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Chemotherapy

Chemotherapy Description and Side Effects - What Cancer Survivors said about their chemo treatment.





Adriamycin (chemical name: doxorubicin)

  • ACT - A was terrible, T was terrible C is easy
  • Chemo to start Dec. 29, 2008 Radiation begins at week 4
  • An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010: Vincristine PEG-aspariginase Doxorubicin Methotrexate Cytoxan Cytarabine 6-MP 6-TG Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain.
  • lots of dates, spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints. mercaptiprine, is every day, that just gives her a weird rash. methotrexate makes her sleepy
  • Vomiting, hair loss, fatigue, mouth sores, reduced immune function.
  • Methotrexate, Doxyrubicin, Vincristine, Vinblastine, Cytarabine, Etopomide
  • I'm not going to tell you anything you would be shocked by here. I'm bald - and have been for two years. 98% of anything I eat upsets my stomach in some way. I wish I could sleep all the time, but I have a 5 year old little girl, a full time job and a husband so that is possible. Other than that, Cancer sucks, Chemo sucks worse, but we will all get through it, right?
  • Round one: 7 days of continuous chemo. Round two: 5 days of 2 times a day chemo Round three: 2 days of 2 times a day chemo Followed by 3 days of 2 times a day total body radiation.
  • i cannot sleep..i cannot eat..i do vomiting
  • First time I did chemo was on May 2006 and I lost my hair, throwing up, rashes, weakness. Just pure hell.
  • Tremador - First set - daily dose for 3 weeks Not able to continue to the next set. Nausea, weakness, loss of appetite, Sleeping constantly
  • Undergoing chemotherapy in Chennai, India. Started on July 12, 2009. Total 12 doses. Hair loss, vomiting, fatigue, loss of appetite, etc
  • Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
  • 10/05-08/06 adriamyacin, very weak
  • First Chemo 9-8-2008. Side Effects - Pain, joint and bone pain, can't taste anything, headaches, bodyaches and my skin hurts and weight gain from the steroids.
  • 8 rounds - 4 A/C - 4 Taxol Hair loss on 13th day, bone pain from Taxol, rhematoid arthritis outcome
  • 3/03 ~both Adri/Cytoxin together (red devil alright) lost hair~flu-like follicles actually hurt. Taxol = body aches but, milder but harder to explain symptoms. Determined to drink lots of water and not to throw up...didn't. Walked alot after. High stress prepping for infusions. Got a port catheter 3/17...had to put in main vein in my neck other too small... strange to me....still have...
  • I took the course of having chemotherapy prior to surgery. I will not really know the true stage of my cancer.
  • I had my 4 cycles of chemotherapy a month after my surgery and had the neupogen injection.
  • Adriamicin, Cytoxan, Taxol
  • Nausea, vomiting, bad headache, fatigue, mouth soreness, hair loss.
  • 12 rounds of chemo
  • Four months of dose-dense chemotherapy along with a shot of Neulasta after each session.
  • 3 chemos, neo-adjuvant, before surgery, effectively reduced tumor size. 1 chemo after surgery. Side effects: nausea and dizziness.
  • Dec 10- Feb ? 4 sessions 3 wks apart; lost hair after 1st treatment; threw up once, nauseous but controlled by anti nausea meds. Weak, tired, got horrible staff infection. I now have alot of bone and muscle pain
  • I had every side effect in the book! You name it I had it! Gained 20 pounds on the steroids.
  • may 4 2008,nausea,and alot of hand pain
  • Started chemo in May 2009, got a port so my viens are still good. Adriamycin: fatigue, hair losse, nausea, constipation. Taxol: PAIN, fatigue, chemo brain, PAIN.
  • 4 rounds of AC and 4 rounds of Taxol every 2 weeks from 3/4/2010 - 6/17/2010...just miserable! Landed in the hospital with neutropenia for 4 days.Mouth sores were the worst! Lost 10 lbs because of that. SO glad to be finished but still feeling the effects. Blah!
  • AC dose dense,then taxotere all for 5.5 months.Lots of lousy side effects you name it I had it!
  • 1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
  • Hair loss Fatigue mouth thrush low blood counts infection/ fever
  • Well, chemo sucks. What can I say? I had 8 heavy duty treatments, spaced 3 weeks apart. The first 3 were AC, the next 4 were Taxol. It kicked me in the butt, but I never threw up!
  • 5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared. Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half.
  • Started Adriamycin/Cytoxan on 6-4-09 dose dense. (1 dose every 2 weeks for total of 4 doses.) Felt fatigue, stomach upset,hair loss. Started Taxol 7-30-09 dose dense (1 dose every 2 weeks for total of 4 doses.) Felt achey, tired and depressed, hair loss.
  • 4 cycles dose dense Doxorubicin and Cyclophosphamide, then 4 cycles dose dense Paclitaxel to start 12/09/08
  • I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
  • To begin June 12th
  • 4 rounds of Adriamycin and Cyclophosphamide together every 2 weeks. I am done with those 4 rounds. 4 rounds of Taxol every 2 weeks I have 3 rounds left.
  • 4 treatments 1 every 2 weeks started late March-May 2008
  • high dose 1995
  • Oral Chemo (Xeloda) - 7/07 to current weight gain, tenderness in hands and feet, fatigue, irritability, feeling full; dehydration
  • Started AC on 12/12/07. That was fine. Had a reaction to Leukine (sp) now I'm Neupagen daily. No problems there.
  • Started first round of AC on June 12th....will continue 3 more rounds and then on to Taxol.
  • TAC protocol. 6 rounds every 3 weeks. I refuse most of the pre medications (unless I need them) and ended up not needing any side effect meds my last 2 rounds. I'm having a great reaction to the chemo and my doctor is impressed with how I am weathering each round of chemo. He is shocked that my White and Red Blood cells are doing so well and I ended up being able to navigate the nausea without medications - which means no constipation!!! The side effects range from liberating (no hair, chemo brain, slowing down, other people cooking for me) to pain-in-the-ass (constipation from the zofran, hungry from the steroids, no nose hairs, sensative gums, run over with a truck feeling from the neulasta) to the hysterical (I'm really good at the 'Old Man from Flordia Suffle' while I wait for my WBC and RBC to come back on line!)
  • 6 treatments 4/07 to 10/07 Fatigue, hair loss
  • Adriamycin/Cytoxan each 2 weeks for two months, then abaxane weekly for 12 weeks. Radiation follows with 35 treatments.
  • 4/2009 Abraxane and Carboplatin 9/2009 Taxol and Avastin had an allergic reaction at the end of the run of Carboplatin Avastin caused my blood pressure to increase sharply, so it was discontinued
  • Chemotherapy 4 X AC - side effects - extreme nausea, hair loss, fatigue. Neulasta - bone pain. Chemotherapy 4 X Taxol - Peripheral neuropathy, nausea, bone pain, loss of balance, extreme fatigue, hair loss, low blood platelet count.
  • 4x AC then 4x Taxol.
  • Started chemo June 8 2006 and finished up Sept. 28. 2006. Side effects weren't to bad. Just did what I was suppose to so I wouldn't have many.. Biggest side effect.. Baldness but I got through that too.
  • Last Chemo was May 23 2007. Cyclo/Adri/Taxol. Lost 22 pounds. Very Weak, and my bones ached bad. Taste and smell was horrible. All is well now. Gained the weight back! darn.
  • Jan 22/08 *Just Started CAF (Cytoxan,Adriamycin,Fluorouracil-5-FU) dose dense - 2 week x 4 cycles. *Taxol + Herceptin for 6 to 8 months
  • Chemo caused hair loss, bloody noses, fever, muscle pain, tingling and numbing, and nausea. And the shot gave me bone pain.
  • They removed all my teeth because they said the chemo and radiation would kill their roots. I went through 5 cycles of the red devil and 10 taxol. I am still on femara
  • Began Adreamycin/Cytoxin on Aug 30, 2007.Completed my last dose of Taxol on Jan. 30, 2008. My main side effects were the exhaustion and mouth ulceration and neuropathy in my toes and fingers with the Taxol.
  • Infusion #1 - 09-22-09. Severe joint pain in lower back, knees, and ankles. Intense nausea. Infusion #2 - Intense nausea. Severe joint pain. Darkening of my fingernails. Severe headaches. Infusion #3 and #4 - Intense nausea lasting my entire two week cycle. Headaches. Continued darkening of my nails. Taxol infusions #1-12 - Slow physical changes to my finger and toe nails, intense nail bed pain which has been cumulative. Big drop in counts at infusion #10, nausea, fatigue.
  • First chemo session on 8/26/09 almost killed me...second session on 9/16/09 virtually no side effects other than no taste.
  • Began chemotherapy in 3'06. Side effects were mouth sores, nausea and vomiting. Bone pain, neuropathy in fingers and feet. Nail beds turned black.
  • Dec. 19 2003 - Feb. 27 2004. First-line, dose-dense chemo. Taxotere, Cytoxan and Adriamycin. Horrible horrible horrible. Felt godawful (aching fatigue unrelieved by sleep, and absolutely no energy) for years afterwards. I don't think I'd do it again.
  • The 4 "red devil" treatments were the worst & those neulasta shots! I had an allergic reaction to Taxol. Really bad! So they switched me to Tacrete. Easier to handle physically but took longer in between chemos.
  • Adriamycin/Cytoxan/Taxotere P.O. 1st Treatment 10/16/06
  • It was called cef (which is cefuroxime, epirubicin, and cyclophosphomide). It is used only in a couple of Canadian provinces as it is very expensive.
  • 6 treatments from March 3, 1994 to June 29, 1994. Started with Taxol Study. Received high-dose Cytoxan 3980 mg and Adriamycin 74.6 mg for 2 cycles. Except for the 1st and the last, blood transfusions were required after every treatment due to low hemoglobin. I developed a blood clot in my right arm shortly after the first blood transfusion in April and had to be hospitalized and put on coumadin for 3 months. Had to be taken off Taxol Study because I could not take high-dose Cytoxan/Adriamycin and Coumadin. I was given Cytoxan 995 mg, 5-FU 995 mg and Adriamycin 99.5 mg for the next 4 treatments. The Adriamycin damaged my heart muscle. Other side effects were nausea, some vomiting, sores in mouth, diarrhea, heartburn, fatigue and complete loss of all hair. 6 treatments from January 20, 2006, to June 2, 2006. I was given a CMF combination of 1200 mg of Cytoxan (Cyclophosphamide), 80 mg of Methotrexate and 1200 mg of Fluorouracil (5-FU). This bout with chemo was much easier than the first. I also had a blood clot in my lung in February, 2006, and was hospitalized for 7 days and put on coumadin for 18 months. Other side effects were minor nausea, fatigue, sore mouth, minor diarrhea and only thinning of my hair. I don't know which one but one of the chemo drugs damaged my right eye and I am still having problems with it. The worst thing to happen was the death of my husband and my boston terrier dog in May during this bout of chemo.
  • Chemo started 1/2. Four treatments with the last one being 3/10. Severe allergic reaction to the Taxol landed me in the hospital in February after the second treatment. Had to stop Taxol and go on adriamycin instead with fewer side effects.
  • Will start Chemotherapy Sept. 28, 2007. Six courses then radiation six weeks. Will be on Adriamycin, Taxotere, Cytoxan
  • Pending. I have only been told of what the drugs of choice will be and I can plan on being bald.
  • NOW ON ABRAXANE AND AVASTIN CHEMO SIDE EFFECTS WEAKNESS, FATIGUE, PERIPHERAL NEUROPATHY , NAILS PEELING OFF FINGERS, NOSE BLEEDS - ALL SOUND BAD BUT ARE TOLERABLE
  • Port-a-cath installed in May. What a joy that was! First of 4 treatments of cytoxin & adriamycin started the last of May. Loved that "dangerously red cocktail" called adriamycin. Sinuses were & still are all messed up from cytoxin. Neuropathy in hands, feet & legs to this date (2-09). Thankful for neurontin and cold sheets feel so good. Will it ever leave me in peace? Scalp got sore & out came the hair on Father's Day Happy Father's Day, Troy! We went out to our deck after church & 14 year old daughter cut & hubby shaved. POOF! No nausea thank God for Zofran!! I felt better during & right after chemo (Aug '05)than I do now. What's up w/that?! So, I deal as best I can.
  • December 2000 every 3 weeks for 6 months nauseus, hair loss, headaches etc. December 2007 every week, then every 3 weeks for 16 months nauseus, hair loss, nuropathy, headaches, etc
  • ACT therapy- alot of bone pain; nausea; extreme fatigue. Currently experiencing neuropathy from Taxol.
  • treatments spanning over 4 months. Felt poisoned and beat up the entire time.
  • Sysplatin that almost killed my it caused my kidneys to shut down. I cause me to become completely dependent on others. I didn't spell the Chemo right but it sounded like that. I don't know what the fed me after I was released from the hospital.
  • Started my chemo on Sept 11th of 2008. I have to complete seven cycles. I receive cisplatin and adriamycin on the first day of treatment along with other pre-meds such as decadron and emend. Second day of treatment I receive Taxol and the following day I go back in to get a injection of neulasta.
  • Chemo start date 7/15/09 - Doxil infusion with Ativan and Compazine every 21 days...that was "potponed". Chemo, once started, was be Doxorubicin and Ifosfamide - 4 days of 24-hour infusions. Mom was having delirious thoughts from the chemicals, they took her off of food - the doc said she "had enough fat on her" to get by without food. She was in and out of sleep from the sedatives in between chemo.
  • ABVD- nausea, fatigue, wooziness, thinning hair ICE- nausea, fatigue, wooziness, total hair loss, bleeding gums and mouth sores GND- some fatigue, mouth sores
  • ABVD - six 4-week cycles (June-November) Prednisone Procarbizine
  • April 6th 2009 - Initial chemotherapy at the hospital. The immediate effect on the swollen nodes blew my mind. It was almost all gone 48 hours later. Several others that are chronicled in my blog.
  • ABVD, hair loss, night sweats, depression, low white blood count, prone to bacterial infections.
  • Started Chemotherapy (ABVD) on 30th March 2010. Found that the side effects of consist of bad heartburn & indigestion for a few days after chemo. My hair started to fall out about two weeks later and has slowly been falling out ever since, but not bald yet! Have had to give up fizzy drinks and spicy food, two thinks I enjoy. Unfortunately they cause uncomfortable consequences, like bloating, passing a lot of gas, nausea, heartburn, the list goes on.
  • ABVD: 8 Cycles (16 total treatments)
  • ABVD for 6 cycles (12 treatments). Was quite well tolerated, tired for a few days after, hair loss, mild nausea but no vomiting, changes in bowel motions, mild rash on feet and arms, aching veins. MADEC (methotrexate, cytosine, dex, etoposide, cyclophosphamide) for 2 cycles, one week of chemo in hospital, 2 weeks to recover then repeat. Fatigue, mild nausea, hair loss. BEAM (carmustine, etoposide, cytosine, melphalan) prior to stem cell transplant. Have only just started this today, had carmustine and so far all good but I know this will change.
  • 4 Cylces (8 treatments) beginnning March 12. Second Session March 26, April 9th, April 23rd, May 7th, May 21st, June 4th and lastly June 18th!
  • Brutal! I was sick (mostly fatigue, headachey, flu type symptoms) for a week after treatments, would get my energy back the second week and then start the cycle all over again!
  • 4 cycles of chemotherapy ending in late August, radiation to follow depending on how the cancer responds.
  • I am having ABVD. Side effects: nausea, fatigue, hair loss, constipation, bone pain, fever, infection...
  • ABVD treatment; my nausea was well-controlled with prescriptions, but I was often tired in the days following chemo. I went every other Friday so I could recuperate over the weekend and be ready to go back to school on Tuesday.
  • ABVD, started Feb. 13, 2009.
  • 1 chemo treatment a week for the 7 weeks beginning on May 9, 2006 till June 29, 2006. No side effects
  • 6 treatments of R-CHOP, 3 weeks apart.
  • Hyper CVAD, March through September 2007
  • Chop 2002 Cop with Rituxan 2008. Hair loss, numbness (not bad this time), fatigue, insomnia from Prednosone.
  • R-CHOP
  • R-Chop, eight sessions one every 3 weeks. Side effects: nausea, loss of appetite, some muscle aches, hair loss, effected my eye sight - had to wear eyeglasses since the 4th chemo.
  • R-CHOP 08/2008-12/2008 R-ICE 01/2009 ESHAP 02/2009-03/2009 BEAM 05/2009
  • R-CHOP 21 Round 1, July 19, 2010 (extreme drop in blood pressure, shortness of breath, chest pressure, swelling of hands, feet and face)
  • 4/2007-7/2007: 6 cycyles of EPOCH (Etoposide, doxorubicin, cincristine, prednisone, and cycolophosphamide). Side effects include hair loss, nausea, diahrrea, neutropenia, weight loss, mouth sores, and more
  • R-CHOP starts 8/26/10
  • 2004.-I received quimo scheme CHOP (ciclosfamida -Vincristina -Adriamicina - Prednisona. 2006.- 2nd. line of quimo. with scheme ESHAP: Etoposido - Platino - Ara-C-Dexametasona
  • sickness, weakness, no appetite, lived off cereal, and jello for a week, no taste,increase in smelling sense was intense 12/24/2005 was the first treatment.
  • Rituxan 2001, Rituxan CHOP 2002, Rituxan 2003, TRM-1 (clinical trial) 2004-2005, Rituxan/Doxil 2006-2007. I have never reached a remission "yet" still hopeful!
  • Mar.2007-taxol & carboplantinum (8 treatments) July 2008-taxol & carboplantinum (7 treatments) The first 2 rounds left me weak, loss of hair, nausea and vomiting Oct 2009-Doxil for six months. Side effects not so bad
  • Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin

Carboplatin

  • Taxol and Carboplatin May 2003-November 2004
  • Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
  • Temodor- 5 days on, 21 off- October 2009- June 2010 Avastin- Every 15 days- July 2010- Present Carboplatin- Every 30 days- July 2010- Present
  • Sep-feb--The oncologist said it would be " hard going"--that would be one word for it.
  • See Surgery Description
  • Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes. I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite. I started Tykerb in Feb 2009. I will continue with Herceptin for at least 7 more months after surgery.
  • 4/2009 Abraxane and Carboplatin 9/2009 Taxol and Avastin had an allergic reaction at the end of the run of Carboplatin Avastin caused my blood pressure to increase sharply, so it was discontinued
  • Taxol, 5FU, Carboplatin, Avastin, Tarceva (withdrawn).
  • Chemo 6/21/10, 7/12/10, 8/2/10 - nausea, fatigue, bone & joint pain, diarrhea, neuropathy; scheduled for 3 more rounds
  • Carboplatin - my first treatment of chemo (started 2th of august 2010), no side effects so far (lucky me), gives good hope for second (heavier) chemo combined with radiation therapy
  • Four treatments, most recent on 4 August, #5 scheduled for 25 August. Side Effects - minor nausea, extreme fatigue, loss of appetite and sense of taste and smell. carboplatin and Alimta (pemetrexed)for #'s 1-4. Provider stopped shipments of carboplatin so #5 and any remaining will be only the Alimta.
  • chemo fog.
  • carbo/taxol only effect has been being tired!! Verty low white cell counts, had to receive one transfusion, other wise has handled it well.
  • Taxol+Carbo every 3 weeks, Taxol every week. Started March 2010. Hair loss, feeling tired.
  • First chemo carbo/taxol on May 7th. so far, a bit of joint and bone pain, nothing else
  • Carboplatin 08/06/2010. Mild Fatigue. Carboplatin 08/26/2010. Radiation recall.

Cisplatin

  • Taxol/Carbo IV 2 rounds 21 days apart Taxol/Cispatin IP 8 rounds done day 1 day 8
  • 12/7-10. Not too sick alot of mouth sores and counts were drastically low hospitalized 12/15 with new oncologist
  • 5FY and cisplatin
  • 2 treatments of Mitomyicin and 2 4-day (24 hour pump) of 5-FU Started 8/31/2010
  • Undergoing chemotherapy in Chennai, India. Started on July 12, 2009. Total 12 doses. Hair loss, vomiting, fatigue, loss of appetite, etc
  • See Surgery Description
  • preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU.
  • Oct 8th- January 13th, 2010 Lost Hair after 21 days. Fatigue, dry mouth, muscle cramps that were very painful after 1st treatment. terrible rash on my head and neck the whole time I was taking chemo.
  • Cisplatin (40 units) every Monday for five weeks, beginning April 26, 2010. Hair thinned; veins hardened; steroid acne; acid reflux; turned yellow after treatments (that was odd).
  • i was put to sleep with benegril
  • Paclitaxel, Cisplatin, Bevacizumab, Avastin
  • June 10 2010 June 15 2010- Side effects I am experiencing now: Mouth sores, joint pain, nausea and vomitting, rash on abdomen, hair loss, fatigue, headache, teeth sensitivity, dark circles under eyes, blisters starting from radiation.
  • Oct 07 to Dec 07 - Cisplatin chemo 1x a week with radiation;. Constant terrible nausea, very sensitive to tastes and smells. Ate only carbs, couldn't even stand the smell of my dog! Everything nauseated me. Aug 08 to Dec 08 - Carboplatin and Paclitaxel every 3 weeks x 6 doses. Hair gone by 2nd treatment, fluid overload on chemo days due to drugs being hard on kidneys - had to flush. About 2-3 days post chemo, horrible bone pain, numbness and tingling in hands and feet (peripheral neuropathy) and constipation that almost hospitalized me. Would last for a week or so and then settle down. Horrible fatigue, felt like lead. My hair started coming back really quickly after treatment stopped,but the neuropathy lasted almost a year, fatigue continues to be a problem. UPDATE Feb/10: Going back for another 6 rounds of the not so pretty poison. Carbo/Taxol once again. Gonna miss my hair...oh yeah, and the ability to feel human!
  • 5 treatments of Cisplatin
  • Started in July 2009 was suppose to have every 2 weeks, but blood count went down so had to push out either 3 or 4 weeks. I hurt from my head to my toes the week of chemo, and then after that started gradually getting better. Neuropothy in hands and feet. Should go away eventually. Finished chemo Feb. 11, 2010.
  • I had my 1st chemo treatment on 12/10/07. If cancer cells remain, they are microscopic and floating around in my body and being ZAPPED by chemo! I qualified for a trial and receive Erbitux (usually for metastatic cancer) every week (which causes acne). The nausea is gone for now, mouth sores are fading, and acne is blossoming. The Oxilaplatin will be decreased next time due to the mouth sores. It also causes Neuropathy.
  • felt sick all the time, metal icky taste, neuropathy, ruined joints >:( bone pain
  • I have just completed round one. So far Im just getting nauseous and tired with no energy.
  • R-CHOP 08/2008-12/2008 R-ICE 01/2009 ESHAP 02/2009-03/2009 BEAM 05/2009
  • 3 total - week one - week three and week five easy to do - no issues during treatment lost my beard and hair - so I shaved it short to look like I did it on purpose - wore a crocheted cap - head was always cold.
  • intraperitoneal taxol and cisplatin, 6 - 10/06 (heinous, too long to describe); HIPeC something-or-other intraoperatively 10/07 (really ghastly); IV carboplatin and gemcytabine, 2 - 5/08 (some hair loss, fatigue); sunitinib clinical trial 2/09 (painful hands and feet, fatigue); doxil, 3/09 (fatigue); taxol and carboplatin 5 - 9/09 (hair loss, fatigue, neuropathy, tinnitus); Avastin 10/09 to present (runny nose)
  • Taxol and Carboplatin - 6 rounds beginning August 2010. Side effects included body/joint pains/aches, loss of hair, itchy skin, constipation, headaches.
  • July - November 2008: 6 rounds IP Cisplatin and IV taxol. Side effects: You name it, it happened... hair loss, nerve damage, mouth sores, drop in red blood cells which required a transfusion, high creatin, low magnesium and potassium, diarrhea, constipation... I still blame the nurse for not making sure my dexamethosone was added to the chemo! Next Monday I start 6 rounds of IV Carboplatin and Doxil.
  • July 24,2009 first treatment taxol and carboplatin. The only problem I had was my own fault. I got sick that night because I came home and ate stewed tomatoes and chased it down with a Pepsi! Big mistake because I quickly learned that Chemo and acid DON'T mix. Treatments 2,3, bought feet itching, loss of smell and taste. Treatment 4 was not to bad slight big toe bleeds but manageable, slight problem with vision seeing bright white spaces from within my eyes. Treatment 5 I had a mouth bleed, neuropthy more consistant. Treatment 6 manageable but eyes still have the spots. Neuropthy worsens, still itching.
  • Bleomycin, Etoposide, Cisplatin (BEP) 4 cycles Side Effects: Blood clots, low blood pressure, fever, neuropathy, vomiting, nausea, hair loss, weight loss
  • My husband had 4 cycles of chemo. Aug 2005-Dec 2005. Son is having 3 cycles. Started 8th June 2010... next cycle 28th June 2010. Both lost hair.
  • February - June 2009 Taxotere Cisplaten 5FU
  • Months of daily treatment with both Cisplatin and Herbitux -- major side effects included a rash that covered me from head to toe, skin that was so dry that my scalped split open and bled when I vomited (which I did several times each day). Further side effects included hallucinations, tremors, chills, hot flashes, disturbed sleep patterns, fever, loss of hair, etc.
  • May 7, May 14, May 24. (Now scheduled for June 1, 8 and 15). Side effects are fatigue and nausea. Taking anti-nausea meds. Worst part is we can't keep enough fluids in him to flush out the toxins due to chemo. We're told this is more common in throat cancer where food and fluids are taken through a feeding tube. Starting to lose patches of hair.
  • Dry Mouth. Lost body hair, Sick at stomach, weight loss.
  • It seems that my side effects (nausea, tiredness) start a couple days after treatment. Emend and Zofran seem to be helping.
  • 1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss) 2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment. 2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course 2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course.
  • Set for July 6 and July 21
  • Three Cisplatin doses, Jan 4, Jan 26, Feb 16. Never got the Feb 16 dose as I was too sick from throwing up.
  • 3 cisplatin treatments, concurrent with radiation treatments
  • 3 heavy does of cisplatin thankfully no hair loss or sickness just some constipation which was a pain oh and some weight loss
  • 8 weeks of single dose of cisplatin...loss of taste, luckily I was on a PEG tube. I would strongly recommend the PEG to assue that enough protien uptake to support proper healing
  • yes, cisplatin treatment was needed as the lymph node in right neck lump broke through the cell wall; attempted 3 chemo treatments {large doses} every 21 days followed by 2 days of 2 hour treatments of iv saline soutions to wash out the chemo and lessen its effects on my kidney, though my body had too intense side effects..the chemo treatments changed to weekly for remaining 7 weeks with smaller doses of cisplantin
  • 2 Full Week Doses (M-F) No Comment - Hated it, especially during radiation.
  • Cetuximab - Brand name: Erbitux - April 1, 2010 - so far just really really tired. I was told later a rash and other stuff could happen. ( 5/1/10 - rash did appear including itching. Scalp was the worst. Lying down felt like pins sticking my head. I was told if not rash, med is not working. After they know it was working, I got med to help the rash and itch.)
  • Cisplatin gave my husband ringing in ears but much better now. Had complications each time after a chemo. Was hospitalized twice for them.
  • 1st one today 26-April-2010 Slight nausea, headache and heart burn so far so good 2 more to go 3 weeks apart
  • after 1 chemo treatment I don't feel any reaction as of yet. Next treatment July 14.
  • Low-dose chemotherapy (Cisplatin) coincided with radiation, 1 day per week, beginning December 7, 2009 and ending January 25, 2010. Side effects included nausea, fatigue, weakness, depression, low blood counts, increased age in appearance, loss of some hearing in the higher frequency range and tinnitus (ringing in both ears).
  • Chemo (Cisplatin) is anticipated to begin the second week in July. Treatment plan will include 6 chemo sessions (2 sessions every 21 days). Will complete chemo concurrently with radiation.
  • Had 3 different types of chemo, 24 hours per day for 7 days. Side effects. Loss of hair, none that I can really speak of.

Cyclophosphamide (brand name: Cytoxan)

  • ACT - A was terrible, T was terrible C is easy
  • An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010: Vincristine PEG-aspariginase Doxorubicin Methotrexate Cytoxan Cytarabine 6-MP 6-TG Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain.
  • lots of dates, spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints. mercaptiprine, is every day, that just gives her a weird rash. methotrexate makes her sleepy
  • Vomiting, hair loss, fatigue, mouth sores, reduced immune function.
  • Methotrexate, Doxyrubicin, Vincristine, Vinblastine, Cytarabine, Etopomide
  • Round one: 7 days of continuous chemo. Round two: 5 days of 2 times a day chemo Round three: 2 days of 2 times a day chemo Followed by 3 days of 2 times a day total body radiation.
  • i had three induction therapies spaced about 6 months apart. and just completed two consolidation therapies. i am preparing for a bone marrow transplant.
  • chronic vommiting ,hair loss tiredness
  • i was supposed to get 8 chemo's. but i only received 7 because my blood count wasn't up in time. i had "Vincristine" (iv)every week. Cyclophosphamide(iv)every 6-8 weeks. Cisplatin (iv), every other chemo, and Lomustine (pill) every chemo.
  • 4/2009 Abraxane and Carboplatin 9/2009 Taxol and Avastin had an allergic reaction at the end of the run of Carboplatin Avastin caused my blood pressure to increase sharply, so it was discontinued
  • I took the course of having chemotherapy prior to surgery. I will not really know the true stage of my cancer.
  • I had my 4 cycles of chemotherapy a month after my surgery and had the neupogen injection.
  • Cytoxan and taxotere
  • Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes. I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite. I started Tykerb in Feb 2009. I will continue with Herceptin for at least 7 more months after surgery.
  • 3/03 ~both Adri/Cytoxin together (red devil alright) lost hair~flu-like follicles actually hurt. Taxol = body aches but, milder but harder to explain symptoms. Determined to drink lots of water and not to throw up...didn't. Walked alot after. High stress prepping for infusions. Got a port catheter 3/17...had to put in main vein in my neck other too small... strange to me....still have...
  • Adriamicin, Cytoxan, Taxol
  • Nausea, vomiting, bad headache, fatigue, mouth soreness, hair loss.
  • 12 rounds of chemo
  • September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months.
  • Four months of dose-dense chemotherapy along with a shot of Neulasta after each session.
  • 3 chemos, neo-adjuvant, before surgery, effectively reduced tumor size. 1 chemo after surgery. Side effects: nausea and dizziness.
  • I had every side effect in the book! You name it I had it! Gained 20 pounds on the steroids.
  • AC dose dense,then taxotere all for 5.5 months.Lots of lousy side effects you name it I had it!
  • Hair loss Fatigue mouth thrush low blood counts infection/ fever
  • 4 rounds of AC and 4 rounds of Taxol every 2 weeks from 3/4/2010 - 6/17/2010...just miserable! Landed in the hospital with neutropenia for 4 days.Mouth sores were the worst! Lost 10 lbs because of that. SO glad to be finished but still feeling the effects. Blah!
  • Well, chemo sucks. What can I say? I had 8 heavy duty treatments, spaced 3 weeks apart. The first 3 were AC, the next 4 were Taxol. It kicked me in the butt, but I never threw up!
  • 5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared. Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half.
  • Started Adriamycin/Cytoxan on 6-4-09 dose dense. (1 dose every 2 weeks for total of 4 doses.) Felt fatigue, stomach upset,hair loss. Started Taxol 7-30-09 dose dense (1 dose every 2 weeks for total of 4 doses.) Felt achey, tired and depressed, hair loss.
  • 4 cycles dose dense Doxorubicin and Cyclophosphamide, then 4 cycles dose dense Paclitaxel to start 12/09/08
  • 6 cycles chemotherapy begining 11/12/07 complete hair loss, mouth sores, black nail beds, weight gain, inflamation, fatique, everything tastes like lead. Joint pain from Neulestra shot.
  • To begin June 12th
  • 4 rounds of Adriamycin and Cyclophosphamide together every 2 weeks. I am done with those 4 rounds. 4 rounds of Taxol every 2 weeks I have 3 rounds left.
  • 4 treatments 1 every 2 weeks started late March-May 2008
  • six rounds of CMF three weeks apart. commenced in December 2005 and completed in March, 2006
  • Taxotere & Cytoxan. Had violent allergic reaction to taxotere during treatment #2 on Dec. 10. This one wiped me out.
  • high dose 1995
  • chemo from march to july 2nd, 6 rounds every 3 weeks, cytoxin and taxotere. Tired, sick, runs, constipated, welts, nothing tasted right for weeks, tired, legs tired quickly, couldn't sleep, palpitations, achy, out of sync, chemo brain, neuropathy in toes, mouth sores, dry skin, lost all, ALL of my hair, itchy, irritable, weepy, mad at everyone, depressed, outlasted all of it.
  • Started AC on 12/12/07. That was fine. Had a reaction to Leukine (sp) now I'm Neupagen daily. No problems there.
  • Started first round of AC on June 12th....will continue 3 more rounds and then on to Taxol.
  • TAC protocol. 6 rounds every 3 weeks. I refuse most of the pre medications (unless I need them) and ended up not needing any side effect meds my last 2 rounds. I'm having a great reaction to the chemo and my doctor is impressed with how I am weathering each round of chemo. He is shocked that my White and Red Blood cells are doing so well and I ended up being able to navigate the nausea without medications - which means no constipation!!! The side effects range from liberating (no hair, chemo brain, slowing down, other people cooking for me) to pain-in-the-ass (constipation from the zofran, hungry from the steroids, no nose hairs, sensative gums, run over with a truck feeling from the neulasta) to the hysterical (I'm really good at the 'Old Man from Flordia Suffle' while I wait for my WBC and RBC to come back on line!)
  • 6 treatments 4/07 to 10/07 Fatigue, hair loss
  • Chemotherapy 4 X AC - side effects - extreme nausea, hair loss, fatigue. Neulasta - bone pain. Chemotherapy 4 X Taxol - Peripheral neuropathy, nausea, bone pain, loss of balance, extreme fatigue, hair loss, low blood platelet count.
  • Started chemo June 8 2006 and finished up Sept. 28. 2006. Side effects weren't to bad. Just did what I was suppose to so I wouldn't have many.. Biggest side effect.. Baldness but I got through that too.
  • Last Chemo was May 23 2007. Cyclo/Adri/Taxol. Lost 22 pounds. Very Weak, and my bones ached bad. Taste and smell was horrible. All is well now. Gained the weight back! darn.
  • Adriamycin/Cytoxan each 2 weeks for two months, then abaxane weekly for 12 weeks. Radiation follows with 35 treatments.
  • Jan 22/08 *Just Started CAF (Cytoxan,Adriamycin,Fluorouracil-5-FU) dose dense - 2 week x 4 cycles. *Taxol + Herceptin for 6 to 8 months
  • Six rounds. Finished in April 2010.
  • I had Cytozen(I remember it burning badly)I had three months of chemo before surgery, and three months after surgery, total of six months,side effects nausea, fatigue, mouth sores hair loss
  • Chemo caused hair loss, bloody noses, fever, muscle pain, tingling and numbing, and nausea. And the shot gave me bone pain.
  • Started chemo just before Christmas of 2009. Was given cytoxin and taxotere. Extreme fatigue, nauseousness, no tomato foods first few days after chemo, and no burning food allowed in the house! Had my last chemo February 20. Took 2 months FMLA during chemo. Early chemo-induced menopause.
  • 6 Treatments - 3 week cycle 3 - FEC 3 - Taxoteer Sept. 7, 2006 through Dec. 21, 2006
  • Began Adreamycin/Cytoxin on Aug 30, 2007.Completed my last dose of Taxol on Jan. 30, 2008. My main side effects were the exhaustion and mouth ulceration and neuropathy in my toes and fingers with the Taxol.
  • Infusion #1 - 09-22-09. Severe joint pain in lower back, knees, and ankles. Intense nausea. Infusion #2 - Intense nausea. Severe joint pain. Darkening of my fingernails. Severe headaches. Infusion #3 and #4 - Intense nausea lasting my entire two week cycle. Headaches. Continued darkening of my nails. Taxol infusions #1-12 - Slow physical changes to my finger and toe nails, intense nail bed pain which has been cumulative. Big drop in counts at infusion #10, nausea, fatigue.
  • 4x AC then 4x Taxol.
  • First chemo session on 8/26/09 almost killed me...second session on 9/16/09 virtually no side effects other than no taste.
  • Began chemotherapy in 3'06. Side effects were mouth sores, nausea and vomiting. Bone pain, neuropathy in fingers and feet. Nail beds turned black.
  • Dec. 19 2003 - Feb. 27 2004. First-line, dose-dense chemo. Taxotere, Cytoxan and Adriamycin. Horrible horrible horrible. Felt godawful (aching fatigue unrelieved by sleep, and absolutely no energy) for years afterwards. I don't think I'd do it again.
  • The 4 "red devil" treatments were the worst & those neulasta shots! I had an allergic reaction to Taxol. Really bad! So they switched me to Tacrete. Easier to handle physically but took longer in between chemos.
  • It was called cef (which is cefuroxime, epirubicin, and cyclophosphomide). It is used only in a couple of Canadian provinces as it is very expensive.
  • 6 treatments from March 3, 1994 to June 29, 1994. Started with Taxol Study. Received high-dose Cytoxan 3980 mg and Adriamycin 74.6 mg for 2 cycles. Except for the 1st and the last, blood transfusions were required after every treatment due to low hemoglobin. I developed a blood clot in my right arm shortly after the first blood transfusion in April and had to be hospitalized and put on coumadin for 3 months. Had to be taken off Taxol Study because I could not take high-dose Cytoxan/Adriamycin and Coumadin. I was given Cytoxan 995 mg, 5-FU 995 mg and Adriamycin 99.5 mg for the next 4 treatments. The Adriamycin damaged my heart muscle. Other side effects were nausea, some vomiting, sores in mouth, diarrhea, heartburn, fatigue and complete loss of all hair. 6 treatments from January 20, 2006, to June 2, 2006. I was given a CMF combination of 1200 mg of Cytoxan (Cyclophosphamide), 80 mg of Methotrexate and 1200 mg of Fluorouracil (5-FU). This bout with chemo was much easier than the first. I also had a blood clot in my lung in February, 2006, and was hospitalized for 7 days and put on coumadin for 18 months. Other side effects were minor nausea, fatigue, sore mouth, minor diarrhea and only thinning of my hair. I don't know which one but one of the chemo drugs damaged my right eye and I am still having problems with it. The worst thing to happen was the death of my husband and my boston terrier dog in May during this bout of chemo.
  • E-CMF from Nov 08 Half way through Side effects very mild
  • I started Chemo on June 19, 2008 and as of today 7/7/08 I have only had 1 treatment. My second treatment is this week on Wednesday, July 9, 2008. I will have 6 chemo treatments, 3 weeks apart. The worst side effect I had was from the Nulasta shot I had the day after chemo. The bone and body aches really kicked my butt. I was fortunate and did not experience any nausea. On day 14 I started loosing my hair. It was coming out by the handfuls!! By day 16 I couldn't stand it anymore so I buzzed it all off.
  • Adriamycin/Cytoxan/Taxotere P.O. 1st Treatment 10/16/06
  • Will start Chemotherapy Sept. 28, 2007. Six courses then radiation six weeks. Will be on Adriamycin, Taxotere, Cytoxan
  • Four cycles, last one January 28. Mostly fine, except I learned too late that even though I feel fine physically, it doesn't mean I can do all the things I used to do like shoveling. I really slammed myself a couple of times by trying to do too much. Constipation was the worst side effect, but Smooth Move tea works great. The nausea was tolerable, until I overdid it physically, then I felt like I was on an oceanliner in a hurricane.
  • Chemo started 1/2. Four treatments with the last one being 3/10. Severe allergic reaction to the Taxol landed me in the hospital in February after the second treatment. Had to stop Taxol and go on adriamycin instead with fewer side effects.
  • Pending. I have only been told of what the drugs of choice will be and I can plan on being bald.
  • NOW ON ABRAXANE AND AVASTIN CHEMO SIDE EFFECTS WEAKNESS, FATIGUE, PERIPHERAL NEUROPATHY , NAILS PEELING OFF FINGERS, NOSE BLEEDS - ALL SOUND BAD BUT ARE TOLERABLE
  • Port-a-cath installed in May. What a joy that was! First of 4 treatments of cytoxin & adriamycin started the last of May. Loved that "dangerously red cocktail" called adriamycin. Sinuses were & still are all messed up from cytoxin. Neuropathy in hands, feet & legs to this date (2-09). Thankful for neurontin and cold sheets feel so good. Will it ever leave me in peace? Scalp got sore & out came the hair on Father's Day Happy Father's Day, Troy! We went out to our deck after church & 14 year old daughter cut & hubby shaved. POOF! No nausea thank God for Zofran!! I felt better during & right after chemo (Aug '05)than I do now. What's up w/that?! So, I deal as best I can.
  • December 2000 every 3 weeks for 6 months nauseus, hair loss, headaches etc. December 2007 every week, then every 3 weeks for 16 months nauseus, hair loss, nuropathy, headaches, etc
  • I had 5fu, Methotrexate and Cytoxan. I had the 5fu and Methotrexate in an IV push the first and second Tuesday of each month. The third week I took Cytoxan pills and rested the fouth week. This was for a total of six months.
  • ACT therapy- alot of bone pain; nausea; extreme fatigue. Currently experiencing neuropathy from Taxol.
  • Not sure now.
  • Blood work and chest xray September 11, 2007 Bone scan September 17, 2007 Port installed in right chest area September 18, 2007. MUGA scan September 19, 2007 First Chemo treatment September 20, 2007 Neulasta shot September 21, 2007 Headaches and blurred vision Hospitalized September 25, 2007 Found blood clot in the jugular vein Started on lovenox and warfarin Hair fell out in huge clumps 2nd week after first chemo Second Chemo treatment October 11, 2007 Tiredness, constipation, nausea Changed nausea prescriptions twice Third Chemo treatment November 1, 2007 Potassium too low-put on prescription supplement Nose bleeds and bruising from warfarin, not chemo 2nd MUGA scan scheduled for November 26,2007 4th Chemo scheduled for November 29th
  • 10/05-08/06 adriamyacin, very weak
  • First Chemo 9-8-2008. Side Effects - Pain, joint and bone pain, can't taste anything, headaches, bodyaches and my skin hurts and weight gain from the steroids.
  • treatments spanning over 4 months. Felt poisoned and beat up the entire time.
  • June 10 2010 June 15 2010- Side effects I am experiencing now: Mouth sores, joint pain, nausea and vomitting, rash on abdomen, hair loss, fatigue, headache, teeth sensitivity, dark circles under eyes, blisters starting from radiation.
  • Rituxan with High Dose Steriods - 2009 Campath - 2009
  • First round of chemo on 7 May 09 Second round of chemo on 1 Jun 09 Third round of chemo scheduled for 21 Aug 09 My doctor is using a new "sandwich" approach to treatment. 2 rounds of chemo > then 25 days of radiation > then 2 more rounds of chemo. This is new and apparently works better than all chemo then radiation. I am in control and working to erradicate the cancer via chemo and radiation.
  • ABVD May 2008-October 2008 ICE January 2009-March 2009 BEAM April 2009
  • ABVD for 6 cycles (12 treatments). Was quite well tolerated, tired for a few days after, hair loss, mild nausea but no vomiting, changes in bowel motions, mild rash on feet and arms, aching veins. MADEC (methotrexate, cytosine, dex, etoposide, cyclophosphamide) for 2 cycles, one week of chemo in hospital, 2 weeks to recover then repeat. Fatigue, mild nausea, hair loss. BEAM (carmustine, etoposide, cytosine, melphalan) prior to stem cell transplant. Have only just started this today, had carmustine and so far all good but I know this will change.
  • 4 cycles of chemotherapy ending in late August, radiation to follow depending on how the cancer responds.
  • Start Chemo May 18th 2007 Cisplaton and Etoposide
  • Started chemo Mar 1st 2009 Continued pain,a very few side effects to date-next treatmentApril 12
  • 6 treatments of R-CHOP, 3 weeks apart.
  • GoSH, so many. Six cycles of RCHOP. side effects... 1) affected my eyesight since the 3rd cycle, never got better. It was the first time i feel how its like to be a blind person. Luckily was blind for only a day, and got better but never totally cured. 2) Shingles! yes i repeat shingles! its seriosly the worst thing to get when ur immunocompromised!!!the itch is so intense! 3) FATIGUE--> never seem to end, but sometimes i think its because im lazy
  • Chop 2002 Cop with Rituxan 2008. Hair loss, numbness (not bad this time), fatigue, insomnia from Prednosone.
  • R-CHOP
  • R-CHOP 08/2008-12/2008 R-ICE 01/2009 ESHAP 02/2009-03/2009 BEAM 05/2009
  • CVP + R - 6 cycles and then two years of the "R" (Rituxan). stomach pain, diarrhea, fatigue for a week. Also, I receive an injection of Neulasta after each chemo which gives me bone pain but I am learning ways to stop that too and now go in for hydration the day after. I medicate myself for a few nights after the injection with Benadryl and Tylenol.
  • R-CHOP 21 Round 1, July 19, 2010 (extreme drop in blood pressure, shortness of breath, chest pressure, swelling of hands, feet and face)
  • 4/2007-7/2007: 6 cycyles of EPOCH (Etoposide, doxorubicin, cincristine, prednisone, and cycolophosphamide). Side effects include hair loss, nausea, diahrrea, neutropenia, weight loss, mouth sores, and more
  • R-CHOP starts 8/26/10
  • 2004.-I received quimo scheme CHOP (ciclosfamida -Vincristina -Adriamicina - Prednisona. 2006.- 2nd. line of quimo. with scheme ESHAP: Etoposido - Platino - Ara-C-Dexametasona
  • Rituxan 2001, Rituxan CHOP 2002, Rituxan 2003, TRM-1 (clinical trial) 2004-2005, Rituxan/Doxil 2006-2007. I have never reached a remission "yet" still hopeful!
  • Nausea, fatigue/sleepiness, "Chemo brain" (inability to concentrate), dry skin, no nail growth, hair loss. January - May as of now
  • Four rounds of VIP. Ifosfamide, Cisplatin and Etopiside, one day Cytoxan to motivate marrow growth.
  • Had 3 different types of chemo, 24 hours per day for 7 days. Side effects. Loss of hair, none that I can really speak of.

Doxorubicin, Leomycin. Inblastine, Acarbazine (ABVD)

  • oct induction chemo, Nov another bout of induction chemo as first did not work. Jan: consolidation chemo Apr: additional chemo to prepare for bone marrow transplant.
  • R-CHOP 21 Round 1, July 19, 2010 (extreme drop in blood pressure, shortness of breath, chest pressure, swelling of hands, feet and face)

Epirubicin

  • lots of dates, spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints. mercaptiprine, is every day, that just gives her a weird rash. methotrexate makes her sleepy
  • September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months.
  • Sep-feb--The oncologist said it would be " hard going"--that would be one word for it.
  • May 23rd 2007 started 6 sessions 3 x F.E.C 3 X Taxotere Ulcers in my mouth, sickness, diarrhoea, thrush, joint pain, loss of finger and toe nails, peeling skin on hands and feet,
  • Oral Chemo (Xeloda) - 7/07 to current weight gain, tenderness in hands and feet, fatigue, irritability, feeling full; dehydration
  • Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes. I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite. I started Tykerb in Feb 2009. I will continue with Herceptin for at least 7 more months after surgery.
  • E-CMF from Nov 08 Half way through Side effects very mild
  • 6 Treatments - 3 week cycle 3 - FEC 3 - Taxoteer Sept. 7, 2006 through Dec. 21, 2006
  • It was called cef (which is cefuroxime, epirubicin, and cyclophosphomide). It is used only in a couple of Canadian provinces as it is very expensive.
  • Blood work and chest xray September 11, 2007 Bone scan September 17, 2007 Port installed in right chest area September 18, 2007. MUGA scan September 19, 2007 First Chemo treatment September 20, 2007 Neulasta shot September 21, 2007 Headaches and blurred vision Hospitalized September 25, 2007 Found blood clot in the jugular vein Started on lovenox and warfarin Hair fell out in huge clumps 2nd week after first chemo Second Chemo treatment October 11, 2007 Tiredness, constipation, nausea Changed nausea prescriptions twice Third Chemo treatment November 1, 2007 Potassium too low-put on prescription supplement Nose bleeds and bruising from warfarin, not chemo 2nd MUGA scan scheduled for November 26,2007 4th Chemo scheduled for November 29th
  • preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU.
  • Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.) after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash
  • R-Chop, eight sessions one every 3 weeks. Side effects: nausea, loss of appetite, some muscle aches, hair loss, effected my eye sight - had to wear eyeglasses since the 4th chemo.
  • sickness, weakness, no appetite, lived off cereal, and jello for a week, no taste,increase in smelling sense was intense 12/24/2005 was the first treatment.
  • Chop therapy for 7 months
  • 1st and 4th week of Radiotherapy treatment, chemotherapy was also performed. 24 x 5 delivery of 5FU with a Cisplatin infusion on second day of each of these weeks. Side effects included a 'Chemo crash' both weeks I had the treatment - second week worse than the first (required blood transfusions).
  • Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol
  • Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin

Fluorouracil

  • first session 1/5/09 - infusion of 2 hrs for "Xelox" (Oxaliplatin) once every 3 weeks for 8 sessions. "Zeloda" (5-fluorouracil) pills twice a day for two weeks then a week of rest for 8 sessions. SIDE EFFECTS: arm pain (like bad sunburn), cold sensitivity, razor blade throat, first bite pain, diarrehea
  • Never had px with nausea or vomiting, just radiation burns, fatigue, pain management, depression. Side effects of chemo - permanent neuropathy which has gotten progressively worse over past 4 yrs since surgery & tx.
  • 5FU infusion for 96 hours the first and last week of radiation. Mitomycin the first day of radiation and the first day of the last week of radiation through a PICC line
  • * Jul 27/09: met with Oncologist * Aug 4/09: chemo (portable pump: 5-FU) for weeks 1 and 5 until Sep 15/09; Mitomycin day 1 only of weeks 1 and 5
  • 8-4-09 thru 8-7-09
  • 11-16-09
  • lot my ability to program...dont think like i used to..
  • Mitomycin and 5-FU. 75% of standard Mito dose on 1/4 due to elevated creatinine levels. Standard 5-FU dose over 5 days through chest portacath.
  • Nausea, low enery started 1 week ago with 5-FU targeted
  • Mitomycin and 5-FU on continuous drip using a PICC line. 4 day drip week 1, and second 4 day drip week 5. Scheduled to begin 11/9/09. First chemo round gave me terrible mouth sores and I was extremely dehydrated, to the point of needing hospitalization. 2nd chemo round went better due to daily scheduled "hydration" sessions at oncology. No dehydration or mouth sores, but I am extremely fatigued and all my blood counts are VERY low.
  • scheduled for Jan 4, 2010
  • First round August 3-7, second round August 31-Sept 4. Chemo effects snuck up on me. At first I felt like a brat because I felt fine and no one else at Kamp Kemo felt fine at all, and then it took me down. Nausea, constipation as a result of an anti-nausea med, diarrhea, exhaustion, loss of taste--food had texture and no flavor at all, and the texture was mostly slimy. I used salad dressing in an attempt to taste something, and ended up with slime, chicken salad--slime. And such a sore mouth, I felt like I had to fight to get a prescription for Dr. Casey's Mouth Solution, a lidocaine swish & spit, and it helped tremendously. Also low blood counts, needed a couple blood & platelet transfusions.
  • Started chemo Mitomycin and 5-FU on December 28, 2009 after having a Power Port placed in my chest.
  • Mitomycin and 5 FU beginning 1/18/10
  • weeks 1 & 5 Day 1 mytomicin c 10mg + 5FU 1000mg pump x 48hrs wk 1: bleeding gums, low wbc, anaemia, tiredness wk 5: nausea, low wbc, anaemia, onset of abdominal cramping, extreme fatigue hair-thinning, fatigue
  • 01-04-10 began chemotheraphy treatment. Mytomycin infused through port at onocologist's office. Went home with an infusion pump of 5-FU (Fluorouracil) that lasted 4 1/2 days.
  • 12/7-10. Not too sick alot of mouth sores and counts were drastically low hospitalized 12/15 with new oncologist
  • Mitomycin C and 5FU infused for 96 hours (4 days) during week one and week 5 of radiation
  • Two rounds of chemotherapy in December '09 and January '10. Received Mytomycin at the onc office and received 5-FU using a pump on a picc line for 96 hours each round. Side effects: nausea, fatigue, loss of appetite/weight loss, some hair loss, and some vomitting during and following the second round of chemo.
  • 5FY and cisplatin
  • Started Jan 4th, Mitomycin and 5FU again at 5th week
  • 9/97-12/97, 5-FU & Mitomycin. Side effects: Loss of appetite, some mouth sores, dry mouth, swollen tongue (once), loss of taste buds.
  • I wish I'd been told not to work during chemo. The side effects of the nausea medicine made me tired and made my skin itch. I wasn't in good spirits, which made others I work with uncomfortable. They felt bad that I had to be at work, and it was reflected in their behaviors towards me.
  • June 28 - July 4. A single 1 hour mitomycin pump followed by 4 24/7 fluorouracil pump. I like to think that I got extremely lucky with side effects. I was seriously constipated the first 4 days and put on 8 pounds in the first 48 hours. The only other side effect to this point is incredibly red blotchy skin on the face, neck and chest. I can only hope that round 2 goes as smoothly. July 27 - August 1. Intended to be the same as week 1. The mitomycin was put on hold until my platelet levels got back to normal, but we got it done. 4 bags of fluorouracil. Again, I was extremely lucky with side effects. None to speak of really and this time I didn't get the red blotchy skin on the face, neck and chest. No more chemo scheduled at this point.
  • Mytomycin given in one dose on June 28, followed by a week of infusion of 5FU. Four weeks later a second cycle of 5FU. Following the first treatment, severe mouth sores for 8 days - at the end could not swallow more than a teaspoon at a time. Following second cycle reduced mouth sores.
  • Dec 06 and Feb 07
  • consult 8-25
  • Mitomycin & Fluorouracil. Began on 7/28/08 with Mitomycin infusion done in office, 5FU infused over 96 hours by pump. Second cycle of the same began on 8/25/08. Side effects included nausea, fatigue, severe diarrhea, mouth sores, body aches, hair loss.
  • 5 FU- Mitomycin...via port - 96 hour drip lots of side effects....transfusion at end still low white count from radiation and chemo
  • 2 treatments of Mitomyicin and 2 4-day (24 hour pump) of 5-FU Started 8/31/2010
  • Starting a 5 day pump next week.
  • None that I can remember..oh yeah I can't remember. I find concentration & retention hard. Uh what was the question again??? (They say going through menopause can cause symptoms similar too), Uh Huh. Chemo brain fog.
  • 5FU: 5/18/09 to 5/21/09 and 6/15/09 to 6/18/09 Mitomycin once on 5/18 and once again on 6/15/09
  • 5-Fluorouracil and Mitomycin April 20, 2009 - April 24, 2009 May 18, 2009 - May 22, 2009 Side Effects; mouth sores, nausea, diarrhea, loss of appetite, weightloss
  • September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months.
  • May 23rd 2007 started 6 sessions 3 x F.E.C 3 X Taxotere Ulcers in my mouth, sickness, diarrhoea, thrush, joint pain, loss of finger and toe nails, peeling skin on hands and feet,
  • I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
  • six rounds of CMF three weeks apart. commenced in December 2005 and completed in March, 2006
  • 1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
  • high dose 1995
  • Jan 22/08 *Just Started CAF (Cytoxan,Adriamycin,Fluorouracil-5-FU) dose dense - 2 week x 4 cycles. *Taxol + Herceptin for 6 to 8 months
  • Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes. I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite. I started Tykerb in Feb 2009. I will continue with Herceptin for at least 7 more months after surgery.
  • 6 Treatments - 3 week cycle 3 - FEC 3 - Taxoteer Sept. 7, 2006 through Dec. 21, 2006
  • 6 treatments from March 3, 1994 to June 29, 1994. Started with Taxol Study. Received high-dose Cytoxan 3980 mg and Adriamycin 74.6 mg for 2 cycles. Except for the 1st and the last, blood transfusions were required after every treatment due to low hemoglobin. I developed a blood clot in my right arm shortly after the first blood transfusion in April and had to be hospitalized and put on coumadin for 3 months. Had to be taken off Taxol Study because I could not take high-dose Cytoxan/Adriamycin and Coumadin. I was given Cytoxan 995 mg, 5-FU 995 mg and Adriamycin 99.5 mg for the next 4 treatments. The Adriamycin damaged my heart muscle. Other side effects were nausea, some vomiting, sores in mouth, diarrhea, heartburn, fatigue and complete loss of all hair. 6 treatments from January 20, 2006, to June 2, 2006. I was given a CMF combination of 1200 mg of Cytoxan (Cyclophosphamide), 80 mg of Methotrexate and 1200 mg of Fluorouracil (5-FU). This bout with chemo was much easier than the first. I also had a blood clot in my lung in February, 2006, and was hospitalized for 7 days and put on coumadin for 18 months. Other side effects were minor nausea, fatigue, sore mouth, minor diarrhea and only thinning of my hair. I don't know which one but one of the chemo drugs damaged my right eye and I am still having problems with it. The worst thing to happen was the death of my husband and my boston terrier dog in May during this bout of chemo.
  • E-CMF from Nov 08 Half way through Side effects very mild
  • I had 5fu, Methotrexate and Cytoxan. I had the 5fu and Methotrexate in an IV push the first and second Tuesday of each month. The third week I took Cytoxan pills and rested the fouth week. This was for a total of six months.
  • Blood work and chest xray September 11, 2007 Bone scan September 17, 2007 Port installed in right chest area September 18, 2007. MUGA scan September 19, 2007 First Chemo treatment September 20, 2007 Neulasta shot September 21, 2007 Headaches and blurred vision Hospitalized September 25, 2007 Found blood clot in the jugular vein Started on lovenox and warfarin Hair fell out in huge clumps 2nd week after first chemo Second Chemo treatment October 11, 2007 Tiredness, constipation, nausea Changed nausea prescriptions twice Third Chemo treatment November 1, 2007 Potassium too low-put on prescription supplement Nose bleeds and bruising from warfarin, not chemo 2nd MUGA scan scheduled for November 26,2007 4th Chemo scheduled for November 29th
  • Carboplatin/Taxol, continuous 5FU drip March/April 2008 Taxotere July/August/September 2008 Cisplatin January/February 2009
  • preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU.
  • Taxol, 5FU, Carboplatin, Avastin, Tarceva (withdrawn).
  • Rather not discuss
  • 4 cycles (1 wk on 3 wks off) Cisplatin for 6 hours on day one, sent home with 5FU med pump for 96 hours. Side effects- nausea, diahrrea, agitation, black nail beds, hair thinning/loss, dehydration, irratation, moodiness, list goes on and on.........
  • Pill form. Xeloda, 1800mil daily.
  • 5FU, FOLFOX, FOLFIRI, Avastin, Erbitux, Vectibix
  • folfox + 5fu (dec 07-jan 08) folfiri + 5fu, avastin, cetuximab (jan 08-current)
  • Too many to mention-16 months in total(6,6,4) Every drug they have for colon cancer.
  • Completed FOLFOX 6 and 5-FU on March 8, 2010!!! Nausea Vomiting Diarrhea Constipation Late February through end of March 2009. Chemo and radiation May/June 2009. Chemo only started final set of treatment in September 2009 and currently in chemo treatments until March 2010. Nausea, diarrhea, fatigue, crashing of white and red blood counts during each set of chemos. yeast infections, and healing problems with surgical site from September 22, 2008.
  • Leucovorin, Oxaliplatin, 5-Flourouracil. Started September 19, 2009 for 12 bi-weekly infusions. Can't taste anything, eating or drinking anything cold makes me want to puke, cold air makes my throat close and I can't breath, pins and needles in hand, feet and any part of my body that gets cool, nausea, vomiting, diarrhea, constipation, cramping, headaches, major fatigue, depression.
  • 9/07 for 5 months every 2-3 weeks.Fulfox, Five FU, evastin, oxalyplatin -Side affects were mild and temporary such has hair loss (complete on first round) mild neuropathy, Hand and food syndrome. Slight diarrhea but NO nasuea. Loss of appetite, loss of taste. 06/08 Second round of chemo (Irinotecan) more nausea but virtually no diarrhea. neuropathy has returned slightly. I can still taste things after 2 rounds of chemo this time.
  • 10/12/09 - 11/13/09. Portable pump 5 days a week/24 hours a day. 5FU Push & pump. Every other week I had a bag of Oxaliplatin (total of 3 bags). I became gradually more tired as the treatment progressed & had a constanst feeling of nausea but Promethazine worked like a charm so I was able to eat pretty well thru out treatment. I had no hair loss. The weeks I received the Oxaliplatin my hands/feet became sensitive the cold but those symptons would subside as the week went by.
  • Inj Dacotine 150mg * Biovorine 600mg & 5FU 4600mg in 1000ml NS continuous infusion in two days. Inj Perinorm 10mg IV thrice a day Inj.
  • 11/06-oxaliplain,xeloda....tingling and cold sensitivity in hands and feet, fatigue 11/07-irinotecan, avastin, 5FU, diahrrea, fatigue, burning and cramping in abdomen
  • Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.) after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash
  • started chemo on 12/11/07 clinical trial with avastin,erbitux,oxaliplatin,lecovorin,5FU..now irenotican
  • 5FU Portable Pump
  • Started June 23, 2008. Oxaluplapin, Leucovorin and Flourouracil. Side effects are extreme weakness, lack of appetite, many foods don't taste good, can't touch, eat or drink anything cold--needles & pins in fingertips & toes, and throat closes up. Needles & pins, needles & pins, if I drink or eat anything cold, MY breathing troubles begin!! smile
  • Started in July 2009 was suppose to have every 2 weeks, but blood count went down so had to push out either 3 or 4 weeks. I hurt from my head to my toes the week of chemo, and then after that started gradually getting better. Neuropothy in hands and feet. Should go away eventually. Finished chemo Feb. 11, 2010.
  • Chemotherapy started 7/31/08. I feel as though I have had every nasty side effect. I have heard it is not that bad but I feel rotten throughout the entire cycle.
  • I had a port put in (after 4 tries which left me with considerable chest bruising, pain, and extra scars) and it it was accessed 4 days after insertion to begin my first chemo treatment. Pure 5FU. I did not lose my hair or get any mouth sores. I did feel like shit every day, I did lose my appetite completely, I did have stomachaches all the time, hot flashes, headaches, & extreme diarrhea or extreme constipation. Sept 8 - Oct 10 2008 Chemo #2 - Folfox (5FU/Oxalipatin) Feb 2 - March 3 Chemo #3 - unknown...beginning march 16
  • FOLFIRI w/ Avastin 4/2009 - 11/2009, FOLFOX 12/2009-2/2010 Nausea and fatique
  • I started Chemo on December 19,2008. I had a port put in to administer the treatment. For my lifestyle the port makes most sence. Have the pump hooked up was a bit invastive, but I have great nurses who have a trementious amount to compassion and skill
  • 6-500 mg per day that I have radiation. Xeloda. Some nausea, light headedness, jitters, diarrhea,
  • f5u-dec/07 to june/08 side effects the works!! mouth sores,nausea,fatigue,on and on!
  • 2/1/2010-3/11/2010 F5U pump 24/7 5 day/week, combined with the radiation, tiring. 7/23/2010 start, 12 treatments every 2 weeks. 5-FU, Eloxatin,leucovorin calcium; side effects - inconsistent energy, more emotional
  • Lecovorin, Oxiaplatin causes extreme neuoropathy in the hands and feet, He does not have finger prints now. 5-FU causes nausea, makes the hands and fet worse and soooo tired, like having the flu everyday with intense stomach cramping. Can not concentrate, chemobrain I guess they call it. Three days of intense chemo, then sick pass out for hrs. can't do anything but lay down or sit, there is nothing to help ease this...
  • 5-FU, and Eloxatin
  • I started Folfox Chemotherapy in January 2009, every other week.
  • Chemo was not that bad, just a little tired with some nausea
  • Chemotherapy was administered through a PICC for 5 weeks during radiation. No major side effects other then extreme exhaustion. I took the chemo nurse advise and began taking anti-nausea pills before I felt any nausea so I was able to continue to work part time. I still believe I am still suffering from some lingering effects of the chemo as I have not been able to build up my stamina.
  • 12 so far, 5Fu, Avastin, Oxiplatin, Leucovorin
  • Lots
  • My hair is normally very curly. Now it is straight. Hands and feet a little sensitive. Other than that, none, yet.
  • I just had first treatment on 5/20/09, The symptoms of the first treatment for me were severe cold sensitivity for about 3 days, tiredness, sore hands and feet, achy legs, and stomach pains.
  • Xeloda 3000mg by mouth twice a day for 5 1/2 weeks. Some skin issues with ears peeling, body aches & pain, very tired.
  • FOLFOX first cycle June 11 (infusion) and then the pump 46 hrs; some odd effects on swallowing, a little constipation, a little diarrhea, no food problems :)
  • During my 6 month treatment fatigue and nausea were the most consistent chemo side effects. Exercise helped with the fatigue and taking compazine helped with the nausea.
  • 24/7 pump 5fu.
  • Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added
  • 5FU no side effects Avastin no side effects Oxi could not touch or drink anything cold.
  • July 2, 2010 - Heated Intra-peritoneal Chemotherapy (HIPEC). Side Effects: Complete Loss of appetite, everything tasted awful. No nausea or vomiting. Lots of swelling due to amount of fluid they pump you with prior to procedure.
  • Very little after affects from the chemo other than slight nausea and some fatique. They had to cut the chemo treatments short in order to focus on the radiation treatments. Had a port-a-cath installed for future chemo treatments.
  • WEEK 1 - AUG 16 mitomycin IV & portable FU5 hooked up. Monday, no sleep. Tuesday, no sleep. Sooo tired but unable to sleep, my body is exhausted but my poor heart is beating soooo fast. Wednesday took Gravol, slept about 5 hrs. Thursday, felt good. Friday woke up with bright red itchy rash on face, head and various parts of my body. Notice tinny taste in mouth and lots of saliva,sore in mouth, throat, feeling nauseous. Bottom of feet sore when walking.
  • 8/3 FOLFOX6 VERY SLIGHT NEUROPATHY
  • Finished Chemo, October 2006. First go around lost most of my hair, and had the worst mouth sores the nurses had ever seen. Second time sat next to a woman, told her of my mouth problems. She told me to drink a beer with lots of ice after treatment..it worked.
  • June - August 2005: Side effects - Nausea; tunnel vision; fatigue; dry hands and feet; upset stomach; hair thinned; skin burned easily in the sun.
  • I started chemo Sept 19,2006 minimal side effects I have had 20 treatments, and most people don`t realize I`m on chemo
  • severe dehydration, potassium def. diarrhea
  • I had my 1st chemo treatment on 12/10/07. If cancer cells remain, they are microscopic and floating around in my body and being ZAPPED by chemo! I qualified for a trial and receive Erbitux (usually for metastatic cancer) every week (which causes acne). The nausea is gone for now, mouth sores are fading, and acne is blossoming. The Oxilaplatin will be decreased next time due to the mouth sores. It also causes Neuropathy.
  • 24-7 pump all week (except weekends) for 5 weeks (3rd week)
  • 6-03--36 weeks of IV chemo therapy. Had problems with severe diarrah, nausa and fatigue 3 days out of 7. Slightly ill the rest of the days with same symtoms, but milder. 2007--doing much better on chemo therapy by adding alternitves. (read below) 12-07- oral Xeloda (chemo therapy). Take for 2 weeks straight 2 times a day, then one week off. Side effects are slight now that I take fermented wheat germ, green wheatgrass and mangoseed juice. The juice improved my energy level a lot! I think we are seeing some results from the fermented wheatgerm as we are now starting to see on my cat scans that things have kind of stopped. In the England Cancer Journal they have proved that fermented wheat germ can slow and sometime cure cancers. The mangoseed juice is made in Asia, this is the only place it grows. It is extremely high levels of antioxidants! Knock on wood I haven't been sick since I started it! I also only eat organic (as much as I can) I eat lot's of greens and fruits. I get protein from the grains and I also eat a lot of nuts. I have felt so much better since doing this it is unbelievable.. I have hand and foot syndrome that this chemo can cause..this can/is be very painful. Febuary 08-New treatments of folfox6, Avastin and 5FU--extreme fatigue-nausa-diarreha-controled by medications for the most part. Need to rest a lot.
  • dec 06/jan 07; sores in mouth; diarrhea; pneumonia; hospitalized for 5 weeks
  • 5fu/leucovorin.Close to renal failure,changed to weekly infusions 5fu with fortnightly enhancement with levamisole. 48 weekly sessions.
  • Started October 28, 2009 5FU 24/7
  • First & only dose: 09/05/08-5FU/Leucovorin/Oxaliplatin - side effects? fever, rash (?), edema, fatigue, neuropathy, dizziness, confusion (some); nausea, hand/foot - more, but can't remember them.
  • 1 chemo treatment a week for the 7 weeks beginning on May 9, 2006 till June 29, 2006. No side effects
  • Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
  • Began chemo in July of '09 with camptosar, leucovrin, and 5-fu. this is over a 46 hour period. In January '10, they added avastin and zometa to the regimin and is ongoing.
  • 1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss) 2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment. 2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course 2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course.
  • February - June 2009 Taxotere Cisplaten 5FU
  • Had 3 different types of chemo, 24 hours per day for 7 days. Side effects. Loss of hair, none that I can really speak of.

Gemcitabine (brand name: Gemzar)

  • First time I did chemo was on May 2006 and I lost my hair, throwing up, rashes, weakness. Just pure hell.
  • 5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared. Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half.
  • I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
  • 1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
  • December 2000 every 3 weeks for 6 months nauseus, hair loss, headaches etc. December 2007 every week, then every 3 weeks for 16 months nauseus, hair loss, nuropathy, headaches, etc
  • ABVD- nausea, fatigue, wooziness, thinning hair ICE- nausea, fatigue, wooziness, total hair loss, bleeding gums and mouth sores GND- some fatigue, mouth sores
  • Started with nine drops of Taxol and had an allergic reaction that caused me to stop breathing. Then switched to Gemzar and Carboplatin. Had some nausea but started taking Emend....VERY tired.
  • Chop therapy for 7 months
  • Nausea, fatigue/sleepiness, "Chemo brain" (inability to concentrate), dry skin, no nail growth, hair loss. January - May as of now
  • Taxol/Carbo 12/02-5/03 (with 2 Gemzar treatments) Avastin 8/06- 5/07 Etoposide / Avastin 8/08- Present
  • 6 month of Carbo Taxol 1 year of don't remember (wasted time) 6 months of Platnal and Gemzar (she was already to weak)
  • Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol
  • I was highly allergic to Taxil. When given I immediately stopped breathing. So I have had carbo and gemzar which didn't work and currently I am on Cytozan and Advastin.
  • intraperitoneal taxol and cisplatin, 6 - 10/06 (heinous, too long to describe); HIPeC something-or-other intraoperatively 10/07 (really ghastly); IV carboplatin and gemcytabine, 2 - 5/08 (some hair loss, fatigue); sunitinib clinical trial 2/09 (painful hands and feet, fatigue); doxil, 3/09 (fatigue); taxol and carboplatin 5 - 9/09 (hair loss, fatigue, neuropathy, tinnitus); Avastin 10/09 to present (runny nose)
  • Chemo once a week from 4/2/10 to 6/01/10: Was tired the next day with small "blah" moments. Will be starting the second half of chemo in August.
  • Chemo #1 on 4/02/10: I was more tired then usual and had a "blah" moment after going outside for a few minutes.

Irinotecan (brand name: Campto)

  • 5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared. Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half.
  • 5FU, FOLFOX, FOLFIRI, Avastin, Erbitux, Vectibix
  • Too many to mention-16 months in total(6,6,4) Every drug they have for colon cancer.
  • started chemo on 12/11/07 clinical trial with avastin,erbitux,oxaliplatin,lecovorin,5FU..now irenotican
  • 9/07 for 5 months every 2-3 weeks.Fulfox, Five FU, evastin, oxalyplatin -Side affects were mild and temporary such has hair loss (complete on first round) mild neuropathy, Hand and food syndrome. Slight diarrhea but NO nasuea. Loss of appetite, loss of taste. 06/08 Second round of chemo (Irinotecan) more nausea but virtually no diarrhea. neuropathy has returned slightly. I can still taste things after 2 rounds of chemo this time.
  • Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.) after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash
  • 11/06-oxaliplain,xeloda....tingling and cold sensitivity in hands and feet, fatigue 11/07-irinotecan, avastin, 5FU, diahrrea, fatigue, burning and cramping in abdomen
  • folfox with avastin, folfuri, cetuximax with cetuximab
  • two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007
  • Chop therapy for 7 months
  • Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
  • Began chemo in July of '09 with camptosar, leucovrin, and 5-fu. this is over a 46 hour period. In January '10, they added avastin and zometa to the regimin and is ongoing.

Methotrexate

  • i was on chemotherapy for 2 years and 4 months i had weekly treatments for 6 months, then it went to every other week for 6 months, then every month for 1 year 4 months. now im going for check-ups still.. treatments were awfull 12 years old and you cant move without getting sick you cant go and play with your friends because you will get hurt or sick i lost 2 and a half years of my life but it has made me grow up and become a way stronger person than anybody i know.. surviors are the strongest people in this world
  • Methotrexate, Doxyrubicin, Vincristine, Vinblastine, Cytarabine, Etopomide
  • An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010: Vincristine PEG-aspariginase Doxorubicin Methotrexate Cytoxan Cytarabine 6-MP 6-TG Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain.
  • lots of dates, spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints. mercaptiprine, is every day, that just gives her a weird rash. methotrexate makes her sleepy
  • Vomiting, hair loss, fatigue, mouth sores, reduced immune function.
  • I'm not going to tell you anything you would be shocked by here. I'm bald - and have been for two years. 98% of anything I eat upsets my stomach in some way. I wish I could sleep all the time, but I have a 5 year old little girl, a full time job and a husband so that is possible. Other than that, Cancer sucks, Chemo sucks worse, but we will all get through it, right?
  • Round one: 7 days of continuous chemo. Round two: 5 days of 2 times a day chemo Round three: 2 days of 2 times a day chemo Followed by 3 days of 2 times a day total body radiation.
  • Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
  • See Surgery Description
  • 1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
  • six rounds of CMF three weeks apart. commenced in December 2005 and completed in March, 2006
  • I've taken chemo for 3 years now, many kinds of chemo, my "favorite" is Xeloda.
  • 6 treatments from March 3, 1994 to June 29, 1994. Started with Taxol Study. Received high-dose Cytoxan 3980 mg and Adriamycin 74.6 mg for 2 cycles. Except for the 1st and the last, blood transfusions were required after every treatment due to low hemoglobin. I developed a blood clot in my right arm shortly after the first blood transfusion in April and had to be hospitalized and put on coumadin for 3 months. Had to be taken off Taxol Study because I could not take high-dose Cytoxan/Adriamycin and Coumadin. I was given Cytoxan 995 mg, 5-FU 995 mg and Adriamycin 99.5 mg for the next 4 treatments. The Adriamycin damaged my heart muscle. Other side effects were nausea, some vomiting, sores in mouth, diarrhea, heartburn, fatigue and complete loss of all hair. 6 treatments from January 20, 2006, to June 2, 2006. I was given a CMF combination of 1200 mg of Cytoxan (Cyclophosphamide), 80 mg of Methotrexate and 1200 mg of Fluorouracil (5-FU). This bout with chemo was much easier than the first. I also had a blood clot in my lung in February, 2006, and was hospitalized for 7 days and put on coumadin for 18 months. Other side effects were minor nausea, fatigue, sore mouth, minor diarrhea and only thinning of my hair. I don't know which one but one of the chemo drugs damaged my right eye and I am still having problems with it. The worst thing to happen was the death of my husband and my boston terrier dog in May during this bout of chemo.
  • E-CMF from Nov 08 Half way through Side effects very mild
  • I had 5fu, Methotrexate and Cytoxan. I had the 5fu and Methotrexate in an IV push the first and second Tuesday of each month. The third week I took Cytoxan pills and rested the fouth week. This was for a total of six months.
  • ABVD for 6 cycles (12 treatments). Was quite well tolerated, tired for a few days after, hair loss, mild nausea but no vomiting, changes in bowel motions, mild rash on feet and arms, aching veins. MADEC (methotrexate, cytosine, dex, etoposide, cyclophosphamide) for 2 cycles, one week of chemo in hospital, 2 weeks to recover then repeat. Fatigue, mild nausea, hair loss. BEAM (carmustine, etoposide, cytosine, melphalan) prior to stem cell transplant. Have only just started this today, had carmustine and so far all good but I know this will change.
  • i will tell you
  • Hyper CVAD, March through September 2007
  • Nausea, fatigue/sleepiness, "Chemo brain" (inability to concentrate), dry skin, no nail growth, hair loss. January - May as of now

Taxol (chemical name: paclitaxel)

  • Taxol and Carboplatin May 2003-November 2004
  • ACT - A was terrible, T was terrible C is easy
  • Only 1 round of chemo, none. Loved the Benydryl they gave me before the infusion.
  • 8-4-09 thru 8-7-09
  • Currently on taxol/carboplatin Prior treatment of Folfox 6 showed no sign of lung met shrinkage.
  • First time I did chemo was on May 2006 and I lost my hair, throwing up, rashes, weakness. Just pure hell.
  • Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
  • 8 rounds - 4 A/C - 4 Taxol Hair loss on 13th day, bone pain from Taxol, rhematoid arthritis outcome
  • I took the course of having chemotherapy prior to surgery. I will not really know the true stage of my cancer.
  • treatments spanning over 4 months. Felt poisoned and beat up the entire time.
  • 12 rounds of chemo
  • September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months.
  • Four months of dose-dense chemotherapy along with a shot of Neulasta after each session.
  • 3/03 ~both Adri/Cytoxin together (red devil alright) lost hair~flu-like follicles actually hurt. Taxol = body aches but, milder but harder to explain symptoms. Determined to drink lots of water and not to throw up...didn't. Walked alot after. High stress prepping for infusions. Got a port catheter 3/17...had to put in main vein in my neck other too small... strange to me....still have...
  • Adriamicin, Cytoxan, Taxol
  • Nausea, vomiting, bad headache, fatigue, mouth soreness, hair loss.
  • I had every side effect in the book! You name it I had it! Gained 20 pounds on the steroids.
  • 6 cycles, every 3 weeks, carboplatin, taxotere, and herceptin. I still recieve the herceptin, which had no side effects at all, for me. The carboplatin/taxotere had MANY; nausea (1 night I vomited VIOLENTLY from discontinuing my zofran too early), stomatitis(for which ice really does work, ice cream, itallian ice, etc. for YOUR ENTIRE INFUSION, learned this cycle 4), rash from the decadron that was SEVERE, and the very, very worst was the neuropathy that lasted about 2 months post-chemo which was just torture...but it's nearly gone now, the arm, and breast hurt worse, and I am so grateful. Taxotere is what caused that, so I hear, but it goes away slowly, but almost surely, that's the good news.
  • AC dose dense,then taxotere all for 5.5 months.Lots of lousy side effects you name it I had it!
  • may 4 2008,nausea,and alot of hand pain
  • Started chemo in May 2009, got a port so my viens are still good. Adriamycin: fatigue, hair losse, nausea, constipation. Taxol: PAIN, fatigue, chemo brain, PAIN.
  • See Surgery Description
  • May 23rd 2007 started 6 sessions 3 x F.E.C 3 X Taxotere Ulcers in my mouth, sickness, diarrhoea, thrush, joint pain, loss of finger and toe nails, peeling skin on hands and feet,
  • Well, chemo sucks. What can I say? I had 8 heavy duty treatments, spaced 3 weeks apart. The first 3 were AC, the next 4 were Taxol. It kicked me in the butt, but I never threw up!
  • Started Adriamycin/Cytoxan on 6-4-09 dose dense. (1 dose every 2 weeks for total of 4 doses.) Felt fatigue, stomach upset,hair loss. Started Taxol 7-30-09 dose dense (1 dose every 2 weeks for total of 4 doses.) Felt achey, tired and depressed, hair loss.
  • 4 rounds of AC and 4 rounds of Taxol every 2 weeks from 3/4/2010 - 6/17/2010...just miserable! Landed in the hospital with neutropenia for 4 days.Mouth sores were the worst! Lost 10 lbs because of that. SO glad to be finished but still feeling the effects. Blah!
  • 4 cycles dose dense Doxorubicin and Cyclophosphamide, then 4 cycles dose dense Paclitaxel to start 12/09/08
  • 6 cycles chemotherapy begining 11/12/07 complete hair loss, mouth sores, black nail beds, weight gain, inflamation, fatique, everything tastes like lead. Joint pain from Neulestra shot.
  • To begin June 12th
  • I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
  • 4 rounds of Adriamycin and Cyclophosphamide together every 2 weeks. I am done with those 4 rounds. 4 rounds of Taxol every 2 weeks I have 3 rounds left.
  • Started AC on 12/12/07. That was fine. Had a reaction to Leukine (sp) now I'm Neupagen daily. No problems there.
  • Started first round of AC on June 12th....will continue 3 more rounds and then on to Taxol.
  • TAC protocol. 6 rounds every 3 weeks. I refuse most of the pre medications (unless I need them) and ended up not needing any side effect meds my last 2 rounds. I'm having a great reaction to the chemo and my doctor is impressed with how I am weathering each round of chemo. He is shocked that my White and Red Blood cells are doing so well and I ended up being able to navigate the nausea without medications - which means no constipation!!! The side effects range from liberating (no hair, chemo brain, slowing down, other people cooking for me) to pain-in-the-ass (constipation from the zofran, hungry from the steroids, no nose hairs, sensative gums, run over with a truck feeling from the neulasta) to the hysterical (I'm really good at the 'Old Man from Flordia Suffle' while I wait for my WBC and RBC to come back on line!)
  • 6 treatments 4/07 to 10/07 Fatigue, hair loss
  • Oral Chemo (Xeloda) - 7/07 to current weight gain, tenderness in hands and feet, fatigue, irritability, feeling full; dehydration
  • Chemotherapy 4 X AC - side effects - extreme nausea, hair loss, fatigue. Neulasta - bone pain. Chemotherapy 4 X Taxol - Peripheral neuropathy, nausea, bone pain, loss of balance, extreme fatigue, hair loss, low blood platelet count.
  • Started chemo June 8 2006 and finished up Sept. 28. 2006. Side effects weren't to bad. Just did what I was suppose to so I wouldn't have many.. Biggest side effect.. Baldness but I got through that too.
  • Last Chemo was May 23 2007. Cyclo/Adri/Taxol. Lost 22 pounds. Very Weak, and my bones ached bad. Taste and smell was horrible. All is well now. Gained the weight back! darn.
  • 6 months.... 3 at first.... then 3 more after radiation..most side effects there are!!!couldn't eat,sick,cried,tired, you name it....lost my hair, then lost it the 2nd time too,3 months later
  • Jan 22/08 *Just Started CAF (Cytoxan,Adriamycin,Fluorouracil-5-FU) dose dense - 2 week x 4 cycles. *Taxol + Herceptin for 6 to 8 months
  • Taxotere, Carboplatin, Herceptin Dec 08 through Dec. 09 Nausea Migraines Loose fingernails/toenails Hair loss allergies developed Loss of menses (early menopause)
  • Chemo caused hair loss, bloody noses, fever, muscle pain, tingling and numbing, and nausea. And the shot gave me bone pain.
  • Began Adreamycin/Cytoxin on Aug 30, 2007.Completed my last dose of Taxol on Jan. 30, 2008. My main side effects were the exhaustion and mouth ulceration and neuropathy in my toes and fingers with the Taxol.
  • Infusion #1 - 09-22-09. Severe joint pain in lower back, knees, and ankles. Intense nausea. Infusion #2 - Intense nausea. Severe joint pain. Darkening of my fingernails. Severe headaches. Infusion #3 and #4 - Intense nausea lasting my entire two week cycle. Headaches. Continued darkening of my nails. Taxol infusions #1-12 - Slow physical changes to my finger and toe nails, intense nail bed pain which has been cumulative. Big drop in counts at infusion #10, nausea, fatigue.
  • They removed all my teeth because they said the chemo and radiation would kill their roots. I went through 5 cycles of the red devil and 10 taxol. I am still on femara
  • Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes. I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite. I started Tykerb in Feb 2009. I will continue with Herceptin for at least 7 more months after surgery.
  • First time: Taxol, Taxotere - Jan - June 2001 - had adverse reaction to taxotere & stopped breathing. Otherwise, the regular side effects like nausea, fatigue, mouth sorers, hair lost, & nerve damage to hands & feet. Second time: Abraxane, Avastin Oct '07 to May '09. Still on Zometa - indefinitely. Regular side effects: nausea, fatigue, hair lost. Worse one: medical port became infected & had open wound for 6 mons because it could not heal.
  • 4x AC then 4x Taxol.
  • Began chemotherapy in 3'06. Side effects were mouth sores, nausea and vomiting. Bone pain, neuropathy in fingers and feet. Nail beds turned black.
  • Dec. 19 2003 - Feb. 27 2004. First-line, dose-dense chemo. Taxotere, Cytoxan and Adriamycin. Horrible horrible horrible. Felt godawful (aching fatigue unrelieved by sleep, and absolutely no energy) for years afterwards. I don't think I'd do it again.
  • The 4 "red devil" treatments were the worst & those neulasta shots! I had an allergic reaction to Taxol. Really bad! So they switched me to Tacrete. Easier to handle physically but took longer in between chemos.
  • I do my treatments through an IV.I only have to take 4 of them. I just finished my s 2nd one on Monday 11-2-09. This one was alot harder for me to bounce back than the 1st on was.The next one is 9-23-09
  • Four cycles, last one January 28. Mostly fine, except I learned too late that even though I feel fine physically, it doesn't mean I can do all the things I used to do like shoveling. I really slammed myself a couple of times by trying to do too much. Constipation was the worst side effect, but Smooth Move tea works great. The nausea was tolerable, until I overdid it physically, then I felt like I was on an oceanliner in a hurricane.
  • Pending. I have only been told of what the drugs of choice will be and I can plan on being bald.
  • NOW ON ABRAXANE AND AVASTIN CHEMO SIDE EFFECTS WEAKNESS, FATIGUE, PERIPHERAL NEUROPATHY , NAILS PEELING OFF FINGERS, NOSE BLEEDS - ALL SOUND BAD BUT ARE TOLERABLE
  • December 2000 every 3 weeks for 6 months nauseus, hair loss, headaches etc. December 2007 every week, then every 3 weeks for 16 months nauseus, hair loss, nuropathy, headaches, etc
  • Chemo started 1/2. Four treatments with the last one being 3/10. Severe allergic reaction to the Taxol landed me in the hospital in February after the second treatment. Had to stop Taxol and go on adriamycin instead with fewer side effects.
  • 10/05-08/06 adriamyacin, very weak
  • First Chemo 9-8-2008. Side Effects - Pain, joint and bone pain, can't taste anything, headaches, bodyaches and my skin hurts and weight gain from the steroids.
  • 4/2009 Abraxane and Carboplatin 9/2009 Taxol and Avastin had an allergic reaction at the end of the run of Carboplatin Avastin caused my blood pressure to increase sharply, so it was discontinued
  • ACT therapy- alot of bone pain; nausea; extreme fatigue. Currently experiencing neuropathy from Taxol.
  • Taxol, 5FU, Carboplatin, Avastin, Tarceva (withdrawn).
  • Carboplatin/Taxol, continuous 5FU drip March/April 2008 Taxotere July/August/September 2008 Cisplatin January/February 2009
  • Paclitaxel, Cisplatin, Bevacizumab, Avastin
  • Sept 6-Nov 6 2008: every three weeks for 6 hours. Side effects: hair loss, tired, and sore from the Nuesta shot, but overall not as bad as it could have been.
  • Had cisplatin for 6 weeks during radiation, now am on my 5th of 6 treatments every three weeks (taxol and cisplatin)
  • Oct 07 to Dec 07 - Cisplatin chemo 1x a week with radiation;. Constant terrible nausea, very sensitive to tastes and smells. Ate only carbs, couldn't even stand the smell of my dog! Everything nauseated me. Aug 08 to Dec 08 - Carboplatin and Paclitaxel every 3 weeks x 6 doses. Hair gone by 2nd treatment, fluid overload on chemo days due to drugs being hard on kidneys - had to flush. About 2-3 days post chemo, horrible bone pain, numbness and tingling in hands and feet (peripheral neuropathy) and constipation that almost hospitalized me. Would last for a week or so and then settle down. Horrible fatigue, felt like lead. My hair started coming back really quickly after treatment stopped,but the neuropathy lasted almost a year, fatigue continues to be a problem. UPDATE Feb/10: Going back for another 6 rounds of the not so pretty poison. Carbo/Taxol once again. Gonna miss my hair...oh yeah, and the ability to feel human!
  • Chemo 6/21/10, 7/12/10, 8/2/10 - nausea, fatigue, bone & joint pain, diarrhea, neuropathy; scheduled for 3 more rounds
  • Taxol/carbo, starting Dec 12, 2007. Some joint pain, hair loss (boo-hoo) and slight stomach upset.
  • Started my chemo on Sept 11th of 2008. I have to complete seven cycles. I receive cisplatin and adriamycin on the first day of treatment along with other pre-meds such as decadron and emend. Second day of treatment I receive Taxol and the following day I go back in to get a injection of neulasta.
  • First round of chemo on 7 May 09 Second round of chemo on 1 Jun 09 Third round of chemo scheduled for 21 Aug 09 My doctor is using a new "sandwich" approach to treatment. 2 rounds of chemo > then 25 days of radiation > then 2 more rounds of chemo. This is new and apparently works better than all chemo then radiation. I am in control and working to erradicate the cancer via chemo and radiation.
  • 4 cycles of chemotherapy ending in late August, radiation to follow depending on how the cancer responds.
  • 2/26/08to 5/28/08 - 6 cycles Taxol, carboplatin and Avastin for lung ca. Hair loss and peripheral neuropathy - some fatigue.
  • Taxol and Carboplatin every 3 weeks for a total of 4-6 treatments. Have had 2. Nausea, fatigue, aches and pain in whole body. Also DVT.
  • 2007 April til present so far 5 rounds Taxotere Carboplatin Avastin Emend for nausea Aranesp for red blood Neulasta for white blood etc.....
  • 7/24/07 Taxol and Carboplatin 2 and a half days full of energy, 3rd day she is complaining of pain and flu like symptoms... She HAS NOT taken Claritin which her oncologist recommended for these symptoms.
  • Feb 08-Cisplatin/Etoposide- hideous vomiting diarreah Switched chemo drugs AND Hospital -April08-carbo/taxol/avastin. Tolerated well. Neulasta. Bone pain
  • Carbo/Alimta 07.2008 Carbo/Taxol - Got taken off Avastin after pulmonary embolism. (nausea, vomiting, fatigue) 02.2009 Carbo/Alimta - Developed allergy to Taxol. (anemia, fatigue) Radiation therapy.
  • 1st series Aug'07 to Dec - 6 infusions - Carboplatin, Taxol and Avastin. Side effects, loss of all hair, fatigue, weight loss. 2nd series, 7 infusions - Sept '08 to Apr '09 - same coctail as above
  • chemo fog.
  • carbo/taxol only effect has been being tired!! Verty low white cell counts, had to receive one transfusion, other wise has handled it well.
  • Started chemo Mar 1st 2009 Continued pain,a very few side effects to date-next treatmentApril 12
  • Paclitaxel (Taxol)/Carboplatin (Paraplatin)combination. 6 treatments. 21 days apart.
  • Jan-May/06 6 Taxol/Carbo CA-124 = 7 May/06 neuropathy hit - severe damage to hands and feet. Hands are curled.. I can't move ankles or toes. Severe nerve pain - can walk 5-6 steps w/ walker
  • One treatment so far on 3/23. Side effects for two days included exhaustion beyond sleepiness, nausea and depression. I'm so glad it only lasted 2 days! Constipation and painful bowel movements.
  • Carbo and Taxol 6 rounds. Loss all my hair, even my nose hair, eyebrows, everything. Weak, muscle and nerve pains, anemia
  • 6 month of Carbo Taxol 1 year of don't remember (wasted time) 6 months of Platnal and Gemzar (she was already to weak)
  • Taxol/Carbo x 8
  • Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol
  • 2/6/2009- Started Taxol and Carboplatnium cocktail. (6 sessions) 2/26/2009- Started GOG- 218 (Avastin Trial) Nurses/doctors notice side effects indicating she was actually receiving the drug.
  • chemo May 2008 to August 2008, did 5 rounds out of 6 - nausea, peripheral neuropathy, anemia,hair loss,dehydration, fatigue, weight loss
  • march-june 08: 6 taxotere/carboplatin november-april 09: 6 taxol/carboplatin oktober-? 09: started caelyx/carboplatin every side affect you can imagine
  • taxol/carbo dec 2008-april2009 topotecan sept 2009/present
  • intraperitoneal taxol and cisplatin, 6 - 10/06 (heinous, too long to describe); HIPeC something-or-other intraoperatively 10/07 (really ghastly); IV carboplatin and gemcytabine, 2 - 5/08 (some hair loss, fatigue); sunitinib clinical trial 2/09 (painful hands and feet, fatigue); doxil, 3/09 (fatigue); taxol and carboplatin 5 - 9/09 (hair loss, fatigue, neuropathy, tinnitus); Avastin 10/09 to present (runny nose)
  • First Chemotherapy was Monday, March 29, 2010 - The only medical side effect was a very red face in reaction to the steroid in one of the preparatory drugs. Main side effect was pronounced "blues". Mom stayed on the couch for three days and ate very little.
  • First chemo carbo/taxol on May 7th. so far, a bit of joint and bone pain, nothing else
  • 6 rounds of Carbo Platinum and Taxol from 3/18/05-7/8/05 major side effect after the chemo was stopped: fatigue, memory loss Started chemo again in October of 2008. Taxol, Carbo Platinum and Avastin. Switched the taxol to taxotere after four rounds because of neuropathy. Major symptoms, nausea, fatigue, nose bleeds, low white blood cells, memory loss, did I mention fatigue?
  • July - November 2008: 6 rounds IP Cisplatin and IV taxol. Side effects: You name it, it happened... hair loss, nerve damage, mouth sores, drop in red blood cells which required a transfusion, high creatin, low magnesium and potassium, diarrhea, constipation... I still blame the nurse for not making sure my dexamethosone was added to the chemo! Next Monday I start 6 rounds of IV Carboplatin and Doxil.
  • Paclitaxel(Taxol)/Carboplatin(Paraplatin) combination, intravenous, 4 treatments total, 3 weeks apart. My first treatment was Oct. 17th. The side effects weren't been too horrible. Days 3-6 I felt really bad, but I never vomited! I just felt VERY weak, and VERY sick. I was so pale I scared myself in the mirror, and sometimes I felt so bad I couldn't even talk. I had HORRIBLE constipation like never before, and I still have heartburn, which I never got before.
  • Taxol and Carbo, every 3 weeks for 6 times, next (3rd) will be April 29. First three hours of administering drugs, agnonizing dizziness due to high dose of Benadrly to combat first few hours of chemo drugs. Next two days seem ok, with a false sense of energy, then day four through 8 no desire to drink, get dehydrated, can't stand or something strenuous for long periods of time, physically weak and tired always. Tiredness especially never is gone.
  • Carbo/taxol Doxil Carbo/Taxol Topotecan Gemzar and experimental drug Taxotere and Avastin
  • Mar.2007-taxol & carboplantinum (8 treatments) July 2008-taxol & carboplantinum (7 treatments) The first 2 rounds left me weak, loss of hair, nausea and vomiting Oct 2009-Doxil for six months. Side effects not so bad
  • June 20, 2006, and every following 3 weeks...through August 29, 2006...then the last 2 of the 6 treatments - November 7, 2006 & November 28, 2006 Carboplatin & Taxol I really didn't know what to expect with the first treatment. Felt great for 24 hours after...but then I felt like a semi-truck had run over me about 10 times...or worse case of the flu X 20! Twelve days later, I had a reverse mohawk going on (hair falling out)and had my husband shave my head. The worst of it was losing my eyelashes and eyebrows!!!! You know your hair is going to go...but no one told me ALL of my body hair would go!!! Talk about being striped of your "womanhood"! I still wince when I think of those times! Numbness in my feet(Pins & Needles)...always worse by the end of the day.
  • July 24,2009 first treatment taxol and carboplatin. The only problem I had was my own fault. I got sick that night because I came home and ate stewed tomatoes and chased it down with a Pepsi! Big mistake because I quickly learned that Chemo and acid DON'T mix. Treatments 2,3, bought feet itching, loss of smell and taste. Treatment 4 was not to bad slight big toe bleeds but manageable, slight problem with vision seeing bright white spaces from within my eyes. Treatment 5 I had a mouth bleed, neuropthy more consistant. Treatment 6 manageable but eyes still have the spots. Neuropthy worsens, still itching.
  • Taxol and carboplatin so far 8 treatments CA-125 is now down to 130
  • Had 2 courses of CarboPlatin and Taxol via vascualr Port; followed by 4 courses of IP chemo with Cisplatin and Taxol, one course every 3 weeks, requiring 3 days in hospital each time. Could only tolerate 4 courses because side effects were too severe: nausea, vomiting, constipation and diarrhea, ototoxicity resulting in some permanent hearing loss in left ear and also tinitus, tingling, numbness and pain in hands and feet (apparently permanent), and "chemo brain" - no short term memory, fogginess, confusion, and exhaustion. Serious loss of weight as well. Last 2 courses of chemo were via vascular port and the same as the first 2, and were tolerated fairly well.
  • Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
  • Bleomycin, Etoposide, Cisplatn (March 07 - May 07) Cisplatin, Taxol, Ifosfamide (September 07 - November 07)
  • 1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss) 2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment. 2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course 2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course.
  • Dry Mouth. Lost body hair, Sick at stomach, weight loss.
  • Taxol and Carboplatin. Started November 2008, should be completed March 25, 2008. Side effects some nausea with first treatment, leg pain and neuropathy.

Vinorelbine (brand name: Navelbine)

  • Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
  • I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
  • 1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
  • I've taken chemo for 3 years now, many kinds of chemo, my "favorite" is Xeloda.
  • ABVD- nausea, fatigue, wooziness, thinning hair ICE- nausea, fatigue, wooziness, total hair loss, bleeding gums and mouth sores GND- some fatigue, mouth sores
  • Brutal! I was sick (mostly fatigue, headachey, flu type symptoms) for a week after treatments, would get my energy back the second week and then start the cycle all over again!
  • I begin chemotherapy on the April 8th. 4 rounds of 3 weeks each of Vinorelbine and Carboplatin. (Originally Cistoplatin but the doctor changed it cuz my ears were ringing)Worst side effects are feeling like lead and/or rubber, forgetfulness, weight gain, insomnia and aching bones, muscle and skin.
  • Chop therapy for 7 months

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