Chemotherapy Description and Side Effects
What Cancer Survivors said about their chemo treatment.
Adriamycin (Doxorubicin)- R C h o p. 21, Six cycles stated feb 11 last one ( hopefully )June 1st 2011.
Severe tummy gloating, gas, and pain. Heavy fatigue and nausea, constipation, sweats, hair loss, neuropathy, weight gain in trunk area. Sweats. Fevers. Period gone after first week. Dunno if gone 4 good. - Heidi
- ACT - A was terrible, T was terrible C is easy - Clmoore
- Chemo to start Dec. 29, 2008
Radiation begins at week 4 - Stacey
- started Feb. 26, 2010 I was admitted to hospital every 3 weeks for a total of 6 rounds of treatment - Cycles A and B. - Jessica
- finished with induction therapy, now gonna begin with consolidation. - Saahil646
- Hyper CVAD protocol. Started 3/22/10. None for the first 3 rounds of protocol. Last 4 rounds have had N/V, extreme faitigue, bone and joint pain. - Elizabethsad
- An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010:
Vincristine
PEG-aspariginase
Doxorubicin
Methotrexate
Cytoxan
Cytarabine
6-MP
6-TG
Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain. - Luis M.
- lots of dates,
spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea
vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints.
mercaptiprine, is every day, that just gives her a weird rash.
methotrexate makes her sleepy - Cheyenne Axe
- Vomiting, hair loss, fatigue, mouth sores, reduced immune function. - Brooke
- Methotrexate, Doxyrubicin, Vincristine, Vinblastine, Cytarabine, Etopomide - Alison
- I'm not going to tell you anything you would be shocked by here. I'm bald - and have been for two years. 98% of anything I eat upsets my stomach in some way. I wish I could sleep all the time, but I have a 5 year old little girl, a full time job and a husband so that is possible. Other than that, Cancer sucks, Chemo sucks worse, but we will all get through it, right? - Rachel
- I didn't really focus on what chemo I've gotten/getting, but my main side effects were nausea and fatigue. - Eddie
- Round one: 7 days of continuous chemo.
Round two: 5 days of 2 times a day chemo
Round three: 2 days of 2 times a day chemo
Followed by 3 days of 2 times a day total body radiation. - Gmc
- Nausea, vomiting and fatigue. Zofran helped a lot! - Sandra
- i cannot sleep..i cannot eat..i do vomiting - Julius
- First time I did chemo was on May 2006 and I lost my hair, throwing up, rashes, weakness. Just pure hell. - Kiera
- Tremador - First set - daily dose for 3 weeks Not able to continue to the next set. Nausea, weakness, loss of appetite, Sleeping constantly - Joni's Journey By Her Daughter
- Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration. - Gretchen
- Dec 10- Feb ? 4 sessions 3 wks apart; lost hair after 1st treatment; threw up once, nauseous but controlled by anti nausea meds. Weak, tired, got horrible staff infection. I now have alot of bone and muscle pain - Susan Ubertini
- 5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared.
Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half. - Theresa
- 4 rounds of Adriamycin and Cyclophosphamide together every 2 weeks. I am done with those 4 rounds. 4 rounds of Taxol every 2 weeks I have 3 rounds left. - Gina
- AC, 3-2-11 lots of nausea, hurt to breathe through nose, blinding headaches (3-4 through 3-6), all-over weakness through the first week, leg and tailbone area pain. - Jen
- Started Adriamycin/ Cytoxan infusions every 3 weeks, June 28, 2011 - Gloria
- Chemo sucked! It's a crazy way to slowly poison yourself and destroy every muscle that you have spent the last ten years working on. Chemo is barbaric and I will cheer the day when this is gone. Obviously, I don't work or support any drug companies. - Cindy
- ACT from December 2010 - June 2011. - Leeza
- high dose 1995
- Ellen
- 4/2009 Abraxane and Carboplatin
9/2009 Taxol and Avastin
had an allergic reaction at the end of the run of Carboplatin
Avastin caused my blood pressure to increase sharply, so it was discontinued - Donna Peach
- Well, chemo sucks. What can I say? I had 8 heavy duty treatments, spaced 3 weeks apart. The first 3 were AC, the next 4 were Taxol. It kicked me in the butt, but I never threw up! - Hayley Townley
- To begin June 12th - Jadec
- TAC protocol. 6 rounds every 3 weeks. I refuse most of the pre medications (unless I need them) and ended up not needing any side effect meds my last 2 rounds. I'm having a great reaction to the chemo and my doctor is impressed with how I am weathering each round of chemo. He is shocked that my White and Red Blood cells are doing so well and I ended up being able to navigate the nausea without medications - which means no constipation!!!
The side effects range from liberating (no hair, chemo brain, slowing down, other people cooking for me) to pain-in-the-ass (constipation from the zofran, hungry from the steroids, no nose hairs, sensative gums, run over with a truck feeling from the neulasta) to the hysterical (I'm really good at the 'Old Man from Flordia Suffle' while I wait for my WBC and RBC to come back on line!) - Elizabeth
- 6 treatments 4/07 to 10/07
Fatigue, hair loss - Karin
- Adriamycin/Cytoxan each 2 weeks for two months, then abaxane weekly for 12 weeks. Radiation follows with 35 treatments. - Joyce888
- Chemotherapy 4 X AC - side effects - extreme nausea, hair loss, fatigue.
Neulasta - bone pain.
Chemotherapy 4 X Taxol - Peripheral neuropathy, nausea, bone pain, loss of balance, extreme fatigue, hair loss, low blood platelet count. - Jeedee
- Chemo once every other Friday, eight prescribed. First four: Doxorubicin (a.k.a. Adriomicine) AND Cytoxin; last four Taxol. Nuelasta with every infusion prescribed.
See post "I'm just sayin'" for side effects from first 4 infusions.
- Sonja
- Started AC on 12/12/07. That was fine.
Had a reaction to Leukine (sp) now I'm
Neupagen daily. No problems there. - Doris
- Started first round of AC on June 12th....will continue 3 more rounds and then on to Taxol. - Karin
- First Taxol 1.5.11, once a week for 12 weeks, FAC once every 3 weeks from 3.30 - 6.1.11. Taxol made me feel like I was wearing a lead raincoat and concrete shoes. FAC was far more discouraging. Lots of digestive issues, couldn't eat, everything taste nasty. It was horrible. - Scrappy Darlene
- 9/9/10 - Adriamyicen & Cytoxan. Headache, dizzyness, restless leg syndrome, nausia-light in mornings. 9/10 -9/14/10 - EXTREME Headaches, major fatigue, constipation, dizzyness and car sickness. - April
- Jan. 21st 2010 last 2 coming up.
1st 4 treatments made me very nausaus and tired.
The 1st 2 of this cycle just sick for 2 days then just tired. - Linda
- Chemo caused hair loss, bloody noses, fever, muscle pain, tingling and numbing, and nausea. And the shot gave me bone pain. - Kris
- Adriamycin-tore up my mouth and taste buds, cracked the corners of my mouth, leg pain/aches, fatigue, loss of hair, eyebrows and eyelashes. - Helen
- Fatigue and extremly low white blood cell count - otherwise known as neutropenia. - Rachel Pappas
- Oral Chemo (Xeloda) - 7/07 to current weight gain, tenderness in hands and feet, fatigue, irritability, feeling full; dehydration - Grace
- July 22nd: extreme nausea, vomiting, lost 13 pounds. had to go in to hospital for IV fluids from dehydration. a few mouth sores.
August 11: low grade nausea, headache, feeling twitchy.
September 1:
September 22: - Elizabeth
- Last Chemo was May 23 2007. Cyclo/Adri/Taxol.
Lost 22 pounds. Very Weak, and my bones ached bad. Taste and smell was horrible. All is well now. Gained the weight back! darn. - Kelly
- Taxotere Aug 2008 - Dec 2008 (3-weekly)
Herceptin Aug 2008 - Aug 2009 and Dec 2009 - March 2011 (3-weekly)
Vinorelbine Dec 2009- May 2010 (for regional recurrence to Internal Mammary nodes - not involved the first time round)
Capecitabine (Xeloda)April 2011 - October 2011(for Liver metastasis)
Adriamycin - December 2011 - February 2012
Taxol March 2012 - Jenny
- Infusion #1 - 09-22-09. Severe joint pain in lower back, knees, and ankles. Intense nausea.
Infusion #2 - Intense nausea. Severe joint pain. Darkening of my fingernails. Severe headaches.
Infusion #3 and #4 - Intense nausea lasting my entire two week cycle. Headaches. Continued darkening of my nails.
Taxol infusions #1-12 - Slow physical changes to my finger and toe nails, intense nail bed pain which has been cumulative. Big drop in counts at infusion #10, nausea, fatigue. - Jill
- Jan 22/08
*Just Started CAF
(Cytoxan,Adriamycin,Fluorouracil-5-FU)
dose dense - 2 week x 4 cycles.
*Taxol + Herceptin
for 6 to 8 months
- Kelly
- I have completed 3 of my 6 cycles of chemo. I am on Taxotere, Cytoxin and Herceptin. I will finish up in September, with the completion of the Herceptin in May of 2012. I am also receiving a shot of Neulasta which makes my bones ache. The chemo this time has not been so bad except for the flu like symptoms and achiness in my bones. I am tired but this is due to the anemia. - Laurie Harner
- First chemo session on 8/26/09 almost killed me...second session on 9/16/09 virtually no side effects other than no taste.
- Betty Guillen
- Started chemo June 8 2006 and finished up Sept. 28. 2006. Side effects weren't to bad. Just did what I was suppose to so I wouldn't have many.. Biggest side effect.. Baldness but I got through that too. - Lori
- They removed all my teeth because they said the chemo and radiation would kill their roots. I went through 5 cycles of the red devil and 10 taxol. I am still on femara - Simplysharron
- Began Adreamycin/Cytoxin on Aug 30, 2007.Completed my last dose of Taxol on Jan. 30, 2008. My main side effects were the exhaustion and mouth ulceration and neuropathy in my toes and fingers with the Taxol. - Shrinklady
- suffer to heal. stay mindful of what it means to be aware. - Jenny Warrior- Amazon Woman Style
- The 4 "red devil" treatments were the worst & those neulasta shots! I had an allergic reaction to Taxol. Really bad! So they switched me to Tacrete. Easier to handle physically but took longer in between chemos. - Tricia
- Chemo started 1/2. Four treatments with the last one being 3/10. Severe allergic reaction to the Taxol landed me in the hospital in February after the second treatment. Had to stop Taxol and go on adriamycin instead with fewer side effects. - Laurie
- AC followed by Taxol total 24 weeks beginning Oct 2009
Became very neutropenic (low white blood cells) A couple of mouth sores - Rachel Pappas
- Red Devil, cytoxan, taxol....May 2002....Bone pain, tired all the time!...Gained weight - Judy
- Very sick. 12 years ago the drugs for side effects were not as effective as they are now and hopefully will continue to get better - Regina
- Dec. 19 2003 - Feb. 27 2004. First-line, dose-dense chemo. Taxotere, Cytoxan and Adriamycin. Horrible horrible horrible. Felt godawful (aching fatigue unrelieved by sleep, and absolutely no energy) for years afterwards. I don't think I'd do it again. - Dawn
- AC and Taxol - Donnalh
- 6 treatments from March 3, 1994 to June 29, 1994. Started with Taxol Study. Received high-dose Cytoxan 3980 mg and Adriamycin 74.6 mg for 2 cycles. Except for the 1st and the last, blood transfusions were required after every treatment due to low hemoglobin. I developed a blood clot in my right arm shortly after the first blood transfusion in April and had to be hospitalized and put on coumadin for 3 months. Had to be taken off Taxol Study because I could not take high-dose Cytoxan/Adriamycin and Coumadin. I was given Cytoxan 995 mg, 5-FU 995 mg and Adriamycin 99.5 mg for the next 4 treatments. The Adriamycin damaged my heart muscle. Other side effects were nausea, some vomiting, sores in mouth, diarrhea, heartburn, fatigue and complete loss of all hair.
6 treatments from January 20, 2006, to June 2, 2006. I was given a CMF combination of 1200 mg of Cytoxan (Cyclophosphamide), 80 mg of Methotrexate and 1200 mg of Fluorouracil (5-FU). This bout with chemo was much easier than the first. I also had a blood clot in my lung in February, 2006, and was hospitalized for 7 days and put on coumadin for 18 months. Other side effects were minor nausea, fatigue, sore mouth, minor diarrhea and only thinning of my hair. I don't know which one but one of the chemo drugs damaged my right eye and I am still having problems with it.
The worst thing to happen was the death of my husband and my boston terrier dog in May during this bout of chemo.
- Joyce
- Port-a-cath installed in May. What a joy that was! First of 4 treatments of cytoxin & adriamycin started the last of May. Loved that "dangerously red cocktail" called adriamycin. Sinuses were & still are all messed up from cytoxin. Neuropathy in hands, feet & legs to this date (2-09). Thankful for neurontin and cold sheets feel so good. Will it ever leave me in peace? Scalp got sore & out came the hair on Father's Day Happy Father's Day, Troy! We went out to our deck after church & 14 year old daughter cut & hubby shaved. POOF!
No nausea thank God for Zofran!! I felt better during & right after chemo (Aug '05)than I do now. What's up w/that?! So, I deal as best I can. - Sharon2353
- December 2000
every 3 weeks for 6 months
nauseus, hair loss, headaches etc.
December 2007
every week, then every 3 weeks for 16 months
nauseus, hair loss, nuropathy, headaches, etc - Maureen
- ACT therapy- alot of bone pain; nausea; extreme fatigue. Currently experiencing neuropathy from Taxol. - Tenna
- 8 sessions, sweats, nausea, constipation, de hydration, low white cell counts. joint, bone, muscle, numbness, tingling, pain from Taxol during and post-chemo. Peripheral neuropathy has been diagnosed. - Grace345
- phase 1 - A/C, phase 2 - Pacletaxol with Herceptin, phase 3 radiation, phase 4 - continuation of Herceptin for full 52 weeks. Daily injections of Luekine then Neupogen.
side effects - neuropathy (still), hair loss, lost sense of taste, constipation, diarhea, bone pain, nausea, vomiting. chest pain (hate muga scans!)blood transfusions due to low counts - QuiltMom
- treatments spanning over 4 months. Felt poisoned and beat up the entire time. - Joannab
- Began chemotherapy in 3'06. Side effects were mouth sores, nausea and vomiting. Bone pain, neuropathy in fingers and feet. Nail beds turned black. - Jerryann Norton
- Adriamycin/Cytoxan/Taxotere P.O.
1st Treatment 10/16/06 - Judy Christian
- It was called cef (which is cefuroxime, epirubicin, and cyclophosphomide). It is used only in a couple of Canadian provinces as it is very expensive. - Sylvia
- Pending. I have only been told of what the drugs of choice will be and I can plan on being bald. - Shelly Bryant
- Starting A/C on December 6, 2011. Will have chemo every 2 weeks for 4 months. - Andrea
- NOW ON ABRAXANE AND AVASTIN CHEMO
SIDE EFFECTS WEAKNESS, FATIGUE, PERIPHERAL NEUROPATHY , NAILS PEELING OFF FINGERS, NOSE BLEEDS - ALL SOUND BAD BUT ARE TOLERABLE - Sharon Riley
- Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable. - Tia
- Will start Chemotherapy Sept. 28, 2007. Six courses then radiation six weeks. Will be on Adriamycin, Taxotere, Cytoxan - Emmagordon
- Adriamicin, Cytoxan, Taxol - Judee
- Nausea, vomiting, bad headache, fatigue, mouth soreness, hair loss. - Linda
- First chemo starts July 7 2011 - Lauri
- 10/05-08/06 adriamyacin, very weak
- Melissa Ball
- Started 06-20-Nausea, constipation, severe headahces, body aches, fatigue, dizziness, hot flashes, grumpiness. 07-05-some Nausea, headaches, fatigue, dizziness, port became infected. - Cathy
- First Chemo 9-8-2008. Side Effects - Pain, joint and bone pain, can't taste anything, headaches, bodyaches and my skin hurts and weight gain from the steroids. - Bleunote
- I had my 4 cycles of chemotherapy a month after my surgery and had the neupogen injection. - Leah
- 4 rounds of AC and 4 rounds of Taxol every 2 weeks from 3/4/2010 - 6/17/2010...just miserable! Landed in the hospital with neutropenia for 4 days.Mouth sores were the worst! Lost 10 lbs because of that. SO glad to be finished but still feeling the effects. Blah! - Mrsfitz
- 9/10-1/11 hair loss,fatigue,mouth sores,neuropathy of feet and toes, brittle finger nails - Shannon
- I just finished 4 rounds of A/C chemo treatments. Fatigue and infection was my worst enemy. First chemo treatment, I was in the hospital with pneumonia and neutrepedic. Very sick. I can only say I am glad its over. Now I am getting a port and will start Taxol next week. - Kimz57bc2
- on 2nd round of AC, bald and trying to hold onto willpower. I get pretty sickly the 3rd day after cheno, 1/6/12 3rd treatment - Lori
- 4 dose dense a/c for 8 weeks then paclitaxol for 12 weeks. which ended on 11 sept 08. Jan.09 12 weeks of radiation. - Cami
- 8 rounds - 4 A/C - 4 Taxol
Hair loss on 13th day, bone pain from Taxol, rhematoid arthritis outcome - Denise Hall
- may 4 2008,nausea,and alot of hand pain - Valerie
- Started chemo in May 2009, got a port so my viens are still good. Adriamycin: fatigue, hair losse, nausea, constipation. Taxol: PAIN, fatigue, chemo brain, PAIN. - Anne
- 3/03 ~both Adri/Cytoxin together (red devil alright) lost hair~flu-like follicles actually hurt. Taxol = body aches but, milder but harder to explain symptoms. Determined to drink lots of water and not to throw up...didn't. Walked alot after. High stress prepping for infusions. Got a port catheter 3/17...had to put in main vein in my neck other too small... strange to me....still have... - Tammy Morgan
- 12 rounds of chemo - Chelle Jones
- Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse.
Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo. - Marneyd
- Still in treatment with no end in sight. My port is my best friend even if it sticks out of my sub-clavicle like an alien. - Wendy
- Things I wish someone had told me- You feel the worst on days 3-5.
Even though you're nauseous you can still eat with enough drugs (I never threw up!)
Get your hair buzzed as soon as it starts to come out, and your scalp hurts, you will feel much better. Don't shave it until your scalp stops hurting.
Your nose runs because you have no nose hair to catch it
A little infection will knock you on your ass.
Claritin can fight some of the neulasta side effects
Glutamine and vitamin B can help with the Taxol tingle
Ugg makes flip flops- AHHH big help with the Taxol tingle
Some people lose their fingernails with Taxol (but mine are intact- I have chemo rings, though) - Jan
- Hair loss
Fatigue
mouth thrush
low blood counts
infection/ fever
- Susan
- August 2nd first chemo. Extreme heartburn, tired, body aches, fevers. Taxtore, Adriamucin,& Cytoxan every three weeks for a total of 8 treatments. Doctor wants to do more.
August 8th running a fever of 104 in the hospital for a week. Hallucations, extreme stomach pain and boby pain. Can't eat.
August 23rd chemo. 24th start of neulasta shots. Extreme body pain, joint aches, headaches, nausea and fevers. Hair getting thin.
Sept 13 hair is gone. High fevers been on antibotics since hospital. Same side effects as the first & second. Exhausted all the time.
Oct thru Dec extreme headaches, sick to the stomach, body aches, fevers, chills, pain in my bones and feet. Dizzy and blurry eye sight. Antibotics throughtout chemo with neulasta shots.
Had a fever of at least 100 degrees throught treatments of chemo. Highest was 104.4. - LC
- Chemo was manageable --- did not have the nausea that some experience. The steroid you have to take ahead of the chemo was as bad or worse than the chemo itself. In the end, the worst part of chemo was what it did to my brain. Couldn't remember anything, which affected my ability to do my job. - Awoliii
- I had every side effect in the book! You name it I had it! Gained 20 pounds on the steroids. - Irene
- Started Adriamycin/Cytoxan on 6-4-09 dose dense. (1 dose every 2 weeks for total of 4 doses.) Felt fatigue, stomach upset,hair loss. Started Taxol 7-30-09 dose dense (1 dose every 2 weeks for total of 4 doses.) Felt achey, tired and depressed, hair loss. - Lisa
- AC dose dense,then taxotere all for 5.5 months.Lots of lousy side effects you name it I had it! - Marina Smith
- 4 treatments 1 every 2 weeks started late March-May 2008 - Karen
- 3 chemos, neo-adjuvant, before surgery, effectively reduced tumor size. 1 chemo after surgery. Side effects: nausea and dizziness. - Ragis
- 1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems. - Karen Visnansky
- 4 cycles dose dense Doxorubicin and Cyclophosphamide, then 4 cycles dose dense Paclitaxel to start 12/09/08 - Manateetmr
- I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane - Donna
- Sysplatin that almost killed my it caused my kidneys to shut down. I cause me to become completely dependent on others. I didn't spell the Chemo right but it sounded like that. I don't know what the fed me after I was released from the hospital. - Rict
- Chemotherapy is bi weekly on fridays!
Side effects include Nausea, fatigue, and weakness, hair thinning - Natalie
- Started my chemo on Sept 11th of 2008. I have to complete seven cycles.
I receive cisplatin and adriamycin on the first day of treatment along with other pre-meds such as decadron and emend. Second day of treatment I receive Taxol and the following day I go back in to get a injection of neulasta.
- Candy
- Chemo start date 7/15/09 - Doxil infusion with Ativan and Compazine every 21 days...that was "potponed".
Chemo, once started, was be Doxorubicin and Ifosfamide - 4 days of 24-hour infusions.
Mom was having delirious thoughts from the chemicals, they took her off of food - the doc said she "had enough fat on her" to get by without food. She was in and out of sleep from the sedatives in between chemo. - Alyssa
- ABVD: 8 Cycles (16 total treatments). My side effects were severe bone pain, fatigue, nausea, burning in my stomach, constipation, ileus, thinning hair - Sarah
- ABVD for 6 cycles (12 treatments). Was quite well tolerated, tired for a few days after, hair loss, mild nausea but no vomiting, changes in bowel motions, mild rash on feet and arms, aching veins.
MADEC (methotrexate, cytosine, dex, etoposide, cyclophosphamide) for 2 cycles, one week of chemo in hospital, 2 weeks to recover then repeat. Fatigue, mild nausea, hair loss.
BEAM (carmustine, etoposide, cytosine, melphalan) prior to stem cell transplant. Have only just started this today, had carmustine and so far all good but I know this will change. - Lydia
- 4 Cylces (8 treatments) beginnning March 12. Second Session March 26, April 9th, April 23rd, May 7th, May 21st, June 4th and lastly June 18th! - Jen
- Brutal! I was sick (mostly fatigue, headachey, flu type symptoms) for a week after treatments, would get my energy back the second week and then start the cycle all over again! - Sara
- 4 cycles of chemotherapy ending in late August, radiation to follow depending on how the cancer responds. - Vanessa
- I am having ABVD. Side effects: nausea, fatigue, hair loss, constipation, bone pain, fever, infection... - Lauren1979
- ABVD, started Feb. 13, 2009. - Allison
- ABVD- nausea, fatigue, wooziness, thinning
hair
ICE- nausea, fatigue, wooziness, total hair
loss, bleeding gums and mouth sores
GND- some fatigue, mouth sores
- Rachel
- ABVD - six 4-week cycles (June-November)
Prednisone
Procarbizine - Lauren Moore
- April 6th 2009 - Initial chemotherapy at the hospital. The immediate effect on the swollen nodes blew my mind. It was almost all gone 48 hours later.
Several others that are chronicled in my blog. - Sal
- ABVD, hair loss, night sweats, depression, low white blood count, prone to bacterial infections. - Leslie
- Started Chemotherapy (ABVD) on 30th March 2010. Found that the side effects of consist of bad heartburn & indigestion for a few days after chemo. My hair started to fall out about two weeks later and has slowly been falling out ever since, but not bald yet! Have had to give up fizzy drinks and spicy food, two thinks I enjoy. Unfortunately they cause uncomfortable consequences, like bloating, passing a lot of gas, nausea, heartburn, the list goes on. - Stephen Cockwell
- 1 chemo treatment a week for the 7 weeks beginning on May 9, 2006 till June 29, 2006.
No side effects - Raymond Ouellette
- R-Chop 21.
28th Sept '10, Feeling sick ++++. Horrible day, nothing to eat,absolutley crap.So physically and mentally exhausted.
19th Oct '10. Hair starting to fallout. So depressing
9th Nov '10. Felt so sick, again so drained, I couldn't get out of bed.
30th Nov'10. tired and sick.
21st Dec '10. Sickness gets me again.
11thJan '11.Felt bloody crap, sick, dizzy and very tired.
There is no point in denying its easy, although it does effect people in different ways and you dont necessarily have all the side effects
- Lily
- 6 treatments of R-CHOP, 3 weeks apart. - Carl Wilton
- Hyper CVAD, March through September 2007 - Susan Carrier
- R-CHOP14 to start on September 13 for six cycles. - Beth
- Chop 2002
Cop with Rituxan 2008.
Hair loss, numbness (not bad this time), fatigue, insomnia from Prednosone. - Bob
- R-Chop--6 cycles total..completed 5/18,6/8 and 6/24/2011,7/15/11 8/8/11 and 8/25/11. side effects: nausea, bone pain, headaches, ear pain(probably from neulasta/neupogen),some fatigue, severe heartburn/epigastic discomfort, mood changes - Robyn
- Rituxan/Bendamustine (Summer 2010) - very little except fatigue. R-CHOP (summer 2011) - nausea, fatigue, hair loss - Chris
- R-CHOP - Sue
- R-Chop, eight sessions
one every 3 weeks.
Side effects: nausea, loss of appetite, some muscle aches, hair loss, effected my eye sight - had to wear eyeglasses since the 4th chemo.
- Olivia
- R-CHOP 08/2008-12/2008
R-ICE 01/2009
ESHAP 02/2009-03/2009
BEAM 05/2009 - Ligaya
- R-Chop-6 cycles. I had one treatment of Treanda and Rituxan before my second biopsy confirmed the presence of b-cell lymphoma, then it changed to 6 cycles of R-Chop. Started treatment in June and ended Oct. 27, 2011. Now receiving 2 years or Rituxan every other month.
Side effects were fatigue, nausea, change in taste , diarrhea, bloating and weight gain from prednisone..anxiety..immune suppression that lead to infections towards the end-staph infection in my face and uti-had to reduce the days I was working due to the immunesuppression. - Eileen
- R-CHOP, 4 cycles, side effects: nausea, fatigue - Carly1115
- 4/2007-7/2007: 6 cycyles of EPOCH (Etoposide, doxorubicin, cincristine, prednisone, and cycolophosphamide). Side effects include hair loss, nausea, diahrrea, neutropenia, weight loss, mouth sores, and more - Angela
- R-CHOP starts 8/26/10 Major Side Effects Day 1-3 Headache and Diarrhea Mouth Sores Days 3-6 - Danell
- R+Chop, 1/4/2012-4/23/2012 - Faydra
- R-CHOP 21
Round 1, July 19, 2010 (extreme drop in blood pressure, shortness of breath, chest pressure, swelling of hands, feet and face) - TinaK
- 2004.-I received quimo scheme CHOP (ciclosfamida -Vincristina -Adriamicina - Prednisona.
2006.- 2nd. line of quimo. with scheme ESHAP: Etoposido - Platino - Ara-C-Dexametasona - Miriam Ucañay
- sickness, weakness, no appetite, lived off cereal, and jello for a week, no taste,increase in smelling sense was intense 12/24/2005 was the first treatment. - Wayne Brummett
- RCHOP 21. Three rounds total. 11/2/0, 11/23/10, and 12/14/10. Worst effects so far: heartburn to point of esophageal spasms, constipation, headache, mouth tenderness and dryness, fatigue and hair loss. - Patti
- Rituximab CHOP - Vivian
- Rituxan 2001, Rituxan CHOP 2002, Rituxan 2003, TRM-1 (clinical trial) 2004-2005, Rituxan/Doxil 2006-2007. I have never reached a remission "yet" still hopeful! - Shirl
- Chop chemo started on feb. 24th, lots of side effetcs. sick and weak from chemo - Janice
- 1. Chemo Sept- Oct.2010
2. Chemo Nov - dec. 2010
currently ip chemo - Brombeere
- 1st. Chemo July - August 2009
2nd. Chemo February 2010 ip.chemo
3rd. Chemo January 2011 ip.chemo - Carmen31
- 1st. Chemo Feb. - March 2009
2nd. Chemo Nov - Dec. 2009
3rd. Chemo ip. Aug.-Sept.2010 - Katharina
- Mar.2007-taxol & carboplantinum (8 treatments)
July 2008-taxol & carboplantinum (7 treatments) The first 2 rounds left me weak, loss of hair, nausea and vomiting
Oct 2009-Doxil for six months. Side effects not so bad - Hannah
- Doxorubicin and Cisplation-3 Cycles
Doxorubicin and high dose Methotrexate -1 cycle - P
- August-January 2012. - Sarah Friedman
- Had AIM protocol (Adriamyacin, Ifosfamide and Mensa) for all of 2007, then in 2010 I had Yondelis, a clinical trial, also for a year. The AIM made me lose all my hair, had frequent need for transfusions of blood and platelets and I had many infections. The Yondelis did not make me lose hair, but the other side effects were the same. - Sandy
- Currently going through chemo... some of the side effects that I am experiencing are mouth sores, and sore GI tract. Definite tiredness, lunula turning black, of course hair falling out, complete loss of taste buds and smell during chemo but fine after. - Stephanie
- Original Chemo was Epirubicin, Cisplatin and 5-FU April-September
2nd Irinotecan and Taxane
Current Fol Fox 4 + Avastin - Debbie Wife Of Cancer Survivor Steve A.
Carboplatin (Paraplatin)- VP-16 and Carboplatin with first cycle began in April 2011 and finished in Sept. 2011 after 8 cycles - usual side effects
Hair-Loss
Fatigue
Metal Taste
Mouth Sores
Ongoing White Blood Count Issues
Ongoing Red Blood Count Issue
Multiple Blood Transfusions
- Tom Martin
- Carboplatin and Taxol, 8/11/2011. Sun-sensitive day after infusion (doesn't that sound like something you'd pay extra for at a spa?), then joint pain, peripheral neuropathy, fatigue on days three and four following chemo. Get better pain meds for next round! - Lynn Knox
- Taxol, 5FU, Carboplatin, Avastin, Tarceva (withdrawn). - Tim
- Taxol and Carboplatin May 2003-November 2004 - Lonnie
- Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration. - Gretchen
- Temodor- 5 days on, 21 off- October 2009- June 2010
Avastin- Every 15 days- July 2010- Present
Carboplatin- Every 30 days- July 2010- Present - Claudia For David
- 3 Cycles of Chemo - Cyclophosphamide, Vincristine, Cisplatin - Dec to Feb. (3 weeks apart) - Foot Drops and trips and falls
3 Cycles of Intensive Chemo with Autologous Stem Cell Transplant - Carboplatin & Thiotepa - Feb to May (4 weeks apart) - Hearing Damage - Rosiesweetrosie
- Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss
I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes.
I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite.
I started Tykerb in Feb 2009.
I will continue with Herceptin for at least 7 more months after surgery. - Yuyu
- Taxotere, Carboplatin, Herceptin Dec 08 through Dec. 09
Nausea
Migraines
Loose fingernails/toenails, MRSA infections x 8, auto immune allergic reactions
Hair loss
allergies developed
Loss of menses (early menopause)
- KorynH
- Had first treatment Sept 3rd. headaches really bad stomach, rash on my chest and face they just keep coming and changing really - Rachel
- Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable. - Tia
- 4/2009 Abraxane and Carboplatin
9/2009 Taxol and Avastin
had an allergic reaction at the end of the run of Carboplatin
Avastin caused my blood pressure to increase sharply, so it was discontinued - Donna Peach
- Sep-feb--The oncologist said it would be " hard going"--that would be one word for it. - Jilly
- Taxotere & Carboplatin 6/30/11- 10/13/11
All classic symptoms
- Cindy
- See Surgery Description> apparently I cannot follow directions - Debbie
- 2 rounds of Taxol/carbo 11/2011 & 12/2011...Is being changed for 1/2012...not sure of new drugs yet - Lilsis
- Chemo not too bad with side effects. Im puffy. - Margaret Rogers
- May 2010 Chemo Carboplatin/ Taxol, nausea, fatigue, hair loss - Monika
- Chemotherapy Carboplatin, Taxol - Luise
- Chemo came after radiation the first time, chemo only the second time, radiation only the 3rd time. Allergic reactions to almost all the drugs tried, but that was the second time. The ones that I didn't react to made me very sick, so I'd go in to be hydrated the day after chemo since I was unable to do that at home. It's hard to eat and drink when you're asleep. Another side effect of the drugs and certainly the pain killers for me. - Judy
- Cyclophosphamid Carpoplatin Taxol - Manuela
- Had a port put in August 2011, then started chemo. 2 drugs. Plan is 6 cycles, every 21 days. Have completed 3. Blood work ok, but almost unable to walk. No strength, can hardly stand, can't climb stairs well. Feet are numb, butt now numb. Had spinal MRI 11/11, #4 delayed a week. - Mfrye
- I have had two rounds of chemo, and the next will take place on Jan 31, 2012. After that, three more rounds! - Crystalwoman
- currently doing carbo/taxol every three weeks. Extreme fatigue, muscle aches, taste changes - Brenda
- 6 chemotherpay treatments. Cisplatin for 2 and Taxol/Carbo for 4. Stomach nausea,bone pain after Neulasta shot, constant dehydration, tired all the time & neuropathy in feet. - Maria
- Chemo 6/21/10, 7/12/10, 8/2/10, 8/24/10, 9/14/10 - nausea, fatigue, bone & joint pain, diarrhea, neuropathy; scheduled for 1 more round - Debbie
- Start in mid October. - Kathy
- little queasy tired bald last one nov 5th 2010 yesssssss!! - Robin
- Lost hair not much else - Ava
- june 13 2011. no side effects yet - Peggy
- chemo fog. - Gracie
- carbo/taxol only effect has been being tired!! Verty low white cell counts, had to receive one transfusion, other wise has handled it well. - Rhonda
- Carboplatin - my first treatment of chemo (started 2th of august 2010), no side effects so far (lucky me), gives good hope for second (heavier) chemo combined with radiation therapy - Robin
- Four treatments, most recent on 4 August, #5 scheduled for 25 August. Side Effects - minor nausea, extreme fatigue, loss of appetite and sense of taste and smell. carboplatin and Alimta (pemetrexed)for #'s 1-4. Provider stopped shipments of carboplatin so #5 and any remaining will be only the Alimta. - William
- I had my port-A-cath placement on November 9, 2010 for six cycles of Carbo/Alimta. The port-A-cath hurts just on its own, but chemo sucks, sucks, sucks! I cant say anything nice about chemo, other than hopefully it is killing those cancer cells! After each treatment I have extreme fatigue and appetite loss for 4-5 days following. My hair started falling out after the second cycle, which doesn't bother me compared to the fatigue. I hate not helping out around the house, or missing out on family time because all I want to do is sleep.
My blood counts are also very low so the doctors and nurses check them every week, and they also check my kidney function. I'm on medicine for my anemia which helps a little with my fatigue. My kidneys should hang in there- I guess it paid off living a healthy life. - Elena Gilbert
- December 6th, 2010 was first Chemo treatment... my mother is doing good..not neauseous, joint and leg pain, Hair started to hurt two weeks after first chemo treatment. Still playing golf...not eating much... get tired easily...gets cold easy - Jackie
- 6 rounds of chemo, first one 3/9/11, last one 6/21/11. Side effects: constipation; sharp pains in legs and feet; metal taste in mouth; heavy limbs; pain in joints; jittery; loss of all body hair; eventual numbness and tingling on bottoms of feet; and a slew of other things. - Cathi
- Taxol+Carbo every 3 weeks, Taxol every week. Started March 2010. Hair loss, feeling tired. - Louisa
- First chemo carbo/taxol on May 7th. so far, a bit of joint and bone pain, nothing else - Clabat
- Combined carboplatin and taxol, both administered systemically by IV started August 10, 2011, with last cycle administered November 23, 2011. Side effects included: nausea that was only gotten under control after the second administration using about 5 drugs; intense fatigue; muscle and joint pains that were reduced with tylenol and later greatly reduced with gabopentin; intense neuropathy in hands and feet, but even lips and chin until the gabopentin took the edge off that, too. Neuropathy still intense in first week of every cycle. Other side effects included intense fatigue, weakness, vision problems on two occasions (blindness in one eye when reading lying on side), severe constipation, and cognitive effects (short term memory dysfunction, inability to solve puzzles, inability to multitask or withstand multiple stimuli at once). There's talk of giving me a PARP-inhibitor for maintenance therapy in 2012. - 1verypalpablehit
- I'm on my 4th round of chemo treatment in 3 years time. This round is 2 days a week. Side effects are joint pain, nasea, vomiting, diarrhea, night sweats, loss of appetite, hair loss, irritability, exhaustion, and thankfulness for each day - Kristi
- Start Jan 6, 2012 Six rounds of carboplatin and paclitaxel once every 3 weeks. - CarolS
- February 2009: CA125 level was around 3500. She began treatment with Taxol/Carbo with Avastin. Within two weeks, she lost all of her gorgeous red hair. Energy level dropped significantly.
She continued having "maintenance" chemo.
June 2009: CA125 dropped to 32, and then to 16 later that month. Oncologist decided to stop chemo- as there was no sign of cancer!
March 2010: Having chest pain/shortness of breath. CT scan showed fluid in her lungs. Testing after thoracentesis revealed cancerous cells in the fluid.
CA125 was back up to 300.
It is now referred to as "RECURRENT CANCER"
She began chemo again: Cisplatin and Gemzar.
Cisplatin was causing tinnitus. Oncologist decided to discontinue to avoid permanent hearing damage.
The Gemzar would usually burn during infusion. Side effects: headaches, intense nausea and often uncontrollable vomiting. Drastic decrease in appetite (and weight: about 70lbs)
Last time it was checked, her CA12 was hovering around 86.
I'm guessing it's currently off the charts. - Carolyn
- July 2011 started with carboplatin and taxol (7 rounds in all). Reaction to the decadron had some nausea at the beginning sol they tweaked it with emend, sore muscles and joints day 4,5,6,7 after chemo usually spent in bed. and spent
the rest of the time getting semi normal before the next round Stopped in Sept until december 2011 during which i had surgery last treatment january 20 2012 - Amazing Race
- taxol and platins - 9 treatments completed 4/1/10 (3 of which included IP cisplatin) - Melanie
- Carboplatin and Taxol once every three weeks, 6 times. Fatigue, faux sence of energy at first, couldn't sleep for two day after, then crashing with neuropathy pain and fatigue - Debb
- I started the chemo the frist week in July 2010. I had a reaction to the first chemo which was Carboplatin and taxol so they changed it to Cisplatin and taxotere. They loaded me up on steroids and during the next treatment i had yet another reaction this one only worse than the first. So as a last ditch effort they changed again to cetuximab and honestly i cant remember what the second one they gave me with this was. I was ok with this drug but the side effects were aweful! I broke out all over my face with horrible acne and it made the radiation stronger which made the raidation burns worse. - Jen
- starting chemotherapy about 12/19/11. Ended chemotherapy 2/12/12 - Onecraftymother
- Taxol and carboplatin. 6 weekly infusions. - Dan
- Two induction treatments then weekly chemo. Hospitalized eight times due to vomiting and fatigue - Cullen12
- Carboplatin and taxotere,first treatment went well without much side effects. Look forward to the others. - Arlene
- Carboplatin 08/06/2010. Mild Fatigue.
Carboplatin 08/26/2010. Radiation recall.
Carboplatin 09/16/2010. Neck is tightening due to radiation recall.
Alimta
erbitux
Low Platelet 10/07/2010 Carboplatin, Taxotere,5FU 01/2011 n 02/2011. - Kim
Cisplatin (Platinol, Platinol-AQ)- Taxol/Carbo IV 2 rounds 21 days apart
Taxol/Cispatin IP 8 rounds done day 1 day 8 - Dee
- 12/7-10. Not too sick alot of mouth sores and counts were drastically low hospitalized 12/15 with new oncologist - Renee
- 2 rounds (5 day hopsitalization each) mouth sores, some hair loss, changes in taste and smell, weight loss - Maya
- 5FY and cisplatin - Pam007
- 2 treatments of Mitomyicin and 2 4-day (24 hour pump) of 5-FU
Started 8/31/2010 - Peter
- Cisplatin and 5FU, nausea and dizziness - Nellym
- Began 5FU and cisplatin chemo on 1/4/10 and 2/1/10 for 1 wk cycles.
Side effects: nausea, vomiting, diarrhea, mouth sores, and fatigue.
Hospitalized after last day of 5fu infusions for 3wks for chemo toxicity, diarrhea, severe abdominal cramping, dehydration uncontrollable fever, etc.
At least I had completed menopause at age 42 and did not have to deal with the emotional side of this. Stopped HRT during treatments only.
- Kelly
- side effects; weakness, fatigue, occasional nausea. - Kathryn
- Gemcitabine: will be administered through IV for over an hour.
Cisplatin: will be administered through IV for over an hour. He will have to rehydrate 4 ours beefore injection.
- Kristin
- At first it was the same as radiation, but when they got aggressive in August, I was stuck to the couch for 2 weeks. Weakness, major nausea, muscle and bone pain, throat swelling, mouth sores, major shivers and shakiness, tremors, spinal and head pain, throbbing from head to lower spine...theres more but can't remember them all. - Kristi
- 3 Cycles of Chemo - Cyclophosphamide, Vincristine, Cisplatin - Dec to Feb. (3 weeks apart) - Foot Drops and trips and falls
3 Cycles of Intensive Chemo with Autologous Stem Cell Transplant - Carboplatin & Thiotepa - Feb to May (4 weeks apart) - Hearing Damage - Rosiesweetrosie
- Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable. - Tia
- Dec - 2010
Jan - 2011... so far
Feb - Peggi
- See Surgery Description> apparently I cannot follow directions - Debbie
- 3 (months not sure of all the drug names. A/C and taxol i think. Round two,Cisplatin. - Kathysman
- 2000 - Chemotherapy - Daria
- preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU. - Jpfrank
- Oct 8th- January 13th, 2010 Lost Hair after 21 days. Fatigue, dry mouth, muscle cramps that were very painful after 1st treatment. terrible rash on my head and neck the whole time I was taking chemo. - Mary
- cisplatin, felt and tasted every drug they put in my body. It was very yucky. I am incredibly sensitive to the medications and was eventually given Ativan to help me sleep through it all. Lasix was fun though at the end of treatment peeing every 5 minutes!! - Reneecarroll
- Chemo-has "chemo brain" - Mishell
- Chemotherapy is bi weekly on fridays!
Side effects include Nausea, fatigue, and weakness, hair thinning - Natalie
- That also starts withen the next 3 weeks. - Beth
- Done and it sucked - Stacy
- Cisplatin 2009 six weekly treatments - BeeClassic
- nauseousness.... - Brenda
- Cisplatin via port - Claudia
- Loss of hair and nausea - Tara Mansir
- Have had 5 chemo treatments. Took 5 hour "naps" afterwards. Some foods tasted nasty! Normally a huge water drinker but water nauseated me. Required at home IV infusions of Potassium and Magnesium for 8 hours/day for total of 15 days, also received a few infusions at the clinic for dehydration and low electrolytes. Anti-nausea meds didn't work on me. - Terry
- Chemo not too bad with side effects. Im puffy. - Margaret Rogers
- Oct 07 to Dec 07 - Cisplatin chemo 1x a week with radiation;. Constant terrible nausea, very sensitive to tastes and smells. Ate only carbs, couldn't even stand the smell of my dog! Everything nauseated me.
Aug 08 to Dec 08 - Carboplatin and Paclitaxel every 3 weeks x 6 doses. Hair gone by 2nd treatment, fluid overload on chemo days due to drugs being hard on kidneys - had to flush. About 2-3 days post chemo, horrible bone pain, numbness and tingling in hands and feet (peripheral neuropathy) and constipation that almost hospitalized me. Would last for a week or so and then settle down. Horrible fatigue, felt like lead. My hair started coming back really quickly after treatment stopped,but the neuropathy lasted almost a year, fatigue continues to be a problem. UPDATE Feb/10: Going back for another 6 rounds of the not so pretty poison. Carbo/Taxol once again. Gonna miss my hair...oh yeah, and the ability to feel human! - Chickracer
- 5 treatments of Cisplatin - Strong4mom
- Cisplatin (40 units) every Monday for five weeks, beginning April 26, 2010. Hair thinned; veins hardened; steroid acne; acid reflux; turned yellow after treatments (that was odd). - Safia
- i was put to sleep with benegril - Lorena
- Paclitaxel, Cisplatin, Bevacizumab, Avastin - Cheryl
- once weekly low dose cisplatin during radiation. 40 mg/m2. ends up being 74 mg. i have a half liter of hydration that includes potassium and magnesium, then premeds of zofran 32 mg and dexamethasone 20 mg. then the chemo. then another half liter of hydration with the electolytes. i also get amofostine 500 mg injection subcutaneos (owie) and lasix 20 mg which i save till i get home cuz i would never make it and would pee my pants in the car! lol
side effects are nausea, so far no barfing. i have compazine 10 mg for prn use and for when i am desparate phenergan 25 mg suppositories, but dont think i will be using them with the diarrhea....wanna leave any bum stimulation alone! i have stopped taking my omega 3 fish oil pill cuz now and then they make me burp up fishy taste, no way do i need that now! lol - Dawn
- 1 night a week, 12am-8am - December 2008/February 2009
Bedwetting, weight loss, nausea, fatigue, immuno-issues. (I caught the damn BIRD FLU!!) - Ali
- N&V, Fatigue, Dulled mentation 12-15-09 to 1-30-10
SECOND ROUND OF CHEMO, CISPLATIN 01-01-11 to 02-17-11
LOTS OF VOMITING - Michele
- Constipation. Fatigue. Nauseau. Metalic taste. Weight loss. - Alicia
- Chemo was my biggest fear. Hearing so bad horror stories I was besid myself with fear. I actually have 1 more left to go and no problems except for a mild nausea about day 3 and thats it. Never really got too tired and never lost my hair. It really was like being pregnant as far physical problems with tired and nausea. It was a low dose cisplatin for 5 weeks. - Deborah
- I had my 1st chemo treatment on 12/10/07. If cancer cells remain, they are microscopic and floating around in my body and being ZAPPED by chemo! I qualified for a trial and receive Erbitux (usually for metastatic cancer) every week (which causes acne). The nausea is gone for now, mouth sores are fading, and acne is blossoming. The Oxilaplatin will be decreased next time due to the mouth sores. It also causes Neuropathy. - Melanie
- 10/15/09 - 1/6/10 (roughly). No huge effects. Some light fatigue and nausea. 11/1/10 - 2/28/11. Extreme fatigue, some nausea and vomiting. Kidney failure resulting in dialysis (November 11) - Lou
- Started in July 2009 was suppose to have every 2 weeks, but blood count went down so had to push out either 3 or 4 weeks. I hurt from my head to my toes the week of chemo, and then after that started gradually getting better. Neuropothy in hands and feet. Should go away eventually.
Finished chemo Feb. 11, 2010.
- Cowgrlsrul
- Chemo came after radiation the first time, chemo only the second time, radiation only the 3rd time. Allergic reactions to almost all the drugs tried, but that was the second time. The ones that I didn't react to made me very sick, so I'd go in to be hydrated the day after chemo since I was unable to do that at home. It's hard to eat and drink when you're asleep. Another side effect of the drugs and certainly the pain killers for me. - Judy
- I have had two rounds of chemo, and the next will take place on Jan 31, 2012. After that, three more rounds! - Crystalwoman
- 6 chemotherpay treatments. Cisplatin for 2 and Taxol/Carbo for 4. Stomach nausea,bone pain after Neulasta shot, constant dehydration, tired all the time & neuropathy in feet. - Maria
- felt sick all the time, metal icky taste, neuropathy, ruined joints >:( bone pain - Vwscully
- Initial treatment: ABVD/MOPP (8/92-12/92). I received 6 cycles with complete response. The chemo was relatively well-tolerate.
Salvage treatment: DECAL (Dexamethasone, Etoposide, Cisplatin, Ara-C, L-Asparaginase) 9/92-12/92. One brutal regimen! Cisplatin was the worse. Three cycles with complete response followed by stem cell transplant. - Heather
- Induction chemo for 2 months prior to radiation treatment - once a week during radiation; mouth sores for four days after first round, hair loss, fatigue, and some taste changes, but all in all, he did really well. Very little nausea. - John's Wife
- First treatment was June 8th 7 hours between the other meds olus the chemo..Cisplatin and Gemzar.. Felt ok the day after but then started feeling very sick, achy, headache, ringing in ears, coulnt eat, weak, dizzy,tired,shaky all over I only felt well enough to go to the doctor on the 7th to have my blood drawn..saw dr and he said he would up my steroids next time and that should help
second treatment was on the 8th, Just the gemzar.. Really tired and achy. Dizzy and weak. Had my shot of Lewnasta on Monday.
Still fell tired and bone pain - Joanne
- Chemotherapy 12/09 to 2/10- loss of hair, weight, blood clot, fatigue, low white blood cell count and nausea neuropathy in finger and toes. 6/10 to 1/11 same symptoms as previously noted except for no blood clots. - Chrisandra
- Avastin-2008 and 2011, Cisplastin-2009 and 2011, and Tarceva-2011. - Crystal
- December 6th, 2010 was first Chemo treatment... my mother is doing good..not neauseous, joint and leg pain, Hair started to hurt two weeks after first chemo treatment. Still playing golf...not eating much... get tired easily...gets cold easy - Jackie
- yes - Cindy
- 750ml & 500ml cisplatin & taxotere respectively on 12/10/09,12/31/09,1/20/10,2/11/10.i thought they were trying to kill me! - Daddyo422
- Chemo began September, we are on third round of a four-round cycle. We expect five or six treatments will be needed. CT scan will tell us more after fourth round. - Kristi
- chemotherapy given from January to September
Side effects: dehydration, vomiting, blood transfusions - Darra
- R-CHOP 08/2008-12/2008
R-ICE 01/2009
ESHAP 02/2009-03/2009
BEAM 05/2009 - Ligaya
- 3 total - week one - week three and week five
easy to do - no issues during treatment
lost my beard and hair - so I shaved it short to look like I did it on purpose - wore a crocheted cap - head was always cold. - Robert Welton
- 2 cisplatin 3/22/2011: nausea! and fatigue! - Cheryl De Luca
- Cisplatoin 1x week for 7 weeks
Dates: Aug 2011 through Nove 2011
Side Effects include;
Nausea
Hair loss from both radiation and chemotherapy
Eyesight has deteriorated a little
weak - Jcbunch
- Bleomycin, Cisplatin, Etoposide for six months. Nausea and blood loss. - Vanessa
- IP chemo. Taxol and Cisplatin. She has suffered from the following effects: fatigue, nausea, heart burn, pain in her lower abdomen, numbness/tingling in her hands, legs, feet and "chemo brain" - StephLoves
- February 2009: CA125 level was around 3500. She began treatment with Taxol/Carbo with Avastin. Within two weeks, she lost all of her gorgeous red hair. Energy level dropped significantly.
She continued having "maintenance" chemo.
June 2009: CA125 dropped to 32, and then to 16 later that month. Oncologist decided to stop chemo- as there was no sign of cancer!
March 2010: Having chest pain/shortness of breath. CT scan showed fluid in her lungs. Testing after thoracentesis revealed cancerous cells in the fluid.
CA125 was back up to 300.
It is now referred to as "RECURRENT CANCER"
She began chemo again: Cisplatin and Gemzar.
Cisplatin was causing tinnitus. Oncologist decided to discontinue to avoid permanent hearing damage.
The Gemzar would usually burn during infusion. Side effects: headaches, intense nausea and often uncontrollable vomiting. Drastic decrease in appetite (and weight: about 70lbs)
Last time it was checked, her CA12 was hovering around 86.
I'm guessing it's currently off the charts. - Carolyn
- none the dr did a slice and dice SIDE AFFECTS WERE WEALINING OF HEART MUSCLES HAD A STROKE 2 YEARS LATER AND NEEDED A PACE MAKER PUT IN YES I AM THE BIONIC WOMAN HEAR ME ROAR ALSO HAVE NEROPATHY IN FEET AND LEGS - CELESTE FROM CT.
- cistplatin, bleomyocin, etopiside,
numbness in hands and feet nausea and weakness major chemo brain - Kara
- 1. Chemo Sept- Oct.2010
2. Chemo Nov - dec. 2010
currently ip chemo - Brombeere
- 1st. Chemo July - August 2009
2nd. Chemo February 2010 ip.chemo
3rd. Chemo January 2011 ip.chemo - Carmen31
- intraperitoneal taxol and cisplatin, 6 - 10/06 (heinous, too long to describe); HIPeC something-or-other intraoperatively 10/07 (really ghastly); IV carboplatin and gemcytabine, 2 - 5/08 (some hair loss, fatigue); sunitinib clinical trial 2/09 (painful hands and feet, fatigue); doxil, 3/09 (fatigue); taxol and carboplatin 5 - 9/09 (hair loss, fatigue, neuropathy, tinnitus); Avastin 10/09 to present (runny nose) - Sarah
- Taxol and Carboplatin - 6 rounds beginning August 2010. Side effects included body/joint pains/aches, loss of hair, itchy skin, constipation, headaches. - Thu
- 1st. Chemo Feb. - March 2009
2nd. Chemo Nov - Dec. 2009
3rd. Chemo ip. Aug.-Sept.2010 - Katharina
- July - November 2008: 6 rounds IP Cisplatin and IV taxol. Side effects: You name it, it happened... hair loss, nerve damage, mouth sores, drop in red blood cells which required a transfusion, high creatin, low magnesium and potassium, diarrhea, constipation... I still blame the nurse for not making sure my dexamethosone was added to the chemo!
Next Monday I start 6 rounds of IV Carboplatin and Doxil. - Catherine
- 4 round of cisplatin, bleomycin and etoposide - Mini
- taxol and platins - 9 treatments completed 4/1/10 (3 of which included IP cisplatin) - Melanie
- July 24,2009 first treatment taxol and carboplatin. The only problem I had was my own fault. I got sick that night because I came home and ate stewed tomatoes and chased it down with a Pepsi! Big mistake because I quickly learned that Chemo and acid DON'T mix. Treatments 2,3, bought feet itching, loss of smell and taste. Treatment 4 was not to bad slight big toe bleeds but manageable, slight problem with vision seeing bright white spaces from within my eyes. Treatment 5 I had a mouth bleed, neuropthy more consistant. Treatment 6 manageable but eyes still have the spots. Neuropthy worsens, still itching. - Solliah
- Cisplatin, Etoposide.. No Bleomycin due to pulmonary lung test not being "average" you could say - Juanita
- I do not remember all of the names. The chemo was a combination of four different chemo drugs. It did not work. My father experienced nausea and could not taste anything so lost his appetite. He also was very sensitive to temperature.
We are still waiting to start a trial chemotherapy drug! Pray, pray, pray! - Janelle
- Doxorubicin and Cisplation-3 Cycles
Doxorubicin and high dose Methotrexate -1 cycle - P
- Bleomycin, Etoposide, Cisplatin (BEP)
4 cycles
Side Effects: Blood clots, low blood pressure, fever, neuropathy, vomiting, nausea, hair loss, weight loss - Theaverills
- My husband had 4 cycles of chemo. Aug 2005-Dec 2005.
Son is having 3 cycles. Started 8th June 2010... next cycle 28th June 2010. Both lost hair. - Barbeeh
- February - June 2009
Taxotere
Cisplaten
5FU - John
- Months of daily treatment with both Cisplatin and Herbitux -- major side effects included a rash that covered me from head to toe, skin that was so dry that my scalped split open and bled when I vomited (which I did several times each day). Further side effects included hallucinations, tremors, chills, hot flashes, disturbed sleep patterns, fever, loss of hair, etc. - Lonnie
- May 7, May 14, May 24. (Now scheduled for June 1, 8 and 15). Side effects are fatigue and nausea. Taking anti-nausea meds. Worst part is we can't keep enough fluids in him to flush out the toxins due to chemo. We're told this is more common in throat cancer where food and fluids are taken through a feeding tube. Starting to lose patches of hair. - Tim
- Feb 14, 2011, Cisplatin, slightly tired immediately following treatment. March 7, 2011, same as treatement number 1.
March 28th, 2011 - TBD - Kathy
- Dry Mouth. Lost body hair, Sick at stomach, weight loss. - Anthony
- It seems that my side effects (nausea, tiredness) start a couple days after treatment. Emend and Zofran seem to be helping. - Kent
- 1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss)
2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment.
2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course
2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course. - David
- I started the chemo the frist week in July 2010. I had a reaction to the first chemo which was Carboplatin and taxol so they changed it to Cisplatin and taxotere. They loaded me up on steroids and during the next treatment i had yet another reaction this one only worse than the first. So as a last ditch effort they changed again to cetuximab and honestly i cant remember what the second one they gave me with this was. I was ok with this drug but the side effects were aweful! I broke out all over my face with horrible acne and it made the radiation stronger which made the raidation burns worse. - Jen
- Set for July 6 and July 21 - Elena
- Three Cisplatin doses, Jan 4, Jan 26, Feb 16. Never got the Feb 16 dose as I was too sick from throwing up. - Frank Baldizan
- A 2 chemical soup every 3rd Monday and then a 24/5 fanny pack pump the same week as above. I have 1 week on and 2 weeks off treatment - Rick
- 3 heavy does of cisplatin thankfully no hair loss or sickness just some constipation which was a pain oh and some weight loss - Davies Millzo
- 8 weeks of single dose of cisplatin...loss of taste, luckily I was on a PEG tube. I would strongly recommend the PEG to assue that enough protien uptake to support proper healing - Brad
- Chemo - Cisplatin - Day 1 of week 1 / week 4 / week 7 - Kenny & Sammy
- yes, cisplatin treatment was needed as the lymph node in right neck lump broke through the cell wall; attempted 3 chemo treatments {large doses} every 21 days followed by 2 days of 2 hour treatments of iv saline soutions to wash out the chemo and lessen its effects on my kidney, though my body had too intense side effects..the chemo treatments changed to weekly for remaining 7 weeks with smaller doses of cisplantin - Dennis
- 2 Full Week Doses (M-F) - Howard
- 3 Cisplatin mega doses, 100 units per time, 6 hour chemos - Kerry
- Cisplatin gave my husband ringing in ears but much better now. Had complications each time after a chemo. Was hospitalized twice for them. - Nita
- Cisplatin ....nausea and fatigue - Barbara
- Chem with Cisplatin, taxotere and 5-FU in pump. - Mary1ds
- 1st one today 26-April-2010 Slight nausea, headache and heart burn so far so good 2 more to go 3 weeks apart. 2nd was uneventful opted for the 3rd one while throwing up in the sink in the corner of my Rad-Oncs offce. Mucus was triggering my gag reflex something fierce by then, was going to hospital getting hydrated 1 or 2 full bags to lessen mucus knew how important that third dose was and made it to the end was glad I did. Didn't have many side effects from the chemo had tinnitus going in so when they asked I said i didn't care I have it already go for it. Was no cake walk and have talked to many others who have had tons of side effects so I guess I was lucky - Mike Rada
- after 1 chemo treatment I don't feel any reaction as of yet. Next treatment July 14. - Ozga
- My cocktail included Fluorouracil and Cisplatin. I - Chris Hildebran
- Two induction treatments then weekly chemo. Hospitalized eight times due to vomiting and fatigue - Cullen12
- None lol...Five Days "Induction Chemo" Nov. 2009 with 26 high dose infusions of Cisplatin, Taxotere, Flourococil FU-5 and other meds...I don't reccomend this and had to be hospitalized and nursing home for 6 months in isolation, and 1 month in ICU. Extreme swelling then lost 100lbs in one month, diarreah,
nauseausness, vomitting, septic shock, organs failing, on respirator, severe neuropathy, muscle paralysis from waist down and could not walk for 10 months, toe drop, foot drop, conjunctivitous, vision trouble, then blindness in one eye, abscesses, MRSA infection, Staph infection, C-diff, anemia, hemolysis requiring blood transfusions, shingles, tinnitus, bed sores on back, butttocks and ears, 2nd degree burns on face and hands and inside mouth and throat, all toenails and fingernails came off, hair loss and thats I rememeber. - Paul
- same - Glenn
- Hearing loss and ringing in my ears. 3 chemo treatments, first, fourth and 7 th week. Saliva got thicker then syrup,honey after treatments ended. Couldn't swallow and had to sleep sitting up in a recliner for weeks afterwards. - Andrew C
- Cisplatin. Lots of nausea. Some hair loss. - Scottie
- Cisplatin. 2 infusions 3 weeks apart. - Nanice
- hearing loss and ringing in ear from chemo (cisplatin) - Mike
- 3 treatments. Cisplatin at first but had terrible digestive side effects so used erbitux for last 2 treatments - Chris B
- Carboplatin 08/06/2010. Mild Fatigue.
Carboplatin 08/26/2010. Radiation recall.
Carboplatin 09/16/2010. Neck is tightening due to radiation recall.
Alimta
erbitux
Low Platelet 10/07/2010 Carboplatin, Taxotere,5FU 01/2011 n 02/2011. - Kim
- Start on March 29th 2011. - Paul
- April 4,2011, minor nausea
April 12,2011, rash on upper lip - Qm2
- February 25, 2011 - Cysplatin (Cisplatyn) I don't know
4 of 8 weeks only as it ruined my throat way early and did it's job - according to the dr. - Pat C
- Started treatment April 29: cisplatin two double doses - didn't do third dose due to ear ringing, had to take a booster shot after second treatment due to WHC crash.
Side effects: ringing ears, nausea (but controlled by Zofran so not a problem)
Other things: acid reflux developed quickly (not something I have had in over a decade - controlled by prilosec on advice of oncologist) and constipation from zofran (controlled with miralax and glycerin capsules and lots of water) - Robin
- Cisplatin - I was sick every day. Had to take anti-nausea medicine every 2 hours. - Kim55
- 2 six hour Cisplatin courses. Some hearing loss. Some nausea. Actually felt better after Chemo treatments
- Doug
- Low-dose chemotherapy (Cisplatin) coincided with radiation, 1 day per week, beginning December 7, 2009 and ending January 25, 2010. Side effects included nausea, fatigue, weakness, depression, low blood counts, increased age in appearance, loss of some hearing in the higher frequency range and tinnitus (ringing in both ears). - Greg
- Chemotherapy Cisplatin. Vomiting started the first day of chemo and stopped two weeks after treatment complete (9 weeks of vomiting & vomiting). - Billan
- Chemo (Cisplatin) is anticipated to begin the second week in July. Treatment plan will include 6 chemo sessions (2 sessions every 21 days). Will complete chemo concurrently with radiation. - Kim
- Started Treatment on May 24,2011... last Chemo July 5, 2011... hair thinning, but no sickness - Scott Smith
- Had 3 different types of chemo, 24 hours per day for 7 days. Side effects. Loss of hair, none that I can really speak of. - Star
- Hyporexia, nausea, tinntitus - Lili
- 3 five hour Cisplatin sessions, every three weeks, starting Monday, November 7th 2011 - James
- 11/9, 11/30, 12/21 - loss of appetite, cold, "chemo head" (loss of concentration and short term memory) - Tim
- 3 cisplatin treatments, concurrent with radiation treatments - Chris
Cyclophosphamide (Cytoxan)- Can not describe. First what hurt me the most was to be among so many people with cancer, no hair, having the quemo and problaly think about life and death, all with a face of fear... - Marcia
- R C h o p. 21, Six cycles stated feb 11 last one ( hopefully )June 1st 2011.
Severe tummy gloating, gas, and pain. Heavy fatigue and nausea, constipation, sweats, hair loss, neuropathy, weight gain in trunk area. Sweats. Fevers. Period gone after first week. Dunno if gone 4 good. - Heidi
- ACT - A was terrible, T was terrible C is easy - Clmoore
- started Feb. 26, 2010 I was admitted to hospital every 3 weeks for a total of 6 rounds of treatment - Cycles A and B. - Jessica
- finished with induction therapy, now gonna begin with consolidation. - Saahil646
- Hyper CVAD protocol. Started 3/22/10. None for the first 3 rounds of protocol. Last 4 rounds have had N/V, extreme faitigue, bone and joint pain. - Elizabethsad
- An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010:
Vincristine
PEG-aspariginase
Doxorubicin
Methotrexate
Cytoxan
Cytarabine
6-MP
6-TG
Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain. - Luis M.
- lots of dates,
spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea
vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints.
mercaptiprine, is every day, that just gives her a weird rash.
methotrexate makes her sleepy - Cheyenne Axe
- Vomiting, hair loss, fatigue, mouth sores, reduced immune function. - Brooke
- Methotrexate, Doxyrubicin, Vincristine, Vinblastine, Cytarabine, Etopomide - Alison
- Round one: 7 days of continuous chemo.
Round two: 5 days of 2 times a day chemo
Round three: 2 days of 2 times a day chemo
Followed by 3 days of 2 times a day total body radiation. - Gmc
- i had three induction therapies spaced about 6 months apart. and just completed two consolidation therapies. i am preparing for a bone marrow transplant. - Rebekah
- chronic vommiting ,hair loss tiredness - Sally
- I have been through my first month of Chemotherapy. I am now going to the Mayo Clinic daily as an outpatient taking doses of arsenic. No Fun!!! - Sherri
- i was supposed to get 8 chemo's. but i only received 7 because my blood count wasn't up in time. i had "Vincristine" (iv)every week. Cyclophosphamide(iv)every 6-8 weeks. Cisplatin (iv), every other chemo, and Lomustine (pill) every chemo. - Sammie
- At first it was the same as radiation, but when they got aggressive in August, I was stuck to the couch for 2 weeks. Weakness, major nausea, muscle and bone pain, throat swelling, mouth sores, major shivers and shakiness, tremors, spinal and head pain, throbbing from head to lower spine...theres more but can't remember them all. - Kristi
- 3 Cycles of Chemo - Cyclophosphamide, Vincristine, Cisplatin - Dec to Feb. (3 weeks apart) - Foot Drops and trips and falls
3 Cycles of Intensive Chemo with Autologous Stem Cell Transplant - Carboplatin & Thiotepa - Feb to May (4 weeks apart) - Hearing Damage - Rosiesweetrosie
- AC, 3-2-11 lots of nausea, hurt to breathe through nose, blinding headaches (3-4 through 3-6), all-over weakness through the first week, leg and tailbone area pain. - Jen
- Started Adriamycin/ Cytoxan infusions every 3 weeks, June 28, 2011 - Gloria
- Taxotere & Cytoxan. Had violent allergic reaction to taxotere during treatment #2 on Dec. 10. This one wiped me out. - Mary Ellen Martinelli
- Chemo sucked! It's a crazy way to slowly poison yourself and destroy every muscle that you have spent the last ten years working on. Chemo is barbaric and I will cheer the day when this is gone. Obviously, I don't work or support any drug companies. - Cindy
- high dose 1995
- Ellen
- Well, chemo sucks. What can I say? I had 8 heavy duty treatments, spaced 3 weeks apart. The first 3 were AC, the next 4 were Taxol. It kicked me in the butt, but I never threw up! - Hayley Townley
- To begin June 12th - Jadec
- TAC protocol. 6 rounds every 3 weeks. I refuse most of the pre medications (unless I need them) and ended up not needing any side effect meds my last 2 rounds. I'm having a great reaction to the chemo and my doctor is impressed with how I am weathering each round of chemo. He is shocked that my White and Red Blood cells are doing so well and I ended up being able to navigate the nausea without medications - which means no constipation!!!
The side effects range from liberating (no hair, chemo brain, slowing down, other people cooking for me) to pain-in-the-ass (constipation from the zofran, hungry from the steroids, no nose hairs, sensative gums, run over with a truck feeling from the neulasta) to the hysterical (I'm really good at the 'Old Man from Flordia Suffle' while I wait for my WBC and RBC to come back on line!) - Elizabeth
- 6 treatments 4/07 to 10/07
Fatigue, hair loss - Karin
- ACT from December 2010 - June 2011. - Leeza
- 6 Taxol + Cytoxan
Nausea, ache, neuropathy, squiggles in eyes - Swhiting
- Chemotherapy 4 X AC - side effects - extreme nausea, hair loss, fatigue.
Neulasta - bone pain.
Chemotherapy 4 X Taxol - Peripheral neuropathy, nausea, bone pain, loss of balance, extreme fatigue, hair loss, low blood platelet count. - Jeedee
- Six rounds. Finished in April 2010. - Hessica
- Starting on 18th April, 2011 - Jolene
- Started AC on 12/12/07. That was fine.
Had a reaction to Leukine (sp) now I'm
Neupagen daily. No problems there. - Doris
- Started first round of AC on June 12th....will continue 3 more rounds and then on to Taxol. - Karin
- Adriamycin/Cytoxan each 2 weeks for two months, then abaxane weekly for 12 weeks. Radiation follows with 35 treatments. - Joyce888
- Started chemo just before Christmas of 2009. Was given cytoxin and taxotere. Extreme fatigue, nauseousness, no tomato foods first few days after chemo, and no burning food allowed in the house! Had my last chemo February 20. Took 2 months FMLA during chemo. Early chemo-induced menopause. - Elsabe
- six rounds of CMF three weeks apart. commenced in December 2005 and completed in March, 2006 - Cindy
- 4 rounds of taxotere & cytoxan every 3 weeks.
Started 3/3/11.
Second round completed 3/24/11; had allergic reactions to both drugs.
Third round done without reactions (super slow drip) on 4/14/11. Fourth & FINAL round completed 5/5/11, and grateful for being finished!! - MIchelle
- First Taxol 1.5.11, once a week for 12 weeks, FAC once every 3 weeks from 3.30 - 6.1.11. Taxol made me feel like I was wearing a lead raincoat and concrete shoes. FAC was far more discouraging. Lots of digestive issues, couldn't eat, everything taste nasty. It was horrible. - Scrappy Darlene
- 9/9/10 - Adriamyicen & Cytoxan. Headache, dizzyness, restless leg syndrome, nausia-light in mornings. 9/10 -9/14/10 - EXTREME Headaches, major fatigue, constipation, dizzyness and car sickness. - April
- Chemo once every other Friday, eight prescribed. First four: Doxorubicin (a.k.a. Adriomicine) AND Cytoxin; last four Taxol. Nuelasta with every infusion prescribed.
See post "I'm just sayin'" for side effects from first 4 infusions.
- Sonja
- took Docetaxol (Taxotere) after FEC - finished chemo July 22 - ~~~~K~~~~~
- Chemo caused hair loss, bloody noses, fever, muscle pain, tingling and numbing, and nausea. And the shot gave me bone pain. - Kris
- July 22nd: extreme nausea, vomiting, lost 13 pounds. had to go in to hospital for IV fluids from dehydration. a few mouth sores.
August 11: low grade nausea, headache, feeling twitchy.
September 1:
September 22: - Elizabeth
- Last Chemo was May 23 2007. Cyclo/Adri/Taxol.
Lost 22 pounds. Very Weak, and my bones ached bad. Taste and smell was horrible. All is well now. Gained the weight back! darn. - Kelly
- Infusion #1 - 09-22-09. Severe joint pain in lower back, knees, and ankles. Intense nausea.
Infusion #2 - Intense nausea. Severe joint pain. Darkening of my fingernails. Severe headaches.
Infusion #3 and #4 - Intense nausea lasting my entire two week cycle. Headaches. Continued darkening of my nails.
Taxol infusions #1-12 - Slow physical changes to my finger and toe nails, intense nail bed pain which has been cumulative. Big drop in counts at infusion #10, nausea, fatigue. - Jill
- Jan 22/08
*Just Started CAF
(Cytoxan,Adriamycin,Fluorouracil-5-FU)
dose dense - 2 week x 4 cycles.
*Taxol + Herceptin
for 6 to 8 months
- Kelly
- Adriamycin-tore up my mouth and taste buds, cracked the corners of my mouth, leg pain/aches, fatigue, loss of hair, eyebrows and eyelashes. - Helen
- Fatigue and extremly low white blood cell count - otherwise known as neutropenia. - Rachel Pappas
- I have completed 3 of my 6 cycles of chemo. I am on Taxotere, Cytoxin and Herceptin. I will finish up in September, with the completion of the Herceptin in May of 2012. I am also receiving a shot of Neulasta which makes my bones ache. The chemo this time has not been so bad except for the flu like symptoms and achiness in my bones. I am tired but this is due to the anemia. - Laurie Harner
- started chemo end of may and finished it july 15th,had 4 altogether,side effects were severe bone and muscle pain ans sickness - Sarah
- First chemo session on 8/26/09 almost killed me...second session on 9/16/09 virtually no side effects other than no taste.
- Betty Guillen
- Started chemo June 8 2006 and finished up Sept. 28. 2006. Side effects weren't to bad. Just did what I was suppose to so I wouldn't have many.. Biggest side effect.. Baldness but I got through that too. - Lori
- Starting September 2nd - pretty clueless outside of that. - Ange
- Began Adreamycin/Cytoxin on Aug 30, 2007.Completed my last dose of Taxol on Jan. 30, 2008. My main side effects were the exhaustion and mouth ulceration and neuropathy in my toes and fingers with the Taxol. - Shrinklady
- suffer to heal. stay mindful of what it means to be aware. - Jenny Warrior- Amazon Woman Style
- The 4 "red devil" treatments were the worst & those neulasta shots! I had an allergic reaction to Taxol. Really bad! So they switched me to Tacrete. Easier to handle physically but took longer in between chemos. - Tricia
- E-CMF from Nov 08 Half way through Side effects very mild - Kath
- **Sept 14, 2010 - Chemo #1 of 4 - no side effects today; meds: Cyclophosphamide and Docetaxel
Day 1 - feel good, energetic
Day 2 - feel ok, gardening for 1/2 hr., ran a couple of errands; had sharp stabbing pains in middle of chest, right inner thigh near knee and left side of waist while walking/standing.
Day 3 - woke up very nauseous—ginger snaps and lemon drops took care of that
Day 4 - felt good; attend church conference with Thelma and Diana; enjoyed lunch; arrived home around 4:00; started getting sharp stabbing pains again as soon as I laid down to rest; called advice nurse; slight temperature…she suggested going to the hospital to have it checked out. Dr. says this is one of the side effects and gave me a painkiller.
Day 5 – feel good, just tired; developing mouth sores
Day 6 - sharp stabbing pains very infrequent, wig appt., itchy scalp; legs shaky, tired p.m.; metallic taste
Day 7 - felt good a.m. and p.m.; picked up Miracle Mouthwash--works! Michelle cut my hair short.
Day 8 - good day, blood test
Day 9 - metallic taste,slight nausea
Day 10 - good a.m., metallic taste, headache p.m.; started taking vitamins for hair and nails
Day 13 - scalp sensitive; hair falling like snow; attend "Feel Better" class
Day 14 - woke up nauseous/took pill; Charlie shaved my head, starting from the back--smart
Day 15 - yoga class; movies with a friend
Day 16 - good
Day 17 - good
Day 18 - very good/with girlfriends all day/laughing, etc.
Day 19 - forearm sore/swollen, appt. with Dr. P, flu shot; prescribes Neupogen (to make more white cells) for Fri and Sat after chemo; I leave on counter for 2 days by mistake--needs refrig., called manufacturer--may be ok to use
Oct. 5 - day before chemo #2 - drank lots of fluids, took ginger root capsules; take pill for chemo prep early evening--wires me up
**Oct 6, 2010 - Chemo #2 of 4 - meds: taxetere (l hr.) & cytoxan (30 mins), flush (6 mins) - 9:00-12:30 - felt good, slept good; Days 3-7 fatigue/nauseous, stomach quesy
Day 1 - very energetic, cleaned and worked all day at home; 9pm sharp stabbing pains--took Norco, pains subsided
Day 2 - good, out to lunch; took long nap
Day 3 - fatigue, slight sharp pains, took Norco
Day 4 - little nauseous, weak, sleepy
Day 5 - fatigue, metallic taste, jittery, legs weak, moved slow, stomach hurts
Day 6 - out of it, fatigue, weak legs, slept in; napped during day
Day 7 - good - almost back to normal; took 1/2 hr. walk; stomach little quesy; red bumps on scalp/itch
Days 8&9 - good all day; sister came to visit
Days 10 - 20 good
**Oct 27, 2010 - Chemo #3 of 4 - Michelle went with me and we had fun crocheting, talking, laughing, eating snacks and ice chips. Steven and family came to visit. Late that night diarrhea started.
Day 1 - Stomach upset; didn't feel well at all; extreme fatigue.
Day 2 - felt like the flu, weak; stomach ache, vomiting and diarrhea
Day 3 - same as day 2
Day 4 - felt good in a.m.; diarrhea and heartburn started at noon; very weak
Day 5 - stomach upset, legs jittery, no taste/somewhat metallic; diarrhea, heartburn, fatigue
Day 6 - not too good, same as Day 5 but diarrhea stopped
Day 7 - not feeling well; Dr. P said to go in for hydration (1 hr. IV) because I may be dehydrated.
Day 8 - legs still weak
Day 9 - feel good except right arm and hand is swollen--later find out it is probably lymphedema
**Nov 17, 2010 - Chemo #4 of 4 - taxetere (1 hr), cytoxan (30 mins), flush (6 mins)
Day 1 - feel great, no side effects
Day 2 - feel good
Day 3 - weak and jittery, some nausea
Day 4 - weak, fatigue, no taste
Day 5 - fatigue, weak legs, no taste, cold/cough
Day 6 - fatigue, weak legs,no taste, congested, coughing
Day 7 - fatigue, shooting nerve pain; weak, slight diarrhea
Day 8 - fatigue, 101 fever, right arm swollen, coughing
Day 9 - weak, fatigue, cough; no fever
Day 10 - back to feeling somewhat normal; cough is getting better - Norma
- AC followed by Taxol total 24 weeks beginning Oct 2009
Became very neutropenic (low white blood cells) A couple of mouth sores - Rachel Pappas
- I had Cytozen(I remember it burning badly)I had three months of chemo before surgery, and three months after surgery, total of six months,side effects nausea, fatigue, mouth sores hair loss - Phyllis
- Red Devil, cytoxan, taxol....May 2002....Bone pain, tired all the time!...Gained weight - Judy
- Very sick. 12 years ago the drugs for side effects were not as effective as they are now and hopefully will continue to get better - Regina
- 6 Treatments - 3 week cycle
3 - FEC
3 - Taxoteer
Sept. 7, 2006 through Dec. 21, 2006 - Tari
- Dec. 19 2003 - Feb. 27 2004. First-line, dose-dense chemo. Taxotere, Cytoxan and Adriamycin. Horrible horrible horrible. Felt godawful (aching fatigue unrelieved by sleep, and absolutely no energy) for years afterwards. I don't think I'd do it again. - Dawn
- AC and Taxol - Donnalh
- Four cycles, last one January 28. Mostly fine, except I learned too late that even though I feel fine physically, it doesn't mean I can do all the things I used to do like shoveling. I really slammed myself a couple of times by trying to do too much. Constipation was the worst side effect, but Smooth Move tea works great. The nausea was tolerable, until I overdid it physically, then I felt like I was on an oceanliner in a hurricane. - Sue
- Chemo started 1/2. Four treatments with the last one being 3/10. Severe allergic reaction to the Taxol landed me in the hospital in February after the second treatment. Had to stop Taxol and go on adriamycin instead with fewer side effects. - Laurie
- 6 treatments from March 3, 1994 to June 29, 1994. Started with Taxol Study. Received high-dose Cytoxan 3980 mg and Adriamycin 74.6 mg for 2 cycles. Except for the 1st and the last, blood transfusions were required after every treatment due to low hemoglobin. I developed a blood clot in my right arm shortly after the first blood transfusion in April and had to be hospitalized and put on coumadin for 3 months. Had to be taken off Taxol Study because I could not take high-dose Cytoxan/Adriamycin and Coumadin. I was given Cytoxan 995 mg, 5-FU 995 mg and Adriamycin 99.5 mg for the next 4 treatments. The Adriamycin damaged my heart muscle. Other side effects were nausea, some vomiting, sores in mouth, diarrhea, heartburn, fatigue and complete loss of all hair.
6 treatments from January 20, 2006, to June 2, 2006. I was given a CMF combination of 1200 mg of Cytoxan (Cyclophosphamide), 80 mg of Methotrexate and 1200 mg of Fluorouracil (5-FU). This bout with chemo was much easier than the first. I also had a blood clot in my lung in February, 2006, and was hospitalized for 7 days and put on coumadin for 18 months. Other side effects were minor nausea, fatigue, sore mouth, minor diarrhea and only thinning of my hair. I don't know which one but one of the chemo drugs damaged my right eye and I am still having problems with it.
The worst thing to happen was the death of my husband and my boston terrier dog in May during this bout of chemo.
- Joyce
- Port-a-cath installed in May. What a joy that was! First of 4 treatments of cytoxin & adriamycin started the last of May. Loved that "dangerously red cocktail" called adriamycin. Sinuses were & still are all messed up from cytoxin. Neuropathy in hands, feet & legs to this date (2-09). Thankful for neurontin and cold sheets feel so good. Will it ever leave me in peace? Scalp got sore & out came the hair on Father's Day Happy Father's Day, Troy! We went out to our deck after church & 14 year old daughter cut & hubby shaved. POOF!
No nausea thank God for Zofran!! I felt better during & right after chemo (Aug '05)than I do now. What's up w/that?! So, I deal as best I can. - Sharon2353
- December 2000
every 3 weeks for 6 months
nauseus, hair loss, headaches etc.
December 2007
every week, then every 3 weeks for 16 months
nauseus, hair loss, nuropathy, headaches, etc - Maureen
- phase 1 - A/C, phase 2 - Pacletaxol with Herceptin, phase 3 radiation, phase 4 - continuation of Herceptin for full 52 weeks. Daily injections of Luekine then Neupogen.
side effects - neuropathy (still), hair loss, lost sense of taste, constipation, diarhea, bone pain, nausea, vomiting. chest pain (hate muga scans!)blood transfusions due to low counts - QuiltMom
- I started Chemo on June 19, 2008 and as of today 7/7/08 I have only had 1 treatment. My second treatment is this week on Wednesday, July 9, 2008. I will have 6 chemo treatments, 3 weeks apart.
The worst side effect I had was from the Nulasta shot I had the day after chemo. The bone and body aches really kicked my butt. I was fortunate and did not experience any nausea.
On day 14 I started loosing my hair. It was coming out by the handfuls!! By day 16 I couldn't stand it anymore so I buzzed it all off. - Wildspirit
- Began chemotherapy in 3'06. Side effects were mouth sores, nausea and vomiting. Bone pain, neuropathy in fingers and feet. Nail beds turned black. - Jerryann Norton
- ACT therapy- alot of bone pain; nausea; extreme fatigue. Currently experiencing neuropathy from Taxol. - Tenna
- FEC and taxotere. Three treatments of each starting 2/11 - Deb
- It was called cef (which is cefuroxime, epirubicin, and cyclophosphomide). It is used only in a couple of Canadian provinces as it is very expensive. - Sylvia
- Pending. I have only been told of what the drugs of choice will be and I can plan on being bald. - Shelly Bryant
- Starting A/C on December 6, 2011. Will have chemo every 2 weeks for 4 months. - Andrea
- NOW ON ABRAXANE AND AVASTIN CHEMO
SIDE EFFECTS WEAKNESS, FATIGUE, PERIPHERAL NEUROPATHY , NAILS PEELING OFF FINGERS, NOSE BLEEDS - ALL SOUND BAD BUT ARE TOLERABLE - Sharon Riley
- treatments spanning over 4 months. Felt poisoned and beat up the entire time. - Joannab
- Started 06-20-Nausea, constipation, severe headahces, body aches, fatigue, dizziness, hot flashes, grumpiness. 07-05-some Nausea, headaches, fatigue, dizziness, port became infected. - Cathy
- 4/2009 Abraxane and Carboplatin
9/2009 Taxol and Avastin
had an allergic reaction at the end of the run of Carboplatin
Avastin caused my blood pressure to increase sharply, so it was discontinued - Donna Peach
- Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable. - Tia
- Adriamycin/Cytoxan/Taxotere P.O.
1st Treatment 10/16/06 - Judy Christian
- Will start Chemotherapy Sept. 28, 2007. Six courses then radiation six weeks. Will be on Adriamycin, Taxotere, Cytoxan - Emmagordon
- Cytoxan and taxotere - Angelwthwingz
- First chemo starts July 7 2011 - Lauri
- 10/05-08/06 adriamyacin, very weak
- Melissa Ball
- First Chemo 9-8-2008. Side Effects - Pain, joint and bone pain, can't taste anything, headaches, bodyaches and my skin hurts and weight gain from the steroids. - Bleunote
- Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss
I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes.
I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite.
I started Tykerb in Feb 2009.
I will continue with Herceptin for at least 7 more months after surgery. - Yuyu
- Adriamicin, Cytoxan, Taxol - Judee
- Nausea, vomiting, bad headache, fatigue, mouth soreness, hair loss. - Linda
- I had 5fu, Methotrexate and Cytoxan. I had the 5fu and Methotrexate in an IV push the first and second Tuesday of each month. The third week I took Cytoxan pills and rested the fouth week. This was for a total of six months. - Marianne Svihlik
- Protocol: FEC-T (4 months/every 3 weeks)
FEC-T :Epirubicin/Fluorouracil/Cyclophosphamide cycles 1-3, then add Docetaxel for cycles 4-6
Finished chemo November 24/2010 - Rachel
- I had my 4 cycles of chemotherapy a month after my surgery and had the neupogen injection. - Leah
- Not sure now. - Ltajones37
- Blood work and chest xray September 11, 2007
Bone scan September 17, 2007
Port installed in right chest area September 18, 2007.
MUGA scan September 19, 2007
First Chemo treatment September 20, 2007
Neulasta shot September 21, 2007
Headaches and blurred vision
Hospitalized September 25, 2007
Found blood clot in the jugular vein
Started on lovenox and warfarin
Hair fell out in huge clumps 2nd week after first chemo
Second Chemo treatment October 11, 2007
Tiredness, constipation, nausea
Changed nausea prescriptions twice
Third Chemo treatment November 1, 2007
Potassium too low-put on prescription supplement
Nose bleeds and bruising from warfarin, not chemo
2nd MUGA scan scheduled for November 26,2007
4th Chemo scheduled for November 29th
- Nancy Grace D
- I just finished 4 rounds of A/C chemo treatments. Fatigue and infection was my worst enemy. First chemo treatment, I was in the hospital with pneumonia and neutrepedic. Very sick. I can only say I am glad its over. Now I am getting a port and will start Taxol next week. - Kimz57bc2
- on 2nd round of AC, bald and trying to hold onto willpower. I get pretty sickly the 3rd day after cheno, 1/6/12 3rd treatment - Lori
- 4 dose dense a/c for 8 weeks then paclitaxol for 12 weeks. which ended on 11 sept 08. Jan.09 12 weeks of radiation. - Cami
- 4 rounds of AC and 4 rounds of Taxol every 2 weeks from 3/4/2010 - 6/17/2010...just miserable! Landed in the hospital with neutropenia for 4 days.Mouth sores were the worst! Lost 10 lbs because of that. SO glad to be finished but still feeling the effects. Blah! - Mrsfitz
- 12 rounds of chemo - Chelle Jones
- September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months. - Staypositive
- Things I wish someone had told me- You feel the worst on days 3-5.
Even though you're nauseous you can still eat with enough drugs (I never threw up!)
Get your hair buzzed as soon as it starts to come out, and your scalp hurts, you will feel much better. Don't shave it until your scalp stops hurting.
Your nose runs because you have no nose hair to catch it
A little infection will knock you on your ass.
Claritin can fight some of the neulasta side effects
Glutamine and vitamin B can help with the Taxol tingle
Ugg makes flip flops- AHHH big help with the Taxol tingle
Some people lose their fingernails with Taxol (but mine are intact- I have chemo rings, though) - Jan
- Hair loss
Fatigue
mouth thrush
low blood counts
infection/ fever
- Susan
- 3/03 ~both Adri/Cytoxin together (red devil alright) lost hair~flu-like follicles actually hurt. Taxol = body aches but, milder but harder to explain symptoms. Determined to drink lots of water and not to throw up...didn't. Walked alot after. High stress prepping for infusions. Got a port catheter 3/17...had to put in main vein in my neck other too small... strange to me....still have... - Tammy Morgan
- August 2nd first chemo. Extreme heartburn, tired, body aches, fevers. Taxtore, Adriamucin,& Cytoxan every three weeks for a total of 8 treatments. Doctor wants to do more.
August 8th running a fever of 104 in the hospital for a week. Hallucations, extreme stomach pain and boby pain. Can't eat.
August 23rd chemo. 24th start of neulasta shots. Extreme body pain, joint aches, headaches, nausea and fevers. Hair getting thin.
Sept 13 hair is gone. High fevers been on antibotics since hospital. Same side effects as the first & second. Exhausted all the time.
Oct thru Dec extreme headaches, sick to the stomach, body aches, fevers, chills, pain in my bones and feet. Dizzy and blurry eye sight. Antibotics throughtout chemo with neulasta shots.
Had a fever of at least 100 degrees throught treatments of chemo. Highest was 104.4. - LC
- I had every side effect in the book! You name it I had it! Gained 20 pounds on the steroids. - Irene
- Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse.
Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo. - Marneyd
- Started Adriamycin/Cytoxan on 6-4-09 dose dense. (1 dose every 2 weeks for total of 4 doses.) Felt fatigue, stomach upset,hair loss. Started Taxol 7-30-09 dose dense (1 dose every 2 weeks for total of 4 doses.) Felt achey, tired and depressed, hair loss. - Lisa
- 6 cycles chemotherapy begining 11/12/07
complete hair loss, mouth sores, black nail beds, weight gain, inflamation, fatique, everything tastes like lead. Joint pain from Neulestra shot. - Evelyn
- AC dose dense,then taxotere all for 5.5 months.Lots of lousy side effects you name it I had it! - Marina Smith
- 4 treatments 1 every 2 weeks started late March-May 2008 - Karen
- 3 chemos, neo-adjuvant, before surgery, effectively reduced tumor size. 1 chemo after surgery. Side effects: nausea and dizziness. - Ragis
- Chemo was manageable --- did not have the nausea that some experience. The steroid you have to take ahead of the chemo was as bad or worse than the chemo itself. In the end, the worst part of chemo was what it did to my brain. Couldn't remember anything, which affected my ability to do my job. - Awoliii
- 4 cycles dose dense Doxorubicin and Cyclophosphamide, then 4 cycles dose dense Paclitaxel to start 12/09/08 - Manateetmr
- 5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared.
Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half. - Theresa
- 4 rounds of Adriamycin and Cyclophosphamide together every 2 weeks. I am done with those 4 rounds. 4 rounds of Taxol every 2 weeks I have 3 rounds left. - Gina
- chemo from march to july 2nd, 6 rounds every 3 weeks, cytoxin and taxotere. Tired, sick, runs, constipated, welts, nothing tasted right for weeks, tired, legs tired quickly, couldn't sleep, palpitations, achy, out of sync, chemo brain, neuropathy in toes, mouth sores, dry skin, lost all, ALL of my hair, itchy, irritable, weepy, mad at everyone, depressed, outlasted all of it. - Joey
- Rituxan with High Dose Steriods - 2009
Campath - 2009 - Anne
- Cyclophosphamid Carpoplatin Taxol - Manuela
- First round of chemo on 7 May 09
Second round of chemo on 1 Jun 09
Third round of chemo scheduled for 21 Aug 09
My doctor is using a new "sandwich" approach to treatment. 2 rounds of chemo > then 25 days of radiation > then 2 more rounds of chemo. This is new and apparently works better than all chemo then radiation.
I am in control and working to erradicate the cancer via chemo and radiation. - Jane
- Every week on Day 1 & 2 and Day 8. - Ashley
- ABVD for 6 cycles (12 treatments). Was quite well tolerated, tired for a few days after, hair loss, mild nausea but no vomiting, changes in bowel motions, mild rash on feet and arms, aching veins.
MADEC (methotrexate, cytosine, dex, etoposide, cyclophosphamide) for 2 cycles, one week of chemo in hospital, 2 weeks to recover then repeat. Fatigue, mild nausea, hair loss.
BEAM (carmustine, etoposide, cytosine, melphalan) prior to stem cell transplant. Have only just started this today, had carmustine and so far all good but I know this will change. - Lydia
- Initial treatment: ABVD/MOPP (8/92-12/92). I received 6 cycles with complete response. The chemo was relatively well-tolerate.
Salvage treatment: DECAL (Dexamethasone, Etoposide, Cisplatin, Ara-C, L-Asparaginase) 9/92-12/92. One brutal regimen! Cisplatin was the worse. Three cycles with complete response followed by stem cell transplant. - Heather
- 4 cycles of chemotherapy ending in late August, radiation to follow depending on how the cancer responds. - Vanessa
- ABVD May 2008-October 2008
ICE January 2009-March 2009
BEAM April 2009 - Phoenix
- Start Chemo May 18th 2007
Cisplaton and Etoposide - Dan Dunigan
- Started chemo Mar 1st 2009 Continued pain,a very few side effects to date-next treatmentApril 12 - Mike
- chemotherapy given from January to September
Side effects: dehydration, vomiting, blood transfusions - Darra
- R-Chop 21.
28th Sept '10, Feeling sick ++++. Horrible day, nothing to eat,absolutley crap.So physically and mentally exhausted.
19th Oct '10. Hair starting to fallout. So depressing
9th Nov '10. Felt so sick, again so drained, I couldn't get out of bed.
30th Nov'10. tired and sick.
21st Dec '10. Sickness gets me again.
11thJan '11.Felt bloody crap, sick, dizzy and very tired.
There is no point in denying its easy, although it does effect people in different ways and you dont necessarily have all the side effects
- Lily
- R-Chop--6 cycles total..completed 5/18,6/8 and 6/24/2011,7/15/11 8/8/11 and 8/25/11. side effects: nausea, bone pain, headaches, ear pain(probably from neulasta/neupogen),some fatigue, severe heartburn/epigastic discomfort, mood changes - Robyn
- 6 treatments of R-CHOP, 3 weeks apart. - Carl Wilton
- GoSH, so many. Six cycles of RCHOP. side effects...
1) affected my eyesight since the 3rd cycle, never got better. It was the first time i feel how its like to be a blind person. Luckily was blind for only a day, and got better but never totally cured.
2) Shingles! yes i repeat shingles! its seriosly the worst thing to get when ur immunocompromised!!!the itch is so intense!
3) FATIGUE--> never seem to end, but sometimes i think its because im lazy - K33pcool
- R-CHOP14 to start on September 13 for six cycles. - Beth
- Chop 2002
Cop with Rituxan 2008.
Hair loss, numbness (not bad this time), fatigue, insomnia from Prednosone. - Bob
- R-CHOP - Sue
- R-CHOP 25/11/11 - Bethany
- R-CHOP 08/2008-12/2008
R-ICE 01/2009
ESHAP 02/2009-03/2009
BEAM 05/2009 - Ligaya
- R-Chop-6 cycles. I had one treatment of Treanda and Rituxan before my second biopsy confirmed the presence of b-cell lymphoma, then it changed to 6 cycles of R-Chop. Started treatment in June and ended Oct. 27, 2011. Now receiving 2 years or Rituxan every other month.
Side effects were fatigue, nausea, change in taste , diarrhea, bloating and weight gain from prednisone..anxiety..immune suppression that lead to infections towards the end-staph infection in my face and uti-had to reduce the days I was working due to the immunesuppression. - Eileen
- CVP + R - 6 cycles and then two years of the "R" (Rituxan). stomach pain, diarrhea, fatigue for a week. Also, I receive an injection of Neulasta after each chemo which gives me bone pain but I am learning ways to stop that too and now go in for hydration the day after. I medicate myself for a few nights after the injection with Benadryl and Tylenol. - Kim G.
- R-CHOP 21
Round 1, July 19, 2010 (extreme drop in blood pressure, shortness of breath, chest pressure, swelling of hands, feet and face) - TinaK
- 4/2007-7/2007: 6 cycyles of EPOCH (Etoposide, doxorubicin, cincristine, prednisone, and cycolophosphamide). Side effects include hair loss, nausea, diahrrea, neutropenia, weight loss, mouth sores, and more - Angela
- R-CHOP starts 8/26/10 Major Side Effects Day 1-3 Headache and Diarrhea Mouth Sores Days 3-6 - Danell
- R+Chop, 1/4/2012-4/23/2012 - Faydra
- 2004.-I received quimo scheme CHOP (ciclosfamida -Vincristina -Adriamicina - Prednisona.
2006.- 2nd. line of quimo. with scheme ESHAP: Etoposido - Platino - Ara-C-Dexametasona - Miriam Ucañay
- Rituximab, Cyclophosphamide, Vincristine, Prednisone on 3 week cycles.
Started 1st September 2010.
Side effects - constipation, mild nausea, night sweats, tiredness, mood swings. - Kat
- RCHOP 21. Three rounds total. 11/2/0, 11/23/10, and 12/14/10. Worst effects so far: heartburn to point of esophageal spasms, constipation, headache, mouth tenderness and dryness, fatigue and hair loss. - Patti
- Rituxan 2001, Rituxan CHOP 2002, Rituxan 2003, TRM-1 (clinical trial) 2004-2005, Rituxan/Doxil 2006-2007. I have never reached a remission "yet" still hopeful! - Shirl
- eww - Amanda
- 1. Chemo Sept- Oct.2010
2. Chemo Nov - dec. 2010
currently ip chemo - Brombeere
- 1st. Chemo Feb. - March 2009
2nd. Chemo Nov - Dec. 2009
3rd. Chemo ip. Aug.-Sept.2010 - Katharina
- Nausea, fatigue/sleepiness, "Chemo brain" (inability to concentrate), dry skin, no nail growth, hair loss.
January - May as of now - Gemmag
- August-January 2012. - Sarah Friedman
- Four rounds of VIP. Ifosfamide, Cisplatin and Etopiside, one day Cytoxan to motivate marrow growth. - Tyler
- Had 3 different types of chemo, 24 hours per day for 7 days. Side effects. Loss of hair, none that I can really speak of. - Star
Doxorubicin, Leomycin. Inblastine, Acarbazine (ABVD)- R C h o p. 21, Six cycles stated feb 11 last one ( hopefully )June 1st 2011.
Severe tummy gloating, gas, and pain. Heavy fatigue and nausea, constipation, sweats, hair loss, neuropathy, weight gain in trunk area. Sweats. Fevers. Period gone after first week. Dunno if gone 4 good. - Heidi
- started Feb. 26, 2010 I was admitted to hospital every 3 weeks for a total of 6 rounds of treatment - Cycles A and B. - Jessica
- finished with induction therapy, now gonna begin with consolidation. - Saahil646
- Hyper CVAD protocol. Started 3/22/10. None for the first 3 rounds of protocol. Last 4 rounds have had N/V, extreme faitigue, bone and joint pain. - Elizabethsad
- oct induction chemo, Nov another bout of induction chemo as first did not work.
Jan: consolidation chemo
Apr: additional chemo to prepare for bone marrow transplant. - Harry
- Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable. - Tia
- hair loss... weight gain... nerve tingling... bad taste... feet pain... but no vomiting... so not all bad... - Ghost
- Yes, My chemotherapy treatment was ABVD. - Mary
- ABVD - Cortney
- ABVD 11/30/2010-present
Fatigue, weakness, dizziness, nausea, neuropathy, constipation, headaches, hair loss and chemo brain. - Ashley
- ABVD- October 22, 2010- - Jaime
- Initial treatment: ABVD/MOPP (8/92-12/92). I received 6 cycles with complete response. The chemo was relatively well-tolerate.
Salvage treatment: DECAL (Dexamethasone, Etoposide, Cisplatin, Ara-C, L-Asparaginase) 9/92-12/92. One brutal regimen! Cisplatin was the worse. Three cycles with complete response followed by stem cell transplant. - Heather
- 6 rounds of ABVD; vomiting, fatigue, diarea, insomnia, hair loss. - Art Nun
- ABVD regimen. First session was one day after diagnosis. #1:05/20/2010, #2:06/07/2010 (delayed by neutropenia), #3:07/01/2010 (delayed by neutropenia). Side effects: Hair loss, negligible neuropathy. - Dan J
- ABVD treatment; my nausea was well-controlled with prescriptions, but I was often tired in the days following chemo. I went every other Friday so I could recuperate over the weekend and be ready to go back to school Tuesday-Thursday. - Michigan2012
- ABVD - Trees
- started ABVD March 2011 - Tricia
- Abvd every other week. - Trisha
- nausea, neutropenia, anxiety, extreme fatigue, mouth sores and dry mouth - Kendall
- August 10th 2010 -Present
6 Cycles -12 Treatments - Bryan
- 6 months of bs and stem cell transplant was life changing made me feel completley helpless - Todd Strange
- ABVD 12 rounds, 6 months - Katy
- first round 09/08/11-ABVD-headache, swollen tongue, blisters on tongue, vomitting, nausea, bone aches. - Dawn
- The usual - not a single strand of hair. But, the stomach was the killer. I would be on liquid diet for days during chemo period. Even after 1 year, I am still experience problems with stomach. Physically, the body has changed so much. Mentally and emotionally, I have changed too (hopefully for the better :)) - Ontopofcancer
- ABVD - Kelsea
- Getting chemo doesn't hurt. I don't feel the chemo being injected, and I feel fine for 3 days after, minus the fatigue. Nausea, headaches, body aches, upset stomach are my most common side effects when my medications are done. - Pamela
- So far only 1 Session- 01/10/12 - Robert
- Started chemotherapy on the 28th of September 2011. I first had really bad constipation, muscle and bone pain, fatigue, numbness in the tips of my fingers, hairloss, mouth ulcers, nails coming away from skin. - Megan
- R-CHOP 25/11/11 - Bethany
- R-CHOP 21
Round 1, July 19, 2010 (extreme drop in blood pressure, shortness of breath, chest pressure, swelling of hands, feet and face) - TinaK
- R+Chop, 1/4/2012-4/23/2012 - Faydra
Epirubicin- lots of dates,
spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea
vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints.
mercaptiprine, is every day, that just gives her a weird rash.
methotrexate makes her sleepy - Cheyenne Axe
- Starting on 18th April, 2011 - Jolene
- took Docetaxol (Taxotere) after FEC - finished chemo July 22 - ~~~~K~~~~~
- Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss
I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes.
I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite.
I started Tykerb in Feb 2009.
I will continue with Herceptin for at least 7 more months after surgery. - Yuyu
- Oral Chemo (Xeloda) - 7/07 to current weight gain, tenderness in hands and feet, fatigue, irritability, feeling full; dehydration - Grace
- E-CMF from Nov 08 Half way through Side effects very mild - Kath
- 6 Treatments - 3 week cycle
3 - FEC
3 - Taxoteer
Sept. 7, 2006 through Dec. 21, 2006 - Tari
- FEC and taxotere. Three treatments of each starting 2/11 - Deb
- It was called cef (which is cefuroxime, epirubicin, and cyclophosphomide). It is used only in a couple of Canadian provinces as it is very expensive. - Sylvia
- Sep-feb--The oncologist said it would be " hard going"--that would be one word for it. - Jilly
- Protocol: FEC-T (4 months/every 3 weeks)
FEC-T :Epirubicin/Fluorouracil/Cyclophosphamide cycles 1-3, then add Docetaxel for cycles 4-6
Finished chemo November 24/2010 - Rachel
- Blood work and chest xray September 11, 2007
Bone scan September 17, 2007
Port installed in right chest area September 18, 2007.
MUGA scan September 19, 2007
First Chemo treatment September 20, 2007
Neulasta shot September 21, 2007
Headaches and blurred vision
Hospitalized September 25, 2007
Found blood clot in the jugular vein
Started on lovenox and warfarin
Hair fell out in huge clumps 2nd week after first chemo
Second Chemo treatment October 11, 2007
Tiredness, constipation, nausea
Changed nausea prescriptions twice
Third Chemo treatment November 1, 2007
Potassium too low-put on prescription supplement
Nose bleeds and bruising from warfarin, not chemo
2nd MUGA scan scheduled for November 26,2007
4th Chemo scheduled for November 29th
- Nancy Grace D
- September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months. - Staypositive
- May 23rd 2007 started 6 sessions 3 x F.E.C
3 X Taxotere
Ulcers in my mouth, sickness, diarrhoea,
thrush, joint pain, loss of finger and toe nails, peeling skin on hands and feet, - Donna Jayne Watters
- Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse.
Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo. - Marneyd
- preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU. - Jpfrank
- Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.)
after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash - Sparklie
- Chop therapy for 7 months - Elisa Rinn
- R-Chop, eight sessions
one every 3 weeks.
Side effects: nausea, loss of appetite, some muscle aches, hair loss, effected my eye sight - had to wear eyeglasses since the 4th chemo.
- Olivia
- sickness, weakness, no appetite, lived off cereal, and jello for a week, no taste,increase in smelling sense was intense 12/24/2005 was the first treatment. - Wayne Brummett
- 1st and 4th week of Radiotherapy treatment, chemotherapy was also performed. 24 x 5 delivery of 5FU with a Cisplatin infusion on second day of each of these weeks.
Side effects included a 'Chemo crash' both weeks I had the treatment - second week worse than the first (required blood transfusions). - David McArthur
- Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol - Sammy
- Original Chemo was Epirubicin, Cisplatin and 5-FU April-September
2nd Irinotecan and Taxane
Current Fol Fox 4 + Avastin - Debbie Wife Of Cancer Survivor Steve A.
Erbitux (Cituximab)- My mum went through a number of drugs to treat the cancer which kept on returning almost every single year from 2008-2011: Avasatin, Xeloda, Folfox, Folfiri, Erbitux. The side-effects are almost always similar: nausea, tiredness, vomiting, loss of appetite, mouth and throat sores. The first day after chemo she never manages to sleep well.
- Formosa
- Begin Erbitux treatments February 13 2012 for 11 weeks. - Brian
- 3 treatments. Cisplatin at first but had terrible digestive side effects so used erbitux for last 2 treatments - Chris B
- Cituximab Loading dose March 13th, High fever and severe headache. Second of 8 treatments March 21st. Only side effect was severe heartburn. - John
- Cisplatin ....nausea and fatigue - Barbara
Etoposide (VePesid)- VP-16 and Carboplatin with first cycle began in April 2011 and finished in Sept. 2011 after 8 cycles - usual side effects
Hair-Loss
Fatigue
Metal Taste
Mouth Sores
Ongoing White Blood Count Issues
Ongoing Red Blood Count Issue
Multiple Blood Transfusions
- Tom Martin
- Chemotherapy 12/09 to 2/10- loss of hair, weight, blood clot, fatigue, low white blood cell count and nausea neuropathy in finger and toes. 6/10 to 1/11 same symptoms as previously noted except for no blood clots. - Chrisandra
- Rituxan/Bendamustine (Summer 2010) - very little except fatigue. R-CHOP (summer 2011) - nausea, fatigue, hair loss - Chris
- Chemotherapy started on 20th Dec 2008 and I chose to stop in June 2009 (I was meant to finish in Nov 2009, but when I found out my tumor was no longer shrinking, I physically could not deal with the side effects anymore). I lost my hair, which was by far not the worst side effect! Mouth sores, lost my sense of
taste and smell. Horrendous constipation. Nauseous most of the time. Not able to eat. So completely exhausted, not even energy to stand up some days. Felt extreme cold, then major hot flushes, wake up
drenched in sweat. Eyes always sore and watery. My chemotherapy was every 3 weeks, which took 5 days in hospital to administer IV - then every month when home I would spike a massive temp & have to be rushed into hospital for blood transfusions and isolated for neutronpenia! Chemo turned me into a shell of my former self, it destroyed my spirit and had me in tears most of the time. It was a hard, hard fight. - Sarah
- August-January 2012. - Sarah Friedman
Fluorouracil (5-FU)- first session 1/5/09 - infusion of 2 hrs for "Xelox" (Oxaliplatin) once every 3 weeks for 8 sessions. "Zeloda" (5-fluorouracil) pills twice a day for two weeks then a week of rest for 8 sessions. SIDE EFFECTS: arm pain (like bad sunburn), cold sensitivity, razor blade throat, first bite pain, diarrehea - Tina B.
- Never had px with nausea or vomiting, just radiation burns, fatigue, pain management, depression. Side effects of chemo - permanent neuropathy which has gotten progressively worse over past 4 yrs since surgery & tx. - Janbd
- Taxol, 5FU, Carboplatin, Avastin, Tarceva (withdrawn). - Tim
- Chemotherapy was standard - Mytomicin and 5 FU the first week of treatment and week 5. Had all the side effects that are mentioned for this in varying degrees of severity, except that I did not lose my hair. It thinned quite a bit, but has come back with a vengeance. - Viki
- First round August 3-7, second round August 31-Sept 4. Chemo effects snuck up on me. At first I felt like a brat because I felt fine and no one else at Kamp Kemo felt fine at all, and then it took me down. Nausea, constipation as a result of an anti-nausea med, diarrhea, exhaustion, loss of taste--food had texture and no flavor at all, and the texture was mostly slimy. I used salad dressing in an attempt to taste something, and ended up with slime, chicken salad--slime. And such a sore mouth, I felt like I had to fight to get a prescription for Dr. Casey's Mouth Solution, a lidocaine swish & spit, and it helped tremendously. Also low blood counts, needed a couple blood & platelet transfusions. - Valerie
- 5-FU & Mito-3 for 4 days March 2010 and April 2010 - Lisa
- Started chemo Mitomycin and 5-FU on December 28, 2009 after having a Power Port placed in my chest. - Theresa
- 5FU and Mitomycin during 1st and 5th weeks of treatment - Casey
- Mitomycin and 5 FU beginning 1/18/10 - PAgirl
- 1st and 5th week for 4 days - Carol
- 01-04-10 began chemotheraphy treatment.
Mytomycin infused through port at onocologist's office. Went home with an infusion pump of 5-FU (Fluorouracil) that lasted 4 1/2 days. - Linda
- Mitomycin + 5FU - twice. 1st and 5th week of radiation - Leanne
- 12/7-10. Not too sick alot of mouth sores and counts were drastically low hospitalized 12/15 with new oncologist - Renee
- mytomycin, 5FU April and May 2010. Loss of hair, nausea, mouth sores - Elizabeth
- 2 rounds (5 day hopsitalization each) mouth sores, some hair loss, changes in taste and smell, weight loss - Maya
- Mitomycin C and 5FU infused for 96 hours (4 days) during week one and week 5 of radiation - Elizabeth
- Two rounds of chemotherapy in December '09 and January '10. Received Mytomycin at the onc office and received 5-FU using a pump on a picc line for 96 hours each round.
Side effects: nausea, fatigue, loss of appetite/weight loss, some hair loss, and some vomitting during and following the second round of chemo. - Angela
- First round 1/23/2012-1/27/2012: Some mouth tenderness, fatigue, slight nausea. Second round 2/21/2012: side effects mainly similar to the first time but not as bad. The second round had serious heartburn though. - Jessicafk11
- 5FY and cisplatin - Pam007
- It'll seems to be the standard Mitomycin-C and 5FU in the first and fifth week of treatment. Mitomycin C dose lowered by 25% due to low WBC & platelets first time around. - Porter
- mytomicin at beginning and end of 6 weeks
96 hours of 5FU at beginning and end
doses halved for second cycle because of bad reaction
to 5FU - Jennifer
- Started Jan 4th, Mitomycin and 5FU again at 5th week - Ron
- 9/97-12/97, 5-FU & Mitomycin.
Side effects: Loss of appetite, some mouth sores, dry mouth, swollen tongue (once), loss of taste buds. - Emory
- Nausea and fatigue. Hair thinning and loss due to mytomycin. - Linda
- June 28 - July 4. A single 1 hour mitomycin pump followed by 4 24/7 fluorouracil pump. I like to think that I got extremely lucky with side effects. I was seriously constipated the first 4 days and put on 8 pounds in the first 48 hours. The only other side effect to this point is incredibly red blotchy skin on the face, neck and chest. I can only hope that round 2 goes as smoothly.
July 27 - August 1. Intended to be the same as week 1. The mitomycin was put on hold until my platelet levels got back to normal, but we got it done. 4 bags of fluorouracil. Again, I was extremely lucky with side effects. None to speak of really and this time I didn't get the red blotchy skin on the face, neck and chest. - Texas Jeff
- 2 rounds, 96 hours each week 1 and week 5 during radiation of 5-FU. Mytomycin-C first round only. Hairloss, nausea, vomiting, 30 pounds of weight loss. - Michele
- consult 8-25 - Mark
- 2 treatments of Mitomyicin and 2 4-day (24 hour pump) of 5-FU
Started 8/31/2010 - Peter
- I wish I'd been told not to work during chemo. The side effects of the nausea medicine made me tired and made my skin itch. I wasn't in good spirits, which made others I work with uncomfortable. They felt bad that I had to be at work, and it was reflected in their behaviors towards me. - Alliday
- 2/8/10 - 2/12/10: 5-FU and Mytomycin.
3/8/10 - 3/12/10: 5-FU. Nausea, loss of appetite, weight loss, lethargy, weakness, late effect hair thinning. - Carmen
- 5-FU infusion mitomycin.. lss of appitite for a week, mouth sores.. feeling better when we took pump off. - Connie
- 5 FU- Mitomycin...via port - 96 hour drip
lots of side effects....transfusion at end
still low white count from radiation and chemo - Nova
- Mytomycin and 5-FU first weeks then 5th week - DJ
- Starting a 5 day pump next week. - Pita
- Cisplatin and 5FU, nausea and dizziness - Nellym
- None that I can remember..oh yeah I can't remember. I find concentration & retention hard. Uh what was the question again??? (They say going through menopause can cause symptoms similar too), Uh Huh. Chemo brain fog. - Lindas
- 5FU: 5/18/09 to 5/21/09 and 6/15/09 to 6/18/09
Mitomycin once on 5/18 and once again on 6/15/09
- Frank
- Picc line inserted Nov 17, 2010... 5fu/mitomycin started Monday Dec 6, 2010. Took a week off from radiation after second round of chemo due to unmanageable pain. Finished chemo Jan 7th, 2011 and finished radiation Feb 4, 2011. - Travis
- 5FU infusion for 96 hours the first and last week of radiation.
Mitomycin the first day of radiation and the first day of the last week of radiation through a PICC line - Erin Sullivan Wagner
- PICC line put in 10/25/2010 intital large dose of Mitomycin, weekly infusion of FU5, disconnected every Friday, then started back on Monday 5 1/2 weeks. By 3rd week, severe stomach pains(lasted 1 week) diarrhea, no appetite, weakness , because of blood count did not take scheduled last dose of Mitomycin - Deborah
- * Jul 27/09: met with Oncologist
* Aug 4/09: chemo (portable pump: 5-FU) for weeks 1 and 5 until Sep 15/09; Mitomycin day 1 only of weeks 1 and 5
- Lee A.
- Began 5FU and cisplatin chemo on 1/4/10 and 2/1/10 for 1 wk cycles.
Side effects: nausea, vomiting, diarrhea, mouth sores, and fatigue.
Hospitalized after last day of 5fu infusions for 3wks for chemo toxicity, diarrhea, severe abdominal cramping, dehydration uncontrollable fever, etc.
At least I had completed menopause at age 42 and did not have to deal with the emotional side of this. Stopped HRT during treatments only.
- Kelly
- 8-4-09 thru 8-7-09 - Pam
- November 4, 2009. Terrible neutropenia, and extreme fatigue. - Steve W
- 11-16-09 - Leanna
- Gi toxicity, fatigue, bone marrow suppression lasting many months
hair loss, went in the hospital for a fever of 104 with low white count - Betty
- lot my ability to program...dont think like i used to.. - Linda
- Mitromycin and 5FU via pump, 1st week and 4th week of treatment. Nausea - 4 week had to be hospitalized - Mel
- Mitomycin and 5-FU. 75% of standard Mito dose on 1/4 due to elevated creatinine levels. Standard 5-FU dose over 5 days through chest portacath. - Shelley
- To start on 4th April 2011 - Mayday
- Nausea, low enery started 1 week ago with 5-FU targeted - Pattyputty
- Two cycles Week one Mitomycin C & 5FU(Flouracil) Week Five 5FU - Annabelle
- Mitomycin and 5-FU on continuous drip using a PICC line. 4 day drip week 1, and second 4 day drip week 5. Scheduled to begin 11/9/09. First chemo round gave me terrible mouth sores and I was extremely dehydrated, to the point of needing hospitalization. 2nd chemo round went better due to daily scheduled "hydration" sessions at oncology. No dehydration or mouth sores, but I am extremely fatigued and all my blood counts are VERY low. - Ruth
- side effects; weakness, fatigue, occasional nausea. - Kathryn
- scheduled for Jan 4, 2010 - Marcia
- high dose 1995
- Ellen
- 1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems. - Karen Visnansky
- Starting on 18th April, 2011 - Jolene
- six rounds of CMF three weeks apart. commenced in December 2005 and completed in March, 2006 - Cindy
- took Docetaxol (Taxotere) after FEC - finished chemo July 22 - ~~~~K~~~~~
- First Taxol 1.5.11, once a week for 12 weeks, FAC once every 3 weeks from 3.30 - 6.1.11. Taxol made me feel like I was wearing a lead raincoat and concrete shoes. FAC was far more discouraging. Lots of digestive issues, couldn't eat, everything taste nasty. It was horrible. - Scrappy Darlene
- Jan 22/08
*Just Started CAF
(Cytoxan,Adriamycin,Fluorouracil-5-FU)
dose dense - 2 week x 4 cycles.
*Taxol + Herceptin
for 6 to 8 months
- Kelly
- Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss
I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes.
I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite.
I started Tykerb in Feb 2009.
I will continue with Herceptin for at least 7 more months after surgery. - Yuyu
- E-CMF from Nov 08 Half way through Side effects very mild - Kath
- 6 treatments from March 3, 1994 to June 29, 1994. Started with Taxol Study. Received high-dose Cytoxan 3980 mg and Adriamycin 74.6 mg for 2 cycles. Except for the 1st and the last, blood transfusions were required after every treatment due to low hemoglobin. I developed a blood clot in my right arm shortly after the first blood transfusion in April and had to be hospitalized and put on coumadin for 3 months. Had to be taken off Taxol Study because I could not take high-dose Cytoxan/Adriamycin and Coumadin. I was given Cytoxan 995 mg, 5-FU 995 mg and Adriamycin 99.5 mg for the next 4 treatments. The Adriamycin damaged my heart muscle. Other side effects were nausea, some vomiting, sores in mouth, diarrhea, heartburn, fatigue and complete loss of all hair.
6 treatments from January 20, 2006, to June 2, 2006. I was given a CMF combination of 1200 mg of Cytoxan (Cyclophosphamide), 80 mg of Methotrexate and 1200 mg of Fluorouracil (5-FU). This bout with chemo was much easier than the first. I also had a blood clot in my lung in February, 2006, and was hospitalized for 7 days and put on coumadin for 18 months. Other side effects were minor nausea, fatigue, sore mouth, minor diarrhea and only thinning of my hair. I don't know which one but one of the chemo drugs damaged my right eye and I am still having problems with it.
The worst thing to happen was the death of my husband and my boston terrier dog in May during this bout of chemo.
- Joyce
- 6 Treatments - 3 week cycle
3 - FEC
3 - Taxoteer
Sept. 7, 2006 through Dec. 21, 2006 - Tari
- FEC and taxotere. Three treatments of each starting 2/11 - Deb
- 8 sessions, sweats, nausea, constipation, de hydration, low white cell counts. joint, bone, muscle, numbness, tingling, pain from Taxol during and post-chemo. Peripheral neuropathy has been diagnosed. - Grace345
- I had 5fu, Methotrexate and Cytoxan. I had the 5fu and Methotrexate in an IV push the first and second Tuesday of each month. The third week I took Cytoxan pills and rested the fouth week. This was for a total of six months. - Marianne Svihlik
- Protocol: FEC-T (4 months/every 3 weeks)
FEC-T :Epirubicin/Fluorouracil/Cyclophosphamide cycles 1-3, then add Docetaxel for cycles 4-6
Finished chemo November 24/2010 - Rachel
- Blood work and chest xray September 11, 2007
Bone scan September 17, 2007
Port installed in right chest area September 18, 2007.
MUGA scan September 19, 2007
First Chemo treatment September 20, 2007
Neulasta shot September 21, 2007
Headaches and blurred vision
Hospitalized September 25, 2007
Found blood clot in the jugular vein
Started on lovenox and warfarin
Hair fell out in huge clumps 2nd week after first chemo
Second Chemo treatment October 11, 2007
Tiredness, constipation, nausea
Changed nausea prescriptions twice
Third Chemo treatment November 1, 2007
Potassium too low-put on prescription supplement
Nose bleeds and bruising from warfarin, not chemo
2nd MUGA scan scheduled for November 26,2007
4th Chemo scheduled for November 29th
- Nancy Grace D
- September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months. - Staypositive
- May 23rd 2007 started 6 sessions 3 x F.E.C
3 X Taxotere
Ulcers in my mouth, sickness, diarrhoea,
thrush, joint pain, loss of finger and toe nails, peeling skin on hands and feet, - Donna Jayne Watters
- I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane - Donna
- Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse.
Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo. - Marneyd
- Carboplatin/Taxol, continuous 5FU drip March/April 2008
Taxotere July/August/September 2008
Cisplatin January/February 2009 - Travis
- preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU. - Jpfrank
- Chemotherapy is bi weekly on fridays!
Side effects include Nausea, fatigue, and weakness, hair thinning - Natalie
- Rather not discuss - Laughatcancer
- 4 cycles (1 wk on 3 wks off) Cisplatin for 6 hours on day one, sent home with 5FU med pump for 96 hours. Side effects- nausea, diahrrea, agitation, black nail beds, hair thinning/loss, dehydration, irratation, moodiness, list goes on and on......... - Sharisse
- I started Chemo on December 19,2008. I had a port put in to administer the treatment. For my lifestyle the port makes most sence. Have the pump hooked up was a bit invastive, but I have great nurses who have a trementious amount to compassion and skill - Wil
- 6-500 mg per day that I have radiation. Xeloda. Some nausea, light headedness, jitters, diarrhea, - Teresa
- Have had ten of twelve treatments. Nausea, loss of appetite, food not tasting good, neuropathy in fingertips and very susceptible to hot and cold beverages/food. - Loritodd63
- f5u-dec/07 to june/08 side effects the works!! mouth sores,nausea,fatigue,on and on! - Stillarose
- 2/1/2010-3/11/2010 F5U pump 24/7 5 day/week, combined with the radiation, tiring.
7/23/2010 start, 12 treatments every 2 weeks. 5-FU, Eloxatin,leucovorin calcium; side effects - inconsistent energy, more emotional
2/2012 FOLFIRI; side effects diarrhea alternated with constipation, hemorrhoids, nausea, Tired - Stacy
- 5f-u and Oxaliplatin start 10-19-2010~On June 13, 2011 I had an allergic reaction to Oxaliplatin and my Doctor made the decision to take me off of that for good. Nothing will take it's place as of now. I will remain on 5f-u and Leucovorin. - Patrice
- Lecovorin, Oxiaplatin causes extreme neuoropathy in the hands and feet, He does not have finger prints now. 5-FU causes nausea, makes the hands and fet worse and soooo tired, like having the flu everyday with intense stomach cramping. Can not concentrate, chemobrain I guess they call it. Three days of intense chemo, then sick pass out for hrs. can't do anything but lay down or sit, there is nothing to help ease this... - Linda Kaye Blair
- 5-FU, and Eloxatin - Darlene
- FOLFOX 8 treatments split into two rounds - one round before radiation and the other round post radiation Feb 3 - July 18, 2011
Neuropathy, hair thinning, blisters on fingers and feet, diarrhea, constipation, nausea,
- Jennifer
- First round started on Dec 29th 2010: Xeloda pills, Oxaliplatin, and Avastin, with a shot of Neulasta the day after.Had two weeks off after each round, and I was thinking "this isn't so bad, I can do this" after the first treatment. No severe nausea, no vomiting, minimal hair thinning. - Kat B
- I started Folfox Chemotherapy in January 2009, every other week. - Lisa
- Chemo was not that bad, just a little tired with some nausea - Terri
- 3 treatments every two weeks with neupogen shots after every treatment. White blood cross ave been a problem but my platelets are what concern me. They have continued to decline and are not rebounding back between treatments. other concerns which are minor but irritating is the coldness everywhere especially the throat, hands and feet. Fatigue is manageable now after 3 months. Metal tasting mouth and bad breath right after treatment ....yuk! Lack of appetite seems to occur during the treatment week but subsides the following week. - Susan M
- Chemotherapy was administered through a PICC for 5 weeks during radiation. No major side effects other then extreme exhaustion. I took the chemo nurse advise and began taking anti-nausea pills before I felt any nausea so I was able to continue to work part time. I still believe I am still suffering from some lingering effects of the chemo as I have not been able to build up my stamina. - Ben
- 12 so far, 5Fu, Avastin, Oxiplatin, Leucovorin - Shelly
- I had a great wife with me every one so they could never be all that bad. I had 2350mg of 5FU and Oxaliplatin over 48 hours every other week for first 3 months for last 3 months have had 1105mg of 5FU Leucovorin every week. - Dan
- Lots - Moe
- My hair is normally very curly. Now it is straight. Hands and feet a little sensitive. Other than that, none, yet. - Coupejete
- 4/4/2011 - FOLFOX6 with Avastin. Some fatigue, peripheral neuropathy, cold sensitivity. Discontinued after 3 rounds
7/1/2011 - Switched to Xeloda. Stopped first round after 9 days due to much bowel discomfort. - Mark Sechrest
- I just had first treatment on 5/20/09, The symptoms of the first treatment for me were severe cold sensitivity for about 3 days, tiredness, sore hands and feet, achy legs, and stomach pains. - Amy
- During my 6 month treatment fatigue and nausea were the most consistent chemo side effects. Exercise helped with the fatigue and taking compazine helped with the nausea. - TJ
- FOLFOX first cycle June 11 (infusion) and then the pump 46 hrs; some odd effects on swallowing, a little constipation, a little diarrhea, no food problems :) - Susana
- July 2, 2010 - Heated Intra-peritoneal Chemotherapy (HIPEC).
Side Effects: Complete Loss of appetite, everything tasted awful. No nausea or vomiting. Lots of swelling due to amount of fluid they pump you with prior to procedure. - Toni
- Sept. 2010 to Nov. 2010 - Oxcaliplatin, 5FU, Avastin. Oxc. not working changed to Irinotecan/Avastin. till April 2011. Tumor growth in liver and lymphnodes. Itinotean/Erbitux from June 2011 till present. - Jennifer
- 24/7 pump 5fu. - Jeanee
- WEEK 1 - AUG 16 mitomycin IV & portable FU5 hooked up.
Monday, no sleep. Tuesday, no sleep. Sooo tired but unable to sleep, my body is exhausted but my poor heart is beating soooo fast. Wednesday took Gravol, slept about 5 hrs. Thursday, felt good. Friday woke up with bright red itchy rash on face, head and various parts of my body. Notice tinny taste in mouth and lots of saliva,sore in mouth, throat, feeling nauseous. Bottom of feet sore when walking.
- Brenda
- Just began 5FU 5 days ago. First round. - Keith
- 5FU no side effects
Avastin no side effects
Oxi could not touch or drink anything cold. - Rick
- 8/3 FOLFOX6 VERY SLIGHT NEUROPATHY - Ielmar
- 5-FU started 6/27/11 hooked up to the pump 7 days a week for 6 weeks....ugh!!! Grueling. Side effects consist of nausea and vomiting, finished the first round 8/2/11. Now I have to continue 9/21/11 for 4 months... 5-FU, Oxaliplatin, Avastin & Leuc - Ty-TheWarrior
- Very little after affects from the chemo other than slight nausea and some fatique. They had to cut the chemo treatments short in order to focus on the radiation treatments. Had a port-a-cath installed for future chemo treatments. - Ken Hunt
- pump for 5 days aweek for 6 weeks
then 2 days every 2week for 6 sessions - Rena
- Started FOLFOX Sept '11 - Panda55
- Finished Chemo, October 2006. First go around lost most of my hair, and had the worst mouth sores the nurses had ever seen. Second time sat next to a woman, told her of my mouth problems. She told me to drink a beer with lots of ice after treatment..it worked. - Diane
- Pre-Surgery April 19-May 26 Five FU for 6 weeks continuous with take home pump
Post Surgery started Sept 22 Full Fox - Christy
- Oxalipilatin/5FU/Leucovorin/Avastin Feb 2011- Aug 2011 with use of pump at home. Now on 5FU/Leucovorin/Avastin weekly. Side effects peripheral neuropathy, vomiting, behavioral changes - Anne
- June - August 2005: Side effects - Nausea; tunnel vision; fatigue; dry hands and feet; upset stomach; hair thinned; skin burned easily in the sun. - Jeannine Madigan
- 5-FU oxaliplatin and Avastin, due to start Nov 7, 2011 - Jodi
- severe dehydration, potassium def. diarrhea - Diane Bell
- I started chemo Sept 19,2006
minimal side effects
I have had 20 treatments, and most people don`t realize I`m on chemo - Katherine
- 24-7 pump all week (except weekends) for 5 weeks (3rd week) - Daddysgirls
- I had my 1st chemo treatment on 12/10/07. If cancer cells remain, they are microscopic and floating around in my body and being ZAPPED by chemo! I qualified for a trial and receive Erbitux (usually for metastatic cancer) every week (which causes acne). The nausea is gone for now, mouth sores are fading, and acne is blossoming. The Oxilaplatin will be decreased next time due to the mouth sores. It also causes Neuropathy. - Melanie
- dec 06/jan 07; sores in mouth; diarrhea; pneumonia; hospitalized for 5 weeks - Becky
- 11/06-oxaliplain,xeloda....tingling and cold sensitivity in hands and feet, fatigue
11/07-irinotecan, avastin, 5FU, diahrrea, fatigue, burning and cramping in abdomen started erbitux january 2010, adding irinotecan this week, sept 20, 2010...post-note that irinotecan caused so much diahrrhea I became too hydrated and wound up in hospital. i had a blockage too, but just sayin'! ;) - Annette
- 6-03--36 weeks of IV chemo therapy. Had problems with severe diarrah, nausa and fatigue 3 days out of 7. Slightly ill the rest of the days with same symtoms, but milder.
2007--doing much better on chemo therapy by adding alternitves. (read below)
12-07- oral Xeloda (chemo therapy). Take for 2 weeks straight 2 times a day, then one week off. Side effects are slight now that I take fermented wheat germ, green wheatgrass and mangoseed juice. The juice improved my energy level a lot! I think we are seeing some results from the fermented wheatgerm as we are now starting to see on my cat scans that things have kind of stopped. In the England Cancer Journal they have proved that fermented wheat germ can slow and sometime cure cancers. The mangoseed juice is made in Asia, this is the only place it grows. It is extremely high levels of antioxidants! Knock on wood I haven't been sick since I started it! I also only eat organic (as much as I can) I eat lot's of greens and fruits. I get protein from the grains and I also eat a lot of nuts. I have felt so much better since doing this it is unbelievable.. I have hand and foot syndrome that this chemo can cause..this can/is be very painful.
Febuary 08-New treatments of folfox6, Avastin and 5FU--extreme fatigue-nausa-diarreha-controled by medications for the most part. Need to rest a lot. - Sue123
- Started October 28, 2009 5FU 24/7 - Diane
- 5FU 8/23/10 through 9/27/10 24/7 once a week flush and bloodworkups.
some nausea - Laura
- CAPOX 2006, FOLFIRI + AVASTIN 2007, TEGAFUR + AVASTIN 2008, FOLFIRI + AVASTIN 2010, XELODA + AVASTIN 2010 - ONGOING...........FOREVER....WHILST ITS WORKING - Tony
- 5fu/leucovorin.Close to renal failure,changed to weekly infusions 5fu with fortnightly enhancement with levamisole. 48 weekly sessions. - Ron50
- Pill form. Xeloda, 1800mil daily. - Chris White
- started FOLFOX on 4th Dec 2011. Active treatment for 48 hours every 2 weeks. Lots of nausea, some mouth soreness, altered taste and smell - Laurabarrett
- 5FU, FOLFOX, FOLFIRI, Avastin, Erbitux, Vectibix - Wendy
- Too many to mention-16 months in total(6,6,4) Every drug they have for colon cancer. - Donna Richno
- Bi-weekly Chemo 6 months Oaxliplatin/ fluorouracil 5-fu - Charity
- 5FU, Leucovorin and Oxiplatin. Typcial symtoms could not tolorate cold after treatment, slept alot. I worked full time through chemo. Felt exhausted and don't remember too much in this time period. Work and slept. - Darlad
- folfox + 5fu (dec 07-jan 08)
folfiri + 5fu, avastin, cetuximab (jan 08-current) - Angel & Ben
- Completed FOLFOX 6 and 5-FU on March 8, 2010!!!
Nausea
Vomiting
Diarrhea
Constipation
Late February through end of March 2009.
Chemo and radiation May/June 2009.
Chemo only started final set of treatment in September 2009 and currently in chemo treatments until March 2010.
Nausea, diarrhea, fatigue, crashing of white and red blood counts during each set of chemos. yeast infections, and healing problems with surgical site from September 22, 2008. - Melinda
- I started folfox with Avastin in April 2010, did 12 treatments & had my last one on Sept 7th, continued with Avastin til beginning of January 2011. I was already sensitive to the cold before I started oxali, it was horrible, my fingertips & feet still have that slight weird tingle to them, it's Feb. My oncologist & I agreed to start irinotecan after my surgery to knock things out for good. - Jen
- None, but for me I am receiving my medicine through a port in my chest, I have a small pump with a bag that they change once a week. my medicine is 5fu. The only side effect that I have is that I am alway hungry, I can not seem to get enough to eat. No nausea or cramping, no mouth sores or peeling skin. Just extremely hungry all the time. - Cbolin69
- Leucovorin, Oxaliplatin, 5-Flourouracil. Started September 19, 2009 for 12 bi-weekly infusions. Can't taste anything, eating or drinking anything cold makes me want to puke, cold air makes my throat close and I can't breath, pins and needles in hand, feet and any part of my body that gets cool, nausea, vomiting, diarrhea, constipation, cramping, headaches, major fatigue, depression. - Christine
- 10/12/09 - 11/13/09. Portable pump 5 days a week/24 hours a day. 5FU Push & pump. Every other week I had a bag of Oxaliplatin (total of 3 bags). I became gradually more tired as the treatment progressed & had a constanst feeling of nausea but Promethazine worked like a charm so I was able to eat pretty well thru out treatment. I had no hair loss. The weeks I received the Oxaliplatin my hands/feet became sensitive the cold but those symptons would subside as the week went by. - Teresa
- Bi-weekly chemo. Energy levels vary. Diarrhea, one day only usually. Keep hydrated. - Randy
- 9/07 for 5 months every 2-3 weeks.Fulfox, Five FU, evastin, oxalyplatin -Side affects were mild and temporary such has hair loss (complete on first round) mild neuropathy, Hand and food syndrome. Slight diarrhea but NO nasuea. Loss of appetite, loss of taste.
06/08 Second round of chemo (Irinotecan) more nausea but virtually no diarrhea. neuropathy has returned slightly. I can still taste things after 2 rounds of chemo this time.
- Gretchen
- Xeloda oral 2000, started March 22nd - OK up to date
Folfox - starting August 29th, port inserted on July 29th.
Side effects from folfox - berable - cold sensitivity in hands and eyelids. Tingling in hands, shin cramps, tiredness, eye dryness. - Maja
- Inj Dacotine 150mg * Biovorine 600mg & 5FU 4600mg in 1000ml NS continuous infusion in two days. Inj Perinorm 10mg IV thrice a day
Inj. - Manoj Vashisth
- 5FU during radiation 1st round finished 12/28/10
final chemo start 02/23/11 - Kellie
- Folfox to start after radiation is finished sometime in Feburary 2012 - Mike
- Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.)
after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash - Sparklie
- 5 FU via port 2 x 5 days. Started Jan. 24 2012. No major side effects. Constipation. - Tita
- 5FU Portable Pump - Wade
- Nausea,lethagy,hairloss were some of the side effects and to describe Chemotherapy, all I can say is Horrible - Pete G
- started chemo on 12/11/07
clinical trial with avastin,erbitux,oxaliplatin,lecovorin,5FU..now irenotican - Lisa
- Started in July 2009 was suppose to have every 2 weeks, but blood count went down so had to push out either 3 or 4 weeks. I hurt from my head to my toes the week of chemo, and then after that started gradually getting better. Neuropothy in hands and feet. Should go away eventually.
Finished chemo Feb. 11, 2010.
- Cowgrlsrul
- Chemo Wed, leave with bag, come back on Fri. Side effects neuropathy, fatigue, nausea, occasional constipation and/or diarhea - Linda
- Started June 23, 2008. Oxaluplapin, Leucovorin and Flourouracil. Side effects are extreme weakness, lack of appetite, many foods don't taste good, can't touch, eat or drink anything cold--needles & pins in fingertips & toes, and throat closes up. Needles & pins, needles & pins,
if I drink or eat anything cold, MY breathing troubles begin!! smile - Sweete2
- I had a port put in (after 4 tries which left me with considerable chest bruising, pain, and extra scars) and it it was accessed 4 days after insertion to begin my first chemo treatment. Pure 5FU. I did not lose my hair or get any mouth sores. I did feel like shit every day, I did lose my appetite completely, I did have stomachaches all the time, hot flashes, headaches, & extreme diarrhea or extreme constipation. Sept 8 - Oct 10 2008
Chemo #2 - Folfox (5FU/Oxalipatin) Feb 2 - March 3
Chemo #3 - unknown...beginning march 16 - Audreyk
- FOLFIRI w/ Avastin 4/2009 - 11/2009, FOLFOX 12/2009-2/2010 Nausea and fatique - DI
- Xeloda, taken during my radiation treatment (adjunct therapy)
Started Folfox the last week of June 2010 - Michelle
- First circle two times for one week during radiation, second circle stopped after the first week because of acute leucopenia. - Moeki
- First & only dose: 09/05/08-5FU/Leucovorin/Oxaliplatin - side effects? fever, rash (?), edema, fatigue, neuropathy, dizziness, confusion (some); nausea, hand/foot - more, but can't remember them. - Lloyd
- Induction chemo for 2 months prior to radiation treatment - once a week during radiation; mouth sores for four days after first round, hair loss, fatigue, and some taste changes, but all in all, he did really well. Very little nausea. - John's Wife
- First treatment was June 8th 7 hours between the other meds olus the chemo..Cisplatin and Gemzar.. Felt ok the day after but then started feeling very sick, achy, headache, ringing in ears, coulnt eat, weak, dizzy,tired,shaky all over I only felt well enough to go to the doctor on the 7th to have my blood drawn..saw dr and he said he would up my steroids next time and that should help
second treatment was on the 8th, Just the gemzar.. Really tired and achy. Dizzy and weak. Had my shot of Lewnasta on Monday.
Still fell tired and bone pain - Joanne
- 1 chemo treatment a week for the 7 weeks beginning on May 9, 2006 till June 29, 2006.
No side effects - Raymond Ouellette
- Fluorouracil treatment started Sept 2010
Fluorouracil treatment started Aug. 2011
- Betty
- Gemzar, Taxotere and Xeloda - Lumberlady
- Gemzar, 5-FU - Thisdadsdrivetosurvive
- I do not remember all of the names. The chemo was a combination of four different chemo drugs. It did not work. My father experienced nausea and could not taste anything so lost his appetite. He also was very sensitive to temperature.
We are still waiting to start a trial chemotherapy drug! Pray, pray, pray! - Janelle
- Began chemo in July of '09 with camptosar, leucovrin, and 5-fu. this is over a 46 hour period. In January '10, they added avastin and zometa to the regimin and is ongoing. - Stephanie
- Original Chemo was Epirubicin, Cisplatin and 5-FU April-September
2nd Irinotecan and Taxane
Current Fol Fox 4 + Avastin - Debbie Wife Of Cancer Survivor Steve A.
- 1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss)
2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment.
2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course
2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course. - David
- February - June 2009
Taxotere
Cisplaten
5FU - John
- A 2 chemical soup every 3rd Monday and then a 24/5 fanny pack pump the same week as above. I have 1 week on and 2 weeks off treatment - Rick
- My cocktail included Fluorouracil and Cisplatin. I - Chris Hildebran
- Two induction treatments then weekly chemo. Hospitalized eight times due to vomiting and fatigue - Cullen12
- None lol...Five Days "Induction Chemo" Nov. 2009 with 26 high dose infusions of Cisplatin, Taxotere, Flourococil FU-5 and other meds...I don't reccomend this and had to be hospitalized and nursing home for 6 months in isolation, and 1 month in ICU. Extreme swelling then lost 100lbs in one month, diarreah,
nauseausness, vomitting, septic shock, organs failing, on respirator, severe neuropathy, muscle paralysis from waist down and could not walk for 10 months, toe drop, foot drop, conjunctivitous, vision trouble, then blindness in one eye, abscesses, MRSA infection, Staph infection, C-diff, anemia, hemolysis requiring blood transfusions, shingles, tinnitus, bed sores on back, butttocks and ears, 2nd degree burns on face and hands and inside mouth and throat, all toenails and fingernails came off, hair loss and thats I rememeber. - Paul
- Carboplatin 08/06/2010. Mild Fatigue.
Carboplatin 08/26/2010. Radiation recall.
Carboplatin 09/16/2010. Neck is tightening due to radiation recall.
Alimta
erbitux
Low Platelet 10/07/2010 Carboplatin, Taxotere,5FU 01/2011 n 02/2011. - Kim
- Had 3 different types of chemo, 24 hours per day for 7 days. Side effects. Loss of hair, none that I can really speak of. - Star
Gemcitabine (Gemzar)- Gemcitabine: will be administered through IV for over an hour.
Cisplatin: will be administered through IV for over an hour. He will have to rehydrate 4 ours beefore injection.
- Kristin
- First time I did chemo was on May 2006 and I lost my hair, throwing up, rashes, weakness. Just pure hell. - Kiera
- 1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems. - Karen Visnansky
- December 2000
every 3 weeks for 6 months
nauseus, hair loss, headaches etc.
December 2007
every week, then every 3 weeks for 16 months
nauseus, hair loss, nuropathy, headaches, etc - Maureen
- Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable. - Tia
- I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane - Donna
- 5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared.
Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half. - Theresa
- ABVD- nausea, fatigue, wooziness, thinning
hair
ICE- nausea, fatigue, wooziness, total hair
loss, bleeding gums and mouth sores
GND- some fatigue, mouth sores
- Rachel
- Did Xeloda
and Gemcitabine with no results - Glen
- First treatment was June 8th 7 hours between the other meds olus the chemo..Cisplatin and Gemzar.. Felt ok the day after but then started feeling very sick, achy, headache, ringing in ears, coulnt eat, weak, dizzy,tired,shaky all over I only felt well enough to go to the doctor on the 7th to have my blood drawn..saw dr and he said he would up my steroids next time and that should help
second treatment was on the 8th, Just the gemzar.. Really tired and achy. Dizzy and weak. Had my shot of Lewnasta on Monday.
Still fell tired and bone pain - Joanne
- Started with nine drops of Taxol and had an allergic reaction that caused me to stop breathing. Then switched to Gemzar and Carboplatin. Had some nausea but started taking Emend....VERY tired. - Courtney
- Chop therapy for 7 months - Elisa Rinn
- Nausea, fatigue/sleepiness, "Chemo brain" (inability to concentrate), dry skin, no nail growth, hair loss.
January - May as of now - Gemmag
- Taxol/Carbo 12/02-5/03 (with 2 Gemzar treatments)
Avastin 8/06- 5/07
Etoposide / Avastin 8/08- Present
- Shoppingkharma
- February 2009: CA125 level was around 3500. She began treatment with Taxol/Carbo with Avastin. Within two weeks, she lost all of her gorgeous red hair. Energy level dropped significantly.
She continued having "maintenance" chemo.
June 2009: CA125 dropped to 32, and then to 16 later that month. Oncologist decided to stop chemo- as there was no sign of cancer!
March 2010: Having chest pain/shortness of breath. CT scan showed fluid in her lungs. Testing after thoracentesis revealed cancerous cells in the fluid.
CA125 was back up to 300.
It is now referred to as "RECURRENT CANCER"
She began chemo again: Cisplatin and Gemzar.
Cisplatin was causing tinnitus. Oncologist decided to discontinue to avoid permanent hearing damage.
The Gemzar would usually burn during infusion. Side effects: headaches, intense nausea and often uncontrollable vomiting. Drastic decrease in appetite (and weight: about 70lbs)
Last time it was checked, her CA12 was hovering around 86.
I'm guessing it's currently off the charts. - Carolyn
- 6 month of Carbo Taxol
1 year of don't remember (wasted time)
6 months of Platnal and Gemzar (she was already to weak) - Wendy
- 1. Chemo Sept- Oct.2010
2. Chemo Nov - dec. 2010
currently ip chemo - Brombeere
- Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol - Sammy
- I was highly allergic to Taxil. When given I immediately stopped breathing. So I have had carbo and gemzar which didn't work and currently I am on Cytozan and Advastin. - Sarah
- intraperitoneal taxol and cisplatin, 6 - 10/06 (heinous, too long to describe); HIPeC something-or-other intraoperatively 10/07 (really ghastly); IV carboplatin and gemcytabine, 2 - 5/08 (some hair loss, fatigue); sunitinib clinical trial 2/09 (painful hands and feet, fatigue); doxil, 3/09 (fatigue); taxol and carboplatin 5 - 9/09 (hair loss, fatigue, neuropathy, tinnitus); Avastin 10/09 to present (runny nose) - Sarah
- given up on dates the first time on chemo was 7 months and this time has been 9 months - Melissa
- Gemzar, Taxotere and Xeloda - Lumberlady
- Gemzar, 5-FU - Thisdadsdrivetosurvive
- I do not remember all of the names. The chemo was a combination of four different chemo drugs. It did not work. My father experienced nausea and could not taste anything so lost his appetite. He also was very sensitive to temperature.
We are still waiting to start a trial chemotherapy drug! Pray, pray, pray! - Janelle
- Gemazar.... So far, nausea and weakness - Maureen
- Chemo once a week from 4/2/10 to 6/01/10: Was tired the next day with small "blah" moments. - Kelly
- Chemo #1 on 4/02/10: I was more tired then usual and had a "blah" moment after going outside for a few minutes. - Gary
- Gemzar Jan 2008-May 2008
Sept 2009- Oct 2010 - My Mommy
Irinotecan (Campto)- 5/28 first treatment of clinical trial Gemzar with Avastin- was on this treatment for 6 months, it immediately reducedthe tumor on my liver and eventually totally got it. unfortuantely I had to stop Avastin due to high blood pressure and I experienced toxicity in my lungs with the high dose of Gemzar and had to stop. After 6months another liver tumor appeared.
Now Phase One trial Irinotecan with PARP inhibitor. So far has shrunk the liver in my tumor in half. - Theresa
- folfox with avastin, folfuri, cetuximax with cetuximab
- Sunshine
- Sept. 2010 to Nov. 2010 - Oxcaliplatin, 5FU, Avastin. Oxc. not working changed to Irinotecan/Avastin. till April 2011. Tumor growth in liver and lymphnodes. Itinotean/Erbitux from June 2011 till present. - Jennifer
- two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007 - Larissa
- CAPOX 2006, FOLFIRI + AVASTIN 2007, TEGAFUR + AVASTIN 2008, FOLFIRI + AVASTIN 2010, XELODA + AVASTIN 2010 - ONGOING...........FOREVER....WHILST ITS WORKING - Tony
- Bi-weekly chemo. Energy levels vary. Diarrhea, one day only usually. Keep hydrated. - Randy
- 5FU, FOLFOX, FOLFIRI, Avastin, Erbitux, Vectibix - Wendy
- Too many to mention-16 months in total(6,6,4) Every drug they have for colon cancer. - Donna Richno
- started chemo on 12/11/07
clinical trial with avastin,erbitux,oxaliplatin,lecovorin,5FU..now irenotican - Lisa
- 9/07 for 5 months every 2-3 weeks.Fulfox, Five FU, evastin, oxalyplatin -Side affects were mild and temporary such has hair loss (complete on first round) mild neuropathy, Hand and food syndrome. Slight diarrhea but NO nasuea. Loss of appetite, loss of taste.
06/08 Second round of chemo (Irinotecan) more nausea but virtually no diarrhea. neuropathy has returned slightly. I can still taste things after 2 rounds of chemo this time.
- Gretchen
- Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.)
after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash - Sparklie
- Nausea,lethagy,hairloss were some of the side effects and to describe Chemotherapy, all I can say is Horrible - Pete G
- 11/06-oxaliplain,xeloda....tingling and cold sensitivity in hands and feet, fatigue
11/07-irinotecan, avastin, 5FU, diahrrea, fatigue, burning and cramping in abdomen started erbitux january 2010, adding irinotecan this week, sept 20, 2010...post-note that irinotecan caused so much diahrrhea I became too hydrated and wound up in hospital. i had a blockage too, but just sayin'! ;) - Annette
- Flu like symptoms and fatigue. - Randy
- Chop therapy for 7 months - Elisa Rinn
- Original Chemo was Epirubicin, Cisplatin and 5-FU April-September
2nd Irinotecan and Taxane
Current Fol Fox 4 + Avastin - Debbie Wife Of Cancer Survivor Steve A.
- Began chemo in July of '09 with camptosar, leucovrin, and 5-fu. this is over a 46 hour period. In January '10, they added avastin and zometa to the regimin and is ongoing. - Stephanie
Methotrexate (Folex, Mexate, Amethopterin)- i was on chemotherapy for 2 years and 4 months i had weekly treatments for 6 months, then it went to every other week for 6 months, then every month for 1 year 4 months. now im going for check-ups still.. treatments were awfull 12 years old and you cant move without getting sick you cant go and play with your friends because you will get hurt or sick i lost 2 and a half years of my life but it has made me grow up and become a way stronger person than anybody i know.. surviors are the strongest people in this world - Jacquelynn
- started Feb. 26, 2010 I was admitted to hospital every 3 weeks for a total of 6 rounds of treatment - Cycles A and B. - Jessica
- finished with induction therapy, now gonna begin with consolidation. - Saahil646
- Hyper CVAD protocol. Started 3/22/10. None for the first 3 rounds of protocol. Last 4 rounds have had N/V, extreme faitigue, bone and joint pain. - Elizabethsad
- lots of dates,
spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea
vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints.
mercaptiprine, is every day, that just gives her a weird rash.
methotrexate makes her sleepy - Cheyenne Axe
- Vomiting, hair loss, fatigue, mouth sores, reduced immune function. - Brooke
- I'm not going to tell you anything you would be shocked by here. I'm bald - and have been for two years. 98% of anything I eat upsets my stomach in some way. I wish I could sleep all the time, but I have a 5 year old little girl, a full time job and a husband so that is possible. Other than that, Cancer sucks, Chemo sucks worse, but we will all get through it, right? - Rachel
- Methotrexate, Doxyrubicin, Vincristine, Vinblastine, Cytarabine, Etopomide - Alison
- An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010:
Vincristine
PEG-aspariginase
Doxorubicin
Methotrexate
Cytoxan
Cytarabine
6-MP
6-TG
Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain. - Luis M.
- Round one: 7 days of continuous chemo.
Round two: 5 days of 2 times a day chemo
Round three: 2 days of 2 times a day chemo
Followed by 3 days of 2 times a day total body radiation. - Gmc
- Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration. - Gretchen
- 1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems. - Karen Visnansky
- I've taken chemo for 3 years now, many kinds of chemo, my "favorite" is Xeloda. - Erika
- six rounds of CMF three weeks apart. commenced in December 2005 and completed in March, 2006 - Cindy
- E-CMF from Nov 08 Half way through Side effects very mild - Kath
- 6 treatments from March 3, 1994 to June 29, 1994. Started with Taxol Study. Received high-dose Cytoxan 3980 mg and Adriamycin 74.6 mg for 2 cycles. Except for the 1st and the last, blood transfusions were required after every treatment due to low hemoglobin. I developed a blood clot in my right arm shortly after the first blood transfusion in April and had to be hospitalized and put on coumadin for 3 months. Had to be taken off Taxol Study because I could not take high-dose Cytoxan/Adriamycin and Coumadin. I was given Cytoxan 995 mg, 5-FU 995 mg and Adriamycin 99.5 mg for the next 4 treatments. The Adriamycin damaged my heart muscle. Other side effects were nausea, some vomiting, sores in mouth, diarrhea, heartburn, fatigue and complete loss of all hair.
6 treatments from January 20, 2006, to June 2, 2006. I was given a CMF combination of 1200 mg of Cytoxan (Cyclophosphamide), 80 mg of Methotrexate and 1200 mg of Fluorouracil (5-FU). This bout with chemo was much easier than the first. I also had a blood clot in my lung in February, 2006, and was hospitalized for 7 days and put on coumadin for 18 months. Other side effects were minor nausea, fatigue, sore mouth, minor diarrhea and only thinning of my hair. I don't know which one but one of the chemo drugs damaged my right eye and I am still having problems with it.
The worst thing to happen was the death of my husband and my boston terrier dog in May during this bout of chemo.
- Joyce
- Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable. - Tia
- I had 5fu, Methotrexate and Cytoxan. I had the 5fu and Methotrexate in an IV push the first and second Tuesday of each month. The third week I took Cytoxan pills and rested the fouth week. This was for a total of six months. - Marianne Svihlik
- Pre-Surgery April 19-May 26 Five FU for 6 weeks continuous with take home pump
Post Surgery started Sept 22 Full Fox - Christy
- 6 Months starting Dec 2, 2011. 5 hours every other week. 5-FU, Oxaliplatin and leucovorin. Will bring home 5-Fu in a bag for the weekend will run through port and bag removed on Mondays - Gina
- Every week on Day 1 & 2 and Day 8. - Ashley
- ABVD for 6 cycles (12 treatments). Was quite well tolerated, tired for a few days after, hair loss, mild nausea but no vomiting, changes in bowel motions, mild rash on feet and arms, aching veins.
MADEC (methotrexate, cytosine, dex, etoposide, cyclophosphamide) for 2 cycles, one week of chemo in hospital, 2 weeks to recover then repeat. Fatigue, mild nausea, hair loss.
BEAM (carmustine, etoposide, cytosine, melphalan) prior to stem cell transplant. Have only just started this today, had carmustine and so far all good but I know this will change. - Lydia
- im doing an eight mounth treatment plan. every 21 days im back in the hospital for all the chemo they can give me. - Majjicmike
- i will tell you - Hope
- R Chop 6 cycles - Deborah
- Hyper CVAD, March through September 2007 - Susan Carrier
- Nausea, fatigue/sleepiness, "Chemo brain" (inability to concentrate), dry skin, no nail growth, hair loss.
January - May as of now - Gemmag
- Doxorubicin and Cisplation-3 Cycles
Doxorubicin and high dose Methotrexate -1 cycle - P
Tarceva (Erlotinib)- I've been in chemo since june 2011. I was taking 3 different kinds every three weeks but now have gone to just one kind. the initial treatments caused heartburn, hair loss, vision loss, hearing loss, skin discoloration, skin burns, nausea and vomiting, dizzyness, hot flashes, chemo induced asthma, chemo induced menopause, bone pain, I was not able to taste foods that were not sweet, there are many more but I feel like I"m whining...lol - Kiwifestor
- January-April 2009 - Beverly
- Avastin-2008 and 2011, Cisplastin-2009 and 2011, and Tarceva-2011. - Crystal
- December 2004 - Present off and on. On Avastin and Tarceva currently, but stopping to start a new chemo.
- Jo
- Chemo began September, we are on third round of a four-round cycle. We expect five or six treatments will be needed. CT scan will tell us more after fourth round. - Kristi
Taxol (Paclitaxel)- Carboplatin and Taxol, 8/11/2011. Sun-sensitive day after infusion (doesn't that sound like something you'd pay extra for at a spa?), then joint pain, peripheral neuropathy, fatigue on days three and four following chemo. Get better pain meds for next round! - Lynn Knox
- ACT - A was terrible, T was terrible C is easy - Clmoore
- Only 1 round of chemo, none. Loved the Benydryl they gave me before the infusion. - Jennifer
- Taxol, 5FU, Carboplatin, Avastin, Tarceva (withdrawn). - Tim
- Taxol and Carboplatin May 2003-November 2004 - Lonnie
- Can not describe. First what hurt me the most was to be among so many people with cancer, no hair, having the quemo and problaly think about life and death, all with a face of fear... - Marcia
- Currently on taxol/carboplatin
Prior treatment of Folfox 6 showed no sign of lung met shrinkage. - Kbienapfl
- 8-4-09 thru 8-7-09 - Pam
- First time I did chemo was on May 2006 and I lost my hair, throwing up, rashes, weakness. Just pure hell. - Kiera
- Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration. - Gretchen
- Chemo sucked! It's a crazy way to slowly poison yourself and destroy every muscle that you have spent the last ten years working on. Chemo is barbaric and I will cheer the day when this is gone. Obviously, I don't work or support any drug companies. - Cindy
- I've been in chemo since june 2011. I was taking 3 different kinds every three weeks but now have gone to just one kind. the initial treatments caused heartburn, hair loss, vision loss, hearing loss, skin discoloration, skin burns, nausea and vomiting, dizzyness, hot flashes, chemo induced asthma, chemo induced menopause, bone pain, I was not able to taste foods that were not sweet, there are many more but I feel like I"m whining...lol - Kiwifestor
- Well, chemo sucks. What can I say? I had 8 heavy duty treatments, spaced 3 weeks apart. The first 3 were AC, the next 4 were Taxol. It kicked me in the butt, but I never threw up! - Hayley Townley
- To begin June 12th - Jadec
- TAC protocol. 6 rounds every 3 weeks. I refuse most of the pre medications (unless I need them) and ended up not needing any side effect meds my last 2 rounds. I'm having a great reaction to the chemo and my doctor is impressed with how I am weathering each round of chemo. He is shocked that my White and Red Blood cells are doing so well and I ended up being able to navigate the nausea without medications - which means no constipation!!!
The side effects range from liberating (no hair, chemo brain, slowing down, other people cooking for me) to pain-in-the-ass (constipation from the zofran, hungry from the steroids, no nose hairs, sensative gums, run over with a truck feeling from the neulasta) to the hysterical (I'm really good at the 'Old Man from Flordia Suffle' while I wait for my WBC and RBC to come back on line!) - Elizabeth
- 6 treatments 4/07 to 10/07
Fatigue, hair loss - Karin
- 3 (months not sure of all the drug names. A/C and taxol i think. Round two,Cisplatin. - Kathysman
- 6 Taxol + Cytoxan
Nausea, ache, neuropathy, squiggles in eyes - Swhiting
- Taxotere & herceptin weekly for the rest of my life. - A-Love <3
- Chemotherapy 4 X AC - side effects - extreme nausea, hair loss, fatigue.
Neulasta - bone pain.
Chemotherapy 4 X Taxol - Peripheral neuropathy, nausea, bone pain, loss of balance, extreme fatigue, hair loss, low blood platelet count. - Jeedee
- 9/9/10 - Adriamyicen & Cytoxan. Headache, dizzyness, restless leg syndrome, nausia-light in mornings. 9/10 -9/14/10 - EXTREME Headaches, major fatigue, constipation, dizzyness and car sickness. - April
- Starting on 18th April, 2011 - Jolene
- Started AC on 12/12/07. That was fine.
Had a reaction to Leukine (sp) now I'm
Neupagen daily. No problems there. - Doris
- ACT from December 2010 - June 2011. - Leeza
- Started first round of AC on June 12th....will continue 3 more rounds and then on to Taxol. - Karin
- First Taxol 1.5.11, once a week for 12 weeks, FAC once every 3 weeks from 3.30 - 6.1.11. Taxol made me feel like I was wearing a lead raincoat and concrete shoes. FAC was far more discouraging. Lots of digestive issues, couldn't eat, everything taste nasty. It was horrible. - Scrappy Darlene
- 6 months.... 3 at first.... then 3 more after radiation..most side effects there are!!!couldn't eat,sick,cried,tired, you name it....lost my hair, then lost it the 2nd time too,3 months later - Sandy
- Chemo caused hair loss, bloody noses, fever, muscle pain, tingling and numbing, and nausea. And the shot gave me bone pain. - Kris
- Jan. 21st 2010 last 2 coming up.
1st 4 treatments made me very nausaus and tired.
The 1st 2 of this cycle just sick for 2 days then just tired. - Linda
- Last Chemo was May 23 2007. Cyclo/Adri/Taxol.
Lost 22 pounds. Very Weak, and my bones ached bad. Taste and smell was horrible. All is well now. Gained the weight back! darn. - Kelly
- Infusion #1 - 09-22-09. Severe joint pain in lower back, knees, and ankles. Intense nausea.
Infusion #2 - Intense nausea. Severe joint pain. Darkening of my fingernails. Severe headaches.
Infusion #3 and #4 - Intense nausea lasting my entire two week cycle. Headaches. Continued darkening of my nails.
Taxol infusions #1-12 - Slow physical changes to my finger and toe nails, intense nail bed pain which has been cumulative. Big drop in counts at infusion #10, nausea, fatigue. - Jill
- Chemo once every other Friday, eight prescribed. First four: Doxorubicin (a.k.a. Adriomicine) AND Cytoxin; last four Taxol. Nuelasta with every infusion prescribed.
See post "I'm just sayin'" for side effects from first 4 infusions.
- Sonja
- Oral Chemo (Xeloda) - 7/07 to current weight gain, tenderness in hands and feet, fatigue, irritability, feeling full; dehydration - Grace
- Jan 22/08
*Just Started CAF
(Cytoxan,Adriamycin,Fluorouracil-5-FU)
dose dense - 2 week x 4 cycles.
*Taxol + Herceptin
for 6 to 8 months
- Kelly
- Taxotere Aug 2008 - Dec 2008 (3-weekly)
Herceptin Aug 2008 - Aug 2009 and Dec 2009 - March 2011 (3-weekly)
Vinorelbine Dec 2009- May 2010 (for regional recurrence to Internal Mammary nodes - not involved the first time round)
Capecitabine (Xeloda)April 2011 - October 2011(for Liver metastasis)
Adriamycin - December 2011 - February 2012
Taxol March 2012 - Jenny
- Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss
I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes.
I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite.
I started Tykerb in Feb 2009.
I will continue with Herceptin for at least 7 more months after surgery. - Yuyu
- I have completed 3 of my 6 cycles of chemo. I am on Taxotere, Cytoxin and Herceptin. I will finish up in September, with the completion of the Herceptin in May of 2012. I am also receiving a shot of Neulasta which makes my bones ache. The chemo this time has not been so bad except for the flu like symptoms and achiness in my bones. I am tired but this is due to the anemia. - Laurie Harner
- First time: Taxol, Taxotere - Jan - June 2001 - had adverse reaction to taxotere & stopped breathing. Otherwise, the regular side effects like nausea, fatigue, mouth sorers, hair lost, & nerve damage to hands & feet.
Second time: Abraxane, Avastin Oct '07 to May '09. Still on Zometa - indefinitely. Regular side effects: nausea, fatigue, hair lost. Worse one: medical port became infected & had open wound for 6 mons because it could not heal.
- Dana
- Started chemo June 8 2006 and finished up Sept. 28. 2006. Side effects weren't to bad. Just did what I was suppose to so I wouldn't have many.. Biggest side effect.. Baldness but I got through that too. - Lori
- Began Adreamycin/Cytoxin on Aug 30, 2007.Completed my last dose of Taxol on Jan. 30, 2008. My main side effects were the exhaustion and mouth ulceration and neuropathy in my toes and fingers with the Taxol. - Shrinklady
- suffer to heal. stay mindful of what it means to be aware. - Jenny Warrior- Amazon Woman Style
- The 4 "red devil" treatments were the worst & those neulasta shots! I had an allergic reaction to Taxol. Really bad! So they switched me to Tacrete. Easier to handle physically but took longer in between chemos. - Tricia
- Adriamycin-tore up my mouth and taste buds, cracked the corners of my mouth, leg pain/aches, fatigue, loss of hair, eyebrows and eyelashes. - Helen
- Fatigue and extremly low white blood cell count - otherwise known as neutropenia. - Rachel Pappas
- They removed all my teeth because they said the chemo and radiation would kill their roots. I went through 5 cycles of the red devil and 10 taxol. I am still on femara - Simplysharron
- AC followed by Taxol total 24 weeks beginning Oct 2009
Became very neutropenic (low white blood cells) A couple of mouth sores - Rachel Pappas
- Red Devil, cytoxan, taxol....May 2002....Bone pain, tired all the time!...Gained weight - Judy
- Very sick. 12 years ago the drugs for side effects were not as effective as they are now and hopefully will continue to get better - Regina
- I do my treatments through an IV.I only have to take 4 of them. I just finished my s
2nd one on Monday 11-2-09. This one was alot harder for me to bounce back than the 1st on was.The next one is 9-23-09 - Annette
- Dec. 19 2003 - Feb. 27 2004. First-line, dose-dense chemo. Taxotere, Cytoxan and Adriamycin. Horrible horrible horrible. Felt godawful (aching fatigue unrelieved by sleep, and absolutely no energy) for years afterwards. I don't think I'd do it again. - Dawn
- AC and Taxol - Donnalh
- Four cycles, last one January 28. Mostly fine, except I learned too late that even though I feel fine physically, it doesn't mean I can do all the things I used to do like shoveling. I really slammed myself a couple of times by trying to do too much. Constipation was the worst side effect, but Smooth Move tea works great. The nausea was tolerable, until I overdid it physically, then I felt like I was on an oceanliner in a hurricane. - Sue
- December 2000
every 3 weeks for 6 months
nauseus, hair loss, headaches etc.
December 2007
every week, then every 3 weeks for 16 months
nauseus, hair loss, nuropathy, headaches, etc - Maureen
- FEC and taxotere. Three treatments of each starting 2/11 - Deb
- 8 sessions, sweats, nausea, constipation, de hydration, low white cell counts. joint, bone, muscle, numbness, tingling, pain from Taxol during and post-chemo. Peripheral neuropathy has been diagnosed. - Grace345
- phase 1 - A/C, phase 2 - Pacletaxol with Herceptin, phase 3 radiation, phase 4 - continuation of Herceptin for full 52 weeks. Daily injections of Luekine then Neupogen.
side effects - neuropathy (still), hair loss, lost sense of taste, constipation, diarhea, bone pain, nausea, vomiting. chest pain (hate muga scans!)blood transfusions due to low counts - QuiltMom
- Chemo started 1/2. Four treatments with the last one being 3/10. Severe allergic reaction to the Taxol landed me in the hospital in February after the second treatment. Had to stop Taxol and go on adriamycin instead with fewer side effects. - Laurie
- Began chemotherapy in 3'06. Side effects were mouth sores, nausea and vomiting. Bone pain, neuropathy in fingers and feet. Nail beds turned black. - Jerryann Norton
- Pending. I have only been told of what the drugs of choice will be and I can plan on being bald. - Shelly Bryant
- NOW ON ABRAXANE AND AVASTIN CHEMO
SIDE EFFECTS WEAKNESS, FATIGUE, PERIPHERAL NEUROPATHY , NAILS PEELING OFF FINGERS, NOSE BLEEDS - ALL SOUND BAD BUT ARE TOLERABLE - Sharon Riley
- Started 06-20-Nausea, constipation, severe headahces, body aches, fatigue, dizziness, hot flashes, grumpiness. 07-05-some Nausea, headaches, fatigue, dizziness, port became infected. - Cathy
- 4/2009 Abraxane and Carboplatin
9/2009 Taxol and Avastin
had an allergic reaction at the end of the run of Carboplatin
Avastin caused my blood pressure to increase sharply, so it was discontinued - Donna Peach
- ACT therapy- alot of bone pain; nausea; extreme fatigue. Currently experiencing neuropathy from Taxol. - Tenna
- Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable. - Tia
- treatments spanning over 4 months. Felt poisoned and beat up the entire time. - Joannab
- Protocol: FEC-T (4 months/every 3 weeks)
FEC-T :Epirubicin/Fluorouracil/Cyclophosphamide cycles 1-3, then add Docetaxel for cycles 4-6
Finished chemo November 24/2010 - Rachel
- First chemo starts July 7 2011 - Lauri
- 10/05-08/06 adriamyacin, very weak
- Melissa Ball
- Taxotere & Carboplatin 6/30/11- 10/13/11
All classic symptoms
- Cindy
- First Chemo 9-8-2008. Side Effects - Pain, joint and bone pain, can't taste anything, headaches, bodyaches and my skin hurts and weight gain from the steroids. - Bleunote
- I just finished 4 rounds of A/C chemo treatments. Fatigue and infection was my worst enemy. First chemo treatment, I was in the hospital with pneumonia and neutrepedic. Very sick. I can only say I am glad its over. Now I am getting a port and will start Taxol next week. - Kimz57bc2
- on 2nd round of AC, bald and trying to hold onto willpower. I get pretty sickly the 3rd day after cheno, 1/6/12 3rd treatment - Lori
- Adriamicin, Cytoxan, Taxol - Judee
- Nausea, vomiting, bad headache, fatigue, mouth soreness, hair loss. - Linda
- 4 dose dense a/c for 8 weeks then paclitaxol for 12 weeks. which ended on 11 sept 08. Jan.09 12 weeks of radiation. - Cami
- Taxotere, Carboplatin, Herceptin Dec 08 through Dec. 09
Nausea
Migraines
Loose fingernails/toenails, MRSA infections x 8, auto immune allergic reactions
Hair loss
allergies developed
Loss of menses (early menopause)
- KorynH
- 6 cycles, every 3 weeks, carboplatin, taxotere, and herceptin. I still recieve the herceptin, which had no side effects at all, for me. The carboplatin/taxotere had MANY; nausea (1 night I vomited VIOLENTLY from discontinuing my zofran too early), stomatitis(for which ice really does work, ice cream, itallian ice, etc. for YOUR ENTIRE INFUSION, learned this cycle 4), rash from the decadron that was SEVERE, and the very, very worst was the neuropathy that lasted about 2 months post-chemo which was just torture...but it's nearly gone now, the arm, and breast hurt worse, and I am so grateful. Taxotere is what caused that, so I hear, but it goes away slowly, but almost surely, that's the good news. - Katie
- 8 rounds - 4 A/C - 4 Taxol
Hair loss on 13th day, bone pain from Taxol, rhematoid arthritis outcome - Denise Hall
- 12 rounds of chemo - Chelle Jones
- September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months. - Staypositive
- may 4 2008,nausea,and alot of hand pain - Valerie
- Started chemo in May 2009, got a port so my viens are still good. Adriamycin: fatigue, hair losse, nausea, constipation. Taxol: PAIN, fatigue, chemo brain, PAIN. - Anne
- 9/10-1/11 hair loss,fatigue,mouth sores,neuropathy of feet and toes, brittle finger nails - Shannon
- Things I wish someone had told me- You feel the worst on days 3-5.
Even though you're nauseous you can still eat with enough drugs (I never threw up!)
Get your hair buzzed as soon as it starts to come out, and your scalp hurts, you will feel much better. Don't shave it until your scalp stops hurting.
Your nose runs because you have no nose hair to catch it
A little infection will knock you on your ass.
Claritin can fight some of the neulasta side effects
Glutamine and vitamin B can help with the Taxol tingle
Ugg makes flip flops- AHHH big help with the Taxol tingle
Some people lose their fingernails with Taxol (but mine are intact- I have chemo rings, though) - Jan
- May 23rd 2007 started 6 sessions 3 x F.E.C
3 X Taxotere
Ulcers in my mouth, sickness, diarrhoea,
thrush, joint pain, loss of finger and toe nails, peeling skin on hands and feet, - Donna Jayne Watters
- 4 rounds of AC and 4 rounds of Taxol every 2 weeks from 3/4/2010 - 6/17/2010...just miserable! Landed in the hospital with neutropenia for 4 days.Mouth sores were the worst! Lost 10 lbs because of that. SO glad to be finished but still feeling the effects. Blah! - Mrsfitz
- August 2nd first chemo. Extreme heartburn, tired, body aches, fevers. Taxtore, Adriamucin,& Cytoxan every three weeks for a total of 8 treatments. Doctor wants to do more.
August 8th running a fever of 104 in the hospital for a week. Hallucations, extreme stomach pain and boby pain. Can't eat.
August 23rd chemo. 24th start of neulasta shots. Extreme body pain, joint aches, headaches, nausea and fevers. Hair getting thin.
Sept 13 hair is gone. High fevers been on antibotics since hospital. Same side effects as the first & second. Exhausted all the time.
Oct thru Dec extreme headaches, sick to the stomach, body aches, fevers, chills, pain in my bones and feet. Dizzy and blurry eye sight. Antibotics throughtout chemo with neulasta shots.
Had a fever of at least 100 degrees throught treatments of chemo. Highest was 104.4. - LC
- I had every side effect in the book! You name it I had it! Gained 20 pounds on the steroids. - Irene
- Started Adriamycin/Cytoxan on 6-4-09 dose dense. (1 dose every 2 weeks for total of 4 doses.) Felt fatigue, stomach upset,hair loss. Started Taxol 7-30-09 dose dense (1 dose every 2 weeks for total of 4 doses.) Felt achey, tired and depressed, hair loss. - Lisa
- 6 cycles chemotherapy begining 11/12/07
complete hair loss, mouth sores, black nail beds, weight gain, inflamation, fatique, everything tastes like lead. Joint pain from Neulestra shot. - Evelyn
- AC dose dense,then taxotere all for 5.5 months.Lots of lousy side effects you name it I had it! - Marina Smith
- 3/03 ~both Adri/Cytoxin together (red devil alright) lost hair~flu-like follicles actually hurt. Taxol = body aches but, milder but harder to explain symptoms. Determined to drink lots of water and not to throw up...didn't. Walked alot after. High stress prepping for infusions. Got a port catheter 3/17...had to put in main vein in my neck other too small... strange to me....still have... - Tammy Morgan
- 4 cycles dose dense Doxorubicin and Cyclophosphamide, then 4 cycles dose dense Paclitaxel to start 12/09/08 - Manateetmr
- Finished February 21, 2010 - Sus
- I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane - Donna
- 4 rounds of Adriamycin and Cyclophosphamide together every 2 weeks. I am done with those 4 rounds. 4 rounds of Taxol every 2 weeks I have 3 rounds left. - Gina
- AC, 3-2-11 lots of nausea, hurt to breathe through nose, blinding headaches (3-4 through 3-6), all-over weakness through the first week, leg and tailbone area pain. - Jen
- Chemo was manageable --- did not have the nausea that some experience. The steroid you have to take ahead of the chemo was as bad or worse than the chemo itself. In the end, the worst part of chemo was what it did to my brain. Couldn't remember anything, which affected my ability to do my job. - Awoliii
- Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse.
Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo. - Marneyd
- Carboplatin/Taxol, continuous 5FU drip March/April 2008
Taxotere July/August/September 2008
Cisplatin January/February 2009 - Travis
- Chemotherapy is bi weekly on fridays!
Side effects include Nausea, fatigue, and weakness, hair thinning - Natalie
- Loss of hair and nausea - Tara Mansir
- Chemo not too bad with side effects. Im puffy. - Margaret Rogers
- 2 rounds of Taxol/carbo 11/2011 & 12/2011...Is being changed for 1/2012...not sure of new drugs yet - Lilsis
- Sept 6-Nov 6 2008: every three weeks for 6 hours. Side effects: hair loss, tired, and sore from the Nuesta shot, but overall not as bad as it could have been. - Adi
- Have had 5 chemo treatments. Took 5 hour "naps" afterwards. Some foods tasted nasty! Normally a huge water drinker but water nauseated me. Required at home IV infusions of Potassium and Magnesium for 8 hours/day for total of 15 days, also received a few infusions at the clinic for dehydration and low electrolytes. Anti-nausea meds didn't work on me. - Terry
- Had cisplatin for 6 weeks during radiation, now am on my 5th of 6 treatments every three weeks (taxol and cisplatin) - PattiD
- Oct 07 to Dec 07 - Cisplatin chemo 1x a week with radiation;. Constant terrible nausea, very sensitive to tastes and smells. Ate only carbs, couldn't even stand the smell of my dog! Everything nauseated me.
Aug 08 to Dec 08 - Carboplatin and Paclitaxel every 3 weeks x 6 doses. Hair gone by 2nd treatment, fluid overload on chemo days due to drugs being hard on kidneys - had to flush. About 2-3 days post chemo, horrible bone pain, numbness and tingling in hands and feet (peripheral neuropathy) and constipation that almost hospitalized me. Would last for a week or so and then settle down. Horrible fatigue, felt like lead. My hair started coming back really quickly after treatment stopped,but the neuropathy lasted almost a year, fatigue continues to be a problem. UPDATE Feb/10: Going back for another 6 rounds of the not so pretty poison. Carbo/Taxol once again. Gonna miss my hair...oh yeah, and the ability to feel human! - Chickracer
- Paclitaxel, Cisplatin, Bevacizumab, Avastin - Cheryl
- I've had two rounds of chemo (carbo-taxol and FOLFOX, Avastin), neither of which were effective. - Ann
- Lost hair not much else - Ava
- May 2010 Chemo Carboplatin/ Taxol, nausea, fatigue, hair loss - Monika
- Chemotherapy Carboplatin, Taxol - Luise
- Chemo came after radiation the first time, chemo only the second time, radiation only the 3rd time. Allergic reactions to almost all the drugs tried, but that was the second time. The ones that I didn't react to made me very sick, so I'd go in to be hydrated the day after chemo since I was unable to do that at home. It's hard to eat and drink when you're asleep. Another side effect of the drugs and certainly the pain killers for me. - Judy
- Finished Aug 23, 2011. 6 treatments completed. Zofran for anti-nausea worked but caused headaches. - Lynne
- Cyclophosphamid Carpoplatin Taxol - Manuela
- Had a port put in August 2011, then started chemo. 2 drugs. Plan is 6 cycles, every 21 days. Have completed 3. Blood work ok, but almost unable to walk. No strength, can hardly stand, can't climb stairs well. Feet are numb, butt now numb. Had spinal MRI 11/11, #4 delayed a week. - Mfrye
- I have had two rounds of chemo, and the next will take place on Jan 31, 2012. After that, three more rounds! - Crystalwoman
- Taxol/carbo, starting Dec 12, 2007. Some joint pain, hair loss (boo-hoo) and slight stomach upset. - Bonnie
- currently doing carbo/taxol every three weeks. Extreme fatigue, muscle aches, taste changes - Brenda
- Started my chemo on Sept 11th of 2008. I have to complete seven cycles.
I receive cisplatin and adriamycin on the first day of treatment along with other pre-meds such as decadron and emend. Second day of treatment I receive Taxol and the following day I go back in to get a injection of neulasta.
- Candy
- First round of chemo on 7 May 09
Second round of chemo on 1 Jun 09
Third round of chemo scheduled for 21 Aug 09
My doctor is using a new "sandwich" approach to treatment. 2 rounds of chemo > then 25 days of radiation > then 2 more rounds of chemo. This is new and apparently works better than all chemo then radiation.
I am in control and working to erradicate the cancer via chemo and radiation. - Jane
- 6 chemotherpay treatments. Cisplatin for 2 and Taxol/Carbo for 4. Stomach nausea,bone pain after Neulasta shot, constant dehydration, tired all the time & neuropathy in feet. - Maria
- Chemo 6/21/10, 7/12/10, 8/2/10, 8/24/10, 9/14/10 - nausea, fatigue, bone & joint pain, diarrhea, neuropathy; scheduled for 1 more round - Debbie
- Start in mid October. - Kathy
- little queasy tired bald last one nov 5th 2010 yesssssss!! - Robin
- june 13 2011. no side effects yet - Peggy
- 4 cycles of chemotherapy ending in late August, radiation to follow depending on how the cancer responds. - Vanessa
- 2007 April til present so far 5 rounds
Taxotere Carboplatin Avastin
Emend for nausea Aranesp for red blood
Neulasta for white blood etc..... - Sherry
- 7/24/07 Taxol and Carboplatin 2 and a half days full of energy, 3rd day she is complaining of pain and flu like symptoms... She HAS NOT taken Claritin which her oncologist recommended for these symptoms. - Tina
- Feb 08-Cisplatin/Etoposide- hideous vomiting diarreah Switched chemo drugs AND Hospital -April08-carbo/taxol/avastin. Tolerated well. Neulasta. Bone pain - Denita
- 2/26/08to 5/28/08 - 6 cycles
Taxol, carboplatin and Avastin for lung ca.
Hair loss and peripheral neuropathy - some fatigue. - Carol
- Taxol and Carboplatin every 3 weeks for a total of 4-6 treatments. Have had 2. Nausea, fatigue, aches and pain in whole body. Also DVT. - Elena
- Chemo began September, we are on third round of a four-round cycle. We expect five or six treatments will be needed. CT scan will tell us more after fourth round. - Kristi
- Chemotherapy 12/09 to 2/10- loss of hair, weight, blood clot, fatigue, low white blood cell count and nausea neuropathy in finger and toes. 6/10 to 1/11 same symptoms as previously noted except for no blood clots. - Chrisandra
- Carbo/Alimta
07.2008 Carbo/Taxol - Got taken off Avastin after pulmonary embolism. (nausea, vomiting, fatigue)
02.2009 Carbo/Alimta - Developed allergy to Taxol. (anemia, fatigue) Radiation therapy. - Taffsayswhat
- 1st series Aug'07 to Dec - 6 infusions - Carboplatin, Taxol and Avastin. Side effects, loss of all hair, fatigue, weight loss. 2nd series, 7 infusions - Sept '08 to Apr '09 - same coctail as above - Charlie
- chemo fog. - Gracie
- carbo/taxol only effect has been being tired!! Verty low white cell counts, had to receive one transfusion, other wise has handled it well. - Rhonda
- Taxol, a pain in arm and in the Ass. - John
- Started chemo Mar 1st 2009 Continued pain,a very few side effects to date-next treatmentApril 12 - Mike
- Taxol and carboplatin so far 8 treatments
CA-125 is now down to 130 - Tammy B
- none the dr did a slice and dice SIDE AFFECTS WERE WEALINING OF HEART MUSCLES HAD A STROKE 2 YEARS LATER AND NEEDED A PACE MAKER PUT IN YES I AM THE BIONIC WOMAN HEAR ME ROAR ALSO HAVE NEROPATHY IN FEET AND LEGS - CELESTE FROM CT.
- Had 2 courses of CarboPlatin and Taxol via vascualr Port; followed by 4 courses of IP chemo with Cisplatin and Taxol, one course every 3 weeks, requiring 3 days in hospital each time. Could only tolerate 4 courses because side effects were too severe: nausea, vomiting, constipation and diarrhea, ototoxicity resulting in some permanent hearing loss in left ear and also tinitus, tingling, numbness and pain in hands and feet (apparently permanent), and "chemo brain" - no short term memory, fogginess, confusion, and exhaustion. Serious loss of weight as well. Last 2 courses of chemo were via vascular port and the same as the first 2, and were tolerated fairly well. - Katherine Moore
- Combined carboplatin and taxol, both administered systemically by IV started August 10, 2011, with last cycle administered November 23, 2011. Side effects included: nausea that was only gotten under control after the second administration using about 5 drugs; intense fatigue; muscle and joint pains that were reduced with tylenol and later greatly reduced with gabopentin; intense neuropathy in hands and feet, but even lips and chin until the gabopentin took the edge off that, too. Neuropathy still intense in first week of every cycle. Other side effects included intense fatigue, weakness, vision problems on two occasions (blindness in one eye when reading lying on side), severe constipation, and cognitive effects (short term memory dysfunction, inability to solve puzzles, inability to multitask or withstand multiple stimuli at once). There's talk of giving me a PARP-inhibitor for maintenance therapy in 2012. - 1verypalpablehit
- Paclitaxel (Taxol)/Carboplatin (Paraplatin)combination. 6 treatments. 21 days apart. - Kendra
- Jan-May/06 6 Taxol/Carbo CA-124 = 7
May/06 neuropathy hit - severe damage to hands and feet. Hands are curled..
I can't move ankles or toes. Severe nerve pain - can walk 5-6 steps w/ walker
- Mary Jordan
- IP chemo. Taxol and Cisplatin. She has suffered from the following effects: fatigue, nausea, heart burn, pain in her lower abdomen, numbness/tingling in her hands, legs, feet and "chemo brain" - StephLoves
- One treatment so far on 3/23. Side effects for two days included exhaustion beyond sleepiness, nausea and depression. I'm so glad it only lasted 2 days! Constipation and painful bowel movements. - Timegal
- I'm on my 4th round of chemo treatment in 3 years time. This round is 2 days a week. Side effects are joint pain, nasea, vomiting, diarrhea, night sweats, loss of appetite, hair loss, irritability, exhaustion, and thankfulness for each day - Kristi
- Start Jan 6, 2012 Six rounds of carboplatin and paclitaxel once every 3 weeks. - CarolS
- Carbo and Taxol 6 rounds. Loss all my hair, even my nose hair, eyebrows, everything. Weak, muscle and nerve pains, anemia - Terri Lee
- February 2009: CA125 level was around 3500. She began treatment with Taxol/Carbo with Avastin. Within two weeks, she lost all of her gorgeous red hair. Energy level dropped significantly.
She continued having "maintenance" chemo.
June 2009: CA125 dropped to 32, and then to 16 later that month. Oncologist decided to stop chemo- as there was no sign of cancer!
March 2010: Having chest pain/shortness of breath. CT scan showed fluid in her lungs. Testing after thoracentesis revealed cancerous cells in the fluid.
CA125 was back up to 300.
It is now referred to as "RECURRENT CANCER"
She began chemo again: Cisplatin and Gemzar.
Cisplatin was causing tinnitus. Oncologist decided to discontinue to avoid permanent hearing damage.
The Gemzar would usually burn during infusion. Side effects: headaches, intense nausea and often uncontrollable vomiting. Drastic decrease in appetite (and weight: about 70lbs)
Last time it was checked, her CA12 was hovering around 86.
I'm guessing it's currently off the charts. - Carolyn
- 7-2010 IP/IV chemo x 6 cycles ( cisplatin/taxol/carboplatin)
Hair loss, extreme fatigue, abdominal pain...
11-2011 ca125 on the rise. 4/6 cycles complete of topotecan. Ca125 back in its place.
BRCA 1
Minimal side effects: reasonable fatigue and well controlled nausea. - Movingforward
- 6 month of Carbo Taxol
1 year of don't remember (wasted time)
6 months of Platnal and Gemzar (she was already to weak) - Wendy
- July 2011 started with carboplatin and taxol (7 rounds in all). Reaction to the decadron had some nausea at the beginning sol they tweaked it with emend, sore muscles and joints day 4,5,6,7 after chemo usually spent in bed. and spent
the rest of the time getting semi normal before the next round Stopped in Sept until december 2011 during which i had surgery last treatment january 20 2012 - Amazing Race
- Taxol/Carbo x 8 - Bonnie
- Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol - Sammy
- 1. Chemo Sept- Oct.2010
2. Chemo Nov - dec. 2010
currently ip chemo - Brombeere
- 2/6/2009- Started Taxol and Carboplatnium cocktail. (6 sessions)
2/26/2009- Started GOG- 218 (Avastin Trial)
Nurses/doctors notice side effects indicating she was actually receiving the drug. - Jessica
- chemo May 2008 to August 2008, did 5 rounds out of 6 - nausea, peripheral neuropathy, anemia,hair loss,dehydration, fatigue, weight loss - Carol
- march-june 08: 6 taxotere/carboplatin
november-april 09: 6 taxol/carboplatin
oktober-? 09: started caelyx/carboplatin
every side affect you can imagine - Debralee
- 1st. Chemo July - August 2009
2nd. Chemo February 2010 ip.chemo
3rd. Chemo January 2011 ip.chemo - Carmen31
- taxol/carbo dec 2008-april2009 topotecan sept 2009/present - Sandy
- I had my first chemo treatment on 04/07/2005 (my little brother's birthday) and I went for 6 hours a day, once every 3 weeks... - Missmarymack
- intraperitoneal taxol and cisplatin, 6 - 10/06 (heinous, too long to describe); HIPeC something-or-other intraoperatively 10/07 (really ghastly); IV carboplatin and gemcytabine, 2 - 5/08 (some hair loss, fatigue); sunitinib clinical trial 2/09 (painful hands and feet, fatigue); doxil, 3/09 (fatigue); taxol and carboplatin 5 - 9/09 (hair loss, fatigue, neuropathy, tinnitus); Avastin 10/09 to present (runny nose) - Sarah
- 1st. Chemo Feb. - March 2009
2nd. Chemo Nov - Dec. 2009
3rd. Chemo ip. Aug.-Sept.2010 - Katharina
- First Chemotherapy was Monday, March 29, 2010 - The only medical side effect was a very red face in reaction to the steroid in one of the preparatory drugs. Main side effect was pronounced "blues". Mom stayed on the couch for three days and ate very little. - Allie's Daughter
- First chemo carbo/taxol on May 7th. so far, a bit of joint and bone pain, nothing else - Clabat
- 6 rounds of Carbo Platinum and Taxol from 3/18/05-7/8/05
major side effect after the chemo was stopped: fatigue, memory loss
Started chemo again in October of 2008. Taxol, Carbo Platinum and Avastin. Switched the taxol to taxotere after four rounds because of neuropathy. Major symptoms, nausea, fatigue, nose bleeds, low white blood cells, memory loss, did I mention fatigue? - Slockwooclimbs
- July - November 2008: 6 rounds IP Cisplatin and IV taxol. Side effects: You name it, it happened... hair loss, nerve damage, mouth sores, drop in red blood cells which required a transfusion, high creatin, low magnesium and potassium, diarrhea, constipation... I still blame the nurse for not making sure my dexamethosone was added to the chemo!
Next Monday I start 6 rounds of IV Carboplatin and Doxil. - Catherine
- Paclitaxel(Taxol)/Carboplatin(Paraplatin) combination, intravenous, 4 treatments total, 3 weeks apart. My first treatment was Oct. 17th. The side effects weren't been too horrible. Days 3-6 I felt really bad, but I never vomited! I just felt VERY weak, and VERY sick. I was so pale I scared myself in the mirror, and sometimes I felt so bad I couldn't even talk. I had HORRIBLE constipation like never before, and I still have heartburn, which I never got before. - Tanya
- Taxol and Carbo, every 3 weeks for 6 times, next (3rd) will be April 29. First three hours of administering drugs, agnonizing dizziness due to high dose of Benadrly to combat first few hours of chemo drugs. Next two days seem ok, with a false sense of energy, then day four through 8 no desire to drink, get dehydrated, can't stand or something strenuous for long periods of time, physically weak and tired always. Tiredness especially never is gone. - Debb
- Carbo/taxol
Doxil
Carbo/Taxol
Topotecan
Gemzar and experimental drug
Taxotere and Avastin
- Barbara Ouellette
- Mar.2007-taxol & carboplantinum (8 treatments)
July 2008-taxol & carboplantinum (7 treatments) The first 2 rounds left me weak, loss of hair, nausea and vomiting
Oct 2009-Doxil for six months. Side effects not so bad - Hannah
- June 20, 2006, and every following 3 weeks...through August 29, 2006...then the last 2 of the 6 treatments - November 7, 2006 & November 28, 2006
Carboplatin & Taxol
I really didn't know what to expect with the first treatment. Felt great for 24 hours after...but then I felt like a semi-truck had run over me about 10 times...or worse case of the flu X 20! Twelve days later, I had a reverse mohawk going on (hair falling out)and had my husband shave my head. The worst of it was losing my eyelashes and eyebrows!!!! You know your hair is going to go...but no one told me ALL of my body hair would go!!! Talk about being striped of your "womanhood"! I still wince when I think of those times!
Numbness in my feet(Pins & Needles)...always worse by the end of the day. - Karen Spriggs
- taxol and platins - 9 treatments completed 4/1/10 (3 of which included IP cisplatin) - Melanie
- July 24,2009 first treatment taxol and carboplatin. The only problem I had was my own fault. I got sick that night because I came home and ate stewed tomatoes and chased it down with a Pepsi! Big mistake because I quickly learned that Chemo and acid DON'T mix. Treatments 2,3, bought feet itching, loss of smell and taste. Treatment 4 was not to bad slight big toe bleeds but manageable, slight problem with vision seeing bright white spaces from within my eyes. Treatment 5 I had a mouth bleed, neuropthy more consistant. Treatment 6 manageable but eyes still have the spots. Neuropthy worsens, still itching. - Solliah
- 6 rounds of chemo, first one 3/9/11, last one 6/21/11. Side effects: constipation; sharp pains in legs and feet; metal taste in mouth; heavy limbs; pain in joints; jittery; loss of all body hair; eventual numbness and tingling on bottoms of feet; and a slew of other things. - Cathi
- Carboplatin and Taxol once every three weeks, 6 times. Fatigue, faux sence of energy at first, couldn't sleep for two day after, then crashing with neuropathy pain and fatigue - Debb
- On Chemo from April to Sept 2010. Main side effects were fatigue, weight gain, mouth sores occasionally. - Theresa
- Original Chemo was Epirubicin, Cisplatin and 5-FU April-September
2nd Irinotecan and Taxane
Current Fol Fox 4 + Avastin - Debbie Wife Of Cancer Survivor Steve A.
- Bleomycin, Etoposide, Cisplatn (March 07 - May 07)
Cisplatin, Taxol, Ifosfamide (September 07 - November 07) - Brad
- 1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss)
2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment.
2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course
2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course. - David
- Dry Mouth. Lost body hair, Sick at stomach, weight loss. - Anthony
- I started the chemo the frist week in July 2010. I had a reaction to the first chemo which was Carboplatin and taxol so they changed it to Cisplatin and taxotere. They loaded me up on steroids and during the next treatment i had yet another reaction this one only worse than the first. So as a last ditch effort they changed again to cetuximab and honestly i cant remember what the second one they gave me with this was. I was ok with this drug but the side effects were aweful! I broke out all over my face with horrible acne and it made the radiation stronger which made the raidation burns worse. - Jen
- Carboplatin 08/06/2010. Mild Fatigue.
Carboplatin 08/26/2010. Radiation recall.
Carboplatin 09/16/2010. Neck is tightening due to radiation recall.
Alimta
erbitux
Low Platelet 10/07/2010 Carboplatin, Taxotere,5FU 01/2011 n 02/2011. - Kim
- Taxol and carboplatin. 6 weekly infusions. - Dan
- None lol...Five Days "Induction Chemo" Nov. 2009 with 26 high dose infusions of Cisplatin, Taxotere, Flourococil FU-5 and other meds...I don't reccomend this and had to be hospitalized and nursing home for 6 months in isolation, and 1 month in ICU. Extreme swelling then lost 100lbs in one month, diarreah,
nauseausness, vomitting, septic shock, organs failing, on respirator, severe neuropathy, muscle paralysis from waist down and could not walk for 10 months, toe drop, foot drop, conjunctivitous, vision trouble, then blindness in one eye, abscesses, MRSA infection, Staph infection, C-diff, anemia, hemolysis requiring blood transfusions, shingles, tinnitus, bed sores on back, butttocks and ears, 2nd degree burns on face and hands and inside mouth and throat, all toenails and fingernails came off, hair loss and thats I rememeber. - Paul
- starting chemotherapy about 12/19/11. Ended chemotherapy 2/12/12 - Onecraftymother
- Taxol and Carboplatin. Started November 2008, should be completed March 25, 2008. Side effects some nausea with first treatment, leg pain and neuropathy. - Joan Kirkpatrick
Topotecan (Hycamtin)- Carboplatin and Taxol, 8/11/2011. Sun-sensitive day after infusion (doesn't that sound like something you'd pay extra for at a spa?), then joint pain, peripheral neuropathy, fatigue on days three and four following chemo. Get better pain meds for next round! - Lynn Knox
- Loss of hair and nausea - Tara Mansir
- Chemotherapy 12/09 to 2/10- loss of hair, weight, blood clot, fatigue, low white blood cell count and nausea neuropathy in finger and toes. 6/10 to 1/11 same symptoms as previously noted except for no blood clots. - Chrisandra
- 7-2010 IP/IV chemo x 6 cycles ( cisplatin/taxol/carboplatin)
Hair loss, extreme fatigue, abdominal pain...
11-2011 ca125 on the rise. 4/6 cycles complete of topotecan. Ca125 back in its place.
BRCA 1
Minimal side effects: reasonable fatigue and well controlled nausea. - Movingforward
- Two induction treatments then weekly chemo. Hospitalized eight times due to vomiting and fatigue - Cullen12
Vincristine (Oncovin, Vincasar PFS)- R C h o p. 21, Six cycles stated feb 11 last one ( hopefully )June 1st 2011.
Severe tummy gloating, gas, and pain. Heavy fatigue and nausea, constipation, sweats, hair loss, neuropathy, weight gain in trunk area. Sweats. Fevers. Period gone after first week. Dunno if gone 4 good. - Heidi
- finished with induction therapy, now gonna begin with consolidation. - Saahil646
- An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010:
Vincristine
PEG-aspariginase
Doxorubicin
Methotrexate
Cytoxan
Cytarabine
6-MP
6-TG
Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain. - Luis M.
- At first it was the same as radiation, but when they got aggressive in August, I was stuck to the couch for 2 weeks. Weakness, major nausea, muscle and bone pain, throat swelling, mouth sores, major shivers and shakiness, tremors, spinal and head pain, throbbing from head to lower spine...theres more but can't remember them all. - Kristi
- 3 Cycles of Chemo - Cyclophosphamide, Vincristine, Cisplatin - Dec to Feb. (3 weeks apart) - Foot Drops and trips and falls
3 Cycles of Intensive Chemo with Autologous Stem Cell Transplant - Carboplatin & Thiotepa - Feb to May (4 weeks apart) - Hearing Damage - Rosiesweetrosie
- R-Chop--6 cycles total..completed 5/18,6/8 and 6/24/2011,7/15/11 8/8/11 and 8/25/11. side effects: nausea, bone pain, headaches, ear pain(probably from neulasta/neupogen),some fatigue, severe heartburn/epigastic discomfort, mood changes - Robyn
- CVP-R
So far I have fatigue and prednisone make me anxios and nervious - Doreen
- R-CHOP14 to start on September 13 for six cycles. - Beth
- Rituxan/Bendamustine (Summer 2010) - very little except fatigue. R-CHOP (summer 2011) - nausea, fatigue, hair loss - Chris
- R-CHOP 25/11/11 - Bethany
- R-Chop-6 cycles. I had one treatment of Treanda and Rituxan before my second biopsy confirmed the presence of b-cell lymphoma, then it changed to 6 cycles of R-Chop. Started treatment in June and ended Oct. 27, 2011. Now receiving 2 years or Rituxan every other month.
Side effects were fatigue, nausea, change in taste , diarrhea, bloating and weight gain from prednisone..anxiety..immune suppression that lead to infections towards the end-staph infection in my face and uti-had to reduce the days I was working due to the immunesuppression. - Eileen
- R-CHOP, 4 cycles, side effects: nausea, fatigue - Carly1115
- R+Chop, 1/4/2012-4/23/2012 - Faydra
- August-January 2012. - Sarah Friedman
Vinorelbine (Navelbine)- Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration. - Gretchen
- I've taken chemo for 3 years now, many kinds of chemo, my "favorite" is Xeloda. - Erika
- 1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems. - Karen Visnansky
- Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable. - Tia
- Taxotere Aug 2008 - Dec 2008 (3-weekly)
Herceptin Aug 2008 - Aug 2009 and Dec 2009 - March 2011 (3-weekly)
Vinorelbine Dec 2009- May 2010 (for regional recurrence to Internal Mammary nodes - not involved the first time round)
Capecitabine (Xeloda)April 2011 - October 2011(for Liver metastasis)
Adriamycin - December 2011 - February 2012
Taxol March 2012 - Jenny
- I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane - Donna
- 2000 - Chemotherapy - Daria
- Brutal! I was sick (mostly fatigue, headachey, flu type symptoms) for a week after treatments, would get my energy back the second week and then start the cycle all over again! - Sara
- ABVD- nausea, fatigue, wooziness, thinning
hair
ICE- nausea, fatigue, wooziness, total hair
loss, bleeding gums and mouth sores
GND- some fatigue, mouth sores
- Rachel
- I begin chemotherapy on the April 8th. 4 rounds of 3 weeks each of Vinorelbine and Carboplatin. (Originally Cistoplatin but the doctor changed it cuz my ears were ringing)Worst side effects are feeling like lead and/or rubber, forgetfulness, weight gain, insomnia and aching bones, muscle and skin. - Amethyst
- Chop therapy for 7 months - Elisa Rinn
Xeloda- Taking pills(xeloda) 2 x day only on radiation days. Mitomycin IV 1st day and 28th day of radiation treatment
Some nausea/Anti nausea pills help - Jeanne
- Taxotere Aug 2008 - Dec 2008 (3-weekly)
Herceptin Aug 2008 - Aug 2009 and Dec 2009 - March 2011 (3-weekly)
Vinorelbine Dec 2009- May 2010 (for regional recurrence to Internal Mammary nodes - not involved the first time round)
Capecitabine (Xeloda)April 2011 - October 2011(for Liver metastasis)
Adriamycin - December 2011 - February 2012
Taxol March 2012 - Jenny
- Still in treatment with no end in sight. My port is my best friend even if it sticks out of my sub-clavicle like an alien. - Wendy
- 2000 - Chemotherapy - Daria
- My mum went through a number of drugs to treat the cancer which kept on returning almost every single year from 2008-2011: Avasatin, Xeloda, Folfox, Folfiri, Erbitux. The side-effects are almost always similar: nausea, tiredness, vomiting, loss of appetite, mouth and throat sores. The first day after chemo she never manages to sleep well.
- Formosa
- First round started on Dec 29th 2010: Xeloda pills, Oxaliplatin, and Avastin, with a shot of Neulasta the day after.Had two weeks off after each round, and I was thinking "this isn't so bad, I can do this" after the first treatment. No severe nausea, no vomiting, minimal hair thinning. - Kat B
- im on xeloda and after the surgery ill have to do liquid iv chemo where i will have port inserted and i will have 16 weeks of 8 treatments where i walk around with the chemo for 48 hours. - Lionel Austin
- Chemo - 8.4.11. Had FU-5 first round. Shortage, switched to xeloda for the rest of the treatment. Oxy, nothing else. - No
- started with leucovorin, oxaliplatin, avastin, folfox pump, then camptosar, erbitux, folfuri pump, currently undergoing clinical trial with Xeloda and maybe or maybe not perifosine
few side effects, I guess I've been lucky - Anna
- May 2009 - Sept 2009 FolFox, peripheral nerve damage to hands and feet (used to unload dishwasher with ski gloves on cause touching plates etc felt like pickiing up glass!) All good now with help of Vit E and Alpha-lipoic acid suppliments.
Xeloda - long term chemo. March 2010 til now and according to onologist, forever!! damages skin on my fingers and feet. - Lyndel
- One month off after the radiation concluded. I go in every third week to receive and IV of Oxilyplatin. I take 1650 mg of Xeloda twice daily starting with the date of iv, and lasting for 14 days. Thus far I've received 2 of six iv treatments. Side effects have been marginal and temporary. Sensitivity to cold lasts around 3 days. Some tingling in the hands and arm where the iv went in. Goes away after a few days. - John
- CAPOX 2006, FOLFIRI + AVASTIN 2007, TEGAFUR + AVASTIN 2008, FOLFIRI + AVASTIN 2010, XELODA + AVASTIN 2010 - ONGOING...........FOREVER....WHILST ITS WORKING - Tony
- Xeloda during radiation and again mid-June to July along with Oxaliplatin- only able to receive two treatments after surgery due to severe dehydration, malnutrition, immuno-suppression. Since July have had severe pain in joints- especially shoulders- now diagnosed with frozen shoulders. Beginning PT this week. - Laura B
- Started 9 Nov on Poxy Oxy and capecitabine. Finding it tough, especially the first week. Been neutropenic on first 2 sessions so far which is causing delays. - Rachel
- Xeloda (oral chemo) for two and a half weeks. - Danean
- Xeloda oral 2000, started March 22nd - OK up to date
Folfox - starting August 29th, port inserted on July 29th.
Side effects from folfox - berable - cold sensitivity in hands and eyelids. Tingling in hands, shin cramps, tiredness, eye dryness. - Maja
- Neoadjuvant Chemotherapy of two cycles.
Xeloda (14 days) 5 tablets per day - Sankar
- 11/06-oxaliplain,xeloda....tingling and cold sensitivity in hands and feet, fatigue
11/07-irinotecan, avastin, 5FU, diahrrea, fatigue, burning and cramping in abdomen started erbitux january 2010, adding irinotecan this week, sept 20, 2010...post-note that irinotecan caused so much diahrrhea I became too hydrated and wound up in hospital. i had a blockage too, but just sayin'! ;) - Annette
- 4/4/2011 - FOLFOX6 with Avastin. Some fatigue, peripheral neuropathy, cold sensitivity. Discontinued after 3 rounds
7/1/2011 - Switched to Xeloda. Stopped first round after 9 days due to much bowel discomfort. - Mark Sechrest
- Xeloda, taken during my radiation treatment (adjunct therapy)
Started Folfox the last week of June 2010 - Michelle
- Fatigue, feeling very cold, emotional side effects - Jtu
- Did Xeloda
and Gemcitabine with no results - Glen
- 1st. Chemo Feb. - March 2009
2nd. Chemo Nov - Dec. 2009
3rd. Chemo ip. Aug.-Sept.2010 - Katharina
- Gemzar, Taxotere and Xeloda - Lumberlady
- Chemo once a week from 4/2/10 to 6/01/10: Was tired the next day with small "blah" moments. - Kelly
- Chemo #1 on 4/02/10: I was more tired then usual and had a "blah" moment after going outside for a few minutes. - Gary
- Gemzar Jan 2008-May 2008
Sept 2009- Oct 2010 - My Mommy
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