What Fluorouracil (5-FU) Cancer Survivors said about their Chemotherapies.
Chemo was not that bad, just a little tired with some nausea
Began chemo in July of '09 with camptosar, leucovrin, and 5-fu. this is over a 46 hour period. In January '10, they added avastin and zometa to the regimin and is ongoing.
Mytomycin and 5-FU first weeks then 5th week
12 so far, 5Fu, Avastin, Oxiplatin, Leucovorin
My hair is normally very curly. Now it is straight. Hands and feet a little sensitive. Other than that, none, yet.
Xeloda 3000mg by mouth twice a day for 5 1/2 weeks. Some skin issues with ears peeling, body aches & pain, very tired.
Taxol, 5FU, Carboplatin, Avastin, Tarceva (withdrawn).
During my 6 month treatment fatigue and nausea were the most consistent chemo side effects. Exercise helped with the fatigue and taking compazine helped with the nausea.
Cisplatin and 5FU, nausea and dizziness
July 2, 2010 - Heated Intra-peritoneal Chemotherapy (HIPEC). Side Effects: Complete Loss of appetite, everything tasted awful. No nausea or vomiting. Lots of swelling due to amount of fluid they pump you with prior to procedure.
Mitomycin given in one dose on June 28, followed by a week of infusion of 5FU. Four weeks later a second cycle of 5FU. Following the first treatment, severe mouth sores for 8 days - at the end could not swallow more than a teaspoon at a time. The second cycle had reduced mouth sores, but I did not have the Mitomycin as my blood count was too low. After the chemo ended, I developed a problem that my doctor and I identified as milk protein immune reaction (a general problem known as FPIES, and usually seen in young chidren - so at least my innards were in their second childhood!). I was hospitalized twice for rehydration, following hours of vomiting and diarrhea, after eating ice cream (it's made mostly with milk, who knew?) and a soup with light cream base (about the same as milk - who knew?). This turned me into a "food detective" when I ate away from home (what is in that sauce?). Finally, after a year, the oncologist suggested "challenges"with a fourth-teaspoon of the ice cream, followed by half-a teaspoon, etc., until I consumed the same size serving as the one that sent me to the hospital, without any reaction. At last I could stop grilling my friends about what's in the food! At this point my only issue is the chile pepper question - if something is being cooked with any kind of chile peppers I start coughing. And eating them! Out of the question.
WEEK 1 - AUG 16 mitomycin IV & portable FU5 hooked up. Monday, no sleep. Tuesday, no sleep. Sooo tired but unable to sleep, my body is exhausted but my poor heart is beating soooo fast. Wednesday took Gravol, slept about 5 hrs. Thursday, felt good. Friday woke up with bright red itchy rash on face, head and various parts of my body. Notice tinny taste in mouth and lots of saliva,sore in mouth, throat, feeling nauseous. Bottom of feet sore when walking.
8/3 FOLFOX6 VERY SLIGHT NEUROPATHY
2 treatments of Mitomyicin and 2 4-day (24 hour pump) of 5-FU Started 8/31/2010
5f-u and Oxaliplatin start 10-19-2010~On June 13, 2011 I had an allergic reaction to Oxaliplatin and my Doctor made the decision to take me off of that for good. Nothing will take it's place as of now. I will remain on 5f-u and Leucovorin.
2/8/10 - 2/12/10: 5-FU and Mytomycin. 3/8/10 - 3/12/10: 5-FU. Nausea, loss of appetite, weight loss, lethargy, weakness, late effect hair thinning.
Pre-Surgery April 19-May 26 Five FU for 6 weeks continuous with take home pump Post Surgery started Sept 22 Full Fox
Fluorouracil treatment started Sept 2010 Fluorouracil treatment started Aug. 2011
Second time around: Fluorouracil (5-FU): given through a portable 48 hour pump Irinotecan (Campto): 1 hour iv, i think First time around: Gemcitabine: will be administered through IV for over an hour. Cisplatin: will be administered through IV for over an hour. He will have to rehydrate 4 ours before injection.
5-FU infusion mitomycin.. lss of appitite for a week, mouth sores.. feeling better when we took pump off.
Picc line inserted Nov 17, 2010... 5fu/mitomycin started Monday Dec 6, 2010. Took a week off from radiation after second round of chemo due to unmanageable pain. Finished chemo Jan 7th, 2011 and finished radiation Feb 4, 2011.
Chemotherapy was standard - Mytomicin and 5 FU the first week of treatment and week 5. Had all the side effects that are mentioned for this in varying degrees of severity, except that I did not lose my hair. It thinned quite a bit, but has come back with a vengeance.
FEC and taxotere. Three treatments of each starting 2/11
5FU 8/23/10 through 9/27/10 24/7 once a week flush and bloodworkups. some nausea
PICC line put in 10/25/2010 intital large dose of Mitomycin, weekly infusion of FU5, disconnected every Friday, then started back on Monday 5 1/2 weeks. By 3rd week, severe stomach pains(lasted 1 week) diarrhea, no appetite, weakness , because of blood count did not take scheduled last dose of Mitomycin
Bi-weekly chemo. Energy levels vary. Diarrhea, one day only usually. Keep hydrated.
Bi-weekly Chemo 6 months Oaxliplatin/ fluorouracil 5-fu
I started folfox with Avastin in April 2010, did 12 treatments & had my last one on Sept 7th, continued with Avastin til beginning of January 2011. I was already sensitive to the cold before I started oxali, it was horrible, my fingertips & feet still have that slight weird tingle to them, it's Feb. My oncologist & I agreed to start irinotecan after my surgery to knock things out for good.
Began 5FU and cisplatin chemo on 1/4/10 and 2/1/10 for 1 wk cycles. Side effects: nausea, vomiting, diarrhea, mouth sores, and fatigue. Hospitalized after last day of 5fu infusions for 3wks for chemo toxicity, diarrhea, severe abdominal cramping, dehydration uncontrollable fever, etc. At least I had completed menopause at age 42 and did not have to deal with the emotional side of this. Stopped HRT during treatments only.
Gi toxicity, fatigue, bone marrow suppression lasting many months hair loss, went in the hospital for a fever of 104 with low white count
Mitomycin and f5u-begin 4/12/11. . . . I was EXTREMELY tired and became EXTREMELY short-of-breath (ended up with bronchitis, but I have asthma.) One of the meds, Mytomycin, I think, can adversely affect the lungs. My thyroid got messed up so I now take meds. Nodules on lungs, on CT . . . monitoring those.
Xeloda oral 2000, started March 22nd - OK up to date Folfox - starting August 29th, port inserted on July 29th. Side effects from folfox - berable - cold sensitivity in hands and eyelids. Tingling in hands, shin cramps, tiredness, eye dryness.
November 4, 2009. Terrible neutropenia, and extreme fatigue.
5FU during radiation 1st round finished 12/28/10 final chemo start 02/23/11
Gemzar, Taxotere and Xeloda
Starting on 18th April, 2011
Mitromycin and 5FU via pump, 1st week and 4th week of treatment. Nausea - 4 week had to be hospitalized
To start on 4th April 2011
4/4/2011 - FOLFOX6 with Avastin. Some fatigue, peripheral neuropathy, cold sensitivity. Discontinued after 3 rounds 7/1/2011 - Switched to Xeloda. Stopped first round after 9 days due to much bowel discomfort.
Chemotherapy is bi weekly on fridays! Side effects include Nausea, fatigue, and weakness, hair thinning
Induction chemo for 2 months prior to radiation treatment - once a week during radiation; mouth sores for four days after first round, hair loss, fatigue, and some taste changes, but all in all, he did really well. Very little nausea.
Body would only take 1 day session.
sisnce |July 2010 - ongoing
2/09/10 mitomycin & 5fu
Have had ten of twelve treatments. Nausea, loss of appetite, food not tasting good, neuropathy in fingertips and very susceptible to hot and cold beverages/food.
8 sessions, sweats, nausea, constipation, de hydration, low white cell counts. joint, bone, muscle, numbness, tingling, pain from Taxol during and post-chemo. Peripheral neuropathy has been diagnosed.
Two 96-hour rounds of Mitomycin and 5FU on Mar 15, 2011 and Apr 11, 2011. Side effects were mouth sores, fatigue, diarrhea, loss of appetite, hair thinning.
January 2010- January 2011- Cisplatinin and 5 FU February 2011-May 2011- Oxaliplatinin and 5 FU June 2011-present - pclitaxol
FOLFOX 8 treatments split into two rounds - one round before radiation and the other round post radiation Feb 3 - July 18, 2011 Neuropathy, hair thinning, blisters on fingers and feet, diarrhea, constipation, nausea,
4 days twice Fluorouracil (5-FU)and Mitomycin.
I had a great wife with me every one so they could never be all that bad. I had 2350mg of 5FU and Oxaliplatin over 48 hours every other week for first 3 months for last 3 months have had 1105mg of 5FU Leucovorin every week.
First treatment was June 8th 7 hours between the other meds olus the chemo..Cisplatin and Gemzar.. Felt ok the day after but then started feeling very sick, achy, headache, ringing in ears, coulnt eat, weak, dizzy,tired,shaky all over I only felt well enough to go to the doctor on the 7th to have my blood drawn..saw dr and he said he would up my steroids next time and that should help second treatment was on the 8th, Just the gemzar.. Really tired and achy. Dizzy and weak. Had my shot of Lewnasta on Monday. Still fell tired and bone pain
through March 2008 CMF cocktail, 8 rounds. never lost my hair, nausea got pretty bad... three rounds in, I became a petulant child and announced I was NOT going back. A nurse family member asked my mom what kind of anti nausea meds I was given (don't remember) and told my mom to relay the following: "tell her to get pot, the pills suck" .... My resourceful husband came home with a surprise shortly after round 3. It PISSES me off that I had to break the law because the fact is, at least for me, IT WORKED and it was AMAZING.....
Two cycles Week one Mitomycin C & 5FU(Flouracil) Week Five 5FU
A 2 chemical soup every 3rd Monday and then a 24/5 fanny pack pump the same week as above. I have 1 week on and 2 weeks off treatment
5FU, Leucovorin and Oxiplatin. Typcial symtoms could not tolorate cold after treatment, slept alot. I worked full time through chemo. Felt exhausted and don't remember too much in this time period. Work and slept.
Sept. 2010 to Nov. 2010 - Oxcaliplatin, 5FU, Avastin. Oxc. not working changed to Irinotecan/Avastin. till April 2011. Tumor growth in liver and lymphnodes. Itinotean/Erbitux from June 2011 till present.
took Docetaxol (Taxotere) after FEC - finished chemo July 22
side effects; weakness, fatigue, occasional nausea.
Oral chemotherapy taken on radiation days 08/10/2011 - 09/19/2011 No side effects. Folfox - Begin 01/10/2012 - End date due to non-cancer complications: 4/18/2012. To date: lip numbness when I go in the cold for a couple of days after treatment. Cold sensitivity to foods and drinks for the first few days after treatment. No issue with fatique or nauseu to date. Xelox to replace Folfox: 05/02/2012 No side effects. End date due to non-cancer complications: 06/05/2012.
Just began 5FU 5 days ago. First round.
5-FU & Mito-3 for 4 days March 2010 and April 2010
Chemo to start with radiation on Sept 26. Need a PICC. Mitomycin C and 5FU. Two weeks for five days. One week on, then three weeks off, then one week on again.
5-FU started 6/27/11 hooked up to the pump 7 days a week for 6 weeks....ugh!!! Grueling. Side effects consist of nausea and vomiting, finished the first round 8/2/11. Now I have to continue 9/21/11 for 4 months... 5-FU, Oxaliplatin, Avastin & Leuc
Started FOLFOX Sept '11
F5U 2 runs of 96 hours, Side effects included some nausea and tiredness.
Oxalipilatin/5FU/Leucovorin/Avastin Feb 2011- Aug 2011 with use of pump at home. Now on 5FU/Leucovorin/Avastin weekly. Side effects peripheral neuropathy, vomiting, behavioral changes
5-FU oxaliplatin and Avastin, due to start Nov 7, 2011
5FU and Mitomycin during 1st and 5th weeks of treatment
24/7 5FU with another drug u can't remember through port. Six weeks, 4 days, 12 hours.
Flu like symptoms and fatigue.
1st and 5th week for 4 days
Mitomycin + 5FU - twice. 1st and 5th week of radiation
CAPOX 2006, FOLFIRI + AVASTIN 2007, TEGAFUR + AVASTIN 2008, FOLFIRI + AVASTIN 2010, XELODA + AVASTIN 2010 - ONGOING...........FOREVER....WHILST ITS WORKING
started FOLFOX on 4th Dec 2011. Active treatment for 48 hours every 2 weeks. Lots of nausea, some mouth soreness, altered taste and smell
Chemo-therapy of 5FU and Oxaliplatin started 3/12/2012 and finished 8/13/2012 administered every two weeks, and taking home an infusion pump of 5FU for two days.
1/23/2012 had IV mitomyacin then 96 hrs of 5 FU via pump. Extremely fatigued all week, not sure if it was the 5 FU or mito. Started Neupogen injections following Monday for 7 days. No nausea at all. Appetite great. Mouth sores began with a vengeance following sat and lasted 7 days. Could only swallow liquids so I mostly lived on instant breakfasts. Two weeks later my finger tips began peeling and hair loss began.
mytomycin, 5FU April and May 2010. Loss of hair, nausea, mouth sores
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss 6 rounds Hepatic artery infusion (oxaliplatin)avastin 3 month Jakafi (oral) unknown trial drug nano cisplatin and gemcitabine
Chemo Wed, leave with bag, come back on Fri. Side effects neuropathy, fatigue, nausea, occasional constipation and/or diarhea
None, but for me I am receiving my medicine through a port in my chest, I have a small pump with a bag that they change once a week. my medicine is 5fu. The only side effect that I have is that I am alway hungry, I can not seem to get enough to eat. No nausea or cramping, no mouth sores or peeling skin. Just extremely hungry all the time.
Breast cancer 1 2004: FEC - started throwing up after session 2 and it just got progressively worse. Breast cancer 2 2011: TAC - minor heartburn, some nausea, some reaction to lenograstim injections, but apart from a little nausea, no sickness (hooray!). Complete hair loss with both types of chemo.
First round 1/23/2012-1/27/2012: Some mouth tenderness, fatigue, slight nausea. Second round 2/21/2012: side effects mainly similar to the first time but not as bad. The second round had serious heartburn though.
5 FU via port 2 x 5 days. Started Jan. 24 2012. No major side effects. Constipation.
Fluorouracil (5-FU) and Mitomycin.
2 rounds. constipation and not too much else
Two induction treatments then weekly chemo. Hospitalized eight times due to vomiting and fatigue
It seems to be the standard Mitomycin-C and 5FU in the first and fifth week of treatment. Mitomycin C dose lowered by 25% due to low WBC & platelets first time around.
Started Chemo 3/19/12 - completed 4/26/12 with mininal side effects.
First circle two times for one week during radiation, second circle stopped after the first week because of acute leucopenia.
First Taxol 1.5.11, once a week for 12 weeks, FAC once every 3 weeks from 3.30 - 6.1.11. Taxol made me feel like I was wearing a lead raincoat and concrete shoes. FAC was far more discouraging. Lots of digestive issues, couldn't eat, everything taste nasty. It was horrible.
March 19-23, 2012 and April 16-20, 2012: 4 days chemo (Fluorouracil and Mitomycin C)through chest port.
First round started on Dec 29th 2010: Xeloda pills, Oxaliplatin, and Avastin, with a shot of Neulasta the day after.Had two weeks off after each round, and I was thinking "this isn't so bad, I can do this" after the first treatment. No severe nausea, no vomiting, minimal hair thinning.
mytomicin at beginning and end of 6 weeks 96 hours of 5FU at beginning and end doses halved for second cycle because of bad reaction to 5FU
3 treatments every two weeks with neupogen shots after every treatment. White blood cross ave been a problem but my platelets are what concern me. They have continued to decline and are not rebounding back between treatments. other concerns which are minor but irritating is the coldness everywhere especially the throat, hands and feet. Fatigue is manageable now after 3 months. Metal tasting mouth and bad breath right after treatment ....yuk! Lack of appetite seems to occur during the treatment week but subsides the following week.
Nausea and fatigue. Hair thinning and loss due to mytomycin.
I do not remember all of the names. The chemo was a combination of four different chemo drugs. It did not work. My father experienced nausea and could not taste anything so lost his appetite. He also was very sensitive to temperature. We are still waiting to start a trial chemotherapy drug! Pray, pray, pray!
2 rounds, 96 hours each week 1 and week 5 during radiation of 5-FU. Mytomycin-C first round only. Hairloss, nausea, vomiting, 30 pounds of weight loss. Recurrence 2013- 4 rounds of Cisplatin with 46 hours of 5-FU with each round.
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