Blog For a Cure

MRI scheduled for May 27

Wed, 16 May 2012 21:41:01 -0700

So my oncology nurse called today and my MRI is scheduled for Sunday May 27. I wasn't told when I'd meet with the Oncologist for the results but one step at a time. Waiting truly is the worse part, time ...

Ryan Kennedy

Wed, 16 May 2012 19:23:38 -0700

I just found this story a few minutes ago, so I'll say now that I know very little details, but it's pretty simple... there is a brave young boy named Ryan Kennedy who lives not more than an hour from ...

Biopsy Results Are In

Wed, 16 May 2012 18:35:27 -0700

I received my post surgical biopsy report yesterday and much to my surprise it was inconclusive. It stated that the specimen did not survive processing. Of course this was very disturbing to learn. I have since learned that this occurs ...

One week post treatment

Wed, 16 May 2012 17:28:25 -0700

My energy level is up but goes down real quick. I have to be real careful about how far I go from the house because once that energy level is gone it's very hard to stay awake. I've been getting ...

My chi is doing the cha cha!!!

Wed, 16 May 2012 16:17:00 -0700

Finished accupuncture session number 2...wonderful! Thanks Val! I love this guy..all of what he does is evidence based..did you know that char on your grilled food is carcinogenic? I learned that today...totally makes me rethink how I grill..he and I ...

The Good, The Bad and The Ugly!

Wed, 16 May 2012 12:41:46 -0700

Continuing with my follow-up visits on the latest cancer findings. On Monday I had a PET/CT scan. I asked to keep my arms down instead of over my head, due to shoulder pain, and was allowed. The scan was like ...

RIP Lori

Wed, 16 May 2012 09:53:56 -0700

My old friend here in houston that has been battling the beast for years finally lost the battle last thursday. She was my biggest emotional supporter here in houston and a main reason i kept trying so hard to stay ...

Almost a year later

Tue, 15 May 2012 21:23:06 -0700

It's been almost exactly a year since my last post here. We've continued on with the good news for Daddy, he's still in the NED stage and goes back for his next CT in October. He's been working ...

Not Exactly what I was hoping to hear...Rad DR

Tue, 15 May 2012 21:20:33 -0700

So, I went and had my 2 week and 1 day follow up with the Radiation Doctor. I did mention the other Radiation Doctor... a few weeks ago did mention it looked like a few hemroids were there now??? ...

Week 14 - One down, one to go

Tue, 15 May 2012 20:11:30 -0700

I had my 3 month post treatmet CT Scan on Friday. I had appointments with the ENT, Radiologist, and Medical Oncologist. The results of all the latest poking and proding shows NED (no evidence of disease). Praise God! ...

One of the Worst Days of My Life

Tue, 15 May 2012 14:30:21 -0700

So, this week has been utterly disappointing. I almost want to scream and vomit everywhere. GVHD flared up really badly, so I'm back on my full loads of Tacrolimus and absolutely disgusting steroids. Only to make matters worse, this afternoon, ...

No more peg tube - YEAH

Tue, 15 May 2012 11:21:04 -0700

PEG Tube is gone! It already feels good not having it. It wasn't bad. Where I went, they put some numzit on the area before they pulled it. It really really hurt when the doc pulled ...

What Cancer Cannot Do

Tue, 15 May 2012 07:42:38 -0700

Cancer is limited. It cannot cripple love. It cannot shatter hope. It cannot corrode faith. It cannot destroy peace. It cannot kill friendship. It cannot suppress memories. It cannot invade the soul. It cannot silence courage. It cannot end eternal life. It cannot conquer the spirit. God Bless

Thanking the Universe

Tue, 15 May 2012 02:21:45 -0700

Through this long process, I've really come to learn that some, even the really close ones can drop like flies when shit hits the fan. On the other hand though, some can get really really really close. I love and ...

What is courage?

Mon, 14 May 2012 23:23:29 -0700

Bravery... courage... what exactly does it mean to be brave? More and more I am realizing that courage is not what we think. Superheroes aren’t brave, they have super powers, it’s easy for them! True bravery is much more complicated. ...

Childhood Cancer Walk

Mon, 14 May 2012 21:17:26 -0700

Hey my fellow heroes! I am doing a childhood cancer walk on June 30. I've formed a team already, 'Team Sarah'... pretty creative, I know! I want to make t-shirts, and need some help with ideas! I want something unique and different. ...

Nita's Tale

Mon, 14 May 2012 19:35:19 -0700

Did not put in my email if you cannot find it, you can reach me at nitastorms@hotmail.com Good luck and keep going! NITA

Finally Eating Somewhat Normal

Mon, 14 May 2012 18:49:55 -0700

Hi, Not sure what happened (maybe I'll give credit to the hypnosis) but this weekend I ate and everything tasted good. Vegies and potatoes used to taste dirty, meat had a funny aftertaste and milk tasted soured. On Saturday, ...

taking food by mouth again! 3 weeks post treatment

Mon, 14 May 2012 17:45:34 -0700

Woo Hoo! half a can of chicken noodle soup and orange soda!And i could taste it kinda..dumbed down soup and soda..but i didnt choke and i didnt throwup..God is in the details! i'm starting to do a little more around ...

Ask Me.

Mon, 14 May 2012 16:45:33 -0700

What it feels like to be cancer free and I'll tell you, IT FEELS AH-MAZING! Because I finally am cancer-free! ...

Happy Mother's Day

Sun, 13 May 2012 11:38:32 -0700

Happy Mother's Day Moms! Have a great day today, you deserve it more than you know! ...and if you are here you deserve it even more! :) Take Care, Jeff

Hair and Mothers Day!

Sun, 13 May 2012 08:57:36 -0700

Happy mothers day to all you wonderful mothers out there! Mothers day really takes on a new meaning for me this year. Cancer tends to make you extremely thankful. On another note, I have been looking for signs that my ...

Today is Mother's Day

Sun, 13 May 2012 06:40:59 -0700

This is my first Mother's day with cancer...and when my kids tell me Happy Mother's day and hug me...I smile then I go in the restroom and sob like a baby..I know that its because of my hormones and all, ...

To all you MOTHERS OUT THERE, remind your kids they will become the parent down the road.

Sat, 12 May 2012 20:46:55 -0700

Happy Mothers Day May your day be filled with joyous memories and time spent with family. May you not reflect too long on how special it is to "still be here" you see because we are all still here ...

Really tired, too much chemo for me?

Sat, 12 May 2012 18:36:35 -0700

Hi Everyone, It's been awhile since I posted. I have had 9 treatments of the 12 recommended of the FOLFOX. Each treatment has taken a toll on me. The first few had me home bound for about 8 ...

recovery

Sat, 12 May 2012 18:23:19 -0700

so my left arm in in this sling to keep me from doing to much since I'm left handed...this is worse than the masectomy. I feel disabled, I know it will pass so I'm being a good girl and ...

Cancer smell

Sat, 12 May 2012 17:55:16 -0700

My dad passed away from cancer a few years ago. While I was taking care of him I distinctly remember a unique odor. Fast forward to earlier this year and my 10 year old Rottweiler has cancer. The odd ...

5 more days

Sat, 12 May 2012 15:03:13 -0700

I'm happy to report that shortly after I posted my last entry, I started feeling better. Those weird moments of headache and nausea are non-existent now. Must've been surgical stress and my body's obvious disapproval of what I ...

FIRST WEEK on TREATMENT

Sat, 12 May 2012 13:05:15 -0700

Hi Everyone, I started radiation and chemo (Mitomyvin and 5 FU) on Tuesday. Felt okay until waking up Thursday morning with the dreaded nausea. Took the anti-nausea medication but it didn't really do much. I have no appetite ...

They finally got there Sh%$@t together

Sat, 12 May 2012 06:46:04 -0700

Well, after another week of waiting for the "TUMOR BOARD" (who knew there was such a thing!) decision that have again concluded that I need surgery, so I am scheduled for Friday the 18th. I would appreciate anyone that ...

Next week's follow up

Sat, 12 May 2012 04:44:10 -0700

Next week I see the oncologist on Monday and the radiation oncologist on Wednesday. On Monday we are supposed to set up an appointment for a scan. I'm looking forward to having it scheduled. I'm not sure ...

Thyroid

Fri, 11 May 2012 22:36:49 -0700

Endocrinologist says I don't have thyroid cancer. He thinks I have thyroiditis (which I learned about back in Feb. during research after the PET lit up). He did an ultrasound in his office. My thyroid isn't normal (he put the ...

Left with questions...

Fri, 11 May 2012 17:01:24 -0700

I guess my first question is what are my odds of beating this when I'm on an immune suppressant for another disease? What can I expect to go through? Since I can't boost my immune system what can I do to help ...

Ok.... Need a little help

Fri, 11 May 2012 15:34:02 -0700

Thought that it may be smooth sailing for my mom after first day of chemo, but alas, it has set in... She is very nauseous and back to not eating. She was given two pre scrips for anti nausea but ...

Happy Mothers Day

Fri, 11 May 2012 13:31:00 -0700

Wishing everyone a Happy Mothers Day this weekend. I hope you get to enjoy the weekend with family. Two years ago yesterday was my operation for my inital cancer so I spent that Mothers Day in the hospital. This year is ...

Chemo #7...done

Fri, 11 May 2012 13:05:09 -0700

Hello my BFAC family, I hope that everyone is well today and ready for the weekend. Well I am down 7 treatments with 5 more to go. I had my portable infusion pump disconnected on Weds morning completing my 7th ...

Back at work.

Fri, 11 May 2012 07:41:57 -0700

I've been back at work for for two weeks now, and each day has its own set of challenges. I work in a shipyard as a gantry crane operator. Two weeks ago when I came back I still ...

Surgery Tomorrow

Fri, 11 May 2012 04:38:50 -0700

Hello everyone I am 12 short hours away from my RPLND surgery and it's all a bit surreal. There are really no words to describe that tomorrow, my life will change. I will be having a major surgery that will change ...

great things to tell.

Fri, 11 May 2012 01:50:46 -0700

I'm awfully sorry that I didn't check in these past weeks, but I had a lot of things that stressed me out and put me under pressure. Not the genetic matter, my family is as tough as myself I guess, so ...