What Taxol (Paclitaxel) Cancer Survivors said about their Chemotherapies.
Began chemotherapy in 3'06. Side effects were mouth sores, nausea and vomiting. Bone pain, neuropathy in fingers and feet. Nail beds turned black.
6 rounds of Carbo Platinum and Taxol from 3/18/05-7/8/05 major side effect after the chemo was stopped: fatigue, memory loss Started chemo again in October of 2008. Taxol, Carbo Platinum and Avastin. Switched the taxol to taxotere after four rounds because of neuropathy. Major symptoms, nausea, fatigue, nose bleeds, low white blood cells, memory loss, did I mention fatigue?
Paclitaxel(Taxol)/Carboplatin(Paraplatin) combination, intravenous, 4 treatments total, 3 weeks apart. My first treatment was Oct. 17th. The side effects weren't been too horrible. Days 3-6 I felt really bad, but I never vomited! I just felt VERY weak, and VERY sick. I was so pale I scared myself in the mirror, and sometimes I felt so bad I couldn't even talk. I had HORRIBLE constipation like never before, and I still have heartburn, which I never got before.
8 rounds - 4 A/C - 4 Taxol Hair loss on 13th day, bone pain from Taxol, rhematoid arthritis outcome
3/03 ~both Adri/Cytoxin together (red devil alright) lost hair~flu-like follicles actually hurt. Taxol = body aches but, milder but harder to explain symptoms. Determined to drink lots of water and not to throw up...didn't. Walked alot after. High stress prepping for infusions. Got a port catheter 3/17...had to put in main vein in my neck other too small... strange to me....still have...
Carbo/taxol Doxil Carbo/Taxol Topotecan Gemzar and experimental drug Taxotere and Avastin
June 20, 2006, and every following 3 weeks...through August 29, 2006...then the last 2 of the 6 treatments - November 7, 2006 & November 28, 2006 Carboplatin & Taxol I really didn't know what to expect with the first treatment. Felt great for 24 hours after...but then I felt like a semi-truck had run over me about 10 times...or worse case of the flu X 20! Twelve days later, I had a reverse mohawk going on (hair falling out)and had my husband shave my head. The worst of it was losing my eyelashes and eyebrows!!!! You know your hair is going to go...but no one told me ALL of my body hair would go!!! Talk about being striped of your "womanhood"! I still wince when I think of those times! Numbness in my feet(Pins & Needles)...always worse by the end of the day.
Well, chemo sucks. What can I say? I had 8 heavy duty treatments, spaced 3 weeks apart. The first 3 were AC, the next 4 were Taxol. It kicked me in the butt, but I never threw up!
Oral Chemo (Xeloda) - 7/07 to current weight gain, tenderness in hands and feet, fatigue, irritability, feeling full; dehydration
Started chemo June 8 2006 and finished up Sept. 28. 2006. Side effects weren't to bad. Just did what I was suppose to so I wouldn't have many.. Biggest side effect.. Baldness but I got through that too.
Taxol and carboplatin so far 8 treatments CA-125 is now down to 130
Had 2 courses of CarboPlatin and Taxol via vascualr Port; followed by 4 courses of IP chemo with Cisplatin and Taxol, one course every 3 weeks, requiring 3 days in hospital each time. Could only tolerate 4 courses because side effects were too severe: nausea, vomiting, constipation and diarrhea, ototoxicity resulting in some permanent hearing loss in left ear and also tinitus, tingling, numbness and pain in hands and feet (apparently permanent), and "chemo brain" - no short term memory, fogginess, confusion, and exhaustion. Serious loss of weight as well. Last 2 courses of chemo were via vascular port and the same as the first 2, and were tolerated fairly well.
ACT - A was terrible, T was terrible C is easy
2007 April til present so far 5 rounds Taxotere Carboplatin Avastin Emend for nausea Aranesp for red blood Neulasta for white blood etc.....
7/24/07 Taxol and Carboplatin 2 and a half days full of energy, 3rd day she is complaining of pain and flu like symptoms... She HAS NOT taken Claritin which her oncologist recommended for these symptoms.
Paclitaxel (Taxol)/Carboplatin (Paraplatin)combination. 6 treatments. 21 days apart.
Jan-May/06 6 Taxol/Carbo CA-124 = 7 May/06 neuropathy hit - severe damage to hands and feet. Hands are curled.. I can't move ankles or toes. Severe nerve pain - can walk 5-6 steps w/ walker
12 rounds of chemo
Currently on taxol/carboplatin Prior treatment of Folfox 6 showed no sign of lung met shrinkage.
AC dose dense,then taxotere all for 5.5 months.Lots of lousy side effects you name it I had it!
Started AC on 12/12/07. That was fine. Had a reaction to Leukine (sp) now I'm Neupagen daily. No problems there.
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
Taxol/carbo, starting Dec 12, 2007. Some joint pain, hair loss (boo-hoo) and slight stomach upset.
Jan 22/08 *Just Started CAF (Cytoxan,Adriamycin,Fluorouracil-5-FU) dose dense - 2 week x 4 cycles. *Taxol + Herceptin for 6 to 8 months
They removed all my teeth because they said the chemo and radiation would kill their roots. I went through 5 cycles of the red devil and 10 taxol. I am still on femara
One treatment so far on 3/23. Side effects for two days included exhaustion beyond sleepiness, nausea and depression. I'm so glad it only lasted 2 days! Constipation and painful bowel movements.
Pending. I have only been told of what the drugs of choice will be and I can plan on being bald.
10/05-08/06 adriamyacin, very weak
September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months.
I had every side effect in the book! You name it I had it! Gained 20 pounds on the steroids.
6 cycles chemotherapy begining 11/12/07 complete hair loss, mouth sores, black nail beds, weight gain, inflamation, fatique, everything tastes like lead. Joint pain from Neulestra shot.
To begin June 12th
Started first round of AC on June 12th....will continue 3 more rounds and then on to Taxol.
4 cycles of chemotherapy ending in late August, radiation to follow depending on how the cancer responds.
Last Chemo was May 23 2007. Cyclo/Adri/Taxol. Lost 22 pounds. Very Weak, and my bones ached bad. Taste and smell was horrible. All is well now. Gained the weight back! darn.
Began Adreamycin/Cytoxin on Aug 30, 2007.Completed my last dose of Taxol on Jan. 30, 2008. My main side effects were the exhaustion and mouth ulceration and neuropathy in my toes and fingers with the Taxol.
Dec. 19 2003 - Feb. 27 2004. First-line, dose-dense chemo. Taxotere, Cytoxan and Adriamycin. Horrible horrible horrible. Felt godawful (aching fatigue unrelieved by sleep, and absolutely no energy) for years afterwards. I don't think I'd do it again.
Carbo/Alimta 07.2008 Carbo/Taxol - Got taken off Avastin after pulmonary embolism. (nausea, vomiting, fatigue) 02.2009 Carbo/Alimta - Developed allergy to Taxol. (anemia, fatigue) Radiation therapy.
NOW ON ABRAXANE AND AVASTIN CHEMO SIDE EFFECTS WEAKNESS, FATIGUE, PERIPHERAL NEUROPATHY , NAILS PEELING OFF FINGERS, NOSE BLEEDS - ALL SOUND BAD BUT ARE TOLERABLE
Only 1 round of chemo, none. Loved the Benydryl they gave me before the infusion.
First Chemo 9-8-2008. Side Effects - Pain, joint and bone pain, can't taste anything, headaches, bodyaches and my skin hurts and weight gain from the steroids.
Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes. I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite. I started Tykerb in Feb 2009. I will continue with Herceptin for at least 7 more months after surgery.
Bleomycin, Etoposide, Cisplatn (March 07 - May 07) Cisplatin, Taxol, Ifosfamide (September 07 - November 07)
Four months of dose-dense chemotherapy along with a shot of Neulasta after each session.
First time I did chemo was on May 2006 and I lost my hair, throwing up, rashes, weakness. Just pure hell.
Carbo and Taxol 6 rounds. Loss all my hair, even my nose hair, eyebrows, everything. Weak, muscle and nerve pains, anemia
Feb 08-Cisplatin/Etoposide- hideous vomiting diarreah Switched chemo drugs AND Hospital -April08-carbo/taxol/avastin. Tolerated well. Neulasta. Bone pain
may 4 2008,nausea,and alot of hand pain
4 cycles dose dense Doxorubicin and Cyclophosphamide, then 4 cycles dose dense Paclitaxel to start 12/09/08
TAC protocol. 6 rounds every 3 weeks. I refuse most of the pre medications (unless I need them) and ended up not needing any side effect meds my last 2 rounds. I'm having a great reaction to the chemo and my doctor is impressed with how I am weathering each round of chemo. He is shocked that my White and Red Blood cells are doing so well and I ended up being able to navigate the nausea without medications - which means no constipation!!! The side effects range from liberating (no hair, chemo brain, slowing down, other people cooking for me) to pain-in-the-ass (constipation from the zofran, hungry from the steroids, no nose hairs, sensative gums, run over with a truck feeling from the neulasta) to the hysterical (I'm really good at the 'Old Man from Flordia Suffle' while I wait for my WBC and RBC to come back on line!)
6 months.... 3 at first.... then 3 more after radiation..most side effects there are!!!couldn't eat,sick,cried,tired, you name it....lost my hair, then lost it the 2nd time too,3 months later
Sept 6-Nov 6 2008: every three weeks for 6 hours. Side effects: hair loss, tired, and sore from the Nuesta shot, but overall not as bad as it could have been.
Started my chemo on Sept 11th of 2008. I have to complete seven cycles. I receive cisplatin and adriamycin on the first day of treatment along with other pre-meds such as decadron and emend. Second day of treatment I receive Taxol and the following day I go back in to get a injection of neulasta.
Four cycles, last one January 28. Mostly fine, except I learned too late that even though I feel fine physically, it doesn't mean I can do all the things I used to do like shoveling. I really slammed myself a couple of times by trying to do too much. Constipation was the worst side effect, but Smooth Move tea works great. The nausea was tolerable, until I overdid it physically, then I felt like I was on an oceanliner in a hurricane.
Taxol and Carboplatin. Started November 2008, should be completed March 25, 2008. Side effects some nausea with first treatment, leg pain and neuropathy.
Taxol/Carbo x 8
Had cisplatin for 6 weeks during radiation, now am on my 5th of 6 treatments every three weeks (taxol and cisplatin)
Started chemo Mar 1st 2009 Continued pain,a very few side effects to date-next treatmentApril 12
Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol
treatments spanning over 4 months. Felt poisoned and beat up the entire time.
2/6/2009- Started Taxol and Carboplatnium cocktail. (6 sessions) 2/26/2009- Started GOG- 218 (Avastin Trial) Nurses/doctors notice side effects indicating she was actually receiving the drug.
Carboplatin/Taxol, continuous 5FU drip March/April 2008 Taxotere July/August/September 2008 Cisplatin January/February 2009
First round of chemo on 7 May 09 Second round of chemo on 1 Jun 09 Third round of chemo scheduled for 21 Aug 09 My doctor is using a new "sandwich" approach to treatment. 2 rounds of chemo > then 25 days of radiation > then 2 more rounds of chemo. This is new and apparently works better than all chemo then radiation. I am in control and working to erradicate the cancer via chemo and radiation.
Adriamicin, Cytoxan, Taxol
chemo May 2008 to August 2008, did 5 rounds out of 6 - nausea, peripheral neuropathy, anemia,hair loss,dehydration, fatigue, weight loss
Infusion #1 - 09-22-09. Severe joint pain in lower back, knees, and ankles. Intense nausea. Infusion #2 - Intense nausea. Severe joint pain. Darkening of my fingernails. Severe headaches. Infusion #3 and #4 - Intense nausea lasting my entire two week cycle. Headaches. Continued darkening of my nails. Taxol infusions #1-12 - Slow physical changes to my finger and toe nails, intense nail bed pain which has been cumulative. Big drop in counts at infusion #10, nausea, fatigue.
May 23rd 2007 started 6 sessions 3 x F.E.C 3 X Taxotere Ulcers in my mouth, sickness, diarrhoea, thrush, joint pain, loss of finger and toe nails, peeling skin on hands and feet,
I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
8-4-09 thru 8-7-09
2/26/08to 5/28/08 - 6 cycles Taxol, carboplatin and Avastin for lung ca. Hair loss and peripheral neuropathy - some fatigue.
Chemotherapy 4 X AC - side effects - extreme nausea, hair loss, fatigue. Neulasta - bone pain. Chemotherapy 4 X Taxol - Peripheral neuropathy, nausea, bone pain, loss of balance, extreme fatigue, hair loss, low blood platelet count.
Taxotere, Carboplatin, Herceptin Dec 08 through Dec. 09 Nausea Migraines Loose fingernails/toenails, MRSA infections x 8, auto immune allergic reactions Hair loss allergies developed Loss of menses (early menopause)
march-june 08: 6 taxotere/carboplatin november-april 09: 6 taxol/carboplatin oktober-? 09: started caelyx/carboplatin every side affect you can imagine
Taxol and Carboplatin every 3 weeks for a total of 4-6 treatments. Have had 2. Nausea, fatigue, aches and pain in whole body. Also DVT.
I do my treatments through an IV.I only have to take 4 of them. I just finished my s 2nd one on Monday 11-2-09. This one was alot harder for me to bounce back than the 1st on was.The next one is 9-23-09
December 2000 every 3 weeks for 6 months nauseus, hair loss, headaches etc. December 2007 every week, then every 3 weeks for 16 months nauseus, hair loss, nuropathy, headaches, etc
Oct 07 to Dec 07 - Cisplatin chemo 1x a week with radiation;. Constant terrible nausea, very sensitive to tastes and smells. Ate only carbs, couldn't even stand the smell of my dog! Everything nauseated me. Aug 08 to Dec 08 - Carboplatin and Paclitaxel every 3 weeks x 6 doses. Hair gone by 2nd treatment, fluid overload on chemo days due to drugs being hard on kidneys - had to flush. About 2-3 days post chemo, horrible bone pain, numbness and tingling in hands and feet (peripheral neuropathy) and constipation that almost hospitalized me. Would last for a week or so and then settle down. Horrible fatigue, felt like lead. My hair started coming back really quickly after treatment stopped,but the neuropathy lasted almost a year, fatigue continues to be a problem. UPDATE Feb/10: Going back for another 6 rounds of the not so pretty poison. Carbo/Taxol once again. Gonna miss my hair...oh yeah, and the ability to feel human!
intraperitoneal taxol and cisplatin, 6 - 10/06 (heinous, too long to describe); HIPeC something-or-other intraoperatively 10/07 (really ghastly); IV carboplatin and gemcytabine, 2 - 5/08 (some hair loss, fatigue); sunitinib clinical trial 2/09 (painful hands and feet, fatigue); doxil, 3/09 (fatigue); taxol and carboplatin 5 - 9/09 (hair loss, fatigue, neuropathy, tinnitus); Avastin 10/09 to present (runny nose)
taxol/carbo dec 2008-april2009 topotecan sept 2009/present
Dry Mouth. Lost body hair, Sick at stomach, weight loss.
4/2009 Abraxane and Carboplatin 9/2009 Taxol and Avastin had an allergic reaction at the end of the run of Carboplatin Avastin caused my blood pressure to increase sharply, so it was discontinued
Nausea, vomiting, bad headache, fatigue, mouth soreness, hair loss.
1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss) 2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment. 2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course 2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course.
6 cycles, every 3 weeks, carboplatin, taxotere, and herceptin. I still recieve the herceptin, which had no side effects at all, for me. The carboplatin/taxotere had MANY; nausea (1 night I vomited VIOLENTLY from discontinuing my zofran too early), stomatitis(for which ice really does work, ice cream, itallian ice, etc. for YOUR ENTIRE INFUSION, learned this cycle 4), rash from the decadron that was SEVERE, and the very, very worst was the neuropathy that lasted about 2 months post-chemo which was just torture...but it's nearly gone now, the arm, and breast hurt worse, and I am so grateful. Taxotere is what caused that, so I hear, but it goes away slowly, but almost surely, that's the good news.
First chemo carbo/taxol on May 7th. so far, a bit of joint and bone pain, nothing else
Started chemo in May 2009, got a port so my viens are still good. Adriamycin: fatigue, hair losse, nausea, constipation. Taxol: PAIN, fatigue, chemo brain, PAIN.
First Chemotherapy was Monday, March 29, 2010 - The only medical side effect was a very red face in reaction to the steroid in one of the preparatory drugs. Main side effect was pronounced "blues". Mom stayed on the couch for three days and ate very little.
Carboplatin 08/06/2010. Mild Fatigue. Carboplatin 08/26/2010. Radiation recall. Carboplatin 09/16/2010. Neck is tightening due to radiation recall. Alimta erbitux Low Platelet 10/07/2010 Carboplatin, Taxotere,5FU 01/2011 n 02/2011.
July - November 2008: 6 rounds IP Cisplatin and IV taxol. Side effects: You name it, it happened... hair loss, nerve damage, mouth sores, drop in red blood cells which required a transfusion, high creatin, low magnesium and potassium, diarrhea, constipation... I still blame the nurse for not making sure my dexamethosone was added to the chemo! Next Monday I start 6 rounds of IV Carboplatin and Doxil.
Taxol and Carbo, every 3 weeks for 6 times, next (3rd) will be April 29. First three hours of administering drugs, agnonizing dizziness due to high dose of Benadrly to combat first few hours of chemo drugs. Next two days seem ok, with a false sense of energy, then day four through 8 no desire to drink, get dehydrated, can't stand or something strenuous for long periods of time, physically weak and tired always. Tiredness especially never is gone.
Started Adriamycin/Cytoxan on 6-4-09 dose dense. (1 dose every 2 weeks for total of 4 doses.) Felt fatigue, stomach upset,hair loss. Started Taxol 7-30-09 dose dense (1 dose every 2 weeks for total of 4 doses.) Felt achey, tired and depressed, hair loss.
4 rounds of Adriamycin and Cyclophosphamide together every 2 weeks. I am done with those 4 rounds. 4 rounds of Taxol every 2 weeks I have 3 rounds left. Xeloda for a year, Gemzar and carbo still doing it once a month until I guess it stops working.
Paclitaxel, Cisplatin, Bevacizumab, Avastin
6 treatments 4/07 to 10/07 Fatigue, hair loss
Protocol: FEC-T (4 months/every 3 weeks) FEC-T :Epirubicin/Fluorouracil/Cyclophosphamide cycles 1-3, then add Docetaxel for cycles 4-6 Finished chemo November 24/2010
12 weekly infusions of taxol, low blood counts, nausea, fatigue. Completed 3 of 4 A/C infusions hospitalized every time for low cell counts.
Mar.2007-taxol & carboplantinum (8 treatments) July 2008-taxol & carboplantinum (7 treatments) The first 2 rounds left me weak, loss of hair, nausea and vomiting Oct 2009-Doxil for six months. Side effects not so bad
none the dr did a slice and dice SIDE AFFECTS WERE WEALINING OF HEART MUSCLES HAD A STROKE 2 YEARS LATER AND NEEDED A PACE MAKER PUT IN YES I AM THE BIONIC WOMAN HEAR ME ROAR ALSO HAVE NEROPATHY IN FEET AND LEGS
July 24,2009 first treatment taxol and carboplatin. The only problem I had was my own fault. I got sick that night because I came home and ate stewed tomatoes and chased it down with a Pepsi! Big mistake because I quickly learned that Chemo and acid DON'T mix. Treatments 2,3, bought feet itching, loss of smell and taste. Treatment 4 was not to bad slight big toe bleeds but manageable, slight problem with vision seeing bright white spaces from within my eyes. Treatment 5 I had a mouth bleed, neuropthy more consistant. Treatment 6 manageable but eyes still have the spots. Neuropthy worsens, still itching.
Chemo once every other Friday, eight prescribed. First four: Doxorubicin (a.k.a. Adriomicine) AND Cytoxin; last four Taxol. Nuelasta with every infusion prescribed. See post "I'm just sayin'" for side effects from first 4 infusions.
1st series Aug'07 to Dec - 6 infusions - Carboplatin, Taxol and Avastin. Side effects, loss of all hair, fatigue, weight loss. 2nd series, 7 infusions - Sept '08 to Apr '09 - same coctail as above
Chemo caused hair loss, bloody noses, fever, muscle pain, tingling and numbing, and nausea. And the shot gave me bone pain.
First time: Taxol, Taxotere - Jan - June 2001 - had adverse reaction to taxotere & stopped breathing. Otherwise, the regular side effects like nausea, fatigue, mouth sorers, hair lost, & nerve damage to hands & feet. Second time: Abraxane, Avastin Oct '07 to May '09. Still on Zometa - indefinitely. Regular side effects: nausea, fatigue, hair lost. Worse one: medical port became infected & had open wound for 6 mons because it could not heal.
The 4 "red devil" treatments were the worst & those neulasta shots! I had an allergic reaction to Taxol. Really bad! So they switched me to Tacrete. Easier to handle physically but took longer in between chemos.
Chemo 6/21/10, 7/12/10, 8/2/10, 8/24/10, 9/14/10 - nausea, fatigue, bone & joint pain, diarrhea, neuropathy; scheduled for 1 more round
Chemo started 1/2. Four treatments with the last one being 3/10. Severe allergic reaction to the Taxol landed me in the hospital in February after the second treatment. Had to stop Taxol and go on adriamycin instead with fewer side effects.
ACT therapy- alot of bone pain; nausea; extreme fatigue. Currently experiencing neuropathy from Taxol.
Taxol, 5FU, Carboplatin, Avastin, Tarceva (withdrawn).
4 rounds of AC and 4 rounds of Taxol every 2 weeks from 3/4/2010 - 6/17/2010...just miserable! Landed in the hospital with neutropenia for 4 days.Mouth sores were the worst! Lost 10 lbs because of that. SO glad to be finished but still feeling the effects. Blah!
Taxol and Carboplatin May 2003-November 2004
9/9/10 - Adriamyicen & Cytoxan. Headache, dizzyness, restless leg syndrome, nausia-light in mornings. 9/10 -9/14/10 - EXTREME Headaches, major fatigue, constipation, dizzyness and car sickness.
Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
carbo/taxol only effect has been being tired!! Verty low white cell counts, had to receive one transfusion, other wise has handled it well.
Adriamycin-tore up my mouth and taste buds, cracked the corners of my mouth, leg pain/aches, fatigue, loss of hair, eyebrows and eyelashes.
Start in mid October.
I'm on my 4th round of chemo treatment in 3 years time. This round is 2 days a week. Side effects are joint pain, nasea, vomiting, diarrhea, night sweats, loss of appetite, hair loss, irritability, exhaustion, and thankfulness for each day
On Chemo from April to Sept 2010. Main side effects were fatigue, weight gain, mouth sores occasionally.
<b>February 2009:</b> CA125 level was around 3500. She began treatment with Taxol/Carbo with Avastin. Within two weeks, she lost all of her gorgeous red hair. Energy level dropped significantly. She continued having "maintenance" chemo. <b>June 2009:</b> CA125 dropped to 32, and then to 16 later that month. Oncologist decided to stop chemo- as there was no sign of cancer! <b>March 2010:</b> Having chest pain/shortness of breath. CT scan showed fluid in her lungs. Testing after thoracentesis revealed cancerous cells in the fluid. CA125 was back up to 300. It is now referred to as "RECURRENT CANCER" She began chemo again: Cisplatin and Gemzar. Cisplatin was causing tinnitus. Oncologist decided to discontinue to avoid permanent hearing damage. The Gemzar would usually burn during infusion. Side effects: headaches, intense nausea and often uncontrollable vomiting. Drastic decrease in appetite (and weight: about 70lbs) Last time it was checked, her CA12 was hovering around 86. I'm guessing it's currently off the charts.
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
Taxotere Aug 2008 - Dec 2008 (3-weekly) Herceptin Aug 2008 - Aug 2009 and Dec 2009 - March 2011 (3-weekly) Vinorelbine Dec 2009- May 2010 (for regional recurrence to Internal Mammary nodes - not involved the first time round) Capecitabine (Xeloda)April 2011 - October 2011(for Liver metastasis) Adriamycin - December 2011 - February 2012 Taxol March 2012
4 dose dense a/c for 8 weeks then paclitaxol for 12 weeks. which ended on 11 sept 08. Jan.09 12 weeks of radiation.
little queasy tired bald last one nov 5th 2010 yesssssss!!
Chemo sucked! It's a crazy way to slowly poison yourself and destroy every muscle that you have spent the last ten years working on. Chemo is barbaric and I will cheer the day when this is gone. Obviously, I don't work or support any drug companies.
6 Taxol + Cytoxan Nausea, ache, neuropathy, squiggles in eyes
FEC and taxotere. Three treatments of each starting 2/11
AC followed by Taxol total 24 weeks beginning Oct 2009 Became very neutropenic (low white blood cells) A couple of mouth sores
Can not describe. First what hurt me the most was to be among so many people with cancer, no hair, having the quemo and problaly think about life and death, all with a face of fear...
Dose-Dense AC chemo x4 every 2 weeks, then Taxol x4 every 2 weeks Oct 2009- January 2010
Carboplatin and Taxol once every three weeks, 6 times. Fatigue, faux sence of energy at first, couldn't sleep for two day after, then crashing with neuropathy pain and fatigue
Lost hair not much else
May 2010 Chemo Carboplatin/ Taxol, nausea, fatigue, hair loss
1. Chemo Sept- Oct.2010 2. Chemo Nov - dec. 2010 currently ip chemo
1st. Chemo July - August 2009 2nd. Chemo February 2010 ip.chemo 3rd. Chemo January 2011 ip.chemo
9/10-1/11 hair loss,fatigue,mouth sores,neuropathy of feet and toes, brittle finger nails
Feb 2011 - April 2011 every 3 weeks Side effects - tried slept about 5 days straight Neulasta Side Effects - Painful legs and joints
August 2nd first chemo. Extreme heartburn, tired, body aches, fevers. Taxtore, Adriamucin,& Cytoxan every three weeks for a total of 8 treatments. Doctor wants to do more. August 8th running a fever of 104 in the hospital for a week. Hallucations, extreme stomach pain and boby pain. Can't eat. August 23rd chemo. 24th start of neulasta shots. Extreme body pain, joint aches, headaches, nausea and fevers. Hair getting thin. Sept 13 hair is gone. High fevers been on antibotics since hospital. Same side effects as the first & second. Exhausted all the time. Oct thru Dec extreme headaches, sick to the stomach, body aches, fevers, chills, pain in my bones and feet. Dizzy and blurry eye sight. Antibotics throughtout chemo with neulasta shots. Had a fever of at least 100 degrees throught treatments of chemo. Highest was 104.4.
Chemotherapy Carboplatin, Taxol
Finished February 21, 2010
AC, 3-2-11 lots of nausea, hurt to breathe through nose, blinding headaches (3-4 through 3-6), all-over weakness through the first week, leg and tailbone area pain.
I had my first chemo treatment on 04/07/2005 (my little brother's birthday) and I went for 6 hours a day, once every 3 weeks...
Chemo came after radiation the first time, chemo only the second time, radiation only the 3rd time. Allergic reactions to almost all the drugs tried, but that was the second time. The ones that I didn't react to made me very sick, so I'd go in to be hydrated the day after chemo since I was unable to do that at home. It's hard to eat and drink when you're asleep. Another side effect of the drugs and certainly the pain killers for me.
Starting on 18th April, 2011
1st. Chemo Feb. - March 2009 2nd. Chemo Nov - Dec. 2009 3rd. Chemo ip. Aug.-Sept.2010
Jan. 21st 2010 last 2 coming up. 1st 4 treatments made me very nausaus and tired. The 1st 2 of this cycle just sick for 2 days then just tired.
Chemotherapy is bi weekly on fridays! Side effects include Nausea, fatigue, and weakness, hair thinning
Starting chemo (carboplatin and taxol) on 4/27/11. Will have 6 sessions, one every 3 weeks.
I have completed 3 of my 6 cycles of chemo. I am on Taxotere, Cytoxin and Herceptin. I will finish up in September, with the completion of the Herceptin in May of 2012. I am also receiving a shot of Neulasta which makes my bones ache. The chemo this time has not been so bad except for the flu like symptoms and achiness in my bones. I am tired but this is due to the anemia.
Induction chemo for 2 months prior to radiation treatment - once a week during radiation; mouth sores for four days after first round, hair loss, fatigue, and some taste changes, but all in all, he did really well. Very little nausea.
Taxotere..Dec 2006-Apr2007. All the usual, numbness in fingers and toes, no taste, no appetite, constipation. The bone pain was the pits.
june 13 2011. no side effects yet
Body would only take 1 day session.
Red Devil, cytoxan, taxol....May 2002....Bone pain, tired all the time!...Gained weight
Started 06-20-Nausea, constipation, severe headahces, body aches, fatigue, dizziness, hot flashes, grumpiness. 07-05-some Nausea, headaches, fatigue, dizziness, port became infected.
8 sessions, sweats, nausea, constipation, de hydration, low white cell counts. joint, bone, muscle, numbness, tingling, pain from Taxol during and post-chemo. Peripheral neuropathy has been diagnosed.
I've had two rounds of chemo (carbo-taxol and FOLFOX, Avastin), neither of which were effective.
taxol and platins - 9 treatments completed 4/1/10 (3 of which included IP cisplatin)
January 2010- January 2011- Cisplatinin and 5 FU February 2011-May 2011- Oxaliplatinin and 5 FU June 2011-present - pclitaxol
First chemo starts July 7 2011
I just finished 4 rounds of A/C chemo treatments. Fatigue and infection was my worst enemy. First chemo treatment, I was in the hospital with pneumonia and neutrepedic. Very sick. I can only say I am glad its over. Now I am getting a port and will start Taxol next week.
Things I wish someone had told me- You feel the worst on days 3-5. Even though you're nauseous you can still eat with enough drugs (I never threw up!) Get your hair buzzed as soon as it starts to come out, and your scalp hurts, you will feel much better. Don't shave it until your scalp stops hurting. Your nose runs because you have no nose hair to catch it A little infection will knock you on your ass. Claritin can fight some of the neulasta side effects Glutamine and vitamin B can help with the Taxol tingle Ugg makes flip flops- AHHH big help with the Taxol tingle Some people lose their fingernails with Taxol (but mine are intact- I have chemo rings, though)
AC x4 Tax x4 recieved every two wks first chemo 29th April '10 last 5th august '10 side effects varied from the usual hair loss, vomiting to swelling of my chest wall, 19 of my 20 nails fell off (this happened a couple of weeks after the chemo finished) nose bleeds the list is endless but I got through it
Combined carboplatin and taxol, both administered systemically by IV started August 10, 2011, with last cycle administered November 23, 2011. Side effects included: nausea that was only gotten under control after the second administration using about 5 drugs; intense fatigue; muscle and joint pains that were reduced with tylenol and later greatly reduced with gabopentin; intense neuropathy in hands and feet, but even lips and chin until the gabopentin took the edge off that, too. Neuropathy still intense in first week of every cycle. Other side effects included intense fatigue, weakness, vision problems on two occasions (blindness in one eye when reading lying on side), severe constipation, and cognitive effects (short term memory dysfunction, inability to solve puzzles, inability to multitask or withstand multiple stimuli at once). There's talk of giving me a PARP-inhibitor for maintenance therapy in 2012. Constipation for 9 months! No, wait. Make that FOREVER! Seriously. Til my dying day.
Chemo was manageable --- did not have the nausea that some experience. The steroid you have to take ahead of the chemo was as bad or worse than the chemo itself. In the end, the worst part of chemo was what it did to my brain. Couldn't remember anything, which affected my ability to do my job.
ACT from December 2010 - June 2011.
6 rounds of chemo, first one 3/9/11, last one 6/21/11. Side effects: constipation; sharp pains in legs and feet; metal taste in mouth; heavy limbs; pain in joints; jittery; loss of all body hair; eventual numbness and tingling on bottoms of feet; and a slew of other things.
Carboplatin and Taxol, 8/11/2011. Sun-sensitive day after infusion (doesn't that sound like something you'd pay extra for at a spa?), then joint pain, peripheral neuropathy, fatigue on days three and four following chemo. Get better pain meds for next round!
Very sick. 12 years ago the drugs for side effects were not as effective as they are now and hopefully will continue to get better
I started the chemo the frist week in July 2010. I had a reaction to the first chemo which was Carboplatin and taxol so they changed it to Cisplatin and taxotere. They loaded me up on steroids and during the next treatment i had yet another reaction this one only worse than the first. So as a last ditch effort they changed again to cetuximab and honestly i cant remember what the second one they gave me with this was. I was ok with this drug but the side effects were aweful! I broke out all over my face with horrible acne and it made the radiation stronger which made the raidation burns worse.
Have had 5 chemo treatments. Took 5 hour "naps" afterwards. Some foods tasted nasty! Normally a huge water drinker but water nauseated me. Required at home IV infusions of Potassium and Magnesium for 8 hours/day for total of 15 days, also received a few infusions at the clinic for dehydration and low electrolytes. Anti-nausea meds didn't work on me.
I had 1 TAC had allergic reaction (tongue swelling) 3 weeks later started 3 AC biweekly, then had 7 abraxyn I had mouth sores, tongue swelling and bone pain after Neulasta, also had thrush for 5-7 days after the fisrt 4 sessions, I have muscle aches after Abraxyn, fatigue
Loss of hair and nausea
Finished Aug 23, 2011. 6 treatments completed. Zofran for anti-nausea worked but caused headaches.
phase 1 - A/C, phase 2 - Pacletaxol with Herceptin, phase 3 radiation, phase 4 - continuation of Herceptin for full 52 weeks. Daily injections of Luekine then Neupogen. side effects - neuropathy (still), hair loss, lost sense of taste, constipation, diarhea, bone pain, nausea, vomiting. chest pain (hate muga scans!)blood transfusions due to low counts
Taxol, a pain in arm and in the Ass.
Chemo not too bad with side effects. Im puffy. Numbness and tingling.
Cyclophosphamid Carpoplatin Taxol
Had a port put in August 2011, then started chemo. 2 drugs. Plan is 6 cycles, every 21 days. Have completed 3. Blood work ok, but almost unable to walk. No strength, can hardly stand, can't climb stairs well. Feet are numb, butt now numb. Had spinal MRI 11/11, #4 delayed a week.
Chemo began September, we are on third round of a four-round cycle. We expect five or six treatments will be needed. CT scan will tell us more after fourth round.
starting chemotherapy about 12/19/11. Ended chemotherapy 2/12/12
Taxotere & Carboplatin 6/30/11- 10/13/11 All classic symptoms
IP chemo. Taxol and Cisplatin. She has suffered from the following effects: fatigue, nausea, heart burn, pain in her lower abdomen, numbness/tingling in her hands, legs, feet and "chemo brain"
Chemotherapy 12/09 to 2/10- loss of hair, weight, blood clot, fatigue, low white blood cell count and nausea neuropathy in finger and toes. 6/10 to 1/11 same symptoms as previously noted except for no blood clots.
on 2nd round of AC, bald and trying to hold onto willpower. I get pretty sickly the 3rd day after cheno, 1/6/12 3rd treatment
Start Jan 6, 2012 Six rounds of carboplatin and paclitaxel once every 3 weeks.
3 (months not sure of all the drug names. A/C and taxol i think. Round two,Cisplatin.
2 rounds of Taxol/carbo 11/2011 & 12/2011...Is being changed for 1/2012...not sure of new drugs yet
Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse. Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo.
I've been in chemo since june 2011. I was taking 3 different kinds every three weeks but now have gone to just one kind. the initial treatments caused heartburn, hair loss, vision loss, hearing loss, skin discoloration, skin burns, nausea and vomiting, dizzyness, hot flashes, chemo induced asthma, chemo induced menopause, bone pain, I was not able to taste foods that were not sweet, there are many more but I feel like I"m whining...lol
I have had two rounds of chemo, and the next will take place on Jan 31, 2012. After that, three more rounds!
Taxol and carboplatin. 6 weekly infusions.
Chemo coming up
Taxotere & herceptin weekly for the rest of my life.
7-2010 IP/IV chemo x 6 cycles ( cisplatin/taxol/carboplatin) Hair loss, extreme fatigue, abdominal pain... 11-2011 ca125 on the rise. 4/6 cycles complete of topotecan. Ca125 back in its place. BRCA 1 Minimal side effects: reasonable fatigue and well controlled nausea.
currently doing carbo/taxol every three weeks. Extreme fatigue, muscle aches, taste changes
6 chemotherpay treatments. Cisplatin for 2 and Taxol/Carbo for 4. Stomach nausea,bone pain after Neulasta shot, constant dehydration, tired all the time & neuropathy in feet.
First Taxol 1.5.11, once a week for 12 weeks, FAC once every 3 weeks from 3.30 - 6.1.11. Taxol made me feel like I was wearing a lead raincoat and concrete shoes. FAC was far more discouraging. Lots of digestive issues, couldn't eat, everything taste nasty. It was horrible.
I was on a novel agent in a clinical trial. With Taxol for 12 weeks. Its was horrible diarreha, but it shrunk the tumors. Hooraay
July 2011 started with carboplatin and taxol (7 rounds in all). Reaction to the decadron had some nausea at the beginning sol they tweaked it with emend, sore muscles and joints day 4,5,6,7 after chemo usually spent in bed. and spent the rest of the time getting semi normal before the next round Stopped in Sept until december 2011 during which i had surgery last treatment january 20 2012
suffer to heal. stay mindful of what it means to be aware.
AC and Taxol
methotrexate injections every other day via injection
November 2011-December 2011--6 administrations of Taxol and Carboplatin; strong allergic reaction to Taxol (could not breathe and it felt like my back had been struck by a car) handled with heavy doses of Benadryl and slow infusion; lost hair all over my body slowly during treatment and over several months after treatment; painful tingling in feet and hands; fatigue; bloody nose daily; ridges across nails on hands; skin toughened on backs of hands and tops of feet; hair on my head hurts sometimes months after treatment.
2 types of chemo started November 21st 2011. Nausea, migraines, fatigue, mouth sores, dizziness, bad taste in mouth.
I am currently taking 3 chemos and Herceptin every 3 weeks for 6 rounds. I also take a Neulasta injection after each chemo. My chemo side effects are extreme fatigue, severe stomach pain, nausea and neuropathy in my hands.
RCHOP - 6 sessions May - October 2011 Metaxtrate - 3 sessions on my brain May - October 2011 R- ICE - 3 sessions Feb 2012 Mini Beam -2 sessions December 2012 and January 2013 R- GDP -3 sessions March - April 2012 Side effects - My hair fell out 100% not one hair left. Completely bald! A feeling of sickness twenty four hours a day without actually getting physically sick. Tiredness and becoming neutropenic regularly.
There were eight cycles of chemotherapy: 4 before surgery and after surgery 4. My body responded well to chemotherapy and tumor marker (CA 125) decreased from 690 for 4.
AC first 2 months tolerated well. Didn't miss any days at work. Had more problems tolerating taxol. Missed a lot of time at work.
Cytoxan + Taxotere, 4 times every 3 weeks. Due the fact I had just come off from going through IVF, right after my surgery, my hormones were all over the place. Metallic conduit-like mouth, tired, emotional, chemo brain.
26 weeks of chemo. 1X every other week for 8 weeks. Then weekly for 12 weeks. Continued with Herceptin drug Trail for 13 months, 1x every three weeks. Nausea to most foods and smells like coffee or strong perfumes. Wanted hot or cold things to eat....flu like symptoms showed up day 3-5 after chemo. No nuropothy! Did not throw up at all. Slept more days 2-3...weight loss but only a few lbs first 9 weeks then started to gain. Have gained 15 lbs since chemo ended due to hormone blockers I am on.
8 total cycles...6 while undergoing radiation (reduced rate) followed by 2 of triple dose after radiation.
neo-adjuvant chemo. Doxorubicin/ Cyclophosphamide /Taxol. February-July 2012. anemia, nose bleed, upset stomach, nausea, weakness, hair loss, chills, hot flashes, weight loss, neuropathy, muscle and joint pain, low white count, fatigue, pneumonia.
8 treatments of chemo. March 30 thru July 12
4 months of chemo. Made me achy like having the flu but much worse especially in my legs, naseous, food tasted bad, water tasted bad, low energy.
I started chemo on Dec 3, 2012. I need to complete 6 treatments of Carbo and Taxol. My treatements or given over a period of 3 weeks. The first week I receive the full carbo dose and 1/3 of the taxol. The next two weeks I recieve the remaining taxol. I am having trouble keeping my WBC up with the weekly treatments. I had to have Neupogen shots to help give them a boost.
Chemotherapy started on March 1st
My symptoms became SO much worse after chemo: Pain, nausea, vomiting, mouth sores, chemical taste in mouth, fatigue, weight loss
Carbo/Taxol every 3 weeks, 6 cycles
Carbo/Taxol every 3 weeks for 6 cycles from 6/10 - 10/10. Side effects: loss of hair, neuropathy, nausea, vomiting, fatigue. Carbo/Gemzar (wk 1 combo, wk 2 Gemzar alone, wk. 3 off) for recurrence 3/12 - 8/12. Side effects: naausea, fatigue, muscle aches.
Folfox mix of chemotherapy -nausea, vomiting, diahhrea , nil taste I food, shaking, mouth ulcers, dry skin
Started weekly induction chemo on 9/5/13 with carboplatin and paclitaxel- soreness in mouth, slight nausea, dry skin (severe itching), acid reflux
TAP regimen - 7 21 day cycles
Now have weak heart from chemo. Have pacemaker and need heart.
Nausea, Diarrhea, Constipation, Fatigue, "Chemo-brain"
Cisplatin: Took 2 treatments, 1 week apart. Tolerated well. No nausea, though stomach very "acidy" feeling. Eating bland foods often throughout the day helped. Did have some tiredness. No loss of hair. Had to stop Cisplatin for a while due to frequent ringing in ears. Cisplatin can lead to permanent hearing loss. Was able to complete last 4 Cisplatin after a break. Have some hearing loss, but not much. Will be using an experimental drug-Avastin, as well. Avastin: no loss of hair. Felt a coldness in the core of the body and extremities. Combined with Cisplatin, usually left me feeling poor and unable to work for about 5 days. Starting Taxol, Carboplatin, and Avastin again next week.
1st cycle 5th March 2014.
June-October 2010, fatigue, wt gain, menopause
Double chemo infusions, including "red devil", during the first round of chemo over eight weeks every two weeks. This was from late Oct 2014 thru mid Dec 2014. Side effects included hair loss, sensitive finger tips and toe nails, painful mouth and tongue with half my throat swollen by end of treatment, constipation and over all brain fog. The hardest to get used to is the stuffy nose and nose bleed when it clears. Single chemo included Taxol, Herceptin, steroids, benadryl, and anti-nausea medication. Side effects were a continuation of tender nails till they have started to detatch from their nail beds. Sore mouth with base of tongue muscle having difficulty moving food around in my mouth, which has gotten worse as therapy has progressed. Constipation is still an issue unless I forget to eat my bowl of raw veggies every day. Brain fog or mushiness has been an issue throughout this entire experience, hopefully this will discontinue with the ending of chemo. Tiredness has been my constant companion throughout this entire experience also. Also, my constant stuffy nose that clears off and on and bleeds every time. I'm often awakened by my nose bleeding.
I have had chemo in 2004, 2009, and 2012. each chemo has been different than the one before. With my most recent round I was very nauseous and sick. Lost my hair with all of them and had muscle and bone pain. I also developed an orbital pseudotumer as a reaction to the carboplatin and had to be put on prednisone steroids. This will now be required anytime I am on carbo. It started as a twitching and watery eye almost like with allergies. The eye then swelled shut and was very painful.
8 rounds of an taxol, carboplatin, avastin combination every 3 weeks for 7 months then low dose cisplatin every week for 4 weeks with radiation. Side effects: nausea, vomiting, heartburn, fatigue, pain, depression, compromised immune system.
I was aiming for Thursday (Day 22) and I just managed it by having the port (Yoda) installed on Day 21. Hurray! Scheduled for 6 rounds of carboplatin and taxol - 3 weeks apart. Thursdays worked out great - there all day (7 hours) for infusion with the world's greatest chemo nurses; worked on Fridays (felt fine); okay for 1/2 day on Saturdays... then YUCKY from Saturday afternoon until Sunday night (tired, tummy troubles, etc.) I did not get constipated as many of my fellow survivors complained of...for me, it was important to be very close to the bathroom on that weekend following chemo! Fortunately no nausea. Fine to go back to work on Monday. This lasted throughout my chemo, so I was truly blessed. Right on time at the 10 day mark, I started shedding like a Golden Retriever and immediately shaved my head. It felt so-o-o-o good to get rid of that hair. I wore a wig one time when I returned to work and ended up tossing it on my desk! Stuck to hats after that when my head felt cold. Chemo ended in September, 2012. Officially NED and in remission in October, 2012. Currently maintaining status quo..May, 2014. Yoda (my Bard Power Port) was removed on 05/09/14, exactly 2 years from my initial cancer surgery.
Started Nov. 12 - Feb 2014 - Side effects numerous!
4 cycles starting 7-24-2014
Cytoxan was not bad but the taxol made me feel like death warmed over
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