What Taxol (Paclitaxel) Cancer Survivors said about their Chemotherapies.
Began chemotherapy in 3'06. Side effects were mouth sores, nausea and vomiting. Bone pain, neuropathy in fingers and feet. Nail beds turned black.
6 rounds of Carbo Platinum and Taxol from 3/18/05-7/8/05 major side effect after the chemo was stopped: fatigue, memory loss Started chemo again in October of 2008. Taxol, Carbo Platinum and Avastin. Switched the taxol to taxotere after four rounds because of neuropathy. Major symptoms, nausea, fatigue, nose bleeds, low white blood cells, memory loss, did I mention fatigue?
Paclitaxel(Taxol)/Carboplatin(Paraplatin) combination, intravenous, 4 treatments total, 3 weeks apart. My first treatment was Oct. 17th. The side effects weren't been too horrible. Days 3-6 I felt really bad, but I never vomited! I just felt VERY weak, and VERY sick. I was so pale I scared myself in the mirror, and sometimes I felt so bad I couldn't even talk. I had HORRIBLE constipation like never before, and I still have heartburn, which I never got before.
8 rounds - 4 A/C - 4 Taxol Hair loss on 13th day, bone pain from Taxol, rhematoid arthritis outcome
3/03 ~both Adri/Cytoxin together (red devil alright) lost hair~flu-like follicles actually hurt. Taxol = body aches but, milder but harder to explain symptoms. Determined to drink lots of water and not to throw up...didn't. Walked alot after. High stress prepping for infusions. Got a port catheter 3/17...had to put in main vein in my neck other too small... strange to me....still have...
Carbo/taxol Doxil Carbo/Taxol Topotecan Gemzar and experimental drug Taxotere and Avastin
June 20, 2006, and every following 3 weeks...through August 29, 2006...then the last 2 of the 6 treatments - November 7, 2006 & November 28, 2006 Carboplatin & Taxol I really didn't know what to expect with the first treatment. Felt great for 24 hours after...but then I felt like a semi-truck had run over me about 10 times...or worse case of the flu X 20! Twelve days later, I had a reverse mohawk going on (hair falling out)and had my husband shave my head. The worst of it was losing my eyelashes and eyebrows!!!! You know your hair is going to go...but no one told me ALL of my body hair would go!!! Talk about being striped of your "womanhood"! I still wince when I think of those times! Numbness in my feet(Pins & Needles)...always worse by the end of the day.
Well, chemo sucks. What can I say? I had 8 heavy duty treatments, spaced 3 weeks apart. The first 3 were AC, the next 4 were Taxol. It kicked me in the butt, but I never threw up!
Oral Chemo (Xeloda) - 7/07 to current weight gain, tenderness in hands and feet, fatigue, irritability, feeling full; dehydration
Started chemo June 8 2006 and finished up Sept. 28. 2006. Side effects weren't to bad. Just did what I was suppose to so I wouldn't have many.. Biggest side effect.. Baldness but I got through that too.
Taxol and carboplatin so far 8 treatments CA-125 is now down to 130
Had 2 courses of CarboPlatin and Taxol via vascualr Port; followed by 4 courses of IP chemo with Cisplatin and Taxol, one course every 3 weeks, requiring 3 days in hospital each time. Could only tolerate 4 courses because side effects were too severe: nausea, vomiting, constipation and diarrhea, ototoxicity resulting in some permanent hearing loss in left ear and also tinitus, tingling, numbness and pain in hands and feet (apparently permanent), and "chemo brain" - no short term memory, fogginess, confusion, and exhaustion. Serious loss of weight as well. Last 2 courses of chemo were via vascular port and the same as the first 2, and were tolerated fairly well.
ACT - A was terrible, T was terrible C is easy
2007 April til present so far 5 rounds Taxotere Carboplatin Avastin Emend for nausea Aranesp for red blood Neulasta for white blood etc.....
7/24/07 Taxol and Carboplatin 2 and a half days full of energy, 3rd day she is complaining of pain and flu like symptoms... She HAS NOT taken Claritin which her oncologist recommended for these symptoms.
Paclitaxel (Taxol)/Carboplatin (Paraplatin)combination. 6 treatments. 21 days apart.
Jan-May/06 6 Taxol/Carbo CA-124 = 7 May/06 neuropathy hit - severe damage to hands and feet. Hands are curled.. I can't move ankles or toes. Severe nerve pain - can walk 5-6 steps w/ walker
12 rounds of chemo
Currently on taxol/carboplatin Prior treatment of Folfox 6 showed no sign of lung met shrinkage.
AC dose dense,then taxotere all for 5.5 months.Lots of lousy side effects you name it I had it!
Started AC on 12/12/07. That was fine. Had a reaction to Leukine (sp) now I'm Neupagen daily. No problems there.
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
Taxol/carbo, starting Dec 12, 2007. Some joint pain, hair loss (boo-hoo) and slight stomach upset.
Jan 22/08 *Just Started CAF (Cytoxan,Adriamycin,Fluorouracil-5-FU) dose dense - 2 week x 4 cycles. *Taxol + Herceptin for 6 to 8 months
They removed all my teeth because they said the chemo and radiation would kill their roots. I went through 5 cycles of the red devil and 10 taxol. I am still on femara
One treatment so far on 3/23. Side effects for two days included exhaustion beyond sleepiness, nausea and depression. I'm so glad it only lasted 2 days! Constipation and painful bowel movements.
Pending. I have only been told of what the drugs of choice will be and I can plan on being bald.
10/05-08/06 adriamyacin, very weak
September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months.
I had every side effect in the book! You name it I had it! Gained 20 pounds on the steroids.
6 cycles chemotherapy begining 11/12/07 complete hair loss, mouth sores, black nail beds, weight gain, inflamation, fatique, everything tastes like lead. Joint pain from Neulestra shot.
To begin June 12th
Started first round of AC on June 12th....will continue 3 more rounds and then on to Taxol.
4 cycles of chemotherapy ending in late August, radiation to follow depending on how the cancer responds.
Last Chemo was May 23 2007. Cyclo/Adri/Taxol. Lost 22 pounds. Very Weak, and my bones ached bad. Taste and smell was horrible. All is well now. Gained the weight back! darn.
Began Adreamycin/Cytoxin on Aug 30, 2007.Completed my last dose of Taxol on Jan. 30, 2008. My main side effects were the exhaustion and mouth ulceration and neuropathy in my toes and fingers with the Taxol.
Dec. 19 2003 - Feb. 27 2004. First-line, dose-dense chemo. Taxotere, Cytoxan and Adriamycin. Horrible horrible horrible. Felt godawful (aching fatigue unrelieved by sleep, and absolutely no energy) for years afterwards. I don't think I'd do it again.
Carbo/Alimta 07.2008 Carbo/Taxol - Got taken off Avastin after pulmonary embolism. (nausea, vomiting, fatigue) 02.2009 Carbo/Alimta - Developed allergy to Taxol. (anemia, fatigue) Radiation therapy.
NOW ON ABRAXANE AND AVASTIN CHEMO SIDE EFFECTS WEAKNESS, FATIGUE, PERIPHERAL NEUROPATHY , NAILS PEELING OFF FINGERS, NOSE BLEEDS - ALL SOUND BAD BUT ARE TOLERABLE
Only 1 round of chemo, none. Loved the Benydryl they gave me before the infusion.
First Chemo 9-8-2008. Side Effects - Pain, joint and bone pain, can't taste anything, headaches, bodyaches and my skin hurts and weight gain from the steroids.
Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes. I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite. I started Tykerb in Feb 2009. I will continue with Herceptin for at least 7 more months after surgery.
Bleomycin, Etoposide, Cisplatn (March 07 - May 07) Cisplatin, Taxol, Ifosfamide (September 07 - November 07)
Four months of dose-dense chemotherapy along with a shot of Neulasta after each session.
First time I did chemo was on May 2006 and I lost my hair, throwing up, rashes, weakness. Just pure hell.
Carbo and Taxol 6 rounds. Loss all my hair, even my nose hair, eyebrows, everything. Weak, muscle and nerve pains, anemia
Feb 08-Cisplatin/Etoposide- hideous vomiting diarreah Switched chemo drugs AND Hospital -April08-carbo/taxol/avastin. Tolerated well. Neulasta. Bone pain
may 4 2008,nausea,and alot of hand pain
4 cycles dose dense Doxorubicin and Cyclophosphamide, then 4 cycles dose dense Paclitaxel to start 12/09/08
TAC protocol. 6 rounds every 3 weeks. I refuse most of the pre medications (unless I need them) and ended up not needing any side effect meds my last 2 rounds. I'm having a great reaction to the chemo and my doctor is impressed with how I am weathering each round of chemo. He is shocked that my White and Red Blood cells are doing so well and I ended up being able to navigate the nausea without medications - which means no constipation!!! The side effects range from liberating (no hair, chemo brain, slowing down, other people cooking for me) to pain-in-the-ass (constipation from the zofran, hungry from the steroids, no nose hairs, sensative gums, run over with a truck feeling from the neulasta) to the hysterical (I'm really good at the 'Old Man from Flordia Suffle' while I wait for my WBC and RBC to come back on line!)
6 months.... 3 at first.... then 3 more after radiation..most side effects there are!!!couldn't eat,sick,cried,tired, you name it....lost my hair, then lost it the 2nd time too,3 months later
Sept 6-Nov 6 2008: every three weeks for 6 hours. Side effects: hair loss, tired, and sore from the Nuesta shot, but overall not as bad as it could have been.
Started my chemo on Sept 11th of 2008. I have to complete seven cycles. I receive cisplatin and adriamycin on the first day of treatment along with other pre-meds such as decadron and emend. Second day of treatment I receive Taxol and the following day I go back in to get a injection of neulasta.
Four cycles, last one January 28. Mostly fine, except I learned too late that even though I feel fine physically, it doesn't mean I can do all the things I used to do like shoveling. I really slammed myself a couple of times by trying to do too much. Constipation was the worst side effect, but Smooth Move tea works great. The nausea was tolerable, until I overdid it physically, then I felt like I was on an oceanliner in a hurricane.
Taxol and Carboplatin. Started November 2008, should be completed March 25, 2008. Side effects some nausea with first treatment, leg pain and neuropathy.
Taxol/Carbo x 8
Had cisplatin for 6 weeks during radiation, now am on my 5th of 6 treatments every three weeks (taxol and cisplatin)
Started chemo Mar 1st 2009 Continued pain,a very few side effects to date-next treatmentApril 12
Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol
treatments spanning over 4 months. Felt poisoned and beat up the entire time.
2/6/2009- Started Taxol and Carboplatnium cocktail. (6 sessions) 2/26/2009- Started GOG- 218 (Avastin Trial) Nurses/doctors notice side effects indicating she was actually receiving the drug.
Carboplatin/Taxol, continuous 5FU drip March/April 2008 Taxotere July/August/September 2008 Cisplatin January/February 2009
First round of chemo on 7 May 09 Second round of chemo on 1 Jun 09 Third round of chemo scheduled for 21 Aug 09 My doctor is using a new "sandwich" approach to treatment. 2 rounds of chemo > then 25 days of radiation > then 2 more rounds of chemo. This is new and apparently works better than all chemo then radiation. I am in control and working to erradicate the cancer via chemo and radiation.
Adriamicin, Cytoxan, Taxol
chemo May 2008 to August 2008, did 5 rounds out of 6 - nausea, peripheral neuropathy, anemia,hair loss,dehydration, fatigue, weight loss
Infusion #1 - 09-22-09. Severe joint pain in lower back, knees, and ankles. Intense nausea. Infusion #2 - Intense nausea. Severe joint pain. Darkening of my fingernails. Severe headaches. Infusion #3 and #4 - Intense nausea lasting my entire two week cycle. Headaches. Continued darkening of my nails. Taxol infusions #1-12 - Slow physical changes to my finger and toe nails, intense nail bed pain which has been cumulative. Big drop in counts at infusion #10, nausea, fatigue.
May 23rd 2007 started 6 sessions 3 x F.E.C 3 X Taxotere Ulcers in my mouth, sickness, diarrhoea, thrush, joint pain, loss of finger and toe nails, peeling skin on hands and feet,
I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
8-4-09 thru 8-7-09
2/26/08to 5/28/08 - 6 cycles Taxol, carboplatin and Avastin for lung ca. Hair loss and peripheral neuropathy - some fatigue.
Chemotherapy 4 X AC - side effects - extreme nausea, hair loss, fatigue. Neulasta - bone pain. Chemotherapy 4 X Taxol - Peripheral neuropathy, nausea, bone pain, loss of balance, extreme fatigue, hair loss, low blood platelet count.
Taxotere, Carboplatin, Herceptin Dec 08 through Dec. 09 Nausea Migraines Loose fingernails/toenails, MRSA infections x 8, auto immune allergic reactions Hair loss allergies developed Loss of menses (early menopause)
march-june 08: 6 taxotere/carboplatin november-april 09: 6 taxol/carboplatin oktober-? 09: started caelyx/carboplatin every side affect you can imagine
Taxol and Carboplatin every 3 weeks for a total of 4-6 treatments. Have had 2. Nausea, fatigue, aches and pain in whole body. Also DVT.
I do my treatments through an IV.I only have to take 4 of them. I just finished my s 2nd one on Monday 11-2-09. This one was alot harder for me to bounce back than the 1st on was.The next one is 9-23-09
December 2000 every 3 weeks for 6 months nauseus, hair loss, headaches etc. December 2007 every week, then every 3 weeks for 16 months nauseus, hair loss, nuropathy, headaches, etc
Oct 07 to Dec 07 - Cisplatin chemo 1x a week with radiation;. Constant terrible nausea, very sensitive to tastes and smells. Ate only carbs, couldn't even stand the smell of my dog! Everything nauseated me. Aug 08 to Dec 08 - Carboplatin and Paclitaxel every 3 weeks x 6 doses. Hair gone by 2nd treatment, fluid overload on chemo days due to drugs being hard on kidneys - had to flush. About 2-3 days post chemo, horrible bone pain, numbness and tingling in hands and feet (peripheral neuropathy) and constipation that almost hospitalized me. Would last for a week or so and then settle down. Horrible fatigue, felt like lead. My hair started coming back really quickly after treatment stopped,but the neuropathy lasted almost a year, fatigue continues to be a problem. UPDATE Feb/10: Going back for another 6 rounds of the not so pretty poison. Carbo/Taxol once again. Gonna miss my hair...oh yeah, and the ability to feel human!
intraperitoneal taxol and cisplatin, 6 - 10/06 (heinous, too long to describe); HIPeC something-or-other intraoperatively 10/07 (really ghastly); IV carboplatin and gemcytabine, 2 - 5/08 (some hair loss, fatigue); sunitinib clinical trial 2/09 (painful hands and feet, fatigue); doxil, 3/09 (fatigue); taxol and carboplatin 5 - 9/09 (hair loss, fatigue, neuropathy, tinnitus); Avastin 10/09 to present (runny nose)
taxol/carbo dec 2008-april2009 topotecan sept 2009/present
Dry Mouth. Lost body hair, Sick at stomach, weight loss.
4/2009 Abraxane and Carboplatin 9/2009 Taxol and Avastin had an allergic reaction at the end of the run of Carboplatin Avastin caused my blood pressure to increase sharply, so it was discontinued
Nausea, vomiting, bad headache, fatigue, mouth soreness, hair loss.
1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss) 2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment. 2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course 2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course.
6 cycles, every 3 weeks, carboplatin, taxotere, and herceptin. I still recieve the herceptin, which had no side effects at all, for me. The carboplatin/taxotere had MANY; nausea (1 night I vomited VIOLENTLY from discontinuing my zofran too early), stomatitis(for which ice really does work, ice cream, itallian ice, etc. for YOUR ENTIRE INFUSION, learned this cycle 4), rash from the decadron that was SEVERE, and the very, very worst was the neuropathy that lasted about 2 months post-chemo which was just torture...but it's nearly gone now, the arm, and breast hurt worse, and I am so grateful. Taxotere is what caused that, so I hear, but it goes away slowly, but almost surely, that's the good news.
First chemo carbo/taxol on May 7th. so far, a bit of joint and bone pain, nothing else
Started chemo in May 2009, got a port so my viens are still good. Adriamycin: fatigue, hair losse, nausea, constipation. Taxol: PAIN, fatigue, chemo brain, PAIN.
First Chemotherapy was Monday, March 29, 2010 - The only medical side effect was a very red face in reaction to the steroid in one of the preparatory drugs. Main side effect was pronounced "blues". Mom stayed on the couch for three days and ate very little.
Carboplatin 08/06/2010. Mild Fatigue. Carboplatin 08/26/2010. Radiation recall. Carboplatin 09/16/2010. Neck is tightening due to radiation recall. Alimta erbitux Low Platelet 10/07/2010 Carboplatin, Taxotere,5FU 01/2011 n 02/2011.
July - November 2008: 6 rounds IP Cisplatin and IV taxol. Side effects: You name it, it happened... hair loss, nerve damage, mouth sores, drop in red blood cells which required a transfusion, high creatin, low magnesium and potassium, diarrhea, constipation... I still blame the nurse for not making sure my dexamethosone was added to the chemo! Next Monday I start 6 rounds of IV Carboplatin and Doxil.
Taxol and Carbo, every 3 weeks for 6 times, next (3rd) will be April 29. First three hours of administering drugs, agnonizing dizziness due to high dose of Benadrly to combat first few hours of chemo drugs. Next two days seem ok, with a false sense of energy, then day four through 8 no desire to drink, get dehydrated, can't stand or something strenuous for long periods of time, physically weak and tired always. Tiredness especially never is gone.
Started Adriamycin/Cytoxan on 6-4-09 dose dense. (1 dose every 2 weeks for total of 4 doses.) Felt fatigue, stomach upset,hair loss. Started Taxol 7-30-09 dose dense (1 dose every 2 weeks for total of 4 doses.) Felt achey, tired and depressed, hair loss.
4 rounds of Adriamycin and Cyclophosphamide together every 2 weeks. I am done with those 4 rounds. 4 rounds of Taxol every 2 weeks I have 3 rounds left. Xeloda for a year, Gemzar and carbo still doing it once a month until I guess it stops working.
Paclitaxel, Cisplatin, Bevacizumab, Avastin
6 treatments 4/07 to 10/07 Fatigue, hair loss
Protocol: FEC-T (4 months/every 3 weeks) FEC-T :Epirubicin/Fluorouracil/Cyclophosphamide cycles 1-3, then add Docetaxel for cycles 4-6 Finished chemo November 24/2010
Cisplatin and 5Fu daily for 5 days then 2 week break for 6 months low blood counts, nausea, fatigue etc. Hospitalized several times for low blood counts and infections. 12 weekly infusions of taxol, low blood counts, nausea, fatigue, neuropathy. Completed 3 of 4 A/C infusions hospitalized every time for low cell counts.
Mar.2007-taxol & carboplantinum (8 treatments) July 2008-taxol & carboplantinum (7 treatments) The first 2 rounds left me weak, loss of hair, nausea and vomiting Oct 2009-Doxil for six months. Side effects not so bad
none the dr did a slice and dice SIDE AFFECTS WERE WEALINING OF HEART MUSCLES HAD A STROKE 2 YEARS LATER AND NEEDED A PACE MAKER PUT IN YES I AM THE BIONIC WOMAN HEAR ME ROAR ALSO HAVE NEROPATHY IN FEET AND LEGS
July 24,2009 first treatment taxol and carboplatin. The only problem I had was my own fault. I got sick that night because I came home and ate stewed tomatoes and chased it down with a Pepsi! Big mistake because I quickly learned that Chemo and acid DON'T mix. Treatments 2,3, bought feet itching, loss of smell and taste. Treatment 4 was not to bad slight big toe bleeds but manageable, slight problem with vision seeing bright white spaces from within my eyes. Treatment 5 I had a mouth bleed, neuropthy more consistant. Treatment 6 manageable but eyes still have the spots. Neuropthy worsens, still itching.
Chemo once every other Friday, eight prescribed. First four: Doxorubicin (a.k.a. Adriomicine) AND Cytoxin; last four Taxol. Nuelasta with every infusion prescribed. See post "I'm just sayin'" for side effects from first 4 infusions.
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