What Breast Cancer Survivors said about their Chemotherapies.
3 chemos, neo-adjuvant, before surgery, effectively reduced tumor size. 1 chemo after surgery. Side effects: nausea and dizziness.
They are not doing anything as of yet it has been a month and I am told it will take another month for this to heal . Who really knows. I am so afraid of that surgeon I don't want to see him . I think I should be on hormonal therapy or something besides sitting around with my skin falling off.
Started AC on 12/12/07. That was fine. Had a reaction to Leukine (sp) now I'm Neupagen daily. No problems there.
4 rounds of AC and 4 rounds of Taxol every 2 weeks from 3/4/2010 - 6/17/2010...just miserable! Landed in the hospital with neutropenia for 4 days.Mouth sores were the worst! Lost 10 lbs because of that. SO glad to be finished but still feeling the effects. Blah!
ACT from December 2010 - June 2011.
August 2nd first chemo. Extreme heartburn, tired, body aches, fevers. Taxtore, Adriamucin,& Cytoxan every three weeks for a total of 8 treatments. Doctor wants to do more. August 8th running a fever of 104 in the hospital for a week. Hallucations, extreme stomach pain and boby pain. Can't eat. August 23rd chemo. 24th start of neulasta shots. Extreme body pain, joint aches, headaches, nausea and fevers. Hair getting thin. Sept 13 hair is gone. High fevers been on antibotics since hospital. Same side effects as the first & second. Exhausted all the time. Oct thru Dec extreme headaches, sick to the stomach, body aches, fevers, chills, pain in my bones and feet. Dizzy and blurry eye sight. Antibotics throughtout chemo with neulasta shots. Had a fever of at least 100 degrees throught treatments of chemo. Highest was 104.4.
10/05-08/06 adriamyacin, very weak
I had 1 TAC had allergic reaction (tongue swelling) 3 weeks later started 3 AC biweekly, then had 7 abraxyn I had mouth sores, tongue swelling and bone pain after Neulasta, also had thrush for 5-7 days after the fisrt 4 sessions, I have muscle aches after Abraxyn, fatigue
May 23rd 2007 started 6 sessions 3 x F.E.C 3 X Taxotere Ulcers in my mouth, sickness, diarrhoea, thrush, joint pain, loss of finger and toe nails, peeling skin on hands and feet,
9/10-1/11 hair loss,fatigue,mouth sores,neuropathy of feet and toes, brittle finger nails
phase 1 - A/C, phase 2 - Pacletaxol with Herceptin, phase 3 radiation, phase 4 - continuation of Herceptin for full 52 weeks. Daily injections of Luekine then Neupogen. side effects - neuropathy (still), hair loss, lost sense of taste, constipation, diarhea, bone pain, nausea, vomiting. chest pain (hate muga scans!)blood transfusions due to low counts
I had Cytozen(I remember it burning badly)I had three months of chemo before surgery, and three months after surgery, total of six months,side effects nausea, fatigue, mouth sores hair loss
Cytoxan + Taxotere, 4 times every 3 weeks. Due the fact I had just come off from going through IVF, right after my surgery, my hormones were all over the place. Metallic conduit-like mouth, tired, emotional, chemo brain.
November 2010-January 2011 4 rounds
Started Adriamycin/ Cytoxan infusions every 3 weeks, June 28, 2011. Would keep me pretty much bedridden for 2 of the 3 weeks.
six rounds of CMF three weeks apart. commenced in December 2005 and completed in March, 2006
Four months of dose-dense chemotherapy along with a shot of Neulasta after each session.
2013-2014: 1st chemo; Taxol, no help. 2nd chemo:Doxil, no help. 3rd and current chemo: Gemzar & Cisplatin. I also get Zometa injection every 4 weeks. I started Chemo on June 19, 2008 and as of today 7/7/08 I have only had 1 treatment. My second treatment is this week on Wednesday, July 9, 2008. I will have 6 chemo treatments, 3 weeks apart. The worst side effect I had was from the Nulasta shot I had the day after chemo. The bone and body aches really kicked my butt. I was fortunate and did not experience any nausea. On day 14 I started loosing my hair. It was coming out by the handfuls!! By day 16 I couldn't stand it anymore so I buzzed it all off.
Began chemotherapy in 3'06. Side effects were mouth sores, nausea and vomiting. Bone pain, neuropathy in fingers and feet. Nail beds turned black.
September 2007-February 2008 - fatigue was the worst part; no nausea; started losing hair on 13th day after first treatment. Hair began to return about 3 months after chemo and was long enough to be a "really short hairstyle" after 3 more months.
Very few side effects, a little nauseau and sleeping more than normal, lost my hair
To begin June 12th
AC, 3-2-11 lots of nausea, hurt to breathe through nose, blinding headaches (3-4 through 3-6), all-over weakness through the first week, leg and tailbone area pain.
3 (months not sure of all the drug names. A/C and taxol i think. Round two,Cisplatin.
What Prostate Cancer Survivors said about their Chemotherapies.
RChop -six treatments, two weeks apart in Spring 2007.
taxater, didnt do anything,6 treatments, mitotaxatrine, still on it, barely any side effects due to the vit c drips
What Lung Cancer Survivors said about their Chemotherapies.
One a day pill forever (took 150 mg for 2 years). Down to 100 mg due to vertigo, fatigue. Other side effects, slow/non hair growth, rash, dry skin, dry mouth
Feb 08-Cisplatin/Etoposide- hideous vomiting diarreah Switched chemo drugs AND Hospital -April08-carbo/taxol/avastin. Tolerated well. Neulasta. Bone pain
Chemotherapy 12/09 to 2/10- loss of hair, weight, blood clot, fatigue, low white blood cell count and nausea neuropathy in finger and toes. 6/10 to 1/11 same symptoms as previously noted except for no blood clots.
6 weeks, 3 weeks apart
starting the 2nd week of August 2013
Taxol and Carboplatin every 3 weeks for a total of 4-6 treatments. Have had 2. Nausea, fatigue, aches and pain in whole body. Also DVT.
Start Chemo May 18th 2007 Cisplaton and Etoposide
8 total cycles...6 while undergoing radiation (reduced rate) followed by 2 of triple dose after radiation.
Chemo began September, we are on third round of a four-round cycle. We expect five or six treatments will be needed. CT scan will tell us more after fourth round.
December 2004 - Present off and on. On Avastin and Tarceva currently, but stopping to start a new chemo.
Alimta (Pemetrexed) Aug - Nov 2013, 6 cycles
Taxol, Carbo, Avastin (pain, nausea and vomiting, fatigue, confusion). Zofran was the BEST anti-nausea drug and I tried them all. Broken pelvic bone, NEUROPATHY (very bad so I am on an anti-seizure drug to control it). Tarceva, Alimptor...
3/2012 Adriamycin and dacarbazine 6 cycles 12/2012- 10/2013 votrient 600mg every day. 10/2013 - present gem/tax
1st series Aug'07 to Dec - 6 infusions - Carboplatin, Taxol and Avastin. Side effects, loss of all hair, fatigue, weight loss. 2nd series, 7 infusions - Sept '08 to Apr '09 - same coctail as above
carbo/taxol only effect has been being tired!! Verty low white cell counts, had to receive one transfusion, other wise has handled it well.
Avastin-2008 and 2011, Cisplastin-2009 and 2011, and Tarceva-2011.
Started with nine drops of Taxol and had an allergic reaction that caused me to stop breathing. Then switched to Gemzar and Carboplatin. Had some nausea but started taking Emend....VERY tired.
Chemotherapy started on March 1st
Carbo/Alimta 07.2008 Carbo/Taxol - Got taken off Avastin after pulmonary embolism. (nausea, vomiting, fatigue) 02.2009 Carbo/Alimta - Developed allergy to Taxol. (anemia, fatigue) Radiation therapy.
3 days chemo every 21 days. Hydration as needed. Tiredness and nausea/vomiting at times.
December 6th, 2010 was first Chemo treatment... my mother is doing good..not neauseous, joint and leg pain, Hair started to hurt two weeks after first chemo treatment. Still playing golf...not eating much... get tired easily...gets cold easy
Four treatments, most recent on 4 August, #5 scheduled for 25 August. Side Effects - minor nausea, extreme fatigue, loss of appetite and sense of taste and smell. carboplatin and Alimta (pemetrexed)for #'s 1-4. Provider stopped shipments of carboplatin so #5 and any remaining will be only the Alimta.
Carboplatin - my first treatment of chemo (started 2th of august 2010), no side effects so far (lucky me), gives good hope for second (heavier) chemo combined with radiation therapy
What Bladder Cancer Survivors said about their Chemotherapies.
Foggy brain. Forgetfulness.
What Non-Hodgkin Lymphoma Cancer Survivors said about their Chemotherapies.
Rituxan 2001, Rituxan CHOP 2002, Rituxan 2003, TRM-1 (clinical trial) 2004-2005, Rituxan/Doxil 2006-2007. I have never reached a remission "yet" still hopeful!
R-CHOP 21 Mouth Sores Steroid Withdrawl
R-Chop--6 cycles total..completed 5/18,6/8 and 6/24/2011,7/15/11 8/8/11 and 8/25/11. side effects: nausea, bone pain, headaches, ear pain(probably from neulasta/neupogen),some fatigue, severe heartburn/epigastic discomfort, mood changes
Chop 2002 Cop with Rituxan 2008. Hair loss, numbness (not bad this time), fatigue, insomnia from Prednosone.
Rituxan x 4 in December 2007. R-CVP x 6 from March 2008 through the end of June 2008.
Round 1 1/22/13 Round 2 2/13/13
R-CHOP R-ICE ESHAP
RCHOPx6 started on 2/21/14 Some nausa and loss of appetite shortly after infusion, Some numbness in fingers after 4th infusion. Taste buds don't work for a few days after infusion
Started11/15/2012, every 21 days until 03/06/2013. Had neuropathy, vincristine stopped for 2 cycles,better, then resumed 5th cycle. Had some issues with breathing-felt like I had eaten a lot of mints, treatment postponed for a week, got chest x ray, nothing wrong. Was tired with each cycle, but trudged through. Prednisone helped. Lost taste for some foods, but never lost my appetite!
R-CHOP 08/2008-12/2008 R-ICE 01/2009 ESHAP 02/2009-03/2009 BEAM 05/2009
R-CHOP, six session, three weeks apart, starting on June 29, 2012 and ending on October 16, 2012. Had some minor nausea on the night of the chemo sessions, but nothing too major. About 80% of hair fell out by the third chemo session.
GoSH, so many. Six cycles of RCHOP. side effects... 1) affected my eyesight since the 3rd cycle, never got better. It was the first time i feel how its like to be a blind person. Luckily was blind for only a day, and got better but never totally cured. 2) Shingles! yes i repeat shingles! its seriosly the worst thing to get when ur immunocompromised!!!the itch is so intense! 3) FATIGUE--> never seem to end, but sometimes i think its because im lazy
R-Chop, eight sessions one every 3 weeks. Side effects: nausea, loss of appetite, some muscle aches, hair loss, effected my eye sight - had to wear eyeglasses since the 4th chemo.
6 rounds of R-CHOP, with four lumbar punctures!
R-CHOP began 8/21/12, then 9/14,10/2, 10/23, 11/13, 12/4. vomiting, nausea, taste & smell changes, nueropathy, hair loss, depresssion
R-CHOP14 to start on September 13 for six cycles.
Rituxan/Bendamustine (Summer 2010) - very little except fatigue. R-CHOP (summer 2011) - nausea, fatigue, hair loss
r-chop 21 6 rounds every 21 days from 16th march 2010,feeling sick,tiredness,i bit high on the steriods for 5 days after each chemo,urinating more frequently,dry mouth,food tasting bland,loosing hair,compleatly,eyelids swelling and watering,fingernails going dark,shall I go on.
CVP-R So far I have fatigue and prednisone make me anxios and nervious
2 R-chops, with at least 4 more to go. Also, no one ever wants to give you the negative, as if I would fall to my knees and scream why. I am a "know the worst, plan for the best" kinda gal...but they don't seem to believe me. So far, the fatigue, headaches and random pain is bringing me down, along with the Prednisone crash I experience after each session.
Rituximab and Bendamustine
R-CHOP - 10/21/2010, 11/11/2010, 12/2/2010, 12/22/2010, 1/13/2011, and 2/16/2011 - was scheduled for 8 sessions but reduced to 6 sessions due to being determined NED, or in remission, per PET scan results dated 1/11/2011
What Melanomas of the Skin Cancer Survivors said about their Chemotherapies.
Fluorouracil treatment started Sept 2010 Fluorouracil treatment started Aug. 2011
Taxol, a pain in arm and in the Ass.
What Kidney Cancer Survivors said about their Chemotherapies.
no treatment yet?
Afinitor (everolimus) tablets daily, started on March 17, 2011
4 months, Oct. 2010-Feb. 2011 Avastin and Interferon
My husband was on a trial for a new chamo for renal cancer called "Sutent". He made no progess and instead suffered significant side effects that we believe plunged him into a spiral of ever increasing side effects of his cancer.
On my third treatment and then will have a week off
50mg sunitinib/sutent on a 28/14 cycle. I've had minimal side effects, but I just finished my first four weeks "on".
As of 8/3/11 on second cycle of Sutent, 28 on 14 off
Did Xeloda and Gemcitabine with no results
What Pancreas Cancer Survivors said about their Chemotherapies.
March 22(3 types of chemo) i feel it lessened his quality of life, but for my dad he needed to fight back!!!
June 2012-October 2012; Reported Lethargy, nausea, changes in taste, neuropathy in fingers, weight loss.
Chemo #1 on 4/02/10: I was more tired then usual and had a "blah" moment after going outside for a few minutes.
Folfirinox Jan 2013 - Feb 2013, switched to Abraxane and Gemcitabine March 2013-current
Gemzar weekly for two weeks and week off.
Gemazar.... So far, nausea and weakness
Pill form chemo winter 2009...threw up at end of each round
Gemzar, Taxotere and Xeloda
5-Fluorouracil (5-FU) My sister gets chemo every other week. Her main side effect is diarrhea. She has had 3 chemo fusions so far. She has diabetes and the chemo she receives has glucose in it so when she receives the chemo her blood sugar level goes sky high and she gets severe headaches. She then takes additional insulin following the chemo to help bring down the sugar levels. I am amazed at the medications that help her symptoms. When told she was going to have "bone pain" after a shot to boost her platelet count, she was told to take "Claritin".
Chemo once a week from 4/2/10 to 6/01/10: Was tired the next day with small "blah" moments.
started chemo 6/14. 18 treatments prescribed, currently going through chemo.
6/2011 tiredness, nausea, dizziness
More harm than good; no chemo
Gemzar Jan 2008-May 2008 Sept 2009- Oct 2010
1st session, September 20th. Once a week for 3 weeks then 1 week off. October 25th, white blood cell count was down for the 1st time, so they skipped chemo for that week. November 1, 2012, white blood cell count back up so they did chemo. December 2012 started 5 FU, Oxaliplatin and Leucovorin every 3 weeks to target the abdominal lining tumors that are continuing to grow. April 19, 2013, CT shows the chemo isn't working on the abdominal lining tumors, and they have given him the best chemo treatments they have, nothing more they can do. But will reduce the chemo he has been on to reduce painful sores in his mouth and side effects that were getting worse with each treatment, I think to keep the liver and pancreas tumors at bay and hopefully still give him pain relief.
Gemzar June, 2014. Nausea, weakness, fever, headache
Gemcitibine plus Xeloda started March 2010 continuing through August 2010. The disease was in remission until August 2012, when metastases to the lungs was diagnosed, and the cancer progressed to Stage 4. Gemcitibine plus Xeloda followed until a chemo break in May 2013 was prescribed due to indolent nature of lung mets and hand/foot syndrome. With increasing size of lung mets, January 2014 began with chemo consisting of Abraxane plus Gemcitibine again.
Folfox mix of chemotherapy -nausea, vomiting, diahhrea , nil taste I food, shaking, mouth ulcers, dry skin
Start date November 14 th chemo drug called Folfirinox 8 weeks every other week to try and shrink tumor away from artery
will be starting after Christmas
Yes, decided to participate in a clinical study, began chemotherapy Tx on June 21, 2013, one month after Dx
He had 7 types of Chemo I am not good with names, and he had two chemo embolization in which one nearly killed him because he got an abcess in his liver and it developed Sepsis back in 2007
I do not remember all of the names. The chemo was a combination of four different chemo drugs. It did not work. My father experienced nausea and could not taste anything so lost his appetite. He also was very sensitive to temperature. We are still waiting to start a trial chemotherapy drug! Pray, pray, pray!
What Oral Cancer Survivors said about their Chemotherapies.
2 cisplatin 3/22/2011: nausea! and fatigue!
1st and 4th week of Radiotherapy treatment, chemotherapy was also performed. 24 x 5 delivery of 5FU with a Cisplatin infusion on second day of each of these weeks. Side effects included a 'Chemo crash' both weeks I had the treatment - second week worse than the first (required blood transfusions).
Cisplatoin 1x week for 7 weeks Dates: Aug 2011 through Nove 2011 Side Effects include; Nausea Hair loss from both radiation and chemotherapy Eyesight has deteriorated a little weak
Erbitux, once a week for 7 weeks, starting in August. Initially, severe tongue sensitivity (at one point even water was like battery acid). For most of the treatment time, daily nausea and and severe acid reflux with occasional vomiting. As of today: chemotherapy induced neuropathy of the right leg causing the inability to lift my toes or my ankle (currently wearing a brace), but expect this to improve; whatever contribution Erbitux has towards complete dry mouth and lact of taste.
3 total - week one - week three and week five easy to do - no issues during treatment lost my beard and hair - so I shaved it short to look like I did it on purpose - wore a crocheted cap - head was always cold.
What Ovarian Cancer Survivors said about their Chemotherapies.
IP chemo. Taxol and Cisplatin. She has suffered from the following effects: fatigue, nausea, heart burn, pain in her lower abdomen, numbness/tingling in her hands, legs, feet and "chemo brain"
July 24,2009 first treatment taxol and carboplatin. The only problem I had was my own fault. I got sick that night because I came home and ate stewed tomatoes and chased it down with a Pepsi! Big mistake because I quickly learned that Chemo and acid DON'T mix. Treatments 2,3, bought feet itching, loss of smell and taste. Treatment 4 was not to bad slight big toe bleeds but manageable, slight problem with vision seeing bright white spaces from within my eyes. Treatment 5 I had a mouth bleed, neuropthy more consistant. Treatment 6 manageable but eyes still have the spots. Neuropthy worsens, still itching.
taxol and platins - 9 treatments completed 4/1/10 (3 of which included IP cisplatin)
Taxol and Carbo, every 3 weeks for 6 times, next (3rd) will be April 29. First three hours of administering drugs, agnonizing dizziness due to high dose of Benadrly to combat first few hours of chemo drugs. Next two days seem ok, with a false sense of energy, then day four through 8 no desire to drink, get dehydrated, can't stand or something strenuous for long periods of time, physically weak and tired always. Tiredness especially never is gone.
march-june 08: 6 taxotere/carboplatin november-april 09: 6 taxol/carboplatin oktober-? 09: started caelyx/carboplatin every side affect you can imagine
First chemo carbo/taxol on May 7th. so far, a bit of joint and bone pain, nothing else
Ultimately decided not to have chemotherapy; my original gyn/onc strongly recommended it, but once my second one was strongly against it (I had my surgery done in one state but live in another), I decided to get a third and fourth opinion.
7-2010 IP/IV chemo x 6 cycles ( cisplatin/taxol/carboplatin) Hair loss, extreme fatigue, abdominal pain... 11-2011 ca125 on the rise. 4/6 cycles complete of topotecan. Ca125 back in its place. BRCA 1 Minimal side effects: reasonable fatigue and well controlled nausea.
4 months of chemo. Made me achy like having the flu but much worse especially in my legs, naseous, food tasted bad, water tasted bad, low energy.
Carbo/Taxol 4 treatments (didn't work) Then Doxil and a Trial Drug EC145 4 treatments (didn't work) Then Trial with Perisofone and Taxotere 3 treatments (again didn't work) Avstin and Cytoxan. Trial with Avastin/Torisel. I'm exhausted just typing all of this.
My doctor said there wont be malignancy as the tumor was encapsulated, but it would be safe if i undergo 3sessions of chemotherapy. So i opted for chemo and had vomiting and hair loss while on therapy
3- one month cycles of cisplatin, bleomycin, and etoposide. Side effects: Nausea, hair loss (roughly 1 month after chemo began), fever
Cisplatin, Etoposide.. No Bleomycin due to pulmonary lung test not being "average" you could say
Taxol-2 doses until severe reaction Carboplatin- working trhough 6 doses, nausea, fatigue, forgetfulness!
6 rounds of Carbo Platinum and Taxol from 3/18/05-7/8/05 major side effect after the chemo was stopped: fatigue, memory loss Started chemo again in October of 2008. Taxol, Carbo Platinum and Avastin. Switched the taxol to taxotere after four rounds because of neuropathy. Major symptoms, nausea, fatigue, nose bleeds, low white blood cells, memory loss, did I mention fatigue?
1. Chemo Sept- Oct.2010 2. Chemo Nov - dec. 2010 currently ip chemo
Taxol+Carbo every 3 weeks, Taxol every week. Started March 2010. Hair loss, feeling tired.
I had to take 6 Chemotherapies, 3 pre surgery and 3 post surgery, five days each!
Carbo and Taxol 6 rounds. Loss all my hair, even my nose hair, eyebrows, everything. Weak, muscle and nerve pains, anemia
There were eight cycles of chemotherapy: 4 before surgery and after surgery 4. My body responded well to chemotherapy and tumor marker (CA 125) decreased from 690 for 4.
Taxol/Carbo 12/02-5/03 (with 2 Gemzar treatments) Avastin 8/06- 5/07 Etoposide / Avastin 8/08- Present
Taxol/Carbo x 8
I started chemo on Dec 3, 2012. I need to complete 6 treatments of Carbo and Taxol. My treatements or given over a period of 3 weeks. The first week I receive the full carbo dose and 1/3 of the taxol. The next two weeks I recieve the remaining taxol. I am having trouble keeping my WBC up with the weekly treatments. I had to have Neupogen shots to help give them a boost.
cistplatin, bleomyocin, etopiside, numbness in hands and feet nausea and weakness major chemo brain
10 rounds of chemo in 2004, hair loss weakness, nausea, you know the drill. 6 rounds of chemo in 2008, same effects
What Thyroid Cancer Survivors said about their Chemotherapies.
HAD 7 TREATMENTS ONE A WEEK FOR 7 WEEKS SIDE EFFECTS WAS MINIMUM DID NOT LOOSE HAIR JUST WEAKNESS OR LARTHARGIC MOOD ...
Radioactive Iodine treatment, 8/09 - nausea
Thyrogen injection #1: 4/14/10 - stings #2 - didn't feel a thing RAI-131: 4/16/10 - 203.9 units - so far, so good.
What Stomach Cancer Survivors said about their Chemotherapies.
Currently receiving- feeling bla- fatiqued- diarrhea
Original Chemo was Epirubicin, Cisplatin and 5-FU April-September 2nd Irinotecan and Taxane Current Fol Fox 4 + Avastin
4 months...not helping
Chemo every 2 weeks, nausea, vomitting.
Began chemo in July of '09 with camptosar, leucovrin, and 5-fu. this is over a 46 hour period. In January '10, they added avastin and zometa to the regimin and is ongoing.
cisplatine caused hearing damage, taxotere caused skin and nail damage and herceptin made my hands tingle. Xeloda wiped me out, and all of the above caused hair loss.
3/15/14 Began 10 session clinical trial at Memorial Sloan Kettering. Chemo iv (cisplatin and epirubicin + trial drug/placebo) every 3 weeks. 2000mg Xeloda pills daily. IV chemo is followed by two days of dextametazone (steroid pills) which give me a boost. Hair loss, dry hands - currently trying to prevent them from cracking, some fatigue. Trying to avoid pain meds because that seems to be the cause of constipation/discomfort.
No help says' the doctor.
What Brain Cancer Survivors said about their Chemotherapies.
i was supposed to get 8 chemo's. but i only received 7 because my blood count wasn't up in time. i had "Vincristine" (iv)every week. Cyclophosphamide(iv)every 6-8 weeks. Cisplatin (iv), every other chemo, and Lomustine (pill) every chemo.
Temodar throughout radiation and now higher dosages (5 days on 23 days off). Fever, low platelets, fatigue
7/08-1/09: I took pills for 5 days each month. The first month was fine. I thought, "this is going to be e-z." Boy, I wrong! After that month, it was horrible!
Chemo(Temador) 42 days - fatigue, memory loss,weak,nausea, no vomiting due to neausa pill taken 2 x day
Began 150mg Temodar on 1/3/2011 2nd Dose of Chemo to begin 3/17/2011
Scheduled for first time chemo (Temodar) in July 2011
Start chemo 9/12/11 Temador
I tooke Temodar pills from 08/2013 to 12/2013. The main side effects that I had were fatigue and nausea. I found that by taking my Zofran a half hour before bed and then taking the Temodar right before I went to sleep, I was able to sleep through most of the side effects.
Temodor- 5 days on, 21 off- October 2009- June 2010 Avastin- Every 15 days- July 2010- Present Carboplatin- Every 30 days- July 2010- Present
Hair loss, fatigue, loss of appetite, bruising from all of the blood work, achy muscles and joints, off balance, loss of concentration.
3 Cycles of Chemo - Cyclophosphamide, Vincristine, Cisplatin - Dec to Feb. (3 weeks apart) - Foot Drops and trips and falls 3 Cycles of Intensive Chemo with Autologous Stem Cell Transplant - Carboplatin & Thiotepa - Feb to May (4 weeks apart) - Hearing Damage
Nothing early on with the low dose, extreme fatigue with the high dose/ On his 4th round, sleeps 15 hours or more a day. Little appetite. Has been nauseated on and off.
Temodar, 12 month cycle with allergic reaction
At first it was the same as radiation, but when they got aggressive in August, I was stuck to the couch for 2 weeks. Weakness, major nausea, muscle and bone pain, throat swelling, mouth sores, major shivers and shakiness, tremors, spinal and head pain, throbbing from head to lower spine...theres more but can't remember them all.
low dose temodar- little to no side effects b/c of my use of supplements
temodar 42 straight days
1/12/12 - begin taking daily chemo pill Temador (not sure how to spell that) for up to 12 months.
Radiation & Temodar daily for 42 days then cycles of 5 days on 23 days off
Temodar - hair loss - tired.
started 9/13/2010-7 days a week, temedar. nausea and vomiting forst two nights. was ok last night so we'll see.
Temodar 160 mg nightly began July 21, and continued during radiation treatments. Chris had to take Zofran with the Temodar, so he didn't get nauseous. He will finish the chemo up the chemo September 2, 2013. He will get 4 weeks off, and begin taking a double dose of the Temodar for the first five days of every month for the next six months.
What more can I say other than YUCK! It has been very difficult thus far. Upon my first treatment I left the hospital, only to return a few hours later vomiting non-stop. Zofran hasn't helped. The only thing that does anything at all to combat the nausea is to drink plain green tea. I know it sounds weird, but it sometimes works.
Started Temodar on 11-23-09 380mg to much dosage, went to Hospital for low platelets 12-18-09 My platelets were at 6K !!!
Temodal - started Aug 15, 2011
What Multiple Myeloma Cancer Survivors said about their Chemotherapies.
Velcade and Dexamethason from September 2010 to December 2010. Aredia once a month since October 2010. The biggest problem is weakness and dizziness, I fell twice since I was dizzy and weak.
January 2006 and May 2006 stem cell transplants with hi dose malthalon chemo resulting in malthalon misery - tired and more tired.
Velcade, Decadron, Revlemid. Mostly fatigue and a slight loss of appetite.
1st cycle December 2010. Loss of hair.
March to October 2010.Four treatments every 3 weeks. Velcade, Dex and Zometa. October 2010 went to 1 treatment every two weeks, same medication.Still on this schedule as of this date Mar 8, 2010
4 monthly rounds of VAD prior to allogenous bone marrow transplant.
Velcade, dexamethazone, since transplant just added revlamid
Started chemo Mar 1st 2009 Continued pain,a very few side effects to date-next treatmentApril 12
18 series VRDD and VRD so far
Thalomid: Fatigue. Red spots that eventually covered my entire body. Neuropathy in feet and hands. Revlimid: rash, upper body.
What Colon and Rectal Cancer Survivors said about their Chemotherapies.
Bart has and still is undergoing Chemo. Bart has stage 4 Cancer. Bart's treatment of the tumor on his liver caused sloughing of the skin of his feet and hands. He is now on Erbotax. All tumors continue to shrink, and he feels great. Works most everyday he wants, as usual.
2/1/2010-3/11/2010 F5U pump 24/7 5 day/week, combined with the radiation, tiring. 7/23/2010 start, 12 treatments every 2 weeks. 5-FU, Eloxatin,leucovorin calcium; side effects - inconsistent energy, more emotional 2/2012 FOLFIRI; side effects diarrhea alternated with constipation, hemorrhoids, nausea, Tired
Erbitux Xeloda Oxalyplatin Avastin
24/7 pump 5fu.
March - August 2005 Luecovorin, 5fu, and Oxaliplatin. Had issues with joint and muscle pain, skin peeling, Neuroathy (with cold things/and taste) Minimum hair thinning and minimum nausea, fatigue was an issue. This was 3 days a week every other week both at office and home. 2008-Fulfury- was very very sick, constant nausea and vomiting, fatigue, only did two treatments and quit, because I was so sick it felt like the chemo was killing me. This was also a take home bag 3 days a week every other week. 2010- Urbetux (Erbitux) not sure of spelling with a benedryl cocktail pre-treatment to stave off allergic reactions,This is once a week for a few hours every week, has mainly caused skin issues, Acne like rash that has turned into cellulitis (skin infection) in some spots, I am now on antibiotics strong enough to fight MRSA just in case and pain meds as it is very painful, but it's getting better and in 2 weeks I will go back and we will see where it stands as far as do we have to cut my dosage back?
Xeloda (oral chemo) for two and a half weeks.
CHEMO 1/2/2012, CHEMO 8/1/2012, CHEMO 7/1/2013 HAIR LOSS
FOLFOX first cycle June 11 (infusion) and then the pump 46 hrs; some odd effects on swallowing, a little constipation, a little diarrhea, no food problems :)
two 6 month bouts...one 2004 to 2005. next March 2007 to Sept. 2007
dec 06/jan 07; sores in mouth; diarrhea; pneumonia; hospitalized for 5 weeks
FOLFOX beginning on May 19th, for six months, twice per month. I hope to report no side effects....and then I woke up....
Xeloda 3000mg by mouth twice a day for 5 1/2 weeks. Some skin issues with ears peeling, body aches & pain, very tired.
FOLFOX started 2/11/2012 and ended on 7/18/12. The oxaliplatin in the FOLFOX caused peripheral neuropathy.
Feb. 1-July 22, 2013, 11 rounds. Oxyaliplatin, 5FU and Leucovorin. Side effects - fatigue, stomach issues, sensitive to cold (whether eating, drinking, touching or being in the cold), neuropathy in both hands and feet (very debilitating, numbness - hard time walking and in the hands, fingertips especially feel like they are burned.
10/13/14 - 11/26/14 (1st Round) 12/23/14 for 5 weeks (2nd Round)
5FU and Oxaliplatin. Started July 15 2009, every other week. Lots of fatigue neuropathy from the Oxaliplatin getting worse with each treatment, tingling, numbness, burning, shooting pains.
Bi-weekly Chemo 6 months Oaxliplatin/ fluorouracil 5-fu
Oral chemotherapy taken on radiation days 08/10/2011 - 09/19/2011 No side effects. Folfox - Begin 01/10/2012 - End date due to non-cancer complications: 4/18/2012. To date: lip numbness when I go in the cold for a couple of days after treatment. Cold sensitivity to foods and drinks for the first few days after treatment. No issue with fatique or nauseu to date. Xelox to replace Folfox: 05/02/2012 No side effects. End date due to non-cancer complications: 06/05/2012.
6 weeks 3000mg xeoda pre surgery. 4 month 5000mg xelota post surgery. Oxi recommended. Tried but side effects too extreme. No hair loss. Tired and weak. Low energy with uncontrolled diarrhea.
folfox + 5fu (dec 07-jan 08) folfiri + 5fu, avastin, cetuximab (jan 08-current)
Chemo during radiation and after surgery. October 2007 - February 2008. Normal side effects. Worst was the weight loss due to the temporary bag I had.
First circle two times for one week during radiation, second circle stopped after the first week because of acute leucopenia.
5-FU, Lucavorin, in 2002. Folfox in 2005. All side effects possible including developing blood clots and major weight loss.
Sept. and Oct. 2005 - seven days a week 24 hours a day for 5 weeks, plus every Mon. for 4 hours
What Liver Cancer Survivors said about their Chemotherapies.
11-19 chemo pellets not sure of the name, nausea,
On going chemo regiment and had one chemoembolization.
TACEdeb procedure begining of June....side effects... all haha vomitting, nausea, fever, pain, pancreatitis.
Nexavar 8/22/12 - forever, side effects all listed
Nexavar - Current (8 months)
First treatment was June 8th 7 hours between the other meds olus the chemo..Cisplatin and Gemzar.. Felt ok the day after but then started feeling very sick, achy, headache, ringing in ears, coulnt eat, weak, dizzy,tired,shaky all over I only felt well enough to go to the doctor on the 7th to have my blood drawn..saw dr and he said he would up my steroids next time and that should help second treatment was on the 8th, Just the gemzar.. Really tired and achy. Dizzy and weak. Had my shot of Lewnasta on Monday. Still fell tired and bone pain
every kind, all the time for the last 5 years
No chemo as no primary cancer found and chemo will only add a few months to life, yet these extra few months will be with the side-effects of chemo
7-2008 to present. Lethargic, no appetite, not able to focus for too long on anything, weight loss, strange thoughts, sleep seems to be all REM, dreams and or nightmares about Nam seem to pop up while I'm awake,anger, especially at the VA for not stepping up and admitting and approving my claims.
Tried Nexavar for one day, but decided against it; bad side effects--felt cloudy, nauseated like when I was on Interferon/Ribaviron and had rectal bleeding from the Nexavar; not worth it to buy a few more months of life; discontinued
i will tell you
What Cervical Cancer Survivors said about their Chemotherapies.
Had cisplatin for 6 weeks during radiation, now am on my 5th of 6 treatments every three weeks (taxol and cisplatin)
1st chemo on 2/16 Cistplatin. had Headache for 2 days ??decadron given for nausea. mostly fatigue---but can't blame it all on the chemo. to have 6total treatments
Cisplatin: Took 2 treatments, 1 week apart. Tolerated well. No nausea, though stomach very "acidy" feeling. Eating bland foods often throughout the day helped. Did have some tiredness. No loss of hair. Had to stop Cisplatin for a while due to frequent ringing in ears. Cisplatin can lead to permanent hearing loss. Was able to complete last 4 Cisplatin after a break. Have some hearing loss, but not much. Will be using an experimental drug-Avastin, as well. Avastin: no loss of hair. Felt a coldness in the core of the body and extremities. Combined with Cisplatin, usually left me feeling poor and unable to work for about 5 days. Starting Taxol, Carboplatin, and Avastin again next week.
2 rounds of Taxol/carbo 11/2011 & 12/2011...Is being changed for 1/2012...not sure of new drugs yet
cisplatin, felt and tasted every drug they put in my body. It was very yucky. I am incredibly sensitive to the medications and was eventually given Ativan to help me sleep through it all. Lasix was fun though at the end of treatment peeing every 5 minutes!!
Constipation. Fatigue. Nauseau. Metalic taste. Weight loss.
Cisplatin via port
Cisplatin (40 units) every Monday for five weeks, beginning April 26, 2010. Hair thinned; veins hardened; steroid acne; acid reflux; turned yellow after treatments (that was odd).
5 treatments of Cisplatin
4 cycles (1 wk on 3 wks off) Cisplatin for 6 hours on day one, sent home with 5FU med pump for 96 hours. Side effects- nausea, diahrrea, agitation, black nail beds, hair thinning/loss, dehydration, irratation, moodiness, list goes on and on.........
Have had 5 chemo treatments. Took 5 hour "naps" afterwards. Some foods tasted nasty! Normally a huge water drinker but water nauseated me. Required at home IV infusions of Potassium and Magnesium for 8 hours/day for total of 15 days, also received a few infusions at the clinic for dehydration and low electrolytes. Anti-nausea meds didn't work on me.
That also starts withen the next 3 weeks.
Cisplatin once a week In conjunction with the radiation. Then Five series with Etoposide.
methotrexate injections every other day via injection
Weekly chemo for six weeks
Chemo not too bad with side effects. Im puffy. Numbness and tingling.
1 night a week, 12am-8am - December 2008/February 2009 Bedwetting, weight loss, nausea, fatigue, immuno-issues. (I caught the damn BIRD FLU!!)
Oct 07 to Dec 07 - Cisplatin chemo 1x a week with radiation;. Constant terrible nausea, very sensitive to tastes and smells. Ate only carbs, couldn't even stand the smell of my dog! Everything nauseated me. Aug 08 to Dec 08 - Carboplatin and Paclitaxel every 3 weeks x 6 doses. Hair gone by 2nd treatment, fluid overload on chemo days due to drugs being hard on kidneys - had to flush. About 2-3 days post chemo, horrible bone pain, numbness and tingling in hands and feet (peripheral neuropathy) and constipation that almost hospitalized me. Would last for a week or so and then settle down. Horrible fatigue, felt like lead. My hair started coming back really quickly after treatment stopped,but the neuropathy lasted almost a year, fatigue continues to be a problem. UPDATE Feb/10: Going back for another 6 rounds of the not so pretty poison. Carbo/Taxol once again. Gonna miss my hair...oh yeah, and the ability to feel human!
I couldnt eat as much as I thought I would be hungry. Most food tasted terrible. I was able to watch much tv. I never watched tv since I was a kid. I am an active outdoor person, I felt it made me become lazy. lol I got the flu, lowered my immune system, however my red blood cell count always stayed very good!
combination of xeloda and cisplatin- some loss of appetite, some naseau ( not too terrible), and some fatigue--started treatment in February 2006 cisplatin was administered once a week for four weeks and xeloda was taken orally Mon.-Fri. for 3 weeks, treatment was stopped early due to low blood counts
Cisplatin for 6 weeks Cisplatin & Topotecan for 4 21 day interval treatments. 3 day duration of treatment. CHEMOTHERAPY TREATMENTS are the treatments that made Aimee sicker: nausea, vomiting, diarrhea, and weight loss of 35#. She also had 10 blood transfusions during the 2 treatment plans because the cancer and chemo were killing her simultaneously. During her final treatment in January 2009 she had an allergic reaction and coded in the clinic. Treatment was discontinued and Palliative care began.
Cisplatin low dose for 5 cycles once a week. Tolerated it well just very tired. Considering I had concurrent radiation and chemo it was hard to tell what was causing all my nausea and vomiting but we think it was the radiation.
Chemo-has "chemo brain"
i was put to sleep with benegril
What Larynx Cancer Survivors said about their Chemotherapies.
Induction chemo for 2 months prior to radiation treatment - once a week during radiation; mouth sores for four days after first round, hair loss, fatigue, and some taste changes, but all in all, he did really well. Very little nausea.
12 total Erbitux sessions, once weekly, January 13 - March 31, 2011. Increasing fatigue and, ironically, insomnia following each session. From mid February through the end of treatments, somehow the Radiation/Erbitux mix seemed to spawn clusters of migraines.
Oct 8th- January 13th, 2010 Lost Hair after 21 days. Fatigue, dry mouth, muscle cramps that were very painful after 1st treatment. terrible rash on my head and neck the whole time I was taking chemo.
What Acute Myeloid Leukemia Cancer Survivors said about their Chemotherapies.
hydrea - 02/2009 little/to no side effects
3/07- induction and followed by 3 consolidations. High dose ara-c and danirubicin. SEs include alopecia, fatigue, headaches, n/v, chills/fevers,low blood counts.Remission for about 2yrs, then it came back. Currently rec'd more chemo, with an unsuccessful remission at this point. More chemo planned, then bone marrow transplant.
Oct 14th- 7 days Vidaza Nov 23rd- 7 plus 3 Dec 25th- fludarabine and busulfan
i had three induction therapies spaced about 6 months apart. and just completed two consolidation therapies. i am preparing for a bone marrow transplant.
first round for 5 days 2 times a day 2nd round a month later every other day 2 times a day for 5 days 3rd round was right before transplant 7 days of 3 differant chemo non stop the worst chemo was this one .....
the only side affect she has had is toxemia, and neuropothy.
Round one: 7 days of continuous chemo. Round two: 5 days of 2 times a day chemo Round three: 2 days of 2 times a day chemo Followed by 3 days of 2 times a day total body radiation.
oct induction chemo, Nov another bout of induction chemo as first did not work. Jan: consolidation chemo Apr: additional chemo to prepare for bone marrow transplant.
I had Etoposide, Daunorubicin and Cytarabine. I had it over 4 rounds, each round about 3 weeks apart. My hair fell out, I felt so sick and so so tired. With the first round, my legs got insanelt itchy because of the Etoposide. My tastes changed-I lost my sweet tooth! Nad things didn't have much taste. There is still a few foods that I just can't eat yet. Chemo brain! My memory is shocking and I'm easily distracted with basically no concentration ability at all.
11/2009. 1/2010. Neuro side effects. Weakness. Nausea.
Always sleepy or nausous
Since June 2012 - july induction, August consolidation, Sept. consolidation, december 2012 induction. Stem cell transplant now on hold.
photosensitivity, some nauesea
idarubicin and atra began in april 2008 vomiting,diarhea,blood and platelet transfusions many transfusions
I've had 2 rounds of induction therapy and just finished my 4th round of consolidation therapy. Side effects have been different with each round. My hair only fell out my first round. Have experienced nausea, dizziness, weight loss, appetite loss, headaches, brain bleeds, metal-like taste in my mouth and food, lethargy, loss of endurance and stamina, chemo brain, grogginess and foggy brain, memory loss.
I have been taking low dose chemotherapy via and infusion pump. I may need a bone marrow transplant at some point.
High dose chemotherapy, March-June 2012. Side effects: Nausea, vomiting, weight loss, fatigue.
chronic vommiting ,hair loss tiredness
Nausea, vomiting and fatigue. Zofran helped a lot!
1st round-12/09/2011Atromycin for 3 days nd Cytosar. for 7 days.
Multiple protocols for ALL & AML.
Ive been on too many chemos to describe. Generally though I handle them well. You will feel the nausea and the fatigue for sure. Mouthsores and hairloss come later. I usually go feverish at some point too.
I have been through my first month of Chemotherapy. I am now going to the Mayo Clinic daily as an outpatient taking doses of arsenic. No Fun!!!
What Chronic Lymphocytic Leukemia Cancer Survivors said about their Chemotherapies.
Rituxan with High Dose Steriods - 2009 Campath - 2009
Fludarabine - 8/7/06 - 8/11/06 -- tired and nausea Rituxan - 8/11/06 - "shake and bake"...you name it I felt it...dizzy, chills, threw up, nurses very good in giving me appropriate meds to counteract side effects
What Testicular Cancer Survivors said about their Chemotherapies.
My husband had 4 cycles of chemo. Aug 2005-Dec 2005. Son is having 3 cycles. Started 8th June 2010... next cycle 28th June 2010. Both lost hair.
Bleomycin, Etoposide, Cisplatn (March 07 - May 07) Cisplatin, Taxol, Ifosfamide (September 07 - November 07)
Loss of hair, loss of weight, loss of wife. LOL
had no treatment
I was on three types Cisplatin,Bleomycin,& Etoposide.I started treatment in 9/08 and finished 12/08,four cycles.Effects were real BAD..it sucked hair started coming out about two weeks after first treatment,rashes just sick most of the time.
Chemo Began 12/02/2013... Bleomycin-Cisplatin and Etoposide
Bleomycin, Etoposide, Cisplatin (BEP) 4 cycles Side Effects: Blood clots, low blood pressure, fever, neuropathy, vomiting, nausea, hair loss, weight loss
Four rounds of VIP. Ifosfamide, Cisplatin and Etopiside, one day Cytoxan to motivate marrow growth.
What Chronic Myeloid Leukemia Cancer Survivors said about their Chemotherapies.
Interferon from onset- continued hospital admissions,recurrent infections, suppressed immune system Gleevec May 2001 to April 2010, minimal side effects, mostly nausea, malaise. April 2010- Present 800 mg. Tasigna daily requires weekly EKG due to this drug has been linked to A-Fib
I've been on Gleevec for 3 weeks. the first week was no different than the previous ones, lots of fatigue, but that is from the leukemia. In the second week, I started having more pain and some diahrrea. The diahrrea cleared up in a few days but the pains got worse. By week three, I have a lot of bone pain. I can get around and i can work, but it hurts quite a bit to move and my legs (thighs) are the worst. I often wake up with pain and my fatigue is not improving.
What Acute Lymphocytic Leukemia Cancer Survivors said about their Chemotherapies.
2-CdA, 2-hour infusions, 5 days. October, 2002. Progressive fatigue during treatment week. Could barely have energy to walk on day 5. Week later, UTI, high fever and fear of no immune system put me in hospital (reverse isolation) for a week. 2 blood transfusions brought counts up enough to go home. Fatigue endured for two months. Was back on job (teaching) in January.
Hyper CVAD protocol. Started 3/22/10. None for the first 3 rounds of protocol. Last 4 rounds have had N/V, extreme faitigue, bone and joint pain.
Jacob began chemo in February of this year. Things went really well and the only side effects that mom and I could see were abrasive hair (prior to it falling out), weight fluctuations, some nausea, and an aversion to sweets.
I have 6 months of chemo: 1. Daunorubicin, Vincristine, Asparaginase, Prednisone 2. Cytarabine, Etoposide 3. Methotrexate months 4, 5, and 6 are a repeat of months 1, 2, and 3. I also had 6 doses of intrathecal methotrexate (chemo injected into my spine). I am getting cytarabine, methotrexate, and a steroid intrathecally. I think I'll also get one round of high-dose cytarabine intravenously prior to transplant.
I recieved Chemo in 2004-2006 with my first diagnosis of ALL. I relasped in June 2011 and started chemo on June 24-July 18. I will continue chemo until my Bone Marrow Transplant.
An assortment of chemo drugs administered through an IV, spine and orally from Oct. 2009 - June 2010: Vincristine PEG-aspariginase Doxorubicin Methotrexate Cytoxan Cytarabine 6-MP 6-TG Side-effects: Nausea, Vomiting, loss of appetite, EXTREME fatigue, loss of muscle mass, mouth-sores, headaches, inability to concentrate (a.k.a. Chemo-brain), hair-loss, altered mood, bone pain.
I didn't really focus on what chemo I've gotten/getting, but my main side effects were nausea and fatigue.
Vomiting, hair loss, fatigue, mouth sores, reduced immune function.
I'm not going to tell you anything you would be shocked by here. I'm bald - and have been for two years. 98% of anything I eat upsets my stomach in some way. I wish I could sleep all the time, but I have a 5 year old little girl, a full time job and a husband so that is possible. Other than that, Cancer sucks, Chemo sucks worse, but we will all get through it, right?
lots of dates, spinal chemo right now are every three months and that causes head ach pretty bad for her and also some nausea vincrisine she gets once a month and that hurts her jaw arms and knees. mostly the joints. mercaptiprine, is every day, that just gives her a weird rash. methotrexate makes her sleepy
I don't remember all of them, but cytotoxin was one of them
Methotrexate, Doxyrubicin, Vincristine, Vinblastine, Cytarabine, Etopomide
What Anal Cancer Survivors said about their Chemotherapies.
Mitomycin and f5u-begin 4/12/11. . . . I was EXTREMELY tired and became EXTREMELY short-of-breath (ended up with bronchitis, but I have asthma.) One of the meds, Mytomycin, I think, can adversely affect the lungs. My thyroid got messed up so I now take meds. Nodules on lungs, on CT . . . monitoring those.
Nausea and fatigue. Hair thinning and loss due to mytomycin.
2/8/10 - 2/12/10: 5-FU and Mytomycin. 3/8/10 - 3/12/10: 5-FU. Nausea, loss of appetite, weight loss, lethargy, weakness, late effect hair thinning.
No problems with chemo. Lots of itching from radiation
scheduled for Jan 4, 2010
April 2011 nausea and vomiting, weight loss,neutropenia,mouth sores, hair thinning April 2012 nausea, mouth sores, hair thinning
Mitomycin + 5FU - twice. 1st and 5th week of radiation
Port unplanted chemo came in a pump that I worn for 2 or 3 days. I had 2 treatments. Lost a little hair on the 1st round. The 2nd round I ended in the hospital for 8 days, just about took me out.
Scheduled to begin 10/18/10, Fluorouracil and Mitomycin, 1st and 5th week
5-FU infusion mitomycin.. lss of appitite for a week, mouth sores.. feeling better when we took pump off.
Nigro protocol. Other than being tired and losing about 1/4 of my hair, the only serious side effect was mouth sores. I did have optic neuropathy for about 6 hours one week after each 5 FU.
Starting Chemo 19 April 2011. Will be doing a 5 day Infusion 5fu for 3-4 weeks.
Chemo doable. Nausea, constipation (turned out my gall bladder wasnt funtioning but had to wait for surgery until long after completed therapy.)Dehydrated one time (walked for hour outdoors as it was a lovely day) so badly home nurse came to house to hook me up to fluids and it worked immediately. Radiation was more difficult in that I knew, due to light skin, that I would be much more burned. I was surprised when the treatment was over that I continued to be radiated though I wasn't receiving radiation but felt I was receiving it daily for approximately two more weeks.
Currently on taxol/carboplatin Prior treatment of Folfox 6 showed no sign of lung met shrinkage.
F5U 2 runs of 96 hours, Side effects included some nausea and tiredness.
PICC line surgically inserted for take away 24/7 chemo, replaced weekly. skin rash on chest, drop in blood pressure, drop in red cell count requiring x3 blood tranfusions, nausea, dizziness, alternating constipation through pain meds and diarrhea from chemo/radiation combo, mouth sores, lack of appetite.
Gi toxicity, fatigue, bone marrow suppression lasting many months hair loss, went in the hospital for a fever of 104 with low white count
First chemo started same day as radiation on 3-17-14 with a single dose of mitomycin and an infusion pump of 5-FU for 4 days. Beginning of the 5th week we repeated this process with 20% less mitomycin due to the low blood count. The first round I had few if any side effects. Felt tired and slow but when I got the pump off, I started to feel better. The second round was more difficult and my blood count fell too low, I got a low grade fever and ended up getting 2 blood transfusions and 5 shots to help build up the blood cells.
Cisplatin and 5FU, nausea and dizziness
Nausea. Started chemo on August 26, 2014. Two rounds of chemo meds: one at the beginning or radiation and one at end of radiation.
1st Mitomycin on Nov 18, 2013. 1st 5FU Nov 18 - Nov 22, 2013. 2nd Mitomycin on Dec 16, 2013. 2nd 5FU Dec 16 - Dec 20, 2013. Similar side effects both times: fatigue, mouth sores, gum bleeding, cramps, body pain, nausea, some vomiting, decrease white and red blood cells, some hair shedding after treatments; but much hair shedding suddenly began again two months later (not thyroid).
Mitomycin C and 5FU infused for 96 hours (4 days) during week one and week 5 of radiation
She has had 2 full weeks of chemo. FU5 and mitocytin. The second one they reduced the dosage as she had a violent reaction. She will finish the 2nd week of chemo on 1/21.
First week and final week of radiation treatments. Chemo pump. Itchy head and chest rash within 4 days after treatment started. Minor mouth sore 1 week after. Diarrehea two weeks after. Hairloss and drop in blood counts 3 weeks after.
What Pleura, Malignant Mesothelioma Cancer Survivors said about their Chemotherapies.
On Chemo from April to Sept 2010. Main side effects were fatigue, weight gain, mouth sores occasionally.
What Bone Cancer Survivors said about their Chemotherapies.
i cannot sleep..i cannot eat..i do vomiting
First time I did chemo was on May 2006 and I lost my hair, throwing up, rashes, weakness. Just pure hell.
A year of hell Ill never get back
What Nose, Nasal Cavity and Middle Ear Cancer Survivors said about their Chemotherapies.
See the Chemo Dr tomorrow, too. Don't know if I'm going to do it.
What Nasopharyngeal Cancer Survivors said about their Chemotherapies.
chemotherapy given from January to September Side effects: dehydration, vomiting, blood transfusions
3- 8 hr chemos mostly nausea.
Jan 2009-june 2009: lung nodules shrunk a bit and last CT scan end of june showed no growth: little nausea, tired all that stuff
Started weekly induction chemo on 9/5/13 with carboplatin and paclitaxel- soreness in mouth, slight nausea, dry skin (severe itching), acid reflux. Started chemo-radiation on 11/4/13 using cisplatin. Received 5 weekly cisplatin treatments until wbc count was too low.
What Ureter Cancer Survivors said about their Chemotherapies.
Taxol and Carboplatin. Started November 2008, should be completed March 25, 2008. Side effects some nausea with first treatment, leg pain and neuropathy.
What Peritoneum, Omentum and Mesentery Cancer Survivors said about their Chemotherapies.
Carboplatin and Taxol once every three weeks, 6 times. Fatigue, faux sence of energy at first, couldn't sleep for two day after, then crashing with neuropathy pain and fatigue
What Gastrointestinal Carcinoid Tumors Cancer Survivors said about their Chemotherapies.
First & only dose: 09/05/08-5FU/Leucovorin/Oxaliplatin - side effects? fever, rash (?), edema, fatigue, neuropathy, dizziness, confusion (some); nausea, hand/foot - more, but can't remember them.
chemo side effects hair loss some weight loss vomitting sweats shakes hot cold pain emotional skin tone looked unhealthy
What Esophagus Cancer Survivors said about their Chemotherapies.
Chemo is rough.
currently undergoing treatments
preadjuvant, and adjuvant, 12 week cycles with cisplatin, epirubicin and 5FU. For recurrence it was oxciliplatin, leukovorin and 5FU.
Too many chemo regimens and drugs to count. At present, I am on Xeloda, Herceptin and Avastin. One drug was damaging my liver, but okay now. Herceptin was damaging my heart, but it is okay now.
Carboplatin/Taxol, continuous 5FU drip March/April 2008 Taxotere July/August/September 2008 Cisplatin January/February 2009
Carboplatin and Taxol for 5 rounds. No side effects at all except tired on day 2 & 3 post treatment day. Tolerate chemo well.
june 13 2011. no side effects yet
Sysplatin that almost killed my it caused my kidneys to shut down. I cause me to become completely dependent on others. I didn't spell the Chemo right but it sounded like that. I don't know what the fed me after I was released from the hospital.
1-2 treatments per week for 6 weeks along with radiation
chemo from 2/98 through 9/98
What Tonsil Cancer Survivors said about their Chemotherapies.
11 treatments ended about 11/07/2011
3 Cisplatin Chemo's, starting July 17, 2014
Cisplatin= 1 day a week for 7 weeks
Cisplatin gave my husband ringing in ears but much better now. Had complications each time after a chemo. Was hospitalized twice for them.
Chemo start date 10/5/09, three sessions, one every three weeks (cisplatin)
Cisplatin - I was sick every day. Had to take anti-nausea medicine every 2 hours.
My cocktail included Fluorouracil and Cisplatin.
3 treatments. Cisplatin at first but had terrible digestive side effects so used erbitux for last 2 treatments
Hearing loss and ringing in my ears. 3 chemo treatments, first, fourth and 7 th week. Saliva got thicker then syrup,honey after treatments ended. Couldn't swallow and had to sleep sitting up in a recliner for weeks afterwards.
September 5 - 3 rounds
7sessions, once weekly Metal tasting food, general lousy feeling 2 days after treatment.
2 Full Week Doses (M-F)
3 Cisplatin mega doses, 100 units per time, 6 hour chemos
3 heavy does of cisplatin thankfully no hair loss or sickness just some constipation which was a pain oh and some weight loss
GREAT NEWS!!! No Cisplatin treatment!! Only going to use Cetuximab! which means I will not be getting all the side effects of Chemo type treatments!!!
Chemotherapy (Cisplatin) Treatments January 14th through March 4th 2013
Cysplatin; 3 treatments; lost hair on face, massive vomiting and dehydration
Cisplatin & Erbitux 1x/week, amifostine injections 5x/week 20min prior to radiation.
April 9, 2012 (Only made it through 4 treatments as it made me incredibly sick.)
Cisplatin. 2 infusions 3 weeks apart.
For details see my posting.
Chemo coming up
3 heavy dose (8 hours each) chemo. sessions.
CisPlatin 3 doses at weeks 1,3, 7 of radiation. Mild hearing loss of high frequency sounds after first dose; reduced dose on last 2 sessions to minimize additional hearing loss.
What Mesothelioma Cancer Survivors said about their Chemotherapies.
carboplatin, alimta 8-27-09
What Endometrial-Uterine Cancer Survivors said about their Chemotherapies.
6 chemotherpay treatments. Cisplatin for 2 and Taxol/Carbo for 4. Stomach nausea,bone pain after Neulasta shot, constant dehydration, tired all the time & neuropathy in feet.
Lost hair not much else
6 rounds of chemo; every three weeks March - June 2014; few side effects; some joint and bone pain for a couple of days after each treatment; some neuropathy in my feet
currently doing carbo/taxol every three weeks. Extreme fatigue, muscle aches, taste changes
INITIALLY TOLD NONE NEEDED 7/6/09 MY DOCTORS REISDENT CALLED AND SAID NONE NEEDED BUT AT THIS POINT I DO NOT TRUST MY DOCTORS AND WILL SEEK NEW HELP SURGERY 8/6/09 REMOVAL 27 NODES NO CANCER...SO NO CHEMO WILL BE NEEDED
Finished Aug 23, 2011. 6 treatments completed. Zofran for anti-nausea worked but caused headaches.
little queasy tired bald last one nov 5th 2010 yesssssss!!
Carbo/Taxol every 3 weeks, 6 cycles
Started my chemo on Sept 11th of 2008. I have to complete seven cycles. I receive cisplatin and adriamycin on the first day of treatment along with other pre-meds such as decadron and emend. Second day of treatment I receive Taxol and the following day I go back in to get a injection of neulasta.
felt sick all the time, metal icky taste, neuropathy, ruined joints >:( bone pain
November 2011-December 2011--6 administrations of Taxol and Carboplatin; strong allergic reaction to Taxol (could not breathe and it felt like my back had been struck by a car) handled with heavy doses of Benadryl and slow infusion; lost hair all over my body slowly during treatment and over several months after treatment; painful tingling in feet and hands; fatigue; bloody nose daily; ridges across nails on hands; skin toughened on backs of hands and tops of feet; hair on my head hurts sometimes months after treatment.
TBD but they definitely want to do it.
See Surgery Description> apparently I cannot follow directions
May 2010 Chemo Carboplatin/ Taxol, nausea, fatigue, hair loss
Haven't started yet. Need advice.
Every week on Day 1 & 2 and Day 8.
Taxol/carbo, starting Dec 12, 2007. Some joint pain, hair loss (boo-hoo) and slight stomach upset.
Cyclophosphamid Carpoplatin Taxol
recommended to start after radiation
Chemo 6/21/10, 7/12/10, 8/2/10, 8/24/10, 9/14/10 - nausea, fatigue, bone & joint pain, diarrhea, neuropathy; scheduled for 1 more round
Chemotherapy Carboplatin, Taxol
Chemo start date 7/15/09 - Doxil infusion with Ativan and Compazine every 21 days...that was "potponed". Chemo, once started, was be Doxorubicin and Ifosfamide - 4 days of 24-hour infusions. Mom was having delirious thoughts from the chemicals, they took her off of food - the doc said she "had enough fat on her" to get by without food. She was in and out of sleep from the sedatives in between chemo.
Start in mid October.
Starting chemo (carboplatin and taxol) on 4/27/11. Will have 6 sessions, one every 3 weeks.
What Sarcoma Cancer Survivors said about their Chemotherapies.
Doxorubicin Cisplation Methotrexate Ifosfomide Etoposide
cistoplatin made her very ill
Still to be determined.
Currently still undergoing chemotherapy. Started in October of 2010 and should be finished up just before or around early March of 2011.
IE and VAC treatment every 3 weeks. Lost weight and all my hair/ body hair
Currenly going through Ewings Sarcoma protocol for Chemotherapy. 14 total cycles.
Had AIM protocol (Adriamyacin, Ifosfamide and Mensa) for all of 2007, then in 2010 I had Yondelis, a clinical trial, also for a year. The AIM made me lose all my hair, had frequent need for transfusions of blood and platelets and I had many infections. The Yondelis did not make me lose hair, but the other side effects were the same.
Chemotherapy lasted from July 2010 - August 2011 His chemotherapy consisted of Vincristine, Doxorubicin, Cyclophosphamide, Ifosfamide, and Etoposide. Some vomiting and lots of nausea.
After 3 rounds of chemo and some radiation Nicole's doctor pronounced her freee and clear. This was not true and with Rhabdo, if you don't get it all and leave even a half of a cell the cancer comes back ten times stronger causing it to be incurable.
Doxorubicin and Ifosfamide: together from jan 2011 - april 2011. Bloating stomach, hair loss, skin darkened, gums darkened, bloated face, sore feet , palms and soles of feet became dark,tiredness, constant spitting. Trabectadin: Nov 2011 -Dec 2011 Didnt work. Constant spitting, skin darkened, gums darkened,face bloated, tiredness could not leave bed for one month. Just felt totally ill.
Currently going through chemo... some of the side effects that I am experiencing are mouth sores, and sore GI tract. Definite tiredness, lunula turning black, of course hair falling out, complete loss of taste buds and smell during chemo but fine after.
Gleevec, vomiting, diarra, swollen eyes and ankles, cramping in hands feet arms legs, fatique, from 10/19/07 till current.
Chemotherapy started on 20th Dec 2008 and I chose to stop in June 2009 (I was meant to finish in Nov 2009, but when I found out my tumor was no longer shrinking, I physically could not deal with the side effects anymore). I lost my hair, which was by far not the worst side effect! Mouth sores, lost my sense of taste and smell. Horrendous constipation. Nauseous most of the time. Not able to eat. So completely exhausted, not even energy to stand up some days. Felt extreme cold, then major hot flushes, wake up drenched in sweat. Eyes always sore and watery. My chemotherapy was every 3 weeks, which took 5 days in hospital to administer IV - then every month when home I would spike a massive temp & have to be rushed into hospital for blood transfusions and isolated for neutronpenia! Chemo turned me into a shell of my former self, it destroyed my spirit and had me in tears most of the time. It was a hard, hard fight.
I have Chemo once a month. The Chemo caused the whites of my eyes to turn Fire Engine Red. It was a reaction that none of the nurses had ever seen. I was given IV Benedryl. The dose of the medicine knocked my butt out. That was my first treatment on May 21, 2012. I was set for 3 treatments. My Oncologist was not sure if the Chemo would work to begin with. Within the first treatment I could tell a difference. I was amazed. I could actually feel the mass and it was smaller. So, Dr. M ordered another 3 treatments for a total of six. I lost all my hair, eyebrows and eyelashes. Hey, they will grow back one day. I don't mind. I love all the scarves and hats I have bought and been given.
What Skin Cancer Survivors said about their Chemotherapies.
Photo Dynamic Therapy for any AKs... skin checks every three months
What Throat Cancer Survivors said about their Chemotherapies.
Dry Mouth. Lost body hair, Sick at stomach, weight loss.
1997- Cisplatin/5FU - I wanted to die (permanent hearing loss & temporary vein loss) 2003 - Cisplatin/5FU - Extreme discomfort; bloating, burning, nausea, etc. I refused further treatment. 2005 - Taxol, 5FU, Carboplatin, Leucovorin - side effects so bad I quit 12 course regimen after 4th course 2007 - Taxol, 5FU, Carboplatin, Erbitux, Leucovorin - I wished I were dead! after 9th course I was not recognizable; the erbitux had caused my face and neck to break out with puss filled sores that burst and bled. I quit after 11th course.
May 7, May 14, May 24. (Now scheduled for June 1, 8 and 15). Side effects are fatigue and nausea. Taking anti-nausea meds. Worst part is we can't keep enough fluids in him to flush out the toxins due to chemo. We're told this is more common in throat cancer where food and fluids are taken through a feeding tube. Starting to lose patches of hair.
It seems that my side effects (nausea, tiredness) start a couple days after treatment. Emend and Zofran seem to be helping.
Start November 29, 2010. The drug was erbitux. No side effects with the weekly treatments except for after weeks four and five. After treatment I immediately had chronic chills and shakes in which I was given an injection of demorol and had to lie down for an additional hour until the effects subsided.
Feb 14, 2011, Cisplatin, slightly tired immediately following treatment. March 7, 2011, same as treatement number 1. March 28th, 2011 - TBD
Months of daily treatment with both Cisplatin and Herbitux -- major side effects included a rash that covered me from head to toe, skin that was so dry that my scalped split open and bled when I vomited (which I did several times each day). Further side effects included hallucinations, tremors, chills, hot flashes, disturbed sleep patterns, fever, loss of hair, etc.
February - June 2009 Taxotere Cisplaten 5FU
Three rounds of Cisplatin - nausea, metallic taste and tired
What Tongue Cancer Survivors said about their Chemotherapies.
Three Cisplatin doses, Jan 4, Jan 26, Feb 16. Never got the Feb 16 dose as I was too sick from throwing up.
Erbitux for 6 weeks, no side effects.
second form of chemo 3 more weeks, no side effects
A 2 chemical soup every 3rd Monday and then a 24/5 fanny pack pump the same week as above. I have 1 week on and 2 weeks off treatment
Eurbitux caused a huge itchy red rash EVERYWHERE after week 3. I was almost hospitalized it was so severe, but huge IV bags of Benadryl saved the day.
Set for July 6 and July 21
I started the chemo the frist week in July 2010. I had a reaction to the first chemo which was Carboplatin and taxol so they changed it to Cisplatin and taxotere. They loaded me up on steroids and during the next treatment i had yet another reaction this one only worse than the first. So as a last ditch effort they changed again to cetuximab and honestly i cant remember what the second one they gave me with this was. I was ok with this drug but the side effects were aweful! I broke out all over my face with horrible acne and it made the radiation stronger which made the raidation burns worse.
Chemotherapy to be given concurrently, once a week. Began on 8/23/12.
Do not know yet if I will have to go through Chemotherapy.
What Hodgkins Lymphoma Cancer Survivors said about their Chemotherapies.
So far only 1 Session- 01/10/12
ABVD chemiotherapy, hair loss
4 cycles of chemotherapy ending in late August, radiation to follow depending on how the cancer responds.
Abvd every other week.
started ABVD March 2011
First round with chemo was brutal. Mustard Gas ... my grandfather got the purple-heart in World War 1 because of the genocide they used on our soldiers. The genocide they used was Mustard Gas … ironic huh? It was used in war to kill … it was used on me and so many others to try to save our lives. It was terrible stuff - if a drop of it got out of the vain, it could eat a whole on your skin. And so it did – so imagine what it was doing to the rest of my body. It was the throwing up for 24 hours, so violently that was so hard – especially when the poison itself only worked for 3 minutes…I believe. The rest of the time throwing up was just a bonus! It is easy to get lost amongst the chemo and radiation … but that is what family and friends are for.
12 rounds of ABVD. Side effects: hair loss, weight gain, nausea and fatigue
ABVD, started Feb. 13, 2009.
Started ABVD November 20th~ a little nauseous, headaches, and a little tired..
Clinical Trial-see below
hair loss... weight gain... nerve tingling... bad taste... feet pain... but no vomiting... so not all bad...
August 10th 2010 -Present 6 Cycles -12 Treatments
ABDV-Adriamycin, bleomycin, dacarbazine, and vinblastine. Research Drug- Phase II Trial of Rituximab (Rituxan)-ABVD for Classical Hodgkin Lymphoma
ABVD 08/22/2014: Fatigue, jaw pain, swollen tongue/mouth, loss of taste, hiccups, sneezes, mood swings/anxiety attacks, bone pain, constipation, some nausea, loss of appetite, decreased white blood cells & fevers (resulting in ER visit & week-long hospitalization). ABVD 09/18/2014: Fatigue, hiccups, intense bone pain (pelvis & back), jaw pain, swollen tongue/mouth, loss of taste, emotional, loss of hair. ABVD 10/01/2014: Fatigue, painful bowels, jaw pain, hiccups, mild night sweats, bone pain, difficulty sleeping, mood swings, nausea, joint stiffness, mild skin rash, constipation & severe abdominal pain, decreased white blood cells & fevers (resulting in second ER visit & week-long hospitalization). ABVD (w/20% strength reduction) 10/15/2014: Fatigue, jaw pain, swollen tongue, loss of taste, bone pain, irregular bowels, some constipation, gassy, hiccups, mild night sweats, heart burns, sneezes, difficulty sleeping, mood swings
I had 6 x ABVD last summer. Now 3 x DHAP + stem cell transplantation in the future
6 months of Adriamycin, Cytoxan, Bleomycin, Vincristine, Vinblastine, Procarbazine, and high dose Prednisone.
April 6th 2009 - Initial chemotherapy at the hospital. The immediate effect on the swollen nodes blew my mind. It was almost all gone 48 hours later. Several others that are chronicled in my blog.
im doing an eight mounth treatment plan. every 21 days im back in the hospital for all the chemo they can give me.
ABVD 12 rounds, 6 months
Yes, My chemotherapy treatment was ABVD.
4 Cylces (8 treatments) beginnning March 12. Second Session March 26, April 9th, April 23rd, May 7th, May 21st, June 4th and lastly June 18th!
Stanford V regimen - Weight gain, constipation, fatigue, hair loss.
ABVD treatment; my nausea was well-controlled with prescriptions, but I was often tired in the days following chemo. I went every other Friday so I could recuperate over the weekend and be ready to go back to school Tuesday-Thursday.
ABVD May 2008-October 2008 ICE January 2009-March 2009 BEAM April 2009
What Acute Lymphoblastic Leukemia Cancer Survivors said about their Chemotherapies.
Started induction chemo within the first week of November. Integrating it with holistic therapies
started Feb. 26, 2010 I was admitted to hospital every 3 weeks for a total of 6 rounds of treatment - Cycles A and B.
currently undergoing HYPER C-VAD
finished with induction therapy, now gonna begin with consolidation.
What Bile Duct Cancer Survivors said about their Chemotherapies.
HAIC 24/7 for two consecutive weeks of constant flow chemo delivered directly to the liver. Every two week chem, alt two weeks pump is filled with Saline. NO Side Effects
On my second round of 2 sessions each which are a week apart
Second time around: Fluorouracil (5-FU): given through a portable 48 hour pump Irinotecan (Campto): 1 hour iv, i think First time around: Gemcitabine: will be administered through IV for over an hour. Cisplatin: will be administered through IV for over an hour. He will have to rehydrate 4 ours before injection.
What Leukemia Cancer Survivors said about their Chemotherapies.
January 6 2014 and February 15 2014
What Myelodysplastic Syndrome Cancer Survivors said about their Chemotherapies.
too many to remember
Vidaza 5 day cycle once a month, side effects weight loss, erythema nodula,hair loss(slow), nail discoloration
rituxan, vidaza, and revlimid
What Appendecial Cancer Survivors said about their Chemotherapies.
Fluorouracil (5-fu), Oxaliplatin, Avastin, leucovorin. 1/15-3/2? Side effects - Extreme fatigue, nausea, cold sensitivity, neuropathy
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