What Fluorouracil (5-FU) Cancer Survivors said about their Chemotherapies.
I had 5fu, Methotrexate and Cytoxan. I had the 5fu and Methotrexate in an IV push the first and second Tuesday of each month. The third week I took Cytoxan pills and rested the fouth week. This was for a total of six months.
six rounds of CMF three weeks apart. commenced in December 2005 and completed in March, 2006
Too many to mention-16 months in total(6,6,4) Every drug they have for colon cancer.
I wish I'd been told not to work during chemo. The side effects of the nausea medicine made me tired and made my skin itch. I wasn't in good spirits, which made others I work with uncomfortable. They felt bad that I had to be at work, and it was reflected in their behaviors towards me.
6 Treatments - 3 week cycle 3 - FEC 3 - Taxoteer Sept. 7, 2006 through Dec. 21, 2006
6-03--36 weeks of IV chemo therapy. Had problems with severe diarrah, nausa and fatigue 3 days out of 7. Slightly ill the rest of the days with same symtoms, but milder. 2007--doing much better on chemo therapy by adding alternitves. (read below) 12-07- oral Xeloda (chemo therapy). Take for 2 weeks straight 2 times a day, then one week off. Side effects are slight now that I take fermented wheat germ, green wheatgrass and mangoseed juice. The juice improved my energy level a lot! I think we are seeing some results from the fermented wheatgerm as we are now starting to see on my cat scans that things have kind of stopped. In the England Cancer Journal they have proved that fermented wheat germ can slow and sometime cure cancers. The mangoseed juice is made in Asia, this is the only place it grows. It is extremely high levels of antioxidants! Knock on wood I haven't been sick since I started it! I also only eat organic (as much as I can) I eat lot's of greens and fruits. I get protein from the grains and I also eat a lot of nuts. I have felt so much better since doing this it is unbelievable.. I have hand and foot syndrome that this chemo can cause..this can/is be very painful. Febuary 08-New treatments of folfox6, Avastin and 5FU--extreme fatigue-nausa-diarreha-controled by medications for the most part. Need to rest a lot.
I started chemo Sept 19,2006 minimal side effects I have had 20 treatments, and most people don`t realize I`m on chemo
Blood work and chest xray September 11, 2007 Bone scan September 17, 2007 Port installed in right chest area September 18, 2007. MUGA scan September 19, 2007 First Chemo treatment September 20, 2007 Neulasta shot September 21, 2007 Headaches and blurred vision Hospitalized September 25, 2007 Found blood clot in the jugular vein Started on lovenox and warfarin Hair fell out in huge clumps 2nd week after first chemo Second Chemo treatment October 11, 2007 Tiredness, constipation, nausea Changed nausea prescriptions twice Third Chemo treatment November 1, 2007 Potassium too low-put on prescription supplement Nose bleeds and bruising from warfarin, not chemo 2nd MUGA scan scheduled for November 26,2007 4th Chemo scheduled for November 29th
1991 and 1992 for breast cancer - I would get real tired but no real bad side effects. 2002 for my lungs - I lost all of my hair and nails and was hospitalized several times because of dehydration and other problems.
I had my 1st chemo treatment on 12/10/07. If cancer cells remain, they are microscopic and floating around in my body and being ZAPPED by chemo! I qualified for a trial and receive Erbitux (usually for metastatic cancer) every week (which causes acne). The nausea is gone for now, mouth sores are fading, and acne is blossoming. The Oxilaplatin will be decreased next time due to the mouth sores. It also causes Neuropathy.
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
5fu/leucovorin.Close to renal failure,changed to weekly infusions 5fu with fortnightly enhancement with levamisole. 48 weekly sessions.
Jan 22/08 *Just Started CAF (Cytoxan,Adriamycin,Fluorouracil-5-FU) dose dense - 2 week x 4 cycles. *Taxol + Herceptin for 6 to 8 months
6 treatments from March 3, 1994 to June 29, 1994. Started with Taxol Study. Received high-dose Cytoxan 3980 mg and Adriamycin 74.6 mg for 2 cycles. Except for the 1st and the last, blood transfusions were required after every treatment due to low hemoglobin. I developed a blood clot in my right arm shortly after the first blood transfusion in April and had to be hospitalized and put on coumadin for 3 months. Had to be taken off Taxol Study because I could not take high-dose Cytoxan/Adriamycin and Coumadin. I was given Cytoxan 995 mg, 5-FU 995 mg and Adriamycin 99.5 mg for the next 4 treatments. The Adriamycin damaged my heart muscle. Other side effects were nausea, some vomiting, sores in mouth, diarrhea, heartburn, fatigue and complete loss of all hair. 6 treatments from January 20, 2006, to June 2, 2006. I was given a CMF combination of 1200 mg of Cytoxan (Cyclophosphamide), 80 mg of Methotrexate and 1200 mg of Fluorouracil (5-FU). This bout with chemo was much easier than the first. I also had a blood clot in my lung in February, 2006, and was hospitalized for 7 days and put on coumadin for 18 months. Other side effects were minor nausea, fatigue, sore mouth, minor diarrhea and only thinning of my hair. I don't know which one but one of the chemo drugs damaged my right eye and I am still having problems with it. The worst thing to happen was the death of my husband and my boston terrier dog in May during this bout of chemo.
folfox + 5fu (dec 07-jan 08) folfiri + 5fu, avastin, cetuximab (jan 08-current)
started chemo on 12/11/07 clinical trial with avastin,erbitux,oxaliplatin,lecovorin,5FU..now irenotican
September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months.
9/07 for 5 months every 2-3 weeks.Fulfox, Five FU, evastin, oxalyplatin -Side affects were mild and temporary such has hair loss (complete on first round) mild neuropathy, Hand and food syndrome. Slight diarrhea but NO nasuea. Loss of appetite, loss of taste. 06/08 Second round of chemo (Irinotecan) more nausea but virtually no diarrhea. neuropathy has returned slightly. I can still taste things after 2 rounds of chemo this time.
Inj Dacotine 150mg * Biovorine 600mg & 5FU 4600mg in 1000ml NS continuous infusion in two days. Inj Perinorm 10mg IV thrice a day Inj.
11/06-oxaliplain,xeloda....tingling and cold sensitivity in hands and feet, fatigue 11/07-irinotecan, avastin, 5FU, diahrrea, fatigue, burning and cramping in abdomen started erbitux january 2010, adding irinotecan this week, sept 20, 2010...post-note that irinotecan caused so much diahrrhea I became too hydrated and wound up in hospital. i had a blockage too, but just sayin'! ;)
Started Chemotherapy on September 5, 2008; Taxotere, Carboplatin, and Herceptin - originally planned for 6 rounds (every three weeks). I completed 2 rounds and then my doctor stopped(my mass grew back). Side Effects - Nausea, diahrea, extreme fatigue, bone/joint pain, flu-like symptoms, hot flashes, numbing, weird taste in mouth, loss of appetite, hair loss I then did weekly Taxol and Herceptin started 10/17/08 for 6 weeks. Side effects included nausea, occasional diahrea, fatigue, muscle and joint pain, neuropathy, hot flashes. I started 5FU, Cytoxan, & Epirubicin on 12/02/08 (4 rounds every three week) while continuing with weekly Herceptin for 12 more weeks. Side effects - Nausea, vomiting, diarhea, hot flashes, mouth sore, fatigue, loss of appetite. I started Tykerb in Feb 2009. I will continue with Herceptin for at least 7 more months after surgery.
Started June 23, 2008. Oxaluplapin, Leucovorin and Flourouracil. Side effects are extreme weakness, lack of appetite, many foods don't taste good, can't touch, eat or drink anything cold--needles & pins in fingertips & toes, and throat closes up. Needles & pins, needles & pins, if I drink or eat anything cold, MY breathing troubles begin!! smile
Chemotherapy started 7/31/08. I feel as though I have had every nasty side effect. I have heard it is not that bad but I feel rotten throughout the entire cycle.
First & only dose: 09/05/08-5FU/Leucovorin/Oxaliplatin - side effects? fever, rash (?), edema, fatigue, neuropathy, dizziness, confusion (some); nausea, hand/foot - more, but can't remember them.
I had a port put in (after 4 tries which left me with considerable chest bruising, pain, and extra scars) and it it was accessed 4 days after insertion to begin my first chemo treatment. Pure 5FU. I did not lose my hair or get any mouth sores. I did feel like shit every day, I did lose my appetite completely, I did have stomachaches all the time, hot flashes, headaches, & extreme diarrhea or extreme constipation. Sept 8 - Oct 10 2008 Chemo #2 - Folfox (5FU/Oxalipatin) Feb 2 - March 3 Chemo #3 - unknown...beginning march 16
Mitomycin & Fluorouracil. Began on 7/28/08 with Mitomycin infusion done in office, 5FU infused over 96 hours by pump. Second cycle of the same began on 8/25/08. Side effects included nausea, fatigue, severe diarrhea, mouth sores, body aches, hair loss.
Rather not discuss
I started Chemo on December 19,2008. I had a port put in to administer the treatment. For my lifestyle the port makes most sence. Have the pump hooked up was a bit invastive, but I have great nurses who have a trementious amount to compassion and skill
first session 1/5/09 - infusion of 2 hrs for "Xelox" (Oxaliplatin) once every 3 weeks for 8 sessions. "Zeloda" (5-fluorouracil) pills twice a day for two weeks then a week of rest for 8 sessions. SIDE EFFECTS: arm pain (like bad sunburn), cold sensitivity, razor blade throat, first bite pain, diarrehea
My cocktail included Fluorouracil and Cisplatin.
f5u-dec/07 to june/08 side effects the works!! mouth sores,nausea,fatigue,on and on!
5 FU- Mitomycin...via port - 96 hour drip lots of side effects....transfusion at end still low white count from radiation and chemo
E-CMF from Nov 08 Half way through Side effects very mild
Lecovorin, Oxiaplatin causes extreme neuoropathy in the hands and feet, He does not have finger prints now. 5-FU causes nausea, makes the hands and fet worse and soooo tired, like having the flu everyday with intense stomach cramping. Can not concentrate, chemobrain I guess they call it. Three days of intense chemo, then sick pass out for hrs. can't do anything but lay down or sit, there is nothing to help ease this...
I started Folfox Chemotherapy in January 2009, every other week.
Starting a 5 day pump next week.
5FU: 5/18/09 to 5/21/09 and 6/15/09 to 6/18/09 Mitomycin once on 5/18 and once again on 6/15/09
June 23 to August 4. Two rounds of Mitomycin C and 5FU( I know why they call it that!!)......Fatigue, mouth sores, loss of all hair.
None that I can remember..oh yeah I can't remember. I find concentration & retention hard. Uh what was the question again??? (They say going through menopause can cause symptoms similar too), Uh Huh. Chemo brain fog.
Chemotherapy was administered through a PICC for 5 weeks during radiation. No major side effects other then extreme exhaustion. I took the chemo nurse advise and began taking anti-nausea pills before I felt any nausea so I was able to continue to work part time. I still believe I am still suffering from some lingering effects of the chemo as I have not been able to build up my stamina.
Carboplatin/Taxol, continuous 5FU drip March/April 2008 Taxotere July/August/September 2008 Cisplatin January/February 2009
I just had first treatment on 5/20/09, The symptoms of the first treatment for me were severe cold sensitivity for about 3 days, tiredness, sore hands and feet, achy legs, and stomach pains.
5-Fluorouracil and Mitomycin April 20, 2009 - April 24, 2009 May 18, 2009 - May 22, 2009 Side Effects; mouth sores, nausea, diarrhea, loss of appetite, weightloss
FOLFOX first cycle June 11 (infusion) and then the pump 46 hrs; some odd effects on swallowing, a little constipation, a little diarrhea, no food problems :)
5FU no side effects Avastin no side effects Oxi could not touch or drink anything cold.
5FU infusion for 96 hours the first and last week of radiation. Mitomycin the first day of radiation and the first day of the last week of radiation through a PICC line
4 cycles (1 wk on 3 wks off) Cisplatin for 6 hours on day one, sent home with 5FU med pump for 96 hours. Side effects- nausea, diahrrea, agitation, black nail beds, hair thinning/loss, dehydration, irratation, moodiness, list goes on and on.........
May 23rd 2007 started 6 sessions 3 x F.E.C 3 X Taxotere Ulcers in my mouth, sickness, diarrhoea, thrush, joint pain, loss of finger and toe nails, peeling skin on hands and feet,
24/7 pump 5fu.
* Jul 27/09: met with Oncologist * Aug 4/09: chemo (portable pump: 5-FU) for weeks 1 and 5 until Sep 15/09; Mitomycin day 1 only of weeks 1 and 5
I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU.
8-4-09 thru 8-7-09
high dose 1995
Very little after affects from the chemo other than slight nausea and some fatique. They had to cut the chemo treatments short in order to focus on the radiation treatments. Had a port-a-cath installed for future chemo treatments.
Finished Chemo, October 2006. First go around lost most of my hair, and had the worst mouth sores the nurses had ever seen. Second time sat next to a woman, told her of my mouth problems. She told me to drink a beer with lots of ice after treatment..it worked.
June - August 2005: Side effects - Nausea; tunnel vision; fatigue; dry hands and feet; upset stomach; hair thinned; skin burned easily in the sun.
severe dehydration, potassium def. diarrhea
24-7 pump all week (except weekends) for 5 weeks (3rd week)
2 cycles of 5-FU, FOLFOX for tumor, R-CHOP for B-Cell and now 6 cycles of FOL-FIRI
dec 06/jan 07; sores in mouth; diarrhea; pneumonia; hospitalized for 5 weeks
lot my ability to program...dont think like i used to..
Mitomycin and 5-FU. 75% of standard Mito dose on 1/4 due to elevated creatinine levels. Standard 5-FU dose over 5 days through chest portacath.
Mitomycin and 5-FU on continuous drip using a PICC line. 4 day drip week 1, and second 4 day drip week 5. Scheduled to begin 11/9/09. First chemo round gave me terrible mouth sores and I was extremely dehydrated, to the point of needing hospitalization. 2nd chemo round went better due to daily scheduled "hydration" sessions at oncology. No dehydration or mouth sores, but I am extremely fatigued and all my blood counts are VERY low.
Started October 28, 2009 5FU 24/7
Pill form. Xeloda, 1800mil daily.
scheduled for Jan 4, 2010
Completed FOLFOX 6 and 5-FU on March 8, 2010!!! Nausea Vomiting Diarrhea Constipation Late February through end of March 2009. Chemo and radiation May/June 2009. Chemo only started final set of treatment in September 2009 and currently in chemo treatments until March 2010. Nausea, diarrhea, fatigue, crashing of white and red blood counts during each set of chemos. yeast infections, and healing problems with surgical site from September 22, 2008.
Leucovorin, Oxaliplatin, 5-Flourouracil. Started September 19, 2009 for 12 bi-weekly infusions. Can't taste anything, eating or drinking anything cold makes me want to puke, cold air makes my throat close and I can't breath, pins and needles in hand, feet and any part of my body that gets cool, nausea, vomiting, diarrhea, constipation, cramping, headaches, major fatigue, depression.
First round August 3-7, second round August 31-Sept 4. Chemo effects snuck up on me. At first I felt like a brat because I felt fine and no one else at Kamp Kemo felt fine at all, and then it took me down. Nausea, constipation as a result of an anti-nausea med, diarrhea, exhaustion, loss of taste--food had texture and no flavor at all, and the texture was mostly slimy. I used salad dressing in an attempt to taste something, and ended up with slime, chicken salad--slime. And such a sore mouth, I felt like I had to fight to get a prescription for Dr. Casey's Mouth Solution, a lidocaine swish & spit, and it helped tremendously. Also low blood counts, needed a couple blood & platelet transfusions.
Had 3 different types of chemo, 24 hours per day for 7 days. Side effects. Loss of hair, none that I can really speak of.
Started chemo Mitomycin and 5-FU on December 28, 2009 after having a Power Port placed in my chest.
Mitomycin and 5 FU beginning 1/18/10
start chemo on Jan 12 and then again on Feb 9th
weeks 1 & 5 Day 1 Mitomycin-C 10mg + 5FU 1000mg pump x 48hrs wk 1: bleeding gums, low wbc, anaemia, tiredness wk 5: nausea, low wbc, anaemia, onset of abdominal cramping, extreme fatigue hair-thinning, fatigue
10/12/09 - 11/13/09. Portable pump 5 days a week/24 hours a day. 5FU Push & pump. Every other week I had a bag of Oxaliplatin (total of 3 bags). I became gradually more tired as the treatment progressed & had a constanst feeling of nausea but Promethazine worked like a charm so I was able to eat pretty well thru out treatment. I had no hair loss. The weeks I received the Oxaliplatin my hands/feet became sensitive the cold but those symptons would subside as the week went by.
01-04-10 began chemotheraphy treatment. Mytomycin infused through port at onocologist's office. Went home with an infusion pump of 5-FU (Fluorouracil) that lasted 4 1/2 days.
Folfox with avastin. for 6 months. with lots of side effects (the worst was vomiting and neuropathy). After liver resection Folfuri(nausea, lethargy,confusion ect.) after the second recurrence and percutaneous ablation I had Cetuximab with Irenotecan with a horrible acne type rash
12/7-10. Not too sick alot of mouth sores and counts were drastically low hospitalized 12/15 with new oncologist
Mitomycin C and 5FU infused for 96 hours (4 days) during week one and week 5 of radiation
Two rounds of chemotherapy in December '09 and January '10. Received Mytomycin at the onc office and received 5-FU using a pump on a picc line for 96 hours each round. Side effects: nausea, fatigue, loss of appetite/weight loss, some hair loss, and some vomitting during and following the second round of chemo.
5FU Portable Pump
pump for 5 days aweek for 6 weeks then 2 days every 2week for 6 sessions
5FY and cisplatin
Started in July 2009 was suppose to have every 2 weeks, but blood count went down so had to push out either 3 or 4 weeks. I hurt from my head to my toes the week of chemo, and then after that started gradually getting better. Neuropothy in hands and feet. Should go away eventually. Finished chemo Feb. 11, 2010.
Xeloda, taken during my radiation treatment (adjunct therapy) Started Folfox the last week of June 2010
1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss) 2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment. 2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course 2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course.
Pre-surgery: Xeloda, oral chemo 28 days // Post-surgery: Folfox, infused through port in clinic, followed by 2 days of home infusion pump // Avastin also added // Folfiri for another 12 treatments started in May 2011 // back to Folfox for 3 mos// now to Irinotecan and Erbitux March 2012 / Xeloda June 2012 // Stivarga Dec 2012
FOLFIRI w/ Avastin 4/2009 - 11/2009, FOLFOX 12/2009-2/2010 Nausea and fatique
February - June 2009 Taxotere Cisplaten 5FU
6-500 mg per day that I have radiation. Xeloda. Some nausea, light headedness, jitters, diarrhea,
Carboplatin 08/06/2010. Mild Fatigue. Carboplatin 08/26/2010. Radiation recall. Carboplatin 09/16/2010. Neck is tightening due to radiation recall. Alimta erbitux Low Platelet 10/07/2010 Carboplatin, Taxotere,5FU 01/2011 n 02/2011.
Started Jan 4th, Mitomycin and 5FU again at 5th week
2/1/2010-3/11/2010 F5U pump 24/7 5 day/week, combined with the radiation, tiring. 7/23/2010 start, 12 treatments every 2 weeks. 5-FU, Eloxatin,leucovorin calcium; side effects - inconsistent energy, more emotional 2/2012 FOLFIRI; side effects diarrhea alternated with constipation, hemorrhoids, nausea, Tired
5-FU, and Eloxatin
9/97-12/97, 5-FU & Mitomycin. Side effects: Loss of appetite, some mouth sores, dry mouth, swollen tongue (once), loss of taste buds.
Protocol: FEC-T (4 months/every 3 weeks) FEC-T :Epirubicin/Fluorouracil/Cyclophosphamide cycles 1-3, then add Docetaxel for cycles 4-6 Finished chemo November 24/2010
Cisplatin and 5Fu daily for 5 days then 2 week break for 6 months low blood counts, nausea, fatigue etc. Hospitalized several times for low blood counts and infections. 12 weekly infusions of taxol, low blood counts, nausea, fatigue, neuropathy. Completed 3 of 4 A/C infusions hospitalized every time for low cell counts.
June 28 - July 4. A single 1 hour mitomycin pump followed by 4 24/7 fluorouracil pump. I like to think that I got extremely lucky with side effects. I was seriously constipated the first 4 days and put on 8 pounds in the first 48 hours. The only other side effect to this point is incredibly red blotchy skin on the face, neck and chest. I can only hope that round 2 goes as smoothly. July 27 - August 1. Intended to be the same as week 1. The mitomycin was put on hold until my platelet levels got back to normal, but we got it done. 4 bags of fluorouracil. Again, I was extremely lucky with side effects. None to speak of really and this time I didn't get the red blotchy skin on the face, neck and chest.