What Breast Cancer Survivors said about their Chemotherapies.
I have had 5FU, Adriamiacin, Taxol, Taxotere, Navalbine, Xeloda, Gemzar, Carboplatin, Abraxane
I had Cytozen(I remember it burning badly)I had three months of chemo before surgery, and three months after surgery, total of six months,side effects nausea, fatigue, mouth sores hair loss
phase 1 - A/C, phase 2 - Pacletaxol with Herceptin, phase 3 radiation, phase 4 - continuation of Herceptin for full 52 weeks. Daily injections of Luekine then Neupogen. side effects - neuropathy (still), hair loss, lost sense of taste, constipation, diarhea, bone pain, nausea, vomiting. chest pain (hate muga scans!)blood transfusions due to low counts
Starting September 2nd - pretty clueless outside of that.
from Aug to Dec nausa and tired and the hot flashes are unbearable
2000 - Chemotherapy
I've taken chemo for 3 years now, many kinds of chemo, my "favorite" is Xeloda.
AC first 2 months tolerated well. Didn't miss any days at work. Had more problems tolerating taxol. Missed a lot of time at work.
Six rounds. Finished in April 2010.
I had every side effect in the book! You name it I had it! Gained 20 pounds on the steroids.
Chemo started 1/2. Four treatments with the last one being 3/10. Severe allergic reaction to the Taxol landed me in the hospital in February after the second treatment. Had to stop Taxol and go on adriamycin instead with fewer side effects.
December 1, 2010 will be my fourth round and then I will change to weekly Taxol. I have been fortunate in that I only feel badly for 4-5 days then I am back to doing what I need to, bald head and all. (Anyone with Taxol therapy could help me with details on this.)
Taxotere..Dec 2006-Apr2007. All the usual, numbness in fingers and toes, no taste, no appetite, constipation. The bone pain was the pits.
AC followed by Taxol total 24 weeks beginning Oct 2009 Became very neutropenic (low white blood cells) A couple of mouth sores
4 cycles starting 7-24-2014
I just finished 4 rounds of A/C chemo treatments. Fatigue and infection was my worst enemy. First chemo treatment, I was in the hospital with pneumonia and neutrepedic. Very sick. I can only say I am glad its over. Now I am getting a port and will start Taxol next week.
December 2000 every 3 weeks for 6 months nauseus, hair loss, headaches etc. December 2007 every week, then every 3 weeks for 16 months nauseus, hair loss, nuropathy, headaches, etc
Jan. 21st 2010 last 2 coming up. 1st 4 treatments made me very nausaus and tired. The 1st 2 of this cycle just sick for 2 days then just tired.
June-October 2010, fatigue, wt gain, menopause
Every three weeks after first diagnosis (Nov. 2009) until "remission". Every two weeks after recurrence (Nov. 2011). Food tastes chemically. According to test results my wife unknowingly suffered a minor heart attack in 2012 (I believe due to long term use of Herceptin in her chemo sessions)
Oral chemo twice a day, administerd first in January of this year, two weeks on and one week off then back to hospital for blood test and back we go again. Chemo has been reduced as my system is not strong enough to take the original dose now.
Adriamycin/Cytoxan each 2 weeks for two months, then abaxane weekly for 12 weeks. Radiation follows with 35 treatments.
took Docetaxol (Taxotere) after FEC - finished chemo July 22
Will have 4 rounds of chemo for preventative reasons. Taxotere & Cytoxan. Had my first dose 2 weeks ago. No nausea, just fatigue, some diarrhea. Thought I'd keep my hair until the next dose, but it just started falling out today.
What Prostate Cancer Survivors said about their Chemotherapies.
RChop -six treatments, two weeks apart in Spring 2007.
taxater, didnt do anything,6 treatments, mitotaxatrine, still on it, barely any side effects due to the vit c drips
What Lung Cancer Survivors said about their Chemotherapies.
6 weeks, 3 weeks apart
Start Chemo May 18th 2007 Cisplaton and Etoposide
Chemo also started on 10/10/07 and its once a month for 3 days in a row.
Chemotherapy 12/09 to 2/10- loss of hair, weight, blood clot, fatigue, low white blood cell count and nausea neuropathy in finger and toes. 6/10 to 1/11 same symptoms as previously noted except for no blood clots.
will start on march 16 (tentative)
1st series Aug'07 to Dec - 6 infusions - Carboplatin, Taxol and Avastin. Side effects, loss of all hair, fatigue, weight loss. 2nd series, 7 infusions - Sept '08 to Apr '09 - same coctail as above
3 days chemo every 21 days. Hydration as needed. Tiredness and nausea/vomiting at times.
8 total cycles...6 while undergoing radiation (reduced rate) followed by 2 of triple dose after radiation.
starting the 2nd week of August 2013
Taxol and Carboplatin every 3 weeks for a total of 4-6 treatments. Have had 2. Nausea, fatigue, aches and pain in whole body. Also DVT.
Feb 08-Cisplatin/Etoposide- hideous vomiting diarreah Switched chemo drugs AND Hospital -April08-carbo/taxol/avastin. Tolerated well. Neulasta. Bone pain
December 6th, 2010 was first Chemo treatment... my mother is doing good..not neauseous, joint and leg pain, Hair started to hurt two weeks after first chemo treatment. Still playing golf...not eating much... get tired easily...gets cold easy
I had my port-A-cath placement on November 9, 2010 for six cycles of Carbo/Alimta. The port-A-cath hurts just on its own, but chemo sucks, sucks, sucks! I cant say anything nice about chemo, other than hopefully it is killing those cancer cells! After each treatment I have extreme fatigue and appetite loss for 4-5 days following. My hair started falling out after the second cycle, which doesn't bother me compared to the fatigue. I hate not helping out around the house, or missing out on family time because all I want to do is sleep. My blood counts are also very low so the doctors and nurses check them every week, and they also check my kidney function. I'm on medicine for my anemia which helps a little with my fatigue. My kidneys should hang in there- I guess it paid off living a healthy life.
Carbo/Alimta 07.2008 Carbo/Taxol - Got taken off Avastin after pulmonary embolism. (nausea, vomiting, fatigue) 02.2009 Carbo/Alimta - Developed allergy to Taxol. (anemia, fatigue) Radiation therapy.
carbo/taxol only effect has been being tired!! Verty low white cell counts, had to receive one transfusion, other wise has handled it well.
Four treatments, most recent on 4 August, #5 scheduled for 25 August. Side Effects - minor nausea, extreme fatigue, loss of appetite and sense of taste and smell. carboplatin and Alimta (pemetrexed)for #'s 1-4. Provider stopped shipments of carboplatin so #5 and any remaining will be only the Alimta.
I begin chemotherapy on the April 8th. 4 rounds of 3 weeks each of Vinorelbine and Carboplatin. (Originally Cistoplatin but the doctor changed it cuz my ears were ringing)Worst side effects are feeling like lead and/or rubber, forgetfulness, weight gain, insomnia and aching bones, muscle and skin.
2/26/08to 5/28/08 - 6 cycles Taxol, carboplatin and Avastin for lung ca. Hair loss and peripheral neuropathy - some fatigue.
Chemotherapy started on March 1st
2007 April til present so far 5 rounds Taxotere Carboplatin Avastin Emend for nausea Aranesp for red blood Neulasta for white blood etc.....
Taxol, Carbo, Avastin (pain, nausea and vomiting, fatigue, confusion). Zofran was the BEST anti-nausea drug and I tried them all. Broken pelvic bone, NEUROPATHY (very bad so I am on an anti-seizure drug to control it). Tarceva, Alimptor...
Avastin-2008 and 2011, Cisplastin-2009 and 2011, and Tarceva-2011.
None to date - The surgeon and oncologist felt that I should wait before starting chemo or radiation and be on the anti-fungal medication, indicating at least a year, to see if once the infection was gone, the remaining spots in my lungs would be gone. In January of 2010, I lost my job, medical insurance and the financial ability to continue the meds. I've recovered enough to find work and have been there long enough to receive medical insurance...now to find the courage to return to the doctor and take up where we left off, uhhh less the pre-existing conditions...to be continued...
What Bladder Cancer Survivors said about their Chemotherapies.
Foggy brain. Forgetfulness.
What Non-Hodgkin Lymphoma Cancer Survivors said about their Chemotherapies.
R-Chop 21. 28th Sept '10, Feeling sick ++++. Horrible day, nothing to eat,absolutley crap.So physically and mentally exhausted. 19th Oct '10. Hair starting to fallout. So depressing 9th Nov '10. Felt so sick, again so drained, I couldn't get out of bed. 30th Nov'10. tired and sick. 21st Dec '10. Sickness gets me again. 11thJan '11.Felt bloody crap, sick, dizzy and very tired. There is no point in denying its easy, although it does effect people in different ways and you dont necessarily have all the side effects
Rchop ---Lost of hair-tired-cold
Currently on third round of six rchop treatments. Fatigue and constipation.
Start R-Chop on July 23,2013.
I'm on my fourth treatment of chemo so when I get doen with the six, they'll start me on radiation
R-Dhop 6 weeks. Every 21 days. Followed by Neulasta shot in stomach day after chemo. For those of you who have to have it. It hurts. It's not the needle it's the white blood cells going into your body. Burns badly. So, put ice pack on stomach before getting the shot. You'll thank me a million times. :) Had a picc line in upper right arm, leading a tube to my heart. Strong chemo. But, with all the other meds they put in it. I NEVER got sick. Everyone around me couldn't believe I had cancer. This is the last week before final treatment. Now body has said..."time to be fatigued." :)
R-CHOP, 4 cycles, side effects: nausea, fatigue
r-chop 21 6 rounds every 21 days from 16th march 2010,feeling sick,tiredness,i bit high on the steriods for 5 days after each chemo,urinating more frequently,dry mouth,food tasting bland,loosing hair,compleatly,eyelids swelling and watering,fingernails going dark,shall I go on.
R-CHOP every 3 weeks for 6 cycles
RCHOPx6 started on 2/21/14 Some nausa and loss of appetite shortly after infusion, Some numbness in fingers after 4th infusion. Taste buds don't work for a few days after infusion
Rituxan/Bendamustine (Summer 2010) - very little except fatigue. R-CHOP (summer 2011) - nausea, fatigue, hair loss
4/2007-7/2007: 6 cycyles of EPOCH (Etoposide, doxorubicin, cincristine, prednisone, and cycolophosphamide). Side effects include hair loss, nausea, diahrrea, neutropenia, weight loss, mouth sores, and more
R-chop 2005 breezed through it Rituxin 2007-2008 easy and effective Bexxar 2009 put me in ICU for 4 days but did well for years remission Bendamustine 2010 very easy and mild did very well but didn't last in remission very long R-ICE 2011 I had a transformation to large B-cell the treatment wasnvery very hard put me in the hospital isolated for 5 days with low blood counts needed transfusion of platelet and red blood I was in remission for 4 months only now it's back :( I'm going for R-GMOX now followed by SCT
2004.-I received quimo scheme CHOP (ciclosfamida -Vincristina -Adriamicina - Prednisona. 2006.- 2nd. line of quimo. with scheme ESHAP: Etoposido - Platino - Ara-C-Dexametasona
Several months of CHOP+Bleo. Got very bloated from Prednazone. Total body baldness, of course. My skin actually got quite beautiful and baby smooth. Toenails fell off. Heart and lung damage from Bleo. My mouth and throat were scarred by sores and from vomiting. Kidneys have been very vulnerable ever since. (Just want to add, I HAVE NO COMPLAINTS ABOUT ANY OF THIS. I lived! It was worth it.)
Chop 2002 Cop with Rituxan 2008. Hair loss, numbness (not bad this time), fatigue, insomnia from Prednosone.
R-Chop commencing Friday 18th February 2011. 6 rounds every 3 weeks. Side effects (in order of severity): Changes in taste and smell, constipation, fatigue, acid reflux, mouth ulcers, nausea, headaches, painful veins.
R-CHOP starts 8/26/10 Major Side Effects Day 1-3 Headache and Diarrhea Mouth Sores Days 3-6
R-CHOP14 to start on September 13 for six cycles.
RCHOP 21. Three rounds total. 11/2/0, 11/23/10, and 12/14/10. Worst effects so far: heartburn to point of esophageal spasms, constipation, headache, mouth tenderness and dryness, fatigue and hair loss.
RCHOP every two weeks. 6 times in total. Side effects were fatigue, nausea, complete loss of hair, dry mouth, weight gain, joint pain, weakening of bone density, etc....
8/6/2010 RCHOP - no major side effects with first treatment.
What Melanomas of the Skin Cancer Survivors said about their Chemotherapies.
Fluorouracil treatment started Sept 2010 Fluorouracil treatment started Aug. 2011
Taxol, a pain in arm and in the Ass.
What Kidney Cancer Survivors said about their Chemotherapies.
no treatment yet?
Afinitor (everolimus) tablets daily, started on March 17, 2011
Sutent (7/20/12 - 8/31/12), weight loss, skin rash, severe nausea, vomiting, diarrhea, gas, dry mouth, and overall misery. Switched to Torisel (9/8/12 - 10/13/12), fatigue, nausea, skin rash, itchiness, headache, constipation, heart racing. Switched to Votrient (10/27/12 - 12/21/12) muscle pain, increased BP, nausea, vomiting, taste changes, fatigue, myelosupression, stomach cramps, lack of appetite Zometa (present) nausea, vomiting, bone pain, fever Switched to Inlyta (12/22/12 - August 2013) Gemcitabine and Sutent (8/11/13 - Present)
4 months, Oct. 2010-Feb. 2011 Avastin and Interferon
My husband was on a trial for a new chamo for renal cancer called "Sutent". He made no progess and instead suffered significant side effects that we believe plunged him into a spiral of ever increasing side effects of his cancer.
On my third treatment and then will have a week off
50mg sunitinib/sutent on a 28/14 cycle. I've had minimal side effects, but I just finished my first four weeks "on".
As of 8/3/11 on second cycle of Sutent, 28 on 14 off
Did Xeloda and Gemcitabine with no results
What Pancreas Cancer Survivors said about their Chemotherapies.
Folfox mix of chemotherapy -nausea, vomiting, diahhrea , nil taste I food, shaking, mouth ulcers, dry skin
Pill form chemo winter 2009...threw up at end of each round
He had 7 types of Chemo I am not good with names, and he had two chemo embolization in which one nearly killed him because he got an abcess in his liver and it developed Sepsis back in 2007
Start date November 14 th chemo drug called Folfirinox 8 weeks every other week to try and shrink tumor away from artery
given up on dates the first time on chemo was 7 months and this time has been 9 months
Gemzar started Jan 2014. Once a week for three weeks then one week off for six rounds; liver function elevated and dehydration, fatigue , vision affected .
started chemo 6/14. 18 treatments prescribed, currently going through chemo.
5-Fluorouracil (5-FU) My sister gets chemo every other week. Her main side effect is diarrhea. She has had 3 chemo fusions so far. She has diabetes and the chemo she receives has glucose in it so when she receives the chemo her blood sugar level goes sky high and she gets severe headaches. She then takes additional insulin following the chemo to help bring down the sugar levels. I am amazed at the medications that help her symptoms. When told she was going to have "bone pain" after a shot to boost her platelet count, she was told to take "Claritin".
1st session, September 20th. Once a week for 3 weeks then 1 week off. October 25th, white blood cell count was down for the 1st time, so they skipped chemo for that week. November 1, 2012, white blood cell count back up so they did chemo. December 2012 started 5 FU, Oxaliplatin and Leucovorin every 3 weeks to target the abdominal lining tumors that are continuing to grow. April 19, 2013, CT shows the chemo isn't working on the abdominal lining tumors, and they have given him the best chemo treatments they have, nothing more they can do. But will reduce the chemo he has been on to reduce painful sores in his mouth and side effects that were getting worse with each treatment, I think to keep the liver and pancreas tumors at bay and hopefully still give him pain relief.
June 2012-October 2012; Reported Lethargy, nausea, changes in taste, neuropathy in fingers, weight loss.
March 22(3 types of chemo) i feel it lessened his quality of life, but for my dad he needed to fight back!!!
Gemzar weekly for two weeks and week off.
I do not remember all of the names. The chemo was a combination of four different chemo drugs. It did not work. My father experienced nausea and could not taste anything so lost his appetite. He also was very sensitive to temperature. We are still waiting to start a trial chemotherapy drug! Pray, pray, pray!
Gemzar, Taxotere and Xeloda
Gemzar Jan 2008-May 2008 Sept 2009- Oct 2010
Folfirinox Jan 2013 - Feb 2013, switched to Abraxane and Gemcitabine March 2013-current
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again.
More harm than good; no chemo
6/2011 tiredness, nausea, dizziness
Chemo #1 on 4/02/10: I was more tired then usual and had a "blah" moment after going outside for a few minutes.
Chemo once a week from 4/2/10 to 6/01/10: Was tired the next day with small "blah" moments.
Gemazar.... So far, nausea and weakness
will be starting after Christmas
What Oral Cancer Survivors said about their Chemotherapies.
2 cisplatin 3/22/2011: nausea! and fatigue!
1st and 4th week of Radiotherapy treatment, chemotherapy was also performed. 24 x 5 delivery of 5FU with a Cisplatin infusion on second day of each of these weeks. Side effects included a 'Chemo crash' both weeks I had the treatment - second week worse than the first (required blood transfusions).
Cisplatoin 1x week for 7 weeks Dates: Aug 2011 through Nove 2011 Side Effects include; Nausea Hair loss from both radiation and chemotherapy Eyesight has deteriorated a little weak
3 total - week one - week three and week five easy to do - no issues during treatment lost my beard and hair - so I shaved it short to look like I did it on purpose - wore a crocheted cap - head was always cold.
What Ovarian Cancer Survivors said about their Chemotherapies.
1. Chemo Sept- Oct.2010 2. Chemo Nov - dec. 2010 currently ip chemo
bleomycin/etoposide/cisplatin Started 1/09 Hair loss, nausea, loss of energy
One treatment so far on 3/23. Side effects for two days included exhaustion beyond sleepiness, nausea and depression. I'm so glad it only lasted 2 days! Constipation and painful bowel movements.
4 months of chemo. Made me achy like having the flu but much worse especially in my legs, naseous, food tasted bad, water tasted bad, low energy.
Mar.2007-taxol & carboplantinum (8 treatments) July 2008-taxol & carboplantinum (7 treatments) The first 2 rounds left me weak, loss of hair, nausea and vomiting Oct 2009-Doxil for six months. Side effects not so bad
taxol and platins - 9 treatments completed 4/1/10 (3 of which included IP cisplatin)
Taxol+Carbo every 3 weeks, Taxol every week. Started March 2010. Hair loss, feeling tired.
Taxol and Carboplatin - 6 rounds beginning August 2010. Side effects included body/joint pains/aches, loss of hair, itchy skin, constipation, headaches.
IP chemo. Taxol and Cisplatin. She has suffered from the following effects: fatigue, nausea, heart burn, pain in her lower abdomen, numbness/tingling in her hands, legs, feet and "chemo brain"
Had 2 courses of CarboPlatin and Taxol via vascualr Port; followed by 4 courses of IP chemo with Cisplatin and Taxol, one course every 3 weeks, requiring 3 days in hospital each time. Could only tolerate 4 courses because side effects were too severe: nausea, vomiting, constipation and diarrhea, ototoxicity resulting in some permanent hearing loss in left ear and also tinitus, tingling, numbness and pain in hands and feet (apparently permanent), and "chemo brain" - no short term memory, fogginess, confusion, and exhaustion. Serious loss of weight as well. Last 2 courses of chemo were via vascular port and the same as the first 2, and were tolerated fairly well.
Paclitaxel(Taxol)/Carboplatin(Paraplatin) combination, intravenous, 4 treatments total, 3 weeks apart. My first treatment was Oct. 17th. The side effects weren't been too horrible. Days 3-6 I felt really bad, but I never vomited! I just felt VERY weak, and VERY sick. I was so pale I scared myself in the mirror, and sometimes I felt so bad I couldn't even talk. I had HORRIBLE constipation like never before, and I still have heartburn, which I never got before.
July 2011 started with carboplatin and taxol (7 rounds in all). Reaction to the decadron had some nausea at the beginning sol they tweaked it with emend, sore muscles and joints day 4,5,6,7 after chemo usually spent in bed. and spent the rest of the time getting semi normal before the next round Stopped in Sept until december 2011 during which i had surgery last treatment january 20 2012
Bleomycin, Cisplatin, Etoposide for six months. Nausea and blood loss.
Taxol sucks!!!!! makes your hair fall out and makes breathing really difficult until i go into an anxiety attack. I dont like taxol
Carbo and Taxol 6 rounds. Loss all my hair, even my nose hair, eyebrows, everything. Weak, muscle and nerve pains, anemia
First Chemotherapy was Monday, March 29, 2010 - The only medical side effect was a very red face in reaction to the steroid in one of the preparatory drugs. Main side effect was pronounced "blues". Mom stayed on the couch for three days and ate very little.
I was aiming for Thursday (Day 22) and I just managed it by having the port (Yoda) installed on Day 21. Hurray! Scheduled for 6 rounds of carboplatin and taxol - 3 weeks apart. Thursdays worked out great - there all day (7 hours) for infusion with the world's greatest chemo nurses; worked on Fridays (felt fine); okay for 1/2 day on Saturdays... then YUCKY from Saturday afternoon until Sunday night (tired, tummy troubles, etc.) I did not get constipated as many of my fellow survivors complained of...for me, it was important to be very close to the bathroom on that weekend following chemo! Fortunately no nausea. Fine to go back to work on Monday. This lasted throughout my chemo, so I was truly blessed. Right on time at the 10 day mark, I started shedding like a Golden Retriever and immediately shaved my head. It felt so-o-o-o good to get rid of that hair. I wore a wig one time when I returned to work and ended up tossing it on my desk! Stuck to hats after that when my head felt cold. Chemo ended in September, 2012. Officially NED and in remission in October, 2012. Currently maintaining status quo..May, 2014. Yoda (my Bard Power Port) was removed on 05/09/14, exactly 2 years from my initial cancer surgery.
march-june 08: 6 taxotere/carboplatin november-april 09: 6 taxol/carboplatin oktober-? 09: started caelyx/carboplatin every side affect you can imagine
Carbo/taxol Doxil Carbo/Taxol Topotecan Gemzar and experimental drug Taxotere and Avastin
no chemo at all
Taxol and Carbo, every 3 weeks for 6 times, next (3rd) will be April 29. First three hours of administering drugs, agnonizing dizziness due to high dose of Benadrly to combat first few hours of chemo drugs. Next two days seem ok, with a false sense of energy, then day four through 8 no desire to drink, get dehydrated, can't stand or something strenuous for long periods of time, physically weak and tired always. Tiredness especially never is gone.
Taxol/Carbo every 3 weeks. At 2nd round, Avastin was added to the mix & will receive for round 3 & 4 as well.
Carbo/Taxol 4 treatments (didn't work) Then Doxil and a Trial Drug EC145 4 treatments (didn't work) Then Trial with Perisofone and Taxotere 3 treatments (again didn't work) Avstin and Cytoxan. Trial with Avastin/Torisel. I'm exhausted just typing all of this.
10 rounds of chemo in 2004, hair loss weakness, nausea, you know the drill. 6 rounds of chemo in 2008, same effects
I had to take 6 Chemotherapies, 3 pre surgery and 3 post surgery, five days each!
What Thyroid Cancer Survivors said about their Chemotherapies.
HAD 7 TREATMENTS ONE A WEEK FOR 7 WEEKS SIDE EFFECTS WAS MINIMUM DID NOT LOOSE HAIR JUST WEAKNESS OR LARTHARGIC MOOD ...
Radioactive Iodine treatment, 8/09 - nausea
Thyrogen injection #1: 4/14/10 - stings #2 - didn't feel a thing RAI-131: 4/16/10 - 203.9 units - so far, so good.
What Stomach Cancer Survivors said about their Chemotherapies.
Currently receiving- feeling bla- fatiqued- diarrhea
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
4 months...not helping
Began chemo in July of '09 with camptosar, leucovrin, and 5-fu. this is over a 46 hour period. In January '10, they added avastin and zometa to the regimin and is ongoing.
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.
3/15/14 Began 10 session clinical trial at Memorial Sloan Kettering. Chemo iv (cisplatin and epirubicin + trial drug/placebo) every 3 weeks. 2000mg Xeloda pills daily. IV chemo is followed by two days of dextametazone (steroid pills) which give me a boost. Hair loss, dry hands - currently trying to prevent them from cracking, some fatigue. Trying to avoid pain meds because that seems to be the cause of constipation/discomfort.
No help says' the doctor.
What Brain Cancer Survivors said about their Chemotherapies.
Radiation & Temodar daily for 42 days then cycles of 5 days on 23 days off
7/08-1/09: I took pills for 5 days each month. The first month was fine. I thought, "this is going to be e-z." Boy, I wrong! After that month, it was horrible!
temodar 42 straight days
Undergoing chemotherapy in Chennai, India. Started on July 12, 2009. Total 12 doses. Hair loss, vomiting, fatigue, loss of appetite, etc
Began 150mg Temodar on 1/3/2011 2nd Dose of Chemo to begin 3/17/2011
Started Temodar on 11-23-09 380mg to much dosage, went to Hospital for low platelets 12-18-09 My platelets were at 6K !!!
none so far hopefully she will start soon
Start chemo 9/12/11 Temador
Dibromudocital, CCNU, 6-thioguanine, Vincristine
Started temodar on November 9, 2011 140mg a day for 6 weeks - there has not been much happen in terms of side affects yet, some nausea
Scheduled for first time chemo (Temodar) in July 2011
I had oral chemotherapy. I started taking it when I started my radiation therapy. I finished my chemo in October 2011. I took it every night 21 out of 28 days. I had to wait 2-3 hrs after eating to take it and another hour after taking it to eat or take my other medications. (I took Zofran, a nausea medicine, half an hour before my chemo.) One positive is it broke my late night snacking. My chemo has random side effects and the possible side effects ranged from one thing to the opposite. For example, it could cause constipation or diarrhea. I didn't read all the possiblities until I was almost finished taking it. That explained why I cried so easily. It was a side effect not just stress from dealing with cancer.
Mom had Temodar - just fatigue. Dad tried chemo (IV) - and wound up nearly dying from it. Placed in hospital twice and determined his body just could not handle it.
Temodor- 5 days on, 21 off- October 2009- June 2010 Avastin- Every 15 days- July 2010- Present Carboplatin- Every 30 days- July 2010- Present
Temodal - started Aug 15, 2011
Timodar Started in March 2006 and still ongoing. Side Effects: NAUSEA!
temador nightly before bed. also on a target therapy trial of avastin which was researched at duke hosptiol
Temodar - hair loss - tired.
Temodar 160 mg nightly began July 21, and continued during radiation treatments. Chris had to take Zofran with the Temodar, so he didn't get nauseous. He will finish the chemo up the chemo September 2, 2013. He will get 4 weeks off, and begin taking a double dose of the Temodar for the first five days of every month for the next six months.
Taking a Temodar pill for 2 months.more fatigue, and sickness.
1/12/12 - begin taking daily chemo pill Temador (not sure how to spell that) for up to 12 months.
Nothing early on with the low dose, extreme fatigue with the high dose/ On his 4th round, sleeps 15 hours or more a day. Little appetite. Has been nauseated on and off.
Tremador - First set - daily dose for 3 weeks Not able to continue to the next set. Nausea, weakness, loss of appetite, Sleeping constantly
Temodar, 150 mg during radiation increased to 350 5 days/month for 3 months, then increased to 450/month at present Side effects: fatigue
What Multiple Myeloma Cancer Survivors said about their Chemotherapies.
Velcade and Dexamethason from September 2010 to December 2010. Aredia once a month since October 2010. The biggest problem is weakness and dizziness, I fell twice since I was dizzy and weak.
January 2006 and May 2006 stem cell transplants with hi dose malthalon chemo resulting in malthalon misery - tired and more tired.
Velcade, Decadron, Revlemid. Mostly fatigue and a slight loss of appetite.
1st cycle December 2010. Loss of hair.
March to October 2010.Four treatments every 3 weeks. Velcade, Dex and Zometa. October 2010 went to 1 treatment every two weeks, same medication.Still on this schedule as of this date Mar 8, 2010
4 monthly rounds of VAD prior to allogenous bone marrow transplant.
Velcade, dexamethazone, since transplant just added revlamid
Started chemo Mar 1st 2009 Continued pain,a very few side effects to date-next treatmentApril 12
18 series VRDD and VRD so far
Thalomid: Fatigue. Red spots that eventually covered my entire body. Neuropathy in feet and hands. Revlimid: rash, upper body.
What Colon and Rectal Cancer Survivors said about their Chemotherapies.
Folfox and Avastin. Very debilitating, very fatigued and nauseated. Thinning hair.
im on xeloda and after the surgery ill have to do liquid iv chemo where i will have port inserted and i will have 16 weeks of 8 treatments where i walk around with the chemo for 48 hours.
Pre-Surgery April 19-May 26 Five FU for 6 weeks continuous with take home pump Post Surgery started Sept 22 Full Fox
6 weeks 3000mg xeoda pre surgery. 4 month 5000mg xelota post surgery. Oxi recommended. Tried but side effects too extreme. No hair loss. Tired and weak. Low energy with uncontrolled diarrhea.
Xeloda (oral chemo) for two and a half weeks.
5FU 8/23/10 through 9/27/10 24/7 once a week flush and bloodworkups. some nausea
started with leucovorin, oxaliplatin, avastin, folfox pump, then camptosar, erbitux, folfuri pump, currently undergoing clinical trial with Xeloda and maybe or maybe not perifosine few side effects, I guess I've been lucky
11/06-oxaliplain,xeloda....tingling and cold sensitivity in hands and feet, fatigue 11/07-irinotecan, avastin, 5FU, diahrrea, fatigue, burning and cramping in abdomen started erbitux january 2010, adding irinotecan this week, sept 20, 2010...post-note that irinotecan caused so much diahrrhea I became too hydrated and wound up in hospital. i had a blockage too, but just sayin'! ;)
I had a great wife with me every one so they could never be all that bad. I had 2350mg of 5FU and Oxaliplatin over 48 hours every other week for first 3 months for last 3 months have had 1105mg of 5FU Leucovorin every week.
5FU,Oxaliplatin and leucovorin
Body would only take 1 day session.
Started 9 Nov on Poxy Oxy and capecitabine. Finding it tough, especially the first week. Been neutropenic on first 2 sessions so far which is causing delays.
3 treatments every two weeks with neupogen shots after every treatment. White blood cross ave been a problem but my platelets are what concern me. They have continued to decline and are not rebounding back between treatments. other concerns which are minor but irritating is the coldness everywhere especially the throat, hands and feet. Fatigue is manageable now after 3 months. Metal tasting mouth and bad breath right after treatment ....yuk! Lack of appetite seems to occur during the treatment week but subsides the following week.
Chemo-therapy of 5FU and Oxaliplatin started 3/12/2012 and finished 8/13/2012 administered every two weeks, and taking home an infusion pump of 5FU for two days.
I had a port put in (after 4 tries which left me with considerable chest bruising, pain, and extra scars) and it it was accessed 4 days after insertion to begin my first chemo treatment. Pure 5FU. I did not lose my hair or get any mouth sores. I did feel like shit every day, I did lose my appetite completely, I did have stomachaches all the time, hot flashes, headaches, & extreme diarrhea or extreme constipation. Sept 8 - Oct 10 2008 Chemo #2 - Folfox (5FU/Oxalipatin) Feb 2 - March 3 Chemo #3 - unknown...beginning march 16
Started October 28, 2009 5FU 24/7
Nothing really - just a little bit more tired than normal.
not yet scheduled
5-FU, and Eloxatin
it was a bitch but everyone in the hospital oncology was very nice that helped alot.
Bi-weekly chemo. Energy levels vary. Diarrhea, one day only usually. Keep hydrated.
5-FU started 6/27/11 hooked up to the pump 7 days a week for 6 weeks....ugh!!! Grueling. Side effects consist of nausea and vomiting, finished the first round 8/2/11. Now I have to continue 9/21/11 for 4 months... 5-FU, Oxaliplatin, Avastin & Leuc
have the Powere Port for 5Fu chemo Pump removed 02/18/09 The port is a bit uncomfortable if I try to sleep on right side. The port itself still looks very unattractive, but hey if t helps, i won't complain.
May 2009 - Sept 2009 FolFox, peripheral nerve damage to hands and feet (used to unload dishwasher with ski gloves on cause touching plates etc felt like pickiing up glass!) All good now with help of Vit E and Alpha-lipoic acid suppliments. Xeloda - long term chemo. March 2010 til now and according to onologist, forever!! damages skin on my fingers and feet.
14 days Xeloda, IV infusion consisting of Oxaliplatin, 5FU, Avastin, Palonosetron HCL, Dexamethasone, Leuvovorin, Potassium.
What Liver Cancer Survivors said about their Chemotherapies.
11-19 chemo pellets not sure of the name, nausea,
On going chemo regiment and had one chemoembolization.
TACEdeb procedure begining of June....side effects... all haha vomitting, nausea, fever, pain, pancreatitis.
Nexavar 8/22/12 - forever, side effects all listed
Nexavar - Current (8 months)
First treatment was June 8th 7 hours between the other meds olus the chemo..Cisplatin and Gemzar.. Felt ok the day after but then started feeling very sick, achy, headache, ringing in ears, coulnt eat, weak, dizzy,tired,shaky all over I only felt well enough to go to the doctor on the 7th to have my blood drawn..saw dr and he said he would up my steroids next time and that should help second treatment was on the 8th, Just the gemzar.. Really tired and achy. Dizzy and weak. Had my shot of Lewnasta on Monday. Still fell tired and bone pain
every kind, all the time for the last 5 years
No chemo as no primary cancer found and chemo will only add a few months to life, yet these extra few months will be with the side-effects of chemo
7-2008 to present. Lethargic, no appetite, not able to focus for too long on anything, weight loss, strange thoughts, sleep seems to be all REM, dreams and or nightmares about Nam seem to pop up while I'm awake,anger, especially at the VA for not stepping up and admitting and approving my claims.
Tried Nexavar for one day, but decided against it; bad side effects--felt cloudy, nauseated like when I was on Interferon/Ribaviron and had rectal bleeding from the Nexavar; not worth it to buy a few more months of life; discontinued
i will tell you
What Cervical Cancer Survivors said about their Chemotherapies.
2 rounds of Taxol/carbo 11/2011 & 12/2011...Is being changed for 1/2012...not sure of new drugs yet
tahbso april 15,2013
5 chemotherapy sessions with cisplatin over 5 weeks
Done and it sucked
methotrexate injections every other day via injection
Chemotherapy is bi weekly on fridays! Side effects include Nausea, fatigue, and weakness, hair thinning
Cisplatin low dose for 5 cycles once a week. Tolerated it well just very tired. Considering I had concurrent radiation and chemo it was hard to tell what was causing all my nausea and vomiting but we think it was the radiation.
combination of xeloda and cisplatin- some loss of appetite, some naseau ( not too terrible), and some fatigue--started treatment in February 2006 cisplatin was administered once a week for four weeks and xeloda was taken orally Mon.-Fri. for 3 weeks, treatment was stopped early due to low blood counts
Nausea and fatigue, Extreme Vomiting, Neuropathy
Weekly chemo for six weeks
Cisplatin (40 units) every Monday for five weeks, beginning April 26, 2010. Hair thinned; veins hardened; steroid acne; acid reflux; turned yellow after treatments (that was odd).
Rather not discuss
N&V, Fatigue, Dulled mentation 12-15-09 to 1-30-10 SECOND ROUND OF CHEMO, CISPLATIN 01-01-11 to 02-17-11 LOTS OF VOMITING
Loss of hair and nausea
Cisplatin once a week In conjunction with the radiation. Then Five series with Etoposide.
Had external and internal (brachytherapy) radiation over a six week schedule. 28 external rounds and 5 internal rounds. Radiation was concurrent with chemotherapy (cisplatin) for 6 weeks once a week. Seriously fatigued for at least six months post treatment.
Extreme nausea, vomiting, some tingling in my toes.
Paclitaxel, Cisplatin, Bevacizumab, Avastin
Chemo not too bad with side effects. Im puffy. Numbness and tingling.
Constipation. Fatigue. Nauseau. Metalic taste. Weight loss.
Chemo was my biggest fear. Hearing so bad horror stories I was besid myself with fear. I actually have 1 more left to go and no problems except for a mild nausea about day 3 and thats it. Never really got too tired and never lost my hair. It really was like being pregnant as far physical problems with tired and nausea. It was a low dose cisplatin for 5 weeks.
Cisplatin via port
i was put to sleep with benegril
What Larynx Cancer Survivors said about their Chemotherapies.
Induction chemo for 2 months prior to radiation treatment - once a week during radiation; mouth sores for four days after first round, hair loss, fatigue, and some taste changes, but all in all, he did really well. Very little nausea.
12 total Erbitux sessions, once weekly, January 13 - March 31, 2011. Increasing fatigue and, ironically, insomnia following each session. From mid February through the end of treatments, somehow the Radiation/Erbitux mix seemed to spawn clusters of migraines.
Oct 8th- January 13th, 2010 Lost Hair after 21 days. Fatigue, dry mouth, muscle cramps that were very painful after 1st treatment. terrible rash on my head and neck the whole time I was taking chemo.
What Acute Myeloid Leukemia Cancer Survivors said about their Chemotherapies.
hydrea - 02/2009 little/to no side effects
3/07- induction and followed by 3 consolidations. High dose ara-c and danirubicin. SEs include alopecia, fatigue, headaches, n/v, chills/fevers,low blood counts.Remission for about 2yrs, then it came back. Currently rec'd more chemo, with an unsuccessful remission at this point. More chemo planned, then bone marrow transplant.
Oct 14th- 7 days Vidaza Nov 23rd- 7 plus 3 Dec 25th- fludarabine and busulfan
i had three induction therapies spaced about 6 months apart. and just completed two consolidation therapies. i am preparing for a bone marrow transplant.
first round for 5 days 2 times a day 2nd round a month later every other day 2 times a day for 5 days 3rd round was right before transplant 7 days of 3 differant chemo non stop the worst chemo was this one .....
the only side affect she has had is toxemia, and neuropothy.
Round one: 7 days of continuous chemo. Round two: 5 days of 2 times a day chemo Round three: 2 days of 2 times a day chemo Followed by 3 days of 2 times a day total body radiation.
oct induction chemo, Nov another bout of induction chemo as first did not work. Jan: consolidation chemo Apr: additional chemo to prepare for bone marrow transplant.
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
11/2009. 1/2010. Neuro side effects. Weakness. Nausea.
Always sleepy or nausous
Since June 2012 - july induction, August consolidation, Sept. consolidation, december 2012 induction. Stem cell transplant now on hold.
photosensitivity, some nauesea
idarubicin and atra began in april 2008 vomiting,diarhea,blood and platelet transfusions many transfusions
I've had 2 rounds of induction therapy and just finished my 4th round of consolidation therapy. Side effects have been different with each round. My hair only fell out my first round. Have experienced nausea, dizziness, weight loss, appetite loss, headaches, brain bleeds, metal-like taste in my mouth and food, lethargy, loss of endurance and stamina, chemo brain, grogginess and foggy brain, memory loss.
I have been taking low dose chemotherapy via and infusion pump. I may need a bone marrow transplant at some point.
High dose chemotherapy, March-June 2012. Side effects: Nausea, vomiting, weight loss, fatigue.
chronic vommiting ,hair loss tiredness
Nausea, vomiting and fatigue. Zofran helped a lot!
1st round-12/09/2011Atromycin for 3 days nd Cytosar. for 7 days.
Multiple protocols for ALL & AML.
Ive been on too many chemos to describe. Generally though I handle them well. You will feel the nausea and the fatigue for sure. Mouthsores and hairloss come later. I usually go feverish at some point too.
I have been through my first month of Chemotherapy. I am now going to the Mayo Clinic daily as an outpatient taking doses of arsenic. No Fun!!!
What Chronic Lymphocytic Leukemia Cancer Survivors said about their Chemotherapies.
Rituxan with High Dose Steriods - 2009 Campath - 2009
Fludarabine - 8/7/06 - 8/11/06 -- tired and nausea Rituxan - 8/11/06 - "shake and bake"...you name it I felt it...dizzy, chills, threw up, nurses very good in giving me appropriate meds to counteract side effects
What Testicular Cancer Survivors said about their Chemotherapies.
My husband had 4 cycles of chemo. Aug 2005-Dec 2005. Son is having 3 cycles. Started 8th June 2010... next cycle 28th June 2010. Both lost hair.
Bleomycin, Etoposide, Cisplatn (March 07 - May 07) Cisplatin, Taxol, Ifosfamide (September 07 - November 07)
Loss of hair, loss of weight, loss of wife. LOL
had no treatment
I was on three types Cisplatin,Bleomycin,& Etoposide.I started treatment in 9/08 and finished 12/08,four cycles.Effects were real BAD..it sucked hair started coming out about two weeks after first treatment,rashes just sick most of the time.
Chemo Began 12/02/2013... Bleomycin-Cisplatin and Etoposide
Bleomycin, Etoposide, Cisplatin (BEP) 4 cycles Side Effects: Blood clots, low blood pressure, fever, neuropathy, vomiting, nausea, hair loss, weight loss
Four rounds of VIP. Ifosfamide, Cisplatin and Etopiside, one day Cytoxan to motivate marrow growth.
What Chronic Myeloid Leukemia Cancer Survivors said about their Chemotherapies.
Interferon from onset- continued hospital admissions,recurrent infections, suppressed immune system Gleevec May 2001 to April 2010, minimal side effects, mostly nausea, malaise. April 2010- Present 800 mg. Tasigna daily requires weekly EKG due to this drug has been linked to A-Fib
I've been on Gleevec for 3 weeks. the first week was no different than the previous ones, lots of fatigue, but that is from the leukemia. In the second week, I started having more pain and some diahrrea. The diahrrea cleared up in a few days but the pains got worse. By week three, I have a lot of bone pain. I can get around and i can work, but it hurts quite a bit to move and my legs (thighs) are the worst. I often wake up with pain and my fatigue is not improving.
What Acute Lymphocytic Leukemia Cancer Survivors said about their Chemotherapies.
2-CdA, 2-hour infusions, 5 days. October, 2002. Progressive fatigue during treatment week. Could barely have energy to walk on day 5. Week later, UTI, high fever and fear of no immune system put me in hospital (reverse isolation) for a week. 2 blood transfusions brought counts up enough to go home. Fatigue endured for two months. Was back on job (teaching) in January.
Hyper CVAD protocol. Started 3/22/10. None for the first 3 rounds of protocol. Last 4 rounds have had N/V, extreme faitigue, bone and joint pain.
Jacob began chemo in February of this year. Things went really well and the only side effects that mom and I could see were abrasive hair (prior to it falling out), weight fluctuations, some nausea, and an aversion to sweets.
I have 6 months of chemo: 1. Daunorubicin, Vincristine, Asparaginase, Prednisone 2. Cytarabine, Etoposide 3. Methotrexate months 4, 5, and 6 are a repeat of months 1, 2, and 3. I also had 6 doses of intrathecal methotrexate (chemo injected into my spine). I am getting cytarabine, methotrexate, and a steroid intrathecally. I think I'll also get one round of high-dose cytarabine intravenously prior to transplant.
I recieved Chemo in 2004-2006 with my first diagnosis of ALL. I relasped in June 2011 and started chemo on June 24-July 18. I will continue chemo until my Bone Marrow Transplant.
An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010: Vincristine PEG-aspariginase Doxorubicin Methotrexate Cytoxan Cytarabine 6-MP 6-TG Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain.
I didn't really focus on what chemo I've gotten/getting, but my main side effects were nausea and fatigue.
Vomiting, hair loss, fatigue, mouth sores, reduced immune function.
I'm not going to tell you anything you would be shocked by here. I'm bald - and have been for two years. 98% of anything I eat upsets my stomach in some way. I wish I could sleep all the time, but I have a 5 year old little girl, a full time job and a husband so that is possible. Other than that, Cancer sucks, Chemo sucks worse, but we will all get through it, right?
lots of dates, spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints. mercaptiprine, is every day, that just gives her a weird rash. methotrexate makes her sleepy
I don't remember all of them, but cytotoxin was one of them
Methotrexate, Doxyrubicin, Vincristine, Vinblastine, Cytarabine, Etopomide
What Anal Cancer Survivors said about their Chemotherapies.
2 rounds (5 day hopsitalization each cisplatin and 5FU) mouth sores, some hair loss, changes in taste and smell, weight loss 6 rounds Hepatic artery infusion (oxaliplatin)avastin 3 month Jakafi (oral) 22 treatmentsof unknown trial drug current trial cisplatin and gemcitabine
Mitomycin C and 5FU infused for 96 hours (4 days) during week one and week 5 of radiation
I haa a week of chemotherapy on week one (April 15-19th) and week five (May 13-May 17)) of my treatment plan. I had a pic-line put in each time for the chemo. I had both Mytomicyn and 5F-U. My first round of chemo, I had mouth sores, sore throat, and fever blisters on the mouth. My white blood count got so low that I had to have shots to boost my white blood count, and take a round of antibiotics. I also took pills to reduce getting fever blisters. My second round of chemotherapy, I was given a lower dose of the mytomicym due to the compromise of my white blood count the first time around .
It seems to be the standard Mitomycin-C and 5FU in the first and fifth week of treatment. Mitomycin C dose lowered by 25% due to low WBC & platelets first time around.
Chemo doable. Nausea, constipation (turned out my gall bladder wasnt funtioning but had to wait for surgery until long after completed therapy.)Dehydrated one time (walked for hour outdoors as it was a lovely day) so badly home nurse came to house to hook me up to fluids and it worked immediately. Radiation was more difficult in that I knew, due to light skin, that I would be much more burned. I was surprised when the treatment was over that I continued to be radiated though I wasn't receiving radiation but felt I was receiving it daily for approximately two more weeks.
Mitomyscin and 5FU during first chemo round which began end of Sept. 2013. Shortness of breath, fatique, white and red blood cell count dropped
2/09/10 mitomycin & 5fu
The standard for anal cancer: two rounds of 5FU & Mitomycin. Lost about half my hair. Very bad mouth sores and oral thrush, especially in the 10 days after infusions. Became neutropenic (big drop in the type of white blood cells that are the major infection fighters) with second round of Mitomycin.
2/8/10 - 2/12/10: 5-FU and Mytomycin. 3/8/10 - 3/12/10: 5-FU. Nausea, loss of appetite, weight loss, lethargy, weakness, late effect hair thinning.
1/23/2012 had IV mitomyacin then 96 hrs of 5 FU via pump. Extremely fatigued all week, not sure if it was the 5 FU or mito. Started Neupogen injections following Monday for 7 days. No nausea at all. Appetite great. Mouth sores began with a vengeance following sat and lasted 7 days. Could only swallow liquids so I mostly lived on instant breakfasts. Two weeks later my finger tips began peeling and hair loss began.
Mitomycin and 5FU - 2 rounds
Two rounds of chemotherapy in December '09 and January '10. Received Mytomycin at the onc office and received 5-FU using a pump on a picc line for 96 hours each round. Side effects: nausea, fatigue, loss of appetite/weight loss, some hair loss, and some vomitting during and following the second round of chemo.
Had surgery for Port placement in 01/2011. I began my first bout of chemo on 2/14/2011 along with radiation. I was in the chair for about an hour receiving the Mitomycin, and the 5-FU was portable, so it was hooked up and it was constantly dripping beginning Monday, and I would return Friday to get it taken off. I fortunately did not have too many side effects; no hair loss, not much nausea. I had a lot of fatigue, but I blame some of that on the radiation as well. Once I had my second (and final) round of chemo (which went the same way as the first), about halfway through my radiation, that's when I started to have a very difficult time and I was in a lot of pain and the effects of the radiation on my skin was much more apparent and was a lot more uncomfortable.
side effects; weakness, fatigue, occasional nausea.
Mitomycin and 5-FU on continuous drip using a PICC line. 4 day drip week 1, and second 4 day drip week 5. Scheduled to begin 11/9/09. First chemo round gave me terrible mouth sores and I was extremely dehydrated, to the point of needing hospitalization. 2nd chemo round went better due to daily scheduled "hydration" sessions at oncology. No dehydration or mouth sores, but I am extremely fatigued and all my blood counts are VERY low.
5/21/12 first week via port 7/2/12 2nd week via port Every third week 11/26/12 to 3/11/13, 5 hr drip
First round 3/17-20/14, 5-FU and Mytomycin. Nausea, fatigue, severe mouth sores (lips, mouth, tongue, throat) and white blood cell count down as low as .7. Second round postponed to 8th week due to C. Diff. infection. 1/2 dose with no severe side effects.
begun 26 September 2013
Jan 7th week -1st round of chemo - severe nausea, dehydration, and mouth sores. For 2nd round 5 weeks later, started Lysine powder 1 week prior with mouthwash so no sores.
Having Chemo 1st a couple hours in Dr. Office + "buddy bag for 46 hours Started 1st treatment Dec 18-Friday Felt pretty good-till Sunday-Nausaus now alot of gas with new medicine
1st and 5th week for 4 days
Chemo to start with radiation on Sept 26. Need a PICC. Mitomycin C and 5FU. Two weeks for five days. One week on, then three weeks off, then one week on again.
First Round: 9/3/2013 Received an injection (infusion?) of mitomycin, then was suited up with a mechanical pump, a bag of 5-FU, and an ugly, poorly designed fanny pack. I had to wear it for 5 days. Lots of nausea, no vomiting, very tired - which could have been caused by the anti-nausea meds that I took regularly. I basically slept my way through the first two days. I had a overall sensation of just not feeling well. After that, although I couldn't eat much, the nausea went away. On day 4, I felt really good - very slow, but good. Day 5, woke up feeling extremely weak and dreamlike. Noticed sore throat and bleeding gums (while brushing). Have developed a sore "spot" on the right side of my throat. More energy on day 6. NOTHING tasted good. :( Cramping, but no diarrhea.
mitomyacin and 5fu two times over two different weekends 2009 mouth sores, weight loss, nausea,hair thinning, lightheadedness, memory loss,
Flu type feeling... Fatigue Nausea ( took the meds every 8 hours to control) Hair thinning
What Pleura, Malignant Mesothelioma Cancer Survivors said about their Chemotherapies.
On Chemo from April to Sept 2010. Main side effects were fatigue, weight gain, mouth sores occasionally.
What Bone Cancer Survivors said about their Chemotherapies.
i cannot sleep..i cannot eat..i do vomiting
First time I did chemo was on May 2006 and I lost my hair, throwing up, rashes, weakness. Just pure hell.
A year of hell Ill never get back
What Nose, Nasal Cavity and Middle Ear Cancer Survivors said about their Chemotherapies.
See the Chemo Dr tomorrow, too. Don't know if I'm going to do it.
What Nasopharyngeal Cancer Survivors said about their Chemotherapies.
chemotherapy given from January to September Side effects: dehydration, vomiting, blood transfusions
3- 8 hr chemos mostly nausea.
Jan 2009-june 2009: lung nodules shrunk a bit and last CT scan end of june showed no growth: little nausea, tired all that stuff
Started weekly induction chemo on 9/5/13 with carboplatin and paclitaxel- soreness in mouth, slight nausea, dry skin (severe itching), acid reflux
What Ureter Cancer Survivors said about their Chemotherapies.
Taxol and Carboplatin. Started November 2008, should be completed March 25, 2008. Side effects some nausea with first treatment, leg pain and neuropathy.
What Peritoneum, Omentum and Mesentery Cancer Survivors said about their Chemotherapies.
Carboplatin and Taxol once every three weeks, 6 times. Fatigue, faux sence of energy at first, couldn't sleep for two day after, then crashing with neuropathy pain and fatigue
What Gastrointestinal Carcinoid Tumors Cancer Survivors said about their Chemotherapies.
First & only dose: 09/05/08-5FU/Leucovorin/Oxaliplatin - side effects? fever, rash (?), edema, fatigue, neuropathy, dizziness, confusion (some); nausea, hand/foot - more, but can't remember them.
chemo side effects hair loss some weight loss vomitting sweats shakes hot cold pain emotional skin tone looked unhealthy
What Esophagus Cancer Survivors said about their Chemotherapies.
Chemo is rough.
currently undergoing treatments
preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU.
Too many chemo regimens and drugs to count. At present, I am on Xeloda, Herceptin and Avastin. One drug was damaging my liver, but okay now. Herceptin was damaging my heart, but it is okay now.
Carboplatin/Taxol, continuous 5FU drip March/April 2008 Taxotere July/August/September 2008 Cisplatin January/February 2009
Carboplatin and Taxol for 5 rounds. No side effects at all except tired on day 2 & 3 post treatment day. Tolerate chemo well.
june 13 2011. no side effects yet
Sysplatin that almost killed my it caused my kidneys to shut down. I cause me to become completely dependent on others. I didn't spell the Chemo right but it sounded like that. I don't know what the fed me after I was released from the hospital.
1-2 treatments per week for 6 weeks along with radiation
chemo from 2/98 through 9/98
What Tonsil Cancer Survivors said about their Chemotherapies.
Started treatment April 29: cisplatin two double doses - didn't do third dose due to ear ringing, had to take a booster shot after second treatment due to WHC crash. Side effects: ringing ears, nausea (but controlled by Zofran so not a problem) Other things: acid reflux developed quickly (not something I have had in over a decade - controlled by prilosec on advice of oncologist) and constipation from zofran (controlled with miralax and glycerin capsules and lots of water)
11 treatments ended about 11/07/2011
Hearing loss and ringing in my ears. 3 chemo treatments, first, fourth and 7 th week. Saliva got thicker then syrup,honey after treatments ended. Couldn't swallow and had to sleep sitting up in a recliner for weeks afterwards.
No side effects thankfully!
After leaving the hospital following my first round of chemotherapy, I was rushed to the local hospital. I had an extremely high fever, my porta cath was infected and oozing puss and my white blood cell count was .444.
3 Cisplatin treatments
Jan 21- vomit, headaches, fatigue, lack of sleep, sore throat, cold sores, dry mouth, weak, pain, dry skin, headaches
Completed May 15, 2012
I will also start chemo on Monday, October 19th. That will be done after radiation every Monday for seven weeks. It's a combination of three drugs: Taxol, Carboplatine and Erbitux. Will be asking why once a week when it seems everyone else that I've read about get three treatments throughout those seven weeks.
Ciplatin 3 megadoses 3 weeks apart concurrent with radiation
Cisplatin gave my husband ringing in ears but much better now. Had complications each time after a chemo. Was hospitalized twice for them.
Chemo start date 10/5/09, three sessions, one every three weeks (cisplatin)
Start with erbitux on Nov 12th and follow with weekly doses every Monday for a total of 8 weeks
Chem with Cisplatin, taxotere and 5-FU in pump.
8 weeks of single dose of cisplatin...loss of taste, luckily I was on a PEG tube. I would strongly recommend the PEG to assue that enough protien uptake to support proper healing
Chemo - Cisplatin - Day 1 of week 1 / week 4 / week 7
Cisplatin ....nausea and fatigue
3 Cisplatin Chemo's, starting July 17, 2014
Low-dose chemotherapy (Cisplatin) coincided with radiation, 1 day per week, beginning December 7, 2009 and ending January 25, 2010. Side effects included nausea, fatigue, weakness, depression, low blood counts, increased age in appearance, loss of some hearing in the higher frequency range and tinnitus (ringing in both ears).
5 treatments of cisplatin one a week commencing 14th July. Mocositis, fatigue WBC count dropped dramatically after last treatment
GREAT NEWS!!! No Cisplatin treatment!! Only going to use Cetuximab! which means I will not be getting all the side effects of Chemo type treatments!!!
7sessions, once weekly Metal tasting food, general lousy feeling 2 days after treatment.
Erbitux (cetuximab), loading dose 25 Jan, caused mild temp and nausea, then no similar effects during the 8-week course of treatment. Significant skin effects (acne, painful splitting of skin on fingertips, toes, and heels). No real nausea, vomiting, or diarrhea caused by the Erbitux.
hearing loss and ringing in ear from chemo (cisplatin)
What Mesothelioma Cancer Survivors said about their Chemotherapies.
carboplatin, alimta 8-27-09
What Endometrial-Uterine Cancer Survivors said about their Chemotherapies.
Taxol/carbo, starting Dec 12, 2007. Some joint pain, hair loss (boo-hoo) and slight stomach upset.
Chemo 6/21/10, 7/12/10, 8/2/10, 8/24/10, 9/14/10 - nausea, fatigue, bone & joint pain, diarrhea, neuropathy; scheduled for 1 more round
Started my chemo on Sept 11th of 2008. I have to complete seven cycles. I receive cisplatin and adriamycin on the first day of treatment along with other pre-meds such as decadron and emend. Second day of treatment I receive Taxol and the following day I go back in to get a injection of neulasta.
My symptoms became SO much worse after chemo: Pain, nausea, vomiting, mouth sores, chemical taste in mouth, fatigue, weight loss
First round of chemo on 7 May 09 Second round of chemo on 1 Jun 09 Third round of chemo scheduled for 21 Aug 09 My doctor is using a new "sandwich" approach to treatment. 2 rounds of chemo > then 25 days of radiation > then 2 more rounds of chemo. This is new and apparently works better than all chemo then radiation. I am in control and working to erradicate the cancer via chemo and radiation.
Chemo came after radiation the first time, chemo only the second time, radiation only the 3rd time. Allergic reactions to almost all the drugs tried, but that was the second time. The ones that I didn't react to made me very sick, so I'd go in to be hydrated the day after chemo since I was unable to do that at home. It's hard to eat and drink when you're asleep. Another side effect of the drugs and certainly the pain killers for me.
little queasy tired bald last one nov 5th 2010 yesssssss!!
INITIALLY TOLD NONE NEEDED 7/6/09 MY DOCTORS REISDENT CALLED AND SAID NONE NEEDED BUT AT THIS POINT I DO NOT TRUST MY DOCTORS AND WILL SEEK NEW HELP SURGERY 8/6/09 REMOVAL 27 NODES NO CANCER...SO NO CHEMO WILL BE NEEDED
felt sick all the time, metal icky taste, neuropathy, ruined joints >:( bone pain
6 chemotherpay treatments. Cisplatin for 2 and Taxol/Carbo for 4. Stomach nausea,bone pain after Neulasta shot, constant dehydration, tired all the time & neuropathy in feet.
Start in mid October.
See Surgery Description> apparently I cannot follow directions
Carbo/Taxol every 3 weeks, 6 cycles
I have had two rounds of chemo, and the next will take place on Jan 31, 2012. After that, three more rounds!
Cyclophosphamid Carpoplatin Taxol
Had a port put in August 2011, then started chemo. 2 drugs. Plan is 6 cycles, every 21 days. Have completed 3. Blood work ok, but almost unable to walk. No strength, can hardly stand, can't climb stairs well. Feet are numb, butt now numb. Had spinal MRI 11/11, #4 delayed a week.
recommended to start after radiation
Finished Aug 23, 2011. 6 treatments completed. Zofran for anti-nausea worked but caused headaches.
currently doing carbo/taxol every three weeks. Extreme fatigue, muscle aches, taste changes
May 2010 Chemo Carboplatin/ Taxol, nausea, fatigue, hair loss
TBD but they definitely want to do it.
Chemo start date 7/15/09 - Doxil infusion with Ativan and Compazine every 21 days...that was "potponed". Chemo, once started, was be Doxorubicin and Ifosfamide - 4 days of 24-hour infusions. Mom was having delirious thoughts from the chemicals, they took her off of food - the doc said she "had enough fat on her" to get by without food. She was in and out of sleep from the sedatives in between chemo.
Lost hair not much else
TAP regimen - 7 21 day cycles
What Sarcoma Cancer Survivors said about their Chemotherapies.
Doxorubicin Cisplation Methotrexate Ifosfomide Etoposide
cistoplatin made her very ill
Still to be determined.
Currently still undergoing chemotherapy. Started in October of 2010 and should be finished up just before or around early March of 2011.
IE and VAC treatment every 3 weeks. Lost weight and all my hair/ body hair
Currenly going through Ewings Sarcoma protocol for Chemotherapy. 14 total cycles.
Had AIM protocol (Adriamyacin, Ifosfamide and Mensa) for all of 2007, then in 2010 I had Yondelis, a clinical trial, also for a year. The AIM made me lose all my hair, had frequent need for transfusions of blood and platelets and I had many infections. The Yondelis did not make me lose hair, but the other side effects were the same.
Chemotherapy lasted from July 2010 - August 2011 His chemotherapy consisted of Vincristine, Doxorubicin, Cyclophosphamide, Ifosfamide, and Etoposide. Some vomiting and lots of nausea.
After 3 rounds of chemo and some radiation Nicole's doctor pronounced her freee and clear. This was not true and with Rhabdo, if you don't get it all and leave even a half of a cell the cancer comes back ten times stronger causing it to be incurable.
Doxorubicin and Ifosfamide: together from jan 2011 - april 2011. Bloating stomach, hair loss, skin darkened, gums darkened, bloated face, sore feet , palms and soles of feet became dark,tiredness, constant spitting. Trabectadin: Nov 2011 -Dec 2011 Didnt work. Constant spitting, skin darkened, gums darkened,face bloated, tiredness could not leave bed for one month. Just felt totally ill.
Currently going through chemo... some of the side effects that I am experiencing are mouth sores, and sore GI tract. Definite tiredness, lunula turning black, of course hair falling out, complete loss of taste buds and smell during chemo but fine after.
Gleevec, vomiting, diarra, swollen eyes and ankles, cramping in hands feet arms legs, fatique, from 10/19/07 till current.
Chemotherapy started on 20th Dec 2008 and I chose to stop in June 2009 (I was meant to finish in Nov 2009, but when I found out my tumor was no longer shrinking, I physically could not deal with the side effects anymore). I lost my hair, which was by far not the worst side effect! Mouth sores, lost my sense of taste and smell. Horrendous constipation. Nauseous most of the time. Not able to eat. So completely exhausted, not even energy to stand up some days. Felt extreme cold, then major hot flushes, wake up drenched in sweat. Eyes always sore and watery. My chemotherapy was every 3 weeks, which took 5 days in hospital to administer IV - then every month when home I would spike a massive temp & have to be rushed into hospital for blood transfusions and isolated for neutronpenia! Chemo turned me into a shell of my former self, it destroyed my spirit and had me in tears most of the time. It was a hard, hard fight.
I have Chemo once a month. The Chemo caused the whites of my eyes to turn Fire Engine Red. It was a reaction that none of the nurses had ever seen. I was given IV Benedryl. The dose of the medicine knocked my butt out. That was my first treatment on May 21, 2012. I was set for 3 treatments. My Oncologist was not sure if the Chemo would work to begin with. Within the first treatment I could tell a difference. I was amazed. I could actually feel the mass and it was smaller. So, Dr. M ordered another 3 treatments for a total of six. I lost all my hair, eyebrows and eyelashes. Hey, they will grow back one day. I don't mind. I love all the scarves and hats I have bought and been given.
What Skin Cancer Survivors said about their Chemotherapies.
Photo Dynamic Therapy for any AKs... skin checks every three months
What Throat Cancer Survivors said about their Chemotherapies.
Dry Mouth. Lost body hair, Sick at stomach, weight loss.
1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss) 2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment. 2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course 2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course.
May 7, May 14, May 24. (Now scheduled for June 1, 8 and 15). Side effects are fatigue and nausea. Taking anti-nausea meds. Worst part is we can't keep enough fluids in him to flush out the toxins due to chemo. We're told this is more common in throat cancer where food and fluids are taken through a feeding tube. Starting to lose patches of hair.
It seems that my side effects (nausea, tiredness) start a couple days after treatment. Emend and Zofran seem to be helping.
Start November 29, 2010. The drug was erbitux. No side effects with the weekly treatments except for after weeks four and five. After treatment I immediately had chronic chills and shakes in which I was given an injection of demorol and had to lie down for an additional hour until the effects subsided.
Feb 14, 2011, Cisplatin, slightly tired immediately following treatment. March 7, 2011, same as treatement number 1. March 28th, 2011 - TBD
Months of daily treatment with both Cisplatin and Herbitux -- major side effects included a rash that covered me from head to toe, skin that was so dry that my scalped split open and bled when I vomited (which I did several times each day). Further side effects included hallucinations, tremors, chills, hot flashes, disturbed sleep patterns, fever, loss of hair, etc.
February - June 2009 Taxotere Cisplaten 5FU
Three rounds of Cisplatin - nausea, metallic taste and tired
What Tongue Cancer Survivors said about their Chemotherapies.
Three Cisplatin doses, Jan 4, Jan 26, Feb 16. Never got the Feb 16 dose as I was too sick from throwing up.
Erbitux for 6 weeks, no side effects.
second form of chemo 3 more weeks, no side effects
A 2 chemical soup every 3rd Monday and then a 24/5 fanny pack pump the same week as above. I have 1 week on and 2 weeks off treatment
Eurbitux caused a huge itchy red rash EVERYWHERE after week 3. I was almost hospitalized it was so severe, but huge IV bags of Benadryl saved the day.
Set for July 6 and July 21
I started the chemo the frist week in July 2010. I had a reaction to the first chemo which was Carboplatin and taxol so they changed it to Cisplatin and taxotere. They loaded me up on steroids and during the next treatment i had yet another reaction this one only worse than the first. So as a last ditch effort they changed again to cetuximab and honestly i cant remember what the second one they gave me with this was. I was ok with this drug but the side effects were aweful! I broke out all over my face with horrible acne and it made the radiation stronger which made the raidation burns worse.
Chemotherapy to be given concurrently, once a week. Began on 8/23/12.
Do not know yet if I will have to go through Chemotherapy.
What Hodgkins Lymphoma Cancer Survivors said about their Chemotherapies.
ABVD - six 4-week cycles (June-November) Prednisone Procarbizine
ABVD, started Feb. 13, 2009.
ABVD, hair loss, night sweats, depression, low white blood count, prone to bacterial infections.
The usual - not a single strand of hair. But, the stomach was the killer. I would be on liquid diet for days during chemo period. Even after 1 year, I am still experience problems with stomach. Physically, the body has changed so much. Mentally and emotionally, I have changed too (hopefully for the better :))
Abvd every other week.
ABVD- no major side effects so far! Feel a little tired, otherwise ok. 1st treatment 10.11.12- at least 6 month course of treatment.
ABVD May 2008-October 2008 ICE January 2009-March 2009 BEAM April 2009
Initial treatment: ABVD/MOPP (8/92-12/92). I received 6 cycles with complete response. The chemo was relatively well-tolerate. Salvage treatment: DECAL (Dexamethasone, Etoposide, Cisplatin, Ara-C, L-Asparaginase) 9/92-12/92. One brutal regimen! Cisplatin was the worse. Three cycles with complete response followed by stem cell transplant.
6 months of Adriamycin, Cytoxan, Bleomycin, Vincristine, Vinblastine, Procarbazine, and high dose Prednisone.
started chemo in 2010 6 months on an off, finally had stem cell transplant at Mass General Boston n March of 2012 remission lasted one year :(
nausea, neutropenia, anxiety, extreme fatigue, mouth sores and dry mouth
I had 6 x ABVD last summer. Now 3 x DHAP + stem cell transplantation in the future
1/7/2014 and every 14 days thereafter - Nausea, jaw pain, loss of taste, hair loss, fatigue 6/10/2014 - chemo complete (6 cycles ABVD)
April 6th 2009 - Initial chemotherapy at the hospital. The immediate effect on the swollen nodes blew my mind. It was almost all gone 48 hours later. Several others that are chronicled in my blog.
Getting chemo doesn't hurt. I don't feel the chemo being injected, and I feel fine for 3 days after, minus the fatigue. Nausea, headaches, body aches, upset stomach are my most common side effects when my medications are done.
first round 09/08/11-ABVD-headache, swollen tongue, blisters on tongue, vomitting, nausea, bone aches.
Chemotherapy from August 2006 - September 2007. Some of the chemotherapies were ABVD, ARA-C and carboplat. Side effects experienced were hair fell out, constipation, low white blood and platelet counts, nausea, vomiting, pain in joints.
8/23/12 - Hot-flash (minor) and a little fatigue 8/26/12 - Mouth sores.
I am having ABVD. Side effects: nausea, fatigue, hair loss, constipation, bone pain, fever, infection...
12 rounds of ABVD. Side effects: hair loss, weight gain, nausea and fatigue
Started Chemotherapy (ABVD) on 30th March 2010. Found that the side effects of consist of bad heartburn & indigestion for a few days after chemo. My hair started to fall out about two weeks later and has slowly been falling out ever since, but not bald yet! Have had to give up fizzy drinks and spicy food, two thinks I enjoy. Unfortunately they cause uncomfortable consequences, like bloating, passing a lot of gas, nausea, heartburn, the list goes on.
ABVD: 8 Cycles (16 total treatments). My side effects were severe bone pain, fatigue, nausea, burning in my stomach, constipation, ileus, thinning hair
4 Cylces (8 treatments) beginnning March 12. Second Session March 26, April 9th, April 23rd, May 7th, May 21st, June 4th and lastly June 18th!
AVD (Dr. says I don't need the B) constipation, nausia, jaw tingle, red hot face, tired, dizziness
What Acute Lymphoblastic Leukemia Cancer Survivors said about their Chemotherapies.
Started induction chemo within the first week of November. Integrating it with holistic therapies
started Feb. 26, 2010 I was admitted to hospital every 3 weeks for a total of 6 rounds of treatment - Cycles A and B.
currently undergoing HYPER C-VAD
finished with induction therapy, now gonna begin with consolidation.
What Bile Duct Cancer Survivors said about their Chemotherapies.
HAIC 24/7 for two consecutive weeks of constant flow chemo delivered directly to the liver. Every two week chem, alt two weeks pump is filled with Saline. NO Side Effects
On my second round of 2 sessions each which are a week apart
Second time around: Fluorouracil (5-FU): given through a portable 48 hour pump Irinotecan (Campto): 1 hour iv, i think First time around: Gemcitabine: will be administered through IV for over an hour. Cisplatin: will be administered through IV for over an hour. He will have to rehydrate 4 ours before injection.
What Leukemia Cancer Survivors said about their Chemotherapies.
January 6 2014 and February 15 2014
What Myelodysplastic Syndrome Cancer Survivors said about their Chemotherapies.
too many to remember
Vidaza 5 day cycle once a month, side effects weight loss, erythema nodula,hair loss(slow), nail discoloration
rituxan, vidaza, and revlimid
What Appendecial Cancer Survivors said about their Chemotherapies.
Fluorouracil (5-fu), Oxaliplatin, Avastin, leucovorin. 1/15-3/2? Side effects - Extreme fatigue, nausea, cold sensitivity, neuropathy
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