What Breast Cancer Survivors said about their Radiation Therapies.
December 2008 after second relapse: red, itchy skin, diarrhea
39 treatments... Half of Chemo was done first. "all" side effects possible...but not as bad as chemo.
10 weeks, lost alot of weight, it was cake compared to the 6 cycles of chemo, but at the end I was very, very sore, and exhausted. like being 4 weeks post-op all over again. I still have bone tenderness, and localized swelling if I take any type of hit to the area.
Completed 8 weeks of radiation therapy on 9-13-06. Minor fatigueness in the afternoons.
Mammosite Radiation scheduled for 9/10/2008
I got celulistis of the breast towards the ends of radiation
Will follow surgery, whenever that will be decided
Mammosite 5 day 2 times a day, a little sun burn. Right Breast in 2006. Left this 2011. The Breast to be removed.
2001 - Radiation
Yes 6.5 weeks worth. I had a bad burn.The fatigue was difficult.
Hated it so much. Had radition for 31 sessions. Side effects: subclincal hypothyroidism, and my left breast is hard.
Couldn't take radiation. Third treatment ended up in hospital with pain in the center of my chest. difficulty breathing. tried again, again same symptoms...doctor of radiology told me i was going to get cancer in my chest wall and it would be very painful to remove. So I am NOT. Still hurts.
Never had radiation
35 radiations. Side effects: severe burnt skin.
have not had yet until thru with chemo, then 35 treatments will follow
Radiation therapy went well --- got red and a little "crusty", but nothing compared to the effects of chemo. Tried to tell myself I was going to a spa daily for heat therapy. Never had any pain from radiation, but it was weird to see the change of skin color on my BACK from having gone right through me!
from August to October, 2009. I have a fair complexion so I did burn from the radiation and did have fatigue, but overall I didn't have that many problems with radiation.
Will know about radiation after I have surgery/
7 weeks of radiation - deep tissue burns - impossible to describe the pain
Radiation on site of mastecomy (2002) Radiation on T12 and right hip (2007)
Started radiation Oct. 25, 2006 and finished up Dec. 14, 2006. Side Effect: breast pain, very tender. And Still very tender.
I had 36 treatments of radiation. From July 8-06-August 16-06. I did get burnt and was applying aloe every day. I did get tennis elbow as a result of the radiation. I then had to have therapy for that.
What Prostate Cancer Survivors said about their Radiation Therapies.
The 39 trip to Radiation treatments were pretty anticlimactic. Thank god my job worked with me and let me leave early each day. Can't imagine if they didn't worked with me. I was lucky there! Never had any pain from the treatment and very little if any side affects. They is nothing to be worried about in this treatment as far as I'm concerned.
Burning senceation when urinating May 2000 to July 2000
to my back, ten treatments, now i need to self catherize and have a blood clot in my entire right leg
40 treatments in 2005. Difficulty holding bladder.
IMRT, 36 treatments, Sep 20-Nov 8, 2011. Side effects: the usual suspects -- GI and bladder/urinary irritation. Please write for details.
February 2003. Side Effects - ED, Tiredness, fatigue, hot flushes, Radiation burns to anus and buttocks, rectal leaking and short term memory loss.
Hd 9 weeks of IGRT, five days per week except July 4. Took about five minutes per day. It took a couple of weeks to get used to drinking a lot of water on the way to the treatment facility. At first, I couldn't differentiate between the signal to urinate or to defecate. I learned to just sit down on the toilet like a baby and that fixed that. They had really good instant brew coffee at the facility, so I'd have that - my first coffee of the day, around 10:00 A.M. Once, this caused a bowel movement while I was driving home. After that, I remained at the center to move my bowels and then drove home. I went to the gym and tried to lift some light weights around my upper body and that went OK. Right up to the last day, it was a challenge to get out of bed and go to the treatment. I don't know where or how I found the strength to stick with it. It doesn't hurt. I acclimatized to the way my body adjusted to what was going on. But it just took some kind of undefined, inner push to keep going. I was never a big eater but PCA and IGRT left me very uninterested in food. I think I "caused" my cancer, maybe by something I ate, or did wrong, last year. Treatment ended about four months ago.
Due to have in May 2014
3 months of conformal radiation at Tufts New England The radiation caused the bladder cancer and much irritation
Brachytherapy 10 yrs ago. Recurrence 2 years ago
Will begin in three weeks as I di the implants on 11th Of Oct not sure what is next
Nuclear Oncology 41 treatments 11/08 no side effects
41 sessions to pelvis area and prostate, using Orbit Arc, some side effects; dizziness, burns, medications helped ease the process
None. Had surgery not worked I would have been put on radiotherapy but thankfully it was not needed.
What Lung Cancer Survivors said about their Radiation Therapies.
single fraction radiation therapy to the pelvic bone for pallative care, Dec 2013, Vomiting
Ten whole-head treatments ending on 22 April 2010. Side Effects - loss of hair.
Radiation to leg
None to date - The surgeon and oncologist felt that I should wait before starting chemo or radiation and be on the anti-fungal medication, indicating at least a year, to see if once the infection was gone, the remaining spots in my lungs would be gone. In January of 2010, I lost my job, medical insurance and the financial ability to continue the meds. I've recovered enough to find work and have been there long enough to receive medical insurance...now to find the courage to return to the doctor and take up where we left off, uhhh less the pre-existing conditions...to be continued...
Starting radiation with my second chemo on the 24th of august 2010
Feb. 24, 2009 Gamma knife radiation perfexion treatment The procedure is nothing short of a miracle in technology, however it requires a metal `cage` to be attached to your skull. That process is brutal, as it the pressure release when it is removed. But they got em' so it was worth it :)
Will start this next week.
35 treatments daily for 7 weeks 1998
Just started 4/22
35 radiation treatments, some sore throat and trouble swalowing.
9/12/08 gold seed marker placement-inferior right hepatic lobe 9/22-9/26/08 Cyberknife radiation for liver metastasis
October 2008 Radiation. Max dose. She can never receive it again.
starting the 3rd week of August 2013
December 2004- Radiation to large tumor in lung. October 2005- Radiation to tumor in lung and spine. August 2008- Radiation to spine. May 2010- Full brain radiation.
Radiation 08/10 to 9/10. Side effects: soar throat, difficulty swallowing, and fatigue.
5 days of radiation Feb, 20-26 sore throat for 2 days tired
Radiation started 10/10/07 and I go M-F once a day for 6 weeks
Weill have gamma Knife radiation to brain lesions
10 brain treatments 9/16/09 to 9/29/09. 5 treatments targeted at mass in top of right femur 9/21/09 to 9/25/09.
15 days of 30 treatments. Extreme nausea-vomiting ribs and back hurt from A:cancer B:radiation C:surgery D: all above
4-12-10 targeted therapy radiation
Radiation was declined at this time.
Pelvis (aug '07) radiation to area possibly weakened femur in hip area - Fell Jan '10 and broke left hip - surgery to pin hip Jan '10 Left Adrinal Gland Area Sept '09 - Side effects - damaged about 1/2 of left kidney and about 1/3 of pancreas Lymph node in the lower middle back May '10 Left Lung and lymph node in left arm pit May '10 side Effects -fatigue
What Non-Hodgkin Lymphoma Cancer Survivors said about their Radiation Therapies.
Radiation daily for 3 weeks ending 28/6/2012
relapse cancer - radiation (June, 2011)
3 docs said yes, 3 docs said no, so I did not have radiation after chemo treatments proved decent
All of feb thirty days. Nausea and tired.
23 radiation sessions
not part of treatment
Radiation therapy was (25) Involved Field Radiation over 5 weeks, March 29th through May 2nd 2012. The radiation treatment itself was painless, although the mask and tongue guard were uncomfortable. The side effects were progress skin burns, mouth sores, difficulty swallowing, and nausea. The side effects subsided a couple of weeks after treatment ended.
23 rounds of radiation on my neck and shoulder.
Radiation October 2004
Zevlin. Horrible pain in my feet, very slow recovery, severe fatigue
May & June '10. Back burning.
radiation to left chest - side effects: feeling of a lump in my throat, fatigue
Intensity modulated radiation therapy, June 7th- July 12th 2012.
June 30th 2009, forgot how much the dose was, it was everyday for the whole two months. Side effects: burned skin, loss of appetite, hair loss, sore throat, gastric pain.
Bunch of long words
I hear you're pretty pukey but thats about it. Oh and it melts your innards and body externally.
Expected January 2013 x 30 days.
No radiation on the table yet.
luckily for me , i don't have to undergo radiation
None yet, though I get some if chemo doesn't kick it.
December 2013 - this is my second diagnosis of lymphoma. The first was last year and I had successful radiation treatment from Sept-Dec 2012 in my neck. By March 2014 all was well but I had a red eye. After 4 months of seeing my GP service (pretty useless I'm afraid) my wife insisted I see an eye specialist; as soon as I did I was diagnosed with a "residual" lymphoma in my eyes on August 30th 2013. Residual is good - it means it has not metastised, it was apparently "left over" from the last lymphoma in my neck. In October I had a CT scan that showed I was clear in all my other lymph glands - so that was good. So I had to have radiotherapy in both eyes. I'm going to keep this next bit short otherwise I could spend ages on telling you what I was told by the technicians, nurses, doctors and consultants about the technical processes they were about to treat me with. But it has all been good. Today I am writing this because, after 6 weeks of discomfort and 1 week of "superficial" radiotherapy (which never feels superficial!) and 1.5 weeks to go, for the first time, my eye doesn't hurt; it's hot inside but not scratchy. I have a good store of saline solution which is bliss when you use it….but then you need more and more, like a drug. Today I have not had to use it at all, it's 9pm UK time and 10 hours since my radiotherapy session this morning. Usually I'm in bed after spending 6-7 hours in pain with an eye patch on. I do expect the effects to get worse but all I can say today is that IT WORKS!! The basis of my optimism is that the radiation kills the cancer…..and I can happily live with the side effects because I am alive to experience them. Take heart.
20 sessions of radiotherapy on my mediastinal mass which caused damage to my left lung and heart in May - June 2012. The side effect I had was tiredness.
Brain Tumor 25 years later.
What Kidney Cancer Survivors said about their Radiation Therapies.
My husband had radiation at the site of his neck surgery.
no treatment yet?
10 days of radiation,difficult to say what side effects were from Radiation, Sutent (oral chemo) or Aredia (IV drip for bones)
Palliative Radiation for bone metastases (20 Gy/5 fractions) Dec 2012 Metastron Feb 2013
What Pancreas Cancer Survivors said about their Radiation Therapies.
no radiation or anything else just chemo
Radiation Therapy June 2011 for 5 weeks
Radiation - Jan 2013-March 2013; Reported weight loss, nausea, some disorientation on dehydration.
N/A would not help his type of cancer
Radiation - 6/14/10 to 7/22/10 Monday through Friday: Had some bad mornings starting about halfway through, but always seemed to feel better after his treatment. At night, the upset stomach side effects would kick in.
Radiation followed first course of chemotherapy, and was given for 28 days in September 2010
will be starting after Christmas
Radiation to start on Oct.25th for new tumor on 1st surgical bed thats not responding to other treatments..
Every other day radiation
Radiation once a day Monday - Friday for 5 weeks along with the 5-FU pack.
Mom chose not to do radiation
Xeloda Jan 2008-May 2008
What Oral Cancer Survivors said about their Radiation Therapies.
Loss of taste, acute mucositis, loss of hair at back or neck, blistering of throat.
33 IMRT Start date 3/18/2011. Mouth sores ( treating with Manuka honey ) stiffness in operated areas, fatigue, some hairloss in zapped area - so far not too bad... No burns yet. No taste.. Ugh!
25 treatments, 9 days in every 2 weeks - partial hair loss, starting 1st week in February this year, finishing March 18th
35 Rads Mid - 5 days a week for 7 weeks. started July 2008 - OK at first - Got weaker- drove myself first couple of weeks- lost good judgment- totaled my car- wife drove me after that...got down to an old man's shuffle at the end.
37 radiation treatments from late Sept to the end of November of 2007. Side effects all my saliva gland were destroyed. I can't hardly eat anythin because I have no saliva. swallowing is hard. I also have a different voice now. People call me sir all the time. And I stay tired still. Nerves are shot and now taking anti- depressants
Radiation Treatment May of 2012 to June 2012. Mouth was burned from radiation. Lost of taste buds. Fast forward two years. I have taste buds again.
35 IMRT treatments Dates: starting late August and ending November 11, 2011. Side Effects include; Dry mouth especially at night weak weight loss and muscle atrophy loss of appetite (food just tastes bad period) Mucus in mouth during the day
72 gy of radiation (before the advent of IMRT)
June 2009. not many, all related to not being able to swallow without pain. Important to get help, magic mouth wash, pain meds. Liquid diet essential
What Ovarian Cancer Survivors said about their Radiation Therapies.
Jan - Feb.2011 pelvic rad. ( for bone mets - palliative )
Fatigue nausea diarrhea dental problems severe digestion issues
low dose whole abdominal radiation + pelvic boost
No radiation done
Currently deemed unnecessary (following pathology). Will reassess in February 2012 to see of radiation of supraclavicular lymph nodes is required.
None to date
Radiation is new for me so Ill let you know as we get there
Radiation therapy to the abdominal/pelvic area; diarrhea, abdominal cramping
august 09: radiation in my stomach, new tumor 6 cm
pelvic rad. for bone mets January 2011
What Thyroid Cancer Survivors said about their Radiation Therapies.
RAI in June. Ultasound last week (Feb. 2012) no side effects
Radioactive iodine (103 mCi of I-131) on May 17th, 2012.
RAI July 7. 2014. A little nausea and some loss of taste. Still waiting for that to return.
Eight weeks after surgery I had to go in for a Radioactive iodine treatment. The hardest part of this was being away from my family for a week. In regards to side effects, I had some sores in my mouth and an upset stomach for a few weeks.
4 rounds of I-131, roughly 500 millicuries each time: 1. May 2005; 2. December 2005; 3. December 2007; 4. December 2009
I completed RAI-131 in December 2009 and follow up scans until 2010. Follow up ultrasounds with lymph node mapping tests continue.
Radiactive Iodine - February 2007.
RAI treatment- Still waiting on date.
I-131 given on 8/30/2010
July 27 - stayed at the hospital for 4 days then another 7 elsewhere (have a toddler) and didn't want him effected.
RAI Scheduled for 12/15/2010
6 weeks after surgery i had first dose of radio iodine and a year later i had another dose. I am 3 months out of my 2nd dose and I am experiencing swollen glands every once in a while. sometimes when i chew my saliva glands will get inflamed and it will be too painful to eat. Who knows is this is thyroid cancer and treatment related though
Radiation scheduled for June 30 in Dallas. Body Scan scheduled 2 weeks after radiation. Goal is the radiation will kill any cells remaining in my body.
Radioactive Iodine treatment a week before Christmas....NO real immediate side effects
Proton Therapy test
Radioactive iodine therapy Dec. 17, 2013. April 15, 2014
I-131 treatment, Sept 2010. Had 4 days in isolation, felt quite nauseous initially with relatively mild neck pain, and then tiredness for 7-8 weeks following. Am now experiencing vaginal bleeding for past 8 weeks, starting about 2 weeks after treatment, although its difficult to know if this is related to the I-131, or whether it is related to thyroxine levels. Am concerned over long term side effects, particularly fertility as we have not yet had a family and would like one!!
RA-131 74.4 Mci on June 5th. Side effects included swelling of my throat and neck, headache, nausea and eventually really nasty taste in my mouth. June 12th - full body scan, results were good, and follow up on July 24th with blood work. August 2010 follow up blood work and neck ultrasound which still shows NED. Lasting side effect from RAI - Blocked saliva glands, jaw pain and constant headache. Saliva started improving in July 2010 - but still have the pain and headache.
December 12, 2012, no side effects
nov,2010 300 units of radioactive iodine treatment
Rad 131 2 times
Radioactive iodine 131
Radioactive Iodine (RAI), 02/05/2009
Jan 13th 2012 first round of I-131 - Loss of taste buds, bad taste in my mouth, nausea, swollen glands, and sore throat.
What Stomach Cancer Survivors said about their Radiation Therapies.
Radiation began 6.21.13 - Extreme Tiredness, nausea, that is when he essentially stopped eating.
Left skull base October'09. Dehydration, hair loss, weight loss, ringing in ears with a pressure that felt as though ears were going to explode. Blisters on ears both inside and out and raw peeling facial skin. January '10 another round of 15 treatments on pelvic area and spine. Unable to walk, numbness of entire lower body and left leg. Effects still going on to left side of body. Feet freeze like they are always in a vat of ice. They are very heavy feeling as though they are being dragged. Hole through the center of back. I assume this is where the radiation burned thru the body.
Will begin after chemo
Doctor saids he want help.
radiation 1989 - ignorance is bliss....I didn't find the treatment too bad, maybe 'cos I'm able to block out the "what if" questions (or as my wife prefers to put it, I am too stupid to get worried)
What Brain Cancer Survivors said about their Radiation Therapies.
30 treatments in March/April 09 with headaches, loss of appetite, increased thirst, feeling of being hot
11/06-12/06 tolerated radiation and low dose of temodar quite well until the 4th week, then he became extremely fatigued.
Mom had radiation - only hair loss. Dad had radiation - trouble swallowing.
Radiation - 6 weeks ends August 24th
i had radiation of the brain and spine -> Damaged hair follicles, burnt skin, swelling. Chemotherapy and Chemo boosts -> foot drop, blood damaged
6 weeks completed 1-19-09
February-April 2013 lost hair, sore throat, skin burns
Picking neuro-oncology now
radiation daily for 6 weeks. started with just burns on my head. get the blue light special during radiation. hair started falling out this weekend (9/26)
1/12/12 - begin daily radiation for 6-7 weeks.
Radiation therapy from 04/06/2013 to 05/20/2013. I really did not have many side effects.
6000 rads over 6 weeks (200 rads/day M-F)
Starts radiation 9/12/11
Started radiation November 9, 2011 -6 week course - to early to see much reactions as yet
6-08 IMRT, It made me tired!
2005- 30 days
6 weeks of radiation - hair loss - tired.
5 minutes of radiation on my brain. February 2,2010
33 sessions targeted computerized radiation with mask began September, 2006 Side effects: extreme fatigue, partial loss of hair, dry itchy scalp, burned scalp
IMRT began July 22, finished 30/30 treatments August 30, 2013. Hair loss, problems with eye focus, bad leg and feet cramps at night, face tics, tiredness.
DATES: Jan06 - Mar06 Side Effects: Hair loss, metalic taste when receiving radition, nausea, sensitivity to sun
Radiation started in the end of Feb. went 8 weeks of treatment-fatigue, hair loss in area of tumor, memory loss
Just started radiation on 1/3/2011 Completed Radiation on 2/17/2011
August and September 2007, Hair loss at site, nausea, redness and burning at site. August 2009, Minimal Side Effects
What Multiple Myeloma Cancer Survivors said about their Radiation Therapies.
November 2010. No side effects.
Was nauseated after almost every session. Due to the back pain it was extremely hard to get from the stretcher to the table. It always felt like i was getting stabbed in the back. Loss of appetite.
12 treatments to shrink the sacrum tumor 1/29 to 2/29 side effects none
one very strong round of total body lymphathic radiation
What Colon and Rectal Cancer Survivors said about their Radiation Therapies.
Bart has undergone whole brain radiation. Brain tumor surgery via Gamma Knife.
from jan/08 to march/08 severe vaginal burning,fatague, loss of appetite,vomiting.
28 days after second surgery. Felt ok until the last week in which I was very tired.
Daily treatments 08/10/2011 - 09/22/2011 Finished the treatment with little side effects. A few days of burning on urination but that was resolved. Tired the first few days after treatment ended but I increased my exercise routine and now I don't have any more fatigue.
5 weeks of radiation for colorectal tumor,
Started radiation 9-14-2009, radiation of pelvic area. Will be for six weeks, everyday five days a week. No side effects yet. 5fu is now constant infusion via pump and Oxaliplatin is halted until end of radiation.
external, 5 days a week. Completed 9 of 28 treatments. So far so good... only side effect todate is fatigue.
After Chemo I will have four weeks of radiation with 5FU.
Radiation therapy 5 1/2 weeks. Started 7/12/2011. Radiation in combination with xeloda. Tired and weak. Low energy with uncontrolled diarrhea.
Pre-Surgery Radiation Therapy (in Linear accelerator) for 25 days from 27-Dec-2011 to 27-Jan-2012
5 weeks of radiation every day except weekends. Wasn't bad but did get some raw places between my legs in the groin area and my butt crack was raw and sore for about 2 weeks after the treatments were over.
Radiation started 6/27/11, 5 days a week for 6 weeks. I was very weak fatigue and nausea. Radiation was a very "grueling" experience.
I started readiation on christmas eve 2008. I felt a itching feeling in the area that had been treated but that was about it. As I have more treatments I will blog more info.
10/15/09 - 1/6/10. Intense pain from December 09 through April 10.
I had radiation therapy in 2002, 2003, 2004 and 2005. The only side effects were fatigue and on one occasion, a bowel blockage (this was before the colostomy).
Radiation began in June 2008 for 25 sessions. Suffered anus hernias and a damaged tail bone. The hernias were treated with a sith bath and the tail bone recovered by March 2009. Minimal hair loss around the pelvic area.
Radiation for 28 days before surgery, totally demolished my skin at the bottom.
i started with 28 treatments and have just over 10 left. i go mon thru fri 8am and have to drink enough liquids or else i feel sick. it hurts like hell i have radiation burns now and when i have to use restroom my insides are raw and i feel everything burn and stretch and a lot of times i sit there cursing and sometimes get tears.
10 rounds of Radiation soreness in back but that may still have been from cancer lesions in bone, tired feeling after each radiation treatment.
Radiation started Jan. 23 2012 28 sessions. Diarrhea and total burning of skin.
28 doses of radiation.
10/12/09 -11/20/09, 5 days a week for 5 weeks, 6th week went 2x a day. Bottom became very sore as the treatments progressed & bouts with diarrhea.
2/1/2010-3/11/2010 not bad, but tiring!
Sept. & Oct. 2005- every day for 5 weeks (except for Sat. and Sun.)
What Liver Cancer Survivors said about their Radiation Therapies.
i will tell you
Radioactive spheres injected into the liver. May and September 2009. Thought it had worked but didn't
What Cervical Cancer Survivors said about their Radiation Therapies.
radiation. Diareah my biggest hurt. IMMODIUM AD!! and vasaline
i felt like my insides were cooking, but i had great radiation doctors
Sept 2008 - Dec 2008, Low Dose External, 3rd and 4th Degree burns of the genital and perinea areas.
26 external radiations; 5 internal radiations (brachytherapy); No burning; diarrhea and intestinal cramping-relieved with levsin medication; longer term effects--pain and swelling in abdomen and lower back pain
45 minute a session, 5 days a week-December 2008-February 2009 with a boost in June 2009. rectal pain, pelvic pain, abdominal cramping, diarrhea, fatigue, dizziness, funky taste in my mouth.
28 external and 5 internal rad.
started 1/6/09: fatigue and upset stomach, loose bowels
fatigue, constant nausea, uncontrollable bowels, diahrea from hell!, dehydration. A couple of blisters on my hiney. The good news: the bleeding stopped after the second radiation treatment. Brachytherapy, 4 sessions, was interrupted for a blood transfusion for critical low blood cell counts.
Radiation side effects were just becoming exausted. I was pretty healthy until I got cancer, never had any health issues and never had to take any medication before.
Daily external radiation (tomotherapy?)for 10 weeks feeling depleted and vomiting
7 weeks of external radiation 59 hours of internal radiation (brachtherapy) 4 weeks of chemotherapy (Cisplatin)
Weekly internal radiation Daily external radiation for six weeks
Done and it sucked
External for 3 weeks daily, Internal for 5 treatments and TOMO for 5 treatments. Internal was the hardest on Aimee because body parts had to be temporarily moved to get to the right spot. Darkening of skin and loss of skin in genital area.
Tired. Nauseau. Diarrheia
External radiation with low dose cisplatin every week for 4 weeks. Then external radiation by itself for 3 more weeks. Side effects: pain, nausea, heartburn, fatigue.
For me radiation was a breeze..I had no side affects outside of hairloss in the treated area. I also had 2 internal rads which seem to last forever but I made it!!
Nausea and fatigue, Extreme Vomiting, Neuropathy
I had 30 tomotherapy radiations 5 days a week from June until August. The side effects were fatigue and nausea.
Started external radiation on 2/4, to have 25 treatments; then 2 "internal" ones fatigue, but can't blame it all on radiation
I'll be having radiation and Chemo after surgery (Happy, Happy, Joy, Joy! LOL)
Rather not discuss
Targeted radiation five days a week for five weeks, beginning April 27, 2010. Fatigue; skin darkening; bowel irritation; queasiness; hair loss in radiated area (yay!).
Start- 10-2-10 End- 12-17-10. Horrible diarreha, severe burning during urination and pain in both areas.
What Larynx Cancer Survivors said about their Radiation Therapies.
35 radiation treatments starting May 2
36 total radiation sessions February 02 - March 25, 2011. After about 13 sessions my throat pain required ongoing codeine relief, and the skin on my neck began showing signs of intensifying sunburn. By the end of February my voice went missing and is just starting to return as June begins.
First treatment December 19,2011
Nov 30th-Jan 14, 2010 Neck and lower face was a serious sunburn, Lots of swelling on the inside, no appetite-lose your taste buds where everything tastes like card board. Fatigue that is hard to describe.
What Acute Myeloid Leukemia Cancer Survivors said about their Radiation Therapies.
Total Body Irradiation, June 2012. Side effects: vomiting, ovarian failure (now on hormone replacement therapy)
Recieved 4 days of fullbody radiation for the Bone Marrow Transplant. I actually didn't feel too bad but the fatigue was huge.
January 2010. Nausea. Later/cataracts. General weakness
Treatment for osteosarcoma, three years ago.
No radiation so far. Thank God!!
What Testicular Cancer Survivors said about their Radiation Therapies.
had no treatment
What Acute Lymphocytic Leukemia Cancer Survivors said about their Radiation Therapies.
Never had any
Full-body radiation 2 times daily for 4 days. Dry mouth and ulcers in the throat and intestines.
Total Body Irradiation, 8/10/10-8/13/10. Felt a little tired. Make sure you eat well prior to radiation treatments. I got a little "sun burn."
What Anal Cancer Survivors said about their Radiation Therapies.
24 sessions of radiation starting 2/11/09 ending 3/14/09
just started treatment on 9/27/10 no side effects yet
IMRT daily from June 11 to July 17, 2012; the last 4 were boosts. Although I had proctitis and cystitis and would wish neither on anyone, with good drugs I got through. Within a month of treatment end both were fully resolved. No significant skin toxicity. No signs of vaginal stenosis.
Radiation - very hard on the skin. Doctor reduced node treatments to end of week 5 because burns were so bad. Vulva and labia badly burned but healed within 7-10 days. Did get a UTI infection but cleared up in a few days with antibiotics. Anal area still sore at 5 weeks post treatment. Lots of pain with bowel movements. On vicodin and ibuprofen for pain. Having a hard time managing painkillers (constipation), with stool softeners/ laxatives. Sought advice at UCSF Dysplasia clinic and they found 2 small ulcerations in the anal canal (opposite side of tumor) caused by the radiation. The radiation caused also caused nerve damage on the left side of my perineal area. I am on Neurontin and valium for pain and muscle spasm relief. Have been going to a pelvic pain physical therapist in order to desensitize the area.
32 radiation treatments starting June 6th
ok burns butt doing okay 12/7-12-15/ 12/30 12/31
Radiation started July 7 Burns started the end of the following week. Burns worsened the 3 week, to the point that there were blisters all around my anus and vaginal area. Doctors were suprised at the intensity of the burns. Start of 5th week, 2nd round of chemo, but burns got so bad by the Wednesday, that on the Thursday, I had to take a 10 day break. Burns healed incredibly fast and began treatment 10 days later. One thing I noticed was that in the beginning I was being set up for the radiation differently with each different technician... when I told the doctors that in week 4, he had the previous sessions scrutinized and from that time on, there was a distinct difference AND consistency in the setup process. I don't know if in the long run it will affect the effectiveness of my treatment or not. Only time will tell.
6 weeks radiation. Started March 4th. Monday-Friday. I am starting my 3rd week tmrw So far only vaginal and anal itching....
Started Radiation Therapy 3/14/12 ended 4/30/12. Burned bottom and mouth sores during treatment, healed well after treatment. It is now 2 years since treatment started and I believe I am suffering from Pelvic Radiation Disease: Anal Bleeding, occasional (but getting more frequent) bowel incontinence, flemmy discharge with flatulence, frequent BMs. All of this started about 3 months ago.
Radiation has been ongoing since 2/12/07. The first layer of skin around the anal site and vulva is gone and there is a great deal of irritation and pain,
IMRT: May 18, 2009 to June 26, 2009 - 5 days a week
Unknown - just starting out
scheduled Jan 4 2010 for 6 weeks
2/09/10 daily except for weekends. 3rd degree burns/skin discoloration
Radiation April thru May 2011 Severe diarrhea 2nd degree burns to perianal area abdominal pain, ilius for 1 week went to the hospital with fever and belly pain
IMRT for 28 treatments starting Jan 4th finished on Feb. 23rd 2010. With one 10 day stop after 24th treatment due to burns.
Thirty-six (3-D CRT) treatments beginning November 18, 2013 and ending January 29, 2014. Three weeks off during treatment because of severe (2nd degree) external burns on genital area and legs, severe swelling of genital area, and pain during urination and bowel movements. Constant fatigue. Two separate urinary track infections from radiation - the first caused high fever, mild hallucinations, pain and dehydration; with only pain and bloating the second time. Deep hip/upper leg pain developed a month after last radiation treatment.
Six and half weeks of radiation.
31 treatments horrible burning and pain no appetite bad diarrea
started 8-4-09 ongoing
I will begin radiation 12/30/13. 30 treatments are scheduled.
30 treatments from 6-23-2008 through August 4, 2008. IMRT... Burning, blistering..think Iwo Jima . Even with IMRT the burns were quite severe. Aftermath of this was stiffness in the hips..even five years later.
25 doses over 5 weeks 3.8.09-4.9.09 36 Gy/18fx: primary tumour, inguinal, iliac lymph nodes 14 Gy/7fx: primary tumour & iliac lymph nodes Fatigue, discomfort and then pain passing urine and later, pain on opening bowels. Skin reddening, thickening and some "charring" but no blistering. Fatigue significantly improved 6 mths post treatment but ongoing. menopause - last period during second week of radiotherapy . . .
start radiation on Jan 12th Finished March 1st
What Bone Cancer Survivors said about their Radiation Therapies.
2002 45 mins a day, 5 days a week, for 6 weeks. Burns
I wanted another baby hopefully if chemo didnt kill my ability
What Eye and Orbit Cancer Survivors said about their Radiation Therapies.
Radioactive plaque 09/09 Extreme tiredness at times, still get that. Sore eye for a short time, nowhere near as bad as I had imagined:)
Plaque brachytherapy - July 2003. Plaque inserted on Friday morning and removed Monday night. Long, long weekend in isolation and having to carry a geiger counter around. Eye was puffy, bloodshot for a long time, painful and vision deteriorated quite rapidly. Now have retinal detachment, pretty lousy vision in that eye and grey areas on the sclera (white of the eye) that may be burns from the cauterisation tool or where the sclera has thinned due to the radiation. Last November (2007), it was noticed that the edge of the tumour is still growing in some areas and I have therefore had to have these treated with Transpupillary Thermotherapy (laser).
What Nose, Nasal Cavity and Middle Ear Cancer Survivors said about their Radiation Therapies.
Radiation therapy starts tomorrow. 33 treatments @ 200 for a total of 6600.
What Nasopharyngeal Cancer Survivors said about their Radiation Therapies.
Radiation given from January to April 20 Side effects: loss of saliva, vomiting, weakness, dehydration, esophagus shrinkage
Started radiation on 11/4/13 after 6 weeks on induction chemo
35 days of head radiation, dramatic weight loss, burned skin, mouth and throat, had peg tub placed.
1st" dec 2002 - Jan 2003 to neck - saliva affected, have little saliva have to clean mouth all the time. 2nd round: Dec 2008 to lump in throat as x-ray showed nodules in both lungs
Meeting with Radiation Therapist on May 3rd to determine how much treatment will be necessary.
radiation therapy ending 5/29/12
What Ureter Cancer Survivors said about their Radiation Therapies.
Linear radiation March to May 2007. Three brachy-radiation treatments in June 2007. Side effects some bowel problems, diarrhea.
What Esophagus Cancer Survivors said about their Radiation Therapies.
Too many radiation treatments to count.
5 weeks of radiation September - October, 2012. Very tired. No burns at all to skin. I did what the doctors/nurses told me to do! Very, very sore throat. Could barely swallow but forced soft foods the entire treatment.
radiation from 11/1/97 to 12/15/97
28 days of radiation
currently undergoing treatments
Two weeks of radiation was fine. Fatigue.
The Radiation burned my throat and cause my taste bud to malfunction I had to be tube fed for about 4 months I will suffer for dry mouth for life I'm told.
Radiation to esophagus and abdominal lymph node March/April 2008 Radiation to supraclavicular lymph node January/February 2009
What Tonsil Cancer Survivors said about their Radiation Therapies.
7 weeks IMRT starting march 5 2012
I begin radiation February 20, 2012 for 6 weeks.
2/3/14 - 3/19/14 : 30 Radiation treatments (Tomo) Too many side effects to list. See post on 3/19/14 for top ten list.
IMRT (proton) to neck region. Total 70 Grey in worst area, 62 Grey in least radiated area. Got severe radiation burns to my neck which manifested in the last few days of treatment, and took 2 months to completely heal. No oral lesions (I applied aloe vera directly to my gums immediately upon getting off the table following each IMRT). The biggest side effect was damage to my taste and salivary glands, and to my soft plalate. Taste was completely gone from 4th week to one month following completion of treatment, then slowly returned (to some extent). Thick ropy mucus seems to be forever.
Radiation therapy started August 8th. IMRT 7 weeks 5 days a week.
started treatment May 2nd: IMRT mouth sores and mucositis Finished June 20th.
Radiation began on 8/31 with 35 treatments to follow.
Started on August 1o 2011 and end at September 5th 2011, starting my third week, so far some hair loss, partial loss of taste and dry mouth, no bad, fatigue,
Radiation started 7/11 - 35 days of treatment
35 seventy minute TomoTherapy with Hyperthermia sessions starting Wednesday, November 9th 2011
Completed May 18, 2012
start radiation on the 18th
IMRT 11/28/2011 - 01/10/2012 Supplemental radiation given 1/25/2012-1/27/2012 Side effects: Xerostomia, lost of taste, pain, difficulty swallowing.
01/07/07 34 sessions side effects facial hair gone no bad thang!! and the one most of us suffer from dry mouth a real pain but hey in the uk water is everywhere isn't it?
1/8/13 to 2/18/13. IMRT/rapid arc with simultaneous integrated boost. Did ok up till 4th week. lost 20lbs. severe odynophagia and mucositis. had dobhoff feeding tube inserted on last day of treatment due to severe symtoms listed.
Started Treatment on May 24, 2011... last treatment July 12, 2011 ...mostly tired thru treatment, loss of saliva glands on left side, loss of taste buds
Should start 7/16/2012
IMRT - loss of saliva, sore throat, thrush, sunburned neck, loss of taste, difficulty eating.
IMRT November 2011 - January 2012
4 of 35 treatments so far, burning in back of throat, some difficult swallowing.
Radiation in April, May, 2008...In general, I have been blessed! I have been very lucky to the extent that I dont have much saliva loss or other symptons. In 2010 I am currently having issues with radiation damage that include cramping in my neck muscles, difficultly maintaining my mouth opening and some slurring of my tongue. I am interested to know how others have dealt with these symptoms. In retrospect, I would have done more stretching exercises all along!!
Start date 10/28/08
I'm supposed to have radiation after completion of 3 R-Chop chemotherapy treatments.
Radiation is anticipated to begin the second week in July. Treatment plan will include 35 radiation sessions over a period of 7 weeks.
Treatments began on April 4, 2011
What Endometrial-Uterine Cancer Survivors said about their Radiation Therapies.
initially told not need 7/6/09 told raDIATION WILL BE NEEDED WHEN I HEAL FROM MY SECOND SURGERY..MY SURGEON NEVER CHECKED THE NODES WHEN HE DID HYSTERECTOMY I HAD TO FIND A NEW SURGEON AND HAVE LYMPHN NODE REMOVAL 8/6/09 27 NODES REMOVED NO CANCER
I had several rounds of a newer internal radiation for 3 months following surgery. I felt great each time for the 1st day or two, then became very tired.
25 rounds external, 3 internal, starting in October, 2007, finished in November.
Started pelvic Aug 2, 2009 for 28 days. Finished with no side effects!
November 2011-December 2011--25 days; long-term damage to bladder resulted in one week of hospitalization for blood clots, incontinence, extremely painful urination; serious bladder infection; low white blood cell count; burns on skin around hips and upper thighs; serious digestive problems; lost weight; 1 month after treatment had cytoscopy to confirm radiation cystitis; 6 months after treatment am taking Oxybutynin Chloride for ongoing bladder problems; felt pain in flanks during treatment, later problems with knees that come and go.
recommended to start in July
5-6 weeks of radiation planned after chemo is completed
annoyed bowels, extreme fatigue
brachy UGH UGH UGH!!! Not the most pleasant experience for sure!! 4 treatments and side effects to look forward to vaginal stenosis... so far no side effects 2 down 2 to go
5 sessions of High Dose Brachytherapy will be done between 3rd & 4th chemo sessions (mid-June).
30 radiation treatments, five days a week for six weeks
Haven't started yet. Need advice.
About halfway through my 25 radiation treaments extreme exhaustion, and lack of control on bowels, which cleared up few weeks after radiation stopped.
five weeks external beam radiation April, 2011-May, 2011 In-Patient HDR interstitial Brachytherapy 6/13-6/16/2011 Extreme diarrhea causing 2 days of in-patient hospital stay constant Dehydration requiring many infusions
28 external and 3 internal rad.
25 cycles of daily external radiation. June-July 2011
I just completed 5-weeks of radiation therapy on January 11. Side effects included an annoyed bladder, loose stool, light fatigue.
Started 5 weeks of external beam radiation in June of 2008. I had alot of nausea and loss of appetite, painful radiation burns. Damage done to ureters which caused me to have additional surgery in July and August of 2008.
Feb-April 09 Internal (3x) and about 6 weeks of external, monday thru friday. I only had diarrhea once and no other side effects, people were so nice at LIJ.
March 2010 - April 2010 29 external and 3 internal rads. horrible burning, fatigue, diarhea, UTI
After chemotherapy ends, I will get internal and external radiation for the endometrial cancer
August 14th 29 days and then 2 internal treatments. Side effects irritated skin, diarrhea, less energy.
Don't know yet...
Started radiation in mid-June 2009 - 25 treatments are planned
6 weeks external beam some localized skin issues,,,,,late onset diah, naus--- ***BRACHEYTHERAPY HURT LIKE A BITCH - MOST GOD AWFUL THING I EVER FELT IN MY LIFE - VERY SICK for a few weeks
What Sarcoma Cancer Survivors said about their Radiation Therapies.
Radiation from November 2010 - January 2011. Radiation burns toward the end, low blood counts, and always tired.
Radiation treatments started February 4 and end on March 23, 2011. My prescription is 66Gy over (7weeks) 33 treatments. Locally, the area being treated hurt pretty bad from being burnt to a crisp, but otherwise I still had lots of energy and I felt great.
1 treatment of Radiation ; in Oct 2008 . Side effects - Horrible burn and pain . Alot of fatigue .
Like having a severe sunburn on the back of my throat. I could not even swallow my own saliva. I lost 30 pounds and became extremely dehydrated.
5 weeks of radiation - feeling tired and extremely fatigued after the sessions were over, radiation burns on back on leg that developed into very painful blisters. Radiation oncology nurse was so caring -- she made up an ointment to use that took away the pain and helped with the healing.
Radiation (Stereotactic Body Radiation Therapy)
Her first doctor didnt do enough or the right kind of chemo....the INSURANCE COMPANY wouldn't pay for the correct treatment.
Radiotherapy for 5 weeks from last week of june 2010. My skin became very sore and a section of it peeled off. My skin has darkened there and has stayed hard in that area.
Still to be determined.
Radiation I had every day at Palmerston North Hospital for 7 weeks - that was the maximum I could have before it gave me cancer!! Started in early Feb 2009 through until April 2009. I got extremely tired, exhausted with no energy at all! I also got a small radiation burn, but was controlled with creams and ABs.
2005 - on L5; 2007 - on L3; 2011 - on left femur & L4
To control size of tumor to right pelvic area
Finished radiation therapy on around December 24, 2010. He had six weeks of radiation therapy, and had to receive treatments five days a week for those six weeks.
I start exact radiation on 6-19-2012 for 6 weeks
December 2012-February 2013 Proton Beam Radiation, Massachusetts General Hospital
What Parotid Cancer Survivors said about their Radiation Therapies.
1st treatment 9/12/12 left jaw in pain from being stretched open and pushed by the mask; by 10th treatment, almost impossible to swallow, even water, because throat is so tight and sore and mouth & tongue are so sore
What Skin Cancer Survivors said about their Radiation Therapies.
could have had radiation but chose Mohs surgery
What Throat Cancer Survivors said about their Radiation Therapies.
IMRT radiation started 11/17/09. Side effects were almost immediate - nausea and tiredness. Not too long before I lost all appetite. Thank goodness I have a PEG tube.
Radiation for 33 times
NONE - Refused radiation on six separate ocassions
April - June 2009 Loss of Taste - most regained Loss of Saliva Production - some regained 35 Exposures Amifostine Injections to the Abdomin each day
Due to having a bit of tumor left, I am waiting to find out if I will need radiotherapy.
Every day, Monday through Friday, starting May 4, 2010. Side effects are extreme sore throat, dry mouth, fatigue, loss of taste buds. Taking pain meds for throat pain. The worst part for Tim is wearing the radiation mask.
Months of radiation that covered both my head and chest area. I no longer have salivary glands and I suffer from dry mouth (xerostomia) -- which means that I drink about a gallon to a gallon and a half of liquid every day. Taste has dramatically diminished and has been altered.
1997 - later side effects - 1999 Thyroid - placed on meds...2005 narrowed carotid artery plus first aspiration pneumonia. 2009, 2011, 2012 three more aspiration pneumonia. Placed on Feed Tube 2012.
33 rads treatments starting January 2009... in which it did not touch the cancer .I had a small burn on throat from rads.
Started December 14, 2010. Five days a week treatment. Severe oral mucositis and recently the first week of January, 2011 developed chronic skin abrasions on my chin and upper lip area, which made me look a monster! That being treated with bactroban.
TOMO Radiation started Feb 23, 35 treatments that are Mon-Fri until April 12th.
I'm at #17 out of 35. Burning and dry mouth.
What Tongue Cancer Survivors said about their Radiation Therapies.
Seven weeks Jan 4 thru Feb 19, Mon-Fri of TOMO radiation. At the end, severe burnt neck especially my right neck area. Severe sore throat.
Burned neck and throat and burn on neck got infected...my skin peeled, but little scaring
I started My radiation the first week in July and had alot of side effects. Many many sores in my mouth and thrush constantly. Also i was told i was very sensitive to the radiation and had so many sores and burns on my neck. I have a lot of scaring left.
Side affects were hideous.. She experienced a very deep painful burn on her neck.plus a percutaneous endoscopic (PEG)
Radiation on neck 5 days a week for five more weekws
July 6 Radiation and 1st Chemo begins
60 Grays (Gy) of radiation
Radiation to begin next week, 5 days a week. Began on 8/23/12.
I've already been through IMRT (radiation) for Tonsil Cancer in 2009. So, they can not do radiation to the same part of the body twice.
What Nose Cancer Survivors said about their Radiation Therapies.
Radiation side effects included loss of taste, trouble chewing, sore gums and teeth
What Ear Cancer Survivors said about their Radiation Therapies.
Proton Therapy test
What Jaw Cancer Survivors said about their Radiation Therapies.
Dry mouth, and due to the radiation I have osteonecrosis of the jaw and now in hyper baric chamber treatments so I can have all my teeth removed as they are all falling out on there own.
What Hodgkins Lymphoma Cancer Survivors said about their Radiation Therapies.
Cobalt Radiation on full chest and abdomen area's. I am proud of my 'Tatt's'! One thing that is just part of it all is the Pneumonia and other illnesses that comes from the low immunities can be some of the scariest and biggest battles we face. Too, with every new procedure and surgery, at least for me, my recovery times seem to be much longer. But despite the illness and weakness that chemo and radiation leaves you in ... if you are still breathing it is a gift.
86 treatments of what was referred to as Cobalt 80,full scan and mantle, 1975 & 1976.
I will start radiation after the chemo ends!
After chemo - 3 weeks of radiation was a walk in the park for me! I took up raquetball (not generally recommended by any doctor, other patients etc!)
Radiation therapy (RT), 2000 rads for 22 days, were given to areas of initial bulky disease. (middle of chest cavity)
Declined IFRT radiation therapy
Received 5 weeks of localized radiation to the chest
No never had radiation.
Start treatment on the 25th, chemo is the only treatment on the menu so far.
Haven't started yet
I didn't have an side effects from the radiation!
Radiation in July 2008. I was very fortunate and blessed not to have any side effects from radiation.
radiation was brutal and side effects were phnuemonia
Radiation therapy to field covering the mediastinum and bilateral hilar areas - 180 cGy per day to a total of 1980 cGy over 11 fractions. Radiation to the para-aortic and lumbar fields - 180 cGy per day to a total of 1980 cGy over 11 fractions. (1/30-2/13/92). I had persisting problems with nausea and vomiting throughout much of the radiation but it was reasonably controlled with Phenergan.
What Acute Lymphoblastic Leukemia Cancer Survivors said about their Radiation Therapies.
June 28, 2010-June 31, 2010 - IBR - twice a day for 15-20 minutes a session.
What Bile Duct Cancer Survivors said about their Radiation Therapies.
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