What Breast Cancer Survivors said about their Radiation Therapies.
To be determined
I had my radiation for 38 days and I feel so tired most of the time.
March and April 2008 - part of my skin peeled just like a regular sunburn; tenderness months afterwards
Began Momocyte 5 immediately after the surgery but my breast was not big enough to tolerate it. then had 25 radiation treatments.
Radiation was the hardest for Kathy a lot of little pains and soreness.
Nov/07 PBR(partial Breast Radiation) 1 week = two times a day.
35 treatments ending July 2014
I had radiation for seven weeks five days a week, for about 45 minutes, some of my hair came out a little after starting to grow back after chemo, first of June, right after getting married in 1994, until end of July,bottom of hands and feet were black.
I officially start radiation tomorrow. I do like my Radiation Oncologist. He is pretty cool.
Sept-Oct. 07. 26 treatments went well. Yes tired but not too much. Glad it is over. Hardly any burning. Used Lubriderm cream all the time; that helped. UPDATE AUG/08. Enjoyed the summer sun but made sure to use SPF 50 so as not to burn.
Starting June 29th 2010
July and August 2010. 25 days. No severe side effects.
I will have to do 6 weeks of radiation, after chemo
September 2007 Burned skin on chest and under arm
I did six weeks of radiation starting on October 26, 2005. What a whirlwind those months were!
1995, no side effects
3-10 to 4-25 i expected some burn under the breast. i did not expect burning and discoloration on the chest above the breast. i also did not expect the radiation would be misdirected enough to give me a sore throat and horseness.
Started MammoSite on 15 May 2007. First treatment went without a hitch. Second treatment, I developed a "big" air bubble and treatment could not be done. Replaced the first "balloon" with a larger one and was able to resume treatment the following day...2 treatments a day for 5 days and all done!!! NO SIDE EFFECTS like traditional radiation. YEA!!!!! :)
fatigue started when my radiation ended. sleep tight. you will wake when your bodys says so.
33 sessions in June - July 2010 at The Medical City, Philippines. Burn marks remain on my wife's chest from the sessions (although they have lightened with time).
Started radiation on 9/8/08. 5x/week for 6 weeks.
Radiation kicked my butt. I'm tired enough to need regular naps during the week. Mild sunburn? Not likely....I've had a rash and blistering.
33 radiation treatments. tired
No radiation needed
What Prostate Cancer Survivors said about their Radiation Therapies.
The 39 trip to Radiation treatments were pretty anticlimactic. Thank god my job worked with me and let me leave early each day. Can't imagine if they didn't worked with me. I was lucky there! Never had any pain from the treatment and very little if any side affects. They is nothing to be worried about in this treatment as far as I'm concerned.
Burning senceation when urinating May 2000 to July 2000
to my back, ten treatments, now i need to self catherize and have a blood clot in my entire right leg
40 treatments in 2005. Difficulty holding bladder.
IMRT, 36 treatments, Sep 20-Nov 8, 2011. Side effects: the usual suspects -- GI and bladder/urinary irritation. Please write for details.
February 2003. Side Effects - ED, Tiredness, fatigue, hot flushes, Radiation burns to anus and buttocks, rectal leaking and short term memory loss.
Hd 9 weeks of IGRT, five days per week except July 4. Took about five minutes per day. It took a couple of weeks to get used to drinking a lot of water on the way to the treatment facility. At first, I couldn't differentiate between the signal to urinate or to defecate. I learned to just sit down on the toilet like a baby and that fixed that. They had really good instant brew coffee at the facility, so I'd have that - my first coffee of the day, around 10:00 A.M. Once, this caused a bowel movement while I was driving home. After that, I remained at the center to move my bowels and then drove home. I went to the gym and tried to lift some light weights around my upper body and that went OK. Right up to the last day, it was a challenge to get out of bed and go to the treatment. I don't know where or how I found the strength to stick with it. It doesn't hurt. I acclimatized to the way my body adjusted to what was going on. But it just took some kind of undefined, inner push to keep going. I was never a big eater but PCA and IGRT left me very uninterested in food. I think I "caused" my cancer, maybe by something I ate, or did wrong, last year. Treatment ended about four months ago.
Due to have in May 2014
3 months of conformal radiation at Tufts New England The radiation caused the bladder cancer and much irritation
Brachytherapy 10 yrs ago. Recurrence 2 years ago
Will begin in three weeks as I di the implants on 11th Of Oct not sure what is next
Nuclear Oncology 41 treatments 11/08 no side effects
41 sessions to pelvis area and prostate, using Orbit Arc, some side effects; dizziness, burns, medications helped ease the process
None. Had surgery not worked I would have been put on radiotherapy but thankfully it was not needed.
What Lung Cancer Survivors said about their Radiation Therapies.
single fraction radiation therapy to the pelvic bone for pallative care, Dec 2013, Vomiting
Pelvis (aug '07) radiation to area possibly weakened femur in hip area - Fell Jan '10 and broke left hip - surgery to pin hip Jan '10 Left Adrinal Gland Area Sept '09 - Side effects - damaged about 1/2 of left kidney and about 1/3 of pancreas Lymph node in the lower middle back May '10 Left Lung and lymph node in left arm pit May '10 side Effects -fatigue
None to date - The surgeon and oncologist felt that I should wait before starting chemo or radiation and be on the anti-fungal medication, indicating at least a year, to see if once the infection was gone, the remaining spots in my lungs would be gone. In January of 2010, I lost my job, medical insurance and the financial ability to continue the meds. I've recovered enough to find work and have been there long enough to receive medical insurance...now to find the courage to return to the doctor and take up where we left off, uhhh less the pre-existing conditions...to be continued...
Radiation started 10/10/07 and I go M-F once a day for 6 weeks
Radiation was declined at this time.
Mevatron radiation for brain on Nov 22, 2012
35 radiation treatments, some sore throat and trouble swalowing.
Radiation 08/10 to 9/10. Side effects: soar throat, difficulty swallowing, and fatigue.
10 brain treatments 9/16/09 to 9/29/09. 5 treatments targeted at mass in top of right femur 9/21/09 to 9/25/09.
9/12/08 gold seed marker placement-inferior right hepatic lobe 9/22-9/26/08 Cyberknife radiation for liver metastasis
starting the 3rd week of August 2013
Starting radiation with my second chemo on the 24th of august 2010
35 treatments daily for 7 weeks 1998
Will start this next week.
Radiation to leg
Just started 4/22
Weill have gamma Knife radiation to brain lesions
December 2004- Radiation to large tumor in lung. October 2005- Radiation to tumor in lung and spine. August 2008- Radiation to spine. May 2010- Full brain radiation.
radiation starts on March 8th
Feb. 24, 2009 Gamma knife radiation perfexion treatment The procedure is nothing short of a miracle in technology, however it requires a metal `cage` to be attached to your skull. That process is brutal, as it the pressure release when it is removed. But they got em' so it was worth it :)
I started radiation treatments on October 25, 2010. I'm not sure what all of this means but my total dose is 6,120cgy. I have 34 treatments total; so I receive 180cgy a day, monday through friday. So I should finish around December 13, 2010 depending on if I miss any days or if my oncologist wants to change my plan. My side affects aren't too bad. I already have some shortness of breath so I don't think it is from the radiation. I have really sensitive skin so It is kind of red, so the therapists gave me some cream to rub on it. They mentioned that my skin will get worse before it gets better.
15 days of 30 treatments. Extreme nausea-vomiting ribs and back hurt from A:cancer B:radiation C:surgery D: all above
October 2008 Radiation. Max dose. She can never receive it again.
What Non-Hodgkin Lymphoma Cancer Survivors said about their Radiation Therapies.
No radiation on the table yet.
Radiation therapy was (25) Involved Field Radiation over 5 weeks, March 29th through May 2nd 2012. The radiation treatment itself was painless, although the mask and tongue guard were uncomfortable. The side effects were progress skin burns, mouth sores, difficulty swallowing, and nausea. The side effects subsided a couple of weeks after treatment ended.
May & June '10. Back burning.
Radiation October 2004
23 radiation sessions
None yet, though I get some if chemo doesn't kick it.
Radiation daily for 3 weeks ending 28/6/2012
relapse cancer - radiation (June, 2011)
All of feb thirty days. Nausea and tired.
June 30th 2009, forgot how much the dose was, it was everyday for the whole two months. Side effects: burned skin, loss of appetite, hair loss, sore throat, gastric pain.
20 sessions of radiotherapy on my mediastinal mass which caused damage to my left lung and heart in May - June 2012. The side effect I had was tiredness.
Bunch of long words
December 2013 - this is my second diagnosis of lymphoma. The first was last year and I had successful radiation treatment from Sept-Dec 2012 in my neck. By March 2014 all was well but I had a red eye. After 4 months of seeing my GP service (pretty useless I'm afraid) my wife insisted I see an eye specialist; as soon as I did I was diagnosed with a "residual" lymphoma in my eyes on August 30th 2013. Residual is good - it means it has not metastised, it was apparently "left over" from the last lymphoma in my neck. In October I had a CT scan that showed I was clear in all my other lymph glands - so that was good. So I had to have radiotherapy in both eyes. I'm going to keep this next bit short otherwise I could spend ages on telling you what I was told by the technicians, nurses, doctors and consultants about the technical processes they were about to treat me with. But it has all been good. Today I am writing this because, after 6 weeks of discomfort and 1 week of "superficial" radiotherapy (which never feels superficial!) and 1.5 weeks to go, for the first time, my eye doesn't hurt; it's hot inside but not scratchy. I have a good store of saline solution which is bliss when you use it….but then you need more and more, like a drug. Today I have not had to use it at all, it's 9pm UK time and 10 hours since my radiotherapy session this morning. Usually I'm in bed after spending 6-7 hours in pain with an eye patch on. I do expect the effects to get worse but all I can say today is that IT WORKS!! The basis of my optimism is that the radiation kills the cancer…..and I can happily live with the side effects because I am alive to experience them. Take heart.
Zevlin. Horrible pain in my feet, very slow recovery, severe fatigue
Intensity modulated radiation therapy, June 7th- July 12th 2012.
not part of treatment
Brain Tumor 25 years later.
radiation to left chest - side effects: feeling of a lump in my throat, fatigue
luckily for me , i don't have to undergo radiation
I hear you're pretty pukey but thats about it. Oh and it melts your innards and body externally.
Expected January 2013 x 30 days.
Yes, radiation on both sides, and I have had breast cancer on both sides.
3 docs said yes, 3 docs said no, so I did not have radiation after chemo treatments proved decent
What Kidney Cancer Survivors said about their Radiation Therapies.
My husband had radiation at the site of his neck surgery.
no treatment yet?
10 days of radiation,difficult to say what side effects were from Radiation, Sutent (oral chemo) or Aredia (IV drip for bones)
Palliative Radiation for bone metastases (20 Gy/5 fractions) Dec 2012 Metastron Feb 2013
What Pancreas Cancer Survivors said about their Radiation Therapies.
Radiation Therapy June 2011 for 5 weeks
Radiation - Jan 2013-March 2013; Reported weight loss, nausea, some disorientation on dehydration.
N/A would not help his type of cancer
Radiation - 6/14/10 to 7/22/10 Monday through Friday: Had some bad mornings starting about halfway through, but always seemed to feel better after his treatment. At night, the upset stomach side effects would kick in.
Radiation followed first course of chemotherapy, and was given for 28 days in September 2010
will be starting after Christmas
Radiation to start on Oct.25th for new tumor on 1st surgical bed thats not responding to other treatments..
Every other day radiation
Radiation once a day Monday - Friday for 5 weeks along with the 5-FU pack.
Mom chose not to do radiation
Xeloda Jan 2008-May 2008
no radiation or anything else just chemo
What Oral Cancer Survivors said about their Radiation Therapies.
Loss of taste, acute mucositis, loss of hair at back or neck, blistering of throat.
33 IMRT Start date 3/18/2011. Mouth sores ( treating with Manuka honey ) stiffness in operated areas, fatigue, some hairloss in zapped area - so far not too bad... No burns yet. No taste.. Ugh!
25 treatments, 9 days in every 2 weeks - partial hair loss, starting 1st week in February this year, finishing March 18th
35 Rads Mid - 5 days a week for 7 weeks. started July 2008 - OK at first - Got weaker- drove myself first couple of weeks- lost good judgment- totaled my car- wife drove me after that...got down to an old man's shuffle at the end.
37 radiation treatments from late Sept to the end of November of 2007. Side effects all my saliva gland were destroyed. I can't hardly eat anythin because I have no saliva. swallowing is hard. I also have a different voice now. People call me sir all the time. And I stay tired still. Nerves are shot and now taking anti- depressants
Radiation Treatment May of 2012 to June 2012. Mouth was burned from radiation. Lost of taste buds. Fast forward two years. I have taste buds again.
35 IMRT treatments Dates: starting late August and ending November 11, 2011. Side Effects include; Dry mouth especially at night weak weight loss and muscle atrophy loss of appetite (food just tastes bad period) Mucus in mouth during the day
72 gy of radiation (before the advent of IMRT)
June 2009. not many, all related to not being able to swallow without pain. Important to get help, magic mouth wash, pain meds. Liquid diet essential
What Ovarian Cancer Survivors said about their Radiation Therapies.
Jan - Feb.2011 pelvic rad. ( for bone mets - palliative )
Fatigue nausea diarrhea dental problems severe digestion issues
low dose whole abdominal radiation + pelvic boost
No radiation done
Currently deemed unnecessary (following pathology). Will reassess in February 2012 to see of radiation of supraclavicular lymph nodes is required.
None to date
Radiation is new for me so Ill let you know as we get there
Radiation therapy to the abdominal/pelvic area; diarrhea, abdominal cramping
august 09: radiation in my stomach, new tumor 6 cm
pelvic rad. for bone mets January 2011
What Thyroid Cancer Survivors said about their Radiation Therapies.
Radio Active Iodine treatment scheduled for June 2012
October 30, 2008 radiation, confined to my room in quaratine for 3 days.
I-131 treatment, Sept 2010. Had 4 days in isolation, felt quite nauseous initially with relatively mild neck pain, and then tiredness for 7-8 weeks following. Am now experiencing vaginal bleeding for past 8 weeks, starting about 2 weeks after treatment, although its difficult to know if this is related to the I-131, or whether it is related to thyroxine levels. Am concerned over long term side effects, particularly fertility as we have not yet had a family and would like one!!
RAI in June. Ultasound last week (Feb. 2012) no side effects
11/06 - Radioactive Iodine 105 McI 7/08 - Radioactive Iodine 158 Mcl - temporary blockage of saliva glands (3 & 5 months later)
I had the iodine radiation. No real side effects. worst thing was having to be away from my little one.
RAI Dec. 18, 2009, 154 mCi. Permanent damage to both parotid glands.
Getting prepared to start the I131 treament
Ouch March 2009 Pain in my neck, face, and teeth
RAI-131 Wednesday February 23, 2011 side effects...diarrhea metallic taste. Sweets taste good. Water tastes like a spoon...:(
RAI Scheduled for 12/15/2010
Radioactive Iodine on August 2, 2010. I was very sick to my stomach for about 5 days.
Radioactive Iodine-dry mouth everything tasted like cardboard for over two months. Salivary gland infection.
Radioactive iodine (103 mCi of I-131) on May 17th, 2012.
Doing this in January
December 12, 2012, no side effects
RAI 150 mci in Jan/09 and a second round scheduled in 12/09
Radioactive Iodine therapy on 16th of July. Lost taste buds for about 4 weeks.
Radioactive Iodine treatment a week before Christmas....NO real immediate side effects
7/20/10: Radioactive Iodine Therapy
RAI-Radioactive Iodine Abalation on 9/8/2009-some activity noted in the thyroid area, but no where else.
Soon to start high dose of Radioactive Iodine. Meet with doctor next week.
RA-131 74.4 Mci on June 5th. Side effects included swelling of my throat and neck, headache, nausea and eventually really nasty taste in my mouth. June 12th - full body scan, results were good, and follow up on July 24th with blood work. August 2010 follow up blood work and neck ultrasound which still shows NED. Lasting side effect from RAI - Blocked saliva glands, jaw pain and constant headache. Saliva started improving in July 2010 - but still have the pain and headache.
Jan 13th 2012 first round of I-131 - Loss of taste buds, bad taste in my mouth, nausea, swollen glands, and sore throat.
RAI treatment- Still waiting on date.
What Stomach Cancer Survivors said about their Radiation Therapies.
Radiation began 6.21.13 - Extreme Tiredness, nausea, that is when he essentially stopped eating.
Left skull base October'09. Dehydration, hair loss, weight loss, ringing in ears with a pressure that felt as though ears were going to explode. Blisters on ears both inside and out and raw peeling facial skin. January '10 another round of 15 treatments on pelvic area and spine. Unable to walk, numbness of entire lower body and left leg. Effects still going on to left side of body. Feet freeze like they are always in a vat of ice. They are very heavy feeling as though they are being dragged. Hole through the center of back. I assume this is where the radiation burned thru the body.
Will begin after chemo
Doctor saids he want help.
radiation 1989 - ignorance is bliss....I didn't find the treatment too bad, maybe 'cos I'm able to block out the "what if" questions (or as my wife prefers to put it, I am too stupid to get worried)
What Brain Cancer Survivors said about their Radiation Therapies.
Started radiation November 9, 2011 -6 week course - to early to see much reactions as yet
11/06-12/06 tolerated radiation and low dose of temodar quite well until the 4th week, then he became extremely fatigued.
radiation daily for 6 weeks. started with just burns on my head. get the blue light special during radiation. hair started falling out this weekend (9/26)
6 weeks of Radiation. finished last treatment 6-28-2011
right now 10 rounds on the one left in my brain, and the spots that the other 2 was removed from
brain damage, vision change and partial hearling loss
33 sessions targeted computerized radiation with mask began September, 2006 Side effects: extreme fatigue, partial loss of hair, dry itchy scalp, burned scalp
Picking neuro-oncology now
6 weeks of radiation - hair loss - tired.
every 5 days then off for two days for a period of 3 weeks. Loss of hair and VERY tired afterwards
IMRT began July 22, finished 30/30 treatments August 30, 2013. Hair loss, problems with eye focus, bad leg and feet cramps at night, face tics, tiredness.
Just started radiation on 1/3/2011 Completed Radiation on 2/17/2011
Radiation therapy from 04/06/2013 to 05/20/2013. I really did not have many side effects.
I started radiation therapy in late February 2010 and finished my six weeks of treatment in the beginning of April 2010. It made me incredibly weak and tired. I was also having a LOT of seizures during this time and they made the lethargy worse. My hair fell out where the radiation was focused. I could have sported an awesome mohawk but with my hair down or covered by a scarf people claimed they didn't notice. Two years later I'm still missing hair on the left side of my head. No ponytails for me but I'm getting laser hair growth treatments for free from my hairdresser. I also lost part of my left eyebrow but people say they don't notice it. (I think people lie to make me feel better about all of it.) Parts of my head felt hot and dry. The left side of my head still feels dry and itchy sometimes. I started losing hearing in my left ear in the summer of 2011. I can still hear from it. I'm not totally deaf, but when allergies are bad or I have a cold I hear like I have my finger stuck in my ear.
Starts radiation 9/12/11
42 days of radiation. Lost my hair, fatique, nausea, headaches.
6000 rads over 6 weeks (200 rads/day M-F)
1/12/12 - begin daily radiation for 6-7 weeks.
August and September 2007, Hair loss at site, nausea, redness and burning at site. August 2009, Minimal Side Effects
6 weeks completed 1-19-09
5 minutes of radiation on my brain. February 2,2010
DATES: Jan06 - Mar06 Side Effects: Hair loss, metalic taste when receiving radition, nausea, sensitivity to sun
i had radiation of the brain and spine -> Damaged hair follicles, burnt skin, swelling. Chemotherapy and Chemo boosts -> foot drop, blood damaged
Alot of skin burning and pain associated with that.
5940cg craniospinal radiation. Memorial Sloan Kettering Cancer Center. New York, NY. 33 treatments. Start date: 02/14/96. End date: 03/30/96.
What Multiple Myeloma Cancer Survivors said about their Radiation Therapies.
November 2010. No side effects.
Was nauseated after almost every session. Due to the back pain it was extremely hard to get from the stretcher to the table. It always felt like i was getting stabbed in the back. Loss of appetite.
12 treatments to shrink the sacrum tumor 1/29 to 2/29 side effects none
one very strong round of total body lymphathic radiation
What Colon and Rectal Cancer Survivors said about their Radiation Therapies.
12/06 to lower back, fatigue, 1/11 to brain and ribs, fatigue
28 days of Radiation b4 surgery 11/12 - 12/12. I had some diarrhea and rectal burning but not to bad.
28 days of treatments / fatigue, nausea, lack of appetite, localized burns Jan-Mar '10 Next will be 4-5 months chemo through port
5 weeks radiation August, 1984. severe illness and weight loss.
None and none
Radiation therapy 5 1/2 weeks. Started 7/12/2011. Radiation in combination with xeloda. Tired and weak. Low energy with uncontrolled diarrhea.
Radiation five days a week for five and a half weeks. Extremely painful bowel movements, severe skin irritation.
December 2013 - February 2014
from jan/08 to march/08 severe vaginal burning,fatague, loss of appetite,vomiting.
Done. Exceeded my radiation quota. Started June 27th 2012, continues to August 7th. Side Effect thus far..(7.12.12) Mucousy stool, lessened stool bleeding.
external, 5 days a week. Completed 9 of 28 treatments. So far so good... only side effect todate is fatigue.
Started radiation 6 weeks after the surgery. 5 1/2 half weeks of radiation M-F, combined with 1500mg of Xeloda twice daily M-F. Minimal side effects. I slowed down on walking due to fatigue, but not enough to interupt my normal life functions. Some diarreah during the 3-4 hours right after the radiation. No side effects related to the Xeloda.
not yet, but it is coming~
5 days a week, for six weeks in December 2006 and January 2007
5 weeks of radiation every day except weekends. Wasn't bad but did get some raw places between my legs in the groin area and my butt crack was raw and sore for about 2 weeks after the treatments were over.
25 sessions, last one will be on March 10th--actually i have 3 more after March 10th. next wave of chemo will start after i have port surgery. (June 2010 sometime)
Radiation therapy for six weeks resulting in damage to bladder and intestines.
After Chemo I will have four weeks of radiation with 5FU.
Daily treatments 08/10/2011 - 09/22/2011 Finished the treatment with little side effects. A few days of burning on urination but that was resolved. Tired the first few days after treatment ended but I increased my exercise routine and now I don't have any more fatigue.
WEEK 1 - AUG 16, 5 out of 25 done!!! no pain during treatment, no side effects. Noticing tender when wiping butt but not too bad.
six weeks radiation; ending 7/12/10. This is my last week and i am having a very hard time eliminating. Feels like i am passing glass and i will see the doctor tomorrow to see if he can give me anything to make this any easier for my last five days.
No radiation ever.
What Liver Cancer Survivors said about their Radiation Therapies.
i will tell you
Radioactive spheres injected into the liver. May and September 2009. Thought it had worked but didn't
What Cervical Cancer Survivors said about their Radiation Therapies.
Sept 2008 - Dec 2008, Low Dose External, 3rd and 4th Degree burns of the genital and perinea areas.
diarrohea and severe pain of the bowel and stomach cramps, off food for a few weeks
02/2010 - 03/2010 28 external and 3 internal rad.
45 minute a session, 5 days a week-December 2008-February 2009 with a boost in June 2009. rectal pain, pelvic pain, abdominal cramping, diarrhea, fatigue, dizziness, funky taste in my mouth.
7 weeks of external radiation 59 hours of internal radiation (brachtherapy) 4 weeks of chemotherapy (Cisplatin)
bracheythreapy (internal radiation) very uncomfortable stayed in the hospital for 4 days . had to lay flat on my back for 4 days with minimal movement . they gave the radiation twice a day . there was 19 catheters inserted into the tumor where they ran the radiation in and out . my legs hurt for a couple weeks after. bleeding stopped after 2 days. some nausea for a week after.
fatigue, constant nausea, uncontrollable bowels, diahrea from hell!, dehydration. A couple of blisters on my hiney. The good news: the bleeding stopped after the second radiation treatment. Brachytherapy, 4 sessions, was interrupted for a blood transfusion for critical low blood cell counts.
Internal and external radiation 5 days awesome for 20 minutes
26 external radiations; 5 internal radiations (brachytherapy); No burning; diarrhea and intestinal cramping-relieved with levsin medication; longer term effects--pain and swelling in abdomen and lower back pain
Nausea and fatigue, Extreme Vomiting, Neuropathy
I had 30 tomotherapy radiations 5 days a week from June until August. The side effects were fatigue and nausea.
For me radiation was a breeze..I had no side affects outside of hairloss in the treated area. I also had 2 internal rads which seem to last forever but I made it!!
Full radiation daily 6 weeks , 3 internal radiation treatments
Rather not discuss
Start- 10-2-10 End- 12-17-10. Horrible diarreha, severe burning during urination and pain in both areas.
I have one more week of radition and i am done with my 6 weeks of treatment. The external radition treatments were a piece of cake. It took about 10 min 5 days a week. They dont' hurt and i never really had any side effcts until this week. A little burning and itching in the private areas but tolerable. The bad part was th internal radiation. I don't want to scare anyone but they do hurt somewhat. We are not talking the worst pain of your life but def uncomfortable. The first day is the worst and it gets better from there. The first day for me meant a cathedar in place, then something in the rectum, then the vaginal cylinder in place. I stayed like that for about an hour while they did the treatment planning. Then they did the treatment which lasted only 6 minutes. I did cry through it because having every hole plugged up is just not a natural thing girls! The second one went better. They only put the vaginal cylinder in and take a few xrays and then the 6 min treatment. Still unconfotable but muc easier. I have 2 more to go. They do offer you sediatives and mild pain pills, but i handled it without that stuff. But it is there if you request it.
25 external radiation treatments 2 internal radiation treatments
Radiation starts withen the next 3 weeks. I will have 25-28 external rads.. 5 times a week. 5 internal rads once a week starting the 15th treatment.
pain, N&V, Menopause, Exhaustion, Depression 10-09 to 1-30-10 SECOND ROUND OF EXTERNAL BEAM RADIATION 01-01-11 to 02-17-11
External for 3 weeks daily, Internal for 5 treatments and TOMO for 5 treatments. Internal was the hardest on Aimee because body parts had to be temporarily moved to get to the right spot. Darkening of skin and loss of skin in genital area.
Radiation Oct 07-Dec 07 5 weeks of daily external radiation, then 3 days of Brachytherapy in hospital. Burning in pelvic area, frequent loose stools (5-6 times a day) frequency and urgency with urination. Really bad fatigue, lasted a long time after. Oct 09 External radiation to vag 10x (2 weeks). burning in vag/urethra, pain on urination, radiation burns on outside of thighs (entry points) fatigue.
Tired. Nauseau. Diarrheia
Weekly internal radiation Daily external radiation for six weeks
What Larynx Cancer Survivors said about their Radiation Therapies.
35 radiation treatments starting May 2
36 total radiation sessions February 02 - March 25, 2011. After about 13 sessions my throat pain required ongoing codeine relief, and the skin on my neck began showing signs of intensifying sunburn. By the end of February my voice went missing and is just starting to return as June begins.
First treatment December 19,2011
Nov 30th-Jan 14, 2010 Neck and lower face was a serious sunburn, Lots of swelling on the inside, no appetite-lose your taste buds where everything tastes like card board. Fatigue that is hard to describe.
What Acute Myeloid Leukemia Cancer Survivors said about their Radiation Therapies.
Total Body Irradiation, June 2012. Side effects: vomiting, ovarian failure (now on hormone replacement therapy)
Recieved 4 days of fullbody radiation for the Bone Marrow Transplant. I actually didn't feel too bad but the fatigue was huge.
January 2010. Nausea. Later/cataracts. General weakness
Treatment for osteosarcoma, three years ago.
No radiation so far. Thank God!!
What Testicular Cancer Survivors said about their Radiation Therapies.
had no treatment
What Acute Lymphocytic Leukemia Cancer Survivors said about their Radiation Therapies.
Never had any
Full-body radiation 2 times daily for 4 days. Dry mouth and ulcers in the throat and intestines.
Total Body Irradiation, 8/10/10-8/13/10. Felt a little tired. Make sure you eat well prior to radiation treatments. I got a little "sun burn."
What Anal Cancer Survivors said about their Radiation Therapies.
skin down there fell off. over & over. friable skin that bleeds. No control over bowels..limited over bladder. skin that is tender...can't wear clothes. (no more underwear...except in public) Wear Oversize bottoms & boxers).
Six and half weeks of radiation.
33 treatments radiation treatments. Had to have a 2 week break after my 2nd week of chemo and 25 radiation treatments because urinating became so painful. Nausea, diarrhea, low red & white blood cells, low potassium.
skin fell off. All my private skin fell off...(OUCH). Peeing without skin is no fun.. HUH! still cant wear clothes that bind...
side effects; Burn at the radiation site, tiredness, pain.
NO Radiation!! THANK GOD!
6 weeks (30 treatments - 10 spots) beginning 6/11/2012
IMRT daily from June 11 to July 17, 2012; the last 4 were boosts. Although I had proctitis and cystitis and would wish neither on anyone, with good drugs I got through. Within a month of treatment end both were fully resolved. No significant skin toxicity. No signs of vaginal stenosis.
IMRT using PET Scan and CT Scan results. Scheduled to being 11/9/09. IMRT went smoothly at first. As treatment progressed, I started to see signs of burning along my bikini line and painful itching on by anus. Delays in IMRT have been caused by low blood counts (low platelets).
November 3, 2009. Horrible pain with swelling, bleeding and proctitis
25 doses over 5 weeks 3.8.09-4.9.09 36 Gy/18fx: primary tumour, inguinal, iliac lymph nodes 14 Gy/7fx: primary tumour & iliac lymph nodes Fatigue, discomfort and then pain passing urine and later, pain on opening bowels. Skin reddening, thickening and some "charring" but no blistering. Fatigue significantly improved 6 mths post treatment but ongoing. menopause - last period during second week of radiotherapy . . .
Started Radiation Therapy 3/14/12 ended 4/30/12. Burned bottom and mouth sores during treatment, healed well after treatment. It is now 2 years since treatment started and I believe I am suffering from Pelvic Radiation Disease: Anal Bleeding, occasional (but getting more frequent) bowel incontinence, flemmy discharge with flatulence, frequent BMs. All of this started about 3 months ago.
Its been a year since I have completed my treatment and I am still suffering from side effects of the radiation.
6 weeks over summer 2009 burned skin, menopause
I started radiation on December 29, 2009.
35 days of radiation
Half way through now!
Some of the terms are slightly different. I have had Mitomycin in the first week plus 5FU, then just 5FU in the fifth week. I'm not sure what ER and a few others terms refer to, but will find out. The size of my tumour is 2cm by 2cm by 5cm, so I've selected something close to this. There appears to be a difference in opinion as to whether or not it has spread to my nodes in my groin and around my bowel area, as this did not show up in the PET. But the MRI did show swollen glands. The treatment is the same regardless, so I'm not too bothered by this lack of clarity at this stage. Medicine is an inexact science after all! I was going to take a break, but discussed it with my doctor. I'm in my last week of treatment now. He described three separate analysis of patients that had taken a week or two week break mid-cycle (same cancer, same cycle as mine). Two showed a marked difference in outcome between those who took a break and those that did not take a break. Overall (allowing for individual variation), those that took a break had a worse outcome than those who continued without a break. The third study that he conducted over a ten year period showed no difference between the two groups. However, I prefer the cautionary approach and am continuing to the end, with new painkillers and anti-nausea drugs and am doped to the gills to get me through!
Burning, diarrhea and other minor things right now. Started radiation on August 26, 2014. Total 33 treatments
5 weeks of daily radiation (Tomography) Did OK until end of treatment. Burns that made urination extremely painful.
I will begin radiation 12/30/13. 30 treatments are scheduled.
Commencing Radiation 28th April
6 weeks intense pelvic radiation. Began 2/14/2011 final treatment 4/6/2011. I handled it very well for the most part, but then we had to take a two week break because my skin was so burnt and I was in so much pain that I needed some time to heal.
IMRT: May 18, 2009 to June 26, 2009 - 5 days a week
5 1/2 weeks of daily treatment, 28 doses to begin on Feb 20, 2012. 5040 gy. total.
What Bone Cancer Survivors said about their Radiation Therapies.
2002 45 mins a day, 5 days a week, for 6 weeks. Burns
I wanted another baby hopefully if chemo didnt kill my ability
What Eye and Orbit Cancer Survivors said about their Radiation Therapies.
Radioactive plaque 09/09 Extreme tiredness at times, still get that. Sore eye for a short time, nowhere near as bad as I had imagined:)
Plaque brachytherapy - July 2003. Plaque inserted on Friday morning and removed Monday night. Long, long weekend in isolation and having to carry a geiger counter around. Eye was puffy, bloodshot for a long time, painful and vision deteriorated quite rapidly. Now have retinal detachment, pretty lousy vision in that eye and grey areas on the sclera (white of the eye) that may be burns from the cauterisation tool or where the sclera has thinned due to the radiation. Last November (2007), it was noticed that the edge of the tumour is still growing in some areas and I have therefore had to have these treated with Transpupillary Thermotherapy (laser).
What Nose, Nasal Cavity and Middle Ear Cancer Survivors said about their Radiation Therapies.
Radiation therapy starts tomorrow. 33 treatments @ 200 for a total of 6600.
What Nasopharyngeal Cancer Survivors said about their Radiation Therapies.
Radiation given from January to April 20 Side effects: loss of saliva, vomiting, weakness, dehydration, esophagus shrinkage
Started radiation on 11/4/13 after 6 weeks on induction chemo
35 days of head radiation, dramatic weight loss, burned skin, mouth and throat, had peg tub placed.
1st" dec 2002 - Jan 2003 to neck - saliva affected, have little saliva have to clean mouth all the time. 2nd round: Dec 2008 to lump in throat as x-ray showed nodules in both lungs
Meeting with Radiation Therapist on May 3rd to determine how much treatment will be necessary.
radiation therapy ending 5/29/12
What Ureter Cancer Survivors said about their Radiation Therapies.
Linear radiation March to May 2007. Three brachy-radiation treatments in June 2007. Side effects some bowel problems, diarrhea.
What Esophagus Cancer Survivors said about their Radiation Therapies.
Too many radiation treatments to count.
5 weeks of radiation September - October, 2012. Very tired. No burns at all to skin. I did what the doctors/nurses told me to do! Very, very sore throat. Could barely swallow but forced soft foods the entire treatment.
radiation from 11/1/97 to 12/15/97
28 days of radiation
currently undergoing treatments
Two weeks of radiation was fine. Fatigue.
The Radiation burned my throat and cause my taste bud to malfunction I had to be tube fed for about 4 months I will suffer for dry mouth for life I'm told.
Radiation to esophagus and abdominal lymph node March/April 2008 Radiation to supraclavicular lymph node January/February 2009
What Tonsil Cancer Survivors said about their Radiation Therapies.
Started Treatment on May 24, 2011... last treatment July 12, 2011 ...mostly tired thru treatment, loss of saliva glands on left side, loss of taste buds
Started radiaton 7/20/09
Radiation is anticipated to begin the second week in July. Treatment plan will include 35 radiation sessions over a period of 7 weeks.
33 radiations finished Oct. 6, 2008
after 10 treatments I developed a sore throat and sores in my mouth. My tongue feels as if it was on fire.
1/8/13 to 2/18/13. IMRT/rapid arc with simultaneous integrated boost. Did ok up till 4th week. lost 20lbs. severe odynophagia and mucositis. had dobhoff feeding tube inserted on last day of treatment due to severe symtoms listed.
30 radiotherapy treatments starting 7th July finishing 6 weeks later. Grade 3 ulcers in mouth and throat unable to swallow
Radiation in April, May, 2008...In general, I have been blessed! I have been very lucky to the extent that I dont have much saliva loss or other symptons. In 2010 I am currently having issues with radiation damage that include cramping in my neck muscles, difficultly maintaining my mouth opening and some slurring of my tongue. I am interested to know how others have dealt with these symptoms. In retrospect, I would have done more stretching exercises all along!!
30 Day ended 10/24/2011
February 25 started 1 of 39 neck radiation. 28 full neck radiations and 11 right side (cancer side) radiation. Mucousitus at 3 weeks. Lost taste and salivary at week 2. Thrush at week 2. Feeding tube at week 3. Took 1 week off (week 5) due to throwing up for 7 days. Could not swallow very early and throat trashed way too early. Couldn't use Caphasol, "Magic Swizzle" numbing meds couldn't get down.
Jan 21- trush, redness and swelling on tongue and mouth, fatigue
I had my 1st encounter with radiation right before surgery. Then my next was with chemo, and then finally by itself. I had 38 bouts with radiation. Could not eat, loss of teeth, could not swallow, no taste at all, lost 80 lbs before being put on peg tube.
27 rad tx, ended on 11/14/12. Tolerated well initially, started to lose taste after tx number13, very tired; by the final tx, went from normal weight of 120 lbs to 103 lbs. I'm 5'6" but very small frame. During final week of tx, developed mucousitis, which continued for 7 weeks and recurrent thrush. Thrush and I are old friends. I had cytoxan, 6 tx's in 1991 for Lupus Nephritis. The rheumatologists "borrow" this ca drug to treat severe cases of lupus when the kidneys or brain are being attacked.
IMRT 37 treatments which began Jan 17, 2010. Still not sure how I got through it.
Should start 7/16/2012
Begin IMRT 9/10/13
Radiation therapy started August 8th. IMRT 7 weeks 5 days a week.
Jaw tightens up when talking, need to stretch jaw muscles (stretch open mouth with sticks) 3 times daily (radiation). Need to fluoride teeth once a day. Lose saliva at night when I lay down and need to keep water around.
7 weeks IMRT starting march 5 2012
35 sessions Sore mouth,painful eating drinking, neck rash Weight loss
Did excellant from Radiation (33) treatments.
38 treatments, Burns, Mucus, Hocking, Weight Loss, No Taste, No Saliva
Unable to have any additional radiation with this new diagnosis.
Six weeks radiation estimated to begin week of 9/10/12
What Endometrial-Uterine Cancer Survivors said about their Radiation Therapies.
30 radiation treatments, five days a week for six weeks
No side effects
brachy UGH UGH UGH!!! Not the most pleasant experience for sure!! 4 treatments and side effects to look forward to vaginal stenosis... so far no side effects 2 down 2 to go
28 external and 3 internal rad.
Not good with dates...radiation for 6 weeks, 5 times a week for about an hour each day. Still can't eat much fruit, sometimes no fruit for days and days. This still happens, even after 4 years. Probiotics seem to help
5-6 weeks of radiation planned after chemo is completed
Started radiation in mid-June 2009 - 25 treatments are planned
6 weeks external beam some localized skin issues,,,,,late onset diah, naus--- ***BRACHEYTHERAPY HURT LIKE A BITCH - MOST GOD AWFUL THING I EVER FELT IN MY LIFE - VERY SICK for a few weeks
Don't know yet...
recommended to start in July
25 cycles of daily external radiation. June-July 2011
25 external and 3 internal radiation March - April 2011 horrible burning and pain.
5 sessions of High Dose Brachytherapy will be done between 3rd & 4th chemo sessions (mid-June).
July-Aug 2014; few side effects
Radiation Tx for Vaginal Tumor - 4/20/09-5/5/09 (mom is fatigued, loss of appetite) Radiation Tx for Metastasis on Ribcage - 4/27/09-5/8/09 Mom developed a UTI that went unnoticed - doc said it was normal pain - this delayed her chemo tx.
August 14th 29 days and then 2 internal treatments. Side effects irritated skin, diarrhea, less energy.
annoyed bowels, extreme fatigue
Started Sep26 2011. Every weekday for 7 weeks. Last treatment (high dose) planned for 11/11/11.
25 rounds external, 3 internal, starting in October, 2007, finished in November.
I had several rounds of a newer internal radiation for 3 months following surgery. I felt great each time for the 1st day or two, then became very tired.
Started 4 weeks after chemo. 25 external for 5 weeks. The only effects were bouts of dysentery and pain in the area treated, no skin problems. You feel worse toward the end of the week as it builds up. After #25 I had one internal treatment per week for three weeks. Radiation made me exhausted every day because it's such a grind. Talking to other patients you learn it's quite different for everyone.
five weeks external beam radiation April, 2011-May, 2011 In-Patient HDR interstitial Brachytherapy 6/13-6/16/2011 Extreme diarrhea causing 2 days of in-patient hospital stay constant Dehydration requiring many infusions
Started pelvic Aug 2, 2009 for 28 days. Finished with no side effects!
November 2011-December 2011--25 days; long-term damage to bladder resulted in one week of hospitalization for blood clots, incontinence, extremely painful urination; serious bladder infection; low white blood cell count; burns on skin around hips and upper thighs; serious digestive problems; lost weight; 1 month after treatment had cytoscopy to confirm radiation cystitis; 6 months after treatment am taking Oxybutynin Chloride for ongoing bladder problems; felt pain in flanks during treatment, later problems with knees that come and go.
What Sarcoma Cancer Survivors said about their Radiation Therapies.
Radiation treatments started February 4 and end on March 23, 2011. My prescription is 66Gy over (7weeks) 33 treatments. Locally, the area being treated hurt pretty bad from being burnt to a crisp, but otherwise I still had lots of energy and I felt great.
Radiation from November 2010 - January 2011. Radiation burns toward the end, low blood counts, and always tired.
1 treatment of Radiation ; in Oct 2008 . Side effects - Horrible burn and pain . Alot of fatigue .
Like having a severe sunburn on the back of my throat. I could not even swallow my own saliva. I lost 30 pounds and became extremely dehydrated.
5 weeks of radiation - feeling tired and extremely fatigued after the sessions were over, radiation burns on back on leg that developed into very painful blisters. Radiation oncology nurse was so caring -- she made up an ointment to use that took away the pain and helped with the healing.
Radiation (Stereotactic Body Radiation Therapy)
Her first doctor didnt do enough or the right kind of chemo....the INSURANCE COMPANY wouldn't pay for the correct treatment.
25 treatments; minor hyperpigmentation towards the end, but very minimal side effects
Radiotherapy for 5 weeks from last week of june 2010. My skin became very sore and a section of it peeled off. My skin has darkened there and has stayed hard in that area.
Still to be determined.
Radiation I had every day at Palmerston North Hospital for 7 weeks - that was the maximum I could have before it gave me cancer!! Started in early Feb 2009 through until April 2009. I got extremely tired, exhausted with no energy at all! I also got a small radiation burn, but was controlled with creams and ABs.
2005 - on L5; 2007 - on L3; 2011 - on left femur & L4
To control size of tumor to right pelvic area
Finished radiation therapy on around December 24, 2010. He had six weeks of radiation therapy, and had to receive treatments five days a week for those six weeks.
I start exact radiation on 6-19-2012 for 6 weeks
December 2012-February 2013 Proton Beam Radiation, Massachusetts General Hospital
What Parotid Cancer Survivors said about their Radiation Therapies.
1st treatment 9/12/12 left jaw in pain from being stretched open and pushed by the mask; by 10th treatment, almost impossible to swallow, even water, because throat is so tight and sore and mouth & tongue are so sore
What Skin Cancer Survivors said about their Radiation Therapies.
could have had radiation but chose Mohs surgery
What Throat Cancer Survivors said about their Radiation Therapies.
IMRT radiation started 11/17/09. Side effects were almost immediate - nausea and tiredness. Not too long before I lost all appetite. Thank goodness I have a PEG tube.
Radiation for 33 times
NONE - Refused radiation on six separate ocassions
April - June 2009 Loss of Taste - most regained Loss of Saliva Production - some regained 35 Exposures Amifostine Injections to the Abdomin each day
Due to having a bit of tumor left, I am waiting to find out if I will need radiotherapy.
Every day, Monday through Friday, starting May 4, 2010. Side effects are extreme sore throat, dry mouth, fatigue, loss of taste buds. Taking pain meds for throat pain. The worst part for Tim is wearing the radiation mask.
Months of radiation that covered both my head and chest area. I no longer have salivary glands and I suffer from dry mouth (xerostomia) -- which means that I drink about a gallon to a gallon and a half of liquid every day. Taste has dramatically diminished and has been altered.
1997 - later side effects - 1999 Thyroid - placed on meds...2005 narrowed carotid artery plus first aspiration pneumonia. 2009, 2011, 2012 three more aspiration pneumonia. Placed on Feed Tube 2012.
33 rads treatments starting January 2009... in which it did not touch the cancer .I had a small burn on throat from rads.
Started December 14, 2010. Five days a week treatment. Severe oral mucositis and recently the first week of January, 2011 developed chronic skin abrasions on my chin and upper lip area, which made me look a monster! That being treated with bactroban.
TOMO Radiation started Feb 23, 35 treatments that are Mon-Fri until April 12th.
I'm at #17 out of 35. Burning and dry mouth.
What Tongue Cancer Survivors said about their Radiation Therapies.
Seven weeks Jan 4 thru Feb 19, Mon-Fri of TOMO radiation. At the end, severe burnt neck especially my right neck area. Severe sore throat.
Burned neck and throat and burn on neck got infected...my skin peeled, but little scaring
I started My radiation the first week in July and had alot of side effects. Many many sores in my mouth and thrush constantly. Also i was told i was very sensitive to the radiation and had so many sores and burns on my neck. I have a lot of scaring left.
Side affects were hideous.. She experienced a very deep painful burn on her neck.plus a percutaneous endoscopic (PEG)
Radiation on neck 5 days a week for five more weekws
July 6 Radiation and 1st Chemo begins
60 Grays (Gy) of radiation
Radiation to begin next week, 5 days a week. Began on 8/23/12.
I've already been through IMRT (radiation) for Tonsil Cancer in 2009. So, they can not do radiation to the same part of the body twice.
What Nose Cancer Survivors said about their Radiation Therapies.
Radiation side effects included loss of taste, trouble chewing, sore gums and teeth
What Ear Cancer Survivors said about their Radiation Therapies.
Proton Therapy test
What Jaw Cancer Survivors said about their Radiation Therapies.
Dry mouth, and due to the radiation I have osteonecrosis of the jaw and now in hyper baric chamber treatments so I can have all my teeth removed as they are all falling out on there own.
What Hodgkins Lymphoma Cancer Survivors said about their Radiation Therapies.
Cobalt Radiation on full chest and abdomen area's. I am proud of my 'Tatt's'! One thing that is just part of it all is the Pneumonia and other illnesses that comes from the low immunities can be some of the scariest and biggest battles we face. Too, with every new procedure and surgery, at least for me, my recovery times seem to be much longer. But despite the illness and weakness that chemo and radiation leaves you in ... if you are still breathing it is a gift.
86 treatments of what was referred to as Cobalt 80,full scan and mantle, 1975 & 1976.
I will start radiation after the chemo ends!
After chemo - 3 weeks of radiation was a walk in the park for me! I took up raquetball (not generally recommended by any doctor, other patients etc!)
Radiation therapy (RT), 2000 rads for 22 days, were given to areas of initial bulky disease. (middle of chest cavity)
Declined IFRT radiation therapy
Received 5 weeks of localized radiation to the chest
No never had radiation.
Start treatment on the 25th, chemo is the only treatment on the menu so far.
Haven't started yet
I didn't have an side effects from the radiation!
Radiation in July 2008. I was very fortunate and blessed not to have any side effects from radiation.
radiation was brutal and side effects were phnuemonia
Radiation therapy to field covering the mediastinum and bilateral hilar areas - 180 cGy per day to a total of 1980 cGy over 11 fractions. Radiation to the para-aortic and lumbar fields - 180 cGy per day to a total of 1980 cGy over 11 fractions. (1/30-2/13/92). I had persisting problems with nausea and vomiting throughout much of the radiation but it was reasonably controlled with Phenergan.
What Acute Lymphoblastic Leukemia Cancer Survivors said about their Radiation Therapies.
June 28, 2010-June 31, 2010 - IBR - twice a day for 15-20 minutes a session.
What Bile Duct Cancer Survivors said about their Radiation Therapies.
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