What Breast Cancer Survivors said about their Radiation Therapies.
May 2-June 10th, 2007 Really scary, very tired,headaches & teary
Started 11-07-11 --skin is burned, dimpled and itchy. Tumor site is hardened and sometimes gives pain. Fatigue is severe beginning in 3rd week. In 7th week skin begins to open and fatigue forces me to stop work for awhile and rest, rest, rest.
33 sessions in June - July 2010 at The Medical City, Philippines. Burn marks remain on my wife's chest from the sessions (although they have lightened with time).
35 treatments for unrelated cancer in 2000 35 treatments for first bc diagnosis in 2005
10 weeks of radiation...just exhausted.
Radiation burns and blisters from front to back.
Radiation. Linear accelerator every day for 10 days. I had a UTI & had to be admitted for 5 days Then went back for 3 days.
33 rads very little burning only the last couple boost treatments is all.
I got celulistis of the breast towards the ends of radiation
Haven't started radiation yet.
6 weeks, lymphedema
Full head radiation in January 2011, Loss of hair, confusion, and fatigue Gamma knife in March 2011, same as full head radiation but hair loss was more spotty.
33 treatments June through July 2009
May of 2004; six weeks; breast raw for 1 week; I have alot of stiffness under my arm; I exercise it by swimming
Yes 6.5 weeks worth. I had a bad burn.The fatigue was difficult.
Radiation for 32 weeks
Breast cancer No. 1 2004: Quite bad desquamatous exfoliation towards the end few sessions. Found this very distressing at the time.
See Profile cardiomyopathy
10 weeks, lost alot of weight, it was cake compared to the 6 cycles of chemo, but at the end I was very, very sore, and exhausted. like being 4 weeks post-op all over again. I still have bone tenderness, and localized swelling if I take any type of hit to the area.
Radiation kicked my butt. I'm tired enough to need regular naps during the week. Mild sunburn? Not likely....I've had a rash and blistering.
1/31/2010 begin 33 radiation tx. pain and discomfort for weeks after
63 treatments, finished in June 2010.
Radiation on site of mastecomy (2002) Radiation on T12 and right hip (2007)
To be determined
What Prostate Cancer Survivors said about their Radiation Therapies.
The 39 trip to Radiation treatments were pretty anticlimactic. Thank god my job worked with me and let me leave early each day. Can't imagine if they didn't worked with me. I was lucky there! Never had any pain from the treatment and very little if any side affects. They is nothing to be worried about in this treatment as far as I'm concerned.
Burning senceation when urinating May 2000 to July 2000
to my back, ten treatments, now i need to self catherize and have a blood clot in my entire right leg
40 treatments in 2005. Difficulty holding bladder.
IMRT, 36 treatments, Sep 20-Nov 8, 2011. Side effects: the usual suspects -- GI and bladder/urinary irritation
February 2003. Side Effects - ED, Tiredness, fatigue, hot flushes, Radiation burns to anus and buttocks, rectal leaking and short term memory loss.
Hd 9 weeks of IGRT, five days per week except July 4. Took about five minutes per day. It took a couple of weeks to get used to drinking a lot of water on the way to the treatment facility. At first, I couldn't differentiate between the signal to urinate or to defecate. I learned to just sit down on the toilet like a baby and that fixed that. They had really good instant brew coffee at the facility, so I'd have that - my first coffee of the day, around 10:00 A.M. Once, this caused a bowel movement while I was driving home. After that, I remained at the center to move my bowels and then drove home. I went to the gym and tried to lift some light weights around my upper body and that went OK. Right up to the last day, it was a challenge to get out of bed and go to the treatment. I don't know where or how I found the strength to stick with it. It doesn't hurt. I acclimatized to the way my body adjusted to what was going on. But it just took some kind of undefined, inner push to keep going. I was never a big eater but PCA and IGRT left me very uninterested in food. I think I "caused" my cancer, maybe by something I ate, or did wrong, last year. Treatment ended about four months ago.
Due to have in May 2014
3 months of conformal radiation at Tufts New England The radiation caused the bladder cancer and much irritation
Brachytherapy 10 yrs ago. Recurrence 2 years ago
Will begin in three weeks as I di the implants on 11th Of Oct not sure what is next
Nuclear Oncology 41 treatments 11/08 no side effects
41 sessions to pelvis area and prostate, using Orbit Arc, some side effects; dizziness, burns, medications helped ease the process
None. Had surgery not worked I would have been put on radiotherapy but thankfully it was not needed.
What Lung Cancer Survivors said about their Radiation Therapies.
Weill have gamma Knife radiation to brain lesions
Will start this next week.
radiation starts on March 8th
Feb. 24, 2009 Gamma knife radiation perfexion treatment The procedure is nothing short of a miracle in technology, however it requires a metal `cage` to be attached to your skull. That process is brutal, as it the pressure release when it is removed. But they got em' so it was worth it :)
9/12/08 gold seed marker placement-inferior right hepatic lobe 9/22-9/26/08 Cyberknife radiation for liver metastasis
starting the 3rd week of August 2013
None to date - The surgeon and oncologist felt that I should wait before starting chemo or radiation and be on the anti-fungal medication, indicating at least a year, to see if once the infection was gone, the remaining spots in my lungs would be gone. In January of 2010, I lost my job, medical insurance and the financial ability to continue the meds. I've recovered enough to find work and have been there long enough to receive medical insurance...now to find the courage to return to the doctor and take up where we left off, uhhh less the pre-existing conditions...to be continued...
Pelvis (aug '07) radiation to area possibly weakened femur in hip area - Fell Jan '10 and broke left hip - surgery to pin hip Jan '10 Left Adrinal Gland Area Sept '09 - Side effects - damaged about 1/2 of left kidney and about 1/3 of pancreas Lymph node in the lower middle back May '10 Left Lung and lymph node in left arm pit May '10 side Effects -fatigue
Radiation was declined at this time.
Mevatron radiation for brain on Nov 22, 2012
35 radiation treatments, some sore throat and trouble swalowing.
single fraction radiation therapy to the pelvic bone for pallative care, Dec 2013, Vomiting
Radiation 08/10 to 9/10. Side effects: soar throat, difficulty swallowing, and fatigue.
October 2013-pnemonitis, fatigue
Radiation to leg
October 2008 Radiation. Max dose. She can never receive it again.
Starting radiation with my second chemo on the 24th of august 2010
5 days of radiation Feb, 20-26 sore throat for 2 days tired
Radiation start date 4-13-15. M-F X 3 weeks= 15 days
Ten whole-head treatments ending on 22 April 2010. Side Effects - loss of hair.
4-12-10 targeted therapy radiation
December 2004- Radiation to large tumor in lung. October 2005- Radiation to tumor in lung and spine. August 2008- Radiation to spine. May 2010- Full brain radiation.
Radiation started 10/10/07 and I go M-F once a day for 6 weeks
What Non-Hodgkin Lymphoma Cancer Survivors said about their Radiation Therapies.
20 sessions of radiotherapy on my mediastinal mass which caused damage to my left lung and heart in May - June 2012. The side effect I had was tiredness.
relapse cancer - radiation (June, 2011)
Yes, radiation on both sides, and I have had breast cancer on both sides.
23 rounds of radiation on my neck and shoulder.
No radiation on the table yet.
Intensity modulated radiation therapy, June 7th- July 12th 2012.
luckily for me , i don't have to undergo radiation
Zevlin. Horrible pain in my feet, very slow recovery, severe fatigue
radiation to left chest - side effects: feeling of a lump in my throat, fatigue
Radiation daily for 3 weeks ending 28/6/2012
I hear you're pretty pukey but thats about it. Oh and it melts your innards and body externally.
None yet, though I get some if chemo doesn't kick it.
Radiation therapy was (25) Involved Field Radiation over 5 weeks, March 29th through May 2nd 2012. The radiation treatment itself was painless, although the mask and tongue guard were uncomfortable. The side effects were progress skin burns, mouth sores, difficulty swallowing, and nausea. The side effects subsided a couple of weeks after treatment ended.
December 2013 - this is my second diagnosis of lymphoma. The first was last year and I had successful radiation treatment from Sept-Dec 2012 in my neck. By March 2014 all was well but I had a red eye. After 4 months of seeing my GP service (pretty useless I'm afraid) my wife insisted I see an eye specialist; as soon as I did I was diagnosed with a "residual" lymphoma in my eyes on August 30th 2013. Residual is good - it means it has not metastised, it was apparently "left over" from the last lymphoma in my neck. In October I had a CT scan that showed I was clear in all my other lymph glands - so that was good. So I had to have radiotherapy in both eyes. I'm going to keep this next bit short otherwise I could spend ages on telling you what I was told by the technicians, nurses, doctors and consultants about the technical processes they were about to treat me with. But it has all been good. Today I am writing this because, after 6 weeks of discomfort and 1 week of "superficial" radiotherapy (which never feels superficial!) and 1.5 weeks to go, for the first time, my eye doesn't hurt; it's hot inside but not scratchy. I have a good store of saline solution which is bliss when you use it….but then you need more and more, like a drug. Today I have not had to use it at all, it's 9pm UK time and 10 hours since my radiotherapy session this morning. Usually I'm in bed after spending 6-7 hours in pain with an eye patch on. I do expect the effects to get worse but all I can say today is that IT WORKS!! The basis of my optimism is that the radiation kills the cancer…..and I can happily live with the side effects because I am alive to experience them. Take heart.
June 30th 2009, forgot how much the dose was, it was everyday for the whole two months. Side effects: burned skin, loss of appetite, hair loss, sore throat, gastric pain.
Will Complete 20 rounds in July 2015
3 docs said yes, 3 docs said no, so I did not have radiation after chemo treatments proved decent
not part of treatment
Brain Tumor 25 years later.
All of feb thirty days. Nausea and tired.
23 radiation sessions
May & June '10. Back burning.
What Kidney Cancer Survivors said about their Radiation Therapies.
My husband had radiation at the site of his neck surgery.
no treatment yet?
10 days of radiation,difficult to say what side effects were from Radiation, Sutent (oral chemo) or Aredia (IV drip for bones)
Radiation on femur
What Pancreas Cancer Survivors said about their Radiation Therapies.
Radiation Therapy June 2011 for 5 weeks
Radiation - Jan 2013-March 2013; Reported weight loss, nausea, some disorientation on dehydration.
N/A would not help his type of cancer
Radiation - 6/14/10 to 7/22/10 Monday through Friday: Had some bad mornings starting about halfway through, but always seemed to feel better after his treatment. At night, the upset stomach side effects would kick in.
Radiation followed first course of chemotherapy, and was given for 28 days in September 2010
will be starting after Christmas
Radiation to start on Oct.25th for new tumor on 1st surgical bed thats not responding to other treatments..
Every other day radiation
Radiation once a day Monday - Friday for 5 weeks along with the 5-FU pack.
Mom chose not to do radiation
Xeloda Jan 2008-May 2008
no radiation or anything else just chemo
What Oral Cancer Survivors said about their Radiation Therapies.
Loss of taste, acute mucositis, loss of hair at back or neck, blistering of throat.
33 IMRT Start date 3/18/2011. Mouth sores ( treating with Manuka honey ) stiffness in operated areas, fatigue, some hairloss in zapped area - so far not too bad... No burns yet. No taste.. Ugh!
25 treatments, 9 days in every 2 weeks - partial hair loss, starting 1st week in February this year, finishing March 18th
35 Rads Mid - 5 days a week for 7 weeks. started July 2008 - OK at first - Got weaker- drove myself first couple of weeks- lost good judgment- totaled my car- wife drove me after that...got down to an old man's shuffle at the end.
37 radiation treatments from late Sept to the end of November of 2007. Side effects all my saliva gland were destroyed. I can't hardly eat anythin because I have no saliva. swallowing is hard. I also have a different voice now. People call me sir all the time. And I stay tired still. Nerves are shot and now taking anti- depressants
21days, 2 per day starting in August. Side Effects: Currently, have no saliva glands working, have only 50% of my taste buds working, have no beard below my lower lip and in a circle to include the back of the neck.
35 IMRT treatments Dates: starting late August and ending November 11, 2011. Side Effects include; Dry mouth especially at night weak weight loss and muscle atrophy loss of appetite (food just tastes bad period) Mucus in mouth during the day
72 gy of radiation (before the advent of IMRT)
June 2009. not many, all related to not being able to swallow without pain. Important to get help, magic mouth wash, pain meds. Liquid diet essential
What Ovarian Cancer Survivors said about their Radiation Therapies.
Jan - Feb.2011 pelvic rad. ( for bone mets - palliative )
Fatigue nausea diarrhea dental problems severe digestion issues
low dose whole abdominal radiation + pelvic boost
No radiation done
Currently deemed unnecessary (following pathology). Will reassess in February 2012 to see of radiation of supraclavicular lymph nodes is required.
None to date
Radiation is new for me so Ill let you know as we get there
Radiation therapy to the abdominal/pelvic area; diarrhea, abdominal cramping
august 09: radiation in my stomach, new tumor 6 cm
pelvic rad. for bone mets January 2011
What Thyroid Cancer Survivors said about their Radiation Therapies.
Eight weeks after surgery I had to go in for a Radioactive iodine treatment. The hardest part of this was being away from my family for a week. In regards to side effects, I had some sores in my mouth and an upset stomach for a few weeks.
4/28/09 - 150 mCi RAI
Had Thyrogen injections on August 16th & 17th and then the RAI on August 18th. My face, neck and throat didn't start to hurt until a few weeks after the RAI. Now it seems with the cold weather my face hurts. Swollen salivary glands. Very tired all the time. Just completed my 6 month whole body scan and bloodwork for thyroglobulin...waiting on results.
I took the Pill in November of 2013. I was on the low-iodine diet for ten days. I had an extremely hard time with the diet, and my neck was sore for a week after i took the pill.
I will begin within a month
December 12, 2012, no side effects
Radioactive Iodine on August 2, 2010. I was very sick to my stomach for about 5 days.
Soon to start high dose of Radioactive Iodine. Meet with doctor next week.
RAI 131 May 2003, Feb 2005, June 2010 side effects: fatigue, brain fog, mouth dryness, dry skin achy joints especially hips.
I completed RAI-131 in December 2009 and follow up scans until 2010. Follow up ultrasounds with lymph node mapping tests continue.
Radioactive Iodine-dry mouth everything tasted like cardboard for over two months. Salivary gland infection.
Radioactive Iodine 94mci, 2005
Doing this in January
Radiation March 2010. Didn't work
RAI 2007, 2008, 2014
RAI-Radioactive Iodine Abalation on 9/8/2009-some activity noted in the thyroid area, but no where else.
nov,2010 300 units of radioactive iodine treatment
Proton Therapy test
Not yet scheduled, but on the horizon.
October 30, 2008 radiation, confined to my room in quaratine for 3 days.
Radioactive iodine therapy Dec. 17, 2013. April 15, 2014
RAI 150 mci in Jan/09 and a second round scheduled in 12/09
Radiation treatment to begin February 20, 2012. Two days of intramuscular shots then a pill of 50 micrograms. Currently on synthroid every day.
4 rounds of I-131, roughly 500 millicuries each time: 1. May 2005; 2. December 2005; 3. December 2007; 4. December 2009
What Stomach Cancer Survivors said about their Radiation Therapies.
Radiation began 6.21.13 - Extreme Tiredness, nausea, that is when he essentially stopped eating.
Left skull base October'09. Dehydration, hair loss, weight loss, ringing in ears with a pressure that felt as though ears were going to explode. Blisters on ears both inside and out and raw peeling facial skin. January '10 another round of 15 treatments on pelvic area and spine. Unable to walk, numbness of entire lower body and left leg. Effects still going on to left side of body. Feet freeze like they are always in a vat of ice. They are very heavy feeling as though they are being dragged. Hole through the center of back. I assume this is where the radiation burned thru the body.
Will begin after chemo
Doctor saids he want help.
radiation 1989 - ignorance is bliss....I didn't find the treatment too bad, maybe 'cos I'm able to block out the "what if" questions (or as my wife prefers to put it, I am too stupid to get worried)
What Brain Cancer Survivors said about their Radiation Therapies.
30 treatments in March/April 09 with headaches, loss of appetite, increased thirst, feeling of being hot
11/06-12/06 tolerated radiation and low dose of temodar quite well until the 4th week, then he became extremely fatigued.
Starts radiation 9/12/11
6 weeks completed 1-19-09
Radiation - 6 weeks ends August 24th
Picking neuro-oncology now
Just started radiation on 1/3/2011 Completed Radiation on 2/17/2011
IMRT began July 22, finished 30/30 treatments August 30, 2013. Hair loss, problems with eye focus, bad leg and feet cramps at night, face tics, tiredness.
6 weeks of radiation - hair loss - tired.
5 minutes of radiation on my brain. February 2,2010
Mom had radiation - only hair loss. Dad had radiation - trouble swallowing.
33 sessions targeted computerized radiation with mask began September, 2006 Side effects: extreme fatigue, partial loss of hair, dry itchy scalp, burned scalp
February-April 2013 lost hair, sore throat, skin burns
DATES: Jan06 - Mar06 Side Effects: Hair loss, metalic taste when receiving radition, nausea, sensitivity to sun
2005- 30 days
non so far she hasn't healed from surgery
i had radiation of the brain and spine -> Damaged hair follicles, burnt skin, swelling. Chemotherapy and Chemo boosts -> foot drop, blood damaged
started 9/13/2010-weekdays, mostly tiredness
6-08 IMRT, It made me tired!
brain damage, vision change and partial hearling loss
Radiation therapy from 04/06/2013 to 05/20/2013. I really did not have many side effects.
5940cg craniospinal radiation. Memorial Sloan Kettering Cancer Center. New York, NY. 33 treatments. Start date: 02/14/96. End date: 03/30/96.
Alot of skin burning and pain associated with that.
August and September 2007, Hair loss at site, nausea, redness and burning at site. August 2009, Minimal Side Effects
What Multiple Myeloma Cancer Survivors said about their Radiation Therapies.
November 2010. No side effects.
Was nauseated after almost every session. Due to the back pain it was extremely hard to get from the stretcher to the table. It always felt like i was getting stabbed in the back. Loss of appetite.
12 treatments to shrink the sacrum tumor 1/29 to 2/29 side effects none
one very strong round of total body lymphathic radiation
What Colon and Rectal Cancer Survivors said about their Radiation Therapies.
June - August 2005: Side effects- 1st and 2nd degree burns on the skin; fatigue; unable to sit.
April 19-May 26 Monday through Friday -blessed with very little side effects
Radiation began in June 2008 for 25 sessions. Suffered anus hernias and a damaged tail bone. The hernias were treated with a sith bath and the tail bone recovered by March 2009. Minimal hair loss around the pelvic area.
Dec. 29, 2009- Feb. 5, 2010 Fatigue, sores on bottom, bone thinning in my sacral area
Just finished six weeks (28 treatments). Fatigue, diarhhea, extreme pain while going to the bathroom (probably due to a fissure that I got because of being constipated from the anti-nausea meds, burning of the skin,sensitivity to the sun, fatigue). Symptoms got progressively worse from week 4 to about 2 weeks after completing the treatments.
25 days of radiation. had to stop midway due to extreme diarrhea Finished treatment Wed 18,2009
I had radiation therapy in 2002, 2003, 2004 and 2005. The only side effects were fatigue and on one occasion, a bowel blockage (this was before the colostomy).
Up to this point none, but within the last 24 hours have had bowl movements every two hours. Have developed irritation of the anal area, very imflammed and severe buring sensation, bowel movements have become very painful due to the irritation.
5 weeks radiation August, 1984. severe illness and weight loss.
After Chemo I will have four weeks of radiation with 5FU.
WEEK 1 - AUG 16, 5 out of 25 done!!! no pain during treatment, no side effects. Noticing tender when wiping butt but not too bad.
my mom is seing her radiation onncologist august 31. That's when we are going to find out the date of her first treatment.
Started radiation 6 weeks after the surgery. 5 1/2 half weeks of radiation M-F, combined with 1500mg of Xeloda twice daily M-F. Minimal side effects. I slowed down on walking due to fatigue, but not enough to interupt my normal life functions. Some diarreah during the 3-4 hours right after the radiation. No side effects related to the Xeloda.
Started radiation 9-14-2009, radiation of pelvic area. Will be for six weeks, everyday five days a week. No side effects yet. 5fu is now constant infusion via pump and Oxaliplatin is halted until end of radiation.
six weeks radiation; ending 7/12/10. This is my last week and i am having a very hard time eliminating. Feels like i am passing glass and i will see the doctor tomorrow to see if he can give me anything to make this any easier for my last five days.
None and none
12/06 to lower back, fatigue, 1/11 to brain and ribs, fatigue
Radiation for 6 weeks in October and November 2013, which shrunk the tumor size from over 6 cm to about 1.5 cm. YEAH. Treatment was daily Mon-Fri. The last 10 days were tough as I began to notice skin break down and burns in the rectal area.
28 days of treatments / fatigue, nausea, lack of appetite, localized burns Jan-Mar '10 Next will be 4-5 months chemo through port
radiation was the new pinpoint radiation in dec/jan 06/07. main effects are much smaller vaginal area (now the size of 11-12 year old girl).
5 weeks of radiation and chemo. July 2007
28 days after second surgery. Felt ok until the last week in which I was very tired.
What Liver Cancer Survivors said about their Radiation Therapies.
i will tell you
Radioactive spheres injected into the liver. May and September 2009. Thought it had worked but didn't
What Cervical Cancer Survivors said about their Radiation Therapies.
28 external radiation treatments 5 days a week, then 2 external radiation treatments with low dose cisplatiin. Side effects: pain, nausea, heartburn, fatigue.
I had 30 tomotherapy radiations 5 days a week from June until August. The side effects were fatigue and nausea.
Rather not discuss
28 external and 3 internal radiation
Targeted radiation five days a week for five weeks, beginning April 27, 2010. Fatigue; skin darkening; bowel irritation; queasiness; hair loss in radiated area (yay!).
I have one more week of radition and i am done with my 6 weeks of treatment. The external radition treatments were a piece of cake. It took about 10 min 5 days a week. They dont' hurt and i never really had any side effcts until this week. A little burning and itching in the private areas but tolerable. The bad part was th internal radiation. I don't want to scare anyone but they do hurt somewhat. We are not talking the worst pain of your life but def uncomfortable. The first day is the worst and it gets better from there. The first day for me meant a cathedar in place, then something in the rectum, then the vaginal cylinder in place. I stayed like that for about an hour while they did the treatment planning. Then they did the treatment which lasted only 6 minutes. I did cry through it because having every hole plugged up is just not a natural thing girls! The second one went better. They only put the vaginal cylinder in and take a few xrays and then the 6 min treatment. Still unconfotable but muc easier. I have 2 more to go. They do offer you sediatives and mild pain pills, but i handled it without that stuff. But it is there if you request it.
alot of fatigue, upset stomach, darkening of skin, irratated skin in area involved, sores from radiation--started treatment in February 2006 (28 sessions of external pelvic radiation)
02/2010 - 03/2010 28 external and 3 internal rad.
25 external radiation treatments over 5 weeks, three days of internal radiation with hospital stay.
i felt like my insides were cooking, but i had great radiation doctors
28 external and 5 internal rad.
Doing Radiation concurrently with Chemo so I'm not exactly sure which side affects to attribute to which treatment. Very nauseated, shaky, dizzy, tender in the groin and abdomen area.
Done and it sucked
Start- 10-2-10 End- 12-17-10. Horrible diarreha, severe burning during urination and pain in both areas.
7 weeks of external radiation 59 hours of internal radiation (brachtherapy) 4 weeks of chemotherapy (Cisplatin)
Radiation began along with chemo therapy May 21 2014. Side Effects: Extreme fatigue, nausea, vomiting, dehydration, luckily very minimal radiation burn to rectum and groin area, and diarrhea. Hospitalized once for the vomiting. Very unpleasant. Keep in mind although I have cervical cancer they also radiated my stomach area due to lymphnode involvement.
menopause (there had to be some bonus!).
Nausea and fatigue, Extreme Vomiting, Neuropathy
Started external radiation on 2/4, to have 25 treatments; then 2 "internal" ones fatigue, but can't blame it all on radiation
radiation. Diareah my biggest hurt. IMMODIUM AD!! and vasaline
Tired. Nauseau. Diarrheia
Radiation Oct 07-Dec 07 5 weeks of daily external radiation, then 3 days of Brachytherapy in hospital. Burning in pelvic area, frequent loose stools (5-6 times a day) frequency and urgency with urination. Really bad fatigue, lasted a long time after. Oct 09 External radiation to vag 10x (2 weeks). burning in vag/urethra, pain on urination, radiation burns on outside of thighs (entry points) fatigue.
25 external radiation treatments 2 internal radiation treatments
26 external radiations; 5 internal radiations (brachytherapy); No burning; diarrhea and intestinal cramping-relieved with levsin medication; longer term effects--pain and swelling in abdomen and lower back pain
What Larynx Cancer Survivors said about their Radiation Therapies.
35 radiation treatments starting May 2
36 total radiation sessions February 02 - March 25, 2011. After about 13 sessions my throat pain required ongoing codeine relief, and the skin on my neck began showing signs of intensifying sunburn. By the end of February my voice went missing and is just starting to return as June begins.
First treatment December 19,2011
Nov 30th-Jan 14, 2010 Neck and lower face was a serious sunburn, Lots of swelling on the inside, no appetite-lose your taste buds where everything tastes like card board. Fatigue that is hard to describe.
What Acute Myeloid Leukemia Cancer Survivors said about their Radiation Therapies.
Total Body Irradiation, June 2012. Side effects: vomiting, ovarian failure (now on hormone replacement therapy)
Recieved 4 days of fullbody radiation for the Bone Marrow Transplant. I actually didn't feel too bad but the fatigue was huge.
January 2010. Nausea. Later/cataracts. General weakness
Treatment for osteosarcoma, three years ago.
No radiation so far. Thank God!!
What Testicular Cancer Survivors said about their Radiation Therapies.
had no treatment
What Acute Lymphocytic Leukemia Cancer Survivors said about their Radiation Therapies.
Never had any
Full-body radiation 2 times daily for 4 days. Dry mouth and ulcers in the throat and intestines.
Total Body Irradiation, 8/10/10-8/13/10. Felt a little tired. Make sure you eat well prior to radiation treatments. I got a little "sun burn."
What Anal Cancer Survivors said about their Radiation Therapies.
Half way through now!
9/3/2013 Began 6 week routine of daily radiation 5 days a week After week 1 - weak feeling at times, intermediate bowel cramping, some diarrhea, no anal pain during BMs, no skin changes.
I had an amazing radiation oncology team. In February 2010 underwent 6 weeks of radiation combined with cisplatinum and 5FU. The side effects are harsh skin burns, diarrrea, dehydraition, but I made it through it without a break and recovered in about 3 weeks with the incredible support of the radiation oncology team.
December 14th, 2009 - January 21st, 2010. Mon - Fri for 6 weeks. Side effects: Abdominal pain, loose bowel movements, extreme skin irritation (skin peeling, burning, raw)of the anus, vagina and upper-inner thighs. This was especially severe during the last couple of weeks of treatment and for a week or so post-treatment.
Just finished 4th week of radiation. One more week to go. Biggest complaint is recital and vaginal itching. Some fatigue.
Radiation daily for 6weeks. Burns, pain, bloody stools, infection which I was hospitalized for and complete melting of the skin in the genital area.
Radiation - very hard on the skin. Doctor reduced node treatments to end of week 5 because burns were so bad. Vulva and labia badly burned but healed within 7-10 days. Did get a UTI infection but cleared up in a few days with antibiotics. Anal area still sore at 5 weeks post treatment. Lots of pain with bowel movements. On vicodin and ibuprofen for pain. Having a hard time managing painkillers (constipation), with stool softeners/ laxatives. Sought advice at UCSF Dysplasia clinic and they found 2 small ulcerations in the anal canal (opposite side of tumor) caused by the radiation. The radiation caused also caused nerve damage on the left side of my perineal area. I am on Neurontin and valium for pain and muscle spasm relief. Have been going to a pelvic pain physical therapist in order to desensitize the area.
30 treatments from 6-23-2008 through August 4, 2008. IMRT... Burning, blistering..think Iwo Jima . Even with IMRT the burns were quite severe. Aftermath of this was stiffness in the hips..even five years later.
November 22 - January 12 30 treatments total (Chemo pump first and final week of treatment) Treatment was suspended for 5 days due to drop in blood counts from chemo. Burned areas during the last days of treatment causing TEMPORARY painful bowel movements and urination. I have just entered the worse of the worst days and can't wait to get through the weekend. Come on Monday!
Start date 28 Jan 2013
30 treatments, from Dec. 16, 2013 to Jan 29, 2014 The usual side effects
I am awaiting chemo/radiation. I had a stroke a week before I was supposed to start and just had gamma knife surgery to correct an avm in my brain. They found an anuerysm ,,, so sheesh, now I have to have that fixed and the ball will get rolling on the chemo/radiation
3rd degree burns on my butt and pubic area.
28 radiation treatments started on 10/27/14. Brutal skin changes (pelvic area) by treatment #7. Last treatments (chemo and radiation) 12/5/14.
side effects; Burn at the radiation site, tiredness, pain.
Scheduled for 28 rounds of radiation daily
32 radiation treatments starting June 6th
Six weeks of radiation, loss of bowel control, skin redness, irritation and peeling, fatigue, increased urinary frequency and burning
Six weeks, June 28 - August 4 - side effects, which included burns, bladder inflammation, diarrhea, and fatigue, really kicked in at the last week of treatment. Over the two and a half years since, side effects have included vaginal stenosis, pelvic stiffness (despite daily exercise) and radiation-induced cystitis. I consulted with a physical therapist for exercises to reduce the stiffness, and wow, do they hurt! Managing the bowels is sometimes a challenge although after nearly 5 years it is getting better. I don't think I ever paid so much attention to my body indicators (certainly not my rear end) before this.
Unknown - just starting out
Radiation began 11/26/12 should end Jan.11/2013. Side effects so far are extreme itching, fatigue, nausea, diarrhea.
7-28-08 began Erbitux infusion every Monday. Every three weeks: Cisplatin and 5FU for 4 days starting Monday, unhook Friday. Continue Erbitux every Monday. 6 weeks plus 4 days daily (5-days per week) radiation to pelvis and anal area. Last 5 days anus only.
10/2011-12/2011 Radiation (loss of hair, shrining of important body parts)
What Bone Cancer Survivors said about their Radiation Therapies.
2002 45 mins a day, 5 days a week, for 6 weeks. Burns
I wanted another baby hopefully if chemo didnt kill my ability
What Eye and Orbit Cancer Survivors said about their Radiation Therapies.
Radioactive plaque 09/09 Extreme tiredness at times, still get that. Sore eye for a short time, nowhere near as bad as I had imagined:)
Plaque brachytherapy - July 2003. Plaque inserted on Friday morning and removed Monday night. Long, long weekend in isolation and having to carry a geiger counter around. Eye was puffy, bloodshot for a long time, painful and vision deteriorated quite rapidly. Now have retinal detachment, pretty lousy vision in that eye and grey areas on the sclera (white of the eye) that may be burns from the cauterisation tool or where the sclera has thinned due to the radiation. Last November (2007), it was noticed that the edge of the tumour is still growing in some areas and I have therefore had to have these treated with Transpupillary Thermotherapy (laser).
What Nose, Nasal Cavity and Middle Ear Cancer Survivors said about their Radiation Therapies.
Radiation therapy starts tomorrow. 33 treatments @ 200 for a total of 6600.
What Nasopharyngeal Cancer Survivors said about their Radiation Therapies.
Radiation given from January to April 20 Side effects: loss of saliva, vomiting, weakness, dehydration, esophagus shrinkage
Started radiation on 11/4/13 after 6 weeks on induction chemo
35 days of head radiation, dramatic weight loss, burned skin, mouth and throat, had peg tub placed.
1st" dec 2002 - Jan 2003 to neck - saliva affected, have little saliva have to clean mouth all the time. 2nd round: Dec 2008 to lump in throat as x-ray showed nodules in both lungs
Meeting with Radiation Therapist on May 3rd to determine how much treatment will be necessary.
radiation therapy ending 5/29/12
What Ureter Cancer Survivors said about their Radiation Therapies.
Linear radiation March to May 2007. Three brachy-radiation treatments in June 2007. Side effects some bowel problems, diarrhea.
What Esophagus Cancer Survivors said about their Radiation Therapies.
Too many radiation treatments to count.
5 weeks of radiation September - October, 2012. Very tired. No burns at all to skin. I did what the doctors/nurses told me to do! Very, very sore throat. Could barely swallow but forced soft foods the entire treatment.
radiation from 11/1/97 to 12/15/97
28 days of radiation
currently undergoing treatments
Two weeks of radiation was fine. Fatigue.
The Radiation burned my throat and cause my taste bud to malfunction I had to be tube fed for about 4 months I will suffer for dry mouth for life I'm told.
Radiation to esophagus and abdominal lymph node March/April 2008 Radiation to supraclavicular lymph node January/February 2009
What Tonsil Cancer Survivors said about their Radiation Therapies.
For details see my posting.
Started radiaton 7/20/09
Had it Twice: Once after the radical neck and again after the radical tonsilectomy
first three weeks we're a breeze until we hit 4th week. she felt nauseous, blisters in her throat,mouth,and then when we hit the 5th week her skin broke open on the outside. from the bottom of her ears, to her chest. this is from june til july 9th 08
Mucositis, discolouration of skin on neck and face, hair loss, weight loss, vomiting, nausea, extreme tiredness, pain in throat, unable to eat or drink properly, bad taste in mouth.
Should start 7/16/2012
35 Radiation treatments January 14th through March 8th 2013
February 25 started 1 of 39 neck radiation. 28 full neck radiations and 11 right side (cancer side) radiation. Mucousitus at 3 weeks. Lost taste and salivary at week 2. Thrush at week 2. Feeding tube at week 3. Took 1 week off (week 5) due to throwing up for 7 days. Could not swallow very early and throat trashed way too early. Couldn't use Caphasol, "Magic Swizzle" numbing meds couldn't get down.
Nerve damage that was painful for several months.
Did excellant from Radiation (33) treatments.
September 5 - 7 weeks
35 IMRT, 3 Cisplatin mega doses, 100 units per time, 6 hour chemos...daily radiation for 7 weeks- weight loss, nausea, hair loss on face and neck, lethargy, lost energy, difficulty swallowing and choking anything thicker than water
start radiation on the 18th
35 daily Radiation Treatments, extreme sore throat at the 3rd week. My biggest challenge was phlem that collected in my throat, causing coughing, sleep deprivation, and breathing difficulties. Lost 32lbs and was put on a G tube and Narcotics as needed, which has been every 4 hours. Lost hair on the back of my head, but that is supposed to come back.
30 radiotherapy treatments starting 7th July finishing 6 weeks later. Grade 3 ulcers in mouth and throat unable to swallow
IMRT 37 treatments which began Jan 17, 2010. Still not sure how I got through it.
Oct 6 thru Nov 18 -5 times a week
I will start radiation on Monday, October 19th, Monday through Friday for seven weeks.
2/3/14 - 3/19/14 : 30 Radiation treatments (Tomo) Too many side effects to list. See post on 3/19/14 for top ten list.
I begin radiation February 20, 2012 for 6 weeks.
6 cisplatin tx, one every Monday, running simultaneously with radiation tx of 27 sessions, all of which ended on 11/14/12. Tolerated chemo well, it was a mild dose. Had Cytoxan in 1991 at age of 32 for systemic lupus nephritis and felt much worse then which was amazing because I'm a lot older now. Radiation did not bother me until 3rd week, at which time I lost my sense of taste. By the end of tx's, I was 103 lbs., but never weighed more than 120 lbs. anyway (i'm 5'6" but very small boned). All in all tolerated ok; it was after tx that I ran into a problem with mucousitis. Yuck.
8 weeks of radiation tx. until April 4, 2011. Bronzing (nice phrase for 2nd degree burns) of neck. N & V. wt loss. loss of job. loss of salivary glands and sense of taste (I miss chocolate)
8 weeks of IMRT, to the neck and throat area, which caused some burning of the skin and temporary loss of facial hair. Dental issues from the radiation on the gums and teeth. Throat closed during treatment, needed a PEG tube installed for feeding for 5 months.
1/8/13 to 2/18/13. IMRT/rapid arc with simultaneous integrated boost. Did ok up till 4th week. lost 20lbs. severe odynophagia and mucositis. had dobhoff feeding tube inserted on last day of treatment due to severe symtoms listed.
Radiation therapy started August 8th. IMRT 7 weeks 5 days a week.
What Endometrial-Uterine Cancer Survivors said about their Radiation Therapies.
Not good with dates...radiation for 6 weeks, 5 times a week for about an hour each day. Still can't eat much fruit, sometimes no fruit for days and days. This still happens, even after 4 years. Probiotics seem to help
Nov-Dec 2014 - 25 days pelvic radiation + 4 x brachytherapy
November 2011-December 2011--25 days; long-term damage to bladder resulted in one week of hospitalization for blood clots, incontinence, extremely painful urination; serious bladder infection; low white blood cell count; burns on skin around hips and upper thighs; serious digestive problems; lost weight; 1 month after treatment had cytoscopy to confirm radiation cystitis; 6 months after treatment am taking Oxybutynin Chloride for ongoing bladder problems; felt pain in flanks during treatment, later problems with knees that come and go.
Don't know yet...
5 sessions of High Dose Brachytherapy will be done between 3rd & 4th chemo sessions (mid-June).
Started 5 weeks of external beam radiation in June of 2008. I had alot of nausea and loss of appetite, painful radiation burns. Damage done to ureters which caused me to have additional surgery in July and August of 2008.
Started pelvic Aug 2, 2009 for 28 days. Finished with no side effects!
Started radiation in mid-June 2009 - 25 treatments are planned
annoyed bowels, extreme fatigue
25 cycles of daily external radiation. June-July 2011
No side effects
30 radiation treatments, five days a week for six weeks
recommended to start in July
Haven't started yet. Need advice.
25 external and 3 internal radiation March - April 2011 horrible burning and pain.
5-6 weeks of radiation planned after chemo is completed
August 14th 29 days and then 2 internal treatments. Side effects irritated skin, diarrhea, less energy.
March 2010 - April 2010 29 external and 3 internal rads. horrible burning, fatigue, diarhea, UTI
25 rounds external, 3 internal, starting in October, 2007, finished in November.
I had several rounds of a newer internal radiation for 3 months following surgery. I felt great each time for the 1st day or two, then became very tired.
Started 4 weeks after chemo. 25 external for 5 weeks. The only effects were bouts of dysentery and pain in the area treated, no skin problems. You feel worse toward the end of the week as it builds up. After #25 I had one internal treatment per week for three weeks. Radiation made me exhausted every day because it's such a grind. Talking to other patients you learn it's quite different for everyone.
Radiation Tx for Vaginal Tumor - 4/20/09-5/5/09 (mom is fatigued, loss of appetite) Radiation Tx for Metastasis on Ribcage - 4/27/09-5/8/09 Mom developed a UTI that went unnoticed - doc said it was normal pain - this delayed her chemo tx.
I just completed 5-weeks of radiation therapy on January 11. Side effects included an annoyed bladder, loose stool, light fatigue.
initially told not need 7/6/09 told raDIATION WILL BE NEEDED WHEN I HEAL FROM MY SECOND SURGERY..MY SURGEON NEVER CHECKED THE NODES WHEN HE DID HYSTERECTOMY I HAD TO FIND A NEW SURGEON AND HAVE LYMPHN NODE REMOVAL 8/6/09 27 NODES REMOVED NO CANCER
What Sarcoma Cancer Survivors said about their Radiation Therapies.
Radiation from November 2010 - January 2011. Radiation burns toward the end, low blood counts, and always tired.
Radiation treatments started February 4 and end on March 23, 2011. My prescription is 66Gy over (7weeks) 33 treatments. Locally, the area being treated hurt pretty bad from being burnt to a crisp, but otherwise I still had lots of energy and I felt great.
1 treatment of Radiation ; in Oct 2008 . Side effects - Horrible burn and pain . Alot of fatigue .
Like having a severe sunburn on the back of my throat. I could not even swallow my own saliva. I lost 30 pounds and became extremely dehydrated.
5 weeks of radiation - feeling tired and extremely fatigued after the sessions were over, radiation burns on back on leg that developed into very painful blisters. Radiation oncology nurse was so caring -- she made up an ointment to use that took away the pain and helped with the healing.
Radiation (Stereotactic Body Radiation Therapy)
Her first doctor didnt do enough or the right kind of chemo....the INSURANCE COMPANY wouldn't pay for the correct treatment.
25 treatments; minor hyperpigmentation towards the end, but very minimal side effects
Radiotherapy for 5 weeks from last week of june 2010. My skin became very sore and a section of it peeled off. My skin has darkened there and has stayed hard in that area.
Radiation everyday for 30 days in March 2012 - a little nauseous, but was monitored for this, so scaring - a breeze compared to Chemotherapy
Radiation I had every day at Palmerston North Hospital for 7 weeks - that was the maximum I could have before it gave me cancer!! Started in early Feb 2009 through until April 2009. I got extremely tired, exhausted with no energy at all! I also got a small radiation burn, but was controlled with creams and ABs.
Still to be determined.
2005 - on L5; 2007 - on L3; 2011 - on left femur & L4
To control size of tumor to right pelvic area
Finished radiation therapy on around December 24, 2010. He had six weeks of radiation therapy, and had to receive treatments five days a week for those six weeks.
I start exact radiation on 6-19-2012 for 6 weeks
December 2012-February 2013 Proton Beam Radiation, Massachusetts General Hospital
What Parotid Cancer Survivors said about their Radiation Therapies.
1st treatment 9/12/12 left jaw in pain from being stretched open and pushed by the mask; by 10th treatment, almost impossible to swallow, even water, because throat is so tight and sore and mouth & tongue are so sore
What Skin Cancer Survivors said about their Radiation Therapies.
could have had radiation but chose Mohs surgery
What Throat Cancer Survivors said about their Radiation Therapies.
IMRT radiation started 11/17/09. Side effects were almost immediate - nausea and tiredness. Not too long before I lost all appetite. Thank goodness I have a PEG tube.
Radiation for 33 times
NONE - Refused radiation on six separate ocassions
April - June 2009 Loss of Taste - most regained Loss of Saliva Production - some regained 35 Exposures Amifostine Injections to the Abdomin each day
Due to having a bit of tumor left, I am waiting to find out if I will need radiotherapy.
April 22nd 2008 through June 4th 2008. It's hell. But you're in a blur of misery. A few months later your a better person, grateful for the blessings you have in life. Still working on regaining my saliva.
Every day, Monday through Friday, starting May 4, 2010. Side effects are extreme sore throat, dry mouth, fatigue, loss of taste buds. Taking pain meds for throat pain. The worst part for Tim is wearing the radiation mask.
Months of radiation that covered both my head and chest area. I no longer have salivary glands and I suffer from dry mouth (xerostomia) -- which means that I drink about a gallon to a gallon and a half of liquid every day. Taste has dramatically diminished and has been altered.
1997 - later side effects - 1999 Thyroid - placed on meds...2005 narrowed carotid artery plus first aspiration pneumonia. 2009, 2011, 2012 three more aspiration pneumonia. Placed on Feed Tube 2012.
33 rads treatments starting January 2009... in which it did not touch the cancer .I had a small burn on throat from rads.
Start date 12-29-14
Started December 14, 2010. Five days a week treatment. Severe oral mucositis and recently the first week of January, 2011 developed chronic skin abrasions on my chin and upper lip area, which made me look a monster! That being treated with bactroban.
TOMO Radiation started Feb 23, 35 treatments that are Mon-Fri until April 12th.
I'm at #17 out of 35. Burning and dry mouth.
What Tongue Cancer Survivors said about their Radiation Therapies.
Seven weeks Jan 4 thru Feb 19, Mon-Fri of TOMO radiation. At the end, severe burnt neck especially my right neck area. Severe sore throat.
Burned neck and throat and burn on neck got infected...my skin peeled, but little scaring
I started My radiation the first week in July and had alot of side effects. Many many sores in my mouth and thrush constantly. Also i was told i was very sensitive to the radiation and had so many sores and burns on my neck. I have a lot of scaring left.
Radiation on neck 5 days a week for five more weekws
Radiation Treatment May of 2012 to June 2012. Mouth was burned from radiation. Lost of taste buds. Fast forward two years. I have taste buds again.
Side affects were hideous.. She experienced a very deep painful burn on her neck.plus a percutaneous endoscopic (PEG)
July 6 Radiation and 1st Chemo begins
60 Grays (Gy) of radiation
Radiation to begin next week, 5 days a week. Began on 8/23/12.
I've already been through IMRT (radiation) for Tonsil Cancer in 2009. So, they can not do radiation to the same part of the body twice.
What Nose Cancer Survivors said about their Radiation Therapies.
Radiation side effects included loss of taste, trouble chewing, sore gums and teeth
What Ear Cancer Survivors said about their Radiation Therapies.
Proton Therapy test
What Jaw Cancer Survivors said about their Radiation Therapies.
Dry mouth, and due to the radiation I have osteonecrosis of the jaw and now in hyper baric chamber treatments so I can have all my teeth removed as they are all falling out on there own.
What Hodgkins Lymphoma Cancer Survivors said about their Radiation Therapies.
Cobalt Radiation on full chest and abdomen area's. I am proud of my 'Tatt's'! One thing that is just part of it all is the Pneumonia and other illnesses that comes from the low immunities can be some of the scariest and biggest battles we face. Too, with every new procedure and surgery, at least for me, my recovery times seem to be much longer. But despite the illness and weakness that chemo and radiation leaves you in ... if you are still breathing it is a gift.
86 treatments of what was referred to as Cobalt 80,full scan and mantle, 1975 & 1976.
I will start radiation after the chemo ends!
After chemo - 3 weeks of radiation was a walk in the park for me! I took up raquetball (not generally recommended by any doctor, other patients etc!)
Radiation therapy (RT), 2000 rads for 22 days, were given to areas of initial bulky disease. (middle of chest cavity)
Declined IFRT radiation therapy
Received 5 weeks of localized radiation to the chest
No never had radiation.
Start treatment on the 25th, chemo is the only treatment on the menu so far.
Haven't started yet
I didn't have an side effects from the radiation!
Radiation in July 2008. I was very fortunate and blessed not to have any side effects from radiation.
radiation was brutal and side effects were phnuemonia
Radiation therapy to field covering the mediastinum and bilateral hilar areas - 180 cGy per day to a total of 1980 cGy over 11 fractions. Radiation to the para-aortic and lumbar fields - 180 cGy per day to a total of 1980 cGy over 11 fractions. (1/30-2/13/92). I had persisting problems with nausea and vomiting throughout much of the radiation but it was reasonably controlled with Phenergan.
What Acute Lymphoblastic Leukemia Cancer Survivors said about their Radiation Therapies.
June 28, 2010-June 31, 2010 - IBR - twice a day for 15-20 minutes a session.
What Bile Duct Cancer Survivors said about their Radiation Therapies.
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