What Taxol (Paclitaxel) Cancer Survivors said about their Chemotherapies.
1st series Aug'07 to Dec - 6 infusions - Carboplatin, Taxol and Avastin. Side effects, loss of all hair, fatigue, weight loss. 2nd series, 7 infusions - Sept '08 to Apr '09 - same coctail as above
Chemo caused hair loss, bloody noses, fever, muscle pain, tingling and numbing, and nausea. And the shot gave me bone pain.
First time: Taxol, Taxotere - Jan - June 2001 - had adverse reaction to taxotere & stopped breathing. Otherwise, the regular side effects like nausea, fatigue, mouth sorers, hair lost, & nerve damage to hands & feet. Second time: Abraxane, Avastin Oct '07 to May '09. Still on Zometa - indefinitely. Regular side effects: nausea, fatigue, hair lost. Worse one: medical port became infected & had open wound for 6 mons because it could not heal.
The 4 "red devil" treatments were the worst & those neulasta shots! I had an allergic reaction to Taxol. Really bad! So they switched me to Tacrete. Easier to handle physically but took longer in between chemos.
Chemo 6/21/10, 7/12/10, 8/2/10, 8/24/10, 9/14/10 - nausea, fatigue, bone & joint pain, diarrhea, neuropathy; scheduled for 1 more round
Chemo started 1/2. Four treatments with the last one being 3/10. Severe allergic reaction to the Taxol landed me in the hospital in February after the second treatment. Had to stop Taxol and go on adriamycin instead with fewer side effects.
ACT therapy- alot of bone pain; nausea; extreme fatigue. Currently experiencing neuropathy from Taxol.
Taxol, 5FU, Carboplatin, Avastin, Tarceva (withdrawn).
4 rounds of AC and 4 rounds of Taxol every 2 weeks from 3/4/2010 - 6/17/2010...just miserable! Landed in the hospital with neutropenia for 4 days.Mouth sores were the worst! Lost 10 lbs because of that. SO glad to be finished but still feeling the effects. Blah!
Taxol and Carboplatin May 2003-November 2004
9/9/10 - Adriamyicen & Cytoxan. Headache, dizzyness, restless leg syndrome, nausia-light in mornings. 9/10 -9/14/10 - EXTREME Headaches, major fatigue, constipation, dizzyness and car sickness.
Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
carbo/taxol only effect has been being tired!! Verty low white cell counts, had to receive one transfusion, other wise has handled it well.
Adriamycin-tore up my mouth and taste buds, cracked the corners of my mouth, leg pain/aches, fatigue, loss of hair, eyebrows and eyelashes.
Start in mid October.
I'm on my 4th round of chemo treatment in 3 years time. This round is 2 days a week. Side effects are joint pain, nasea, vomiting, diarrhea, night sweats, loss of appetite, hair loss, irritability, exhaustion, and thankfulness for each day
On Chemo from April to Sept 2010. Main side effects were fatigue, weight gain, mouth sores occasionally.
<b>February 2009:</b> CA125 level was around 3500. She began treatment with Taxol/Carbo with Avastin. Within two weeks, she lost all of her gorgeous red hair. Energy level dropped significantly. She continued having "maintenance" chemo. <b>June 2009:</b> CA125 dropped to 32, and then to 16 later that month. Oncologist decided to stop chemo- as there was no sign of cancer! <b>March 2010:</b> Having chest pain/shortness of breath. CT scan showed fluid in her lungs. Testing after thoracentesis revealed cancerous cells in the fluid. CA125 was back up to 300. It is now referred to as "RECURRENT CANCER" She began chemo again: Cisplatin and Gemzar. Cisplatin was causing tinnitus. Oncologist decided to discontinue to avoid permanent hearing damage. The Gemzar would usually burn during infusion. Side effects: headaches, intense nausea and often uncontrollable vomiting. Drastic decrease in appetite (and weight: about 70lbs) Last time it was checked, her CA12 was hovering around 86. I'm guessing it's currently off the charts.
Numerous chemo's ...dual dense double dosed first time around. knocked me for a loop. didn't understand commercials or anything that was going around me. I was a vegetable.
Taxotere Aug 2008 - Dec 2008 (3-weekly) Herceptin Aug 2008 - Aug 2009 and Dec 2009 - March 2011 (3-weekly) Vinorelbine Dec 2009- May 2010 (for regional recurrence to Internal Mammary nodes - not involved the first time round) Capecitabine (Xeloda)April 2011 - October 2011(for Liver metastasis) Adriamycin - December 2011 - February 2012 Taxol March 2012
4 dose dense a/c for 8 weeks then paclitaxol for 12 weeks. which ended on 11 sept 08. Jan.09 12 weeks of radiation.
little queasy tired bald last one nov 5th 2010 yesssssss!!
Chemo sucked! It's a crazy way to slowly poison yourself and destroy every muscle that you have spent the last ten years working on. Chemo is barbaric and I will cheer the day when this is gone. Obviously, I don't work or support any drug companies.
6 Taxol + Cytoxan Nausea, ache, neuropathy, squiggles in eyes
FEC and taxotere. Three treatments of each starting 2/11
AC followed by Taxol total 24 weeks beginning Oct 2009 Became very neutropenic (low white blood cells) A couple of mouth sores
Can not describe. First what hurt me the most was to be among so many people with cancer, no hair, having the quemo and problaly think about life and death, all with a face of fear...
Carboplatin and Taxol once every three weeks, 6 times. Fatigue, faux sence of energy at first, couldn't sleep for two day after, then crashing with neuropathy pain and fatigue
Lost hair not much else
May 2010 Chemo Carboplatin/ Taxol, nausea, fatigue, hair loss
1. Chemo Sept- Oct.2010 2. Chemo Nov - dec. 2010 currently ip chemo
1st. Chemo July - August 2009 2nd. Chemo February 2010 ip.chemo 3rd. Chemo January 2011 ip.chemo
9/10-1/11 hair loss,fatigue,mouth sores,neuropathy of feet and toes, brittle finger nails
Feb 2011 - April 2011 every 3 weeks Side effects - tried slept about 5 days straight Neulasta Side Effects - Painful legs and joints
August 2nd first chemo. Extreme heartburn, tired, body aches, fevers. Taxtore, Adriamucin,& Cytoxan every three weeks for a total of 8 treatments. Doctor wants to do more. August 8th running a fever of 104 in the hospital for a week. Hallucations, extreme stomach pain and boby pain. Can't eat. August 23rd chemo. 24th start of neulasta shots. Extreme body pain, joint aches, headaches, nausea and fevers. Hair getting thin. Sept 13 hair is gone. High fevers been on antibotics since hospital. Same side effects as the first & second. Exhausted all the time. Oct thru Dec extreme headaches, sick to the stomach, body aches, fevers, chills, pain in my bones and feet. Dizzy and blurry eye sight. Antibotics throughtout chemo with neulasta shots. Had a fever of at least 100 degrees throught treatments of chemo. Highest was 104.4.
Chemotherapy Carboplatin, Taxol
Finished February 21, 2010
AC, 3-2-11 lots of nausea, hurt to breathe through nose, blinding headaches (3-4 through 3-6), all-over weakness through the first week, leg and tailbone area pain.
I had my first chemo treatment on 04/07/2005 (my little brother's birthday) and I went for 6 hours a day, once every 3 weeks...
Chemo came after radiation the first time, chemo only the second time, radiation only the 3rd time. Allergic reactions to almost all the drugs tried, but that was the second time. The ones that I didn't react to made me very sick, so I'd go in to be hydrated the day after chemo since I was unable to do that at home. It's hard to eat and drink when you're asleep. Another side effect of the drugs and certainly the pain killers for me.
Starting on 18th April, 2011
1st. Chemo Feb. - March 2009 2nd. Chemo Nov - Dec. 2009 3rd. Chemo ip. Aug.-Sept.2010
Jan. 21st 2010 last 2 coming up. 1st 4 treatments made me very nausaus and tired. The 1st 2 of this cycle just sick for 2 days then just tired.
Chemotherapy is bi weekly on fridays! Side effects include Nausea, fatigue, and weakness, hair thinning
Starting chemo (carboplatin and taxol) on 4/27/11. Will have 6 sessions, one every 3 weeks.
I have completed 3 of my 6 cycles of chemo. I am on Taxotere, Cytoxin and Herceptin. I will finish up in September, with the completion of the Herceptin in May of 2012. I am also receiving a shot of Neulasta which makes my bones ache. The chemo this time has not been so bad except for the flu like symptoms and achiness in my bones. I am tired but this is due to the anemia.
Induction chemo for 2 months prior to radiation treatment - once a week during radiation; mouth sores for four days after first round, hair loss, fatigue, and some taste changes, but all in all, he did really well. Very little nausea.
Taxotere..Dec 2006-Apr2007. All the usual, numbness in fingers and toes, no taste, no appetite, constipation. The bone pain was the pits.
june 13 2011. no side effects yet
Body would only take 1 day session.
Red Devil, cytoxan, taxol....May 2002....Bone pain, tired all the time!...Gained weight
Started 06-20-Nausea, constipation, severe headahces, body aches, fatigue, dizziness, hot flashes, grumpiness. 07-05-some Nausea, headaches, fatigue, dizziness, port became infected.
8 sessions, sweats, nausea, constipation, de hydration, low white cell counts. joint, bone, muscle, numbness, tingling, pain from Taxol during and post-chemo. Peripheral neuropathy has been diagnosed.
I've had two rounds of chemo (carbo-taxol and FOLFOX, Avastin), neither of which were effective.
taxol and platins - 9 treatments completed 4/1/10 (3 of which included IP cisplatin)
January 2010- January 2011- Cisplatinin and 5 FU February 2011-May 2011- Oxaliplatinin and 5 FU June 2011-present - pclitaxol
First chemo starts July 7 2011
I just finished 4 rounds of A/C chemo treatments. Fatigue and infection was my worst enemy. First chemo treatment, I was in the hospital with pneumonia and neutrepedic. Very sick. I can only say I am glad its over. Now I am getting a port and will start Taxol next week.
Things I wish someone had told me- You feel the worst on days 3-5. Even though you're nauseous you can still eat with enough drugs (I never threw up!) Get your hair buzzed as soon as it starts to come out, and your scalp hurts, you will feel much better. Don't shave it until your scalp stops hurting. Your nose runs because you have no nose hair to catch it A little infection will knock you on your ass. Claritin can fight some of the neulasta side effects Glutamine and vitamin B can help with the Taxol tingle Ugg makes flip flops- AHHH big help with the Taxol tingle Some people lose their fingernails with Taxol (but mine are intact- I have chemo rings, though)
AC x4 Tax x4 recieved every two wks first chemo 29th April '10 last 5th august '10 side effects varied from the usual hair loss, vomiting to swelling of my chest wall, 19 of my 20 nails fell off (this happened a couple of weeks after the chemo finished) nose bleeds the list is endless but I got through it
Combined carboplatin and taxol, both administered systemically by IV started August 10, 2011, with last cycle administered November 23, 2011. Side effects included: nausea that was only gotten under control after the second administration using about 5 drugs; intense fatigue; muscle and joint pains that were reduced with tylenol and later greatly reduced with gabopentin; intense neuropathy in hands and feet, but even lips and chin until the gabopentin took the edge off that, too. Neuropathy still intense in first week of every cycle. Other side effects included intense fatigue, weakness, vision problems on two occasions (blindness in one eye when reading lying on side), severe constipation, and cognitive effects (short term memory dysfunction, inability to solve puzzles, inability to multitask or withstand multiple stimuli at once). There's talk of giving me a PARP-inhibitor for maintenance therapy in 2012. Constipation for 9 months! No, wait. Make that FOREVER! Seriously. Til my dying day.
Chemo was manageable --- did not have the nausea that some experience. The steroid you have to take ahead of the chemo was as bad or worse than the chemo itself. In the end, the worst part of chemo was what it did to my brain. Couldn't remember anything, which affected my ability to do my job.
ACT from December 2010 - June 2011.
6 rounds of chemo, first one 3/9/11, last one 6/21/11. Side effects: constipation; sharp pains in legs and feet; metal taste in mouth; heavy limbs; pain in joints; jittery; loss of all body hair; eventual numbness and tingling on bottoms of feet; and a slew of other things.
Carboplatin and Taxol, 8/11/2011. Sun-sensitive day after infusion (doesn't that sound like something you'd pay extra for at a spa?), then joint pain, peripheral neuropathy, fatigue on days three and four following chemo. Get better pain meds for next round!
Very sick. 12 years ago the drugs for side effects were not as effective as they are now and hopefully will continue to get better
I started the chemo the frist week in July 2010. I had a reaction to the first chemo which was Carboplatin and taxol so they changed it to Cisplatin and taxotere. They loaded me up on steroids and during the next treatment i had yet another reaction this one only worse than the first. So as a last ditch effort they changed again to cetuximab and honestly i cant remember what the second one they gave me with this was. I was ok with this drug but the side effects were aweful! I broke out all over my face with horrible acne and it made the radiation stronger which made the raidation burns worse.
Have had 5 chemo treatments. Took 5 hour "naps" afterwards. Some foods tasted nasty! Normally a huge water drinker but water nauseated me. Required at home IV infusions of Potassium and Magnesium for 8 hours/day for total of 15 days, also received a few infusions at the clinic for dehydration and low electrolytes. Anti-nausea meds didn't work on me.
I had 1 TAC had allergic reaction (tongue swelling) 3 weeks later started 3 AC biweekly, then had 7 abraxyn I had mouth sores, tongue swelling and bone pain after Neulasta, also had thrush for 5-7 days after the fisrt 4 sessions, I have muscle aches after Abraxyn, fatigue
Loss of hair and nausea
Finished Aug 23, 2011. 6 treatments completed. Zofran for anti-nausea worked but caused headaches.
phase 1 - A/C, phase 2 - Pacletaxol with Herceptin, phase 3 radiation, phase 4 - continuation of Herceptin for full 52 weeks. Daily injections of Luekine then Neupogen. side effects - neuropathy (still), hair loss, lost sense of taste, constipation, diarhea, bone pain, nausea, vomiting. chest pain (hate muga scans!)blood transfusions due to low counts
Taxol, a pain in arm and in the Ass.
Chemo not too bad with side effects. Im puffy. Numbness and tingling.
Cyclophosphamid Carpoplatin Taxol
Had a port put in August 2011, then started chemo. 2 drugs. Plan is 6 cycles, every 21 days. Have completed 3. Blood work ok, but almost unable to walk. No strength, can hardly stand, can't climb stairs well. Feet are numb, butt now numb. Had spinal MRI 11/11, #4 delayed a week.
Chemo began September, we are on third round of a four-round cycle. We expect five or six treatments will be needed. CT scan will tell us more after fourth round.
starting chemotherapy about 12/19/11. Ended chemotherapy 2/12/12
Taxotere & Carboplatin 6/30/11- 10/13/11 All classic symptoms
IP chemo. Taxol and Cisplatin. She has suffered from the following effects: fatigue, nausea, heart burn, pain in her lower abdomen, numbness/tingling in her hands, legs, feet and "chemo brain"
Chemotherapy 12/09 to 2/10- loss of hair, weight, blood clot, fatigue, low white blood cell count and nausea neuropathy in finger and toes. 6/10 to 1/11 same symptoms as previously noted except for no blood clots.
on 2nd round of AC, bald and trying to hold onto willpower. I get pretty sickly the 3rd day after cheno, 1/6/12 3rd treatment
Start Jan 6, 2012 Six rounds of carboplatin and paclitaxel once every 3 weeks.
3 (months not sure of all the drug names. A/C and taxol i think. Round two,Cisplatin.
2 rounds of Taxol/carbo 11/2011 & 12/2011...Is being changed for 1/2012...not sure of new drugs yet
Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse. Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo.
I've been in chemo since june 2011. I was taking 3 different kinds every three weeks but now have gone to just one kind. the initial treatments caused heartburn, hair loss, vision loss, hearing loss, skin discoloration, skin burns, nausea and vomiting, dizzyness, hot flashes, chemo induced asthma, chemo induced menopause, bone pain, I was not able to taste foods that were not sweet, there are many more but I feel like I"m whining...lol
I have had two rounds of chemo, and the next will take place on Jan 31, 2012. After that, three more rounds!
Taxol and carboplatin. 6 weekly infusions.
Chemo coming up
Taxotere & herceptin weekly for the rest of my life.
7-2010 IP/IV chemo x 6 cycles ( cisplatin/taxol/carboplatin) Hair loss, extreme fatigue, abdominal pain... 11-2011 ca125 on the rise. 4/6 cycles complete of topotecan. Ca125 back in its place. BRCA 1 Minimal side effects: reasonable fatigue and well controlled nausea.
currently doing carbo/taxol every three weeks. Extreme fatigue, muscle aches, taste changes
6 chemotherpay treatments. Cisplatin for 2 and Taxol/Carbo for 4. Stomach nausea,bone pain after Neulasta shot, constant dehydration, tired all the time & neuropathy in feet.
First Taxol 1.5.11, once a week for 12 weeks, FAC once every 3 weeks from 3.30 - 6.1.11. Taxol made me feel like I was wearing a lead raincoat and concrete shoes. FAC was far more discouraging. Lots of digestive issues, couldn't eat, everything taste nasty. It was horrible.
I was on a novel agent in a clinical trial. With Taxol for 12 weeks. Its was horrible diarreha, but it shrunk the tumors. Hooraay
July 2011 started with carboplatin and taxol (7 rounds in all). Reaction to the decadron had some nausea at the beginning sol they tweaked it with emend, sore muscles and joints day 4,5,6,7 after chemo usually spent in bed. and spent the rest of the time getting semi normal before the next round Stopped in Sept until december 2011 during which i had surgery last treatment january 20 2012
suffer to heal. stay mindful of what it means to be aware.
AC and Taxol
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