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imageBetty - Hard News no longer NED  I have been sort of running around to appointments since I got my PetCT results from late July.  i was dismayed to learn the news 3 lymph nodes in my lungs that were pos.  I had a biopsy which confirmed squamous cell ca probable anal cancer metastasis.   I have an appointment to see the radiation oncologist on Friday.  He did a good job treating my retroperitoneal lymph nodes in 2012. I have been gathering all my charts from various places.  When I …More…
Type: Anal Cancer

imageEllen Talia - Cancer Scan September  On August 21, 2014, I marked the one year anniversary of surviving a massive neck surgery (total thyroidectomy and neck dissection with lymph node removal) to remove cancer that had metastasized locally from my neck.    I feel an infinite amount of love and gratitude to:    1. My family- For always cheering me on, nursing me back to health, navigating the cancer world with me, enduring the unknown and reminding me of the dazzling future that awaits. Thank you for sharing in my …More…
Type: Thyroid Cancer

imageAngela - New Dr. and New Tests  On Thursday, I was able to go and meet my new Dr.  She was great! As I had mentioned earlier, she had actually been the treating Dr. of my late husband, who died of Melanoma in 2002.  She did remember us, and we started off on our rapport well.  Before she threw me straight into chemo, she wanted to do some checking on my cancer.  She felt that my cancer was spreading too quickly.  This is unusual for cervical cancer, …More…
Type: Cervical Cancer

imageMarion - Only 3 more radiations next week...  Still to everyone's surprise, I'm doing just fine. Last chemo was yesterday, and next week I have only 3 more radiations to go. Only thing was this time, I needed a booster shot for those white blod cells today. And today I started getting these extreme swelling in my feet again. Was warned to stay on 'house arrest' for a  few days, until they can do a new blood test on Tuesday; too prone to any possible infections. But besides this all …More…
Type: Tonsil Cancer

imageEmily - Obstructed  I don’t remember if i mentioned this or not, but I’ve been in the hospital with a small bowel obstruction, probably from problems from radiation - but it could be a complication from having had surgery. Because of that I haven’t gotten the internal radiation treatments this week. It’s not pushing them back because when this clears up I don’t think they’re going to do the last 2 treatments since the radiation has caused so much damage. That means I …More…
Type: Endometrial-Uterine Cancer

imageGary Goldsmith - 2 Years Out  This Sunday Aug 31, 2014 will mark 2 year out from Left Tonsil T1N1M0 so far all my test and scan have came back clear. I did 33 IMRT & 6 Cycles of chemo. …More…
Type: Tonsil Cancer

imageLois - new things to figure out...  My husband lost his job yesterday. That was/is my insurance. So today I have to figure out cobra, since my insurance ends on the 31st. All I know it's!$1500! Per month and we're am I going to get that money. .. and I have surgery in a week. We'll that's my news
Type: Breast Cancer

imageLarissa - Thought of the day....journal entry August 29 2014  When your mind is weary and your body cries out in pain you have the choice to curl up in a ball and allow it to consume you or you can stand up, breathe gently and take note of what is around you.  In time the world will remind you that it holds beauty and wonders worth fighting for.  Time, it's not a race but a gentle stroll through life.  My heart, mind and soul cry out for you that …More…
Type: Colon and Rectal Cancer

imageAngela - Unexpected Change of Plans  About 1 pm yesterday, my insurance called me to tell me that they would not pay for my chemotherapy if I stayed with OU Stevenson Cancer Center.  Because I was now not going to do Phase 1 clinical trials (I did not qualify), and I was only going to take the "standard" treatment, then I had to go to an In-Network facility.  I argued and complained and stressed the importance of staying with OU so that I could be available …More…
Type: Cervical Cancer

imageMicah - Crossroads  Treatment #12 is finally here.  As we speak.  Its been a wild past couple of months.  My first port (used to access a vein for chemo... like an IV but temporarily installed under the skin for the duration, and then some, of chemo) developed a clot and had to be removed.  Then there was the PicLine.  Installed in the arm with lines dangling out.  Had to be flushed daily and dressing change weekly.  I held onto that until I couldn't stand …More…
Type: Colon and Rectal Cancer

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