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imageMike Rada - HAPPY PASSOVER EASTER  Well we have all managed to make it too another holiday season .  The reason for the title is because most of us still despise eating so much we'd like to Passover  Easter, Passover, and the rest of the high food intake holidays because:   1). They suck for us we get depressed about what we can or can't taste, eat , swallow, choke on, drink, or just flat out pass to the next person because it's out of the …More…
Type: Tonsil Cancer

imageFaydra - Got some Stories to tell...  In regards to the question posted about how NHL and Herpes. My doctor explained to me that NHL and chicken pox has the same strain and if I got exposed to the virius or had chicken pox it may have come up later in life and turned into NHL. I took gancyclovir for a CMV virius epoisode right after transplant...now I just sound like more confusion. Lets see here. OK, after transplant my transplanted kidney had a CMV virus which activated in …More…
Type: Non-Hodgkin Lymphoma

imageLyssa - Schedule....  2:00: Last Bravelle Shot 8:30 PM: 10,000 unit Trigger shot of Novarel Tomorrow Morning: Pregnancy Test [to make sure the Novarel worked. I'm supposed to be positive, such a cock tease, ugh].   Tomorrow Night: Enema after dinner.... Ugh After Midnight/Early Sun: No food or drink 6:30 on Easter: Arrive at surgery center 7:30 : Egg Retrieval [and we find out how many follicles are actually mature eggs] SWEET OUR KIDS WILL BE CONCEIVED ON 420... They'll be Easter Eggs. Monday: Fertilization Tuesday-Friday: Splitting/Dividing, hopefully we get to blastocyst stage …More…
Type: Endometrial-Uterine Cancer

imageRumpidito - Don't you just love insurance companies?  My oncology office called me and told me they put in an order for the PET scan STAT on Tuesday (today is Friday).  She said they have 72 hours to decide and can take up to 2 weeks to approve it.  She called them to see what the status was and systems were down, please call back later.  I asked her what would happen if I went ahead and scheduled and she said I would be responsible for paying for …More…
Type: Anal Cancer

imageRumpidito - skin care during radiation  Just putting this out there for raditation patients for anal cancer.  I have not started yet but my radiologist said she had a man with anal cancer that used vitamin E oil and he had the best skin she ever saw.  She told me to use that on the female parts only and Aquaphor on the rest and that moisture was the problem so keep everything very dry, if possible use a fan and use the Domboro powder with sitz …More…
Type: Anal Cancer

imageEmily - Checking In  4/17: I tried just now to stand up and walk to the lamp so that I could turn it off. I got dizzy and started seeing flashing lights in front of my eyes. It’s like in Speed Racer! Now I’m laying back down feeling like I may or may not pass out. Everything is kind of moving and I’m still seeing flashing lights. I’m getting an intense headache right now, so I’m going to try to go back to sleep. This …More…
Type: Endometrial-Uterine Cancer

imageLois - too much...too little...too late  So yesterday started outstanding! And ended in what I believed at the time was epic fail... morning I felt good made what I thought was a manageable plan for the day. Dog walking, Lois walking, grocery shopping, light housework. Not what I in any reality would consider hard! So went to mt tabor dog park nice 1/2 mile loop...what a week ago was exhilarating pitstop ,now, I made it through. So I took them to another dog park they could …More…
Type: Breast Cancer

imageRumpidito - What a mess!  Looks like I am a stage 3A not a 2B.  Saw radiologist today she wants PET scan NOW.  Can't do it, insurance has not approved it yet.  She needs another deeper anal tumor biopsy done IF the vaginal one comes back negative.  Radiologist is unhappy that I am allergic to sulfa as it is in Domboro powder.  Having another CT tomorrow.  Might need a bag after all of this as probably will lose sphincter function.  Nothing but bad news today. …More…
Type: Anal Cancer

imagePatti - More Confused...Watchful Waiting???  I met with the Oncologist yesterday and left feeling more confused than ever before. Recently a fine needle biopsy found B Cell Lymphoplasmacytic Lymphoma. After more blood work and CT scans the doctor decided not to remove the Lymph node in my neck or to do a bone marrow biopsy. He said my blood work looked like the Lymphoma was "behaving" at this time. They are still reviewing my upper body CT scans and the lower scans did not show any …More…
Type: Non-Hodgkin Lymphoma

imageLyssa - from the Ovarian Files  So... yesterday I went for the usual ultrasound and bloodwork. The IVF doctor seemed very happy with what he saw. He saw 13 follicles total, not all of them were mature, but still thirteen possible eggs. I think it was 6 on my left and 7 on my right. He said we'd probably trigger in a day or two. Mind you, just because I have 13 follicles, doesn't mean I'll get 13 eggs, out of 13 follicles, maybe only 8 [as …More…
Type: Endometrial-Uterine Cancer

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