What Breast Cancer Survivors said about their Radiation Therapies.
Radiation October 2010, brachytherapy October 2012, radiation again February 2013 real bad burnt skin from last radiation
I had radiation for seven weeks five days a week, for about 45 minutes, some of my hair came out a little after starting to grow back after chemo, first of June, right after getting married in 1994, until end of July,bottom of hands and feet were black.
Nov/07 PBR(partial Breast Radiation) 1 week = two times a day.
September 2007 Burned skin on chest and under arm
May 2-June 10th, 2007 Really scary, very tired,headaches & teary
10 weeks of radiation...just exhausted.
34 treatments, I think - burned skin on portion of breast which sometimes came off and left a raw spot. OK now.
Radiation for 32 weeks
35 treatments for unrelated cancer in 2000 35 treatments for first bc diagnosis in 2005
July, 2004 to September, 2004 Sometimes when I swallow I start to cough. The esophagus was damaged. It will recover, but still hasn't.
No bad side effects, got a great tan in my right armpit, nipple got leathery, maybe I am a cowgirl at heart! LOL
63 treatments, finished in June 2010.
7 weeks of radiation - deep tissue burns - impossible to describe the pain
fatigue started when my radiation ended. sleep tight. you will wake when your bodys says so.
34 sessions of radiation. September-October 2012. fatigue, loss of energy, tanned skin, itchy.
No radiation, for they cleared margins in lympnodes and removed all. Radiation was in fact recommended.
1995, no side effects
33 radiation treatments. tired
2 months of Radiation after surgery
Radium started in September finished in November 35 + 5 boost. Sever bruning of the skin the area that was treated is still very discoloured 9mths after treatment
Don't start until mid-September.
2001 - Radiation
Full head radiation in January 2011, Loss of hair, confusion, and fatigue Gamma knife in March 2011, same as full head radiation but hair loss was more spotty.
What Prostate Cancer Survivors said about their Radiation Therapies.
The 39 trip to Radiation treatments were pretty anticlimactic. Thank god my job worked with me and let me leave early each day. Can't imagine if they didn't worked with me. I was lucky there! Never had any pain from the treatment and very little if any side affects. They is nothing to be worried about in this treatment as far as I'm concerned.
Burning senceation when urinating May 2000 to July 2000
to my back, ten treatments, now i need to self catherize and have a blood clot in my entire right leg
40 treatments in 2005. Difficulty holding bladder.
IMRT, 36 treatments, Sep 20-Nov 8, 2011. Side effects: the usual suspects -- GI and bladder/urinary irritation. Please write for details.
February 2003. Side Effects - ED, Tiredness, fatigue, hot flushes, Radiation burns to anus and buttocks, rectal leaking and short term memory loss.
Hd 9 weeks of IGRT, five days per week except July 4. Took about five minutes per day. It took a couple of weeks to get used to drinking a lot of water on the way to the treatment facility. At first, I couldn't differentiate between the signal to urinate or to defecate. I learned to just sit down on the toilet like a baby and that fixed that. They had really good instant brew coffee at the facility, so I'd have that - my first coffee of the day, around 10:00 A.M. Once, this caused a bowel movement while I was driving home. After that, I remained at the center to move my bowels and then drove home. I went to the gym and tried to lift some light weights around my upper body and that went OK. Right up to the last day, it was a challenge to get out of bed and go to the treatment. I don't know where or how I found the strength to stick with it. It doesn't hurt. I acclimatized to the way my body adjusted to what was going on. But it just took some kind of undefined, inner push to keep going. I was never a big eater but PCA and IGRT left me very uninterested in food. I think I "caused" my cancer, maybe by something I ate, or did wrong, last year. Treatment ended about four months ago.
Due to have in May 2014
3 months of conformal radiation at Tufts New England The radiation caused the bladder cancer and much irritation
Brachytherapy 10 yrs ago. Recurrence 2 years ago
Will begin in three weeks as I di the implants on 11th Of Oct not sure what is next
Nuclear Oncology 41 treatments 11/08 no side effects
41 sessions to pelvis area and prostate, using Orbit Arc, some side effects; dizziness, burns, medications helped ease the process
None. Had surgery not worked I would have been put on radiotherapy but thankfully it was not needed.
What Lung Cancer Survivors said about their Radiation Therapies.
Just started 4/22
single fraction radiation therapy to the pelvic bone for pallative care, Dec 2013, Vomiting
Radiation started 10/10/07 and I go M-F once a day for 6 weeks
starting the 3rd week of August 2013
Weill have gamma Knife radiation to brain lesions
Feb. 24, 2009 Gamma knife radiation perfexion treatment The procedure is nothing short of a miracle in technology, however it requires a metal `cage` to be attached to your skull. That process is brutal, as it the pressure release when it is removed. But they got em' so it was worth it :)
35 radiation treatments, some sore throat and trouble swalowing.
Will start this next week.
None to date - The surgeon and oncologist felt that I should wait before starting chemo or radiation and be on the anti-fungal medication, indicating at least a year, to see if once the infection was gone, the remaining spots in my lungs would be gone. In January of 2010, I lost my job, medical insurance and the financial ability to continue the meds. I've recovered enough to find work and have been there long enough to receive medical insurance...now to find the courage to return to the doctor and take up where we left off, uhhh less the pre-existing conditions...to be continued...
Ten whole-head treatments ending on 22 April 2010. Side Effects - loss of hair.
Starting radiation with my second chemo on the 24th of august 2010
December 2004- Radiation to large tumor in lung. October 2005- Radiation to tumor in lung and spine. August 2008- Radiation to spine. May 2010- Full brain radiation.
9/12/08 gold seed marker placement-inferior right hepatic lobe 9/22-9/26/08 Cyberknife radiation for liver metastasis
4-12-10 targeted therapy radiation
Mevatron radiation for brain on Nov 22, 2012
Pelvis (aug '07) radiation to area possibly weakened femur in hip area - Fell Jan '10 and broke left hip - surgery to pin hip Jan '10 Left Adrinal Gland Area Sept '09 - Side effects - damaged about 1/2 of left kidney and about 1/3 of pancreas Lymph node in the lower middle back May '10 Left Lung and lymph node in left arm pit May '10 side Effects -fatigue
Radiation was declined at this time.
radiation starts on March 8th
5 days of radiation Feb, 20-26 sore throat for 2 days tired
10 brain treatments 9/16/09 to 9/29/09. 5 treatments targeted at mass in top of right femur 9/21/09 to 9/25/09.
October 2008 Radiation. Max dose. She can never receive it again.
Radiation to leg
Radiation 08/10 to 9/10. Side effects: soar throat, difficulty swallowing, and fatigue.
What Non-Hodgkin Lymphoma Cancer Survivors said about their Radiation Therapies.
Expected January 2013 x 30 days.
June 30th 2009, forgot how much the dose was, it was everyday for the whole two months. Side effects: burned skin, loss of appetite, hair loss, sore throat, gastric pain.
23 radiation sessions
Intensity modulated radiation therapy, June 7th- July 12th 2012.
May & June '10. Back burning.
Radiation therapy was (25) Involved Field Radiation over 5 weeks, March 29th through May 2nd 2012. The radiation treatment itself was painless, although the mask and tongue guard were uncomfortable. The side effects were progress skin burns, mouth sores, difficulty swallowing, and nausea. The side effects subsided a couple of weeks after treatment ended.
Bunch of long words
Brain Tumor 25 years later.
Zevlin. Horrible pain in my feet, very slow recovery, severe fatigue
December 2013 - this is my second diagnosis of lymphoma. The first was last year and I had successful radiation treatment from Sept-Dec 2012 in my neck. By March 2014 all was well but I had a red eye. After 4 months of seeing my GP service (pretty useless I'm afraid) my wife insisted I see an eye specialist; as soon as I did I was diagnosed with a "residual" lymphoma in my eyes on August 30th 2013. Residual is good - it means it has not metastised, it was apparently "left over" from the last lymphoma in my neck. In October I had a CT scan that showed I was clear in all my other lymph glands - so that was good. So I had to have radiotherapy in both eyes. I'm going to keep this next bit short otherwise I could spend ages on telling you what I was told by the technicians, nurses, doctors and consultants about the technical processes they were about to treat me with. But it has all been good. Today I am writing this because, after 6 weeks of discomfort and 1 week of "superficial" radiotherapy (which never feels superficial!) and 1.5 weeks to go, for the first time, my eye doesn't hurt; it's hot inside but not scratchy. I have a good store of saline solution which is bliss when you use it….but then you need more and more, like a drug. Today I have not had to use it at all, it's 9pm UK time and 10 hours since my radiotherapy session this morning. Usually I'm in bed after spending 6-7 hours in pain with an eye patch on. I do expect the effects to get worse but all I can say today is that IT WORKS!! The basis of my optimism is that the radiation kills the cancer…..and I can happily live with the side effects because I am alive to experience them. Take heart.
luckily for me , i don't have to undergo radiation
3 docs said yes, 3 docs said no, so I did not have radiation after chemo treatments proved decent
Radiation October 2004
No radiation on the table yet.
I hear you're pretty pukey but thats about it. Oh and it melts your innards and body externally.
radiation to left chest - side effects: feeling of a lump in my throat, fatigue
not part of treatment
23 rounds of radiation on my neck and shoulder.
relapse cancer - radiation (June, 2011)
None yet, though I get some if chemo doesn't kick it.
20 sessions of radiotherapy on my mediastinal mass which caused damage to my left lung and heart in May - June 2012. The side effect I had was tiredness.
Radiation daily for 3 weeks ending 28/6/2012
What Kidney Cancer Survivors said about their Radiation Therapies.
My husband had radiation at the site of his neck surgery.
no treatment yet?
10 days of radiation,difficult to say what side effects were from Radiation, Sutent (oral chemo) or Aredia (IV drip for bones)
Palliative Radiation for bone metastases (20 Gy/5 fractions) Dec 2012 Metastron Feb 2013
What Pancreas Cancer Survivors said about their Radiation Therapies.
no radiation or anything else just chemo
Radiation Therapy June 2011 for 5 weeks
Radiation - Jan 2013-March 2013; Reported weight loss, nausea, some disorientation on dehydration.
N/A would not help his type of cancer
Radiation - 6/14/10 to 7/22/10 Monday through Friday: Had some bad mornings starting about halfway through, but always seemed to feel better after his treatment. At night, the upset stomach side effects would kick in.
Radiation followed first course of chemotherapy, and was given for 28 days in September 2010
will be starting after Christmas
Radiation to start on Oct.25th for new tumor on 1st surgical bed thats not responding to other treatments..
Every other day radiation
Radiation once a day Monday - Friday for 5 weeks along with the 5-FU pack.
Mom chose not to do radiation
Xeloda Jan 2008-May 2008
What Oral Cancer Survivors said about their Radiation Therapies.
Loss of taste, acute mucositis, loss of hair at back or neck, blistering of throat.
33 IMRT Start date 3/18/2011. Mouth sores ( treating with Manuka honey ) stiffness in operated areas, fatigue, some hairloss in zapped area - so far not too bad... No burns yet. No taste.. Ugh!
25 treatments, 9 days in every 2 weeks - partial hair loss, starting 1st week in February this year, finishing March 18th
35 Rads Mid - 5 days a week for 7 weeks. started July 2008 - OK at first - Got weaker- drove myself first couple of weeks- lost good judgment- totaled my car- wife drove me after that...got down to an old man's shuffle at the end.
37 radiation treatments from late Sept to the end of November of 2007. Side effects all my saliva gland were destroyed. I can't hardly eat anythin because I have no saliva. swallowing is hard. I also have a different voice now. People call me sir all the time. And I stay tired still. Nerves are shot and now taking anti- depressants
Radiation Treatment May of 2012 to June 2012. Mouth was burned from radiation. Lost of taste buds. Fast forward two years. I have taste buds again.
35 IMRT treatments Dates: starting late August and ending November 11, 2011. Side Effects include; Dry mouth especially at night weak weight loss and muscle atrophy loss of appetite (food just tastes bad period) Mucus in mouth during the day
72 gy of radiation (before the advent of IMRT)
June 2009. not many, all related to not being able to swallow without pain. Important to get help, magic mouth wash, pain meds. Liquid diet essential
What Ovarian Cancer Survivors said about their Radiation Therapies.
Jan - Feb.2011 pelvic rad. ( for bone mets - palliative )
Fatigue nausea diarrhea dental problems severe digestion issues
low dose whole abdominal radiation + pelvic boost
No radiation done
Currently deemed unnecessary (following pathology). Will reassess in February 2012 to see of radiation of supraclavicular lymph nodes is required.
None to date
Radiation is new for me so Ill let you know as we get there
Radiation therapy to the abdominal/pelvic area; diarrhea, abdominal cramping
august 09: radiation in my stomach, new tumor 6 cm
pelvic rad. for bone mets January 2011
What Thyroid Cancer Survivors said about their Radiation Therapies.
RAI-131 Wednesday February 23, 2011 side effects...diarrhea metallic taste. Sweets taste good. Water tastes like a spoon...:(
Will begin Radioactive Iodine Treatment after the second surgery.
RAI Dec. 18, 2009, 154 mCi. Permanent damage to both parotid glands.
I completed RAI-131 in December 2009 and follow up scans until 2010. Follow up ultrasounds with lymph node mapping tests continue.
Had Thyrogen injections on August 16th & 17th and then the RAI on August 18th. My face, neck and throat didn't start to hurt until a few weeks after the RAI. Now it seems with the cold weather my face hurts. Swollen salivary glands. Very tired all the time. Just completed my 6 month whole body scan and bloodwork for thyroglobulin...waiting on results.
Radioactive Iodine 94mci, 2005
6 weeks after surgery i had first dose of radio iodine and a year later i had another dose. I am 3 months out of my 2nd dose and I am experiencing swollen glands every once in a while. sometimes when i chew my saliva glands will get inflamed and it will be too painful to eat. Who knows is this is thyroid cancer and treatment related though
Radioactive Iodine therapy on 16th of July. Lost taste buds for about 4 weeks.
Radioactive Iodine treatment
I took the Pill in November of 2013. I was on the low-iodine diet for ten days. I had an extremely hard time with the diet, and my neck was sore for a week after i took the pill.
Proton Therapy test
8/30/11: I recieved the I-123 scan. 9/2/11: I had I-131 treatment, which is a radioactive iodine pill that kills off the cancerous thyroid tissue. The only side effect that I expericenced was a temporary loss of taste.
Radioactive iodine (103 mCi of I-131) on May 17th, 2012.
RAI 150 mci in Jan/09 and a second round scheduled in 12/09
6/25/14: radioactive iodine (i-131). Side effects: nausea, swelling/pain in salivary glands, loss of appetite, loss of taste, metallic taste, dry mouth, burning mouth syndrome, fatigue, heartburn.
Eight weeks after surgery I had to go in for a Radioactive iodine treatment. The hardest part of this was being away from my family for a week. In regards to side effects, I had some sores in my mouth and an upset stomach for a few weeks.
May 1, 2014
Not yet scheduled
Radioactive Iodine-dry mouth everything tasted like cardboard for over two months. Salivary gland infection.
I had 98 millicuries of I-131 on 12-10-2008. Being hypo was bad! I worked up until a week before the treatment which if I ever have to do it again I will take off work much earlier!! My sweet mom had to cook all my LID meals. I had to save my energy for work. The actual treatment was fine. I was only in the hospital in isolation for 24 hours. I drank lots of fluids and took many showers in order to get out fast!! haha
Radioactive Iodine-131: 4/16/10 - 7 days total quarantine. Irritated lung tissue, scalp sores, dry mouth, nausea.
RAI in June. Ultasound last week (Feb. 2012) no side effects
4 rounds of I-131, roughly 500 millicuries each time: 1. May 2005; 2. December 2005; 3. December 2007; 4. December 2009
scheduled for RA on November 17
Radioactive iodine 131
What Stomach Cancer Survivors said about their Radiation Therapies.
Radiation began 6.21.13 - Extreme Tiredness, nausea, that is when he essentially stopped eating.
Left skull base October'09. Dehydration, hair loss, weight loss, ringing in ears with a pressure that felt as though ears were going to explode. Blisters on ears both inside and out and raw peeling facial skin. January '10 another round of 15 treatments on pelvic area and spine. Unable to walk, numbness of entire lower body and left leg. Effects still going on to left side of body. Feet freeze like they are always in a vat of ice. They are very heavy feeling as though they are being dragged. Hole through the center of back. I assume this is where the radiation burned thru the body.
Doctor saids he want help.
radiation 1989 - ignorance is bliss....I didn't find the treatment too bad, maybe 'cos I'm able to block out the "what if" questions (or as my wife prefers to put it, I am too stupid to get worried)
What Brain Cancer Survivors said about their Radiation Therapies.
right now 10 rounds on the one left in my brain, and the spots that the other 2 was removed from
33 sessions targeted computerized radiation with mask began September, 2006 Side effects: extreme fatigue, partial loss of hair, dry itchy scalp, burned scalp
Radiation - 6 weeks ends August 24th
Started radiation November 9, 2011 -6 week course - to early to see much reactions as yet
Mom had radiation - only hair loss. Dad had radiation - trouble swallowing.
42 days of radiation. Lost my hair, fatique, nausea, headaches.
Just started radiation on 1/3/2011 Completed Radiation on 2/17/2011
DATES: Jan06 - Mar06 Side Effects: Hair loss, metalic taste when receiving radition, nausea, sensitivity to sun
2005- 30 days
Picking neuro-oncology now
Radiation started in the end of Feb. went 8 weeks of treatment-fatigue, hair loss in area of tumor, memory loss
Starts radiation 9/12/11
Microradiosurgery done in Singapore. Given 30 Gys in 10 fractions. Started on April 15, 2009. Hair loss in some places.
IMRT began July 22, finished 30/30 treatments August 30, 2013. Hair loss, problems with eye focus, bad leg and feet cramps at night, face tics, tiredness.
6 weeks of radiation - hair loss - tired.
11/06-12/06 tolerated radiation and low dose of temodar quite well until the 4th week, then he became extremely fatigued.
1/12/12 - begin daily radiation for 6-7 weeks.
6 weeks completed 1-19-09
August and September 2007, Hair loss at site, nausea, redness and burning at site. August 2009, Minimal Side Effects
non so far she hasn't healed from surgery
radiation daily for 6 weeks. started with just burns on my head. get the blue light special during radiation. hair started falling out this weekend (9/26)
6-08 IMRT, It made me tired!
February-April 2013 lost hair, sore throat, skin burns
started 9/13/2010-weekdays, mostly tiredness
What Multiple Myeloma Cancer Survivors said about their Radiation Therapies.
November 2010. No side effects.
Was nauseated after almost every session. Due to the back pain it was extremely hard to get from the stretcher to the table. It always felt like i was getting stabbed in the back. Loss of appetite.
12 treatments to shrink the sacrum tumor 1/29 to 2/29 side effects none
one very strong round of total body lymphathic radiation
What Colon and Rectal Cancer Survivors said about their Radiation Therapies.
Pre-Surgery Radiation Therapy (in Linear accelerator) for 25 days from 27-Dec-2011 to 27-Jan-2012
.Currently waiting on next oncology appt for continued treatment after surgery
2/1/2010-3/11/2010 not bad, but tiring!
10/12/09 -11/20/09, 5 days a week for 5 weeks, 6th week went 2x a day. Bottom became very sore as the treatments progressed & bouts with diarrhea.
Chemo-Radiation Sept 2009 through Nov 2009.
Radiation - March - April 2011 for 5 weeks - 5 days a week Pain, hemerroids, vaginal pain, bladder infection
Radiation therapy 5 1/2 weeks. Started 7/12/2011. Radiation in combination with xeloda. Tired and weak. Low energy with uncontrolled diarrhea.
Severe radiation burns at the end of treatment.
not yet, but it is coming~
25 sessions, last one will be on March 10th--actually i have 3 more after March 10th. next wave of chemo will start after i have port surgery. (June 2010 sometime)
Started March 22nd, some pain in the rectum a lot of mucus, tired for 2-3 hours after treatment
4th week in radiation
28 doses of radiation.
Dec. 29, 2009- Feb. 5, 2010 Fatigue, sores on bottom, bone thinning in my sacral area
No radiation ever.
Up to this point none, but within the last 24 hours have had bowl movements every two hours. Have developed irritation of the anal area, very imflammed and severe buring sensation, bowel movements have become very painful due to the irritation.
Radiotherapy on the spine, section C7; May-June 2010, 16 sessions over two weeks, 5minutes each session. The first few days there were not much side-effects. Towards the end of the first week, the throat began to hurt, and there was increased difficulty in swallowing. The voice soon became raspy and coarse. The soreness of the throat and lost voice persisted for around 6-8weeks. There were increased phlegm and saliva production, which mum said tasted "chemical" and would spit out quickly. On the skin, a red rash began to show, and the doctor advised to avoid sunlight, as the rash will darken. Treatment with CyberKnife also carried out on the spine. Results are yet to be assessed, and the doctor said it will take around 3months to see any visibly reduction in the tumour.
Started radiation 9-14-2009, radiation of pelvic area. Will be for six weeks, everyday five days a week. No side effects yet. 5fu is now constant infusion via pump and Oxaliplatin is halted until end of radiation.
Fatigue, a hot tush
Done. Exceeded my radiation quota. Started June 27th 2012, continues to August 7th. Side Effect thus far..(7.12.12) Mucousy stool, lessened stool bleeding.
Radiation started Jan. 23 2012 28 sessions. Diarrhea and total burning of skin.
28 days of Radiation b4 surgery 11/12 - 12/12. I had some diarrhea and rectal burning but not to bad.
November 1, 2006, 30 treatments M-F caused sever fatigue, cystisis and cramping
Bad Burns from radiation (37 treatments). Low energy..or should we say NO energy!
What Liver Cancer Survivors said about their Radiation Therapies.
i will tell you
Radioactive spheres injected into the liver. May and September 2009. Thought it had worked but didn't
What Cervical Cancer Survivors said about their Radiation Therapies.
Started external radiation on 2/4, to have 25 treatments; then 2 "internal" ones fatigue, but can't blame it all on radiation
External radiation with low dose cisplatin every week for 4 weeks. Then external radiation by itself for 3 more weeks. Side effects: pain, nausea, heartburn, fatigue.
Rather not discuss
I had 30 tomotherapy radiations 5 days a week from June until August. The side effects were fatigue and nausea.
started 1/6/09: fatigue and upset stomach, loose bowels
26 external radiations; 5 internal radiations (brachytherapy)
25 external radiation treatments over 5 weeks, three days of internal radiation with hospital stay.
Weekly internal radiation Daily external radiation for six weeks
Radiation Oct 07-Dec 07 5 weeks of daily external radiation, then 3 days of Brachytherapy in hospital. Burning in pelvic area, frequent loose stools (5-6 times a day) frequency and urgency with urination. Really bad fatigue, lasted a long time after. Oct 09 External radiation to vag 10x (2 weeks). burning in vag/urethra, pain on urination, radiation burns on outside of thighs (entry points) fatigue.
Tired. Nauseau. Diarrheia
Started 6/03/09 finished 7/15/09 ... 28 days IMRT pelvic radiation. Side effect- too many to list, skin burns, constant extreme diahrrea, urinary burning, hair loss in radiation area, nausea and vomiting... TIRED (unlike anything I've ever known!!)
Just started Radiation, Monday Wed Fri for 10 wks Increased nausea!!!
7 weeks of external radiation 59 hours of internal radiation (brachtherapy) 4 weeks of chemotherapy (Cisplatin)
Doing Radiation concurrently with Chemo so I'm not exactly sure which side affects to attribute to which treatment. Very nauseated, shaky, dizzy, tender in the groin and abdomen area.
Internal and External Radiaiton-2nd and 3rd degree burns on affected area-very painful
Nausea and fatigue, Extreme Vomiting, Neuropathy
I have one more week of radition and i am done with my 6 weeks of treatment. The external radition treatments were a piece of cake. It took about 10 min 5 days a week. They dont' hurt and i never really had any side effcts until this week. A little burning and itching in the private areas but tolerable. The bad part was th internal radiation. I don't want to scare anyone but they do hurt somewhat. We are not talking the worst pain of your life but def uncomfortable. The first day is the worst and it gets better from there. The first day for me meant a cathedar in place, then something in the rectum, then the vaginal cylinder in place. I stayed like that for about an hour while they did the treatment planning. Then they did the treatment which lasted only 6 minutes. I did cry through it because having every hole plugged up is just not a natural thing girls! The second one went better. They only put the vaginal cylinder in and take a few xrays and then the 6 min treatment. Still unconfotable but muc easier. I have 2 more to go. They do offer you sediatives and mild pain pills, but i handled it without that stuff. But it is there if you request it.
internal radiation is the worst thing in the world. i called it the lightning rod treatment
I'll be having radiation and Chemo after surgery (Happy, Happy, Joy, Joy! LOL)
Targeted radiation five days a week for five weeks, beginning April 27, 2010. Fatigue; skin darkening; bowel irritation; queasiness; hair loss in radiated area (yay!).
Radiation side effects were just becoming exausted. I was pretty healthy until I got cancer, never had any health issues and never had to take any medication before.
diarrohea and severe pain of the bowel and stomach cramps, off food for a few weeks
alot of fatigue, upset stomach, darkening of skin, irratated skin in area involved, sores from radiation--started treatment in February 2006 (28 sessions of external pelvic radiation)
radiation. Diareah my biggest hurt. IMMODIUM AD!! and vasaline
What Larynx Cancer Survivors said about their Radiation Therapies.
35 radiation treatments starting May 2
36 total radiation sessions February 02 - March 25, 2011. After about 13 sessions my throat pain required ongoing codeine relief, and the skin on my neck began showing signs of intensifying sunburn. By the end of February my voice went missing and is just starting to return as June begins.
First treatment December 19,2011
Nov 30th-Jan 14, 2010 Neck and lower face was a serious sunburn, Lots of swelling on the inside, no appetite-lose your taste buds where everything tastes like card board. Fatigue that is hard to describe.
What Acute Myeloid Leukemia Cancer Survivors said about their Radiation Therapies.
Total Body Irradiation, June 2012. Side effects: vomiting, ovarian failure (now on hormone replacement therapy)
Recieved 4 days of fullbody radiation for the Bone Marrow Transplant. I actually didn't feel too bad but the fatigue was huge.
January 2010. Nausea. Later/cataracts. General weakness
Treatment for osteosarcoma, three years ago.
No radiation so far. Thank God!!
What Testicular Cancer Survivors said about their Radiation Therapies.
had no treatment
What Acute Lymphocytic Leukemia Cancer Survivors said about their Radiation Therapies.
Never had any
Full-body radiation 2 times daily for 4 days. Dry mouth and ulcers in the throat and intestines.
Total Body Irradiation, 8/10/10-8/13/10. Felt a little tired. Make sure you eat well prior to radiation treatments. I got a little "sun burn."
What Anal Cancer Survivors said about their Radiation Therapies.
25 doses over 5 weeks 3.8.09-4.9.09 36 Gy/18fx: primary tumour, inguinal, iliac lymph nodes 14 Gy/7fx: primary tumour & iliac lymph nodes Fatigue, discomfort and then pain passing urine and later, pain on opening bowels. Skin reddening, thickening and some "charring" but no blistering. Fatigue significantly improved 6 mths post treatment but ongoing. menopause - last period during second week of radiotherapy . . .
2/09/10 daily except for weekends. 3rd degree burns/skin discoloration
Bracytherapy in December 2009, AC and prostate radiation beginning 1/4/2010. Thirty treatments planned.
skin fell off. All my private skin fell off...(OUCH). Peeing without skin is no fun.. HUH! still cant wear clothes that bind...
30 treatments, from Dec. 16, 2013 to Jan 29, 2014 The usual side effects
Radiation Only. It appears to have been successful to knock out two lymph nodes. Yet, the Tumor never showed up in PET SCANS. The Dr's could feel it, a 1/4 inside opening - now, my Rectal Dr. says that it is just scar tissue. They are to take a biopsy Friday of areas the pain has spread to. But, I'm not sure what I should be asking for or expecting.
30 treatments from Mar 15 thru Apr 26, 2011. Side effects were extreme fatigue, burning of the rectal area and groin, violent diarrhea, pelvic stiffness.
28 treatments total. swelling/pain/bleeding
meant to be 30 sessions, but pain from burns to the total pelvic area including top of thighs, was too much to go back for the last session after break during the weekend. On the friday, doc checked my 'skin' while I lay crying on the exam table. he offered that treatment could finish then at 29 sessions so the healing process could begin. pain, pain and more pain. cystitus. diarrhea.
Radiation therapy started 3-17-14 and ended 5-2-14. My skin burned but not too bad. I did Jin Shin Jyutsu massages a few times and used the self-help exercises which seemed to help. Also, I did get a massage once a week when I could not get a Jin Shin Jyutsu massage. Now I am having trouble with diarrhea and I notice a stiffness in my hips. The diarrhea is most troubling because I'd like to start eating heathier and gaining weight. I lost 9 lbs during treatment but before that I'd been losing weight for a while.
Half way through now!
Some of the terms are slightly different. I have had Mitomycin in the first week plus 5FU, then just 5FU in the fifth week. I'm not sure what ER and a few others terms refer to, but will find out. The size of my tumour is 2cm by 2cm by 5cm, so I've selected something close to this. There appears to be a difference in opinion as to whether or not it has spread to my nodes in my groin and around my bowel area, as this did not show up in the PET. But the MRI did show swollen glands. The treatment is the same regardless, so I'm not too bothered by this lack of clarity at this stage. Medicine is an inexact science after all! I was going to take a break, but discussed it with my doctor. I'm in my last week of treatment now. He described three separate analysis of patients that had taken a week or two week break mid-cycle (same cancer, same cycle as mine). Two showed a marked difference in outcome between those who took a break and those that did not take a break. Overall (allowing for individual variation), those that took a break had a worse outcome than those who continued without a break. The third study that he conducted over a ten year period showed no difference between the two groups. However, I prefer the cautionary approach and am continuing to the end, with new painkillers and anti-nausea drugs and am doped to the gills to get me through!
Commencing Radiation 28th April
Just started radiation. No side effects yet but I have heard they are hideous
Radiation burns to my skin, and severe effects internally, as described by my surgeons.
3rd degree burns on my butt and pubic area.
started 8-4-09 ongoing
Intensity modulated radiation X 30 treatments, 7/28/08 through 9/9/08. Side effects included burning of the pelvic & rectal area with blistering, extreme pain with urination and bowel movements, nausea & fatigue.
Start Date 11-30-2009-6 weeks of radiation- IMRT
IMRT, 25 sessions, burning and swelling
Radiation to begin Sept 26 for six weeks, five days a week.
I had an amazing radiation oncology team. In February 2010 underwent 6 weeks of radiation combined with cisplatinum and 5FU. The side effects are harsh skin burns, diarrrea, dehydraition, but I made it through it without a break and recovered in about 3 weeks with the incredible support of the radiation oncology team.
Starting radiation March 19, 2012 daily for 6 weeks.
31 treatments horrible burning and pain no appetite bad diarrea
What Bone Cancer Survivors said about their Radiation Therapies.
2002 45 mins a day, 5 days a week, for 6 weeks. Burns
I wanted another baby hopefully if chemo didnt kill my ability
What Eye and Orbit Cancer Survivors said about their Radiation Therapies.
Radioactive plaque 09/09 Extreme tiredness at times, still get that. Sore eye for a short time, nowhere near as bad as I had imagined:)
Plaque brachytherapy - July 2003. Plaque inserted on Friday morning and removed Monday night. Long, long weekend in isolation and having to carry a geiger counter around. Eye was puffy, bloodshot for a long time, painful and vision deteriorated quite rapidly. Now have retinal detachment, pretty lousy vision in that eye and grey areas on the sclera (white of the eye) that may be burns from the cauterisation tool or where the sclera has thinned due to the radiation. Last November (2007), it was noticed that the edge of the tumour is still growing in some areas and I have therefore had to have these treated with Transpupillary Thermotherapy (laser).
What Nose, Nasal Cavity and Middle Ear Cancer Survivors said about their Radiation Therapies.
Radiation therapy starts tomorrow. 33 treatments @ 200 for a total of 6600.
What Nasopharyngeal Cancer Survivors said about their Radiation Therapies.
Radiation given from January to April 20 Side effects: loss of saliva, vomiting, weakness, dehydration, esophagus shrinkage
Started radiation on 11/4/13 after 6 weeks on induction chemo
35 days of head radiation, dramatic weight loss, burned skin, mouth and throat, had peg tub placed.
1st" dec 2002 - Jan 2003 to neck - saliva affected, have little saliva have to clean mouth all the time. 2nd round: Dec 2008 to lump in throat as x-ray showed nodules in both lungs
Meeting with Radiation Therapist on May 3rd to determine how much treatment will be necessary.
radiation therapy ending 5/29/12
What Ureter Cancer Survivors said about their Radiation Therapies.
Linear radiation March to May 2007. Three brachy-radiation treatments in June 2007. Side effects some bowel problems, diarrhea.
What Esophagus Cancer Survivors said about their Radiation Therapies.
Too many radiation treatments to count.
5 weeks of radiation September - October, 2012. Very tired. No burns at all to skin. I did what the doctors/nurses told me to do! Very, very sore throat. Could barely swallow but forced soft foods the entire treatment.
radiation from 11/1/97 to 12/15/97
28 days of radiation
currently undergoing treatments
Two weeks of radiation was fine. Fatigue.
The Radiation burned my throat and cause my taste bud to malfunction I had to be tube fed for about 4 months I will suffer for dry mouth for life I'm told.
Radiation to esophagus and abdominal lymph node March/April 2008 Radiation to supraclavicular lymph node January/February 2009
What Tonsil Cancer Survivors said about their Radiation Therapies.
Radiation treatments 35, side effects severe like sunburn, sore throat, couldn't eat for months, swollowing very difficult. I'm going to loose my teeth decaying at a fast rate and nothing they can do for me. Dentures will be my next step and not sure if they will work with no saliva gland. Destroyed saliva glands, thyroid, and teeth.
I had 40 days of IMRT from below my cheek bones to above my shoulders starting in September 2006. Around day 25 i developed 2nd degree burns and was admitted to the hospital for about 10 days to recover. A mild case of Stevens-Johnson Syndrome they said. Long lasting side effects are dry mouth and difficulty swallowing.
I no longer have saliva, the taste of food is terrible. My thyroid is out of whack!
1/8/13 to 2/18/13. IMRT/rapid arc with simultaneous integrated boost. Did ok up till 4th week. lost 20lbs. severe odynophagia and mucositis. had dobhoff feeding tube inserted on last day of treatment due to severe symtoms listed.
Started 7 weeks of radiation and 7 weeks of Erbitux on May 11,2009.
Radiation start date 10/5/09, 35 days total, five days a week
In process of getting everything set up.
Six weeks radiation estimated to begin week of 9/10/12
Had it Twice: Once after the radical neck and again after the radical tonsilectomy
after 10 treatments I developed a sore throat and sores in my mouth. My tongue feels as if it was on fire.
6 weeks of radiation. Dry mouth, fatigue.
4 of 35 treatments so far, burning in back of throat, some difficult swallowing.
35 seventy minute TomoTherapy with Hyperthermia sessions starting Wednesday, November 9th 2011
Radiation around neck area 5 days per week began December 7, 2009 and ended January 28, 2010. Side effects included sore throat, difficulty swallowing, loss of taste, loss of salivary glands, constant dry mouth, and loss of hair all around neck and facial area.
Start on March 29th 2011.
35 tx every day M-F for 7 weeks
A course of 33 treatments from Jan thru March. Loss of taste buds; dry mouth; fatigue; sore throat; sticky saliva during radiation then gone now back again.
IMRT 2009 for Tonsil Cancer (Right side) Second round IMRT 2012 (Left side)
Start date 10/28/08
01/07/07 34 sessions side effects facial hair gone no bad thang!! and the one most of us suffer from dry mouth a real pain but hey in the uk water is everywhere isn't it?
Yes - 27 daily treatments beginning 2-16-11
Seven weeks, 5 days a week radiation, 35 treatments. Dry mouth, loss of saliva, only lost hair on my neck which was a positive. Hated the mask
Should start 7/16/2012
35 Radiation treatments January 14th through March 8th 2013
30 radiotherapy treatments starting 7th July finishing 6 weeks later. Grade 3 ulcers in mouth and throat unable to swallow
What Endometrial-Uterine Cancer Survivors said about their Radiation Therapies.
November 2011-December 2011--25 days; long-term damage to bladder resulted in one week of hospitalization for blood clots, incontinence, extremely painful urination; serious bladder infection; low white blood cell count; burns on skin around hips and upper thighs; serious digestive problems; lost weight; 1 month after treatment had cytoscopy to confirm radiation cystitis; 6 months after treatment am taking Oxybutynin Chloride for ongoing bladder problems; felt pain in flanks during treatment, later problems with knees that come and go.
28 external and 3 internal rad.
25 external and 3 internal radiation March - April 2011 horrible burning and pain.
Started radiation in mid-June 2009 - 25 treatments are planned
About halfway through my 25 radiation treaments extreme exhaustion, and lack of control on bowels, which cleared up few weeks after radiation stopped.
five weeks external beam radiation April, 2011-May, 2011 In-Patient HDR interstitial Brachytherapy 6/13-6/16/2011 Extreme diarrhea causing 2 days of in-patient hospital stay constant Dehydration requiring many infusions
Started 4 weeks after chemo. 25 external for 5 weeks. The only effects were bouts of dysentery and pain in the area treated, no skin problems. You feel worse toward the end of the week as it builds up. After #25 I had one internal treatment per week for three weeks. Radiation made me exhausted every day because it's such a grind. Talking to other patients you learn it's quite different for everyone.
After chemotherapy ends, I will get internal and external radiation for the endometrial cancer
6 weeks external beam some localized skin issues,,,,,late onset diah, naus--- ***BRACHEYTHERAPY HURT LIKE A BITCH - MOST GOD AWFUL THING I EVER FELT IN MY LIFE - VERY SICK for a few weeks
Don't know yet...
I just completed 5-weeks of radiation therapy on January 11. Side effects included an annoyed bladder, loose stool, light fatigue.
Radiation Tx for Vaginal Tumor - 4/20/09-5/5/09 (mom is fatigued, loss of appetite) Radiation Tx for Metastasis on Ribcage - 4/27/09-5/8/09 Mom developed a UTI that went unnoticed - doc said it was normal pain - this delayed her chemo tx.
annoyed bowels, extreme fatigue
No side effects
30 radiation treatments, five days a week for six weeks
August 14th 29 days and then 2 internal treatments. Side effects irritated skin, diarrhea, less energy.
Feb-April 09 Internal (3x) and about 6 weeks of external, monday thru friday. I only had diarrhea once and no other side effects, people were so nice at LIJ.
March 2010 - April 2010 29 external and 3 internal rads. horrible burning, fatigue, diarhea, UTI
recommended to start in July
Haven't started yet. Need advice.
Started 5 weeks of external beam radiation in June of 2008. I had alot of nausea and loss of appetite, painful radiation burns. Damage done to ureters which caused me to have additional surgery in July and August of 2008.
initially told not need 7/6/09 told raDIATION WILL BE NEEDED WHEN I HEAL FROM MY SECOND SURGERY..MY SURGEON NEVER CHECKED THE NODES WHEN HE DID HYSTERECTOMY I HAD TO FIND A NEW SURGEON AND HAVE LYMPHN NODE REMOVAL 8/6/09 27 NODES REMOVED NO CANCER
I had several rounds of a newer internal radiation for 3 months following surgery. I felt great each time for the 1st day or two, then became very tired.
5 sessions of High Dose Brachytherapy will be done between 3rd & 4th chemo sessions (mid-June).
What Sarcoma Cancer Survivors said about their Radiation Therapies.
Radiation from November 2010 - January 2011. Radiation burns toward the end, low blood counts, and always tired.
Radiation treatments started February 4 and end on March 23, 2011. My prescription is 66Gy over (7weeks) 33 treatments. Locally, the area being treated hurt pretty bad from being burnt to a crisp, but otherwise I still had lots of energy and I felt great.
1 treatment of Radiation ; in Oct 2008 . Side effects - Horrible burn and pain . Alot of fatigue .
Like having a severe sunburn on the back of my throat. I could not even swallow my own saliva. I lost 30 pounds and became extremely dehydrated.
5 weeks of radiation - feeling tired and extremely fatigued after the sessions were over, radiation burns on back on leg that developed into very painful blisters. Radiation oncology nurse was so caring -- she made up an ointment to use that took away the pain and helped with the healing.
Radiation (Stereotactic Body Radiation Therapy)
Her first doctor didnt do enough or the right kind of chemo....the INSURANCE COMPANY wouldn't pay for the correct treatment.
Radiotherapy for 5 weeks from last week of june 2010. My skin became very sore and a section of it peeled off. My skin has darkened there and has stayed hard in that area.
Still to be determined.
Radiation I had every day at Palmerston North Hospital for 7 weeks - that was the maximum I could have before it gave me cancer!! Started in early Feb 2009 through until April 2009. I got extremely tired, exhausted with no energy at all! I also got a small radiation burn, but was controlled with creams and ABs.
2005 - on L5; 2007 - on L3; 2011 - on left femur & L4
To control size of tumor to right pelvic area
Finished radiation therapy on around December 24, 2010. He had six weeks of radiation therapy, and had to receive treatments five days a week for those six weeks.
I start exact radiation on 6-19-2012 for 6 weeks
December 2012-February 2013 Proton Beam Radiation, Massachusetts General Hospital
What Parotid Cancer Survivors said about their Radiation Therapies.
1st treatment 9/12/12 left jaw in pain from being stretched open and pushed by the mask; by 10th treatment, almost impossible to swallow, even water, because throat is so tight and sore and mouth & tongue are so sore
What Skin Cancer Survivors said about their Radiation Therapies.
could have had radiation but chose Mohs surgery
What Throat Cancer Survivors said about their Radiation Therapies.
IMRT radiation started 11/17/09. Side effects were almost immediate - nausea and tiredness. Not too long before I lost all appetite. Thank goodness I have a PEG tube.
Radiation for 33 times
NONE - Refused radiation on six separate ocassions
April - June 2009 Loss of Taste - most regained Loss of Saliva Production - some regained 35 Exposures Amifostine Injections to the Abdomin each day
Due to having a bit of tumor left, I am waiting to find out if I will need radiotherapy.
Every day, Monday through Friday, starting May 4, 2010. Side effects are extreme sore throat, dry mouth, fatigue, loss of taste buds. Taking pain meds for throat pain. The worst part for Tim is wearing the radiation mask.
Months of radiation that covered both my head and chest area. I no longer have salivary glands and I suffer from dry mouth (xerostomia) -- which means that I drink about a gallon to a gallon and a half of liquid every day. Taste has dramatically diminished and has been altered.
1997 - later side effects - 1999 Thyroid - placed on meds...2005 narrowed carotid artery plus first aspiration pneumonia. 2009, 2011, 2012 three more aspiration pneumonia. Placed on Feed Tube 2012.
33 rads treatments starting January 2009... in which it did not touch the cancer .I had a small burn on throat from rads.
Started December 14, 2010. Five days a week treatment. Severe oral mucositis and recently the first week of January, 2011 developed chronic skin abrasions on my chin and upper lip area, which made me look a monster! That being treated with bactroban.
TOMO Radiation started Feb 23, 35 treatments that are Mon-Fri until April 12th.
I'm at #17 out of 35. Burning and dry mouth.
What Tongue Cancer Survivors said about their Radiation Therapies.
Seven weeks Jan 4 thru Feb 19, Mon-Fri of TOMO radiation. At the end, severe burnt neck especially my right neck area. Severe sore throat.
Burned neck and throat and burn on neck got infected...my skin peeled, but little scaring
I started My radiation the first week in July and had alot of side effects. Many many sores in my mouth and thrush constantly. Also i was told i was very sensitive to the radiation and had so many sores and burns on my neck. I have a lot of scaring left.
Side affects were hideous.. She experienced a very deep painful burn on her neck.plus a percutaneous endoscopic (PEG)
Radiation on neck 5 days a week for five more weekws
July 6 Radiation and 1st Chemo begins
60 Grays (Gy) of radiation
Radiation to begin next week, 5 days a week. Began on 8/23/12.
I've already been through IMRT (radiation) for Tonsil Cancer in 2009. So, they can not do radiation to the same part of the body twice.
What Nose Cancer Survivors said about their Radiation Therapies.
Radiation side effects included loss of taste, trouble chewing, sore gums and teeth
What Ear Cancer Survivors said about their Radiation Therapies.
Proton Therapy test
What Jaw Cancer Survivors said about their Radiation Therapies.
Dry mouth, and due to the radiation I have osteonecrosis of the jaw and now in hyper baric chamber treatments so I can have all my teeth removed as they are all falling out on there own.
What Hodgkins Lymphoma Cancer Survivors said about their Radiation Therapies.
Cobalt Radiation on full chest and abdomen area's. I am proud of my 'Tatt's'! One thing that is just part of it all is the Pneumonia and other illnesses that comes from the low immunities can be some of the scariest and biggest battles we face. Too, with every new procedure and surgery, at least for me, my recovery times seem to be much longer. But despite the illness and weakness that chemo and radiation leaves you in ... if you are still breathing it is a gift.
86 treatments of what was referred to as Cobalt 80,full scan and mantle, 1975 & 1976.
I will start radiation after the chemo ends!
After chemo - 3 weeks of radiation was a walk in the park for me! I took up raquetball (not generally recommended by any doctor, other patients etc!)
Radiation therapy (RT), 2000 rads for 22 days, were given to areas of initial bulky disease. (middle of chest cavity)
Declined IFRT radiation therapy
Received 5 weeks of localized radiation to the chest
No never had radiation.
Start treatment on the 25th, chemo is the only treatment on the menu so far.
Haven't started yet
I didn't have an side effects from the radiation!
Radiation in July 2008. I was very fortunate and blessed not to have any side effects from radiation.
radiation was brutal and side effects were phnuemonia
Radiation therapy to field covering the mediastinum and bilateral hilar areas - 180 cGy per day to a total of 1980 cGy over 11 fractions. Radiation to the para-aortic and lumbar fields - 180 cGy per day to a total of 1980 cGy over 11 fractions. (1/30-2/13/92). I had persisting problems with nausea and vomiting throughout much of the radiation but it was reasonably controlled with Phenergan.
What Acute Lymphoblastic Leukemia Cancer Survivors said about their Radiation Therapies.
June 28, 2010-June 31, 2010 - IBR - twice a day for 15-20 minutes a session.
What Bile Duct Cancer Survivors said about their Radiation Therapies.
What Uncategorized Cancer Survivors said about their Radiation Therapies.
image guided IMRT starting 10/16/06
haven't started yet
See my website
Starting April I had 25 radiation treatments 5 days a week for 5 weeks. It burned the outer part of me to the point that my skin blackened. I could not walk or sit without hurting,even standing made me weak. Then I had a two week break before I went into the hospital for internal radiation treatments.I was to have 5 high dose treatments done all in one week where i would go in the morning for treatment and at night for another treatment. Monday I went in to have it surgically put in,had a treatment...had another treatment that next day. Then the doctor decided it could be better so he took it out and made some changes.He had me come back 2 weeks later and finished up the last 3 treatments by putting me back in the hospital and surgically implanting the radiation device again.My doctor was very particular about how he did everything and he took such good care of me.
Months of April and May. I had swelling of the feet. Not sure if it even worked.
25 External Rads 3 Days of brachytherapy, the worst experience, very painful, had to lay on my back for 3 days, when they removed the 27 needle implants it was most excruciating pain I have ever experienced. The pain meds in my pump made me very sick. I have had no lasting side effects from my rad treatments. I am very fortunate. Re-treated 2/16 thru 2/18 with Cyberknife for relapse.
yr 1990 yr 2010
I was radiated on a Belly Board, a little different from what I have read on most web sites for Anal Cancer. I was face down on the board, and the machine circled me, doing 8 "zaps" as it went. I seem to have fewer bowel issues, due to this method of treatment, than most I have read about. My radiologist said it was more bowel sparing.
Image Guided Radiation Therapy -- a form of high-dose radiation. While it promises low chance of incontinence and ED, I have not escaped mild ED and take Viagra and Cialis, which both work pretty well.
I had recently in my head. Feels burns in the local.
30 radiation treatments to left hand and forearm 25 radiation treatments to left axillary and chest 5 radiation treatments to both legs 5 radiation treatments to right sacrum
Gamma Knife Procedure performed at the University of Pittsburgh Medical Center by the esteemed doctor, L. Dade Lunsford. It was performed in 2005. I did not experience any significant side effects from having the procedure.
Thyroid ectomy and I am following up with radiation in June.
Radiation is to follow chemo, should begin in November.
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