abdominal lymph node March/April 2008 Radiation to supraclavicular lymph node January/February 2009
What Tonsil Cancer Survivors said about their Radiation Therapies.
Radiation treatments 35, side effects severe like sunburn, sore throat, couldn't eat for months, swollowing very difficult. I'm going to loose my teeth decaying at a fast rate and nothing they can do for me. Dentures will be my next step and not sure if they will work with no saliva gland. Destroyed saliva glands, thyroid, and teeth.
Starting March 12 2009
I'm supposed to have radiation after completion of 3 R-Chop chemotherapy treatments.
6 cisplatin tx, one every Monday, running simultaneously with radiation tx of 27 sessions, all of which ended on 11/14/12. Tolerated chemo well, it was a mild dose. Had Cytoxan in 1991 at age of 32 for systemic lupus nephritis and felt much worse then which was amazing because I'm a lot older now. Radiation did not bother me until 3rd week, at which time I lost my sense of taste. By the end of tx's, I was 103 lbs., but never weighed more than 120 lbs. anyway (i'm 5'6" but very small boned). All in all tolerated ok; it was after tx that I ran into a problem with mucousitis. Yuck.
30 days radiation
Six weeks radiation estimated to begin week of 9/10/12
30 planned radiotherapy sessions. Started 13/11/12 end date 20/12/12 Side effects so far (8/30 therapies)- skin burn, dry sore mouth, bleeding gums, lack of appetite, nausea.
Started 7 weeks of radiation and 7 weeks of Erbitux on May 11,2009.
External radiation 5 days/week.
Scheduled to begin 30 Radiation Treatments on March 19 In conjunction with weekly Eributix Infusion
IMRT Radiation to both sides of my neck to encompass the lymph nodes and base of tongue. My Oncologist was careful and did not want to risk that unseen cancer may have reached the base of the tongue so he treated as if it had to reduce risk of recurrence. Started Treatments on September 19th, 2011 twice a day for 6-weeks or total of 60-treatments. My last Treatment was November 2nd, 2011. The first 2-weeks were uneventful but week 3 to the end was painful and swallowing was a chore. No Peg Tube was used and I am glad I elected not to have one. My Oncologist and ENT also felt I should try not to use one to prevent swallowing issues in recovery. I am now 14-days out of my last treatment and my throat is improving finally.
Had it Twice: Once after the radical neck and again after the radical tonsilectomy
Start on March 29th 2011.
2/3/14 - 3/19/14 : 30 Radiation treatments (Tomo) Too many side effects to list. See post on 3/19/14 for top ten list.
Radiation around neck area 5 days per week began December 7, 2009 and ended January 28, 2010. Side effects included sore throat, difficulty swallowing, loss of taste, loss of salivary glands, constant dry mouth, and loss of hair all around neck and facial area.
35 IMRT, 3 Cisplatin mega doses, 100 units per time, 6 hour chemos...daily radiation for 7 weeks- weight loss, nausea, hair loss on face and neck, lethargy, lost energy, difficulty swallowing and choking anything thicker than water
I had 40 days of IMRT from below my cheek bones to above my shoulders starting in September 2006. Around day 25 i developed 2nd degree burns and was admitted to the hospital for about 10 days to recover. A mild case of Stevens-Johnson Syndrome they said. Long lasting side effects are dry mouth and difficulty swallowing.
35 seventy minute TomoTherapy with Hyperthermia sessions starting Wednesday, November 9th 2011
Begin IMRT 9/10/13
I no longer have saliva, the taste of food is terrible. My thyroid is out of whack!
7 weeks of radiation daily.
Nerve damage that was painful for several months.
Jaw tightens up when talking, need to stretch jaw muscles (stretch open mouth with sticks) 3 times daily (radiation). Need to fluoride teeth once a day. Lose saliva at night when I lay down and need to keep water around.
38 treatments, Burns, Mucus, Hocking, Weight Loss, No Taste, No Saliva
What Endometrial-Uterine Cancer Survivors said about their Radiation Therapies.
5 sessions of High Dose Brachytherapy will be done between 3rd & 4th chemo sessions (mid-June).
Started radiation in mid-June 2009 - 25 treatments are planned
25 external and 3 internal radiation March - April 2011 horrible burning and pain.
initially told not need 7/6/09 told raDIATION WILL BE NEEDED WHEN I HEAL FROM MY SECOND SURGERY..MY SURGEON NEVER CHECKED THE NODES WHEN HE DID HYSTERECTOMY I HAD TO FIND A NEW SURGEON AND HAVE LYMPHN NODE REMOVAL 8/6/09 27 NODES REMOVED NO CANCER
brachy UGH UGH UGH!!! Not the most pleasant experience for sure!! 4 treatments and side effects to look forward to vaginal stenosis... so far no side effects 2 down 2 to go
Radiation Tx for Vaginal Tumor - 4/20/09-5/5/09 (mom is fatigued, loss of appetite) Radiation Tx for Metastasis on Ribcage - 4/27/09-5/8/09 Mom developed a UTI that went unnoticed - doc said it was normal pain - this delayed her chemo tx.
25 cycles of daily external radiation. June-July 2011
No side effects
August 14th 29 days and then 2 internal treatments. Side effects irritated skin, diarrhea, less energy.
Started Sep26 2011. Every weekday for 7 weeks. Last treatment (high dose) planned for 11/11/11.
five weeks external beam radiation April, 2011-May, 2011 In-Patient HDR interstitial Brachytherapy 6/13-6/16/2011 Extreme diarrhea causing 2 days of in-patient hospital stay constant Dehydration requiring many infusions
25 rounds external, 3 internal, starting in October, 2007, finished in November.
Not good with dates...radiation for 6 weeks, 5 times a week for about an hour each day. Still can't eat much fruit, sometimes no fruit for days and days. This still happens, even after 4 years. Probiotics seem to help
March 2010 - April 2010 29 external and 3 internal rads. horrible burning, fatigue, diarhea, UTI
5-6 weeks of radiation planned after chemo is completed
Started 4 weeks after chemo. 25 external for 5 weeks. The only effects were bouts of dysentery and pain in the area treated, no skin problems. You feel worse toward the end of the week as it builds up. After #25 I had one internal treatment per week for three weeks. Radiation made me exhausted every day because it's such a grind. Talking to other patients you learn it's quite different for everyone.
6 weeks external beam some localized skin issues,,,,,late onset diah, naus--- ***BRACHEYTHERAPY HURT LIKE A BITCH - MOST GOD AWFUL THING I EVER FELT IN MY LIFE - VERY SICK for a few weeks
July-Aug 2014; few side effects
Don't know yet...
Started 5 weeks of external beam radiation in June of 2008. I had alot of nausea and loss of appetite, painful radiation burns. Damage done to ureters which caused me to have additional surgery in July and August of 2008.
annoyed bowels, extreme fatigue
30 radiation treatments, five days a week for six weeks
Started pelvic Aug 2, 2009 for 28 days. Finished with no side effects!
recommended to start in July
What Sarcoma Cancer Survivors said about their Radiation Therapies.
Radiation treatments started February 4 and end on March 23, 2011. My prescription is 66Gy over (7weeks) 33 treatments. Locally, the area being treated hurt pretty bad from being burnt to a crisp, but otherwise I still had lots of energy and I felt great.
Radiation from November 2010 - January 2011. Radiation burns toward the end, low blood counts, and always tired.
1 treatment of Radiation ; in Oct 2008 . Side effects - Horrible burn and pain . Alot of fatigue .
Like having a severe sunburn on the back of my throat. I could not even swallow my own saliva. I lost 30 pounds and became extremely dehydrated.
5 weeks of radiation - feeling tired and extremely fatigued after the sessions were over, radiation burns on back on leg that developed into very painful blisters. Radiation oncology nurse was so caring -- she made up an ointment to use that took away the pain and helped with the healing.
Radiation (Stereotactic Body Radiation Therapy)
Her first doctor didnt do enough or the right kind of chemo....the INSURANCE COMPANY wouldn't pay for the correct treatment.
Radiotherapy for 5 weeks from last week of june 2010. My skin became very sore and a section of it peeled off. My skin has darkened there and has stayed hard in that area.
Still to be determined.
Radiation I had every day at Palmerston North Hospital for 7 weeks - that was the maximum I could have before it gave me cancer!! Started in early Feb 2009 through until April 2009. I got extremely tired, exhausted with no energy at all! I also got a small radiation burn, but was controlled with creams and ABs.
2005 - on L5; 2007 - on L3; 2011 - on left femur & L4
To control size of tumor to right pelvic area
Finished radiation therapy on around December 24, 2010. He had six weeks of radiation therapy, and had to receive treatments five days a week for those six weeks.
I start exact radiation on 6-19-2012 for 6 weeks
December 2012-February 2013 Proton Beam Radiation, Massachusetts General Hospital
What Parotid Cancer Survivors said about their Radiation Therapies.
1st treatment 9/12/12 left jaw in pain from being stretched open and pushed by the mask; by 10th treatment, almost impossible to swallow, even water, because throat is so tight and sore and mouth & tongue are so sore
What Skin Cancer Survivors said about their Radiation Therapies.
could have had radiation but chose Mohs surgery
What Throat Cancer Survivors said about their Radiation Therapies.
IMRT radiation started 11/17/09. Side effects were almost immediate - nausea and tiredness. Not too long before I lost all appetite. Thank goodness I have a PEG tube.
Radiation for 33 times
NONE - Refused radiation on six separate ocassions
April - June 2009 Loss of Taste - most regained Loss of Saliva Production - some regained 35 Exposures Amifostine Injections to the Abdomin each day
Due to having a bit of tumor left, I am waiting to find out if I will need radiotherapy.
Every day, Monday through Friday, starting May 4, 2010. Side effects are extreme sore throat, dry mouth, fatigue, loss of taste buds. Taking pain meds for throat pain. The worst part for Tim is wearing the radiation mask.
Months of radiation that covered both my head and chest area. I no longer have salivary glands and I suffer from dry mouth (xerostomia) -- which means that I drink about a gallon to a gallon and a half of liquid every day. Taste has dramatically diminished and has been altered.
1997 - later side effects - 1999 Thyroid - placed on meds...2005 narrowed carotid artery plus first aspiration pneumonia. 2009, 2011, 2012 three more aspiration pneumonia. Placed on Feed Tube 2012.
33 rads treatments starting January 2009... in which it did not touch the cancer .I had a small burn on throat from rads.
Started December 14, 2010. Five days a week treatment. Severe oral mucositis and recently the first week of January, 2011 developed chronic skin abrasions on my chin and upper lip area, which made me look a monster! That being treated with bactroban.
TOMO Radiation started Feb 23, 35 treatments that are Mon-Fri until April 12th.
I'm at #17 out of 35. Burning and dry mouth.
What Tongue Cancer Survivors said about their Radiation Therapies.
Seven weeks Jan 4 thru Feb 19, Mon-Fri of TOMO radiation. At the end, severe burnt neck especially my right neck area. Severe sore throat.
Burned neck and throat and burn on neck got infected...my skin peeled, but little scaring
I started My radiation the first week in July and had alot of side effects. Many many sores in my mouth and thrush constantly. Also i was told i was very sensitive to the radiation and had so many sores and burns on my neck. I have a lot of scaring left.
Side affects were hideous.. She experienced a very deep painful burn on her neck.plus a percutaneous endoscopic (PEG)
Radiation on neck 5 days a week for five more weekws
July 6 Radiation and 1st Chemo begins
60 Grays (Gy) of radiation
Radiation to begin next week, 5 days a week. Began on 8/23/12.
I've already been through IMRT (radiation) for Tonsil Cancer in 2009. So, they can not do radiation to the same part of the body twice.
What Nose Cancer Survivors said about their Radiation Therapies.
Radiation side effects included loss of taste, trouble chewing, sore gums and teeth
What Ear Cancer Survivors said about their Radiation Therapies.
Proton Therapy test
What Jaw Cancer Survivors said about their Radiation Therapies.
Dry mouth, and due to the radiation I have osteonecrosis of the jaw and now in hyper baric chamber treatments so I can have all my teeth removed as they are all falling out on there own.
What Hodgkins Lymphoma Cancer Survivors said about their Radiation Therapies.
Cobalt Radiation on full chest and abdomen area's. I am proud of my 'Tatt's'! One thing that is just part of it all is the Pneumonia and other illnesses that comes from the low immunities can be some of the scariest and biggest battles we face. Too, with every new procedure and surgery, at least for me, my recovery times seem to be much longer. But despite the illness and weakness that chemo and radiation leaves you in ... if you are still breathing it is a gift.
86 treatments of what was referred to as Cobalt 80,full scan and mantle, 1975 & 1976.
I will start radiation after the chemo ends!
After chemo - 3 weeks of radiation was a walk in the park for me! I took up raquetball (not generally recommended by any doctor, other patients etc!)
Radiation therapy (RT), 2000 rads for 22 days, were given to areas of initial bulky disease. (middle of chest cavity)
Declined IFRT radiation therapy
Received 5 weeks of localized radiation to the chest
No never had radiation.
Start treatment on the 25th, chemo is the only treatment on the menu so far.
Haven't started yet
I didn't have an side effects from the radiation!
Radiation in July 2008. I was very fortunate and blessed not to have any side effects from radiation.
radiation was brutal and side effects were phnuemonia
Radiation therapy to field covering the mediastinum and bilateral hilar areas - 180 cGy per day to a total of 1980 cGy over 11 fractions. Radiation to the para-aortic and lumbar fields - 180 cGy per day to a total of 1980 cGy over 11 fractions. (1/30-2/13/92). I had persisting problems with nausea and vomiting throughout much of the radiation but it was reasonably controlled with Phenergan.
What Acute Lymphoblastic Leukemia Cancer Survivors said about their Radiation Therapies.
June 28, 2010-June 31, 2010 - IBR - twice a day for 15-20 minutes a session.
What Bile Duct Cancer Survivors said about their Radiation Therapies.
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